Dataset Open Access
[DATA_SCIENCE] Interviews: The Secure Anonymised Information Linkage Databank (SAIL)
Tempini, Niccolò
This is a set of interview transcripts executed by Niccolò Tempini between September 2015 and October 2016, as part of the ERC project "The Epistemology of Data-Intensive Science", and in the context of a case study of SAIL. Please read the "Notes on transcript editing" document for further information.
Two papers that specifically make use of these interviews have been published as of 2018:
- Tempini, N., Leonelli, S., 2018. Concealment and discovery: The role of information security in biomedical data re-use. Soc Stud Sci 48, 663–690. https://doi.org/10.1177/0306312718804875
- Tempini, N., 2016. Science Through the “Golden Security Triangle”: Information Security and Data Journeys in Data-intensive Biomedicine, in: Proceedings of the 37th International Conference on Information Systems (ICIS 2016). https://aisel.aisnet.org/icis2016/ISHealthcare/Presentations/20/
The transcripts document SAIL researchers' experience of infrastructure development and data curation and re-use practices. Researchers have consented to have these transcripts made available as Open Data. Other interviewees did not give consent, so those transcripts are held securely by the research team in Exeter.
You also find the information sheet provided to interviewees, which gives you the context for this project. Further information and related publications can be found at www.datastudies.eu.
| Name | Size | |
|---|---|---|
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Ethics_consent_form_DATASCIENCE.pdf
md5:b9fe554cc0f0f8510626eebb78ca77a6 |
102.4 kB | Download |
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Note on transcript editing.md
md5:cfaf269885436590528c30696627a72c |
1.7 kB | Download |
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NT_10.pdf
md5:5c24271447d45f331d2f7c81acc873ae |
97.6 kB | Download |
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NT_11.pdf
md5:4add805f935575efd62f210b18a3a1d7 |
56.9 kB | Download |
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NT_14.pdf
md5:cfcd39c237af57168eea07aaaf6badfb |
109.8 kB | Download |
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NT_15.pdf
md5:a3e8f5efbb289ddd831688d2bc28eb24 |
143.1 kB | Download |
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Project_Brief_2015.pdf
md5:5ca1ebadff5447ac469bb5ceb7736af0 |
204.3 kB | Download |
| All versions | This version | |
|---|---|---|
| Views | 256 | 256 |
| Downloads | 534 | 534 |
| Data volume | 56.1 MB | 56.1 MB |
| Unique views | 234 | 234 |
| Unique downloads | 441 | 441 |
- Publication date:
- January 9, 2019
- DOI:
-
- Grants:
-
European Commission:
- DATA SCIENCE - The Epistemology of Data-Intensive Science (335925)
- Related identifiers:
- Source of
- 10.1177/0306312718804875 (Journal article)
- https://aisel.aisnet.org/icis2016/ISHealthcare/Presentations/20/https://aisel.aisnet.org/icis2016/ISHealthcare/Presentations/20/ (Conference paper)
- Communities:
- License (for files):
- Creative Commons Attribution 4.0 International