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De-identification Guidance

Portage COVID-19 Working Group; Kristi Thompson; Erin Clary; Lucia Costanzo; Beth Knazook; Nick Rochlin; Felicity Tayler; Jane Fry; Chantal Ripp; Kathy Szigeti; Qian Zhang; Roger Reka; Minglu Wang; Rebecca Dickson; Mark Leggott; Melanie Parlette-Stewart


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  <identifier identifierType="DOI">10.5281/zenodo.4270551</identifier>
  <creators>
    <creator>
      <creatorName>Portage COVID-19 Working Group</creatorName>
      <affiliation>Portage Network</affiliation>
    </creator>
    <creator>
      <creatorName>Kristi Thompson</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-4152-0075</nameIdentifier>
      <affiliation>Western University</affiliation>
    </creator>
    <creator>
      <creatorName>Erin Clary</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0003-2703-8458</nameIdentifier>
      <affiliation>Portage</affiliation>
    </creator>
    <creator>
      <creatorName>Lucia Costanzo</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0003-4785-660X</nameIdentifier>
      <affiliation>University of Guelph</affiliation>
    </creator>
    <creator>
      <creatorName>Beth Knazook</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0003-3108-3921</nameIdentifier>
      <affiliation>Portage</affiliation>
    </creator>
    <creator>
      <creatorName>Nick Rochlin</creatorName>
      <affiliation>University of British Columbia</affiliation>
    </creator>
    <creator>
      <creatorName>Felicity Tayler</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0001-8865-2836</nameIdentifier>
      <affiliation>University of Ottawa</affiliation>
    </creator>
    <creator>
      <creatorName>Jane Fry</creatorName>
      <affiliation>Carleton University</affiliation>
    </creator>
    <creator>
      <creatorName>Chantal Ripp</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0003-3544-8158</nameIdentifier>
      <affiliation>University of Ottawa</affiliation>
    </creator>
    <creator>
      <creatorName>Kathy Szigeti</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0003-1790-9790</nameIdentifier>
      <affiliation>University of Waterloo</affiliation>
    </creator>
    <creator>
      <creatorName>Qian Zhang</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0003-1549-7358</nameIdentifier>
      <affiliation>University of Waterloo</affiliation>
    </creator>
    <creator>
      <creatorName>Roger Reka</creatorName>
      <affiliation>University of Windsor</affiliation>
    </creator>
    <creator>
      <creatorName>Minglu Wang</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-0021-5605</nameIdentifier>
      <affiliation>York University</affiliation>
    </creator>
    <creator>
      <creatorName>Rebecca Dickson</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-4320-7234</nameIdentifier>
      <affiliation>COPPUL</affiliation>
    </creator>
    <creator>
      <creatorName>Mark Leggott</creatorName>
      <affiliation>RDC-DRC</affiliation>
    </creator>
    <creator>
      <creatorName>Melanie Parlette-Stewart</creatorName>
      <affiliation>Portage</affiliation>
    </creator>
  </creators>
  <titles>
    <title>De-identification Guidance</title>
  </titles>
  <publisher>Zenodo</publisher>
  <publicationYear>2020</publicationYear>
  <subjects>
    <subject>COVID-19 Research Data Management; De-identification guidance</subject>
  </subjects>
  <dates>
    <date dateType="Issued">2020-09-21</date>
  </dates>
  <language>en</language>
  <resourceType resourceTypeGeneral="Text">Other</resourceType>
  <alternateIdentifiers>
    <alternateIdentifier alternateIdentifierType="url">https://zenodo.org/record/4270551</alternateIdentifier>
  </alternateIdentifiers>
  <relatedIdentifiers>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsSourceOf">10.5281/zenodo.4047175</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.4042022</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="URL" relationType="IsPartOf">https://zenodo.org/communities/alliancecan</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="URL" relationType="IsPartOf">https://zenodo.org/communities/portage-network</relatedIdentifier>
  </relatedIdentifiers>
  <version>2</version>
  <rightsList>
    <rights rightsURI="https://creativecommons.org/licenses/by/4.0/legalcode">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
  </rightsList>
  <descriptions>
    <description descriptionType="Abstract">&lt;p&gt;The guidance below is intended to help Canadian researchers minimize disclosure risk when sharing data collected from human participants. If you use any of the following techniques to anonymize your data, please include this information in your&amp;nbsp;&lt;a href="https://doi.org/10.5281/zenodo.4042034"&gt;documentation and README file&lt;/a&gt;.&amp;nbsp;For transparency, it should be clear how the dataset was modified to protect study participants.&amp;nbsp;&lt;/p&gt;</description>
  </descriptions>
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