November 8, 2021 Software Open Access

Beauvais, Michael J.S.; Knoppers, Bartha Maria; Cavoukian, Ann; Clarkson, John; Green-Noble, Lindsay; Illes, Judy; Karamchandani, Jason; Nadler, Roland; Roskams-Edris, Dylan; Stewart, Walter; Bermudez, Patrick; Farrés, Marcel; Royer, Jessica; Zatorre, Robert

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  <identifier identifierType="DOI">10.5281/zenodo.5655350</identifier>
  <creators>
    <creator>
      <creatorName>Beauvais, Michael J.S.</creatorName>
      <givenName>Michael J.S.</givenName>
      <familyName>Beauvais</familyName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-8371-3836</nameIdentifier>
      <affiliation>Centre of Genomics and Policy, McGill University</affiliation>
    </creator>
    <creator>
      <creatorName>Knoppers, Bartha Maria</creatorName>
      <givenName>Bartha Maria</givenName>
      <familyName>Knoppers</familyName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0001-7004-2722</nameIdentifier>
      <affiliation>Centre of Genomics and Policy, McGill University</affiliation>
    </creator>
    <creator>
      <creatorName>Cavoukian, Ann</creatorName>
      <givenName>Ann</givenName>
      <familyName>Cavoukian</familyName>
      <affiliation>Privacy by Design Centre of Excellence, Ryerson University</affiliation>
    </creator>
    <creator>
      <creatorName>Clarkson, John</creatorName>
      <givenName>John</givenName>
      <familyName>Clarkson</familyName>
      <affiliation>Ontario Brain Institute</affiliation>
    </creator>
    <creator>
      <creatorName>Green-Noble, Lindsay</creatorName>
      <givenName>Lindsay</givenName>
      <familyName>Green-Noble</familyName>
      <affiliation>Ontario Brain Institute</affiliation>
    </creator>
    <creator>
      <creatorName>Illes, Judy</creatorName>
      <givenName>Judy</givenName>
      <familyName>Illes</familyName>
      <affiliation>Neuroethics Canada, University of British Columbia</affiliation>
    </creator>
    <creator>
      <creatorName>Karamchandani, Jason</creatorName>
      <givenName>Jason</givenName>
      <familyName>Karamchandani</familyName>
      <affiliation>The Neuro, McGill University</affiliation>
    </creator>
    <creator>
      <creatorName>Nadler, Roland</creatorName>
      <givenName>Roland</givenName>
      <familyName>Nadler</familyName>
      <affiliation>University of British Columbia</affiliation>
    </creator>
    <creator>
      <creatorName>Roskams-Edris, Dylan</creatorName>
      <givenName>Dylan</givenName>
      <familyName>Roskams-Edris</familyName>
      <affiliation>Tanenbaum Open Science Institute, McGill University</affiliation>
    </creator>
    <creator>
      <creatorName>Stewart, Walter</creatorName>
      <givenName>Walter</givenName>
      <familyName>Stewart</familyName>
      <affiliation>Walter Stewart Associates</affiliation>
    </creator>
    <creator>
      <creatorName>Bermudez, Patrick</creatorName>
      <givenName>Patrick</givenName>
      <familyName>Bermudez</familyName>
      <affiliation>McGill Centre for Integrative Neuroscience</affiliation>
    </creator>
    <creator>
      <creatorName>Farrés, Marcel</creatorName>
      <givenName>Marcel</givenName>
      <familyName>Farrés</familyName>
      <affiliation>The Neuro, McGill University</affiliation>
    </creator>
    <creator>
      <creatorName>Royer, Jessica</creatorName>
      <givenName>Jessica</givenName>
      <familyName>Royer</familyName>
      <affiliation>The Neuro, McGill University</affiliation>
    </creator>
    <creator>
      <creatorName>Zatorre, Robert</creatorName>
      <givenName>Robert</givenName>
      <familyName>Zatorre</familyName>
      <affiliation>The Neuro, McGill University</affiliation>
    </creator>
  </creators>
  <titles>
    <title>CONP Ethics Toolkit v1.0.2</title>
  </titles>
  <publisher>Zenodo</publisher>
  <publicationYear>2021</publicationYear>
  <subjects>
    <subject>ethics</subject>
    <subject>privacy</subject>
    <subject>law</subject>
    <subject>open science</subject>
    <subject>neuroscience</subject>
    <subject>neuroethics</subject>
    <subject>human subjects research regulation</subject>
  </subjects>
  <dates>
    <date dateType="Issued">2021-11-08</date>
  </dates>
  <language>en</language>
  <resourceType resourceTypeGeneral="Software"/>
  <alternateIdentifiers>
    <alternateIdentifier alternateIdentifierType="url">https://zenodo.org/record/5655350</alternateIdentifier>
  </alternateIdentifiers>
  <relatedIdentifiers>
    <relatedIdentifier relatedIdentifierType="URL" relationType="IsSupplementTo">https://github.com/CONP-PCNO/Ethics_and_Data_Governance/tree/v1.0.2</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.5167947</relatedIdentifier>
  </relatedIdentifiers>
  <version>v1.0.2</version>
  <rightsList>
    <rights rightsURI="https://creativecommons.org/licenses/by/4.0/legalcode">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
  </rightsList>
  <descriptions>
    <description descriptionType="Abstract">&lt;p&gt;CONP Ethics Toolkit consisting of:&lt;/p&gt;

&lt;ol&gt;
	&lt;li&gt;Model prospective consent clauses&lt;/li&gt;
	&lt;li&gt;Retrospective consent filter&lt;/li&gt;
	&lt;li&gt;De-identification information and tools&lt;/li&gt;
&lt;/ol&gt;

&lt;p&gt;This consent toolkit is the product of extended discussions and careful drafting that considers both&amp;nbsp;&lt;a href="https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html"&gt;Canadian&lt;/a&gt;&amp;nbsp;and&amp;nbsp;&lt;a href="https://cioms.ch/publications/product/international-ethical-guidelines-for-health-related-research-involving-humans/"&gt;international&lt;/a&gt;&amp;nbsp;ethical frameworks and research practice.&lt;/p&gt;

&lt;p&gt;In adapting this consent toolkit for your own research needs, we encourage you to mention to your research ethics board that your consent materials closely follow the templates created by the&amp;nbsp;&lt;a href="https://conp.ca/ethics-data-governance/"&gt;CONP Ethics and Governance Committee&lt;/a&gt;. The Committee&amp;#39;s members include internationally recognized experts in research ethics, neuroethics, data governance, and law. The Committee&amp;#39;s members are: Bartha Maria Knoppers (Chair), Michael Beauvais (Manager), Ann Cavoukian, John Clarkson, Lindsay Green-Noble, Judy Illes, Jason Karamchandani, Roland Nadler, Dylan Roskams-Edris, and Walter Stewart.&lt;/p&gt;

&lt;p&gt;Further feedback was graciously provided from members of the CONP community, in particular Patrick Bermudez, Marcel Farr&amp;eacute;s Franch, Jessica Royer, and Robert Zatorre.&lt;/p&gt;

&lt;p&gt;&lt;strong&gt;Full Changelog&lt;/strong&gt;: &lt;a href="https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2"&gt;https://github.com/CONP-PCNO/Ethics_and_Data_Governance/compare/v1.0.1...v1.0.2&lt;/a&gt;&lt;/p&gt;

&lt;div&gt;&amp;nbsp;&lt;/div&gt;</description>
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