Dataset Open Access

WHO International Clinical Trials Registry Platform (ICTRP), April 2015

van Valkenhoef, Gert

The World Health Organization (WHO) International Clinical Trials Registry Platform (ICTRP) dataset, retrieved in April 2015.

At the time of writing, the WHO ICTRP does not have any way for the general public to retrieve their complete dataset. They provided special access to us (ClinicalTrials.gov) to retrieve the data, and gave permission for us to make the data publicly available.

We distinguish records (a trial as registered in a specific registry) and variants (different versions of a record within that registry). Only the EU Clinical Trials Register (EUCTR) has multiple variants for some records, one for each member state where the trial was registered.

The dataset consists of 320,790 variants of 285,177 unique records from sixteen registries. Variants were retrieved one-at-a-time over the course of the first week of April, as requests took ~ 2 seconds each to resolve. A list of non-ClinicalTrials.gov records was provided by the WHO, and a list of ClinicalTrials.gov records was retrieved from ClinicalTrials.gov.

These data are referenced in one manuscript under review and one in preparation that will be published open access. We hope it will also be useful to others.
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