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Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project

Afroditi Kalambouka; Søren Holm


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  <identifier identifierType="DOI">10.5281/zenodo.4063633</identifier>
  <creators>
    <creator>
      <creatorName>Afroditi Kalambouka</creatorName>
      <affiliation>University of Manchester</affiliation>
    </creator>
    <creator>
      <creatorName>Søren Holm</creatorName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-7200-5607</nameIdentifier>
      <affiliation>University of Manchester</affiliation>
    </creator>
  </creators>
  <titles>
    <title>Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project</title>
  </titles>
  <publisher>Zenodo</publisher>
  <publicationYear>2020</publicationYear>
  <subjects>
    <subject>research integrity</subject>
    <subject>research ethics</subject>
  </subjects>
  <dates>
    <date dateType="Issued">2020-10-02</date>
  </dates>
  <resourceType resourceTypeGeneral="Text">Project deliverable</resourceType>
  <alternateIdentifiers>
    <alternateIdentifier alternateIdentifierType="url">https://zenodo.org/record/4063633</alternateIdentifier>
  </alternateIdentifiers>
  <relatedIdentifiers>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.4063632</relatedIdentifier>
  </relatedIdentifiers>
  <rightsList>
    <rights rightsURI="https://creativecommons.org/licenses/by/4.0/legalcode">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
  </rightsList>
  <descriptions>
    <description descriptionType="Abstract">&lt;p&gt;Members of The Embassy of Good Science have developed a set of eight scenarios for educational purposes and to stimulate strategic thinking about issues in research ethics and research integrity.&lt;/p&gt;

&lt;p&gt;This scenario presents a hypothetical narrative concerning the safeguards required for data-sharing and data disclosure practices.&lt;/p&gt;

&lt;p&gt;It focuses on issues regarding:&lt;/p&gt;

&lt;ul&gt;
	&lt;li&gt;The ethical and regulatory standards governing data-sharing practices;&lt;/li&gt;
	&lt;li&gt;The ethical dimensions of research involving children;&lt;/li&gt;
	&lt;li&gt;Amendments to research ethics protocols;&lt;/li&gt;
	&lt;li&gt;Research participant complaints against researchers;&lt;/li&gt;
	&lt;li&gt;Disclosure of sensitive research results.&lt;/li&gt;
&lt;/ul&gt;

&lt;p&gt;It is interspersed with questions and resource suggestions that help guide researchers, research ethics committees (&amp;#39;RECs&amp;#39;), research integrity offices (&amp;#39;RIOs&amp;#39;) and research administrators in their deliberations concerning the research integrity issues raised by the narrative.&lt;/p&gt;</description>
  </descriptions>
  <fundingReferences>
    <fundingReference>
      <funderName>European Commission</funderName>
      <funderIdentifier funderIdentifierType="Crossref Funder ID">10.13039/501100000780</funderIdentifier>
      <awardNumber awardURI="info:eu-repo/grantAgreement/EC/H2020/741782/">741782</awardNumber>
      <awardTitle>Mapping Normative Frameworks for EThics and Integrity of REsearch</awardTitle>
    </fundingReference>
  </fundingReferences>
</resource>
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