November 8, 2021 Software Open Access

Beauvais, Michael J.S.; Knoppers, Bartha Maria; Cavoukian, Ann; Clarkson, John; Green-Noble, Lindsay; Illes, Judy; Karamchandani, Jason; Nadler, Roland; Roskams-Edris, Dylan; Stewart, Walter; Bermudez, Patrick; Farrés, Marcel; Royer, Jessica; Zatorre, Robert

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{
  "inLanguage": {
    "alternateName": "eng", 
    "@type": "Language", 
    "name": "English"
  }, 
  "description": "<p>CONP Ethics Toolkit consisting of:</p>\n\n<ol>\n\t<li>Model prospective consent clauses</li>\n\t<li>Retrospective consent filter</li>\n\t<li>De-identification information and tools</li>\n</ol>\n\n<p>This consent toolkit is the product of extended discussions and careful drafting that considers both&nbsp;<a href=\"https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html\">Canadian</a>&nbsp;and&nbsp;<a href=\"https://cioms.ch/publications/product/international-ethical-guidelines-for-health-related-research-involving-humans/\">international</a>&nbsp;ethical frameworks and research practice.</p>\n\n<p>In adapting this consent toolkit for your own research needs, we encourage you to mention to your research ethics board that your consent materials closely follow the templates created by the&nbsp;<a href=\"https://conp.ca/ethics-data-governance/\">CONP Ethics and Governance Committee</a>. The Committee&#39;s members include internationally recognized experts in research ethics, neuroethics, data governance, and law. The Committee&#39;s members are: Bartha Maria Knoppers (Chair), Michael Beauvais (Manager), Ann Cavoukian, John Clarkson, Lindsay Green-Noble, Judy Illes, Jason Karamchandani, Roland Nadler, Dylan Roskams-Edris, and Walter Stewart.</p>\n\n<p>Further feedback was graciously provided from members of the CONP community, in particular Patrick Bermudez, Marcel Farr&eacute;s Franch, Jessica Royer, and Robert Zatorre.</p>\n\n<p><strong>Full Changelog</strong>: <a href=\"https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2\">https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2</a></p>\n\n<div>&nbsp;</div>", 
  "license": "https://creativecommons.org/licenses/by/4.0/legalcode", 
  "creator": [
    {
      "affiliation": "Centre of Genomics and Policy, McGill University", 
      "@id": "https://orcid.org/0000-0002-8371-3836", 
      "@type": "Person", 
      "name": "Beauvais, Michael J.S."
    }, 
    {
      "affiliation": "Centre of Genomics and Policy, McGill University", 
      "@id": "https://orcid.org/0000-0001-7004-2722", 
      "@type": "Person", 
      "name": "Knoppers, Bartha Maria"
    }, 
    {
      "affiliation": "Privacy by Design Centre of Excellence, Ryerson University", 
      "@type": "Person", 
      "name": "Cavoukian, Ann"
    }, 
    {
      "affiliation": "Ontario Brain Institute", 
      "@type": "Person", 
      "name": "Clarkson, John"
    }, 
    {
      "affiliation": "Ontario Brain Institute", 
      "@type": "Person", 
      "name": "Green-Noble, Lindsay"
    }, 
    {
      "affiliation": "Neuroethics Canada, University of British Columbia", 
      "@type": "Person", 
      "name": "Illes, Judy"
    }, 
    {
      "affiliation": "The Neuro, McGill University", 
      "@type": "Person", 
      "name": "Karamchandani, Jason"
    }, 
    {
      "affiliation": "University of British Columbia", 
      "@type": "Person", 
      "name": "Nadler, Roland"
    }, 
    {
      "affiliation": "Tanenbaum Open Science Institute, McGill University", 
      "@type": "Person", 
      "name": "Roskams-Edris, Dylan"
    }, 
    {
      "affiliation": "Walter Stewart Associates", 
      "@type": "Person", 
      "name": "Stewart, Walter"
    }, 
    {
      "affiliation": "McGill Centre for Integrative Neuroscience", 
      "@type": "Person", 
      "name": "Bermudez, Patrick"
    }, 
    {
      "affiliation": "The Neuro, McGill University", 
      "@type": "Person", 
      "name": "Farr\u00e9s, Marcel"
    }, 
    {
      "affiliation": "The Neuro, McGill University", 
      "@type": "Person", 
      "name": "Royer, Jessica"
    }, 
    {
      "affiliation": "The Neuro, McGill University", 
      "@type": "Person", 
      "name": "Zatorre, Robert"
    }
  ], 
  "url": "https://zenodo.org/record/5655350", 
  "codeRepository": "https://github.com/CONP-PCNO/Ethics_and_Data_Governance/tree/v1.0.2", 
  "datePublished": "2021-11-08", 
  "version": "v1.0.2", 
  "keywords": [
    "ethics", 
    "privacy", 
    "law", 
    "open science", 
    "neuroscience", 
    "neuroethics", 
    "human subjects research regulation"
  ], 
  "@context": "https://schema.org/", 
  "identifier": "https://doi.org/10.5281/zenodo.5655350", 
  "@id": "https://doi.org/10.5281/zenodo.5655350", 
  "@type": "SoftwareSourceCode", 
  "name": "CONP Ethics Toolkit v1.0.2"
}