10.5281/zenodo.6310219
https://zenodo.org/records/6310219
oai:zenodo.org:6310219
Beauvais, Michael J.S.
Michael J.S.
Beauvais
0000-0002-8371-3836
Centre of Genomics and Policy, McGill University
Knoppers, Bartha Maria
Bartha Maria
Knoppers
0000-0001-7004-2722
Centre of Genomics and Policy, McGill University
Cavoukian, Ann
Ann
Cavoukian
Privacy by Design Centre of Excellence, Ryerson University
Clarkson, John
John
Clarkson
Ontario Brain Institute
Green-Noble, Lindsay
Lindsay
Green-Noble
Ontario Brain Institute
Illes, Judy
Judy
Illes
Neuroethics Canada, University of British Columbia
Karamchandani, Jason
Jason
Karamchandani
The Neuro, McGill University
Nadler, Roland
Roland
Nadler
University of British Columbia
Roskams-Edris, Dylan
Dylan
Roskams-Edris
Tanenbaum Open Science Institute, McGill University
Stewart, Walter
Walter
Stewart
Walter Stewart Associates
Bermudez, Patrick
Patrick
Bermudez
McGill Centre for Integrative Neuroscience
Farrés, Marcel
Marcel
Farrés
The Neuro, McGill University
Royer, Jessica
Jessica
Royer
The Neuro, McGill University
Zatorre, Robert
Robert
Zatorre
Zatorre, Robert
CONP Ethics Toolkit v1.0.3
Zenodo
2022
ethics
privacy
law
open science
neuroscience
neuroethics
human subjects research regulation
2022-02-28
eng
https://github.com/CONP-PCNO/Ethics_and_Data_Governance/tree/v1.0.3
10.5281/zenodo.5167947
v1.0.3
Creative Commons Attribution 4.0 International
CONP Ethics Toolkit consisting of:
Model prospective consent clauses
Retrospective consent filter
De-identification information and tools
This consent toolkit is the product of extended discussions and careful drafting that considers both Canadian and international ethical frameworks and research practice.
In adapting this consent toolkit for your own research needs, we encourage you to mention to your research ethics board that your consent materials are modeled after those created by the CONP Ethics and Governance Committee. The Committee's members include internationally recognized experts in research ethics, neuroethics, data governance, and law. The Committee's members are Bartha Maria Knoppers (Chair), Alexander Bernier (Manager), Ann Cavoukian, John Clarkson, Lindsay Green-Noble, Judy Illes, Jason Karamchandani, Roland Nadler, Dylan Roskams-Edris, and Walter Stewart.
Further feedback was graciously provided from members of the CONP community, in particular Patrick Bermudez, Marcel Farrés Franch, Jessica Royer, and Robert Zatorre.
GitHub source: https://github.com/CONP-PCNO/Ethics_and_Data_Governance