I understand your frustration.  Almost every family is touched by someone with a serious illness and wants desperately for cures to be discovered.  We created a system originally designed to keep people as safe as possible but have seen it morph into something unrecognizable.  Big pharma is big money.  They have found treatments for many illnesses but few cures.  Treatments mean constant inflows of cash whereas cures closes that valve.  Some individual doctors, homeopaths, natural medicine practitioners might have some success but it's limited. But so too, there are snake oil salesmen who see illness as a way to enrich themselves.  It's a real balancing act.  But that said, there are artificial blockades put up by drug companies, laws that can be adjusted or changed and things Trump can work on to expedite the process and reward companies that do find cures.  We need to encourage him to do everything possible to shorten the time between a breakthrough and getting it to people that need it.  I hope your prayers are answered and your daughter gets better soon.  Hang in there.