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Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project

Afroditi Kalambouka; Søren Holm


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    <dct:description>&lt;p&gt;Members of The Embassy of Good Science have developed a set of eight scenarios for educational purposes and to stimulate strategic thinking about issues in research ethics and research integrity.&lt;/p&gt; &lt;p&gt;This scenario presents a hypothetical narrative concerning the safeguards required for data-sharing and data disclosure practices.&lt;/p&gt; &lt;p&gt;It focuses on issues regarding:&lt;/p&gt; &lt;ul&gt; &lt;li&gt;The ethical and regulatory standards governing data-sharing practices;&lt;/li&gt; &lt;li&gt;The ethical dimensions of research involving children;&lt;/li&gt; &lt;li&gt;Amendments to research ethics protocols;&lt;/li&gt; &lt;li&gt;Research participant complaints against researchers;&lt;/li&gt; &lt;li&gt;Disclosure of sensitive research results.&lt;/li&gt; &lt;/ul&gt; &lt;p&gt;It is interspersed with questions and resource suggestions that help guide researchers, research ethics committees (&amp;#39;RECs&amp;#39;), research integrity offices (&amp;#39;RIOs&amp;#39;) and research administrators in their deliberations concerning the research integrity issues raised by the narrative.&lt;/p&gt;</dct:description>
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