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Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project

Afroditi Kalambouka; Søren Holm


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{
  "publisher": "Zenodo", 
  "DOI": "10.5281/zenodo.4063633", 
  "author": [
    {
      "family": "Afroditi Kalambouka"
    }, 
    {
      "family": "S\u00f8ren Holm"
    }
  ], 
  "issued": {
    "date-parts": [
      [
        2020, 
        10, 
        2
      ]
    ]
  }, 
  "abstract": "<p>Members of The Embassy of Good Science have developed a set of eight scenarios for educational purposes and to stimulate strategic thinking about issues in research ethics and research integrity.</p>\n\n<p>This scenario presents a hypothetical narrative concerning the safeguards required for data-sharing and data disclosure practices.</p>\n\n<p>It focuses on issues regarding:</p>\n\n<ul>\n\t<li>The ethical and regulatory standards governing data-sharing practices;</li>\n\t<li>The ethical dimensions of research involving children;</li>\n\t<li>Amendments to research ethics protocols;</li>\n\t<li>Research participant complaints against researchers;</li>\n\t<li>Disclosure of sensitive research results.</li>\n</ul>\n\n<p>It is interspersed with questions and resource suggestions that help guide researchers, research ethics committees (&#39;RECs&#39;), research integrity offices (&#39;RIOs&#39;) and research administrators in their deliberations concerning the research integrity issues raised by the narrative.</p>", 
  "title": "Safeguards, Data-sharing and the Disclosure of Sensitive Results: An Educational Scenario by the EnTIRE project", 
  "type": "report", 
  "id": "4063633"
}
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