Software Open Access
CONP Ethics Toolkit v1.0.2
Beauvais, Michael J.S.;
Knoppers, Bartha Maria;
Cavoukian, Ann;
Clarkson, John;
Green-Noble, Lindsay;
Illes, Judy;
Karamchandani, Jason;
Nadler, Roland;
Roskams-Edris, Dylan;
Stewart, Walter;
Bermudez, Patrick;
Farrés, Marcel;
Royer, Jessica;
Zatorre, Robert
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<subfield code="a"><p>CONP Ethics Toolkit consisting of:</p>
<ol>
<li>Model prospective consent clauses</li>
<li>Retrospective consent filter</li>
<li>De-identification information and tools</li>
</ol>
<p>This consent toolkit is the product of extended discussions and careful drafting that considers both&nbsp;<a href="https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html">Canadian</a>&nbsp;and&nbsp;<a href="https://cioms.ch/publications/product/international-ethical-guidelines-for-health-related-research-involving-humans/">international</a>&nbsp;ethical frameworks and research practice.</p>
<p>In adapting this consent toolkit for your own research needs, we encourage you to mention to your research ethics board that your consent materials closely follow the templates created by the&nbsp;<a href="https://conp.ca/ethics-data-governance/">CONP Ethics and Governance Committee</a>. The Committee&#39;s members include internationally recognized experts in research ethics, neuroethics, data governance, and law. The Committee&#39;s members are: Bartha Maria Knoppers (Chair), Michael Beauvais (Manager), Ann Cavoukian, John Clarkson, Lindsay Green-Noble, Judy Illes, Jason Karamchandani, Roland Nadler, Dylan Roskams-Edris, and Walter Stewart.</p>
<p>Further feedback was graciously provided from members of the CONP community, in particular Patrick Bermudez, Marcel Farr&eacute;s Franch, Jessica Royer, and Robert Zatorre.</p>
<p><strong>Full Changelog</strong>: <a href="https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2">https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2</a></p>
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| All versions | This version | |
|---|---|---|
| Views | 360 | 104 |
| Downloads | 22 | 1 |
| Data volume | 382.4 kB | 17.3 kB |
| Unique views | 250 | 70 |
| Unique downloads | 15 | 1 |
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- Publication date:
- November 8, 2021
- DOI:
-
- Keyword(s):
- ethics privacy law open science neuroscience neuroethics human subjects research regulation
- Related identifiers:
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- License (for files):
- Creative Commons Attribution 4.0 International