Published October 2, 2014
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The BioMedBridges Ethical Governance Framework
Creators
- 1. Wellcome Trust Sanger Institute
- 2. Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University
- 3. TMF – Technologie- und Methodenplattform für die vernetzte medizinische Forschung e.V.
- 4. University of Cardiff and ESRC Centre for Economic and Social Aspects of Genomics (Cesagen)
- 5. Copenhagen Trial Unit (link is external), Centre for Clinical Intervention Research, Copenhagen University Hospital
- 6. Institute for Molecular Medicine Finland (link is external) (FIMM)
- 7. EMBL-EBI / ELIXIR
Description
This document sets out policies for the BioMedBridges project that specifically relate to ethical and regulatory issues with regard to the storage and access of data.
The objective of the BioMedBridges project is to better enable researchers to access data, increasing its utility with the ultimate goal of benefiting society, for example by facilitating new discoveries in health research and by allowing re-analysis of expensive, rare or unrepeatable investigations, while continuing to protect the interests of research participants with regard to their privacy and confidentiality.
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BioMedBridges_Ethical_Governance_Framework_V1-2.pdf
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