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The German Human Genome-Phenome Archive (GHGA) is a research consortium which is currently establishing a federated data infrastructure allowing the secure storage of and controlled access to omics and related health data consented for scientific research use. This whitepaper contains guidance for Data Submitters on how to update their consent forms such that data may be shared via GHGA for secondary research use.
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\n\nWith increasing numbers of sequenced human genomes in research and clinical settings, the need for a secure and standardized archive for omics data is growing. GHGA strives to provide a national infrastructure as well as an ethico-legal framework that balances FAIR omics data usage and data protection needs.
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