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<?xml version='1.0' encoding='utf-8'?> <rdf:RDF xmlns:rdf="http://www.w3.org/1999/02/22-rdf-syntax-ns#" xmlns:adms="http://www.w3.org/ns/adms#" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:dct="http://purl.org/dc/terms/" xmlns:dctype="http://purl.org/dc/dcmitype/" xmlns:dcat="http://www.w3.org/ns/dcat#" xmlns:duv="http://www.w3.org/ns/duv#" xmlns:foaf="http://xmlns.com/foaf/0.1/" xmlns:frapo="http://purl.org/cerif/frapo/" xmlns:geo="http://www.w3.org/2003/01/geo/wgs84_pos#" xmlns:gsp="http://www.opengis.net/ont/geosparql#" xmlns:locn="http://www.w3.org/ns/locn#" xmlns:org="http://www.w3.org/ns/org#" xmlns:owl="http://www.w3.org/2002/07/owl#" xmlns:prov="http://www.w3.org/ns/prov#" xmlns:rdfs="http://www.w3.org/2000/01/rdf-schema#" xmlns:schema="http://schema.org/" xmlns:skos="http://www.w3.org/2004/02/skos/core#" xmlns:vcard="http://www.w3.org/2006/vcard/ns#" xmlns:wdrs="http://www.w3.org/2007/05/powder-s#"> <rdf:Description rdf:about="https://doi.org/10.5281/zenodo.4722674"> <dct:identifier rdf:datatype="http://www.w3.org/2001/XMLSchema#anyURI">https://doi.org/10.5281/zenodo.4722674</dct:identifier> <foaf:page rdf:resource="https://doi.org/10.5281/zenodo.4722674"/> <dct:creator> <rdf:Description rdf:about="http://orcid.org/0000-0001-6231-4062"> <rdf:type rdf:resource="http://xmlns.com/foaf/0.1/Agent"/> <dct:identifier rdf:datatype="http://www.w3.org/2001/XMLSchema#string">0000-0001-6231-4062</dct:identifier> <foaf:name>Mohamad Adam Bujang</foaf:name> <org:memberOf> <foaf:Organization> <foaf:name>Clinical Research Centre, Sarawak General Hospital, Institute for Clinical Research, NIH</foaf:name> </foaf:Organization> </org:memberOf> </rdf:Description> </dct:creator> <dct:title>Patient Registry Data for Research: A Basic Practical Guide</dct:title> <dct:publisher> <foaf:Agent> <foaf:name>Zenodo</foaf:name> </foaf:Agent> </dct:publisher> <dct:issued rdf:datatype="http://www.w3.org/2001/XMLSchema#gYear">2021</dct:issued> <dcat:keyword>Patient Registry</dcat:keyword> <dcat:keyword>Disease Registry</dcat:keyword> <dcat:keyword>Clinical Research</dcat:keyword> <dcat:keyword>Medical Registry</dcat:keyword> <dcat:keyword>Research Data</dcat:keyword> <dcat:keyword>Biostatistics</dcat:keyword> <dct:issued rdf:datatype="http://www.w3.org/2001/XMLSchema#date">2021-04-27</dct:issued> <dct:language rdf:resource="http://publications.europa.eu/resource/authority/language/ENG"/> <owl:sameAs rdf:resource="https://zenodo.org/record/4722674"/> <adms:identifier> <adms:Identifier> <skos:notation rdf:datatype="http://www.w3.org/2001/XMLSchema#anyURI">https://zenodo.org/record/4722674</skos:notation> <adms:schemeAgency>url</adms:schemeAgency> </adms:Identifier> </adms:identifier> <dct:isVersionOf rdf:resource="https://doi.org/10.5281/zenodo.4722673"/> <dct:isPartOf rdf:resource="https://zenodo.org/communities/crc_icr_nih"/> <dct:description><p>Analysis of patient data can be a complicated and challenging process, especially when the data involve many subjects and many variables. A patient registry is a database that organizes collecting the important set of data on a list of identifiable individuals for a specific disease. This type of data usually has tons of data and hundreds of different variables. Thus, the approach to conducting research by using a patient registry database will be more complicated than the other types of dataset. Since the handling of patient registry data is a challenging task, the authors have come out with this book to become a guideline for the statisticians, medical officers and scientists for them to refer as a handbook whenever they need to use patient registry data for their research.</p></dct:description> <dct:accessRights rdf:resource="http://publications.europa.eu/resource/authority/access-right/PUBLIC"/> <dct:accessRights> <dct:RightsStatement rdf:about="info:eu-repo/semantics/openAccess"> <rdfs:label>Open Access</rdfs:label> </dct:RightsStatement> </dct:accessRights> <dct:license rdf:resource="https://creativecommons.org/licenses/by-nc/4.0/legalcode"/> <dcat:distribution> <dcat:Distribution> <dcat:accessURL rdf:resource="https://doi.org/10.5281/zenodo.4722674"/> <dcat:byteSize>7597911</dcat:byteSize> <dcat:downloadURL rdf:resource="https://zenodo.org/record/4722674/files/Copy w cover of v1.3 ebook20210401.pdf"/> <dcat:mediaType>application/pdf</dcat:mediaType> </dcat:Distribution> </dcat:distribution> </rdf:Description> </rdf:RDF>
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