Repository of the main European/international efforts to harmonise and integrate cohorts

The SYNCHROS repository has been created to share all key information about initiatives that harmonised and/or integrated cohort data. The repository contains information obtained from 4 different exercises:

1. The mapping of existing initiatives that harmonised/integrated population, patient and clinical trial cohort studies
2. The mapping of existing cohort studies assessing the impact of new exposures on health
3. The mapping of existing population and patient cohorts using social media and new communication technologies
4. The identification of the main European/ international efforts to harmonise and integrate cohorts

The mappings 1 to 3 have been described elsewhere (Deliverable 1.3, 1.4 and 4.2, respectively), hence here we will focus on the main European / international efforts to harmonise and integrate cohorts that have been identified, and subsequently have been included in the repository.

This report contains a description of the SYNCHROS repository of main European and international initiatives, and explains how data have been harmonised and integrated across different cohorts, either population, patient or clinical trial data.

The document contains the following information:

1. Description of the methodological information on harmonisation and integration collected from the identified initiatives.
2. The state of the repository and some preliminary results of the methodological information found.
3. Limitations and conclusions based on the experience of searching for the methodological information of the different initiatives.

The repository is openly accessible at https://repository.synchros.eu/networks