Presentation Open Access

PCORnet COVID-19 Common Data Model Design and Results

Carton, Thomas W.; Marsolo, Keith; Block, Jason Perry


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  <identifier identifierType="DOI">10.5281/zenodo.3897398</identifier>
  <creators>
    <creator>
      <creatorName>Carton, Thomas W.</creatorName>
      <givenName>Thomas W.</givenName>
      <familyName>Carton</familyName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0001-8786-8475</nameIdentifier>
      <affiliation>Louisiana Public Health Institute</affiliation>
    </creator>
    <creator>
      <creatorName>Marsolo, Keith</creatorName>
      <givenName>Keith</givenName>
      <familyName>Marsolo</familyName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-4416-1549</nameIdentifier>
      <affiliation>Department of Population Health Sciences, Duke Clinical Research Institute, Duke University School of Medicine</affiliation>
    </creator>
    <creator>
      <creatorName>Block, Jason Perry</creatorName>
      <givenName>Jason Perry</givenName>
      <familyName>Block</familyName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0002-3488-3222</nameIdentifier>
      <affiliation>Department of Population Medicine, Harvard Pilgrim Health Care Institute, Harvard Medical School</affiliation>
    </creator>
  </creators>
  <titles>
    <title>PCORnet COVID-19 Common Data Model Design and Results</title>
  </titles>
  <publisher>Zenodo</publisher>
  <publicationYear>2020</publicationYear>
  <subjects>
    <subject>COVID-19</subject>
    <subject>PCORnet</subject>
    <subject>Common Data Model</subject>
    <subject>CDM</subject>
    <subject>Data Query</subject>
    <subject>Health Disparities</subject>
    <subject>Distributed data network</subject>
  </subjects>
  <dates>
    <date dateType="Issued">2020-06-16</date>
  </dates>
  <resourceType resourceTypeGeneral="Text">Presentation</resourceType>
  <alternateIdentifiers>
    <alternateIdentifier alternateIdentifierType="url">https://zenodo.org/record/3897398</alternateIdentifier>
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    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.3897397</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="URL" relationType="IsPartOf">https://zenodo.org/communities/covid-19</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="URL" relationType="IsPartOf">https://zenodo.org/communities/zenodo</relatedIdentifier>
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  <version>V1.0.0</version>
  <rightsList>
    <rights rightsURI="https://creativecommons.org/licenses/by/4.0/legalcode">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
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  <descriptions>
    <description descriptionType="Abstract">&lt;p&gt;Original Post: &lt;a href="https://rethinkingclinicaltrials.org/news/june-5-2020-pcornet-covid-19-common-data-model-design-and-results-thomas-carton-phd-ms-keith-marsolo-phd-jason-perry-block-md-mph/"&gt;NIH Collaboratory&lt;/a&gt;&lt;/p&gt;

&lt;p&gt;&amp;nbsp;&lt;/p&gt;

&lt;p&gt;&lt;strong&gt;Key Points&lt;/strong&gt;&lt;/p&gt;

&lt;ul&gt;
	&lt;li&gt;For data to be useful in research, they have to be standardized across systems. The PCORnet Common Data Model standardizes data into a single language, enabling fast insights.&lt;/li&gt;
	&lt;li&gt;All the core data elements needed to support COVID-19 research and surveillance have a home in the PCORnet CDM. The goal for PCORnet is to characterize the cohort of COVID-19 patients and provide detailed information on demographics and pre-existing conditions.&lt;/li&gt;
&lt;/ul&gt;

&lt;p&gt;&amp;nbsp;&lt;/p&gt;

&lt;p&gt;&lt;strong&gt;Discussion Themes&lt;/strong&gt;&lt;/p&gt;

&lt;p&gt;&lt;em&gt;Can PCORnet partners stand up a version of the CDM with more up-to-date information to allow for a faster characterization of the PCORnet COVID-19 population?&lt;/em&gt;&lt;/p&gt;

&lt;p&gt;&lt;em&gt;Is there a query to discover and address COVID-19 health disparities and social determinants of health?&lt;/em&gt;&lt;/p&gt;

&lt;p&gt;&lt;em&gt;Can PCORnet and NCATS&amp;rsquo;&amp;nbsp;&lt;a href="https://ncats.nih.gov/n3c"&gt;National COVID Cohort Collaborative (N3C)&lt;/a&gt;&amp;nbsp;work together?&lt;/em&gt;&lt;/p&gt;

&lt;p&gt;Read more about PCORnet&amp;rsquo;s&amp;nbsp;&lt;a href="https://github.com/PCORnet-DRN-OC/Query-Details/blob/master/COVID_weekly_query/2020_04_29/FD1228%20Query%205%20Distributed%204.29.2020%20Technical%20Specifications.xls"&gt;code lists and case definitions&lt;/a&gt;&amp;nbsp;on GitHub.&lt;/p&gt;</description>
  </descriptions>
</resource>
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