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B1MG D1.1 Document describing the operational organisation and processes for the Stakeholder Coordination Group (SCG)

Horgan, Denis; Kok, Ruben; Bernini, Chiara; Andreu, Toni; Oldoni, Emanuela; van Rijswijk, Merlijn

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  <identifier identifierType="DOI">10.5281/zenodo.5786736</identifier>
      <creatorName>Horgan, Denis</creatorName>
      <creatorName>Kok, Ruben</creatorName>
      <affiliation>DTL Projects</affiliation>
      <creatorName>Bernini, Chiara</creatorName>
      <creatorName>Andreu, Toni</creatorName>
      <creatorName>Oldoni, Emanuela</creatorName>
      <creatorName>van Rijswijk, Merlijn</creatorName>
      <familyName>van Rijswijk</familyName>
      <affiliation>DTL Projects</affiliation>
    <title>B1MG D1.1 Document describing the operational organisation and processes for the Stakeholder Coordination Group (SCG)</title>
    <subject>1+Million Genomes Initiative</subject>
    <subject>B1MG Stakeholder Forum</subject>
    <subject>B1MG Stakeholder Portal</subject>
    <date dateType="Issued">2020-11-25</date>
  <resourceType resourceTypeGeneral="Text">Project deliverable</resourceType>
    <alternateIdentifier alternateIdentifierType="url"></alternateIdentifier>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.4289989</relatedIdentifier>
    <rights rightsURI="">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
    <description descriptionType="Abstract">&lt;p&gt;B1MG WP1 facilitates the engagement of stakeholders in the field of genomics-based health in the B1MG project and 1+MG initiative. Priority of the overall stakeholder engagement process in B1MG is to involve key stakeholders in the essential workstreams organised as part of the B1MG Work Packages (WPs) and their corresponding 1+MG Working Groups (WGs). Stakeholders are (experts of) organisations of a variable nature and scope, and B1MG chooses to organise their involvement at multiple levels.&lt;/p&gt;

&lt;p&gt;Stakeholders are here defined as European/international, national and regional organisations and individuals active in and/or interested in the development and implementation of genomics-based health in national and regional healthcare systems. In particular, B1MG addresses stakeholders that have the expertise and capacities to play a role in the European 1+MG Initiative and are committed to realising the key goal of the 1+MG initiative: the ability to make genomics and related health data accessible across borders for trans-national use in research, diagnostics and/or innovation of healthcare.&lt;/p&gt;

&lt;p&gt;The B1MG stakeholder organisation arranges for a general Stakeholder Forum, bringing together all stakeholders engaged in, or interested in the 1+MG initiative. Stakeholder Forum meetings are held once per year, co-organised with leads/teams of all B1MG WPs/1+MG WGs to discuss the progress in the project and 1+MG initiative. The WP1 team will co-organise, facilitate and report on the outcome of these yearly meetings in yearly reports.&lt;/p&gt;

&lt;p&gt;Through a dedicated Stakeholder Portal arranged through WP1 in close collaboration with WP6 (technical implementation), B1MG arranges for a central communication channel with stakeholders on matters dealt with in the B1MG operational work packages. Experts of stakeholder organisations are invited to register to allow access to the portal, granted upon WP1 approval. All WPs of the B1MG project use the portal to inform and consult stakeholders in the design of scoping papers, recommendations, guidelines and other output.&lt;/p&gt;

&lt;p&gt;B1MG facilitates the participation of (experts of) selected stakeholders in workstreams&lt;/p&gt;

&lt;p&gt;organised in the B1MG project WPs and corresponding WGs of the 1+MG initiative. In addition, a limited selection of specific stakeholder Partner Projects is engaged. These projects have important capacity and ongoing work that fully aligns with the 1+MG/B1MG ambitions. Only projects that can actively contribute to the workstreams organised in the 1+MG initiative and are committed to help realise the 1+MG goals can become B1MG Partner Projects.&lt;/p&gt;

&lt;p&gt;Stakeholders are also involved in addressing the overarching subject of citizen trust and public engagement, crucial for the implementation of genomics-based health strategies across Europe. B1MG WP1 facilitates the B1MG process to establish recommendations to realise citizen engagement and build citizen trust across 1+MG.&lt;/p&gt;</description>
    <description descriptionType="Other">B1MG has received funding from the European Union's Horizon 2020 Research and Innovation programme under grant agreement No 951724</description>
      <funderName>European Commission</funderName>
      <funderIdentifier funderIdentifierType="Crossref Funder ID">10.13039/100010661</funderIdentifier>
      <awardNumber awardURI="info:eu-repo/grantAgreement/EC/Horizon 2020 Framework Programme - Coordination and support action/951724/">951724</awardNumber>
      <awardTitle>Beyond 1M Genomes</awardTitle>
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