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SIENNA D3.3: Survey of REC approaches and codes for human enhancement

Lisa Tambornino; Dirk Lanzerath


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{
  "inLanguage": {
    "alternateName": "eng", 
    "@type": "Language", 
    "name": "English"
  }, 
  "description": "<p>This report describes the outcome of task 3.3, the current coverage of ethical guidelines by professional organisations, ethics advisory groups, and research ethics committees for human enhancement. For this task the SIENNA partners searched for documents which could give normative guidance (excluding legislation) for stakeholders in human enhancement. Three kinds of documents were searched for in different EU countries and internationally:</p>\n\n<ol>\n\t<li>\n\t<p>professional ethics codes;</p>\n\t</li>\n\t<li>\n\t<p>documents from ethics advisory groups; and</p>\n\t</li>\n\t<li>\n\t<p>guidance documents on how to write research ethics protocols in different EU countries and</p>\n\n\t<p>internationally.</p>\n\t</li>\n</ol>\n\n<p>Furthermore, representatives of research ethics committees were asked for the following information in an online survey:</p>\n\n<p>&minus;&nbsp;to what extent are they aware of human enhancement technologies and ethical issues associated with them; and</p>\n\n<p>&minus;&nbsp;how do they currently approach these issues and do they have plans to more explicitly feature them.</p>", 
  "license": "https://creativecommons.org/licenses/by/4.0/legalcode", 
  "creator": [
    {
      "affiliation": "European Network of Research Ethics Committees  (EUREC OFFICE)", 
      "@type": "Person", 
      "name": "Lisa Tambornino"
    }, 
    {
      "affiliation": "European Network of Research Ethics Committees  (EUREC OFFICE", 
      "@type": "Person", 
      "name": "Dirk Lanzerath"
    }
  ], 
  "url": "https://zenodo.org/record/4066874", 
  "datePublished": "2019-08-19", 
  "keywords": [
    "normative framework", 
    "professional ethics codes", 
    "research ethics protocols", 
    "guidance for RECs", 
    "enhancement", 
    "life-style drugs", 
    "doping", 
    "neuro enhancement", 
    "cognitive enhancement"
  ], 
  "version": "V3.0", 
  "contributor": [
    {
      "affiliation": "Uppsala University", 
      "@type": "Person", 
      "name": "Heidi Howard"
    }, 
    {
      "affiliation": "Uppsala University", 
      "@type": "Person", 
      "name": "Emilia Niemiec"
    }, 
    {
      "affiliation": "Uppsala University", 
      "@type": "Person", 
      "name": "Caroline Gallant"
    }, 
    {
      "affiliation": "Uppsala University", 
      "@type": "Person", 
      "name": "Cornelia Tandre"
    }, 
    {
      "affiliation": "Trilateral Research", 
      "@type": "Person", 
      "name": "Rowena Rodrigues"
    }, 
    {
      "affiliation": "Trilateral Research", 
      "@type": "Person", 
      "name": "David Wright"
    }, 
    {
      "affiliation": "University of Twente", 
      "@type": "Person", 
      "name": "Philip Brey"
    }, 
    {
      "affiliation": "University of Twente", 
      "@type": "Person", 
      "name": "Philip Jansen"
    }, 
    {
      "affiliation": "University of Twente", 
      "@type": "Person", 
      "name": "Sean Jensen"
    }, 
    {
      "affiliation": "University of Twente", 
      "@type": "Person", 
      "name": "Saskia Nagel"
    }, 
    {
      "affiliation": "University of Twente", 
      "@type": "Person", 
      "name": "Tanne Ditzel"
    }, 
    {
      "affiliation": "Universidade Federal do Rio de Janeiro", 
      "@type": "Person", 
      "name": "Marcelo de Araujo"
    }, 
    {
      "affiliation": "Universidade Federal do Rio de Janeiro", 
      "@type": "Person", 
      "name": "Clara Dias"
    }, 
    {
      "affiliation": "University of Granada", 
      "@type": "Person", 
      "name": "Javier Valls"
    }, 
    {
      "affiliation": "Ionian University", 
      "@type": "Person", 
      "name": "Maria Bottis"
    }, 
    {
      "affiliation": "Helsinki Foundation for Human Rights", 
      "@type": "Person", 
      "name": "Zuzanna Warso"
    }, 
    {
      "affiliation": "Sciences Po", 
      "@type": "Person", 
      "name": "Robert Gianni"
    }, 
    {
      "affiliation": "Sciences Po", 
      "@type": "Person", 
      "name": "Ana\u00efs Ress\u00e9guier"
    }, 
    {
      "affiliation": "University of Cape Town;", 
      "@type": "Person", 
      "name": "Jantina de Vries"
    }, 
    {
      "affiliation": "Dalian University of Technology", 
      "@type": "Person", 
      "name": "Wang Qian"
    }
  ], 
  "@context": "https://schema.org/", 
  "identifier": "https://doi.org/10.5281/zenodo.4066874", 
  "@id": "https://doi.org/10.5281/zenodo.4066874", 
  "@type": "CreativeWork", 
  "name": "SIENNA D3.3: Survey of REC approaches and codes for human enhancement"
}
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