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SIENNA D3.3: Survey of REC approaches and codes for human enhancement

Lisa Tambornino; Dirk Lanzerath


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  <identifier identifierType="DOI">10.5281/zenodo.4066874</identifier>
  <creators>
    <creator>
      <creatorName>Lisa Tambornino</creatorName>
      <affiliation>European Network of Research Ethics Committees  (EUREC OFFICE)</affiliation>
    </creator>
    <creator>
      <creatorName>Dirk Lanzerath</creatorName>
      <affiliation>European Network of Research Ethics Committees  (EUREC OFFICE</affiliation>
    </creator>
  </creators>
  <titles>
    <title>SIENNA D3.3: Survey of REC approaches and codes for human enhancement</title>
  </titles>
  <publisher>Zenodo</publisher>
  <publicationYear>2019</publicationYear>
  <subjects>
    <subject>normative framework</subject>
    <subject>professional ethics codes</subject>
    <subject>research ethics protocols</subject>
    <subject>guidance for RECs</subject>
    <subject>enhancement</subject>
    <subject>life-style drugs</subject>
    <subject>doping</subject>
    <subject>neuro enhancement</subject>
    <subject>cognitive enhancement</subject>
  </subjects>
  <dates>
    <date dateType="Issued">2019-08-19</date>
  </dates>
  <language>en</language>
  <resourceType resourceTypeGeneral="Text">Project deliverable</resourceType>
  <alternateIdentifiers>
    <alternateIdentifier alternateIdentifierType="url">https://zenodo.org/record/4066874</alternateIdentifier>
  </alternateIdentifiers>
  <relatedIdentifiers>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.4066873</relatedIdentifier>
  </relatedIdentifiers>
  <version>V3.0</version>
  <rightsList>
    <rights rightsURI="https://creativecommons.org/licenses/by/4.0/legalcode">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
  </rightsList>
  <descriptions>
    <description descriptionType="Abstract">&lt;p&gt;This report describes the outcome of task 3.3, the current coverage of ethical guidelines by professional organisations, ethics advisory groups, and research ethics committees for human enhancement. For this task the SIENNA partners searched for documents which could give normative guidance (excluding legislation) for stakeholders in human enhancement. Three kinds of documents were searched for in different EU countries and internationally:&lt;/p&gt;

&lt;ol&gt;
	&lt;li&gt;
	&lt;p&gt;professional ethics codes;&lt;/p&gt;
	&lt;/li&gt;
	&lt;li&gt;
	&lt;p&gt;documents from ethics advisory groups; and&lt;/p&gt;
	&lt;/li&gt;
	&lt;li&gt;
	&lt;p&gt;guidance documents on how to write research ethics protocols in different EU countries and&lt;/p&gt;

	&lt;p&gt;internationally.&lt;/p&gt;
	&lt;/li&gt;
&lt;/ol&gt;

&lt;p&gt;Furthermore, representatives of research ethics committees were asked for the following information in an online survey:&lt;/p&gt;

&lt;p&gt;&amp;minus;&amp;nbsp;to what extent are they aware of human enhancement technologies and ethical issues associated with them; and&lt;/p&gt;

&lt;p&gt;&amp;minus;&amp;nbsp;how do they currently approach these issues and do they have plans to more explicitly feature them.&lt;/p&gt;</description>
  </descriptions>
  <fundingReferences>
    <fundingReference>
      <funderName>European Commission</funderName>
      <funderIdentifier funderIdentifierType="Crossref Funder ID">10.13039/501100000780</funderIdentifier>
      <awardNumber awardURI="info:eu-repo/grantAgreement/EC/H2020/741716/">741716</awardNumber>
      <awardTitle>Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact</awardTitle>
    </fundingReference>
  </fundingReferences>
</resource>
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