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CONP Ethics Toolkit v1.0.2

Beauvais, Michael J.S.; Knoppers, Bartha Maria; Cavoukian, Ann; Clarkson, John; Green-Noble, Lindsay; Illes, Judy; Karamchandani, Jason; Nadler, Roland; Roskams-Edris, Dylan; Stewart, Walter; Bermudez, Patrick; Farrés, Marcel; Royer, Jessica; Zatorre, Robert


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    <subfield code="a">&lt;p&gt;CONP Ethics Toolkit consisting of:&lt;/p&gt;

&lt;ol&gt;
	&lt;li&gt;Model prospective consent clauses&lt;/li&gt;
	&lt;li&gt;Retrospective consent filter&lt;/li&gt;
	&lt;li&gt;De-identification information and tools&lt;/li&gt;
&lt;/ol&gt;

&lt;p&gt;This consent toolkit is the product of extended discussions and careful drafting that considers both&amp;nbsp;&lt;a href="https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html"&gt;Canadian&lt;/a&gt;&amp;nbsp;and&amp;nbsp;&lt;a href="https://cioms.ch/publications/product/international-ethical-guidelines-for-health-related-research-involving-humans/"&gt;international&lt;/a&gt;&amp;nbsp;ethical frameworks and research practice.&lt;/p&gt;

&lt;p&gt;In adapting this consent toolkit for your own research needs, we encourage you to mention to your research ethics board that your consent materials closely follow the templates created by the&amp;nbsp;&lt;a href="https://conp.ca/ethics-data-governance/"&gt;CONP Ethics and Governance Committee&lt;/a&gt;. The Committee&amp;#39;s members include internationally recognized experts in research ethics, neuroethics, data governance, and law. The Committee&amp;#39;s members are: Bartha Maria Knoppers (Chair), Michael Beauvais (Manager), Ann Cavoukian, John Clarkson, Lindsay Green-Noble, Judy Illes, Jason Karamchandani, Roland Nadler, Dylan Roskams-Edris, and Walter Stewart.&lt;/p&gt;

&lt;p&gt;Further feedback was graciously provided from members of the CONP community, in particular Patrick Bermudez, Marcel Farr&amp;eacute;s Franch, Jessica Royer, and Robert Zatorre.&lt;/p&gt;

&lt;p&gt;&lt;strong&gt;Full Changelog&lt;/strong&gt;: &lt;a href="https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2"&gt;https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2&lt;/a&gt;&lt;/p&gt;

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