Please let me know if you have any questions at all or if I can refer you to the people who represent the company officially. I'm not sure what your boyfriends situation is like but some children who have mutations that are covered have gone from 8+ hours a day of breathing and other therapy to only a few, and their lifespan has expected to double. I hope that whatever type he has is able to be treated now or soon, and I hope all types will truly be conquered one day.