Project deliverable Open Access

Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project

Afroditi Kalambouka; Søren Holm


JSON Export

{
  "files": [
    {
      "links": {
        "self": "https://zenodo.org/api/files/e29c8bc8-09a0-4e91-ab19-94ced797717b/EnTIRE%20WP5%20Scenario%20No.%205%20from%20D.5.4.pdf"
      }, 
      "checksum": "md5:e1d41f0d63be53cf4dc36cabf566e37a", 
      "bucket": "e29c8bc8-09a0-4e91-ab19-94ced797717b", 
      "key": "EnTIRE WP5 Scenario No. 5 from D.5.4.pdf", 
      "type": "pdf", 
      "size": 276715
    }
  ], 
  "owners": [
    142961
  ], 
  "doi": "10.5281/zenodo.4063633", 
  "stats": {
    "version_unique_downloads": 16.0, 
    "unique_views": 20.0, 
    "views": 30.0, 
    "version_views": 30.0, 
    "unique_downloads": 16.0, 
    "version_unique_views": 20.0, 
    "volume": 5257585.0, 
    "version_downloads": 19.0, 
    "downloads": 19.0, 
    "version_volume": 5257585.0
  }, 
  "links": {
    "doi": "https://doi.org/10.5281/zenodo.4063633", 
    "conceptdoi": "https://doi.org/10.5281/zenodo.4063632", 
    "bucket": "https://zenodo.org/api/files/e29c8bc8-09a0-4e91-ab19-94ced797717b", 
    "conceptbadge": "https://zenodo.org/badge/doi/10.5281/zenodo.4063632.svg", 
    "html": "https://zenodo.org/record/4063633", 
    "latest_html": "https://zenodo.org/record/4063633", 
    "badge": "https://zenodo.org/badge/doi/10.5281/zenodo.4063633.svg", 
    "latest": "https://zenodo.org/api/records/4063633"
  }, 
  "conceptdoi": "10.5281/zenodo.4063632", 
  "created": "2020-10-02T10:40:46.511663+00:00", 
  "updated": "2020-10-27T11:01:17.586510+00:00", 
  "conceptrecid": "4063632", 
  "revision": 3, 
  "id": 4063633, 
  "metadata": {
    "access_right_category": "success", 
    "doi": "10.5281/zenodo.4063633", 
    "description": "<p>Members of The Embassy of Good Science have developed a set of eight scenarios for educational purposes and to stimulate strategic thinking about issues in research ethics and research integrity.</p>\n\n<p>This scenario presents a hypothetical narrative concerning the safeguards required for data-sharing and data disclosure practices.</p>\n\n<p>It focuses on issues regarding:</p>\n\n<ul>\n\t<li>The ethical and regulatory standards governing data-sharing practices;</li>\n\t<li>The ethical dimensions of research involving children;</li>\n\t<li>Amendments to research ethics protocols;</li>\n\t<li>Research participant complaints against researchers;</li>\n\t<li>Disclosure of sensitive research results.</li>\n</ul>\n\n<p>It is interspersed with questions and resource suggestions that help guide researchers, research ethics committees (&#39;RECs&#39;), research integrity offices (&#39;RIOs&#39;) and research administrators in their deliberations concerning the research integrity issues raised by the narrative.</p>", 
    "contributors": [
      {
        "orcid": "0000-0002-7200-5607", 
        "affiliation": "University of Manchester", 
        "type": "Editor", 
        "name": "S\u00f8ren Holm"
      }, 
      {
        "orcid": "0000-0001-8342-1051", 
        "affiliation": "Dublin City University", 
        "type": "Editor", 
        "name": "Jonathan Lewis"
      }, 
      {
        "orcid": "0000-0002-3686-8659", 
        "affiliation": "Dublin City University", 
        "type": "Editor", 
        "name": "Bert Gordijn"
      }, 
      {
        "orcid": "0000-0001-8342-1051", 
        "affiliation": "Dublin City University", 
        "type": "WorkPackageLeader", 
        "name": "Jonathan Lewis"
      }, 
      {
        "orcid": "0000-0002-3686-8659", 
        "affiliation": "Dublin City University", 
        "type": "WorkPackageLeader", 
        "name": "Bert Gordijn"
      }
    ], 
    "title": "Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project", 
    "license": {
      "id": "CC-BY-4.0"
    }, 
    "relations": {
      "version": [
        {
          "count": 1, 
          "index": 0, 
          "parent": {
            "pid_type": "recid", 
            "pid_value": "4063632"
          }, 
          "is_last": true, 
          "last_child": {
            "pid_type": "recid", 
            "pid_value": "4063633"
          }
        }
      ]
    }, 
    "grants": [
      {
        "code": "741782", 
        "links": {
          "self": "https://zenodo.org/api/grants/10.13039/501100000780::741782"
        }, 
        "title": "Mapping Normative Frameworks for EThics and Integrity of REsearch", 
        "acronym": "EnTIRE", 
        "program": "H2020", 
        "funder": {
          "doi": "10.13039/501100000780", 
          "acronyms": [], 
          "name": "European Commission", 
          "links": {
            "self": "https://zenodo.org/api/funders/10.13039/501100000780"
          }
        }
      }
    ], 
    "keywords": [
      "research integrity", 
      "research ethics"
    ], 
    "publication_date": "2020-10-02", 
    "creators": [
      {
        "affiliation": "University of Manchester", 
        "name": "Afroditi Kalambouka"
      }, 
      {
        "orcid": "0000-0002-7200-5607", 
        "affiliation": "University of Manchester", 
        "name": "S\u00f8ren Holm"
      }
    ], 
    "access_right": "open", 
    "resource_type": {
      "subtype": "deliverable", 
      "type": "publication", 
      "title": "Project deliverable"
    }, 
    "related_identifiers": [
      {
        "scheme": "doi", 
        "identifier": "10.5281/zenodo.4063632", 
        "relation": "isVersionOf"
      }
    ]
  }
}
30
19
views
downloads
All versions This version
Views 3030
Downloads 1919
Data volume 5.3 MB5.3 MB
Unique views 2020
Unique downloads 1616

Share

Cite as