Data set from Van Bulck L, Goossens E, Luyckx K, Apers S, Oechslin E, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries. BMC Health Serv Res. 2020 Jun 3;20(1):496. doi: 10.1186/s12913-020-05361-9. PMID: 32493367; PMCID: PMC7268498.
- Liesbet Van Bulck1
- Eva Goossens2
- Koen Luyckx3
- Silke Apers4
- Erwin Oechslin5
- Corina Thomet6
- Werner Budts7
- Junko Enomoto8
- Maayke A Sluman9
- Chun-Wei Lu10
- Jamie L Jackson11
- Paul Khairy12
- Stephen C Cook13
- Shanthi Chidambarathanu14
- Luis Alday15
- Katrine Eriksen16
- Mikael Dellborg17
- Malin Berghammer18
- Bengt Johansson19
- Andrew S Mackie20
- Samuel Menahem21
- Maryanne Caruana22
- Gruschen Veldtman23
- Alexandra Soufi24
- Susan M Fernandes25
- Kamila White26
- Edward Callus27
- Shelby Kutty28
- Philip Moons29
- 1. KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000, Leuven, Belgium.
- 2. Research Foundation Flanders (FWO), Brussels, Belgium.
- 3. KU Leuven School Psychology and Development in Context, KU Leuven - University of Leuven, Leuven, Belgium.
- 4. Department of Gynaecology and Obstetrics, University Hospitals Leuven, Leuven, Belgium.
- 5. Toronto Congenital Cardiac Centre for Adults, Peter Munk Cardiac Centre, University Health Network, University of Toronto, Toronto, Canada.
- 6. Center for Congenital Heart Disease, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland.
- 7. Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium.
- 8. Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba, Japan.
- 9. Department of Cardiology, Academic Medical Center, Amsterdam, the Netherlands.
- 10. National Taiwan University Hospital and Medical College, National Taiwan University, Taipei, Taiwan.
- 11. Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA.
- 12. Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal, Canada.
- 13. Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA.
- 14. Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India.
- 15. Division of Cardiology, Hospital de Niños, Córdoba, Argentina.
- 16. Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway.
- 17. Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
- 18. Department of Health Sciences, University West, Trollhättan, Sweden.
- 19. Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.
- 20. Division of Cardiology, Stollery Children's Hospital, University of Alberta, Edmonton, Canada.
- 21. Monash Heart, Monash Medical Centre, Monash University, Melbourne, Australia.
- 22. Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Msida, Malta.
- 23. Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
- 24. Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France.
- 25. Adult Congenital Heart Disease Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA.
- 26. Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA.
- 27. Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
- 28. Adult Congenital Heart Disease Center University of Nebraska Medical Center/ Children's Hospital and Medical Center, Omaha, NE, USA.
- 29. KU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000, Leuven, Belgium. philip.moons@kuleuven.be.
Description
Data set from the article Van Bulck L, Goossens E, Luyckx K, Apers S, Oechslin E, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries. BMC Health Serv Res. 2020 Jun 3;20(1):496. doi: 10.1186/s12913-020-05361-9. PMID: 32493367; PMCID: PMC7268498.
This is the abstract:
Background: The relationship between healthcare system inputs (e.g., human resources and infrastructure) and mortality has been extensively studied. However, the association between healthcare system inputs and patient-reported outcomes remains unclear. Hence, we explored the predictive value of human resources and infrastructures of the countries' healthcare system on patient-reported outcomes in adults with congenital heart disease.
Methods: This cross-sectional study included 3588 patients with congenital heart disease (median age = 31y; IQR = 16.0; 52% women; 26% simple, 49% moderate, and 25% complex defects) from 15 countries. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviors, and quality of life. The assessed inputs of the healthcare system were: (i) human resources (i.e., density of physicians and nurses, both per 1000 people) and (ii) infrastructure (i.e., density of hospital beds per 10,000 people). Univariable, multivariable, and sensitivity analyses using general linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences.
Results: Sensitivity analyses showed that higher density of physicians was significantly associated with better self-reported physical and mental health, less psychological distress, and better quality of life. A greater number of nurses was significantly associated with better self-reported physical health, less psychological distress, and less risky health behavior. No associations between a higher density of hospital beds and patient-reported outcomes were observed.
Conclusions: This explorative study suggests that density of human resources for health, measured on country level, are associated with patient-reported outcomes in adults with congenital heart disease. More research needs to be conducted before firm conclusions about the relationships observed can be drawn.
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These data are available upon duly motivated request to Dr. Edward Callus: edward.callus@unimi.it
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