Honestly, not only do most doctors not understand Lymph edema it is rare enough that it will go mis diagnosed.  The most common treatment when they see swelling is to give lasix and tell the patient to raise their feet, normal swelling with an intact lymph system will be able to reduce the swelling, however once this disease is diagnosed there is no cure and as such there is only temporary treatment which is VERY RARELY covered by insurance.  The machine pumps used to stimulate lymph angioms at home are thousands of dollars and all of the wraps as well cost a lot of money.  Moving from this point it is an issue people not being seen, however health insurance companies really dont cover Lymph Edema as a primary diagnosis.  This is normally seen as a secondary diagnosis to a much more serious condition.  TLDR:  1: Mis Diagnosis 2: No health insurance coverage and expensive treatment.