Opening Brazilian COVID-19 patient data to support world research on pandemics
Creators
- Mello, Luiz E.1
- Suman, Andrea2
- Medeiros, Claudia Bauzer3
- Prado, Claudio Almeida4
- Rizzatti, Edgar Gil4
- Nunes, Fatima L. S.5
- Barnabé, Gabriela F.
- Ferreira, João Eduardo6
- Sá, José4
- Reis, Luiz F. L.7
- Rizzo, Luiz Vicente2
- Sarno, Luzia4
- de Lamonica, Raphael7
- Maciel, Rui Monteiro de Barros8
- Cesar-Jr, Roberto Marcondes6
- Carvalho, Rodrigo2
- 1. Federal University of São Paulo and FAPESP, Brazil
- 2. Hospital Albert Einstein, Brazil
- 3. University of Campinas, Brazil
- 4. Grupo Fleury, Brazil
- 5. University of Sao Paulo, Brazil
- 6. University of São Paulo, Brazil
- 7. Hospital Sírio-Libanês, Brazil
- 8. Federal University of São Paulo, Brazil
Description
This paper describes the COVID-19 DataSharing/BR initiative, a pioneer public-private
partnership to publish open data on Brazilian COVID-19 patients. Constructed in record time, it
has been launched with clinical, laboratory and diagnostic data from approximately 177,000 Brazilian
individuals, in answer to researchers’ demand for quality data. COVID-19 DataSharing/BR was
created by a consortium led by FAPESP (Sao Paulo Research Foundation) and USP (University
of Sao Paulo, Brazil), with participation from three major private health institutions in Brazil –
Fleury Institute, Sírio-Libanês Hospital and Albert Einstein Hospital. Launched on July 1st, 2020,
within 10 days it had already been subject to 800 downloads from 14 different countries.This
text provides a brief description of the initiative, and initial efforts for preprocessing and
publishing the data according to legal and interoperability constraints. The COVID-19
DataSharing/BR repository took only one month from inception to delivery, thanks to the support
of a pre-existing extensible open research data e-infrastructure.
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Opening-Brazilian-COVID19-Patient-Data.pdf
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