I feel so bad for you as the same thing happened to me, it really creeped me out too. My husband just happened to find a woman on instagram that was stealing my pictures and using them to gain attention and sympathy. (I'm severely sick and disabled, requiring a powered wheelchair to move and at the time I was fed via a tube in my nose. I now have a permanent tube in my abdomen that is hidden by my clothes.) She was taking my pictures and posting them as her own, claiming to have pretty much every illness you've ever heard of. I never posted my photos for sympathy, I just enjoyed documenting my life with my amazing husband and my gorgeous dog.  It also allowed me to meet other people facing the same problems so I didn't feel so alone. It was disturbing as fuck to find this woman stealing my pictures and pretending to be ill. She'd even set up a fundraiser on Go Fund Me using my picture!  They took it down once I proved to them that she'd used my picture for it. It scared the shit out of me and I quickly turned all my social media accounts private. I've since stopped using anything other than anonymous forums like this as it happened a second time with what turned out to be a guy using my pictures to get attention! I no longer use Facebook, Instagram, Twitter etc as I just don't trust them.  I found out first hand that if someone steals your pictures then there's nothing you can really do about it. It's fucking terrifying!