1 Data collection


This FAIRness evaluation tool has been created by members of the HealthyCloud consortium, specifically Work Package 3 (WP3). The tool is based on the Australian Research Data Commons (ARDC) FAIR data self-assessment tool.

This 2-in-1 tool (survey form and reporting) is designed to allow assessment of the FAIRness of health-related data infrastructures, and includes questions to assess each of the FAIR principles. These questions are based on a survey developed by members of the consortium with the aim of carrying out a landscape analysis of health-related data infrastructures.

There is an option to select ‘I don’t know’ under each question. However, we would encourage users to consider if there is someone else in their organisation who does know the answer to that question, to increase the accuracy of the assessment. You would need to share the FAIRness report within your organisation. At each updating step, a new csv file can be produced and used to generate an updated FAIRness report.

Step by step guide for users:

  • Input your answers for each question in the tool
  • Click ‘Download’ and save the csv file
  • Re-run the script*, specifying the location at which the csv file has been saved
  • This creates a FAIRness report, including pie charts demonstrating the percentage scores for each principle as well as an overall score.
  • Save and share the FAIRness report as an HTML document.

[*] The tool can be downloaded on ZENODO.org (R studio is required) or accessed on MyBinder.

2 FAIR survey

Findable

Do you have a unique identifier for your datasets?

Do you have a unique identifier for the metadata?

Do you produce or collect metadata for all your data (e.g. handbook, guide for users, description, keywords, timestamp, spatial coverage etc.)?

Do you have a public metadata catalogue service?

Accessible

Do you provide access to individual and/or aggregated data (for third party users)?

Is it possible to extract the data from the data infrastructure (e.g. download) or do they have to stay in the data infrastructure?

Do third party users have to register to the data infrastructure and have an account in order to access the data?

Are the conditions of access published?

Interoperable

What is the format(s) for distributing data?

Which community-recognised vocabularies, standards or methodologies are used for metadata and data to facilitate interoperability?

Do you have a metadata record API endpoint (m2m) in place?

Reusable

Is there a clear procedure for third party users to request (the license) for data re-use?

Have you placed the metadata related to your data infrastructure (that is, the above information provided in this survey) in another available source already?

Is it possible for third party users to access the data and re-use it for more than one purpose/project?

FAIRNESS score

FINDABLE ACCESSIBLE INTEROPERABLE REUSABLE

3 FAIR report

## [1] "Follow the step by step guide to produce the FAIR report"