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Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project

Afroditi Kalambouka; Søren Holm


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{
  "description": "<p>Members of The Embassy of Good Science have developed a set of eight scenarios for educational purposes and to stimulate strategic thinking about issues in research ethics and research integrity.</p>\n\n<p>This scenario presents a hypothetical narrative concerning the safeguards required for data-sharing and data disclosure practices.</p>\n\n<p>It focuses on issues regarding:</p>\n\n<ul>\n\t<li>The ethical and regulatory standards governing data-sharing practices;</li>\n\t<li>The ethical dimensions of research involving children;</li>\n\t<li>Amendments to research ethics protocols;</li>\n\t<li>Research participant complaints against researchers;</li>\n\t<li>Disclosure of sensitive research results.</li>\n</ul>\n\n<p>It is interspersed with questions and resource suggestions that help guide researchers, research ethics committees (&#39;RECs&#39;), research integrity offices (&#39;RIOs&#39;) and research administrators in their deliberations concerning the research integrity issues raised by the narrative.</p>", 
  "license": "https://creativecommons.org/licenses/by/4.0/legalcode", 
  "creator": [
    {
      "affiliation": "University of Manchester", 
      "@type": "Person", 
      "name": "Afroditi Kalambouka"
    }, 
    {
      "affiliation": "University of Manchester", 
      "@id": "https://orcid.org/0000-0002-7200-5607", 
      "@type": "Person", 
      "name": "S\u00f8ren Holm"
    }
  ], 
  "url": "https://zenodo.org/record/4063633", 
  "datePublished": "2020-10-02", 
  "keywords": [
    "research integrity", 
    "research ethics"
  ], 
  "contributor": [
    {
      "affiliation": "University of Manchester", 
      "@id": "https://orcid.org/0000-0002-7200-5607", 
      "@type": "Person", 
      "name": "S\u00f8ren Holm"
    }, 
    {
      "affiliation": "Dublin City University", 
      "@id": "https://orcid.org/0000-0001-8342-1051", 
      "@type": "Person", 
      "name": "Jonathan Lewis"
    }, 
    {
      "affiliation": "Dublin City University", 
      "@id": "https://orcid.org/0000-0002-3686-8659", 
      "@type": "Person", 
      "name": "Bert Gordijn"
    }, 
    {
      "affiliation": "Dublin City University", 
      "@id": "https://orcid.org/0000-0001-8342-1051", 
      "@type": "Person", 
      "name": "Jonathan Lewis"
    }, 
    {
      "affiliation": "Dublin City University", 
      "@id": "https://orcid.org/0000-0002-3686-8659", 
      "@type": "Person", 
      "name": "Bert Gordijn"
    }
  ], 
  "@context": "https://schema.org/", 
  "identifier": "https://doi.org/10.5281/zenodo.4063633", 
  "@id": "https://doi.org/10.5281/zenodo.4063633", 
  "@type": "CreativeWork", 
  "name": "Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project"
}
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