id,version,text,quote,uri,created_at,updated_at,post_id,creator_id,type,shape,units,geometry,src,ext,container,start,end,topic_id,code_id 15844,v1.0,,"empathised with this position, knowing how frustrating it",/post/869,2019-07-16T13:40:25.927Z,2019-07-16T13:40:25.927Z,869,3323,AnnotatorStore::TextAnnotation,,pixel,,,,,,,836,781 15653,v1.0,,"‘The Jungle’, as it has become known, is a large camp on the edge of the Calais port area. It sits on top of a series of sand dunes, small lakes and wastelands on the very edge of the French coastline, right by the lorry parking area at the port. Before it was settled it was an industrial dumping ground, and previous checks of the ground have found traces of heavy metallic elements like Cobalt, as well as large amounts of old asbestos panelling that had broken down.",/post/39328,2019-03-21T10:40:17.507Z,2019-03-21T10:40:17.507Z,39328,4794,AnnotatorStore::TextAnnotation,,,,,,,,,7651,3418 15652,v1.0,,"through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK. Increasingly we are seeing aid, and charities from further afield in Europe coming to Calais to help, creating a multi-national series of solutions that have grown up without any direct hierarchy or guidance.",/post/39328,2019-03-21T10:01:08.077Z,2019-03-21T10:01:08.077Z,39328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7651,3417 15651,v1.0,,"In March the French prefecture with the support of the CRS cleared the oldest, largest section of the camp in the south. The intention was to rehouse all of the residents in to a number of local official options; including the La Vie Active container camp [http://julesferry.vieactive.fr/]; the brand new official refugee camp in Dunkirk [http://www.telegraph.co.uk/news/worldnews/europe/france/12186407/Frances-first-ever-internationally-recognised-refugee-camp-opens-near-Dunkirk.html] or into asylum/detention camps around France.",/post/39328,2019-03-21T09:04:31.692Z,2019-03-21T09:04:31.692Z,39328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7651,3416 15650,v1.0,,"Originally the camp was made up of tents and very temporary structures. But from around September last year a number of new charity organisations and volunteer structures made it their plans to help improve the quality of the camp [http://www.ahomeforwinter.org/]. The camp is largely made up of young men, although there are small numbers of families, women and young children as well as around 350 unaccompanied children between the age of 12-16. A number of organisations sprang up that work with the women and children on site, provided youth clubs, teaching and English lessons. [http://www.calaidipedia.co.uk/camp-initiatives] [http://www.calaisjungleyouth.com/]",/post/39328,2019-03-21T09:04:24.003Z,2019-03-21T09:04:24.003Z,39328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7651,3415 15649,v1.0,,"Hi Alex, how are you? Sorry to have missed your visit- just back an hour ago after an intense week + in Berlin. Very curious to hear about your experiences and reflections. In part because I would like to volunteer this spring but am unsure as to where I can meaningfully put my skills etc to use. In part because both Ezio and myself are adamant that this should be one of thd focal points in opencare",/post/39330,2019-03-21T09:01:37.228Z,2019-03-21T09:01:37.228Z,39330,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7651,3414 15648,v1.0,,"Background to the storyTo those of us in the UK the Calais ‘Jungle’ has become synonymous with the migration and asylum crisis that has occurred in Europe over the past 2 years. It is frequently in our papers and on our televisions, yet beyond the UK and the direct environment of Calais the Calais camp has not received the kind of attention it deserves.‘The Jungle’, as it has become known, is a large camp on the edge of the Calais port area. It sits on top of a series of sand dunes, small lakes and wastelands on the very edge of the French coastline, right by the lorry parking area at the port. Before it was settled it was an industrial dumping ground, and previous checks of the ground have found traces of heavy metallic elements like Cobalt, as well as large amounts of old asbestos panelling that had broken down.On top of all this sits a huge camp for migrants and displaced people from around the world. At last count it stood at around 4900 people, most of whom are trying to claim asylum in the UK.At it’s largest point shortly after Christmas the camp had over 6000 residents. Living in very harsh, cold conditions through the Northern Europe winter.Originally the camp was made up of tents and very temporary structures. But from around September last year a number of new charity organisations and volunteer structures made it their plans to help improve the quality of the camp [http://www.ahomeforwinter.org/].The camp is largely made up of young men, although there are small numbers of families, women and young children as well as around 350 unaccompanied children between the age of 12-16. A number of organisations sprang up that work with the women and children on site, provided youth clubs, teaching and English lessons. [http://www.calaidipedia.co.uk/camp-initiatives] [http://www.calaisjungleyouth.com/]The camp has grown up, physically and mentally, over the last 5 years, but has really become a focal point since around 2012. The camp has grown hugely during this time, as well as moving around from site to site.Alongside the humanitarian and social aid there are library and reading services [http://www.calaidipedia.co.uk/jungle-books-library], theatre and arts activities [http://goodchance.org.uk/], community kitchens [https://www.facebook.com/OneSpiritAshramKitchen/][https://www.facebook.com/The-Belgian-Kitchen-1736739086546935/], hot food distribution, dry food goods distribution and daily clothing distributions provided from a central warehouse [http://www.laubergedesmigrants.fr/], amongst many others [http://time.com/4233206/calais-jungle-shops/].You can find out more about a numbers of the organisations that work on the site by visiting [http://www.calaidipedia.co.uk/breaking-news] or by reading the No Borders document [https://welcometocalais.files.wordpress.com/2015/10/welcome-to-calais-booklet_eng_updatedoct15.pdf]Although MSF, GWB and Unicef run services on the site, and have provided some care to the camps the site itself is not officially recognised by the French or UK governments, and as such has no requirements to meet basic human rights, or follow local building or health and safety guidelines.As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK.Increasingly we are seeing aid, and charities from further afield in Europe coming to Calais to help, creating a multi-national series of solutions that have grown up without any direct hierarchy or guidance.In March the French prefecture with the support of the CRS cleared the oldest, largest section of the camp in the south. The intention was to rehouse all of the residents in to a number of local official options; including the La Vie Active container camp [http://julesferry.vieactive.fr/]; the brand new official refugee camp in Dunkirk [http://www.telegraph.co.uk/news/worldnews/europe/france/12186407/Frances-first-ever-internationally-recognised-refugee-camp-opens-near-Dunkirk.html] or into asylum/detention camps around France.The majority of residents in the camp chose to not take these options as they are not looking to seek asylum in France, but are trying to get to the UK to reconnect with families. This disconnect between what the French authorities want to achieve with the residents and what the residents themselves want to achieve goes a long way toward explaining the conflict and central problem at the camp.About what i have been doingFor the past 3 weeks I have been working as a volunteer through the central warehouse, L’Auberge des migrants.L’Auberge acts as the central aid and food distribution services for the camps across Northern France, including Calais, Dunkirk and a number of smaller camps around the area.L’Auberge exists solely on donations, providing daily hot food deliveries, daily dry food deliveries to allow residents to cook for themselves, clothing drops, and since my arrival a mobile distribution service that goes from shelter to shelter, assessing individual and community needs and providing aid in the form of blankets, sleeping bags, cooking equipment, lights and a number of other personal items.All of these services are coordinated by long to medium term volunteers, who spend their own money and time to care for the people on camp without receiving any direct pay. Sometimes fundraised money is spent to provide accommodation and travel expenses to volunteers but a large majority of people live out here entirely on the own funds.The warehouse was initially set up by a French charity but is now run and ‘staffed’ by a UK charity HelpRefugees [http://www.helprefugees.org.uk/what-we-do/], who bring in funding and support from around the EU to help provide humanitarian services.http://www.aljazeera.com/indepth/features/2016/03/burying-refugees-die-calais-jungle-160329071028796.htmlTO BE CONTINUED.",/post/39328,2019-03-21T09:01:16.153Z,2019-09-17T09:52:31.942Z,39328,3323,AnnotatorStore::TextAnnotation,,pixel,,,,,,,7651,3902 15647,v1.0,,"At last count it stood at around 4900 people, most of whom are trying to claim asylum in the UK.",/post/39328,2019-03-20T11:11:01.340Z,2019-03-20T11:11:01.340Z,39328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1074 15646,v1.0,,On top of all this sits a huge camp for migrants and displaced people from around the world.,/post/39328,2019-03-20T11:10:14.379Z,2019-03-20T11:10:14.379Z,39328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1150 15338,v1.0,,Others will work on shared learning and professional development.,/post/6272,2018-08-14T11:41:27.221Z,2018-08-14T11:41:27.221Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3292 15337,v1.0,,"office, coworking space, venue for small events.",/post/6272,2018-08-14T11:41:06.133Z,2018-08-14T11:41:06.133Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3208 15336,v1.0,,"office, coworking space, venue for small events.",/post/6272,2018-08-14T11:41:00.760Z,2018-08-14T11:41:00.760Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2886 15335,v1.0,,"Like coral reefs, our new space will draw strength in diversity and symbiosis. Different people will bring in different skills, access to different networks, different personalities. And Edgeryders (a social enterprise, so a creature of a different species) will live in symbiosis with the space and the individuals that live in it.",/post/6272,2018-08-14T11:40:50.811Z,2018-08-14T11:40:50.811Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2884 15334,v1.0,,"Like coral reefs, our new space will draw strength in diversity and symbiosis. Different people will bring in different skills, access to different networks, different personalities. And Edgeryders (a social enterprise, so a creature of a different species) will live in symbiosis with the space and the individuals that live in it.",/post/6272,2018-08-14T11:40:33.946Z,2018-08-14T11:40:33.946Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3016 15333,v1.0,,"It needs to be financially self-sustaining, and benefit several projects and lines of business.",/post/6272,2018-08-14T11:37:25.599Z,2018-08-14T11:37:25.599Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3049 15332,v1.0,,a life/work space can not be too close to the needs of a single client.,/post/6272,2018-08-14T11:37:12.470Z,2018-08-14T11:37:12.470Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2886 15331,v1.0,,a life/work space can not be too close to the needs of a single client,/post/6272,2018-08-14T11:37:00.950Z,2018-08-14T11:37:00.950Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3201 15330,v1.0,,"In its previous iteration, we called it the unMonastery. We prototyped it in 2014, in the Italian city of Matera. That experience taught us much. The most important lesson was this: a life/work space can not be too close to the needs of a single client. Neither can it be dependent on the grant cycle. It needs to be financially self-sustaining, and benefit several projects and lines of business. We also learnt how important it is to be diverse, open and outward-looking for fresh air and fresh ideas to circulate at all times.",/post/6272,2018-08-14T11:36:47.708Z,2018-08-14T11:36:47.708Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2940 15329,v1.0,,Share knowledge.,/post/6272,2018-08-14T11:34:11.728Z,2018-08-14T11:34:11.728Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3235 15328,v1.0,,People prepared to teach each other skills.,/post/6272,2018-08-14T11:33:41.148Z,2018-08-14T11:33:41.148Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3344 15327,v1.0,,"Community provision of care services needs humans: more, better prepared, volunteers",/post/6272,2018-08-14T11:33:31.163Z,2018-08-14T11:33:31.163Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3305 15326,v1.0,,"Community provision of care services needs humans: more, better prepared, volunteers. People prepared to teach each other skills. Therapists to help volunteers in need of trauma support. So, the highest-impact technologies are those that help bring people together. Share knowledge. Distribute human resources across different care contexts. These technologies are connectors: they help string together and coordinate human efforts.",/post/6272,2018-08-14T11:33:15.091Z,2018-08-14T11:33:15.091Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2956 15325,v1.0,,Activists in America encourage each other to eat healthy food and exercise by doing it together.,/post/6272,2018-08-14T10:51:10.911Z,2018-08-14T10:51:10.911Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3152 15324,v1.0,,"Biologists and biohackers are trying to invent a cheap, open source process to make insulin.",/post/6272,2018-08-14T10:50:47.225Z,2018-08-14T10:50:47.225Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3081 15323,v1.0,,"Biologists and biohackers are trying to invent a cheap, open source process to make insulin.",/post/6272,2018-08-14T10:50:39.684Z,2018-08-14T10:50:39.684Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2959 15322,v1.0,,"Biologists and biohackers are trying to invent a cheap, open source process to make insulin.",/post/6272,2018-08-14T10:50:29.896Z,2018-08-14T10:50:29.896Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3321 15321,v1.0,,Bipolar 1 patients find and help each other fight back suicidal tendencies.,/post/6272,2018-08-14T10:50:16.342Z,2018-08-14T10:50:16.342Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3169 15320,v1.0,,"Belgian trauma therapists set up mobile studios and drive them to refugee camps in Greece, to help bereaved refugees.",/post/6272,2018-08-14T10:50:03.680Z,2018-08-14T10:50:03.680Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2976 15319,v1.0,,"Hackers make open sourced, internet-enabled glucose monitors for children with diabetes.",/post/6272,2018-08-14T10:49:51.667Z,2018-08-14T10:49:51.667Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3023 15318,v1.0,,"hey are doing amazing things. Hackers make open sourced, internet-enabled glucose monitors for children with diabetes. Belgian trauma therapists set up mobile studios and drive them to refugee camps in Greece, to help bereaved refugees. Bipolar 1 patients find and help each other fight back suicidal tendencies. Biologists and biohackers are trying to invent a cheap, open source process to make insulin. Activists in America encourage each other to eat healthy food and exercise by doing it together.",/post/6272,2018-08-14T10:49:39.283Z,2018-08-14T10:49:39.283Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,3121 15317,v1.0,,"We see people coming together, stepping into the breach. Communities are taking up the role of care providers, making it work where neither the state nor private business could.",/post/6272,2018-08-14T10:49:02.042Z,2018-08-14T10:49:02.042Z,6272,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2965 14927,v1.0,,What we really need to be the SUPER TEAM is a person specialized in finance who will help us to raise funds and manage better the financial flow of our startup to land on the shore of success .,/post/34582,2018-08-09T17:06:34.193Z,2018-08-09T17:06:34.193Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3087 14926,v1.0,,"That was the reading feature , also the app will have a game zone that will help children play to learn basic things like numbers and letters but this time using another technology that helps bring 3d objects in the real word without using the paper , something like pokemon go and lots of other features to help improve the imagination of the children",/post/34582,2018-08-09T17:05:27.637Z,2018-08-09T17:05:27.637Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3262 14925,v1.0,,"That was the reading feature , also the app will have a game zone that will help children play to learn basic things like numbers and letters but this time using another technology that helps bring 3d objects in the real word without using the paper , something like pokemon go and lots of other features to help improve the imagination of the children",/post/34582,2018-08-09T17:05:21.947Z,2018-08-09T17:05:21.947Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3211 14924,v1.0,,"We will be using this technology to project a small 3d animation with voice that reads the story . the paper we will be using will be the reading books used in school education in tunisia .With animation on the words something like karaoke , the kids will be able to read the stories , learn and have fun.In addition to this , the app will have special animation in words and the stories to suit the needs of special kids , like the dyslexique ones .",/post/34582,2018-08-09T17:05:03.959Z,2018-08-09T17:05:03.959Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3262 14923,v1.0,,"We will be using this technology to project a small 3d animation with voice that reads the story . the paper we will be using will be the reading books used in school education in tunisia .With animation on the words something like karaoke , the kids will be able to read the stories , learn and have fun.In addition to this , the app will have special animation in words and the stories to suit the needs of special kids , like the dyslexique ones .",/post/34582,2018-08-09T17:04:57.069Z,2018-08-09T17:04:57.069Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3211 14922,v1.0,,"We will be using this technology to project a small 3d animation with voice that reads the story . the paper we will be using will be the reading books used in school education in tunisia .With animation on the words something like karaoke , the kids will be able to read the stories , learn and have fun.In addition to this , the app will have special animation in words and the stories to suit the needs of special kids , like the dyslexique ones .",/post/34582,2018-08-09T17:04:47.993Z,2018-08-09T17:04:47.993Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3106 14921,v1.0,,"Our first project , is a mobile application that helps kids read , it takes stories found in ordinary books , and shows them to the kid in full 3D using the augmented reality , which means , we use the papers as platform , but also we use the virtual reality , so the vr headset.The idea is to create an app that has 3D stories, with a voice off that reads the actual story.Our perspective is using augmented reality in education in way to make learning a safe and fun experience for all.",/post/34582,2018-08-09T17:03:55.289Z,2018-08-09T17:03:55.289Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3211 14920,v1.0,,"Our first project , is a mobile application that helps kids read , it takes stories found in ordinary books , and shows them to the kid in full 3D using the augmented reality , which means , we use the papers as platform , but also we use the virtual reality , so the vr headset.The idea is to create an app that has 3D stories, with a voice off that reads the actual story.Our perspective is using augmented reality in education in way to make learning a safe and fun experience for all.",/post/34582,2018-08-09T17:03:47.978Z,2018-08-09T17:03:47.978Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3190 14919,v1.0,,"In addition, having a little sister suffering from dyslexia plays a big role to move on and take actions to start developing the application .",/post/34582,2018-08-09T16:58:28.617Z,2018-08-09T16:58:28.617Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3299 14918,v1.0,,"I started doing some research and gathering info and in the end, I got the idea to create an app that uses 3D, augmented reality and virtual reality to help improve education in general and help kids with special needs in particular.",/post/34582,2018-08-09T16:57:57.326Z,2018-08-09T16:57:57.326Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3262 14917,v1.0,,"I started doing some research and gathering info and in the end, I got the idea to create an app that uses 3D, augmented reality and virtual reality to help improve education in general and help kids with special needs in particular.",/post/34582,2018-08-09T16:57:40.170Z,2018-08-09T16:57:40.170Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3211 14916,v1.0,,"My story begins when I started studying IT and discovered that my sister has dyslexia, it is a genetic illness that causes problems in education.",/post/34582,2018-08-09T16:57:24.804Z,2018-08-09T16:57:24.804Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,2882 14915,v1.0,,"Now I am an engineering student and I have a dream which is creating a company that will do lots of good in Tunisia, it might sound dreamy but I believe in it.",/post/34582,2018-08-09T16:56:43.790Z,2018-08-09T16:56:43.790Z,34582,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,2974 14914,v1.0,,no we are not funded we work together with our own money and potential,/post/34848,2018-08-09T16:55:39.859Z,2018-08-09T17:02:16.406Z,34848,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6766,3247 14457,v1.0,,"And, the more niche your project, the sparser, further away your peers. Hence the attention to international reach in Edgeryders, the embracing of (bad) English as a connecting language, and the emphasis on online, written communication – much cheaper at this geographic scale.",/post/38641,2018-08-03T23:50:45.735Z,2018-08-03T23:50:45.735Z,38641,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3050 14456,v1.0,,"And, the more niche your project, the sparser, further away your peers. Hence the attention to international reach in Edgeryders, the embracing of (bad) English as a connecting language, and the emphasis on online, written communication – much cheaper at this geographic scale.",/post/38641,2018-08-03T23:50:31.499Z,2018-08-03T23:50:31.499Z,38641,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3265 14455,v1.0,,"And, the more niche your project, the sparser, further away your peers. Hence the attention to international reach in Edgeryders, the embracing of (bad) English as a connecting language, and the emphasis on online, written communication – much cheaper at this geographic scale.",/post/38641,2018-08-03T23:50:15.059Z,2018-08-03T23:50:15.059Z,38641,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3316 14454,v1.0,,"And, the more niche your project, the sparser, further away your peers. Hence the attention to international reach in Edgeryders, the embracing of (bad) English as a connecting language, and the emphasis on online, written communication – much cheaper at this geographic scale.",/post/38641,2018-08-03T23:50:00.299Z,2018-08-03T23:50:00.299Z,38641,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3315 14453,v1.0,,"Open Village’s semi-formal structure has advantages, keeping the doers doing more good without having the political and economic limitations (or rather reducing them).The international connections are important, seeing that your way of doing things aren’t the only way. Individual actions are happening in Egypt, more collective action would be a good thing.",/post/38572,2018-08-03T23:47:59.962Z,2018-08-03T23:50:22.305Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3316 14452,v1.0,,"Open Village’s semi-formal structure has advantages, keeping the doers doing more good without having the political and economic limitations (or rather reducing them).The international connections are important, seeing that your way of doing things aren’t the only way. Individual actions are happening in Egypt, more collective action would be a good thing.",/post/38572,2018-08-03T23:47:54.551Z,2018-08-03T23:47:54.551Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,2893 14451,v1.0,,In Egypt it’s hard to take community action.,/post/38572,2018-08-03T23:46:13.925Z,2018-08-03T23:46:13.925Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3118 14450,v1.0,,No action from the government and the community is limited in what they can do and what I want to do is building on other activists in Egypt’s work and try to put the scientific knowledge into it,/post/38572,2018-08-03T23:45:51.771Z,2018-08-03T23:45:51.771Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3024 14449,v1.0,,It’s a project related to my academic background – cycling and transportation. There is no cycling promotion in Egypt.No action from the government and the community is limited in what they can do and what I want to do is building on other activists in Egypt’s work and try to put the scientific knowledge into it.Trying to tie together individual actors into a bigger network along with the government.In Egypt it’s hard to take community action.,/post/38572,2018-08-03T23:45:30.334Z,2018-08-03T23:45:30.334Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3098 14448,v1.0,,It’s a project related to my academic background – cycling and transportation. There is no cycling promotion in Egypt.No action from the government and the community is limited in what they can do and what I want to do is building on other activists in Egypt’s work and try to put the scientific knowledge into it.Trying to tie together individual actors into a bigger network along with the government.In Egypt it’s hard to take community action.,/post/38572,2018-08-03T23:45:22.409Z,2018-08-03T23:45:22.409Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,2937 14447,v1.0,,"Working on the ideas alone can possibly discourage you especially when you have doubts about how it’s going to work and self-criticism about how you are doing it. When I voiced out my ideas online I had surprisingly positive response and that got me more engaged in my project, I networked more with people with insights about the similar projects. And I really enjoy the positive vibes.I came here to see it ‘live’ and meeting those people face to face and possibly look how I can go forward from there.",/post/38572,2018-08-03T23:44:54.078Z,2018-08-03T23:44:54.078Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,3299 14446,v1.0,,I am actually a new member here. I have been part of the online community recently and I see it as a place for putting your thoughts and even imaginations about what you want to achieve for the public good.,/post/38572,2018-08-03T23:44:19.345Z,2018-08-03T23:44:19.345Z,38572,4155,AnnotatorStore::TextAnnotation,,,,,,,,,7510,2956 14287,v1.0,,"There are many children from from Northern Africa here, and we have noticed that they need role models that they can relate to. Perhaps this is also something we can talk about.",/post/39069,2018-08-02T21:27:26.172Z,2018-08-02T21:27:26.172Z,39069,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6975,3281 14286,v1.0,,"A group we have a hard time reaching is children with a migration background, especially those that are ""fine for the system"". They are not ""doing bad enough"" to be accompanied by specialized organisations, but by any measure they have a disadvantage that shows in their grades and ultimately how they enter society as young adults.",/post/39069,2018-08-02T21:26:53.074Z,2018-08-02T21:26:53.074Z,39069,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6975,3118 14285,v1.0,,"A nonprofit I helped start is doing science education for forgotten groups in Belgium. These are children from underprivileged contexts, people with physical or mental disabilities etc. A while back we planned to teach long term hospitalized children, but sadly it did not go through. Our added value is being able to translate modern or complex science into fun and instructive activities suited for the target audience and their context. Maybe this can be the start of a further conversation.",/post/39069,2018-08-02T21:26:18.155Z,2018-08-02T21:26:18.155Z,39069,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6975,1901 14194,v1.0,,"I took part in some of these accessibility tours in Berlin, where people get the chance to experience the city with wheel chairs or eye blinds, and see for themselves if their neighborhood accessible and friendly enough or not. am not sure if this tours can make sense in tunisia or not but it could be an idea, if you are interested I can link you together to cooperate with the berlin group.also in berlin another they are using is this kind of posters saying ""unfortunately we must stay outside ""( Wir müssen leider draußen bleiben) to encourage even private business to have a barrier free entrances.",/post/34580,2018-07-31T23:26:36.090Z,2018-07-31T23:26:36.090Z,34580,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2940 14193,v1.0,,"Besides this technical issue, you might enjoy the work that the City of Milan is doing in a similar vein: trying to build cheap, simple solutions for shopkeepers to make their shops wheelchair accessible. This initiative is spearheaded by @rossana_torri and @alessandro_contini; @federico_monaco is observing it closely. The project is called Open Rampette.",/post/34571,2018-07-31T23:25:15.670Z,2018-07-31T23:25:15.670Z,34571,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2940 14192,v1.0,,"In fact, I have studied Wheelmaps and I wheel Share also, but there are three major issues:- You can't implement DataAnalysis tools through Open Street Map;- You can't have the itinerary to the identified place in terms of accessibility;- When you map (and/ or mark) a new place, the accessibility basis are very standard the time that the norms are different from a country to the other; This is in addition to the fact that the process in Wheelmap is not that simple. That's why HandYwiN is basing on Google Maps, which affords you many options including the itinerary and the feedback of others through the Google Maps app. Moreover, HandYwiN provides 10 simple questions (if you check that means yes, and if you keep it unchecked it means no).",/post/34569,2018-07-31T23:24:05.509Z,2018-07-31T23:24:05.509Z,34569,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,1888 14191,v1.0,,"The presence of accessibility data on OpenStreetMap means that it is going to be difficult to make money selling access to digital maps of wheelchair-friendly places, when the world's largest such map is online for free. On the other hand, you will have the benefit of concentrating of the other functionalities of your platform you mention above.",/post/34567,2018-07-31T23:22:06.573Z,2018-07-31T23:22:06.573Z,34567,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2911 14190,v1.0,,"I imagine you will be familiar with Wheelmap (this is Tunis, for example). How is HandYwiN positioned with respect to it? You could easily import all Wheelmap data, because they commit onto the OpenStreetMap database, so all the data are open. This would populate your platform immediately. At the same time, you could also contribute your own data to OpenStreetMap, so you would be helping to enrich it for yourself and others.",/post/34567,2018-07-31T23:21:36.564Z,2018-07-31T23:21:36.564Z,34567,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2940 14189,v1.0,,"Furthermore, the platform will promote for places that are handicap friendly, public or private, while the social responsibility is becoming a corner stone in a modern economy and an obligation of all. This is in addition to the fact that by law, accommodation in public and private places to people with disabilities is obligatory. Therefore, in a country where a new democracy is being born, all people should be taken into consideration, including persons with disabilities.",/post/34541,2018-07-31T23:20:51.485Z,2020-06-09T13:19:58.518Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3417 14188,v1.0,,"Furthermore, the platform will promote for places that are handicap friendly, public or private, while the social responsibility is becoming a corner stone in a modern economy and an obligation of all. This is in addition to the fact that by law, accommodation in public and private places to people with disabilities is obligatory. Therefore, in a country where a new democracy is being born, all people should be taken into consideration, including persons with disabilities.",/post/34541,2018-07-31T23:20:38.074Z,2018-07-31T23:20:38.074Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3050 14187,v1.0,,"This has been the main idea of the initiative that I came up with: ""HandYwiN”, which is a web based platform, based on crowd-sourcing and geo-localization technologies that determine and rate the level of accessibility and adaptability of the public and private places for people with disabilities and particularly, those who are using wheelchairs. Through this platform, people can rate places around them, in a participatory map, according to official criteria and norms of accessibility. The map shows then to its users the closest and accessible place that they need or they want to go. It determines also if a particular place is accessible and what are its affordances in terms if accessibility",/post/34541,2018-07-31T23:20:06.824Z,2020-06-09T13:19:58.513Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3417 14186,v1.0,,"This has been the main idea of the initiative that I came up with: ""HandYwiN”, which is a web based platform, based on crowd-sourcing and geo-localization technologies that determine and rate the level of accessibility and adaptability of the public and private places for people with disabilities and particularly, those who are using wheelchairs. Through this platform, people can rate places around them, in a participatory map, according to official criteria and norms of accessibility. The map shows then to its users the closest and accessible place that they need or they want to go. It determines also if a particular place is accessible and what are its affordances in terms if accessibility",/post/34541,2018-07-31T23:19:56.396Z,2018-07-31T23:19:56.396Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3050 14185,v1.0,,"In fact, I discovered later that around 13.5% of the population in Tunisia and around 15% of population in all over the world are encountering such issues. As a disability rights advocate, and a Computer Science Researcher, I was looking for addressing the issue of accessibility since it is a fundamental element towards the social inclusion. Resolving this problem means protecting the dignity, the autonomy and the security of people who have deficiencies and find themselves in a disability situation only because the environment including the society are not considering them.",/post/34541,2018-07-31T23:18:32.226Z,2018-07-31T23:18:32.226Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,1888 14184,v1.0,,"As a result, you could not go wherever you want, barriers are everywhere (in addition to how is the society looking on you). Where you move you find that your disability is not taken into consideration in transportation, in libraries, schools, in municipalities, in banks and even in the street. With a very weak adaption of access to people using crutches, canes, wheelchairs, white canes, and sign language, people use to spend a long time to find a suitable restaurant or a coffee-shop where you can get in by themselves, or at least where people can help you with the minimum of difficulties.",/post/34541,2018-07-31T23:18:11.643Z,2018-07-31T23:18:11.643Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3142 14183,v1.0,,"As a result, you could not go wherever you want, barriers are everywhere (in addition to how is the society looking on you). Where you move you find that your disability is not taken into consideration in transportation, in libraries, schools, in municipalities, in banks and even in the street. With a very weak adaption of access to people using crutches, canes, wheelchairs, white canes, and sign language, people use to spend a long time to find a suitable restaurant or a coffee-shop where you can get in by themselves, or at least where people can help you with the minimum of difficulties.",/post/34541,2018-07-31T23:17:21.525Z,2018-07-31T23:17:21.525Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3118 14182,v1.0,,"As a result, you could not go wherever you want, barriers are everywhere (in addition to how is the society looking on you). Where you move you find that your disability is not taken into consideration in transportation, in libraries, schools, in municipalities, in banks and even in the street. With a very weak adaption of access to people using crutches, canes, wheelchairs, white canes, and sign language, people use to spend a long time to find a suitable restaurant or a coffee-shop where you can get in by themselves, or at least where people can help you with the minimum of difficulties.",/post/34541,2018-07-31T23:17:12.816Z,2018-07-31T23:17:12.816Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3262 14181,v1.0,,"26 years ago, when I came to this world, I have found myself with a physical deficiency “Spina Bifida” (spinal cord injury and paraplegia), which has caused a partial loss of sensation and control of my legs. Growing up with such disability is not very relevant: looking on others playing, running, jumping, and swimming, while you may not do the same as they do only because of your disability! As I grew up, life for me was getting harder, both public and private places were almost inaccessible and not sufficiently adapted to people with disabilities.",/post/34541,2018-07-31T23:16:49.352Z,2018-07-31T23:16:49.352Z,34541,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6758,3262 14156,v1.0,,"n 2015, I was nominated to get the “Golden Quality and Innovation Prize” in Paris, and in 2016, I got the Price of the best mobile application in Tunisia.",/post/34574,2018-07-31T22:32:19.917Z,2018-07-31T22:32:19.917Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3232 14154,v1.0,,"I have been trying to learn many things including design, videos mounting, net security, and development. That was not as easier as I thought, but it is funny to do what you love and to create your own world.",/post/34574,2018-07-31T22:31:50.489Z,2018-07-31T22:31:50.489Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3138 14153,v1.0,,"In my life, my biggest aiming is to contribute on resolving the people’s problems around the world in order to make their life easier and more comfortable.",/post/34574,2018-07-31T22:31:08.809Z,2018-07-31T22:31:08.809Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,2975 14152,v1.0,,"have a look at the stories from other care-related projects, and feel free to drop comments with questions or throughtful reflections - this is a space for us to learn together.",/post/34665,2018-07-31T22:30:31.762Z,2018-07-31T22:30:31.762Z,34665,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,2940 14151,v1.0,,AuxiLife will reduce time and energy consumption to look for the “Personal Care Assistant” to be with the person with disabilities.,/post/34574,2018-07-31T22:29:01.831Z,2018-07-31T22:29:01.831Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3179 14150,v1.0,,"AuxiLife would be the most used social network all over the world to help persons with disabilities to enjoy their lives, so that they get more autonomy to go anywhere and to do whatever they want without waiting for the charity of the other. This network would allow persons with disabilities the possibility to request for an assistance by posting the details of the activity that they want to do, and get propositions of the Personal Care Assistants through the platform, and then they will choose the best proposal according to criteria that they identify.",/post/34574,2018-07-31T22:28:50.438Z,2018-07-31T22:28:50.438Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3262 14149,v1.0,,"AuxiLife would be the most used social network all over the world to help persons with disabilities to enjoy their lives, so that they get more autonomy to go anywhere and to do whatever they want without waiting for the charity of the other. This network would allow persons with disabilities the possibility to request for an assistance by posting the details of the activity that they want to do, and get propositions of the Personal Care Assistants through the platform, and then they will choose the best proposal according to criteria that they identify.",/post/34574,2018-07-31T22:28:33.765Z,2018-07-31T22:28:33.765Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3261 14148,v1.0,,"For that reason, AuxiLife came out to my mind: a social network that gives to the persons with deep physical disabilities the ability to hire the suitable “Personal Care Assistant” to assist them in their daily activities.",/post/34574,2018-07-31T22:28:05.694Z,2018-07-31T22:28:05.694Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3262 14147,v1.0,,"For that reason, AuxiLife came out to my mind: a social network that gives to the persons with deep physical disabilities the ability to hire the suitable “Personal Care Assistant” to assist them in their daily activities.",/post/34574,2018-07-31T22:26:39.427Z,2018-07-31T22:26:39.427Z,34574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6764,3261 13952,v1.0,,"in 2016 I started an independent mission to open Zika Virus Diagnostics in Brazil. experiment.com/zikalika I am interested in connecting with new people and opening more biodata to anyone. I am especially interested in creating tools that allow people to ""read"" DNA\RNA.",/post/34621,2018-07-28T14:51:09.906Z,2018-07-28T14:51:09.906Z,34621,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6778,2959 13951,v1.0,,"For tools that allow people to read DNA/RNA, two projects come to mind: DigiBio, open source microfluidics devices (https://digi.bio/) and Cell-Free Tech (http://cell-free.tech/), who produce cell-free extract. They're both young companies, have prototypes and are very open to cool projects for their beta program.",/post/34720,2018-07-28T14:48:54.561Z,2018-07-28T14:48:54.561Z,34720,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6778,2940 13632,v1.0,,"I don't get it! I could just move in. Set up a tent somewhere, and refuse to leave, points or no points. Does that mean you have some kind of police to enforce your point system, and make people leave by force if they don't comply? Cancel Save Annotate",/post/35828,2018-07-16T23:33:34.440Z,2018-07-16T23:33:34.440Z,35828,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3132 13631,v1.0,,"This is very impressive, but I am not sure how you can do this with so much top-down control without breaking it.",/post/35779,2018-07-16T23:31:37.067Z,2018-07-16T23:31:49.123Z,35779,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2947 13630,v1.0,,"As I feared In that situation, you might want to adopt the voluntary migration strategy of the Free State Project instead, because it needs no government cooperation at all. Own governance structures like the membership card might have to be adapted a bit, though. Wikipedia has a nice summary. Basically the FSP intends to ""take over"" one location by amassing people with similar intentions and initiatives there. This happens crowdfunding-style, with a threshold. So they first collected people who promised to move if 19,999 people promise the same. This lastest from 2001 to 2016. Now that the threshold has been reached, these 20,000 people are expected to make good on their promise and come to New Hampshire.",/post/35623,2018-07-16T23:29:14.498Z,2018-07-16T23:29:14.498Z,35623,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2940 13629,v1.0,,and i trying to make co-operation with government but no response,/post/35621,2018-07-16T23:22:19.482Z,2018-07-16T23:22:19.482Z,35621,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2947 13628,v1.0,,"Do you need or have any government cooperation, or is it just about moving there individually for the 1000 selected people?",/post/35619,2018-07-16T23:22:12.758Z,2018-07-16T23:22:12.758Z,35619,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2947 13627,v1.0,,IX. HOUSES:Wooden houses is the perfect choice that has been chosen for various reasons:1. Do not harm the environment.2 - Economic price interview with concrete houses.3 - her aesthetic view.4 - the ability to withstand the various environmental factors more than others.,/post/35613,2018-07-16T23:20:45.824Z,2018-07-16T23:20:45.824Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3099 13626,v1.0,,VIII. Means of transportation:You will be able to use environmentally friendly transportation such as bicycles and golf cars that are powered by electricity,/post/35613,2018-07-16T23:20:36.178Z,2018-07-16T23:20:36.178Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3098 13625,v1.0,,VII. SanitationSewage will be treated to be suitable for irrigation of gardens and agriculture.,/post/35613,2018-07-16T23:20:28.221Z,2018-07-16T23:20:28.221Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3097 13624,v1.0,,"VI. WATER:Studies in Egypt have proved that if we move away from the Nile River 70 km, desalination is the economic optionTherefore, seawater desalination will be used to provide water for drinking and agriculture.",/post/35613,2018-07-16T23:20:20.714Z,2018-07-16T23:20:20.714Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2953 13623,v1.0,,Winds.,/post/35613,2018-07-16T23:20:01.343Z,2018-07-16T23:20:01.343Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3094 13622,v1.0,,Solar energy.,/post/35613,2018-07-16T23:19:48.714Z,2018-07-16T23:19:48.714Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3093 13621,v1.0,,"V. ELECTRICITY:Only clean energy generated from:1. Solar energy.2. Winds.3. Water rush.4. Power generation by movement (bike). VI. WATER:Studies in Egypt have proved that if we move away from the Nile River 70 km, desalination is the economic optionTherefore, seawater desalination will be used to provide water for drinking and agriculture.VII. SanitationSewage will be treated to be suitable for irrigation of gardens and agriculture. VIII. Means of transportation:You will be able to use environmentally friendly transportation such as bicycles and golf cars that are powered by electricityIX. HOUSES:Wooden houses is the perfect choice that has been chosen for various reasons:1. Do not harm the environment.2 - Economic price interview with concrete houses.3 - her aesthetic view.4 - the ability to withstand the various environmental factors more than others.",/post/35613,2018-07-16T23:19:36.029Z,2018-07-16T23:19:36.029Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3092 13620,v1.0,,"Each member of the island has a membership card and the card has a number of points and if the person has committed any offenseThe number of points owned shall be deducted according to the type of violation committed (of course, the sanctions regulation) and if the individual has exhausted the number of points owned by himHe is thankful for his time spent on the island.The number of points is also increased for individuals who are positive in helping the people of the island and thus giving them greater advantages based on their positivity",/post/35613,2018-07-16T23:19:10.007Z,2018-07-16T23:19:10.007Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3101 13619,v1.0,,. Ethics.,/post/35613,2018-07-16T23:18:24.199Z,2018-07-16T23:18:24.199Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3101 13618,v1.0,,"IV. How to choose 1000 young people:The 1,000 young people from all over the country will be selected by a dedicated HR teamThe lesson in selection criteria are:1. Ethics.2. Ambition.In order to avoid the negatives resulting from the poor morals and frustrations that exist in society now• After selecting individualsEach member of the island has a membership card and the card has a number of points and if the person has committed any offenseThe number of points owned shall be deducted according to the type of violation committed (of course, the sanctions regulation) and if the individual has exhausted the number of points owned by himHe is thankful for his time spent on the island.The number of points is also increased for individuals who are positive in helping the people of the island and thus giving them greater advantages based on their positivity",/post/35613,2018-07-16T23:18:13.779Z,2018-07-16T23:18:13.779Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3091 13617,v1.0,,"create job opportunities for young people, and work successful models of Egyptian youth capable of taking responsibility.",/post/35613,2018-07-16T23:17:32.744Z,2018-07-16T23:17:32.744Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3029 13616,v1.0,,"Australia generated revenues of $ 2.5 billion2 - Canada achieved $ 6.5 billion in addition to providing 125 thousand jobs.3 - Italy achieved one billion euros in addition to providing 80 thousand jobs.Mauritius Island receives about 1,500,000 tourists annually.Thus, the importance of exploiting the islands in Egypt to increase national income, create job opportunities for young people, and work successful models of Egyptian youth capable of taking responsibility.",/post/35613,2018-07-16T23:17:10.365Z,2018-07-16T23:17:10.365Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2940 13615,v1.0,,"Development of internal and external tourism through model work for the Maldives, Malaysia and Thailand in Egypt. (Tourism islands) and these are the most places where the Egyptians in their travel.",/post/35613,2018-07-16T23:16:14.865Z,2018-07-16T23:16:14.865Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2940 13614,v1.0,,"Development of internal and external tourism through model work for the Maldives, Malaysia and Thailand in Egypt. (Tourism islands) and these are the most places where the Egyptians in their travel.",/post/35613,2018-07-16T23:16:09.495Z,2018-07-16T23:16:09.495Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3131 13613,v1.0,,Establish agricultural and industrial projects without harm to the environment and not rely solely on tourism.,/post/35613,2018-07-16T23:15:55.543Z,2018-07-16T23:15:55.543Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3100 13612,v1.0,,And use A clean energy only on the island,/post/35613,2018-07-16T23:15:04.924Z,2018-07-16T23:15:04.924Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,3092 13611,v1.0,,And projects that are not harmful to the environment,/post/35613,2018-07-16T23:13:08.395Z,2018-07-16T23:13:08.395Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,1894 13610,v1.0,,By creating common workspaces,/post/35613,2018-07-16T23:12:59.662Z,2018-07-16T23:12:59.662Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2886 13609,v1.0,,my Idea is to build a community from Egyptian creative Youth in an island To create a successful model of creative youthBy creating common workspacesAnd projects that are not harmful to the environmentAnd use A clean energy only on the island,/post/35613,2018-07-16T23:12:48.368Z,2018-07-16T23:12:48.368Z,35613,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2991 13608,v1.0,,"Human Nature is not as malevolent or anti-nature as we see on movie screens or read about in standard narrative fiction/non-fiction/journalism (My opinion is that there is far too few attacks on the systems that drive us to short sighted progressions, we have names for them such as capitalism, patriarchy, totalitarian agriculture etc etc, but these suggest a compartmentalization of the issues, where as the memetic organisms are as multidimensional as you or me, and the problem is they are invisible to our eyes for the most part) Our will to survive and reproduce is not a sin nor commendable, but it's universal intra and extra-species.",/post/36344,2018-07-16T23:02:58.651Z,2018-07-16T23:02:58.651Z,36344,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3130 13607,v1.0,,"I'm not yet done with thinking how that could be done practically, mainly saying this as a new way to think about countering ecological destruction. But it's not completely unfeasible: think CO2 concentration technology and lots and lots of seawater greenhouses in desert areas. The CO2 enriched air inside the greenhouse makes the plants grow faster (which is the most important property of modern greenhouses, but currently done with a natural gas burner). The products are fruits, nuts, vegetables, and biomass, which would be partially charred and partially composted to create long-term stable soil with lots of carbon in it for even more such greenhouses …",/post/35156,2018-07-16T21:24:07.271Z,2018-07-16T21:24:07.271Z,35156,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3129 13606,v1.0,,"One new thought: what's relevant is only the net effect on nature. The good (repair, cleanup and restoration) can always offset the bad, except for cases of species extinction. So while humans destroy parts of the earth beyond recognition, other humans may find ways to create ecological diversity in other parts beyond what nature could do if left alone. Think ecosystem restoration work, and then something on top: ecosystem creation. If the net effect of all humans is positive for ecological diversity, no reason to grieve about humanity's very existence on Earth. That is of course far off, but I found it an interesting approach to the problem. Because it's just unrealistic to regulate everyone into not harming nature. The same applies to climate change: if a part of humanity would care to (profitably!) remove the CO2 from the atmosphere that the other part of humanity is releasing there – problem solved.",/post/35156,2018-07-16T21:22:57.869Z,2018-07-16T21:22:57.869Z,35156,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3128 13605,v1.0,,"Oh, I don't think we are doomed to selfishness and extractiveness. In fact, we have made massive progress on so very many fronts. I just think such progress, and most of the progress to come, will come from looking ahead. I am just saying there are no white bricks. Our hands are covered in blood. Our tribe elders have killed and maimed and enslaved and raped and messed up the planet as a matter of routine, whatever the tribe.",/post/35150,2018-07-16T21:19:27.517Z,2018-07-16T21:19:55.099Z,35150,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3127 13604,v1.0,,"The Brehon legal tradition, prior to its abolishment via the tanning case, was an ecological legal order, where the trees were divided into three classes in the forest, the nobles, the commoners, and bushes, they had status, based on their function as preserves of the life of the forest upon which the people depended. In a short few hundred years of common law the great forest was levelled to smelt iron ore for weaponary and to build the ships of colonialism. This push came from more ancient compatriots of your homeland, it is perhaps not surprising that you share a certain fatalism.",/post/35134,2018-07-16T17:28:59.467Z,2018-07-16T17:28:59.467Z,35134,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3124 13603,v1.0,,"As for ecology, nature thrives wherever man leaves it alone. The Chernobyl radioactive disaster area, just about human technological folly at its worst, has thriving wildlife, with lynx and bears and bisons and wild horses (wild horses! In Europe!). This has led elder ecologist Stewart Brand to suggest that mega-cities are the greenest solution for hosting homo sapiens. If you love nature, he says, set her free... of your presence.",/post/35118,2018-07-16T15:28:15.802Z,2018-07-16T15:28:15.802Z,35118,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3123 13602,v1.0,,"A point on the why...Within months of the Normans coming to Ireland it is noted that ""they became more irish than the irish themselves"". In effect, your consciousness is cumulative and you contain billions of 'individual' life forms (there is no such thing as individual but for the whole you see). The normans ate from the soil, and became of the land. This is health and rectitude. The modern human is disconnected from others, from true self, from the land via work and food, and from the earth and all of its depth thereby. For quite some time I have urged the tech community to put down roots.",/post/35053,2018-07-16T15:26:22.117Z,2018-07-16T17:28:59.652Z,35053,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3125 13601,v1.0,,"initiated a local inter green schools program, a community woodland, a community garden in a neighbouring village, an ecotouristic bee project,",/post/35053,2018-07-16T15:18:38.012Z,2018-07-16T15:18:38.012Z,35053,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3100 13600,v1.0,,tarted a local cottage market to support small scale producers,/post/35053,2018-07-16T15:18:19.822Z,2018-07-16T15:18:19.822Z,35053,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,2888 13599,v1.0,,"nd working projects with the community mental health centre, intellectual disability groups, schools, rehabilitative care clinics, and the general public.",/post/35053,2018-07-16T15:17:16.944Z,2018-07-16T15:17:16.944Z,35053,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,3121 13598,v1.0,,"In 2008 I got Crohns disease my time in Edgeryders was a morphed up, healing, and reaching out, of creative capacity; in a muddle of sick and post multiple surgery period during which my surgeon constantly reminded me of 'mortality issues'. It took 3 years to learn what to eat, and another 3 to learn the truth of 'you are what you eat' , and at this stage I would assert that you are also HOW you eat, as in - how you supply sustenance to self and kindred. 2016 was the first year since 2008 that I was not hospitalised, and going strong since, the reason for this has been the slow acknowledgement that ""we are the soil"", or in more precise terms, our health depends on the bacterial ecology of the gut and this depends on the health and bacterial ecology of the soil (all of which is 'the ancestor' if you think about it deeply enough). Food shaped food , grown in chemical soup, with only 3 of 62 micronutrients, will not cut it.",/post/35053,2018-07-16T10:59:41.160Z,2018-07-16T10:59:41.160Z,35053,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6855,2966 13330,v1.0,,"In 2011, some senior doctors started comparing notes, and they saw a perfect health care storm brewing at the horizon. “We knew something very bad was coming, and people would die – says Maria – so we decided we must do something.”",/post/4913,2018-06-10T20:43:13.588Z,2018-06-10T20:43:13.588Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2021 13329,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2018-06-10T20:42:40.604Z,2018-06-10T20:42:40.604Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2028 13328,v1.0,,"Fast MED is an app designed to simplify the approach that people have with the world of healthcare. The user the app is intended for, is a person who is not always comfortable with moving around on their own or which could not have too much familiarity with smartphones. Suddenly they have a need related to their health, they need for an attention or a medicine but they are not able to move on their own. Through this app, with the help of geolocation on a map, the user can: -call an ambulance with just one tap and advise emergency contact people. -find doctors available to come to their place; -locate pharmacies opened at the moment or ask for home delivery; The ease of use allows the user to find the service they need as near as possible to them. During the registration the user has to insert some personal details, as personal data, diseases and emergency contact people. ·      In case of emergency the user, pushing the red button, will ask for an ambulance that will find their present place through the geolocation on the map. The app will send the doctors the informations that the patient has previously inserted. At the same time, the app will advise the emergency contact people, telling them the place their loved one has been taken to. ·      Pushing the yellow button, the user unable to go out can contact the closest doctor to them available for a private home visit. ·      Pushing the green button, through the geolocation, the user can find the closest pharmacies opened at the moment. They can consult the schedule and chat with the pharmacist to order what they need. Than they can go there on their own or ask for a fast home delivery. In case of need of the medical prescription, the user will send via chat a picture of it to the pharmacist. The present status of the project is the developing one. A brainstorming has helped us to find out problems and needs of the users and the possible solutions. We have highlighted components and characteristics of the app, the challenge we want to face and the characters involved. Through an Empathy map, we have figured out who actually are our users of the app. A User flow has drafted which pages should link to each other, to design call-to-actions that lead users through the right screen flow. Then Wireframes have visually illustrated the structure of the app. They have also been useful to allow a stranger to the app to test it and to point out possible mistakes. We are now working at the final prototype and we hope to start a new Usability testing as soon as possible. The goal is to improve the service offered from the app and to facilitate the experience for future users.",/post/822,2018-06-10T20:42:00.498Z,2018-06-10T20:42:00.498Z,822,3791,AnnotatorStore::TextAnnotation,,,,,,,,,789,2028 13326,v1.0,,"Wait. Self-organised people with no money and no organisation that beat credentialed, moneyed professionals at their own game? We've seen this before. It was Wikipedia outcompeting Encyclopedia Britannica. It was OpenStreetMap pushing to the curbs Garmin and TomTom. It was Facebook groups coordinating disaster relief after the Nepal 2015 earthquakes and the Tbilisi 2015 flash flood, way before the government and NGOs could get their act together. It was Internet-coordinated young newcomers changing the rules of the political game, and even bringing down entire regimes who seemed to have all the power and all the money, in Egypt, Tunisia and Ukraine. We have a word for these phenomena: we call them disruption. They are associated with supplying goods or services in a new way, that substitutes collective intelligence and distributed effort for vertical organisations. This new way happens to be vastly more efficient than the old ones.",/post/4913,2018-06-10T20:40:37.268Z,2018-06-10T20:40:37.268Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2858 13325,v1.0,,respectab,/post/4913,2018-06-10T20:40:02.144Z,2018-06-10T20:40:02.144Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2858 13323,v1.0,,"Access Space has a very wide range of participation. If you split them into three groups, <25years, 25-50years, >50 years, then those groups are roughly similar in size. Roughly 1/3 of our participants are from minority ethnic backgrounds. Around 1/3 of our participants have a university education. Almost 2/3 of our participants are unemployed, or under-employed. Around 1/5 of our participants have some form of disability or long-term illness - particularly learning difficulties, like Asperger's Syndrome (associated with high intelligence) and mental health difficulties, such as depression. 1/10 of our participants have a serious problem with housing. Either they're homeless, or they are living in insecure, or temporary accommodation. We had more than 2000 people use the space in 2011, which added up to more than 12000 hours of usage. Helping and facilitating this number of people, particularly when some of them have difficulties, is a huge job.",/post/1710,2018-06-10T20:38:39.351Z,2018-06-10T20:38:39.351Z,1710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1677,2859 13322,v1.0,,"It does not accept donations in money. It does accept donations in kind: medicines, equipment, blood sample analyses.",/post/4913,2018-06-10T20:37:59.060Z,2018-06-10T20:37:59.060Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2973 13319,v1.0,,"THE EDGE OF FUNDING - Sustainability and Financial models A panel session moderated by Eric Osiakwan #OpenVillage, 19-21 October, Brussels You want to sustain the good work you are doing. In a resource-strained world, you need to be smarter in how you search for and acquire resources. What models are most future proof? Funding is perhaps an obvious means but is getting harder to access and research funding often is focused on serving particular sets of interests. This session will take a broader look at how to sustain our work in a rapidly changing context. Panel members will share their expertise, followed by Open Space to give participants an opportunity to explore particularly relevant ideas or models in more detail. This session has been developed to span all the themes at Open Village, from open science to collective living and working, to culture and policy. What kind of sub topics do you want to see covered in this panel? We want your thoughts on this as well as the kind of panel members you'd love to hear from.",/post/6460,2018-06-10T20:36:07.892Z,2018-06-10T20:36:07.892Z,6460,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6427,2862 13318,v1.0,,"It operates with practically no hierarchy and no management. People decide by themselves what role to play, by joining one of several groups (about 10 members to a group) which exist to carry on specific tasks (like onboarding new patients). An organising committee does its best to keep people on the same page. A weekly meeting votes on general issues. A mailing list deals with specific matters.",/post/4913,2018-06-10T20:34:20.907Z,2018-06-10T20:34:20.907Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2863 13317,v1.0,,The MCCH saves people. It provides health care to down-on-their-luck Greeks who have no access to public health care and no money to pay for private clinics.,/post/4913,2018-06-10T20:33:40.837Z,2018-06-10T20:33:40.837Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2864 13316,v1.0,,"On top of diagnosis/prognosis, MCCH supplies free medicines, baby food and nappies.",/post/4913,2018-06-10T20:29:36.530Z,2018-06-10T20:29:36.530Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2864 13315,v1.0,,"THE EDGE OF FUNDING - Sustainability and Financial models A panel session moderated by Eric Osiakwan #OpenVillage, 19-21 October, Brussels You want to sustain the good work you are doing. In a resource-strained world, you need to be smarter in how you search for and acquire resources. What models are most future proof? Funding is perhaps an obvious means but is getting harder to access and research funding often is focused on serving particular sets of interests. This session will take a broader look at how to sustain our work in a rapidly changing context. Panel members will share their expertise, followed by Open Space to give participants an opportunity to explore particularly relevant ideas or models in more detail. This session has been developed to span all the themes at Open Village, from open science to collective living and working, to culture and policy. What kind of sub topics do you want to see covered in this panel? We want your thoughts on this as well as the kind of panel members you'd love to hear from.",/post/6460,2018-06-10T20:29:09.455Z,2018-06-10T20:29:09.455Z,6460,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6427,2065 13314,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2018-06-10T20:28:39.627Z,2018-06-10T20:28:39.627Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2865 13313,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2018-06-10T20:28:04.761Z,2018-06-10T20:28:04.761Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2866 13308,v1.0,,"Fast MED is an app designed to simplify the approach that people have with the world of healthcare. The user the app is intended for, is a person who is not always comfortable with moving around on their own or which could not have too much familiarity with smartphones. Suddenly they have a need related to their health, they need for an attention or a medicine but they are not able to move on their own. Through this app, with the help of geolocation on a map, the user can: -call an ambulance with just one tap and advise emergency contact people. -find doctors available to come to their place; -locate pharmacies opened at the moment or ask for home delivery; The ease of use allows the user to find the service they need as near as possible to them. During the registration the user has to insert some personal details, as personal data, diseases and emergency contact people. ·      In case of emergency the user, pushing the red button, will ask for an ambulance that will find their present place through the geolocation on the map. The app will send the doctors the informations that the patient has previously inserted. At the same time, the app will advise the emergency contact people, telling them the place their loved one has been taken to. ·      Pushing the yellow button, the user unable to go out can contact the closest doctor to them available for a private home visit. ·      Pushing the green button, through the geolocation, the user can find the closest pharmacies opened at the moment. They can consult the schedule and chat with the pharmacist to order what they need. Than they can go there on their own or ask for a fast home delivery. In case of need of the medical prescription, the user will send via chat a picture of it to the pharmacist. The present status of the project is the developing one. A brainstorming has helped us to find out problems and needs of the users and the possible solutions. We have highlighted components and characteristics of the app, the challenge we want to face and the characters involved. Through an Empathy map, we have figured out who actually are our users of the app. A User flow has drafted which pages should link to each other, to design call-to-actions that lead users through the right screen flow. Then Wireframes have visually illustrated the structure of the app. They have also been useful to allow a stranger to the app to test it and to point out possible mistakes. We are now working at the final prototype and we hope to start a new Usability testing as soon as possible. The goal is to improve the service offered from the app and to facilitate the experience for future users.",/post/822,2018-06-10T20:17:09.379Z,2018-06-10T20:17:09.379Z,822,3791,AnnotatorStore::TextAnnotation,,,,,,,,,789,2199 13307,v1.0,,"THE EDGE OF FUNDING - Sustainability and Financial models A panel session moderated by Eric Osiakwan #OpenVillage, 19-21 October, Brussels You want to sustain the good work you are doing. In a resource-strained world, you need to be smarter in how you search for and acquire resources. What models are most future proof? Funding is perhaps an obvious means but is getting harder to access and research funding often is focused on serving particular sets of interests. This session will take a broader look at how to sustain our work in a rapidly changing context. Panel members will share their expertise, followed by Open Space to give participants an opportunity to explore particularly relevant ideas or models in more detail. This session has been developed to span all the themes at Open Village, from open science to collective living and working, to culture and policy. What kind of sub topics do you want to see covered in this panel? We want your thoughts on this as well as the kind of panel members you'd love to hear from.",/post/6460,2018-06-10T20:16:15.914Z,2018-06-10T20:16:15.914Z,6460,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6427,2218 13303,v1.0,,"Hello @iffat_e_faria, it's hard to create a viral campaign that requires even small effort to engage, unfortunately, people are really lazy.",/post/21069,2018-06-10T20:09:18.864Z,2018-06-10T20:09:18.864Z,21069,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,2233 13165,v1.0,,"THE EDGE OF FUNDING - Sustainability and Financial models A panel session moderated by Eric Osiakwan #OpenVillage, 19-21 October, Brussels You want to sustain the good work you are doing. In a resource-strained world, you need to be smarter in how you search for and acquire resources. What models are most future proof? Funding is perhaps an obvious means but is getting harder to access and research funding often is focused on serving particular sets of interests. This session will take a broader look at how to sustain our work in a rapidly changing context. Panel members will share their expertise, followed by Open Space to give participants an opportunity to explore particularly relevant ideas or models in more detail. This session has been developed to span all the themes at Open Village, from open science to collective living and working, to culture and policy. What kind of sub topics do you want to see covered in this panel? We want your thoughts on this as well as the kind of panel members you'd love to hear from.",/post/6460,2018-05-01T09:36:29.734Z,2018-05-01T09:36:29.734Z,6460,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6427,2218 13163,v1.0,,need,/post/4913,2018-05-01T09:33:05.674Z,2018-05-01T09:33:05.674Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2181 13162,v1.0,,need,/post/10231,2018-05-01T09:32:48.161Z,2018-05-01T09:32:48.161Z,10231,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2181 13157,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2018-05-01T09:15:59.817Z,2018-05-01T09:15:59.817Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2866 13156,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2018-05-01T09:15:21.420Z,2018-05-01T09:15:21.420Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2865 13155,v1.0,,"THE EDGE OF FUNDING - Sustainability and Financial models A panel session moderated by Eric Osiakwan #OpenVillage, 19-21 October, Brussels You want to sustain the good work you are doing. In a resource-strained world, you need to be smarter in how you search for and acquire resources. What models are most future proof? Funding is perhaps an obvious means but is getting harder to access and research funding often is focused on serving particular sets of interests. This session will take a broader look at how to sustain our work in a rapidly changing context. Panel members will share their expertise, followed by Open Space to give participants an opportunity to explore particularly relevant ideas or models in more detail. This session has been developed to span all the themes at Open Village, from open science to collective living and working, to culture and policy. What kind of sub topics do you want to see covered in this panel? We want your thoughts on this as well as the kind of panel members you'd love to hear from.",/post/6460,2018-05-01T09:14:33.825Z,2018-05-01T09:14:33.825Z,6460,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6427,2065 13154,v1.0,,"On top of diagnosis/prognosis, MCCH supplies free medicines, baby food and nappies.",/post/4913,2018-05-01T09:12:56.612Z,2018-05-01T09:12:56.612Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2864 13153,v1.0,,The MCCH saves people. It provides health care to down-on-their-luck Greeks who have no access to public health care and no money to pay for private clinics.,/post/4913,2018-05-01T09:11:53.422Z,2018-05-01T09:11:53.422Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2864 13152,v1.0,,"It operates with practically no hierarchy and no management. People decide by themselves what role to play, by joining one of several groups (about 10 members to a group) which exist to carry on specific tasks (like onboarding new patients). An organising committee does its best to keep people on the same page. A weekly meeting votes on general issues. A mailing list deals with specific matters.",/post/4913,2018-05-01T09:10:58.607Z,2018-05-01T09:10:58.607Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2863 13151,v1.0,,"THE EDGE OF FUNDING - Sustainability and Financial models A panel session moderated by Eric Osiakwan #OpenVillage, 19-21 October, Brussels You want to sustain the good work you are doing. In a resource-strained world, you need to be smarter in how you search for and acquire resources. What models are most future proof? Funding is perhaps an obvious means but is getting harder to access and research funding often is focused on serving particular sets of interests. This session will take a broader look at how to sustain our work in a rapidly changing context. Panel members will share their expertise, followed by Open Space to give participants an opportunity to explore particularly relevant ideas or models in more detail. This session has been developed to span all the themes at Open Village, from open science to collective living and working, to culture and policy. What kind of sub topics do you want to see covered in this panel? We want your thoughts on this as well as the kind of panel members you'd love to hear from.",/post/6460,2018-05-01T09:05:48.644Z,2018-05-01T09:05:48.644Z,6460,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6427,2862 13148,v1.0,,"It does not accept donations in money. It does accept donations in kind: medicines, equipment, blood sample analyses.",/post/4913,2018-05-01T09:02:03.656Z,2018-05-01T09:02:03.656Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2860 13147,v1.0,,"Access Space has a very wide range of participation. If you split them into three groups, <25years, 25-50years, >50 years, then those groups are roughly similar in size. Roughly 1/3 of our participants are from minority ethnic backgrounds. Around 1/3 of our participants have a university education. Almost 2/3 of our participants are unemployed, or under-employed. Around 1/5 of our participants have some form of disability or long-term illness - particularly learning difficulties, like Asperger's Syndrome (associated with high intelligence) and mental health difficulties, such as depression. 1/10 of our participants have a serious problem with housing. Either they're homeless, or they are living in insecure, or temporary accommodation. We had more than 2000 people use the space in 2011, which added up to more than 12000 hours of usage. Helping and facilitating this number of people, particularly when some of them have difficulties, is a huge job.",/post/1710,2018-05-01T09:00:30.481Z,2018-05-01T09:00:30.481Z,1710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1677,2859 13145,v1.0,,respectable,/post/4913,2018-05-01T08:54:58.747Z,2018-05-01T08:54:58.747Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2858 13144,v1.0,,"Wait. Self-organised people with no money and no organisation that beat credentialed, moneyed professionals at their own game? We've seen this before. It was Wikipedia outcompeting Encyclopedia Britannica. It was OpenStreetMap pushing to the curbs Garmin and TomTom. It was Facebook groups coordinating disaster relief after the Nepal 2015 earthquakes and the Tbilisi 2015 flash flood, way before the government and NGOs could get their act together. It was Internet-coordinated young newcomers changing the rules of the political game, and even bringing down entire regimes who seemed to have all the power and all the money, in Egypt, Tunisia and Ukraine. We have a word for these phenomena: we call them disruption. They are associated with supplying goods or services in a new way, that substitutes collective intelligence and distributed effort for vertical organisations. This new way happens to be vastly more efficient than the old ones.",/post/4913,2018-05-01T08:53:08.834Z,2018-05-01T08:53:08.834Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2858 13142,v1.0,,"Fast MED is an app designed to simplify the approach that people have with the world of healthcare. The user the app is intended for, is a person who is not always comfortable with moving around on their own or which could not have too much familiarity with smartphones. Suddenly they have a need related to their health, they need for an attention or a medicine but they are not able to move on their own. Through this app, with the help of geolocation on a map, the user can: -call an ambulance with just one tap and advise emergency contact people. -find doctors available to come to their place; -locate pharmacies opened at the moment or ask for home delivery; The ease of use allows the user to find the service they need as near as possible to them. During the registration the user has to insert some personal details, as personal data, diseases and emergency contact people. ·      In case of emergency the user, pushing the red button, will ask for an ambulance that will find their present place through the geolocation on the map. The app will send the doctors the informations that the patient has previously inserted. At the same time, the app will advise the emergency contact people, telling them the place their loved one has been taken to. ·      Pushing the yellow button, the user unable to go out can contact the closest doctor to them available for a private home visit. ·      Pushing the green button, through the geolocation, the user can find the closest pharmacies opened at the moment. They can consult the schedule and chat with the pharmacist to order what they need. Than they can go there on their own or ask for a fast home delivery. In case of need of the medical prescription, the user will send via chat a picture of it to the pharmacist. The present status of the project is the developing one. A brainstorming has helped us to find out problems and needs of the users and the possible solutions. We have highlighted components and characteristics of the app, the challenge we want to face and the characters involved. Through an Empathy map, we have figured out who actually are our users of the app. A User flow has drafted which pages should link to each other, to design call-to-actions that lead users through the right screen flow. Then Wireframes have visually illustrated the structure of the app. They have also been useful to allow a stranger to the app to test it and to point out possible mistakes. We are now working at the final prototype and we hope to start a new Usability testing as soon as possible. The goal is to improve the service offered from the app and to facilitate the experience for future users.",/post/822,2018-05-01T08:49:50.751Z,2018-05-01T08:49:50.751Z,822,3791,AnnotatorStore::TextAnnotation,,,,,,,,,789,2028 13141,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2018-05-01T08:47:45.465Z,2018-05-01T08:47:45.465Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2028 13140,v1.0,,"In 2011, some senior doctors started comparing notes, and they saw a perfect health care storm brewing at the horizon. “We knew something very bad was coming, and people would die – says Maria – so we decided we must do something.”",/post/4913,2018-05-01T08:44:41.444Z,2018-05-01T08:44:41.444Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2021 13133,v1.0,,The present status of the project is the developing one.,/post/822,2018-05-01T08:31:22.160Z,2018-05-01T08:31:22.160Z,822,3791,AnnotatorStore::TextAnnotation,,,,,,,,,789,2852 13129,v1.0,,"there are 68 clinics organized in Greece . Take a moment to absorb the implications of this fact: in four years, thousands of enterprising Greeks, without money, without a command structure, without even knowing, have created a parallel health service that succeeds where the public health service and private healthcare fail: it maintains in relative security the poorest sections of the population. It should be noted: The Greek state has spent over 6 billion euros in health care in 2011.",/post/4913,2017-11-30T02:27:52.205Z,2017-11-30T02:27:52.205Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2046 13128,v1.0,,"So let's get in the game. My nano-social company, Edgeryders , has partnered with five world-class research organizations (Bordeaux University, Stockholm School of Economics, ScimPulse Foundation) in Social Policies (City of Milan) and Digital Manufacturing (WeMake) to find the experiences like MCCH around the world, learn from them, and if possible perfect the model. Our goal is to contribute to a model of community-driven care services based on science and modern technology, but with low administrative costs and the human touch that communities have and large bureaucracies, both public and private, no. Our project is called OpenCare; the European Commission has believed us enough to support it through the Collective Awareness Platforms program .",/post/4913,2017-11-30T02:26:17.382Z,2017-11-30T02:26:17.382Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2001 13127,v1.0,,"I'm Narindra Michel RAKOTOARISOA, I was born near of tropical forest in east of Madagascar, near by raining forest. I have an chronic asthma since when I was 2 due to a medical poisoning. My parents were there to make me extract some of it out of throat. Few days since those moments, when weather will have changing, I'm cough early 12 hours before its changing, a kind of meteorological detector More than that, there were 9 people leaving in a small house of 10m2. Majority of Malagasy people we use charcoal as combustion for cooking like us. So it was more and less enough ventilated for all of us. During my childhood I was suffering of heavy breathing and lungs whistling, the fact that I lived next to a forest having fresh air and help me to overcome this asthma until my adult life. I didn't know too much people who suffer with the same illness like mine until now... More than the half of the forest in my country has been cutted for combustion, furnitures, slash and burn,... Following population growth from 15 million to 20 during the last 30 years. Public health and sanitation are trying as they can and have to keep us healthy; with this growing population; open fire and carbonic gas are growing following this, carbonic gas from factories and cars... Nowadays, 80% of kids under 5 years seem asthmatic. I know that when I was asking the pediatrician in a pediatric hospital, where I brought my 3 years old nephew for lungs exam. For information, only few people who have enough money can afford treatment like aerosol ""inhale"", medicines,...  Rich and powerful people control the destiny and future of my country. Following this the Malagasy government has decided to stop using plastic bags last December without alternative until now. This is a good idea but the bad effect is some of our ""ravinala"" considered queen and symbolic tree of Madagascar is taking place of the plastic bags ; I heard a rumor that some people on our government brought back ""biodegradable "" plastic bag made with cassava, It's a kind of bag thick than one before. Without label or information about the factory whose made it, probably from one powerful people on the government.  Other than that, without mentioning the massive destruction of large area of primary forest caused by a multinational firm mine project since 2003. Actually it's our future generations lives is on the line metaphorically and literally. Nature and man can't be separated. As my thoughts, training for peasants for new method of rice planting unsteady of slash and burn. Biogas can replace the charcoal and wood used as  combustion of 80% of Malagasy people.  Education for all and ordinance and penalties can be applied for any means of illegal way.  It's just a small sand into the gears to overcome or slow down this fast truck. Michel RAKOTOARISOA",/post/706,2017-11-30T02:23:59.764Z,2017-11-30T02:23:59.764Z,706,3791,AnnotatorStore::TextAnnotation,,,,,,,,,673,2253 13126,v1.0,,"@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal. I wonder: with so many diverse community efforts, haven't there been any events where active people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?",/post/14969,2017-11-30T02:23:02.549Z,2017-11-30T02:23:02.549Z,14969,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2252 13125,v1.0,,"Wait a moment. Masses of self-organized people, with no money and no organizations, that beat well-selected and well-paid professionals on their ground? Scene already seen. It was Wikipedia that stomped the Encyclopedia Britannica. It was OpenStreetMap that, giving its data, vaporized the business of Garmin and TomTom. They were groups on Facebook who coordinated rescue initiatives a few hours after the earthquake in Nepal and the flood in Tbilisi this spring. They were the inexperienced and coordinated Internet gamers who changed the rules of the political game, coming to break down entire regimes in Egypt, Tunisia and Ukraine.",/post/4913,2017-11-30T02:21:42.466Z,2017-11-30T02:21:42.466Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2251 13124,v1.0,,"there are 68 clinics organized in Greece . Take a moment to absorb the implications of this fact: in four years, thousands of enterprising Greeks, without money, without a command structure, without even knowing, have created a parallel health service that succeeds where the public health service and private healthcare fail: it maintains in relative security the poorest sections of the population. It should be noted: The Greek state has spent over 6 billion euros in health care in 2011.",/post/4913,2017-11-30T02:20:22.831Z,2017-11-30T02:20:22.831Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2251 13123,v1.0,,"Exactly the same point about young men not being catered to was made by @Alex_Levene in the context of The Jungle. We have been fantasizing about ""emergent"" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.",/post/16195,2017-11-30T02:17:14.112Z,2017-11-30T02:17:14.112Z,16195,3791,AnnotatorStore::TextAnnotation,,,,,,,,,670,2250 13122,v1.0,,"I'd like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma's through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings ""Circles of openness"".  Some of the meetings were extremely fruitful and transformative. Others were okay and sometimes a bit boring. What determined the quality of the meetings was the openess and willingness to share from an honest and authentic place, and to really be curious to share what feels exciting and challenging to someone. During the meetings where the mayority of the participants was willing to listen and feel into what's relevant at that time, there was a magical openness and connection among the group. I truly enjoyed these meetings and they were one of the most beautiful shared moments of my life. What I also enjoyed is the power to transform through awareness. By expressing a doubt or a challenge and openly looking at it, it became possible to take distance from the perspective and let go of it. Also the awareness of the group seemed to stimulate and hold space for sharing these vulnerable perspectives.  What didn't work so well was: when people spoke in general terms and theoretically/ hypothetically without really feeling the question.  when people didn't really want to be there What did work well was:  sharing from your own experience listening and asking questions to explore the perspective holding space: being open to the perspective without taking it personally, listening with from an open space using a talking stick, so one could speak at the time.  a good host and facilitator who's comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.  In my experience these circles of openness help build relationships of trust and create a vital space for transformation.  Let me know if you want to find out more. I'm playing with the idea to organize new ""Circles of openness"" over the next months.  Thanks for reading! Warm regards,  Ewoud @Noemi you might find this interesting!",/post/6401,2017-11-30T02:16:33.354Z,2017-11-30T02:16:33.354Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2249 13121,v1.0,,"Very interesting, @Rossana_Torri . You offer us a glimpse into how policy makers think: we do things in a certain way, (""hybridization between food trading, restaurants, entertainment, paying particular attention to the quality and fairness of the products""), but this project goes beyond that (""virtuous link between economic value and social impact""). Since the political and administrative are favourable (""after the administrative reorganization in Milan in June 2016 with a new mayor""), we will try to have more people doing more projects like yours (""we can reasonably expect that new opportunities and grants aimed at develop and scale such initiatives will be provided"").",/post/17226,2017-11-30T02:15:48.931Z,2017-11-30T02:15:48.931Z,17226,3791,AnnotatorStore::TextAnnotation,,,,,,,,,771,2248 13120,v1.0,,Brief from the community: Students will design solutions according to the  needs that come up from the neighbourhood. Associations and professors will work as facilitators: they will transform community suggestions/needs into brief  to work on.,/post/30614,2017-11-30T02:15:15.724Z,2017-11-30T02:15:15.724Z,30614,3791,AnnotatorStore::TextAnnotation,,,,,,,,,799,2247 13119,v1.0,,"The aforementioned pushed the Politecnico University to challange itself asking “how can our student transitional community and residents develop positive interactions and give new life to the district?”. This is what the course – PSSD 2017 Networks of Care Collaborative encounters in/around the Bovisa campus – is about. Ezio Manzini and Liat Rogel, with Susanna De Besi wanted this to be the focus of their students’ work for this year. And they suggested the students to interact with the edgeryders community as their works progress. Today introduction ended with the following questions to students: Referring to your everyday interactions with Bovisa, when are you in need for care?  And when are you willing to provide care to somebody else? @Ezio_Manzini @Social_Open_Campus @Rossana_Torri @Liat @Social_Open_Campus",/post/832,2017-11-30T02:14:46.167Z,2017-11-30T02:14:46.167Z,832,3791,AnnotatorStore::TextAnnotation,,,,,,,,,799,2247 13118,v1.0,,"Curve in response to the #HackOnWheels brief.  curve-hero-nelson-700.jpg700x1078 184 KB Also are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives here in Glasgow now too.",/post/23379,2017-11-30T02:14:03.473Z,2017-11-30T02:14:03.473Z,23379,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6339,2246 13117,v1.0,,"Alzheimer’s Wristband <3 Idea is about helping the families of the patients who have alzheimer's at last stage. We know that people who has alzheimer's has a bad habbit of running away of house or indoors to outdoors. Idea is about prototyping a Wristband with a LCD screen which gives the patient info about their home and family members basic infos. How they love him and want to see him now... At the same time the wristband will sent info about where the patient is,  what is his hearthbeat rates and how far did he goes via GPRS. We should tag the family with RFID so when they come close to the patient, Wristband recognise the family member and says calming infos and sentences to the patient in order to recognize them. What are the main aspects of this project? Our goal is to design a friendly wristband with an LCD monitor who works like a double agent, helps both the wandering person and the caregiver/family. How to? We can use a CARD ankle wearable wristband Techology we can use: Geo Fence Arduino nano  LCD Screen GPRS  RFID iPhone app for the family which receives notifications when the patient runs away from home Storyboard: FullSizeRender (1).jpg1572x1166 615 KB This skecth is from our brainstorm.  What have been done? http://www.medicalert.org/product/catalog/medical-ids http://www.alz.org/core/alzheimers-dementia-wandering.asp http://www.alzheimers.net/2014-02-20/technology-changes-future-of-alzheimers/ Screen Shot 2016-09-30 at 16.30.49.png956x701 321 KB Apps & Products on the market Project Lifesaver http://www.projectlifesaver.org/ Project Lifesaver International is a 501c3 nonprofit organization, the first pioneer to apply tracking technology for the search and rescue of individuals with cognitive disorders, and have remained the leader, the Gold Standard, in this field for the over 17 years. What makes our approach unique is that we have created an entire education and training program that includes; tracking techniques and technology. The PLI-1000 Locator System is the newest radio frequency based tracking system that is available to member agencies and to caregivers of loved ones who are prone to wandering. This is the same technology that our membership uses. The PLI-1000 Personal Locator System includes: One PLI-1000 receiver with attached Yagi antenna, one nylon case, one pre-preset 216 MHz 60 day transmitter with oval case, one 9V receiver battery, six transmitter batteries, six transmitter bands, one transmitter tester, and an instructional guide. Cost to the public is $799+plus shipping. SOO EXPENSIVE ​GPS Smart Sole http://gpssmartsole.com/gpssmartsole/ GPS SmartSole® is a smartphone hidden and sealed in an insole. It uses the same GPS and cellular technology as your smartphone, is charged like your phone, and requires activation and a data service plan. Like your phone, it works cross country within cellular network covered areas.  ​Safe Link GPS http://safelinkgps.com/ Dependable tracking solution for wandering Dementia PocketFinder  Receives GPS location data from multiple satellites. PocketFinder sends GPS location as frequently as every 2-minutes through cellular network. Cellular carrier sends encrypted data to PocketFinder servers. End-user logs in to account using smartphone, tablet, or computer. End-user can manage everything for PocketFinder using smartphone. When PocketFinder goes in or out of zone, Alert is sent to end-users via text, email, & push notification. Revolutionary Tracker http://www.revolutionarytracker.com/",/post/777,2017-11-30T02:12:49.028Z,2017-11-30T02:12:49.028Z,777,3791,AnnotatorStore::TextAnnotation,,,,,,,,,744,2245 13116,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-30T02:11:52.650Z,2017-11-30T02:11:52.650Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2244 13115,v1.0,,"I hope you will get the touring exhibition to have a european leg, and come through Lausanne!  To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help! I left a comment with a few points this morning on the page with the documentary, but just to ask one more silly question: was it actually possible to do any fly-fishing on the Bagmati river??  (are there many fish to catch??  are they edible?)   I did some flyfishing long ago in the great northwest and Montana, with great pleasure, but don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)... Thanks again for sharing, and looking forward to further discussions!",/post/21501,2017-11-30T02:11:18.067Z,2017-11-30T02:11:18.067Z,21501,3791,AnnotatorStore::TextAnnotation,,,,,,,,,543,2243 13114,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion. Edit Delete No Commentcitizen science Edit Delete No Commentdesign intervention Edit Delete No Commentgenomic integrity Edit Delete No Commentmicrobes Edit Delete No Commentpreventative medicine Edit Delete No Commentprevention Cancel Save Annotate",/post/863,2017-11-30T02:10:50.584Z,2017-11-30T02:10:50.584Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2243 13113,v1.0,,"Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries. Communities will be taught how to make the filter and the purification drops - made from clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.   Interesting read: http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet Access to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world’s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop. The MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source. The MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa. The impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.",/post/710,2017-11-30T02:10:19.508Z,2017-11-30T02:10:19.508Z,710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,677,2243 13112,v1.0,,"Thank you @Natalia_Skoczylas and @Alberto Being a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.",/post/20497,2017-11-30T02:09:43.013Z,2017-11-30T02:09:43.013Z,20497,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,2242 13111,v1.0,,"Thank you @Alex Levene! Thank you @Alex_Levene! Though it's temporary ceasefire, Azeris still shoot but not as much as before, now we need to wait and see...apparently there are 2 solutions out of this: full blown war or back to frozen conflict. The thing is Armenians are united against a common enemy and ready to protect their land while for Azeris this is a matter of principle - after all NKR has been a part of Azerbaijan during USSR, so they can't accept to lose it. Apparently no way to solve this conflict in a diplomatic way...maybe in a 100 years, when the rulers change and the new open-minded generation comes to power.",/post/33780,2017-11-30T02:09:11.217Z,2017-11-30T02:09:11.217Z,33780,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6587,2241 13110,v1.0,,How long do they have to wait? satisfaction with the care they receive?,/post/10261,2017-11-30T02:08:44.855Z,2017-11-30T02:08:44.855Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2240 13109,v1.0,,How many people need care and are not getting it?,/post/10261,2017-11-30T02:07:56.021Z,2017-11-30T02:07:56.021Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2239 13108,v1.0,,"How Europe is punishing migrants As hundreds of thousands of refugees have poured into Europe, some countries and regions have tried to pass legislation that specifically targets refugees and migrants. Here's a look at some of those policies that have been introduced in the last...",/post/5545,2017-11-30T02:07:24.610Z,2017-11-30T02:07:24.610Z,5545,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5512,2239 13107,v1.0,,"The guy wearing the shirt is Nicu, he was actually the chef coordinating everyone Regularity also means lowering coordination as you fall into some clear processes - now a lot of the time has gone into thinking about the concept, drafting invites etc. All this would be taken care of in future events.. But the people who seamlessly make stuff happen - like Cami aka Ponyo, or @Natalia_Skoczylas  or @Yannick from what I know are very precious. Once you have the building blocks, stepping into a friendly strucure is much easier.  I surprised myself thinking about how cheap it is to be part of stuff like this: Volunteering semi-anonymously is great. In this age and in the knowledge economy, I hardly know any people who don’t have an organisation or a project that’s their official “baby”. Everybody is a co-founder of something. So being able to squeeze great work in between one’s official hats makes for quite a breathing space. If we could all volunteer 2-3 hours for someone’s project with no agenda whatsoever it would be so much easier to barnraise around highly ambitious things. You don’t have to be an expert on food or run a civic organisation to claim a say in a pressing issue - the issue is 100% unresolved and no one can claim authority on it.. so: blank slate to experiment!",/post/10666,2017-11-30T02:06:37.293Z,2017-11-30T02:06:37.293Z,10666,3791,AnnotatorStore::TextAnnotation,,,,,,,,,765,2238 13106,v1.0,,"I remember @Alex_Levene writing about the camp in Calais and the fact that coordination happens through medium to long term volunteers. Could they be the kind of primary asset that can help do inventoring, mapping, research for this stage you're at?",/post/14969,2017-11-30T02:06:06.323Z,2017-11-30T02:06:06.323Z,14969,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2238 13105,v1.0,,"It has 300 volunteers , of whom a little more than half are doctors of various specializations and pharmacists.",/post/4913,2017-11-30T02:05:39.254Z,2017-11-30T02:05:39.254Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2238 13104,v1.0,,"These stories here are so well written and impressive - and this one particularly so. It still took me a few attempts to endeavour it, because more often than not it'll tempt you to throw everything down and want to help with what the author is working on. This one is no exception. However this time I've been busy with something that could make a contribution that is interesting to your case ( @kate_g ) . I've been meaning to do it as a little story aswell but it really is only hobby format now - and I'd need someone with other background to apply it. To keep it really brief I'll just lay out the bare bones, though in application it could be tweaked in very different directions (education, journalism, anthropology/ethnography). In terms of concept think the opposite of broadcasting*, where one signal (on one schedule) goes out to everyone. Here I try to reach niches, perhaps indirectly, as much on their schedule & terms as possible, and I listen to them (ratio of listen/tell can be tweaked). In terms of hardware I am currently sitting on 10 cheapo mp3 players and some mp3 voice recorders. The idea is to put some audio content on a small memory card (perhaps also some visual content e.g. on playing card size). This costs 2-3 $ and can hold days worth of structured audio content. The strucure of the content is important because I hope to turn the play+listener into a temporary agent (a little tolkeen's ring style). So you would have incentives there for the player (or several) to traverse the community networks in a mix of chance, human behavior, and programming, and hopefully end up in someones lap who may have been incredibly hard to find using other methods. You can then get the recorder to this person (or have the person respond via a phone recording in a ""relatively 1st world context"") and document things in long form (8 GB - up to a week). Parts of this will be amiable for speech to text conversion. ( @brenoust that is why I asked the last time we talked) Once you get the text corpus you can open it up the the digital domain ( @amelia can then probably mine this from an enthnograpic/anthropologic perspective) while it can remail fully anonymous. I also have a concept in mind for quantitative feedback which is similarly simple tech for users (colored beads on a string) but machine readable. That way you get quant + qual abstractions but you can still jump to the original content fairly easily (provided you speak the language). It ought to scale quite well, especially if you can reuse some of the players. The motivation for this came from a number of directions (OLPC griping, importance to capture emotion in human interaction, World Bank issues/capability building (two way!)) so I've played through a couple of different concepts that can perhaps be divided by organizational/technical aspects, content/didactic aspects, and info flow direction/volume. I'm currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a ""sit-in school"" in remote areas that have trouble with teacher absenteeism ( @nadia perhaps interesting to Olivier @ Co - also best of luck in Paris!) and people being too poor to abstain from manual labour for so long (and of course blind, illiterate, etc.). At the moment I'm checking the recharge curves to see how long the cheapo players will survive before someone needds to know how to fix/replace/work around the battery. If any of you see potential there I'd be happy to discuss it and set it up as a proper story. *that is why the working title is currently ""small casting"". Suggestions welcome",/post/26057,2017-11-30T02:04:40.220Z,2017-11-30T02:04:40.220Z,26057,3791,AnnotatorStore::TextAnnotation,,,,,,,,,520,2237 13103,v1.0,,"Idea is about helping blind people about the outside world’s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API’s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones) What are the main aspects of this project? Our goal is to help the blind people. Our perspective is to find a way to eleminate the difficulties they face everyday. How to? We can use a eyeglasses with earphones - headsets and eye bandages blind smart sticks Techonolgy out there infrared sensors Arduino + 3 ultrasound sensors+ buzzer +motor - Another chipset + RFID + ultrasound sensor Project Halo: Rigid frame (I used a round embroidery frame) Female headers (for the sensors) Ultrasonic Rangefinders (Parallax Ping Rangefinders) - Wire (Wires with male and female leads are conve-nient) Glue Twist ties to tidy up wiring Soldering station Male headers (for creating a bridge to feed 5v and ground RJ-45-Term Screw Terminal (2) - RJ-45 Cable Marker Motor Modules: Vibration Motors (5) - Motot, VIB,3V/60mA, 7500RPM Grid-Style PC Board Male header pins Motor ""shroud"" (to prevent things getting sucked into the motor) Haptic Headband: Headband Sewing Kit 5 Motor Modules Wire (Wires with male and female leads are conve-nient) Safety Pins Female headers Soldering station RJ-45-Term Screw Terminal (2) - RJ-45 Cable Marker Wiring the Microcontroller: Arduino Mega 2560 Wire (Wires with male and female leads are conve- nient) 5 LEDs Darlington IC - ULN 2803A - 2 port screw terminal 9v battery 5v regulator Building the Software: USB cable PC (for editing code and downloading to Arduino) Arduino Arduino development environment (www.arduino.cc) - Source Code, modified Ping.h library Smart Blind Stick - Instructables An Arduino uno. A Ultrasonic sensor( HCSR04 ). A Mini breadboard. A 9 volt battery. A 9 volt battery connector. DC male power jack. A Buzzer. Some Jumper wire. An Broken cellphone from scratch. A Toggle switch. Other tools and parts used in this project : 3/4 inch diameter PVC pipe (used for making the stick). 3/4 inch diameter PVC elbow. Insulation tape. Some small screws for mounting Arduino. Screwdriver. Utility knife. Instant adhesive Glue. A Box to Put your Arduino and other electronics, or think about it later. XploR cane The 'XploR' mobility cane was developed at Birming- ham City University It uses a camera and built-in sensors to scan for faces in a crowd If it recognises a face the cane vibrates and guides user with audio cues Sensors work up to 32ft (10 metres) and faces are stored on an SD card Read more: http://www.dailymail.co.uk/science- tech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family -crowd-guides-blind-user-exact-location.html#ixzz4L 51k7yJX What have been done? http://imwm.org/the-infeared-walking-cane-by-parasuraman-kannan/ http://arduinoart.blogspot.it/2015/05/project-guide-stick-for-blind-people.html http://www.instructables.com/id/Smart-Blind-Stick/ http://www.instructables.com/id/Haptic-Feedback-device-for-the-Visually-Impaired/ http://www.dailymail.co.uk/sciencetech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family-crowd-guides-blind-user-exact-location.html",/post/770,2017-11-30T02:04:03.470Z,2017-11-30T02:04:03.470Z,770,3791,AnnotatorStore::TextAnnotation,,,,,,,,,737,2236 13102,v1.0,,"The basic idea was to create a prototype consisted of two already invented tangible objects. The eyeglasses which give you the possibility to focus by moving the lances and the one that measures your myopia and presbyopia using the size of your retina. The basic idea was to implement one to another and using an algorithm with the application on your phone you  could measure firstly your problem and afterwards adjust the focus depending on the measurements and making your eyesight perfect  almost all the time. The eye sight becomes blurry as years go by and everyone gets older. 0010.jpg2500x1406 104 KB The technology is simple as you can just focus manually too the lens either if you are trying to read a book for a long time and your eyes are focused on close objects. Using the adjustor the two lens move or slide so they come to a point where they totally focus with the poins of myopia or presbyopia you might have and you can see clearly. The concept of the application was easier as it enables you to measure the points while you are focusing the glasses yourself. This gives you an idea of the size of your problem without necessary have to go to a doctor.",/post/780,2017-11-30T02:02:52.270Z,2017-11-30T02:02:52.270Z,780,3791,AnnotatorStore::TextAnnotation,,,,,,,,,747,2235 13101,v1.0,,"How can communities become more visible and members interact more easily? How do you make the actions of the community visible to the individuals? How do you make individuals' actions more visible to the community?",/post/541,2017-11-30T02:02:24.447Z,2017-11-30T02:02:24.447Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2234 13100,v1.0,,"Hello @iffat_e_faria, it's hard to create a viral campaign that requires even small effort to engage, unfortunately, people are really lazy.",/post/21069,2017-11-30T02:01:55.378Z,2017-11-30T02:01:55.378Z,21069,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,2233 13099,v1.0,,"[@Noemi’s note] I was happy to connect with Emma Jones, who is in her words, a third of the We Mental Health Nurses team at WeCommunities, along with Vanessa Garrity and Mark Brown. This story serves as a first encounter with Edgeryders. It also includes written reflections by Vanessa. WeMHNurses hosts regular mental health themed twitter chats, as part of a network chat calendar, with wildly diverse topics ranging from “The use of digital technology in everyday practice” to “Workplace democracy in mental health”. The core team runs the day to day operations, on a purely voluntary basis, with the WeMHNurses account, also linking into the wider WeCommunities, which covers many different branches of Nursing and Health Care professions and specialism. Topics for chats tend to mostly emerge from topical conversations within the community or where there is, for example a national policy directive or key piece of published journalism relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on mental health nursing practice. The chats are generally facilitated by one of the @WeMHNurses team, with guests are often invited to participate in the chat where the person brings specific expertise to the conversation. This is an open process, whereby anyone can contact the team to suggest a chat topic or to ask to host a chat.The team provide support to individuals who want to host a chat from the @WeMHNurses Twitter handle. Our ethos is very much that “your opinion matters” and we focus on the user point of view, getting people talking to each other and bringing a variety of perspectives to the conversation. We enjoy working with people who have previously been in services or are currently in services because we really value the lived experience perspective. As we are an independent voice, we will also cover topics that might be considered controversial, political or critical, as we believe that these conversations are important in setting the future direction for mental health nursing. On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care. The demographics for our chat suggest that we have a largely UK audience. However, because of the global reach of Twitter, we do have some international representation within our community and we love to encourage this because of the dimension that it brings to the conversation Before we run a chat, we produce some pre chat information on the wecommunities website. This is generally written in a blog style, so it is broadly accessible reading. We are also looking at how we can make our chats even more inclusive, such as by providing audio for people who struggle to read or who have visual impairment. The challenge for us is that we are all volunteers, so we have to find ways of delivering information quickly. How come this twitter format for talking about mental health? Is there something in the medium that helps learning, or alleviation for individuals? As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter to talk about mental health is quite personal, as is twitter use in general. There are many who find it hugely therapeutic and helpful, either getting involved in chats, communicating/ networking with others or for gaining support. It is a fab place for the sharing of information, including research and it's also a great forum for challenging stigma and moving the mental health agenda forward. WeMHNurses1_0.png900x480 120 KB Wordcloud from participants twitter bios in a recent chat - source. Is there a cutoff number for participants in a chat? Or a number that makes it effective? I’m wondering because you have such high regularity - every week. There is not a maximum number of people in each chat, it can be anybody using the hashtag. Often people pop into the chat with just one or two tweets, whilst at the same time, we are having a conversation with other people, who participate in the entirety of the chat. When you are facilitating a chat, which is busy, it can be a challenge responding to every single tweet, but we do try to do this and often we find that people branch off and have separate conversations with other participants, within the chat, which goes down a different path to the structured questions of the main chat. Providing they still use the hashtag, we still capture this conversation in the transcript at the end. This is an example of the latest archived chat on a Tuesday evening, counting 133 contributors, 1200 tweets and with a reach of 7,561,098! This was a joint chat with @wenurses and @weldnurses. With our over 6000 followers, plus the wider network, I suppose it is hard to say how many people we reach constantly. However, analytics for the chat are captured within the wecommunities website. Nick Chinn is the technical person behind this at Wecommunities. What do you think draws people in? What makes it a community for you? Is it people interacting with each other, learning, figuring out stuff? I suppose it is all of that. Everyone involved in the chats is interested in that particular area and that shared interest drives the discussions and questions in the chat, which will often support the development of links between people. Often people in the chats might say: ‘this is a good chat’, and ‘why don’t we do one on this other topic area?’ It then keeps expanding, and there are more things that we get involved in. So, in essence, the community is about sharing knowledge and learning, being open to thinking in different ways and developing a support network as well. What for the future and how can we support your work? We are very aware that people establish relationships and friendships offline with people who they have connected with on Twitter and that these relationships are often a great source of strength and support for people. Vanessa and Teresa Chinn, Founder of WeCommunities organised an unConference earlier in the year, through crowdfunding, which brought together 300 people from the community into a physical space to get together and to debate and discuss the future direction of social media in health care. We also provided a parallel online agenda throughout the day, so that the twitter community could still very much be part of it, even if they couldn’t physically attend. Vanessa and Mark from WeMHNurses and Mental Elf on Twitter are also in the process of setting up a Digital mental health conference service, which we are launching at #PDDigital16 later in November.",/post/551,2017-11-30T01:55:01.868Z,2017-11-30T01:55:01.868Z,551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,518,2232 13098,v1.0,,"Most researchers are not ""market-savvy"". Most of the times they think that, since a technology exists, the problem is solved. But nothing is farther than the truth! Turning a technology into a product that solves a problem,and creating a supporting community is an exciting but difficult venture!",/post/11657,2017-11-30T01:54:28.798Z,2017-11-30T01:54:28.798Z,11657,3791,AnnotatorStore::TextAnnotation,,,,,,,,,495,2231 13097,v1.0,,"Day 1 Reflexions We did groups of three persons (Anna, Cindy V, Luisa) two from product design and one from gwk. We start to talk about theme of People on the move that was basically in relation with our personal experiences and people around us that exactly are in the them “on move”. In our group we talked about the people that we know they moved to Germany to try to start a new life with a lot of difficulties but in the same time with a lot of dreams and expectations and how this people, including me, had to adapt their life here and learn all over again. We talk too about what thinking people in Germany about this people on the move. For example; how people help other people to learn about how works the things here. Experiences from Anna and Luisa and how they contributed with friends with a Asylum Solicitudes to find more opportunists to study and work in Germany. We talk too about how is the feeling from German people about the foreigns that are coming, some people can understand the situation but other people are very heavy and close to foreign. We try to find many answers to understand why people in Germany having a negative reaction for foreigns and possible solutions “how people turn fear into trust”. I thin personally was a very interesting conversation because we coming from different context and was really god to hear about experiences from a foreign and from locals about the theme “People on the move”. Was important to know both sites to try to find many other possibles ways around this them. Edit Delete No Commentfear Edit Delete No Commentmigration Edit Delete No Commentstory sharing Cancel Save Annotate",/post/663,2017-11-30T01:53:58.531Z,2017-11-30T01:53:58.531Z,663,3791,AnnotatorStore::TextAnnotation,,,,,,,,,630,2230 13096,v1.0,,"TICAH met this situation with interventions that emphasised embodied communication and the creative body. They invited those effected to walk a labyrinth together in a peace ceremony and organised body map workshops that brought together different survivors to share their stories. The body-mapping workshops use art skills to trace participants’ bodies and then map elements of their life stories onto this body map: visual elements are added that stand for the individual’s aims, what supports them, the traumas they have lived through and their strengths. These visual records are a way of introducing the details of what happened in captivity back into the community to be held by everyone. So the labyrinth walking and the body-mapping make the real lives, bodies and experiences of the victims a public experience and enable the wider community to listen to and appreciate how these survivors managed to live through painful and unbelievably challenging times.",/post/553,2017-11-30T01:53:21.720Z,2017-11-30T01:53:21.720Z,553,3791,AnnotatorStore::TextAnnotation,,,,,,,,,520,2229 13095,v1.0,,"Hi @ybe. It's a long post now so excuseme if I've skimmed too much. As @Alexander_Shumsky posted the WeHandU we were talking about the importance of psycological aspects of assistive technology. My experience is that people having sustained a stroke, spinal cord injury or living with MS have a need to talk about it. I's not what you intend by trauma, but I think it could be interesting include your expertice in a 360* service.",/post/27812,2017-11-30T01:52:34.229Z,2017-11-30T01:52:34.229Z,27812,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2229 13094,v1.0,,"Thanks @Living_Streets aka Pieter and Dries. I think I get it now. I also understand the reference to parking: of course cars are a very un-social technology, but since they are so pervasive you need to find a way to get rid of them before you can even start playing around with streets as public spaces.",/post/33784,2017-11-30T01:50:38.619Z,2017-11-30T01:50:38.619Z,33784,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6595,2228 13092,v1.0,,How do people get to the health care when they need it? distance? cost?,/post/10261,2017-11-30T01:48:27.297Z,2017-11-30T01:48:27.297Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2228 13090,v1.0,,"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc. @WinniePoncelet, it could be very good if you could elaborate on why you don’t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get? You have a good point,@WinniePoncelet,  we could imagine raising funds to have a FES bike that people could try locally. I’ve learned two things recruiting wheelchair users as testdrivers There is a perception that it may be physically harmful People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike As for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.) As for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling).  @Francesco Maria ZAVA and others we could work on this",/post/23387,2017-11-30T01:47:20.828Z,2017-11-30T01:47:20.828Z,23387,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2226 13081,v1.0,,"Several years ago @Jean_Russell curated a collection of essays around the theme of thrivability (available here) and recently published a book on how to build thrivable organisations.  They may be helpful as a starting point? Maybe Jean has some advice to share?",/post/24354,2017-11-30T01:40:07.084Z,2017-11-30T01:40:07.084Z,24354,3791,AnnotatorStore::TextAnnotation,,,,,,,,,812,2221 13080,v1.0,,"Thank you for sharing this very interesting experience. The language is for sure the most powerful “vehicle” for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions. I wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities. I'm pretty sure also @Franca and @Medhin_Paolos may be interested.",/post/9935,2017-11-30T01:39:34.351Z,2017-11-30T01:39:34.351Z,9935,3791,AnnotatorStore::TextAnnotation,,,,,,,,,795,2220 13079,v1.0,,"In my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum. My experiences have been diverse. I've experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn't harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn't want to ""just say something"" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn't know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly.... (oops).  This particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I'd say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.  I believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what's alive in you at the moment. This worked pretty well.  I also initiated a circle once during a workshop where people didn't really know each other and there wasn't a real theme or topic. In that setting it didn't feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there's always (some) interest),  there wasn't really a common intention or relevance to have this talk together. So I wouldn't organize a circle ""out of the blue"" again.  Most of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it's no problem and good examples will follow.  Most circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other ""teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it's a different form, there's also huge transformation happening during these meetings.  @Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.  And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.  So let me summarize my experiences:   Sharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.  Circles work well around certain (loaded) theme's and communities who work/ life together with a clear invitation.  Listening from the heart, listening from beyond the personal perspective (not taking anything personal) Everything that pops up from a genuine sharing is welcome, even if it's off topic. What's alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).",/post/24534,2017-11-30T01:38:57.294Z,2017-11-30T01:38:57.294Z,24534,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2219 13078,v1.0,,listening and asking questions to explore the perspective,/post/6401,2017-11-30T01:37:52.392Z,2017-11-30T01:37:52.392Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2219 13077,v1.0,,"Dear @iffat_e_faria, its very impressive and motivational efforts. All around the world, people are gearing up for earth day. Started in 1970, this designated day of April 22 has become an annual reminder of our responsibility to be good stewards of the Earth. You did excellent and contributed into a healthier Earth in multiple ways with plant a garden, which committed to reduce, reuse and recycle. Good and keep it up...... All the best for your future endeavors Dr. Saeed Ahmad Qaisrani",/post/26066,2017-11-30T01:35:12.542Z,2017-11-30T01:35:12.542Z,26066,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,2218 13076,v1.0,,"Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on. In Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader. Five seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:",/post/24340,2017-11-30T01:34:25.143Z,2017-11-30T01:34:25.143Z,24340,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,2218 13075,v1.0,,"we are beginning to develop more sustainable ways of consumption, in a gradual way that everybody can understand, also thanks to the fact that we have a child's birthday party nearly every day in our garden! And a child's birthday party is a much better place to deal with these issues, than a smoke-filled meeting hall...",/post/21382,2017-11-30T01:33:46.725Z,2017-11-30T01:33:46.725Z,21382,3791,AnnotatorStore::TextAnnotation,,,,,,,,,733,2218 13070,v1.0,,"I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change effects in Bangladesh, one of the hardest hit areas. I do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?  @Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well.  by work i mean edgeryders",/post/14873,2017-11-30T01:29:22.706Z,2017-11-30T01:29:22.706Z,14873,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,2217 13069,v1.0,,"I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change effects in Bangladesh, one of the hardest hit areas. I do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?  @Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well.  by work i mean edgeryders",/post/14873,2017-11-30T01:28:48.282Z,2017-11-30T01:28:48.282Z,14873,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,2216 13068,v1.0,,"Of course with some different focus groups and cases, but ""The Citizen"" does not exist. So what I'd think is crucial is the presentation format and delivery method. For example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. ""Where there is no Doctor"", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term. Most documents I know are written in a linear fashion, either for ""the general populace"" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag. Interestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better. I think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios): Copies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer. Recording of spoken/played material via phone, perhaps eventually put into writing. Pencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases. My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific ""type"" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as ""album art"" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement ""xyz""). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself. Audio has the advantages that you do not need to drop everything you're doing, you can do it while walking, and you can do it in the dark. If you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required. My schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course. I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the ""professional care & aid circus"" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though. The implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you'll probably be among them. The simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented. Make a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half ""upwards"" and half ""downwards"". *Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.",/post/13504,2017-11-30T01:28:11.425Z,2017-11-30T01:28:11.425Z,13504,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2216 13067,v1.0,,"@Alex_Levene and @Aravella_Salonikidou (and whoever is interested), let's all make a note to go deeper into the notion of suboptimality. I think it could be important. Normal policy is that fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans. If we can make a case for this to be the wrong thing to do in some case, it is goping to be an important policy contribution.",/post/19220,2017-11-30T01:27:38.090Z,2017-11-30T01:27:38.090Z,19220,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2215 13066,v1.0,,"Description: Stress is inevitable. It walks in and out of our lives on a regular basis. A burnout is a mixture of professional exhaustion, and disillusionment with other people, the organization, or the career, over the long term. Fortunately, there are many things you can do to minimize and cope with stress and learn how to avoid a burnout. Main Aims: Career guidance and counselling Combating failure in education Fight against school/university failure & link school/university and work Inclusive approaches Pedagogy and didactics School/university improvement & quality evaluation Specific objectives of the course are:  Introduce holistic model of stress and raise understanding of stress causes, mechanisms and effects  Raise understanding of how stress impacts teaching ability  Provide the participants with practical tools for dealing with stress  Reduce the consequences of stress (such as poor health, absenteeism, lack of creativity, ineffective communication, inability to focus, more conflicts etc.) and develop healthy ways of dealing with everyday work demands  Prevent burn-out syndrome in educators  Enhance emotional self-awareness  Introduce practical tools for coping with difficult emotions  Improve the participants’ emotional balance  Help the participants to identify their stress triggers and emotional triggers at work context and come up with new, more resourceful strategies  Enhance in the participants the ability to relax  Broaden the understanding of health Programme Elements: Introduction and course overview Ice breaking Individual expectations What is stress? Definitions Understanding the stress response (fight/flight versus prolonged stress) Physical, emotional, mental and behavioural symptoms of stress Relation between our thinking and stress Effective and ineffective ways of dealing with stress Relaxation exercises that help to manage stress effectively – part 1 The impact of emotions on teaching and learning ability Tools for dealing with disturbing emotions Effects of stress in educational setting Assessing your personal stress triggers Changing not resourceful strategies Self-talk awareness Relaxation exercises - part 2 How can I be more mindful and resourceful in the classroom? – action plan Summary, course evaluation and closure ACTIVITIES TO BE CARRIED OUT BY THE PARTICIPANT Before Participants will receive a list of study material prior to their arrival for the seminar along with the links for the websites which are relevant to the content of the course. During The course will provide theory necessary to understand the nature of stress as well as practical tools for managing stress and difficult emotions. Attention will be given on how to implement the findings and skills in real life situations after the seminar. Methods such as debate, role play, body movement, individual mind management technologies, pair and group exercises and mini -coaching will be used throughout the course. The methodology of the course includes learner – centered approach and utilizes self-learning methods. The aim of the course is not to produce ready-made solutions (passive learning), but to inspire the participants to search creatively for knowledge and effective solutions which are connected with their needs and challenges (active learning). In this way the participants take responsibility for their own learning process and act as active partners of the course. After The participants will be encouraged to form a network in order to continue an exchange of ideas and support one another. Up to 6 months after completion of the workshop, the participants will have an opportunity to ask for advice (via email or Skype) if they face obstacles in using the new skills or if they have any questions or concerns.",/post/6293,2017-11-30T01:27:05.035Z,2017-11-30T01:27:05.035Z,6293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6260,2214 13065,v1.0,,"Stress Management collar is one of our ideas about stress. Nowadays everyone knows that stress is one of the most important problems of our lives and most difficult to manage it totally. Our idea is mostly for manage it during the traffic jams. The collar have multiple features on it and might be a solution to help some of us. The basic idea was to create a flexible tangible object like collar which would do some kind of massage to the wearer to lower the tension of the moment. Another important feature is the ability to spray every a specific time adjusted by us a smell that what researches have shown relax the person (grass, flower, forest etc). img011.jpg2500x1768 229 KB The last feature this collar has is the ability to stick a usb driver or connect with spotify  and connect with blue-tooth with the cars’ media player so you can listen to your favourite music anytime while you are driving. The collar could also be connected with your mobile so you can “monitor” your stress levels to be aware. Cancel Save Annotate",/post/778,2017-11-30T01:26:21.703Z,2017-11-30T01:26:21.703Z,778,3791,AnnotatorStore::TextAnnotation,,,,,,,,,745,2214 13064,v1.0,,"Hello, @Georgiana_B.  , and welcome. I don't think I have read anything by you before. You make some excellent points, particularly that of artists sharing some of those stress-inducing working conditions with non-artists. You mention art workers; where I come from (Italy) there is similar talk around freelancers.",/post/32197,2017-11-30T01:25:47.449Z,2017-11-30T01:25:47.449Z,32197,3791,AnnotatorStore::TextAnnotation,,,,,,,,,647,2214 13063,v1.0,,"This may sound obvious, but I guess one main approach is to find some point in common. Yes, the two people may come from completely different backgrounds, but there are so many aspects to life that, if we look at enough areas of life, it is extremely unlikely that nothing at all is shared. Alternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg See what happened to one person trying this out in this TED talk...",/post/26013,2017-11-30T01:25:15.077Z,2017-11-30T01:25:15.077Z,26013,3791,AnnotatorStore::TextAnnotation,,,,,,,,,624,2213 13062,v1.0,,"Day 1 Reflexions We did groups of three persons (Anna, Cindy V, Luisa) two from product design and one from gwk. We start to talk about theme of People on the move that was basically in relation with our personal experiences and people around us that exactly are in the them “on move”. In our group we talked about the people that we know they moved to Germany to try to start a new life with a lot of difficulties but in the same time with a lot of dreams and expectations and how this people, including me, had to adapt their life here and learn all over again. We talk too about what thinking people in Germany about this people on the move. For example; how people help other people to learn about how works the things here. Experiences from Anna and Luisa and how they contributed with friends with a Asylum Solicitudes to find more opportunists to study and work in Germany. We talk too about how is the feeling from German people about the foreigns that are coming, some people can understand the situation but other people are very heavy and close to foreign. We try to find many answers to understand why people in Germany having a negative reaction for foreigns and possible solutions “how people turn fear into trust”. I thin personally was a very interesting conversation because we coming from different context and was really god to hear about experiences from a foreign and from locals about the theme “People on the move”. Was important to know both sites to try to find many other possibles ways around this them. Edit Delete No Commentfear Edit Delete No Commentmigration Cancel Save Annotate",/post/663,2017-11-30T01:24:44.239Z,2017-11-30T01:24:44.239Z,663,3791,AnnotatorStore::TextAnnotation,,,,,,,,,630,2212 13061,v1.0,,A place where we can share stories about care,/post/541,2017-11-30T01:23:57.107Z,2017-11-30T01:23:57.107Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2212 13060,v1.0,,"@Rossana_Torri this is a golden opportunity to collect stories of open care for the policy challenge. It will require some kind of structure, though, like proper note-taking, editing notes into first-person stories, then having the civil servants upload them. This is what I did with Mercato Lorenteggio, and it worked.",/post/15414,2017-11-30T01:23:19.707Z,2017-11-30T01:23:19.707Z,15414,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,2212 13059,v1.0,,"Showcase the offer and manage expectations. But how? → Communication around culture→ Storytelling could also be the basis on which you build the context for care.  Frame it as a tool for empowerment.  Shared intentions and part of context. What stories? Does the narrative approach scale as well as we think it does? → Can you actually bring it global? Yes if you recognize the identity and scaling issue?  Availability heuristic Narrative pattern – ‘imagine a world where…. Oh yeah by the way it already exists…’ Carriers of narratives – Fiction of narratives, fables, archetypes or a story pattern (David and goliath, or the fool, the hero who goes on a quest). Look at propaganda in the LRA. → Are there universal stories?→ But is it personalized better?→ Note on George Lucas mythologist  David Hume  Conclusion:Space for care includes a variety of aspects that one should balance nut still take action. Intention Expectations Context-setting Storytelling as a tool not a universal answer Parties  Passive, Active, ProactiveGive - Receive | Request - response = Communication space around care (actively caring)They are a lot of difficulties in communicating around care.Stories – legends - can be a tool to not directly address the issue but rely and build on universal stories.  What then would be 5 steps to design your context of care?→ Current future vs ideal future",/post/5405,2017-11-30T01:22:42.911Z,2017-11-30T01:22:42.911Z,5405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5372,2212 13058,v1.0,,"Create a context for storytelling.  → Get to know each other + basic needs?→ Expectations→ Communication and identity/sculpture",/post/5405,2017-11-30T01:21:58.674Z,2017-11-30T01:21:58.674Z,5405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5372,2212 13056,v1.0,,"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles, even skill up in a process that difficult.  There are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder, said something similar about  how conversation in which neither party is an expert can be lifechanging. I'm curious about the group which seems more or less open - can anyone who reports feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach? Cancel Save Annotate",/post/10263,2017-11-30T01:19:54.724Z,2017-11-30T01:19:54.724Z,10263,3791,AnnotatorStore::TextAnnotation,,,,,,,,,718,2210 13055,v1.0,,"@Alex_Levene and @Aravella_Salonikidou (and whoever is interested), let's all make a note to go deeper into the notion of suboptimality. I think it could be important. Normal policy is that fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans. If we can make a case for this to be the wrong thing to do in some case, it is goping to be an important policy contribution.",/post/19220,2017-11-30T01:19:24.236Z,2017-11-30T01:19:24.236Z,19220,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2209 13054,v1.0,,"Engineering meets biomatter. The squiggly squishy, compliant bits of biomechanics allow you to produce one size fits all. If someone has physical disability, like cerebral paulsy, giving them a little bit of improved mobility can have huge positive effects. Functionally grated structures: Inspired by Bird beaks: Hydrophobic proteins and high water content parts of the body.  Example where functional grating is applied: Cerebral palsy Cost of therapy is very expensive because one on one time with specialists are very costly, and tech used is not modifiable. so they build soft exoskeletons for actuators (for joints) using functional grating principles. Check out their ""Neucuff"" Another example where functional grating is used: Prosthetics Uses distributed force: see goats' feet as a reference/description of the principle used to build prosthetics. Feets that are hard metal pads (hard actuators) does not allow you to compensate for unexpected events. Also flies' spatulated hairs on their feet. N++1. Aron Parnell tries to mass manufacture. Last example: Replacing atmospheric preassure in space suits with pneumatic preassure, shrinking them to fit human body. Problem: Spring effect. Solution: Don't make mechanical counterpressure suit in one go, but gradually? (not sure I got this right)",/post/5136,2017-11-30T01:18:47.729Z,2017-11-30T01:18:47.729Z,5136,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5103,2208 13053,v1.0,,"I'm curious @Rossana_Torri, in the new ""economic innovation"" labelled tenders, would Dynamoscopio or other similar, smaller organisations with potentially no track record but great ambition and ideas stand a chance? Are those tenders made for social innovators, with them specifically in mind?",/post/18275,2017-11-30T01:18:10.963Z,2017-11-30T01:18:10.963Z,18275,3791,AnnotatorStore::TextAnnotation,,,,,,,,,771,2207 13052,v1.0,,"Strongly scented soap, rosewater, essential oil (careful with skin contact) on a scarf dipped maybe mixed with vasiline could could produce a pleasent or at least effectively masking smell. Vicks VapoRub supposedly also works as mosquito repellent, as well as medical uses. If you have small things that small you could fix them with a safety pin. Especially for women I could imagine the opposite could also be helpful in some situations: https://en.wikipedia.org/wiki/Stink_bomb amazon.com Stink Bombs 12 Boxes",/post/13515,2017-11-30T01:17:40.518Z,2017-11-30T01:17:40.518Z,13515,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2206 13051,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL. Website",/post/866,2017-11-30T01:15:33.486Z,2017-11-30T01:15:33.486Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,2199 13050,v1.0,,"I hope you will get the touring exhibition to have a european leg, and come through Lausanne!  To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help! I left a comment with a few points this morning on the page with the documentary, but just to ask one more silly question: was it actually possible to do any fly-fishing on the Bagmati river??  (are there many fish to catch??  are they edible?)   I did some flyfishing long ago in the great northwest and Montana, with great pleasure, but don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)... Thanks again for sharing, and looking forward to further discussions!",/post/21501,2017-11-30T01:14:59.729Z,2017-11-30T01:14:59.729Z,21501,3791,AnnotatorStore::TextAnnotation,,,,,,,,,543,2199 13049,v1.0,,"get positive feedback from people using them. So we continue developing more games for the bind. :-) We’ve also created a smartphone app called ICSee for people with low vision that applies special filters to the video captured by the phone’s camera and allows users to read a restaurant menu or signs on the door. It’s also available for free and under open source licences on Google Play..",/post/528,2017-11-30T01:13:05.206Z,2017-11-30T01:13:05.206Z,528,3791,AnnotatorStore::TextAnnotation,,,,,,,,,495,2199 13048,v1.0,,"Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen.",/post/13679,2017-11-30T01:11:15.912Z,2017-11-30T01:11:15.912Z,13679,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2205 13047,v1.0,,"When they do not volunteer with MCCH, volunteers exchange services and small favors through a bank of time : two massages against one hour of English lesson etc.",/post/4913,2017-11-30T01:10:05.930Z,2017-11-30T01:10:05.930Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2204 13046,v1.0,,"As far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything. Even if the s*** hit the fan, no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system and covered by the medical insurance! For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses. This is merely a more efficient and structured way of doing the same.  Still, the network was semi-legal, meaning it operated under no clear incidence of laws. It's why I remember reading about Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie his face never shows.  From looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it's not clear though how much of the matchmaking was aided by the technology and how much was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL - like Vlad and Valeriu, who were key nodes in the network! @Sabina_U, lovely to meet you virtually, and hopefully in person soon!",/post/17546,2017-11-30T01:08:44.789Z,2017-11-30T01:08:44.789Z,17546,3791,AnnotatorStore::TextAnnotation,,,,,,,,,665,2203 13045,v1.0,,"Language (both speaking and grammar skills); Common subjects (for school education); Hobbies (instruments, sketching, writing, and so on); Cultural knowledge (movies, cooking, clothes…",/post/7571,2017-11-30T01:08:08.601Z,2017-11-30T01:08:08.601Z,7571,3791,AnnotatorStore::TextAnnotation,,,,,,,,,799,2202 13043,v1.0,,"The ""teaching"" in the title of this comment is not a pun with the Irish ""teachín"", by the way. I was hoping to learn more about building the tiny houses. How do you do it? What is needed to build them? How do they connect with your gardening project? Could you not have made a garden next to a ""normal"" house? If the West of Ireland is anything like rural Italy, there will be plenty of unoccupied property lying around. Also: what kind of climate is compatible with a tiny house?  There is another sense that no pun was intended. I find that teaching (and, reciprocally, learning) is good for the soul, the collective ""soul"" of the community as well as the individual one. In the hacker community there is a strong orientation to knowledge sharing. It is useful, obviously, but it seems that many people do it because it's the right thing to do and because it feels good when done right.",/post/9161,2017-11-30T01:07:25.807Z,2017-11-30T01:07:25.807Z,9161,3791,AnnotatorStore::TextAnnotation,,,,,,,,,768,2202 13042,v1.0,,"Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen.",/post/13679,2017-11-30T01:06:50.571Z,2017-11-30T01:06:50.571Z,13679,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2202 13041,v1.0,,"What did work well was:  sharing from your own experience listening and asking questions to explore the perspective holding space: being open to the perspective without taking it personally, listening with from an open space using a talking stick, so one could speak at the time.  a good host and facilitator who's comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.  In my experience these circles of openness help build relationships of trust and create a vital space for transformation.  Let me know if you want to find out more. I'm playing with the idea to organize new ""Circles of openness"" over the next months.",/post/6401,2017-11-30T01:06:20.199Z,2017-11-30T01:06:20.199Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2201 13040,v1.0,,"More importantly for advancing your cause, I think it is very impactful when people who are or were once patients share deep insights about the experience. This is the case of @Sharon_Kinnane and her story is here. Curious to see if your groups might benefit from a connection abroad that helps your future projects in some way.",/post/21420,2017-11-30T01:05:39.912Z,2017-11-30T01:05:39.912Z,21420,3791,AnnotatorStore::TextAnnotation,,,,,,,,,718,2201 13038,v1.0,,"Il tuo progetto in un tweet* Doc.doc è la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica più completa possibile. Bisogno o problema che il tuo progetto cerca di risolvere*  Sempre di più patologie complesse necessitano della collaborazione tra molti specialisti della cura. A questi diversi professionisti manca però la possibilità di comunicare e condividere informazioni su una piattaforma dedicata. L’attuale procedura di lavoro evidenzia i seguenti problemi: Delega al paziente la responsabilità nel fornire le corrette informazione relative al proprio caso. Rende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi. Non permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all’incontro con lo stesso. Doc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura. Inoltre la progettazione UX è stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un’email. Utente finale, individui e/o comunità di riferimento* Il prodotto è pensato per i medici, ma i maggiori benefici andranno ai pazienti. Doc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (più pianificazione, più chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando. Soluzione, breve descrizione del progetto* Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. Inoltre, in una fase successiva, sarà possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro categorizzazione per patologia. Tecnologie utilizzate o che vorresti utilizzare* Lo strumento che abbiamo progettato si esprimerà attraverso un’applicazione mobile per ambienti Android e iOS, che verrà quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l’utilizzo del software il più immediato possibile. E’ comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform. Il servizio cloud potrà essere sviluppato in NodeJS, con basi dati MongoDB e MySQL. Sito web (o social network) In fase di pianificazione. Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.",/post/33729,2017-11-30T01:04:27.764Z,2017-11-30T01:04:27.764Z,33729,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6578,2199 13037,v1.0,,"Hey @Yannick , thanks for your patience in answering all these questions. The question by @Eric_Hunting reminded me of a previous experience with a project called the unMonastery. We had the problem of developing a physical space that was meant to connect to a broader community, and the community was physically far from the space.  We discovered that publishing the plans made everything clearer and more concrete, and generated a lot of excitement and emotional attachment. People also started to suggest really cool ideas for furniture.",/post/27803,2017-11-30T01:01:38.425Z,2017-11-30T01:01:38.425Z,27803,3791,AnnotatorStore::TextAnnotation,,,,,,,,,487,2198 13036,v1.0,,"It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees, both have found that cooking is fundamental to care (one, two)",/post/16858,2017-11-30T01:01:03.644Z,2017-11-30T01:01:03.644Z,16858,3791,AnnotatorStore::TextAnnotation,,,,,,,,,712,2198 13035,v1.0,,"@Alberto @MassimoMercuri [Je n'ai pas résisté à faire ce mauvais jeu de mots ...] My guess is you don't see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post/comment on edgeryders.eu -- this is no surpirse, it's your job as a community manager! What if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post? Maybe ""sentiment"" is not the good way of thinking about how to use this technology. And maybe, it's true, sentiment coloring is not that useful. Let's give it a second chance. What if, on top of the topics that people discuss, I can tag some posts/comments as being ""opinions"", ""knowledge sharing"", ""second"", ""contradict"", etc.?",/post/25117,2017-11-30T01:00:32.810Z,2017-11-30T01:00:32.810Z,25117,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5407,2197 13034,v1.0,,"I'm not 100% sure about my interpretation and would love Deborah to give us more hints about it. On a side note, I would be interested to know if you (Deborah) have already thought about the interaction of the main task: adding the data tailored to your specific situation. In my experience, even when the committment is pretty high (meaning the tool can for instance improve the quality of your life), a system that involves a lot of data entry tends to have a short life cycle, (unless the feedback is clear and constant and meaningful). I'm very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.",/post/15751,2017-11-30T00:59:58.409Z,2017-11-30T00:59:58.409Z,15751,3791,AnnotatorStore::TextAnnotation,,,,,,,,,804,2196 13033,v1.0,,"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post – seems like great work, congrats! The idea of understanding one's own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes out), or a many-to-many interaction between users. Can user A see the diary of user B? Do they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?",/post/8578,2017-11-30T00:57:41.322Z,2017-11-30T00:57:41.322Z,8578,3791,AnnotatorStore::TextAnnotation,,,,,,,,,804,2196 13032,v1.0,,"Vision  A holistic, integral, evolutionary, self-directed and self-integrated community (civilization). Purpose To continuously and consciously evolve toward our highest potential through resilient adaptation to experiential existence. To collaboratively design, develop, and implement the blueprint for an intentional need-fulfillment community where purposefully driven individuals are fulfilled in their development toward their highest potential state of human experience for themselves and all others. The CAPE Project has a low entrance barrier for collaborators, participators, and community builders. With that said, however, there can be a substantial learning curve when it comes to acquiring a comprehensive understanding of what is actually being proposed by the Project. It is important to remember that this community proposal represents an entirely different linguistic worldview than most (if not all) other worldviews present in modern society. Fundamentally, the Community’s design describes an entirely divergent way of living and of understanding reality than the many worldviews expressed among the current population of the planet. This can present a significant motivating challenge for those interested in this direction. The design specifications are dense in content and many individuals who read them for the first time feel like they are learning a new language and integrating a new worldview, which takes time and requires internal processing.First Steps and Key Features As a first step we are going to establish a “Training and Research Network” - primarily for tertiary education | higher education - to enable educators to understand and facilitate the train of thought of an integral, holistic, evolutionary, self-directed, self-integrated and self-civilization and are looking for places to establish training and cultural exchange centers. With tis comes an network of self organizing solidly co-habitational care Nuklei. As we have to exist within a framework of formal-operational rules (orange), at best early vision-logic (green), we have to establish a set of “organizational-bodies” to support the idea in the best way possible. The key features have to be adapted as part of part of a living organisation! To date, our core themes are: New Learning Creating Creative Learning (Spaces) Communication Art integral News Communication  Socio-Economic Development New socio-economic systems that focus on resource availability; experience an reserch a new way of care for each other including health care and social security aspects; develoopment of strategies for mental health and healty living environments; Integral Leadership, integral management systems living- and holonic organizations, Assessment, creating “Selforganizing Open Hierarchical Order” Systems, (olocracy) centre attention on the evolution of human values and consciousness as the crucial factors in changing course — from a race towards degradation, polarization and disaster to a rethinking of values and priorities so as to navigate today's transformation in the direction of humanism, ethics and global sustainability"" Ervin Laszlo Sustainable Engineering and Application Application of sustainable energy production; High-Tech in ecological production processes. The design for the community is not yet sufficiently complete to plan its implementation. However, we presently have a ‘scope of work’, and we are in the process of converting it into a comprehensive project plan. We are initiateing multilingual communities and living space with people who focus primarily on inner development. Where we are working on our consciousness, because the crisis in our society is a crisis of consciousness. We shift our focus inwards, develop our relationship skills and transform our social programming. There should be as few fixed guidelines as possible concerning the personality and lifestyle of the members except the common to work toward a higher level of development. There are no ideologies, no dogmatic requirements and no fixed concepts.“CAPE  aims to build a social net for the members, enacts ""share & care"" principles and provides a framework (legal body) for cooperative economy as well as a space for inter-generational ""new"", action based, co-operative learning. CAPE should be a special place for members and learners to revive, a place to flourish, a place for young and old. Sustainable mental health is a result of continuous enthusiasm to our own development and a willingness reconstruct our beliefs. We, the initiators of CAPE LearnLust & Living think that the acceleration of our lives and the deluge of controversy, often absurd and paranoid information from an ailing socio-economic structure leads to the desire of many people for contemplation, inversion and a return to ethical values that are inherent to all human beings, but in ""our experienced world"" increasingly seem to disappear. Sincere joy, love for everything around us, to nature, compassion for each other, time to talk, to feel and enjoy, no longer being so tense and stretched - internally driven, yet not knowing where to go. Autonomous and healthy life for the young and the joyful old. To create the miracle called ""we"", which awakens us to renewed life! To unmask the process of maturing as ripening and getting wise. Therefore, we are now tackling this … What do we perceive? Today our society offers almost unlimited possibilities. This diversity can lead us humans to exhaustion, confusion and disorientation, to sensory overload, burnout! Therefore, every human being is faced with the challenge of finding answers to the following questions: Who am I really? Why am I here? Who or what gives me meaning and footing? What is my inherent value? Where do I want to go? Our goal is to develop as a group to the extent that we understand each other at the height of the developmental stage now possible. These levels of human development are researched and described scientifically. It does not matter at what age we come together, it's fun and is exciting to get to know thyself and develop. As pioneers of a new action based, co-operative learning we share our special talents and skills with those interested. We are convinced that sustainable social change in the global community depends on the quality of personal development, training and the ability to effectively and constructively communicate with others. The focus is on interaction and cooperation, shared responsibility and authority, and the improvement of critical thinking. There is no 'teacher' in the traditional sense. Learning will be self-organizing, dynamically adjusted to needs and ideas of the ""learners"". Edit Delete No Commentautonomy Cancel Save Annotate",/post/765,2017-11-30T00:57:02.126Z,2017-11-30T00:57:02.126Z,765,3791,AnnotatorStore::TextAnnotation,,,,,,,,,732,2195 13031,v1.0,,"I am trying to interest the EC's Policy Innovation Unit in the idea of a ""self-organized camp"", based on the intuition by @Alex_Levene – and now this confirmation by @Tomma and others.  But, I am not holding my breath. I will keep you guys posted.",/post/22641,2017-11-30T00:56:11.381Z,2017-11-30T00:56:11.381Z,22641,3791,AnnotatorStore::TextAnnotation,,,,,,,,,648,2194 13030,v1.0,,"I am trying to interest the EC's Policy Innovation Unit in the idea of a ""self-organized camp"", based on the intuition by @Alex_Levene – and now this confirmation by @Tomma and others.  But, I am not holding my breath. I will keep you guys posted.",/post/22641,2017-11-30T00:55:24.989Z,2017-11-30T00:55:24.989Z,22641,3791,AnnotatorStore::TextAnnotation,,,,,,,,,648,2193 13029,v1.0,,"@Alex_Levene good to learn about the work of HelpRefugees, I have not come across them so far but will look for more information and will try to contact their team in Greece to see what they are doing. I am very much in favour of refugee self-organisation or projects involving the solidarity movement and refugees in horizontal relationships (althoug I am aware that this is not always easy to achieve) but I can see and understand that some of the more formal orgs are also being organised in a way that allows quite a lof of self-organisation or self-management in practice and are doing a lot of great work on the ground. I have seen this already with some organisations working in the camps around Greece.",/post/19594,2017-11-30T00:53:27.112Z,2017-11-30T00:53:27.112Z,19594,3791,AnnotatorStore::TextAnnotation,,,,,,,,,759,2193 13028,v1.0,,"Great stuff, @ChristinSa ! I love the ""R2R"" concept. With @Alex_Levene we had already appreciated the self-organising skillls demonstrated by refugees in the case of The Jungle in Calais (I highly recommend you read his beautiful posts: one and two).",/post/9184,2017-11-30T00:52:41.005Z,2017-11-30T00:52:41.005Z,9184,3791,AnnotatorStore::TextAnnotation,,,,,,,,,759,2193 13027,v1.0,,"As I read about the volunteers life in The Jungle, I am brought back to an impression I have had all through this opencare project. The impression is this: ""the economy"", ""society"", the world we know is only paper thin. Behind the surface of carbonated drinks and targeted advertising and employment figures and pre-election rallies, I glimpse self-organisation reaching out for ways to cater to our needs. It seems like it percolates through the crack of society, colonizing immediately any area that ""the economy"" retreats from. This could be why there are so many great stories from Greece coming through; Helliniko and @OrangeHouse , @Aravella_Salonikidou and her strange ""not some social space"", @MAZI , @Tree_of_Life , @To-Steki , @Jenny_Gkiougki , @Noesi ... Greece has suffered more than most countries, and yet there is so much resilience.",/post/21551,2017-11-30T00:51:35.727Z,2017-11-30T00:51:35.727Z,21551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,503,2193 13026,v1.0,,"A minimal self-diagnosis kit, that can be extended by modules. The basic version would be perhaps something like ""where there is no doc/dentist"" in an adapted audiobook format. This would not require literacy and could be provided via extremely cheap mp3 player (sell for <1 USD) + memory card (2-3 USD for library size) + minimal solar charger to trickle charge the battery (1-5 USD). Next step up would be a recording function, a sampling kit, and a photo kit. Next step from that would be a full smartphone with some diagnostic hardware. The smartphone would be important to catch many of the cognitive bias pitfalls associated with self-diagnosis*. But both these could be intermittently provided via a long range drone delivery:",/post/16393,2017-11-30T00:50:55.887Z,2017-11-30T00:50:55.887Z,16393,3791,AnnotatorStore::TextAnnotation,,,,,,,,,701,2192 13025,v1.0,,"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles, even skill up in a process that difficult.  There are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder, said something similar about  how conversation in which neither party is an expert can be lifechanging. I'm curious about the group which seems more or less open - can anyone who reports feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach? Edit Delete No Commentanxiety about asking for and offering care Edit Delete No Commentdepression Edit Delete No Commentsadness Cancel Save Annotate",/post/10263,2017-11-30T00:50:24.842Z,2017-11-30T00:50:24.842Z,10263,3791,AnnotatorStore::TextAnnotation,,,,,,,,,718,2191 13024,v1.0,,"Hi @Michel, hope 2017 is looking up for you! I missed this story, thank you for sharing it. The only thing I knew about dandelion tea is that it reduces inflammation..  Is anyone of you or friends participating in actual research about this, or at least be under some medical/scientific supervision? I remember @Ivan_Ezeigbo, also on edgeryders, is involved in systematically studying effects of a medicinal plant for another medical affection.. i thought that was a smart way of looking for valid cure.",/post/6684,2017-11-30T00:49:41.390Z,2017-11-30T00:49:41.390Z,6684,3791,AnnotatorStore::TextAnnotation,,,,,,,,,772,2190 13023,v1.0,,"Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their ""guests"" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.  @Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !",/post/16177,2017-11-30T00:48:51.004Z,2017-11-30T00:48:51.004Z,16177,3791,AnnotatorStore::TextAnnotation,,,,,,,,,662,2189 13022,v1.0,,"Lets make it clear: Quality is one thing, safety is another. Quality depends on the maker = participant. Safety is ensured by facilitator and mentors. Safety is a relative issue. Walking is risky – you may fall, therefore the neurologist may advice stop walking and use a wheelchair instead (a real casestory). As when we do clinical trials, the participant must be guided through a ‚risk assessment’",/post/33426,2017-11-30T00:48:13.765Z,2017-11-30T00:48:13.765Z,33426,3791,AnnotatorStore::TextAnnotation,,,,,,,,,483,2189 13021,v1.0,,"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc. @WinniePoncelet, it could be very good if you could elaborate on why you don’t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get? You have a good point,@WinniePoncelet,  we could imagine raising funds to have a FES bike that people could try locally. I’ve learned two things recruiting wheelchair users as testdrivers There is a perception that it may be physically harmful People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike As for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.) As for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling).  @Francesco Maria ZAVA and others we could work on this",/post/23387,2017-11-30T00:47:42.465Z,2017-11-30T00:47:42.465Z,23387,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2189 13020,v1.0,,"Create a context for storytelling.  → Get to know each other + basic needs?→ Expectations→ Communication and identity/sculpture",/post/5405,2017-11-30T00:47:05.085Z,2017-11-30T00:47:05.085Z,5405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5372,2188 13019,v1.0,,"Conclusion:Space for care includes a variety of aspects that one should balance nut still take action. Intention Expectations Context-setting Storytelling as a tool not a universal answer Parties  Passive, Active, ProactiveGive - Receive | Request - response = Communication space around care (actively caring)They are a lot of difficulties in communicating around care.Stories – legends - can be a tool to not directly address the issue but rely and build on universal stories.  What then would be 5 steps to design your context of care?→ Current future vs ideal future",/post/5405,2017-11-30T00:46:17.390Z,2017-11-30T00:46:17.390Z,5405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5372,2188 13018,v1.0,,"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles, even skill up in a process that difficult.  There are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder, said something similar about  how conversation in which neither party is an expert can be lifechanging. I'm curious about the group which seems more or less open - can anyone who reports feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?",/post/10263,2017-11-30T00:45:04.232Z,2017-11-30T00:45:04.232Z,10263,3791,AnnotatorStore::TextAnnotation,,,,,,,,,718,2187 13017,v1.0,,"a story how a team started a medical camp with the intention to help as amany people as possible who otherwise would have not received care, Medical camps have been running in partnership with the villages of Bupsa and Bumburi attract local people from miles around, many of whom walk for many hours and often days to attend the camps. These medical camps are led by Nepalese professionals who are assisted by qualified volunteers and medical and dentistry students from the UK. The long and expensive journey to the hospitals in Laksha and Kathmandu (sometimes taking days) are out-of-reach for the majority living in these low-income communities. Their main source of income is from subsistence farming and small profits are often shared throughout the community. So as you can imagine, when word gets out that these clinics are nearby, villagers flock to them in the hope of securing a cure for their health issues.  There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication. The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa’s monastery. The group that started the initiative were limited to leftover equipment from the previous clinics and a small amount of supplies that they carried in with them.  One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from accessible healthcare. Read the full story here:  http://wildernessmedicinemagazine.com/article.asp?id=1026 mmtrust.wordpress.com Wilderness Medicine in Nepal Moving Mountains runs small and mobile medical camps in the remote villages of Bumburi and Bupsa, along with the surrounding villages in the Solu-Khumbu region of the Nepalese Himalayas. These medi…",/post/734,2017-11-30T00:44:10.433Z,2017-11-30T00:44:10.433Z,734,3791,AnnotatorStore::TextAnnotation,,,,,,,,,701,2186 13016,v1.0,,"Get An OpenVillage Ticket: Invite your Intellectual Hero at the event! Hello old and new edgeryders, this is a task you can complete and get a ticket to our community Festival later this year (Oct 19-21)!  Steps to complete it: 1) Leave a comment below with the name and affiliation of an expert you want to invite - someone you know is doing inspiring work, or dream of meeting! Wait for our confirmation to go ahead. 2) Contact/ Email the expert. Below is an invitation to OpenVillage which you can use or remix. Also see the Comments with more templates.   3) If they accept to come, we'll send you the ticket to the event!   [Invitation] Guest Curator at \#OpenVillage: support selected healthcare and social projects with sustainability advice and business development OpenVillage is a participatory built festival gathering outstanding community projects from all over the world which are on their way to a new health and social care ecosystem. The Festical is structured in three parts: a speedy discovery of promising projects from around the world; hands on work on business modeling and sustainability; finally, technical knowledge sharing and learning new skills from health practitioners, data analysts, policy makers, investors etc: Day 1 | Meeting protagonists of revolutionary health and social care projects  Day 2 | Business modeling: hands on discussions and intimate networking with selected projects Day 3 | Technical learning and knowledge sharing around health data, policy and investments (example sessions: Healthcare Paradoxes; Collaborative Design and Inclusion of Migrants, Masters of Networks for advanced data visualization and analysis, and more). We’d like to bring you in for the whole festival, as a guest curator providing support for the business track we call Financing care. You would be involved in a low effort in the runup to the event, and our in-house community curators are tasked with keeping you up to speed and point you in the direction of most relevant projects. A process for working together with community Curators August | Community curators prepare 5 solid sessions & 1 blog post with a synthetic outline which you will receive September | Preliminary call: Community + Guest Curators September-October | Guest Curators leave comments online with feedback to relevant sessions #OpenVillage Pre-event | Power Pitch Masterclass with curators and session leaders to optimize delivery at the Festival TBC #OpenVillage Main Event 19-21 Oct | Guest Curators attend sessions and provide support and evaluation If this sounds interesting for you, a first thing to do right now is to send us a photo and a short biography. We will announce your participation in a post like this one.",/post/6364,2017-11-30T00:43:06.194Z,2017-11-30T00:43:06.194Z,6364,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6331,2185 13015,v1.0,,"I hope you will get the touring exhibition to have a european leg, and come through Lausanne!  To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help! I left a comment with a few points this morning on the page with the documentary, but just to ask one more silly question: was it actually possible to do any fly-fishing on the Bagmati river??  (are there many fish to catch??  are they edible?)   I did some flyfishing long ago in the great northwest and Montana, with great pleasure, but don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)... Thanks again for sharing, and looking forward to further discussions!",/post/21501,2017-11-30T00:42:35.147Z,2017-11-30T00:42:35.147Z,21501,3791,AnnotatorStore::TextAnnotation,,,,,,,,,543,2184 13014,v1.0,,"Thank you @Natalia_Skoczylas and @Alberto Being a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.",/post/20497,2017-11-30T00:41:54.150Z,2017-11-30T00:41:54.150Z,20497,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,2183 13013,v1.0,,"Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies. We create a commons – collectively managed resources that are freely accessible and can be used and enriched by everyone – by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence. The games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems – by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver. Key to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services. The participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries. Breathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative. Discover more about us at www.breathinggames.net",/post/735,2017-11-30T00:39:56.993Z,2017-11-30T00:39:56.993Z,735,3791,AnnotatorStore::TextAnnotation,,,,,,,,,702,2182 13012,v1.0,,"I think the time has come to disruption in health care, and care services in general. Because? Because, as the OECD explained, per capita health spending grows much faster than the product income. In 1970, healthcare absorbed a respectable 5.2% of the average developed country GDP. In 2008 it absorbed 10.1% ( source ). The system is under stress, and often - as in Greece - reacts denying the services to those most in need.",/post/4913,2017-11-30T00:39:03.649Z,2017-11-30T00:39:03.649Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2181 13010,v1.0,,"reaching out for ways to cater to our needs. It seems like it percolates through the crack of society, colonizing immediately any area that ""the economy"" retreats from. This could be why there are so many great stories from Greece coming through; Helliniko and @OrangeHouse , @Aravella_Salonikidou and her strange ""not some social space"", @MAZI , @Tree_of_Life , @To-Steki , @Jenny_Gkiougki , @Noesi ... Greece has suffered more than most countries, and yet there is so much resilience.",/post/21551,2017-11-30T00:36:44.678Z,2017-11-30T00:36:44.678Z,21551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,503,2180 13009,v1.0,,"How can communities become more visible and members interact more easily? How do you make the actions of the community visible to the individuals? How do you make individuals' actions more visible to the community? How can we help individuals be independent from official caring services? How do we invite more people to be part of the process and disseminate the documentation? How can we find the right balance between keeping the effectiveness of the box with still being able to go out of the box/ What is the metaphor of what we are trying to do? (Stefanos) helps understand complicated things without  How do you build connectivity into each initiative or do you want connectivity only between initiative? If we all want to coordinate, what amount of time/ effort/ resources can we each put into learning to coordinate? How could we open the debate about the strength of intergenerational care.",/post/541,2017-11-30T00:35:52.226Z,2017-11-30T00:35:52.226Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2179 13008,v1.0,,"ow come patients associations don't lobby for provision of assisting technology outside the formalised hospital care? Isn't this the kind of thing that they would be best at, being on the organised patient and consumer side?",/post/9562,2017-11-30T00:35:18.550Z,2017-11-30T00:35:18.550Z,9562,3791,AnnotatorStore::TextAnnotation,,,,,,,,,483,2179 13005,v1.0,,→ Are there universal stories?→ But is it personalized better?,/post/5405,2017-11-30T00:32:03.503Z,2017-11-30T00:32:03.503Z,5405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5372,2179 13004,v1.0,,How many people need care and are not getting it?,/post/10261,2017-11-30T00:31:32.462Z,2017-11-30T00:31:32.462Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2179 13003,v1.0,,How long do they have to wait? satisfaction with the care they receive?,/post/10261,2017-11-30T00:30:57.003Z,2017-11-30T00:30:57.003Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2179 13002,v1.0,,How do people get to the health care when they need it? distance? cost?,/post/10261,2017-11-30T00:30:23.147Z,2017-11-30T00:30:23.147Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2179 13001,v1.0,,"How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)",/post/10261,2017-11-30T00:29:53.126Z,2017-11-30T00:29:53.126Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2179 13000,v1.0,,"@Francesco_Maria_ZAVA directed my attention to this very interessting glove http://www.neofect.com/en/ @Moushira. Do you think the Maestro be advanced to be similar, but opensource and easyly replicable?",/post/20131,2017-11-30T00:29:09.668Z,2017-11-30T00:29:09.668Z,20131,3791,AnnotatorStore::TextAnnotation,,,,,,,,,479,2178 12999,v1.0,,Where you can create solutions without being in the same place,/post/541,2017-11-30T00:28:39.087Z,2017-11-30T00:28:39.087Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2177 12995,v1.0,,"Lets make it clear: Quality is one thing, safety is another. Quality depends on the maker = participant. Safety is ensured by facilitator and mentors. Safety is a relative issue. Walking is risky – you may fall, therefore the neurologist may advice stop walking and use a wheelchair instead (a real casestory). As when we do clinical trials, the participant must be guided through a ‚risk assessment’",/post/33426,2017-11-29T21:08:30.958Z,2017-11-29T21:08:30.958Z,33426,3791,AnnotatorStore::TextAnnotation,,,,,,,,,483,2174 12994,v1.0,,"Hey @Yannick , thanks for your patience in answering all these questions. The question by @Eric_Hunting reminded me of a previous experience with a project called the unMonastery. We had the problem of developing a physical space that was meant to connect to a broader community, and the community was physically far from the space.  We discovered that publishing the plans made everything clearer and more concrete, and generated a lot of excitement and emotional attachment. People also started to suggest really cool ideas for furniture.  Cancel Save Annotate",/post/27803,2017-11-29T21:07:59.639Z,2017-11-29T21:07:59.639Z,27803,3791,AnnotatorStore::TextAnnotation,,,,,,,,,487,2173 12993,v1.0,,"Whaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels either",/post/18277,2017-11-29T21:07:35.318Z,2017-11-29T21:07:35.318Z,18277,3791,AnnotatorStore::TextAnnotation,,,,,,,,,650,2172 12992,v1.0,,"Hi @Yannick, Hi All. This is great. And resonnates to what I wish to see emerge too. Good to see you are already in touch with various people and groups, good to see overlap. Do you by any chance also connect with POP ? http://www.potentialofficeproject.org/wiki/index.php/Main_Page I've been writing on these topics, and do not know what to start with, so if its ok, I just feel like sharing a few links, including to online conversations with Eric Hunting Empty Flats Above Shops : https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/N9WWeQ_PF14/PhQrYg1JBAAJ Nomadic Ecovillages presentation by Eric : docs.google.com Nomadic Eco-Villages Nomadic Eco-Villages Exploring New Nomadic Lifestyle and Festival Culture in the Urban Setting Eric Hunting - erichunting@gmail.com - 5/13 List of construction systems https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/g3nKCOOx68o/yb58OIvgS8cJ more ressources https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/e0SGcBaZFw8/d4IzEnf2EgAJ Creating Spaces within Spaces https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/XXsDzujQyoA/JfIZ5ZpsaxgJ A place potentially inspiring in Brussels ( Camping Town ) https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/lVmY_88ZEvY/WQFQqLrTlsoJ N55 and Open Manuals https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/HxHyS2lnjjg/hORC4NGkzV4J Other vacant space convergences in Brussels https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/blUobfTPWik/DOhSbIrJ_H0J Precare archives ( including ""Contrat Precaire"" ) http://precare.org/ Archive of other project drafts : http://sharewiki.org/en/Leipzig_project http://sharewiki.org/en/Spime_Housing and much more https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels;context-place=forum/op-n-m https://www.diigo.com/user/dante-gabryell/housing",/post/14783,2017-11-29T21:06:59.292Z,2017-11-29T21:06:59.292Z,14783,3791,AnnotatorStore::TextAnnotation,,,,,,,,,487,2172 12990,v1.0,,"The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.  I am not completely sure we can classify it as ""care"", though. But perhaps it's not even  that important.  @Paul_Free, I know there are plans of community (vegetable) gardening as part of the city of Galway's bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?",/post/9428,2017-11-29T21:05:00.067Z,2017-11-29T21:05:00.067Z,9428,3791,AnnotatorStore::TextAnnotation,,,,,,,,,641,2170 12987,v1.0,,"Hi @ybe. It's a long post now so excuseme if I've skimmed too much. As @Alexander_Shumsky posted the WeHandU we were talking about the importance of psycological aspects of assistive technology. My experience is that people having sustained a stroke, spinal cord injury or living with MS have a need to talk about it. I's not what you intend by trauma, but I think it could be interesting include your expertice in a 360* service.",/post/27812,2017-11-29T21:02:37.062Z,2017-11-29T21:02:37.062Z,27812,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2168 12986,v1.0,,"I have one such example and it seems that the more distant relatives or friends posting are trying to support those closest ""in rank"", albeit from afar. It's almost as if trying to show that they care, maybe for the same reason @Patrick_Andrews mentioned - because they don't know how else.",/post/12425,2017-11-29T21:01:56.342Z,2017-11-29T21:01:56.342Z,12425,3791,AnnotatorStore::TextAnnotation,,,,,,,,,515,2167 12985,v1.0,,"Another example where functional grating is used: Prosthetics Uses distributed force: see goats' feet as a reference/description of the principle used to build prosthetics. Feets that are hard metal pads (hard actuators) does not allow you to compensate for unexpected events. Also flies' spatulated hairs on their feet. N++1. Aron Parnell tries to mass manufacture. Last example: Replacing atmospheric preassure in space suits with pneumatic preassure, shrinking them to fit human body. Problem: Spring effect. Solution: Don't make mechanical counterpressure suit in one go, but gradually? (not sure I got this right)",/post/5136,2017-11-29T21:01:27.498Z,2017-11-29T21:01:27.498Z,5136,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5103,2166 12984,v1.0,,"Wow, this is great news indeed. Welcome @Eireann_Leverett !  I was at that talk at 32C3. It was a real eye opener. It's all very good and well to make fun of the Internet of Things: my favourite is the Twitter account Internet of Shit (https://twitter.com/internetofshit), that churns out a sad/hilarious/scary gallery of smart diaphragms, Internet-connected pet feeders that starved your cat to near-death because the server went down (""It's literally just a timer! WHY does it have to be online? Oh, right, so that they can show me cat food ads""), and keyboards that predict your next keystroke and leak all your keylogs all over the Net.  But when you are running that stuff inside your body, that's where it gets a lot less funny.  I love this idea: preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. A sort of FAQs, of checklist, if I understand correctly. Does it make sense to try and prototype this at one of the Open&Change events in the fall?",/post/10583,2017-11-29T21:01:01.586Z,2017-11-29T21:01:01.586Z,10583,3791,AnnotatorStore::TextAnnotation,,,,,,,,,679,2165 12983,v1.0,,"What I make of this is that it's not about choosing between the open source or current proprietary code/technology approach. It's clear to me that both do things well and other things wrong and that an ideal situation lies somewhere in between. I find it is recurring when the open tech/science ideas meet traditional ideas that the discussion is seldom held around the question: how can the different approaches learn from each other, in order to implement a better solution? Rather, it is usually about what approach is the best as is. Result: boring discussion and no real progress. How can we get to a situation where this conversation is not about an ideal solution, but about finding an ideal solution? Ping @Alberto @Eireann_Leverett @trythis @Rune",/post/27802,2017-11-29T21:00:34.626Z,2017-11-29T21:00:34.626Z,27802,3791,AnnotatorStore::TextAnnotation,,,,,,,,,679,2164 12982,v1.0,,"Here is a vid from a person from a very different milieu I think, and still there are many parallels. He's more expecting 7 shifts though: You can just watch 7 or so minutes, but perhaps @dfko would be interested in the whole thing - I could imagine there could be some mutual benefit in that approach as well.",/post/32273,2017-11-29T21:00:13.801Z,2017-11-29T21:00:13.801Z,32273,3791,AnnotatorStore::TextAnnotation,,,,,,,,,647,2163 12981,v1.0,,"Another member of the community who might be interested in this is @Eireann_Leverett who does information security and has experience with tech-related privacy/security issues which is a concern. And not just for high risk users e.g. activists... Edit Delete No Commentdata security Cancel Save Annotate",/post/8632,2017-11-29T20:59:48.142Z,2017-11-29T20:59:48.142Z,8632,3791,AnnotatorStore::TextAnnotation,,,,,,,,,684,2162 12980,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-29T20:59:24.519Z,2017-11-29T20:59:24.519Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2161 12979,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-29T20:59:01.355Z,2017-11-29T20:59:01.355Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2160 12977,v1.0,,"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post – seems like great work, congrats! The idea of understanding one's own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes out), or a many-to-many interaction between users. Can user A see the diary of user B? Do they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?  Edit Delete No Commentpeer-to-peer Edit Delete No Commenthistamine intolerance Edit Delete No Commentincreasing self-knowledge Cancel Save Annotate",/post/8578,2017-11-29T20:58:05.200Z,2017-11-29T20:58:05.200Z,8578,3791,AnnotatorStore::TextAnnotation,,,,,,,,,804,2160 12976,v1.0,,"attempting to revive the dying crafts of Florence and discover the history of our district, with all its tremendous historical implications;",/post/21382,2017-11-29T20:57:33.338Z,2017-11-29T20:57:33.338Z,21382,3791,AnnotatorStore::TextAnnotation,,,,,,,,,733,2159 12975,v1.0,,"It only treats patients who do not have access to the national health service . One exception: low-income families, who live with 450 euros a month and simply do not have the money for medicines. (Maria: ""Happens."")",/post/4913,2017-11-29T20:56:26.066Z,2017-11-29T20:56:26.066Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2158 12974,v1.0,,"many (not to say most of the) players join consortia to submit proposals for EU funding, looking just for either cash, or for a way to complete ""deliverables"" with the minimum effort required. This attitude does not deliver actual usable results",/post/11657,2017-11-29T20:54:52.490Z,2017-11-29T20:54:52.490Z,11657,3791,AnnotatorStore::TextAnnotation,,,,,,,,,495,2157 12973,v1.0,,"'d like to propose a theme that I've been curious about for some time. How do we create the conditions for #opencare in our organisations and our communities? How do we design communities and organisations that are care-full, and promote health and flourishing? I'm curious about the interplay between policy and culture (as in ways of doing things rather than music and art). Are policies simply agreements about what we think works and what is right at any given time? Moreover how are they implemented at government or regional levels and in organisations, if they are to be more than good intentions? Do they end up needing enforced or policed by someone? Are they a tool of old ways of doing things built on hierarchy and power over? What role can they play in creating the conditions for opencare or for that matter for love and acceptance and generating the sense of coherence that Antonovsky describes in salutogenesis and its approach to study what creates health and well being rather than researching dis-ease? My work through the GalGael Trust based in the Govan area of Glasgow has offered some hints that actively generating a healthy culture is perhaps more effective in achieving in an anchored way the 'good intentions' of policy. Strong values guide actions, decisions and behaviour, influence language and how we treat one another. Our workshop sees people working, for the most, part side by side. We’ve had people with violent histories, people who suffer agoraphobia, depression and addiction. Yet something about the space we’ve created has meant that people largely get on, there’ve been no violent incidents in our 20 year history and people describe their doctor taking them off medication, sometimes for the first time in many years.  It’s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we’ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said ‘the work is the therapy’ - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society? We’ve recently spent a year curating a collaborative process to explore what it means to ‘be GalGael’. It saw us going back to our beginnings and drawing on the learning from our days as an anti-motorway protest camp. We wrestled with our assumptions - which were shared and which were disputed? We explored whether our purpose was actually underneath it all - to bring about greater love. This contributes to our being in a good place to explore this theme more widely in our own organisation and its practical application in more depth. Through the process we would like to connect and learn from other organisations exploring this theme.  What kind of structures and processes are essential building blocks or make up the ’hardware’? What kind internal capacities and approaches make up the ‘software’ that keep a healthy organisation, healthy community or healthy societies humming with human flourishing? The theme could also link to other themes that explore how we create the conditions such as: citizens income and the politics of time; nature of collaboration and how we exercise our freedoms and capacities; the nature of work in care-full societies; forms of leadership and personal capacity called for.  I’m very new to Edgeryders and I’ve not had much time to develop this so would appreciate feedback and thoughts as to whether this might be a theme of interest to others.",/post/6304,2017-11-29T19:47:06.523Z,2017-11-29T19:47:06.523Z,6304,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6271,2156 12972,v1.0,,"Early considerations on role of policy Where policy sits in relation to this also came up in conversation. Simon commented that “misguided policy can be worse than no policy” and we agreed that this wasn’t to dismiss the efforts of policymakers altogether. Policy is by its nature ‘top-down’ and in conversation with @Luke_Devlin we couldn’t not notice the etymological connection between the words Policy/Police/Politic - polites is citizen, polis is city or state (as well as Glasweigan for police!). But the word policy itself means “way of management” and the discussion is perhaps - what ways of managing the health and social care of citizens are most appropriate given what we now know about how the world works has shifted considerably since the times of ancient Greece or 14th C France. The current mechanics of government need reform if they are to cope with the scale and complexity of current challenges. Over the coming months and through the Open Village program, more of these conversations and questions will refine an understanding of the enabling factors for OpenCare - drawing largely on the multitude of posts by the Edgeryders community that detail real life experience and precious lessons learned about what works and what doesn't work. In the process clues will be gathered that start to deconstruct policy and re-imagine new tools that are more generative in relation to the health and wellbeing of citizens. And beyond this perhaps how we reconfigure the role of the State to re-calibrate responsibility and the role of citizens in ways that create greater agency as a foundation to health. Edit Delete No Commentpolicy Cancel Save Annotate",/post/6462,2017-11-29T19:46:07.147Z,2017-11-29T19:46:07.147Z,6462,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6429,2155 12971,v1.0,,"Where policy sits in relation to this also came up in conversation. Simon commented that “misguided policy can be worse than no policy” and we agreed that this wasn’t to dismiss the efforts of policymakers altogether. Policy is by its nature ‘top-down’ and in conversation with @Luke_Devlin we couldn’t not notice the etymological connection between the words Policy/Police/Politic - polites is citizen, polis is city or state (as well as Glasweigan for police!). But the word policy itself means “way of management” and the discussion is perhaps - what ways of managing the health and social care of citizens are most appropriate given what we now know about how the world works has shifted considerably since the times of ancient Greece or 14th C France. The current mechanics of government need reform if they are to cope with the scale and complexity of current challenges. Over the coming months and through the Open Village program, more of these conversations and questions will refine an understanding of the enabling factors for OpenCare - drawing largely on the multitude of posts by the Edgeryders community that detail real life experience and precious lessons learned about what works and what doesn't work. In the process clues will be gathered that start to deconstruct policy and re-imagine new tools that are more generative in relation to the health and wellbeing of citizens. And beyond this perhaps how we reconfigure the role of the State to re-calibrate responsibility and the role of citizens in ways that create greater agency as a foundation to health.",/post/6462,2017-11-29T19:45:40.347Z,2017-11-29T19:45:40.347Z,6462,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6429,2155 12970,v1.0,,"Hello @evelina , welcome from me too. Spoken word for cultural integration sounds like a new approach to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know? Have you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate?",/post/33795,2017-11-29T19:44:53.654Z,2017-11-29T19:44:53.654Z,33795,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6601,2154 12969,v1.0,,"Thanks for the pointer, Alberto. Actually @trythis was the inspiration for the Rasoberry Pi local media servers after the Nepal earthquake last year, and this way also for Pocket University. Lots of inspiration coming from that guy I'd be interested to utilize a small casting / pocket university like setup for teaching better coffee farming in @28.0295096,84.4467343,14676a,20y,41.63h,62.8t/data=!3m1!1e3!4m5!3m4!1s0x39953fa2e0beb76d:0xeb467b0ef0d2342b!8m2!3d28.1652914!4d84.6322156?hl=en"">Hansapur, Gorkha, Nepal. Which is the village for this year's trial of our ""direct international sales of Nepali coffee"" project. Just a small project for now, with a friend from last year going there around next week and then again in February. The problem is obviously getting the coffee farming content together, in Nepali …",/post/27569,2017-11-29T19:42:47.017Z,2017-11-29T19:42:47.017Z,27569,3791,AnnotatorStore::TextAnnotation,,,,,,,,,520,2153 12968,v1.0,,"Dear @iffat_e_faria, its very impressive and motivational efforts. All around the world, people are gearing up for earth day. Started in 1970, this designated day of April 22 has become an annual reminder of our responsibility to be good stewards of the Earth. You did excellent and contributed into a healthier Earth in multiple ways with plant a garden, which committed to reduce, reuse and recycle. Good and keep it up...... All the best for your future endeavors Dr. Saeed Ahmad Qaisrani",/post/26066,2017-11-29T19:41:56.680Z,2017-11-29T19:41:56.680Z,26066,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,2152 12967,v1.0,,"I did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.",/post/18972,2017-11-29T19:38:36.646Z,2017-11-29T19:38:36.646Z,18972,3791,AnnotatorStore::TextAnnotation,,,,,,,,,682,2151 12964,v1.0,,"Hello there,   I am copying a story on behalf of Filippo, a volunteer to the community of  pemphigus, an auto-immune disease that affects skin layers, causing them to detach, form blisters, among other complications.   Filippo will join the conversation, but we wanted to speed up the onboarding barrier, while link the story to other software volunteers whom we met at the MakerFaire in Rome.  Lets see how his works "" Just as first input, a simple idea that is needed is a “scratching indicator”?This is something missing in the scenario, I mean some app that using a wearable device (like a apple watch or something designed ad hoc – a simple arduino like mb with an accelerometer should be sufficient) can identify the scratching movement of the arm an apply an indicator.The objective is to measure a quantity (a number) that indicate the duration and the intensity of scratching activity of te patient, building a sort of standard to be used for that  that kind of patoloty and patients to be used to analyze the efficacy of specific therapy on one of the worst and less understood symptoms, the itching.  This could be the starting point of this app for pemphigus/pemphigoid patients, (but not limited to them), that can be integrated with other functionalities aiming to “measure” efficacy of therapies granting an indication of the status of the patient. Do you think this could be a valid input to start the discussion?""",/post/799,2017-11-29T19:34:41.387Z,2017-11-29T19:34:41.387Z,799,3791,AnnotatorStore::TextAnnotation,,,,,,,,,766,2149 12963,v1.0,,"Dandelion ""Pissenlit"" roots for cure cacer, Yes it's possible and without fees!!  There are many different types of cancer any people get killed by it. It's enough we have found the cure for many of them ( prostate, intestine, lungs ,...) Many people aboard have been heal by this roots when they heard about it, they stop using chimiotherapy ( chimiotherapy = traitement used for having a long day of living, is not enough efficient!!! The bad effect of this treatment is not his non efficiency but also killing the healthy cells, even if he kill the cancer cells inside body.!!! From this treatment there are some bad effect like, appetiteless, loss of weight, weakness of antibody, ...)  Actually, 7 people here in Madagascar have been heal by this treatment when they heard about it, and follow the instructions. It's  a close friend of mine who have been sick by ""liver and intestine"" cacer. He was up to follow chimiotherapy  treatment so I told him to follow this natural treatment  first before he decided to spend  money on chimiotherapy. When I heard about this plant from Canadian friend, we decided to use it.  He was so happy when he gets cured after 1 week  of treatment, when he decided to drink infusion from dandelion's root. Doctors doesn't find any clue of cancer on him. Maybe the phase of his cacer was primary and it's was easy to cure. So my conscience is restless when I heard that there are many people who suffer, dead from cancer ""it's like non assistance of people in danger"". I decided to share it with you.  -THIS IS THE YOU NEED TO FOLLOW.  1# You need to collect dandelion on a place where cars doesn't barely ride. 2# non chemical insecticides or related haven't been sprayed on the soil where you collect it.  -PREPARATION  Boil 1 liter of top water, when it's still boiling, ad 100 grams of  dandelion roots.  Leave it boiling  for 10 minutes ( never more never less than 10mn. It's has been calculate that ""active elements"" goes out at this moment.  If it's more than that, it's will kill those active elements.  When it's done let it get cold. This is your ""drinking water for one day"" the better moment for drinking much is before breakfast and dinner, also drinkable in middle time. Do it for 20 days and stop for 10 days. Keep do it again from the beginning as a cycle of one month (20 plus 10 days.)  If everything has been followed step by step in one week, we can find the changes ; inside pain goes out,  patient will find appetite, this is the major factor of this treatment and it's make a big different between it and chimiotherapy.  If I understand and correct me if I'm wrong!! chimiotherapy kills cancerous cells but also healthy cells. Patient get weak, lost appetite and doesn't have no much time for living,  It's a kind of catalyst inside body.  But this dandelion's  roots hunt and kill all cancerous cells inside body.  After you recognize that patient is completely cured, all we have to do is care about wound healing leave by the cancer inside the body. We can keep doing it by natural method using garlic.  Take one glass of hot water,  scratch 3 or 4 peaces of garlic and put it inside the glass of hot water.  Leave it for one night and drink it before breakfast,  keep do it until its gone,  or you can still buy some medecines in drug store if you want to heal  wound leaved by cancer.  I hope that everyone can find a way to cure and fight cancer on his own natural or chimical. If you have any questions about this, any suggestions or critics please don't hesitate to write bellow  Dear friends Edgeryders, I wish an Happy and successful new year to each every one of you.",/post/805,2017-11-29T19:33:58.578Z,2017-11-29T19:33:58.578Z,805,3791,AnnotatorStore::TextAnnotation,,,,,,,,,772,2148 12962,v1.0,,"@Federico_Monaco you leave us wanting more Does it happen in workshops with more people, in meetings one-on-one, on the internet as well..? PS I suggest whenever you blog about WeMake work or OpenRampette you make sure to link to a context post on edgeryders or elsewhere so that when we share your notes on the Internet readers can plug in directly in the conversation - or just explain in 3 introductory sentences what is OpenRampette and what question is poses.",/post/14239,2017-11-29T19:33:31.537Z,2017-11-29T19:33:31.537Z,14239,3791,AnnotatorStore::TextAnnotation,,,,,,,,,819,2147 12961,v1.0,,"Parkinson's, as we all know, is a serious ailment for which there has not been a cure yet. What makes the ailment even more intimidating is that the symptoms keep varying from person to person and we never know in what way is going to affect the patient. Wave, as our team is called, is trying to make someone suffering from parkinson's and their caregiver's lives easier using technology that we have today at our disposal. The first signs of someone having parkinson's are the motor symptoms. These symptoms include essential tremors in hands and other parts of the body. These symptoms further advance overtime enough that it makes it difficult for them to perform the easiest of daily tasks. The symptoms occur when the level of dopamine, the chemical responsible for body movement coordination, reduces in the brain. Medication is used to replenish the dopamine levels or fake the action of the dopamine. With our prototype, we propose to make the lives of someone with parkinson’s simpler. Our prototype will be wearables that can monitor the motor symptoms of the patient. Our prototype will monitor the common symptoms like tremor and stiffness in the human body, and if the symptoms are showing an uncommon behaviour, the prototype can beam the information to the smartphone to remind the patient or the caregiver to take the medicines to or to see the neurologist. Parkinson's Sketch.jpg600x1270 104 KB Our goal is to help someone who has recently started showing symptoms of parkinson’s to track their motor symptoms and also prolong the initial stage as much as possible. A lot of research-based apps and services are available today that help in better understanding the symptoms of Parkinson’s. Apps like mPower and Parkinson’s Central are monitoring the patient’s health from their rdaily movements and tasks along with daily or weekly surveys. With our prototype, we not only propose to help in tracking symptoms to better understand the disease but we also want to help the patient in the best way possible.",/post/768,2017-11-29T19:32:52.895Z,2017-11-29T19:32:52.895Z,768,3791,AnnotatorStore::TextAnnotation,,,,,,,,,735,2146 12960,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL.",/post/866,2017-11-29T18:35:56.437Z,2017-11-29T18:35:56.437Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,2145 12959,v1.0,,"o @evelina , welcome from me too. Spoken word for cultural integration sounds like a new approach to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know? Have you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate?",/post/33795,2017-11-29T18:35:17.232Z,2017-11-29T18:35:17.232Z,33795,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6601,2145 12958,v1.0,,"The physical nature of the practices can help overcome language difficulties, which might be useful in a scenario like Calais.",/post/13679,2017-11-29T18:34:37.897Z,2017-11-29T18:34:37.897Z,13679,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2145 12957,v1.0,,"holding space: being open to the perspective without taking it personally, listening with from an open space",/post/6401,2017-11-29T18:34:10.184Z,2017-11-29T18:34:10.184Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2144 12956,v1.0,,"A Do-It-Yourself Revolution in Diabetes Care Parents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin. This is pretty amazing: an entire open source ecosystem, from sensors to apps to insulin, emerging from patients.  Where do we want to store all this stuff?",/post/5392,2017-11-29T18:33:41.547Z,2017-11-29T18:33:41.547Z,5392,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5359,2143 12955,v1.0,,"What I make of this is that it's not about choosing between the open source or current proprietary code/technology approach. It's clear to me that both do things well and other things wrong and that an ideal situation lies somewhere in between. I find it is recurring when the open tech/science ideas meet traditional ideas that the discussion is seldom held around the question: how can the different approaches learn from each other, in order to implement a better solution? Rather, it is usually about what approach is the best as is. Result: boring discussion and no real progress. How can we get to a situation where this conversation is not about an ideal solution, but about finding an ideal solution? Ping @Alberto @Eireann_Leverett @trythis",/post/27802,2017-11-29T18:32:40.734Z,2017-11-29T18:32:40.734Z,27802,3791,AnnotatorStore::TextAnnotation,,,,,,,,,679,2142 12954,v1.0,,"A Do-It-Yourself Revolution in Diabetes Care Parents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin. This is pretty amazing: an entire open source ecosystem, from sensors to apps to insulin, emerging from patients.  Where do we want to store all this stuff?",/post/5392,2017-11-29T18:31:59.494Z,2017-11-29T18:31:59.494Z,5392,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5359,2142 12952,v1.0,,"Quite a few curious people who participate in the OpenCare conversation about care end up engaging with the research team in a different conversation: the one about OpenCare as a research project. This is a lovely side effect of OpenCare's radical transparency. We practice a sort of open notebook science. We don't publish only results, but also questions, doubts, within-team disagreements, half-baked ideas. This is made more effective by a specificity of OpenCare: the community and the team are in separate ""rooms"" of the same online platform, edgeryders.eu. People who hang around it can't help noticing the stream of research project updates. Some of them engage.  This was expected. But I was not expecting the magnitude of the effect. 81 people have contributed at least one comment to the research team space. The team's own numerosity fluctuates, but it's about 20. The others are just people from the community who drop in to ask questions or make suggestions. And they outnumber us three to one. In the network diagrams, nodes are color- and size coded by in-degree. You can think of in-degree as a measure of the interest that the person's contribution elicits in the conversation. By this metric, it is clear that self-selected community members who just jump in are making a major contribution to the OpenCare research effort. The highest in-degree individuals who are not affiliated with any of the partners are @Federico_Monaco (ranks 7th by in-degree), @Rune (ranks 13th) and @Francesco_Maria_ZAVA (ranks 16th).  The conversation about OpenCare as a project (to the right of the picture) is of the same order of magnitude as that about open care as a potential pathway to societal well-being (to the left). It needs to be said, however, that the former has a lot of menial content: agreeing about a time and place to meet, requesting administrative information etc.   What are the consequences of all this activity? More diversity in research. More space for participation. With a bit of luck, more and higher quality scientific output. My favourite story is this: a community member, the already mentioned Federico Monaco, has proposed we do a paper together. He had found a call for papers in a journal he follows, and thought it a good fit. His proposal stirred the rest of the team into action. His thread received over 50 comments. A draft abstract was then uploaded onto a public wiki for community scrutiny and feedback. Many people sent contributions large and small. The large ones (example: that of Ezio – here) did most of the heavy lifting. But the process had a role also for smaller ones. People like myself, who did not feel confident to step in as co-authors, were able to offer some small help without having to take responsbility for the whole thing. Federico led with a firm but light touch, asking everyone who volunteered any thought what role they wanted to play in the paper. For example, @Yannick – also not a member of the OpenCare team – was offered co-authorship (but declined). All of this happened out in the open. As you read the whole thread, you can see ideas form through the discussion of the co-authors. Collective intelligence about collective intelligence!  Interdisciplinarity happened quite naturally as a result of the open process. The final submission listed five authors: Federico himself (a medical anthropologist); @Ezio_Manzini (a designer for social innovation); @Noemi (a social scientist); @Amelia (an ethnographer); myself (a network scientist). How cool is that? Another advantage of doing things this way is increased accountability to the people who take part in the main conversation, the one about care. Through the research team forum, they can ask question and make proposals. This should mitigate the perceived risk of researchers taking an exploitative attitude towards people's contributions. The operative word here is ""perceived"". We have the best intentions, but we recognize this is not enough. We are determined to demonstrate them to the community, and transparency goes a long way towards doing it.  I think that, together, we are making OpenCare... open. I had never had the luxury of running a research project with such transparency. I like it a lot, and hope to keep doing so in the future. What do others think?",/post/6175,2017-11-29T18:30:38.764Z,2017-11-29T18:30:38.764Z,6175,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6142,2141 12951,v1.0,,"I started this simple wiki for beginners and experts alike to get oriented in contributing to the Open Insulin project. For beginners it should be a starting point to learn more about the technology. It should help everyone better navigate the information we have archived on the Google Drive. This wiki contains: How do I get involved? Research Status Technology Basics Where do I find information? FAQ Anyone who wants to help build this can join in. SImple things you can do: Find good quality online educational material that offers an introduction to synthetic biology, molecular biology, protein engineering, genetics and other relevant fields. Add it to the 'Technology Basics' section with a short description containing what's it about and why people should use it. Help in organising information. Are you a pro in organising scientific articles and data? Great, we can use help with that! Get in touch with @WinniePoncelet . Add Frequently Asked Questions. Have you been asked about the project? Put the question and your answer in the FAQ! 1. How do I get involved? You are a beginner or a (bio)scientist: everyone is welcome to join! We can use your brains, energy and creativity regardless of your prior knowledge. As a beginner or non-bioscientist, you may be interested in learning more about the technology. It is super interesting stuff and it will also help you to contribute to the project at a technological level. Take a look at the technology basics below. As a bioscientist trained in the field, you can jump right in. Take a look below at the research status and introduce yourself on the forum or at one of the live meetings (see introduction post for the latest info). You can also help us by donating materials or money, and we'd be forever grateful! Get in touch to discuss how it could work. 2. Research status Current step: awaiting the arrival of the plasmid samples from the team in Oakland. Next step: use the plasmids to transform E. coli, in order to replicate the work of Oakland and set a reference point for further optimization. Updates from the Oakland team can be found on their website. 3. Technology basics MOOC on production of medicines, with insulin as a case. Not currently online but @arnepauwels has notes. This MOOC on synthetic biology will require some additional study (eg. looking up terms on Wikipedia) but guides you through the basics.  MIT offers a very extensive range of biology courses (some of which are written in comic sans). One of them is this solid introduction to biology on edX. Choose recent courses, knowledge is outdated fast as the field changes rapidly. Can anyone recommend other specific courses? 4. Where do I find information? On the Google Drive, and we're working on organizing it! (we're limiting access to team members, get in touch if you're interested). 5. FAQ You're working open source, where's the data? It is not currently openly available (see the discussion below). Are you going to inject hacked drugs into people? No. The goal (for now) is a production protocol for the insulin molecule.",/post/6412,2017-11-29T18:30:03.891Z,2017-11-29T18:30:03.891Z,6412,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6379,2140 12948,v1.0,,"[@Noemi’s note] I was happy to connect with Emma Jones, who is in her words, a third of the We Mental Health Nurses team at WeCommunities, along with Vanessa Garrity and Mark Brown. This story serves as a first encounter with Edgeryders. It also includes written reflections by Vanessa. WeMHNurses hosts regular mental health themed twitter chats, as part of a network chat calendar, with wildly diverse topics ranging from “The use of digital technology in everyday practice” to “Workplace democracy in mental health”. The core team runs the day to day operations, on a purely voluntary basis, with the WeMHNurses account, also linking into the wider WeCommunities, which covers many different branches of Nursing and Health Care professions and specialism. Topics for chats tend to mostly emerge from topical conversations within the community or where there is, for example a national policy directive or key piece of published journalism relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on mental health nursing practice. The chats are generally facilitated by one of the @WeMHNurses team, with guests are often invited to participate in the chat where the person brings specific expertise to the conversation. This is an open process, whereby anyone can contact the team to suggest a chat topic or to ask to host a chat.The team provide support to individuals who want to host a chat from the @WeMHNurses Twitter handle. Our ethos is very much that “your opinion matters” and we focus on the user point of view, getting people talking to each other and bringing a variety of perspectives to the conversation. We enjoy working with people who have previously been in services or are currently in services because we really value the lived experience perspective. As we are an independent voice, we will also cover topics that might be considered controversial, political or critical, as we believe that these conversations are important in setting the future direction for mental health nursing. On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care. The demographics for our chat suggest that we have a largely UK audience. However, because of the global reach of Twitter, we do have some international representation within our community and we love to encourage this because of the dimension that it brings to the conversation Before we run a chat, we produce some pre chat information on the wecommunities website. This is generally written in a blog style, so it is broadly accessible reading. We are also looking at how we can make our chats even more inclusive, such as by providing audio for people who struggle to read or who have visual impairment. The challenge for us is that we are all volunteers, so we have to find ways of delivering information quickly. How come this twitter format for talking about mental health? Is there something in the medium that helps learning, or alleviation for individuals? As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter to talk about mental health is quite personal, as is twitter use in general. There are many who find it hugely therapeutic and helpful, either getting involved in chats, communicating/ networking with others or for gaining support. It is a fab place for the sharing of information, including research and it's also a great forum for challenging stigma and moving the mental health agenda forward. WeMHNurses1_0.png900x480 120 KB Wordcloud from participants twitter bios in a recent chat - source. Is there a cutoff number for participants in a chat? Or a number that makes it effective? I’m wondering because you have such high regularity - every week. There is not a maximum number of people in each chat, it can be anybody using the hashtag. Often people pop into the chat with just one or two tweets, whilst at the same time, we are having a conversation with other people, who participate in the entirety of the chat. When you are facilitating a chat, which is busy, it can be a challenge responding to every single tweet, but we do try to do this and often we find that people branch off and have separate conversations with other participants, within the chat, which goes down a different path to the structured questions of the main chat. Providing they still use the hashtag, we still capture this conversation in the transcript at the end. This is an example of the latest archived chat on a Tuesday evening, counting 133 contributors, 1200 tweets and with a reach of 7,561,098! This was a joint chat with @wenurses and @weldnurses. With our over 6000 followers, plus the wider network, I suppose it is hard to say how many people we reach constantly. However, analytics for the chat are captured within the wecommunities website. Nick Chinn is the technical person behind this at Wecommunities. What do you think draws people in? What makes it a community for you? Is it people interacting with each other, learning, figuring out stuff? I suppose it is all of that. Everyone involved in the chats is interested in that particular area and that shared interest drives the discussions and questions in the chat, which will often support the development of links between people. Often people in the chats might say: ‘this is a good chat’, and ‘why don’t we do one on this other topic area?’ It then keeps expanding, and there are more things that we get involved in. So, in essence, the community is about sharing knowledge and learning, being open to thinking in different ways and developing a support network as well. What for the future and how can we support your work? We are very aware that people establish relationships and friendships offline with people who they have connected with on Twitter and that these relationships are often a great source of strength and support for people. Vanessa and Teresa Chinn, Founder of WeCommunities organised an unConference earlier in the year, through crowdfunding, which brought together 300 people from the community into a physical space to get together and to debate and discuss the future direction of social media in health care. We also provided a parallel online agenda throughout the day, so that the twitter community could still very much be part of it, even if they couldn’t physically attend. Vanessa and Mark from WeMHNurses and Mental Elf on Twitter are also in the process of setting up a Digital mental health conference service, which we are launching at #PDDigital16 later in November.",/post/551,2017-11-29T18:20:06.574Z,2017-11-29T18:20:06.574Z,551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,518,2137 12947,v1.0,,digital helps a lot but not enough as the famous book of sherry turkle descibes (we are together and alone) we need also,/post/9138,2017-11-29T18:19:28.587Z,2017-11-29T18:19:28.587Z,9138,3791,AnnotatorStore::TextAnnotation,,,,,,,,,712,2136 12946,v1.0,,Active Noise Cancellation Technology,/post/776,2017-11-29T18:19:05.370Z,2017-11-29T18:19:05.370Z,776,3791,AnnotatorStore::TextAnnotation,,,,,,,,,743,2135 12945,v1.0,,"When they do not volunteer with MCCH, volunteers exchange services and small favors through a bank of time : two massages against one hour of English lesson etc.",/post/4913,2017-11-29T18:18:42.731Z,2017-11-29T18:18:42.731Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2134 12944,v1.0,,"The aforementioned pushed the Politecnico University to challange itself asking “how can our student transitional community and residents develop positive interactions and give new life to the district?”. This is what the course – PSSD 2017 Networks of Care Collaborative encounters in/around the Bovisa campus – is about. Ezio Manzini and Liat Rogel, with Susanna De Besi wanted this to be the focus of their students’ work for this year. And they suggested the students to interact with the edgeryders community as their works progress. Today introduction ended with the following questions to students: Referring to your everyday interactions with Bovisa, when are you in need for care?  And when are you willing to provide care to somebody else? @Ezio_Manzini @Social_Open_Campus @Rossana_Torri @Liat @Social_Open_Campus",/post/832,2017-11-29T18:17:32.833Z,2017-11-29T18:17:32.833Z,832,3791,AnnotatorStore::TextAnnotation,,,,,,,,,799,2133 12943,v1.0,,"Welcome, @Erika_Lazzarino , and many thanks for the story. This idea of caring for a neighborhood, rather than a person, was what impressed me when we met in Milano last month.  This story, by the way, might be very interesting for @Khatuna , @Max_Perry , @Hasmik and @gazbee_sorour . Revitalizing a public space, protecting it from economic pressure by building sustainability... seems really great. Also, I'd like @Rossana_Torri 's point of view of the process as seen from the City Hall. I am also intrigued by the ambiguous nature of success in Lorenteggio. The swap markets, you say, were popular, and brought to ML Milanese from outside the neighborhood. This was seen as a threat by the locals. So, it seems, there is no way to win! If people don't come, the neighborhood is isolated, economically fragile and ultimately unable to resist gentrification. If they do come, the locals do not like it and push back. Also, this creates tensions among the locals: Luca told me that the shopkeepers were happy to see new people (new customers! yay!), but the local people who are not shopkeepers were upset.  So here is a big question: when caring for a neighborhood, do you think that at some point you'll have to take sides?",/post/8881,2017-11-29T18:16:38.531Z,2017-11-29T18:16:38.531Z,8881,3791,AnnotatorStore::TextAnnotation,,,,,,,,,771,2132 12942,v1.0,,i wonder if we could approach an organisation like Wellcome Trust as a humanities/health cross over project? What do you think @Bridget_McKenzie? Would this be fundable if we polished up the process and deliverable ideas?,/post/13498,2017-11-29T18:15:29.509Z,2017-11-29T18:15:29.509Z,13498,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2131 12941,v1.0,,"I am hoping one of you can help connect Rune and his team to practitioners and patients interested to volunteer to explore how assistive technology can move forward and into use? @Rossana_Torri, @Franca, @Francesco_Maria_ZAVA, @Alberto_Simonetti ?",/post/28732,2017-11-29T18:15:06.061Z,2017-11-29T18:15:06.061Z,28732,3791,AnnotatorStore::TextAnnotation,,,,,,,,,687,2130 12940,v1.0,,"I responsed to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation of a person with the actual person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are nostalgia rather than replication, which is probably why concept behind the BM episode was so arresting - it sought to replace the dead rather than remember him.  Edit Delete No Commentdigital afterlife Edit Delete No Commentmemorials Cancel Save Annotate",/post/22330,2017-11-29T18:13:34.278Z,2017-11-29T18:13:34.278Z,22330,3791,AnnotatorStore::TextAnnotation,,,,,,,,,515,2129 12939,v1.0,,for example how to motivate people @Natalia_Skoczylas it could go in that direction,/post/27799,2017-11-29T18:13:01.722Z,2017-11-29T18:13:01.722Z,27799,3791,AnnotatorStore::TextAnnotation,,,,,,,,,670,2128 12938,v1.0,,"Agree with most everything @Natalia_Skoczylas and @Noemi are saying. The only difference is that I do appreciate that Uber/Airbnb create some value for local communities, by giving some extra freedom to people on the ground. For example, say you notice that there is a long queue for taxis at your local airport on Friday nights. You can then in principle step in as an Uber driver and make yourself availabe for that time slot, if you need the money more than the time. It is a market clearing mechanism, but a clearing market is, in itself, a good thing. What's bad is a market underpinned by asymmetric power relationships. But we have that anyway: taxi drivers telling people ""you can't work here, this is our turf"" is an act of violence. It is no coincidence that most Uber drivers in Brussels are Arabs: plenty of unemployed/underemployed young Arabs in town, and Uber lowers the threshold for them to enter the business. Without it, driving for money is off limits for them. But you have all heard this before, many times.",/post/19066,2017-11-29T18:12:13.187Z,2017-11-29T18:12:13.187Z,19066,3791,AnnotatorStore::TextAnnotation,,,,,,,,,638,2127 12937,v1.0,,"Curve in response to the #HackOnWheels brief.  curve-hero-nelson-700.jpg700x1078 184 KB Also are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives here in Glasgow now too.",/post/23379,2017-11-29T18:11:46.307Z,2017-11-29T18:11:46.307Z,23379,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6339,2126 12936,v1.0,,"You might want to check out the approach of Living Streets (in Ghent, Belgium) - they rethought mobility (car free areas in the city) through a multiyear project . What I learned from them is that it takes sustained effort and some competent leadership that understands both civil service, how policies are made and incentives of the community. In that setup, the convener was not the city itself, but an independent organisation. @Living_Streets can correct me if I'm wrong.",/post/10471,2017-11-29T18:11:12.094Z,2017-11-29T18:11:12.094Z,10471,3791,AnnotatorStore::TextAnnotation,,,,,,,,,786,2126 12935,v1.0,,"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc. @WinniePoncelet, it could be very good if you could elaborate on why you don’t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get? You have a good point,@WinniePoncelet,  we could imagine raising funds to have a FES bike that people could try locally. I’ve learned two things recruiting wheelchair users as testdrivers There is a perception that it may be physically harmful People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike As for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.) As for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling).  @Francesco Maria ZAVA and others we could work on this",/post/23387,2017-11-29T18:10:44.744Z,2017-11-29T18:10:44.744Z,23387,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2126 12934,v1.0,,"Thanks @Rune, impressive how people find their way and maybe mobility doesn't have to be such an exclusionary issue after all.  I'd appreciate if you, your team and the WeMake team also share this with some of the people engaged so far in OpenCare, more minds put together will come up with super insights and helpful advice.. Let's do this. Ping @Rossana_Torri to help us reach to some key networks in the city. Thanks!",/post/10564,2017-11-29T18:10:15.494Z,2017-11-29T18:10:15.494Z,10564,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2126 12933,v1.0,,"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I’m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling? FES - short for functional electrical stimulation - can be used to activate paralyzed muscles by impulses imitating the nervous system in the most natural way possible. We have come a long way with our research and it is possible to use this technique to let people with paralyzed legs cycle again. For some reason there are very few people who know about this so I’d like to share this knowledge with you. We cycle to move, but also to maintain fit. It can be both fun and functional. But, if your legs don't obey you anymore, you will probably not consider it a possibility. Paralyzed legs can result from an accident breaking your back, a stroke or a sneaking disease like the multiple sclerosis.   People caring for and curing you need to be very pragmatic, and you with them. Mobility then becomes reduced to passive transport, a dietetic approach to avoiding getting fat and medication of pressure sores and other side effects from lack of physical exercise. That’s where the publicly unknown FES research comes into play. Years of clinical research have consolidated the benefits, but we need to spread the news and understand more about it. Some people may already have heard of handbikes. They allow you to cover greater distances than manual wheelchairs. They are special tricycles where you use the hands for pedaling. FES, on the other side, is applied via adhesive electrodes or incorporated in bicycle shorts. The stimulus activates the muscles of the buttocks and thighs in sync with the ride.  However only the leg muscles can challenge the cardiovascular system to get physically fit. Some people with for example spinal cord injury (paraplegia) may be able to use FES for activating these large muscles.  With FES cycling they can cover greater distances with greater speed and due to activation of large muscles they get (bene-)fit and feel physical well-being. The research community has tried to promote a more widespread use of FES cycling by arranging races (see here) and publications with the user's statements of the pros and cons (see here). bb.jpg1122x520 409 KB How can we build research into practice or at least make options much more accessible? The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community Even handbikes which are more popular can’t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients. My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”. Why should you, me or anyone care about the future of research? you want to see your tax money spent well, don’t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 201",/post/759,2017-11-29T18:09:43.848Z,2017-11-29T18:09:43.848Z,759,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2126 12932,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL.",/post/866,2017-11-29T18:08:55.546Z,2017-11-29T18:08:55.546Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,2125 12931,v1.0,,"1) Question 1 (Emad): How to enroll in any position within the academic world (or other) to be able to stay in a safe society like ours until they (him and his family) can return back home. Being Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family financially. 2) Question 2 (Amal): How to find any position within the academic world, for somebody, on the way to Belgium, on a ""family reunion visa"", to be able to spend, the years waiting for the war to end, sensibly, by investing in her knowledge and-or career. As she will be supported by the Belgian state financially, money is a little less of an issue for her. As they are not in a position of demanding things they would of course greatly accept any solution or proposition  I guess what I am looking for most is;   * What kind of opportunities exist being in their specific situation? Where do these two individuals have to start their search for having the best chance of finding any job or position within the academic world? I hope this makes things more clear. If not, shoot I have asked both to give me more specifics on their careers. Can't wait for your return. Maria",/post/16990,2017-11-29T18:07:58.090Z,2017-11-29T18:07:58.090Z,16990,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2125 12930,v1.0,,"Hi @mariekebelle I may need a bit more information before even trying to share any suggestion... First thing, I would like to ask you to confirm my understanding. There are two separate issues that would need to be faced: 1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable] 2) how to enroll in a doctorate as an already senior professional The latter is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol). Can you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation... In general, no one size fits all in academic careers... It's my humble opinion, but for the double issue you are bringing to our attention, I am somewhat skeptical that anyone will be able to say ""get in touch with X"" or ""look up on Y""... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.",/post/14667,2017-11-29T18:07:32.014Z,2017-11-29T18:07:32.014Z,14667,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2125 12929,v1.0,,"Hello peeps, This is my first post in this community…. So no completely sure yet how it works or what kind of responses I will get. Here my story and my question: Because I took into my household 1,5 years ago, a 17 year old Iraqi boy (refugee) I am becoming, a little bit against my own will"" src=""https://www.facebook.com/images/emoji.php/v8/zfb/1/16/263a.png"">, a go to, ask to, for other Iraqis, around the globe… His mother, on her way to Belgium, Brussels, on a “family reunion visa”, was professor in History at the Mosul university. His uncle, doing a PHD in medical micro biology – molecular micro biology - immunity in England, Leicester. They are both asking me for help in finding a job at universities or doing a (another) PHD in Europe. His uncle, so he does not have to return to Iraq after his PHD finnishes in Leicester. His mother, to feel use full while waiting to go back to her country one day. So her my question: Where, how and what can they do to have the best results in their search for a university job or sudy? As I never did a PHD or worked at universities it is still a blank canvas for me. Thanks for taking the time for providing me with tips and tricks. Maria",/post/831,2017-11-29T18:06:52.413Z,2017-11-29T18:06:52.413Z,831,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2125 12928,v1.0,,"We are a community of freelance developers and other digital professionals who work together online often purely over the internet. We started our project RefugeesWork to help newcomers to connect with locals who are looking for freelancers to outsource some work to them. It all started in August 2015 when lots of newcomers, mainly from Syria, arrived to Germany. It now turns out that it’s not very easy for them to find any kind of employment at all. German companies seem to not need the skills they bring to the table and even if they do have what they are looking for, they often reject people who do not speak German well. We decided to use our digital skills, first of all programming, to help them. We developed a marketplace app where on one side newcomers can register and describe their skills and on the other side local organizations can post their requests for freelancers. We believe work is the best pathway to connect refugees and locals and to date, we have over 300 registrations on the site and big community in Berlin and online. Those Syrians come from all walks of life and some have excellent background, or were running their own business. But we also realized that freelance requests are mostly for freelancers with web and mobile development background. These are the jobs freelancers can do online, they don't need to speak the local language and because all the organizations are trying to automate their processes, there is actually a big need for these professions. We checked our database and available statistics and figured out that most of newcomers are young, they just finished their high school or had to leave in the middle of their studies so they actually lack necessary skills to integrate into the highly specialized German job market. Freelancing would give refugees freedom from discrimination they would face otherwise and freelancers are usually paid way better. The tricky part is in making sure there is a regular flow of work. That is our experience. Refugeeswork.jpg960x638 84.1 KB Therefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don’t even know what to do with all the money. Currently we are also following the work of Sensorica in Canada and Enspiral in New Zealand. Our wish is to create a micro-holding co-ownership model. One part of the motivation is to shield these professionals from all kinds of discrimination that they might otherwise experience. It shields them, for example from the usual politicking among corporate employees who might tend to put such newcomers into a fairly low place. And another part of the motivation is exploring processes and legal ways for cooperation and decision making between many micro-holdings. We try to list all our initiatives inside of Github organization SquatUp. We try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat. All our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us. It’s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other. So if you are a programmer, ”apptivist”, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps. If you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time. And last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016. Links: RefugeesWork - www.refugeeswork.com Online JavaScript school - www.wizardamigos.com Coding Amigos meetup - www.meetup.com/codingamigos Coding Amigos collective - www.codingamigos.com SquatUp - https://github.com/SquatUp/projects/blob/master/README.md Nina Breznik - @ninabreznik Alexander Praetorius - @serapath",/post/769,2017-11-29T18:06:23.992Z,2017-11-29T18:06:23.992Z,769,3791,AnnotatorStore::TextAnnotation,,,,,,,,,736,2125 12927,v1.0,,"Day 1 Reflexions We did groups of three persons (Anna, Cindy V, Luisa) two from product design and one from gwk. We start to talk about theme of People on the move that was basically in relation with our personal experiences and people around us that exactly are in the them “on move”. In our group we talked about the people that we know they moved to Germany to try to start a new life with a lot of difficulties but in the same time with a lot of dreams and expectations and how this people, including me, had to adapt their life here and learn all over again. We talk too about what thinking people in Germany about this people on the move. For example; how people help other people to learn about how works the things here. Experiences from Anna and Luisa and how they contributed with friends with a Asylum Solicitudes to find more opportunists to study and work in Germany. We talk too about how is the feeling from German people about the foreigns that are coming, some people can understand the situation but other people are very heavy and close to foreign. We try to find many answers to understand why people in Germany having a negative reaction for foreigns and possible solutions “how people turn fear into trust”. I thin personally was a very interesting conversation because we coming from different context and was really god to hear about experiences from a foreign and from locals about the theme “People on the move”. Was important to know both sites to try to find many other possibles ways around this them.",/post/663,2017-11-29T18:05:51.990Z,2017-11-29T18:05:51.990Z,663,3791,AnnotatorStore::TextAnnotation,,,,,,,,,630,2125 12926,v1.0,,"Thank you @Natalia_Skoczylas for sharing this inspiring reality!  Thank you @Pavlos for doing such a beautiful work! I find this particularly interestnig:  ""Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition."" Documenting (also visually) the whole new process itself should be useful for detailed analysis of what works and what doesn't, so to improve in next iterations and/or copy in other contexts.",/post/9577,2017-11-29T18:05:23.613Z,2017-11-29T18:05:23.613Z,9577,3791,AnnotatorStore::TextAnnotation,,,,,,,,,671,2125 12925,v1.0,,"From September i´ll be working at the ROC21 Project (http://roc21.openstate.cc). As I already gained a little bit experience at the SAVA project, they asked me to be part of the Team. I´m looking forward to that, because now we can think in bigger scales. We will try to build up a community inside the camp, where everyone is an active part. Thinks like an Urban Garden on top of the building or an actual woodworkshop are under discussion. But there are a lot of issues to face, for example how to motivate people @Natalia_Skoczylas it could go in that direction. Would be great to find some kind of reward for peoples work, even if it´s not money. I´ll keep you guys updated!",/post/27799,2017-11-29T18:04:58.912Z,2017-11-29T18:04:58.912Z,27799,3791,AnnotatorStore::TextAnnotation,,,,,,,,,670,2125 12924,v1.0,,"It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees, both have found that cooking is fundamental to care (one, two)",/post/16858,2017-11-29T18:04:13.347Z,2017-11-29T18:04:13.347Z,16858,3791,AnnotatorStore::TextAnnotation,,,,,,,,,712,2125 12922,v1.0,,"How Europe is punishing migrants As hundreds of thousands of refugees have poured into Europe, some countries and regions have tried to pass legislation that specifically targets refugees and migrants. Here's a look at some of those policies that have been introduced in the last...",/post/5545,2017-11-29T18:03:12.133Z,2017-11-29T18:03:12.133Z,5545,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5512,2125 12921,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-29T18:02:43.280Z,2017-11-29T18:02:43.280Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2124 12920,v1.0,,"@Alberto @MassimoMercuri [Je n'ai pas résisté à faire ce mauvais jeu de mots ...] My guess is you don't see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post/comment on edgeryders.eu -- this is no surpirse, it's your job as a community manager! What if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post? Maybe ""sentiment"" is not the good way of thinking about how to use this technology. And maybe, it's true, sentiment coloring is not that useful. Let's give it a second chance. What if, on top of the topics that people discuss, I can tag some posts/comments as being ""opinions"", ""knowledge sharing"", ""second"", ""contradict"", etc.?",/post/25117,2017-11-29T18:02:17.695Z,2017-11-29T18:02:17.695Z,25117,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5407,2123 12919,v1.0,,"Quite a few curious people who participate in the OpenCare conversation about care end up engaging with the research team in a different conversation: the one about OpenCare as a research project. This is a lovely side effect of OpenCare's radical transparency. We practice a sort of open notebook science. We don't publish only results, but also questions, doubts, within-team disagreements, half-baked ideas. This is made more effective by a specificity of OpenCare: the community and the team are in separate ""rooms"" of the same online platform, edgeryders.eu. People who hang around it can't help noticing the stream of research project updates. Some of them engage.  This was expected. But I was not expecting the magnitude of the effect. 81 people have contributed at least one comment to the research team space. The team's own numerosity fluctuates, but it's about 20. The others are just people from the community who drop in to ask questions or make suggestions. And they outnumber us three to one. In the network diagrams, nodes are color- and size coded by in-degree. You can think of in-degree as a measure of the interest that the person's contribution elicits in the conversation. By this metric, it is clear that self-selected community members who just jump in are making a major contribution to the OpenCare research effort. The highest in-degree individuals who are not affiliated with any of the partners are @Federico_Monaco (ranks 7th by in-degree), @Rune (ranks 13th) and @Francesco_Maria_ZAVA (ranks 16th).  The conversation about OpenCare as a project (to the right of the picture) is of the same order of magnitude as that about open care as a potential pathway to societal well-being (to the left). It needs to be said, however, that the former has a lot of menial content: agreeing about a time and place to meet, requesting administrative information etc.   What are the consequences of all this activity? More diversity in research. More space for participation. With a bit of luck, more and higher quality scientific output. My favourite story is this: a community member, the already mentioned Federico Monaco, has proposed we do a paper together. He had found a call for papers in a journal he follows, and thought it a good fit. His proposal stirred the rest of the team into action. His thread received over 50 comments. A draft abstract was then uploaded onto a public wiki for community scrutiny and feedback. Many people sent contributions large and small. The large ones (example: that of Ezio – here) did most of the heavy lifting. But the process had a role also for smaller ones. People like myself, who did not feel confident to step in as co-authors, were able to offer some small help without having to take responsbility for the whole thing. Federico led with a firm but light touch, asking everyone who volunteered any thought what role they wanted to play in the paper. For example, @Yannick – also not a member of the OpenCare team – was offered co-authorship (but declined). All of this happened out in the open. As you read the whole thread, you can see ideas form through the discussion of the co-authors. Collective intelligence about collective intelligence!  Interdisciplinarity happened quite naturally as a result of the open process. The final submission listed five authors: Federico himself (a medical anthropologist); @Ezio_Manzini (a designer for social innovation); @Noemi (a social scientist); @Amelia (an ethnographer); myself (a network scientist). How cool is that? Another advantage of doing things this way is increased accountability to the people who take part in the main conversation, the one about care. Through the research team forum, they can ask question and make proposals. This should mitigate the perceived risk of researchers taking an exploitative attitude towards people's contributions. The operative word here is ""perceived"". We have the best intentions, but we recognize this is not enough. We are determined to demonstrate them to the community, and transparency goes a long way towards doing it.  I think that, together, we are making OpenCare... open. I had never had the luxury of running a research project with such transparency. I like it a lot, and hope to keep doing so in the future. What do others think?",/post/6175,2017-11-29T18:01:48.773Z,2017-11-29T18:01:48.773Z,6175,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6142,2123 12918,v1.0,,"he Milan consortium meeting taught us that bringing the offline debate online is hard. So far, we have followed two different approaches:  ScImpulse, WeMake and City of Milano focus on an engaging offline experience for participants. Conveners take notes, photos etc. They then editorialize them and upload them onto the platform. Edgeryders focus on offering people with good stories help for them to put them on the platform. Workshops are organized not by Edgeryders itself (though we do take part), but by active community members. The same also provide most of the help.  Both methods are hard. Both have drawbacks. The first method is mostly failing. It is difficult to make sense of notes taken during the meeting. I had this experience during ""Taking care"", where I volunteered to take notes with Cristina. Afterwards, I could interpret my notes, but not hers (though we were using the same  Google Doc! ). I imagine the opposite was true for her. Many notes never make it online. Those that do take the form of a report: ""A said this, B said that"". The community tends not to engage with this type of format.  The second method has given better results.  Still, it discourages people who are not good communicators in writing, face language barriers etc.  How to move forward? The Milan meeting gave us two promising leads. The first one was offered by @costantino and @alessandrocontini . They pointed out that the mechanics of makers collaboration is not so social. You go to the forum, ask a question, get a pointer, solve the problem and move on. It may be difficult to track it through an online forum. The second one results from something interesting that happened during ""Taking care"". This: people in the Bordeaux group at some point felt their contribution was unnecessary and possibly unwelcome. They withdrew from the workshop and moved to a different room. They kept working on opencare, but in the form of writing code to look at the conversation.  This resonates with an Edgeryders conversation thread that predates opencare. It says this: the ""meeting"" or ""assembly"" format claims to be inclusive, but in fact it is not. Instead, it rewards extrovert, confident, even narcissistic personalities. Introverts don't like to speak in public, certainly not without thinking things through. So they never speak. This issue has come to the fore in the hacker community, where many skilled developers identify as intros. Intros like online, where they can take time to think things through, and where they do not have to interrupt others to claim space. See for example this great comment by @trythis and the thread that comes with it. As a result, offline spaces are exclusionary. They do not know it... because they exclude the people who never speak up.  The post-it workshop format has a second potential problem. It has no space for contributions in forms other than the speech (as Cicero describes in De Oratore). The role of facilitators is to ""standardize"" contributions. Some people (like @Noemi in ""Taking care"") feel that this negates serendipity and predetermines results. If this is true, a lot of design-based methods of engagement have a serious flaw. What's worse, an unacknowledged one. Given their popularity, this is serious. So, I propose we ""go deep"", doing research and producing one or more papers on: An ethnography of makers collaboration. How important is the space? How important is StackOverflow or similar? What constitues ""good"" collaboration (Alessandro: ""the less interactive and more efficient, the better"")?  A model of the interface between online and offline collaboration. We promised to build this anyway in the proposal. A critique of the post-it workshop as a technique for collective intelligence.  All of this should, in my opinion, have a design perspective. I propose that @Ezio_Manzini coordinates the activities and writes one or two papers under items 2 and 3. ER would be happy to support this. And I would love to see WeMake and ScImpulse appoint an ethnographer to look into item 1.  Thoughts? Edit Delete No Commentbringing offline content online Cancel Save Annotate",/post/6069,2017-11-29T18:01:16.259Z,2017-11-29T18:01:16.259Z,6069,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6036,2123 12917,v1.0,,"- image based comments (you take a picture of a sketch + a few words and upload that instead of text), this also allows participation of e.g. illiterate people and complements the predominantly text form data. try to allow for a very simple yes/no answer function. another common use case will be 2-3 lines of context explanation and a link (lots of data/info possible with little input) I would love to see hashtags integrated (https://www.drupal.org/project/hashtags) into the #platform at some point as that would allow to restructures conversations. As far as I understand we can use them already - they just don't work yet.",/post/25646,2017-11-29T18:00:41.028Z,2017-11-29T18:00:41.028Z,25646,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5880,2123 12910,v1.0,,Talk to me excercise:the point of the excercise is that there are some implicit information about care. The group slit up in 3 people groupsone people ask question one people answer questionone people is documentingeach session is 20',/post/5405,2017-11-29T17:55:35.112Z,2017-11-29T17:55:35.112Z,5405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5372,2123 12909,v1.0,,"[@Noemi’s note] I was happy to connect with Emma Jones, who is in her words, a third of the We Mental Health Nurses team at WeCommunities, along with Vanessa Garrity and Mark Brown. This story serves as a first encounter with Edgeryders. It also includes written reflections by Vanessa. WeMHNurses hosts regular mental health themed twitter chats, as part of a network chat calendar, with wildly diverse topics ranging from “The use of digital technology in everyday practice” to “Workplace democracy in mental health”. The core team runs the day to day operations, on a purely voluntary basis, with the WeMHNurses account, also linking into the wider WeCommunities, which covers many different branches of Nursing and Health Care professions and specialism. Topics for chats tend to mostly emerge from topical conversations within the community or where there is, for example a national policy directive or key piece of published journalism relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on mental health nursing practice. The chats are generally facilitated by one of the @WeMHNurses team, with guests are often invited to participate in the chat where the person brings specific expertise to the conversation. This is an open process, whereby anyone can contact the team to suggest a chat topic or to ask to host a chat.The team provide support to individuals who want to host a chat from the @WeMHNurses Twitter handle. Our ethos is very much that “your opinion matters” and we focus on the user point of view, getting people talking to each other and bringing a variety of perspectives to the conversation. We enjoy working with people who have previously been in services or are currently in services because we really value the lived experience perspective. As we are an independent voice, we will also cover topics that might be considered controversial, political or critical, as we believe that these conversations are important in setting the future direction for mental health nursing. On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care. The demographics for our chat suggest that we have a largely UK audience. However, because of the global reach of Twitter, we do have some international representation within our community and we love to encourage this because of the dimension that it brings to the conversation Before we run a chat, we produce some pre chat information on the wecommunities website. This is generally written in a blog style, so it is broadly accessible reading. We are also looking at how we can make our chats even more inclusive, such as by providing audio for people who struggle to read or who have visual impairment. The challenge for us is that we are all volunteers, so we have to find ways of delivering information quickly. How come this twitter format for talking about mental health? Is there something in the medium that helps learning, or alleviation for individuals? As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter to talk about mental health is quite personal, as is twitter use in general. There are many who find it hugely therapeutic and helpful, either getting involved in chats, communicating/ networking with others or for gaining support. It is a fab place for the sharing of information, including research and it's also a great forum for challenging stigma and moving the mental health agenda forward. WeMHNurses1_0.png900x480 120 KB Wordcloud from participants twitter bios in a recent chat - source. Is there a cutoff number for participants in a chat? Or a number that makes it effective? I’m wondering because you have such high regularity - every week. There is not a maximum number of people in each chat, it can be anybody using the hashtag. Often people pop into the chat with just one or two tweets, whilst at the same time, we are having a conversation with other people, who participate in the entirety of the chat. When you are facilitating a chat, which is busy, it can be a challenge responding to every single tweet, but we do try to do this and often we find that people branch off and have separate conversations with other participants, within the chat, which goes down a different path to the structured questions of the main chat. Providing they still use the hashtag, we still capture this conversation in the transcript at the end. This is an example of the latest archived chat on a Tuesday evening, counting 133 contributors, 1200 tweets and with a reach of 7,561,098! This was a joint chat with @wenurses and @weldnurses. With our over 6000 followers, plus the wider network, I suppose it is hard to say how many people we reach constantly. However, analytics for the chat are captured within the wecommunities website. Nick Chinn is the technical person behind this at Wecommunities. What do you think draws people in? What makes it a community for you? Is it people interacting with each other, learning, figuring out stuff? I suppose it is all of that. Everyone involved in the chats is interested in that particular area and that shared interest drives the discussions and questions in the chat, which will often support the development of links between people. Often people in the chats might say: ‘this is a good chat’, and ‘why don’t we do one on this other topic area?’ It then keeps expanding, and there are more things that we get involved in. So, in essence, the community is about sharing knowledge and learning, being open to thinking in different ways and developing a support network as well. What for the future and how can we support your work? We are very aware that people establish relationships and friendships offline with people who they have connected with on Twitter and that these relationships are often a great source of strength and support for people. Vanessa and Teresa Chinn, Founder of WeCommunities organised an unConference earlier in the year, through crowdfunding, which brought together 300 people from the community into a physical space to get together and to debate and discuss the future direction of social media in health care. We also provided a parallel online agenda throughout the day, so that the twitter community could still very much be part of it, even if they couldn’t physically attend. Vanessa and Mark from WeMHNurses and Mental Elf on Twitter are also in the process of setting up a Digital mental health conference service, which we are launching at #PDDigital16 later in November.",/post/551,2017-11-29T17:55:01.674Z,2017-11-29T17:55:01.674Z,551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,518,2122 12908,v1.0,,"Introduction and course overview Ice breaking Individual expectations What is stress? Definitions Understanding the stress response (fight/flight versus prolonged stress) Physical, emotional, mental and behavioural symptoms of stress Relation between our thinking and stress Effective and ineffective ways of dealing with stress Relaxation exercises that help to manage stress effectively – part 1 The impact of emotions on teaching and learning ability Tools for dealing with disturbing emotions Effects of stress in educational setting Assessing your personal stress triggers Changing not resourceful strategies Self-talk awareness Relaxation exercises - part 2 How can I be more mindful and resourceful in the classroom? – action plan Summary, course evaluation and closure ACTIVITIES TO BE CARRIED OUT BY THE PARTICIPANT Before Participants will receive a list of study material prior to their arrival for the seminar along with the links for the websites which are relevant to the content of the course. During The course will provide theory necessary to understand the nature of stress as well as practical tools for managing stress and difficult emotions. Attention will be given on how to implement the findings and skills in real life situations after the seminar. Methods such as debate, role play, body movement, individual mind management technologies, pair and group exercises and mini -coaching will be used throughout the course. The methodology of the course includes learner – centered approach and utilizes self-learning methods. The aim of the course is not to produce ready-made solutions (passive learning), but to inspire the participants to search creatively for knowledge and effective solutions which are connected with their needs and challenges (active learning). In this way the participants take responsibility for their own learning process and act as active partners of the course. After The participants will be encouraged to form a network in order to continue an exchange of ideas and support one another. Up to 6 months after completion of the workshop, the participants will have an opportunity to ask for advice (via email or Skype) if they face obstacles in using the new skills or if they have any questions or concerns.",/post/6293,2017-11-29T13:08:27.545Z,2017-11-29T13:08:27.545Z,6293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6260,2122 12907,v1.0,,"We missed you @Woodbinehealth , welcome back. I'm very sorry for your loss, can't even begin to imagine. Just this morning I was reading this @politicalbeauty/aggressive-humanism-bbff64cf4296"">""manifesto"" on aggressive humanism by the artistic-militant group in Berlin called Center for Political Beauty. Even their name, aside from tactics, is just so inspiring. It reminded me of you guys somehow, the grit..  Autonomous mental health infrastructure: that is what I would prioritize as well for your participation at OpenVillage Festival. How would you see an interaction with the opencare community happening in brussels? in an effective way that supports your own mission. From the top of my head, priming the conversation with key questions around which we could gather initial experiences ahead of the event? or..? For skill sharing and practical activities, @steelweaver was proposing to demonstrate an acupuncture micro clinic at the event - could we add to that something you guys want to share i.e. teaching others, body fitness classes etc?",/post/6557,2017-11-29T12:58:03.408Z,2017-11-29T12:58:03.408Z,6557,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6343,2122 12906,v1.0,,"Mary Ellen Copeland says about hope that – People who experience mental health difficulties can get well, stay well and go on to meet their life dreams and goals. I had a very happy childhood. I went to a rural all boys National School and was in a small class of 8 boys. My memories of that time are mostly of playing lots of sports and having the craic (Irish word for fun) with my fellow students. There was no bullying whatsoever, indeed bullying was something I didn’t know existed until I went to secondary school. This period in my life was the classic definition of Childhood Innocence. From my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci. When I was awarded a place in Engineering in Trinity I moved to Dublin. I was unhappy with my Engineering course and after a few weeks stopped attending and instead just led a party life, drinking for the first time. I started to feel very isolated and depressed but I didn’t tell my family or friends the true extent of my feelings. I recall writing very black poetry at this time and feeling a strong sense of failure.  At that end of term I formally withdrew from the Engineering course and returned to home in Galway. While I was in Dublin I met Deirdre who was studying the same course as me. From the first meeting we hit it off and developed a very strong platonic relationship. Even though we both would end up being diagnosed with the same bipolar label Deirdre and I never discussed mental health issues. We would go to pubs and gigs together and discuss music, poetry, philosophy and other topics. When I moved back to Galway we corresponded by snail mail, sending each other long handwritten letters and photocopies of poems and inspiring song lyrics. While we didn’t discuss depression or medication Deirdre and I both were able to express to each other how black our lives could feel. I guess you could say we held Hope for each other. That Christmas my health deteriorated and I acquired glandular fever. After a short hospital stay I returned home to suffer months of crippling fatigue. I have battled with severe fatigue ever since.  I was ill for most of that year and was idle until I won a place in Information Technology in the University in Galway. Even though I was living at home I was very happy to attend this course. I found this University more relaxed and got on very well with my classmates. For some reason I suffered a breakdown during my final term of my degree. I didn’t tell friends or family but had meetings with some of the lecturers to see could I postpone my final exams. I found my mind was racing and I felt I needed very little sleep. I also used alcohol to help me relax and unwind from the racing thoughts. Since my father was Bipolar my parents recognised these symptoms and persuaded me to see a G.P. to deal with them. After a short meeting with my family G.P. he recognised the classic symptoms of mania and set up an appointment to see a psychiatrist. That psychiatrist whom I saw for 13 years admitted me to hospital. I suffer from Bipolar 1, meaning I suffer very high highs or mania, and very suicidal lows. When I get my highs medication seems to have very little effect on me. Instead it is a case of spending months in the safe confines of a hospital until the mania subsides. When I have my lows I get very suicidal and on two separate admissions for depression I have had to resort to Electroconvulsive Therapy (ECT) to treat my severe depression. There is quite a lot of controversy over ECT. I believe that it is a useful treatment of last resort. When a patient is in hospital and has been suicidal and catatonic with depression for many weeks with various medications being tried to no avail then I think ECT should be considered. In the past 14 years since my first hospital admission I have had perhaps 4 or 5 admissions for mania and 2 or 3 for depression. Thankfully I have managed to avoid admission to hospital for the past 6 years except for six nights in summer last year. Many of us have lost loved ones to suicide. The loss is devastating. I lost my father and my friend Deirdre to suicide. My father had been diagnosed with Bipolar and suffered from the condition from middle-age. Looking back I can see the times he was manic or high, singing loudly on the half hour drive to school where he taught every day. I vividly remember during my teenage years his first admission to psychiatric hospital my Dad weeping with happiness when he was released home on leave for a few days at Christmas. Dad snapped one day in school and that was the end of his teaching career. From that point on he had two overdose attempts. He had gone undiagnosed for the physical illness Haemochromatosis for many years and this aggravated his severe arthritis. My father was in severe pain. Unfortunately his Consultant gave him the news that his arthritis was so severe that he wouldn’t be able to have necessary hip or knee replacements. From that point on my father lost all hope and was just biding his time, waiting for an opportunity to carry out his plans. The last time my father left psychiatric hospital for leave before his suicide he had a conversation with his physiatrist with our family present. The psychiatrist was trying to ascertain the risk of self-harm for my father when on home leave. My father said he wouldn’t try an overdose again, not saying he wouldn’t try another method. The psychiatrist said “Maybe it will be third time lucky Liam!” That statement for me sums up how detached some medical professionals can be, maybe it is how they protect themselves. After my father’s suicide things are a blur. It was as if all the happy memories were pulverized. Childhood milestones, holidays, special occasions all faded away. My only remaining image of my father is him with a pained ashen face, his eyes saying I can’t go on. You try to recall happy memories but all you can focus on is the finality of what happened. When you are feeling bad it is not too difficult to let someone else know this, however when you have lost all hope and a torrent of negative thoughts is leading you to actively plan your demise then the real insidious nature of suicide rears its head and the last thing you will consider doing is letting someone know just how lost you feel. My friend Deirdre was very successful academically but struggled feeling the engineering course she was doing was cold and soulless. In correspondence back and over we discussed how banal many of the subjects were and did she really want to end up as an engineer instead of something with more soul like a musician or writer. Deirdre took a year out in 3rd year and worked with IBM. She did well with IBM and returned to Trinity to finish her engineering course and did very well graduating with a first class honours degree. After graduating Deirdre and I didn’t stay in contact as much. A bit like my father I remember seeing her visit me when I was in the intensive unit in a psychiatric hospital in Dublin. I could tell she found it very hard to see me so unwell and I felt she must have wondered was there a risk of her becoming so unwell. Even though Deirdre had seen me in hospital she still never would discuss with me her own mental health or her hopes or fears. After many months of being out of contact with Deirdre I tried to get in touch with her. There was no reply to her phone or email address. Thinking she might have changed jobs I did an internet search for her name. To my horror I came across a Memorial website to Deirdre. Phoning her parents they confirmed the tragic news. Her father told me the story of Deirdre’s last days. Deirdre has been suffering low mood and nothing anybody could do seemed to help. Worried for her safely her parents asked her to come home to Wexford to visit them, otherwise they would have to insist on visiting her in Dublin. That weekend they did everything to try to lift her mood, visiting family and friends and going to shops and restaurants. However Deirdre went back to Dublin. That Monday her mother phoned her at lunch time. Deirdre said she was going to lunch with work colleagues. However the truth was Deirdre had taken a huge overdose of medication that morning, months’ worth of medication she has stopped taking. When her boyfriend returned home that evening Deirdre was dead. You can’t do an autopsy into someone’s state of mind. Deidre had a great job, a steady boyfriend and had just bought a new apartment. Since my teenage years I have had swings from wildly optimistic grandiose hopes to rock bottom loss of all vestiges of hope. Suicidal ideation can prosper in the absence of hope. Luckily during many of the extreme lows I just try and go into hibernation mode, having a strong belief that if I just get through the oncoming weeks and months then things will have to improve. On one occasion for some reason I lost this faith in the future. This wasn’t any kind of impulsive plan or drunken depression. Instead I gradually began to see the future without me as a part of it. I got rid of all my books, got rid of all my CDs and records. I closed bank accounts, I cancelled mailing lists. I booked an appointment with Free Legal Aid with the intention of creating a will. I didn’t want to cause trouble so my plans revolved around how I could plan my demise with the minimum of pain or distress for my family and friends. I didn’t want my family to have to discover me or call emergency services. So, as I thought, logically, I should get into a body-bag beside the morgue in the hospital. I would be discovered by somebody used to dealing with corpses and it would be a short move into the morgue. I find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW. I joined GROW in April 2013. My Cognitive Behavior Therapy nurse had recommended it and felt the structured approach to problem-solving would suit me. I have been a very regular attendee at meetings and have led the meetings a number of times. I also enjoyed attending the weekly coffee meetings and the regional conference. In GROW we believe in providing leadership by taking on even small responsibilities. I have a strong interest in Cinema so I took up the responsibility of organising a weekly cinema outing for GROW members. This was a great success and GROW members from all around the country were able to meet up to enjoy a regular night out. I was thrilled to be asked to present a leadership paper at the National Conference during my first year with GROW. My confidence in my abilities has increased and I gladly took on the role of Group Recorder when the position arose. Because of GROW I gained enough confidence to apply for a volunteering position with Age Action to teach IT to the over 55s. I was the facilitator of my weekly GROW group for over two years and we hold Hope for each other. Last year I took up the opportunity of attending a creative writing class freely given by Galway writer Rita Ann Higgins primarily for GROW members. Our members got the chance to have their poems and short stories published in a booklet and I enjoyed reciting two of my poems at the GROW National Conference in Galway. During the past few years I have also been involved with Advancing Recovery in Ireland (ARI). Service users like myself have been working with HSE staff, and we have been planning the introduction of Recovery Colleges, Peer Support worker positions and Consumer Panels. Soon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work. It would be 15 years later before I did this and found the benefits of it. Last year I completed 12 weeks of training with 4 hours per week work with the Irish Advocacy Network. I am now in the early stages of serving on one of these Consumer Panels as secretary, representing the views of service users in the Galway mental health area. I am a co-founder of Cosáin. A wellness centre based in the city. Cosáin supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cosáin is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering: Recovery education Recovery through creativity Peer support This month I completed 7 days of training to be a WRAP facilitator. WRAP is a symptom monitoring, crisis planning and self-help mental health recovery programme. It was first developed by Mary Ellen Copeland in the States and was further developed by a group of people who experience mental health difficulties. I would like to close by reflecting on an element of Recovery we define in GROW. The road to recovery is not always a smooth journey, even lately I have had very anxious thoughts which threaten to cause me to avoid or abandon enjoyable events I had planned to attend. However in GROW we say although “old irrational feelings may return from time to time” in Recovery “they do not change your thinking or behavior”. To paraphrase Mary Ellen Copeland I feel that I have gotten well, I can stay well and I have confidence that I can go on to meet my life dreams and goals. I have Hope. Thank you.",/post/562,2017-11-28T21:07:14.827Z,2017-11-28T21:07:14.827Z,562,3791,AnnotatorStore::TextAnnotation,,,,,,,,,529,2122 12905,v1.0,,"Support the Shit Show on Startnext! startnext.com/theshitshow We have been studying it for 3 months, we have been dealing with it most of our life, we are highly aware of the importance of engaging with it but we still find it incredibly hard to talk about. Pauline and I are both product design students and together with Nele and Luisa who study communications we are team UP. In the context of ""Hacking Utopia"", a human centered design project at the University of Arts Berlin, we are investigating mental health. This article explains our approach of boosting mental resilience and give you the chance to get involved in our project. In our previous contributions on Edgeryders we described how we started off with the question of making sadness, unproductivity and inefficiency less shameful. We discovered two TED talks that influenced us greatly: The power of vulnerability by Brene Brown and Depression, the secret we share by Andrew Solomon. As later confirmed by the psychologists we interviewed, these talks made us understand that sharing our feelings is a key step towards mental resilience. Establishing a sustainable, personal connection this is necessary for recovery and growth. When we hide our condition, we ignore it, it becomes worse. USER INTERVIEWS The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students. As part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems – be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support when everyone tries to hide their struggles. As a result, most people don’t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves. Yet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence, stemming from a general lack of awareness. OUR GOAL We want to challenge the current attitude towards psychological care. Our project tries to de-stigmatize psychological pain and make the sensitive, 'taboo' issue of mental health more present and approachable to the public. We believe that udnerstanding and empathy is vital to provide good care for people that are suffering from emotional distress. We want to make it clear that feeling shitty is nothing to be ashamed of, but actually a very common thing. Also, we want the impact of these feelings to be understandable, so that more people can offer informed, helpful responses. When this happens, the threshold of reaching out is lowered, which in return allows problems to be addressed before they develop into serious mental conditions. INSPIRATION There are a number of inspiring projects who deal with exactly this issue of awareness. One clever way artists are spreading awareness is over the internet. Tumblr users like Rubyetc, Beth Evans or Sarah’s Scribbles have gained quite a following with their funny, relatable comics about everyday struggles. Seeing that you are not alone in your suffering can be very comforting. Recently, illustrator Gemma Correll created a series of drawings as part of an online awareness campaign for Mental Health America to visualize what #mentalillnessfeelslike. Their campaign encourages people to open up about their conditions and harvest the power of sharing. A related approach can be found in the various devices that exist to simulate old age. Suits like ‘GERT’ are designed to make the wearer feel the impairments that come with aging: stiffness and limited mobility, decreasing strength, blurred sight, muffled hearing. The concept was originally developed to enable caretakers of elderly people to better understand the needs and fears of their patients. Now, gadgets with similar effects, designed by students at Weimar University, are being exhibited at the Hygiene Museum in Dresden, allowing the public to gain the same understanding.   In general, public exhibitions are a valuable source of inspiration when it comes to reaching people and conveying information. A prime example is the 'Happy Show', set up by design firm Sagmeister & Walsh. Verging somewhere between art and education, the show throughly explores the theme of happiness in a graphic, creative and interactive manner. Another show that encourages people to actively engage with the exhibit is Erwin Wurms 'Bei Mutti'. Visitors are isntructed to interact the artefacts on display, effectively becoming a piece of the art themselves. f9e1fc54827667adbc6d98f8ac208de7_1.jpg1920x1080 577 KB PROJECT PROPOSAL In order to achieve our goal we propose a combination of an interactive exhibition and an information booth. This pop-up stall can easily be set up at universities events like open days and conferences. We will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one's body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three. Those who are brave enough to test our simulators will receive a positive feedback. They will get to choose between 3 gifts: Stickers that encourage everyday task such as: ""got out of bad"", ""took a shower"" and ""washed my laundry"" in order to demonstrate how difficult these tasks can be to certain people. They could also choose comforting cynical tea bags that they can grant a friend in need on a rainy day or shit shaped chocolate pralines to compensate for the horrors they have just been through. The exhibition will also include an interactive board in which participants can share their feelings caused by the simulators or just generally and a second board presenting useful information regarding mental issues: how to identify, approachable treatments, support groups and other solutions. The first exhibition will take place during Berlin University of the Arts Semester end's exhibition and we hope it will continue to other universities around berlin and even in other cities in Europe. If you hope so as well you are welcome to join us in a number of ways: Support our Startnext campaign going online July 20th! Help us fund the first ever Shit Show and enjoy our moody merchandise (link tba) Spread the word! Our first intention is to raise awareness of mental health issues. Please share our ideas and solutions, you might even help someone. (It will also be nice if you would share our Startnext campaign once it's up Participate our research, tell us how you feel when you are down in our survey or just share with us your Ideas and comments. We would love to hear some feedback and improve our project Pauline Schlautmann: p.schlautmann@udk-berlin.de Omri Kaufmann: omri207@gmail.com The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/511,2017-11-28T21:06:26.580Z,2017-11-28T21:06:26.580Z,511,3791,AnnotatorStore::TextAnnotation,,,,,,,,,478,2122 12904,v1.0,,"Mary Ellen Copeland says about hope that – People who experience mental health difficulties can get well, stay well and go on to meet their life dreams and goals. I had a very happy childhood. I went to a rural all boys National School and was in a small class of 8 boys. My memories of that time are mostly of playing lots of sports and having the craic (Irish word for fun) with my fellow students. There was no bullying whatsoever, indeed bullying was something I didn’t know existed until I went to secondary school. This period in my life was the classic definition of Childhood Innocence. From my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci. When I was awarded a place in Engineering in Trinity I moved to Dublin. I was unhappy with my Engineering course and after a few weeks stopped attending and instead just led a party life, drinking for the first time. I started to feel very isolated and depressed but I didn’t tell my family or friends the true extent of my feelings. I recall writing very black poetry at this time and feeling a strong sense of failure.  At that end of term I formally withdrew from the Engineering course and returned to home in Galway. While I was in Dublin I met Deirdre who was studying the same course as me. From the first meeting we hit it off and developed a very strong platonic relationship. Even though we both would end up being diagnosed with the same bipolar label Deirdre and I never discussed mental health issues. We would go to pubs and gigs together and discuss music, poetry, philosophy and other topics. When I moved back to Galway we corresponded by snail mail, sending each other long handwritten letters and photocopies of poems and inspiring song lyrics. While we didn’t discuss depression or medication Deirdre and I both were able to express to each other how black our lives could feel. I guess you could say we held Hope for each other. That Christmas my health deteriorated and I acquired glandular fever. After a short hospital stay I returned home to suffer months of crippling fatigue. I have battled with severe fatigue ever since.  I was ill for most of that year and was idle until I won a place in Information Technology in the University in Galway. Even though I was living at home I was very happy to attend this course. I found this University more relaxed and got on very well with my classmates. For some reason I suffered a breakdown during my final term of my degree. I didn’t tell friends or family but had meetings with some of the lecturers to see could I postpone my final exams. I found my mind was racing and I felt I needed very little sleep. I also used alcohol to help me relax and unwind from the racing thoughts. Since my father was Bipolar my parents recognised these symptoms and persuaded me to see a G.P. to deal with them. After a short meeting with my family G.P. he recognised the classic symptoms of mania and set up an appointment to see a psychiatrist. That psychiatrist whom I saw for 13 years admitted me to hospital. I suffer from Bipolar 1, meaning I suffer very high highs or mania, and very suicidal lows. When I get my highs medication seems to have very little effect on me. Instead it is a case of spending months in the safe confines of a hospital until the mania subsides. When I have my lows I get very suicidal and on two separate admissions for depression I have had to resort to Electroconvulsive Therapy (ECT) to treat my severe depression. There is quite a lot of controversy over ECT. I believe that it is a useful treatment of last resort. When a patient is in hospital and has been suicidal and catatonic with depression for many weeks with various medications being tried to no avail then I think ECT should be considered. In the past 14 years since my first hospital admission I have had perhaps 4 or 5 admissions for mania and 2 or 3 for depression. Thankfully I have managed to avoid admission to hospital for the past 6 years except for six nights in summer last year. Many of us have lost loved ones to suicide. The loss is devastating. I lost my father and my friend Deirdre to suicide. My father had been diagnosed with Bipolar and suffered from the condition from middle-age. Looking back I can see the times he was manic or high, singing loudly on the half hour drive to school where he taught every day. I vividly remember during my teenage years his first admission to psychiatric hospital my Dad weeping with happiness when he was released home on leave for a few days at Christmas. Dad snapped one day in school and that was the end of his teaching career. From that point on he had two overdose attempts. He had gone undiagnosed for the physical illness Haemochromatosis for many years and this aggravated his severe arthritis. My father was in severe pain. Unfortunately his Consultant gave him the news that his arthritis was so severe that he wouldn’t be able to have necessary hip or knee replacements. From that point on my father lost all hope and was just biding his time, waiting for an opportunity to carry out his plans. The last time my father left psychiatric hospital for leave before his suicide he had a conversation with his physiatrist with our family present. The psychiatrist was trying to ascertain the risk of self-harm for my father when on home leave. My father said he wouldn’t try an overdose again, not saying he wouldn’t try another method. The psychiatrist said “Maybe it will be third time lucky Liam!” That statement for me sums up how detached some medical professionals can be, maybe it is how they protect themselves. After my father’s suicide things are a blur. It was as if all the happy memories were pulverized. Childhood milestones, holidays, special occasions all faded away. My only remaining image of my father is him with a pained ashen face, his eyes saying I can’t go on. You try to recall happy memories but all you can focus on is the finality of what happened. When you are feeling bad it is not too difficult to let someone else know this, however when you have lost all hope and a torrent of negative thoughts is leading you to actively plan your demise then the real insidious nature of suicide rears its head and the last thing you will consider doing is letting someone know just how lost you feel. My friend Deirdre was very successful academically but struggled feeling the engineering course she was doing was cold and soulless. In correspondence back and over we discussed how banal many of the subjects were and did she really want to end up as an engineer instead of something with more soul like a musician or writer. Deirdre took a year out in 3rd year and worked with IBM. She did well with IBM and returned to Trinity to finish her engineering course and did very well graduating with a first class honours degree. After graduating Deirdre and I didn’t stay in contact as much. A bit like my father I remember seeing her visit me when I was in the intensive unit in a psychiatric hospital in Dublin. I could tell she found it very hard to see me so unwell and I felt she must have wondered was there a risk of her becoming so unwell. Even though Deirdre had seen me in hospital she still never would discuss with me her own mental health or her hopes or fears. After many months of being out of contact with Deirdre I tried to get in touch with her. There was no reply to her phone or email address. Thinking she might have changed jobs I did an internet search for her name. To my horror I came across a Memorial website to Deirdre. Phoning her parents they confirmed the tragic news. Her father told me the story of Deirdre’s last days. Deirdre has been suffering low mood and nothing anybody could do seemed to help. Worried for her safely her parents asked her to come home to Wexford to visit them, otherwise they would have to insist on visiting her in Dublin. That weekend they did everything to try to lift her mood, visiting family and friends and going to shops and restaurants. However Deirdre went back to Dublin. That Monday her mother phoned her at lunch time. Deirdre said she was going to lunch with work colleagues. However the truth was Deirdre had taken a huge overdose of medication that morning, months’ worth of medication she has stopped taking. When her boyfriend returned home that evening Deirdre was dead. You can’t do an autopsy into someone’s state of mind. Deidre had a great job, a steady boyfriend and had just bought a new apartment. Since my teenage years I have had swings from wildly optimistic grandiose hopes to rock bottom loss of all vestiges of hope. Suicidal ideation can prosper in the absence of hope. Luckily during many of the extreme lows I just try and go into hibernation mode, having a strong belief that if I just get through the oncoming weeks and months then things will have to improve. On one occasion for some reason I lost this faith in the future. This wasn’t any kind of impulsive plan or drunken depression. Instead I gradually began to see the future without me as a part of it. I got rid of all my books, got rid of all my CDs and records. I closed bank accounts, I cancelled mailing lists. I booked an appointment with Free Legal Aid with the intention of creating a will. I didn’t want to cause trouble so my plans revolved around how I could plan my demise with the minimum of pain or distress for my family and friends. I didn’t want my family to have to discover me or call emergency services. So, as I thought, logically, I should get into a body-bag beside the morgue in the hospital. I would be discovered by somebody used to dealing with corpses and it would be a short move into the morgue. I find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW. I joined GROW in April 2013. My Cognitive Behavior Therapy nurse had recommended it and felt the structured approach to problem-solving would suit me. I have been a very regular attendee at meetings and have led the meetings a number of times. I also enjoyed attending the weekly coffee meetings and the regional conference. In GROW we believe in providing leadership by taking on even small responsibilities. I have a strong interest in Cinema so I took up the responsibility of organising a weekly cinema outing for GROW members. This was a great success and GROW members from all around the country were able to meet up to enjoy a regular night out. I was thrilled to be asked to present a leadership paper at the National Conference during my first year with GROW. My confidence in my abilities has increased and I gladly took on the role of Group Recorder when the position arose. Because of GROW I gained enough confidence to apply for a volunteering position with Age Action to teach IT to the over 55s. I was the facilitator of my weekly GROW group for over two years and we hold Hope for each other. Last year I took up the opportunity of attending a creative writing class freely given by Galway writer Rita Ann Higgins primarily for GROW members. Our members got the chance to have their poems and short stories published in a booklet and I enjoyed reciting two of my poems at the GROW National Conference in Galway. During the past few years I have also been involved with Advancing Recovery in Ireland (ARI). Service users like myself have been working with HSE staff, and we have been planning the introduction of Recovery Colleges, Peer Support worker positions and Consumer Panels. Soon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work. It would be 15 years later before I did this and found the benefits of it. Last year I completed 12 weeks of training with 4 hours per week work with the Irish Advocacy Network. I am now in the early stages of serving on one of these Consumer Panels as secretary, representing the views of service users in the Galway mental health area. I am a co-founder of Cosáin. A wellness centre based in the city. Cosáin supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cosáin is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering: Recovery education Recovery through creativity Peer support This month I completed 7 days of training to be a WRAP facilitator. WRAP is a symptom monitoring, crisis planning and self-help mental health recovery programme. It was first developed by Mary Ellen Copeland in the States and was further developed by a group of people who experience mental health difficulties. I would like to close by reflecting on an element of Recovery we define in GROW. The road to recovery is not always a smooth journey, even lately I have had very anxious thoughts which threaten to cause me to avoid or abandon enjoyable events I had planned to attend. However in GROW we say although “old irrational feelings may return from time to time” in Recovery “they do not change your thinking or behavior”. To paraphrase Mary Ellen Copeland I feel that I have gotten well, I can stay well and I have confidence that I can go on to meet my life dreams and goals. I have Hope. Thank you.",/post/562,2017-11-28T21:05:32.127Z,2017-11-28T21:05:32.127Z,562,3791,AnnotatorStore::TextAnnotation,,,,,,,,,529,2122 12903,v1.0,,"What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.  In general, I think of art and creativity as an expression of oneself, an expression of our inner world, our 'being' in the world, our being 'me'. Being authentic is by definition being different from others and thus coping with judgment,  the others , the outer world goes along with it. But I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.  This disconnection is trauma, the residu of pain. In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists. When the self-healing fails, they might consider exploring the pain and trauma trough different glasses - those of a therapist. Thinking out of the box could help them cope better This is the more or less classic, freudian, psychological explanation for 'artistic pain'. There is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'. (If interesetd in this latter explanation: See Stephen K. Levine: Trauma, Tragedy, Therapy: the Arts of human suffering (quite a philosophical, demanding book - but very interesting out of the box view for therapists ) Hope this helsp as a theoretical frame @Pauline",/post/31148,2017-11-28T21:04:40.318Z,2017-11-28T21:04:40.318Z,31148,3791,AnnotatorStore::TextAnnotation,,,,,,,,,647,2122 12902,v1.0,,"couple of examples of previous models spring to mind: People used Somatic Experiencing techniques with survivors of the Boxing Day tsunami, and with social service workers after Hurricane Katrina, with some success. Here's a nice TV spot on it being used in a group setting post-Japan earthquake. - Somatherapy was developed during the military junta in Brasil as a combination of psychotherapy, capoeira and anarchist theory. It favours use of enjoyable, play-based physical activities and emphasises placing individual mental health within the larger political context. Predictably enough, given my day job, my bias is towards body-based practices, or at least forms of psychotherapy that incorporate some aspect of physical engagement - I don't know if @ybe already incorporates these ideas in her practice, and in any case other forms of psychotherapeutic intervention are also very effective. But the advantages of this kind of approach, as I see it, are: They engage with the somatic anchoring of trauma, bringing quick results. The physical nature of the practices can help overcome language difficulties, which might be useful in a scenario like Calais. They can be applied efficiently in a group setting - rather than waiting their turn to speak, everyone engages in the practices at once. Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen. Somatherapy in particular also emphasises the importance of group work as part of building a community of solidarity and support in the face of potentially oppressive political situations; moving beyond reliance on external care to develop personal and political assertiveness. Of course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.",/post/13679,2017-11-28T21:04:08.223Z,2017-11-28T21:04:08.223Z,13679,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2122 12901,v1.0,,"I responsed to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation of a person with the actual person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are nostalgia rather than replication, which is probably why concept behind the BM episode was so arresting - it sought to replace the dead rather than remember him.",/post/22330,2017-11-28T21:03:25.478Z,2017-11-28T21:03:25.478Z,22330,3791,AnnotatorStore::TextAnnotation,,,,,,,,,515,2121 12900,v1.0,,"[@Noemi’s note] I was happy to connect with Emma Jones, who is in her words, a third of the We Mental Health Nurses team at WeCommunities, along with Vanessa Garrity and Mark Brown. This story serves as a first encounter with Edgeryders. It also includes written reflections by Vanessa. WeMHNurses hosts regular mental health themed twitter chats, as part of a network chat calendar, with wildly diverse topics ranging from “The use of digital technology in everyday practice” to “Workplace democracy in mental health”. The core team runs the day to day operations, on a purely voluntary basis, with the WeMHNurses account, also linking into the wider WeCommunities, which covers many different branches of Nursing and Health Care professions and specialism. Topics for chats tend to mostly emerge from topical conversations within the community or where there is, for example a national policy directive or key piece of published journalism relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on mental health nursing practice. The chats are generally facilitated by one of the @WeMHNurses team, with guests are often invited to participate in the chat where the person brings specific expertise to the conversation. This is an open process, whereby anyone can contact the team to suggest a chat topic or to ask to host a chat.The team provide support to individuals who want to host a chat from the @WeMHNurses Twitter handle. Our ethos is very much that “your opinion matters” and we focus on the user point of view, getting people talking to each other and bringing a variety of perspectives to the conversation. We enjoy working with people who have previously been in services or are currently in services because we really value the lived experience perspective. As we are an independent voice, we will also cover topics that might be considered controversial, political or critical, as we believe that these conversations are important in setting the future direction for mental health nursing. On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care. The demographics for our chat suggest that we have a largely UK audience. However, because of the global reach of Twitter, we do have some international representation within our community and we love to encourage this because of the dimension that it brings to the conversation Before we run a chat, we produce some pre chat information on the wecommunities website. This is generally written in a blog style, so it is broadly accessible reading. We are also looking at how we can make our chats even more inclusive, such as by providing audio for people who struggle to read or who have visual impairment. The challenge for us is that we are all volunteers, so we have to find ways of delivering information quickly. How come this twitter format for talking about mental health? Is there something in the medium that helps learning, or alleviation for individuals? As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter to talk about mental health is quite personal, as is twitter use in general. There are many who find it hugely therapeutic and helpful, either getting involved in chats, communicating/ networking with others or for gaining support. It is a fab place for the sharing of information, including research and it's also a great forum for challenging stigma and moving the mental health agenda forward. WeMHNurses1_0.png900x480 120 KB Wordcloud from participants twitter bios in a recent chat - source. Is there a cutoff number for participants in a chat? Or a number that makes it effective? I’m wondering because you have such high regularity - every week. There is not a maximum number of people in each chat, it can be anybody using the hashtag. Often people pop into the chat with just one or two tweets, whilst at the same time, we are having a conversation with other people, who participate in the entirety of the chat. When you are facilitating a chat, which is busy, it can be a challenge responding to every single tweet, but we do try to do this and often we find that people branch off and have separate conversations with other participants, within the chat, which goes down a different path to the structured questions of the main chat. Providing they still use the hashtag, we still capture this conversation in the transcript at the end. This is an example of the latest archived chat on a Tuesday evening, counting 133 contributors, 1200 tweets and with a reach of 7,561,098! This was a joint chat with @wenurses and @weldnurses. With our over 6000 followers, plus the wider network, I suppose it is hard to say how many people we reach constantly. However, analytics for the chat are captured within the wecommunities website. Nick Chinn is the technical person behind this at Wecommunities. What do you think draws people in? What makes it a community for you? Is it people interacting with each other, learning, figuring out stuff? I suppose it is all of that. Everyone involved in the chats is interested in that particular area and that shared interest drives the discussions and questions in the chat, which will often support the development of links between people. Often people in the chats might say: ‘this is a good chat’, and ‘why don’t we do one on this other topic area?’ It then keeps expanding, and there are more things that we get involved in. So, in essence, the community is about sharing knowledge and learning, being open to thinking in different ways and developing a support network as well. What for the future and how can we support your work? We are very aware that people establish relationships and friendships offline with people who they have connected with on Twitter and that these relationships are often a great source of strength and support for people. Vanessa and Teresa Chinn, Founder of WeCommunities organised an unConference earlier in the year, through crowdfunding, which brought together 300 people from the community into a physical space to get together and to debate and discuss the future direction of social media in health care. We also provided a parallel online agenda throughout the day, so that the twitter community could still very much be part of it, even if they couldn’t physically attend. Vanessa and Mark from WeMHNurses and Mental Elf on Twitter are also in the process of setting up a Digital mental health conference service, which we are launching at #PDDigital16 later in November.",/post/551,2017-11-28T21:02:23.287Z,2017-11-28T21:02:23.287Z,551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,518,2120 12898,v1.0,,"(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It is very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.",/post/10261,2017-11-28T21:00:58.903Z,2017-11-28T21:00:58.903Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2120 12897,v1.0,,"Wow, this is great news indeed. Welcome @Eireann_Leverett !  I was at that talk at 32C3. It was a real eye opener. It's all very good and well to make fun of the Internet of Things: my favourite is the Twitter account Internet of Shit (https://twitter.com/internetofshit), that churns out a sad/hilarious/scary gallery of smart diaphragms, Internet-connected pet feeders that starved your cat to near-death because the server went down (""It's literally just a timer! WHY does it have to be online? Oh, right, so that they can show me cat food ads""), and keyboards that predict your next keystroke and leak all your keylogs all over the Net.  But when you are running that stuff inside your body, that's where it gets a lot less funny.  I love this idea: preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. A sort of FAQs, of checklist, if I understand correctly. Does it make sense to try and prototype this at one of the Open&Change events in the fall?",/post/10583,2017-11-28T21:00:30.164Z,2017-11-28T21:00:30.164Z,10583,3791,AnnotatorStore::TextAnnotation,,,,,,,,,679,2119 12895,v1.0,,"@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal. I wonder: with so many diverse community efforts, haven't there been any events where active people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?",/post/14969,2017-11-28T20:59:15.547Z,2017-11-28T20:59:15.547Z,14969,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2117 12894,v1.0,,"The MCCH saves lives. Provides health care to unlucky people who have no access to public health or money to pay for private care. There are many people in this situation because in Greece access to the national health service is linked to employment. When a Greek loses work, it keeps health care for a year: if you have not found another job after a year, you lose the right to access to the National Health Service. If you get sick, you have to invent something, or die.",/post/4913,2017-11-28T20:58:42.265Z,2017-11-28T20:58:42.265Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2117 12890,v1.0,,"Respected, It is my pleasure to introduce myself. Unique experiment of nature, kind, sweet, cheerful, positive, charismatic, did I mention good looking? I have a couple of certificates……and so on… curious and creative, eager to learn, to travel, have fun…   I live in Serbia, the Balkans, reason enough to be interested in current events in the world and region. Turbulent past, dynamic present and an uncertain future, burdensome by intolerance and conflicts in the region, which I personally found not only unnecessary but also totally crazy, because we all have the same desires and dreams, to live freely, love unconditionally, have fun, learn, be independent, travel, have amazing adventures, the best parties …. without regard to national and religious affiliation, skin color, eye color… there are too many prejudice, inequality, unprotected and vulnerable people, there is gender inequality, intolerance, social injustice, poverty, hunger, disease, non-existent or inadequate health care, problems of refugees, racism…. I do not know why and I`m trying to understand. Injustice affects me terribly. We learn history in order to avoid the mistakes which were made and were pretty catastrophic, and to me it seems like we constantly repeat the same errors. I have learned not to judge in advance, that all deserve respect, a smile, a kind word, that the mind is like a parachute works only if it is open, that in the period of globalization, IT progress, revolutionary discoveries, scientific achievements, robotics, nanotechnology … we must not think about limits, all barriers and borders exists  only in our heads., I perfectly understand what it means conflict, and detest it, I hate arguing, hate conflicts. I watch the news, read a newspaper and follow social networks and  I can say there is too much violence, too much suffering, too much of everything negative, the constant threat of war, terrorism…just too much. I want a better world, a better society, a better life for all, it is important to take care of others, to be open-minded. I want more, I need more, no one should be afraid for ones lives, children must not be hungry, barefoot, on the streets, women must not be abused, people should not be expelled from their homes, the world gone crazy and we desperately need all people of good will who want and have the knowledge and strength to fight, not only to philosophize and criticize, but also commit to work, to improve our society, day after day, devotedly… They tell us that as individuals we cant do anything, at least anything important, that we are still small, young and inexperienced, but adults forget, and sometimes reduces our value, ignored it, forget it under the weight of today circumstances. We are thirsty for knowledge and education, we might be weak, but snowflakes are gentle and weak until they connect, then they become strong. We need to connect, as snowflakes, the youth of the region and the world, only united we can be strong, important, perhaps adults hear us and listen. When children quarrel, they quickly reconcile because its not important to be right, but to be happy. We should accept that we do not have to agree on everything, sometimes can agree to disagree, but we have to respects others' way of life, other people's opinion, that we can discuss about everything, not argue, talking in order to generate ideas, information, positive energy.. To find the solution for all problems and dilemmas, make projects, succeed. Somehow it feels despair and uncertainty it should not be so, we are young, we have desire and we can change everything that we do not like. It is essential to connect, and I read that nothing brings people together as well as living a happy accident, if it is true, We, all  in this region, the Balkans, we have more opportunities to be close, strong and organized than anyone else in the world, everything we've been through good and bad, sometimes on opposite sides, unfortunately, but we survived, war and killing, and we must never repeat it, we also  sang and celebrated and rejoice together, it was perhaps more sadness and unhappiness, but if there is justice in life, in future we should have only lucky days, happiness. Good neighborly relations like friendship and trust builds, slowly and gradually, all that is good and valuable in life, takes time. First we need to forgive. Forgiveness is possible only with understanding, that is why this camp is super idea, to understand together what had happened, impartial, draw lessons from history, in order to continue, this time better, smarter. The goal is to make the world a better and more humane place, sustainable, use space in the best possible way, with full respect of nature and population needs, because that's the point of studying, find the best way to reconcile nature and society to meet human needs, give vision of the future, the objectives of the future development. Everything is connected and the problems must be considered as a system, If one part of the system does not work properly, it reflects on other parts of the system.",/post/854,2017-11-28T20:11:57.213Z,2017-11-28T20:11:57.213Z,854,3791,AnnotatorStore::TextAnnotation,,,,,,,,,821,2116 12889,v1.0,,"Makers in residence are supposed to deliver and publish on the web the output of their experience at WeMake. Finding the right way to record and develop a innovative and open experience seemed therefore a matter of concern in designing the opencare MIR program. During the last weeks GitHub, a social network for developers, became a obliged point of passage for some people at WeMake. Github allows to create repositories, communities and webpages (gh_pages), among the main features. Putting a project on github makes possibile for members to contribute remotely and for anyone to view and download it. rite passage 2.jpg1424x1068 984 KB Not only makers, but some service designers involved had to take class on GitHub as well. The idea was to instruct participants and support them to create by github repositories and pages. Although github is very known and used, not everybody there at WeMake is familiar with it. I've been knowing Github for some years, but is interesting to follow conversations and see how different persons see and use it.",/post/868,2017-11-28T20:09:19.994Z,2017-11-28T20:09:19.994Z,868,3791,AnnotatorStore::TextAnnotation,,,,,,,,,835,2115 12887,v1.0,,"I remember @Alex_Levene writing about the camp in Calais and the fact that coordination happens through medium to long term volunteers. Could they be the kind of primary asset that can help do inventoring, mapping, research for this stage you're at?",/post/14969,2017-11-28T20:08:00.013Z,2017-11-28T20:08:00.013Z,14969,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2113 12885,v1.0,,"Thermosflask improvements (big & glass) Hot air pump for sleeping bag",/post/24595,2017-11-28T20:00:53.649Z,2017-11-28T20:00:53.649Z,24595,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2111 12884,v1.0,,"@trythis thank you! I 'll study all these carefully! We don' t do backpacks for the refugees anymore so we focus to backpacks that we can prepare for ourselves or other people and keep them for an emergency. So, we have to think about many diffirent things. For the refugees I've done this: 01 Α5 ΠΕΡΙΕΧΟΜΕΝΑ ΣΑΚΙΔΙΟΥ.jpg1240x874 172 KB But this is a draft. It needs something professional with the same style in a platform on line. When somebody wants to prepare a backpack could use specific items and also a list with more details for its item. What is this? How to use it e.t.c.",/post/12941,2017-11-28T20:00:22.402Z,2017-11-28T20:00:22.402Z,12941,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2111 12883,v1.0,,"It is much easier to get kids to wash their hands while they play with something. Small pebbles or pearls also rub the hands so they get cleaned much better. Kids are big bacteria spreaders. More on hygiene. You can make a sink with the space blanket and duct tape, or an old plastic ice cream package (1L weighs 30g). for washing clothes you can use the space blanket. I would recommend 3 (ziplock?) plastic bags with sugar (perhaps with stevia - more weight efficient), salt, and a piece of soap. One bag big enough for this hot water ""bottle"". Heating or use hot rock or sand. sterile saline solution (smallest possible), if you need more desinfected water, you can also boil a comb (or just half) vasiline (part for real use, but more for ""magic cream"" placebo effect) kids earplugs (use alcohol to desinfect!), probably smart to tie in a piece of string for safety. antiseptic wipes (can be ""refilled"" with alcohol) in terms of clothes I would try to reduce cotton. Wool is fine for warmth if you have a windbreaker, if you can have at least one set of synthetic undergarments as they dry much faster than cotton. personally I love wool leg warmers combined with short wool socks in the outdoors. Socks can be swapped and kept dry without much extra weight. The warmers can be regulated while walking and can be also used in many different ways. I'm not sure if they work well for kids though.",/post/12568,2017-11-28T19:59:20.302Z,2017-11-28T19:59:20.302Z,12568,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2111 12882,v1.0,,"cordage (e.g. paracord, even dental floss or duct tape can vastly improve temporary shelter, duct tape or other adhesive doubles as band aid), some shock cord (elastic) can also be very helpful. alcohol for desinfection (e.g. the hand wash gel type) another space blanket (very little weight high utility especially with some how-to, also good as toy), with your background you might find a way to rig it into a jerven bag like thing. pieces of sleeping pads, probably sized to be large enough to sit on when folded once, becomes more useful with cordage. Power for phones: booster for charging from small batteries, buck (alternative) for charging from car battery (1 has enough for 200 phone charges), should probably be ruggedized e.g. by dipping in candle wax. for kids a hand warmer can help out a lot in increment weather (single use) at temporary camps a rugged bluetooth speaker could really help the kids unwind maybe replace the gloves by more socks that can be worn on the hands as well I would recommend 2 caps (beanies that go over the ear) if you have enough some water bottles have a special kid friendly openings but attach to regular bottles. In terms of shoes I think slightly oversize croc style (rooms for woolen socks, or maybe inner soles?) are the best minimum stress options.",/post/8405,2017-11-28T19:58:26.055Z,2017-11-28T19:58:26.055Z,8405,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2111 12881,v1.0,,"Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their ""guests"" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.  @Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !",/post/16177,2017-11-28T19:56:32.271Z,2017-11-28T19:56:32.271Z,16177,3791,AnnotatorStore::TextAnnotation,,,,,,,,,662,2110 12880,v1.0,,"As far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything. Even if the s*** hit the fan, no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system and covered by the medical insurance! For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses. This is merely a more efficient and structured way of doing the same.  Still, the network was semi-legal, meaning it operated under no clear incidence of laws. It's why I remember reading about Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie his face never shows.  From looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it's not clear though how much of the matchmaking was aided by the technology and how much was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL - like Vlad and Valeriu, who were key nodes in the network! @Sabina_U, lovely to meet you virtually, and hopefully in person soon!",/post/17546,2017-11-28T19:55:43.892Z,2017-11-28T19:55:43.892Z,17546,3791,AnnotatorStore::TextAnnotation,,,,,,,,,665,2110 12879,v1.0,,"However you have a point. Help us to find a way to ennsure that this is legal and how participants can be ensured in case of accidents. Please? don't get your point about IP!???? We are in open context, free,",/post/33426,2017-11-28T19:55:11.987Z,2017-11-28T19:55:11.987Z,33426,3791,AnnotatorStore::TextAnnotation,,,,,,,,,483,2110 12878,v1.0,,"It does not exist legally . His material is fiercely proclaimed: ""MCCH is a voluntary organization without legal status and not taxable, and is not a 'non-profit organization'."" (Maria: ""Technically we are illegal."")",/post/4913,2017-11-28T19:54:31.914Z,2017-11-28T19:54:31.914Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2110 12875,v1.0,,"What I make of this is that it's not about choosing between the open source or current proprietary code/technology approach. It's clear to me that both do things well and other things wrong and that an ideal situation lies somewhere in between. I find it is recurring when the open tech/science ideas meet traditional ideas that the discussion is seldom held around the question: how can the different approaches learn from each other, in order to implement a better solution? Rather, it is usually about what approach is the best as is. Result: boring discussion and no real progress. How can we get to a situation where this conversation is not about an ideal solution, but about finding an ideal solution? Ping @Alberto @Eireann_Leverett @trythis @Rune",/post/27802,2017-11-28T19:52:40.960Z,2017-11-28T19:52:40.960Z,27802,3791,AnnotatorStore::TextAnnotation,,,,,,,,,679,2109 12874,v1.0,,Career guidance and counselling,/post/6293,2017-11-28T19:52:09.765Z,2017-11-28T19:52:09.765Z,6293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6260,2108 12873,v1.0,,the nature of work in care-full societies;,/post/6304,2017-11-28T19:51:42.139Z,2017-11-28T19:51:42.139Z,6304,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6271,2108 12872,v1.0,,"we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;",/post/21382,2017-11-28T19:50:52.852Z,2017-11-28T19:50:52.852Z,21382,3791,AnnotatorStore::TextAnnotation,,,,,,,,,733,2108 12871,v1.0,,"We are a community of freelance developers and other digital professionals who work together online often purely over the internet. We started our project RefugeesWork to help newcomers to connect with locals who are looking for freelancers to outsource some work to them. It all started in August 2015 when lots of newcomers, mainly from Syria, arrived to Germany. It now turns out that it’s not very easy for them to find any kind of employment at all. German companies seem to not need the skills they bring to the table and even if they do have what they are looking for, they often reject people who do not speak German well. We decided to use our digital skills, first of all programming, to help them. We developed a marketplace app where on one side newcomers can register and describe their skills and on the other side local organizations can post their requests for freelancers. We believe work is the best pathway to connect refugees and locals and to date, we have over 300 registrations on the site and big community in Berlin and online. Those Syrians come from all walks of life and some have excellent background, or were running their own business. But we also realized that freelance requests are mostly for freelancers with web and mobile development background. These are the jobs freelancers can do online, they don't need to speak the local language and because all the organizations are trying to automate their processes, there is actually a big need for these professions. We checked our database and available statistics and figured out that most of newcomers are young, they just finished their high school or had to leave in the middle of their studies so they actually lack necessary skills to integrate into the highly specialized German job market. Freelancing would give refugees freedom from discrimination they would face otherwise and freelancers are usually paid way better. The tricky part is in making sure there is a regular flow of work. That is our experience. Refugeeswork.jpg960x638 84.1 KB Therefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don’t even know what to do with all the money. Currently we are also following the work of Sensorica in Canada and Enspiral in New Zealand. Our wish is to create a micro-holding co-ownership model. One part of the motivation is to shield these professionals from all kinds of discrimination that they might otherwise experience. It shields them, for example from the usual politicking among corporate employees who might tend to put such newcomers into a fairly low place. And another part of the motivation is exploring processes and legal ways for cooperation and decision making between many micro-holdings. We try to list all our initiatives inside of Github organization SquatUp. We try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat. All our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us. It’s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other. So if you are a programmer, ”apptivist”, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps. If you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time. And last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016. Links: RefugeesWork - www.refugeeswork.com Online JavaScript school - www.wizardamigos.com Coding Amigos meetup - www.meetup.com/codingamigos Coding Amigos collective - www.codingamigos.com SquatUp - https://github.com/SquatUp/projects/blob/master/README.md Nina Breznik - @ninabreznik Alexander Praetorius - @serapath",/post/769,2017-11-28T19:50:10.841Z,2017-11-28T19:50:10.841Z,769,3791,AnnotatorStore::TextAnnotation,,,,,,,,,736,2108 12865,v1.0,,"Information security professionals may not be prepared for IoT after all ""Even with awareness of vulnerable devices at an all time high, information security professionals are not equipped to address the growing threats."" As you might expect, the IoT is fraught with security holes and a growing population of users who are rather unconcerned about it - mainly because they don't know and don't think about it enough.  But do you want someone hacking into your Google Car?  This article points out that many IoT devices and projects don't even know all that connect to them.",/post/5469,2017-11-28T19:44:13.466Z,2017-11-28T19:44:13.466Z,5469,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5436,2105 12864,v1.0,,"Our 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions. The representative of City of Porto for example, mentioned their project called “Bridge to the Future”. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn’t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.",/post/24477,2017-11-28T19:43:25.118Z,2017-11-28T19:43:25.118Z,24477,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,2104 12863,v1.0,,"The City of Milan is organizing a seminar on thursday 23th of February from 2pm to 5 pm at WeMake / Milan, in order to present Open Care to a network of civil servants from European cities. The event is part of a three days Eurocities' Study Visits focused on Social Entrepreuneurship. [The Study Visit detailed programme will be available asap]. Milan has founded Eurocities in 1986 together with Barcelona, Birmingham, Frankfurt, Lyon and Rotterdam. The network today brings together 130 of Europe's largest cities and 40 partner cities, that between them serve 130 million citizens across 35 countries. Eurocities consists of a platform for sharing knowledge and exchanging ideas through six thematic forums, a wide range of working groups, projects, activities and events. Milan is taking part in the working group Social Affairs > Smart Social Inclusion, working out solutions to a better spending and for better social outcomes. Participants in this working group discuss subjects such: How to respond to reduced public spending and higher demand for social services, investing in a smarter and innovative way? What is the role of cities in promoting social entrepreneurship and social economy? Participants will be invited from Municipalities of Acharnes, Amsterdam,  Antwerp,  Athens, Barcelona, Belfast,  Besiktas,  Beylikdüzü,  Birmingham,  Bonn,  Brno,  Bydgoszcz, Cardiff, Copenhagen, Dresden, Essen, Brussels, Gdansk,  Geneva,  Genoa,  Ghent,  Gothenburg,  Helsinki,  Katowice,  Leeds,  Lisbon,  Ljubljana,  Madrid, Manchester, Milan, Munich, Nantes, Netwerkstad, Twente, Newcastle-Gateshead, Nice Cote d’Azur, Nicosia, Osmangazi, Ostend, Porto, Rennes Metropole, Riga,  Rome,  Rotterdam,  Sheffield,  Stockholm,  Stuttgart,  Tallinn, Turin, Turkish Cypriot community of Nicosia, Uppsala, Utrecht, Vantaa, Warsaw, Zagreb, Zurich. If you are interested in taking part at the seminar feel free to send an email to milano_smartcity@comune-milano.org",/post/6108,2017-11-28T19:42:57.346Z,2017-11-28T19:42:57.346Z,6108,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,2104 12862,v1.0,,"The City of Milan is organizing a seminar on thursday 23th of February from 2pm to 5 pm at WeMake / Milan, in order to present Open Care to a network of civil servants from European cities. The event is part of a three days Eurocities' Study Visits focused on Social Entrepreuneurship. [The Study Visit detailed programme will be available asap]. Milan has founded Eurocities in 1986 together with Barcelona, Birmingham, Frankfurt, Lyon and Rotterdam. The network today brings together 130 of Europe's largest cities and 40 partner cities, that between them serve 130 million citizens across 35 countries. Eurocities consists of a platform for sharing knowledge and exchanging ideas through six thematic forums, a wide range of working groups, projects, activities and events. Milan is taking part in the working group Social Affairs > Smart Social Inclusion, working out solutions to a better spending and for better social outcomes. Participants in this working group discuss subjects such: How to respond to reduced public spending and higher demand for social services, investing in a smarter and innovative way? What is the role of cities in promoting social entrepreneurship and social economy? Participants will be invited from Municipalities of Acharnes, Amsterdam,  Antwerp,  Athens, Barcelona, Belfast,  Besiktas,  Beylikdüzü,  Birmingham,  Bonn,  Brno,  Bydgoszcz, Cardiff, Copenhagen, Dresden, Essen, Brussels, Gdansk,  Geneva,  Genoa,  Ghent,  Gothenburg,  Helsinki,  Katowice,  Leeds,  Lisbon,  Ljubljana,  Madrid, Manchester, Milan, Munich, Nantes, Netwerkstad, Twente, Newcastle-Gateshead, Nice Cote d’Azur, Nicosia, Osmangazi, Ostend, Porto, Rennes Metropole, Riga,  Rome,  Rotterdam,  Sheffield,  Stockholm,  Stuttgart,  Tallinn, Turin, Turkish Cypriot community of Nicosia, Uppsala, Utrecht, Vantaa, Warsaw, Zagreb, Zurich. If you are interested in taking part at the seminar feel free to send an email to milano_smartcity@comune-milano.org",/post/6108,2017-11-28T19:42:21.274Z,2017-11-28T19:42:21.274Z,6108,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,2103 12861,v1.0,,How could we open the debate about the strength of intergenerational care.,/post/541,2017-11-28T19:41:35.445Z,2017-11-28T19:41:35.445Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2102 12860,v1.0,,"Hi @zazie and welcome to edgeryders and thanks for jumping in! I think @Patrick_Andrews above was onto something when specifying their aim is to be inter-dependent, since going in as an outsider could (unintendently) add to the list of things that are not going as one would hope. Are you working in the British care system..?",/post/26959,2017-11-28T19:41:02.379Z,2017-11-28T19:41:02.379Z,26959,3791,AnnotatorStore::TextAnnotation,,,,,,,,,725,2101 12859,v1.0,,"people meeting on an eye level people gaining knowledge about each other and their culture people learning from each other people helping each other",/post/669,2017-11-28T19:35:47.300Z,2017-11-28T19:35:47.300Z,669,3791,AnnotatorStore::TextAnnotation,,,,,,,,,636,2100 12858,v1.0,,"@Big_Bang_Schools welcome from me too! I'm a bit late to the party, but I'm curious if you also work with secondary and high schoolers? My mum teaches at a pretty mainstream school in Romania and was just telling me the other day that they would love to partner up with schools abroad for creative exchanges betweel pupils. Is that something you would consider? Also, if you're involved in international educational projects and could use a partner in this area, let me know!",/post/21394,2017-11-28T19:35:01.021Z,2017-11-28T19:35:01.021Z,21394,3791,AnnotatorStore::TextAnnotation,,,,,,,,,728,2100 12856,v1.0,,"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc. @WinniePoncelet, it could be very good if you could elaborate on why you don’t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get? You have a good point,@WinniePoncelet,  we could imagine raising funds to have a FES bike that people could try locally. I’ve learned two things recruiting wheelchair users as testdrivers There is a perception that it may be physically harmful People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike As for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.) As for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling).  @Francesco Maria ZAVA and others we could work on this",/post/23387,2017-11-28T19:33:08.964Z,2017-11-28T19:33:08.964Z,23387,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2098 12855,v1.0,,"I'm not 100% sure about my interpretation and would love Deborah to give us more hints about it. On a side note, I would be interested to know if you (Deborah) have already thought about the interaction of the main task: adding the data tailored to your specific situation. In my experience, even when the committment is pretty high (meaning the tool can for instance improve the quality of your life), a system that involves a lot of data entry tends to have a short life cycle, (unless the feedback is clear and constant and meaningful). I'm very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.",/post/15751,2017-11-28T19:25:16.493Z,2017-11-28T19:25:16.493Z,15751,3791,AnnotatorStore::TextAnnotation,,,,,,,,,804,2097 12854,v1.0,,"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post – seems like great work, congrats! The idea of understanding one's own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes out), or a many-to-many interaction between users. Can user A see the diary of user B? Do they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?",/post/8578,2017-11-28T19:24:43.427Z,2017-11-28T19:24:43.427Z,8578,3791,AnnotatorStore::TextAnnotation,,,,,,,,,804,2096 12776,v1.0,,"“Don’t assume a person with a disability is easily offended.”                                                                                      —“Disability Etiquette” from Wikipedia.  At the beginning of the research, we asked ourselves, “What is disability?”According to Cerebral Palsy: A Guide for Care by Bachrach Miller, the terms regarding disability are defined as such: “Impairment is the correct term to use to define a deviation from normal, such as not being able to make a muscle move…Disability is the term used to define a restriction in the ability to perform a normal activity of daily living which someone of the same age is able to perform. … Handicap is the term used to describe a child or adult who, because of the disability, is unable to achieve the normal role in society commensurate with his age and socio-cultural milieu…All disabled people are impaired, and all handicapped people are disabled, but a person can be impaired and not necessarily be disabled, and a person can be disabled without being handicapped.”[1] Nowadays, more and more people begin to pay attention to how to address people with disabilities. The use of “people-first language”* in English aims to “avoid the subconscious dehumanization when discussing people with disabilities”[2]. However, as the researches continue and after we interviewed a few people with disabilities, we soon realized that language is not really a problem. Every person we interviewed all said that the word “disability” doesn’t bother them at all and they don’t mind being called “disabled” because it is a fact. (Interview with Raul Krauthausen by @Moriel). So here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies? Another example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don’t think otherwise to begin with. Could it be that some of us—people without physical disabilities—think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people’s opinion.  For example: use “a person with a vision impairment” instead of “a blind person” 1.http://gait.aidi.udel.edu/gaitlab/cpGuide.html 2.https://en.wikipedia.org/wiki/People-first_language This is a group project on going #able with @Moriel, @ChristineOehme and @Luise Kröning",/post/694,2017-11-28T18:10:22.381Z,2017-11-28T18:10:22.381Z,694,3791,AnnotatorStore::TextAnnotation,,,,,,,,,661,2094 12775,v1.0,,"Giving other perspectives of care makes us think about our own caretaking structure Finally we had one person that helped think out of the box in a really disruptive way. He was a Syrian refugee that had to postpone his medical studies/Ph.D.  To flee the country and gave us a lot of material to think about. He saw us as 'boxpeople', living in a bubble and putting others in bubbles. Elderly, homeless people, psychological ill are all given a space outside society. They maybe didn't have the most efficient healthcare system, but he explained it was much more humane. It made us think a lot about how we see care in the west. He was also the person that pointed out the problem of trust we create in the west.",/post/541,2017-11-28T18:08:54.273Z,2017-11-28T18:08:54.273Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2093 12772,v1.0,,"First of all, a kind of participatory assessment, based on a broad and heterogeneous participation was appreciated also by @alessandro_contini -the designer in charge of the user research meant for shop owners only that will follow this event. What emerged are unexpected cases in-between and common and shared interests among stakeholders. The social dimension emerged as a shared need to construct a substantial and workable objectivity, by a keen and multidimensional analysis of the formal objectivity embedded in the procedure and the script articulated in the fields of the form. What citizens could make visible where aspects of the dimensions for access that usually remain invisible when filling a form or being counseled by a technical advisor.",/post/850,2017-11-28T18:06:15.220Z,2017-11-28T18:06:15.220Z,850,3791,AnnotatorStore::TextAnnotation,,,,,,,,,817,2090 12771,v1.0,,"Great sharing, JUS team and @Omri_Kaufmann in particular!  I am out of my depth: I have been sad but never depressed, exhausted but never burnt out. I have emotions, but they never seem to become medical conditions somehow. Lucky me.  But many people seem to think it's the human touch that makes the difference in care. Even the best designed sofa will not make you any less lonely.  The point is made (towards 12.00) by @Yara_Al_Adib in this video, since you want to be inspired you will probably like it!",/post/20198,2017-11-28T18:05:44.528Z,2017-11-28T18:05:44.528Z,20198,3791,AnnotatorStore::TextAnnotation,,,,,,,,,645,2089 12769,v1.0,,"""A human project, rather than a corporate one."" Herein might lie one of they keys to open care. @Ezio_Manzini might have something to say here...",/post/33810,2017-11-28T18:05:05.848Z,2017-11-28T18:05:05.848Z,33810,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6593,2088 12767,v1.0,,"Hi @Yannick, Hi All. This is great. And resonnates to what I wish to see emerge too. Good to see you are already in touch with various people and groups, good to see overlap. Do you by any chance also connect with POP ? http://www.potentialofficeproject.org/wiki/index.php/Main_Page I've been writing on these topics, and do not know what to start with, so if its ok, I just feel like sharing a few links, including to online conversations with Eric Hunting Empty Flats Above Shops : https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/N9WWeQ_PF14/PhQrYg1JBAAJ Nomadic Ecovillages presentation by Eric : docs.google.com Nomadic Eco-Villages Nomadic Eco-Villages Exploring New Nomadic Lifestyle and Festival Culture in the Urban Setting Eric Hunting - erichunting@gmail.com - 5/13 List of construction systems https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/g3nKCOOx68o/yb58OIvgS8cJ more ressources https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/e0SGcBaZFw8/d4IzEnf2EgAJ Creating Spaces within Spaces https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/XXsDzujQyoA/JfIZ5ZpsaxgJ A place potentially inspiring in Brussels ( Camping Town ) https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/lVmY_88ZEvY/WQFQqLrTlsoJ N55 and Open Manuals https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/HxHyS2lnjjg/hORC4NGkzV4J Other vacant space convergences in Brussels https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels/op-n-m/blUobfTPWik/DOhSbIrJ_H0J Precare archives ( including ""Contrat Precaire"" ) http://precare.org/ Archive of other project drafts : http://sharewiki.org/en/Leipzig_project http://sharewiki.org/en/Spime_Housing and much more https://groups.google.com/forum/#!searchin/op-n-m/eric$20hunting$20brussels;context-place=forum/op-n-m https://www.diigo.com/user/dante-gabryell/housing",/post/14783,2017-11-28T18:04:30.402Z,2017-11-28T18:04:30.402Z,14783,3791,AnnotatorStore::TextAnnotation,,,,,,,,,487,2087 12764,v1.0,,"Hold your horses. As the old man in this corner of the Edgeryders community, I feel it is my duty to say that the vast majority of people lived in rented dwellings up until the 1980s (in most European countries but not in America). The idea of mass ownership of homes was, according to historians, Thatcher's: she wanted more people to be ideologically tied in with the haves, or something to that effect. Apparently, her administration thought  that a society of home owners would be more invested (literally) in the status quo. They turned out to be mostly right. Anyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in  that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.",/post/19317,2017-11-28T18:03:34.661Z,2017-11-28T18:03:34.661Z,19317,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1405,2087 12763,v1.0,,"1/10 of our participants have a serious problem with housing. Either they're homeless, or they are living in insecure, or temporary accommodation.",/post/1710,2017-11-28T18:02:56.491Z,2017-11-28T18:02:56.491Z,1710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1677,2087 12762,v1.0,,"Hello everyone I am a full-time community mental health nurse based in Ormskirk Lancashire. Since 1998 online Have championed a conceptual framework - Hodges' model which was created to facilitate person-centered, holistic, integrated care and reflective practice. Currently I am researching the model at Lancaster University in Technology Enhanced Learning. My Part 2 project involves evaluating the model by creating a new web resource to prototype specific content types, gather data and create some research interest. I plan to use Drupal to create my research platform. I have just posted news of OP3N on my blog ""Welcome to the QUAD"" http://hodges-model.blogspot.co.uk/ which also lists a bibliography: Jones, P. (2004) The Four Care Domains: Situations Worthy of Research. Conference: Building & Bridging Community Networks: Knowledge, Innovation & Diversity through Communication, Brighton, UK. Jones, P. (2008) Exploring Serres’ Atlas, Hodges’ Knowledge Domains and the Fusion of Informatics and Cultural Horizons, IN Kidd, T., Chen, I. (Eds.) Social Information Technology Connecting Society and Cultural Issues, Idea Group Publishing, Inc. Chap. 7, pp. 96-109. Jones, P. (2009) Socio-Technical Structures, the Scope of Informatics and Hodges’ model, IN, Staudinger, R., Ostermann, H., Bettina Staudinger, B. (Eds.), Handbook of Research in Nursing Informatics and Socio-Technical Structures, Idea Group Publishing, Inc. Chap. 11, pp. 160-174.< br /> Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination. International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311. You may find this model relevant to your respective projects, if so please get in touch... If you have any key papers, reports or conferences I'd be delighted to hear of your news. Best wishes in your work. Peter Jones Community Mental Health Nurse CMHT Brookside Aughton Street Ormskirk L39 3BH, UK & Graduate Student - Lancaster University: Technology Enhanced Learning Blogging at ""Welcome to the QUAD"" http://hodges-model.blogspot.com/ http://twitter.com/h2cm",/post/676,2017-11-28T18:02:27.665Z,2017-11-28T18:02:27.665Z,676,3791,AnnotatorStore::TextAnnotation,,,,,,,,,643,2086 12758,v1.0,,"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post – seems like great work, congrats! The idea of understanding one's own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes out), or a many-to-many interaction between users. Can user A see the diary of user B? Do they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?  Edit Delete No Commentpeer-to-peer Cancel Save Annotate",/post/8578,2017-11-28T18:00:53.004Z,2017-11-28T18:00:53.004Z,8578,3791,AnnotatorStore::TextAnnotation,,,,,,,,,804,2084 12757,v1.0,,School/university improvement & quality evaluation,/post/6293,2017-11-28T18:00:14.100Z,2017-11-28T18:00:14.100Z,6293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6260,2083 12754,v1.0,,"1) Question 1 (Emad): How to enroll in any position within the academic world (or other) to be able to stay in a safe society like ours until they (him and his family) can return back home. Being Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family financially. 2) Question 2 (Amal): How to find any position within the academic world, for somebody, on the way to Belgium, on a ""family reunion visa"", to be able to spend, the years waiting for the war to end, sensibly, by investing in her knowledge and-or career. As she will be supported by the Belgian state financially, money is a little less of an issue for her. As they are not in a position of demanding things they would of course greatly accept any solution or proposition  I guess what I am looking for most is;   * What kind of opportunities exist being in their specific situation? Where do these two individuals have to start their search for having the best chance of finding any job or position within the academic world? I hope this makes things more clear. If not, shoot I have asked both to give me more specifics on their careers. Can't wait for your return. Maria",/post/16990,2017-11-28T17:59:41.667Z,2017-11-28T17:59:41.667Z,16990,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2083 12752,v1.0,,"Hello peeps, This is my first post in this community…. So no completely sure yet how it works or what kind of responses I will get. Here my story and my question: Because I took into my household 1,5 years ago, a 17 year old Iraqi boy (refugee) I am becoming, a little bit against my own will"" src=""https://www.facebook.com/images/emoji.php/v8/zfb/1/16/263a.png"">, a go to, ask to, for other Iraqis, around the globe… His mother, on her way to Belgium, Brussels, on a “family reunion visa”, was professor in History at the Mosul university. His uncle, doing a PHD in medical micro biology – molecular micro biology - immunity in England, Leicester. They are both asking me for help in finding a job at universities or doing a (another) PHD in Europe. His uncle, so he does not have to return to Iraq after his PHD finnishes in Leicester. His mother, to feel use full while waiting to go back to her country one day. So her my question: Where, how and what can they do to have the best results in their search for a university job or sudy? As I never did a PHD or worked at universities it is still a blank canvas for me. Thanks for taking the time for providing me with tips and tricks. Maria",/post/831,2017-11-28T17:58:52.202Z,2017-11-28T17:58:52.202Z,831,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2083 12749,v1.0,,"Hi @mariekebelle I may need a bit more information before even trying to share any suggestion... First thing, I would like to ask you to confirm my understanding. There are two separate issues that would need to be faced: 1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable] 2) how to enroll in a doctorate as an already senior professional The latter is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol). Can you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation... In general, no one size fits all in academic careers... It's my humble opinion, but for the double issue you are bringing to our attention, I am somewhat skeptical that anyone will be able to say ""get in touch with X"" or ""look up on Y""... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.",/post/14667,2017-11-28T17:57:48.111Z,2017-11-28T17:57:48.111Z,14667,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2083 12737,v1.0,,"[@Noemi’s note] I was happy to connect with Emma Jones, who is in her words, a third of the We Mental Health Nurses team at WeCommunities, along with Vanessa Garrity and Mark Brown. This story serves as a first encounter with Edgeryders. It also includes written reflections by Vanessa. WeMHNurses hosts regular mental health themed twitter chats, as part of a network chat calendar, with wildly diverse topics ranging from “The use of digital technology in everyday practice” to “Workplace democracy in mental health”. The core team runs the day to day operations, on a purely voluntary basis, with the WeMHNurses account, also linking into the wider WeCommunities, which covers many different branches of Nursing and Health Care professions and specialism. Topics for chats tend to mostly emerge from topical conversations within the community or where there is, for example a national policy directive or key piece of published journalism relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on mental health nursing practice. The chats are generally facilitated by one of the @WeMHNurses team, with guests are often invited to participate in the chat where the person brings specific expertise to the conversation. This is an open process, whereby anyone can contact the team to suggest a chat topic or to ask to host a chat.The team provide support to individuals who want to host a chat from the @WeMHNurses Twitter handle. Our ethos is very much that “your opinion matters” and we focus on the user point of view, getting people talking to each other and bringing a variety of perspectives to the conversation. We enjoy working with people who have previously been in services or are currently in services because we really value the lived experience perspective. As we are an independent voice, we will also cover topics that might be considered controversial, political or critical, as we believe that these conversations are important in setting the future direction for mental health nursing. On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care. The demographics for our chat suggest that we have a largely UK audience. However, because of the global reach of Twitter, we do have some international representation within our community and we love to encourage this because of the dimension that it brings to the conversation Before we run a chat, we produce some pre chat information on the wecommunities website. This is generally written in a blog style, so it is broadly accessible reading. We are also looking at how we can make our chats even more inclusive, such as by providing audio for people who struggle to read or who have visual impairment. The challenge for us is that we are all volunteers, so we have to find ways of delivering information quickly. How come this twitter format for talking about mental health? Is there something in the medium that helps learning, or alleviation for individuals? As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter to talk about mental health is quite personal, as is twitter use in general. There are many who find it hugely therapeutic and helpful, either getting involved in chats, communicating/ networking with others or for gaining support. It is a fab place for the sharing of information, including research and it's also a great forum for challenging stigma and moving the mental health agenda forward. WeMHNurses1_0.png900x480 120 KB Wordcloud from participants twitter bios in a recent chat - source. Is there a cutoff number for participants in a chat? Or a number that makes it effective? I’m wondering because you have such high regularity - every week. There is not a maximum number of people in each chat, it can be anybody using the hashtag. Often people pop into the chat with just one or two tweets, whilst at the same time, we are having a conversation with other people, who participate in the entirety of the chat. When you are facilitating a chat, which is busy, it can be a challenge responding to every single tweet, but we do try to do this and often we find that people branch off and have separate conversations with other participants, within the chat, which goes down a different path to the structured questions of the main chat. Providing they still use the hashtag, we still capture this conversation in the transcript at the end. This is an example of the latest archived chat on a Tuesday evening, counting 133 contributors, 1200 tweets and with a reach of 7,561,098! This was a joint chat with @wenurses and @weldnurses. With our over 6000 followers, plus the wider network, I suppose it is hard to say how many people we reach constantly. However, analytics for the chat are captured within the wecommunities website. Nick Chinn is the technical person behind this at Wecommunities. What do you think draws people in? What makes it a community for you? Is it people interacting with each other, learning, figuring out stuff? I suppose it is all of that. Everyone involved in the chats is interested in that particular area and that shared interest drives the discussions and questions in the chat, which will often support the development of links between people. Often people in the chats might say: ‘this is a good chat’, and ‘why don’t we do one on this other topic area?’ It then keeps expanding, and there are more things that we get involved in. So, in essence, the community is about sharing knowledge and learning, being open to thinking in different ways and developing a support network as well. What for the future and how can we support your work? We are very aware that people establish relationships and friendships offline with people who they have connected with on Twitter and that these relationships are often a great source of strength and support for people. Vanessa and Teresa Chinn, Founder of WeCommunities organised an unConference earlier in the year, through crowdfunding, which brought together 300 people from the community into a physical space to get together and to debate and discuss the future direction of social media in health care. We also provided a parallel online agenda throughout the day, so that the twitter community could still very much be part of it, even if they couldn’t physically attend. Vanessa and Mark from WeMHNurses and Mental Elf on Twitter are also in the process of setting up a Digital mental health conference service, which we are launching at #PDDigital16 later in November.",/post/551,2017-11-28T17:55:24.319Z,2017-11-28T17:55:24.319Z,551,3791,AnnotatorStore::TextAnnotation,,,,,,,,,518,2081 12736,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL. Website",/post/866,2017-11-28T17:54:35.509Z,2017-11-28T17:54:35.509Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,2079 12735,v1.0,,"Il tuo progetto in un tweet* Doc.doc è la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica più completa possibile. Bisogno o problema che il tuo progetto cerca di risolvere*  Sempre di più patologie complesse necessitano della collaborazione tra molti specialisti della cura. A questi diversi professionisti manca però la possibilità di comunicare e condividere informazioni su una piattaforma dedicata. L’attuale procedura di lavoro evidenzia i seguenti problemi: Delega al paziente la responsabilità nel fornire le corrette informazione relative al proprio caso. Rende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi. Non permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all’incontro con lo stesso. Doc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura. Inoltre la progettazione UX è stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un’email. Utente finale, individui e/o comunità di riferimento* Il prodotto è pensato per i medici, ma i maggiori benefici andranno ai pazienti. Doc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (più pianificazione, più chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando. Soluzione, breve descrizione del progetto* Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. Inoltre, in una fase successiva, sarà possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro categorizzazione per patologia. Tecnologie utilizzate o che vorresti utilizzare* Lo strumento che abbiamo progettato si esprimerà attraverso un’applicazione mobile per ambienti Android e iOS, che verrà quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l’utilizzo del software il più immediato possibile. E’ comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform. Il servizio cloud potrà essere sviluppato in NodeJS, con basi dati MongoDB e MySQL. Sito web (o social network) In fase di pianificazione. Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.",/post/33729,2017-11-28T17:53:40.520Z,2017-11-28T17:53:40.520Z,33729,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6578,2079 12732,v1.0,,"Well done Marco, @Irene_Lanza & Henrik. And welcome on board to Irene, new Edgeryder. I've only heard of teaching echolocation ""manually"" via examples like Daniel Kish's (""Batman"") school for children. And through handheld devices and more recently a mobile app (?), but those are mediating the environment, as you rightly point out. Kudos for the open approach, and thinking about community members who might be interested in this. Maybe Alison Smith from Pesky People..? hm.",/post/6898,2017-11-28T17:52:07.787Z,2017-11-28T17:52:07.787Z,6898,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5084,2079 12731,v1.0,,"national health service is linked to employment. When a Greek loses work, it keeps health care for a year: if you have not found another job after a year, you lose the right to access to the National Health Service. If you get sick, you have to invent something, or die.",/post/4913,2017-11-28T17:51:21.745Z,2017-11-28T17:51:21.745Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2080 12727,v1.0,,"They are not just the Greeks. In all European countries, except the United Kingdom and Italy, occupied status is a prerequisite for access to healthcare. But Greece has been hit harder by the 2008 crisis: many more people who have become unemployed in the long run. ""We were poor even ten years ago - says Maria, a psychologist who volunteered at MCCH - but at that time the people in trouble could ask for help to families or neighbors. Today their families and their neighbors are in difficulties, and they can not do much to help others. People are desperate. """,/post/4913,2017-11-28T17:50:25.858Z,2017-11-28T17:50:25.858Z,4913,3791,AnnotatorStore::TextAnnotation,,,,,,,,,4880,2080 12722,v1.0,,"Il tuo progetto in un tweet* Doc.doc è la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica più completa possibile. Bisogno o problema che il tuo progetto cerca di risolvere*  Sempre di più patologie complesse necessitano della collaborazione tra molti specialisti della cura. A questi diversi professionisti manca però la possibilità di comunicare e condividere informazioni su una piattaforma dedicata. L’attuale procedura di lavoro evidenzia i seguenti problemi: Delega al paziente la responsabilità nel fornire le corrette informazione relative al proprio caso. Rende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi. Non permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all’incontro con lo stesso. Doc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura. Inoltre la progettazione UX è stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un’email. Utente finale, individui e/o comunità di riferimento* Il prodotto è pensato per i medici, ma i maggiori benefici andranno ai pazienti. Doc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (più pianificazione, più chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando. Soluzione, breve descrizione del progetto* Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. Inoltre, in una fase successiva, sarà possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro categorizzazione per patologia. Tecnologie utilizzate o che vorresti utilizzare* Lo strumento che abbiamo progettato si esprimerà attraverso un’applicazione mobile per ambienti Android e iOS, che verrà quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l’utilizzo del software il più immediato possibile. E’ comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform. Il servizio cloud potrà essere sviluppato in NodeJS, con basi dati MongoDB e MySQL. Sito web (o social network) In fase di pianificazione. Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario. Edit Delete No Commentcommunication between doctors Edit Delete No Commentcommunication between doctors Edit Delete No Commentcontinuity of care Edit Delete No Commentdesign intervention Edit Delete No Commentelectronic patient records Cancel Save Annotate",/post/33729,2017-11-28T17:48:44.840Z,2017-11-28T17:48:44.840Z,33729,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6578,2079 12718,v1.0,,"@Michel this looks like a very dire situation in Madagascar I'm glad the business ideas list provided some inspiration, but you'll have to see how much impact DIY business ideas can have on poverty at first. I did not go ahead with any of these ideas in Nepal because @Dipti_Sherchan advised me that in her country, ideas involving new technology will have a hard time to be accepted in the villages. Something like a DIY backup system with used Li-Ion batteries is just over their heads, for example.",/post/21834,2017-11-28T17:43:15.258Z,2017-11-28T17:43:15.258Z,21834,3791,AnnotatorStore::TextAnnotation,,,,,,,,,713,2076 12717,v1.0,,"brief.  curve-hero-nelson-700.jpg700x1078 184 KB Also are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/chea",/post/23379,2017-11-28T17:42:46.981Z,2017-11-28T17:42:46.981Z,23379,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6339,2075 12714,v1.0,,"I am a co-founder of Cosáin. A wellness centre based in the city. Cosáin supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cosáin is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering: Recovery education Recovery through creativity Peer support",/post/562,2017-11-28T17:41:19.349Z,2017-11-28T17:41:19.349Z,562,3791,AnnotatorStore::TextAnnotation,,,,,,,,,529,2074 12712,v1.0,,"They can be applied efficiently in a group setting - rather than waiting their turn to speak, everyone engages in the practices at once.",/post/13679,2017-11-28T17:40:48.829Z,2017-11-28T17:40:48.829Z,13679,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2074 12711,v1.0,,Somatherapy in particular also emphasises the importance of group work as part of building a community of solidarity and support in the face of potentially oppressive political situations; moving beyond reliance on external care to develop personal and political assertiveness.,/post/13679,2017-11-28T17:40:12.259Z,2017-11-28T17:40:12.259Z,13679,3791,AnnotatorStore::TextAnnotation,,,,,,,,,707,2073 12710,v1.0,,"""grief is a form of disability..."" I think this is a very interesting suggestion Patrick, that may benefit from great insight. I also read a very interesting acticle about how it is often harnessed by communities to help deliver change as well: slate.com LGBTQ Activists Have Always Turned Grief Into Political Action. After Orlando,... It was a Tuesday, over a week after the killings, when they finally opened the immediate area around Pulse to the public. The June 12 massacre at the O ... Well worth a read",/post/23507,2017-11-28T17:39:46.001Z,2017-11-28T17:39:46.001Z,23507,3791,AnnotatorStore::TextAnnotation,,,,,,,,,661,2072 12709,v1.0,,"The basic idea was to create a prototype consisted of two already invented tangible objects. The eyeglasses which give you the possibility to focus by moving the lances and the one that measures your myopia and presbyopia using the size of your retina. The basic idea was to implement one to another and using an algorithm with the application on your phone you  could measure firstly your problem and afterwards adjust the focus depending on the measurements and making your eyesight perfect  almost all the time. The eye sight becomes blurry as years go by and everyone gets older. 0010.jpg2500x1406 104 KB The technology is simple as you can just focus manually too the lens either if you are trying to read a book for a long time and your eyes are focused on close objects. Using the adjustor the two lens move or slide so they come to a point where they totally focus with the poins of myopia or presbyopia you might have and you can see clearly. The concept of the application was easier as it enables you to measure the points while you are focusing the glasses yourself. This gives you an idea of the size of your problem without necessary have to go to a doctor.",/post/780,2017-11-28T17:39:09.741Z,2017-11-28T17:39:09.741Z,780,3791,AnnotatorStore::TextAnnotation,,,,,,,,,747,2071 12707,v1.0,,"Makers in residence are supposed to deliver and publish on the web the output of their experience at WeMake. Finding the right way to record and develop a innovative and open experience seemed therefore a matter of concern in designing the opencare MIR program. During the last weeks GitHub, a social network for developers, became a obliged point of passage for some people at WeMake. Github allows to create repositories, communities and webpages (gh_pages), among the main features. Putting a project on github makes possibile for members to contribute remotely and for anyone to view and download it. rite passage 2.jpg1424x1068 984 KB Not only makers, but some service designers involved had to take class on GitHub as well. The idea was to instruct participants and support them to create by github repositories and pages. Although github is very known and used, not everybody there at WeMake is familiar with it. I've been knowing Github for some years, but is interesting to follow conversations and see how different persons see and use it.",/post/868,2017-11-28T17:38:38.568Z,2017-11-28T17:38:38.568Z,868,3791,AnnotatorStore::TextAnnotation,,,,,,,,,835,2070 12704,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-28T17:37:17.998Z,2017-11-28T17:37:17.998Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2069 12703,v1.0,,"What didn't work so well was: when people spoke in general terms and theoretically/ hypothetically without really feeling the question.  when people didn't really want to be there",/post/6401,2017-11-28T17:36:51.715Z,2017-11-28T17:36:51.715Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2068 12702,v1.0,,"Hello @Pat , welcome! I have heard much about you from @Nadia , but I only discovered your post today.  The ""teaching"" in the title of this comment is not a pun with the Irish ""teachín"", by the way. I was hoping to learn more about building the tiny houses. How do you do it? What is needed to build them? How do they connect with your gardening project? Could you not have made a garden next to a ""normal"" house? If the West of Ireland is anything like rural Italy, there will be plenty of unoccupied property lying around. Also: what kind of climate is compatible with a tiny house?  There is another sense that no pun was intended. I find that teaching (and, reciprocally, learning) is good for the soul, the collective ""soul"" of the community as well as the individual one. In the hacker community there is a strong orientation to knowledge sharing. It is useful, obviously, but it seems that many people do it because it's the right thing to do and because it feels good when done right.",/post/9161,2017-11-28T17:36:22.043Z,2017-11-28T17:36:22.043Z,9161,3791,AnnotatorStore::TextAnnotation,,,,,,,,,768,2067 12701,v1.0,,"How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)",/post/10261,2017-11-28T17:34:38.900Z,2017-11-28T17:34:38.900Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2066 12699,v1.0,,"Hey @WinniePoncelet! The fact that you could set up an education program in addition to your biohack space says a lot with respect to how open you keep your initiative. With questioning sources of funding, why do you guys feel the need to position yourselves so clearly? Do you have to choose how much anti something like government you are? Have you had opportunities to work with big biotech and passed? I'm curious because it looks like hacker values are there from ReaGent inception - openness, freedom, passion.. so even if the model changes or mixes government funds with revenues through lab membership or classes you will still be operating under those things.  With Edgeryders we had always had some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission and speaks for itself. Or: Is bioengineering these days  so controversial that you need to be firm about what you are willing / not willing to do and who you're doing it for?  I would recommend you read a short piece about selling as a moral act by @lasindias and invite @Juanjo_Pina who is experienced in activist market production to give a piece of advice. In the past they were asking if the market is the ""ultimate alternative to the enclosure of fresh ideas into the dependence of public money or a way for converting activist into established business people""?",/post/7536,2017-11-28T17:33:19.678Z,2017-11-28T17:33:19.678Z,7536,3791,AnnotatorStore::TextAnnotation,,,,,,,,,497,2065 12698,v1.0,,"do we think that we could find a funding agency willing to cover some of the costs related to pulling this project together? I look around and see many people on here who have 1st hand experience of dealing with crisies and disasters around the globe. I assume all of us could reach out to at least 2 or 3 major organisations who would be interested in contributing to a large scale  useful project like this. i wonder if we could approach an organisation like Wellcome Trust as a humanities/health cross over project? What do you think @Bridget_McKenzie? Would this be fundable if we polished up the process and deliverable ideas? Cancel Save Annotate",/post/13498,2017-11-28T17:32:48.735Z,2017-11-28T17:32:48.735Z,13498,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2065 12697,v1.0,,"We are a community of freelance developers and other digital professionals who work together online often purely over the internet. We started our project RefugeesWork to help newcomers to connect with locals who are looking for freelancers to outsource some work to them. It all started in August 2015 when lots of newcomers, mainly from Syria, arrived to Germany. It now turns out that it’s not very easy for them to find any kind of employment at all. German companies seem to not need the skills they bring to the table and even if they do have what they are looking for, they often reject people who do not speak German well. We decided to use our digital skills, first of all programming, to help them. We developed a marketplace app where on one side newcomers can register and describe their skills and on the other side local organizations can post their requests for freelancers. We believe work is the best pathway to connect refugees and locals and to date, we have over 300 registrations on the site and big community in Berlin and online. Those Syrians come from all walks of life and some have excellent background, or were running their own business. But we also realized that freelance requests are mostly for freelancers with web and mobile development background. These are the jobs freelancers can do online, they don't need to speak the local language and because all the organizations are trying to automate their processes, there is actually a big need for these professions. We checked our database and available statistics and figured out that most of newcomers are young, they just finished their high school or had to leave in the middle of their studies so they actually lack necessary skills to integrate into the highly specialized German job market. Freelancing would give refugees freedom from discrimination they would face otherwise and freelancers are usually paid way better. The tricky part is in making sure there is a regular flow of work. That is our experience. Refugeeswork.jpg960x638 84.1 KB Therefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don’t even know what to do with all the money. Currently we are also following the work of Sensorica in Canada and Enspiral in New Zealand. Our wish is to create a micro-holding co-ownership model. One part of the motivation is to shield these professionals from all kinds of discrimination that they might otherwise experience. It shields them, for example from the usual politicking among corporate employees who might tend to put such newcomers into a fairly low place. And another part of the motivation is exploring processes and legal ways for cooperation and decision making between many micro-holdings. We try to list all our initiatives inside of Github organization SquatUp. We try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat. All our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us. It’s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other. So if you are a programmer, ”apptivist”, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps. If you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time. And last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016. Links: RefugeesWork - www.refugeeswork.com Online JavaScript school - www.wizardamigos.com Coding Amigos meetup - www.meetup.com/codingamigos Coding Amigos collective - www.codingamigos.com SquatUp - https://github.com/SquatUp/projects/blob/master/README.md Nina Breznik - @ninabreznik Alexander Praetorius - @serapath",/post/769,2017-11-28T17:32:06.173Z,2017-11-28T17:32:06.173Z,769,3791,AnnotatorStore::TextAnnotation,,,,,,,,,736,2064 12696,v1.0,,"Hi @Michael_Dunn and welcome! I think that important detail in your story ""footcare clinic"" will make you and your work easier to be found by other edgeryders around.  I looked up details about the project and found your crowdfunding campaign page.. how come you stopped at food care as a way to describe it best, even though I see you provide many other basic first aid - medical supplies, tea etc. In the past year we met many people who do relief, aid, skilling up work with regugees.. most of the projects are local scale - the Orange House in Athens (15 residents and 50 people around to receive some services), a Refugee 2 Refugee Solidarity Call Center in Thessaloniki, informal and bottom up, and crowdfundedfunded through an international campaign.. or ad hoc backpacks packing to welcome people in Kos Island, Lesbos.. and beyond. Most of them point at the need for better coordination among community leaders, citizens donors, organisations, and other businesses and organisations in the ecosystem.. What has been a major challenge for you as you went on the road?",/post/7915,2017-11-28T17:30:13.839Z,2017-11-28T17:30:13.839Z,7915,3791,AnnotatorStore::TextAnnotation,,,,,,,,,827,2063 12695,v1.0,,"The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.  I am not completely sure we can classify it as ""care"", though. But perhaps it's not even  that important.  @Paul_Free, I know there are plans of community (vegetable) gardening as part of the city of Galway's bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?  Edit Delete No Commentcommunity gardens Cancel Save Annotate",/post/9428,2017-11-28T17:29:44.112Z,2017-11-28T17:29:44.112Z,9428,3791,AnnotatorStore::TextAnnotation,,,,,,,,,641,2062 12688,v1.0,,"There are many people around now, many machines and tables too; there is not a fixed way to deal with spaces. At least, functionality and results make spaces lived by people and changed time to time. Some machines are heavy, but I have seen the 3D printers and other stuff moved easily from one side of the place to the other, or more tables mounted for the newcomers in few minutes. There are also many classes and participants around; so many tables, activities, computers, cables and..of course, people. There is a heterogeneity at work that makes such peculiar activities possible;  half way instructional, half way productive. When it comes to prototyping, mocking-up, or discussing how to define something that is not standard, or mass produced, there is an involvement on different levels and by different actors. It reminds more of a home life than a factory; there are no written rules about how to deal with spaces and home rules as well, as far as I have understood. Anyway everything seems very well organised and scheduled: MIR guests arrived yesterday, but had already two classes: one about AGILE approach by @alessandro_contini and one about Github by @Costantino . It is important that everybody here uses and delivers contents using the same tools and integrating to others within the bigger tasks. Me too, i had to live this ""rite of passage"". There are two considerations now. First, big changes in constituted order of space may bring changes in the way work is organised. Second, there is not a better way than changing the program, or modifying the shopfloor, to see how people react and enact in other ways, de-routinizing the ethnomethods shared at WeMake and whoever may access its social world.",/post/864,2017-11-28T17:27:10.330Z,2017-11-28T17:27:10.330Z,864,3791,AnnotatorStore::TextAnnotation,,,,,,,,,831,2060 12687,v1.0,,"I hope you will get the touring exhibition to have a european leg, and come through Lausanne!  To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help! I left a comment with a few points this morning on the page with the documentary, but just to ask one more silly question: was it actually possible to do any fly-fishing on the Bagmati river??  (are there many fish to catch??  are they edible?)   I did some flyfishing long ago in the great northwest and Montana, with great pleasure, but don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)... Thanks again for sharing, and looking forward to further discussions!",/post/21501,2017-11-28T17:26:08.930Z,2017-11-28T17:26:08.930Z,21501,3791,AnnotatorStore::TextAnnotation,,,,,,,,,543,2059 12686,v1.0,,"This may sound obvious, but I guess one main approach is to find some point in common. Yes, the two people may come from completely different backgrounds, but there are so many aspects to life that, if we look at enough areas of life, it is extremely unlikely that nothing at all is shared. Alternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg See what happened to one person trying this out in this TED talk...",/post/26013,2017-11-28T17:23:47.325Z,2017-11-28T17:23:47.325Z,26013,3791,AnnotatorStore::TextAnnotation,,,,,,,,,624,2058 12592,v1.0,,"Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries. Communities will be taught how to make the filter and the purification drops - made from clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.   Interesting read: http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet Access to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world’s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop. The MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source. The MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa. The impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.",/post/710,2017-11-28T14:22:54.392Z,2017-11-28T14:22:54.392Z,710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,677,2055 12591,v1.0,,feeling of insecurity towards the not yet known,/post/669,2017-11-28T14:22:23.138Z,2017-11-28T14:22:23.138Z,669,3791,AnnotatorStore::TextAnnotation,,,,,,,,,636,2054 12589,v1.0,,"Day 1 Reflexions We did groups of three persons (Anna, Cindy V, Luisa) two from product design and one from gwk. We start to talk about theme of People on the move that was basically in relation with our personal experiences and people around us that exactly are in the them “on move”. In our group we talked about the people that we know they moved to Germany to try to start a new life with a lot of difficulties but in the same time with a lot of dreams and expectations and how this people, including me, had to adapt their life here and learn all over again. We talk too about what thinking people in Germany about this people on the move. For example; how people help other people to learn about how works the things here. Experiences from Anna and Luisa and how they contributed with friends with a Asylum Solicitudes to find more opportunists to study and work in Germany. We talk too about how is the feeling from German people about the foreigns that are coming, some people can understand the situation but other people are very heavy and close to foreign. We try to find many answers to understand why people in Germany having a negative reaction for foreigns and possible solutions “how people turn fear into trust”. I thin personally was a very interesting conversation because we coming from different context and was really god to hear about experiences from a foreign and from locals about the theme “People on the move”. Was important to know both sites to try to find many other possibles ways around this them.",/post/663,2017-11-28T14:21:24.957Z,2017-11-28T14:21:24.957Z,663,3791,AnnotatorStore::TextAnnotation,,,,,,,,,630,2053 12587,v1.0,,"Check this idea https://www.google.it/url?sa=t&source=web&rct=j&url=http://www.cisjournal.org/journalofcomputing/archive/vol6no1/vol6no1_3.pdf&ved=0ahUKEwiWsJ2qvffQAhUC2BoKHUNyA3cQFghBMAk&usg=AFQjCNGWv8ye9eDz8YbpRoss1KcMGNuXAg&sig2=UbefAdHIiZeESxyUpu6u6A A great idea of preventing harm when falling",/post/17293,2017-11-28T14:18:28.863Z,2017-11-28T14:18:28.863Z,17293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6035,2051 12586,v1.0,,"Hey @NADIA @GEHAN and @NOEMI,  In my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum. My experiences have been diverse. I've experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn't harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn't want to ""just say something"" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn't know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly.... (oops).  This particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I'd say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.  I believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what's alive in you at the moment. This worked pretty well.  I also initiated a circle once during a workshop where people didn't really know each other and there wasn't a real theme or topic. In that setting it didn't feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there's always (some) interest),  there wasn't really a common intention or relevance to have this talk together. So I wouldn't organize a circle ""out of the blue"" again.  Most of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it's no problem and good examples will follow.  Most circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other ""teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it's a different form, there's also huge transformation happening during these meetings.  @Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.  And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.  So let me summarize my experiences:   Sharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.  Circles work well around certain (loaded) theme's and communities who work/ life together with a clear invitation.  Listening from the heart, listening from beyond the personal perspective (not taking anything personal) Everything that pops up from a genuine sharing is welcome, even if it's off topic. What's alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).",/post/24534,2017-11-28T14:17:46.509Z,2017-11-28T14:17:46.509Z,24534,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2050 12585,v1.0,,"a good host and facilitator who's comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.",/post/6401,2017-11-28T14:17:04.881Z,2017-11-28T14:17:04.881Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2050 12584,v1.0,,"I think there is a lot in the medical field which is extremely bad to codify in(to) written language but can be learned face to face. I would think a ""social network of people who went through your problems"" would be useful particularly in regard to doctor-patient info responsibilities (the doctor is pressed for time and may not be able to relate to a patients situation as well as a ""veteran"" from the network). Edit Delete No Commentcare networks Cancel Save Annotate",/post/20397,2017-11-28T14:16:31.192Z,2017-11-28T14:16:31.192Z,20397,3791,AnnotatorStore::TextAnnotation,,,,,,,,,491,2049 12582,v1.0,,"(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It is very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.",/post/10261,2017-11-28T14:15:08.197Z,2017-11-28T14:15:08.197Z,10261,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5430,2047 12581,v1.0,,"Lack of structures/facilities; Security; How locals perceive students; Perception of the district.",/post/7571,2017-11-28T14:14:05.282Z,2017-11-28T14:14:05.282Z,7571,3791,AnnotatorStore::TextAnnotation,,,,,,,,,799,2046 12580,v1.0,,Interactive Exhibitions: for us is really important have a place in which people can discover what usually happens inside polimi. Those events will be our physical touchpoints to present to the community our ideas/mock-up/prototype and receive feedbacks. For the community there will be the possibility to evaluate our proposal and promote the development of the best one.,/post/30614,2017-11-28T14:11:37.901Z,2017-11-28T14:11:37.901Z,30614,3791,AnnotatorStore::TextAnnotation,,,,,,,,,799,2045 12575,v1.0,,"But, in light of the collaboration with Anders this week, @Alberto , this seems like it would be a really cool dataset to compare with Open Care. Similar themes, different structure ---- could be great. Also such a cool initiative! Thanks for sharing @WeMHNurses_Team !",/post/16270,2017-11-28T14:09:25.479Z,2017-11-28T14:09:25.479Z,16270,3791,AnnotatorStore::TextAnnotation,,,,,,,,,518,2043 12574,v1.0,,"I'd like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma's through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings ""Circles of openness"".  Some of the meetings were extremely fruitful and transformative. Others were okay and sometimes a bit boring. What determined the quality of the meetings was the openess and willingness to share from an honest and authentic place, and to really be curious to share what feels exciting and challenging to someone. During the meetings where the mayority of the participants was willing to listen and feel into what's relevant at that time, there was a magical openness and connection among the group. I truly enjoyed these meetings and they were one of the most beautiful shared moments of my life. What I also enjoyed is the power to transform through awareness. By expressing a doubt or a challenge and openly looking at it, it became possible to take distance from the perspective and let go of it. Also the awareness of the group seemed to stimulate and hold space for sharing these vulnerable perspectives.  What didn't work so well was: when people spoke in general terms and theoretically/ hypothetically without really feeling the question.  when people didn't really want to be there",/post/6401,2017-11-28T14:08:38.324Z,2017-11-28T14:08:38.324Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2042 12573,v1.0,,"Il tuo progetto in un tweet* Doc.doc è la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica più completa possibile. Bisogno o problema che il tuo progetto cerca di risolvere*  Sempre di più patologie complesse necessitano della collaborazione tra molti specialisti della cura. A questi diversi professionisti manca però la possibilità di comunicare e condividere informazioni su una piattaforma dedicata. L’attuale procedura di lavoro evidenzia i seguenti problemi: Delega al paziente la responsabilità nel fornire le corrette informazione relative al proprio caso. Rende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi. Non permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all’incontro con lo stesso. Doc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura. Inoltre la progettazione UX è stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un’email. Utente finale, individui e/o comunità di riferimento* Il prodotto è pensato per i medici, ma i maggiori benefici andranno ai pazienti. Doc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (più pianificazione, più chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando. Soluzione, breve descrizione del progetto* Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. Inoltre, in una fase successiva, sarà possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro categorizzazione per patologia. Tecnologie utilizzate o che vorresti utilizzare* Lo strumento che abbiamo progettato si esprimerà attraverso un’applicazione mobile per ambienti Android e iOS, che verrà quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l’utilizzo del software il più immediato possibile. E’ comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform. Il servizio cloud potrà essere sviluppato in NodeJS, con basi dati MongoDB e MySQL. Sito web (o social network) In fase di pianificazione. Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.",/post/33729,2017-11-28T14:07:49.723Z,2017-11-28T14:07:49.723Z,33729,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6578,2041 12572,v1.0,,"ur 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions. The representative of City of Porto for example, mentioned their project called “Bridge to the Future”. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn’t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.",/post/24477,2017-11-28T14:07:05.387Z,2017-11-28T14:07:05.387Z,24477,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,2040 12571,v1.0,,"Thank you @Maria! I see a great divide starting at the public level - not just elderly as being category in need, but also usual special considerations for them seeing pushback by other people, younger people. For example taking public transportation at rush hours. Imagine crowded places, everyone wants to get somewhere and people getting territorial - the first to get on the bus, to punch their ticket, to find a spot to sit down etc, but younger people frustrated that not everyone needs to get somewhere. The discourse I hear in my hometown ""but why, older, health sensitive, and complaining as they usually do, why do they take the bus on the worst hour? Can't they wait for a 9 or 10 AM?""  You may think this is a very provincial fight, but so telling to me!   I believe this is a divide which in essence is heavily induced by the very policy discourse - in my country it's always been the fight between the leftist pensioneers favouring party versus the more liberal ones, and elections reflect just that. I've yet to see in my immediate surroundings good projects catering to this gap.. A similar point was made by @Alex_Levene here, talking about the ideological conflict we may end up having with our very own grandparents whose worldviews are frustratingly (and perhaps understandably) last century.",/post/26962,2017-11-28T14:04:22.593Z,2017-11-28T14:04:22.593Z,26962,3791,AnnotatorStore::TextAnnotation,,,,,,,,,756,2040 12570,v1.0,,"Hey Edgeryders,  I'm developing a course to become an energetic master and conscious creator. It's a self care course to become aware of how beliefs and perceptation relate to how you feel. Here's a first video I shot last week.  Conscious creator from Ewoud Venema on Vimeo. You can find a more elaborate on my Academy where I'll continue to share these courses (probably). I hope you find it inspiring and clarifying. If you like them, you can subscribe to my newletter or follow me on vimeo.  Let me know how you feel! @benmoore?utm_medium=referral&utm_campaign=photographer-credit&utm_content=creditBadge"" rel=""noopener noreferrer"" style='background-color:black;color:white;text-decoration:none;padding:4px 6px;font-family:-apple-system, BlinkMacSystemFont, ""San Francisco"", ""Helvetica Neue"", Helvetica, Ubuntu, Roboto, Noto, ""Segoe UI"", Arial, sans-serif;font-size:12px;font-weight:bold;line-height:1.2;display:inline-block;border-radius:3px;' target=""_blank"" title=""Download free do whatever you want high-resolution photos from Ben Moore""> Ben Moore",/post/876,2017-11-28T14:03:52.749Z,2017-11-28T14:03:52.749Z,876,3791,AnnotatorStore::TextAnnotation,,,,,,,,,843,2039 12569,v1.0,,Combating failure in education,/post/6293,2017-11-28T14:03:18.313Z,2017-11-28T14:03:18.313Z,6293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6260,2039 12568,v1.0,,"Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.  I can explain it all in detail, but probably it is best to discuss what you actually NEED first. 20170626_120731 (2).jpg2500x1608 404 KB ( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ). Thia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc. I like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple. Another thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic. Edit Delete No Commentaudio recording Edit Delete No Commentdesign intervention Cancel Save Annotate",/post/28471,2017-11-28T14:02:54.049Z,2017-11-28T14:02:54.049Z,28471,3791,AnnotatorStore::TextAnnotation,,,,,,,,,816,2039 12567,v1.0,,"Hi @mariekebelle I may need a bit more information before even trying to share any suggestion... First thing, I would like to ask you to confirm my understanding. There are two separate issues that would need to be faced: 1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable] 2) how to enroll in a doctorate as an already senior professional The latter is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol). Can you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation... In general, no one size fits all in academic careers... It's my humble opinion, but for the double issue you are bringing to our attention, I am somewhat skeptical that anyone will be able to say ""get in touch with X"" or ""look up on Y""... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.",/post/14667,2017-11-28T14:02:18.704Z,2017-11-28T14:02:18.704Z,14667,3791,AnnotatorStore::TextAnnotation,,,,,,,,,798,2039 12566,v1.0,,"Hey @WinniePoncelet! The fact that you could set up an education program in addition to your biohack space says a lot with respect to how open you keep your initiative. With questioning sources of funding, why do you guys feel the need to position yourselves so clearly? Do you have to choose how much anti something like government you are? Have you had opportunities to work with big biotech and passed? I'm curious because it looks like hacker values are there from ReaGent inception - openness, freedom, passion.. so even if the model changes or mixes government funds with revenues through lab membership or classes you will still be operating under those things.  With Edgeryders we had always had some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission and speaks for itself. Or: Is bioengineering these days  so controversial that you need to be firm about what you are willing / not willing to do and who you're doing it for?  I would recommend you read a short piece about selling as a moral act by @lasindias and invite @Juanjo_Pina who is experienced in activist market production to give a piece of advice. In the past they were asking if the market is the ""ultimate alternative to the enclosure of fresh ideas into the dependence of public money or a way for converting activist into established business people""?",/post/7536,2017-11-28T14:01:29.638Z,2017-11-28T14:01:29.638Z,7536,3791,AnnotatorStore::TextAnnotation,,,,,,,,,497,2039 12562,v1.0,,"Hello everyone, as a followup to my previous post on education, I want to dive a little deeper for our Fellowship post. ReaGent is an open biolab where anyone from any background can tinker with biology. We organize practical workshops for children from all backgrounds to get them in touch with biology in a fun way. We do this because the role of biological technologies will become increasingly bigger as we move towards a circular society. Education plays a fundamental role in allowing people to be a part of this process. Why are we doing this? My personal motivation is best shown through a memory from my biotechnological engineering studies. We went on a company visit to Monsanto. At the time, I was not particularly aware of the dirty business they were in. We got to see the production facility, water treatment installations and large glyphosate tanks, which are all used to produce Roundup. During the luxurious lunch, which Monsanto employees also attended, a fellow student whispered to me: “how can they sleep at night, considering they work for such a questionable company?”. That was the only thing that I heard about the issue from anyone at school, both teachers or students. I didn’t (now to my shame) know anything about Monsanto at the time and had to look it up myself afterwards. I was baffled and disgusted. What are we teaching our students? Aside from the perspective we teach, relevance is important as well. I hated biology in high school. If you had told me I’d be a bioengineer someday, I would have laughed in disbelief. The content of biology class often remains descriptive (you learn about the parts of a plant cell), while higher education and jobs are all about application (you use these plant cells to grow something useful, like a building). A child that likes engineering, design and coding should consider studying biology. This is fundamental if we want enough people to develop sustainable technologies for the future. IMG_20160831_204348_0.jpg2500x1875 357 KB ReaGent has been going for about a year. We’ve experimented with several ways to bring biology closer to society. We've had children work with enzymes, build their own microscope, extract DNA and much more. The coming year, we will expand to reach more children and this scale-up entails several challenges. Cell division As a first step, we have decided to continue the project under a new name: Ecoli. The DIY biolab in Ghent will stay as ReaGent, while Ecoli will provide biology education to children and underprivileged groups. A DIYbio space or biohackerspace and child education are not very compatible regarding administrative or legal aspects, like insurance and licenses. Another reason for the split is the different story we want to tell. The story to inspire a citizen scientist or biohacker is different from the story to inspire a child. Moreover, DIYbio has had issues with public perception. We find it important that knowledge is spread equally and that everyone can participate in an open discussion. We would not like a distorted image to shape decisions and opinions of people, leading them to self-censor and potentially miss out on learning opportunities. The creativity, mindset and ethics present in a DIYbio lab strengthen and form the way we educate. We feel like we get the benefits without the drawbacks if the DIY biolab and educational project are two separate entities. Funding education in a fair way The question that I posed in the initial post was on how to fund education outside of, but as an addition to, the traditional state-funded system. Making a project like this financially sustainable is a challenge. The groups where we have our biggest impact, and thus create the most value, are also least capable of paying for it. We have set up a way to partially fund this by doing workshops in the classical school circuit. Our impact there is equally important and they can afford to pay (a little) for our services. It remains to be seen if we can sustain ourselves in the long term. Chances are, we will have to find funds elsewhere –government or industry. Government is the obvious choice, since education falls under their responsibility. Though, as often with government, it would be naïve to count on funding. Additionally, it entails somewhat of an administrative burden (especially in Belgium and the EU) and it’s a slow process. So, do we want to cooperate with big biotech companies? How will this affect what we want to achieve with Ecoli? Do we risk that public opinion, or opinions of parents, ultimately influences what a child learns? Biotech has plenty of shortcomings –funding and market mechanisms, ethical, ecological and the list goes on. But it’s a technology, a tool that can be used for good and bad. The drawbacks that I mentioned are effects of the way it is used and not inherent to the technology. If we are scared of biotech, it is because we are scared of ourselves, and rightfully so. We still have the option of telling a nuanced story. Especially if we can highlight these issues during education, which is a rarity. My personal Monsanto experience is only one example. Caring with science More fundamentally, care is everyone’s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible’s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it’s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there’s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it’s communicated. This is only one of plenty of groups that don’t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover. Beyond the tools We are likely at the start of a similar revolution like the digital revolution. That means we have the chance to try and anticipate this time round; to try and prepare people; to embed values, like openness and inclusiveness, that make sure we don’t need to fix the problems of accessibility and literacy afterwards. What we do can be considered an experiment and in many ways, it’s not necessarily about biology. We hope that, in addition to growing a basic biological literacy, we help to build a shift in attitude. When we watch global developments, it is clear that the biggest problems we face don’t require technological solutions. Even problems that are directly caused by a misuse of technology, like climate change, could be headed towards a solution by changing our attitude, especially when combined with more sustainable bio-based technologies. A change in behaviour is not likely to happen overnight, but if we can build institutions that promote caring, collaboration and trust, we might be on our way. We are engaging with the Edgeryders community because we hope our actions can be part of a bigger solution. One where different actors work on improving their respective fields. By sharing experiences of our project with the Edgeryders community we hope we can grow more resilience for everyone. We will be attending the workshop in Brussels on the 24th of September and would be delighted to meet you! If you connect to our story, let us know! We love feedback and discussing the subject. Here’s some other questions that occupy our mind. Should this type of initiative stay an addition to the state-funded system? Is this form of bottom-up activism, independent of the government or in spite of it, ultimately a desirable strategy? The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016. Edit Delete No Commentcitizen science Cancel Save Annotate",/post/530,2017-11-28T14:00:02.854Z,2017-11-28T14:00:02.854Z,530,3791,AnnotatorStore::TextAnnotation,,,,,,,,,497,2039 12561,v1.0,,"@Big_Bang_Schools welcome from me too! I'm a bit late to the party, but I'm curious if you also work with secondary and high schoolers? My mum teaches at a pretty mainstream school in Romania and was just telling me the other day that they would love to partner up with schools abroad for creative exchanges betweel pupils. Is that something you would consider? Also, if you're involved in international educational projects and could use a partner in this area, let me know!",/post/21394,2017-11-28T13:59:02.463Z,2017-11-28T13:59:02.463Z,21394,3791,AnnotatorStore::TextAnnotation,,,,,,,,,728,2039 12559,v1.0,,"One very illuminating aspect of this work is that the focus goes beyond the individuals directly involved. TICAH has looked to help educate the wider community to understand what had happened and how to support it. This was necessary as without  intervention communities often closed up, and rather than accepting the survivor back into social contact they viewed the returning survivor with unease and distrust, creating a situation in which survivors sometimes found themselves ostracised, left to deal with the experience alone.",/post/553,2017-11-28T13:58:30.699Z,2017-11-28T13:58:30.699Z,553,3791,AnnotatorStore::TextAnnotation,,,,,,,,,520,2039 12553,v1.0,,"Well done Marco, @Irene_Lanza & Henrik. And welcome on board to Irene, new Edgeryder. I've only heard of teaching echolocation ""manually"" via examples like Daniel Kish's (""Batman"") school for children. And through handheld devices and more recently a mobile app (?), but those are mediating the environment, as you rightly point out. Kudos for the open approach, and thinking about community members who might be interested in this. Maybe Alison Smith from Pesky People..? hm.",/post/6898,2017-11-28T13:56:31.704Z,2017-11-28T13:56:31.704Z,6898,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5084,2038 12505,v1.0,,unMonastery Matera,/post/6272,2017-11-28T12:58:33.285Z,2017-12-02T16:05:40.004Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2622 12504,v1.0,,Collaboration,/post/6272,2017-11-28T12:58:09.164Z,2017-12-02T16:05:39.996Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2621 12503,v1.0,,human resources,/post/6272,2017-11-28T12:57:56.722Z,2017-12-02T16:05:39.988Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2620 12502,v1.0,,Belgian trauma therapists,/post/6272,2017-11-28T12:57:25.784Z,2017-12-02T16:05:39.980Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2619 12501,v1.0,,Hackers,/post/6272,2017-11-28T12:57:20.225Z,2017-12-02T16:05:39.972Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2618 12500,v1.0,,social care,/post/6272,2017-11-28T12:57:07.961Z,2017-12-02T16:05:39.963Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2617 12499,v1.0,,affordable health,/post/6272,2017-11-28T12:57:03.776Z,2017-12-02T16:05:39.955Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2616 12498,v1.0,,The Reef,/post/6272,2017-11-28T12:56:56.967Z,2017-12-02T16:05:39.947Z,6272,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6239,2314 12368,v1.0,,"Hi again @Federico_Monaco, wow it struck me to see similarities in our approaches - the open approach to community learning in particular, and the focus on process. It seems you're more interested in teaching students collaborative practices than growing their knowledge of healthcare, which should follow naturally as an outcome (by the way do you measure that in any way?). I have looked for the community interactions but the only space I found was this one (empty?) https://puntozero.github.io/community.html Should I go somewhere else? One last point for now, your timeline follows closely OpenCare as well. Is it possible for non-registered students to participate in the webinars? If so, we might consider partnering up - as many community members here speak Italian and could be interested to join.",/post/8059,2017-11-28T02:27:18.151Z,2017-11-28T02:27:18.151Z,8059,3791,AnnotatorStore::TextAnnotation,,,,,,,,,653,2036 12367,v1.0,,"Check: The Curriculum https://www.youtube.com/playlist... The Support Chat https://gitter.im/codingamigos/learners The regular berlin bases support face2face meetup http://www.meetup.com/de-DE/codingamigos/ Don't count on the government to magically create jobs. Get yourself some digital skills and start RIGHT NOW!  Hope to see some of you people in the chat or in person at one of our regular meetups",/post/29067,2017-11-28T02:26:37.641Z,2017-11-28T02:26:37.641Z,29067,3791,AnnotatorStore::TextAnnotation,,,,,,,,,670,2036 12366,v1.0,,"The drone would pick up samples and could do deliveries, and could intermittently cover a very large region. Its visit frequency would probably be limited mostly by charge time of the electric drive via solar (needs approx 1kWh for a 100 km flight with 3 kg payload). I've made two low budget rugged versions with slightly different concept of operations here",/post/16393,2017-11-28T02:25:34.693Z,2017-11-28T02:25:34.693Z,16393,3791,AnnotatorStore::TextAnnotation,,,,,,,,,701,2035 12363,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL. Website",/post/866,2017-11-28T02:23:13.063Z,2017-11-28T02:23:13.063Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,2034 12360,v1.0,,"Since last week, Madagascar has been classified nation in disaster. The method of @Nick_Tavitashvili was helpful thanks for your advice @Alberto. Almost the majority of The North of Madagascar is in deep water. Some NGO who can acced with their cars in some places to bring some help,  but there are many unaccessible places still need help. This link below shows how it's going on in one of the place where  the cyclone Enawo went.  usaid.gov Responding to Disaster: Feeding Hundreds Uprooted by Cyclone Enawo",/post/24213,2017-11-28T02:18:05.383Z,2017-11-28T02:18:05.383Z,24213,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,2033 12359,v1.0,,"Thank you @Natalia_Skoczylas and @Alberto Being a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.",/post/20497,2017-11-28T02:17:13.794Z,2017-11-28T02:17:13.794Z,20497,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,2033 12358,v1.0,,"""grief is a form of disability..."" I think this is a very interesting suggestion Patrick, that may benefit from great insight. I also read a very interesting acticle about how it is often harnessed by communities to help deliver change as well: slate.com LGBTQ Activists Have Always Turned Grief Into Political Action. After Orlando,... It was a Tuesday, over a week after the killings, when they finally opened the immediate area around Pulse to the public. The June 12 massacre at the O ... Well worth a read",/post/23507,2017-11-28T02:16:31.952Z,2017-11-28T02:16:31.952Z,23507,3791,AnnotatorStore::TextAnnotation,,,,,,,,,661,2032 12357,v1.0,,"Are you aware of the huge international work on ICF? en.wikipedia.org International Classification of Functioning, Disability and Health The International Classification of Functioning, Disability and Health (ICF) is a classification of the health components of functioning and disability. The ICF received approval from all 191 World Health Organization (WHO) member states on May 22, 2001, during the 54th World Health Assembly. Its approval followed nine years of international revision efforts coordinated by WHO. WHO's initial classification for the effects of diseases, the International Classification of Impairments, Disabilities,...",/post/13939,2017-11-28T02:15:31.621Z,2017-11-28T02:15:31.621Z,13939,3791,AnnotatorStore::TextAnnotation,,,,,,,,,661,2032 12356,v1.0,,"“Don’t assume a person with a disability is easily offended.”                                                                                      —“Disability Etiquette” from Wikipedia.  At the beginning of the research, we asked ourselves, “What is disability?”According to Cerebral Palsy: A Guide for Care by Bachrach Miller, the terms regarding disability are defined as such: “Impairment is the correct term to use to define a deviation from normal, such as not being able to make a muscle move…Disability is the term used to define a restriction in the ability to perform a normal activity of daily living which someone of the same age is able to perform. … Handicap is the term used to describe a child or adult who, because of the disability, is unable to achieve the normal role in society commensurate with his age and socio-cultural milieu…All disabled people are impaired, and all handicapped people are disabled, but a person can be impaired and not necessarily be disabled, and a person can be disabled without being handicapped.”[1] Nowadays, more and more people begin to pay attention to how to address people with disabilities. The use of “people-first language”* in English aims to “avoid the subconscious dehumanization when discussing people with disabilities”[2]. However, as the researches continue and after we interviewed a few people with disabilities, we soon realized that language is not really a problem. Every person we interviewed all said that the word “disability” doesn’t bother them at all and they don’t mind being called “disabled” because it is a fact. (Interview with Raul Krauthausen by @Moriel). So here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies? Another example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don’t think otherwise to begin with. Could it be that some of us—people without physical disabilities—think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people’s opinion.  For example: use “a person with a vision impairment” instead of “a blind person” 1.http://gait.aidi.udel.edu/gaitlab/cpGuide.html 2.https://en.wikipedia.org/wiki/People-first_language This is a group project on going #able with @Moriel, @ChristineOehme and @Luise Kröning",/post/694,2017-11-28T02:14:53.809Z,2017-11-28T02:14:53.809Z,694,3791,AnnotatorStore::TextAnnotation,,,,,,,,,661,2032 12354,v1.0,,"I responsed to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation of a person with the actual person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are nostalgia rather than replication, which is probably why concept behind the BM episode was so arresting - it sought to replace the dead rather than remember him.  Cancel Save Annotate",/post/22330,2017-11-28T02:13:25.365Z,2017-11-28T02:13:25.365Z,22330,3791,AnnotatorStore::TextAnnotation,,,,,,,,,515,2030 12353,v1.0,,"A Do-It-Yourself Revolution in Diabetes Care Parents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin. This is pretty amazing: an entire open source ecosystem, from sensors to apps to insulin, emerging from patients.  Where do we want to store all this stuff?",/post/5392,2017-11-28T02:12:27.800Z,2017-11-28T02:12:27.800Z,5392,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5359,2029 12352,v1.0,,"Curve in response to the #HackOnWheels brief.  curve-hero-nelson-700.jpg700x1078 184 KB Also are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives here in Glasgow now",/post/23379,2017-11-28T02:02:18.926Z,2017-11-28T02:02:18.926Z,23379,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6339,2028 12351,v1.0,,"Idea is about helping blind people about the outside world’s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API’s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones) What are the main aspects of this project? Our goal is to help the blind people. Our perspective is to find a way to eleminate the difficulties they face everyday. How to? We can use a eyeglasses with earphones - headsets and eye bandages blind smart sticks Techonolgy out there infrared sensors Arduino + 3 ultrasound sensors+ buzzer +motor - Another chipset + RFID + ultrasound sensor Project Halo: Rigid frame (I used a round embroidery frame) Female headers (for the sensors) Ultrasonic Rangefinders (Parallax Ping Rangefinders) - Wire (Wires with male and female leads are conve-nient) Glue Twist ties to tidy up wiring Soldering station Male headers (for creating a bridge to feed 5v and ground RJ-45-Term Screw Terminal (2) - RJ-45 Cable Marker Motor Modules: Vibration Motors (5) - Motot, VIB,3V/60mA, 7500RPM Grid-Style PC Board Male header pins Motor ""shroud"" (to prevent things getting sucked into the motor) Haptic Headband: Headband Sewing Kit 5 Motor Modules Wire (Wires with male and female leads are conve-nient) Safety Pins Female headers Soldering station RJ-45-Term Screw Terminal (2) - RJ-45 Cable Marker Wiring the Microcontroller: Arduino Mega 2560 Wire (Wires with male and female leads are conve- nient) 5 LEDs Darlington IC - ULN 2803A - 2 port screw terminal 9v battery 5v regulator Building the Software: USB cable PC (for editing code and downloading to Arduino) Arduino Arduino development environment (www.arduino.cc) - Source Code, modified Ping.h library Smart Blind Stick - Instructables An Arduino uno. A Ultrasonic sensor( HCSR04 ). A Mini breadboard. A 9 volt battery. A 9 volt battery connector. DC male power jack. A Buzzer. Some Jumper wire. An Broken cellphone from scratch. A Toggle switch. Other tools and parts used in this project : 3/4 inch diameter PVC pipe (used for making the stick). 3/4 inch diameter PVC elbow. Insulation tape. Some small screws for mounting Arduino. Screwdriver. Utility knife. Instant adhesive Glue. A Box to Put your Arduino and other electronics, or think about it later. XploR cane The 'XploR' mobility cane was developed at Birming- ham City University It uses a camera and built-in sensors to scan for faces in a crowd If it recognises a face the cane vibrates and guides user with audio cues Sensors work up to 32ft (10 metres) and faces are stored on an SD card Read more: http://www.dailymail.co.uk/science- tech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family -crowd-guides-blind-user-exact-location.html#ixzz4L 51k7yJX What have been done? http://imwm.org/the-infeared-walking-cane-by-parasuraman-kannan/ http://arduinoart.blogspot.it/2015/05/project-guide-stick-for-blind-people.html http://www.instructables.com/id/Smart-Blind-Stick/ http://www.instructables.com/id/Haptic-Feedback-device-for-the-Visually-Impaired/ http://www.dailymail.co.uk/sciencetech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family-crowd-guides-blind-user-exact-location.html",/post/770,2017-11-28T02:00:30.573Z,2017-11-28T02:00:30.573Z,770,3791,AnnotatorStore::TextAnnotation,,,,,,,,,737,2028 12350,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL.",/post/866,2017-11-28T01:58:57.576Z,2017-11-28T01:58:57.576Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,2028 12349,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-28T01:58:05.131Z,2017-11-28T01:58:05.131Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,2028 12348,v1.0,,"Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.  I can explain it all in detail, but probably it is best to discuss what you actually NEED first. 20170626_120731 (2).jpg2500x1608 404 KB ( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ). Thia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc. I like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple. Another thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic.",/post/28471,2017-11-28T01:57:28.317Z,2017-11-28T01:57:28.317Z,28471,3791,AnnotatorStore::TextAnnotation,,,,,,,,,816,2028 12347,v1.0,,"I have already made a small collection of mp3 players, ear plugs for listening, some spare parts, and solar for charging the batteries. I have started to test them for reliability and easiness to repair and I am hopeful that most will survive many months before they have to be repaired. I think the cost of the audio lecture was 0.001-0.0005 EUR per minute (+ the cost of recording the lecture). The mp3 players cost about 3 EUR but the memory card also cost 1 EUR for 1 GB of storage (which is plenty). Sooo: 1 Player needs to run for 4000 to 8000 minutes (66.7 hours). A fresh player will have to charge about 15-20 times for that. So that means they have to survive about 3 weeks of one use per day on average. If they survive longer or get repaired cheaply (very possible) then it gets significantly cheaper. If you know what illustrations are needed those could be printed on a robust support (e.g. playing cards or similar). Some of them could also be designed to be copied by hand (e.g. as a memory exercise). A couple of advantages: you know what gets taught kids could be working at the same time, or be at home less humans in the loop (has some disadvantages, but is perhaps helpful against corruption) no literacy required Let me know if you are interested. I have much more thought on that but I really need advice from someone who knows the real problems in Cameroon much better.",/post/26068,2017-11-28T01:56:35.287Z,2017-11-28T01:56:35.287Z,26068,3791,AnnotatorStore::TextAnnotation,,,,,,,,,816,2028 12346,v1.0,,"Il tuo progetto in un tweet* Doc.doc è la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica più completa possibile. Bisogno o problema che il tuo progetto cerca di risolvere*  Sempre di più patologie complesse necessitano della collaborazione tra molti specialisti della cura. A questi diversi professionisti manca però la possibilità di comunicare e condividere informazioni su una piattaforma dedicata. L’attuale procedura di lavoro evidenzia i seguenti problemi: Delega al paziente la responsabilità nel fornire le corrette informazione relative al proprio caso. Rende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi. Non permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all’incontro con lo stesso. Doc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura. Inoltre la progettazione UX è stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un’email. Utente finale, individui e/o comunità di riferimento* Il prodotto è pensato per i medici, ma i maggiori benefici andranno ai pazienti. Doc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (più pianificazione, più chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando. Soluzione, breve descrizione del progetto* Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. Inoltre, in una fase successiva, sarà possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro categorizzazione per patologia. Tecnologie utilizzate o che vorresti utilizzare* Lo strumento che abbiamo progettato si esprimerà attraverso un’applicazione mobile per ambienti Android e iOS, che verrà quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l’utilizzo del software il più immediato possibile. E’ comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform. Il servizio cloud potrà essere sviluppato in NodeJS, con basi dati MongoDB e MySQL. Sito web (o social network) In fase di pianificazione. Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.",/post/33729,2017-11-28T01:54:54.700Z,2017-11-28T01:54:54.700Z,33729,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6578,2028 12345,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-11-28T01:52:54.967Z,2017-11-28T01:52:54.967Z,824,3791,AnnotatorStore::TextAnnotation,,,,,,,,,791,2028 12344,v1.0,,"A minimal self-diagnosis kit, that can be extended by modules. The basic version would be perhaps something like ""where there is no doc/dentist"" in an adapted audiobook format. This would not require literacy and could be provided via extremely cheap mp3 player (sell for <1 USD) + memory card (2-3 USD for library size) + minimal solar charger to trickle charge the battery (1-5 USD). Next step up would be a recording function, a sampling kit, and a photo kit. Next step from that would be a full smartphone with some diagnostic hardware. The smartphone would be important to catch many of the cognitive bias pitfalls associated with self-diagnosis*. But both these could be intermittently provided via a long range drone delivery:",/post/16393,2017-11-28T01:51:51.377Z,2017-11-28T01:51:51.377Z,16393,3791,AnnotatorStore::TextAnnotation,,,,,,,,,701,2028 12343,v1.0,,"Hello there,   I am copying a story on behalf of Filippo, a volunteer to the community of  pemphigus, an auto-immune disease that affects skin layers, causing them to detach, form blisters, among other complications.   Filippo will join the conversation, but we wanted to speed up the onboarding barrier, while link the story to other software volunteers whom we met at the MakerFaire in Rome.  Lets see how his works "" Just as first input, a simple idea that is needed is a “scratching indicator”?This is something missing in the scenario, I mean some app that using a wearable device (like a apple watch or something designed ad hoc – a simple arduino like mb with an accelerometer should be sufficient) can identify the scratching movement of the arm an apply an indicator.The objective is to measure a quantity (a number) that indicate the duration and the intensity of scratching activity of te patient, building a sort of standard to be used for that  that kind of patoloty and patients to be used to analyze the efficacy of specific therapy on one of the worst and less understood symptoms, the itching.  This could be the starting point of this app for pemphigus/pemphigoid patients, (but not limited to them), that can be integrated with other functionalities aiming to “measure” efficacy of therapies granting an indication of the status of the patient. Do you think this could be a valid input to start the discussion?""",/post/799,2017-11-28T01:51:01.922Z,2017-11-28T01:51:01.922Z,799,3791,AnnotatorStore::TextAnnotation,,,,,,,,,766,2028 12342,v1.0,,"The basic idea was to create a prototype consisted of two already invented tangible objects. The eyeglasses which give you the possibility to focus by moving the lances and the one that measures your myopia and presbyopia using the size of your retina. The basic idea was to implement one to another and using an algorithm with the application on your phone you  could measure firstly your problem and afterwards adjust the focus depending on the measurements and making your eyesight perfect  almost all the time. The eye sight becomes blurry as years go by and everyone gets older. 0010.jpg2500x1406 104 KB The technology is simple as you can just focus manually too the lens either if you are trying to read a book for a long time and your eyes are focused on close objects. Using the adjustor the two lens move or slide so they come to a point where they totally focus with the poins of myopia or presbyopia you might have and you can see clearly. The concept of the application was easier as it enables you to measure the points while you are focusing the glasses yourself. This gives you an idea of the size of your problem without necessary have to go to a doctor.",/post/780,2017-11-28T01:50:14.272Z,2017-11-28T01:50:14.272Z,780,3791,AnnotatorStore::TextAnnotation,,,,,,,,,747,2028 12341,v1.0,,"Stress Management collar is one of our ideas about stress. Nowadays everyone knows that stress is one of the most important problems of our lives and most difficult to manage it totally. Our idea is mostly for manage it during the traffic jams. The collar have multiple features on it and might be a solution to help some of us. The basic idea was to create a flexible tangible object like collar which would do some kind of massage to the wearer to lower the tension of the moment. Another important feature is the ability to spray every a specific time adjusted by us a smell that what researches have shown relax the person (grass, flower, forest etc). img011.jpg2500x1768 229 KB The last feature this collar has is the ability to stick a usb driver or connect with spotify  and connect with blue-tooth with the cars’ media player so you can listen to your favourite music anytime while you are driving. The collar could also be connected with your mobile so you can “monitor” your stress levels to be aware.",/post/778,2017-11-28T01:49:42.462Z,2017-11-28T01:49:42.462Z,778,3791,AnnotatorStore::TextAnnotation,,,,,,,,,745,2028 12340,v1.0,,"Parkinson's, as we all know, is a serious ailment for which there has not been a cure yet. What makes the ailment even more intimidating is that the symptoms keep varying from person to person and we never know in what way is going to affect the patient. Wave, as our team is called, is trying to make someone suffering from parkinson's and their caregiver's lives easier using technology that we have today at our disposal. The first signs of someone having parkinson's are the motor symptoms. These symptoms include essential tremors in hands and other parts of the body. These symptoms further advance overtime enough that it makes it difficult for them to perform the easiest of daily tasks. The symptoms occur when the level of dopamine, the chemical responsible for body movement coordination, reduces in the brain. Medication is used to replenish the dopamine levels or fake the action of the dopamine. With our prototype, we propose to make the lives of someone with parkinson’s simpler. Our prototype will be wearables that can monitor the motor symptoms of the patient. Our prototype will monitor the common symptoms like tremor and stiffness in the human body, and if the symptoms are showing an uncommon behaviour, the prototype can beam the information to the smartphone to remind the patient or the caregiver to take the medicines to or to see the neurologist. Parkinson's Sketch.jpg600x1270 104 KB Our goal is to help someone who has recently started showing symptoms of parkinson’s to track their motor symptoms and also prolong the initial stage as much as possible. A lot of research-based apps and services are available today that help in better understanding the symptoms of Parkinson’s. Apps like mPower and Parkinson’s Central are monitoring the patient’s health from their rdaily movements and tasks along with daily or weekly surveys. With our prototype, we not only propose to help in tracking symptoms to better understand the disease but we also want to help the patient in the best way possible.",/post/768,2017-11-28T01:49:02.711Z,2017-11-28T01:49:02.711Z,768,3791,AnnotatorStore::TextAnnotation,,,,,,,,,735,2028 12339,v1.0,,"A Do-It-Yourself Revolution in Diabetes Care Parents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin. This is pretty amazing: an entire open source ecosystem, from sensors to apps to insulin, emerging from patients.  Where do we want to store all this stuff?",/post/5392,2017-11-28T01:45:14.200Z,2017-11-28T01:45:14.200Z,5392,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5359,2028 12338,v1.0,,"Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries. Communities will be taught how to make the filter and the purification drops - made from clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.   Interesting read: http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet Access to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world’s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop. The MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source. The MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa. The impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.",/post/710,2017-11-28T01:44:38.994Z,2017-11-28T01:44:38.994Z,710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,677,2028 12337,v1.0,,"PROJECT PROPOSAL In order to achieve our goal we propose a combination of an interactive exhibition and an information booth. This pop-up stall can easily be set up at universities events like open days and conferences. We will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one's body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three. Those who are brave enough to test our simulators will receive a positive feedback. They will get to choose between 3 gifts: Stickers that encourage everyday task such as: ""got out of bad"", ""took a shower"" and ""washed my laundry"" in order to demonstrate how difficult these tasks can be to certain people. They could also choose comforting cynical tea bags that they can grant a friend in need on a rainy day or shit shaped chocolate pralines to compensate for the horrors they have just been through. The exhibition will also include an interactive board in which participants can share their feelings caused by the simulators or just generally and a second board presenting useful information regarding mental issues: how to identify, approachable treatments, support groups and other solutions. The first exhibition will take place during Berlin University of the Arts Semester end's exhibition and we hope it will continue to other universities around berlin and even in other cities in Europe. If you hope so as well you are welcome to join us in a number of ways: Support our Startnext campaign going online July 20th! Help us fund the first ever Shit Show and enjoy our moody merchandise (link tba) Spread the word! Our first intention is to raise awareness of mental health issues. Please share our ideas and solutions, you might even help someone. (It will also be nice if you would share our Startnext campaign once it's up Participate our research, tell us how you feel when you are down in our survey or just share with us your Ideas and comments. We would love to hear some feedback and improve our project Pauline Schlautmann: p.schlautmann@udk-berlin.de Omri Kaufmann: omri207@gmail.com The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/511,2017-11-28T01:41:47.632Z,2017-11-28T01:41:47.632Z,511,3791,AnnotatorStore::TextAnnotation,,,,,,,,,478,2028 12336,v1.0,,"Support the Shit Show on Startnext! startnext.com/theshitshow We have been studying it for 3 months, we have been dealing with it most of our life, we are highly aware of the importance of engaging with it but we still find it incredibly hard to talk about. Pauline and I are both product design students and together with Nele and Luisa who study communications we are team UP. In the context of ""Hacking Utopia"", a human centered design project at the University of Arts Berlin, we are investigating mental health. This article explains our approach of boosting mental resilience and give you the chance to get involved in our project. In our previous contributions on Edgeryders we described how we started off with the question of making sadness, unproductivity and inefficiency less shameful. We discovered two TED talks that influenced us greatly: The power of vulnerability by Brene Brown and Depression, the secret we share by Andrew Solomon. As later confirmed by the psychologists we interviewed, these talks made us understand that sharing our feelings is a key step towards mental resilience. Establishing a sustainable, personal connection this is necessary for recovery and growth. When we hide our condition, we ignore it, it becomes worse. USER INTERVIEWS The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students. As part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems – be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support when everyone tries to hide their struggles. As a result, most people don’t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves. Yet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence, stemming from a general lack of awareness. OUR GOAL We want to challenge the current attitude towards psychological care. Our project tries to de-stigmatize psychological pain and make the sensitive, 'taboo' issue of mental health more present and approachable to the public. We believe that udnerstanding and empathy is vital to provide good care for people that are suffering from emotional distress. We want to make it clear that feeling shitty is nothing to be ashamed of, but actually a very common thing. Also, we want the impact of these feelings to be understandable, so that more people can offer informed, helpful responses. When this happens, the threshold of reaching out is lowered, which in return allows problems to be addressed before they develop into serious mental conditions. INSPIRATION There are a number of inspiring projects who deal with exactly this issue of awareness. One clever way artists are spreading awareness is over the internet. Tumblr users like Rubyetc, Beth Evans or Sarah’s Scribbles have gained quite a following with their funny, relatable comics about everyday struggles. Seeing that you are not alone in your suffering can be very comforting. Recently, illustrator Gemma Correll created a series of drawings as part of an online awareness campaign for Mental Health America to visualize what #mentalillnessfeelslike. Their campaign encourages people to open up about their conditions and harvest the power of sharing. A related approach can be found in the various devices that exist to simulate old age. Suits like ‘GERT’ are designed to make the wearer feel the impairments that come with aging: stiffness and limited mobility, decreasing strength, blurred sight, muffled hearing. The concept was originally developed to enable caretakers of elderly people to better understand the needs and fears of their patients. Now, gadgets with similar effects, designed by students at Weimar University, are being exhibited at the Hygiene Museum in Dresden, allowing the public to gain the same understanding.   In general, public exhibitions are a valuable source of inspiration when it comes to reaching people and conveying information. A prime example is the 'Happy Show', set up by design firm Sagmeister & Walsh. Verging somewhere between art and education, the show throughly explores the theme of happiness in a graphic, creative and interactive manner. Another show that encourages people to actively engage with the exhibit is Erwin Wurms 'Bei Mutti'. Visitors are isntructed to interact the artefacts on display, effectively becoming a piece of the art themselves. f9e1fc54827667adbc6d98f8ac208de7_1.jpg1920x1080 577 KB PROJECT PROPOSAL In order to achieve our goal we propose a combination of an interactive exhibition and an information booth. This pop-up stall can easily be set up at universities events like open days and conferences. We will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one's body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three. Those who are brave enough to test our simulators will receive a positive feedback. They will get to choose between 3 gifts: Stickers that encourage everyday task such as: ""got out of bad"", ""took a shower"" and ""washed my laundry"" in order to demonstrate how difficult these tasks can be to certain people. They could also choose comforting cynical tea bags that they can grant a friend in need on a rainy day or shit shaped chocolate pralines to compensate for the horrors they have just been through. The exhibition will also include an interactive board in which participants can share their feelings caused by the simulators or just generally and a second board presenting useful information regarding mental issues: how to identify, approachable treatments, support groups and other solutions. The first exhibition will take place during Berlin University of the Arts Semester end's exhibition and we hope it will continue to other universities around berlin and even in other cities in Europe. If you hope so as well you are welcome to join us in a number of ways: Support our Startnext campaign going online July 20th! Help us fund the first ever Shit Show and enjoy our moody merchandise (link tba) Spread the word! Our first intention is to raise awareness of mental health issues. Please share our ideas and solutions, you might even help someone. (It will also be nice if you would share our Startnext campaign once it's up Participate our research, tell us how you feel when you are down in our survey or just share with us your Ideas and comments. We would love to hear some feedback and improve our project Pauline Schlautmann: p.schlautmann@udk-berlin.de Omri Kaufmann: omri207@gmail.com The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/511,2017-11-28T01:41:06.333Z,2017-11-28T01:41:06.333Z,511,3791,AnnotatorStore::TextAnnotation,,,,,,,,,478,2028 12335,v1.0,,"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I’m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling? FES - short for functional electrical stimulation - can be used to activate paralyzed muscles by impulses imitating the nervous system in the most natural way possible. We have come a long way with our research and it is possible to use this technique to let people with paralyzed legs cycle again. For some reason there are very few people who know about this so I’d like to share this knowledge with you. We cycle to move, but also to maintain fit. It can be both fun and functional. But, if your legs don't obey you anymore, you will probably not consider it a possibility. Paralyzed legs can result from an accident breaking your back, a stroke or a sneaking disease like the multiple sclerosis.   People caring for and curing you need to be very pragmatic, and you with them. Mobility then becomes reduced to passive transport, a dietetic approach to avoiding getting fat and medication of pressure sores and other side effects from lack of physical exercise. That’s where the publicly unknown FES research comes into play. Years of clinical research have consolidated the benefits, but we need to spread the news and understand more about it. Some people may already have heard of handbikes. They allow you to cover greater distances than manual wheelchairs. They are special tricycles where you use the hands for pedaling. FES, on the other side, is applied via adhesive electrodes or incorporated in bicycle shorts. The stimulus activates the muscles of the buttocks and thighs in sync with the ride.  However only the leg muscles can challenge the cardiovascular system to get physically fit. Some people with for example spinal cord injury (paraplegia) may be able to use FES for activating these large muscles.  With FES cycling they can cover greater distances with greater speed and due to activation of large muscles they get (bene-)fit and feel physical well-being. The research community has tried to promote a more widespread use of FES cycling by arranging races (see here) and publications with the user's statements of the pros and cons (see here). bb.jpg1122x520 409 KB How can we build research into practice or at least make options much more accessible? The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community Even handbikes which are more popular can’t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients. My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”. Why should you, me or anyone care about the future of research? you want to see your tax money spent well, don’t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/759,2017-11-28T01:39:19.679Z,2017-11-28T01:39:19.679Z,759,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2028 12334,v1.0,,"Engineering meets biomatter. The squiggly squishy, compliant bits of biomechanics allow you to produce one size fits all. If someone has physical disability, like cerebral paulsy, giving them a little bit of improved mobility can have huge positive effects. Functionally grated structures: Inspired by Bird beaks: Hydrophobic proteins and high water content parts of the body.  Example where functional grating is applied: Cerebral palsy Cost of therapy is very expensive because one on one time with specialists are very costly, and tech used is not modifiable. so they build soft exoskeletons for actuators (for joints) using functional grating principles. Check out their ""Neucuff"" Another example where functional grating is used: Prosthetics Uses distributed force: see goats' feet as a reference/description of the principle used to build prosthetics. Feets that are hard metal pads (hard actuators) does not allow you to compensate for unexpected events. Also flies' spatulated hairs on their feet. N++1. Aron Parnell tries to mass manufacture. Last example: Replacing atmospheric preassure in space suits with pneumatic preassure, shrinking them to fit human body. Problem: Spring effect. Solution: Don't make mechanical counterpressure suit in one go, but gradually? (not sure I got this right)",/post/5136,2017-11-28T01:38:04.634Z,2017-11-28T01:38:04.634Z,5136,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5103,2028 12332,v1.0,,"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles, even skill up in a process that difficult.  There are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder, said something similar about  how conversation in which neither party is an expert can be lifechanging. I'm curious about the group which seems more or less open - can anyone who reports feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?",/post/10263,2017-11-28T01:36:38.861Z,2017-11-28T01:36:38.861Z,10263,3791,AnnotatorStore::TextAnnotation,,,,,,,,,718,2027 12331,v1.0,,"Of course with some different focus groups and cases, but ""The Citizen"" does not exist. So what I'd think is crucial is the presentation format and delivery method. For example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. ""Where there is no Doctor"", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term. Most documents I know are written in a linear fashion, either for ""the general populace"" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag. Interestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better. I think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios): Copies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer. Recording of spoken/played material via phone, perhaps eventually put into writing. Pencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases. My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific ""type"" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as ""album art"" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement ""xyz""). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself. Audio has the advantages that you do not need to drop everything you're doing, you can do it while walking, and you can do it in the dark. If you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required. My schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course. I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the ""professional care & aid circus"" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though. The implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you'll probably be among them. The simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented. Make a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half ""upwards"" and half ""downwards"". *Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.",/post/13504,2017-11-28T01:35:56.303Z,2017-11-28T01:35:56.303Z,13504,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2026 12330,v1.0,,"Of course with some different focus groups and cases, but ""The Citizen"" does not exist. So what I'd think is crucial is the presentation format and delivery method. For example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. ""Where there is no Doctor"", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term. Most documents I know are written in a linear fashion, either for ""the general populace"" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag. Interestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better. I think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios): Copies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer. Recording of spoken/played material via phone, perhaps eventually put into writing. Pencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases. My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific ""type"" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as ""album art"" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement ""xyz""). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself. Audio has the advantages that you do not need to drop everything you're doing, you can do it while walking, and you can do it in the dark. If you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required. My schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course. I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the ""professional care & aid circus"" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though. The implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you'll probably be among them. The simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented. Make a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half ""upwards"" and half ""downwards"". *Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.",/post/13504,2017-11-28T01:35:46.437Z,2017-11-28T01:35:46.437Z,13504,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2026 12329,v1.0,,"@Alex_Levene this is the kind of question and expert input or exchange we'd want at the hackathon to support refugees in Jan/ Feb!! It's pretty awesome, and imagine including all these kinds of info in a curated, structured document for any given question!",/post/13469,2017-11-28T01:33:42.450Z,2017-11-28T01:33:42.450Z,13469,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2026 12328,v1.0,,"@trythis thank you! I 'll study all these carefully! We don' t do backpacks for the refugees anymore so we focus to backpacks that we can prepare for ourselves or other people and keep them for an emergency. So, we have to think about many diffirent things. For the refugees I've done this: 01 Α5 ΠΕΡΙΕΧΟΜΕΝΑ ΣΑΚΙΔΙΟΥ.jpg1240x874 172 KB But this is a draft. It needs something professional with the same style in a platform on line. When somebody wants to prepare a backpack could use specific items and also a list with more details for its item. What is this? How to use it e.t.c.",/post/12941,2017-11-28T01:32:58.034Z,2017-11-28T01:32:58.034Z,12941,3791,AnnotatorStore::TextAnnotation,,,,,,,,,517,2026 12326,v1.0,,Another member of the community who might be interested in this is @Eireann_Leverett who does information security and has experience with tech-related privacy/security issues which is a concern. And not just for high risk users e.g. activists...,/post/8632,2017-11-28T01:31:40.737Z,2017-11-28T01:31:40.737Z,8632,3791,AnnotatorStore::TextAnnotation,,,,,,,,,684,2024 12325,v1.0,,"Hackers ‘could take over your dildo and make it go berserk’, expert warns He actually ‘took over’ a big, plastic penis live on stage",/post/16891,2017-11-28T01:29:17.595Z,2017-11-28T01:29:17.595Z,16891,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5436,2024 12323,v1.0,,"Information security professionals may not be prepared for IoT after all ""Even with awareness of vulnerable devices at an all time high, information security professionals are not equipped to address the growing threats."" As you might expect, the IoT is fraught with security holes and a growing population of users who are rather unconcerned about it - mainly because they don't know and don't think about it enough.  But do you want someone hacking into your Google Car?  This article points out that many IoT devices and projects don't even know all that connect to them.",/post/5469,2017-11-28T01:28:00.553Z,2017-11-28T01:28:00.553Z,5469,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5436,2024 12321,v1.0,,"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc. @WinniePoncelet, it could be very good if you could elaborate on why you don’t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get? You have a good point,@WinniePoncelet,  we could imagine raising funds to have a FES bike that people could try locally. I’ve learned two things recruiting wheelchair users as testdrivers There is a perception that it may be physically harmful People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike As for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.) As for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling).  @Francesco Maria ZAVA and others we could work on this Cancel Save Annotate",/post/23387,2017-11-28T01:26:09.800Z,2017-11-28T01:26:09.800Z,23387,3791,AnnotatorStore::TextAnnotation,,,,,,,,,726,2023 12320,v1.0,,"Thank you for sharing this very interesting experience. The language is for sure the most powerful “vehicle” for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions. I wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities. I'm pretty sure also @Franca and @Medhin_Paolos may be interested.",/post/9935,2017-11-28T01:24:01.543Z,2017-11-28T01:24:01.543Z,9935,3791,AnnotatorStore::TextAnnotation,,,,,,,,,795,2022 12319,v1.0,,"think that is a common thread so far: we've heard from welcoming refugees in Greece - a lot of which was ad hoc engineered so to speak, to p2p on-call systems which are more structured (and tech based - see BUOY's / ""Call a friend, not the cops"").  I don't think @Aravella_Salonikidou will join us in Brussels, but maybe someone in her network is interested in connecting with Michael and his footcare mobile clinic?   the migrant crisis as a training ground for the crisis of the future - this reads so compelling, thank you Michael for coining it!  I definitely see a session built as an experience/lesson sharing conversation between Michael and others who are doing great work on the ground, and at least someone with a high level overview that understands how the supoort system fails at the coordination and resource allocation level. @Alex_Levene also has been off the grid but hopefully resurfacing soon - Alex do you think someone in Help Refugees would want to join a conversation  framed like this?",/post/17141,2017-11-28T01:23:29.452Z,2017-11-28T01:23:29.452Z,17141,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6437,2021 12318,v1.0,,"@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal. I wonder: with so many diverse community efforts, haven't there been any events where active people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?",/post/14969,2017-11-28T01:21:47.379Z,2017-11-28T01:21:47.379Z,14969,3791,AnnotatorStore::TextAnnotation,,,,,,,,,704,2021 12314,v1.0,,"Denmark, a social welfare utopia, takes a nasty turn on refugees",/post/5545,2017-11-28T01:16:51.281Z,2017-11-28T01:16:51.281Z,5545,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5512,2020 12311,v1.0,,"I found this article interesting: blogs.scientificamerican.com The Real Link Between Creativity and Mental Illness “There is only one difference between a madman and me. I am not mad.”          —Salvador Dali The romantic notion that mental illness and creativity are linked is so prominent in the public consciousness...",/post/12784,2017-11-28T01:10:27.424Z,2017-11-28T01:10:27.424Z,12784,3791,AnnotatorStore::TextAnnotation,,,,,,,,,647,2019 12309,v1.0,,"Hi @Noemi, @Pauline, @Alex_Levene, I found this article interesting: blogs.scientificamerican.com The Real Link Between Creativity and Mental Illness “There is only one difference between a madman and me. I am not mad.”          —Salvador Dali The romantic notion that mental illness and creativity are linked is so prominent in the public consciousness...",/post/12784,2017-11-28T01:07:51.037Z,2017-11-28T01:07:51.037Z,12784,3791,AnnotatorStore::TextAnnotation,,,,,,,,,647,2019 12308,v1.0,,"Hi @Noemi, @Pauline, @Alex_Levene, I found this article interesting: blogs.scientificamerican.com The Real Link Between Creativity and Mental Illness “There is only one difference between a madman and me. I am not mad.”          —Salvador Dali The romantic notion that mental illness and creativity are linked is so prominent in the public consciousness...",/post/12784,2017-11-28T01:06:43.404Z,2017-11-28T01:06:43.404Z,12784,3791,AnnotatorStore::TextAnnotation,,,,,,,,,647,2019 12307,v1.0,,"It's definitely worth reaching out to arts organisations to see how they respond to these types of ideas as well. I don't know about the mainland european models, but with the drastic reduction in state subsidy and the lack of increase in American style donor funding, UK based performing arts organisations have become much more interested in the ways they can repurpose buildings for theatre, creative industries and wider arts based practices. An interesting case study would be Theatre Delicatessen in London: theatredelicatessen.co.uk About - Theatre Delicatessen About - Theatre Delicatessen exists to support theatremakers and artists in the creation of their work. They seem to only ever work in spaces that most others would move out of. Since they started they have had London bases in a disused factory in the West End (now a boutique hotel, i believe) then they moved into the recently abandoned Guardian newspaper head office, now they're moving across the river to an old Victorian library building. They're less interested in what the space was before than what it can be in the future. Edit Delete No Commentart Cancel Save Annotate",/post/21005,2017-11-28T01:05:57.037Z,2017-11-28T01:05:57.037Z,21005,3791,AnnotatorStore::TextAnnotation,,,,,,,,,758,2018 12306,v1.0,,"It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees, both have found that cooking is fundamental to care (one, two)",/post/16858,2017-11-28T01:05:21.741Z,2017-11-28T01:05:21.741Z,16858,3791,AnnotatorStore::TextAnnotation,,,,,,,,,712,2017 12305,v1.0,,"I hope you will get the touring exhibition to have a european leg, and come through Lausanne!  To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help! I left a comment with a few points this morning on the page with the documentary, but just to ask one more silly question: was it actually possible to do any fly-fishing on the Bagmati river??  (are there many fish to catch??  are they edible?)   I did some flyfishing long ago in the great northwest and Montana, with great pleasure, but don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)... Thanks again for sharing, and looking forward to further discussions!",/post/21501,2017-11-28T01:04:40.801Z,2017-11-28T01:04:40.801Z,21501,3791,AnnotatorStore::TextAnnotation,,,,,,,,,543,2016 12304,v1.0,,I think one some of challenges included are the cost of producing content as well as community management. @Augusto_Pirovano and @Matteo_Uguzzoni have a lot of experience in running urban games and I think they might have a lot of valuable experience to shar.,/post/24959,2017-11-28T01:04:06.924Z,2017-11-28T01:04:06.924Z,24959,3791,AnnotatorStore::TextAnnotation,,,,,,,,,666,2015 12303,v1.0,,"Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries. Communities will be taught how to make the filter and the purification drops - made from clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.   Interesting read: http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet Access to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world’s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop. The MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source. The MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa. The impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.",/post/710,2017-11-28T01:03:34.999Z,2017-11-28T01:03:34.999Z,710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,677,2014 12302,v1.0,,"How do you build connectivity into each initiative or do you want connectivity only between initiative? If we all want to coordinate, what amount of time/ effort/ resources can we each put into learning to coordinate?",/post/541,2017-11-28T01:02:50.264Z,2017-11-28T01:02:50.264Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2013 12301,v1.0,,"we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;",/post/21382,2017-11-28T00:59:05.636Z,2017-11-28T00:59:05.636Z,21382,3791,AnnotatorStore::TextAnnotation,,,,,,,,,733,2012 12292,v1.0,,OpenStreetMap,/post/34567,2017-11-27T23:20:50.120Z,2017-12-02T16:05:38.844Z,34567,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2503 12291,v1.0,,accessibility,/post/34541,2017-11-27T23:20:22.043Z,2017-12-02T16:05:38.836Z,34541,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2502 12290,v1.0,,crowd-sourcing,/post/34541,2017-11-27T23:20:16.167Z,2017-12-02T16:05:38.828Z,34541,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2501 12289,v1.0,,geo-localization technologies,/post/34541,2017-11-27T23:20:11.749Z,2017-12-02T16:05:38.821Z,34541,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2500 12288,v1.0,,HandYwiN,/post/34541,2017-11-27T23:20:01.476Z,2017-12-02T16:05:38.813Z,34541,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2499 12287,v1.0,,disability,/post/34541,2017-11-27T23:19:49.883Z,2017-12-02T16:05:38.805Z,34541,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2498 12286,v1.0,,Spina Bifida,/post/34541,2017-11-27T23:19:38.173Z,2017-12-02T16:05:38.797Z,34541,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6758,2497 12264,v1.0,,media innovation lab,/post/34621,2017-11-27T23:06:51.558Z,2017-12-02T16:05:38.348Z,34621,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6778,2451 12207,v1.0,,developing Egypt,/post/35613,2017-11-27T22:24:39.858Z,2017-12-02T16:05:38.282Z,35613,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2444 12206,v1.0,,Egyptian creative Youth,/post/35613,2017-11-27T22:24:27.453Z,2017-12-02T16:05:38.273Z,35613,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6979,2443 12179,v1.0,,Growing Livlihoods Program,/post/35053,2017-11-27T21:52:48.914Z,2017-12-02T16:05:37.631Z,35053,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6855,2382 12178,v1.0,,Crohns disease,/post/35053,2017-11-27T21:51:52.752Z,2017-12-02T16:05:37.624Z,35053,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6855,2381 12127,v1.0,,"I neither know or interact with my neighbours.This is wrong, I always thought it is deeply wrong. Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?",/post/13198,2017-11-27T15:58:39.479Z,2017-11-27T15:58:39.479Z,13198,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1405,2012 12126,v1.0,,"My opinion is not worth much, in fact we can be right and agreeing and still not go anywhere  From the years I've been working in this field, what I've seen is doors opening and an ability from policy makers to listen. With unMonastery called in by a city, Futurespotters by UNDP, new doors opening thanks to them and other consultancy work, and so on. It feels to me hard to think about large scale change, but seeing a progression makes me more hopeful than at time zero, if that means much. If Edgeryders is anything of a counter culture movement, than it is also true that from the beginning the position was to open channels for collaboration between very diverse people. And guess what: over the years people in policy making have joined too, and were honest about their own limitations as institution representatives - for example, this is someone who at the time of engaging was in the Amsterdam City Council and here asking about basic income and how it would work.",/post/7853,2017-11-27T15:57:57.517Z,2017-11-27T15:57:57.517Z,7853,3791,AnnotatorStore::TextAnnotation,,,,,,,,,693,2011 12109,v1.0,,disabilities,/post/34574,2017-11-26T21:05:50.520Z,2017-12-02T16:05:36.937Z,34574,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6764,2309 12108,v1.0,,Personal Care Assistant,/post/34574,2017-11-26T21:05:41.466Z,2017-12-02T16:05:36.920Z,34574,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6764,2307 12107,v1.0,,social network,/post/34574,2017-11-26T21:05:30.995Z,2017-12-02T16:05:36.928Z,34574,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6764,2308 12106,v1.0,,AuxiLife,/post/34574,2017-11-26T21:05:23.069Z,2017-12-02T16:05:36.913Z,34574,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6764,2306 12105,v1.0,,"Respected, It is my pleasure to introduce myself. Unique experiment of nature, kind, sweet, cheerful, positive, charismatic, did I mention good looking? I have a couple of certificates……and so on… curious and creative, eager to learn, to travel, have fun…   I live in Serbia, the Balkans, reason enough to be interested in current events in the world and region. Turbulent past, dynamic present and an uncertain future, burdensome by intolerance and conflicts in the region, which I personally found not only unnecessary but also totally crazy, because we all have the same desires and dreams, to live freely, love unconditionally, have fun, learn, be independent, travel, have amazing adventures, the best parties …. without regard to national and religious affiliation, skin color, eye color… there are too many prejudice, inequality, unprotected and vulnerable people, there is gender inequality, intolerance, social injustice, poverty, hunger, disease, non-existent or inadequate health care, problems of refugees, racism…. I do not know why and I`m trying to understand. Injustice affects me terribly. We learn history in order to avoid the mistakes which were made and were pretty catastrophic, and to me it seems like we constantly repeat the same errors. I have learned not to judge in advance, that all deserve respect, a smile, a kind word, that the mind is like a parachute works only if it is open, that in the period of globalization, IT progress, revolutionary discoveries, scientific achievements, robotics, nanotechnology … we must not think about limits, all barriers and borders exists  only in our heads., I perfectly understand what it means conflict, and detest it, I hate arguing, hate conflicts. I watch the news, read a newspaper and follow social networks and  I can say there is too much violence, too much suffering, too much of everything negative, the constant threat of war, terrorism…just too much. I want a better world, a better society, a better life for all, it is important to take care of others, to be open-minded. I want more, I need more, no one should be afraid for ones lives, children must not be hungry, barefoot, on the streets, women must not be abused, people should not be expelled from their homes, the world gone crazy and we desperately need all people of good will who want and have the knowledge and strength to fight, not only to philosophize and criticize, but also commit to work, to improve our society, day after day, devotedly… They tell us that as individuals we cant do anything, at least anything important, that we are still small, young and inexperienced, but adults forget, and sometimes reduces our value, ignored it, forget it under the weight of today circumstances. We are thirsty for knowledge and education, we might be weak, but snowflakes are gentle and weak until they connect, then they become strong. We need to connect, as snowflakes, the youth of the region and the world, only united we can be strong, important, perhaps adults hear us and listen. When children quarrel, they quickly reconcile because its not important to be right, but to be happy. We should accept that we do not have to agree on everything, sometimes can agree to disagree, but we have to respects others' way of life, other people's opinion, that we can discuss about everything, not argue, talking in order to generate ideas, information, positive energy.. To find the solution for all problems and dilemmas, make projects, succeed. Somehow it feels despair and uncertainty it should not be so, we are young, we have desire and we can change everything that we do not like. It is essential to connect, and I read that nothing brings people together as well as living a happy accident, if it is true, We, all  in this region, the Balkans, we have more opportunities to be close, strong and organized than anyone else in the world, everything we've been through good and bad, sometimes on opposite sides, unfortunately, but we survived, war and killing, and we must never repeat it, we also  sang and celebrated and rejoice together, it was perhaps more sadness and unhappiness, but if there is justice in life, in future we should have only lucky days, happiness. Good neighborly relations like friendship and trust builds, slowly and gradually, all that is good and valuable in life, takes time. First we need to forgive. Forgiveness is possible only with understanding, that is why this camp is super idea, to understand together what had happened, impartial, draw lessons from history, in order to continue, this time better, smarter. The goal is to make the world a better and more humane place, sustainable, use space in the best possible way, with full respect of nature and population needs, because that's the point of studying, find the best way to reconcile nature and society to meet human needs, give vision of the future, the objectives of the future development. Everything is connected and the problems must be considered as a system, If one part of the system does not work properly, it reflects on other parts of the system",/post/854,2017-11-26T21:05:08.813Z,2017-11-26T21:05:08.813Z,854,3791,AnnotatorStore::TextAnnotation,,,,,,,,,821,2010 12104,v1.0,,"Il tuo progetto in un tweet* Doc.doc è la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica più completa possibile. Bisogno o problema che il tuo progetto cerca di risolvere*  Sempre di più patologie complesse necessitano della collaborazione tra molti specialisti della cura. A questi diversi professionisti manca però la possibilità di comunicare e condividere informazioni su una piattaforma dedicata. L’attuale procedura di lavoro evidenzia i seguenti problemi: Delega al paziente la responsabilità nel fornire le corrette informazione relative al proprio caso. Rende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi. Non permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all’incontro con lo stesso. Doc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura. Inoltre la progettazione UX è stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un’email. Utente finale, individui e/o comunità di riferimento* Il prodotto è pensato per i medici, ma i maggiori benefici andranno ai pazienti. Doc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (più pianificazione, più chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando. Soluzione, breve descrizione del progetto* Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. Inoltre, in una fase successiva, sarà possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro categorizzazione per patologia. Tecnologie utilizzate o che vorresti utilizzare* Lo strumento che abbiamo progettato si esprimerà attraverso un’applicazione mobile per ambienti Android e iOS, che verrà quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l’utilizzo del software il più immediato possibile. E’ comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform. Il servizio cloud potrà essere sviluppato in NodeJS, con basi dati MongoDB e MySQL. Sito web (o social network) In fase di pianificazione. Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.",/post/33729,2017-11-26T21:04:17.892Z,2017-11-26T21:04:17.892Z,33729,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6578,2009 12098,v1.0,,"Nice to read you. Let's get in touch via private messages here, or better still by email : dante.monson - at - Gmail - dot - com update @Yannick : as I replied by smartphone, there was a typo mistake in the email , which I now corrected pps : may be interesting to join the Theory U process for integrating it in a broader perspective ? reinventingbrussels.wordpress.com Registration You have many options for registration, all are flexible as you can always change depending on your involvement, available time, motivation, etc. The tricky part is that you have many options and s… ( context : https://reinventingbrussels.wordpress.com/registration-en/ ) Cancel Save Annotate",/post/23836,2017-11-26T21:01:34.429Z,2017-11-26T21:01:34.429Z,23836,3791,AnnotatorStore::TextAnnotation,,,,,,,,,487,2007 12097,v1.0,,"Thank you for making the connection @Noemi ! I so far framed this project in economic terms (""economic empowerment"" etc.) but now that you say it, and after reading about @Jenny_Gkiougki 's attitude above: yes it's obviously also political. Coffee is actually a quite extreme product: depending on what coffee you buy, you might vote for extreme labour exploitation (as in: 0.81% of sales prices going to the farm workers, as I calculate in this post on our project blog). Or you might vote for viable small businesses and giving them an opportunity to invest and expand (while also sending their kids to school etc.).",/post/13267,2017-11-26T21:00:56.690Z,2017-11-26T21:00:56.690Z,13267,3791,AnnotatorStore::TextAnnotation,,,,,,,,,526,2007 12096,v1.0,,"This is great @Aravella_Salonikidou! I have heard about your project and have 'seen' you virtually here and there on facebook, mainly through Room 39 and Steki Metanaston groups/pages, as I can understand that you are also helping the people there. I am also involved with some of the groups at Steki so we could perhaps meet there sometime, or at Micropolis, another social space nearby where this R2R call center project is based. I would love to see how we could possibly collaborate and help each other and I am sure that there is a lot to share/learn from the work that we and other people in our networks, are doing. I will connect with you on facebook to stay in touch!",/post/19572,2017-11-26T21:00:11.405Z,2017-11-26T21:00:11.405Z,19572,3791,AnnotatorStore::TextAnnotation,,,,,,,,,759,2007 12093,v1.0,,"Exactly the same point about young men not being catered to was made by @Alex_Levene in the context of The Jungle. We have been fantasizing about ""emergent"" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.",/post/16195,2017-11-26T20:59:18.248Z,2017-11-26T20:59:18.248Z,16195,3791,AnnotatorStore::TextAnnotation,,,,,,,,,670,2007 12092,v1.0,,School/university improvement & quality evaluation,/post/6293,2017-11-26T20:58:37.571Z,2017-11-26T20:58:37.571Z,6293,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6260,2006 12091,v1.0,,Where you can find people to support projects,/post/541,2017-11-26T20:58:07.714Z,2017-11-26T20:58:07.714Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2005 12090,v1.0,,"It is my pleasure to introduce myself. Unique experiment of nature, kind, sweet, cheerful, positive, charismatic, did I mention good looking? I have a couple of certificates……and so on… curious and creative, eager to learn, to travel, have fun…   I live in Serbia, the Balkans, reason enough to be interested in current events in the world and region. Turbulent past, dynamic present and an uncertain future, burdensome by intolerance and conflicts in the region, which I personally found not only unnecessary but also totally crazy, because we all have the same desires and dreams, to live freely, love unconditionally, have fun, learn, be independent, travel, have amazing adventures, the best parties …. without regard to national and religious affiliation, skin color, eye color… there are too many prejudice, inequality, unprotected and vulnerable people, there is gender inequality, intolerance, social injustice, poverty, hunger, disease, non-existent or inadequate health care, problems of refugees, racism…. I do not know why and I`m trying to understand. Injustice affects me terribly. We learn history in order to avoid the mistakes which were made and were pretty catastrophic, and to me it seems like we constantly repeat the same errors. I have learned not to judge in advance, that all deserve respect, a smile, a kind word, that the mind is like a parachute works only if it is open, that in the period of globalization, IT progress, revolutionary discoveries, scientific achievements, robotics, nanotechnology … we must not think about limits, all barriers and borders exists  only in our heads., I perfectly understand what it means conflict, and detest it, I hate arguing, hate conflicts. I watch the news, read a newspaper and follow social networks and  I can say there is too much violence, too much suffering, too much of everything negative, the constant threat of war, terrorism…just too much. I want a better world, a better society, a better life for all, it is important to take care of others, to be open-minded. I want more, I need more, no one should be afraid for ones lives, children must not be hungry, barefoot, on the streets, women must not be abused, people should not be expelled from their homes, the world gone crazy and we desperately need all people of good will who want and have the knowledge and strength to fight, not only to philosophize and criticize, but also commit to work, to improve our society, day after day, devotedly… They tell us that as individuals we cant do anything, at least anything important, that we are still small, young and inexperienced, but adults forget, and sometimes reduces our value, ignored it, forget it under the weight of today circumstances. We are thirsty for knowledge and education, we might be weak, but snowflakes are gentle and weak until they connect, then they become strong. We need to connect, as snowflakes, the youth of the region and the world, only united we can be strong, important, perhaps adults hear us and listen. When children quarrel, they quickly reconcile because its not important to be right, but to be happy. We should accept that we do not have to agree on everything, sometimes can agree to disagree, but we have to respects others' way of life, other people's opinion, that we can discuss about everything, not argue, talking in order to generate ideas, information, positive energy.. To find the solution for all problems and dilemmas, make projects, succeed. Somehow it feels despair and uncertainty it should not be so, we are young, we have desire and we can change everything that we do not like. It is essential to connect, and I read that nothing brings people together as well as living a happy accident, if it is true, We, all  in this region, the Balkans, we have more opportunities to be close, strong and organized than anyone else in the world, everything we've been through good and bad, sometimes on opposite sides, unfortunately, but we survived, war and killing, and we must never repeat it, we also  sang and celebrated and rejoice together, it was perhaps more sadness and unhappiness, but if there is justice in life, in future we should have only lucky days, happiness. Good neighborly relations like friendship and trust builds, slowly and gradually, all that is good and valuable in life, takes time. First we need to forgive. Forgiveness is possible only with understanding, that is why this camp is super idea, to understand together what had happened, impartial, draw lessons from history, in order to continue, this time better, smarter. The goal is to make the world a better and more humane place, sustainable, use space in the best possible way, with full respect of nature and population needs, because that's the point of studying, find the best way to reconcile nature and society to meet human needs, give vision of the future, the objectives of the future development. Everything is connected and the problems must be considered as a system, If one part of the system does not work properly, it reflects on other parts of the system.",/post/854,2017-11-26T20:57:40.251Z,2017-11-26T20:57:40.251Z,854,3791,AnnotatorStore::TextAnnotation,,,,,,,,,821,2004 12088,v1.0,,"Thank you @Alex Levene! Thank you @Alex_Levene! Though it's temporary ceasefire, Azeris still shoot but not as much as before, now we need to wait and see...apparently there are 2 solutions out of this: full blown war or back to frozen conflict. The thing is Armenians are united against a common enemy and ready to protect their land while for Azeris this is a matter of principle - after all NKR has been a part of Azerbaijan during USSR, so they can't accept to lose it. Apparently no way to solve this conflict in a diplomatic way...maybe in a 100 years, when the rulers change and the new open-minded generation comes to power.",/post/33780,2017-11-26T20:56:40.683Z,2017-11-26T20:56:40.683Z,33780,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6587,2004 12087,v1.0,,"Hello everyone I am a full-time community mental health nurse based in Ormskirk Lancashire. Since 1998 online Have championed a conceptual framework - Hodges' model which was created to facilitate person-centered, holistic, integrated care and reflective practice. Currently I am researching the model at Lancaster University in Technology Enhanced Learning. My Part 2 project involves evaluating the model by creating a new web resource to prototype specific content types, gather data and create some research interest. I plan to use Drupal to create my research platform. I have just posted news of OP3N on my blog ""Welcome to the QUAD"" http://hodges-model.blogspot.co.uk/ which also lists a bibliography: Jones, P. (2004) The Four Care Domains: Situations Worthy of Research. Conference: Building & Bridging Community Networks: Knowledge, Innovation & Diversity through Communication, Brighton, UK. Jones, P. (2008) Exploring Serres’ Atlas, Hodges’ Knowledge Domains and the Fusion of Informatics and Cultural Horizons, IN Kidd, T., Chen, I. (Eds.) Social Information Technology Connecting Society and Cultural Issues, Idea Group Publishing, Inc. Chap. 7, pp. 96-109. Jones, P. (2009) Socio-Technical Structures, the Scope of Informatics and Hodges’ model, IN, Staudinger, R., Ostermann, H., Bettina Staudinger, B. (Eds.), Handbook of Research in Nursing Informatics and Socio-Technical Structures, Idea Group Publishing, Inc. Chap. 11, pp. 160-174.< br /> Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination. International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311. You may find this model relevant to your respective projects, if so please get in touch... If you have any key papers, reports or conferences I'd be delighted to hear of your news. Best wishes in your work. Peter Jones Community Mental Health Nurse CMHT Brookside Aughton Street Ormskirk L39 3BH, UK & Graduate Student - Lancaster University: Technology Enhanced Learning Blogging at ""Welcome to the QUAD"" http://hodges-model.blogspot.com/ http://twitter.com/h2cm",/post/676,2017-11-26T20:56:08.116Z,2017-11-26T20:56:08.116Z,676,3791,AnnotatorStore::TextAnnotation,,,,,,,,,643,2003 12084,v1.0,,How can we find the right balance between keeping the effectiveness of the box with still being able to go out of the box/,/post/541,2017-11-26T20:54:20.755Z,2017-11-26T20:54:20.755Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,2002 12083,v1.0,,Hospital to Home team striving for a healthier and happier Derby,/post/31827,2017-11-26T20:53:29.797Z,2017-11-26T20:53:29.797Z,31827,3791,AnnotatorStore::TextAnnotation,,,,,,,,,725,2001 12078,v1.0,,"Hey @NADIA @GEHAN and @NOEMI,  In my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum. My experiences have been diverse. I've experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn't harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn't want to ""just say something"" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn't know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly.... (oops).  This particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I'd say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.  I believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what's alive in you at the moment. This worked pretty well.  I also initiated a circle once during a workshop where people didn't really know each other and there wasn't a real theme or topic. In that setting it didn't feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there's always (some) interest),  there wasn't really a common intention or relevance to have this talk together. So I wouldn't organize a circle ""out of the blue"" again.  Most of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it's no problem and good examples will follow.  Most circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other ""teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it's a different form, there's also huge transformation happening during these meetings.  @Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.  And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.  So let me summarize my experiences:   Sharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.  Circles work well around certain (loaded) theme's and communities who work/ life together with a clear invitation.  Listening from the heart, listening from beyond the personal perspective (not taking anything personal) Everything that pops up from a genuine sharing is welcome, even if it's off topic. What's alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).",/post/24534,2017-11-26T20:51:09.010Z,2017-11-26T20:51:09.010Z,24534,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2000 12077,v1.0,,"a good host and facilitator who's comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.",/post/6401,2017-11-26T20:50:19.026Z,2017-11-26T20:50:19.026Z,6401,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6368,2000 12068,v1.0,,"Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their ""guests"" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.  @Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !",/post/16177,2017-11-26T20:46:02.785Z,2017-11-26T20:46:02.785Z,16177,3791,AnnotatorStore::TextAnnotation,,,,,,,,,662,1999 12051,v1.0,,"Thank you for your comments. Our garden is theoretically for children, then for their families. Which means that... The outstanding feature of our experience is the fact that we are not an intellectual or ""political"" movement, but the ordinary people of this district: a cross-section of families of both traditional and immigrant background, who take their children to the garden (basically a playground with trees). Everybody except the very, very rich. However, we opened this garden in a situation of conflict, an object lesson for everybody on gentrification and the ruthlessness of real estate speculation: we did not put the politics into it, they did, and everybody has learned the lesson. Communities can be built on imagining the past, children help us to imagine the future together and learn to build solidarity - we love our place and its history, but anybody from Senegal or from Germany who also loves them is welcome;  In this context, we do small things with major implications, for example: - markets where parents give and take children's clothes for free, which teaches one enormously important things about the wastefulness of our society; violin lessons, chess and opera singing because we believe that ""beautiful"",""elegant"" and ""difficult"" things should not be the monopoly of a financial elite; the only free football school in Florence, thanks to the unique Lebowski football team; attempting to revive the dying crafts of Florence and discover the history of our district, with all its tremendous historical implications; we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market; we are beginning to develop more sustainable ways of consumption, in a gradual way that everybody can understand, also thanks to the fact that we have a child's birthday party nearly every day in our garden! And a child's birthday party is a much better place to deal with these issues, than a smoke-filled meeting hall... Whatever we do, we try to move together with as many other organisations as possible in our district - ranging from the parish church to the young people occupying an abandoned house, to small shopkeepers, to the very, very special Florentine institution of ""Calcio Storico"". We also want to provide the lowest level of basic services, which the ""state"" is dropping out of, and this is where the issue of health and other care interests us. The institutions first saw us as a harmless group of parents who wanted a place for their children to play, then more or less as enemies, then as a large group of voters who need to be humoured, as well as people who do for free what the state usually has to pay for. Which is alright, we neither hate nor love the dying institutions of our times. We love our people, our monuments, our trees, our bats and cats that come at night, and anybody else in the world who feels like us and realizes that this world should not belong to speculating private monsters or to cold public machines.",/post/21382,2017-11-26T20:03:41.082Z,2017-11-26T20:03:41.082Z,21382,3791,AnnotatorStore::TextAnnotation,,,,,,,,,733,1998 12050,v1.0,,"The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.  I am not completely sure we can classify it as ""care"", though. But perhaps it's not even  that important.  @Paul_Free, I know there are plans of community (vegetable) gardening as part of the city of Galway's bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?",/post/9428,2017-11-26T19:58:40.924Z,2017-11-26T19:58:40.924Z,9428,3791,AnnotatorStore::TextAnnotation,,,,,,,,,641,1998 12048,v1.0,,"a story how a team started a medical camp with the intention to help as amany people as possible who otherwise would have not received care, Medical camps have been running in partnership with the villages of Bupsa and Bumburi attract local people from miles around, many of whom walk for many hours and often days to attend the camps. These medical camps are led by Nepalese professionals who are assisted by qualified volunteers and medical and dentistry students from the UK. The long and expensive journey to the hospitals in Laksha and Kathmandu (sometimes taking days) are out-of-reach for the majority living in these low-income communities. Their main source of income is from subsistence farming and small profits are often shared throughout the community. So as you can imagine, when word gets out that these clinics are nearby, villagers flock to them in the hope of securing a cure for their health issues.  There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication. The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa’s monastery. The group that started the initiative were limited to leftover equipment from the previous clinics and a small amount of supplies that they carried in with them.  One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from accessible healthcare. Read the full story here:  http://wildernessmedicinemagazine.com/article.asp?id=1026 mmtrust.wordpress.com Wilderness Medicine in Nepal Moving Mountains runs small and mobile medical camps in the remote villages of Bumburi and Bupsa, along with the surrounding villages in the Solu-Khumbu region of the Nepalese Himalayas. These medi…",/post/734,2017-11-26T19:57:11.290Z,2017-11-26T19:57:11.290Z,734,3791,AnnotatorStore::TextAnnotation,,,,,,,,,701,1996 12047,v1.0,,"a story how a team started a medical camp with the intention to help as amany people as possible who otherwise would have not received care, Medical camps have been running in partnership with the villages of Bupsa and Bumburi attract local people from miles around, many of whom walk for many hours and often days to attend the camps. These medical camps are led by Nepalese professionals who are assisted by qualified volunteers and medical and dentistry students from the UK. The long and expensive journey to the hospitals in Laksha and Kathmandu (sometimes taking days) are out-of-reach for the majority living in these low-income communities. Their main source of income is from subsistence farming and small profits are often shared throughout the community. So as you can imagine, when word gets out that these clinics are nearby, villagers flock to them in the hope of securing a cure for their health issues.  There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication. The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa’s monastery. The group that started the initiative were limited to leftover equipment from the previous clinics and a small amount of supplies that they carried in with them.  One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from accessible healthcare. Read the full story here:  http://wildernessmedicinemagazine.com/article.asp?id=1026",/post/734,2017-11-26T19:55:20.086Z,2017-11-26T19:55:20.086Z,734,3791,AnnotatorStore::TextAnnotation,,,,,,,,,701,1996 12009,v1.0,,"Hi Alberto, thank you for your comment! The post on FB didn't mention anything, just the travel question. But I saw it was a share from Vlad Voiculescu, so I understood in a second, even if the article that I read in november 2012 did not state his real name. But it was really not hard to connect the dots. So in that evening we spoke for almost one hour on the phone , then we met and I took the medcines, that was the first encounter so to speak.  Basically, Vlad coordonated the whole thing, he bought the medicines at first, then he found a lot people willing to help with buying, from different cities in Europe and not only. Sometimes Valeriu would pick up people from the airport, sometimes just meet them in Bucharest and took the medicines to the ones in need. I don't know how it was for other cities, but there the distances are smaller and I guess people sorted it out in a similar way. Vlad also made a website: medicamente-lipsa.ro. People could acces it and find the missing drugs and the means to transport them.  Not least, a movie was made after the investigation in Hotnews (the website where I read the story in 2012) hbo.ro Rețeaua (2015) Documentarul urmărește o rețea de oameni binefăcători care cumpără din străinătate medicamente citostatice și le aduc pacienților din România de vreme ce aici aceste medicamente nu există. You can see it here until september for free http://www.hbogo.ro/content/the-network-1053692950   I hope this helps!",/post/15312,2017-11-26T00:57:38.047Z,2017-11-26T00:57:38.047Z,15312,3791,AnnotatorStore::TextAnnotation,,,,,,,,,665,1993 12008,v1.0,,"After the first submission, our original project ""doc.doc"" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually turned out the early project in ResQ! In particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.  Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it! Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues. Problem that our project is willing to solve Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations. In addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow. The current way of working shows the following problems: The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit. The missing digitalization of the gathered health data and the consequent discontinuity of the healing process. The limited precision of the anamnestic research due to the high number of patients and the short time available. Final User, individuals and community target ResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.  https://www.youtube.com/embed/MZSMi316E-Y Solution, brief description of the project ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool. ResQ-board.jpg2045x2500 640 KB Technologies we will adopt The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL.",/post/866,2017-11-26T00:56:35.543Z,2017-11-26T00:56:35.543Z,866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,833,1992 12005,v1.0,,"Thank you for sharing this very interesting experience. The language is for sure the most powerful “vehicle” for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions. I wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities. I'm pretty sure also @Franca and @Medhin_Paolos may be interested.",/post/9935,2017-11-26T00:52:16.138Z,2017-11-26T00:52:16.138Z,9935,3791,AnnotatorStore::TextAnnotation,,,,,,,,,795,1989 12004,v1.0,,"Hello @evelina , welcome from me too. Spoken word for cultural integration sounds like a new approach to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know? Have you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate? Cancel Save Annotate",/post/33795,2017-11-26T00:51:33.221Z,2017-11-26T00:51:33.221Z,33795,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6601,1989 12003,v1.0,,"Hi everyone!  This is my very first post here. I've been following the platform for a little while now (around 1 year) and I am still being amazed by your productivity and shared knowledge. I am currently working for Leeuwarden-Fryslân European Capital of Culture 2018 as part of the communication and marketing team, where I'm looking into setting up an online platform on which the communities surrounding our cultural programme can join forces and find eachother. This 'looking into' has developed into the subject of my bachelor thesis for the course Media and Entertainment Management.  In my research, I'm specifically looking into the interactions that take place on co-creative platforms and the dialogue between the organisation behind the platform and its users. Now, I know that with you guys the ownership of the platform itself is a lot more open than with a crowdsourcing platform such as, say, +Acumen or OpenIDEO. What you're doing builds more on the concept of open-source rather than crowdsourcing, and you're implementing it in every single part of your operation. Doing this with challenges that relate to society and that are produced because of an intrinisic motivation is very impressive! Most other platforms that try to achieve change or develop new concepts do this based on streamlined extrinisic motivations, such as Kickstarter's rewards or simply a cash prize for the best idea.  Thus, I would really like to use Edgeryders as a case-study for my thesis. I'm looking for at least two users of the platform to answer a few of my questions over Skype. The questions that I have are based on two models. Firstly, I am trying to find indicators for the quality of the interactions that take place on the platform based on the framework of Prahalad and Ramaswamy (2004) and, secondly, I am trying to create some insight into your overall co-creation activities based on a recent model of Malmelin and Villi (2015).  Screen Shot 2016-07-06 at 17.27.49.jpg1042x910 160 KB Screen Shot 2016-07-06 at 17.21.22.jpg910x906 95.6 KB Even if you're not willing to be interviewed over Skype, it would be very helpful to me if you could describe how and why you are making use of the platform, and to which categories your activities on the platform fit or don't fit. Also, if you have any questions, tips, ideas, or remarks about everything I've told you so far or regarding the possible platform for Leeuwarden-Fryslân 2018, please let me know!",/post/705,2017-11-26T00:50:47.450Z,2017-11-26T00:50:47.450Z,705,3791,AnnotatorStore::TextAnnotation,,,,,,,,,672,1988 12002,v1.0,,"I hope you will get the touring exhibition to have a european leg, and come through Lausanne!  To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help! I left a comment with a few points this morning on the page with the documentary, but just to ask one more silly question: was it actually possible to do any fly-fishing on the Bagmati river??  (are there many fish to catch??  are they edible?)   I did some flyfishing long ago in the great northwest and Montana, with great pleasure, but don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)... Thanks again for sharing, and looking forward to further",/post/21501,2017-11-26T00:49:59.604Z,2017-11-26T00:49:59.604Z,21501,3791,AnnotatorStore::TextAnnotation,,,,,,,,,543,1987 12001,v1.0,,"Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.",/post/863,2017-11-26T00:48:06.741Z,2017-11-26T00:48:06.741Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,1987 12000,v1.0,,"Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on. In Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader. Five seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:",/post/24340,2017-11-26T00:47:02.321Z,2017-11-26T00:47:02.321Z,24340,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,1987 11999,v1.0,,"I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change effects in Bangladesh, one of the hardest hit areas. I do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?  @Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well.  by work i mean edgeryders",/post/14873,2017-11-26T00:46:25.899Z,2017-11-26T00:46:25.899Z,14873,3791,AnnotatorStore::TextAnnotation,,,,,,,,,767,1987 11998,v1.0,,"The concept of genomic integrity, basically including all the molecular genetic details of cells, was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health.   Thus, prevention (to avoid health care issues) rather than actual care is my key passion.  The non-profit association AGiR! Action for Genomic integrity through Research! was begun about 4 years ago to promote this idea.  I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way to fit in!  For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could be interesting to discuss in Alberto Rey's session, as might some microbial water sampling on Lake Geneva.  We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.  I learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities.  The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells for DNA damage.  More info can be found here: http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity  I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence.  http://wiki.hackuarium.ch/w/Foldscope   We are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection. Maybe we could do a micronucleus workshop in October?  Encouraging quantitative methodology is one of the challenges around these topics. Looking forward to further discussion.",/post/863,2017-11-26T00:45:47.224Z,2017-11-26T00:45:47.224Z,863,3791,AnnotatorStore::TextAnnotation,,,,,,,,,830,1986 11997,v1.0,,"I did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.",/post/18972,2017-11-26T00:45:00.102Z,2017-11-26T00:45:00.102Z,18972,3791,AnnotatorStore::TextAnnotation,,,,,,,,,682,1986 11996,v1.0,,"Our 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions. The representative of City of Porto for example, mentioned their project called “Bridge to the Future”. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn’t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.",/post/24477,2017-11-26T00:44:17.206Z,2017-11-26T00:44:17.206Z,24477,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,1985 11995,v1.0,,"The City of Milan is organizing a seminar on thursday 23th of February from 2pm to 5 pm at WeMake / Milan, in order to present Open Care to a network of civil servants from European cities. The event is part of a three days Eurocities' Study Visits focused on Social Entrepreuneurship. [The Study Visit detailed programme will be available asap]. Milan has founded Eurocities in 1986 together with Barcelona, Birmingham, Frankfurt, Lyon and Rotterdam. The network today brings together 130 of Europe's largest cities and 40 partner cities, that between them serve 130 million citizens across 35 countries. Eurocities consists of a platform for sharing knowledge and exchanging ideas through six thematic forums, a wide range of working groups, projects, activities and events. Milan is taking part in the working group Social Affairs > Smart Social Inclusion, working out solutions to a better spending and for better social outcomes. Participants in this working group discuss subjects such: How to respond to reduced public spending and higher demand for social services, investing in a smarter and innovative way? What is the role of cities in promoting social entrepreneurship and social economy? Participants will be invited from Municipalities of Acharnes, Amsterdam,  Antwerp,  Athens, Barcelona, Belfast,  Besiktas,  Beylikdüzü,  Birmingham,  Bonn,  Brno,  Bydgoszcz, Cardiff, Copenhagen, Dresden, Essen, Brussels, Gdansk,  Geneva,  Genoa,  Ghent,  Gothenburg,  Helsinki,  Katowice,  Leeds,  Lisbon,  Ljubljana,  Madrid, Manchester, Milan, Munich, Nantes, Netwerkstad, Twente, Newcastle-Gateshead, Nice Cote d’Azur, Nicosia, Osmangazi, Ostend, Porto, Rennes Metropole, Riga,  Rome,  Rotterdam,  Sheffield,  Stockholm,  Stuttgart,  Tallinn, Turin, Turkish Cypriot community of Nicosia, Uppsala, Utrecht, Vantaa, Warsaw, Zagreb, Zurich. If you are interested in taking part at the seminar feel free to send an email to milano_smartcity@comune-milano.org",/post/6108,2017-11-26T00:43:35.206Z,2017-11-26T00:43:35.206Z,6108,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6075,1985 11994,v1.0,,"@Noemi  I'm not hugely familiar with the context- I think @Gehan was referring to in the context of the Art of Hosting work- but here is an article from the originator of the concept, I believe, Dee Hock: https://thesystemsthinker.com/the-nature-and-creation-of-chaordic-organizations/ And here is a useful page on the P2PF wiki: http://wiki.p2pfoundation.net/ChaordicOrganizations_-_Characteristics Quote: Chaordic organisations are: • Are based on clarity of shared purpose and principles. • Are self-organizing and self-governing in whole and in part. • Exist primarily to enable their constituent parts. • Are powered from the periphery, unified from the core. • Are durable in purpose and principle, malleable in form and function. • Equitably distribute power, rights, responsibility and rewards. • Harmoniously combine cooperation and competition. • Learn, adapt and innovate in ever expanding cycles. • Are compatible with the human spirit and the biosphere. • Liberate and amplify ingenuity, initiative and judgment. • Are compatible with and foster diversity, complexity and change. • Constructively utilize and harmonize conflict and paradox. • Restrain and appropriately embed command and control methods. Sounds very Edgeryders!",/post/23370,2017-11-26T00:42:21.629Z,2017-11-26T00:42:21.629Z,23370,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1984 11993,v1.0,,"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner. These people can't use the same sex marriage solution. Friends are great if they are friends for life. But how can you actually make them stay  for life...because friends might decide one day to build their own family, so at that point they will be less present ... How to make it work ?",/post/13066,2017-11-26T00:41:31.760Z,2017-11-26T00:41:31.760Z,13066,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1983 11990,v1.0,,"Engineering meets biomatter. The squiggly squishy, compliant bits of biomechanics allow you to produce one size fits all. If someone has physical disability, like cerebral paulsy, giving them a little bit of improved mobility can have huge positive effects. Functionally grated structures: Inspired by Bird beaks: Hydrophobic proteins and high water content parts of the body.  Example where functional grating is applied: Cerebral palsy Cost of therapy is very expensive because one on one time with specialists are very costly, and tech used is not modifiable. so they build soft exoskeletons for actuators (for joints) using functional grating principles. Check out their ""Neucuff""",/post/5136,2017-11-26T00:35:03.042Z,2017-11-26T00:35:03.042Z,5136,3791,AnnotatorStore::TextAnnotation,,,,,,,,,5103,1980 11983,v1.0,,"As far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything. Even if the s*** hit the fan, no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system and covered by the medical insurance! For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses. This is merely a more efficient and structured way of doing the same.  Still, the network was semi-legal, meaning it operated under no clear incidence of laws. It's why I remember reading about Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie his face never shows.  From looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it's not clear though how much of the matchmaking was aided by the technology and how much was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL - like Vlad and Valeriu, who were key nodes in the network! @Sabina_U, lovely to meet you virtually, and hopefully in person soon! Cancel Save Annotate",/post/17546,2017-11-26T00:27:59.999Z,2017-11-26T00:27:59.999Z,17546,3791,AnnotatorStore::TextAnnotation,,,,,,,,,665,1973 11982,v1.0,,"Hi Alberto, thank you for your comment! The post on FB didn't mention anything, just the travel question. But I saw it was a share from Vlad Voiculescu, so I understood in a second, even if the article that I read in november 2012 did not state his real name. But it was really not hard to connect the dots. So in that evening we spoke for almost one hour on the phone , then we met and I took the medcines, that was the first encounter so to speak.  Basically, Vlad coordonated the whole thing, he bought the medicines at first, then he found a lot people willing to help with buying, from different cities in Europe and not only. Sometimes Valeriu would pick up people from the airport, sometimes just meet them in Bucharest and took the medicines to the ones in need. I don't know how it was for other cities, but there the distances are smaller and I guess people sorted it out in a similar way. Vlad also made a website: medicamente-lipsa.ro. People could acces it and find the missing drugs and the means to transport them.  Not least, a movie was made after the investigation in Hotnews (the website where I read the story in 2012) hbo.ro Rețeaua (2015) Documentarul urmărește o rețea de oameni binefăcători care cumpără din străinătate medicamente citostatice și le aduc pacienților din România de vreme ce aici aceste medicamente nu există. You can see it here until september for free http://www.hbogo.ro/content/the-network-1053692950   I hope this helps!",/post/15312,2017-11-26T00:27:10.839Z,2017-11-26T00:27:10.839Z,15312,3791,AnnotatorStore::TextAnnotation,,,,,,,,,665,1973 11980,v1.0,,"I think there is a lot in the medical field which is extremely bad to codify in(to) written language but can be learned face to face. I would think a ""social network of people who went through your problems"" would be useful particularly in regard to doctor-patient info responsibilities (the doctor is pressed for time and may not be able to relate to a patients situation as well as a ""veteran"" from the network).",/post/20397,2017-11-26T00:24:24.361Z,2017-11-26T00:24:24.361Z,20397,3791,AnnotatorStore::TextAnnotation,,,,,,,,,491,1973 11979,v1.0,,"Great sharing, JUS team and @Omri_Kaufmann in particular!  I am out of my depth: I have been sad but never depressed, exhausted but never burnt out. I have emotions, but they never seem to become medical conditions somehow. Lucky me.  But many people seem to think it's the human touch that makes the difference in care. Even the best designed sofa will not make you any less lonely.  The point is made (towards 12.00) by @Yara_Al_Adib in this video, since you want to be inspired you will probably like it!",/post/20198,2017-11-26T00:23:11.522Z,2017-11-26T00:23:11.522Z,20198,3791,AnnotatorStore::TextAnnotation,,,,,,,,,645,1972 11978,v1.0,,With an anthro perspective it turns out that the most important thing after a hear attack are your friends!,/post/23866,2017-11-26T00:19:39.263Z,2017-11-26T00:19:39.263Z,23866,3791,AnnotatorStore::TextAnnotation,,,,,,,,,516,1972 11977,v1.0,,Hospital to Home team striving for a healthier and happier Derby,/post/31827,2017-11-26T00:18:43.347Z,2017-11-26T00:18:43.347Z,31827,3791,AnnotatorStore::TextAnnotation,,,,,,,,,725,1971 11976,v1.0,,"I read this story and found it of interest. In a remote clinic in Mbankomo a doctor attaches electrodes to the chest of a patient lying on an examining table and records the patient’s heart data on an African-designed touch screen medical tablet. The readings are then transferred wirelessly, over the mobile-phone network to specialists in distant urban centers for interpretation, diagnosis and prescribed treatment. Here is the full story: By making it possible to perform tests, such as an electrocardiogram (ECG) in far-flung villages, the tablet is bringing high-quality cardiac care to remote and often poorly equipped countryside clinics where many Cameroonians go for their health care. It connects rural patients suffering from heart disease, many of whom do not have the means, the time, the contacts or the strength to travel to the big city, with Cameroon’s few, primarily urban-based cardiologists. 2014_05_art_2_1.jpg768x509 The Cardiopad, developed by 26-year-old Cameroonian engineer, Arthur Zang, promises to bring high quality cardiac care to remote rural communities. It is built to withstand the humid climate and rough terrain of outlying villages. Equipped with a battery, it can run independently for around six hours at full power. (Photo: E. Harris/WIPO). The potentially life-saving Cardiopad – designed in Cameroon to address a Cameroonian problem, but which is also widespread across Africa – is the brainchild of 26-year-old engineer Arthur Zang. For now, the heart reading and interpretation are just a simulation – but that will change soon if Mr. Zang gets his way. The winner of numerous overseas awards and grants, Mr. Zang hopes that his invention – imagine an iPad with home-build software built for deployment in the African bush – will revolutionize cardiac care in Cameroon. And for him, his business is also personal. “There are a lot of people in my family who suffer from cardiac illness,” he says referring to the recent heart-related death of his uncle. “So personally, this has affected me but above all I would say it has impassioned me, because I know personally the daily existence of people living in the village … I lived myself in a village and I know how difficult it is to get specialist care.” According to Mr. Zang, Cameroon has only a few dozen cardiologists in a country of around 22 million people and these are clustered in urban centers like the capital, Yaounde, or the main seaport town of Douala. Roughly half of Cameroon’s population lives in rural areas, according to the World Bank, while many others live in urban areas that do not have access to heart specialists. Life-saving potential The young engineer saw a problem and set out to try to fix it. In 2009, while still a student, Mr. Zang began developing a software product that could help doctors monitor the health of their patients’ hearts. He made contact with a Yaounde-based cardiologist, Professor Samuel Kingué, who helped him better understand the type of technical solutions required. With these insights, the young engineer finally wrote a program that he loaded onto an off-the-shelf device. But he soon realized he needed the flexibility of his own platform, and so turned to developing his own hardware – the Cardiopad. – the first medical tablet in Africa, says Mr. Zang. The Cardiopad has a simple-to-use, touchscreen interface that is adapted to the needs of remote health workers who may lack familiarity with the latest computing devices and the know-how required to use them. In tests by the Cameroonian scientific community, the Cardiopad has proven 97.7 percent reliable. It is solidly built to withstand the humid climate and the shocks incurred while being carried over rutted, often unpaved dirt roads like the one leading to the clinic at Mbankomo. The device is also built to withstand the frequent power cuts experienced in Cameroon and across Africa. Equipped with a battery, it can run independently for around six hours at full power. With some 30,000 euros funding from the Cameroonian government, Mr. Zang was able to create a prototype and eventually travel to China, where he found a factory that could produce a limited run of Cardiopads while he searched around for partners to help fund his venture. Obtaining investments has been difficult. Finding the right contact in overseas companies is a challenge and the pitch is no easier. The device is designed to help Africans in rural, impoverished communities;  something that not all companies see as a promising prospect, Mr. Zang says. That’s why he intends to tap into a very modern financing model – crowd-funding on platforms such as Kickstarter, where users can donate funds to, or purchase shares in, fledgling firms. For now, he is searching for more funding, hoping to build upon the CHF 50,000 grant he received as a Rolex Award Young Laureate 2014. While funding issues have been a constraint, the pilot tablets he has been able to produce are now being tested in hospitals in Cameroon. Mr. Zang’s aim is to produce and sell his device for around 2,200 euros which is significantly cheaper than other commercially available, less portable devices. The hope is that hospitals purchasing the low-cost Cardiopad will be able to lower the price of medical examinations and speed-up medical diagnoses. 2014_05_art_2_2.jpg768x704 (PHOTO: MIMORE MEDICAL)Patenting the Cardiopad He also turned to the intellectual property (IP) system to help advance his work. In December 2011, he applied for a patent via the Organisation Africaine de la Propriété Intellectuelle (OAPI) in Yaounde [see box]. OAPI later granted him a patent (No. 16213) on his technology, covering some aspects of both the software and the hardware. Obtaining a patent was an important step for Mr. Zang. “I did it to reassure myself,” he said, “also to protect the product, and to have a lot more credibility in the eyes of, for example, partners with whom I wanted to sign contracts in order to be able to produce and then sell the product.” When funds permit, he also plans to register the Cardiopad, and his company, Himore Medical, which currently produces the tablet, as trademarks. “The intellectual property system can help us in Africa – it can add credibility to African products. And credibility has repercussions on the business plan because if you aren’t credible, it’s difficult to sell your product,” says Mr. Zang. Driving new developments The budding entrepreneur is already in collaboration with other young Cameroonian engineers to develop a range of additional medical devices and technologies for rural areas. He points to what he views as a disconnect in the innovation environment in Cameroon: in the medical space, in particular, many of the creators and inventors are young like him – roughly half of Cameroon’s population is under the age of 18 – so they rarely suffer from the diseases that products like the Cardiopad are designed to address. Further, with a rapidly urbanizing population, urban dwellers may all too easily overlook the specific needs of those living in remote rural areas. For Mr. Zang, innovation requires a flexible mindset, a deep understanding of an entire economic ecosystem and an ability to commercialize ideas. “You can’t only have engineering ideas,” he says. “We have to go further, into researching the problems confronting Africans and then pursue research into solutions, subsidize the creation of companies, create business incubators that can help nurture projects, researchers, engineers and really help them move from the laboratory to the factory.” Pursuing a dream Ultimately, Mr. Zang’s dream is to continue working to “improve life conditions” by branching out into other areas of medical technology, envisioning specially adapted devices for echography and radiology. In the Mbankomo clinic, the lack of these higher-end materials is evident. Surrounded by a tidy plot of well-brushed soil dotted with shade trees, the one-story clinic is austere. Patient consulting rooms are cooled by open windows, but little advanced machinery is on display. Mr. Zang says doctors at the facility are overwhelmed by the health needs of patients, which range from the mundane to the mortal. Connecting these clinics to better-resourced hospitals elsewhere via the mobile phone system is establishing a lifeline. Mr. Zang hopes ultimately to manufacture the Cardiopad in Cameroon, and to help the country develop as a manufacturing center for lower-cost devices specifically tailored to low-resource environments and markets, like those in West Africa. “This will help lower the cost of medical exams and the cost of good health across the regions, in the villages,” he says. “That’s it, that’s the dream that is smoldering in me.”",/post/555,2017-11-26T00:15:40.540Z,2017-11-26T00:15:40.540Z,555,3791,AnnotatorStore::TextAnnotation,,,,,,,,,522,1970 11975,v1.0,,"Dandelion ""Pissenlit"" roots for cure cacer, Yes it's possible and without fees!!  There are many different types of cancer any people get killed by it. It's enough we have found the cure for many of them ( prostate, intestine, lungs ,...) Many people aboard have been heal by this roots when they heard about it, they stop using chimiotherapy ( chimiotherapy = traitement used for having a long day of living, is not enough efficient!!! The bad effect of this treatment is not his non efficiency but also killing the healthy cells, even if he kill the cancer cells inside body.!!! From this treatment there are some bad effect like, appetiteless, loss of weight, weakness of antibody, ...)  Actually, 7 people here in Madagascar have been heal by this treatment when they heard about it, and follow the instructions. It's  a close friend of mine who have been sick by ""liver and intestine"" cacer. He was up to follow chimiotherapy  treatment so I told him to follow this natural treatment  first before he decided to spend  money on chimiotherapy. When I heard about this plant from Canadian friend, we decided to use it.  He was so happy when he gets cured after 1 week  of treatment, when he decided to drink infusion from dandelion's root. Doctors doesn't find any clue of cancer on him. Maybe the phase of his cacer was primary and it's was easy to cure. So my conscience is restless when I heard that there are many people who suffer, dead from cancer ""it's like non assistance of people in danger"". I decided to share it with you.  -THIS IS THE YOU NEED TO FOLLOW.  1# You need to collect dandelion on a place where cars doesn't barely ride. 2# non chemical insecticides or related haven't been sprayed on the soil where you collect it.  -PREPARATION  Boil 1 liter of top water, when it's still boiling, ad 100 grams of  dandelion roots.  Leave it boiling  for 10 minutes ( never more never less than 10mn. It's has been calculate that ""active elements"" goes out at this moment.  If it's more than that, it's will kill those active elements.  When it's done let it get cold. This is your ""drinking water for one day"" the better moment for drinking much is before breakfast and dinner, also drinkable in middle time. Do it for 20 days and stop for 10 days. Keep do it again from the beginning as a cycle of one month (20 plus 10 days.)  If everything has been followed step by step in one week, we can find the changes ; inside pain goes out,  patient will find appetite, this is the major factor of this treatment and it's make a big different between it and chimiotherapy.  If I understand and correct me if I'm wrong!! chimiotherapy kills cancerous cells but also healthy cells. Patient get weak, lost appetite and doesn't have no much time for living,  It's a kind of catalyst inside body.  But this dandelion's  roots hunt and kill all cancerous cells inside body.  After you recognize that patient is completely cured, all we have to do is care about wound healing leave by the cancer inside the body. We can keep doing it by natural method using garlic.  Take one glass of hot water,  scratch 3 or 4 peaces of garlic and put it inside the glass of hot water.  Leave it for one night and drink it before breakfast,  keep do it until its gone,  or you can still buy some medecines in drug store if you want to heal  wound leaved by cancer.  I hope that everyone can find a way to cure and fight cancer on his own natural or chimical. If you have any questions about this, any suggestions or critics please don't hesitate to write bellow  Dear friends Edgeryders, I wish an Happy and successful new year to each every one of you.",/post/805,2017-11-26T00:14:35.583Z,2017-11-26T00:14:35.583Z,805,3791,AnnotatorStore::TextAnnotation,,,,,,,,,772,1969 11973,v1.0,,"The Milan consortium meeting taught us that bringing the offline debate online is hard. So far, we have followed two different approaches:  ScImpulse, WeMake and City of Milano focus on an engaging offline experience for participants. Conveners take notes, photos etc. They then editorialize them and upload them onto the platform. Edgeryders focus on offering people with good stories help for them to put them on the platform. Workshops are organized not by Edgeryders itself (though we do take part), but by active community members. The same also provide most of the help.  Both methods are hard. Both have drawbacks. The first method is mostly failing. It is difficult to make sense of notes taken during the meeting. I had this experience during ""Taking care"", where I volunteered to take notes with Cristina. Afterwards, I could interpret my notes, but not hers (though we were using the same  Google Doc! ). I imagine the opposite was true for her. Many notes never make it online. Those that do take the form of a report: ""A said this, B said that"". The community tends not to engage with this type of format.  The second method has given better results.  Still, it discourages people who are not good communicators in writing, face language barriers etc.  How to move forward? The Milan meeting gave us two promising leads. The first one was offered by @costantino and @alessandrocontini . They pointed out that the mechanics of makers collaboration is not so social. You go to the forum, ask a question, get a pointer, solve the problem and move on. It may be difficult to track it through an online forum. The second one results from something interesting that happened during ""Taking care"". This: people in the Bordeaux group at some point felt their contribution was unnecessary and possibly unwelcome. They withdrew from the workshop and moved to a different room. They kept working on opencare, but in the form of writing code to look at the conversation.  This resonates with an Edgeryders conversation thread that predates opencare. It says this: the ""meeting"" or ""assembly"" format claims to be inclusive, but in fact it is not. Instead, it rewards extrovert, confident, even narcissistic personalities. Introverts don't like to speak in public, certainly not without thinking things through. So they never speak. This issue has come to the fore in the hacker community, where many skilled developers identify as intros. Intros like online, where they can take time to think things through, and where they do not have to interrupt others to claim space. See for example this great comment by @trythis and the thread that comes with it. As a result, offline spaces are exclusionary. They do not know it... because they exclude the people who never speak up.  The post-it workshop format has a second potential problem. It has no space for contributions in forms other than the speech (as Cicero describes in De Oratore). The role of facilitators is to ""standardize"" contributions. Some people (like @Noemi in ""Taking care"") feel that this negates serendipity and predetermines results. If this is true, a lot of design-based methods of engagement have a serious flaw. What's worse, an unacknowledged one. Given their popularity, this is serious. So, I propose we ""go deep"", doing research and producing one or more papers on: An ethnography of makers collaboration. How important is the space? How important is StackOverflow or similar? What constitues ""good"" collaboration (Alessandro: ""the less interactive and more efficient, the better"")?  A model of the interface between online and offline collaboration. We promised to build this anyway in the proposal. A critique of the post-it workshop as a technique for collective intelligence.  All of this should, in my opinion, have a design perspective. I propose that @Ezio_Manzini coordinates the activities and writes one or two papers under items 2 and 3. ER would be happy to support this. And I would love to see WeMake and ScImpulse appoint an ethnographer to look into item 1.  Thoughts?",/post/6069,2017-11-26T00:12:18.455Z,2017-11-26T00:12:18.455Z,6069,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1967 11972,v1.0,,"TICAH met this situation with interventions that emphasised embodied communication and the creative body. They invited those effected to walk a labyrinth together in a peace ceremony and organised body map workshops that brought together different survivors to share their stories. The body-mapping workshops use art skills to trace participants’ bodies and then map elements of their life stories onto this body map: visual elements are added that stand for the individual’s aims, what supports them, the traumas they have lived through and their strengths. These visual records are a way of introducing the details of what happened in captivity back into the community to be held by everyone. So the labyrinth walking and the body-mapping make the real lives, bodies and experiences of the victims a public experience and enable the wider community to listen to and appreciate how these survivors managed to live through painful and unbelievably challenging times.",/post/553,2017-11-26T00:08:31.843Z,2017-11-26T00:08:31.843Z,553,3791,AnnotatorStore::TextAnnotation,,,,,,,,,520,1966 11971,v1.0,,"Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on. In Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader. Five seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:",/post/24340,2017-11-26T00:06:47.021Z,2017-11-26T00:06:47.021Z,24340,3791,AnnotatorStore::TextAnnotation,,,,,,,,,815,1965 11969,v1.0,,"Whaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels either",/post/18277,2017-11-26T00:05:05.820Z,2017-11-26T00:05:05.820Z,18277,3791,AnnotatorStore::TextAnnotation,,,,,,,,,650,1963 11968,v1.0,,"@Patrick_Andrews hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too). What do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships? Do  you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I'm curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this. Edit Delete No Commentcare homes Edit Delete No Commentautonomy Cancel Save Annotate",/post/20540,2017-11-26T00:03:58.775Z,2017-11-26T00:03:58.775Z,20540,3791,AnnotatorStore::TextAnnotation,,,,,,,,,725,1962 11967,v1.0,,"We missed you @Woodbinehealth , welcome back. I'm very sorry for your loss, can't even begin to imagine. Just this morning I was reading this @politicalbeauty/aggressive-humanism-bbff64cf4296"">""manifesto"" on aggressive humanism by the artistic-militant group in Berlin called Center for Political Beauty. Even their name, aside from tactics, is just so inspiring. It reminded me of you guys somehow, the grit..  Autonomous mental health infrastructure: that is what I would prioritize as well for your participation at OpenVillage Festival. How would you see an interaction with the opencare community happening in brussels? in an effective way that supports your own mission. From the top of my head, priming the conversation with key questions around which we could gather initial experiences ahead of the event? or..? For skill sharing and practical activities, @steelweaver was proposing to demonstrate an acupuncture micro clinic at the event - could we add to that something you guys want to share i.e. teaching others, body fitness classes etc?",/post/6557,2017-11-26T00:02:55.659Z,2017-11-26T00:02:55.659Z,6557,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1962 11966,v1.0,,"Vision  A holistic, integral, evolutionary, self-directed and self-integrated community (civilization). Purpose To continuously and consciously evolve toward our highest potential through resilient adaptation to experiential existence. To collaboratively design, develop, and implement the blueprint for an intentional need-fulfillment community where purposefully driven individuals are fulfilled in their development toward their highest potential state of human experience for themselves and all others. The CAPE Project has a low entrance barrier for collaborators, participators, and community builders. With that said, however, there can be a substantial learning curve when it comes to acquiring a comprehensive understanding of what is actually being proposed by the Project. It is important to remember that this community proposal represents an entirely different linguistic worldview than most (if not all) other worldviews present in modern society. Fundamentally, the Community’s design describes an entirely divergent way of living and of understanding reality than the many worldviews expressed among the current population of the planet. This can present a significant motivating challenge for those interested in this direction. The design specifications are dense in content and many individuals who read them for the first time feel like they are learning a new language and integrating a new worldview, which takes time and requires internal processing.First Steps and Key Features As a first step we are going to establish a “Training and Research Network” - primarily for tertiary education | higher education - to enable educators to understand and facilitate the train of thought of an integral, holistic, evolutionary, self-directed, self-integrated and self-civilization and are looking for places to establish training and cultural exchange centers. With tis comes an network of self organizing solidly co-habitational care Nuklei. As we have to exist within a framework of formal-operational rules (orange), at best early vision-logic (green), we have to establish a set of “organizational-bodies” to support the idea in the best way possible. The key features have to be adapted as part of part of a living organisation! To date, our core themes are: New Learning Creating Creative Learning (Spaces) Communication Art integral News Communication  Socio-Economic Development New socio-economic systems that focus on resource availability; experience an reserch a new way of care for each other including health care and social security aspects; develoopment of strategies for mental health and healty living environments; Integral Leadership, integral management systems living- and holonic organizations, Assessment, creating “Selforganizing Open Hierarchical Order” Systems, (olocracy) centre attention on the evolution of human values and consciousness as the crucial factors in changing course — from a race towards degradation, polarization and disaster to a rethinking of values and priorities so as to navigate today's transformation in the direction of humanism, ethics and global sustainability"" Ervin Laszlo Sustainable Engineering and Application Application of sustainable energy production; High-Tech in ecological production processes. The design for the community is not yet sufficiently complete to plan its implementation. However, we presently have a ‘scope of work’, and we are in the process of converting it into a comprehensive project plan. We are initiateing multilingual communities and living space with people who focus primarily on inner development. Where we are working on our consciousness, because the crisis in our society is a crisis of consciousness. We shift our focus inwards, develop our relationship skills and transform our social programming. There should be as few fixed guidelines as possible concerning the personality and lifestyle of the members except the common to work toward a higher level of development. There are no ideologies, no dogmatic requirements and no fixed concepts.“CAPE  aims to build a social net for the members, enacts ""share & care"" principles and provides a framework (legal body) for cooperative economy as well as a space for inter-generational ""new"", action based, co-operative learning. CAPE should be a special place for members and learners to revive, a place to flourish, a place for young and old. Sustainable mental health is a result of continuous enthusiasm to our own development and a willingness reconstruct our beliefs. We, the initiators of CAPE LearnLust & Living think that the acceleration of our lives and the deluge of controversy, often absurd and paranoid information from an ailing socio-economic structure leads to the desire of many people for contemplation, inversion and a return to ethical values that are inherent to all human beings, but in ""our experienced world"" increasingly seem to disappear. Sincere joy, love for everything around us, to nature, compassion for each other, time to talk, to feel and enjoy, no longer being so tense and stretched - internally driven, yet not knowing where to go. Autonomous and healthy life for the young and the joyful old. To create the miracle called ""we"", which awakens us to renewed life! To unmask the process of maturing as ripening and getting wise. Therefore, we are now tackling this … What do we perceive? Today our society offers almost unlimited possibilities. This diversity can lead us humans to exhaustion, confusion and disorientation, to sensory overload, burnout! Therefore, every human being is faced with the challenge of finding answers to the following questions: Who am I really? Why am I here? Who or what gives me meaning and footing? What is my inherent value? Where do I want to go? Our goal is to develop as a group to the extent that we understand each other at the height of the developmental stage now possible. These levels of human development are researched and described scientifically. It does not matter at what age we come together, it's fun and is exciting to get to know thyself and develop. As pioneers of a new action based, co-operative learning we share our special talents and skills with those interested. We are convinced that sustainable social change in the global community depends on the quality of personal development, training and the ability to effectively and constructively communicate with others. The focus is on interaction and cooperation, shared responsibility and authority, and the improvement of critical thinking. There is no 'teacher' in the traditional sense. Learning will be self-organizing, dynamically adjusted to needs and ideas of the ""learners"".",/post/765,2017-11-26T00:02:19.382Z,2017-11-26T00:02:19.382Z,765,3791,AnnotatorStore::TextAnnotation,,,,,,,,,732,1962 11965,v1.0,,How can we help individuals be independent from official caring services?,/post/541,2017-11-26T00:00:37.468Z,2017-11-26T00:00:37.468Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,1962 11964,v1.0,,"@Patrick_Andrews hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too). What do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships? Do  you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I'm curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this.",/post/20540,2017-11-25T23:58:49.109Z,2017-11-25T23:58:49.109Z,20540,3791,AnnotatorStore::TextAnnotation,,,,,,,,,725,1962 11963,v1.0,,"Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.  I can explain it all in detail, but probably it is best to discuss what you actually NEED first. 20170626_120731 (2).jpg2500x1608 404 KB ( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ). Thia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc. I like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple. Another thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic.",/post/28471,2017-11-25T23:56:55.450Z,2017-11-25T23:56:55.450Z,28471,3791,AnnotatorStore::TextAnnotation,,,,,,,,,816,1961 11962,v1.0,,"Based in the heart of Sheffield, Access Space is the UK’s longest-running free internet learning centre, with thousands of participants making use of it every year – and it has achieved this without spending a penny on computers or software. Its model has inspired centres across Europe, while MetaReciclagem – a Brazilian initiative directly informed by Access Space – has now grown to a network of almost a hundred centres. I founded Access Space in 2000 - but I had the idea in 1996 - when I started an arts project called ""Redundant Technology Initiative"". I'm an artist, and I wanted to use my art practice to show the true situation in Sheffield, the city where I live. Sheffield has suffered structural problems from massive industrial change - the city used to be based on Coal mining and the Steel industry. Now the coal mines are closed, and the Steel mills are manned by robots. There is a very high level of unemployment in the city, and much of the employment that there is is in the public sector - most adults work for the government! Working as an artist, I saw that the city was failing to adapt to the emerging information economy - South Yorkshire had the lowest uptake of information technology in the UK. Meanwhile, I was making art from trash that I found in skips. Not only was the trash free (yes!) it seemed to me to be the most suitable material with which to make art about urban decline. Then I started to find computers in the trash. I collected them, with the idea that I would make robot sculptures and other crazy artworks. I was amazed to discover, after some experimentation, that most of the PCs I recovered actually worked! I started to think about why people were throwing these machines away - when the city had a low level of engagement with information technology. So I started an arts group, ""Redundant Technology Initiative"" with one rule - we would be the people who would be creative with trash computers. But ONLY trash computers! We would refuse to pay for any technology, and only use what we could get for free. (This was lucky, because me and my friends were unemployed or unpaid artists, and thus completely skint.) We had a few exhibitions, and each time we exhibited, people brought us more computers. Being artists, we made them into ""an art installation"". (Other people might think, with some justification, that what we had made was was just ""a huge pile"".) By 1998 we had rented a warehouse which was scheduled for demolition. One good feature of industrial decline is that space is cheap. We had more than 1000 computers (!!!) some of which worked, some of which could work, and some of which were broken. We made a HUGE installation for a digital arts festival... and then more and more people gave us computers. After a few weeks we had more than 2000 machines. We started to realise two things: (1) We didn't have any shortage of computers. (2) We did have a shortage of skill, expertise and creativity. We learned how to rebuild and reprogram computers really fast, and we found students who also wanted to help. A local college sent us their trainees on ""work placement"" - and they learned as they helped us to repair the massive numbers of machines. But we then had a very embarrassing problem for an art group. We just weren't creative enough. We couldn't think of cool things to do with more than about 100 computers - we needed to think of cool things to do with 100 computers PER MONTH. So we designed ""Access Space"" - a digital lab where people can walk in and show us how they could be creative and productive with trash technology. It took 2 years to raise enugh money to start, and after we started, we managed to get ERDF funding to match our initial funds. (NOTE that there was no way we could have accessed ERDF funding with our levels of experience. We came in as a minor delivery partner, insulated from the frightening bureaucracy of the project by more experienced lead partners. This was very lucky for us - and could start a whole new conversation.) So, in 2000 Access Space opened. We believed it would be a good model to help people get engaged with technology. We invite every visitor to define their OWN objectives with trash technology - it could be making images, sounds, music, robots, websites, designs, photo galleries... It could be building a business, making new networks, rebuilding computers, or whatever. Our key test is that people THEMSELVES set their agenda. We don't work with a curriculum. And we don't have teachers. Instead, we ask participants to help each other - and because they're all working on ""cool stuff"" not ""boring stuff"" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience. We provide a free, open access digital lab, doing all sorts of things, from computer analysis, repair and recycling to art exhibitions, workshops, peer-learning activities, enterprise incubation, social support and more. We set up this lab as a response to unemployment, urban decline and the transformation of the job market. What we've established is an innovative methodology to invest time, not money, in ICTs. This has huge potential to address worklessness and lack of opportunities. It's worth reflecting that many of our participants in Access Space experience the kind of precarity which you are investigating with Edgeryders. Access Space has a very wide range of participation. If you split them into three groups, <25years, 25-50years, >50 years, then those groups are roughly similar in size. Roughly 1/3 of our participants are from minority ethnic backgrounds. Around 1/3 of our participants have a university education. Almost 2/3 of our participants are unemployed, or under-employed. Around 1/5 of our participants have some form of disability or long-term illness - particularly learning difficulties, like Asperger's Syndrome (associated with high intelligence) and mental health difficulties, such as depression. 1/10 of our participants have a serious problem with housing. Either they're homeless, or they are living in insecure, or temporary accommodation. We had more than 2000 people use the space in 2011, which added up to more than 12000 hours of usage. Helping and facilitating this number of people, particularly when some of them have difficulties, is a huge job. When it comes to funding, the significance of Access Space's budget is how small it is for the outcomes it delivers. Access Space principally sustains itself by saving money. A typical annual budget is only around £100K. We have survived by raising funds, and by saving money. We save around £30000 each year by only using recycled computers and free, open source software. We have a very small core team (now usually 6, now 7 people, mostly part-time) who are on short-term contracts. Our special power with funding is the huge range of benefits that Access Space brings. We help people: Make creative progress - by engaging with digital creativity. Make technical progress - learning new high-tech skills. Make social progress - by helping each other, and by working together, people learn crucial soft skills, and develop more useful networks. Make progress with employability and enterprise. (These we see as the ultimate extension of all the types of progress people make.) This means that we have a wide range of stakeholders. We have been funded to: Increase high-tech skills for local enterprises. Get people involved with the digital arts. Help people become ""digitally included"". Research and test new models for peer learning. Develop and incubate micro-enterprises. Develop high-tech skills with innovation potential. Help people to become included in mainstream society, and become more employable. What do we want? Funding, of course! However, we are aware that models based on funding are becoming increasingly under pressure. So we have started a ""Friends"" scheme, to ask our participants, and anyone else who thinks that the free opportunities we deliver are a good thing, to contribute. But we also need more participation by people who understand the challenge, and want to help. We want people who are interested to help us facilitate the community, build functioning social and economic networks, and experiment with how we can mobilise the talents and skills of the larger and larger number of unemployed people we encounter. We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative. We need: More volunteers who are interested to work with a wide range of people, and are interested to challenge social exclusion and division. Enterprising people who are interested in starting their own business and can see the potential to work in a social, creative and technical context. Open source software enthusiasts who want to help us spread the word. We have a number of specific software and hardware challenges which we could use help with. Other spaces across Europe who would like to collaborate with us to develop a network of social, technical and creative spaces. We have contacts already, but many spaces are just ""technical and social"" or ""creative and technical"" or ""social and creative"". We are looking for groups that want to be ""technical, social, AND creative"". This would be the gist of what we're doing with this project. If you are passionate about techs and open source software, let me know and maybe we can collaborate. Also, if your're around Sheffield and would like to visit our establishment, also drop a line; We're currently working with x volunteers, but would be happy to take you in if you're up for this!  Find us at: access-space.org Access Space Making and Unmaking http://www.facebook.com/accessspace http://twitter.com/AccessSpace Finally, to see our work in action, I leave you in the company of this video of the Recycle Mid-Weekend we organized in March last year:",/post/1710,2017-11-25T23:52:28.995Z,2017-11-25T23:52:28.995Z,1710,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1960 11961,v1.0,,"It's definitely worth reaching out to arts organisations to see how they respond to these types of ideas as well. I don't know about the mainland european models, but with the drastic reduction in state subsidy and the lack of increase in American style donor funding, UK based performing arts organisations have become much more interested in the ways they can repurpose buildings for theatre, creative industries and wider arts based practices. An interesting case study would be Theatre Delicatessen in London: theatredelicatessen.co.uk About - Theatre Delicatessen About - Theatre Delicatessen exists to support theatremakers and artists in the creation of their work. They seem to only ever work in spaces that most others would move out of. Since they started they have had London bases in a disused factory in the West End (now a boutique hotel, i believe) then they moved into the recently abandoned Guardian newspaper head office, now they're moving across the river to an old Victorian library building. They're less interested in what the space was before than what it can be in the future.",/post/21005,2017-11-25T23:50:24.101Z,2017-11-25T23:50:24.101Z,21005,3791,AnnotatorStore::TextAnnotation,,,,,,,,,758,1959 11960,v1.0,,"I'd like to propose a theme that I've been curious about for some time. How do we create the conditions for #opencare in our organisations and our communities? How do we design communities and organisations that are care-full, and promote health and flourishing? I'm curious about the interplay between policy and culture (as in ways of doing things rather than music and art). Are policies simply agreements about what we think works and what is right at any given time? Moreover how are they implemented at government or regional levels and in organisations, if they are to be more than good intentions? Do they end up needing enforced or policed by someone? Are they a tool of old ways of doing things built on hierarchy and power over? What role can they play in creating the conditions for opencare or for that matter for love and acceptance and generating the sense of coherence that Antonovsky describes in salutogenesis and its approach to study what creates health and well being rather than researching dis-ease? My work through the GalGael Trust based in the Govan area of Glasgow has offered some hints that actively generating a healthy culture is perhaps more effective in achieving in an anchored way the 'good intentions' of policy. Strong values guide actions, decisions and behaviour, influence language and how we treat one another. Our workshop sees people working, for the most, part side by side. We’ve had people with violent histories, people who suffer agoraphobia, depression and addiction. Yet something about the space we’ve created has meant that people largely get on, there’ve been no violent incidents in our 20 year history and people describe their doctor taking them off medication, sometimes for the first time in many years.  It’s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we’ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said ‘the work is the therapy’ - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society? We’ve recently spent a year curating a collaborative process to explore what it means to ‘be GalGael’. It saw us going back to our beginnings and drawing on the learning from our days as an anti-motorway protest camp. We wrestled with our assumptions - which were shared and which were disputed? We explored whether our purpose was actually underneath it all - to bring about greater love. This contributes to our being in a good place to explore this theme more widely in our own organisation and its practical application in more depth. Through the process we would like to connect and learn from other organisations exploring this theme.  What kind of structures and processes are essential building blocks or make up the ’hardware’? What kind internal capacities and approaches make up the ‘software’ that keep a healthy organisation, healthy community or healthy societies humming with human flourishing? The theme could also link to other themes that explore how we create the conditions such as: citizens income and the politics of time; nature of collaboration and how we exercise our freedoms and capacities; the nature of work in care-full societies; forms of leadership and personal capacity called for.  I’m very new to Edgeryders and I’ve not had much time to develop this so would appreciate feedback and thoughts as to whether this might be a theme of interest to others.",/post/6304,2017-11-25T23:25:54.834Z,2017-11-25T23:25:54.834Z,6304,3791,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1958 11936,v1.0,,entrepreneur,/post/35574,2017-11-25T18:43:04.809Z,2017-12-02T16:05:38.080Z,35574,4180,AnnotatorStore::TextAnnotation,,,,,,,,,6975,2426 11924,v1.0,,"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles, even skill up in a process that difficult.  There are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder, said something similar about  how conversation in which neither party is an expert can be lifechanging. I'm curious about the group which seems more or less open - can anyone who reports feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?",/post/10263,2017-11-25T00:10:51.973Z,2017-11-25T00:10:51.973Z,10263,3791,AnnotatorStore::TextAnnotation,,,,,,,,,718,1956 11923,v1.0,,"Despite an image of desperate, crumbling Greece that some people might have nowadays, those who investigate alternative economies and societies, those interested in self-organisation and changing the status quo recognize the country’s revolutionary role. One of the finest examples is SC!FY, a young organization based in Athens which in the course of four years managed to get a lot of stuff done. My brother, George (Giannakopoulos) has been an Artificial Intelligence researcher who has worked both in Greece and the North of Italy for quite a few years and has had programming and IT consulting experience for over 15 years in the industry. He has been collaborating with researchers from both sides of the Atlantic. What he was experiencing as a researcher, was beyond his imagination. He puts it nicely: ""EU is spending billions of euros in research projects. Consortia of research institutes and big EU companies receive huge amounts of money to produce amazing technologies. Technologies that need only a few months of work to become great, potentially life­changing products. But most of them remain unused for years within the walls of the institutes that produce them. It seems absurd, but rarely does anyone undertake the little work that is required to bring top notch scientific results to our everyday lives. It is also common that researchers simply cannot grasp the direct impact a technology they create can have on everyday life, if applied in a friendly, accessible way."" He wanted to see it change - and so in 2012 he founded an organisation with a mission to publish and transform that knowledge into ready to use solutions. He could not take it any longer. So, he and his cordial friend Vassilis (Salapatas) decided to bridge this gap between research and society. In 2012 they formed SciFY (Science For You), an Not for profit organization that does exactly this: take scientific results, and then form a community of entrepreneurs, volunteers, researchers and end users to build useful final products to solve everyday problems. And they offer them for free. To all. For the first two years we strategically decided to prove that we are serious about what we do, we are able to deliver and … that we are not crooks (since trust towards NGOs has been very low in Greece after some scandals) We also had to prove we are using freely available results (these are more and more common in EU, which requires many of the research it funds to publish their findings on the most open licenses possible). In the last 2,5 years, we’ve started looking for funding and this is when plenty of things got done. We have been awarded by the President of the Hellenic Republic, we’ve built collaborations with most of the major Greek institutions - foundations, institutes, universities etc. We have a feeling that our impact is rather disproportionate compared to our size But we really think this happens thanks to our focus on communities and our passion for getting things done. You can read about our work in our annual report for 2015. The model that we’ve introduced to our work is to create communities around each of the ideas from the very beginning. We’re also often asked to solve a particular problem by the very communities. This is one of the keys to our success - we’re surrounded by people who want to see and use the results of our work. And they’re actively taking part in the process. It helps us create a space where ideas, needs, opinions circulate and are being taken into account. SC!FY is working now in four domains - areas of interest. The first area of interest is care-related and it focuses on creating assistive technologies for people with disabilities, and on offering them for free (and under open source licences). Among these are games for blind children, which have been developed in collaboration with schools for the blind - they helped us design them, tested and now use them. The process allowed us to bring together blind and non-blind people to work together. These games have more than 3,500 downloads from all around the world, got much media attention - and we constantly get positive feedback from people using them. So we continue developing more games for the bind. :-) We’ve also created a smartphone app called ICSee for people with low vision that applies special filters to the video captured by the phone’s camera and allows users to read a restaurant menu or signs on the door. It’s also available for free and under open source licences on Google Play.. We’re finishing the development of Talk and Play, a platform for people with motor disabilities, that will kick-off in late September. This application will help people who can’t move or talk to communicate with their environment, watch videos, listen to music, or play games that support their rehabilitation. We have created more solutions in this area, that you can find here. The second area of our work is e- democracy. In this strand, we’ve built an open source platform DemocracIT that supports the process of public consultation, which is theoretically common in Greece, but tedious in reality. We’ve tested it and presented to the governmental bodies. Besides, there is also ActiveCommons platform, which we’ve designed to foster collaboration for the common good between It caters organisations, NGOs and groups of people who want to change something and need an effective tool for collaboration. The third scope of our work is supporting civil society with our IT skills. One of the results of such collaborations is a volunteer management platform - available for free, as well. And finally, the fourth pillar of our work is the Artificial Intelligence business. One of the outcomes of our work is NewSum that produces automated news summaries, and works in many languages. Or PServer application, that helps you personalise other applications. How do you cope with finding financing outside your own country? Do you struggle building or managing communities that could support your work and contribute towards making it time and cost effective? What are the obstacles you face in terms of accessing and using scientific research? Talk to us by leaving a comment.",/post/528,2017-11-25T00:02:30.035Z,2017-11-25T00:02:30.035Z,528,3791,AnnotatorStore::TextAnnotation,,,,,,,,,495,1955 11922,v1.0,,"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner. These people can't use the same sex marriage solution. Friends are great if they are friends for life. But how can you actually make them stay  for life...because friends might decide one day to build their own family, so at that point they will be less present ... How to make it work ? Cancel Save Annotate",/post/13066,2017-11-25T00:01:00.864Z,2017-11-25T00:01:00.864Z,13066,3791,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1954 11921,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-11-24T23:56:35.910Z,2017-11-24T23:56:35.910Z,824,3791,AnnotatorStore::TextAnnotation,,,,,,,,,791,1953 11920,v1.0,,"I did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.",/post/18972,2017-11-24T23:54:43.169Z,2017-11-24T23:54:43.169Z,18972,3791,AnnotatorStore::TextAnnotation,,,,,,,,,682,1952 11919,v1.0,,"Community Acupuncture is a new version of an old format of providing a very old form of medicine – using traditional East Asian methods, it eschews the one-to-one treatments most common in the West, instead adapting the traditional Chinese model of treating multiple patients at once in the same room. This enables treatment to be offered more cheaply, as well as creating a shared space of communal healing, so that healthcare becomes a site of community empowerment. There are now over 170 such clinics in the US and more than 50 in the UK (you can read about their history and ethos on the websites of POCA and ACMAC). As I detailed in my original Opencare blog post, I have been slowly evolving a CMAC of my own to serve a small and somewhat dysfunctional market town in the South-West of the UK. Through this process, a number of tough lessons and intriguing insights have emerged, with broader implications for the innovative provision of care in contemporary European societies. I subtitled my initial post “An Ongoing Mutation” both in reference to the overall development of the approach in the West and to my own experience of developing a clinic. This experience has been one of trial and error, of creative response to practical and bureaucratic challenges, and of constant adaptation to feedback from – and through ongoing relationship with – the community; as I learn more about their needs and perspective, I have changed the way I am treating, the way I interact with patients, the hours treatment is offered and the venue it is offered in. To ask, as a state bureaucrat convinced of the usefulness of CMACs might, “how can we replicate this so that we can roll it out across the country at an official level?” rather misses the point; it is precisely by being embedded in the community that this process of creative mutation can occur, and precisely by meeting patients outside the usual structures of state-sanctioned medical authority that a more horizontal trust and respect can be created, and a more creative approach to healthcare provision enacted. Like many of the other projects featured in OpenCare, the flexibility of Community Acupuncture – light on infrastructure, expensive medical equipment or architectural requirements, reliant instead on the portable diagnostic and treatment skills of the practitioner – makes it well-suited to navigating a disrupted present and an uncertain future. Quite aside from its effectiveness at treating unexplained and chronic conditions (the kind mainstream Western medicine does not excel at curing), having the ability to treat without reliance on fragile, resource-intensive and environmentally-damaging industrial supply chains may well prove to be a great asset in the near future. Indeed, the worth of this is already being proven through the work of charitable foundations like World Medicine, who have set up successful CMACs in poor, rural areas of India, Palestine, Nepal and Sri Lanka. Problems still remain, not least with the institutional resistance to acupuncture – often based on little more than ill-informed prejudice against ‘alternative’ medicine. There are clashes within the acupuncture community, as well, on how best to treat, and issues with providing quality-assurance and redress to patients whilst working outside the usual channels and institutions of healthcare. Nevertheless, the popularity and effectiveness of CMACs speak for themselves. All too often, the state-established institutions of care remain locked into a post-imperial perspective, treating the body, the patient or the polis as the passive subject of a homogenised, top-down intervention. It is a little like a digital advertising screen, broadcasting a single, one-way message to a public who have no choice but to receive it. Just like a digital advertising screen, this kind of healthcare can seem cutting-edge, innovative and technologically impressive, but its values do not respect the uniqueness of individual or place, nor do they promote communal solidarity and empowerment. So long as this is the case, communities will continue to vote with their feet, seeking out new forms of adaptive Open Care that address their real mental, physical and social needs. I would love to see Community Acupuncture being integrated with some of the other projects and approaches detailed in OpenCare; to hear suggestions about how the CMAC model could be further improved and evolved; and, as ever, I am keen for people to educate themselves about acupuncture, to help fight against the misguided myths that have arisen about it, and to spread the word about this affordable, effective, environmentally-friendly and humane form of medicine! Steve Wheeler, Lic. Ac., MBAcC - steve@whiteoakhealth.co.uk The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/549,2017-11-24T23:53:29.924Z,2017-11-24T23:53:29.924Z,549,3791,AnnotatorStore::TextAnnotation,,,,,,,,,516,1951 11917,v1.0,,"First of all, a kind of participatory assessment, based on a broad and heterogeneous participation was appreciated also by @alessandro_contini -the designer in charge of the user research meant for shop owners only that will follow this event. What emerged are unexpected cases in-between and common and shared interests among stakeholders. The social dimension emerged as a shared need to construct a substantial and workable objectivity, by a keen and multidimensional analysis of the formal objectivity embedded in the procedure and the script articulated in the fields of the form. What citizens could make visible where aspects of the dimensions for access that usually remain invisible when filling a form or being counseled by a technical advisor.",/post/850,2017-11-24T23:48:20.930Z,2017-11-24T23:48:20.930Z,850,3791,AnnotatorStore::TextAnnotation,,,,,,,,,817,1949 11916,v1.0,,"Clinics in Greece  Alternative to 911 in the US",/post/541,2017-11-24T23:46:32.577Z,2017-11-24T23:46:32.577Z,541,3791,AnnotatorStore::TextAnnotation,,,,,,,,,508,1948 11905,v1.0,,"Dandelion ""Pissenlit"" roots for cure cacer, Yes it's possible and without fees!!  There are many different types of cancer any people get killed by it. It's enough we have found the cure for many of them ( prostate, intestine, lungs ,...) Many people aboard have been heal by this roots when they heard about it, they stop using chimiotherapy ( chimiotherapy = traitement used for having a long day of living, is not enough efficient!!! The bad effect of this treatment is not his non efficiency but also killing the healthy cells, even if he kill the cancer cells inside body.!!! From this treatment there are some bad effect like, appetiteless, loss of weight, weakness of antibody, ...)  Actually, 7 people here in Madagascar have been heal by this treatment when they heard about it, and follow the instructions. It's  a close friend of mine who have been sick by ""liver and intestine"" cacer. He was up to follow chimiotherapy  treatment so I told him to follow this natural treatment  first before he decided to spend  money on chimiotherapy. When I heard about this plant from Canadian friend, we decided to use it.  He was so happy when he gets cured after 1 week  of treatment, when he decided to drink infusion from dandelion's root. Doctors doesn't find any clue of cancer on him. Maybe the phase of his cacer was primary and it's was easy to cure. So my conscience is restless when I heard that there are many people who suffer, dead from cancer ""it's like non assistance of people in danger"". I decided to share it with you.  -THIS IS THE YOU NEED TO FOLLOW.  1# You need to collect dandelion on a place where cars doesn't barely ride. 2# non chemical insecticides or related haven't been sprayed on the soil where you collect it.  -PREPARATION  Boil 1 liter of top water, when it's still boiling, ad 100 grams of  dandelion roots.  Leave it boiling  for 10 minutes ( never more never less than 10mn. It's has been calculate that ""active elements"" goes out at this moment.  If it's more than that, it's will kill those active elements.  When it's done let it get cold. This is your ""drinking water for one day"" the better moment for drinking much is before breakfast and dinner, also drinkable in middle time. Do it for 20 days and stop for 10 days. Keep do it again from the beginning as a cycle of one month (20 plus 10 days.)  If everything has been followed step by step in one week, we can find the changes ; inside pain goes out,  patient will find appetite, this is the major factor of this treatment and it's make a big different between it and chimiotherapy.  If I understand and correct me if I'm wrong!! chimiotherapy kills cancerous cells but also healthy cells. Patient get weak, lost appetite and doesn't have no much time for living,  It's a kind of catalyst inside body.  But this dandelion's  roots hunt and kill all cancerous cells inside body.  After you recognize that patient is completely cured, all we have to do is care about wound healing leave by the cancer inside the body. We can keep doing it by natural method using garlic.  Take one glass of hot water,  scratch 3 or 4 peaces of garlic and put it inside the glass of hot water.  Leave it for one night and drink it before breakfast,  keep do it until its gone,  or you can still buy some medecines in drug store if you want to heal  wound leaved by cancer.  I hope that everyone can find a way to cure and fight cancer on his own natural or chimical. If you have any questions about this, any suggestions or critics please don't hesitate to write bellow  Dear friends Edgeryders, I wish an Happy and successful new year to each every one of you.",/post/805,2017-11-24T21:03:56.081Z,2017-11-24T21:03:56.081Z,805,3791,AnnotatorStore::TextAnnotation,,,,,,,,,772,1946 11904,v1.0,,"I'm reminded of this take on medicine every time I read others acknowledging alternative therapies - somehow mediated by different values (human treatment, social medicine, flexibility, group therapy..): ""Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki."" @steelweaver, meet @Sharon_Kinnane !",/post/26055,2017-11-24T21:00:25.205Z,2017-11-24T21:00:25.205Z,26055,3791,AnnotatorStore::TextAnnotation,,,,,,,,,516,1946 11896,v1.0,,"Has been active on the platform. He’s looking specifically at legal frameworks that open new ways to create assets and manage them. A government is an agreement, a company is an agreement. Instruments (eg. shares, debt, derivatives). Nuance between rules of the game and the ball. If you’ve got resources, why do you need money? What sort of agreement or accounting or means of keeping score to do what we need to do. Has been conducting an international review and a historical review. What was here before banks? Commons? No, made proprietary. How has it been enclosed? 75% of money in existence is based on land. Came about through banks lending money for mortgages. Nobody really knows how the system works. How can we use complementary means to get done what we need to do with as little need for the system as possible, bootstrapping.",/post/38786,2017-11-21T16:08:19.716Z,2017-11-21T16:08:19.716Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,1190 11895,v1.0,,"Has been active on the platform. He’s looking specifically at legal frameworks that open new ways to create assets and manage them. A government is an agreement, a company is an agreement. Instruments (eg. shares, debt, derivatives). Nuance between rules of the game and the ball. If you’ve got resources, why do you need money? What sort of agreement or accounting or means of keeping score to do what we need to do. Has been conducting an international review and a historical review. What was here before banks? Commons? No, made proprietary. How has it been enclosed? 75% of money in existence is based on land. Came about through banks lending money for mortgages. Nobody really knows how the system works. How can we use complementary means to get done what we need to do with as little need for the system as possible, bootstrapping.",/post/38786,2017-11-21T16:07:54.862Z,2017-11-21T16:07:54.862Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,1074 11894,v1.0,,"Money or money’s worth? We think of property as a thing. The development model in the UK is that you buy land, let it increase in value and sell it off. Land as a commodity. If you break down land, there are certain elements. First: rights of use (fishing, grow crops). Second: rights to fruits of use of land: who gets them. Mortgages: you’re giving the banks the fruits of the use of the land. Third: right to keep somebody out, exclusion. These three rights can constitute the sharing of surplus.",/post/38786,2017-11-21T16:06:25.242Z,2017-11-21T16:06:25.242Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,1375 11893,v1.0,,"Takeaway: ideally you find an angle which helps make some aspect of your work attractive to a funder. This validates the project and you, Once you got in the first time then its easier in the next times.",/post/38786,2017-11-21T16:06:15.175Z,2017-11-21T16:06:15.175Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,1944 11892,v1.0,,Paola: my theory is that collaboration is super expensive. Is should be paid because it is a lot of investment. We can convince foundations or orgs to pay people to collaborate.,/post/38786,2017-11-21T16:06:06.200Z,2017-11-21T16:06:06.200Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,1371 11891,v1.0,,Paola: my theory is that collaboration is super expensive. Is should be paid because it is a lot of investment. We can convince foundations or orgs to pay people to collaborate.,/post/38786,2017-11-21T16:06:00.190Z,2017-11-21T16:06:00.190Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,326 11890,v1.0,,P: What inspired me is community organising. It happens for the sake of community. Same with collaboration.,/post/38786,2017-11-21T16:05:47.679Z,2017-11-21T16:05:47.679Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,361 11889,v1.0,,"Active in the startup sphere. Mostly in technology companies. Invested in 15 companies. Most angel investors invest in what they know, eg. real estate. Paola: Consider fellowships. Very analytical, structured way of approaching questions. Her work is looking at use of data in issues of social justice and criminal justice system. Used to work in Data For Justice: show inequalities in the criminal justice system. Lawyers, activists, advocates, … Gathered data and sued police department of Boston because they refused to open their data. Won the case. They were doing more stop and frisks in poor neighborhoods. The community was disproportionately targeted by the police department. But she was a ‘one woman band’, and that’s not sustainable. How can we get people paid, involve more people eg. through foundations of universities. Paola has been funded for her work through applying for fellowships. One at Harvard, MIT, Mozilla. Little by little gaining more experience and data for strategies that can be applied in different contexts. Chris: Has been active on the platform. He’s looking specifically at legal frameworks that open new ways to create assets and manage them. A government is an agreement, a company is an agreement. Instruments (eg. shares, debt, derivatives). Nuance between rules of the game and the ball. If you’ve got resources, why do you need money? What sort of agreement or accounting or means of keeping score to do what we need to do. Has been conducting an international review and a historical review. What was here before banks? Commons? No, made proprietary. How has it been enclosed? 75% of money in existence is based on land. Came about through banks lending money for mortgages. Nobody really knows how the system works. How can we use complementary means to get done what we need to do with as little need for the system as possible, bootstrapping. Group for the long term: Henri:Big botanical garden, bionics. It’s a venue. Alternative building and experimental building. Community living on site. Providing services for the events. POC21. SohayebNGO Specialized in development. Several projects in mainly empowering people in marginalized and rural areas. Trainings, incubation, skilling up programs. For now doing all of these program for free, but looking for ways to make the program sustainable. RamiInformal consultant for community garden. The land was going to be sold off, possibly soon. In Oakland gentrification is a big problem, so they are now looking into land trusts. Write a toolkit while doing this, because it is a sustainable strategy. FabioOpen access health commons. Invite people to take care of their own health. It’s software, mostly a creation process. BernardWorking on inventions for energy, water, economy. Mainly to have a kit so that everyone can create their own bank, their own money, to finance their own life. BaderCivil servant in Tunisia ministry of tech. How can we use software development R&D IP for development with Tunisian and African youth. Collaborate between social entrepreneurship and existing state infrastructure. Winnieopen insulin, a way to put the gains and the production factors that go into producing insulin into the hands of patients or supporting organizations that have the interests of patients in mind. FrankTrying to buy a large plot of land. Experimental farm, retreat center, skill sharing, residential. KateA program in Italy where they’re giving building to people under 40 without rent. Similar like Frank and Henri Money or money’s worth? We think of property as a thing. The development model in the UK is that you buy land, let it increase in value and sell it off. Land as a commodity. If you break down land, there are certain elements. First: rights of use (fishing, grow crops). Second: rights to fruits of use of land: who gets them. Mortgages: you’re giving the banks the fruits of the use of the land. Third: right to keep somebody out, exclusion. These three rights can constitute the sharing of surplus. We can easily create agreements that . If you have a piece of land and you put things into it (work, fertilizer, …) and then you get stuff out of it and distribute it. The way that we have been scaling this has been through companies with shareholders. Everything is a cost for shareholders, they don’t share. Imagine a club where, if you are part of the club, you get the right to live there. It’s going on in London. The club owns the land. You go to a landlord and ask for the rights of use. They put in the land as an investment. And they get a return. You need to do it long term, so that you actually invest in the place (you won’t do that if you are only there for 6 months). Limited Liability Partnership. A trustee says what will happen, a custodian says what will not happen. Moral rights. Non-dominion: no dominant rights, nobody tells you what to do. It is the right to be able to say no. Asset partnerships. A club is both open and closed. Anyone can become a member, but it only caters to its members. Group for personal financing With Paola, @Noemi and @Heba Takeaway: ideally you find an angle which helps make some aspect of your work attractive to a funder. This validates the project and you, Once you got in the first time then its easier in the next times. Paola: my theory is that collaboration is super expensive. Is should be paid because it is a lot of investment. We can convince foundations or orgs to pay people to collaborate. Heba: When people have no idea how to make a product, how do you do it? P: What inspired me is community organising. It happens for the sake of community. Same with collaboration. The reason we do it is because we want to, not necessarily for an outcome.You bring your own perspective: you ask questions, how tech and openness and care interact. First try to diagnose what collaboration is possible, we are creating a framework with which we can operate. Q: What happens when an organisation like ACLU gets empowered through technology? (Data for Justice project). That was a question that starts it, You have the organisation and the community, so you promise to create a framework, That makes the funders to understand that they are creating a tool. Its also a guide for how to design a project. Heba: still starting her project, doesnt know how to write a proposal. Working in a hard context in Egypt where its hard for civil society to work. Shes working on her project and not getting paid, but she has a support community which she can rely.Now collaborating with Hazem to write a concept not for the project to create a cycling infrastructure in Alexandria. She wants to gather activists, see what they can do and put it out there to the community, then assess. P: There are urban fellowships to create this. IE Women cyclists scene - your output would be normalizing the attitudes.Friend who was a bicycle strategist in Mexico. The fundable project could also be: looking at how other cities did it. Noemi: can you hop from project to project, while you are already giving most of your time to a core organisation, similar to a full time job? Q: What do you think of the civic tech. Civic hacking scene?Paola: worked with or for the Mexico Innovation lab, or Code for America. They try to substitute the government, but the gov doesnt work. So its practical, but its not long term. The gov gets away with problems they dont have to solve, because the hackers do it and do it for free. Cancel Save Annotate",/post/38786,2017-11-21T16:05:31.200Z,2017-11-21T16:05:31.200Z,38786,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7579,877 11888,v1.0,,How we can consent to things that happen to our body.,/post/38787,2017-11-21T16:04:10.972Z,2017-11-21T16:04:10.972Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,1943 11887,v1.0,,"The Canaries, from Nyc, thinking outside of medical crises. Using arts as a place to reimagine infrastructures of care and psychosomatic healing.",/post/38787,2017-11-21T16:03:59.943Z,2017-11-21T16:03:59.943Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,61 11886,v1.0,,"To build a base of knowledge to be collectively autonomous. Yes we live 20mins away from the hospital, but do they come in 20mins? No.",/post/38787,2017-11-21T16:01:17.933Z,2017-11-21T16:01:17.933Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,1942 11885,v1.0,,Important to work in teams:,/post/38787,2017-11-21T16:01:11.222Z,2017-11-21T16:01:11.222Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,1541 11884,v1.0,,About mental health:,/post/38787,2017-11-21T15:59:39.741Z,2017-11-21T15:59:39.741Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,1140 11883,v1.0,,"They built a lot of infrastructure: spaces for tractor mechanics, woodwork, preservation spaces. Weekly newspaper, radio, website zad.nadir.org, welcome houses, internal telecom network. No police, no justice. Conflict mediation group. Autonomous health care. Some people don't have health insurance, no legal papers, or access to cars or phone to do paperwork in the city. Fugitives, people traumatized by the medic system.",/post/38787,2017-11-21T15:59:23.133Z,2017-11-21T15:59:23.133Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,125 11882,v1.0,,50% of individual bankruptcies are due to a medical bill. More than 50% of Americans can't cover the bill for an ER,/post/38787,2017-11-21T15:59:11.685Z,2017-11-21T15:59:11.685Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,940 11881,v1.0,,50% of individual bankruptcies are due to a medical bill. More than 50% of Americans can't cover the bill for an ER,/post/38787,2017-11-21T15:59:05.043Z,2017-11-21T15:59:05.043Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,1371 11880,v1.0,,"[Editor note: The following notes were made during the ""Woodbine and ZAD of Notre-Dame-des-Landes"", of OpenVillage Festival (19th October 2017). Quotes are not verbatim but summarize what was said. If you feel something is mis-represented, please tell us in a comment or with the ""Flag → Something Else"" feature and a mod will fix it. – @anu] WOODBINE Intro: We are a collective in NYC, “against the end of the world” = against the nihilism across the country, the end of American empire, the end of a worldA revolution is a line that we draw in the present not the future. 50% of individual bankruptcies are due to a medical bill. More than 50% of Americans can't cover the bill for an ER (Podcast skillshareLand upstate) ZAD presentation: Namid, Liliana, Sara, Claire Land occupation set up to fight an airport project, in a struggle for 15 yrs. The occupation movement exists only for 8 yrs, created through a call out. 10 square km, as big as the biggest villages in France. 200-300 people who made the choice to live there. Several thousands involved. Organizing without state infrastructures. How to avoid relations of domination, hierarchy, specialization. Collective autonomy. Diversity of thoughts, but fascists not welcome. How they organize: Daft structurescabins, farmhouses, tents. A lot of agriculture with machines, collective gardens - grain and beans to feed a nonmarket and support other struggles. They built a lot of infrastructure: spaces for tractor mechanics, woodwork, preservation spaces. Weekly newspaper, radio, website zad.nadir.org, welcome houses, internal telecom network. No police, no justice. Conflict mediation group. Autonomous health care. Some people don't have health insurance, no legal papers, or access to cars or phone to do paperwork in the city. Fugitives, people traumatized by the medic system. 4 spaces of care: La transfuse cabin for first aid, Trailer Medic for free/cheap medical assistance, Varies Rouge medical house a collective living there similar to a hospital, Medicinal Cabin for storing and drying medicinal plants. Varies Rouges: Sees 10 25 people a week, medical problems or who want a tattoo for their dog. At least 1 person available that can do care - a mix of self aid and accompanying medical surgeries - opened wounds, dog attacks, police.All materials are donated, i.e. by hospitals, medicine are free prices, tinctures are one tenth of retails, support group of professional. We're not trying to do everything or be the heroes, but there's a lot we can do. We help people without papers to get into medical institutions, and take responsibility for it. CARE for people caught in armed conflicts I.e. with the police in demonstrations - rubber bullet injuries, grenades. Fight the part of the state that is intentionally hurting its people. Trainings: Short, for life vital help and first aid. 9 day for people in the zed, in a certain region so afterwards they can work together in their city, for example in demonstrations.A network of people who've been through these trainings (80) so they can call out to the other groups. Easier to organize together because they have the same protocols. We grow our own medicine in the medicinal garden and harvest them. Use them in consultations for chronic problems.Regular Drop in clinics for exchanges, training and giving care at the same time. About mental health: No filter, anyone can come when they want. We're now at the step of collecting information and finding professionals support. Why do we do this? To take control of what happens with our lives, put ourselves on a learning path. The person who has the power to decide is not the same as the person who has the knowledge about their body. Important to work in teams: We are not experts. In emergency situations, it's important to be 2.To build a base of knowledge to be collectively autonomous. Yes we live 20mins away from the hospital, but do they come in 20mins? No. REFLECTION: What does health autonomy look like for you? How does your work or expertise contribute to that? What is it that you need, the next step for you? Eugenia: Artist and ecologist Project How to perform an abortion.Reproductive health Laws are flawed. Autonomy is accountability.The space in which I'm most vulnerable is when I'm ignorant - ie when I enter a hospital.The next steps: continue this work, reintroducing women to a knowledge that was robbed from them. Georgie: Autonomy is My ability to recognise my health care needs and ability to respond to them on a group level. Bernard: How do I stay healthy until I'm 60 and over, and how to die well. My steps: Movement yoga, group collaboration, nursing etc. Wants to be connected to group services - maybe connection with mainstream services? Kashi: From a mental health group in Ireland. Terineh: The Canaries, from Nyc, thinking outside of medical crises. Using arts as a place to reimagine infrastructures of care and psychosomatic healing. Over 80 autoimmune diseases, not known if it's caused by genetic or environmental causes. You need to find group support. 100 on the list sharing info and resources. Difficult because we are spread out and hard to support each other materially. Being a support group for the disabled :Crip time when you don't have the energy to actually get that information. At odds with insurrectional anarchism. Interested in how we link with other people outside of our own and how to support that. Tori: How we can consent to things that happen to our body.PS: research on these practices and sharing info while building own tools. Trying to understand more tools for consensus decision making We feel exhausted Michael: Autonomy as agency. In the role of filling gaps: caring through technical skills, getting people to tell their stories better that are not the same as them ZAD: Autonomy is the contrary to what you see in France and Belgium - a GP having 1000 people in care who all rely on him. Works 70hrs a week and is exhausted. In one community there are many people who can offer information and help. Nadia: Diagnostic autonomy: feel confident in one's ability to understand their problem. Knowing where to go - organized knowledge ie barefoot doctor manual and having a contemporary equivalent. The issue of navigating health care. formalized access to services and formalized",/post/38787,2017-11-21T15:57:52.751Z,2017-11-21T15:57:52.751Z,38787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7580,80 11879,v1.0,,"Three issues discussed - platform documentation, trust, building the network Thomas:",/post/38856,2017-11-21T15:56:58.982Z,2017-11-21T15:56:58.982Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1778 11878,v1.0,,Replicability across countries: there is a lack of culture of open science and a knowledge gap in biology.,/post/38856,2017-11-21T15:56:46.603Z,2017-11-21T15:56:46.603Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1941 11877,v1.0,,No platform for documentation yet.,/post/38856,2017-11-21T15:56:29.600Z,2017-11-21T15:56:29.600Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,738 11876,v1.0,,It’s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it’s going to be very bumpy.,/post/38856,2017-11-21T15:56:19.403Z,2017-11-21T15:56:19.403Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1911 11875,v1.0,,"2. How do we do international collaboration? Winnie:",/post/38856,2017-11-21T15:55:22.744Z,2017-11-21T15:55:22.744Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1026 11874,v1.0,,"Forging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.",/post/38856,2017-11-21T15:55:02.417Z,2017-11-21T15:55:02.417Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1863 11873,v1.0,,"Many semi-independent manufacturing efforts that are localised, but sharing knowledge.",/post/38856,2017-11-21T15:54:37.151Z,2017-11-21T15:54:37.151Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1092 11872,v1.0,,"The organisation needs to ultimately be accountable to diabetes patients. It can’t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don’t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.",/post/38856,2017-11-21T15:53:30.472Z,2017-11-21T15:53:30.472Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1371 11871,v1.0,,A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing.,/post/38856,2017-11-21T15:53:03.034Z,2017-11-21T15:53:03.034Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1541 11870,v1.0,,"The organisation needs to ultimately be accountable to diabetes patients. It can’t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don’t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.",/post/38856,2017-11-21T15:52:39.109Z,2017-11-21T15:52:39.109Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1287 11869,v1.0,,"The organisation needs to ultimately be accountable to diabetes patients. It can’t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don’t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.",/post/38856,2017-11-21T15:52:28.788Z,2017-11-21T15:52:28.788Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1934 11868,v1.0,,"Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles.",/post/38856,2017-11-21T15:52:21.073Z,2017-11-21T15:52:21.073Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,436 11867,v1.0,,"Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles.",/post/38856,2017-11-21T15:52:15.547Z,2017-11-21T15:52:15.547Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1017 11866,v1.0,,6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production.,/post/38856,2017-11-21T15:52:08.808Z,2017-11-21T15:52:08.808Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1074 11865,v1.0,,"There’s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.",/post/38856,2017-11-21T15:51:19.917Z,2017-11-21T15:51:19.917Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1450 11864,v1.0,,"There’s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.",/post/38856,2017-11-21T15:49:57.274Z,2017-11-21T15:49:57.274Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1940 11863,v1.0,,"Many people don’t have access, it’s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based).",/post/38856,2017-11-21T15:49:50.068Z,2017-11-21T15:49:50.068Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1377 11862,v1.0,,"The most pressing need now is to set up a patient cooperative for Open Insulin and how to prototype it.And clear out the international collaboration that is now emerging in the open insulin research. Some history of the project. Early 2015 in Counter Culture Labs, biohacker collective in Oakland, developed consensus around the idea that we could make insulin in a lab like their. The idea is worth pursuing, the technology is there. First it was a technical motivation, afterwards it was clear that insulin was a social and economical issue. Many people don’t have access, it’s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based). There’s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production. Science and engineering:Went through one proof of concept iteration in an E. coli bacteria (for troubleshooting methods). Took about a year. We made a precursor protein to insulin. Bacteria however is not able to convert the precursor into insulin, so since early 2017 we’re looking at yeast, because that organism can do everything inside the organism. The protocol needs to be simple and easily reproduced. 6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production. Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles. The organisation needs to ultimately be accountable to diabetes patients. It can’t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don’t innovate much otherwise. Prices went up by 1000%, even though production got cheaper. Many semi-independent manufacturing efforts that are localised, but sharing knowledge. A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing. The FDA is the biggest player in making this a reality. Big part of this is making a rigorous case and showing the costs of illness and the benefits of our alternative. Depending on how their own incentives work, they might not care. We have 2 goals, proposal is to split in two groups: 1. How do we move from here to this cooperative? A cooperative as a platform where patients would be the main stakeholders.The patent is not to stop other people from doing it, but to protect the Characteristics of the agreement: Rate of profit determined by patientsWhere it is invested is determined by patients. Example of medical cannabis cooperatives. Maybe we can use it as a template for our organisation. Tailor this to the local jurisdiction. We need some kind of global scale organisation that holds the IP in custody. Perhaps a Swiss foundation. A public benefit corporation. Forging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.Lucas Gonzales. Epidemiologist. His job is to prepare for flu pandemics in the canary islands. As part of preparing the plan, he found out there’s 8000’s diabetics in the CI and there is no capacity on the island (comes from Germany). So in case of pandemic, they are screwed. This could be an angle. Synthetic pancreas people. Firewall of FDA and then they appealed to free speech. They don’t sell, yet share the schematics. Make it look less like a market transaction, and more like a club: participating in the testing. Analogy to Open Source Ecology. Centralized body of knowledge, localized operation to build machines by doing workshops etc. Chris Cook: At the global level: memorandum of understanding, but otherwise you’re free to do what you want. Unincorporated association:Agreement, but not in any legal form. 2 pager. For very early stage funding. Like a club. People have an account in the name of the club. This could be global from day 1, with members. It has a ‘hatching clause’ which makes it hatch into an actual legal form. Action items: Review relevant structures Pitch this to city governments (Milan next month, Oakland, Ghent) Have a legal structure, so that funders know where their money goes Cali cooperative weed Cooperatives in calif and europe (Switzerland? Winnie’s contact Malcolm Bain? European Cooperative Association) Centralized holder of IP Review the agreement of Chris. Have an inside trusted partner when you pitch this, so that’s it’s not 50 50 in they liked it not. Clear action plan with timelines. Open to input. Jump in early for a premium. Weigh the pro’s and con’s of premium. Winnie can talk about it with the head of strategy for the City of Ghent. In Oakland: never got to the head, always mid or low level managers. You need to get people in power to not necessarily endorse it, but mainly not stop it. An endorsement would really help though. A paragraph and collect signatures of ‘innovation, super cool project’. 2. How do we do international collaboration? Winnie: People are disgusted by how biotechnology industry works. Morally it’s not okay that people are taxed so much money. We started a collaboration in March between Oakland, Ghent, and Sidney. It was hard to get access to information - where are the best practices documented. The team in Oakland was spread thin, so this makes it hard to scale internationally. Coincidentally it became good to collaborate, but no investment to find sinergies, for example split the experiments between groups. We’ve been in touch online only, and visiting helped a lot to develop trust, despite calling on skype every 2 weeks. Two key problems: Documentation and Trust Gaby: Is it a problem of infrastructure - better tools, better software, or about changing the culture? Winnie: It’s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it’s going to be very bumpy. No platform for documentation yet.We should have a method of getting everyone on board, in difft timezones and geographical points? Thomas: What is the patients’ perception?In Belgium, the insulin is covered by the government, so not many incentives to participate among that group. The motivation here is the biotech industry. Cindys: Build on an existing community that has thousands of people in it, and not take on the burden of building a new platform.The Public Lab community - good for discussion and file sharing, and replicability. Attend the barnraising and do a workshop there? Matteo: Replicability across countries: there is a lack of culture of open science and a knowledge gap in biology.A transnational cooperative system funded by a big donor which fosters development in underdev countries? The path from need to solution is longer there - building trust, community building takes more time. Winnie: Ideally find a big donor but with niche interest locally/ in a region. The community coordination and interface needs to be funded too - i.e. the Oakland team is more focused on the research itself. Cindys: Public Lab has developed frameworks to use - to create a context and make sure it feeds back and then it is championed, took forward by the organisation. Gaby: Learning to do science by sharing information, many times tacit. But you either have to think of the role of the person making this, or have an incentive - a place where we give recognition where people actually see it and appreciate the value. Groups back together A platform cooperative as a club insulin: the insulin users and platform service provider (management, quality control). A global framework in which local production can put its roots in local jurisdiction. The overarching club, anyone can join and it doesn’t own anything. Cindys: Three issues discussed - platform documentation, trust, building the network Thomas: Interested in local production, is in a process of launching a High Institute of Open (?) Science. He’s going back to Cameroon, it would be an opportunity to test open insulin there. Gaby: Sharing information",/post/38856,2017-11-21T15:49:23.353Z,2017-11-21T15:49:23.353Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1939 11861,v1.0,,"The most pressing need now is to set up a patient cooperative for Open Insulin and how to prototype it.And clear out the international collaboration that is now emerging in the open insulin research. Some history of the project. Early 2015 in Counter Culture Labs, biohacker collective in Oakland, developed consensus around the idea that we could make insulin in a lab like their. The idea is worth pursuing, the technology is there. First it was a technical motivation, afterwards it was clear that insulin was a social and economical issue. Many people don’t have access, it’s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based). There’s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production. Science and engineering:Went through one proof of concept iteration in an E. coli bacteria (for troubleshooting methods). Took about a year. We made a precursor protein to insulin. Bacteria however is not able to convert the precursor into insulin, so since early 2017 we’re looking at yeast, because that organism can do everything inside the organism. The protocol needs to be simple and easily reproduced. 6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production. Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles. The organisation needs to ultimately be accountable to diabetes patients. It can’t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don’t innovate much otherwise. Prices went up by 1000%, even though production got cheaper. Many semi-independent manufacturing efforts that are localised, but sharing knowledge. A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing. The FDA is the biggest player in making this a reality. Big part of this is making a rigorous case and showing the costs of illness and the benefits of our alternative. Depending on how their own incentives work, they might not care. We have 2 goals, proposal is to split in two groups: 1. How do we move from here to this cooperative? A cooperative as a platform where patients would be the main stakeholders.The patent is not to stop other people from doing it, but to protect the Characteristics of the agreement: Rate of profit determined by patientsWhere it is invested is determined by patients. Example of medical cannabis cooperatives. Maybe we can use it as a template for our organisation. Tailor this to the local jurisdiction. We need some kind of global scale organisation that holds the IP in custody. Perhaps a Swiss foundation. A public benefit corporation. Forging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.Lucas Gonzales. Epidemiologist. His job is to prepare for flu pandemics in the canary islands. As part of preparing the plan, he found out there’s 8000’s diabetics in the CI and there is no capacity on the island (comes from Germany). So in case of pandemic, they are screwed. This could be an angle. Synthetic pancreas people. Firewall of FDA and then they appealed to free speech. They don’t sell, yet share the schematics. Make it look less like a market transaction, and more like a club: participating in the testing. Analogy to Open Source Ecology. Centralized body of knowledge, localized operation to build machines by doing workshops etc. Chris Cook: At the global level: memorandum of understanding, but otherwise you’re free to do what you want. Unincorporated association:Agreement, but not in any legal form. 2 pager. For very early stage funding. Like a club. People have an account in the name of the club. This could be global from day 1, with members. It has a ‘hatching clause’ which makes it hatch into an actual legal form. Action items: Review relevant structures Pitch this to city governments (Milan next month, Oakland, Ghent) Have a legal structure, so that funders know where their money goes Cali cooperative weed Cooperatives in calif and europe (Switzerland? Winnie’s contact Malcolm Bain? European Cooperative Association) Centralized holder of IP Review the agreement of Chris. Have an inside trusted partner when you pitch this, so that’s it’s not 50 50 in they liked it not. Clear action plan with timelines. Open to input. Jump in early for a premium. Weigh the pro’s and con’s of premium. Winnie can talk about it with the head of strategy for the City of Ghent. In Oakland: never got to the head, always mid or low level managers. You need to get people in power to not necessarily endorse it, but mainly not stop it. An endorsement would really help though. A paragraph and collect signatures of ‘innovation, super cool project’. 2. How do we do international collaboration? Winnie: People are disgusted by how biotechnology industry works. Morally it’s not okay that people are taxed so much money. We started a collaboration in March between Oakland, Ghent, and Sidney. It was hard to get access to information - where are the best practices documented. The team in Oakland was spread thin, so this makes it hard to scale internationally. Coincidentally it became good to collaborate, but no investment to find sinergies, for example split the experiments between groups. We’ve been in touch online only, and visiting helped a lot to develop trust, despite calling on skype every 2 weeks. Two key problems: Documentation and Trust Gaby: Is it a problem of infrastructure - better tools, better software, or about changing the culture? Winnie: It’s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it’s going to be very bumpy. No platform for documentation yet.We should have a method of getting everyone on board, in difft timezones and geographical points? Thomas: What is the patients’ perception?In Belgium, the insulin is covered by the government, so not many incentives to participate among that group. The motivation here is the biotech industry. Cindys: Build on an existing community that has thousands of people in it, and not take on the burden of building a new platform.The Public Lab community - good for discussion and file sharing, and replicability. Attend the barnraising and do a workshop there? Matteo: Replicability across countries: there is a lack of culture of open science and a knowledge gap in biology.A transnational cooperative system funded by a big donor which fosters development in underdev countries? The path from need to solution is longer there - building trust, community building takes more time. Winnie: Ideally find a big donor but with niche interest locally/ in a region. The community coordination and interface needs to be funded too - i.e. the Oakland team is more focused on the research itself. Cindys: Public Lab has developed frameworks to use - to create a context and make sure it feeds back and then it is championed, took forward by the organisation. Gaby: Learning to do science by sharing information, many times tacit. But you either have to think of the role of the person making this, or have an incentive - a place where we give recognition where people actually see it and appreciate the value. Groups back together A platform cooperative as a club insulin: the insulin users and platform service provider (management, quality control). A global framework in which local production can put its roots in local jurisdiction. The overarching club, anyone can join and it doesn’t own anything. Cindys: Three issues discussed - platform documentation, trust, building the network Thomas: Interested in local production, is in a process of launching a High Institute of Open (?) Science. He’s going back to Cameroon, it would be an opportunity to test open insulin there. Gaby: Sharing information",/post/38856,2017-11-21T15:49:09.881Z,2017-11-21T15:49:09.881Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1253 11860,v1.0,,"The most pressing need now is to set up a patient cooperative for Open Insulin and how to prototype it.And clear out the international collaboration that is now emerging in the open insulin research. Some history of the project. Early 2015 in Counter Culture Labs, biohacker collective in Oakland, developed consensus around the idea that we could make insulin in a lab like their. The idea is worth pursuing, the technology is there. First it was a technical motivation, afterwards it was clear that insulin was a social and economical issue. Many people don’t have access, it’s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based). There’s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production. Science and engineering:Went through one proof of concept iteration in an E. coli bacteria (for troubleshooting methods). Took about a year. We made a precursor protein to insulin. Bacteria however is not able to convert the precursor into insulin, so since early 2017 we’re looking at yeast, because that organism can do everything inside the organism. The protocol needs to be simple and easily reproduced. 6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production. Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles. The organisation needs to ultimately be accountable to diabetes patients. It can’t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don’t innovate much otherwise. Prices went up by 1000%, even though production got cheaper. Many semi-independent manufacturing efforts that are localised, but sharing knowledge. A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing. The FDA is the biggest player in making this a reality. Big part of this is making a rigorous case and showing the costs of illness and the benefits of our alternative. Depending on how their own incentives work, they might not care. We have 2 goals, proposal is to split in two groups: 1. How do we move from here to this cooperative? A cooperative as a platform where patients would be the main stakeholders.The patent is not to stop other people from doing it, but to protect the Characteristics of the agreement: Rate of profit determined by patientsWhere it is invested is determined by patients. Example of medical cannabis cooperatives. Maybe we can use it as a template for our organisation. Tailor this to the local jurisdiction. We need some kind of global scale organisation that holds the IP in custody. Perhaps a Swiss foundation. A public benefit corporation. Forging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.Lucas Gonzales. Epidemiologist. His job is to prepare for flu pandemics in the canary islands. As part of preparing the plan, he found out there’s 8000’s diabetics in the CI and there is no capacity on the island (comes from Germany). So in case of pandemic, they are screwed. This could be an angle. Synthetic pancreas people. Firewall of FDA and then they appealed to free speech. They don’t sell, yet share the schematics. Make it look less like a market transaction, and more like a club: participating in the testing. Analogy to Open Source Ecology. Centralized body of knowledge, localized operation to build machines by doing workshops etc. Chris Cook: At the global level: memorandum of understanding, but otherwise you’re free to do what you want. Unincorporated association:Agreement, but not in any legal form. 2 pager. For very early stage funding. Like a club. People have an account in the name of the club. This could be global from day 1, with members. It has a ‘hatching clause’ which makes it hatch into an actual legal form. Action items: Review relevant structures Pitch this to city governments (Milan next month, Oakland, Ghent) Have a legal structure, so that funders know where their money goes Cali cooperative weed Cooperatives in calif and europe (Switzerland? Winnie’s contact Malcolm Bain? European Cooperative Association) Centralized holder of IP Review the agreement of Chris. Have an inside trusted partner when you pitch this, so that’s it’s not 50 50 in they liked it not. Clear action plan with timelines. Open to input. Jump in early for a premium. Weigh the pro’s and con’s of premium. Winnie can talk about it with the head of strategy for the City of Ghent. In Oakland: never got to the head, always mid or low level managers. You need to get people in power to not necessarily endorse it, but mainly not stop it. An endorsement would really help though. A paragraph and collect signatures of ‘innovation, super cool project’. 2. How do we do international collaboration? Winnie: People are disgusted by how biotechnology industry works. Morally it’s not okay that people are taxed so much money. We started a collaboration in March between Oakland, Ghent, and Sidney. It was hard to get access to information - where are the best practices documented. The team in Oakland was spread thin, so this makes it hard to scale internationally. Coincidentally it became good to collaborate, but no investment to find sinergies, for example split the experiments between groups. We’ve been in touch online only, and visiting helped a lot to develop trust, despite calling on skype every 2 weeks. Two key problems: Documentation and Trust Gaby: Is it a problem of infrastructure - better tools, better software, or about changing the culture? Winnie: It’s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it’s going to be very bumpy. No platform for documentation yet.We should have a method of getting everyone on board, in difft timezones and geographical points? Thomas: What is the patients’ perception?In Belgium, the insulin is covered by the government, so not many incentives to participate among that group. The motivation here is the biotech industry. Cindys: Build on an existing community that has thousands of people in it, and not take on the burden of building a new platform.The Public Lab community - good for discussion and file sharing, and replicability. Attend the barnraising and do a workshop there? Matteo: Replicability across countries: there is a lack of culture of open science and a knowledge gap in biology.A transnational cooperative system funded by a big donor which fosters development in underdev countries? The path from need to solution is longer there - building trust, community building takes more time. Winnie: Ideally find a big donor but with niche interest locally/ in a region. The community coordination and interface needs to be funded too - i.e. the Oakland team is more focused on the research itself. Cindys: Public Lab has developed frameworks to use - to create a context and make sure it feeds back and then it is championed, took forward by the organisation. Gaby: Learning to do science by sharing information, many times tacit. But you either have to think of the role of the person making this, or have an incentive - a place where we give recognition where people actually see it and appreciate the value. Groups back together A platform cooperative as a club insulin: the insulin users and platform service provider (management, quality control). A global framework in which local production can put its roots in local jurisdiction. The overarching club, anyone can join and it doesn’t own anything. Cindys: Three issues discussed - platform documentation, trust, building the network Thomas: Interested in local production, is in a process of launching a High Institute of Open (?) Science. He’s going back to Cameroon, it would be an opportunity to test open insulin there. Gaby: Sharing information",/post/38856,2017-11-21T15:48:55.121Z,2017-11-21T15:48:55.121Z,38856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7590,1920 11859,v1.0,,I am sure you will also enjoy my post on the festival...be sure that the community is in the root of all. as in the blog on open insulin it is from community to lab....it is one of the consensus I had with @winnieponcelet and @anthony_di_franco.,/post/38882,2017-11-21T15:47:54.480Z,2017-11-21T15:47:54.480Z,38882,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,377 11858,v1.0,,I am sure you will also enjoy my post on the festival...be sure that the community is in the root of all. as in the blog on open insulin it is from community to lab....it is one of the consensus I had with @winnieponcelet and @anthony_di_franco.,/post/38882,2017-11-21T15:47:48.262Z,2017-11-21T15:47:48.262Z,38882,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1253 11857,v1.0,,"Whoa, hurray for @thomasmboa! I really enjoyed reading your post and it is amazing that just 3 weeks ago you were writing about a science shop and a lab, and now you are setting up the lab! Do you intend to make OpenInsulin the core, priority project of the lab?",/post/38881,2017-11-21T15:47:33.672Z,2017-11-21T15:47:33.672Z,38881,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1253 11855,v1.0,,"Whoa, hurray for @thomasmboa! I really enjoyed reading your post and it is amazing that just 3 weeks ago you were writing about a science shop and a lab, and now you are setting up the lab! Do you intend to make OpenInsulin the core, priority project of the lab?",/post/38881,2017-11-21T15:47:17.019Z,2017-11-21T15:47:17.019Z,38881,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1931 11854,v1.0,,"I'm excited to learn together how we can bring these localized solutions to life, within a relationship of equals, working on a common cause from our unique perspectives. Edit Delete No Commentopen insulin Cancel Save",/post/38850,2017-11-21T15:47:08.743Z,2017-11-21T15:47:08.743Z,38850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1092 11853,v1.0,,"If all goes well, there should be an Open Insulin group starting in Cameroon in the coming months. Thomas' blog post just went live on the website: http://openinsulin.org/open-insulin-in-africa-from-local-communities-to-the-lab/",/post/38850,2017-11-21T15:46:59.272Z,2017-11-21T15:46:59.272Z,38850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1253 11852,v1.0,,"As a result of our conversations over the last weeks, we and the broader DIYbio community will help with collecting machinery for the lab in Cameroon like @thomasmboa envisions it.",/post/38850,2017-11-21T15:45:24.662Z,2017-11-21T15:45:24.662Z,38850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,100 11851,v1.0,,"I am not expert with that but I believe that diet wise in rural areas in Egypt is better than the one in cities, however, the unhygienic environment and non-clean water affect their health causing disease like diarrhea and vomiting reflect later on their nutrition state. Cancel Save",/post/38835,2017-11-21T15:45:13.854Z,2017-11-21T15:45:13.854Z,38835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,852 11850,v1.0,,"I am not expert with that but I believe that diet wise in rural areas in Egypt is better than the one in cities, however, the unhygienic environment and non-clean water affect their health causing disease like diarrhea and vomiting reflect later on their nutrition state. Cancel Save",/post/38835,2017-11-21T15:45:04.880Z,2017-11-21T15:45:04.880Z,38835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1843 11849,v1.0,,"in the end thanks for sharing this here, this could inspire others to continue working on localized solutions rather than following the same colonial influence in a new way. Edit Delete No Commentwater Cancel Save",/post/38834,2017-11-21T15:42:09.177Z,2017-11-21T15:42:09.177Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1092 11848,v1.0,,"Also wondering how the Muslim community in Cameroon dealing with wudu' water, check this post and tell me if you think this could be suitable to experiment and adapt in the coming science shop there ( if there is a nearby muslim community, or if that is an issue there or not )",/post/38834,2017-11-21T15:41:57.022Z,2017-11-21T15:41:57.022Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1843 11847,v1.0,,"linking this with @baderdean 's concern on the opensource collaboration within the African communities, also check the link in maping github in this comment on his topic. how do you think an african-african collaboration can come into action, even within communities not governments ( as you mentioned Gov's in Africa tend to trust European/US entities rather than their own people )",/post/38834,2017-11-21T15:41:30.296Z,2017-11-21T15:41:30.296Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1937 11846,v1.0,,"linking this with @baderdean 's concern on the opensource collaboration within the African communities, also check the link in maping github in this comment on his topic. how do you think an african-african collaboration can come into action, even within communities not governments ( as you mentioned Gov's in Africa tend to trust European/US entities rather than their own people )",/post/38834,2017-11-21T15:41:21.148Z,2017-11-21T15:41:21.148Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1026 11845,v1.0,,"I really like how you put it that the ""alternative"" economies ( sharing, circular....etc ) can just get back in the capitalism umbrella within the fablabs, makerspaces, communities.",/post/38834,2017-11-21T15:34:03.529Z,2017-11-21T15:34:03.529Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1936 11844,v1.0,,"now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.",/post/38834,2017-11-21T15:33:57.325Z,2017-11-21T15:33:57.325Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,430 11843,v1.0,,"now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.",/post/38834,2017-11-21T15:33:48.629Z,2017-11-21T15:33:48.629Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1026 11842,v1.0,,"now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.",/post/38834,2017-11-21T15:33:41.560Z,2017-11-21T15:33:41.560Z,38834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1935 11841,v1.0,,"Are you aware of communities working on accountability solutions? Cooperating with other organisations (Universities, Regional Governments, ... SCImPULSE Foundation ) to set-up sandboxes to test alternative models of ensuring public safety, and sustainability of risks- and failures- management?",/post/38810,2017-11-21T15:33:24.988Z,2017-11-21T15:33:24.988Z,38810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1934 11840,v1.0,,"I always recommend a pragmatic approach: what can be learnt from the obstacles and from the conversations collectively held with authorities? In my experience authorities will share many frustrations expressed here about ""certifications"", however they will describe the system as ""the worst, except all the alternatives""... and in facts, what alternatives are there? Laissez faire? Skin the game? Humankind has been there, done that, and it's failures that have brought this style of regulation upon us...",/post/38810,2017-11-21T15:33:15.685Z,2017-11-21T15:33:15.685Z,38810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1933 11839,v1.0,,"I always recommend a pragmatic approach: what can be learnt from the obstacles and from the conversations collectively held with authorities? In my experience authorities will share many frustrations expressed here about ""certifications"", however they will describe the system as ""the worst, except all the alternatives""... and in facts, what alternatives are there? Laissez faire? Skin the game? Humankind has been there, done that, and it's failures that have brought this style of regulation upon us...",/post/38810,2017-11-21T15:28:53.453Z,2017-11-21T15:28:53.453Z,38810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,820 11838,v1.0,,"The issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as ""ethical"", ""protectionism"", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.",/post/38810,2017-11-21T15:27:40.237Z,2017-11-21T15:27:40.237Z,38810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,100 11837,v1.0,,"The issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as ""ethical"", ""protectionism"", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.",/post/38810,2017-11-21T15:27:29.306Z,2017-11-21T15:27:29.306Z,38810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1425 11836,v1.0,,"The issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as ""ethical"", ""protectionism"", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.",/post/38810,2017-11-21T15:27:16.044Z,2017-11-21T15:27:16.044Z,38810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,382 11835,v1.0,,eg. If everyone is caring about climate change should be researching on that topic to re.appropriate and develop possible solutions; probably they are now doing something because it turns a trend ( and is money ) and looking for this perspective can be ok because is needed to act.,/post/38478,2017-11-21T15:20:09.447Z,2017-11-21T15:20:09.447Z,38478,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,318 11834,v1.0,,"Although if we can look at the intentions and why the people do the things out of the trending and them probably we find people working and developing solutions for the day by day technologies that doesn.t give such a much money right ? The point is what happen when the only thing that is important is to save lifes, save the planet, if we together believe that things can change doesn.t matter the money around ... you do the things from the needed, and this is what is the important and what I consider a successful project here, in Africa, in Spain or In Antartida. Doing the things in this way is never payed with money you are been payed with looking at the impact having better conditions and new lines to explore. Of course is not a easy way, because people needs money to survive. We can talk for hours at this level but If I get a bit of distance and I look from the ecofeminisme perspective It will be easy to think on that:",/post/38478,2017-11-21T15:19:45.134Z,2017-11-21T15:19:45.134Z,38478,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1337 11833,v1.0,,"It will be nice to have more time to talk than the last time at Cern into the Biofabbing context. Your thinking is addressing most of the worries about what it is and what can be this movement that for years we were thinking and acting. Into my close environment as living at ""autonomous"" community Calafou and Pechblenda lab and being active at Hackteria network more for the needed than for entertainment.",/post/38478,2017-11-21T15:19:24.846Z,2017-11-21T15:19:24.846Z,38478,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,80 11832,v1.0,,"It will be nice to have more time to talk than the last time at Cern into the Biofabbing context. Your thinking is addressing most of the worries about what it is and what can be this movement that for years we were thinking and acting. Into my close environment as living at ""autonomous"" community Calafou and Pechblenda lab and being active at Hackteria network more for the needed than for entertainment.",/post/38478,2017-11-21T15:19:19.992Z,2017-11-21T15:19:19.992Z,38478,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,100 11831,v1.0,,"I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry. Edit Delete No Commentopen science Edit Delete No Commentbiohacking Edit Delete No Commentregulation Edit Delete No Commentopen hardware Cancel Save",/post/37593,2017-11-21T15:19:01.183Z,2017-11-21T15:19:01.183Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,792 11830,v1.0,,"I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry. Edit Delete No Commentopen science Edit Delete No Commentbiohacking Edit Delete No Commentregulation Edit Delete No Commentopen hardware Cancel Save",/post/37593,2017-11-21T15:18:56.082Z,2017-11-21T15:18:56.082Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1483 11829,v1.0,,"I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry. Edit Delete No Commentopen science Edit Delete No Commentbiohacking Edit Delete No Commentregulation Edit Delete No Commentopen hardware Cancel Save",/post/37593,2017-11-21T15:18:51.183Z,2017-11-21T15:18:51.183Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1377 11828,v1.0,,"I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.",/post/37593,2017-11-21T15:18:43.232Z,2017-11-21T15:18:43.232Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1932 11827,v1.0,,"I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.",/post/37593,2017-11-21T15:18:37.266Z,2017-11-21T15:18:37.266Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1425 11826,v1.0,,"I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.",/post/37593,2017-11-21T15:18:29.827Z,2017-11-21T15:18:29.827Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,100 11825,v1.0,,"I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.",/post/37593,2017-11-21T15:18:23.789Z,2017-11-21T15:18:23.789Z,37593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1920 11824,v1.0,,"There are not many fablabs, makerspaces or ‘protofablabs’ in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.",/post/37182,2017-11-21T15:18:05.306Z,2017-11-21T15:18:05.306Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1931 11823,v1.0,,"I’d love to come to the OpenVillage Festival in October because I want to share my experience with others, continue to build a strong African community of biohacking, shape strategies for the use of Open science in healthcare and mostly, learn from others… Edit Delete No Commenteducation Cancel Save",/post/37182,2017-11-21T15:17:49.246Z,2017-11-21T15:17:49.246Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,358 11822,v1.0,,"Without national and/or international support, I feel tired and not sure that I will continue.",/post/37182,2017-11-21T15:17:39.290Z,2017-11-21T15:17:39.290Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,131 11821,v1.0,,"All these reasons explain why I took the decision to do my research in Open Science and particularly DIY ; technology is a good way for communities to ensure themselves their own local development. That is why in December I will launch inside my community, one science shop combined with a lab, for the rapprochement science-society.",/post/37591,2017-11-21T15:17:30.888Z,2017-11-21T15:17:30.888Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1931 11820,v1.0,,"All these reasons explain why I took the decision to do my research in Open Science and particularly DIY ; technology is a good way for communities to ensure themselves their own local development. That is why in December I will launch inside my community, one science shop combined with a lab, for the rapprochement science-society.",/post/37591,2017-11-21T15:17:24.093Z,2017-11-21T15:17:24.093Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,924 11819,v1.0,,"Me, Mayor (lol)…I am Cameroonian and 34 years old. I don’t want to expose the political environment of my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education à la Vie et à l’Amour), for sexual hygiene. @noemi I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.",/post/37591,2017-11-21T15:17:11.274Z,2017-11-21T15:17:11.274Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,377 11818,v1.0,,"Me, Mayor (lol)…I am Cameroonian and 34 years old. I don’t want to expose the political environment of my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education à la Vie et à l’Amour), for sexual hygiene. @noemi I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.",/post/37591,2017-11-21T15:16:58.643Z,2017-11-21T15:16:58.643Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,766 11817,v1.0,,"Me, Mayor (lol)…I am Cameroonian and 34 years old. I don’t want to expose the political environment of my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education à la Vie et à l’Amour), for sexual hygiene. @noemi I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.",/post/37591,2017-11-21T15:16:52.065Z,2017-11-21T15:16:52.065Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1921 11816,v1.0,,"There are not many fablabs, makerspaces or ‘protofablabs’ in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.",/post/37182,2017-11-21T15:16:37.912Z,2017-11-21T15:16:37.912Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1930 11815,v1.0,,"In my context, international partnership is very helpful, because our Government doesn’t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner…like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don’t know our realities. They don’t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.",/post/37591,2017-11-21T15:16:26.596Z,2017-11-21T15:16:26.596Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1930 11814,v1.0,,"In my context, international partnership is very helpful, because our Government doesn’t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner…like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don’t know our realities. They don’t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.",/post/37591,2017-11-21T15:16:12.519Z,2017-11-21T15:16:12.519Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,449 11813,v1.0,,"In my context, international partnership is very helpful, because our Government doesn’t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner…like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don’t know our realities. They don’t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.",/post/37591,2017-11-21T15:15:46.515Z,2017-11-21T15:15:46.515Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,806 11812,v1.0,,"In my context, international partnership is very helpful, because our Government doesn’t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner…like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don’t know our realities. They don’t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.",/post/37591,2017-11-21T15:15:40.351Z,2017-11-21T15:15:40.351Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1026 11811,v1.0,,The government support I am talking about here is : policies to frame community-science action ; encourage the broad adoption of these local initiatives inside the country. Only official communiqué can change the life of many people. Then funding can be useful…,/post/37591,2017-11-21T15:15:31.736Z,2017-11-21T15:15:31.736Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1920 11810,v1.0,,The government support I am talking about here is : policies to frame community-science action ; encourage the broad adoption of these local initiatives inside the country. Only official communiqué can change the life of many people. Then funding can be useful…,/post/37591,2017-11-21T15:15:24.830Z,2017-11-21T15:15:24.830Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,312 11809,v1.0,,"@noemi Due to my PhD studies at Université Laval, I am currently based in Quebec, where I am a member of the Fablab EspaceLab Québec. As a researcher for the LABCMO (common Lab between Université Québec à Montréal and Université Laval), I am studying some makerspace in Québec. My interest in Biohacking is due to my background in biochemistry. But for my thesis my focus is Africa, that is why the topic is:",/post/37591,2017-11-21T15:15:15.229Z,2017-11-21T15:15:15.229Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,921 11808,v1.0,,"@noemi Due to my PhD studies at Université Laval, I am currently based in Quebec, where I am a member of the Fablab EspaceLab Québec. As a researcher for the LABCMO (common Lab between Université Québec à Montréal and Université Laval), I am studying some makerspace in Québec. My interest in Biohacking is due to my background in biochemistry. But for my thesis my focus is Africa, that is why the topic is:",/post/37591,2017-11-21T15:15:08.270Z,2017-11-21T15:15:08.270Z,37591,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1107 11807,v1.0,,"Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am intrigued that you view WHO-defined standards as ""the capitalistic system"": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon – I wrote a paper about it myself, in a very different context, almost 20 years ago.",/post/37488,2017-11-21T15:14:18.854Z,2017-11-21T15:14:18.854Z,37488,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1377 11806,v1.0,,"Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am intrigued that you view WHO-defined standards as ""the capitalistic system"": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon – I wrote a paper about it myself, in a very different context, almost 20 years ago.",/post/37488,2017-11-21T15:14:10.265Z,2017-11-21T15:14:10.265Z,37488,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1615 11805,v1.0,,"In OpenCare we have attempted to address this issue. @lakomaa and @tino_sanandaji have been working on a concept they call ""evasive entrepreneurship"", which is what happens when entrepreneurial qualities are deployed to circumvent regulation instead of working within its framework. And @amelia has noticed interesting links between ethno codes such as legality and existing systems failure (but also safety) in her analysis (interactive visualization here).",/post/37488,2017-11-21T15:13:57.916Z,2017-11-21T15:13:57.916Z,37488,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1425 11804,v1.0,,"Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am intrigued that you view WHO-defined standards as ""the capitalistic system"": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon – I wrote a paper about it myself, in a very different context, almost 20 years ago.",/post/37488,2017-11-21T15:13:47.875Z,2017-11-21T15:13:47.875Z,37488,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,53 11803,v1.0,,"In addition to what Winnie writes above, I would say the first day panel on infrastructures for autonomy would benefit massively from your insights: Your understanding of the community dynamics but also government resistance. The take seems to be: where collaboration is not possible, but some of the people in the room might be more optimist. We'll see. For example, @cindys has been mobilizing groups to do citizen science, maybe there's examples she can share where barriers have been torn?",/post/37423,2017-11-21T15:13:31.884Z,2017-11-21T15:13:31.884Z,37423,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,80 11802,v1.0,,"You say impact as scale needs government, and gov support is easiest achieved when having international backup. Is international partnerships/ funding/ media something you are staying away from, intentionally, or have you tried and failed? Or maybe you find it very expensive to get that kind of exposure?",/post/37423,2017-11-21T15:13:19.830Z,2017-11-21T15:13:19.830Z,37423,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1026 11801,v1.0,,"You say impact as scale needs government, and gov support is easiest achieved when having international backup. Is international partnerships/ funding/ media something you are staying away from, intentionally, or have you tried and failed? Or maybe you find it very expensive to get that kind of exposure?",/post/37423,2017-11-21T15:13:12.708Z,2017-11-21T15:13:12.708Z,37423,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1929 11800,v1.0,,"Definitely, I am interested to see how science shop in African context can be helpful: to hear about the need, to shape the policy, and to advocate. Edit Delete No Commentpolicy Cancel Save",/post/37262,2017-11-21T15:12:36.561Z,2017-11-21T15:12:36.561Z,37262,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1920 11799,v1.0,,"@winnieponcelet Compared to many countries in Africa, the approach used there is at an avanced stage of policy designed to take care of people with mobility limitations.",/post/37262,2017-11-21T15:12:24.541Z,2017-11-21T15:12:24.541Z,37262,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1155 11798,v1.0,,"This panel can be so exciting to inspire the design of an african policy inclusive and sensitive to the needs of people with mobility limitations. I guess, in the African context particularly, the first thing to do is to advocate about the necessity of this policy and engage people with mobility limitations in the de shaping of the policy.",/post/37262,2017-11-21T15:12:16.272Z,2017-11-21T15:12:16.272Z,37262,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1321 11797,v1.0,,"However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO’s are ‘good’, while they don’t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.",/post/37182,2017-11-21T15:11:40.031Z,2017-11-21T15:11:40.031Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1323 11796,v1.0,,"However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO’s are ‘good’, while they don’t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.",/post/37182,2017-11-21T15:11:33.940Z,2017-11-21T15:11:33.940Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1321 11795,v1.0,,"For policy inspiration, you may want to check out the Policy Redesigned - collaboratively rewiring inclusivity in to policy session at the festival. Do you think the approach would be applicable to your context? Edit Delete No Commentmakers Cancel Save",/post/37230,2017-11-21T15:11:26.137Z,2017-11-21T15:11:26.137Z,37230,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1321 11794,v1.0,,"It was great talking to you in Boston @thomasmboa , happy to see you here! I'm still impressed by your energy to make things better and your view on the maker movement.",/post/37230,2017-11-21T15:11:15.544Z,2017-11-21T15:11:15.544Z,37230,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1106 11793,v1.0,,"A powerful weapon is education. Imagine: introduce biohacking in the curriculum. What would happen after 10 years, 20 years? How could we do this, since our governments seems inactive? For me the first thing is to hack textbooks by writing ourselves. I did it through this platform : http://www.fabrel.org/.",/post/37182,2017-11-21T15:11:04.837Z,2017-11-21T15:11:04.837Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,766 11792,v1.0,,"I did other projects as well. Together with my wife, a teacher in nutrition, we did some research to reduce children malnutrition in rural zone; since many mothers cannot afford the right meals. We have created a formula using local ingredients, to help them give a balanced diet to their baby. All the work is freely accessible here (https://www.zenodo.org/record/57037/export/xm#.WcauGoxSxPY) and it’s being used in our direct environment. We can help for a local problem, for 10 or 20 children, but cannot do it for the whole village. For a larger impact, it needs to be spread. We don’t get the support we need to do this.",/post/37182,2017-11-21T15:10:55.955Z,2017-11-21T15:10:55.955Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1928 11791,v1.0,,"In my community, I conducted some project to give better life to people by hearing their needs and build solutions together. Like safe water to drink as I did in my village several years ago. I am not supported even by the state or by the rural council. If the pump is broken or whatever, I pay money to keep it going. I cannot ask villagers for money because they don’t have it.",/post/37182,2017-11-21T15:10:46.656Z,2017-11-21T15:10:46.656Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1057 11790,v1.0,,"In my community, I conducted some project to give better life to people by hearing their needs and build solutions together. Like safe water to drink as I did in my village several years ago. I am not supported even by the state or by the rural council. If the pump is broken or whatever, I pay money to keep it going. I cannot ask villagers for money because they don’t have it.",/post/37182,2017-11-21T15:10:37.277Z,2017-11-21T15:10:37.277Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,877 11789,v1.0,,"There are not many fablabs, makerspaces or ‘protofablabs’ in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.",/post/37182,2017-11-21T15:10:27.648Z,2017-11-21T15:10:27.648Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1927 11788,v1.0,,"There are not many fablabs, makerspaces or ‘protofablabs’ in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.",/post/37182,2017-11-21T15:10:21.350Z,2017-11-21T15:10:21.350Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1059 11787,v1.0,,"There are not many fablabs, makerspaces or ‘protofablabs’ in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.",/post/37182,2017-11-21T15:09:56.513Z,2017-11-21T15:09:56.513Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,40 11786,v1.0,,"There are not many fablabs, makerspaces or ‘protofablabs’ in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.",/post/37182,2017-11-21T15:09:47.537Z,2017-11-21T15:09:47.537Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1107 11785,v1.0,,"However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO’s are ‘good’, while they don’t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.",/post/37182,2017-11-21T15:09:33.257Z,2017-11-21T15:09:33.257Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1926 11784,v1.0,,"However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO’s are ‘good’, while they don’t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.",/post/37182,2017-11-21T15:09:14.047Z,2017-11-21T15:09:14.047Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1925 11783,v1.0,,"However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO’s are ‘good’, while they don’t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.",/post/37182,2017-11-21T15:09:06.990Z,2017-11-21T15:09:06.990Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1207 11782,v1.0,,"However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO’s are ‘good’, while they don’t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.",/post/37182,2017-11-21T15:08:50.693Z,2017-11-21T15:08:50.693Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,140 11781,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:08:41.442Z,2017-11-21T15:08:41.442Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,806 11780,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:08:30.448Z,2017-11-21T15:08:30.448Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1425 11779,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:08:22.567Z,2017-11-21T15:08:22.567Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1615 11778,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:08:08.274Z,2017-11-21T15:08:08.274Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,80 11777,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:08:01.556Z,2017-11-21T15:08:01.556Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1377 11775,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:07:45.520Z,2017-11-21T15:07:45.520Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1283 11774,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:07:33.847Z,2017-11-21T15:07:33.847Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1924 11773,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:07:26.287Z,2017-11-21T15:07:26.287Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1923 11772,v1.0,,"In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers “why do you make this?”, it’s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China. 4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).",/post/37182,2017-11-21T15:07:04.147Z,2017-11-21T15:07:04.147Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1922 11771,v1.0,,"Even if the potential benefits are high, the maker movement and biohacking are subjects of critics, since : practices are very Western oriented, local knowledge is not acknowledged (it’s classified as superstition or culture) and values are often not put into practice as they should. My paper entitled “Benefit and the hidden face of the maker movement: Thoughts on its appropriation in African context” was written from the critic perspective.",/post/37182,2017-11-21T15:06:48.629Z,2017-11-21T15:06:48.629Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,447 11770,v1.0,,"Even if the potential benefits are high, the maker movement and biohacking are subjects of critics, since : practices are very Western oriented, local knowledge is not acknowledged (it’s classified as superstition or culture) and values are often not put into practice as they should. My paper entitled “Benefit and the hidden face of the maker movement: Thoughts on its appropriation in African context” was written from the critic perspective.",/post/37182,2017-11-21T15:06:40.253Z,2017-11-21T15:06:40.253Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,490 11769,v1.0,,"The maker movement and biohacking interest me deeply, due to their potential to overcome most of challenges the African Health system faces (e.g. many hospitals lack the basic materials, like microscopes). The possibility to modify hardware (e.g. connect a solar panel to a PCR machine and so on) is an advantage.",/post/37182,2017-11-21T15:06:29.964Z,2017-11-21T15:06:29.964Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1259 11768,v1.0,,"The maker movement and biohacking interest me deeply, due to their potential to overcome most of challenges the African Health system faces (e.g. many hospitals lack the basic materials, like microscopes). The possibility to modify hardware (e.g. connect a solar panel to a PCR machine and so on) is an advantage.",/post/37182,2017-11-21T15:06:18.145Z,2017-11-21T15:06:18.145Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1451 11767,v1.0,,I am Thomas Hervé Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).,/post/37182,2017-11-21T15:06:08.264Z,2017-11-21T15:06:08.264Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1921 11766,v1.0,,I am Thomas Hervé Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).,/post/37182,2017-11-21T15:06:01.326Z,2017-11-21T15:06:01.326Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1920 11765,v1.0,,I am Thomas Hervé Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).,/post/37182,2017-11-21T15:05:53.306Z,2017-11-21T15:05:53.306Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1106 11764,v1.0,,I am Thomas Hervé Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).,/post/37182,2017-11-21T15:05:48.380Z,2017-11-21T15:05:48.380Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,1108 11763,v1.0,,I am Thomas Hervé Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).,/post/37182,2017-11-21T15:05:37.419Z,2017-11-21T15:05:37.419Z,37182,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7227,100 11762,v1.0,,"NO I think we realy tried to be MORE HUMANS...at least that's what I felt in this event... people conscious of their potential and influences wanting to connect their powers to create utopians projects, connecting knowledge and technologies, building islands of resistance...yes join the resistance, against bigotery, rascism, all sort of fascism (facebook?), neo liberalism, lets build more communities online, offline, dive with us and come play/party, your bizness plan is your community, from now on that's all that matter",/post/38808,2017-11-21T14:55:47.640Z,2017-11-21T14:55:47.640Z,38808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7584,963 11761,v1.0,,"NO I think we realy tried to be MORE HUMANS...at least that's what I felt in this event... people conscious of their potential and influences wanting to connect their powers to create utopians projects, connecting knowledge and technologies, building islands of resistance...yes join the resistance, against bigotery, rascism, all sort of fascism (facebook?), neo liberalism, lets build more communities online, offline, dive with us and come play/party, your bizness plan is your community, from now on that's all that matter",/post/38808,2017-11-21T14:55:38.850Z,2017-11-21T14:55:38.850Z,38808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7584,1448 11760,v1.0,,"We are nomads, troubles makers, philosophers, witches, technoshamans, from all over the world, but also activists, hackers, economist, entrepreneurs, ethnologists, Pirate radio hosts, artists, performers, biohackers, feminists, engineers, community builders, medical doctors, academics, urbanists and scientists/wizards of all colors and continent. A subtle mix of individuals >> for once NOT ONLY TALKING about the fake sharing economy and how do we make money in these transitional times or how silicon valley is such a great model for the world to copy, or how technologies and transhumanists are going to save the world.... it's important to notice that we are not in 2000 anymore because our world have become pretty dystopic now...we need other stories and incentives, I think Edgeryders is onto something and it took me some times to realise...seeing all these beautifull people was refreshing...I was not borred",/post/38808,2017-11-21T14:55:30.839Z,2017-11-21T14:55:30.839Z,38808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7584,123 11759,v1.0,,"We are nomads, troubles makers, philosophers, witches, technoshamans, from all over the world, but also activists, hackers, economist, entrepreneurs, ethnologists, Pirate radio hosts, artists, performers, biohackers, feminists, engineers, community builders, medical doctors, academics, urbanists and scientists/wizards of all colors and continent. A subtle mix of individuals >> for once NOT ONLY TALKING about the fake sharing economy and how do we make money in these transitional times or how silicon valley is such a great model for the world to copy, or how technologies and transhumanists are going to save the world.... it's important to notice that we are not in 2000 anymore because our world have become pretty dystopic now...we need other stories and incentives, I think Edgeryders is onto something and it took me some times to realise...seeing all these beautifull people was refreshing...I was not borred",/post/38808,2017-11-21T14:55:02.310Z,2017-11-21T14:55:02.310Z,38808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7584,1919 11758,v1.0,,"How to do skills mapping in a way that is not anxiety inducing? Also: how do we channel our efforts in a way that is conducive to building something (we now call it the OpenVillage), and not let the momentum go, build something out of looking in the same direction? Edit Delete No Commentskills mapping Cancel Save",/post/38811,2017-11-21T14:54:15.347Z,2017-11-21T14:54:15.347Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1784 11757,v1.0,,"How to do skills mapping in a way that is not anxiety inducing? Also: how do we channel our efforts in a way that is conducive to building something (we now call it the OpenVillage), and not let the momentum go, build something out of looking in the same direction? Edit Delete No Commentstoring information Cancel Save",/post/38811,2017-11-21T14:54:09.679Z,2017-11-21T14:54:09.679Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1918 11756,v1.0,,"Inventory skills; also look for ways to encode them into data, and see if that engenders behavioral change, addressing perhaps public health concerns. Frank:",/post/38811,2017-11-21T14:53:53.639Z,2017-11-21T14:53:53.639Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1917 11755,v1.0,,"I really enjoyed the game. I am interested in family, and that’s where the care starts. Some people are now looking into chosen families – me too, as long as I have increased access to travel. But it feels weird to ask for health to chosen families, people who are not blood. Maybe that’s old fashioned of me. But I would like to talk about family. Also: are we creating a kind of tyranny of reputation scores, a kind of God of judges us on the basis of our digitally encoded accomplishments? Denise:",/post/38811,2017-11-21T14:53:25.696Z,2017-11-21T14:53:25.696Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,470 11754,v1.0,,"I really enjoyed the game. I am interested in family, and that’s where the care starts. Some people are now looking into chosen families – me too, as long as I have increased access to travel. But it feels weird to ask for health to chosen families, people who are not blood. Maybe that’s old fashioned of me. But I would like to talk about family. Also: are we creating a kind of tyranny of reputation scores, a kind of God of judges us on the basis of our digitally encoded accomplishments? Denise:",/post/38811,2017-11-21T14:53:14.467Z,2017-11-21T14:53:14.467Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,824 11753,v1.0,,"I really enjoyed the game. I am interested in family, and that’s where the care starts. Some people are now looking into chosen families – me too, as long as I have increased access to travel. But it feels weird to ask for health to chosen families, people who are not blood. Maybe that’s old fashioned of me. But I would like to talk about family. Also: are we creating a kind of tyranny of reputation scores, a kind of God of judges us on the basis of our digitally encoded accomplishments? Denise:",/post/38811,2017-11-21T14:53:07.364Z,2017-11-21T14:53:07.364Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,43 11752,v1.0,,"The will to freedom is the only thing that is stronger than the will power. I suggest to look for and improve forms of agreement not to be dominated (nondominium instead of condominium). Second point: how do we measure “units of care”. Third point: the destination is not the point, just like in the urban game the point was not getting to the coordinates. bilal:",/post/38811,2017-11-21T14:53:00.038Z,2017-11-21T14:53:00.038Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,869 11751,v1.0,,"What is needed, on a personal level, for collective intelligence to work? How can we deal with immanent power structures? In my opinion the goal is not to take them away. Chris:",/post/38811,2017-11-21T14:51:48.909Z,2017-11-21T14:51:48.909Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1916 11750,v1.0,,"What is needed, on a personal level, for collective intelligence to work? How can we deal with immanent power structures? In my opinion the goal is not to take them away. Chris:",/post/38811,2017-11-21T14:51:34.169Z,2017-11-21T14:51:34.169Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1915 11749,v1.0,,"What is needed, on a personal level, for collective intelligence to work? How can we deal with immanent power structures? In my opinion the goal is not to take them away. Chris:",/post/38811,2017-11-21T14:51:17.209Z,2017-11-21T14:51:17.209Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,334 11748,v1.0,,"My takehome is about the footprints of what we do. Alberto’s Kathmandu example is that his project did not clean up the rivers, but it did increase the awareness that the rivers are polluted. John’s clinic is up and running, so that’s a fantastic footprint. Henry:",/post/38811,2017-11-21T14:51:08.653Z,2017-11-21T14:51:08.653Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1784 11747,v1.0,,"My takehome is about the footprints of what we do. Alberto’s Kathmandu example is that his project did not clean up the rivers, but it did increase the awareness that the rivers are polluted. John’s clinic is up and running, so that’s a fantastic footprint. Henry:",/post/38811,2017-11-21T14:51:01.234Z,2017-11-21T14:51:01.234Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,83 11746,v1.0,,"My takehome points: (1) it is important to find likeminded people to share dreams with, but (2) it is frustrating when that does not go anywhere concrete. It would be great to have some kind of information about people’s skills. hazem:",/post/38811,2017-11-21T14:50:50.121Z,2017-11-21T14:50:50.121Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1784 11745,v1.0,,"My takehome points: (1) it is important to find likeminded people to share dreams with, but (2) it is frustrating when that does not go anywhere concrete. It would be great to have some kind of information about people’s skills. hazem:",/post/38811,2017-11-21T14:50:42.318Z,2017-11-21T14:50:42.318Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1537 11744,v1.0,,"We might be stuck into a situation where we are basing our thinking on false information. (Examples follow). albertorey:",/post/38811,2017-11-21T14:50:03.573Z,2017-11-21T14:50:03.573Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1431 11743,v1.0,,"I would like to talk about medicalization of lifestyles. Some people call for de-medicalization, and want to rebrand anorexia or autism or amputation as a lifestyle. Where are the boundaries of “a medical condition”? French guy:",/post/38811,2017-11-21T14:49:52.243Z,2017-11-21T14:49:52.243Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1421 11742,v1.0,,"I would like to talk about medicalization of lifestyles. Some people call for de-medicalization, and want to rebrand anorexia or autism or amputation as a lifestyle. Where are the boundaries of “a medical condition”? French guy:",/post/38811,2017-11-21T14:49:40.090Z,2017-11-21T14:49:40.090Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1130 11741,v1.0,,"A community is like a dish full of food. Food is good, by the question is: who provides the dish? I really would like to know more about this? sabgaby:",/post/38811,2017-11-21T14:49:32.967Z,2017-11-21T14:49:32.967Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1273 11740,v1.0,,"More whisper translators would be useful. Thomas:",/post/38811,2017-11-21T14:49:21.891Z,2017-11-21T14:49:21.891Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1769 11739,v1.0,,"Not clear what happens when people say “oh, let’s have no structure and be free”. Infrastructure is by definition invisible. We need to start understanding what it actually is. Tory:",/post/38811,2017-11-21T14:49:14.731Z,2017-11-21T14:49:14.731Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1826 11738,v1.0,,"Not clear what happens when people say “oh, let’s have no structure and be free”. Infrastructure is by definition invisible. We need to start understanding what it actually is. Tory:",/post/38811,2017-11-21T14:49:07.634Z,2017-11-21T14:49:07.634Z,38811,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7585,1004 11737,v1.0,,"I hope we can 'break out' more with these ideas, especially with the next generation! I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)! It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering. Edit Delete No Commentconnecting with schools Cancel Save",/post/38981,2017-11-21T14:47:39.411Z,2017-11-21T14:47:39.411Z,38981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1391 11736,v1.0,,"I hope we can 'break out' more with these ideas, especially with the next generation! I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)! It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering. Edit Delete No Commentconnecting with schools Cancel Save",/post/38981,2017-11-21T14:47:32.036Z,2017-11-21T14:47:32.036Z,38981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1349 11735,v1.0,,"I hope we can 'break out' more with these ideas, especially with the next generation! I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)! It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering. Edit Delete No Commentconnecting with schools Cancel Save",/post/38981,2017-11-21T14:47:25.443Z,2017-11-21T14:47:25.443Z,38981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,83 11734,v1.0,,"I hope we can 'break out' more with these ideas, especially with the next generation! I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)! It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering. Edit Delete No Commentconnecting with schools Cancel Save",/post/38981,2017-11-21T14:47:13.096Z,2017-11-21T14:47:13.096Z,38981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,766 11733,v1.0,,"Back to schools, though. How can we get these ideas, and practices, into mainstream secondary education? Perhaps through, first, alternative education and home schoolers sharing resources? If we did manage to get into mainstream education, that would be such a powerful springboard into the hearts and minds of young people.",/post/38977,2017-11-21T14:47:04.635Z,2017-11-21T14:47:04.635Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,395 11732,v1.0,,"I hope we can 'break out' more with these ideas, especially with the next generation! I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)! It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering. Cancel Save",/post/38981,2017-11-21T14:46:57.184Z,2017-11-21T14:46:57.184Z,38981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,395 11731,v1.0,,"In the UK, we can perhaps benefit in an unexpected way from present trends. There are still large numbers of standard council-controlled schools, but increasing numbers of free schools and ""academies"". While these are perhaps set up to allow private interests to profit from education (very distasteful), they can also be used to break free of some norms, and maybe experiment with this kind of idea. Edit Delete No Commenteducation Cancel Save",/post/38977,2017-11-21T14:46:44.351Z,2017-11-21T14:46:44.351Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1412 11730,v1.0,,"Back to schools, though. How can we get these ideas, and practices, into mainstream secondary education? Perhaps through, first, alternative education and home schoolers sharing resources? If we did manage to get into mainstream education, that would be such a powerful springboard into the hearts and minds of young people.",/post/38977,2017-11-21T14:44:41.278Z,2017-11-21T14:44:41.278Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,766 11729,v1.0,,"There's something here too that is shared between citizen science and open source software. It is that it is quite easy in principle to involve ordinary people in ordinary situations, without great amounts of expensive technology or large organisations.",/post/38977,2017-11-21T14:44:32.951Z,2017-11-21T14:44:32.951Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1257 11728,v1.0,,"What comes through your posts beautifully, @rachel, is the dimension of knowledge, experience and care (in the sense of being careful, rather than the other vital sense of caring for each other). The technology is secondary. Your posts here suggest that attention to the detail in the process is much more significant than, say, the difference between using a domestic pressure cooker rather than an official autoclave for sterilization.",/post/38977,2017-11-21T14:44:21.007Z,2017-11-21T14:44:21.007Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1914 11727,v1.0,,"What comes through your posts beautifully, @rachel, is the dimension of knowledge, experience and care (in the sense of being careful, rather than the other vital sense of caring for each other). The technology is secondary. Your posts here suggest that attention to the detail in the process is much more significant than, say, the difference between using a domestic pressure cooker rather than an official autoclave for sterilization.",/post/38977,2017-11-21T14:44:11.141Z,2017-11-21T14:44:11.141Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1297 11726,v1.0,,"For a short time I was a science teacher in secondary schools. I even considered introducing the study of environmental chemistry instead of standard chemistry, but that didn't work out. But this kind of citizen science would bring great life to teaching, as well as helping adults take control of their own lives. I was fascinated by the citizen science aspect of the Festival as a whole.",/post/38977,2017-11-21T14:43:54.866Z,2017-11-21T14:43:54.866Z,38977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,312 11725,v1.0,,I would also like to help find funding for us all to keep learning more and ultimately help make the world better... (I finally filled in the form this morning...),/post/38966,2017-11-21T14:43:42.887Z,2017-11-21T14:43:42.887Z,38966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,877 11724,v1.0,,"Outside of these reflections, concretely, one project I hope to collaborate more upon in the future is to join in somehow for the open insulin project, most likely via Hackuarium and its newly inaugurated P1 lab.",/post/38966,2017-11-21T14:43:34.481Z,2017-11-21T14:43:34.481Z,38966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1253 11723,v1.0,,"In terms of what I specifically learned, I realised I never answered you here... Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly. Even if they seem very nice. For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)... I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices. Nonetheless, I hope that if they could really understand 'why' such things are bad for us all, and the environment - based on this idea of 'dynamic genomic integrity' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/ just in case someone would like more info in this regard. The summary flyer btw is available already in 10 languages, but I would love to make more translations, and would also love more 'flags' to show up the site's counter... I also want to point out to all the artistic people out there that the AGiR! Art Call is still open!!)",/post/38966,2017-11-21T14:43:26.714Z,2017-11-21T14:43:26.714Z,38966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1391 11722,v1.0,,"In terms of what I specifically learned, I realised I never answered you here... Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly. Even if they seem very nice. For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)... I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices. Nonetheless, I hope that if they could really understand 'why' such things are bad for us all, and the environment - based on this idea of 'dynamic genomic integrity' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/ just in case someone would like more info in this regard. The summary flyer btw is available already in 10 languages, but I would love to make more t",/post/38966,2017-11-21T14:43:18.558Z,2017-11-21T14:43:18.558Z,38966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,1913 11721,v1.0,,"In terms of what I specifically learned, I realised I never answered you here... Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly. Even if they seem very nice. For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)... I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices. Nonetheless, I hope that if they could really understand 'why' such things are bad for us all, and the environment - based on this idea of 'dynamic genomic integrity' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/ just in case someone would like more info in this regard. The summary flyer btw is available already in 10 languages, but I would love to make more translations, and would also love more 'flags' to show up the site's counter... I also want to point out to all the artistic people out there that the AGiR! Art Call is still open!!)",/post/38966,2017-11-21T14:43:12.759Z,2017-11-21T14:43:12.759Z,38966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7551,312 11720,v1.0,,"I am guessing the diveristy of the people in there is what keeps the space unique and going, you know what is the problem in most of the MENA region countries? is that at some point it was a mess and having diffent people in one room would only cause a lot of troubles... however now things are getting better, at least for Tunisia Edit Delete No Commentbuilding diverse communities Cancel Save",/post/38305,2017-11-21T14:38:27.311Z,2017-11-21T14:38:27.311Z,38305,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,447 11719,v1.0,,"I am guessing the diveristy of the people in there is what keeps the space unique and going, you know what is the problem in most of the MENA region countries? is that at some point it was a mess and having diffent people in one room would only cause a lot of troubles... however now things are getting better, at least for Tunisia Cancel Save",/post/38305,2017-11-21T14:37:57.195Z,2017-11-21T14:38:07.253Z,38305,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,123 11718,v1.0,,"a late welcome from my side. It's amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now ) not sure if you are connected to this experiment days cohousing network, there are different cooperatives and intentional communities in Germany, would be nice to exchange knowledge in Case you are not connected. ( will be happy to connect you together ) also pinging @amiridina @Heba @Yosser @m_tantawy , check this out as an existing model and let's see how we can learn in the openvillage in the southern Mediterranean region. hope to see",/post/38255,2017-11-21T14:37:45.457Z,2017-11-21T14:37:45.457Z,38255,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,323 11717,v1.0,,"a late welcome from my side. It's amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now ) not sure if you are connected to this experiment days cohousing network, there are different cooperatives and intentional communities in Germany, would be nice to exchange knowledge in Case you are not connected. ( will be happy to connect you together ) also pinging @amiridina @Heba @Yosser @m_tantawy , check this out as an existing model and let's see how we can learn in the openvillage in the southern Mediterranean region.",/post/38255,2017-11-21T14:37:37.591Z,2017-11-21T14:37:37.591Z,38255,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,905 11716,v1.0,,"a late welcome from my side. It's amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now )",/post/38255,2017-11-21T14:37:28.314Z,2017-11-21T14:37:28.314Z,38255,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1911 11715,v1.0,,"Great article @noemi, Nieklitz sounds amazing. So many people are now edging towards a more earth-savy lifestyle. @emsone me , would be great if you or someone from Nieklitz could make it to the festival, we could learn loads from you! Cancel Save",/post/38041,2017-11-21T14:36:59.472Z,2017-11-21T14:36:59.472Z,38041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1648 11714,v1.0,,"I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it's a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco ""The age of self"" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we've learned so far. Another option could be to run a little Case Clinic workshop, a format I've learned during a U-Lab course which trains people in active listening. Keep up the good work!!!",/post/37670,2017-11-21T14:36:37.141Z,2017-11-21T14:36:37.141Z,37670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,377 11713,v1.0,,"I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it's a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco ""The age of self"" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we've learned so far. Another option could be to run a little Case Clinic workshop, a format I've learned during a U-Lab course which trains people in active listening.",/post/37670,2017-11-21T14:36:18.793Z,2017-11-21T14:36:18.793Z,37670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1910 11712,v1.0,,"I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it's a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco ""The age of self"" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we've learned so far. Another option could be to run a little Case Clinic workshop, a format I've learned during a U-Lab course which trains people in active listening.",/post/37670,2017-11-21T14:35:51.040Z,2017-11-21T14:35:51.040Z,37670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,358 11711,v1.0,,"To speak for myself, I was overwhelmed by the high density of awe-inspiring, like-minded and congenial people on site. That was a whole 'nother level I had so many great conversations that sparked new ideas and gave me different insight to quite a variety of different topics. Time wasn't enough to connect to everyone who attended, however every single contact was rocking my sweet socks I cannot remember having a longer conversation with you, but now reading your kind words and about OpenVillage and Egderyders I feel I missed out.",/post/37670,2017-11-21T14:35:34.423Z,2017-11-21T14:35:34.423Z,37670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1909 11710,v1.0,,"My own questions about making a life for oneself lingered. It seemed that the deep personal investment of people is not only in making a project happen. Someone I spoke to framed it as having a chance to live the lives we want, outside the oppression experienced in the city. Wir Bauen Zukunft and their extended loving arms like Open State are building future, in much needed radical, but gentle ways. Chapeau!",/post/36387,2017-11-21T14:35:01.474Z,2017-11-21T14:35:01.474Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1269 11709,v1.0,,"My own questions about making a life for oneself lingered. It seemed that the deep personal investment of people is not only in making a project happen. Someone I spoke to framed it as having a chance to live the lives we want, outside the oppression experienced in the city. Wir Bauen Zukunft and their extended loving arms like Open State are building future, in much needed radical, but gentle ways. Chapeau!",/post/36387,2017-11-21T14:34:46.806Z,2017-11-21T14:34:46.806Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1908 11708,v1.0,,"3. A healthy mix of working, living, and the space in between In the Nieklitz group, I found a surprising combination of brain meets the heart meets the hands. It is not a hackerspace with living quarters, nor is it a hippie commune. Or if it is any of them, it escaped me, as I was talking to such diverse people - designers, artists, cooks, planners and highly skilled builders. The space reflects that: as part of the package one can try three different kinds of showers – the inside shower, the outside shower, and the love shower",/post/36387,2017-11-21T14:34:26.806Z,2017-11-21T14:34:26.806Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,123 11707,v1.0,,"2. Time set aside for planning, group structuring and reflection. The core group had known each other for about 3 years prior and intersected in various projects. The cooperative model looks promising because in it, members share clear rights, but they also share the responsibility in a way that doesn’t break the structure when someone drops out. Everyone participates in weekly meetings and they apply sociocracy 3.0 to all decision making. Reportedly, it is not easy, but the collective understands that it’s a process and gets help when needed (professional coaches).",/post/36387,2017-11-21T14:34:13.756Z,2017-11-21T14:34:13.756Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1531 11706,v1.0,,"1. Reaching out to fitting partners in a strategic way. Securing the resources to get started involved 3 questions: What’s the topic? Who’s around to partner up with? Where does the money come from? It could be that the OpenVillage solves 2) and 3) by being hosted temporarily in a community whose values are aligned, which has the space for us: could be an industrial park, an eco-village, a farmland and so on.",/post/36387,2017-11-21T14:34:01.701Z,2017-11-21T14:34:01.701Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1284 11705,v1.0,,"1. Reaching out to fitting partners in a strategic way. Securing the resources to get started involved 3 questions: What’s the topic? Who’s around to partner up with? Where does the money come from? It could be that the OpenVillage solves 2) and 3) by being hosted temporarily in a community whose values are aligned, which has the space for us: could be an industrial park, an eco-village, a farmland and so on.",/post/36387,2017-11-21T14:33:46.928Z,2017-11-21T14:33:46.928Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,126 11704,v1.0,,I asked everyone I got the chance about their involvement and how the community develops. The points below are valuable takeaways for me and hopefully for edgeryders OpenVillage in-the-making:,/post/36387,2017-11-21T14:33:36.950Z,2017-11-21T14:33:36.950Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,377 11703,v1.0,,"It also reflects in the group’s structure. Formally, it is a cooperative (in German the legal term is genossenschaft) where members buy-in an amount of 5K to co-own the property. There are 18-20 of them, with many active supporters - Open State itself has contributed large share of the camp funding to equip the space for future uses. About 10 people also live in the space, putting their time and skills into servicing it, but needing to make ends meet in the real world still.",/post/36387,2017-11-21T14:33:26.083Z,2017-11-21T14:33:26.083Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,323 11702,v1.0,,"All would then call for how-to innovation workshops, for others to learn how to do it. They also host organisations/ events to make temporary use of the space, and encourage deeper exchange: permaculture meetings would teach everyone new practices, while experimenting on the Nieklitz land. Like most skilled communities I have seen, the boundaries between those who host and those who cross their path are purposefully blurred.",/post/36387,2017-11-21T14:32:59.392Z,2017-11-21T14:32:59.392Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1865 11701,v1.0,,"It is my understanding that the group works for Earth sustainability, with a mission of co-working in nature (the lack of working Internet was temporary). They partially use geotermal energy (underground pipes for heating); research water efficient biogas stoves (to work through methanization); plan an upcoming earthship; organise renovation and building camps on the land. All these build up a sustainable space, with awareness that “everything we produce we need to sell”, as someone said to me. All would then call for how-to innovation workshops, for others to learn how to do it. They also host organisations/ events to make temporary use of the space, and encourage deeper exchange: permaculture meetings would teach everyone new practices, while experimenting on the Nieklitz land. Like most skilled communities I have seen, the boundaries between those who host and those who cross their path are purposefully blurred.",/post/36387,2017-11-21T14:32:26.897Z,2017-11-21T14:32:26.897Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1648 11700,v1.0,,"Wir Bauen Zukunft (translates We Build Future) aka “the Nieklitz crew” is a collective that in the beginning of 2016 bought 18 hectares of land with a loan from a generous private person. This was previously a biology park, a multi million euro technical project of a local architect in the late 90s which failed to bring in enough visitors or people to fill spacious workshops. The ensemble had severely deprecated due to lack of maintenance and use. Since 2016, the Nieklitz crew rebuilt most of it, with a lot of attention for craft and design. It is quite an experience to walk between The Hive main hall and kitchen, the Scent House and House of Flowers, all equipped with a few dozen beds, toilets, indoor and outdoor shower(s); or to walk the green paths between large workshops and storage spaces, old trailers, camping and camp fire spots. See it for yourself:",/post/36387,2017-11-21T14:32:08.634Z,2017-11-21T14:32:08.634Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1308 11699,v1.0,,"It was the Place which really made my camp experience. With scarce Internet and mobile signal, vague appearances of machines, we found ourselves in a nature park with a history, at a two-hour train ride en route from Berlin to Hamburg",/post/36387,2017-11-21T14:30:56.647Z,2017-11-21T14:30:56.647Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1907 11698,v1.0,,"It was the Place which really made my camp experience. With scarce Internet and mobile signal, vague appearances of machines, we found ourselves in a nature park with a history, at a two-hour train ride en route from Berlin to Hamburg",/post/36387,2017-11-21T14:30:39.968Z,2017-11-21T14:30:39.968Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1189 11697,v1.0,,"Of 40 people around the camp, about half of us were “participants”, while the other half were organisers and hosts, an extensive team affiliated to Open State and the place.",/post/36387,2017-11-21T14:30:28.418Z,2017-11-21T14:30:28.418Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1906 11696,v1.0,,"I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it’s Headspace).",/post/36387,2017-11-21T14:30:07.385Z,2017-11-21T14:30:07.385Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1559 11695,v1.0,,"I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it’s Headspace).",/post/36387,2017-11-21T14:29:59.379Z,2017-11-21T14:29:59.379Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1905 11694,v1.0,,"I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it’s Headspace).",/post/36387,2017-11-21T14:29:52.321Z,2017-11-21T14:29:52.321Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1870 11693,v1.0,,"I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it’s Headspace).",/post/36387,2017-11-21T14:29:43.876Z,2017-11-21T14:29:43.876Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,1133 11692,v1.0,,"Do I want to live a regular, somewhat boring life, or an interesting life? Can I put myself in a greater-than-life service, or do I learn to better care for myself before I care for the world? These questions have been lingering for years, and became more profound after I moved in with my co-workers into The Reef Brussels, edgeryders first home base.",/post/36387,2017-11-21T14:29:20.862Z,2018-07-15T18:40:35.132Z,36387,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7127,3090 11689,v1.0,,"Finally, i am planning with Hamdi Achour, an active member and the only ambassador of the international association VASCAPA (Vascular Anomaly Patient Association in Brussels, Belgium, to open a branch of VASCAPA in Tunisia. So, we can help patient with vascular anomaly from Africa and the Middle East",/post/35574,2017-11-16T20:54:14.863Z,2017-11-16T20:54:14.863Z,35574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6975,1902 11688,v1.0,,"i am the founder of social initiative «School in Hospital» The aim of this initiative is to establish a structure, bringing together volunteer teachers, whose aim is to enable young patients hospitalized for a long period to continue their education",/post/35574,2017-11-16T20:49:42.505Z,2017-11-16T20:49:42.505Z,35574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6975,1901 11687,v1.0,,"Life Guardian, is a health self monitoring, extends the traditional practice of medicine in a new challenging approach using IT and the latest powered technologies to establish a smart and reliable medical network for exchanging valuable information about your health status.",/post/35574,2017-11-16T20:38:49.725Z,2017-11-16T20:38:49.725Z,35574,4155,AnnotatorStore::TextAnnotation,,,,,,,,,6975,1900 11670,v1.0,,"At last count it stood at around 4900 people, most of whom are trying to claim asylum in the UK.",/post/39328,2017-11-14T13:26:34.662Z,2017-11-14T13:26:34.662Z,39328,4170,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1150 11669,v1.0,,huge camp,/post/39328,2017-11-14T13:26:09.933Z,2017-11-14T13:26:09.933Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1555 11668,v1.0,,engineers,/post/39334,2017-11-14T13:04:24.324Z,2017-11-14T13:04:24.324Z,39334,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,766 11667,v1.0,,human rights,/post/39328,2017-11-14T13:03:57.263Z,2017-11-14T13:03:57.263Z,39328,4171,AnnotatorStore::TextAnnotation,,,,,,,,,7651,966 11666,v1.0,,use people from the camps,/post/39334,2017-11-14T13:01:05.037Z,2017-11-14T13:01:05.037Z,39334,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1363 11665,v1.0,,Are refugees themselvesd involved,/post/39333,2017-11-14T12:58:56.944Z,2017-11-14T12:58:56.944Z,39333,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1363 11664,v1.0,,"And yet you hear stories like this school built by a Nigerian: http://www.bbc.com/news/world-europe-35714129 It's probably fragile and temporary though (if still there), but good example.",/post/39336,2017-11-14T12:50:46.048Z,2017-11-14T12:50:46.048Z,39336,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11663,v1.0,,food distribution,/post/39328,2017-11-14T12:50:34.860Z,2017-11-14T12:50:34.860Z,39328,4171,AnnotatorStore::TextAnnotation,,,,,,,,,7651,855 11662,v1.0,,proceedural documents,/post/39331,2017-11-14T12:50:33.474Z,2017-11-14T12:50:33.474Z,39331,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1073 11661,v1.0,,"Longer term residents who are more settled in the camp and are looked at as community leaders do a lot more than i am aware of, but in order to find out more about what they were doing to support each other it would be really benefitial to have a few translators who could have more detailled conversations with them.",/post/39334,2017-11-14T12:48:46.114Z,2017-11-14T12:48:46.114Z,39334,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1271 11659,v1.0,,women,/post/39328,2017-11-14T12:47:06.603Z,2017-11-14T12:47:06.603Z,39328,4171,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1854 11658,v1.0,,My view is that most people living on the camp consider it to be a temporary pit stop before they get to the UK (even if it's 'temporary' for 9 months or more) and so aren't keen on setting up services long term on the camp when they could be in a lorry tomorrow night heading to Britain.,/post/39334,2017-11-14T12:46:52.281Z,2017-11-14T12:46:52.281Z,39334,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1547 11657,v1.0,,young men,/post/39328,2017-11-14T12:46:42.512Z,2017-11-14T12:46:42.512Z,39328,4171,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1871 11656,v1.0,,My view is that most people living on the camp consider it to be a temporary pit stop before they get to the UK (even if it's 'temporary' for 9 months or more) and so aren't keen on setting up services long term on the camp when they could be in a lorry tomorrow night heading to Britain.,/post/39334,2017-11-14T12:46:29.397Z,2017-11-14T12:46:29.397Z,39334,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1668 11655,v1.0,,without receiving any direct pay,/post/39328,2017-11-14T12:45:50.325Z,2017-11-14T12:45:50.325Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,233 11654,v1.0,,"Some of the facilities and services on camp are staffed and operated my residents of the camps. Both the Ashram Kitchen (link above) and the Jungle books use people from the camps to organise (cook, clean, serve, staff etc) their operations. Some parts of it a situated in specific areas of the camp and the people who live close to those amenities operate as security and safety overnight.It's very much a case that the residents are very active on site. Whenever organisations start to build additional shelters, or do maintenance/repairs the locals get heavily involved. At the moment we aren't allowed to bring large-scale building material onto the site so resourceful communities and individuals are doing a lot of self building using scavenged wood and tarpualin/waterproof fabrics. There are lots of skilled people on the camps, some of them have been engineers, large scale construction workers so us volunteers are always happy to bring equipment, hand it out and then stand back and let the professionals handle the work.It is probably true to say that there aren't any refugee-led projects on site, or if there are, i am not aware of them yet. It's certainly something i could find out more about by asking around.",/post/39334,2017-11-14T12:44:35.192Z,2017-11-14T12:44:35.192Z,39334,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1832 11653,v1.0,,A very crucial factor on this issue is the participation of the refugees (or other groups supported),/post/39337,2017-11-14T12:44:13.903Z,2017-11-14T12:44:13.903Z,39337,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,326 11652,v1.0,,central aid and food distribution services,/post/39328,2017-11-14T12:44:02.610Z,2017-11-14T12:44:02.610Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,418 11651,v1.0,,"similar approach and initiatives have been taken in Greece, by many solidarity groups, which try to avoid any connection and dependence from state and formal NGOs, trying to distinct between solidarity and charity,",/post/39337,2017-11-14T12:43:53.286Z,2017-11-14T12:43:53.286Z,39337,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1269 11650,v1.0,,"However, from what I read I have the impression that this is a story about the volunteers. It is them (you!) doing all this amazing stuff. Are refugees themselvesd involved in building and staffing these services and efforts?",/post/39333,2017-11-14T12:43:52.339Z,2017-11-14T12:43:52.339Z,39333,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1832 11649,v1.0,,This is a great story! What it seems to have to teach is this: refugee camps could sprout many more and better services if people were allowed to provide for each other. Score one for self organization.,/post/39333,2017-11-14T12:43:39.433Z,2017-11-14T12:43:39.433Z,39333,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11648,v1.0,,trying to get to the UK,/post/39328,2017-11-14T12:42:55.517Z,2017-11-14T12:42:55.517Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1155 11647,v1.0,,"Whenever organisations start to build additional shelters, or do maintenance/repairs the locals get heavily involved.",/post/39334,2017-11-14T12:42:36.850Z,2017-11-14T12:42:36.850Z,39334,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,326 11646,v1.0,,refugees,/post/39338,2017-11-14T12:42:18.369Z,2017-11-14T12:42:18.369Z,39338,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1424 11645,v1.0,,It's very much a case that the residents are very active on site.,/post/39334,2017-11-14T12:42:07.307Z,2017-11-14T12:42:07.307Z,39334,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11644,v1.0,,aid agencies,/post/39338,2017-11-14T12:41:36.502Z,2017-11-14T12:41:36.502Z,39338,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1207 11643,v1.0,,refugees,/post/39337,2017-11-14T12:41:23.005Z,2017-11-14T12:41:23.005Z,39337,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1424 11642,v1.0,,Ashram Kitchen,/post/39334,2017-11-14T12:40:40.643Z,2017-11-14T12:40:40.643Z,39334,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,452 11641,v1.0,,"Hi Alex, how are you? Sorry to have missed your visit- just back an hour ago after an intense week + in Berlin. Very curious to hear about your experiences and reflections. In part because I would like to volunteer this spring but am unsure as to where I can meaningfully put my skills etc to use. In part because both Ezio and myself are adamant that this should be one of thd focal points in opencare",/post/39330,2017-11-14T12:40:10.625Z,2017-11-14T12:40:10.625Z,39330,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1832 11640,v1.0,,"All of these services are coordinated by long to medium term volunteers, who spend their own money and time to care for the people on camp without receiving any direct pay. Sometimes fundraised money is spent to provide accommodation and travel expenses to volunteers but a large majority of people live out here entirely on the own funds.",/post/39328,2017-11-14T12:39:15.132Z,2017-11-14T12:39:15.132Z,39328,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1832 11639,v1.0,,"In March the French prefecture with the support of the CRS cleared the oldest, largest section of the camp in the south.",/post/39328,2017-11-14T12:39:10.654Z,2017-11-14T12:39:10.654Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,390 11638,v1.0,,"The majority of residents in the camp chose to not take these options as they are not looking to seek asylum in France, but are trying to get to the UK to reconnect with families. This disconnect between what the French authorities want to achieve",/post/39328,2017-11-14T12:38:30.854Z,2017-11-14T12:38:30.854Z,39328,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1760 11637,v1.0,,refugee camps could sprout many more and better services if people were allowed to provide for each other. Score one for self organization.,/post/39333,2017-11-14T12:38:18.086Z,2017-11-14T12:38:18.086Z,39333,4167,AnnotatorStore::TextAnnotation,,,,,,,,,7651,83 11636,v1.0,,cleared,/post/39328,2017-11-14T12:38:10.803Z,2017-11-14T12:38:10.803Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,798 11635,v1.0,,Originally the camp was made up of tents and very temporary structures.,/post/39328,2017-11-14T12:38:09.063Z,2017-11-14T12:38:09.063Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1668 11634,v1.0,,"self-organisation, communication and collaboration",/post/39328,2017-11-14T12:37:27.063Z,2017-11-14T12:37:27.063Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,111 11633,v1.0,,no requirements,/post/39328,2017-11-14T12:37:05.771Z,2017-11-14T12:37:05.771Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,199 11632,v1.0,,"For the past 3 weeks I have been working as a volunteer through the central warehouse, L’Auberge des migrants.",/post/39328,2017-11-14T12:36:00.427Z,2017-11-14T12:36:00.427Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1832 11631,v1.0,,"For the past 3 weeks I have been working as a volunteer through the central warehouse, L’Auberge des migrants. L’Auberge acts as the central aid and food distribution services for the camps across Northern France, including Calais, Dunkirk and a number of smaller camps around the area. L’Auberge exists solely on donations, providing daily hot food deliveries, daily dry food deliveries to allow residents to cook for themselves, clothing drops, and since my arrival a mobile distribution service that goes from shelter to shelter, assessing individual and community needs and providing aid in the form of blankets, sleeping bags, cooking equipment, lights and a number of other personal items. All of these services are coordinated by long to medium term volunteers, who spend their own money and time to care for the people on camp without receiving any direct pay. Sometimes fundraised money is spent to provide accommodation and travel expenses to volunteers but a large majority of people live out here entirely on the own funds. The warehouse was initially set up by a French charity but is now run and ‘staffed’ by a UK charity HelpRefugees [http://www.helprefugees.org.uk/what-we-do/], who bring in funding and support from around the EU to help provide humanitarian services. http://www.aljazeera.com/indepth/features/2016/03/burying-refugees-die-calais-jungle-160329071028796.html",/post/39328,2017-11-14T12:35:45.175Z,2017-11-14T12:35:45.175Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11630,v1.0,,"As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK",/post/39328,2017-11-14T12:35:08.923Z,2017-11-14T12:35:08.923Z,39328,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11629,v1.0,,This disconnect between what the French authorities want to achieve with the residents and what the residents themselves want to achieve goes a long way toward explaining the conflict and central problem at the camp.,/post/39328,2017-11-14T12:35:03.433Z,2017-11-14T12:35:03.433Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,727 11628,v1.0,,"Alongside the humanitarian and social aid there are library and reading services [http://www.calaidipedia.co.uk/jungle-books-library], theatre and arts activities [http://goodchance.org.uk/], community kitchens [https://www.facebook.com/OneSpiritAshramKitchen/][https://www.facebook.com/The-Belgian-Kitchen-1736739086546935/], hot food distribution, dry food goods distribution and daily clothing distributions provided from a central warehouse [http://www.laubergedesmigrants.fr/], amongst many others [http://time.com/4233206/calais-jungle-shops/].",/post/39328,2017-11-14T12:34:35.050Z,2017-11-14T12:34:35.050Z,39328,4,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11627,v1.0,,"Increasingly we are seeing aid, and charities from further afield in Europe coming to Calais to help, creating a multi-national series of solutions that have grown up without any direct hierarchy or guidance.",/post/39328,2017-11-14T12:34:31.269Z,2017-11-14T12:34:31.269Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11626,v1.0,,"As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK.",/post/39328,2017-11-14T12:34:13.261Z,2017-11-14T12:34:13.261Z,39328,4168,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1505 11625,v1.0,,"hot food distribution, dry food goods distribution",/post/39328,2017-11-14T12:34:07.148Z,2017-11-14T12:34:07.148Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,856 11624,v1.0,,residents,/post/39328,2017-11-14T12:33:47.094Z,2017-11-14T12:33:47.094Z,39328,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1424 11623,v1.0,,library and reading service,/post/39328,2017-11-14T12:33:34.342Z,2017-11-14T12:33:34.342Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1085 11622,v1.0,,residents,/post/39328,2017-11-14T12:33:26.759Z,2017-11-14T12:33:26.759Z,39328,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1424 11621,v1.0,,"As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK.",/post/39328,2017-11-14T12:33:21.330Z,2017-11-14T12:33:21.330Z,39328,4167,AnnotatorStore::TextAnnotation,,,,,,,,,7651,83 11620,v1.0,,A number of organisations sprang up,/post/39328,2017-11-14T12:33:18.038Z,2017-11-14T12:33:18.038Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1640 11619,v1.0,,You can find out more about a numbers of the organisations that work on the site by visiting [http://www.calaidipedia.co.uk/breaking-news] or by reading the No Borders document [https://welcometocalais.files.wordpress.com/2015/10/welcome-to-calais-booklet_eng_updatedoct15.pdf],/post/39328,2017-11-14T12:32:52.565Z,2017-11-14T12:32:52.565Z,39328,4167,AnnotatorStore::TextAnnotation,,,,,,,,,7651,83 11618,v1.0,,moving around from site to site,/post/39328,2017-11-14T12:32:13.896Z,2017-11-14T12:32:13.896Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1155 11616,v1.0,,"It is frequently in our papers and on our televisions, yet beyond the UK and the direct environment of Calais the Calais camp has not received the kind of attention it deserves.",/post/39328,2017-11-14T12:31:26.584Z,2017-11-14T12:31:26.584Z,39328,4167,AnnotatorStore::TextAnnotation,,,,,,,,,7651,83 11615,v1.0,,young men,/post/39328,2017-11-14T12:30:57.173Z,2017-11-14T12:30:57.173Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,886 11614,v1.0,,the kind of attention it deserves,/post/39328,2017-11-14T12:28:55.991Z,2017-11-14T12:28:55.991Z,39328,4166,AnnotatorStore::TextAnnotation,,,,,,,,,7651,83 11613,v1.0,,asylum,/post/39328,2017-11-14T12:27:37.703Z,2017-11-14T12:27:37.703Z,39328,4171,AnnotatorStore::TextAnnotation,,,,,,,,,7651,69 11612,v1.0,,migration,/post/39328,2017-11-14T12:27:22.354Z,2019-03-20T11:12:11.595Z,39328,4171,AnnotatorStore::TextAnnotation,,,,,,,,,7651,3412 11611,v1.0,,refugees,/post/39333,2017-11-14T12:24:09.732Z,2017-11-14T12:24:09.732Z,39333,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1424 11609,v1.0,,the Calais ‘Jungle’,/post/39328,2017-11-14T12:16:57.235Z,2017-11-14T12:16:57.235Z,39328,4165,AnnotatorStore::TextAnnotation,,,,,,,,,7651,1424 11600,v1.0,,"I should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.",/post/35903,2017-09-12T17:45:54.148Z,2017-09-12T17:45:54.148Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,354 11599,v1.0,,"A Recollection- I asked a few questions and this was the result of our conversation. “After meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer”.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers”. We both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began”. What prompted the action? “We wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else. We all could learn from one another. So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other”. What is the mission of CoreCareCollective? “Our mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person’s cancer fight: the survivors, fighters, supporters, and caregivers”. “Every person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey”. I had asked who else would be in collaboration, this was her response, and “The platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system”. Who do you want to reach? “People around the world that want to share their experiences and sharing their strength”. Denise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more. It is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare. I should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.",/post/35903,2017-09-12T17:26:13.665Z,2017-09-12T17:26:13.665Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,1234 11598,v1.0,,"over a coffee and she shared with me the motivation behind their initiative. Carry Hendrix & Denise Sliepen (pictured above) A Recollection- I asked a few questions and this was the result of our conversation. “After meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer”.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers”. We both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began”. What prompted the action? “We wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else. We all could learn from one another. So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other”. What is the mission of CoreCareCollective? “Our mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person’s cancer fight: the survivors, fighters, supporters, and caregivers”. “Every person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey”. I had asked who else would be in collaboration, this was her response, and “The platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system”. Who do you want to reach? “People around the world that want to share their experiences and sharing their strength”. Denise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more. It is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare. I should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop. Edit Delete No Commentstory sharing Edit Delete No Commentlearning spaces Cancel Save Annotate",/post/35903,2017-09-12T17:26:04.383Z,2017-09-12T17:26:04.383Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,853 11597,v1.0,,"A Recollection- I asked a few questions and this was the result of our conversation. “After meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer”.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers”. We both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began”. What prompted the action? “We wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else. We all could learn from one another. So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other”. What is the mission of CoreCareCollective? “Our mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person’s cancer fight: the survivors, fighters, supporters, and caregivers”. “Every person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey”. I had asked who else would be in collaboration, this was her response, and “The platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system”. Who do you want to reach? “People around the world that want to share their experiences and sharing their strength”. Denise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more. It is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare. I should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.",/post/35903,2017-09-12T17:24:14.973Z,2017-09-12T17:24:14.973Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,1072 11596,v1.0,,"A Recollection- I asked a few questions and this was the result of our conversation. “After meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer”.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers”. We both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began”. What prompted the action? “We wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else. We all could learn from one another. So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other”. What is the mission of CoreCareCollective? “Our mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person’s cancer fight: the survivors, fighters, supporters, and caregivers”. “Every person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey”. I had asked who else would be in collaboration, this was her response, and “The platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system”. Who do you want to reach? “People around the world that want to share their experiences and sharing their strength”. Denise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more. It is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare. I should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.",/post/35903,2017-09-12T17:24:01.491Z,2017-09-12T17:24:01.491Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,1625 11595,v1.0,,"When Denise was diagnosed with in 2015 she had support from family and friends, but still found that they couldn't fully understand what she was going through. It was only by chance that Denise crossed paths with Carry Hendrix who was going through a similar diagnosis. An interaction at the gym brought these women to share the same space. Their friendship started and strengthened, and from that bond, it eventually led them to an idea of starting CoreCareCollective. An initiative to support the emotional and social needs of people living with cancer. This initiative promises to create a network of support dedicated to ensuring all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.",/post/35903,2017-09-12T17:23:18.163Z,2017-09-12T17:23:18.163Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,147 11594,v1.0,,"When Denise was diagnosed with in 2015 she had support from family and friends, but still found that they couldn't fully understand what she was going through. It was only by chance that Denise crossed paths with Carry Hendrix who was going through a similar diagnosis. An interaction at the gym brought these women to share the same space. Their friendship started and strengthened, and from that bond, it eventually led them to an idea of starting CoreCareCollective. An initiative to support the emotional and social needs of people living with cancer. This initiative promises to create a network of support dedicated to ensuring all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.",/post/35903,2017-09-12T17:23:11.673Z,2017-09-12T17:23:11.673Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,1537 11593,v1.0,,"It all began with three words. ""You have cancer.""The most dreadful words anyone can hear. Denise Sliepen and Carry Hendrix heard those words.",/post/35903,2017-09-12T17:23:04.524Z,2017-09-12T17:23:04.524Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,135 11592,v1.0,,Questions that patients have don’t always get answered- What can I do to keep my body in the best shape? What food is best to eat during treatment? These are a few of the many questions that require answers. In the standard 15 minute doctor visit it hard to dig deep and get these answers.,/post/35903,2017-09-12T17:22:56.234Z,2017-09-12T17:22:56.234Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,1272 11591,v1.0,,Questions that patients have don’t always get answered- What can I do to keep my body in the best shape? What food is best to eat during treatment? These are a few of the many questions that require answers. In the standard 15 minute doctor visit it hard to dig deep and get these answers.,/post/35903,2017-09-12T17:22:35.281Z,2017-09-12T17:22:35.281Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,737 11590,v1.0,,By understanding the experiences of patients and reflecting on their conversations and interactions gives us insight that led to their initiative. This is a snippet of the early phase of CoreCareCollective,/post/35903,2017-09-12T17:22:06.797Z,2017-09-12T17:22:06.797Z,35903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7011,1288 11589,v1.0,,"Podcast Description: ""This way of life is a war against our bodies. The air polluting our lungs, our breast milk filled with toxins, and our mental angst driving us to suicide. Proposed health cuts increase our general precarity in relation to a failing health system, a health system that fundamentally furthers our objectification and dependency on capital. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. From the Greek solidarity clinics to the Zapatistas “healthcare from below” to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. We begin by finding each other. This podcast will be a step in that journey.""",/post/35814,2017-09-12T16:24:02.991Z,2017-09-12T16:24:02.991Z,35814,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7001,1269 11588,v1.0,,"Podcast Description: ""This way of life is a war against our bodies. The air polluting our lungs, our breast milk filled with toxins, and our mental angst driving us to suicide. Proposed health cuts increase our general precarity in relation to a failing health system, a health system that fundamentally furthers our objectification and dependency on capital. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. From the Greek solidarity clinics to the Zapatistas “healthcare from below” to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. We begin by finding each other. This podcast will be a step in that journey.""",/post/35814,2017-09-12T16:23:49.588Z,2017-09-12T16:23:49.588Z,35814,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7001,80 11587,v1.0,,"Podcast Description: ""This way of life is a war against our bodies. The air polluting our lungs, our breast milk filled with toxins, and our mental angst driving us to suicide. Proposed health cuts increase our general precarity in relation to a failing health system, a health system that fundamentally furthers our objectification and dependency on capital. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. From the Greek solidarity clinics to the Zapatistas “healthcare from below” to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. We begin by finding each other. This podcast will be a step in that journey.""",/post/35814,2017-09-12T16:23:42.695Z,2017-09-12T16:23:42.695Z,35814,3323,AnnotatorStore::TextAnnotation,,,,,,,,,7001,805 7840,v1.0,,"@Alberto, thanks for the comments.  While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health.  At this point in NYC, there is still infrastructure for primary care and physical care within institutions.  In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more ""primary care"" functions.  But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health.  In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here.  We are thinking of treating acute mental health episodes, but to form the foundation for ""preventative"" communal mental health.",/post/26065,2017-07-10T21:13:49.000Z,2017-07-10T21:13:49.000Z,26065,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,955 8422,v1.0,,"i @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.",/post/25790,2017-07-10T21:13:31.000Z,2017-07-10T21:13:31.000Z,25790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1110 7443,v1.0,,"-- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.",/post/25790,2017-07-10T21:13:24.000Z,2017-07-10T21:13:24.000Z,25790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,852 5951,v1.0,,"i @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.",/post/25790,2017-07-10T21:13:17.000Z,2017-07-10T21:13:17.000Z,25790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,391 10138,v1.0,,"Hi @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.",/post/25790,2017-07-10T21:13:10.000Z,2017-07-10T21:13:10.000Z,25790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1456 8590,v1.0,,"Hi @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.",/post/25790,2017-07-10T21:12:53.000Z,2017-07-10T21:12:53.000Z,25790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1140 7413,v1.0,,"or me, seeing you guys at work it's been highly rewarding: fairly technical projects requiring hard skills are crossing over to ask fuller questions re: sustainability whose answers can only become a common resource for those of us struggling with the same. @breathinggames the four obstacles lined up above are something to include in your session description I believe - for the discussion after.",/post/7127,2017-07-08T14:39:40.000Z,2017-07-08T14:39:40.000Z,7127,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,839 4871,v1.0,,"Transition dynamics The projects I am involved in (ReaGent, Ekoli & Break it Down) are going through transition phases. This requires us to take a step back and deconstruct what we’re doing. It comes at a good time when I’m doing such in depth work with other, often similar projects for OpenVillage. We break down many of the processes that we have, eg. logistics for running the lab space as a community, with the purpose of building new ones. This process unearths dynamics that would otherwise be harder to spot for the community, such as the difference between being an open lab and being a shared lab. And then what that means for being an open, shared lab. Mid June we had a workshop with the ReaGent team to look closer at our strategy and implementation for the shared lab space. It was fruitful and is the first of several sessions this summer across our organisations to get everyone aligned. In our next location, the financial pressure from the rent will be higher. We need to prepare. Set up our business models and synergies between all organisations. Design the next iteration for resilience.   In July I’m attending a Biohackathon in Waag in Amsterdam, where I’ll meet many protagonists in citizen.open science & DIYbio. Over the next weeks, we’re also moving into logistic planning for the sessions at the festival and picking up communication efforts.",/post/6459,2017-07-08T14:39:28.000Z,2017-07-08T14:39:28.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,100 11203,v1.0,,"Transition dynamics The projects I am involved in (ReaGent, Ekoli & Break it Down) are going through transition phases. This requires us to take a step back and deconstruct what we’re doing. It comes at a good time when I’m doing such in depth work with other, often similar projects for OpenVillage. We break down many of the processes that we have, eg. logistics for running the lab space as a community, with the purpose of building new ones. This process unearths dynamics that would otherwise be harder to spot for the community, such as the difference between being an open lab and being a shared lab. And then what that means for being an open, shared lab. Mid June we had a workshop with the ReaGent team to look closer at our strategy and implementation for the shared lab space. It was fruitful and is the first of several sessions this summer across our organisations to get everyone aligned. In our next location, the financial pressure from the rent will be higher. We need to prepare. Set up our business models and synergies between all organisations. Design the next iteration for resilience.   In July I’m attending a Biohackathon in Waag in Amsterdam, where I’ll meet many protagonists in citizen.open science & DIYbio. Over the next weeks, we’re also moving into logistic planning for the sessions at the festival and picking up communication efforts.",/post/6459,2017-07-08T14:39:23.000Z,2017-07-08T14:39:23.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1767 7033,v1.0,,"Anthony pointed out one of the aspects in a preparation call for his session at OpenVillage. No one in the team has the time to put into organising or documenting information. So with people dropping in and out (especially experts), knowledge gets lost easily. Counter Culture Labs has made efforts in finding a solution, such as involving an organisational expert, yet without lasting effects.",/post/6459,2017-07-08T14:39:09.000Z,2017-07-08T14:39:09.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,738 9094,v1.0,,"Another rich learning aspect is my involvement in the Open Insulin project. I experience the dynamics, obstacles and opportunities in a complex citizen science project firsthand, much more explicit than in any project I have done before. The lessons have not fully formed yet, but my initial assumptions have certainly been challenged. I hope to clear this out in the next months and report on it.",/post/6459,2017-07-08T14:39:00.000Z,2017-07-08T14:39:00.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1253 7756,v1.0,,How do we encourage funders to support DIY science initiatives now?,/post/6459,2017-07-08T14:38:48.000Z,2017-07-08T14:38:48.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,924 9187,v1.0,,"These have been the issues of many open.citizen science projects, including ones I am involved in. Even beyond citizen.open science this is true. On June 28th we had a community call to discuss common threads across the themes at the festival. Focus points will be funding and funding policies and coordination overhead.",/post/6459,2017-07-08T14:38:41.000Z,2017-07-08T14:38:41.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1262 9486,v1.0,,"There is however another issue that many of us don’t think of immediately. It takes a more long term perspective: funding policy. The DIY Science Network seeks to address this, as separate projects most often don’t have the time, network or expertise to invest. Through conversations with Lucy Patterson, two questions emerged:",/post/6459,2017-07-08T14:38:30.000Z,2017-07-08T14:38:30.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1321 5462,v1.0,,"These have been the issues of many open.citizen science projects, including ones I am involved in. Even beyond citizen.open science this is true. On June 28th we had a community call to discuss common threads across the themes at the festival. Focus points will be funding and funding policies and coordination overhead.",/post/6459,2017-07-08T14:38:24.000Z,2017-07-08T14:38:24.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,312 10829,v1.0,,"Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?",/post/6459,2017-07-08T14:38:14.000Z,2017-07-08T14:38:14.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1648 7412,v1.0,,"Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?",/post/6459,2017-07-08T14:38:08.000Z,2017-07-08T14:38:08.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,839 7536,v1.0,,"Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?",/post/6459,2017-07-08T14:38:02.000Z,2017-07-08T14:38:02.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,876 8832,v1.0,,"Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?",/post/6459,2017-07-08T14:37:56.000Z,2017-07-08T14:37:56.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1164 9768,v1.0,,Reliability and safety. How can you ensure that the community with its contributions (the sum of all) are good quality and safe?,/post/6459,2017-07-08T14:37:50.000Z,2017-07-08T14:37:50.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1400 10209,v1.0,,Reliability and safety. How can you ensure that the community with its contributions (the sum of all) are good quality and safe?,/post/6459,2017-07-08T14:37:43.000Z,2017-07-08T14:37:43.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1483 8050,v1.0,,Legal frameworks and patents. How to make things reusable for everyone regarding regulatory and patent framework?,/post/6459,2017-07-08T14:37:37.000Z,2017-07-08T14:37:37.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1017 8297,v1.0,,Legal frameworks and patents. How to make things reusable for everyone regarding regulatory and patent framework?,/post/6459,2017-07-08T14:37:28.000Z,2017-07-08T14:37:28.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1074 10400,v1.0,,How to put everyone together productively without eg. 2 people having to work full time? Two aspects: community management and information sharing.,/post/6459,2017-07-08T14:37:21.000Z,2017-07-08T14:37:21.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,1539 5754,v1.0,,How to put everyone together productively without eg. 2 people having to work full time? Two aspects: community management and information sharing.,/post/6459,2017-07-08T14:37:15.000Z,2017-07-08T14:37:15.000Z,6459,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6426,369 9490,v1.0,,DIY Science Network want to participate in the panel to present the perspective of bottom-up research initiatives. They're exploring both the,/post/6671,2017-07-08T14:36:13.000Z,2017-07-08T14:36:13.000Z,6671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6427,1322 7535,v1.0,,IY Science Network want to participate in the panel to present the perspective of bottom-up research initiatives. They're exploring both the short term (how to get funded now) and the long term (how to change funding policy culture). Ping @Lucy,/post/6671,2017-07-08T14:36:07.000Z,2017-07-08T14:36:07.000Z,6671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6427,876 10281,v1.0,,"Hey Edgeryders,  I'm developing a course to become an energetic master and conscious creator. It's a self care course to become aware of how beliefs and perceptation relate to how you feel. Here's a first video I shot last week.  Conscious creator from Ewoud Venema on Vimeo. You can find a more elaborate on my Academy where I'll continue to share these courses (probably). I hope you find it inspiring and clarifying. If you like them, you can subscribe to my newletter or follow me on vimeo.  Let me know how you feel!",/post/876,2017-07-08T14:34:36.000Z,2017-07-08T14:34:36.000Z,876,3323,AnnotatorStore::TextAnnotation,,,,,,,,,843,1499 6140,v1.0,,"hat's it - ""identify microclimates and bottom up organising at the same as distilling policy implications"". That is the direction I hope the theme will take us in! Bigger arenas is another interesting dimension and I'd hope that by identifying the enabling factors this will be like knowing what ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal. Looking forward to more shared insights on these topics!",/post/21670,2017-07-08T14:33:29.000Z,2017-07-08T14:33:29.000Z,21670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,434 5084,v1.0,,"That's it - ""identify microclimates and bottom up organising at the same as distilling policy implications"". That is the direction I hope the theme will take us in! Bigger arenas is another interesting dimension and I'd hope that by identifying the enabling factors this will be like knowing what ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal. Looking forward to more shared insights on these topics!",/post/21670,2017-07-08T14:33:23.000Z,2017-07-08T14:33:23.000Z,21670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,146 9485,v1.0,,"hat's it - ""identify microclimates and bottom up organising at the same as distilling policy implications"". That is the direction I hope the theme will take us in! Bigger arenas is another interesting dimension and I'd hope that by identifying the enabling factors this will be like knowing what ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal. Looking forward to more shared insights on these topics!",/post/21670,2017-07-08T14:33:18.000Z,2017-07-08T14:33:18.000Z,21670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1321 6139,v1.0,,"In your theme, I am most curious about how communities which nurture those enabling conditions can move on to leverage them into bigger arenas (Bernard's tales from Galway, or the incredible potential of @Woodbinehealth ), namely how care collectives can, in time and with due iterations or healthy growth, become institutions, if that word can be used..",/post/19609,2017-07-08T14:32:50.000Z,2017-07-08T14:32:50.000Z,19609,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,434 7694,v1.0,,"In your theme, I am most curious about how communities which nurture those enabling conditions can move on to leverage them into bigger arenas (Bernard's tales from Galway, or the incredible potential of @Woodbinehealth ), namely how care collectives can, in time and with due iterations or healthy growth, become institutions, if that word can be used..",/post/19609,2017-07-08T14:32:44.000Z,2017-07-08T14:32:44.000Z,19609,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,916 9484,v1.0,,"Thanks @Gehan for a great synthesis - I understand better where the policy perspective comes into your thinking and the theme overall. I think it was me who skewed it at some point because I thought that we can begin to identify ""microclimates"" and bottom up organising at the same as distilling policy implications. I realise now there is a much slower process of inquiry which can allow us more discrete and meaningful observations. Let me know if i'm wrong..",/post/19609,2017-07-08T14:32:33.000Z,2017-07-08T14:32:33.000Z,19609,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1321 7411,v1.0,,"And shifting to the right in practice for us meant developing sustainable financial models. Largely in two ways: commodifying what came out of our own chaos and getting paid to invent new things for other people (creating some chaos in their world).",/post/19057,2017-07-08T14:32:19.000Z,2017-07-08T14:32:19.000Z,19057,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,839 10828,v1.0,,"And shifting to the right in practice for us meant developing sustainable financial models. Largely in two ways: commodifying what came out of our own chaos and getting paid to invent new things for other people (creating some chaos in their world).",/post/19057,2017-07-08T14:32:11.000Z,2017-07-08T14:32:11.000Z,19057,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1648 5418,v1.0,,"what I've taken from it also relates to the point about burn out. The space between chaos and order is what to cultivate to innovate. But we don't what to expend our energy reinventing the wheel. When we have found stuff we want to maintain - shift it a little to the right - find routines and rythms - sustain it. Like a bike - if its working you want to maintain it. You don't want to be designing new components constantly.  This is also a high octane space, it can be fast. We need to enter it to create new and innovative stuff but it is also exhausting.  How does that land?",/post/19042,2017-07-08T14:31:56.000Z,2017-07-08T14:31:56.000Z,19042,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 5008,v1.0,,"what I've taken from it also relates to the point about burn out. The space between chaos and order is what to cultivate to innovate. But we don't what to expend our energy reinventing the wheel. When we have found stuff we want to maintain - shift it a little to the right - find routines and rythms - sustain it. Like a bike - if its working you want to maintain it. You don't want to be designing new components constantly.  This is also a high octane space, it can be fast. We need to enter it to create new and innovative stuff but it is also exhausting.  How does that land?",/post/19042,2017-07-08T14:31:52.000Z,2017-07-08T14:31:52.000Z,19042,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,130 5417,v1.0,,"Thanks for those visuals @Gehan ! Makes it pretty clear. We are constantly in the zone between chaos and order, now transitioning more to the right. But we will keep a piece in that innovation zone, it's important not to let all the paint dry. Or it's death by boredom for us. I'm a fan of using this framework for something more",/post/19020,2017-07-08T14:31:45.000Z,2017-07-08T14:31:45.000Z,19020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 5416,v1.0,,"wonder if this phase can last for long enough that it becomes somewhat a given and acknowlegded in the organisational culture - that would make people working on-and-off feel more at ease and able to find a role that is creative and autonomous instead of coping for the larger part I guess time is of essence, and communicating the best we can.  Later on, organisation growth comes with its own (and other) strings attached which can easily compromise out-of-the-box creativity levels. Maybe this is a useful framework to bring about at the session on organisations' sustainability, governance.",/post/18597,2017-07-08T14:31:38.000Z,2017-07-08T14:31:38.000Z,18597,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 5415,v1.0,,"It talks about the different qualities of chaos and order. On both sides is death - left of chaos, complete break down - to the right of order death through stagnation. Chaos is creative but the paint never dries, it's impossible to form anything lasting. Order is the about maintaining, ryhthm, routine - it has its place. The overlap between chaos and order is the most productive space for innovation and emergence. I think its useful because it's about considering what's needed in any given situation.",/post/18142,2017-07-08T14:31:25.000Z,2017-07-08T14:31:25.000Z,18142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 5414,v1.0,,Conversations over the first month have helped to refine the theme from how I’d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots care initiatives. They will help to define the ‘microclimates’ that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the more disbursed ecology of care called for in response to growing health needs.,/post/6462,2017-07-08T14:31:13.000Z,2017-07-08T14:31:13.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 5413,v1.0,,Its an idea I came across through Art of Hosting that I found useful (though other AoH methods made me feel a bit 'spiky'),/post/18142,2017-07-08T14:31:02.000Z,2017-07-08T14:31:02.000Z,18142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 4813,v1.0,,"All interesting insights on which to build. Another area that is opening up through these conversations starts to re-evaluate the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.  A number of threads of conversation touched on this issue of responsibility. @Alberto referenced the Amish refusal of health insurance on the grounds that it ‘de-responsibilises’ people. Conversation with Wendy Ball explored her recent intervention in a street fight and how ‘externalising responsibility’ for care creates dependency on state responses - turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.",/post/6462,2017-07-08T14:30:51.000Z,2017-07-08T14:30:51.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,80 11499,v1.0,,"Roles & responsibilities All interesting insights on which to build. Another area that is opening up through these conversations starts to re-evaluate the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.  A number of threads of conversation touched on this issue of responsibility. @Alberto referenced the Amish refusal of health insurance on the grounds that it ‘de-responsibilises’ people. Conversation with Wendy Ball explored her recent intervention in a street fight and how ‘externalising responsibility’ for care creates dependency on state responses - turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.",/post/6462,2017-07-08T14:30:45.000Z,2017-07-08T14:30:45.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1860 5412,v1.0,,Nice way of putting it.. I assume it refers to the non-linearity and coping with complexity which Gehan mentions. Feel free to expand on that - it will help those of us primarily tasked with infusing some sense of orderly process around here,/post/18134,2017-07-08T14:29:59.000Z,2017-07-08T14:29:59.000Z,18134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 5411,v1.0,,"And I remember that conversation about the 'poli-words', and also of the need to capture insights, spontaneous sharings and maps of meaning that come up in informal contexts, in conversations among friends, that can often be ephemeral if not documented: I recall we had a good conversation after an Edgeryders community call some weeks ago where we found the words to express things better after the call had ended- I remember a great riff you had about 'chaordic' ways of working.",/post/16896,2017-07-08T14:29:28.000Z,2017-07-08T14:29:28.000Z,16896,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,304 9559,v1.0,,"Great summary @Gehan of the work so far in all its human complexity: I'm often reminded of the phrase of encouragement used in 12-step addiction fellowships: 'progress, not perfection'.",/post/16896,2017-07-08T14:29:22.000Z,2017-07-08T14:29:22.000Z,16896,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1344 9645,v1.0,,"Great summary @Gehan of the work so far in all its human complexity: I'm often reminded of the phrase of encouragement used in 12-step addiction fellowships: 'progress, not perfection'.",/post/16896,2017-07-08T14:29:12.000Z,2017-07-08T14:29:12.000Z,16896,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1370 5872,v1.0,,"Great summary @Gehan of the work so far in all its human complexity: I'm often reminded of the phrase of encouragement used in 12-step addiction fellowships: 'progress, not perfection'.",/post/16896,2017-07-08T14:29:03.000Z,2017-07-08T14:29:03.000Z,16896,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,382 7902,v1.0,,"Thank you @Gehan for this stimulating reflection, and for the mentions. I identify with the great challenge of knowing how to orient ourselves and act in the larger picture, beyond what we are already doing in our own smaller contexts. But even just describing the threads helps us to recognise our belonging to the same fabric, and to weave more connections over time.",/post/10437,2017-07-08T14:28:56.000Z,2017-07-08T14:28:56.000Z,10437,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,963 4812,v1.0,,"Roles & responsibilities All interesting insights on which to build. Another area that is opening up through these conversations starts to re-evaluate the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.  A number of threads of conversation touched on this issue of responsibility. @Alberto referenced the Amish refusal of health insurance on the grounds that it ‘de-responsibilises’ people. Conversation with Wendy Ball explored her recent intervention in a street fight and how ‘externalising responsibility’ for care creates dependency on state responses - turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.",/post/6462,2017-07-08T14:28:35.000Z,2017-07-08T14:28:35.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,80 11498,v1.0,,"All interesting insights on which to build. Another area that is opening up through these conversations starts to re-evaluate the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.  A number of threads of conversation touched on this issue of responsibility. @Alberto referenced the Amish refusal of health insurance on the grounds that it ‘de-responsibilises’ people. Conversation with Wendy Ball explored her recent intervention in a street fight and how ‘externalising responsibility’ for care creates dependency on state responses - turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.",/post/6462,2017-07-08T14:28:21.000Z,2017-07-08T14:28:21.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1860 7901,v1.0,,The fourth category connects with what Dougie Strang of Dark Mountain referred to during our chat as ‘deep encounters’ and this is something that I'm keen to explore further. How do we facilitate these kind of experiences? Might this be one mode of Simon's 'enculturation'?  (This might be worth a separate blog post...),/post/6462,2017-07-08T14:28:08.000Z,2017-07-08T14:28:08.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,963 7232,v1.0,,The fourth category connects with what Dougie Strang of Dark Mountain referred to during our chat as ‘deep encounters’ and this is something that I'm keen to explore further. How do we facilitate these kind of experiences? Might this be one mode of Simon's 'enculturation'?  (This might be worth a separate blog post...),/post/6462,2017-07-08T14:27:51.000Z,2017-07-08T14:27:51.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,785 6321,v1.0,,"Simon makes another interesting point - that these kind of skills are “not learned, [rather] picked up from living in a culture where they are norms, through a process you could call ‘enculturation’.”",/post/6462,2017-07-08T14:27:44.000Z,2017-07-08T14:27:44.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,452 9483,v1.0,,"Coming across @Alex_Levene's immense proposal Helping Refugees - the first category connects to one of the discussion points he outlines “Practices for developing cohesion and integration.” It strikes me that the notion of practices seems more useful than ‘good practice’, which appears prescriptive by comparison. Perhaps the idea that practices create the conditions for collective action, while good practice is an instrument of policy would be worth further discussion.",/post/6462,2017-07-08T14:27:29.000Z,2017-07-08T14:27:29.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1321 9558,v1.0,,"Coming across @Alex_Levene's immense proposal Helping Refugees - the first category connects to one of the discussion points he outlines “Practices for developing cohesion and integration.” It strikes me that the notion of practices seems more useful than ‘good practice’, which appears prescriptive by comparison. Perhaps the idea that practices create the conditions for collective action, while good practice is an instrument of policy would be worth further discussio",/post/6462,2017-07-08T14:27:20.000Z,2017-07-08T14:27:20.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1344 5870,v1.0,,"The skills, awarenesses, competences, knowledge and practices of individuals;",/post/6462,2017-07-08T14:27:06.000Z,2017-07-08T14:27:06.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,381 10326,v1.0,,"My early encounters with the Edgreryders platform, I’ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it’s at odds with standard linear project trajectories and ways of working. So perhaps I’m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.",/post/6462,2017-07-08T14:26:54.000Z,2017-07-08T14:26:54.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1516 10324,v1.0,,Experiences that create sense of self - being in relationship with others and the world - so beautifully captured in this quote from Abiba Birhane; “being happens in the space between the self and the world” in a link shared by @markomanka;,/post/6462,2017-07-08T14:26:47.000Z,2017-07-08T14:26:47.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1515 7839,v1.0,,"Mental and spiritual well being such as that fostered by @Bernard ""Creating situations for healthy experiences that facilitate collaborations”;",/post/6462,2017-07-08T14:26:32.000Z,2017-07-08T14:26:32.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,955 8589,v1.0,,"Mental and spiritual well being such as that fostered by @Bernard ""Creating situations for healthy experiences that facilitate collaborations”;",/post/6462,2017-07-08T14:26:21.000Z,2017-07-08T14:26:21.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1140 9799,v1.0,,"Network reciprocity, mutuality, shared values;",/post/6462,2017-07-08T14:25:39.000Z,2017-07-08T14:25:39.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1415 10375,v1.0,,"Network reciprocity, mutuality, shared values;",/post/6462,2017-07-08T14:25:30.000Z,2017-07-08T14:25:30.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1533 6138,v1.0,,Conversations over the first month have helped to refine the theme from how I’d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots care initiatives. They will help to define the ‘microclimates’ that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the more disbursed ecology of care called for in response to growing health needs.,/post/6462,2017-07-08T14:25:21.000Z,2017-07-08T14:25:21.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,434 5083,v1.0,,Conversations over the first month have helped to refine the theme from how I’d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots care initiatives. They will help to define the ‘microclimates’ that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the more disbursed ecology of care called for in response to growing health needs.,/post/6462,2017-07-08T14:25:16.000Z,2017-07-08T14:25:16.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,146 8879,v1.0,,Conversations over the first month have helped to refine the theme from how I’d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots care initiatives. They will help to define the ‘microclimates’ that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the more disbursed ecology of care called for in response to growing health needs.,/post/6462,2017-07-08T14:25:07.000Z,2017-07-08T14:25:07.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1187 9335,v1.0,,It’s unsettling and creates some vulnerability. But in being open to the confusion and discomfort - I sense I’m creating space for something new. This is my learning. I’m open to being challenged by as well as offering challenges to all I’m encountering - I guess this is a process of peer validation.,/post/6462,2017-07-08T14:24:52.000Z,2017-07-08T14:24:52.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1293 11403,v1.0,,It’s unsettling and creates some vulnerability. But in being open to the confusion and discomfort - I sense I’m creating space for something new. This is my learning. I’m open to being challenged by as well as offering challenges to all I’m encountering - I guess this is a process of peer validation.,/post/6462,2017-07-08T14:24:44.000Z,2017-07-08T14:24:44.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,1833 5954,v1.0,,"My early encounters with the Edgreryders platform, I’ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it’s at odds with standard linear project trajectories and ways of working. So perhaps I’m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.",/post/6462,2017-07-08T14:24:32.000Z,2017-07-08T14:24:32.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,393 4638,v1.0,,"My early encounters with the Edgreryders platform, I’ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it’s at odds with standard linear project trajectories and ways of working. So perhaps I’m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.",/post/6462,2017-07-08T14:24:23.000Z,2017-07-08T14:24:23.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,39 5871,v1.0,,"My early encounters with the Edgreryders platform, I’ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it’s at odds with standard linear project trajectories and ways of working. So perhaps I’m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.",/post/6462,2017-07-08T14:24:08.000Z,2017-07-08T14:24:08.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,382 7018,v1.0,,"My early encounters with the Edgreryders platform, I’ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it’s at odds with standard linear project trajectories and ways of working. So perhaps I’m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.",/post/6462,2017-07-08T14:24:00.000Z,2017-07-08T14:24:00.000Z,6462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6429,732 8764,v1.0,,"the migrant crisis as a training ground for the crisis of the future - this reads so compelling, thank you Michael for coining it!",/post/17141,2017-07-08T14:22:44.000Z,2017-07-08T14:22:44.000Z,17141,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1150 6244,v1.0,,"Under the Architectures theme it would be useful to explore - personal resilience, effective ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I'm not yet clear on this. Perhaps others have some useful perspectives? Your questions would also bring in the dimension of emergency - what does urgency bring to the lines of enquiry the Architectures theme have considered so far?",/post/14386,2017-07-08T14:21:47.000Z,2017-07-08T14:21:47.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,442 9482,v1.0,,"Under the Architectures theme it would be useful to explore - personal resilience, effective ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I'm not yet clear on this. Perhaps others have some useful perspectives? Your questions would also bring in the dimension of emergency - what does urgency bring to the lines of enquiry the Architectures theme have considered so far?",/post/14386,2017-07-08T14:21:37.000Z,2017-07-08T14:21:37.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1321 10058,v1.0,,"Under the Architectures theme it would be useful to explore - personal resilience, effective ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I'm not yet clear on this. Perhaps others have some useful perspectives? Your questions would also bring in the dimension of emergency - what does urgency bring to the lines of enquiry the Architectures theme have considered so far?",/post/14386,2017-07-08T14:21:28.000Z,2017-07-08T14:21:28.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1446 10495,v1.0,,"The questions you raise in both posts seem to fall in to a number of headings: training/upskilling, logistics/coordination, personal resilience. These issues are core to the central enquiry of OpenCare if we are to gather insights to shape a ""DIY welfare"" network and they resonate with other questions raised in other posts shared on the Edgeryders platform. I could see a useful session - drawing on what you've learned and co-enquiry around the questions you've outlined - making a meaningful contribution to the Open Village event in October. I can also see that it could sit well in either the Architectures of Love theme or the Working and Living Well Together curated by @Woodbinehealth. It's natural that there'll be overlap across all the themes of the festival. @Noemi - what are your thoughts on this?",/post/14386,2017-07-08T14:21:19.000Z,2017-07-08T14:21:19.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1557 10494,v1.0,,how can training be provided that meets unkown needs?,/post/6470,2017-07-08T14:21:11.000Z,2017-07-08T14:21:11.000Z,6470,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1557 8763,v1.0,,"Clearly you'll have amassed vital practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of 'Emergency Mutual Aid' and a very concrete practice of solidarity. I can see how it's useful to see ""the migrant crisis as a training ground for the crisis of the future"".",/post/14386,2017-07-08T14:21:04.000Z,2017-07-08T14:21:04.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1150 6243,v1.0,,"Clearly you'll have amassed vital practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of 'Emergency Mutual Aid' and a very concrete practice of solidarity. I can see how it's useful to see ""the migrant crisis as a training ground for the crisis of the future"".",/post/14386,2017-07-08T14:20:56.000Z,2017-07-08T14:20:56.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,442 10598,v1.0,,"Clearly you'll have amassed vital practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of 'Emergency Mutual Aid' and a very concrete practice of solidarity. I can see how it's useful to see ""the migrant crisis as a training ground for the crisis of the future"".",/post/14386,2017-07-08T14:20:50.000Z,2017-07-08T14:20:50.000Z,14386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1590 7428,v1.0,,"working with at talking to poeple about barriers. not being able to get the time off of work. not being allowed to take 4 weeks at once is very common. Even when they would be developing useful transferable skills. chronic embitterment within organisations that seem incohernent. this has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.",/post/6685,2017-07-08T14:20:34.000Z,2017-07-08T14:20:34.000Z,6685,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,846 8975,v1.0,,this has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.,/post/6685,2017-07-08T14:20:27.000Z,2017-07-08T14:20:27.000Z,6685,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1208 7329,v1.0,,chronic embitterment within organisations that seem incohernent.,/post/6685,2017-07-08T14:20:20.000Z,2017-07-08T14:20:20.000Z,6685,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,805 9481,v1.0,,"working with at talking to poeple about barriers. not being able to get the time off of work. not being allowed to take 4 weeks at once is very common. Even when they would be developing useful transferable skills. chronic embitterment within organisations that seem incohernent. this has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.",/post/6685,2017-07-08T14:20:08.000Z,2017-07-08T14:20:08.000Z,6685,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1321 10021,v1.0,,"how can gaps be filled more effectively? how can training be provided that meets unkown needs?  how do we prevent difficulty from becoming dispair?",/post/6470,2017-07-08T14:19:57.000Z,2017-07-08T14:19:57.000Z,6470,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1445 10020,v1.0,,"how do we repilcate skilling up? how do we deal with elite panic? ie large organisations in dissarray due to poor leadership. how do we get people to thrive in high stress enviroments?",/post/6470,2017-07-08T14:19:43.000Z,2017-07-08T14:19:43.000Z,6470,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1445 8762,v1.0,,I have been doing research through actions. Seeing the migrant crisis as a training ground for the crisis of the future. Working with a mobile footcare clinic and trying to extract the best practice as we moved through the small camps of italy and down to serbia. dealing with medical issues and truck logics,/post/6470,2017-07-08T14:19:26.000Z,2017-07-08T14:19:26.000Z,6470,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,1150 6967,v1.0,,"bottom up crisis management. Through the cold war we saw disaster situations managed through large scale civil defence. Even at the end of the cold war the mass migration that followed was handled with a military humanitarianism. With the rise of global austerity since 2008, civil defense with the care sector in general has been get eroded. Cuts to public services reduce there capacity to respond. overall the public respond well to disasters, but new formations of disaster management are not without complications.  how can gaps be filled more effectively? how can training be provided that meets unkown needs?  how do we prevent difficulty from becoming dispair? I have been doing research through actions. Seeing the migrant crisis as a training ground for the crisis of the future. Working with a mobile footcare clinic and trying to extract the best practice as we moved through the small camps of italy and down to serbia. dealing with medical issues and truck logics  how do we repilcate skilling up? how do we deal with elite panic? ie large organisations in dissarray due to poor leadership. how do we get people to thrive in high stress enviroments? most of us can think of times when we have risen to the challenge of tough situations. what are the emotions and logistics behind that happening?",/post/6470,2017-07-08T14:19:19.000Z,2017-07-08T14:19:19.000Z,6470,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,726 6242,v1.0,,"bottom up crisis management. Through the cold war we saw disaster situations managed through large scale civil defence. Even at the end of the cold war the mass migration that followed was handled with a military humanitarianism. With the rise of global austerity since 2008, civil defense with the care sector in general has been get eroded. Cuts to public services reduce there capacity to respond. overall the public respond well to disasters, but new formations of disaster management are not without complications.  how can gaps be filled more effectively? how can training be provided that meets unkown needs?  how do we prevent difficulty from becoming dispair? I have been doing research through actions. Seeing the migrant crisis as a training ground for the crisis of the future. Working with a mobile footcare clinic and trying to extract the best practice as we moved through the small camps of italy and down to serbia. dealing with medical issues and truck logics  how do we repilcate skilling up? how do we deal with elite panic? ie large organisations in dissarray due to poor leadership. how do we get people to thrive in high stress enviroments? most of us can think of times when we have risen to the challenge of tough situations. what are the emotions and logistics behind that happening?",/post/6470,2017-07-08T14:19:09.000Z,2017-07-08T14:19:09.000Z,6470,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6437,442 8588,v1.0,,"People whos lives have been battered by storms such as worklessness, depression or addiction work on demanding projects which require collaborative efforts. Some of the products are then sold through the social enterprise - their traditional wood longboats are widely recognised as the best on the market.",/post/6356,2017-06-28T15:00:22.000Z,2017-06-28T15:00:22.000Z,6356,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6323,1140 8414,v1.0,,"They run a large physical space consisting of a large carpentry workshop, metal working room, co-working stations for makers, and timber warehouse.",/post/6356,2017-06-28T15:00:14.000Z,2017-06-28T15:00:14.000Z,6356,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6323,1108 10541,v1.0,,"They run a large physical space consisting of a large carpentry workshop, metal working room, co-working stations for makers, and timber warehouse. People whos lives have been battered by storms such as worklessness, depression or addiction work on demanding projects which require collaborative efforts. Some of the products are then sold through the social enterprise - their traditional wood longboats are widely recognised as the best on the market.",/post/6356,2017-06-28T15:00:03.000Z,2017-06-28T15:00:03.000Z,6356,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6323,1572 11479,v1.0,,"A hoarder of bits of thinking and half formed disruptive thoughts with occasional bouts of fundamentalism about things that should be simple. Lives in Glasgow, Scotland where she co-founded the GalGael Trust , an organisation which provides learning experiences anchored in practical activities that offer purpose and meaning.",/post/6356,2017-06-28T14:59:54.000Z,2017-06-28T14:59:54.000Z,6356,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6323,1855 10597,v1.0,,"Gehan is the co-founder of the GalGael Trust, an organisation of social solidarity based in Glasgow, Scotland. Taking its roots from a communal protest camp against a planned motorway in the local area, the trust developed into a community building effort involving craft-making, rural event organising, boat building and timber work.",/post/6357,2017-06-28T14:58:51.000Z,2017-06-28T14:58:51.000Z,6357,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6324,1590 4684,v1.0,,"ehan Macleod proposes a session at OpenVillage to tackle an important question that goes beyond the field of preventative or wellness care by asking ""how do we understand the architectures of love that are called for to create a more care-full society",/post/6357,2017-06-28T14:58:41.000Z,2017-06-28T14:58:41.000Z,6357,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6324,59 7424,v1.0,,"There are two streams in Brussels that might be a better stream to investigate than the Seine:Maalbeek,and Woluwe as well as several ponds. There seems to be fishing opportunities in Brussels in Laeken: (lespecheurslaekenois.com/ind... ) and outside of Brussels in Wallonia (peche.tourisme.wallonie.be/p...). It might be good to partner with Michieles Fishing Center in Brussels and other organizations mentioned in angloinfo.com for more specific assistance finding bodies if water to investigate including water quality and fly fish.",/post/29539,2017-06-28T14:57:21.000Z,2017-06-28T14:57:21.000Z,29539,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,844 5431,v1.0,,"I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it. fly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that could help us with these activities. More activities is also possible to link to other schools through Zoom and Hangout.",/post/28454,2017-06-28T14:57:11.000Z,2017-06-28T14:57:11.000Z,28454,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,308 7160,v1.0,,"I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it. fly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that could help us with these activities. More activities is also possible to link to other schools through Zoom and Hangout.",/post/28454,2017-06-28T14:57:03.000Z,2017-06-28T14:57:03.000Z,28454,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,766 7423,v1.0,,"I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it. fly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that could help us with these activities. More activities is also possible to link to other schools through Zoom and Hangout.",/post/28454,2017-06-28T14:56:54.000Z,2017-06-28T14:56:54.000Z,28454,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,844 4870,v1.0,,"I think a demo session would be nice and can tie in with more educational content. Finding a school should be doable, if it's on a Friday. Weekends can work as well, then you could involve an NGO working with underprivileged groups. Practically, what more would be needed for such a demo @albertorey ? @NiekD will also share his personal take on education as care online soon. @Damiano also mentioned his interest in education and linking it with biohacking. When the discussion gets going, we can see how we shape a session (or several) from this. Meanwhile I have been in contact with people on water quality, a response is on its way.",/post/27447,2017-06-28T14:56:45.000Z,2017-06-28T14:56:45.000Z,27447,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,100 7159,v1.0,,"I think a demo session would be nice and can tie in with more educational content. Finding a school should be doable, if it's on a Friday. Weekends can work as well, then you could involve an NGO working with underprivileged groups. Practically, what more would be needed for such a demo @albertorey ? @NiekD will also share his personal take on education as care online soon. @Damiano also mentioned his interest in education and linking it with biohacking. When the discussion gets going, we can see how we shape a session (or several) from this. Meanwhile I have been in contact with people on water quality, a response is on its way.",/post/27447,2017-06-28T14:56:40.000Z,2017-06-28T14:56:40.000Z,27447,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,766 5021,v1.0,,and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).,/post/26938,2017-06-28T14:56:20.000Z,2017-06-28T14:56:20.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,135 4910,v1.0,,it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).,/post/26938,2017-06-28T14:56:13.000Z,2017-06-28T14:56:13.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,117 11237,v1.0,,http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).,/post/26938,2017-06-28T14:56:04.000Z,2017-06-28T14:56:04.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1772 9692,v1.0,,http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).,/post/26938,2017-06-28T14:55:58.000Z,2017-06-28T14:55:58.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1386 5498,v1.0,,"As I mentioned, we provide a three day conference here in the States called ""Children in the Stream Conference"" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to ""hook"" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young  age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/)",/post/26938,2017-06-28T14:55:52.000Z,2017-06-28T14:55:52.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,318 7158,v1.0,,"As I mentioned, we provide a three day conference here in the States called ""Children in the Stream Conference"" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to ""hook"" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young  age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).",/post/26938,2017-06-28T14:55:46.000Z,2017-06-28T14:55:46.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,766 7422,v1.0,,"As I mentioned, we provide a three day conference here in the States called ""Children in the Stream Conference"" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to ""hook"" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young  age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).",/post/26938,2017-06-28T14:55:29.000Z,2017-06-28T14:55:29.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,844 5430,v1.0,,"As I mentioned, we provide a three day conference here in the States called ""Children in the Stream Conference"" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to ""hook"" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young  age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).",/post/26938,2017-06-28T14:55:19.000Z,2017-06-28T14:55:19.000Z,26938,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,308 11520,v1.0,,@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through mobility ramps- not indoor though..).,/post/24832,2017-06-28T14:55:09.000Z,2017-06-28T14:55:09.000Z,24832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1862 7238,v1.0,,@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through mobility ramps- not indoor though..).,/post/24832,2017-06-28T14:55:01.000Z,2017-06-28T14:55:01.000Z,24832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,787 8797,v1.0,,"really like AdaptiveDesign because it's ongoing - whereas the RSA awarded ideas in initial stage. For #HackOnWheels I think the WeMake crowd in Milano could tell us if there is someone interested in making a connection with an opensource indoor wheelchair for disabled?  @silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through mobility ramps- not indoor though..). Or @Gehan do you have a connection already with Adaptive Design or RSA?",/post/24832,2017-06-28T14:54:28.000Z,2017-06-28T14:54:28.000Z,24832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1155 11467,v1.0,,"I really like AdaptiveDesign because it's ongoing - whereas the RSA awarded ideas in initial stage. For #HackOnWheels I think the WeMake crowd in Milano could tell us if there is someone interested in making a connection with an opensource indoor wheelchair for disabled?  @silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through mobility ramps- not indoor though..). Or @Gehan do you have a connection already with Adaptive Design or RSA?",/post/24832,2017-06-28T14:54:21.000Z,2017-06-28T14:54:21.000Z,24832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1849 7421,v1.0,,"Alberto: mentions flyfishing education inserted as an activity in an edu program in the US. Relevant for Damiano, Winnie, ... can be shared for OpenVillage?",/post/6372,2017-06-28T14:53:33.000Z,2017-06-28T14:53:33.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,844 11445,v1.0,,"Csengele: has seen educational events working with environment projects – participants working with water; trying to tell students that there is another option, how we shouldn’t stick to what we learn",/post/6372,2017-06-28T14:53:29.000Z,2017-06-28T14:53:29.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1843 5475,v1.0,,"Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.",/post/6372,2017-06-28T14:53:19.000Z,2017-06-28T14:53:19.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,316 6200,v1.0,,"Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.",/post/6372,2017-06-28T14:52:58.000Z,2017-06-28T14:52:58.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,439 7157,v1.0,,"Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.",/post/6372,2017-06-28T14:52:53.000Z,2017-06-28T14:52:53.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,766 5461,v1.0,,"Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.",/post/6372,2017-06-28T14:52:44.000Z,2017-06-28T14:52:44.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,312 5586,v1.0,,"-Discussion starting generally, and then what platform can become faircoop? PLATFORM AS A COMMON, community as a shareholder; hopefully it will be ready to launch!",/post/6372,2017-06-28T14:52:37.000Z,2017-06-28T14:52:37.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,345 9458,v1.0,,"-Discussion starting generally, and then what platform can become faircoop? PLATFORM AS A COMMON, community as a shareholder; hopefully it will be ready to launch!",/post/6372,2017-06-28T14:52:29.000Z,2017-06-28T14:52:29.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1315 7231,v1.0,,"Alberto: We are often preaching to the converted and need to reach to the groups we work for. Try to use aesthetics to seduce the viewer who might not be interested in social issues – to look at the project as an asthetic work, so they can make their own decisions.",/post/6372,2017-06-28T14:52:15.000Z,2017-06-28T14:52:15.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,784 5497,v1.0,,"Alberto: artist, videographer; uses stories and video installations to make complicated i.e. environmental issues more accessible to the public",/post/6372,2017-06-28T14:51:51.000Z,2017-06-28T14:51:51.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,318 4705,v1.0,,"Alberto: artist, videographer; uses stories and video installations to make complicated i.e. environmental issues more accessible to the public",/post/6372,2017-06-28T14:51:45.000Z,2017-06-28T14:51:45.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,60 4647,v1.0,,"-How Banks are working and whats the difference with ethical banks; -How can we build up communities? “I’m in a gap year”",/post/6372,2017-06-28T14:51:28.000Z,2017-06-28T14:51:28.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,42 8119,v1.0,,"Csengele: heard about OpenVillage from the Internet, isnt sure. Student at Waldorf school, ""I don’t work in health field. In the last year I organized an int’l youth conference for graduates"" – the topic was “how can we create a new world”? How can we see the system that we are now in, step out from highschools, and how to make a change?” -How Banks are working and whats the difference with ethical banks; -How can we build up communities? “I’m in a gap year”",/post/6372,2017-06-28T14:51:12.000Z,2017-06-28T14:51:12.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1026 11581,v1.0,,"Csengele: heard about OpenVillage from the Internet, isnt sure. Student at Waldorf school, ""I don’t work in health field. In the last year I organized an int’l youth conference for graduates"" – the topic was “how can we create a new world”? How can we see the system that we are now in, step out from highschools, and how to make a change?” -How Banks are working and whats the difference with ethical banks; -How can we build up communities? “I’m in a gap year”",/post/6372,2017-06-28T14:51:03.000Z,2017-06-28T14:51:03.000Z,6372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6339,1873 8658,v1.0,,"Microfluidics: building, next steps, gathering materials",/post/6373,2017-06-28T14:50:19.000Z,2017-06-28T14:50:19.000Z,6373,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1147 8657,v1.0,,Microfluidics,/post/7979,2017-06-28T14:50:12.000Z,2017-06-28T14:50:12.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1147 10467,v1.0,,"In order to continue, we really need to find people with more knowledge, have a better view of the possibilities. We can use the hackathon in Amsterdam for this. There will be many experts present, as well as the chips of Digi.bio. We can try to do some of the experiments we will do with the plasmids, on the chips. Designing or working on the chip itself however, is not the goal or something we have the right skills for.",/post/7979,2017-06-28T14:50:04.000Z,2017-06-28T14:50:04.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1556 8236,v1.0,,"In order to continue, we really need to find people with more knowledge, have a better view of the possibilities. We can use the hackathon in Amsterdam for this. There will be many experts present, as well as the chips of Digi.bio. We can try to do some of the experiments we will do with the plasmids, on the chips. Designing or working on the chip itself however, is not the goal or something we have the right skills for.",/post/7979,2017-06-28T14:49:57.000Z,2017-06-28T14:49:57.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1069 7700,v1.0,,Who wants to join us for the biohackathon? We can get 4-5 people together. You can reply in the thread here: https://edgeryders.eu/en/open-insulin-research-group/biohackathon-at-waag-society-8-9-july,/post/7979,2017-06-28T14:49:36.000Z,2017-06-28T14:49:36.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,918 4869,v1.0,,Who wants to join us for the biohackathon? We can get 4-5 people together. You can reply in the thread here: https://edgeryders.eu/en/open-insulin-research-group/biohackathon-at-waag-society-8-9-july,/post/7979,2017-06-28T14:49:31.000Z,2017-06-28T14:49:31.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,100 7570,v1.0,,"Card game idea for communication: the others were not present. Guido mentioned that the Diabetes Liga has a card game, worth checking out.",/post/7979,2017-06-28T14:49:24.000Z,2017-06-28T14:49:24.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,881 6899,v1.0,,"I have an update on the boardgame that we have at the Diabetes Liga, it just tackles two subjects, i.e food and excercise. So, a boardgame on diabetes could still be useful",/post/11649,2017-06-28T14:49:17.000Z,2017-06-28T14:49:17.000Z,11649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,704 7569,v1.0,,"I have an update on the boardgame that we have at the Diabetes Liga, it just tackles two subjects, i.e food and excercise. So, a boardgame on diabetes could still be useful",/post/11649,2017-06-28T14:49:13.000Z,2017-06-28T14:49:13.000Z,11649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,881 8660,v1.0,,Microfluidics,/post/7979,2017-06-28T14:49:01.000Z,2017-06-28T14:49:01.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1148 9432,v1.0,,"Road map / science Federica and Bram will put their heads together to come up with a road map for the science and lab work. Concrete milestones would make the plan better. A first step is already clear: replicating the Oakland work with the plasmids we receive. Although our work can be more useful on downstream processing, this way we gain experience, prove reproducibility and have a reference point for when we change the construct. After that, the roadmap and milestone should offer us some focus, as there are many options to test (different organisms, different linkers, microfluidics optimization, …) There are already plenty of papers on the Google Drive, thanks to the work of the teams in Oakland and Sydney.",/post/7979,2017-06-28T14:48:55.000Z,2017-06-28T14:48:55.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1309 4877,v1.0,,"Open Biolab has most things equipment/some consumables available to do the transformation, as well as storage. The option of getting an own -80°C freezer (Wim knows of one) is not ideal right now - high electricity use and it’s very big/heavy for just storing a few samples. It will be simpler to do it at a uni for now.",/post/7979,2017-06-28T14:48:30.000Z,2017-06-28T14:48:30.000Z,7979,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,101 8659,v1.0,,"Microfluidics: building, next steps, gathering materials",/post/6373,2017-06-28T14:48:14.000Z,2017-06-28T14:48:14.000Z,6373,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1148 9431,v1.0,,ab work planning for when the plasmids arrive,/post/6373,2017-06-28T14:48:03.000Z,2017-06-28T14:48:03.000Z,6373,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,1309 7534,v1.0,,"Rita made an overview of the requirements for starting the lab work, here. How do we put together the funds and who has materials to donate?",/post/6373,2017-06-28T14:47:53.000Z,2017-06-28T14:47:53.000Z,6373,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6340,876 10332,v1.0,,"An Arduino uno. A Ultrasonic sensor( HCSR04 ). A Mini breadboard. A 9 volt battery. A 9 volt battery connector. DC male power jack. A Buzzer. Some Jumper wire. An Broken cellphone from scratch. A Toggle switch. Other tools and parts used in this project :",/post/770,2017-06-28T10:13:24.000Z,2017-06-28T10:13:24.000Z,770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,737,1517 10333,v1.0,,"An Arduino uno. A Ultrasonic sensor( HCSR04 ). A Mini breadboard. A 9 volt battery. A 9 volt battery connector. DC male power jack. A Buzzer. Some Jumper wire. An Broken cellphone from scratch. A Toggle switch. Other tools and parts used in this project :",/post/770,2017-06-28T10:13:17.000Z,2017-06-28T10:13:17.000Z,770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,737,1518 8433,v1.0,,"Idea is about helping blind people about the outside world’s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API’s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)",/post/770,2017-06-28T10:13:01.000Z,2017-06-28T10:13:01.000Z,770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,737,1114 7649,v1.0,,"Idea is about helping blind people about the outside world’s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API’s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)",/post/770,2017-06-28T10:12:52.000Z,2017-06-28T10:12:52.000Z,770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,737,908 4886,v1.0,,"Idea is about helping blind people about the outside world’s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API’s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)",/post/770,2017-06-28T10:12:46.000Z,2017-06-28T10:12:46.000Z,770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,737,104 5869,v1.0,,I'd love to discuss those things with someone who has a little more care background than I do (materials science).,/post/9902,2017-06-28T10:11:48.000Z,2017-06-28T10:11:48.000Z,9902,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,381 5540,v1.0,,I'd love to discuss those things with someone who has a little more care background than I do (materials science).,/post/9902,2017-06-28T10:11:45.000Z,2017-06-28T10:11:45.000Z,9902,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,326 7924,v1.0,,"I & a friend have put some thought into care & self driving cars here (creative commons): https://cocreate.localmotors.com/RaMansell/healthy-movement/ I also have a couple of ideas regarding hygiene (shower mods), and had worked on a prototype of for electrical stimulation of muscle cells grown in a dish. I'd love to discuss those things with someone who has a little more care background than I do (materials science).",/post/9902,2017-06-28T10:11:04.000Z,2017-06-28T10:11:04.000Z,9902,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,974 10288,v1.0,,"I & a friend have put some thought into care & self driving cars here (creative commons): https://cocreate.localmotors.com/RaMansell/healthy-movement/ I also have a couple of ideas regarding hygiene (shower mods), and had worked on a prototype of for electrical stimulation of muscle cells grown in a dish. I'd love to discuss those things with someone who has a little more care background than I do (materials science).",/post/9902,2017-06-28T10:10:58.000Z,2017-06-28T10:10:58.000Z,9902,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,1502 5135,v1.0,,"Caregivers constitute the largest part of the workforce in health and care systems. At the same time, they are typically the ones with the least access to technological means and the necessary digital knowhow. Yet the very people who are performing the day to day work of caregiving have a wealth of real life experience and knowledge that can be used to generate innovative ideas and practical solutions for improving the tools and conditions for their work – and thus the results.",/post/773,2017-06-28T10:10:44.000Z,2017-06-28T10:10:44.000Z,773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,150 10493,v1.0,,"The Care FaLab provides the platform, tools and training with which to present new ideas and discuss them among the community, as well as the means to develop concepts for implementation and create prototypes. All of the information and content is freely available to the community and can be used by participants for their own projects.",/post/773,2017-06-28T10:10:28.000Z,2017-06-28T10:10:28.000Z,773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,1557 9457,v1.0,,The Care FabLab is an open community platform and mobile creative workshop in which the primary aim is the collaborative implementation of innovative ideas and projects for care through the use of digital fabrication methods. It is a network of creative caregivers and interested people with the common purpose of developing innovative solutions to improve daily patient care.,/post/773,2017-06-28T10:10:16.000Z,2017-06-28T10:10:16.000Z,773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,1315 8405,v1.0,,"The mobile FabLab including the innovation workshop can be booked for hospital clinics, nursing schools, symposia and conferences. Participants will be guided and supported through processes of brainstorming and conception, all the way through to the resulting production using 3D-printers and other relevant digital tools. In this way, in just one or two unforgettably creative days, innovative solutions for caregivers by caregivers can be developed and realized!  http://fablab.care/",/post/773,2017-06-28T10:10:00.000Z,2017-06-28T10:10:00.000Z,773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,1107 4511,v1.0,,"The mobile FabLab including the innovation workshop can be booked for hospital clinics, nursing schools, symposia and conferences. Participants will be guided and supported through processes of brainstorming and conception, all the way through to the resulting production using 3D-printers and other relevant digital tools. In this way, in just one or two unforgettably creative days, innovative solutions for caregivers by caregivers can be developed and realized!  http://fablab.care/",/post/773,2017-06-28T10:09:54.000Z,2017-06-28T10:09:54.000Z,773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,6 5126,v1.0,,"Caregivers constitute the largest part of the workforce in health and care systems. At the same time, they are typically the ones with the least access to technological means and the necessary digital knowhow. Yet the very people who are performing the day to day work of caregiving have a wealth of real life experience and knowledge that can be used to generate innovative ideas and practical solutions for improving the tools and conditions for their work – and thus the results.    The Care FabLab is an open community platform and mobile creative workshop in which the primary aim is the collaborative implementation of innovative ideas and projects for care through the use of digital fabrication methods. It is a network of creative caregivers and interested people with the common purpose of developing innovative solutions to improve daily patient care.   The Care FaLab provides the platform, tools and training with which to present new ideas and discuss them among the community, as well as the means to develop concepts for implementation and create prototypes. All of the information and content is freely available to the community and can be used by participants for their own projects.   On this platform, members can present their own ideas about projects, products or processes to improve care. Other members can then comment on those ideas to assess, augment or enhance them. Special virtual working groups can be created for interested members to join in order to work on particular projects. Based on these ideas, concepts can be developed and even implemented collectively. And it all takes place under the Creative Commons license (CC BY-SA 3.0) and is thus freely available for all!   The mobile FabLab including the innovation workshop can be booked for hospital clinics, nursing schools, symposia and conferences. Participants will be guided and supported through processes of brainstorming and conception, all the way through to the resulting production using 3D-printers and other relevant digital tools. In this way, in just one or two unforgettably creative days, innovative solutions for caregivers by caregivers can be developed and realized!  http://fablab.care/",/post/773,2017-06-28T10:09:50.000Z,2017-06-28T10:09:50.000Z,773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,740,149 4678,v1.0,,This skecth is from our brainstorm.,/post/777,2017-06-28T10:09:15.000Z,2017-06-28T10:09:15.000Z,777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,744,54 10146,v1.0,,"Alzheimer’s Wristband <3 Idea is about helping the families of the patients who have alzheimer's at last stage. We know that people who has alzheimer's has a bad habbit of running away of house or indoors to outdoors. Idea is about prototyping a Wristband with a LCD screen which gives the patient info about their home and family members basic infos. How they love him and want to see him now... At the same time the wristband will sent info about where the patient is,  what is his hearthbeat rates and how far did he goes via GPRS. We should tag the family with RFID so when they come close to the patient, Wristband recognise the family member and says calming infos and sentences to the patient in order to recognize them.",/post/777,2017-06-28T10:08:41.000Z,2017-06-28T10:08:41.000Z,777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,744,1464 4665,v1.0,,"This skecth is from our brainstorm.  What have been done? http://www.medicalert.org/product/catalog/medical-ids http://www.alz.org/core/alzheimers-dementia-wandering.asp http://www.alzheimers.net/2014-02-20/technology-changes-future-of-alzheimers/",/post/777,2017-06-28T10:08:28.000Z,2017-06-28T10:08:28.000Z,777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,744,48 6511,v1.0,,"PocketFinder  Receives GPS location data from multiple satellites. PocketFinder sends GPS location as frequently as every 2-minutes through cellular network. Cellular carrier sends encrypted data to PocketFinder servers. End-user logs in to account using smartphone, tablet, or computer. End-user can manage everything for PocketFinder using smartphone. When PocketFinder goes in or out of zone, Alert is sent to end-users via text, email, & push notification. Revolutionary Tracker http://www.revolutionarytracker.com/",/post/777,2017-06-28T10:08:02.000Z,2017-06-28T10:08:02.000Z,777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,744,485 7648,v1.0,,"PocketFinder  Receives GPS location data from multiple satellites. PocketFinder sends GPS location as frequently as every 2-minutes through cellular network. Cellular carrier sends encrypted data to PocketFinder servers. End-user logs in to account using smartphone, tablet, or computer. End-user can manage everything for PocketFinder using smartphone. When PocketFinder goes in or out of zone, Alert is sent to end-users via text, email, & push notification. Revolutionary Tracker http://www.revolutionarytracker.com/",/post/777,2017-06-28T10:07:54.000Z,2017-06-28T10:07:54.000Z,777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,744,908 11466,v1.0,,"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive….unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.",/post/779,2017-06-28T10:07:00.000Z,2017-06-28T10:07:00.000Z,779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,746,1849 6329,v1.0,,"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive….unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.",/post/779,2017-06-28T10:06:54.000Z,2017-06-28T10:06:54.000Z,779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,746,454 11217,v1.0,,"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive….unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.",/post/779,2017-06-28T10:06:49.000Z,2017-06-28T10:06:49.000Z,779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,746,1770 8432,v1.0,,"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive….unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped. So we need to figure out a soft mobility map which can help us demonstrate that you don't have to stay home or take your car to the gym to work out. You can get around in many ways and keep fit at the same time. We need navigation for soft mobility with possibility to set limitations waypoints of broad interest (not just googles shops, restaurants and gas stations) indications of feasibility on a user defined level (accessibility, interesting way, playgrounds, etc. Who's in?",/post/779,2017-06-28T10:06:42.000Z,2017-06-28T10:06:42.000Z,779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,746,1114 8796,v1.0,,"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive….unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped. So we need to figure out a soft mobility map which can help us demonstrate that you don't have to stay home or take your car to the gym to work out. You can get around in many ways and keep fit at the same time. We need navigation for soft mobility with possibility to set limitations waypoints of broad interest (not just googles shops, restaurants and gas stations) indications of feasibility on a user defined level (accessibility, interesting way, playgrounds, etc. Who's in?",/post/779,2017-06-28T10:06:36.000Z,2017-06-28T10:06:36.000Z,779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,746,1155 8157,v1.0,,"The problem that we are tackling with Brilliance is the fact that over six million babies requiring treatment for severe jaundice each year are not receiving the treatment they need. One of the main reasons for this is a lack of access to affordable devices that provide phototherapy, the standard treatment for severe jaundice. By introducing a low-cost, high-quality phototherapy device to the global market, we aim to increase the number of babies receiving treatment who otherwise would not have been treated effectively, and thereby, reduce the number of deaths and disabilities due to untreated severe jaundice.",/post/781,2017-06-28T10:05:58.000Z,2017-06-28T10:05:58.000Z,781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,748,1041 5426,v1.0,,"The problem that we are tackling with Brilliance is the fact that over six million babies requiring treatment for severe jaundice each year are not receiving the treatment they need. One of the main reasons for this is a lack of access to affordable devices that provide phototherapy, the standard treatment for severe jaundice. By introducing a low-cost, high-quality phototherapy device to the global market, we aim to increase the number of babies receiving treatment who otherwise would not have been treated effectively, and thereby, reduce the number of deaths and disabilities due to untreated severe jaundice.",/post/781,2017-06-28T10:05:53.000Z,2017-06-28T10:05:53.000Z,781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,748,307 5429,v1.0,,"The problem that we are tackling with Brilliance is the fact that over six million babies requiring treatment for severe jaundice each year are not receiving the treatment they need. One of the main reasons for this is a lack of access to affordable devices that provide phototherapy, the standard treatment for severe jaundice. By introducing a low-cost, high-quality phototherapy device to the global market, we aim to increase the number of babies receiving treatment who otherwise would not have been treated effectively, and thereby, reduce the number of deaths and disabilities due to untreated severe jaundice.",/post/781,2017-06-28T10:05:48.000Z,2017-06-28T10:05:48.000Z,781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,748,308 7777,v1.0,,"Health sensing through smartphones has received considerable attention in recent years because of the devices’ ubiquity and promise to lower the barrier for tracking medical conditions. In this paper, we focus on using smartphones to monitor newborn jaundice, which manifests as a yellow discoloration of the skin. Although a degree of jaundice is common in healthy newborns, early detection of extreme jaundice is essential to prevent permanent brain damage or death. Current detection techniques, however, require clinical tests with blood samples or other specialized equipment. Consequently, newborns often depend on visual assessments of their skin color at home, which is known to be unreliable. Sketch 1 - To explain the Idea",/post/781,2017-06-28T10:05:41.000Z,2017-06-28T10:05:41.000Z,781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,748,936 10522,v1.0,,"Health sensing through smartphones has received considerable attention in recent years because of the devices’ ubiquity and promise to lower the barrier for tracking medical conditions. In this paper, we focus on using smartphones to monitor newborn jaundice, which manifests as a yellow discoloration of the skin. Although a degree of jaundice is common in healthy newborns, early detection of extreme jaundice is essential to prevent permanent brain damage or death. Current detection techniques, however, require clinical tests with blood samples or other specialized equipment. Consequently, newborns often depend on visual assessments of their skin color at home, which is known to be unreliable. Sketch 1 - To explain the Idea",/post/781,2017-06-28T10:05:32.000Z,2017-06-28T10:05:32.000Z,781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,748,1565 4947,v1.0,,"We are very aware that people establish relationships and friendships offline with people who they have connected with on Twitter and that these relationships are often a great source of strength and support for people. Vanessa and Teresa Chinn, Founder of WeCommunities organised an unConference earlier in the year, through crowdfunding, which brought together 300 people from the community into a physical space to get together and to debate and discuss the future direction of social media in health care. We also provided a parallel online agenda throughout the day, so that the twitter community could still very much be part of it, even if they couldn’t physically attend. Vanessa and Mark from WeMHNurses and Mental Elf on Twitter are also in the process of setting up a Digital mental health conference service, which we are launching at #PDDigital16 later in November.",/post/551,2017-06-28T10:04:24.000Z,2017-06-28T10:04:24.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,123 6939,v1.0,,"As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter to talk abou",/post/551,2017-06-28T10:04:06.000Z,2017-06-28T10:04:06.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,720 8313,v1.0,,"As with everything there are always pros and cons. Some would say “there’s only so many characters on twitter” and mental health can be a very complex topic to discuss with limited characters, especially when people are talking about personal experience. On the other hand, it can help you be more focused and concise in what you are trying to say. I suppose using twitter",/post/551,2017-06-28T10:03:59.000Z,2017-06-28T10:03:59.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,1080 10389,v1.0,,"On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care.",/post/551,2017-06-28T10:02:55.000Z,2017-06-28T10:02:55.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,1537 11343,v1.0,,"the conversation. We enjoy working with people who have previously been in services or are currently in services because we really value the lived experience perspective. As we are an independent voice, we will also cover topics that might be considered controversial, political or critical, as we believe that these conversations are important in setting the future direction for mental health nursing. On reflection, we think that the liveliest and most informative chats are often where there is a real mixture of perspectives, including for example, clinicians, people accessing services, managers, leaders, academics, researchers and policy makers. The conversations that we have online are often very powerful for this reason as we can’t think of many examples from our own professional lives, where there has been such a variety of voices in a room to debate a topic in such a level and democratic way. An example of this is a chat that Vanessa and Mark ran with the Health Service Journal, where we discussed the reduction of inpatient mental health beds across the country. This chat was very much brought to life by people sharing their experiences of how this impacted on them personally when they needed to access inpatient care. The demographics for our chat sugges",/post/551,2017-06-28T10:02:24.000Z,2017-06-28T10:02:24.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,1813 9480,v1.0,,"bout facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on mental health nursing practice.",/post/551,2017-06-28T10:01:45.000Z,2017-06-28T10:01:45.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,1321 7360,v1.0,,"relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority.",/post/551,2017-06-28T10:01:30.000Z,2017-06-28T10:01:30.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,819 4568,v1.0,,"relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority.",/post/551,2017-06-28T10:01:25.000Z,2017-06-28T10:01:25.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,18 6425,v1.0,,"relating to mental health. The community also run sponsored chats for national bodies such as the Dept of Health, Care Quality Commission and NHS England. The WeMHNurses team see their role as being about facilitating broader conversation in a democratised digital space, where everyone can have a voice, regardless of positional authority. The team also see their role as being to make national policy more accessible, in terms of the language being used. The community also has a particular focus on discussing the everyday implications of policy on ment",/post/551,2017-06-28T10:01:15.000Z,2017-06-28T10:01:15.000Z,551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,518,479 4906,v1.0,,"@Michielstock has met with Noel Carrascal to help out with molecular modelling After the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with a broader goal in mind. At some point it may help the insulin research (or vice versa), but it is not the goal. The biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.",/post/31639,2017-06-28T09:53:09.000Z,2017-06-28T09:53:09.000Z,31639,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,116 10934,v1.0,,"@Michielstock has met with Noel Carrascal to help out with molecular modelling After the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with a broader goal in mind. At some point it may help the insulin research (or vice versa), but it is not the goal. The biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.",/post/31639,2017-06-28T09:53:03.000Z,2017-06-28T09:53:03.000Z,31639,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1689 8656,v1.0,,"@Michielstock has met with Noel Carrascal to help out with molecular modelling After the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with a broader goal in mind. At some point it may help the insulin research (or vice versa), but it is not the goal. The biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.",/post/31639,2017-06-28T09:52:57.000Z,2017-06-28T09:52:57.000Z,31639,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1147 4868,v1.0,,"@Michielstock has met with Noel Carrascal to help out with molecular modelling After the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with a broader goal in mind. At some point it may help the insulin research (or vice versa), but it is not the goal. The biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here",/post/31639,2017-06-28T09:52:52.000Z,2017-06-28T09:52:52.000Z,31639,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,100 8810,v1.0,,"@Michielstock has met with Noel Carrascal to help out with molecular modelling After the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with a broader goal in mind. At some point it may help the insulin research (or vice versa), but it is not the goal. The biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.",/post/31639,2017-06-28T09:52:47.000Z,2017-06-28T09:52:47.000Z,31639,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1160 8802,v1.0,,"@Michielstock has met with Noel Carrascal to help out with molecular modelling After the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with a broader goal in mind. At some point it may help the insulin research (or vice versa), but it is not the goal. The biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.",/post/31639,2017-06-28T09:52:43.000Z,2017-06-28T09:52:43.000Z,31639,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1157 9093,v1.0,,"Hi Guys & Girls So, I browsed through the files and checked the schematics for the openDrop. As far as I understand there are 3 important hardware parts to the opendrop. The hardware: The printed circuit board (PCB): I found a list of electronic components with prices and suppliers, I checked this list with the OpenDropperV2 schematics and everything seems to be there The carrier: there is also a carrier which is also a PCB without any components (Current status (WIP): I'm not sure what the function is of this part, I can't find it in the list of electronics and I can't find it on the pictures of the OpenDrop) The protective acrylic base plate with bolts, nuts: there is also an acrylic baseplate which needs to be lasercut, this protects the electronic components at the bottom of the openDrop. (Current status (WIP): I haven't found the correct measures of the bolts nor the base plate, yet) Now, the cost of all the hardware components is about €90 and includes the cutting and the etching of the PCB. With respect to the assembly of the openDropper, it has about 90 unique components to solder so it is going to be a lot of work to assemble this manually, the other option is to buy it assembled but I fear that is going to add about €200 to the pricetag (Maybe some advice of an electronics expert could come in handy here, @Michielstock maybe you could ask Francis' opinion). The software The OpenDropper uses an arduino shield as microcontroller and there is already code available on the github, so this is not an issue Remaining questions  What is the function of the carrier board?  What is the difference between OpenDropV2-ESP01 and ESP201?  Is it feasible to solder all the components manually? Dimensions and size of Protective base plate? I'm currently enjoying a 3 day holiday in den haag so my responses can be delayed. Bram out!",/post/31041,2017-06-28T09:52:24.000Z,2017-06-28T09:52:24.000Z,31041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1253 8655,v1.0,,"Hi Guys & Girls So, I browsed through the files and checked the schematics for the openDrop. As far as I understand there are 3 important hardware parts to the opendrop. The hardware: The printed circuit board (PCB): I found a list of electronic components with prices and suppliers, I checked this list with the OpenDropperV2 schematics and everything seems to be there The carrier: there is also a carrier which is also a PCB without any components (Current status (WIP): I'm not sure what the function is of this part, I can't find it in the list of electronics and I can't find it on the pictures of the OpenDrop) The protective acrylic base plate with bolts, nuts: there is also an acrylic baseplate which needs to be lasercut, this protects the electronic components at the bottom of the openDrop. (Current status (WIP): I haven't found the correct measures of the bolts nor the base plate, yet) Now, the cost of all the hardware components is about €90 and includes the cutting and the etching of the PCB. With respect to the assembly of the openDropper, it has about 90 unique components to solder so it is going to be a lot of work to assemble this manually, the other option is to buy it assembled but I fear that is going to add about €200 to the pricetag (Maybe some advice of an electronics expert could come in handy here, @Michielstock maybe you could ask Francis' opinion). The software The OpenDropper uses an arduino shield as microcontroller and there is already code available on the github, so this is not an issue Remaining questions  What is the function of the carrier board?  What is the difference between OpenDropV2-ESP01 and ESP201?  Is it feasible to solder all the components manually? Dimensions and size of Protective base plate? I'm currently enjoying a 3 day holiday in den haag so my responses can be delayed. Bram out!",/post/31041,2017-06-28T09:52:14.000Z,2017-06-28T09:52:14.000Z,31041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1147 7760,v1.0,,"So, I browsed through the files and checked the schematics for the openDrop. As far as I understand there are 3 important hardware parts to the opendrop. The hardware: The printed circuit board (PCB): I found a list of electronic components with prices and suppliers, I checked this list with the OpenDropperV2 schematics and everything seems to be there The carrier: there is also a carrier which is also a PCB without any components (Current status (WIP): I'm not sure what the function is of this part, I can't find it in the list of electronics and I can't find it on the pictures of the OpenDrop) The protective acrylic base plate with bolts, nuts: there is also an acrylic baseplate which needs to be lasercut, this protects the electronic components at the bottom of the openDrop. (Current status (WIP): I haven't found the correct measures of the bolts nor the base plate, yet) Now, the cost of all the hardware components is about €90 and includes the cutting and the etching of the PCB. With respect to the assembly of the openDropper, it has about 90 unique components to solder so it is going to be a lot of work to assemble this manually, the other option is to buy it assembled but I fear that is going to add about €200 to the pricetag (Maybe some advice of an electronics expert could come in handy here, @Michielstock maybe you could ask Francis' opinion). The software The OpenDropper uses an arduino shield as microcontroller and there is already code available on the github, so this is not an issue Remaining questions  What is the function of the carrier board?  What is the difference between OpenDropV2-ESP01 and ESP201?  Is it feasible to solder all the components manually? Dimensions and size of Protective base plate? I'm currently enjoying a 3 day holiday in den haag so my responses can be delayed. Bram out!",/post/31041,2017-06-28T09:52:07.000Z,2017-06-28T09:52:07.000Z,31041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,927 8654,v1.0,,"Apart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification (LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip. We could add a detection step or try to do a transformation, or do cloning.",/post/30405,2017-06-28T09:51:49.000Z,2017-06-28T09:51:49.000Z,30405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1147 7699,v1.0,,"Apart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification (LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip. We could add a detection step or try to do a transformation, or do cloning.",/post/30405,2017-06-28T09:51:38.000Z,2017-06-28T09:51:38.000Z,30405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,918 4867,v1.0,,"Apart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification (LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip. We could add a detection step or try to do a transformation, or do cloning.",/post/30405,2017-06-28T09:51:32.000Z,2017-06-28T09:51:32.000Z,30405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,100 4905,v1.0,,Is anyone up for doing one of these tasks?,/post/29392,2017-06-28T09:51:19.000Z,2017-06-28T09:51:19.000Z,29392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,116 5990,v1.0,,"Hi to you all, I saw one of Winnie's presentations where he mentioned the Open Insulin project. This seems a very interesting and important subject. I'm a PhD student in bioinformatics in food microbiology. I have been reading about insulin production in E coli and I will check this OpenDrop device because I'm not familiar with it. Regards, Rudy",/post/28264,2017-06-28T09:51:06.000Z,2017-06-28T09:51:06.000Z,28264,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,396 9092,v1.0,,"Hi to you all, I saw one of Winnie's presentations where he mentioned the Open Insulin project. This seems a very interesting and important subject. I'm a PhD student in bioinformatics in food microbiology. I have been reading about insulin production in E coli and I will check this OpenDrop device because I'm not familiar with it. Regards, Rudy",/post/28264,2017-06-28T09:51:00.000Z,2017-06-28T09:51:00.000Z,28264,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1253 7273,v1.0,,"Today I met with Michiel, Bram & two students of UGent who were interested in teaming up to develop this further. We think the first step is to build an existing device ourselves to familiarize with it: the OpenDrop of GaudiLabs (http://www.gaudi.ch/OpenDrop/). Asking around for a fablab to host us and then find a date in the coming weeks. Next up is trying to culture some E.coli on it and prepare for the Biohackathon in Waag (Amsterdam) on 7-8-9 July. Who else wants to join in for preps/experiments/biohackathon?",/post/20733,2017-06-28T09:50:47.000Z,2017-06-28T09:50:47.000Z,20733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,796 10933,v1.0,,"foreseeable future. The numbers explode too quickly.  That does not mean Open Insulin should not deploy digi.bio stuff. After all, it as much for the learning journey as it is for producing insulin. But you guys will still need to apply domain expertise to figure out which sequences are most promising, before testing.",/post/16210,2017-06-28T09:50:31.000Z,2017-06-28T09:50:31.000Z,16210,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1689 10932,v1.0,,"Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here (cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequences.",/post/6291,2017-06-28T09:50:23.000Z,2017-06-28T09:50:23.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1689 10128,v1.0,,"Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here (cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequences.",/post/6291,2017-06-28T09:50:19.000Z,2017-06-28T09:50:19.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1451 9091,v1.0,,"That does not mean Open Insulin should not deploy digi.bio stuff. After all, it as much for the learning journey as it is for producing insulin. But you guys will still need to apply domain expertise to figure out which sequences are most promising, before testing.",/post/16210,2017-06-28T09:50:11.000Z,2017-06-28T09:50:11.000Z,16210,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1253 6510,v1.0,,"I dug up some specs of the device (approximates) that Federico shared: Up to 20 liquids in- and output Run program to get a droplet from the liquid: 300nl-2µl depending on size of device Temperature goes from 4°C to 95°C, so you could run a PCR and anything in between (eg. cell incubation at 37°C) Magnet to do purification (unsure about this) They're planning to add fluorescence detection (months in the future) It should be possible to do everything on the chip: transformation, cloning, selection, screening, ... Also planning to add electroporation.",/post/6291,2017-06-28T09:49:48.000Z,2017-06-28T09:49:48.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,485 8118,v1.0,,"The optimization part is something that we could work on here in Belgium. Federico is based in China/Amsterdam, so he is around close enough to help us get started and betatest his chip. This would give a new dimension to replicating the work previously done by CCL, if we could test culturing the bacteria on the chips. If it works, it would even be pretty valuable step towards opening up biotech research in general.",/post/6291,2017-06-28T09:49:41.000Z,2017-06-28T09:49:41.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1026 9189,v1.0,,"The optimization part is something that we could work on here in Belgium. Federico is based in China/Amsterdam, so he is around close enough to help us get started and betatest his chip. This would give a new dimension to replicating the work previously done by CCL, if we could test culturing the bacteria on the chips. If it works, it would even be pretty valuable step towards opening up biotech research in general.",/post/6291,2017-06-28T09:49:35.000Z,2017-06-28T09:49:35.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1264 8653,v1.0,,"Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here (cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequence",/post/6291,2017-06-28T09:49:28.000Z,2017-06-28T09:49:28.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1147 9090,v1.0,,"There have been some ideas floating around on a new possible avenue of research for the Open Insulin project. Anthony and me got in touch with Federico from digi.bio, who are developing an open source microfluidic device. I only got to writing a summary of the conversation now. It boils down to this. There is someone in CCL planning to generate a bunch of genetic sequences that could be potentially interesting as linkers for bringing the insulin A and B chain together more effectively. Hopefully this would result in many viable options, that have to be tested in lab experiments. Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here (cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequences. The optimization part is something that we could work on here in Belgium. Federico is based in China/Amsterdam, so he is around close enough to help us get started and betatest his chip. This would give a new dimension to replicating the work previously done by CCL, if we could test culturing the bacteria on the chips. If it works, it would even be pretty valuable step towards opening up biotech research in general. This is getting more and more interesting... Any thoughts @ritavht | @stevenvv90 ? I dug up some specs of the device (approximates) that Federico shared: Up to 20 liquids in- and output Run program to get a droplet from the liquid: 300nl-2µl depending on size of device Temperature goes from 4°C to 95°C, so you could run a PCR and anything in between (eg. cell incubation at 37°C) Magnet to do purification (unsure about this) They're planning to add fluorescence detection (months in the future) It should be possible to do everything on the chip: transformation, cloning, selection, screening, ... Also planning to add electroporation.",/post/6291,2017-06-28T09:49:01.000Z,2017-06-28T09:49:01.000Z,6291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6258,1253 7156,v1.0,,"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.  I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these",/post/19695,2017-06-28T09:48:06.000Z,2017-06-28T09:48:06.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,766 10931,v1.0,,"I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?",/post/19695,2017-06-28T09:47:56.000Z,2017-06-28T09:47:56.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,1689 8312,v1.0,,"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.  I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts? https://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.",/post/19695,2017-06-28T09:42:16.000Z,2017-06-28T09:42:16.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,1080 10280,v1.0,,"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.  I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts? https://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink",/post/19695,2017-06-28T09:41:14.000Z,2017-06-28T09:41:14.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,1499 8587,v1.0,,"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better. How do we help people find the 'affliction' they have?",/post/16932,2017-06-28T09:41:00.000Z,2017-06-28T09:41:00.000Z,16932,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,1140 8586,v1.0,,"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.  I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts? https://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.",/post/19695,2017-06-28T09:40:43.000Z,2017-06-28T09:40:43.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,1140 5007,v1.0,,"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.  I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts? https://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.",/post/19695,2017-06-28T09:40:16.000Z,2017-06-28T09:40:16.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,130 7812,v1.0,,"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.  I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts? https://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.",/post/19695,2017-06-28T09:40:11.000Z,2017-06-28T09:40:11.000Z,19695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,950 6900,v1.0,,"of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better. How do we help people find the 'affliction' they have?",/post/16932,2017-06-28T09:40:03.000Z,2017-06-28T09:40:03.000Z,16932,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,705 4677,v1.0,,"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the",/post/16932,2017-06-28T09:39:50.000Z,2017-06-28T09:39:50.000Z,16932,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,54 6438,v1.0,,"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better. How do we help people find the 'affliction' they have?",/post/16932,2017-06-28T09:39:44.000Z,2017-06-28T09:39:44.000Z,16932,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,483 5006,v1.0,,"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better. How do we help people find the 'affliction' they have?",/post/16932,2017-06-28T09:39:37.000Z,2017-06-28T09:39:37.000Z,16932,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,130 11543,v1.0,,"ACTIVITIES TO BE CARRIED OUT BY THE PARTICIPANT Before Participants will receive a list of study material prior to their arrival for the seminar along with the links for the websites which are relevant to the content of the course. During The course will provide theory necessary to understand the nature of stress as well as practical tools for managing stress and difficult emotions. Attention will be given on how to implement the findings and skills in real life situations after the seminar. Methods such as debate, role play, body movement, individual mind management technologies, pair and group exercises and mini -coaching will be used throughout the course. The methodology of the course includes learner – centered approach and utilizes self-learning methods. The aim of the course is not to produce ready-made solutions (passive learning), but to inspire the participants to search creatively for knowledge and effective solutions which are connected with their needs and challenges (active learning). In this way the participants take responsibility for their own learning process and act as active partners of the course. After The participants will be encouraged to form a network in order to continue an exchange of ideas and support one another. Up to 6 months after completion of the workshop, the participants will have an opportunity to ask for advice (via email or Skype) if they face obstacles in using the new skills or if they have any questions or concerns.",/post/6293,2017-06-28T09:39:20.000Z,2017-06-28T09:39:20.000Z,6293,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,1865 7200,v1.0,,"Specific objectives of the course are:  Introduce holistic model of stress and raise understanding of stress causes, mechanisms and effects  Raise understanding of how stress impacts teaching ability  Provide the participants with practical tools for dealing with stress  Reduce the consequences of stress (such as poor health, absenteeism, lack of creativity, ineffective communication, inability to focus, more conflicts etc.) and develop healthy ways of dealing with everyday work demands  Prevent burn-out syndrome in educators  Enhance emotional self-awareness  Introduce practical tools for coping with difficult emotions  Improve the participants’ emotional balance  Help the participants to identify their stress triggers and emotional triggers at work context and come up with new, more resourceful strategies  Enhance in the participants the ability to relax  Broaden the understanding of health",/post/6293,2017-06-28T09:39:07.000Z,2017-06-28T09:39:07.000Z,6293,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,779 7838,v1.0,,"Specific objectives of the course are:  Introduce holistic model of stress and raise understanding of stress causes, mechanisms and effects",/post/6293,2017-06-28T09:38:46.000Z,2017-06-28T09:38:46.000Z,6293,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,955 5005,v1.0,,"Fortunately, there are many things you can do to minimize and cope with stress and learn how to avoid a burnou",/post/6293,2017-06-28T09:37:54.000Z,2017-06-28T09:37:54.000Z,6293,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6260,130 4637,v1.0,,"nice project! For what I see there are so many valuable initiatives around the world, the main issue is that there's lack of funding for them and the general overload of informations makes it very difficult to understand what is important and what is not. If we want to reach a profound change in this society we should aim to create new innovative form of credits that promote pluralities and radical new ideas while giving enough security to people that trace alternative paths. Sharing economy platforms could be used to power these activities because they unlocked a large number of resources that could be redirected towards projects thanks to a crowdaction. P.s. I will probably live for some weeks in the netherlands this summer, let me know if you want to meet!",/post/22115,2017-06-27T17:16:59.000Z,2017-06-27T17:16:59.000Z,22115,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,39 7548,v1.0,,"nice project! For what I see there are so many valuable initiatives around the world, the main issue is that there's lack of funding for them and the general overload of informations makes it very difficult to understand what is important and what is not. If we want to reach a profound change in this society we should aim to create new innovative form of credits that promote pluralities and radical new ideas while giving enough security to people that trace alternative paths. Sharing economy platforms could be used to power these activities because they unlocked a large number of resources that could be redirected towards projects thanks to a crowdaction. P.s. I will probably live for some weeks in the netherlands this summer, let me know if you want to meet!",/post/22115,2017-06-27T17:16:52.000Z,2017-06-27T17:16:52.000Z,22115,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,877 8878,v1.0,,"y @Damiano,  I like your questions and experiences with fairbnb. I've also been thinking about this topic and share some ideas and perspectives on http://creatingnewrealities.co/creating-new-realities/.  My perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I'd like to introduce this element of relationship into the equation for commons. I'm also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.  Another aspect that relates to this is the topic of access of ownership. Which is another way of relating. I'd like to experiment with this in the forms of networks and platforms. Curious how you feel!",/post/19865,2017-06-27T17:16:24.000Z,2017-06-27T17:16:24.000Z,19865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1187 9247,v1.0,,"Hey @Damiano,  I like your questions and experiences with fairbnb. I've also been thinking about this topic and share some ideas and perspectives on http://creatingnewrealities.co/creating-new-realities/.  My perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I'd like to introduce this element of relationship into the equation for commons. I'm also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.  Another aspect that relates to this is the topic of access of ownership. Which is another way of relating. I'd like to experiment with this in the forms of networks and platforms. Curious how you feel!",/post/19865,2017-06-27T17:16:16.000Z,2017-06-27T17:16:16.000Z,19865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1273 9660,v1.0,,"Hey @Damiano,  I like your questions and experiences with fairbnb. I've also been thinking about this topic and share some ideas and perspectives on http://creatingnewrealities.co/creating-new-realities/.  My perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I'd like to introduce this element of relationship into the equation for commons. I'm also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.  Another aspect that relates to this is the topic of access of ownership. Which is another way of relating. I'd like to experiment with this in the forms of networks and platforms. Curious how you feel!",/post/19865,2017-06-27T17:16:10.000Z,2017-06-27T17:16:10.000Z,19865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1375 7769,v1.0,,"Hello Albero, I think that opencare was meant as a broader topic, indeed for me, inequality is strongly related to health.  The wealth that gets drained, without taxation, by platforms could/should be used to power many initiatives that are related to social care. Also, the same giants that are in control of the dominating platforms are the one that we should fear more in the healthcare industry.  Calico, a company that will tackle aging, is owned by Google. In general, the Silicon Valleys' company are investing a lot in Biotechnology and Healthcare, and this is because they know that they can dominate this sector. We are in the Omics Era https://www.slideshare.net/swamihetal/omics-era, data are crucial and will lead in the coming 10/20 years to have personal medicine and gene therapy that could lead to an unprecedented extension of human lifespan.  Big tech companies are the ones that know better how to harness information from data, that's why they know that they are going to compete with hospitals and with nationals public health sectors. In general, I think it's important to analyze problem in a non-reductive way and that we should learn as much as possible on platforms' topics and counteract where we still can,  but it could be a good idea to have also focused on health related platforms and companies (e.g. 23&me that do private analysis on DNA etc.)",/post/18104,2017-06-27T17:15:58.000Z,2017-06-27T17:15:58.000Z,18104,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,934 8010,v1.0,,"Hello Albero, I think that opencare was meant as a broader topic, indeed for me, inequality is strongly related to health.  The wealth that gets drained, without taxation, by platforms could/should be used to power many initiatives that are related to social care. Also, the same giants that are in control of the dominating platforms are the one that we should fear more in the healthcare industry.  Calico, a company that will tackle aging, is owned by Google. In general, the Silicon Valleys' company are investing a lot in Biotechnology and Healthcare, and this is because they know that they can dominate this sector. We are in the Omics Era https://www.slideshare.net/swamihetal/omics-era, data are crucial and will lead in the coming 10/20 years to have personal medicine and gene therapy that could lead to an unprecedented extension of human lifespan.  Big tech companies are the ones that know better how to harness information from data, that's why they know that they are going to compete with hospitals and with nationals public health sectors. In general, I think it's important to analyze problem in a non-reductive way and that we should learn as much as possible on platforms' topics and counteract where we still can,  but it could be a good idea to have also focused on health related platforms and companies (e.g. 23&me that do private analysis on DNA etc.)",/post/18104,2017-06-27T17:15:41.000Z,2017-06-27T17:15:41.000Z,18104,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,997 4646,v1.0,,"In this comment https://edgeryders.eu/en/comment/27263#comment-27263 , I highlight a strategy for the activation of the platform. Basically, for and Airbnb-like platform is good to use this system because you don't have to maximize the benefit of the peer producers (as it should be for Uber for example). You can maximize the benefit for the society (for this reason fairbnb should be a common, not owned just by certain users e.g. hosts). There are many reasons why Airbnb fit and on why it should be the platform to target in order to attempt to change the digital economy. I have been thinking and studying a lot and I would love to write about it. I made some months ago the structure for a green paper call ""Overthrowing Power, one Platform at a Time"" https://docs.google.com/document/d/1aeZAdKdbF1N2hexDO8VMqlzN6XUofumpQW2KTAgHwPw/edit?usp=sharing . if someone is interested in developing this, it would be a pleasure to do it . Here there are some articles, that I found interesting, on platforms (related to the technical part and on growth hacking/critical mass in particular) https://workflowy.com/s/fRXqUUze22 We also did an Horizon2020 call (we didn't win) but is a huge work and I can share it if you want.",/post/11398,2017-06-27T17:15:24.000Z,2017-06-27T17:15:24.000Z,11398,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,42 9456,v1.0,,"In this comment https://edgeryders.eu/en/comment/27263#comment-27263 , I highlight a strategy for the activation of the platform. Basically, for and Airbnb-like platform is good to use this system because you don't have to maximize the benefit of the peer producers (as it should be for Uber for example). You can maximize the benefit for the society (for this reason fairbnb should be a common, not owned just by certain users e.g. hosts). There are many reasons why Airbnb fit and on why it should be the platform to target in order to attempt to change the digital economy. I have been thinking and studying a lot and I would love to write about it. I made some months ago the structure for a green paper call ""Overthrowing Power, one Platform at a Time"" https://docs.google.com/document/d/1aeZAdKdbF1N2hexDO8VMqlzN6XUofumpQW2KTAgHwPw/edit?usp=sharing . if someone is interested in developing this, it would be a pleasure to do it . Here there are some articles, that I found interesting, on platforms (related to the technical part and on growth hacking/critical mass in particular) https://workflowy.com/s/fRXqUUze22 We also did an Horizon2020 call (we didn't win) but is a huge work and I can share it if you want.",/post/11398,2017-06-27T17:15:09.000Z,2017-06-27T17:15:09.000Z,11398,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1315 5585,v1.0,,"How can we create non-extractive alternatives platforms that can compete with the existing one? Is it possible to create platforms that are ""commons""? Can we use the wealth unlocked by this technology to fund non-profit community projects? How can an organization be both efficient and competitive without losing in inclusiveness and openness?",/post/6300,2017-06-27T17:14:28.000Z,2017-06-27T17:14:28.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,345 4645,v1.0,,"In the last 5/10 years, our economy has been ""platformed."" The ""disruption"" didn't allow proper reflection and to take action to create the most desirable platforms for users. We have enough data on the externalities of this platforms and the extent of the impact on our economies, it's now possible to analyze what brought us here, the opportunity that we should investigate and the challenges that we need to face.",/post/6300,2017-06-27T17:14:18.000Z,2017-06-27T17:14:18.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,42 10573,v1.0,,"The digital economy produces enormous amounts of wealth that become profit (often non-taxed) for few billionaires. This money could be used to power the welfare state, nonprofit projects or a collaborative economy.",/post/6300,2017-06-27T17:12:16.000Z,2017-06-27T17:12:16.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1580 8009,v1.0,,"The digital economy produces enormous amounts of wealth that become profit (often non-taxed) for few billionaires. This money could be used to power the welfare state, nonprofit projects or a collaborative economy.",/post/6300,2017-06-27T17:11:49.000Z,2017-06-27T17:11:49.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,997 8993,v1.0,,Platform Cooperativism promotes shared ownership among users of the platform in order to create non-extractive alternatives to current platforms.,/post/6300,2017-06-27T17:11:42.000Z,2017-06-27T17:11:42.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1218 9012,v1.0,,"During the last six months, I have been attending almost all the event on Platform Cooperativism in Europe. Even tough is exciting what is happening, there isn't a model that reached a dimension that can be compared to any dominant platform, and some points are missing from the global discussion. Platform Cooperativism promotes shared ownership among users of the platform in order to create non-extractive alternatives to current platforms.",/post/6300,2017-06-27T17:11:31.000Z,2017-06-27T17:11:31.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1226 6028,v1.0,,"During the last six months, I have been attending almost all the event on Platform Cooperativism in Europe. Even tough is exciting what is happening, there isn't a model that reached a dimension that can be compared to any dominant platform, and some points are missing from the global discussion.",/post/6300,2017-06-27T17:11:24.000Z,2017-06-27T17:11:24.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,413 9455,v1.0,,"would like to propose a discussion panel for the OpenVillage Festival 2017. During the last six months, I have been attending almost all the event on Platform Cooperativism in Europe. Even tough is exciting what is happening, there isn't a model that reached a dimension that can be compared to any dominant platform, and some points are missing from the global discussion. Platform Cooperativism promotes shared ownership among users of the platform in order to create non-extractive alternatives to current platforms. The digital economy produces enormous amounts of wealth that become profit (often non-taxed) for few billionaires. This money could be used to power the welfare state, nonprofit projects or a collaborative economy. In the last 5/10 years, our economy has been ""platformed."" The ""disruption"" didn't allow proper reflection and to take action to create the most desirable platforms for users. We have enough data on the externalities of this platforms and the extent of the impact on our economies, it's now possible to analyze what brought us here, the opportunity that we should investigate and the challenges that we need to face. Being part of the Fairbnb project helped me to focus on important questions related to the digital economy. How can we create non-extractive alternatives platforms that can compete with the existing one? Is it possible to create platforms that are ""commons""? Can we use the wealth unlocked by this technology to fund non-profit community projects? How can an organization be both efficient and competitive without losing in inclusiveness and openness? To answer this questions, there are many guests that it would be useful to invite: Internet of ownership: The Internet of Ownership is a resource for the emerging online democratic economy. Its purpose is to advance platform cooperativism—a vision for online platforms that share democratic ownership and governance among the people who rely on them, especially those who contribute their labor and personal data. Guest: Nathan Schneider Fairmondo: Fairmondo wants to create a scalable fair ecommerce platform and is one of the pioneering platform cooperatives with an innovative redistribution scheme that honors unpaid contributions. Guest: Felix Weth Ecosia: Is a search engine that plants trees with the value that you generate through your digital actions Guest: Christian Kroll Faircoop: Fair.coop is an open global cooperative, self-organized via the Internet and remaining outside nation-state control. Its aim is to make the transition to a new world by reducing the economic and social inequalities among human beings as much as possible, and at the same time gradually contribute to a new global wealth, accessible to all humankind as commons. Guest: Enric Duran Platform Design Toolkit: Is a set of open-source tools to design digital and non-digital platforms with ease. Guest: Simone Cicero Other Guests: Sangeet Paul Choudary is a platform strategist, probably one of the most skilled person on this planet in understanding platform Of course, other founders of Fairbnb could join the discussion and hopefully we could launch the platform during the event. With this broad variety of guests, we will have enough competencies to generate a debate that could be fascinating and could help to further the global discussion on those important thematics.",/post/6300,2017-06-27T17:11:06.000Z,2017-06-27T17:11:06.000Z,6300,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6267,1315 11542,v1.0,,"I see your point - the different (concrete and meta) levels for going about a session on care depend a lot on where participants come from. I think they are both valuable and there is a lot of flexibility in the format - from project demos to open conversations, to actual explorative/work sessions. 1) the more concrete and detailed ones would definitely benefit from curation to ask questions above the project's worthy achievements.   2) the more meta and patterns discussions could use curation to get to a solid framing where others could plug in. A very useful example from a past event is a session which was prepared ahead like a collection of viewpoints on how communities organise around and steward material assets - people would be reporting from their own experiences, but coordinated ahead so that the facilitator could see how they fit into each other. There is documentation from it.",/post/17635,2017-06-27T17:09:45.000Z,2017-06-27T17:09:45.000Z,17635,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1865 11541,v1.0,,All seem necessary. In your experience of running these events in the past - is there a useful way to work on multiple levels - perhaps reflecting them in the programming but also how the event/learning/outcomes are captured?,/post/15609,2017-06-27T17:09:03.000Z,2017-06-27T17:09:03.000Z,15609,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1865 10743,v1.0,,"An American-Egyptian, into educational partnerships on the edge and data analytics for evaluation. Helps run a mental health support programme for students, as he is enrolled himself at the online Minerva university in Buenos Aires, in a 4 years program where the first six months are in Argentina, then one gets to move in seven different countries, from US all the way to Europe and Asia.",/post/6360,2017-06-27T17:08:45.000Z,2017-06-27T17:08:45.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1636 8585,v1.0,,"An American-Egyptian, into educational partnerships on the edge and data analytics for evaluation. Helps run a mental health support programme for students, as he is enrolled himself at the online Minerva university in Buenos Aires, in a 4 years program where the first six months are in Argentina, then one gets to move in seven different countries, from US all the way to Europe and Asia",/post/6360,2017-06-27T17:08:38.000Z,2017-06-27T17:08:38.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1140 7658,v1.0,,"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe. For OpenVillage session(s) “for me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels”",/post/6360,2017-06-27T17:08:22.000Z,2017-06-27T17:08:22.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,910 5844,v1.0,,"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe. For OpenVillage session(s) “for me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels”",/post/6360,2017-06-27T17:08:15.000Z,2017-06-27T17:08:15.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,377 8761,v1.0,,"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe. For OpenVillage session(s) “for me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels”",/post/6360,2017-06-27T17:08:05.000Z,2017-06-27T17:08:05.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1150 9822,v1.0,,"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe. For OpenVillage session(s) “for me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels”",/post/6360,2017-06-27T17:07:59.000Z,2017-06-27T17:07:59.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1424 4876,v1.0,,"Bio lab and bio space. Open to public. Developing Educational non-profit in the community to push science education to under resourced groups. Helping researchers and orgs to communicate better with each other and public. Generally interested in sustainable models for running a physical community space. For OpenVillage he is curating and looking for people to introduce projects on citizen science and open science, starting with the OpenInsulin global team which he is coordinating in Europe.",/post/6360,2017-06-27T17:07:39.000Z,2017-06-27T17:07:39.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,101 5460,v1.0,,"Bio lab and bio space. Open to public. Developing Educational non-profit in the community to push science education to under resourced groups. Helping researchers and orgs to communicate better with each other and public. Generally interested in sustainable models for running a physical community space. For OpenVillage he is curating and looking for people to introduce projects on citizen science and open science, starting with the OpenInsulin global team which he is coordinating in Europe.",/post/6360,2017-06-27T17:07:32.000Z,2017-06-27T17:07:32.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,312 4866,v1.0,,"Bio lab and bio space. Open to public. Developing Educational non-profit in the community to push science education to under resourced groups. Helping researchers and orgs to communicate better with each other and public. Generally interested in sustainable models for running a physical community space. For OpenVillage he is curating and looking for people to introduce projects on citizen science and open science, starting with the OpenInsulin global team which he is coordinating in Eur",/post/6360,2017-06-27T17:07:23.000Z,2017-06-27T17:07:23.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,100 4580,v1.0,,"An acupuncture practitioner; holistic fitness and practices of working with the body, relaxation and breath work, Tai Chi, Hichibuku.. and others. Started his own clinic initially around Dartmoor in SouthWest of England, but will have a new one up and running in the summer as he’s moving to Bridport. Also shows how it can be useful for people with mental health At #OpenVillage wants to do more than a presentation, a demo: actually treat someone and demonstrate how healthcare can work in its more traditional model - more attention to human care. Alex: “I'd love to see you run the space for people in the morning and then perhaps in th afternoon do a presentation about the process. That way you will have people in the room who have also experienced it”. Also, walk the talk - make sure onsite there’s a little space built in for people to take care of themselves. Alex: I'd like to see if we could set up something like this: https://harrygiles.org/portfolio/chill-out-corner/",/post/6360,2017-06-27T17:06:54.000Z,2017-06-27T17:06:54.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,21 4480,v1.0,,"Designer nurse and community growing, a BA in business enterprise and community development, volunteers in a school garden. Outdoor classrooms. Making rural areas more part of the community. Coliving, co working and retreat, mixing mental health, art therapy, yoga/movement and ecology. Beginning to step into Open Source. In last weeks they did a project where they went to visit Cregg Castle (unused): framed as unMonastery, a co-living and coworking retreat over a short period, through the European Capital of Culture 2020 which Galway won. “My problem is I do too many things” At #OpenVillage he doesn’t know what he is able to host, as he’s just out of running an event locally. Most relevant is unMonastery.",/post/6360,2017-06-27T17:06:46.000Z,2017-06-27T17:06:46.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,3 10183,v1.0,,"Designer nurse and community growing, a BA in business enterprise and community development, volunteers in a school garden. Outdoor classrooms. Making rural areas more part of the community. Coliving, co working and retreat, mixing mental health, art therapy, yoga/movement and ecology. Beginning to step into Open Source. In last weeks they did a project where they went to visit Cregg Castle (unused): framed as unMonastery, a co-living and coworking retreat over a short period, through the European Capital of Culture 2020 which Galway won. “My problem is I do too many things” At #OpenVillage he doesn’t know what he is able to host, as he’s just out of running an event locally. Most relevant is unMonastery.",/post/6360,2017-06-27T17:06:38.000Z,2017-06-27T17:06:38.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1480 11450,v1.0,,"hasn’t been able to provide” Based outside of Buffalo in NYC, artist, professor, flyfishing guide. Water and communities through arts projects. Worked in Kathmandu looking at the story of a river as one of the holiest bodies in Nepal. Pollution and importance. How do they come together. At OpenVillage hopes to forge links to build similar services to other groups. Making complicated issues more accessible. Bringing the stories and projects together and building a network of interest and potential clients for the same work - through exhibitions, publications, videos, documentaries. At #OpenVillage he’s interested to host a panel session on clean water, where invited experts speak and then open it to new people; problem is many are in Kathmandu and harder to get them to Brussels. Winnie: “there's an active subscene in DIYbio working on water quality. diy analysis methods, open source hardware. Will look up contacts in Lausanne, Switzerland”",/post/6360,2017-06-27T17:06:27.000Z,2017-06-27T17:06:27.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1845 5737,v1.0,,"Designer nurse and community growing, a BA in business enterprise and community development, volunteers in a school garden. Outdoor classrooms. Making rural areas more part of the community. Coliving, co working and retreat, mixing mental health, art therapy, yoga/movement and ecology. Beginning to step into Open Source. In last weeks they did a project where they went to visit Cregg Castle (unused): framed as unMonastery, a co-living and coworking retreat over a short period, through the European Capital of Culture 2020 which Galway won. “My problem is I do too many things” At #OpenVillage he doesn’t know what he is able to host, as he’s just out of running an event locally. Most relevant is unMonastery.",/post/6360,2017-06-27T17:00:18.000Z,2017-06-27T17:00:18.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,363 11444,v1.0,,"hasn’t been able to provide” Based outside of Buffalo in NYC, artist, professor, flyfishing guide. Water and communities through arts projects. Worked in Kathmandu looking at the story of a river as one of the holiest bodies in Nepal. Pollution and importance. How do they come together. At OpenVillage hopes to forge links to build similar services to other groups. Making complicated issues more accessible. Bringing the stories and projects together and building a network of interest and potential clients for the same work - through exhibitions, publications, videos, documentaries. At #OpenVillage he’s interested to host a panel session on clean water, where invited experts speak and then open it to new people; problem is many are in Kathmandu and harder to get them to Brussels. Winnie: “there's an active subscene in DIYbio working on water quality. diy analysis methods, open source hardware. Will look up contacts in Lausanne, Switzerland”",/post/6360,2017-06-27T17:00:00.000Z,2017-06-27T17:00:00.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,1843 5496,v1.0,,"Based outside of Buffalo in NYC, artist, professor, flyfishing guide. Water and communities through arts projects. Worked in Kathmandu looking at the story of a river as one of the holiest bodies in Nepal. Pollution and importance. How do they come together. At OpenVillage hopes to forge links to build similar services to other groups. Making complicated issues more accessible. Bringing the stories and projects together and building a network of interest and potential clients for the same work - through exhibitions, publications, videos, documentaries. At #OpenVillage he’s interested to host a panel session on clean water, where invited experts speak and then open it to new people; problem is many are in Kathmandu and harder to get them to Brussels. Winnie: “there's an active subscene in DIYbio working on water quality. diy analysis methods, open source hardware. Will look up contacts in Lausanne, Switzerland”",/post/6360,2017-06-27T16:59:49.000Z,2017-06-27T16:59:49.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,318 5514,v1.0,,"Doing cohousing and interested in technical ideas; experienced in governance and also how to deal with community care and self care within communities. Lives in a setup with 41 households, an ecological house. Member of a tech cooperative doing learning technology; technical standardization; experience in consensus governance. Cohousing is less intense than a commune: interested in governance and wellbeing side of that, various aspects of therapy. At #OpenVillage: for a session what I would need is an conversation with other people, to talk it through. Winnie: The Reef is already being prototyped in Brussels, talk to @Nadia &co. There's maybe already some questions that have turned up that you could shed some light on, Simon?",/post/6360,2017-06-27T16:58:20.000Z,2017-06-27T16:58:20.000Z,6360,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6327,323 5771,v1.0,,The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.,/post/855,2017-06-27T16:54:39.000Z,2017-06-27T16:54:39.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,376 5843,v1.0,,The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.,/post/855,2017-06-27T16:54:05.000Z,2017-06-27T16:54:05.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,377 11497,v1.0,,"Capacity building through provision of trainings and inputs for sustainable development of the flood effected people. To establish local governance through local economic development and implementation of project in partnership with local government stakeholders and village-based institutions.",/post/855,2017-06-27T16:53:48.000Z,2017-06-27T16:53:48.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1860 11486,v1.0,,To establish local governance through local economic development and implementation of project in partnership with local government stakeholders and village-based institutions.,/post/855,2017-06-27T16:53:28.000Z,2017-06-27T16:53:28.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1859 11511,v1.0,,To establish local governance through local economic development and implementation of project in partnership with local government stakeholders and village-based institutions.,/post/855,2017-06-27T16:53:14.000Z,2017-06-27T16:53:14.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1861 7764,v1.0,,To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.,/post/855,2017-06-27T16:53:00.000Z,2017-06-27T16:53:00.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,931 4950,v1.0,,To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.,/post/855,2017-06-27T16:52:28.000Z,2017-06-27T16:52:28.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,125 10182,v1.0,,To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.,/post/855,2017-06-27T16:51:58.000Z,2017-06-27T16:51:58.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1480 7577,v1.0,,"Improvement of livelihood through sustainable agricultural  practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan.",/post/855,2017-06-27T16:51:50.000Z,2017-06-27T16:51:50.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,883 4616,v1.0,,"In order to reduce the suffering of people from diseases and hunger, a program was developed to promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled ‘Rapid Livelihoods Rebuilding via Agriculture & Health based Livelihood initiatives’ (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to reconstruct livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by flooding.",/post/855,2017-06-27T16:51:40.000Z,2017-06-27T16:51:40.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,32 6966,v1.0,,"In 2010 Pakistan was subjected to overwhelming floods which wreaked havoc in the country. More than 20 million people and over 650,000 houses were at the receiving end of this destruction as per Pakistan’s National Disaster Management Authority (NDMA) report. The province of Punjab was greatly affected, the district of Layyah, in Southern Punjabin particular. Rivers of this region overflowed due to the enormous downpour and 15 union councils (UCs) of Layyah were devastated.  In order to reduce the suffering of people from diseases and hunger, a program was developed to promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled ‘Rapid Livelihoods Rebuilding via Agriculture & Health based Livelihood initiatives’ (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to reconstruct livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by flooding. OBJECTIVES  Improvement of livelihood through sustainable agricultural  practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan. To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region. Capacity building through provision of trainings and inputs for sustainable development of the flood effected people. To establish local governance through local economic development and implementation of project in partnership with local government stakeholders and village-based institutions. Project implementaion and stratigies   Recruitment of staff   Selection of target area   Baseline survey   Orientation & coordination meeting with stakeholders   Formation of community based organizations (CBOs)   Capacity building of CBOs    Beneficiaries’ identification with the help of CBOs    Demo plots establishment    Technical skill enhancement of beneficiaries in kitchen gardening and fodder     Agricultural inputs’ distribution     Health services and provision of medicines      Evaluation of project     Continuous follow up.     Continuous monitoring of project Project Targets 40 CBOs 40 Demo plots 10 Rural helath centers  20 persons were trained in emergencies handling and care 10 First aid voulnteers were trained on each localities  1400 Persons trained (700 beneficiaries trained in kitchen gardening (70% females) & 700 beneficiaries trained in fodder/vegetable plots) Distribution of 700 seeds and 700 tool-kits  Progress Summary  The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation. Although we have started this project in July 2012 with limited team but we have achieved majority targets of project in the short period of time that  not only show the better planning of project but showed the excellent participation of CBOs and community also. Cntribution is needed now more than ever to ensure livelihood of the farmers with  Program continues to serve those in most need. ( Farmers expections)",/post/855,2017-06-27T16:51:23.000Z,2017-06-27T16:51:23.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,726 8883,v1.0,,"In 2010 Pakistan was subjected to overwhelming floods which wreaked havoc in the country. More than 20 million people and over 650,000 houses were at the receiving end of this destruction as per Pakistan’s National Disaster Management Authority (NDMA) report. The province of Punjab was greatly affected, the district of Layyah, in Southern Punjabin particular. Rivers of this region overflowed due to the enormous downpour and 15 union councils (UCs) of Layyah were devastated.  In order to reduce the suffering of people from diseases and hunger, a program was developed to promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled ‘Rapid Livelihoods Rebuilding via Agriculture & Health based Livelihood initiatives’ (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to reconstruct livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by flooding. OBJECTIVES  Improvement of livelihood through sustainable agricultural  practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan. To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region. Capacity building through provision of trainings and inputs for sustainable development of the flood effected people. To establish local governance through local economic development and implementation of project in partnership with local government stakeholders and village-based institutions. Project implementaion and stratigies   Recruitment of staff   Selection of target area   Baseline survey   Orientation & coordination meeting with stakeholders   Formation of community based organizations (CBOs)   Capacity building of CBOs    Beneficiaries’ identification with the help of CBOs    Demo plots establishment    Technical skill enhancement of beneficiaries in kitchen gardening and fodder     Agricultural inputs’ distribution     Health services and provision of medicines      Evaluation of project     Continuous follow up.     Continuous monitoring of project Project Targets 40 CBOs 40 Demo plots 10 Rural helath centers  20 persons were trained in emergencies handling and care 10 First aid voulnteers were trained on each localities  1400 Persons trained (700 beneficiaries trained in kitchen gardening (70% females) & 700 beneficiaries trained in fodder/vegetable plots) Distribution of 700 seeds and 700 tool-kits  Progress Summary  The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation. Although we have started this project in July 2012 with limited team but we have achieved majority targets of project in the short period of time that  not only show the better planning of project but showed the excellent participation of CBOs and community also. Cntribution is needed now more than ever to ensure livelihood of the farmers with  Program continues to serve those in most need. ( Farmers expections)",/post/855,2017-06-27T16:51:10.000Z,2017-06-27T16:51:10.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1188 7431,v1.0,,"In 2010 Pakistan was subjected to overwhelming floods which wreaked havoc in the country. More than 20 million people and over 650,000 houses were at the receiving end of this destruction as per Pakistan’s National Disaster Management Authority (NDMA) report. The province of Punjab was greatly affected, the district of Layyah, in Southern Punjabin particular. Rivers of this region overflowed due to the enormous downpour and 15 union councils (UCs) of Layyah were devastated.  In order to reduce the suffering of people from diseases and hunger, a program was developed to promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled ‘Rapid Livelihoods Rebuilding via Agriculture & Health based Livelihood initiatives’ (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to reconstruct livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by flooding. OBJECTIVES  Improvement of livelihood through sustainable agricultural  practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan. To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region. Capacity building through provision of trainings and inputs for sustainable development of the flood effected people. To establish local governance through local economic development and implementation of project in partnership with local government stakeholders and village-based institutions. Project implementaion and stratigies   Recruitment of staff   Selection of target area   Baseline survey   Orientation & coordination meeting with stakeholders   Formation of community based organizations (CBOs)   Capacity building of CBOs    Beneficiaries’ identification with the help of CBOs    Demo plots establishment    Technical skill enhancement of beneficiaries in kitchen gardening and fodder     Agricultural inputs’ distribution     Health services and provision of medicines      Evaluation of project     Continuous follow up.     Continuous monitoring of project Project Targets 40 CBOs 40 Demo plots 10 Rural helath centers  20 persons were trained in emergencies handling and care 10 First aid voulnteers were trained on each localities  1400 Persons trained (700 beneficiaries trained in kitchen gardening (70% females) & 700 beneficiaries trained in fodder/vegetable plots) Distribution of 700 seeds and 700 tool-kits  Progress Summary  The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation. Although we have started this project in July 2012 with limited team but we have achieved majority targets of project in the short period of time that  not only show the better planning of project but showed the excellent participation of CBOs and community also. Cntribution is needed now more than ever to ensure livelihood of the farmers with  Program continues to serve those in most need. ( Farmers expections)",/post/855,2017-06-27T16:51:00.000Z,2017-06-27T16:51:00.000Z,855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,848 7470,v1.0,,"Food Security for All ....... 1- Training  2- Capacity Building  3- Open Discussion",/post/6369,2017-06-27T16:48:41.000Z,2017-06-27T16:48:41.000Z,6369,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6336,856 10492,v1.0,,"I look forward to continuing the conversation!  As for practical things, I think a larger question we have is the role of networks in creating autonomy, how to build structures that increase autonomy not just something that replicates Silicon Valley mindsets.  Also for skills, maybe something aroudn the very act of giving skills.  How we plan out our skill shares and what are the main purposes (i.e beyond just passing on knowledge).",/post/20144,2017-06-27T14:51:47.000Z,2017-06-27T14:51:47.000Z,20144,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1557 4811,v1.0,,"I look forward to continuing the conversation!  As for practical things, I think a larger question we have is the role of networks in creating autonomy, how to build structures that increase autonomy not just something that replicates Silicon Valley mindsets.  Also for skills, maybe something aroudn the very act of giving skills.  How we plan out our skill shares and what are the main purposes (i.e beyond just passing on knowledge).",/post/20144,2017-06-27T14:51:41.000Z,2017-06-27T14:51:41.000Z,20144,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,80 10144,v1.0,,"Thanks for the comments.  Always impressed with the level of analysis within the group.  I think our group tries to reflect the larger feeling within the world at the time: that we must act as bridges to something else.  Many of us come from the anarchist model of thinking, and in the US, that comes with a heavy focus on destruction.  Mainly in contrast to the NGO/professionalization model of ""bandaids"" and objectification.  But how we see the parallels now is that we must no longer allow ourselves to be motivated by a destruction entity.  Rather we must begin building the worlds that we would die for.  A world worth dying for.  Similar to the examples you all used, there is a strong movement to not reject a destructive attitude (revolutions being inherently destructive) but recognizing that our strength now is our potential to offer the world a new vision of life, the ""good life/buen vivir"" of the Zapatistas.  As such, I work in a public hospital and acknolwedge the needs for institutions at this time.  But always with an eye towards utilizing towards our ends, not becoming dependent on the institutions/NGOs for a way of life.",/post/20144,2017-06-27T14:51:23.000Z,2017-06-27T14:51:23.000Z,20144,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1462 11296,v1.0,,"For a while we were disheartened to see people we’d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical 'analysing our own reality' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as 'hospicing the dying' in relation to systems helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?",/post/13972,2017-06-27T14:51:03.000Z,2017-06-27T14:51:03.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1793 7328,v1.0,,"For a while we were disheartened to see people we’d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical 'analysing our own reality' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as 'hospicing the dying' in relation to systems helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?",/post/13972,2017-06-27T14:50:25.000Z,2017-06-27T14:50:25.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,805 4586,v1.0,,"For a while we were disheartened to see people we’d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical 'analysing our own reality' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as 'hospicing the dying' in relation to systems helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?",/post/13972,2017-06-27T14:50:12.000Z,2017-06-27T14:50:12.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,23 4750,v1.0,,The work I'm involved in at GalGael came out of fires protesting motorways bringing asthma and nature deprivation to communities in Glasgow already hard pressed. We created relative safety admist a housing scheme where there was little. We learnt along the way - by accident - the sense of agency that comes from ‘the act of sharing responsibilities’ within the context of the encampment. We chose to continue to work with that sense of agency and still do so 20 years after the motorway was built. We’ve continued learning and particularly the extent to which that sense of agency is profoundly connected to our health. We’re lucky in Scotland to have had a recent Government Chief Medical Officer who underlined the importance of work on salutogenesis - the importance of studying what makes us healthy rather than disease itself - and the role that our sense of control over our own lives plays in our health; both physical and mental. (Harry Burns - I believe he is regularly in NY),/post/13972,2017-06-27T14:49:38.000Z,2017-06-27T14:49:38.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,68 9816,v1.0,,"I really connect with all you've said here and in particular you're sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous ‘product' of health to our communities. I’m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional ‘interventions’ (even the clinical language makes me recoil). Surely it’s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.",/post/13972,2017-06-27T14:49:27.000Z,2017-06-27T14:49:27.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1421 7784,v1.0,,"I really connect with all you've said here and in particular you're sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous ‘product' of health to our communities. I’m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional ‘interventions’ (even the clinical language makes me recoil). Surely it’s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.",/post/13972,2017-06-27T14:49:11.000Z,2017-06-27T14:49:11.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,939 7837,v1.0,,"I really connect with all you've said here and in particular you're sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous ‘product' of health to our communities. I’m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional ‘interventions’ (even the clinical language makes me recoil). Surely it’s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.",/post/13972,2017-06-27T14:48:57.000Z,2017-06-27T14:48:57.000Z,13972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,955 10143,v1.0,,"We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression.  From the Greek solidarity clinics to the Zapatistas “healthcare from below” to Black Panther Clinics and GynPunks, there is inspiration for this path all around us.  We begin by finding each other.",/post/6376,2017-06-27T14:48:12.000Z,2017-06-27T14:48:12.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1462 9226,v1.0,,"return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.",/post/6376,2017-06-27T14:48:02.000Z,2017-06-27T14:48:02.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1269 7327,v1.0,,"With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women’s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.",/post/6376,2017-06-27T14:06:51.000Z,2017-06-27T14:06:51.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,805 9652,v1.0,,"With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women’s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.",/post/6376,2017-06-27T14:06:30.000Z,2017-06-27T14:06:30.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1371 10082,v1.0,,"With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women’s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.",/post/6376,2017-06-27T14:06:22.000Z,2017-06-27T14:06:22.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1450 10127,v1.0,,"With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women’s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.",/post/6376,2017-06-27T14:06:17.000Z,2017-06-27T14:06:17.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1451 4764,v1.0,,"With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women’s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resource",/post/6376,2017-06-27T14:06:10.000Z,2017-06-27T14:06:10.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,76 8584,v1.0,,"At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health.  We have been experimenting with different projects and finding ways to build community. We’ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of “skill shares”, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and care.",/post/6376,2017-06-27T14:06:04.000Z,2017-06-27T14:06:04.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1140 10491,v1.0,,"At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health.  We have been experimenting with different projects and finding ways to build community. We’ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of “skill shares”, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and care.",/post/6376,2017-06-27T14:05:58.000Z,2017-06-27T14:05:58.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,1557 5702,v1.0,,"At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health.  We have been experimenting with different projects and finding ways to build community. We’ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of “skill shares”, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and ca",/post/6376,2017-06-27T14:05:44.000Z,2017-06-27T14:05:44.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,357 4810,v1.0,,"We don’t bring these up to merely add to the general devastation. But because they are our reality. They exist and to not acknowledge that is to cover ourselves with superficial banalities. The crises that continue to arise are merely symptoms of the disintegration of a way of being in the world that is becoming rapidly untenable. So when we think of care, we must take on the task of being a bridge to a new way of being.   At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health.  We have been experimenting with different projects and finding ways to build community. We’ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of “skill shares”, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and care. With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women’s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we’ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don’t want to just “fill in the gaps” of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.   We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression.  From the Greek solidarity clinics to the Zapatistas “healthcare from below” to Black Panther Clinics and GynPunks, there is inspiration for this path all around us.  We begin by finding each other.",/post/6376,2017-06-27T14:05:21.000Z,2017-06-27T14:05:21.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,80 7992,v1.0,,"And for us here at Woodbine, the loss of a dear friend and comrade who was traveling to support the indigenous resistance at Standing Rock.",/post/6376,2017-06-27T14:04:57.000Z,2017-06-27T14:04:57.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,992 6241,v1.0,,"s we continue to struggle in NYC, many changes have come about since we last wrote of the Woodbine Health Autonomy Center and our thoughts After Occupy. The chaos of the world seems to grow larger, pushing us to further investigate the materiality of autonomy. The growing migrant crisis in Europe, the rise of proto-fascist forces across the world, the election of Trump here in the US. The continual melting of glaciers. The mundanities of crushing debt, the anxiety of our culture, and the everyday loneliness of the city. And for us here at Woodbine, the loss of a dear friend and comrade who was traveling to support the indigenous resistance at Standing Rock. We don’t bring these up to merely add to the general devastation. But because they are our reality. They exist and to not acknowledge that is to cover ourselves with superficial banalities. The crises that continue to arise are merely symptoms of the disintegration of a way of being in the world that is becoming rapidly untenable. So when we think of care, we must take on the task of being a bridge to a new way of being.",/post/6376,2017-06-27T14:04:50.000Z,2017-06-27T14:04:50.000Z,6376,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6343,442 8801,v1.0,,"The challenge here is to design such linker as such the complex can be formed. To this end, Noel writes his own software to do mechanistic molecular modelling. He computes all the molecular (polar, Vanderwaals, …) interactions between amino acids to finally obtain the stability of a complex. For a given linker, this is represented by a set of (sparse) matrixes quantifying the strength of the interactions between the amino acids.",/post/6379,2017-06-27T14:04:25.000Z,2017-06-27T14:04:25.000Z,6379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6346,1157 8809,v1.0,,"Let me rephrase this to see if I understood correctly: your work with machine learning uses the output of Noel's computational work (matrices) as input, and when you have sufficient data, you can 'shortcut' the work by using those matrices directly to generate new matrices. In essence, automating, optimising and speeding up the modelling that he does now. Am I in the ball park? Did you make any plans for what's next?",/post/6920,2017-06-27T14:04:08.000Z,2017-06-27T14:04:08.000Z,6920,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6346,1160 8390,v1.0,,"Let me rephrase this to see if I understood correctly: your work with machine learning uses the output of Noel's computational work (matrices) as input, and when you have sufficient data, you can 'shortcut' the work by using those matrices directly to generate new matrices. In essence, automating, optimising and speeding up the modelling that he does now. Am I in the ball park?",/post/6920,2017-06-27T13:57:53.000Z,2017-06-27T13:57:53.000Z,6920,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6346,1104 8808,v1.0,,"The challenge here is to design such linker as such the complex can be formed. To this end, Noel writes his own software to do mechanistic molecular modelling. He computes all the molecular (polar, Vanderwaals, …) interactions between amino acids to finally obtain the stability of a complex. For a given linker, this is represented by a set of (sparse) matrixes quantifying the strength of the interactions between the amino acids.",/post/6379,2017-06-27T13:57:41.000Z,2017-06-27T13:57:41.000Z,6379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6346,1160 8389,v1.0,,"This is the point where machine learning comes into play: Using a set of example matrices, predict the matrices for new AA chains Perhaps use the information to directly build a model to predict stability of a given linker? The mechanistic information should somehow be used to improve the model (i.e. Vapnik’s learning with privileged information) Given a model, optimize the linker (SA, GA…) Bayesian optimization to search for promising under model uncertainty? Michiel out!",/post/6379,2017-06-27T13:57:25.000Z,2017-06-27T13:57:25.000Z,6379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6346,1104 9089,v1.0,,"Hi all, yesterday (2nd of June) I had a Google Hangout with Noel Carrascal on designing the insulin construct. Relevant to @WinniePoncelet, @BramDeJaegher. Post-translational insulin consists of two chains (A and B) that are bonded through disulfide bonds. In humans this is obtained through post-translational modification of a single peptide chain. Such machinery is not available in an E. coli host. Noel is studying how to design the construct for insulin such that a the two parts can reliably find each other.   His design is based on the strong affinity between barnase and barstar. Barnase (resp. barstar) are connected to one of the insulin chains using a linker. When the barnase-barstar complex is formed, insulin should form by proximity. This also circumvents the risk of the formation of two chains of the same kind bonding (A-A or B-B).   Such insuline-barnase-barnstar complexes should aggregate into a large complex of many such molecules, from which pure, functional insulin can easily be cleaved. Admittedly, I did not follow this 100%.    The challenge here is to design such linker as such the complex can be formed. To this end, Noel writes his own software to do mechanistic molecular modelling. He computes all the molecular (polar, Vanderwaals, …) interactions between amino acids to finally obtain the stability of a complex. For a given linker, this is represented by a set of (sparse) matrixes quantifying the strength of the interactions between the amino acids.   This is the point where machine learning comes into play: Using a set of example matrices, predict the matrices for new AA chains Perhaps use the information to directly build a model to predict stability of a given linker? The mechanistic information should somehow be used to improve the model (i.e. Vapnik’s learning with privileged information) Given a model, optimize the linker (SA, GA…) Bayesian optimization to search for promising under model uncertainty? Michiel out!",/post/6379,2017-06-27T13:57:16.000Z,2017-06-27T13:57:16.000Z,6379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6346,1253 8840,v1.0,,"Then, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.",/post/859,2017-06-27T13:56:40.000Z,2017-06-27T13:56:40.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1167 9651,v1.0,,"We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.",/post/859,2017-06-27T13:56:31.000Z,2017-06-27T13:56:31.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1371 9644,v1.0,,"We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.",/post/859,2017-06-27T13:56:25.000Z,2017-06-27T13:56:25.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1369 9021,v1.0,,"We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.",/post/859,2017-06-27T13:56:20.000Z,2017-06-27T13:56:20.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1230 9489,v1.0,,"How do we encourage change at policy level? We have learned more about how much we don't know about the complex geopolitics and economics around insulin than about how to directly address the policy dimensions of access to insulin and access to medicine in general. But the fact remains that our fundamental rationale for our work is economical, and has to do with the impact that decentralized production could have immediately and how it could change the landscape of incentives in the longer term to favor better policies.  We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands. Then, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.",/post/859,2017-06-27T13:56:05.000Z,2017-06-27T13:56:05.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1322 9479,v1.0,,"How do we encourage change at policy level? We have learned more about how much we don't know about the complex geopolitics and economics around insulin than about how to directly address the policy dimensions of access to insulin and access to medicine in general. But the fact remains that our fundamental rationale for our work is economical, and has to do with the impact that decentralized production could have immediately and how it could change the landscape of incentives in the longer term to favor better policies.  We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands. Then, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.",/post/859,2017-06-27T13:55:59.000Z,2017-06-27T13:55:59.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1321 9191,v1.0,,"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!",/post/859,2017-06-27T13:55:51.000Z,2017-06-27T13:55:51.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1265 6917,v1.0,,"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!",/post/859,2017-06-27T13:55:42.000Z,2017-06-27T13:55:42.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,712 6000,v1.0,,"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!",/post/859,2017-06-27T13:55:37.000Z,2017-06-27T13:55:37.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,405 11402,v1.0,,"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!",/post/859,2017-06-27T13:55:29.000Z,2017-06-27T13:55:29.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1832 7533,v1.0,,"How do we ensure long term sustainability for our project? We originally raised a little over $15k to get started via a crowdfunding campaign, a small budget that has nonetheless proven adequate. We've been fortunate that we've been able to stretch our financial resources a long way with donated and deeply discounted second-hand equipment and reagents, and the contributions of skilled volunteers to keep our equipment running. Thus we have no recurring expenses, which has proven to be the most important way to conserver resources and keep the project sustainable in its high-risk seed phase. This has put us on a firm foundation to reach our first milestone, the production and isolation of proinsulin, the first major step on the way to making the mature, active form of insulin. Once that is done, we plan to pursue our next steps and undertake whatever further fundraising effort we may need to do so, possibly involving a distributed ownership structure and holding and sharing of the fruits of our efforts under some sort of peer production license to ensure we develop a viable commons around our work. Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!",/post/859,2017-06-27T13:55:22.000Z,2017-06-27T13:55:22.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,876 5868,v1.0,,"What have we learned about having citizens define and help advance our research project? Our team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn and contribute. The sharing of knowledge and responsibilities within our group thus mirrored what we were seeking to support beyond the group.",/post/859,2017-06-27T13:55:10.000Z,2017-06-27T13:55:10.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,381 4567,v1.0,,"What have we learned about having citizens define and help advance our research project? Our team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn and contribute. The sharing of knowledge and responsibilities within our group thus mirrored what we were seeking to support beyond the group.",/post/859,2017-06-27T13:55:06.000Z,2017-06-27T13:55:06.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,18 5459,v1.0,,"What have we learned about having citizens define and help advance our research project? Our team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn and contribute. The sharing of knowledge and responsibilities within our group thus mirrored what we were seeking to support beyond the group.",/post/859,2017-06-27T13:55:02.000Z,2017-06-27T13:55:02.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,312 10429,v1.0,,"What have we learned about having citizens define and help advance our research project? Our team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn and contribute. The sharing of knowledge and responsibilities within our group thus mirrored what we were seeking to support beyond the group.",/post/859,2017-06-27T13:54:56.000Z,2017-06-27T13:54:56.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1540 6509,v1.0,,"communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale groups working in distributed fashion to experiment with and produce other biologics. We're very near to reaching our first milestone of producing and isolating proinsulin, after which we'll be redoubling our efforts to develop a simple, end-to-end protocol to produce insulin. We've had several collaborators join our effort in the meantime, including a group at ReaGent in Belgium, another at Biofoundry in Sydney, and another here with us in the Bay Area at Fair Access Medicines. What have we learned a",/post/859,2017-06-27T13:54:43.000Z,2017-06-27T13:54:43.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,485 4865,v1.0,,"communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale groups working in distributed fashion to experiment with and produce other biologics. We're very near to reaching our first milestone of producing and isolating proinsulin, after which we'll be redoubling our efforts to develop a simple, end-to-end protocol to produce insulin. We've had several collaborators join our effort in the meantime, including a group at ReaGent in Belgium, another at Biofoundry in Sydney, and another here with us in the Bay Area at Fair Access Medicines.",/post/859,2017-06-27T13:54:39.000Z,2017-06-27T13:54:39.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,100 9650,v1.0,,"A group of citizen scientists at Counter Culture Labs, a hacker space in Oakland, California has been developing an open-source protocol to make insulin for about a year and a half. The world needs more economical sources of insulin because 1 in 2 people who need it lack access to insulin worldwide, and this burden falls disproportionately on the poorest communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale groups working in distributed fashion to experiment with and produce other biologics.",/post/859,2017-06-27T13:54:30.000Z,2017-06-27T13:54:30.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1371 10081,v1.0,,"A group of citizen scientists at Counter Culture Labs, a hacker space in Oakland, California has been developing an open-source protocol to make insulin for about a year and a half. The world needs more economical sources of insulin because 1 in 2 people who need it lack access to insulin worldwide, and this burden falls disproportionately on the poorest communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale groups working in distributed fashion to experiment with and produce other biologics.",/post/859,2017-06-27T13:54:02.000Z,2017-06-27T13:54:02.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1450 9088,v1.0,,"Open Insulin so far A group of citizen scientists at Counter Culture Labs, a hacker space in Oakland, California has been developing an open-source protocol to make insulin for about a year and a half. The world needs more economical sources of insulin because 1 in 2 people who need it lack access to insulin worldwide, and this burden falls disproportionately on the poorest communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale groups working in distributed fashion to experiment with and produce other biologics. We're very near to reaching our first milestone of producing and isolating proinsulin, after which we'll be redoubling our efforts to develop a simple, end-to-end protocol to produce insulin. We've had several collaborators join our effort in the meantime, including a group at ReaGent in Belgium, another at Biofoundry in Sydney, and another here with us in the Bay Area at Fair Access Medicines. What have we learned about having citizens define and help advance our research project? Our team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn and contribute. The sharing of knowledge and responsibilities within our group thus mirrored what we were seeking to support beyond the group. How do we ensure long term sustainability for our project? We originally raised a little over $15k to get started via a crowdfunding campaign, a small budget that has nonetheless proven adequate. We've been fortunate that we've been able to stretch our financial resources a long way with donated and deeply discounted second-hand equipment and reagents, and the contributions of skilled volunteers to keep our equipment running. Thus we have no recurring expenses, which has proven to be the most important way to conserver resources and keep the project sustainable in its high-risk seed phase. This has put us on a firm foundation to reach our first milestone, the production and isolation of proinsulin, the first major step on the way to making the mature, active form of insulin. Once that is done, we plan to pursue our next steps and undertake whatever further fundraising effort we may need to do so, possibly involving a distributed ownership structure and holding and sharing of the fruits of our efforts under some sort of peer production license to ensure we develop a viable commons around our work. Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways! How do we encourage change at policy level? We have learned more about how much we don't know about the complex geopolitics and economics around insulin than about how to directly address the policy dimensions of access to insulin and access to medicine in general. But the fact remains that our fundamental rationale for our work is economical, and has to do with the impact that decentralized production could have immediately and how it could change the landscape of incentives in the longer term to favor better policies.  We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands. Then, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.",/post/859,2017-06-27T13:53:43.000Z,2017-06-27T13:53:43.000Z,859,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1253 8320,v1.0,,"Waag Society and Digi.bio are organising a biohackathon on July 8-9 in Amsterdam. They asked if we are up for joining with a team of 4-5 people. We will be able to experiment with the open source microfluidics chips Digi.bio has developed. The event will be a mix of presentations and hands-on work, with a focus on the latter. Many experts in the field will be there. Waag Society itself is of course also worth a visit! This is a good occassion to get some more input on the plans we have regarding microfluidics. We can already go on the evening of the 7th to avoid early travels and to enjoy the evening in Amsterdam. As we discussed in the meeting of June 7th, we could try to replicate some of the work we do with the plasmids on the chips. Who's up for joining? Any other ideas?",/post/6388,2017-06-27T13:45:20.000Z,2017-06-27T13:45:20.000Z,6388,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6355,1081 8319,v1.0,,"I am totally up for it! Don't have a good idea at the moment but I will keep my mind open the coming week. Bram",/post/8024,2017-06-27T13:45:14.000Z,2017-06-27T13:45:14.000Z,8024,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6355,1081 7698,v1.0,,"Waag Society and Digi.bio are organising a biohackathon on July 8-9 in Amsterdam. They asked if we are up for joining with a team of 4-5 people. We will be able to experiment with the open source microfluidics chips Digi.bio has developed. The event will be a mix of presentations and hands-on work, with a focus on the latter. Many experts in the field will be there. Waag Society itself is of course also worth a visit! This is a good occassion to get some more input on the plans we have regarding microfluidics. We can already go on the evening of the 7th to avoid early travels and to enjoy the evening in Amsterdam. As we discussed in the meeting of June 7th, we could try to replicate some of the work we do with the plasmids on the chips. Who's up for joining? Any other ideas?",/post/6388,2017-06-27T13:44:31.000Z,2017-06-27T13:44:31.000Z,6388,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6355,918 4864,v1.0,,"Waag Society and Digi.bio are organising a biohackathon on July 8-9 in Amsterdam. They asked if we are up for joining with a team of 4-5 people. We will be able to experiment with the open source microfluidics chips Digi.bio has developed. The event will be a mix of presentations and hands-on work, with a focus on the latter. Many experts in the field will be there. Waag Society itself is of course also worth a visit! This is a good occassion to get some more input on the plans we have regarding microfluidics. We can already go on the evening of the 7th to avoid early travels and to enjoy the evening in Amsterdam. As we discussed in the meeting of June 7th, we could try to replicate some of the work we do with the plasmids on the chips. Who's up for joining? Any other ideas?",/post/6388,2017-06-27T13:44:26.000Z,2017-06-27T13:44:26.000Z,6388,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6355,100 6508,v1.0,,"In our previous post, we concluded that nobody had really ideated SoundSight all alone… no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models. At this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product. The first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them. The team worked hectically on Irene’s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.   Let’s leave it again to Irene’s recollection: Irene: “Hello Mario[1], we are here again… this time I promise you will be impressed” Mario: “Hi Irene, it’s a pleasure… and rest assured, last time I was already impressed, although maybe not as you hoped for… with my friends we have been laughing a lot about your engineer’s idea of a prototype!” Irene: “Oh no, Mario… don’t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things” Mario: “Don’t worry Irene, I have only told the story to one or two… hundreds of people… ahahah!” Irene: “Doh! …ok Mario, then to pay you back, today’s text will be extra tough!” Mario: “I am ready for the challenge!”   Irene sets up the simulation   Irene: “OK Mario, it’s ready. I would like to ask you to try the first round without me sharing with you any information… I want you to focus on your impressions only, tell me how it feels” Mario: “let’s start”   The simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click   Mario: “Indeed there have been a lot of improvements, it is smooth now… last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click… are you sure these are simulations?” Irene: “Yes Mario… we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks… we are just not there yet… you are one of our very early testers, and I cannot thank you enough for that” Mario: “Don’t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user’s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments… but I haven’t been able to identify where I was.” Irene: “That’s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them… you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?” Mario: “It’s difficult to tell you more from just this… maybe we can move to the next exercise?” Irene: “Yes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks… try to guess what it would be” Just a quick run of the new scenario on the simulator Mario: “hmmm… the smoothness has improved a lot… but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?” Irene: “I had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral… now that I have told you, could you confirm it or would you still be doubtful?” Mario: “Let me try to listen again”   …the simulator runs again shortly Mario: “Yes Irene, now that I know, it could well be… I had some doubts, with no context it could have been a theater or a large gym, …” Irene: “Indeed… now I would like you to do a few exercises… I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features… later there will be a test…” Mario: “For me or for the software?” Irene: “For both, Mario, don’t try to escape your responsibilities” Mario: “Ahahah”   They run the training set Mario: “Well Irene, we will see how I perform later… but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users… it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn’t add up” Irene: “You are right. Together with the real-time acquisition of users’ clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface… or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough” Mario: “You would need a lot of needles to offer a useful interface… you can try prototyping something quick maybe with Arduino… but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.” Irene: “We will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional… and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break…” Mario: “What break? Are you not letting me off yet?” Irene: “Mario, let’s just take the test before the coffee… I will let you off then, for today” Mario: “Ok, ok… a no is not possible anyway, isn’t it?” Irene: “It’s always possible, but I will insist with a smile” They run the tests Irene: ”if we compare today’s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!” Mario: “But Irene, how can I be sure if I have truly learned? I mean… we should arrange tests where there are coupled with some sort of benchmark… maybe similar tests in real world, you could imagine a mobile lab to do so… or even just arrange competitions among users” Irene: “That’s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being… do you think your partner would like to try it out against you?” Mario: “But she sees…” Irene: “it should not be an advantage, and I promise you I will not show her the screen” This is now a different story… but after being initially baffled, Mario’s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill. 1 Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture…",/post/578,2017-06-27T13:43:04.000Z,2017-06-27T13:43:04.000Z,578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,545,485 9317,v1.0,,"In our previous post, we concluded that nobody had really ideated SoundSight all alone… no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models. At this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product. The first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them. The team worked hectically on Irene’s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.   Let’s leave it again to Irene’s recollection: Irene: “Hello Mario[1], we are here again… this time I promise you will be impressed” Mario: “Hi Irene, it’s a pleasure… and rest assured, last time I was already impressed, although maybe not as you hoped for… with my friends we have been laughing a lot about your engineer’s idea of a prototype!” Irene: “Oh no, Mario… don’t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things” Mario: “Don’t worry Irene, I have only told the story to one or two… hundreds of people… ahahah!” Irene: “Doh! …ok Mario, then to pay you back, today’s text will be extra tough!” Mario: “I am ready for the challenge!”   Irene sets up the simulation   Irene: “OK Mario, it’s ready. I would like to ask you to try the first round without me sharing with you any information… I want you to focus on your impressions only, tell me how it feels” Mario: “let’s start”   The simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click   Mario: “Indeed there have been a lot of improvements, it is smooth now… last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click… are you sure these are simulations?” Irene: “Yes Mario… we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks… we are just not there yet… you are one of our very early testers, and I cannot thank you enough for that” Mario: “Don’t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user’s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments… but I haven’t been able to identify where I was.” Irene: “That’s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them… you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?” Mario: “It’s difficult to tell you more from just this… maybe we can move to the next exercise?” Irene: “Yes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks… try to guess what it would be” Just a quick run of the new scenario on the simulator Mario: “hmmm… the smoothness has improved a lot… but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?” Irene: “I had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral… now that I have told you, could you confirm it or would you still be doubtful?” Mario: “Let me try to listen again”   …the simulator runs again shortly Mario: “Yes Irene, now that I know, it could well be… I had some doubts, with no context it could have been a theater or a large gym, …” Irene: “Indeed… now I would like you to do a few exercises… I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features… later there will be a test…” Mario: “For me or for the software?” Irene: “For both, Mario, don’t try to escape your responsibilities” Mario: “Ahahah”   They run the training set Mario: “Well Irene, we will see how I perform later… but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users… it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn’t add up” Irene: “You are right. Together with the real-time acquisition of users’ clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface… or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough” Mario: “You would need a lot of needles to offer a useful interface… you can try prototyping something quick maybe with Arduino… but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.” Irene: “We will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional… and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break…” Mario: “What break? Are you not letting me off yet?” Irene: “Mario, let’s just take the test before the coffee… I will let you off then, for today” Mario: “Ok, ok… a no is not possible anyway, isn’t it?” Irene: “It’s always possible, but I will insist with a smile” They run the tests Irene: ”if we compare today’s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!” Mario: “But Irene, how can I be sure if I have truly learned? I mean… we should arrange tests where there are coupled with some sort of benchmark… maybe similar tests in real world, you could imagine a mobile lab to do so… or even just arrange competitions among users” Irene: “That’s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being… do you think your partner would like to try it out against you?” Mario: “But she sees…” Irene: “it should not be an advantage, and I promise you I will not show her the screen” This is now a different story… but after being initially baffled, Mario’s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill. 1 Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture…",/post/578,2017-06-27T13:42:56.000Z,2017-06-27T13:42:56.000Z,578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,545,1283 7914,v1.0,,"In our previous post, we concluded that nobody had really ideated SoundSight all alone… no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models. At this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product. The first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them. The team worked hectically on Irene’s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.   Let’s leave it again to Irene’s recollection: Irene: “Hello Mario[1], we are here again… this time I promise you will be impressed” Mario: “Hi Irene, it’s a pleasure… and rest assured, last time I was already impressed, although maybe not as you hoped for… with my friends we have been laughing a lot about your engineer’s idea of a prototype!” Irene: “Oh no, Mario… don’t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things” Mario: “Don’t worry Irene, I have only told the story to one or two… hundreds of people… ahahah!” Irene: “Doh! …ok Mario, then to pay you back, today’s text will be extra tough!” Mario: “I am ready for the challenge!”   Irene sets up the simulation   Irene: “OK Mario, it’s ready. I would like to ask you to try the first round without me sharing with you any information… I want you to focus on your impressions only, tell me how it feels” Mario: “let’s start”   The simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click   Mario: “Indeed there have been a lot of improvements, it is smooth now… last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click… are you sure these are simulations?” Irene: “Yes Mario… we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks… we are just not there yet… you are one of our very early testers, and I cannot thank you enough for that” Mario: “Don’t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user’s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments… but I haven’t been able to identify where I was.” Irene: “That’s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them… you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?” Mario: “It’s difficult to tell you more from just this… maybe we can move to the next exercise?” Irene: “Yes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks… try to guess what it would be” Just a quick run of the new scenario on the simulator Mario: “hmmm… the smoothness has improved a lot… but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?” Irene: “I had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral… now that I have told you, could you confirm it or would you still be doubtful?” Mario: “Let me try to listen again”   …the simulator runs again shortly Mario: “Yes Irene, now that I know, it could well be… I had some doubts, with no context it could have been a theater or a large gym, …” Irene: “Indeed… now I would like you to do a few exercises… I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features… later there will be a test…” Mario: “For me or for the software?” Irene: “For both, Mario, don’t try to escape your responsibilities” Mario: “Ahahah”   They run the training set Mario: “Well Irene, we will see how I perform later… but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users… it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn’t add up” Irene: “You are right. Together with the real-time acquisition of users’ clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface… or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough” Mario: “You would need a lot of needles to offer a useful interface… you can try prototyping something quick maybe with Arduino… but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.” Irene: “We will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional… and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break…” Mario: “What break? Are you not letting me off yet?” Irene: “Mario, let’s just take the test before the coffee… I will let you off then, for today” Mario: “Ok, ok… a no is not possible anyway, isn’t it?” Irene: “It’s always possible, but I will insist with a smile” They run the tests Irene: ”if we compare today’s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!” Mario: “But Irene, how can I be sure if I have truly learned? I mean… we should arrange tests where there are coupled with some sort of benchmark… maybe similar tests in real world, you could imagine a mobile lab to do so… or even just arrange competitions among users” Irene: “That’s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being… do you think your partner would like to try it out against you?” Mario: “But she sees…” Irene: “it should not be an advantage, and I promise you I will not show her the screen” This is now a different story… but after being initially baffled, Mario’s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill. 1 Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture…",/post/578,2017-06-27T13:42:45.000Z,2017-06-27T13:42:45.000Z,578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,545,968 11382,v1.0,,"In our previous post, we concluded that nobody had really ideated SoundSight all alone… no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models. At this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product. The first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them. The team worked hectically on Irene’s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.   Let’s leave it again to Irene’s recollection: Irene: “Hello Mario[1], we are here again… this time I promise you will be impressed” Mario: “Hi Irene, it’s a pleasure… and rest assured, last time I was already impressed, although maybe not as you hoped for… with my friends we have been laughing a lot about your engineer’s idea of a prototype!” Irene: “Oh no, Mario… don’t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things” Mario: “Don’t worry Irene, I have only told the story to one or two… hundreds of people… ahahah!” Irene: “Doh! …ok Mario, then to pay you back, today’s text will be extra tough!” Mario: “I am ready for the challenge!”   Irene sets up the simulation   Irene: “OK Mario, it’s ready. I would like to ask you to try the first round without me sharing with you any information… I want you to focus on your impressions only, tell me how it feels” Mario: “let’s start”   The simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click   Mario: “Indeed there have been a lot of improvements, it is smooth now… last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click… are you sure these are simulations?” Irene: “Yes Mario… we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks… we are just not there yet… you are one of our very early testers, and I cannot thank you enough for that” Mario: “Don’t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user’s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments… but I haven’t been able to identify where I was.” Irene: “That’s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them… you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?” Mario: “It’s difficult to tell you more from just this… maybe we can move to the next exercise?” Irene: “Yes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks… try to guess what it would be” Just a quick run of the new scenario on the simulator Mario: “hmmm… the smoothness has improved a lot… but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?” Irene: “I had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral… now that I have told you, could you confirm it or would you still be doubtful?” Mario: “Let me try to listen again”   …the simulator runs again shortly Mario: “Yes Irene, now that I know, it could well be… I had some doubts, with no context it could have been a theater or a large gym, …” Irene: “Indeed… now I would like you to do a few exercises… I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features… later there will be a test…” Mario: “For me or for the software?” Irene: “For both, Mario, don’t try to escape your responsibilities” Mario: “Ahahah”   They run the training set Mario: “Well Irene, we will see how I perform later… but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users… it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn’t add up” Irene: “You are right. Together with the real-time acquisition of users’ clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface… or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough” Mario: “You would need a lot of needles to offer a useful interface… you can try prototyping something quick maybe with Arduino… but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.” Irene: “We will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional… and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break…” Mario: “What break? Are you not letting me off yet?” Irene: “Mario, let’s just take the test before the coffee… I will let you off then, for today” Mario: “Ok, ok… a no is not possible anyway, isn’t it?” Irene: “It’s always possible, but I will insist with a smile” They run the tests Irene: ”if we compare today’s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!” Mario: “But Irene, how can I be sure if I have truly learned? I mean… we should arrange tests where there are coupled with some sort of benchmark… maybe similar tests in real world, you could imagine a mobile lab to do so… or even just arrange competitions among users” Irene: “That’s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being… do you think your partner would like to try it out against you?” Mario: “But she sees…” Irene: “it should not be an advantage, and I promise you I will not show her the screen” This is now a different story… but after being initially baffled, Mario’s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill. 1 Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture…",/post/578,2017-06-27T13:42:36.000Z,2017-06-27T13:42:36.000Z,578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,545,1828 4885,v1.0,,"In our previous post, we concluded that nobody had really ideated SoundSight all alone… no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models. At this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product. The first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them. The team worked hectically on Irene’s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.   Let’s leave it again to Irene’s recollection: Irene: “Hello Mario[1], we are here again… this time I promise you will be impressed” Mario: “Hi Irene, it’s a pleasure… and rest assured, last time I was already impressed, although maybe not as you hoped for… with my friends we have been laughing a lot about your engineer’s idea of a prototype!” Irene: “Oh no, Mario… don’t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things” Mario: “Don’t worry Irene, I have only told the story to one or two… hundreds of people… ahahah!” Irene: “Doh! …ok Mario, then to pay you back, today’s text will be extra tough!” Mario: “I am ready for the challenge!”   Irene sets up the simulation   Irene: “OK Mario, it’s ready. I would like to ask you to try the first round without me sharing with you any information… I want you to focus on your impressions only, tell me how it feels” Mario: “let’s start”   The simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click   Mario: “Indeed there have been a lot of improvements, it is smooth now… last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click… are you sure these are simulations?” Irene: “Yes Mario… we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks… we are just not there yet… you are one of our very early testers, and I cannot thank you enough for that” Mario: “Don’t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user’s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments… but I haven’t been able to identify where I was.” Irene: “That’s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them… you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?” Mario: “It’s difficult to tell you more from just this… maybe we can move to the next exercise?” Irene: “Yes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks… try to guess what it would be” Just a quick run of the new scenario on the simulator Mario: “hmmm… the smoothness has improved a lot… but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?” Irene: “I had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral… now that I have told you, could you confirm it or would you still be doubtful?” Mario: “Let me try to listen again”   …the simulator runs again shortly Mario: “Yes Irene, now that I know, it could well be… I had some doubts, with no context it could have been a theater or a large gym, …” Irene: “Indeed… now I would like you to do a few exercises… I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features… later there will be a test…” Mario: “For me or for the software?” Irene: “For both, Mario, don’t try to escape your responsibilities” Mario: “Ahahah”   They run the training set Mario: “Well Irene, we will see how I perform later… but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users… it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn’t add up” Irene: “You are right. Together with the real-time acquisition of users’ clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface… or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough” Mario: “You would need a lot of needles to offer a useful interface… you can try prototyping something quick maybe with Arduino… but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.” Irene: “We will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional… and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break…” Mario: “What break? Are you not letting me off yet?” Irene: “Mario, let’s just take the test before the coffee… I will let you off then, for today” Mario: “Ok, ok… a no is not possible anyway, isn’t it?” Irene: “It’s always possible, but I will insist with a smile” They run the tests Irene: ”if we compare today’s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!” Mario: “But Irene, how can I be sure if I have truly learned? I mean… we should arrange tests where there are coupled with some sort of benchmark… maybe similar tests in real world, you could imagine a mobile lab to do so… or even just arrange competitions among users” Irene: “That’s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being… do you think your partner would like to try it out against you?” Mario: “But she sees…” Irene: “it should not be an advantage, and I promise you I will not show her the screen” This is now a different story… but after being initially baffled, Mario’s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill. 1 Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture…",/post/578,2017-06-27T13:42:28.000Z,2017-06-27T13:42:28.000Z,578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,545,104 8835,v1.0,,think it will make for a meaningful session.. Especially for people who know each other a little but perhaps not enough. We stand to learn a lot about others through those conversations.. tabu in most contexts.,/post/27413,2017-06-27T13:40:18.000Z,2017-06-27T13:40:18.000Z,27413,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1165 8834,v1.0,,"It would be helpful I think. It's messy and many relationships break over this topic. If we are to have a thriving, truthful space it is important to figure out. Let's have a chat about this early next week?",/post/27232,2017-06-27T13:40:12.000Z,2017-06-27T13:40:12.000Z,27232,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1165 6199,v1.0,,"What do you say if we explore openness and creative energy itself. We could explore this theme. How can we be more in alignment with ourselves/ our own creative energy? My experience is that when I'm good in my energy I use a combination of being both intentful as well as open to whatever comes up (inside of me). So it's a combination of receptiveness and creative intent. So how can one cultivate the quality of being sensitive/ receptive and powerful/ intentful? Vulnerable as well as powerful. Loving as well as clear. Open as well as practical and creating physically (in whatever form excites one the most).  I'm excited about this theme. Would you like to explore this using the circle of openness? We could for instance pick a week at The Reef where we have circles every afternoon/ evening, while during the day everyone goes about their ""normal""/ personal activities.  What do you say? @Noemi, @Nadia, @Matthias, and others...?",/post/26687,2017-06-27T13:39:58.000Z,2017-06-27T13:39:58.000Z,26687,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,439 9186,v1.0,,"What do you say if we explore openness and creative energy itself. We could explore this theme. How can we be more in alignment with ourselves/ our own creative energy? My experience is that when I'm good in my energy I use a combination of being both intentful as well as open to whatever comes up (inside of me). So it's a combination of receptiveness and creative intent. So how can one cultivate the quality of being sensitive/ receptive and powerful/ intentful? Vulnerable as well as powerful. Loving as well as clear. Open as well as practical and creating physically (in whatever form excites one the most).  I'm excited about this theme. Would you like to explore this using the circle of openness? We could for instance pick a week at The Reef where we have circles every afternoon/ evening, while during the day everyone goes about their ""normal""/ personal activities.  What do you say? @Noemi, @Nadia, @Matthias, and others...?",/post/26687,2017-06-27T13:39:51.000Z,2017-06-27T13:39:51.000Z,26687,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1262 7359,v1.0,,"I think that's a crux, you said it yourself it's an art. Okay, people can share a lot or a little, but if others are to contribute somehow to understandign things better it means that a facilitator conveys when the conversation can linger or move on? I dont think you understand things just by saying them out loud in a group, so you need attention; but for the group it's also important that it stays relevant somehow. No matter how good a listener you are, or..? It seems like quite a fine line, especially if the space is loaded with emotions.  Each afternoon and evening we'll have space for self-organised sessions, but a circle of openness would be more organised i think - if you see a topic from the opencare conversations that would work, feel free to propose it. I will be on the lookout too! Big thanks <3",/post/24719,2017-06-27T13:39:44.000Z,2017-06-27T13:39:44.000Z,24719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,819 8237,v1.0,,"And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.",/post/24534,2017-06-27T13:39:26.000Z,2017-06-27T13:39:26.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1070 7434,v1.0,,"And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.",/post/24534,2017-06-27T13:39:21.000Z,2017-06-27T13:39:21.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,849 10499,v1.0,,"curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.",/post/24534,2017-06-27T13:39:16.000Z,2017-06-27T13:39:16.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1559 5476,v1.0,,"Most of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it's no problem and good examples will follow.",/post/24534,2017-06-27T13:39:01.000Z,2017-06-27T13:39:01.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,317 6916,v1.0,,"I also initiated a circle once during a workshop where people didn't really know each other and there wasn't a real theme or topic. In that setting it didn't feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there's always (some) interest),  there wasn't really a common intention or relevance to have this talk together. So I wouldn't organize a circle ""out of the blue"" again.",/post/24534,2017-06-27T13:38:48.000Z,2017-06-27T13:38:48.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,712 10351,v1.0,,"I believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what's alive in you at the moment. This worked pretty well.",/post/24534,2017-06-27T13:38:37.000Z,2017-06-27T13:38:37.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1527 10451,v1.0,,"This particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I'd say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.",/post/24534,2017-06-27T13:38:21.000Z,2017-06-27T13:38:21.000Z,24534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1555 10498,v1.0,,"I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations. How do you go through this curve collectively, and so quickly, is probably really an art. Are we talking one day workshops? Familiar faces or strangers? And how large a group is optimal? Thanks @ewoudvenema for sharing so generously.",/post/21318,2017-06-27T13:36:38.000Z,2017-06-27T13:36:38.000Z,21318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1559 7358,v1.0,,"I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations. How do you go through this curve collectively, and so quickly, is probably really an art. Are we talking one day workshops? Familiar faces or strangers? And how large a group is optimal? Thanks @ewoudvenema for sharing so generously.",/post/21318,2017-06-27T13:36:32.000Z,2017-06-27T13:36:32.000Z,21318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,819 11540,v1.0,,"I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations. How do you go through this curve collectively, and so quickly, is probably really an art. Are we talking one day workshops? Familiar faces or strangers? And how large a group is optimal? Thanks @ewoudvenema for sharing so generously.",/post/21318,2017-06-27T13:36:28.000Z,2017-06-27T13:36:28.000Z,21318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1865 11271,v1.0,,"Delighted to find that you @Gehan have read and appreciated ""A Hidden Wholeness"" too! I would add my strong recommendation",/post/17038,2017-06-27T13:36:18.000Z,2017-06-27T13:36:18.000Z,17038,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1778 7357,v1.0,,"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.  g",/post/16180,2017-06-27T13:36:11.000Z,2017-06-27T13:36:11.000Z,16180,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,819 7355,v1.0,,I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach,/post/16180,2017-06-27T13:35:59.000Z,2017-06-27T13:35:59.000Z,16180,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,818 7433,v1.0,,I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.,/post/16180,2017-06-27T13:35:53.000Z,2017-06-27T13:35:53.000Z,16180,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,849 6095,v1.0,,"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.  g",/post/16180,2017-06-27T13:35:41.000Z,2017-06-27T13:35:41.000Z,16180,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,429 10192,v1.0,,I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.,/post/16180,2017-06-27T13:35:31.000Z,2017-06-27T13:35:31.000Z,16180,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1482 7356,v1.0,,"few times I have been lucky enough to be in this kind of conversation where there was flow. I've always assumed that they happen serendipitously when the stars align somehow- so many different things that are there at the same time. The mood, the sense of being there in a kind of timeless state, the conversation happening for its own sake and not tied to any kind of agenda. Kind of like wandering aimlessly around a beautiful forest...",/post/9251,2017-06-27T13:35:19.000Z,2017-06-27T13:35:19.000Z,9251,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,819 7432,v1.0,,"few times I have been lucky enough to be in this kind of conversation where there was flow. I've always assumed that they happen serendipitously when the stars align somehow- so many different things that are there at the same time. The mood, the sense of being there in a kind of timeless state, the conversation happening for its own sake and not tied to any kind of agenda. Kind of like wandering aimlessly around a beautiful forest...",/post/9251,2017-06-27T13:35:14.000Z,2017-06-27T13:35:14.000Z,9251,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,849 9185,v1.0,,"Some of the meetings were extremely fruitful and transformative. Others were okay and sometimes a bit boring. What determined the quality of the meetings was the openess and willingness to share from an honest and authentic place, and to really be curious to share what feels exciting and challenging to someone. During the meetings where the mayority of the participants was willing to listen and feel into what's relevant at that time, there was a magical openness and connection among the group. I truly enjoyed these meetings and they were one of the most beautiful shared moments of my life. What I also enjoyed is the power to transform through awareness. By expressing a doubt or a challenge and openly looking at it, it became possible to take distance from the perspective and let go of it. Also the awareness of the group seemed to stimulate and hold space for sharing these vulnerable perspectives.",/post/6401,2017-06-27T13:33:51.000Z,2017-06-27T13:33:51.000Z,6401,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1262 10056,v1.0,,"I'd like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma's through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings ""Circles of openness"".",/post/6401,2017-06-27T13:31:25.000Z,2017-06-27T13:31:25.000Z,6401,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1446 8833,v1.0,,"I'd like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma's through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings ""Circles of openness"".",/post/6401,2017-06-27T13:31:19.000Z,2017-06-27T13:31:19.000Z,6401,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1165 11236,v1.0,,"I'd like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma's through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings ""Circles of openness"".",/post/6401,2017-06-27T13:31:03.000Z,2017-06-27T13:31:03.000Z,6401,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6368,1772 10876,v1.0,,"radicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA.",/post/6407,2017-06-27T13:29:57.000Z,2017-06-27T13:29:57.000Z,6407,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6374,1670 9848,v1.0,,"In relation to what i bring on to the open village festival, i intend to lay out the underlying reasons why we have a lot of youths engaged in drug abuse in africa and its social-economical effects of developing-world countries. i would to demonistrate the importance strong communities towards combating the drug menace and eventually creating awereness with views eradication of the drug menace. radicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA. we hope to grow a strong network out of the presentation at the festival so as to broaden our scope of understanding and welcome some experts in social-counseling who may helps in rehabilitating these youth into leading productive lives within the communiting. approach of presentation the presentation may include brief videos and statistical data to show the scale of damage. group discussions and presentation(which may require representatives of each team presenting their finding to attendees) slides hence i may require : projector white board makers NOTE : the presentation may take 30-45 minutes at the festival i hope to learn more on collaboration and experiences in europe which may help us advance our urge to transform our local communities to provition of global solution to our local challenges.",/post/6407,2017-06-27T13:29:44.000Z,2017-06-27T13:29:44.000Z,6407,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6374,1427 4585,v1.0,,"In relation to what i bring on to the open village festival, i intend to lay out the underlying reasons why we have a lot of youths engaged in drug abuse in africa and its social-economical effects of developing-world countries. i would to demonistrate the importance strong communities towards combating the drug menace and eventually creating awereness with views eradication of the drug menace. radicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA. we hope to grow a strong network out of the presentation at the festival so as to broaden our scope of understanding and welcome some experts in social-counseling who may helps in rehabilitating these youth into leading productive lives within the communiting. approach of presentation the presentation may include brief videos and statistical data to show the scale of damage. group discussions and presentation(which may require representatives of each team presenting their finding to attendees) slides hence i may require : projector white board makers NOTE : the presentation may take 30-45 minutes at the festival i hope to learn more on collaboration and experiences in europe which may help us advance our urge to transform our local communities to provition of global solution to our local challenges.",/post/6407,2017-06-27T13:29:38.000Z,2017-06-27T13:29:38.000Z,6407,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6374,23 11580,v1.0,,"In relation to what i bring on to the open village festival, i intend to lay out the underlying reasons why we have a lot of youths engaged in drug abuse in africa and its social-economical effects of developing-world countries. i would to demonistrate the importance strong communities towards combating the drug menace and eventually creating awereness with views eradication of the drug menace. radicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA. we hope to grow a strong network out of the presentation at the festival so as to broaden our scope of understanding and welcome some experts in social-counseling who may helps in rehabilitating these youth into leading productive lives within the communiting. approach of presentation the presentation may include brief videos and statistical data to show the scale of damage. group discussions and presentation(which may require representatives of each team presenting their finding to attendees) slides hence i may require : projector white board makers NOTE : the presentation may take 30-45 minutes at the festival i hope to learn more on collaboration and experiences in europe which may help us advance our urge to transform our local communities to provition of global solution to our local challenges.",/post/6407,2017-06-27T13:29:32.000Z,2017-06-27T13:29:32.000Z,6407,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6374,1873 7790,v1.0,,"We need a good outline for the theme + fitting sessions. I tentatively assign this task to Woodbine because it seems this is up their street. More than a space where for co-habitation or learning together, they are involved in running a place where activities are directed at providing care - preventative, through peer learning and building capacity which system healthcare lacks.",/post/6409,2017-06-27T13:22:43.000Z,2017-06-27T13:22:43.000Z,6409,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6376,941 9428,v1.0,,"We need a good outline for the theme + fitting sessions. I tentatively assign this task to Woodbine because it seems this is up their street. More than a space where for co-habitation or learning together, they are involved in running a place where activities are directed at providing care - preventative, through peer learning and building capacity which system healthcare lacks.",/post/6409,2017-06-27T13:22:15.000Z,2017-06-27T13:22:15.000Z,6409,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6376,1308 5552,v1.0,,"We have not really produced data ourselves yet. Looking forward to when we do and at that point, the team should make the call together. Then it is a conscious and collective decision.",/post/18064,2017-06-27T13:21:27.000Z,2017-06-27T13:21:27.000Z,18064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,332 8311,v1.0,,"Thanks for sharing your views on this. Not opening up data right away is a compromise for sure, one that I do not particularly like, but I can see reasons. Maybe these are wrong, I have no answers. We have not really produced data ourselves yet. Looking forward to when we do and at that point, the team should make the call together. Then it is a conscious and collective decision.",/post/18064,2017-06-27T13:21:19.000Z,2017-06-27T13:21:19.000Z,18064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1080 9184,v1.0,,"Thanks for sharing your views on this. Not opening up data right away is a compromise for sure, one that I do not particularly like, but I can see reasons. Maybe these are wrong, I have no answers.",/post/18064,2017-06-27T13:21:13.000Z,2017-06-27T13:21:13.000Z,18064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1262 9183,v1.0,,", especially when you consider those options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!",/post/16714,2017-06-27T13:21:08.000Z,2017-06-27T13:21:08.000Z,16714,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1262 9643,v1.0,,"To me, the worst is when an idea is squashed because others decide to protect it for their own profit - but if it is all in the open to start, we should all benefit.",/post/16714,2017-06-27T13:20:55.000Z,2017-06-27T13:20:55.000Z,16714,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1369 6143,v1.0,,"I think the diybio code of ethics has transparency as its first principal for a very good reason - it gives a moral high ground that I think can override such questions of risk @WinniePoncelet, especially when you consider those options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!  To me, the worst is when an idea is squashed because others decide to protect it for their own profit - but if it is all in the open to start, we should all benefit.   Idealistic?  perhaps...",/post/16714,2017-06-27T13:20:49.000Z,2017-06-27T13:20:49.000Z,16714,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,436 7259,v1.0,,"I think the diybio code of ethics has transparency as its first principal for a very good reason - it gives a moral high ground that I think can override such questions of risk @WinniePoncelet, especially when you consider those options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!  To me, the worst is when an idea is squashed because others decide to protect it for their own profit - but if it is all in the open to start, we should all benefit.   Idealistic?  perhaps...",/post/16714,2017-06-27T13:20:44.000Z,2017-06-27T13:20:44.000Z,16714,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,792 10619,v1.0,,"On 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal. Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.",/post/12977,2017-06-27T13:20:17.000Z,2017-06-27T13:20:17.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1607 11401,v1.0,,"Volunteer time can drastically undercut the cost, and make this type of research more efficient than what a Novartis could hope for. We already seeing signs of that in the DIYbio movement. But we are still learning how to leverage the advantage. Hardware, software and wetware are definitely enabling us at this point, but are also still developing. Hopefully these things are bringing us to a tipping point, quicklier than the large companies are.",/post/12977,2017-06-27T13:20:09.000Z,2017-06-27T13:20:09.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1832 10500,v1.0,,"On 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal. Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.",/post/12977,2017-06-27T13:19:56.000Z,2017-06-27T13:19:56.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1560 4879,v1.0,,"On 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal. Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.",/post/12977,2017-06-27T13:19:36.000Z,2017-06-27T13:19:36.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,102 10153,v1.0,,"The comparison of the dynamics in software is fair, but that is not to say that there is not a more favorable outcome. The stakes are also higher when considering medicine. The difference between having or not having a piece of software is not death.",/post/12977,2017-06-27T13:19:28.000Z,2017-06-27T13:19:28.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1467 9642,v1.0,,"decrease the cost of many more medicines. We can only guess, but I doubt the lesson Novartis would draw is ""we need to do more open research"" after they pick up half-finished open knowledge and successfully turn it into a product or profit. From releasing a somewhat finished protocol into the world, they might still not take that message away, but more citizen researchers might be inclined to, and keep the effort going. It becomes an optimization problem to balance short term and long term economic benefits, taking the strategy to get there into account.",/post/12977,2017-06-27T13:18:56.000Z,2017-06-27T13:18:56.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1369 6093,v1.0,,"Cheap insulin is one of the reasons, but a precedent for more of this kind of research is also a reason, as this could decrease the cost of many more medicines. We can only guess, but I doubt the lesson Novartis would draw is ""we need to do more open research"" after they pick up half-finished open knowledge and successfully turn it into a product or profit. From releasing a somewhat finished protocol into the world, they might still not take that message away, but more citizen researchers might be inclined to, and keep the effort going. It becomes an optimization problem to balance short term and long term economic benefits, taking the strategy to get there into account.",/post/12977,2017-06-27T13:18:44.000Z,2017-06-27T13:18:44.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,427 9158,v1.0,,"On your point 2: the goal is an open source production protocol, mainly for economical reasons. Though those reasons are 'how one will use the protocol'. We can all agree on the protocol as a goal, what happens with it afterwards is up to the user. In this stage, it is desirable that the way we get there does not jeopardize the use some of the team members have in mind (or at least minimally).",/post/12977,2017-06-27T13:18:37.000Z,2017-06-27T13:18:37.000Z,12977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1257 9843,v1.0,,"your data are still there and still open. You can still go ahead and undercut them. That said, you can take a ""free"" as opposed to ""open"" approach, and use nc or nc-sa licenses. This means people can reuse your data, but are prohibited from doing anything commercial with it; additionally, with sa (share alike) any new entity that incorporates your data inherits their license, so all ""children"" dataset stay noncommercial forever. The Creative Commons website has a handy wizard for choosing your preferrred license. These days, noncommercial licenses are not considered open licenses according to the Open Definition. With Creative Commons licenses, additional usage rights can always be negotiated with the rights holder. So, you can put out data with a nc license; if Novartis thinks they are so valuable and want to use them to develop a drug, they have to come to you and ask for a different license. At that point you decide what to do. Of course, it is difficult to monitor that they do not just syphon the data up and do whatever they want anyway, but hopefully the regulation is tight enough that they will consider not worth the risk of being caught out.",/post/12671,2017-06-27T13:18:27.000Z,2017-06-27T13:18:27.000Z,12671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1425 6142,v1.0,,"That said, you can take a ""free"" as opposed to ""open"" approach, and use nc or nc-sa licenses. This means people can reuse your data, but are prohibited from doing anything commercial with it; additionally, with sa (share alike) any new entity that incorporates your data inherits their license, so all ""children"" dataset stay noncommercial forever. The Creative Commons website has a handy wizard for choosing your preferrred license. These days, noncommercial licenses are not considered open licenses according to the Open Definition. With Creative Commons licenses, additional usage rights can always be negotiated with the rights holder. So, you can put out data with a nc license; if Novartis thinks they are so valuable and want to use them to develop a drug, they have to come to you and ask for a different license. At that point you decide what to do. Of course, it is difficult to monitor that they do not just syphon the data up and do whatever they want anyway, but hopefully the regulation is tight enough that they will consider not worth the risk of being caught out.",/post/12671,2017-06-27T13:18:16.000Z,2017-06-27T13:18:16.000Z,12671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,436 9182,v1.0,,"here is no opennness without letting go of control. Keep your eyes on the ball: if your goal is cheap insulin, or shoes that reap the health benefits of barefoot walking, you win even if it is Novartis or Nike delivering it. In open source, most people consider that open source is winning exactly because business uses it (and, now, contributes to maintaining it). Linux is everywhere except your laptop; if you are hellbent on open source, or cost-sensitive, you can also get a Linux laptop, with Linux being free as in both speech and beer.",/post/12671,2017-06-27T13:17:39.000Z,2017-06-27T13:17:39.000Z,12671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1262 9649,v1.0,,"Documentation is expensive and nobody is paying us for it"" is a completely acceptable argument. No one can fault an open source project for bad or missing documentation, only praise it when it does it right.",/post/12671,2017-06-27T13:17:27.000Z,2017-06-27T13:17:27.000Z,12671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1371 8008,v1.0,,"The same factors are at play for Open Insulin. If at one point, an experiment proves promising, a biotech company could take it from there and easily be faster. The peers (like the Belgium group) who want to contribute, can contribute though, but by getting more closely involved. At the end everything can be released, and hopefully this will shift some of the factors at play. Paving the way for a new way of protein engineering is also a goal of Open Insulin. Not sure if there's good answers, I'd love to discuss this more.",/post/11937,2017-06-27T13:16:40.000Z,2017-06-27T13:16:40.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,997 10126,v1.0,,"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data, thanks to their size. Smaller companies can't do much with the data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be closer to a transaction (a gift, even).",/post/11937,2017-06-27T13:16:20.000Z,2017-06-27T13:16:20.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1451 8310,v1.0,,"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data, thanks to their size. Smaller companies can't do much with the data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be closer to a transaction (a gift, even).",/post/11937,2017-06-27T13:16:09.000Z,2017-06-27T13:16:09.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1080 6075,v1.0,,"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data, thanks to their size. Smaller companies can't do much with the data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be closer to a transaction (a gift, even).",/post/11937,2017-06-27T13:15:56.000Z,2017-06-27T13:15:56.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,424 9157,v1.0,,"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data, thanks to their size. Smaller companies can't do much with the data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be closer to a transaction (a gift, even).",/post/11937,2017-06-27T13:15:43.000Z,2017-06-27T13:15:43.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1257 9069,v1.0,,"That's a valid point @Rachel . Although I am a big fan of documentation, I have personally not given it too much thought for OI. Partly because the group in Oakland took the approach of not having an open and rolling documentation repository. Partly because it seemed like too big an effort for now, when we are already struggling with managing all the information we do and don't have.",/post/11937,2017-06-27T13:15:21.000Z,2017-06-27T13:15:21.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1250 6915,v1.0,,"That's a valid point @Rachel . Although I am a big fan of documentation, I have personally not given it too much thought for OI. Partly because the group in Oakland took the approach of not having an open and rolling documentation repository. Partly because it seemed like too big an effort for now, when we are already struggling with managing all the information we do and don't have.",/post/11937,2017-06-27T13:15:15.000Z,2017-06-27T13:15:15.000Z,11937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,712 9098,v1.0,,"There is a debate about what really constitutes 'open' research still, certainly.  @WinniePoncelet  The response to the FAQ question 'where is the data?' as 'It will be released when the time is there. We are still in the research phase.' could be looked upon with askance by many...  Most Hackuarium projects are not intensively getting all expts in progress into wiki pages, but there are definitely some that try to just get everything down to document as they go, for instance.  (not worrying about being polished is key for that - the assumption is that having the 'work in progress' notice means that someone may help for this process eventually... ) I am still a bit agnostic, even though I encourage documentation asap always, and wonder how you personally feel about this. Starting a European Open Insulin project is awesome, btw!",/post/10027,2017-06-27T13:15:03.000Z,2017-06-27T13:15:03.000Z,10027,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1254 9068,v1.0,,"There is a debate about what really constitutes 'open' research still, certainly.  @WinniePoncelet  The response to the FAQ question 'where is the data?' as 'It will be released when the time is there. We are still in the research phase.' could be looked upon with askance by many...  Most Hackuarium projects are not intensively getting all expts in progress into wiki pages, but there are definitely some that try to just get everything down to document as they go, for instance.  (not worrying about being polished is key for that - the assumption is that having the 'work in progress' notice means that someone may help for this process eventually... ) I am still a bit agnostic, even though I encourage documentation asap always, and wonder how you personally feel about this. Starting a European Open Insulin project is awesome, bt",/post/10027,2017-06-27T13:13:42.000Z,2017-06-27T13:13:42.000Z,10027,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1250 9159,v1.0,,"5. FAQ You're working open source, where's the data? It is not currently openly available (see the discussion below).",/post/6412,2017-06-27T13:13:27.000Z,2017-06-27T13:13:27.000Z,6412,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1257 8117,v1.0,,"2. Research status Current step: awaiting the arrival of the plasmid samples from the team in Oakland. Next step: use the plasmids to transform E. coli, in order to replicate the work of Oakland and set a reference point for further optimization. Updates from the Oakland team can be found on their website.",/post/6412,2017-06-27T13:11:33.000Z,2017-06-27T13:11:33.000Z,6412,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1026 10399,v1.0,,"Find good quality online educational material that offers an introduction to synthetic biology, molecular biology, protein engineering, genetics and other relevant fields. Add it to the 'Technology Basics' section with a short description containing what's it about and why people should use it.",/post/6412,2017-06-27T13:11:07.000Z,2017-06-27T13:11:07.000Z,6412,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,1539 7155,v1.0,,"Find good quality online educational material that offers an introduction to synthetic biology, molecular biology, protein engineering, genetics and other relevant fields. Add it to the 'Technology Basics' section with a short description containing what's it about and why people should use it. Help in organising information. Are you a pro in organising scientific articles and data? Great, we can use help with that! Get in touch with @WinniePoncelet . Add Frequently Asked Questions. Have you been asked about the project? Put the question and your answer in the FAQ!",/post/6412,2017-06-27T13:10:54.000Z,2017-06-27T13:10:54.000Z,6412,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6379,766 9478,v1.0,,"Hello all, I propose we work towards a session to make the most out of experiences in creating conditions and infrastructure for open care: open and collaborative policy making being one aspect of it, and I'm sure there's more. Hopefully we have the journey of Milano to start with, but I can see it playing out as a live debate with other progressive civil servants and community members whom we could invite based on a preliminary outline.  I invited Lucia Scopelliti and Gehan for a first stab at the concept, but I could use some input from @Alberto and @Tino_Sanandaji too. - does anyone come to mind that we could invite who understands policy and political opportunities and constraints from city side or community side?",/post/7471,2017-06-27T13:08:49.000Z,2017-06-27T13:08:49.000Z,7471,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1321 4949,v1.0,,"Hello all, I propose we work towards a session to make the most out of experiences in creating conditions and infrastructure for open care: open and collaborative policy making being one aspect of it, and I'm sure there's more. Hopefully we have the journey of Milano to start with, but I can see it playing out as a live debate with other progressive civil servants and community members whom we could invite based on a preliminary outline.  I invited Lucia Scopelliti and Gehan for a first stab at the concept, but I could use some input from @Alberto and @Tino_Sanandaji too. - does anyone come to mind that we could invite who understands policy and political opportunities and constraints from city side or community side?",/post/7471,2017-06-27T13:08:41.000Z,2017-06-27T13:08:41.000Z,7471,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,125 4978,v1.0,,John: underlying theme would be just asking them what are ways to form alliances without a pre-defined outcome. What is the commitment when people do decide to come/live together?,/post/6415,2017-06-27T13:08:22.000Z,2017-06-27T13:08:22.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,126 6027,v1.0,,Gehan: In GalGael: we don’t live together but we work together. Drug & alcohol policy but this doesn’t keep people safe. Collective policing versus authoritarian policing - still limited; how to go beyond the reach of policy - perhaps by creating working principles that guide day to day interactions and relations?,/post/6415,2017-06-27T13:07:59.000Z,2017-06-27T13:07:59.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,413 8329,v1.0,,Winnie: some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point,/post/6415,2017-06-27T13:07:35.000Z,2017-06-27T13:07:35.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1087 11443,v1.0,,"Bernard: Water supply - testing water. Trying to live with off grid. Reed beds. There are people working on this that we can network with. Several proposals have touched on the importance of water, there is energy to work with. or is it also more practical - like plumbing - that you're after? Winnie: some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point",/post/6415,2017-06-27T13:07:21.000Z,2017-06-27T13:07:21.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1843 10374,v1.0,,"Connected to sharing everything - vs - sharing common values. Design, expectation, governance.",/post/6415,2017-06-27T13:07:10.000Z,2017-06-27T13:07:10.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1533 5856,v1.0,,"Simon from England - be useful to try to get his engagement. Lancaster co-housing. Not working. But builds in lots of protection for you. Sliding scale - when you live with people, how much are you keeping for yourself. It really comes into play when you have kids. That’s when it gets interesting. The parenting dynamic can become tense. It’s always a conversation between the individual and the collective. It might be interesting to hear more about how they’ve doing.",/post/6415,2017-06-27T13:06:40.000Z,2017-06-27T13:06:40.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,378 9477,v1.0,,"Co-Living: ""Collective policing and policy-ing""? Simon from England - be useful to try to get his engagement. Lancaster co-housing. Not working. But builds in lots of protection for you. Sliding scale - when you live with people, how much are you keeping for yourself. It really comes into play when you have kids. That’s when it gets interesting. The parenting dynamic can become tense. It’s always a conversation between the individual and the collective. It might be interesting to hear more about how they’ve doing. Community in Milano - Bovisa Co-housing. Post on Edgeryders. Premise when we got there was not as anticipated. Lack of understanding at the beginning that this was a communal project. Spectrum between family and ‘sociality’. Moved over time to sociality but not deliberately. Self-selection. Very organic. Connected to sharing everything - vs - sharing common values. Design, expectation, governance. WHAT WOULD BE AN ASPECT OF COMMUNITY SPACES LIVING/WORKING/LEARNING THAT YOU WANT TO LEARN AT OPENVILLAGE? Bernard: Water supply - testing water. Trying to live with off grid. Reed beds. There are people working on this that we can network with. Several proposals have touched on the importance of water, there is energy to work with. or is it also more practical - like plumbing - that you're after? Winnie: some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point Noemi: How people learn to live together while also making a contribution in the world. Lifestyle - impact relationship. Gehan: In GalGael: we don’t live together but we work together. Drug & alcohol policy but this doesn’t keep people safe. Collective policing versus authoritarian policing - still limited; how to go beyond the reach of policy - perhaps by creating working principles that guide day to day interactions and relations? John: underlying theme would be just asking them what are ways to form alliances without a pre-defined outcome. What is the commitment when people do decide to come/live together?    What about you? What would you like to learn about?",/post/6415,2017-06-27T13:06:26.000Z,2017-06-27T13:06:26.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1321 6059,v1.0,,"Co-Living: ""Collective policing and policy-ing""? Simon from England - be useful to try to get his engagement. Lancaster co-housing. Not working. But builds in lots of protection for you. Sliding scale - when you live with people, how much are you keeping for yourself. It really comes into play when you have kids. That’s when it gets interesting. The parenting dynamic can become tense. It’s always a conversation between the individual and the collective. It might be interesting to hear more about how they’ve doing. Community in Milano - Bovisa Co-housing. Post on Edgeryders. Premise when we got there was not as anticipated. Lack of understanding at the beginning that this was a communal project. Spectrum between family and ‘sociality’. Moved over time to sociality but not deliberately. Self-selection. Very organic. Connected to sharing everything - vs - sharing common values. Design, expectation, governance. WHAT WOULD BE AN ASPECT OF COMMUNITY SPACES LIVING/WORKING/LEARNING THAT YOU WANT TO LEARN AT OPENVILLAGE? Bernard: Water supply - testing water. Trying to live with off grid. Reed beds. There are people working on this that we can network with. Several proposals have touched on the importance of water, there is energy to work with. or is it also more practical - like plumbing - that you're after? Winnie: some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point Noemi: How people learn to live together while also making a contribution in the world. Lifestyle - impact relationship. Gehan: In GalGael: we don’t live together but we work together. Drug & alcohol policy but this doesn’t keep people safe. Collective policing versus authoritarian policing - still limited; how to go beyond the reach of policy - perhaps by creating working principles that guide day to day interactions and relations? John: underlying theme would be just asking them what are ways to form alliances without a pre-defined outcome. What is the commitment when people do decide to come/live together?    What about you? What would you like to learn about?",/post/6415,2017-06-27T13:06:18.000Z,2017-06-27T13:06:18.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,416 5544,v1.0,,"Open Policy making group in Milano as they work on Collectively enforcing a mobility policy. How do you make people comply with this? Its cheaper for shop owners to pay the fine. Working with social designers, ethnographers. Collective law enforcement. Is it about understanding constraints at a system level? A live debate…? Let Noemi know what is needed to go deeper on this theme.",/post/6415,2017-06-27T13:06:08.000Z,2017-06-27T13:06:08.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,329 9100,v1.0,,"Noemi: Help with feedback on the programme pls? https://edgeryders.eu/openvillage/program Open Policy making group in Milano as they work on Collectively enforcing a mobility policy. How do you make people comply with this? Its cheaper for shop owners to pay the fine. Working with social designers, ethnographers. Collective law enforcement. Is it about understanding constraints at a system level? A live debate…? Let Noemi know what is needed to go deeper on this theme.  Do a search on the network and see what work is happening on policy and explore gaps. Send invitation to get people to participate in a panel- starting with @Luciascopelliti @Matteo & co.",/post/6415,2017-06-27T13:05:59.000Z,2017-06-27T13:05:59.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1255 7230,v1.0,,"That’s by getting into anything that is public participation, getting lots of groups together.",/post/6415,2017-06-27T13:04:56.000Z,2017-06-27T13:04:56.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,784 11313,v1.0,,"Galway City Community Network (CCCN) - they tried to influence the council. Galway got a Greenleaf award - there were events promised, funding,... and nothing happened. Currently all the environmental groups are putting pressure for something to actually happen, by going international: “Because we’re officially registered we wrote to the Council through Galway’s CCCN. The next stage is to go directly to the Greenleaf in Europe”.",/post/6415,2017-06-27T13:04:48.000Z,2017-06-27T13:04:48.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1802 7326,v1.0,,"Galway City Community Network (CCCN) - they tried to influence the council. Galway got a Greenleaf award - there were events promised, funding,... and nothing happened. Currently all the environmental groups are putting pressure for something to actually happen, by going international: “Because we’re officially registered we wrote to the Council through Galway’s CCCN. The next stage is to go directly to the Greenleaf in Europe”.",/post/6415,2017-06-27T13:03:40.000Z,2017-06-27T13:03:40.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,805 6135,v1.0,,"How do we create a culture that creates an environment, an ecology of care?",/post/6415,2017-06-27T13:03:20.000Z,2017-06-27T13:03:20.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,433 6137,v1.0,,"How do we create a culture that creates an environment, an ecology of care?",/post/6415,2017-06-27T13:02:58.000Z,2017-06-27T13:02:58.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,434 9476,v1.0,,Are we over-investing in one way of producing change? That being through policy.,/post/6415,2017-06-27T13:02:35.000Z,2017-06-27T13:02:35.000Z,6415,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6382,1321 4875,v1.0,,"We have access to a Biosafety Level 2 lab in Ghent, yay!",/post/8319,2017-06-27T13:01:52.000Z,2017-06-27T13:01:52.000Z,8319,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6389,101 6129,v1.0,,"We have access to a Biosafety Level 2 lab in Ghent, yay!",/post/8319,2017-06-27T13:01:34.000Z,2017-06-27T13:01:34.000Z,8319,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6389,432 4863,v1.0,,"And drinks were had. Only short updates as not much happened in the last two weeks. We further planned the trip to Amsterdam for the biohackathon and discussed general things. We can use the leftover iGem funds for buying consumables. This will get us going with the plasimids that are set to arrive soon We have access to a Biosafety Level 2 lab in Ghent, yay! We also asked ourselves: what is the legislation around genetic engineering in open sea? Could it be unregulated? A first short search on the internet did not deliver any results",/post/8319,2017-06-27T13:01:18.000Z,2017-06-27T13:01:18.000Z,8319,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6389,100 9087,v1.0,,"And drinks were had. Only short updates as not much happened in the last two weeks. We further planned the trip to Amsterdam for the biohackathon and discussed general things. We can use the leftover iGem funds for buying consumables. This will get us going with the plasimids that are set to arrive soon We have access to a Biosafety Level 2 lab in Ghent, yay! We also asked ourselves: what is the legislation around genetic engineering in open sea? Could it be unregulated? A first short search on the internet did not deliver any results...",/post/8319,2017-06-27T13:01:10.000Z,2017-06-27T13:01:10.000Z,8319,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6389,1253 9086,v1.0,,"Hi all, I propose to meet each other at Geuzenhuis at 8pm this Wednesday the 21st for the open insulin meeting. We might as well combine the get together with a drink. Hope to see you there!",/post/6422,2017-06-27T12:59:00.000Z,2017-06-27T12:59:00.000Z,6422,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6389,1253 7437,v1.0,,"Hi @Lucy , welcome on the platform! For this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together. We should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?",/post/20342,2017-06-27T12:44:47.000Z,2017-06-27T12:44:47.000Z,20342,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,851 9231,v1.0,,"i @Lucy , welcome on the platform! For this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together. We should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?",/post/20342,2017-06-27T12:44:04.000Z,2017-06-27T12:44:04.000Z,20342,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1270 10428,v1.0,,"Hi @Lucy , welcome on the platform! For this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together. We should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?",/post/20342,2017-06-27T12:43:47.000Z,2017-06-27T12:43:47.000Z,20342,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1540 7017,v1.0,,"Hi @Lucy , welcome on the platform! For this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together. We should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?",/post/20342,2017-06-27T12:43:41.000Z,2017-06-27T12:43:41.000Z,20342,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,732 10427,v1.0,,"Wow - congratulations on the World Bank bid. That's huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications. I had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they're based in the US). Most recently they've been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It's a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices. In Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well. Neither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.",/post/14809,2017-06-27T12:43:28.000Z,2017-06-27T12:43:28.000Z,14809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1540 10703,v1.0,,"Wow - congratulations on the World Bank bid. That's huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications. I had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they're based in the US). Most recently they've been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It's a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices. In Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well. Neither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.",/post/14809,2017-06-27T12:43:07.000Z,2017-06-27T12:43:07.000Z,14809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1629 7532,v1.0,,"Wow - congratulations on the World Bank bid. That's huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications. I had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they're based in the US). Most recently they've been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It's a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices. In Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well. Neither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.",/post/14809,2017-06-27T12:42:57.000Z,2017-06-27T12:42:57.000Z,14809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,876 10702,v1.0,,"A little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project= 2.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds. We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned. I don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...",/post/7509,2017-06-27T12:42:46.000Z,2017-06-27T12:42:46.000Z,7509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1629 10426,v1.0,,"A little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project= 2.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds. We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned. I don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...",/post/7509,2017-06-27T12:42:39.000Z,2017-06-27T12:42:39.000Z,7509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1540 7531,v1.0,,"A little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project= 2.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds. We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned. I don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...",/post/7509,2017-06-27T12:42:19.000Z,2017-06-27T12:42:19.000Z,7509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,876 8476,v1.0,,How can the impact of our projects be evaluated?,/post/6427,2017-06-27T10:21:50.000Z,2017-06-27T10:21:50.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1123 9842,v1.0,,"There is a lot of perceived risk in funding non-institutional projects, especially at the European level where so many stakeholders are involved. How to we allay those fears? What about ethics committees, scientific advisory boards, financial controlling...?",/post/6427,2017-06-27T10:21:43.000Z,2017-06-27T10:21:43.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1425 10154,v1.0,,"There is a lot of perceived risk in funding non-institutional projects, especially at the European level where so many stakeholders are involved. How to we allay those fears? What about ethics committees, scientific advisory boards, financial controlling...?",/post/6427,2017-06-27T10:21:37.000Z,2017-06-27T10:21:37.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1468 9454,v1.0,,"OUR PROGRESS We took part in the Mozilla Global Sprint earlier this month with a focus on the P2P side of the project. However, for now we think the priority should really be to get an advocacy platform up and running as soon as possible in the hope that we might still be able to have some influence on agenda setting for FP9. In the short term we hope soon to secure funding to gather 4-5 European community/project organisers together for a co-design sprint to lay the foundation for the network – describe our identity, values, mission, begin to craft our advocacy arguments and roadmap next steps – and build a basic website.",/post/6427,2017-06-27T10:21:22.000Z,2017-06-27T10:21:22.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1315 4588,v1.0,,initiatives: part ‘P2P: sharing best practices’ and part ‘advocacy for access to public research funding’. So far most of the work we’ve done has been about growing the network and finding our identity.,/post/6427,2017-06-27T10:21:02.000Z,2017-06-27T10:21:02.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,24 9361,v1.0,,"and inequitable interactions with institutional partners, but are now focussed on channeling our energy into positive action. It is a meta network between DIY science initiatives: part ‘P2P: sharing best practices’ and part ‘advocacy for access to public research funding’. So far most of the work we’ve done has been about growing the network and finding our identity.",/post/6427,2017-06-27T10:20:57.000Z,2017-06-27T10:20:57.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1294 9713,v1.0,,"Finding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to ‘citizen science’ at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.",/post/6427,2017-06-27T10:20:48.000Z,2017-06-27T10:20:48.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1389 9475,v1.0,,"THE PROBLEM From talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities — we all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. Finding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to ‘citizen science’ at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.",/post/6427,2017-06-27T10:20:36.000Z,2017-06-27T10:20:36.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1321 5458,v1.0,,"THE PROBLEM From talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities — we all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. Finding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to ‘citizen science’ at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.",/post/6427,2017-06-27T10:20:30.000Z,2017-06-27T10:20:30.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,312 4862,v1.0,,"From talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities — we all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. Finding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to ‘citizen science’ at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.",/post/6427,2017-06-27T10:20:24.000Z,2017-06-27T10:20:24.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,100 7547,v1.0,,"cultural projects. But we’re already at the limit of what we can achieve as volunteers. It’s a classic Catch 22 volunteer trap – we need money to buy us more time, but we don’t have enough time to work on finding money.",/post/6427,2017-06-27T10:20:11.000Z,2017-06-27T10:20:11.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,877 11400,v1.0,,"cultural projects. But we’re already at the limit of what we can achieve as volunteers. It’s a classic Catch 22 volunteer trap – we need money to buy us more time, but we don’t have enough time to work on finding money.",/post/6427,2017-06-27T10:20:04.000Z,2017-06-27T10:20:04.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,1832 7721,v1.0,,"I’m one of the volunteer organisers of a community of science hackers in Berlin. Since 2013 we’ve been running a local edition of the hackathon Science Hack Day which brings together scientists, artists, designers, engineers, developers and other enthusiasts with an open brief to collaborate, ideate and hack together. We’ve grown a really amazing community of passionate and talented interdisciplinary folks and we’d love to be able to develop some more ambitious civic or cultural projects. But we’re already at the limit of what we can achieve as volunteers. It’s a classic Catch 22 volunteer trap – we need money to buy us more time, but we don’t have enough time to work on finding money.",/post/6427,2017-06-27T10:19:53.000Z,2017-06-27T10:19:53.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,921 7755,v1.0,,"I’d like to propose a session around a recent new project – the DIY Science Network – with a lot of parallels with Opencare. It would be great to connect these efforts where it makes sense.   I’m one of the volunteer organisers of a community of science hackers in Berlin. Since 2013 we’ve been running a local edition of the hackathon Science Hack Day which brings together scientists, artists, designers, engineers, developers and other enthusiasts with an open brief to collaborate, ideate and hack together. We’ve grown a really amazing community of passionate and talented interdisciplinary folks and we’d love to be able to develop some more ambitious civic or cultural projects. But we’re already at the limit of what we can achieve as volunteers. It’s a classic Catch 22 volunteer trap – we need money to buy us more time, but we don’t have enough time to work on finding money.   THE PROBLEM From talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities — we all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. Finding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to ‘citizen science’ at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.   JOINING FORCES: THE DIY SCIENCE NETWORK The DIY Science Network has grown out of a number of conversations around these topics. We exploded into existence last autumn fueled by some rather difficult and inequitable interactions with institutional partners, but are now focussed on channeling our energy into positive action. It is a meta network between DIY science initiatives: part ‘P2P: sharing best practices’ and part ‘advocacy for access to public research funding’. So far most of the work we’ve done has been about growing the network and finding our identity.     OUR PROGRESS We took part in the Mozilla Global Sprint earlier this month with a focus on the P2P side of the project. However, for now we think the priority should really be to get an advocacy platform up and running as soon as possible in the hope that we might still be able to have some influence on agenda setting for FP9. In the short term we hope soon to secure funding to gather 4-5 European community/project organisers together for a co-design sprint to lay the foundation for the network – describe our identity, values, mission, begin to craft our advocacy arguments and roadmap next steps – and build a basic website.   At #Openvillage, we would like to keep our focus on the advocacy side of the project:   MAIN CHALLENGE How do we encourage funders to support DIY science initiatives now? And, longer term, how can we foster a funding culture that is supportive of non-institutional science?   QUESTIONS TO ADDRESS What kind of funding do we need? (fellowships? core funding? project funding?) and how much? There is a lot of perceived risk in funding non-institutional projects, especially at the European level where so many stakeholders are involved. How to we allay those fears? What about ethics committees, scientific advisory boards, financial controlling...? How can the impact of our projects be evaluated? Does it make sense to work with intermediary organisations (fiscal sponsors) who manage the distribution of smaller funds (Individual DIY science initiatives are not usually looking for EC-scale funding budgets - think €1000s or €10 000s rather than €100 000s or €millions.), provide training/project co-design, mitigating risk for the funding bodies? Is public funding even the way to go? E.g. Would be we better off concentrating on changing the culture of science-funding foundations to encourage them to support DIY science? Should we be working on developing our own business models? ...   As yet we don’t have a clear idea for a format for #openvillage - it will depend on what stage we are at by the time of the festival. But in general, we are very open to talk about how to bring in this topic in the most constructive way possible for everyone.",/post/6427,2017-06-27T10:19:43.000Z,2017-06-27T10:19:43.000Z,6427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6394,924 11449,v1.0,,"For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example. Fly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments. We will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings. The session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms). As the group will be diverse and there are multiple things to do, we’ll work with a rotation, so that everyone gets to do a little of everything. The session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website. What we still need for the session: People with fishing experience to teach casting techniques People who want to facilitate the citizen science experiments Fishing rods and reels to borrow Help with online presence An issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!",/post/6429,2017-06-27T10:17:32.000Z,2017-06-27T10:17:32.000Z,6429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6396,1845 11448,v1.0,,"For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example. Fly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments. We will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings. The session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms). As the group will be diverse and there are multiple things to do, we’ll work with a rotation, so that everyone gets to do a little of everything. The session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website. What we still need for the session: People with fishing experience to teach casting techniques People who want to facilitate the citizen science experiments Fishing rods and reels to borrow Help with online presence An issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!",/post/6429,2017-06-27T10:16:37.000Z,2017-06-27T10:16:37.000Z,6429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6396,1844 7420,v1.0,,"For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example. Fly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments. We will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings. The session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms). As the group will be diverse and there are multiple things to do, we’ll work with a rotation, so that everyone gets to do a little of everything. The session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website. What we still need for the session: People with fishing experience to teach casting techniques People who want to facilitate the citizen science experiments Fishing rods and reels to borrow Help with online presence An issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!",/post/6429,2017-06-27T10:16:21.000Z,2017-06-27T10:16:21.000Z,6429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6396,844 10164,v1.0,,"For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example. Fly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments. We will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings. The session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms). As the group will be diverse and there are multiple things to do, we’ll work with a rotation, so that everyone gets to do a little of everything. The session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website. What we still need for the session: People with fishing experience to teach casting techniques People who want to facilitate the citizen science experiments Fishing rods and reels to borrow Help with online presence An issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!",/post/6429,2017-06-27T10:16:11.000Z,2017-06-27T10:16:11.000Z,6429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6396,1474 11442,v1.0,,"For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example. Fly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments. We will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings. The session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms). As the group will be diverse and there are multiple things to do, we’ll work with a rotation, so that everyone gets to do a little of everything. The session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website. What we still need for the session: People with fishing experience to teach casting techniques People who want to facilitate the citizen science experiments Fishing rods and reels to borrow Help with online presence An issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!",/post/6429,2017-06-27T10:16:05.000Z,2017-06-27T10:16:05.000Z,6429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6396,1843 10134,v1.0,,"August 2016, Breathing Games took part to the Open & Change Care application to MacArthur's Foundation. April 2017, we were selected for a two-weeks residence in Milan, organized by EdgeRyders, WeMake and OpenCare. We document our residence in following spaces. Feel free to contact us to contribute! Main document Repository Source code (GitLab) Images   Further articles on EdgeRyders Worldwide, 1 in 5 people has a respiratory disease... Is community-based and participatory health care sufficient? SENSORICA and health care Other threads on EdgeRyders Maker in residence – Open call Maker in residence – Welcome OpenCare OpenCare research project",/post/870,2017-06-27T10:14:57.000Z,2017-06-27T10:14:57.000Z,870,3323,AnnotatorStore::TextAnnotation,,,,,,,,,837,1453 6507,v1.0,,"August 2016, Breathing Games took part to the Open & Change Care application to MacArthur's Foundation. April 2017, we were selected for a two-weeks residence in Milan, organized by EdgeRyders, WeMake and OpenCare. We document our residence in following spaces. Feel free to contact us to contribute! Main document Repository Source code (GitLab) Images   Further articles on EdgeRyders Worldwide, 1 in 5 people has a respiratory disease... Is community-based and participatory health care sufficient? SENSORICA and health care Other threads on EdgeRyders Maker in residence – Open call Maker in residence – Welcome OpenCare OpenCare research project",/post/870,2017-06-27T10:14:52.000Z,2017-06-27T10:14:52.000Z,870,3323,AnnotatorStore::TextAnnotation,,,,,,,,,837,485 8892,v1.0,,Regan,/post/6432,2017-06-27T10:14:26.000Z,2017-06-27T10:14:26.000Z,6432,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6399,1191 11579,v1.0,,Anyway I was reminded of the Museum of the Future that another connection who's expertise lies in scenario planning around the future of health...  he's used MoF in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple 'downloading' good info and purely presentation based formats? I'm due to meet up with him soon - I'll ask him what would be involved...,/post/23963,2017-06-27T10:13:47.000Z,2017-06-27T10:13:47.000Z,23963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,1873 7936,v1.0,,Anyway I was reminded of the Museum of the Future that another connection who's expertise lies in scenario planning around the future of health...  he's used MoF in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple 'downloading' good info and purely presentation based formats? I'm due to meet up with him soon - I'll ask him what would be involved...,/post/23963,2017-06-27T10:13:42.000Z,2017-06-27T10:13:42.000Z,23963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,978 4703,v1.0,,"I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander's work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed 'Rat Park' & there's a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights?",/post/23963,2017-06-27T10:12:57.000Z,2017-06-27T10:12:57.000Z,23963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,60 4584,v1.0,,"I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander's work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed 'Rat Park' & there's a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights?",/post/23963,2017-06-27T10:12:42.000Z,2017-06-27T10:12:42.000Z,23963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,23 9474,v1.0,,"I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander's work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed 'Rat Park' & there's a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights? Anyway I was reminded of the Museum of the Future that another connection who's expertise lies in scenario planning around the future of health...  he's used MoF in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple 'downloading' good info and purely presentation based formats? I'm due to meet up with him soon - I'll ask him what would be involved...",/post/23963,2017-06-27T10:12:28.000Z,2017-06-27T10:12:28.000Z,23963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,1321 5962,v1.0,,"Seconded, and also surprised by the diversity of Bernard's interests. Makes me realise the importance of 'connectors' at the festival and the preparation of it, who can see where different fields find each other.",/post/11282,2017-06-27T10:12:13.000Z,2017-06-27T10:12:13.000Z,11282,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,394 5961,v1.0,,"I see a lot of value in sharing where we are with the work and discovering overlaps - drawing each other's attention that someone in the community is already asking similar questions like ours. I was also positively surprised about Bernard's process of really digging in the network to find collaborators around homelessness and mental illness - and looking forward to a few paragraphs with what they intend to do so as to latch onto that to invite those working on the same.",/post/8253,2017-06-27T10:12:03.000Z,2017-06-27T10:12:03.000Z,8253,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,394 9473,v1.0,,"Gehan: still thinking deeply about the theme Policies are not bad in and of themselves, but they are flawed can be improved. Examples of policies that enable / disrupt citizen responses care work Drawing on systems theory Humanity has a lot of genuine impulses around care, and policies can disrupt that. Check http://procomuns.net/en/program/ in relation to open care Thought this session looked relevant - City Challenges: Economics of care. ""To what extent do digital platforms and collaborative methodologies cover the field of care, or can they be applied and respond to the needs that exist in the field of the care economy?"" Technology infrastructure and blockchain for a common collaborative economy. ""We will introduce new technological tools within our reach and discuss technological strategies to then dynamically debate (with “balls”) about the potential (or not) of blockchain to promote the procommon collaborative economy.""",/post/6435,2017-06-27T10:11:53.000Z,2017-06-27T10:11:53.000Z,6435,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,1321 9190,v1.0,,"We need sessions on the same question across the different themes: Funding in diy projects separately from Funding in policy etc doesn’t make sense! We should get a post up on the forum for that, and combine with another call.",/post/6435,2017-06-27T10:11:36.000Z,2017-06-27T10:11:36.000Z,6435,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,1265 11530,v1.0,,"Following up on policy making panel/group. Wrote to person in Milano, waiting for reply. See how they would like to approach the session. Case of mobility ramps (co-design with citizens). Is there something specifically we can do with civil servants around the table?",/post/6435,2017-06-27T10:11:05.000Z,2017-06-27T10:11:05.000Z,6435,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6402,1863 10019,v1.0,,"https://edgeryders.eu/en/response-questions It is a Drupal view that renders all the questions from all the stories submitted by community members in opencare. If you remember, when submitting a story one needs to fill in the Story editor with some information about what is is, who do you want to reach etc?  I can do Tuesday 6:30 PM this week.",/post/15402,2017-06-27T10:10:28.000Z,2017-06-27T10:10:28.000Z,15402,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1445 10208,v1.0,,"How do we ensure compliance with legal frameworks and patents? How do we ensure reliability and safety for users?",/post/6439,2017-06-27T10:10:06.000Z,2017-06-27T10:10:06.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1483 8296,v1.0,,"How do we ensure compliance with legal frameworks and patents? How do we ensure reliability and safety for users?",/post/6439,2017-06-27T10:10:01.000Z,2017-06-27T10:10:01.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1074 7530,v1.0,,How do we fund our projects? How do we sustain our project financially?,/post/6439,2017-06-27T10:09:53.000Z,2017-06-27T10:09:53.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,876 9808,v1.0,,"How to spread your message, how to reach people, how to get your creation out there?",/post/6439,2017-06-27T10:09:37.000Z,2017-06-27T10:09:37.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1419 10627,v1.0,,"How to spread your message, how to reach people, how to get your creation out there?",/post/6439,2017-06-27T10:09:32.000Z,2017-06-27T10:09:32.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1614 7364,v1.0,,How to distribute value in a fair way?,/post/6439,2017-06-27T10:08:56.000Z,2017-06-27T10:08:56.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,822 10080,v1.0,,How to distribute value in a fair way?,/post/6439,2017-06-27T10:08:50.000Z,2017-06-27T10:08:50.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1450 11496,v1.0,,How to work with institutions?,/post/6439,2017-06-27T10:08:16.000Z,2017-06-27T10:08:16.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1860 9472,v1.0,,What is a good way to influence policy?,/post/6439,2017-06-27T10:08:06.000Z,2017-06-27T10:08:06.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1321 10018,v1.0,,"How to spread your message, how to reach people, how to get your creation out there? What organisational structures and practices models do we use to make sure contributors are getting the most out of their contributions participation and their contributions have the most impact? How do we fund our projects? How do we sustain our project financially? What is a good way to influence policy? How do we ensure compliance with legal frameworks and patents? How do we ensure reliability and safety for users? How do you professionalize without compromising values? How to work with institutions? How to distribute value in a fair way?",/post/6439,2017-06-27T10:07:56.000Z,2017-06-27T10:07:56.000Z,6439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6406,1445 8190,v1.0,,"Panel - 70 minutes - Space for the Future Of Work - How can communities contribute to defining the future of work, July, 5th - 4.50 pm to 6pmSession description here:  https://ouisharefestparis2017.sched.com/event/B1da/space-for-the-future-of-work-how-can-communities-contribute-to-defining-the-future-of-work. It's heavily media covered event and unqiue opportunity to get out what we are doing far and wide. it would be a good opportunity to present what we are doing in the form of a succinct booklet to share with participants... I need your help to compile the following information: a short description of the fellowship program experiences so far and  work you guys did at CERN @markomanka  @olivier and @WinniePoncelet @Gehan As well as the program for the event including description of events, tracks and sessions with high resolution photos of the curators and session leaders @Noemi and @Owen Roadmap for how we are moving forward (REEF, REEFMENA + WB involvement etc) @Noemi @Matthias @johncoate @Hazem  @ClaireDvn I think this is a good opportunity to introduce what we are doing over the next couple of months. Deadline: July 1. Could we dedicate this week's community call to this @Noemi and @Owen ?",/post/20865,2017-06-26T16:45:15.000Z,2017-06-26T16:45:15.000Z,20865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6407,1047 5470,v1.0,,"http://paris.ouisharefest.com/schedule/ ""IN THE CONTEXT OF CURRENT POLITICAL TURMOIL, CITIES AND CITIZENS ARE AT THE HEART OF THE NEXT GREAT TRANSFORMATION."" There sees like lots of relevant connections to be made at this event. Is anyone going? Its not far off but I'm considering it...",/post/6440,2017-06-26T16:44:56.000Z,2017-06-26T16:44:56.000Z,6440,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6407,313 5451,v1.0,,"http://paris.ouisharefest.com/schedule/ ""IN THE CONTEXT OF CURRENT POLITICAL TURMOIL, CITIES AND CITIZENS ARE AT THE HEART OF THE NEXT GREAT TRANSFORMATION."" There sees like lots of relevant connections to be made at this event. Is anyone going? Its not far off but I'm considering it...",/post/6440,2017-06-26T16:44:45.000Z,2017-06-26T16:44:45.000Z,6440,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6407,311 7789,v1.0,,"I've cut and paste the text below from the web - just wondered if anyone had existing links as it sounds as though there's potential connections for OpenCare in general? ""Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things). Nuka was developed in the late 1990s after legislation allowed Alaska Native people to take greater control over their health services, transforming the community’s role from ‘recipients of services’ to ‘owners’ of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of ‘working together to achieve wellness through health and related services’. Southcentral Foundation provides the majority of the population’s health services on a prepaid basis.""",/post/6441,2017-06-26T16:44:08.000Z,2017-06-26T16:44:08.000Z,6441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6408,941 4566,v1.0,,"I've cut and paste the text below from the web - just wondered if anyone had existing links as it sounds as though there's potential connections for OpenCare in general? ""Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things). Nuka was developed in the late 1990s after legislation allowed Alaska Native people to take greater control over their health services, transforming the community’s role from ‘recipients of services’ to ‘owners’ of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of ‘working together to achieve wellness through health and related services’. Southcentral Foundation provides the majority of the population’s health services on a prepaid basis.""",/post/6441,2017-06-26T16:43:53.000Z,2017-06-26T16:43:53.000Z,6441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6408,18 7991,v1.0,,"I've cut and paste the text below from the web - just wondered if anyone had existing links as it sounds as though there's potential connections for OpenCare in general? ""Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things). Nuka was developed in the late 1990s after legislation allowed Alaska Native people to take greater control over their health services, transforming the community’s role from ‘recipients of services’ to ‘owners’ of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of ‘working together to achieve wellness through health and related services’. Southcentral Foundation provides the majority of the population’s health services on a prepaid basis.""",/post/6441,2017-06-26T16:43:42.000Z,2017-06-26T16:43:42.000Z,6441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6408,992 5842,v1.0,,"I've cut and paste the text below from the web - just wondered if anyone had existing links as it sounds as though there's potential connections for OpenCare in general? ""Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things). Nuka was developed in the late 1990s after legislation allowed Alaska Native people to take greater control over their health services, transforming the community’s role from ‘recipients of services’ to ‘owners’ of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of ‘working together to achieve wellness through health and related services’. Southcentral Foundation provides the majority of the population’s health services on a prepaid basis.""",/post/6441,2017-06-26T16:43:35.000Z,2017-06-26T16:43:35.000Z,6441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6408,377 6506,v1.0,,"On Wednesday 31st of May there was the closure of the CALL FOR MAKERS | opencare Maker in Residence.   The application process wasn’t easy at all! It required three main steps. The reason why of this process lies on our opencare vision: we strongly believe that a collaboration is also possible within online and offline communities, composed by professionals, doctors, researchers, practitioners, economists, social media experts, designers, activists but also real users, citizens, people with special needs, students, makers, tinkers and many other stakeholders interested in building encounters. By clicking on this link you can read all the stories  which applied to the MIR within the 3 topics :   Hacking and making Healthcare and social care Open science and technologies Allright makers, time to stow the gab and announce the accepted projects. The opencare team, based at WeMake, is glad to announce that the following projects will be officially part of the first edition of opencare Maker in Residence: WeHandU |  The Question: Perform simple and everyday tasks independently. The Problem: A person with amputee hand and locked elbow. The Solution: A helping device held in the hand, capable of interacting with multiple items Continue to read the Story of WeHandU on EdgeRyders.   ReHub | by Mauro Alfieri and Sara Savian @reHub The Question: Is there a quantitative tool to monitor the hand rehabilitation? The Problem: The lack of a tool able to provide a digital feedback on the progress of proprioceptive physiotherapy. The Solution: A wearable glove that can record and transmit data thanks to a sensor system. Continue to read the Story of ReHub on EdgeRyders.   ResQ | by Luca Tarasco Nushin Alishahi Emanuela Pucci Francesca Previati @resq  The Question: How to help refugees in getting a more efficient healthcare service? The Problem: Language barriers often lead to misunderstanding and psychological weight for foreigner patients. The Solution: ResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.  Continue to read the Story of ResQ on EdgeRyders.   Breathing Games | by Fabio Balli, Povilas and Duglas The Question: How to ensure that (lifesaving) health innovation benefits all? The Problem: Competition and copyrights hinder the free use and adaptation of health innovation. The Solution: We co-create knowledge and technologies that can be used and adapted by everyone, in all countries. Continue to read the Story of Breathing Games on EdgeRyders.   AllergoKi | by Nicoletta Faltracco and Monica Zambolin The Question: There are a lot of people with food allergies and/or intolerances, that too often are forced to renounce to have dinner outside because they are afraid to feel bad. The Problem: People with food allergies and/or intolerances feel immense embarrassment every time they have to tell their health condition. The Solution: AllergoKi wants to create a visual/tech “system” placed in the restaurants or any food court, in order to have a comfortable and convivial atmosphere for anyone. Continue to read the Story of AllergoKi on EdgeRyders.   In the next days we are going to meet each team, in order to set a specific schedule in terms of calendar, resources, activities and much more.  opencare Maker in Residece | WeMake team",/post/865,2017-06-26T15:27:36.000Z,2017-06-26T15:27:36.000Z,865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,832,485 8404,v1.0,,"On Wednesday 31st of May there was the closure of the CALL FOR MAKERS | opencare Maker in Residence.   The application process wasn’t easy at all! It required three main steps. The reason why of this process lies on our opencare vision: we strongly believe that a collaboration is also possible within online and offline communities, composed by professionals, doctors, researchers, practitioners, economists, social media experts, designers, activists but also real users, citizens, people with special needs, students, makers, tinkers and many other stakeholders interested in building encounters. By clicking on this link you can read all the stories  which applied to the MIR within the 3 topics :   Hacking and making Healthcare and social care Open science and technologies Allright makers, time to stow the gab and announce the accepted projects. The opencare team, based at WeMake, is glad to announce that the following projects will be officially part of the first edition of opencare Maker in Residence: WeHandU |  The Question: Perform simple and everyday tasks independently. The Problem: A person with amputee hand and locked elbow. The Solution: A helping device held in the hand, capable of interacting with multiple items Continue to read the Story of WeHandU on EdgeRyders.   ReHub | by Mauro Alfieri and Sara Savian @reHub The Question: Is there a quantitative tool to monitor the hand rehabilitation? The Problem: The lack of a tool able to provide a digital feedback on the progress of proprioceptive physiotherapy. The Solution: A wearable glove that can record and transmit data thanks to a sensor system. Continue to read the Story of ReHub on EdgeRyders.   ResQ | by Luca Tarasco Nushin Alishahi Emanuela Pucci Francesca Previati @resq  The Question: How to help refugees in getting a more efficient healthcare service? The Problem: Language barriers often lead to misunderstanding and psychological weight for foreigner patients. The Solution: ResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.  Continue to read the Story of ResQ on EdgeRyders.   Breathing Games | by Fabio Balli, Povilas and Duglas The Question: How to ensure that (lifesaving) health innovation benefits all? The Problem: Competition and copyrights hinder the free use and adaptation of health innovation. The Solution: We co-create knowledge and technologies that can be used and adapted by everyone, in all countries. Continue to read the Story of Breathing Games on EdgeRyders.   AllergoKi | by Nicoletta Faltracco and Monica Zambolin The Question: There are a lot of people with food allergies and/or intolerances, that too often are forced to renounce to have dinner outside because they are afraid to feel bad. The Problem: People with food allergies and/or intolerances feel immense embarrassment every time they have to tell their health condition. The Solution: AllergoKi wants to create a visual/tech “system” placed in the restaurants or any food court, in order to have a comfortable and convivial atmosphere for anyone. Continue to read the Story of AllergoKi on EdgeRyders.   In the next days we are going to meet each team, in order to set a specific schedule in terms of calendar, resources, activities and much more.  opencare Maker in Residece | WeMake team",/post/865,2017-06-26T15:27:29.000Z,2017-06-26T15:27:29.000Z,865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,832,1107 8397,v1.0,,"On Wednesday 31st of May there was the closure of the CALL FOR MAKERS | opencare Maker in Residence.   The application process wasn’t easy at all! It required three main steps. The reason why of this process lies on our opencare vision: we strongly believe that a collaboration is also possible within online and offline communities, composed by professionals, doctors, researchers, practitioners, economists, social media experts, designers, activists but also real users, citizens, people with special needs, students, makers, tinkers and many other stakeholders interested in building encounters. By clicking on this link you can read all the stories  which applied to the MIR within the 3 topics :   Hacking and making Healthcare and social care Open science and technologies Allright makers, time to stow the gab and announce the accepted projects. The opencare team, based at WeMake, is glad to announce that the following projects will be officially part of the first edition of opencare Maker in Residence: WeHandU |  The Question: Perform simple and everyday tasks independently. The Problem: A person with amputee hand and locked elbow. The Solution: A helping device held in the hand, capable of interacting with multiple items Continue to read the Story of WeHandU on EdgeRyders.   ReHub | by Mauro Alfieri and Sara Savian @reHub The Question: Is there a quantitative tool to monitor the hand rehabilitation? The Problem: The lack of a tool able to provide a digital feedback on the progress of proprioceptive physiotherapy. The Solution: A wearable glove that can record and transmit data thanks to a sensor system. Continue to read the Story of ReHub on EdgeRyders.   ResQ | by Luca Tarasco Nushin Alishahi Emanuela Pucci Francesca Previati @resq  The Question: How to help refugees in getting a more efficient healthcare service? The Problem: Language barriers often lead to misunderstanding and psychological weight for foreigner patients. The Solution: ResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.  Continue to read the Story of ResQ on EdgeRyders.   Breathing Games | by Fabio Balli, Povilas and Duglas The Question: How to ensure that (lifesaving) health innovation benefits all? The Problem: Competition and copyrights hinder the free use and adaptation of health innovation. The Solution: We co-create knowledge and technologies that can be used and adapted by everyone, in all countries. Continue to read the Story of Breathing Games on EdgeRyders.   AllergoKi | by Nicoletta Faltracco and Monica Zambolin The Question: There are a lot of people with food allergies and/or intolerances, that too often are forced to renounce to have dinner outside because they are afraid to feel bad. The Problem: People with food allergies and/or intolerances feel immense embarrassment every time they have to tell their health condition. The Solution: AllergoKi wants to create a visual/tech “system” placed in the restaurants or any food court, in order to have a comfortable and convivial atmosphere for anyone. Continue to read the Story of AllergoKi on EdgeRyders.   In the next days we are going to meet each team, in order to set a specific schedule in terms of calendar, resources, activities and much more.  opencare Maker in Residece | WeMake team",/post/865,2017-06-26T15:27:19.000Z,2017-06-26T15:27:19.000Z,865,3323,AnnotatorStore::TextAnnotation,,,,,,,,,832,1106 7990,v1.0,,"Read what other Edgeryders are saying - Andrei’s At the edges of conflict and mixed identity makes a strong point on what it’s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: ""hate speech on both sides [of Transnistria] is still louder than the voices of peace"" Good for you: If you’re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you’re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother.   Good for everyone: Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.",/post/867,2017-06-26T15:26:41.000Z,2017-06-26T15:26:41.000Z,867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,834,992 6275,v1.0,,"Good for you: If you’re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you’re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother.   Good for everyone: Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.",/post/867,2017-06-26T15:26:25.000Z,2017-06-26T15:26:25.000Z,867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,834,447 8866,v1.0,,"Read what other Edgeryders are saying - Andrei’s At the edges of conflict and mixed identity makes a strong point on what it’s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: ""hate speech on both sides [of Transnistria] is still louder than the voices of peace"" Good for you: If you’re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you’re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother.   Good for everyone: Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.",/post/867,2017-06-26T15:26:20.000Z,2017-06-26T15:26:20.000Z,867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,834,1178 9427,v1.0,,"As we navigate through different layers of space - personal, communal, public, private; physical or immaterial - we find that each has its own unique dynamic that is conditioned by ownership, access and attitudes of the people inhabiting them. How we live with one another and how we make sense of the interactions when factoring in power relations, newer arrivals, meshing of spaces or other elements that constantly challenge the basis of our relationships? You can do this mission in either of two ways: Imagine a person moves to your town or city and tells you that they would like to hangout somewhere where they could make new friends. Where would you send them and why? What information or advice would you give them? What knowledge or skills do you think you would have found useful to settle in faster the last time you moved to a new place? Alternatively: Do you consider yourself an indigenous person? Why or why not? Interview someone who has moved to the city or town you live in, and ask him or her about their experience of the place. How does it compare to yours? Dig deeper into the topic Read what other Edgeryders are saying - Andrei’s At the edges of conflict and mixed identity makes a strong point on what it’s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: ""hate speech on both sides [of Transnistria] is still louder than the voices of peace"" Good for you: If you’re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you’re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother.   Good for everyone: Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity. Count me in! How do I participate? It’s easy! submit your contribution by sharing your story. If you´re not already signed in to the Edgeryders platform you can do it here. Remember to get the bigger picture on Living together.",/post/867,2017-06-26T15:26:01.000Z,2017-06-26T15:26:01.000Z,867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,834,1308 10017,v1.0,,"How we live with one another and how we make sense of the interactions when factoring in power relations, newer arrivals, meshing of spaces or other elements that constantly challenge the basis of our relationships?",/post/867,2017-06-26T15:25:35.000Z,2017-06-26T15:25:35.000Z,867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,834,1445 8421,v1.0,,"As we navigate through different layers of space - personal, communal, public, private; physical or immaterial - we find that each has its own unique dynamic that is conditioned by ownership, access and attitudes of the people inhabiting them. How we live with one another and how we make sense of the interactions when factoring in power relations, newer arrivals, meshing of spaces or other elements that constantly challenge the basis of our relationships? You can do this mission in either of two ways: Imagine a person moves to your town or city and tells you that they would like to hangout somewhere where they could make new friends. Where would you send them and why? What information or advice would you give them? What knowledge or skills do you think you would have found useful to settle in faster the last time you moved to a new place? Alternatively: Do you consider yourself an indigenous person? Why or why not? Interview someone who has moved to the city or town you live in, and ask him or her about their experience of the place. How does it compare to yours? Dig deeper into the topic Read what other Edgeryders are saying - Andrei’s At the edges of conflict and mixed identity makes a strong point on what it’s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: ""hate speech on both sides [of Transnistria] is still louder than the voices of peace"" Good for you: If you’re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you’re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother.   Good for everyone: Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity. Count me in! How do I participate? It’s easy! submit your contribution by sharing your story. If you´re not already signed in to the Edgeryders platform you can do it here. Remember to get the bigger picture on Living together.",/post/867,2017-06-26T15:25:16.000Z,2017-06-26T15:25:16.000Z,867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,834,1110 7032,v1.0,,"Makers in residence are supposed to deliver and publish on the web the output of their experience at WeMake. Finding the right way to record and develop a innovative and open experience seemed therefore a matter of concern in designing the opencare MIR program. During the last weeks GitHub, a social network for developers, became a obliged point of passage for some people at WeMake. Github allows to create repositories, communities and webpages (gh_pages), among the main features. Putting a project on github makes possibile for members to contribute remotely and for anyone to view and download it.",/post/868,2017-06-26T15:24:43.000Z,2017-06-26T15:24:43.000Z,868,3323,AnnotatorStore::TextAnnotation,,,,,,,,,835,738 8403,v1.0,,"Agile kick off at WeMake June the 13, 2017   Together with Chiara e Silvia, from the WeMake - OpenCare MIR team, we explored the main steps of the Agile Planning, which made us able to focus more on our project ResQ. For those who are not familiar with this methodology, Agile is an effective way of working that helps teams in identifying their unique value proposition, and how to make it real. Therefore we went through the following steps: 01_Why are we here 02_The elevator pitch 03_The product box 04_The Not list 05_Meet your neighbours 06_What keep us up at night 07_Size it up As following a deeper view on each one.",/post/580,2017-06-26T15:22:15.000Z,2017-06-26T15:22:15.000Z,580,3323,AnnotatorStore::TextAnnotation,,,,,,,,,547,1107 4610,v1.0,,"Agile kick off at WeMake June the 13, 2017   Together with Chiara e Silvia, from the WeMake - OpenCare MIR team, we explored the main steps of the Agile Planning, which made us able to focus more on our project ResQ. For those who are not familiar with this methodology, Agile is an effective way of working that helps teams in identifying their unique value proposition, and how to make it real. Therefore we went through the following steps: 01_Why are we here 02_The elevator pitch 03_The product box 04_The Not list 05_Meet your neighbours 06_What keep us up at night 07_Size it up As following a deeper view on each one.",/post/580,2017-06-26T15:22:06.000Z,2017-06-26T15:22:06.000Z,580,3323,AnnotatorStore::TextAnnotation,,,,,,,,,547,30 9316,v1.0,,"Open care is certainly related to the dimensions of access to practices, but also to information not as end-users, but as editors and reviewers. The evening was a good example of viable and inspired assemblage of citizens, institutions, norms and devices for the public.",/post/850,2017-06-26T15:18:12.000Z,2017-06-26T15:18:12.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1283 10398,v1.0,,"Open care is certainly related to the dimensions of access to practices, but also to information not as end-users, but as editors and reviewers. The evening was a good example of viable and inspired assemblage of citizens, institutions, norms and devices for the public.",/post/850,2017-06-26T15:18:06.000Z,2017-06-26T15:18:06.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1539 11495,v1.0,,A participant even talked about how power be embedded in institutions when it comes to filling forms to satisfy some requirements and how institutions make things difficult.,/post/850,2017-06-26T15:17:52.000Z,2017-06-26T15:17:52.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1860 7325,v1.0,,A participant even talked about how power be embedded in institutions when it comes to filling forms to satisfy some requirements and how institutions make things difficult.,/post/850,2017-06-26T15:17:46.000Z,2017-06-26T15:17:46.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,805 9556,v1.0,,A participant even talked about how power be embedded in institutions when it comes to filling forms to satisfy some requirements and how institutions make things difficult.,/post/850,2017-06-26T15:17:34.000Z,2017-06-26T15:17:34.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1342 8396,v1.0,,Makers have a peculiar perspective and bird's eye to hack technology and open it. There was great interest around such a technical procedure and bureaucratical details.,/post/850,2017-06-26T15:16:40.000Z,2017-06-26T15:16:40.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1106 6505,v1.0,,"hat -for instance- the ramp “bell” to call who is inside the shop, is mentioned only once on the website of the Municipality and is an important part needed to communicate between the customer, that might be someone who needs to access by a wheelchair, or a mother with a baby buggy.",/post/850,2017-06-26T15:15:57.000Z,2017-06-26T15:15:57.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,485 11465,v1.0,,"for instance- the ramp “bell” to call who is inside the shop, is mentioned only once on the website of the Municipality and is an important part needed to communicate between the customer, that might be someone who needs to access by a wheelchair, or a mother with a baby buggy.",/post/850,2017-06-26T15:15:48.000Z,2017-06-26T15:15:48.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1849 11539,v1.0,,"As facilitators, the openrampette team walked around to help and suggest to the participants how to tackle certain details. A load of pictures was taken around to witness the session. By my side, I was interested in taking pictures as well, even though my perspective was different, more focused on how the session was enacted and how a intersubjective level could emerge from and by the interaction of actors.",/post/850,2017-06-26T15:15:32.000Z,2017-06-26T15:15:32.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1865 4537,v1.0,,. The goal was to understand more on how about enforcing the regulations about an access ramp before the shop that can be removed when is not needed,/post/850,2017-06-26T15:15:21.000Z,2017-06-26T15:15:21.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,12 7234,v1.0,,The goal was to understand more on how about enforcing the regulations about an access ramp before the shop that can be removed when is not needed.,/post/850,2017-06-26T15:15:13.000Z,2017-06-26T15:15:13.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,786 10447,v1.0,,"The openrampette team worked for weeks in order to plan and deliver a well balanced session that included hard design needs by a user research approach and an easy, neat approach meant for anyone.",/post/850,2017-06-26T15:14:58.000Z,2017-06-26T15:14:58.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1552 11336,v1.0,,"The openrampette team worked for weeks in order to plan and deliver a well balanced session that included hard design needs by a user research approach and an easy, neat approach meant for anyone.",/post/850,2017-06-26T15:14:47.000Z,2017-06-26T15:14:47.000Z,850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,817,1811 7485,v1.0,,"An example of community project I recently took part in - along similar reasoning, is a community food waste dinner: takes a resource many people have: food leftovers - and use it to cook new dinners for others who could learn and do the same. Not poor people, but people who can then go home and reuse their waste in some positive way instead of throwing it to the garbage. Pay it forward, indeed.",/post/9905,2017-06-26T15:13:15.000Z,2017-06-26T15:13:15.000Z,9905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,860 5746,v1.0,,"An example of community project I recently took part in - along similar reasoning, is a community food waste dinner: takes a resource many people have: food leftovers - and use it to cook new dinners for others who could learn and do the same. Not poor people, but people who can then go home and reuse their waste in some positive way instead of throwing it to the garbage. Pay it forward, indeed.",/post/9905,2017-06-26T15:13:10.000Z,2017-06-26T15:13:10.000Z,9905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,366 8386,v1.0,,"Believe in human nature or not! A few years back I saw a movie with Kevin Spacy, Helen Hunt and Haley Joel Osment, “Pay it Forward”. The story of a social studies teacher who gives an assignment to his junior high school class to think of an idea to change the world for the better, then put it into action. When one young student creates a plan for ""paying forward"" favors, he sets in motion a wave of human kindness which went nation wise. There was one main emotion which did lead these actions but also was produced or given back – love or/and compassion. Can this happen in real life? Both psychologically and scientifically has been proven that positive emotions affect our health in a very positive way was well. Positive emotions release healthy hormones into our body and not only; the unhealthy release of cortisol and stress related hormones is lower as well. The most important emotions are gratitude, peace, joy, hope, and love. This external boost of positivity also creates neuro-pathways in the brain that are positive. This means that we are able to affect on the biological part of our brain and create a source of positivity which is supported externally as much as internally. Behavioral psychologists retain that even if aggressivity might be considered part of human nature, meaning that it is imprinted in our brain because of our ancestors or as part of human nature, a non aggressive behavior or approach can be taught. What would happen in the world if there would be more love and less aggressiveness? The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another. In this world is so easy to be skeptic and cynic. It is bad but also the media is playing a big role in reinforcing the bad. Without even being aware we cause and attract negativity to ourselves. We fight, we hate, we break promises, and we disrespect nature, over think of our role as humans in this planet. This movie is one of those that stick with you and I have always wondered if this is something that can be applied in our everyday life. I was talking with a friend and colleague of mine – we have this new and fresh NGO, with no offices yet and we are trying really hard to get some money at least to cover costs for activities. I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway. But, what if it is possible? What if we can learn and teach how and to love? There is this video on youtube of a young man acting quit aggressively on a tram. You see all the people scared and panicking. All but an old lady, who took his hand on hers and just stayed like that sited near to him. The young man calmed down. That insignificant gesture of kindness might have saved his life and of other people who might have reacted the same way to him or with fear. Or for just ignoring him. This is a project that we would love to see in practice really soon and maybe in this activity that you are organizing we might meet the right people or find the proper way to do it. Maybe this would be something to introduce in the scholastic curricula!",/post/856,2017-06-26T15:12:58.000Z,2017-06-26T15:12:58.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,1102 8475,v1.0,,"I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway.",/post/856,2017-06-26T15:12:47.000Z,2017-06-26T15:12:47.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,1123 7529,v1.0,,"measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway.",/post/856,2017-06-26T15:12:41.000Z,2017-06-26T15:12:41.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,876 10506,v1.0,,"The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another.",/post/856,2017-06-26T15:12:25.000Z,2017-06-26T15:12:25.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,1562 5103,v1.0,,"The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another.",/post/856,2017-06-26T15:12:18.000Z,2017-06-26T15:12:18.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,147 5082,v1.0,,"A few years back I saw a movie with Kevin Spacy, Helen Hunt and Haley Joel Osment, “Pay it Forward”. The story of a social studies teacher who gives an assignment to his junior high school class to think of an idea to change the world for the better, then put it into action. When one young student creates a plan for ""paying forward"" favors, he sets in motion a wave of human kindness which went nation wise. There was one main emotion which did lead these actions but also was produced or given back – love or/and compassion. Can this happen in real life? Both psychologically and scientifically has been proven that positive emotions affect our health in a very positive way was well. Positive emotions release healthy hormones into our body and not only; the unhealthy release of cortisol and stress related hormones is lower as well. The most important emotions are gratitude, peace, joy, hope, and love. This external boost of positivity also creates neuro-pathways in the brain that are positive. This means that we are able to affect on the biological part of our brain and create a source of positivity which is supported externally as much as internally. Behavioral psychologists retain that even if aggressivity might be considered part of human nature, meaning that it is imprinted in our brain because of our ancestors or as part of human nature, a non aggressive behavior or approach can be taught. What would happen in the world if there would be more love and less aggressiveness? The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another. In this world is so easy to be skeptic and cynic. It is bad but also the media is playing a big role in reinforcing the bad. Without even being aware we cause and attract negativity to ourselves. We fight, we hate, we break promises, and we disrespect nature, over think of our role as humans in this planet. This movie is one of those that stick with you and I have always wondered if this is something that can be applied in our everyday life. I was talking with a friend and colleague of mine – we have this new and fresh NGO, with no offices yet and we are trying really hard to get some money at least to cover costs for activities. I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway. But, what if it is possible? What if we can learn and teach how and to love? There is this video on youtube of a young man acting quit aggressively on a tram. You see all the people scared and panicking. All but an old lady, who took his hand on hers and just stayed like that sited near to him. The young man calmed down. That insignificant gesture of kindness might have saved his life and of other people who might have reacted the same way to him or with fear. Or for just ignoring him. This is a project that we would love to see in practice really soon and maybe in this activity that you are organizing we might meet the right people or find the proper way to do it. Maybe this would be something to introduce in the scholastic curricula!",/post/856,2017-06-26T15:11:47.000Z,2017-06-26T15:11:47.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,146 8160,v1.0,,"A few years back I saw a movie with Kevin Spacy, Helen Hunt and Haley Joel Osment, “Pay it Forward”. The story of a social studies teacher who gives an assignment to his junior high school class to think of an idea to change the world for the better, then put it into action. When one young student creates a plan for ""paying forward"" favors, he sets in motion a wave of human kindness which went nation wise. There was one main emotion which did lead these actions but also was produced or given back – love or/and compassion. Can this happen in real life? Both psychologically and scientifically has been proven that positive emotions affect our health in a very positive way was well. Positive emotions release healthy hormones into our body and not only; the unhealthy release of cortisol and stress related hormones is lower as well. The most important emotions are gratitude, peace, joy, hope, and love. This external boost of positivity also creates neuro-pathways in the brain that are positive. This means that we are able to affect on the biological part of our brain and create a source of positivity which is supported externally as much as internally. Behavioral psychologists retain that even if aggressivity might be considered part of human nature, meaning that it is imprinted in our brain because of our ancestors or as part of human nature, a non aggressive behavior or approach can be taught. What would happen in the world if there would be more love and less aggressiveness? The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another. In this world is so easy to be skeptic and cynic. It is bad but also the media is playing a big role in reinforcing the bad. Without even being aware we cause and attract negativity to ourselves. We fight, we hate, we break promises, and we disrespect nature, over think of our role as humans in this planet. This movie is one of those that stick with you and I have always wondered if this is something that can be applied in our everyday life. I was talking with a friend and colleague of mine – we have this new and fresh NGO, with no offices yet and we are trying really hard to get some money at least to cover costs for activities. I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway. But, what if it is possible? What if we can learn and teach how and to love? There is this video on youtube of a young man acting quit aggressively on a tram. You see all the people scared and panicking. All but an old lady, who took his hand on hers and just stayed like that sited near to him. The young man calmed down. That insignificant gesture of kindness might have saved his life and of other people who might have reacted the same way to him or with fear. Or for just ignoring him. This is a project that we would love to see in practice really soon and maybe in this activity that you are organizing we might meet the right people or find the proper way to do it. Maybe this would be something to introduce in the scholastic curricula!",/post/856,2017-06-26T15:11:41.000Z,2017-06-26T15:11:41.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,1044 6134,v1.0,,"A few years back I saw a movie with Kevin Spacy, Helen Hunt and Haley Joel Osment, “Pay it Forward”. The story of a social studies teacher who gives an assignment to his junior high school class to think of an idea to change the world for the better, then put it into action. When one young student creates a plan for ""paying forward"" favors, he sets in motion a wave of human kindness which went nation wise. There was one main emotion which did lead these actions but also was produced or given back – love or/and compassion. Can this happen in real life? Both psychologically and scientifically has been proven that positive emotions affect our health in a very positive way was well. Positive emotions release healthy hormones into our body and not only; the unhealthy release of cortisol and stress related hormones is lower as well. The most important emotions are gratitude, peace, joy, hope, and love. This external boost of positivity also creates neuro-pathways in the brain that are positive. This means that we are able to affect on the biological part of our brain and create a source of positivity which is supported externally as much as internally. Behavioral psychologists retain that even if aggressivity might be considered part of human nature, meaning that it is imprinted in our brain because of our ancestors or as part of human nature, a non aggressive behavior or approach can be taught. What would happen in the world if there would be more love and less aggressiveness? The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another. In this world is so easy to be skeptic and cynic. It is bad but also the media is playing a big role in reinforcing the bad. Without even being aware we cause and attract negativity to ourselves. We fight, we hate, we break promises, and we disrespect nature, over think of our role as humans in this planet. This movie is one of those that stick with you and I have always wondered if this is something that can be applied in our everyday life. I was talking with a friend and colleague of mine – we have this new and fresh NGO, with no offices yet and we are trying really hard to get some money at least to cover costs for activities. I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway. But, what if it is possible? What if we can learn and teach how and to love? There is this video on youtube of a young man acting quit aggressively on a tram. You see all the people scared and panicking. All but an old lady, who took his hand on hers and just stayed like that sited near to him. The young man calmed down. That insignificant gesture of kindness might have saved his life and of other people who might have reacted the same way to him or with fear. Or for just ignoring him. This is a project that we would love to see in practice really soon and maybe in this activity that you are organizing we might meet the right people or find the proper way to do it. Maybe this would be something to introduce in the scholastic curricula!",/post/856,2017-06-26T15:11:28.000Z,2017-06-26T15:11:28.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,433 7154,v1.0,,"A few years back I saw a movie with Kevin Spacy, Helen Hunt and Haley Joel Osment, “Pay it Forward”. The story of a social studies teacher who gives an assignment to his junior high school class to think of an idea to change the world for the better, then put it into action. When one young student creates a plan for ""paying forward"" favors, he sets in motion a wave of human kindness which went nation wise. There was one main emotion which did lead these actions but also was produced or given back – love or/and compassion. Can this happen in real life? Both psychologically and scientifically has been proven that positive emotions affect our health in a very positive way was well. Positive emotions release healthy hormones into our body and not only; the unhealthy release of cortisol and stress related hormones is lower as well. The most important emotions are gratitude, peace, joy, hope, and love. This external boost of positivity also creates neuro-pathways in the brain that are positive. This means that we are able to affect on the biological part of our brain and create a source of positivity which is supported externally as much as internally. Behavioral psychologists retain that even if aggressivity might be considered part of human nature, meaning that it is imprinted in our brain because of our ancestors or as part of human nature, a non aggressive behavior or approach can be taught. What would happen in the world if there would be more love and less aggressiveness? The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another. In this world is so easy to be skeptic and cynic. It is bad but also the media is playing a big role in reinforcing the bad. Without even being aware we cause and attract negativity to ourselves. We fight, we hate, we break promises, and we disrespect nature, over think of our role as humans in this planet. This movie is one of those that stick with you and I have always wondered if this is something that can be applied in our everyday life. I was talking with a friend and colleague of mine – we have this new and fresh NGO, with no offices yet and we are trying really hard to get some money at least to cover costs for activities. I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway. But, what if it is possible? What if we can learn and teach how and to love? There is this video on youtube of a young man acting quit aggressively on a tram. You see all the people scared and panicking. All but an old lady, who took his hand on hers and just stayed like that sited near to him. The young man calmed down. That insignificant gesture of kindness might have saved his life and of other people who might have reacted the same way to him or with fear. Or for just ignoring him. This is a project that we would love to see in practice really soon and maybe in this activity that you are organizing we might meet the right people or find the proper way to do it. Maybe this would be something to introduce in the scholastic curricula!",/post/856,2017-06-26T15:10:44.000Z,2017-06-26T15:10:44.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,766 5860,v1.0,,"A few years back I saw a movie with Kevin Spacy, Helen Hunt and Haley Joel Osment, “Pay it Forward”. The story of a social studies teacher who gives an assignment to his junior high school class to think of an idea to change the world for the better, then put it into action. When one young student creates a plan for ""paying forward"" favors, he sets in motion a wave of human kindness which went nation wise. There was one main emotion which did lead these actions but also was produced or given back – love or/and compassion. Can this happen in real life? Both psychologically and scientifically has been proven that positive emotions affect our health in a very positive way was well. Positive emotions release healthy hormones into our body and not only; the unhealthy release of cortisol and stress related hormones is lower as well. The most important emotions are gratitude, peace, joy, hope, and love. This external boost of positivity also creates neuro-pathways in the brain that are positive. This means that we are able to affect on the biological part of our brain and create a source of positivity which is supported externally as much as internally. Behavioral psychologists retain that even if aggressivity might be considered part of human nature, meaning that it is imprinted in our brain because of our ancestors or as part of human nature, a non aggressive behavior or approach can be taught. What would happen in the world if there would be more love and less aggressiveness? The teacher on the movie says: “If you could help change the world, would you? What does the world mean to you? How often do you think about things that happen outside of this town? Do you watch the news? We are not global thinkers yet. What does the world expect of us? What if the world is just a big disappointment? Unless, you take the things that you don’t like about this world and flip them upside down. How about, is possible? The realm of possibility, exists where? In each of you. So, you can surprise us. It’s up to you. Or you can sit back and let it be. Make an attempt to interact with the world.” And the kid gave his idea: “Person A, is me and I help three people in doing something that they cannot do by themselves.” There was one condition, each person who was helped by the kid had to do the same thing with other 3 people, so there would be 9 people helped. And so on, each person with 3 people, and then other 3, and 3 more… A whole network of people helping one another. In this world is so easy to be skeptic and cynic. It is bad but also the media is playing a big role in reinforcing the bad. Without even being aware we cause and attract negativity to ourselves. We fight, we hate, we break promises, and we disrespect nature, over think of our role as humans in this planet. This movie is one of those that stick with you and I have always wondered if this is something that can be applied in our everyday life. I was talking with a friend and colleague of mine – we have this new and fresh NGO, with no offices yet and we are trying really hard to get some money at least to cover costs for activities. I talked to her about the movie and the idea, if there is any chance to transform it into a project. The point where we are stuck is that we have not been able to find a way to measure the results and how to report it to the donor. However, what if we could start a campaign, spread the idea out there, and try to do it with no donors in order to not report to anyone. It needs money anyway. But, what if it is possible? What if we can learn and teach how and to love? There is this video on youtube of a young man acting quit aggressively on a tram. You see all the people scared and panicking. All but an old lady, who took his hand on hers and just stayed like that sited near to him. The young man calmed down. That insignificant gesture of kindness might have saved his life and of other people who might have reacted the same way to him or with fear. Or for just ignoring him. This is a project that we would love to see in practice really soon and maybe in this activity that you are organizing we might meet the right people or find the proper way to do it. Maybe this would be something to introduce in the scholastic curricula!",/post/856,2017-06-26T15:10:30.000Z,2017-06-26T15:10:30.000Z,856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,823,380 7913,v1.0,,"There is always a series of encounters and discussions that help pave the path that led to idea creation. During these conversations, it;s the human ""Why""- not the scientific ""Why"".It's in those personal interactions that give a voice to humanistic problems.  @Noemi @Nadia",/post/7329,2017-06-26T14:29:54.000Z,2017-06-26T14:29:54.000Z,7329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,968 5081,v1.0,,"There is always a series of encounters and discussions that help pave the path that led to idea creation. During these conversations, it;s the human ""Why""- not the scientific ""Why"".It's in those personal interactions that give a voice to humanistic problems.  @Noemi @Nadia",/post/7329,2017-06-26T14:29:48.000Z,2017-06-26T14:29:48.000Z,7329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,146 6504,v1.0,,"Community Conversations can have an impact in various ways, from discussing challenges, catalyzing collaborations or changing the direction of the project and creating new initiatives. This was the case for Sara Savian and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.  It allows the patient to record and report exercises, data- such as hand position and fingertips pressure. In 2014 Sara Savian and Mauro Alfieri started their journey with a “test on sensors “and they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.  The intent was to explore how it can be used? How can it add value and be of use socially?  What could be built on this foundation? These discussions could change the course for many participants. Sara and Mauro not only had many questions answered, but they left with the idea of going back to the drawing board and creating something that would be beneficial to society. A conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can’t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.  We asked Sara to recollect this conversation: John: ""I suffer from a hand disability that limits my activities of daily life. Self-sufficiency is greatly reduced and hinders the quality of life for me. Constant monitoring of my movements and joints must be done frequently to evaluate my progress by and going back and forth as an outpatient for evaluations. This interferes with my daily activities”* Physiotherapist: “There has been an advancement in technologies in the rehabilitation to help patients achieve maximum recovery outcomes. In Italy, physiotherapists have no access to digital tools to evaluate rehabilitative progress for hand movements. Having instant access to this therapy anytime would be greatly beneficial.* We asked Sara and Mauro how this conversation altered the course for reHub. Sara: “This made us re-evaluate our project in a variety of ways and prompted us to think in broader terms and combine the ""test on sensors"" with solving a problem. We know that there is a lot of learning that needs to be done when you put the device in the hands of people that are just things you would not expect"".  Mauro: From this discussion, Sara and I saw the opportunity offer a solution and an experience of an emerging area of wearable technology together with the sensing technology and decided to create a device that could be delivered in a rehabilitation approach to support patients’ and to monitor hand rehabilitation. From listening to challenges that are faced on a daily basis, and realizing how painful it is for the patient and family. We need to work with them to help co-create with us”. With the project in its early stage, Sara wanted to share this: Sara: “There is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.” We asked what’s next for reHub. Sara: ""We know that rehabilitation is time-consuming and demotivating and we plan to change that with a reHub device to empower patients through their therapy. Rehabilitation is often costly, by making it open source, it’s affordable and accessible for people who are living with limitation and this could drastically improve their mental well-being during the road of recovery”. This will allow the vast majority of patients to be sent home with a rehabilitation program to practice on their smartphone or tablet."" The reHub team is taking a broad approach in this area and looking for users and a community that will benefit and help develop different options: sport, gaming, educational, medical. Why is it important to work with the community to further develop reHub? Sara: ""Spending time with a community, or patients that will benefit from what you’re creating is looking at the problem in a human-centered way and it highlight’s what’s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we’re back to the drawing board. We need to know what from the user's perspective so we can design with them in mind."" Co-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily.  When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented. Mauro Alfieri: “We thank all the physiotherapists we have had a chance to meet with  which could effectively confront the future of this project, orienting it to a continuous use in proprioceptive physiotherapy."" If people can’t achieve expected results due to a design issue or flaw, then that’s obviously going to have a clinical impact. From a functional aspect, understanding how people use things does matter. This is where engineering, design and the community will benefit and need to work hand in hand to understand these components. It’s crucial to consider human emotions when designing medical products. Often, it’s the emotional connections that people have with respect to the design. Is it flexible? The weight, how it feels, is it aesthetically appealing? Then, of course, cost and accessibility that make people gravitate toward certain devices as opposed to others. With the joined forces of diverse backgrounds of Sara and Mauro, reHub will be addressing all these concerns. reHub-goal-oriented effective rehabilitative treatment and experience that will help patients return to family, job, community and resume regular daily activities. More updates to follow. *The name of John and Physiotherapist have been used to maintain privacy.",/post/861,2017-06-26T14:29:44.000Z,2017-06-26T14:29:44.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,485 5080,v1.0,,"Co-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily.  When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented.",/post/861,2017-06-26T14:29:27.000Z,2017-06-26T14:29:27.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,146 7912,v1.0,,"Sara: ""Spending time with a community, or patients that will benefit from what you’re creating is looking at the problem in a human-centered way and it highlight’s what’s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we’re back to the drawing board. We need to know what from the user's perspective so we can design with them in mind.""",/post/861,2017-06-26T14:29:20.000Z,2017-06-26T14:29:20.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,968 9847,v1.0,,"Sara: “There is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.”",/post/861,2017-06-26T14:29:07.000Z,2017-06-26T14:29:07.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,1427 9156,v1.0,,"Sara: “There is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.”",/post/861,2017-06-26T14:29:02.000Z,2017-06-26T14:29:02.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,1257 7242,v1.0,,"A conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can’t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.",/post/861,2017-06-26T14:28:48.000Z,2017-06-26T14:28:48.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,788 10892,v1.0,,"In 2014 Sara Savian and Mauro Alfieri started their journey with a “test on sensors “and they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.  The intent was to explore how it can be used? How can it add value and be of use socially?  What could be built on this foundation? These discussions could change the course for many participants.",/post/861,2017-06-26T14:28:37.000Z,2017-06-26T14:28:37.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,1676 11457,v1.0,,"In 2014 Sara Savian and Mauro Alfieri started their journey with a “test on sensors “and they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.  The intent was to explore how it can be used? How can it add value and be of use socially?  What could be built on this foundation? These discussions could change the course for many participants.",/post/861,2017-06-26T14:28:32.000Z,2017-06-26T14:28:32.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,1847 10331,v1.0,,"In 2014 Sara Savian and Mauro Alfieri started their journey with a “test on sensors “and they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.  The intent was to explore how it can be used? How can it add value and be of use socially?  What could be built on this foundation? These discussions could change the course for many participants.",/post/861,2017-06-26T14:28:28.000Z,2017-06-26T14:28:28.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,1517 7722,v1.0,,"This was the case for Sara Savian and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.  It allows the patient to record and report exercises, data- such as hand position and fingertips pressure.",/post/861,2017-06-26T14:28:19.000Z,2017-06-26T14:28:19.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,922 8795,v1.0,,"Community Conversations can have an impact in various ways, from discussing challenges, catalyzing collaborations or changing the direction of the project and creating new initiatives. This was the case for Sara Savian and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.  It allows the patient to record and report exercises, data- such as hand position and fingertips pressure. In 2014 Sara Savian and Mauro Alfieri started their journey with a “test on sensors “and they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.  The intent was to explore how it can be used? How can it add value and be of use socially?  What could be built on this foundation? These discussions could change the course for many participants. Sara and Mauro not only had many questions answered, but they left with the idea of going back to the drawing board and creating something that would be beneficial to society. A conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can’t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.  We asked Sara to recollect this conversation: John: ""I suffer from a hand disability that limits my activities of daily life. Self-sufficiency is greatly reduced and hinders the quality of life for me. Constant monitoring of my movements and joints must be done frequently to evaluate my progress by and going back and forth as an outpatient for evaluations. This interferes with my daily activities”* Physiotherapist: “There has been an advancement in technologies in the rehabilitation to help patients achieve maximum recovery outcomes. In Italy, physiotherapists have no access to digital tools to evaluate rehabilitative progress for hand movements. Having instant access to this therapy anytime would be greatly beneficial.* We asked Sara and Mauro how this conversation altered the course for reHub. Sara: “This made us re-evaluate our project in a variety of ways and prompted us to think in broader terms and combine the ""test on sensors"" with solving a problem. We know that there is a lot of learning that needs to be done when you put the device in the hands of people that are just things you would not expect"".  Mauro: From this discussion, Sara and I saw the opportunity offer a solution and an experience of an emerging area of wearable technology together with the sensing technology and decided to create a device that could be delivered in a rehabilitation approach to support patients’ and to monitor hand rehabilitation. From listening to challenges that are faced on a daily basis, and realizing how painful it is for the patient and family. We need to work with them to help co-create with us”. With the project in its early stage, Sara wanted to share this: Sara: “There is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.” We asked what’s next for reHub. Sara: ""We know that rehabilitation is time-consuming and demotivating and we plan to change that with a reHub device to empower patients through their therapy. Rehabilitation is often costly, by making it open source, it’s affordable and accessible for people who are living with limitation and this could drastically improve their mental well-being during the road of recovery”. This will allow the vast majority of patients to be sent home with a rehabilitation program to practice on their smartphone or tablet."" The reHub team is taking a broad approach in this area and looking for users and a community that will benefit and help develop different options: sport, gaming, educational, medical. Why is it important to work with the community to further develop reHub? Sara: ""Spending time with a community, or patients that will benefit from what you’re creating is looking at the problem in a human-centered way and it highlight’s what’s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we’re back to the drawing board. We need to know what from the user's perspective so we can design with them in mind."" Co-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily.  When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented. Mauro Alfieri: “We thank all the physiotherapists we have had a chance to meet with  which could effectively confront the future of this project, orienting it to a continuous use in proprioceptive physiotherapy."" If people can’t achieve expected results due to a design issue or flaw, then that’s obviously going to have a clinical impact. From a functional aspect, understanding how people use things does matter. This is where engineering, design and the community will benefit and need to work hand in hand to understand these components. It’s crucial to consider human emotions when designing medical products. Often, it’s the emotional connections that people have with respect to the design. Is it flexible? The weight, how it feels, is it aesthetically appealing? Then, of course, cost and accessibility that make people gravitate toward certain devices as opposed to others. With the joined forces of diverse backgrounds of Sara and Mauro, reHub will be addressing all these concerns. reHub-goal-oriented effective rehabilitative treatment and experience that will help patients return to family, job, community and resume regular daily activities. More updates to follow. *The name of John and Physiotherapist have been used to maintain privacy.",/post/861,2017-06-26T14:28:05.000Z,2017-06-26T14:28:05.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,1155 5510,v1.0,,"Community Conversations can have an impact in various ways, from discussing challenges, catalyzing collaborations or changing the direction of the project and creating new initiatives. This was the case for Sara Savian and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.  It allows the patient to record and report exercises, data- such as hand position and fingertips pressure. In 2014 Sara Savian and Mauro Alfieri started their journey with a “test on sensors “and they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.  The intent was to explore how it can be used? How can it add value and be of use socially?  What could be built on this foundation? These discussions could change the course for many participants. Sara and Mauro not only had many questions answered, but they left with the idea of going back to the drawing board and creating something that would be beneficial to society. A conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can’t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.  We asked Sara to recollect this conversation: John: ""I suffer from a hand disability that limits my activities of daily life. Self-sufficiency is greatly reduced and hinders the quality of life for me. Constant monitoring of my movements and joints must be done frequently to evaluate my progress by and going back and forth as an outpatient for evaluations. This interferes with my daily activities”* Physiotherapist: “There has been an advancement in technologies in the rehabilitation to help patients achieve maximum recovery outcomes. In Italy, physiotherapists have no access to digital tools to evaluate rehabilitative progress for hand movements. Having instant access to this therapy anytime would be greatly beneficial.* We asked Sara and Mauro how this conversation altered the course for reHub. Sara: “This made us re-evaluate our project in a variety of ways and prompted us to think in broader terms and combine the ""test on sensors"" with solving a problem. We know that there is a lot of learning that needs to be done when you put the device in the hands of people that are just things you would not expect"".  Mauro: From this discussion, Sara and I saw the opportunity offer a solution and an experience of an emerging area of wearable technology together with the sensing technology and decided to create a device that could be delivered in a rehabilitation approach to support patients’ and to monitor hand rehabilitation. From listening to challenges that are faced on a daily basis, and realizing how painful it is for the patient and family. We need to work with them to help co-create with us”. With the project in its early stage, Sara wanted to share this: Sara: “There is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.” We asked what’s next for reHub. Sara: ""We know that rehabilitation is time-consuming and demotivating and we plan to change that with a reHub device to empower patients through their therapy. Rehabilitation is often costly, by making it open source, it’s affordable and accessible for people who are living with limitation and this could drastically improve their mental well-being during the road of recovery”. This will allow the vast majority of patients to be sent home with a rehabilitation program to practice on their smartphone or tablet."" The reHub team is taking a broad approach in this area and looking for users and a community that will benefit and help develop different options: sport, gaming, educational, medical. Why is it important to work with the community to further develop reHub? Sara: ""Spending time with a community, or patients that will benefit from what you’re creating is looking at the problem in a human-centered way and it highlight’s what’s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we’re back to the drawing board. We need to know what from the user's perspective so we can design with them in mind."" Co-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily.  When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented. Mauro Alfieri: “We thank all the physiotherapists we have had a chance to meet with  which could effectively confront the future of this project, orienting it to a continuous use in proprioceptive physiotherapy."" If people can’t achieve expected results due to a design issue or flaw, then that’s obviously going to have a clinical impact. From a functional aspect, understanding how people use things does matter. This is where engineering, design and the community will benefit and need to work hand in hand to understand these components. It’s crucial to consider human emotions when designing medical products. Often, it’s the emotional connections that people have with respect to the design. Is it flexible? The weight, how it feels, is it aesthetically appealing? Then, of course, cost and accessibility that make people gravitate toward certain devices as opposed to others. With the joined forces of diverse backgrounds of Sara and Mauro, reHub will be addressing all these concerns. reHub-goal-oriented effective rehabilitative treatment and experience that will help patients return to family, job, community and resume regular daily activities. More updates to follow. *The name of John and Physiotherapist have been used to maintain privacy.",/post/861,2017-06-26T14:27:50.000Z,2017-06-26T14:27:50.000Z,861,3323,AnnotatorStore::TextAnnotation,,,,,,,,,828,322 6066,v1.0,,"Most of them point at the need for better coordination among community leaders, citizens donors, organisations, and other businesses and organisations in the ecosystem.. What has been a major challenge for you as you went on the road?",/post/7915,2017-06-26T14:27:19.000Z,2017-06-26T14:27:19.000Z,7915,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,418 8760,v1.0,,"In the past year we met many people who do relief, aid, skilling up work with regugees.. most of the projects are local scale - the Orange House in Athens (15 residents and 50 people around to receive some services), a Refugee 2 Refugee Solidarity Call Center in Thessaloniki, informal and bottom up, and crowdfundedfunded through an international campaign.. or ad hoc backpacks packing to welcome people in Kos Island, Lesbos.. and beyond.",/post/7915,2017-06-26T14:27:09.000Z,2017-06-26T14:27:09.000Z,7915,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1150 10016,v1.0,,"ow do we get people to operate well in high stress enviroments? reduce there expectations of situations to allow them to see what is happening? how do we get people to learn rapidly as this is the only way to stay on top of quickly changing situations? how can more of the knowledge and expertise that has been aquired be passed on more effectively?  in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?",/post/860,2017-06-26T14:26:44.000Z,2017-06-26T14:26:44.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1445 7223,v1.0,,n the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?,/post/860,2017-06-26T14:26:33.000Z,2017-06-26T14:26:33.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,782 10055,v1.0,,in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?,/post/860,2017-06-26T14:26:29.000Z,2017-06-26T14:26:29.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1446 10720,v1.0,,how do we get people to operate well in high stress enviroments?,/post/860,2017-06-26T14:26:15.000Z,2017-06-26T14:26:15.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1632 11484,v1.0,,I am part of the golden foot collective. we took a mobile independent footcare clinic and cinema from scotland to italy and serbia.  To help in the migrant crisis. there were 8 of us and we had 2 nurses and 2 mechanics. everyone had done some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.  it all worked well.  since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments?,/post/860,2017-06-26T14:26:07.000Z,2017-06-26T14:26:07.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1858 8116,v1.0,,"hello Edgeryders, I am part of the golden foot collective. we took a mobile independent footcare clinic and cinema from scotland to italy and serbia.  To help in the migrant crisis. there were 8 of us and we had 2 nurses and 2 mechanics. everyone had done some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.  it all worked well.  since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments?",/post/860,2017-06-26T14:25:49.000Z,2017-06-26T14:25:49.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1026 7486,v1.0,,"hello Edgeryders, I am part of the golden foot collective. we took a mobile independent footcare clinic and cinema from scotland to italy and serbia.  To help in the migrant crisis. there were 8 of us and we had 2 nurses and 2 mechanics. everyone had done some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.  it all worked well.  since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments? reduce there expectations of situations to allow them to see what is happening? how do we get people to learn rapidly as this is the only way to stay on top of quickly changing situations? how can more of the knowledge and expertise that has been aquired be passed on more effectively?  in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come? coming from scotland we live in an end destination. how  can we have effective solidarity with those that live on transit routes as well as those in transit? I am producing zines and perhaps in the future i will do a podcast but i come here with alot of questions.",/post/860,2017-06-26T14:25:39.000Z,2017-06-26T14:25:39.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,861 8759,v1.0,,"hello Edgeryders, I am part of the golden foot collective. we took a mobile independent footcare clinic and cinema from scotland to italy and serbia.  To help in the migrant crisis. there were 8 of us and we had 2 nurses and 2 mechanics. everyone had done some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.  it all worked well.  since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments? reduce there expectations of situations to allow them to see what is happening? how do we get people to learn rapidly as this is the only way to stay on top of quickly changing situations? how can more of the knowledge and expertise that has been aquired be passed on more effectively?  in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come? coming from scotland we live in an end destination. how  can we have effective solidarity with those that live on transit routes as well as those in transit? I am producing zines and perhaps in the future i will do a podcast but i come here with alot of questions.",/post/860,2017-06-26T14:25:34.000Z,2017-06-26T14:25:34.000Z,860,3323,AnnotatorStore::TextAnnotation,,,,,,,,,827,1150 8807,v1.0,,"The arrival of ResCure-ers brings opencare work at WeMake to a new level. Different local settings can be understood now as network localities coexisting and sharing the same space-time dimensions. The classes are shared with WeHandU and inspire more makers at once. The understanding of how others work give a day by day and specific shape to own projects. By what they talk about and what they do, “Making for opencare” discourse becomes a visible and touchable meaningful concept for different people involved in such exchange of knowledge. A large community is at work these days here...I have counted about 40 people..It's amazing! Teens, Senior Makers, opencare staff, makers and designers, students and trainees..all together.",/post/864,2017-06-26T14:24:39.000Z,2017-06-26T14:24:39.000Z,864,3323,AnnotatorStore::TextAnnotation,,,,,,,,,831,1159 8985,v1.0,,"It is important that everybody here uses and delivers contents using the same tools and integrating to others within the bigger tasks. Me too, i had to live this ""rite of passage"". There are two considerations now. First, big changes in constituted order of space may bring changes in the way work is organised. Second, there is not a better way than changing the program, or modifying the shopfloor, to see how people react and enact in other ways, de-routinizing the ethnomethods shared at WeMake and whoever may access its social world.",/post/864,2017-06-26T14:24:10.000Z,2017-06-26T14:24:10.000Z,864,3323,AnnotatorStore::TextAnnotation,,,,,,,,,831,1215 6128,v1.0,,It is important that everybody here uses and delivers contents using the same tools and integrating to others within the bigger tasks.,/post/864,2017-06-26T14:23:52.000Z,2017-06-26T14:23:52.000Z,864,3323,AnnotatorStore::TextAnnotation,,,,,,,,,831,432 7435,v1.0,,"here have been many changes during the last week... Caracol, a designer studio, moved its big 3D printers out the building and left an empty big room at the upper floor. Yesterday, the designers of ResCure arrived, the first group ""in residence"" that will live here till june 25th and accelerate their project thanks to WeMake know-how and its shared spaces.",/post/864,2017-06-26T14:22:42.000Z,2017-06-26T14:22:42.000Z,864,3323,AnnotatorStore::TextAnnotation,,,,,,,,,831,850 8794,v1.0,,"@Costantino and the WeMake crowd are exceptionally skilled at changing their space on the fly. In this they remind me of @Matthias , who dreams of a world in which everything is made by Euroboxes mounted on Europallets. Given a forklift and trucks you can evacuate a large office or home at a moment's notice, or reconfigure your space on the fly.  In terms of the digital space, the same modularity concepts apply. People should use the same tools whenever possible, like in WeMake, to facilitate interoperability and reconfigure your workflow on the fly.  Of course this has got nothing to do with care. It's just what work well done – any work – looks like.",/post/6650,2017-06-26T14:22:19.000Z,2017-06-26T14:22:19.000Z,6650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,831,1155 8806,v1.0,,"@Costantino and the WeMake crowd are exceptionally skilled at changing their space on the fly. In this they remind me of @Matthias , who dreams of a world in which everything is made by Euroboxes mounted on Europallets. Given a forklift and trucks you can evacuate a large office or home at a moment's notice, or reconfigure your space on the fly.  In terms of the digital space, the same modularity concepts apply. People should use the same tools whenever possible, like in WeMake, to facilitate interoperability and reconfigure your workflow on the fly.  Of course this has got nothing to do with care. It's just what work well done – any work – looks like.",/post/6650,2017-06-26T14:22:14.000Z,2017-06-26T14:22:14.000Z,6650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,831,1159 5841,v1.0,,"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security.  The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project.  Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practic",/post/14771,2017-06-26T14:20:28.000Z,2017-06-26T14:20:28.000Z,14771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,377 11441,v1.0,,"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security.  The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project.  Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.",/post/14771,2017-06-26T14:20:17.000Z,2017-06-26T14:20:17.000Z,14771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1843 7469,v1.0,,"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security.  The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project.  Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.",/post/14771,2017-06-26T14:20:09.000Z,2017-06-26T14:20:09.000Z,14771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,856 10574,v1.0,,"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security.  The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project.  Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.",/post/14771,2017-06-26T14:20:02.000Z,2017-06-26T14:20:02.000Z,14771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,822,1581 9085,v1.0,,"Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up. Perhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects? An outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects. The other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.  What do you think?",/post/7889,2017-06-26T14:18:53.000Z,2017-06-26T14:18:53.000Z,7889,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1253 8427,v1.0,,"Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up. Perhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects? An outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects. The other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.  What do you think?",/post/7889,2017-06-26T14:18:38.000Z,2017-06-26T14:18:38.000Z,7889,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1111 11538,v1.0,,"Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up. Perhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects? An outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects. The other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.  What do you think?",/post/7889,2017-06-26T14:18:29.000Z,2017-06-26T14:18:29.000Z,7889,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1865 10015,v1.0,,Perhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects?,/post/7889,2017-06-26T14:18:22.000Z,2017-06-26T14:18:22.000Z,7889,3323,AnnotatorStore::TextAnnotation,,,,,,,,,826,1445 4565,v1.0,,"Hi @Gehan, it's a pleasure to meet you. You're welcome, these conversations are crucial and must be shared. For starters, reframing the problem in human-centric ways, technological solutions and its designers could develop a deeper understanding of the user's lives and their unmet needs. This will bridge the gap between product (solution) and the user population who would most benefit. Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role. FYI part 2 of this conversation forthcoming",/post/15427,2017-06-26T14:18:02.000Z,2017-06-26T14:18:02.000Z,15427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,18 9315,v1.0,,", it's a pleasure to meet you. You're welcome, these conversations are crucial and must be shared. For starters, reframing the problem in human-centric ways, technological solutions and its designers could develop a deeper understanding of the user's lives and their unmet needs. This will bridge the gap between product (solution) and the user population who would most benefit. Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role. FYI part 2 of this conversation forthcoming",/post/15427,2017-06-26T14:17:58.000Z,2017-06-26T14:17:58.000Z,15427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,1283 7911,v1.0,,"Hi @Gehan, it's a pleasure to meet you. You're welcome, these conversations are crucial and must be shared. For starters, reframing the problem in human-centric ways, technological solutions and its designers could develop a deeper understanding of the user's lives and their unmet needs. This will bridge the gap between product (solution) and the user population who would most benefit. Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role. FYI part 2 of this conversation forthcoming",/post/15427,2017-06-26T14:17:52.000Z,2017-06-26T14:17:52.000Z,15427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,968 7910,v1.0,,people. There's something very meaningful in your description of the mother's response to technological solutions. Did the insight about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might design technological responses that generate more human connection rather than displace it?,/post/8467,2017-06-26T14:17:45.000Z,2017-06-26T14:17:45.000Z,8467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,968 6503,v1.0,,It's important what you say about how we can become precious about the problem and lose sight of the people. There's something very meaningful in your description of the mother's response to technological solutions. Did the insight about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might design technological responses that generate more human connection rather than displace it?,/post/8467,2017-06-26T14:17:35.000Z,2017-06-26T14:17:35.000Z,8467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,485 7222,v1.0,,It's important what you say about how we can become precious about the problem and lose sight of the people. There's something very meaningful in your description of the mother's response to technological solutions. Did the insight about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might design technological responses that generate more human connection rather than displace it?,/post/8467,2017-06-26T14:17:16.000Z,2017-06-26T14:17:16.000Z,8467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,782 7900,v1.0,,It's important what you say about how we can become precious about the problem and lose sight of the people. There's something very meaningful in your description of the mother's response to technological solutions. Did the insight about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might design technological responses that generate more human connection rather than displace it?,/post/8467,2017-06-26T14:17:09.000Z,2017-06-26T14:17:09.000Z,8467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,963 6502,v1.0,,"Independently from the rest of the team, which opposed the need to bring to completion the academic assignment, they sought a new agreement with their mentor and started optimal thinking at 360º. Using 3D ultrasound-based haptic interfaces to offer interactive geometry education or simulators for practical tasks that would completely substitute visualization for acoustic and tactile feedbacks? Most of the early ideas were dropped when their mentor, or people not involved in the team that he suggested to talk to, would object other low-tech solutions (e.g.: wooden models for 3D geometry) could deliver almost the same experience, significantly undercutting the complexities of the projects.",/post/577,2017-06-26T14:16:55.000Z,2017-06-26T14:16:55.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,485 4748,v1.0,,"MBC: “I don’t like this kind of assistive technology much… you never know it will let you down. So many factors: the signal may be lost, the battery may go down, the app could crash… what should I do then?”",/post/577,2017-06-26T14:16:28.000Z,2017-06-26T14:16:28.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,67 8998,v1.0,,"the team: another narrative had been seeping through our conversations with the blind volunteers, that we did not consider in advance. Most of the blind people we had talked to, despite agreeing to the obstacles imposed by visual impairment, did not consider that a defining condition and were rather cold to any assistive technology they tested or we described. Instead, narratives of empowerment, education, disintermediation, were flowing through most of their replies, even when our conversations were explicitly biased towards solutions”.",/post/577,2017-06-26T14:16:10.000Z,2017-06-26T14:16:10.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,1221 11381,v1.0,,"“I can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special… how wrong could I have been!",/post/577,2017-06-26T14:15:17.000Z,2017-06-26T14:15:17.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,1828 4884,v1.0,,"“I can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special… how wrong could I have been!",/post/577,2017-06-26T14:15:12.000Z,2017-06-26T14:15:12.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,104 4564,v1.0,,"With modern day communication technology sharing through email, social media and Skype it rarely encourages people to share the evolution of their project. We often list, number, bullet point, but seldom do we engage in informal discussions where we share knowledge and reflect. It’s in the reflection that we witness human capital being the driving force behind our projects. It’s worth taking a look at SoundSight, whose story has sparked curiosity in co-creating care solutions.  There are many factors that determine the direction of our projects. For SoundSight it has been an ongoing commitment of the human capital to bring forward this project.Experiencing co-creation is a method to bring value to patients in a personalized way with the intention to benefit patients in coping with their health and enhance their quality of life. Looks as though co-creating is the road where the community is defining the destination, planning the journey and sharing the drive.  Let’s hear from Irene” “I can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special… how wrong could I have been! Long story short, I had reached out as part of a design thinking exercise, after brainstorming with my colleagues over social and technical literature to find solutions to the challenge of blind people navigation through living environments, “simply” to extract narratives about what we thought their problem to be and, thus, tune our solutions… We had succeeded obtaining the information we wanted, we had lists of the defeating features of currently existing solutions, descriptions of use cases, but while working on the desired features, something started to emerge for some of us in the team: another narrative had been seeping through our conversations with the blind volunteers, that we did not consider in advance. Most of the blind people we had talked to, despite agreeing to the obstacles imposed by visual impairment, did not consider that a defining condition and were rather cold to any assistive technology they tested or we described. Instead, narratives of empowerment, education, disintermediation, were flowing through most of their replies, even when our conversations were explicitly biased towards solutions”. Let this sink for a moment. And remember that the number one challenge of helping another person is falling in love with the solution one wants to offer, losing sight of the person in exchange for the problem. So we asked Irene to recollect her most significant conversation for us: IL (Irene Lanza): “Good morning Maria[ I would like to thank you already for your time… it is truly precious to me to be able to talk with you” MBC (Mother of an 11years old blind child): “Good morning Irene. I have heard about you from my friends and fellows from the blind union… they say you are a very polite and smart girl” IL: “Aww… how much will they ask me to pay, now? …haha” MBC: “haha” IL: “Did they also already tell you about what I would like to talk today?” MBC: “vaguely… apparently, you are working on a new technology to assist blind people in their daily life…?” IL: “That is fairly accurate, but luckily they did not spoil our fun by letting you in too many details. In facts, we are working at the proof-of-concept of a wearable device that could analyze the surroundings in real time and feed information about objects, their velocities, and positions to a visually impaired user, to allow him/her moving naturally through a living environment… our challenge is to allow a blind person to play a football game competitively against people with normal vision… well, we would still not provide talent though” MBC: “So, are you thinking of something like those apps on the smartphones?” IL: “Well, not really… we would have dedicated hardware, and we would like to collect your opinions about how to design the user interface… a smartphone app would be a proof-of-concept compared to the kind of product design we are pursuing” MBC: “I don’t like this kind of assistive technology much… you never know it will let you down. So many factors: the signal may be lost, the battery may go down, the app could crash… what should I do then?” IL: “This is exactly what I am here to listen to… you see, we will collect all these opinions, and try to prioritize features in our design concept… so, have you already tried some of those?” MBC: “I am constantly exploring and searching for new tricks and tools that could help Mario, so I often talk about this topic with my friends at the union, and I try some them after reading their reviews or hearing their presentations. Most of them are quite far away from real life, for they are very specialized on single use cases, and they rely on infrastructural investments that in our Country are stagnating for too long already. Mario’s problems extend well beyond walking through an airport or a shopping mall or reading the label on a tomato can. The only tool I really find useful is the reader with vocal synthesis on the smartphone: it works pretty well and it’s so precious to be able to listen to any book when audiobooks are still not the norm…” IL: “So could you tell me more about Mario’s experience? What do you think are the most commonplace barriers he experiences when going to school? How does he roam around?” MBC: “He is training with the stick. Many people dislike it, but it is rather dependable and attracts sufficient attention to ensure that other people will be more cooperative and safely behaved. However everyday life can become very problematic. Architectures are often hiding traps that would surprise for the naivety of those who designed the spaces: you would never imagine the feeling of dread when you have just seen your son missing an unprotected element from a window, protruding out of a wall with its sharp corners… and the use of the spaces themselves can be even more challenging! Hanging wires, doors opening directly on stairs, elements built in non-shock-resistant glass. Many of these, if you ask me, would be dangerous to any child, but if you factor in the inability to forecast what you are going to meet next… The risk of bad practices escalates quickly!” IL: “So school is not a safe haven for Mario…?” MBC: “Not just that… most activities are not structured to include children like Mario. Schoolbooks are more difficult to find as eBooks for the vocal synthesizer than others. Even then, many graphics, whether didactic or there for testing purposes, remain inaccessible… and even the teachers, despite being adorable with Mario, are not informed about methods for inclusive teaching… For example, my husband is a musician, and he has always tried to exploit musical theory to organize our family games (she mocks for me a couple of games based on recognizing the tones, or what an object at home could be based on analogies of noises). We constantly try to use acoustics as a tool to explain concepts, and risks to our child…” IL: “…and this, of course, doesn’t happen at school” MBC: “Not even closely. School sometimes becomes a very frustrating experience… a place of isolation to remind Mario of his diversity. Irene, you are young, you must remember your lectures of geometry, for example…” IL: “yes, indeed… mostly graphics are drawn on the blackboard… I see what you mean” MBC: “even our language is geared for the idea that seeing is believing. Mario often tells me that he has seen a schoolmate with a certain outfit or some event that he is going to tell me about… he does enormously to find his place in society. And my husband and I do our maximum to help him surpass the social barriers: we teach him games that he can play with his friends, we accompany him to familiarize with the places where he will have to interact with his mates, and we drill into him, constantly, how to react to the unexpected, hoping that panic will never prevail. Technology, instead of these half-baked attempts at substituting vision for simple tasks, should take on education… there is so much more that is lost in our societies when one cannot see than just reading on a can whether it is tomato or green peas, and nurturing those skills that we all have as fellow humans, rather than focusing on what we lack, would be so much more empowering.” IL: “what you say is very inspirational… so you believe education is the true mean of supporting Mario… and what is the place of technology in your vision?” MBC: “we live in a time obsessed with technology, and we forget that it is just a tool. I have not hidden from you, I am not a big supporter of the idea. For example, we use the e-reader with voice synthesizer… the problem is extremely important, but not mission critical, and so the technical solution makes sense… I am not sure I would delegate to technology, or to other humans for what is worth it, many other things on a regular base… what would be the meaning of life, if you give up on the very experiences that make it worth sharing and living? We are social animals, someone more important than me said once…” IL: “Maria, thank you really for letting me peer into your family life… and thank you for your kind guidance. I hope that we will be able to live to your expectations, but I can already promise you that we will at least try our best!” MBC: “It has been my pleasure Irene, it is so nice to meet a young person trying with enthusiasm to tackle a problem we have to deal and cope with every day. I wish you the best of luck, and I look forward to hearing about your progress!” When Irene went back to the team after this conversation, she was confused, for having just experienced the most confrontational conversation about their project. Irene was moved emotionally by the passion and interest expressed by the mother. An experience that would leave her forever changed and stretched. With Irene insisting, a small group of three people from the original team started diverging from the original path of designing a wearable “small world” navigation system. They started brainstorming wildly about educational concepts. Independently from the rest of the team, which opposed the need to bring to completion the academic assignment, they sought a new agreement with their mentor and started optimal thinking at 360º. Using 3D ultrasound-based haptic interfaces to offer interactive geometry education or simulators for practical tasks that would completely substitute visualization for acoustic and tactile feedbacks? Most of the early ideas were dropped when their mentor, or people not involved in the team that he suggested to talk to, would object other low-tech solutions (e.g.: wooden models for 3D geometry) could deliver almost the same experience, significantly undercutting the complexities of the projects. It was during this naïve and intense search, that their mentor showed them a video of a blind person using tongue clicks to echolocate while biking (!!!). The rest, as they say, is history, and we will share with you a few details about the early testing in a next post… so follow us The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.  *To protect the privacy of individuals the names and identifying details have been changed.  There was a brand indicated, which we discovered is trusted among the blind community, but we do not think it is relevant here.",/post/577,2017-06-26T14:02:29.000Z,2017-06-26T14:02:29.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,18 9314,v1.0,,"With modern day communication technology sharing through email, social media and Skype it rarely encourages people to share the evolution of their project. We often list, number, bullet point, but seldom do we engage in informal discussions where we share knowledge and reflect. It’s in the reflection that we witness human capital being the driving force behind our projects. It’s worth taking a look at SoundSight, whose story has sparked curiosity in co-creating care solutions.  There are many factors that determine the direction of our projects. For SoundSight it has been an ongoing commitment of the human capital to bring forward this project.Experiencing co-creation is a method to bring value to patients in a personalized way with the intention to benefit patients in coping with their health and enhance their quality of life. Looks as though co-creating is the road where the community is defining the destination, planning the journey and sharing the drive.  Let’s hear from Irene” “I can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special… how wrong could I have been! Long story short, I had reached out as part of a design thinking exercise, after brainstorming with my colleagues over social and technical literature to find solutions to the challenge of blind people navigation through living environments, “simply” to extract narratives about what we thought their problem to be and, thus, tune our solutions… We had succeeded obtaining the information we wanted, we had lists of the defeating features of currently existing solutions, descriptions of use cases, but while working on the desired features, something started to emerge for some of us in the team: another narrative had been seeping through our conversations with the blind volunteers, that we did not consider in advance. Most of the blind people we had talked to, despite agreeing to the obstacles imposed by visual impairment, did not consider that a defining condition and were rather cold to any assistive technology they tested or we described. Instead, narratives of empowerment, education, disintermediation, were flowing through most of their replies, even when our conversations were explicitly biased towards solutions”. Let this sink for a moment. And remember that the number one challenge of helping another person is falling in love with the solution one wants to offer, losing sight of the person in exchange for the problem. So we asked Irene to recollect her most significant conversation for us: IL (Irene Lanza): “Good morning Maria[ I would like to thank you already for your time… it is truly precious to me to be able to talk with you” MBC (Mother of an 11years old blind child): “Good morning Irene. I have heard about you from my friends and fellows from the blind union… they say you are a very polite and smart girl” IL: “Aww… how much will they ask me to pay, now? …haha” MBC: “haha” IL: “Did they also already tell you about what I would like to talk today?” MBC: “vaguely… apparently, you are working on a new technology to assist blind people in their daily life…?” IL: “That is fairly accurate, but luckily they did not spoil our fun by letting you in too many details. In facts, we are working at the proof-of-concept of a wearable device that could analyze the surroundings in real time and feed information about objects, their velocities, and positions to a visually impaired user, to allow him/her moving naturally through a living environment… our challenge is to allow a blind person to play a football game competitively against people with normal vision… well, we would still not provide talent though” MBC: “So, are you thinking of something like those apps on the smartphones?” IL: “Well, not really… we would have dedicated hardware, and we would like to collect your opinions about how to design the user interface… a smartphone app would be a proof-of-concept compared to the kind of product design we are pursuing” MBC: “I don’t like this kind of assistive technology much… you never know it will let you down. So many factors: the signal may be lost, the battery may go down, the app could crash… what should I do then?” IL: “This is exactly what I am here to listen to… you see, we will collect all these opinions, and try to prioritize features in our design concept… so, have you already tried some of those?” MBC: “I am constantly exploring and searching for new tricks and tools that could help Mario, so I often talk about this topic with my friends at the union, and I try some them after reading their reviews or hearing their presentations. Most of them are quite far away from real life, for they are very specialized on single use cases, and they rely on infrastructural investments that in our Country are stagnating for too long already. Mario’s problems extend well beyond walking through an airport or a shopping mall or reading the label on a tomato can. The only tool I really find useful is the reader with vocal synthesis on the smartphone: it works pretty well and it’s so precious to be able to listen to any book when audiobooks are still not the norm…” IL: “So could you tell me more about Mario’s experience? What do you think are the most commonplace barriers he experiences when going to school? How does he roam around?” MBC: “He is training with the stick. Many people dislike it, but it is rather dependable and attracts sufficient attention to ensure that other people will be more cooperative and safely behaved. However everyday life can become very problematic. Architectures are often hiding traps that would surprise for the naivety of those who designed the spaces: you would never imagine the feeling of dread when you have just seen your son missing an unprotected element from a window, protruding out of a wall with its sharp corners… and the use of the spaces themselves can be even more challenging! Hanging wires, doors opening directly on stairs, elements built in non-shock-resistant glass. Many of these, if you ask me, would be dangerous to any child, but if you factor in the inability to forecast what you are going to meet next… The risk of bad practices escalates quickly!” IL: “So school is not a safe haven for Mario…?” MBC: “Not just that… most activities are not structured to include children like Mario. Schoolbooks are more difficult to find as eBooks for the vocal synthesizer than others. Even then, many graphics, whether didactic or there for testing purposes, remain inaccessible… and even the teachers, despite being adorable with Mario, are not informed about methods for inclusive teaching… For example, my husband is a musician, and he has always tried to exploit musical theory to organize our family games (she mocks for me a couple of games based on recognizing the tones, or what an object at home could be based on analogies of noises). We constantly try to use acoustics as a tool to explain concepts, and risks to our child…” IL: “…and this, of course, doesn’t happen at school” MBC: “Not even closely. School sometimes becomes a very frustrating experience… a place of isolation to remind Mario of his diversity. Irene, you are young, you must remember your lectures of geometry, for example…” IL: “yes, indeed… mostly graphics are drawn on the blackboard… I see what you mean” MBC: “even our language is geared for the idea that seeing is believing. Mario often tells me that he has seen a schoolmate with a certain outfit or some event that he is going to tell me about… he does enormously to find his place in society. And my husband and I do our maximum to help him surpass the social barriers: we teach him games that he can play with his friends, we accompany him to familiarize with the places where he will have to interact with his mates, and we drill into him, constantly, how to react to the unexpected, hoping that panic will never prevail. Technology, instead of these half-baked attempts at substituting vision for simple tasks, should take on education… there is so much more that is lost in our societies when one cannot see than just reading on a can whether it is tomato or green peas, and nurturing those skills that we all have as fellow humans, rather than focusing on what we lack, would be so much more empowering.” IL: “what you say is very inspirational… so you believe education is the true mean of supporting Mario… and what is the place of technology in your vision?” MBC: “we live in a time obsessed with technology, and we forget that it is just a tool. I have not hidden from you, I am not a big supporter of the idea. For example, we use the e-reader with voice synthesizer… the problem is extremely important, but not mission critical, and so the technical solution makes sense… I am not sure I would delegate to technology, or to other humans for what is worth it, many other things on a regular base… what would be the meaning of life, if you give up on the very experiences that make it worth sharing and living? We are social animals, someone more important than me said once…” IL: “Maria, thank you really for letting me peer into your family life… and thank you for your kind guidance. I hope that we will be able to live to your expectations, but I can already promise you that we will at least try our best!” MBC: “It has been my pleasure Irene, it is so nice to meet a young person trying with enthusiasm to tackle a problem we have to deal and cope with every day. I wish you the best of luck, and I look forward to hearing about your progress!” When Irene went back to the team after this conversation, she was confused, for having just experienced the most confrontational conversation about their project. Irene was moved emotionally by the passion and interest expressed by the mother. An experience that would leave her forever changed and stretched. With Irene insisting, a small group of three people from the original team started diverging from the original path of designing a wearable “small world” navigation system. They started brainstorming wildly about educational concepts. Independently from the rest of the team, which opposed the need to bring to completion the academic assignment, they sought a new agreement with their mentor and started optimal thinking at 360º. Using 3D ultrasound-based haptic interfaces to offer interactive geometry education or simulators for practical tasks that would completely substitute visualization for acoustic and tactile feedbacks? Most of the early ideas were dropped when their mentor, or people not involved in the team that he suggested to talk to, would object other low-tech solutions (e.g.: wooden models for 3D geometry) could deliver almost the same experience, significantly undercutting the complexities of the projects. It was during this naïve and intense search, that their mentor showed them a video of a blind person using tongue clicks to echolocate while biking (!!!). The rest, as they say, is history, and we will share with you a few details about the early testing in a next post… so follow us The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.  *To protect the privacy of individuals the names and identifying details have been changed.  There was a brand indicated, which we discovered is trusted among the blind community, but we do not think it is relevant here.",/post/577,2017-06-26T14:02:21.000Z,2017-06-26T14:02:21.000Z,577,3323,AnnotatorStore::TextAnnotation,,,,,,,,,544,1283 9040,v1.0,,"Now, we are collaborating online (Google Calendar and Google Docs mostly) and offline, meeting quite often at WeMake to design and deliver a local project with common goals....more to come",/post/862,2017-06-26T14:00:59.000Z,2017-06-26T14:00:59.000Z,862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,829,1242 4747,v1.0,,"The involvement of Federico Bortot- @Frankie_Bortot - an engineer interested in 3D printing and open assistive technologies could bring in useful skills. The discussion grew as the project about how research could benefit from such breakthrough experiences, especially in the field of assistive technologies and scalable manufacturing. Enrico from WeMake has brought support and enthusiasm in printing assistive prototypes like the one you see in the above picture. Now, we are collaborating online (Google Calendar and Google Docs mostly) and offline, meeting quite often at WeMake to design and deliver a local project with common goals....more to come",/post/862,2017-06-26T13:54:16.000Z,2017-06-26T13:54:16.000Z,862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,829,67 4510,v1.0,,"The involvement of Federico Bortot- @Frankie_Bortot - an engineer interested in 3D printing and open assistive technologies could bring in useful skills. The discussion grew as the project about how research could benefit from such breakthrough experiences, especially in the field of assistive technologies and scalable manufacturing. Enrico from WeMake has brought support and enthusiasm in printing assistive prototypes like the one you see in the above picture. Now, we are collaborating online (Google Calendar and Google Docs mostly) and offline, meeting quite often at WeMake to design and deliver a local project with common goals....more to come",/post/862,2017-06-26T13:54:10.000Z,2017-06-26T13:54:10.000Z,862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,829,6 11281,v1.0,,"Only after some months I came back to check the post and i found that someone ( @Rune ) replied with a comment. So, I got in touch with Rune and planned to meet at Master of Networks that took place at WeMake in Milan. We could discuss for long and shared many points of view. Since then we have been talking about a common little project and how to realize the shared idea of open care to involve and empower patients. We even agreed on writing a academic paper together.   Thanks to the digital ethnography the first results of the network analysis were the metrics about involvement of users. Opencare staff users were the most present and with a higher number of posts and comments. The most active two persons on opencare infrastructures, but not from the staff, were @Federico Monaco (ranks 7th by in-degree) and @Rune (ranks 13th) (for further information check: https://edgeryders.eu/en/opencare-research/the-wonder-of-open-notebook-science-opencare).",/post/862,2017-06-26T13:54:01.000Z,2017-06-26T13:54:01.000Z,862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,829,1784 8318,v1.0,,"Only after some months I came back to check the post and i found that someone ( @Rune ) replied with a comment. So, I got in touch with Rune and planned to meet at Master of Networks that took place at WeMake in Milan. We could discuss for long and shared many points of view. Since then we have been talking about a common little project and how to realize the shared idea of open care to involve and empower patients. We even agreed on writing a academic paper together.   Thanks to the digital ethnography the first results of the network analysis were the metrics about involvement of users. Opencare staff users were the most present and with a higher number of posts and comments. The most active two persons on opencare infrastructures, but not from the staff, were @Federico Monaco (ranks 7th by in-degree) and @Rune (ranks 13th) (for further information check: https://edgeryders.eu/en/opencare-research/the-wonder-of-open-notebook-science-opencare).",/post/862,2017-06-26T13:53:35.000Z,2017-06-26T13:53:35.000Z,862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,829,1081 5989,v1.0,,"Only after some months I came back to check the post and i found that someone ( @Rune ) replied with a comment. So, I got in touch with Rune and planned to meet at Master of Networks that took place at WeMake in Milan. We could discuss for long and shared many points of view. Since then we have been talking about a common little project and how to realize the shared idea of open care to involve and empower patients. We even agreed on writing a academic paper together.   Thanks to the digital ethnography the first results of the network analysis were the metrics about involvement of users. Opencare staff users were the most present and with a higher number of posts and comments. The most active two persons on opencare infrastructures, but not from the staff, were @Federico Monaco (ranks 7th by in-degree) and @Rune (ranks 13th) (for further information check: https://edgeryders.eu/en/opencare-research/the-wonder-of-open-notebook-science-opencare).",/post/862,2017-06-26T13:53:21.000Z,2017-06-26T13:53:21.000Z,862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,829,396 4609,v1.0,,"Thank you @Costantino! After this pivot we also had an interesting workshop with  @silviad.ambrosio and @ChiaraFrr on the Agile methodologies that helped us to focus on what we are doing and how to do it. In the following link is an article that go deeper in the details of this activity. https://edgeryders.eu/en/agile-kick-off-at-wemake",/post/14618,2017-06-26T13:52:39.000Z,2017-06-26T13:52:39.000Z,14618,3323,AnnotatorStore::TextAnnotation,,,,,,,,,833,30 7241,v1.0,,"Hi @Noemi! The kick off event had a good start. During the first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind). Thanks for the support!",/post/14118,2017-06-26T13:51:06.000Z,2017-06-26T13:51:06.000Z,14118,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,788 4563,v1.0,,"Hi @Noemi! The kick off event had a good start. During the first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind). Thanks for the",/post/14118,2017-06-26T13:50:50.000Z,2017-06-26T13:50:50.000Z,14118,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,18 7153,v1.0,,"Hi @Noemi! The kick off event had a good start. During the first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind). Thanks for the support!",/post/14118,2017-06-26T13:50:45.000Z,2017-06-26T13:50:45.000Z,14118,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,766 4509,v1.0,,"Hi @Noemi! The kick off event had a good start. During the first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind). Thanks for the support!",/post/14118,2017-06-26T13:50:39.000Z,2017-06-26T13:50:39.000Z,14118,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,6 7776,v1.0,,"Alessandro, I'm also interested in approaches where the data entry becomes organic, integrated in your routine, almost happening in the background. i.e. a wonderful UI UX.  I will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I’ll definitely like to deliver a smooth user experience.",/post/24217,2017-06-26T13:47:39.000Z,2017-06-26T13:47:39.000Z,24217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,936 10169,v1.0,,"Alessandro, I'm also interested in approaches where the data entry becomes organic, integrated in your routine, almost happening in the background. i.e. a wonderful UI UX.  I will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I’ll definitely like to deliver a smooth user experience.",/post/24217,2017-06-26T13:47:33.000Z,2017-06-26T13:47:33.000Z,24217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1479 9378,v1.0,,"Alessandro, I'm also interested in approaches where the data entry becomes organic, integrated in your routine, almost happening in the background. i.e. a wonderful UI UX.  I will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I’ll definitely like to deliver a smooth user experience.",/post/24217,2017-06-26T13:47:28.000Z,2017-06-26T13:47:28.000Z,24217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1300 6331,v1.0,,"Alessandro, I'm also interested in approaches where the data entry becomes organic, integrated in your routine, almost happening in the background. i.e. a wonderful UI UX.  I will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I’ll definitely like to deliver a smooth user experience.",/post/24217,2017-06-26T13:47:21.000Z,2017-06-26T13:47:21.000Z,24217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,455 9377,v1.0,,"The app “Clue” (menstrual cycle tracking), is a very good example in this terms, it doesn’t do much next to allowing women to structurally note down dates and symptoms, yet it is a powerful tool of awareness.",/post/20905,2017-06-26T13:47:07.000Z,2017-06-26T13:47:07.000Z,20905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1300 10397,v1.0,,"Hi Alberto, hello Alessandro, how nice to find feedbacks! happy to try to answer to your questions. Sorry Alberto, I missed your comment and noticed it only now. As Alessandro points out the project is divided in several phases. In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:  Carrots, Broccoli, Fennel = Low Histamine Tomato, Orange, Kiwi = High Histamine Coffe, Garlic, Grapes = sometimes tolerated This are informations that anyone can find online but while at the supermarket or while choosing your ice cream flavour, it is handy to have it quickly ready all together in an app. The first phase of the app will also contain a list of Common symptoms: Headaches, migraines, Vertigo, dizziness, Abdominal cramps ecc. And it will allow the user to check symptoms and associate them with foods into a diary/calendar system. This is handy in case the user wants to reintroduce a food or wants to monitor the effects of some food that are sometimes tolerated. In the first phase of the app the system will not ask many questions nor give too many informations. It will mostly be a structured tool for annotation that will empower the personal awareness of the user. The app “Clue” (menstrual cycle tracking), is a very good example in this terms, it doesn’t do much next to allowing women to structurally note down dates and symptoms, yet it is a powerful tool of awareness.  The data-analisys will only enter  in the second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.  I hope that I have answered your questions and please let me know, I am happy to answer if there are more questions.",/post/20905,2017-06-26T13:46:36.000Z,2017-06-26T13:46:36.000Z,20905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1539 6415,v1.0,,"In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:  Carrots, Broccoli, Fennel = Low Histamine Tomato, Orange, Kiwi = High Histamine Coffe, Garlic, Grapes = sometimes tolerated This are informations that anyone can find online but while at the supermarket or while choosing your ice cream flavour, it is handy to have it quickly ready all together in an app. The first phase of the app will also contain a list of Common symptoms: Headaches, migraines, Vertigo, dizziness, Abdominal cramps ecc. And it will allow the user to check symptoms and associate them with foods into a diary/calendar system. This is handy in case the user wants to reintroduce a food or wants to monitor the effects of some food that are sometimes tolerated. In the first phase of the app the system will not ask many questions nor give too many informations. It will mostly be a structured tool for annotation that will empower the personal awareness of the user. The app “Clue” (menstrual cycle tracking), is a very good example in this terms, it doesn’t do much next to allowing women to structurally note down dates and symptoms, yet it is a powerful tool of awareness.  The data-analisys will only enter  in the second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.  I hope that I have answered your questions and please let me know, I am happy to answer if there are more questions.",/post/20905,2017-06-26T13:46:29.000Z,2017-06-26T13:46:29.000Z,20905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,477 7775,v1.0,,"In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:  Carrots, Broccoli, Fennel = Low Histamine Tomato, Orange, Kiwi = High Histamine Coffe, Garlic, Grapes = sometimes tolerated This are informations that anyone can find online but while at the supermarket or while choosing your ice cream flavour, it is handy to have it quickly ready all together in an app.",/post/20905,2017-06-26T13:46:15.000Z,2017-06-26T13:46:15.000Z,20905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,936 7442,v1.0,,"In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:  Carrots, Broccoli, Fennel = Low Histamine Tomato, Orange, Kiwi = High Histamine Coffe, Garlic, Grapes = sometimes tolerated This are informations that anyone can find online but while at the supermarket or while choosing your ice cream flavour, it is handy to have it quickly ready all together in an app.",/post/20905,2017-06-26T13:46:05.000Z,2017-06-26T13:46:05.000Z,20905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,852 7815,v1.0,,"Hi Alberto, hello Alessandro, how nice to find feedbacks! happy to try to answer to your questions. Sorry Alberto, I missed your comment and noticed it only now. As Alessandro points out the project is divided in several phases. In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:  Carrots, Broccoli, Fennel = Low Histamine Tomato, Orange, Kiwi = High Histamine Coffe, Garlic, Grapes = sometimes tolerated This are informations that anyone can find online but while at the supermarket or while choosing your ice cream flavour, it is handy to have it quickly ready all together in an app. The first phase of the app will also contain a list of Common symptoms: Headaches, migraines, Vertigo, dizziness, Abdominal cramps ecc. And it will allow the user to check symptoms and associate them with foods into a diary/calendar system. This is handy in case the user wants to reintroduce a food or wants to monitor the effects of some food that are sometimes tolerated. In the first phase of the app the system will not ask many questions nor give too many informations. It will mostly be a structured tool for annotation that will empower the personal awareness of the user. The app “Clue” (menstrual cycle tracking), is a very good example in this terms, it doesn’t do much next to allowing women to structurally note down dates and symptoms, yet it is a powerful tool of awareness.  The data-analisys will only enter  in the second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.  I hope that I have answered your questions and please let me know, I am happy to answer if there are more questions.",/post/20905,2017-06-26T13:45:53.000Z,2017-06-26T13:45:53.000Z,20905,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,952 9313,v1.0,,"Yes, you are getting it right. Innovation processes and progress policies should involve citizens as designers to build a much responsible and sustainable society.",/post/10708,2017-06-26T13:45:18.000Z,2017-06-26T13:45:18.000Z,10708,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,1283 9312,v1.0,,Lorenzo Romagnoli (http://lorenzoromagnoli.me/) is an interaction designer that will be in charge of developing the mock-up and co-designing with users and other makers the needed prototypes for the projects openrampette and MIR.,/post/852,2017-06-26T13:44:47.000Z,2017-06-26T13:44:47.000Z,852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,1283 6501,v1.0,,"As first mission Lorenzo will be in charge of the “call” part of openrampette; i.e. the device, or the solution meant to call the shop attendants. The result should be a “good” mock-up to be discussed on in the next meeting of “user research” with the shop owners themselves. The design side is improving now that the projects have been developed and could involve and motivate many people. It's the turning point from design thinking to the making.",/post/852,2017-06-26T13:40:46.000Z,2017-06-26T13:40:46.000Z,852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,485 11335,v1.0,,"As first mission Lorenzo will be in charge of the “call” part of openrampette; i.e. the device, or the solution meant to call the shop attendants. The result should be a “good” mock-up to be discussed on in the next meeting of “user research” with the shop owners themselves. The design side is improving now that the projects have been developed and could involve and motivate many people. It's the turning point from design thinking to the making.",/post/852,2017-06-26T13:40:27.000Z,2017-06-26T13:40:27.000Z,852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,1811 6384,v1.0,,"Just today, I was considering how much decisions are based on situations and how much situations are shaped by the technological means used by the team. Chats, online files, networks and software are such a heterogeneous and complex network to face the complexity of turning design sessions into events, actions and artifacts.",/post/852,2017-06-26T13:39:34.000Z,2017-06-26T13:39:34.000Z,852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,468 7152,v1.0,,"A liquid and seamless leadership making possible such performance made up of details and roles taken time by time by the many here around. There are skills, shifts and duties that can be interchanged; other are very specific and will need a bit of training, or briefing.",/post/852,2017-06-26T13:39:18.000Z,2017-06-26T13:39:18.000Z,852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,766 5539,v1.0,,"There is a hard work on coordinating activities, plans, schedules, people, and it can be done only in a shared and collaborative way. Infact, the issue i'm currently working on is about leadership.",/post/852,2017-06-26T13:39:09.000Z,2017-06-26T13:39:09.000Z,852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,819,326 10340,v1.0,,"@Branislava and @Noemi, unfortunately, i haven't been south from Slovenia - I know a bunch of progressives from the Balkans, but sadly none of them is strictly dealing with LGBTQ rights. If I come across something interesting, I will let you know - If you want to work with really good organizations, I would suggest checking Rutgers. In Poland, we have a wonderful group called Ponton. My sex educator friend always said the best places for sex ed are Netherlands and UK (I guess France and Germany are also pretty wonderful), so I would do more digging there.",/post/14745,2017-06-26T13:38:32.000Z,2017-06-26T13:38:32.000Z,14745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1522 8301,v1.0,,"@Branislava and @Noemi, unfortunately, i haven't been south from Slovenia - I know a bunch of progressives from the Balkans, but sadly none of them is strictly dealing with LGBTQ rights. If I come across something interesting, I will let you know - If you want to work with really good organizations, I would suggest checking Rutgers. In Poland, we have a wonderful group called Ponton. My sex educator friend always said the best places for sex ed are Netherlands and UK (I guess France and Germany are also pretty wonderful), so I would do more digging there.",/post/14745,2017-06-26T13:38:27.000Z,2017-06-26T13:38:27.000Z,14745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1075 7391,v1.0,,"You  are well informed, yes young people were in the streets, dissatisfied with the elections but they got tired and gave up, it is easier to simply go somewhere abroad, looking for a job, although it is not easy,( language,habits, traditions, family, friends, problem with visas, work permits.... ) than to stay and fight, brain drain is huge issue.",/post/11895,2017-06-26T13:38:14.000Z,2017-06-26T13:38:14.000Z,11895,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,827 7151,v1.0,,"Abortions are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman's right is to do with her body what she consider is the best. Very little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated abortions are harmful to health, the number of adolescent pregnancies is rising. Awareness and availability of contraceptives, pills for the day after and abortion with medication, are crucial.",/post/11895,2017-06-26T13:38:05.000Z,2017-06-26T13:38:05.000Z,11895,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,766 4517,v1.0,,"Abortions are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman's right is to do with her body what she consider is the best. Very little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated abortions are harmful to health, the number of adolescent pregnancies is rising. Awareness and availability of contraceptives, pills for the day after and abortion with medication, are crucial.",/post/11895,2017-06-26T13:38:00.000Z,2017-06-26T13:38:00.000Z,11895,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,8 8189,v1.0,,"Unfortunately I currently do not work, actively looking for a job, I wish I had a project, I have lots of ideas, but I have a problem to realize them, even when I worked whenever I had the initiative, I was told do as the boss says , (proverb: ties horse as the boss says even if you and the horse die).  @Noemi , yes, you're right, these are the areas that interest me, I think that we have to actively take part in solving this problems, especially young people should engage. Abortions are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman's right is to do with her body what she consider is the best. Very little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated abortions are harmful to health, the number of adolescent pregnancies is rising. Awareness and availability of contraceptives, pills for the day after and abortion with medication, are crucial. You  are well informed, yes young people were in the streets, dissatisfied with the elections but they got tired and gave up, it is easier to simply go somewhere abroad, looking for a job, although it is not easy,( language,habits, traditions, family, friends, problem with visas, work permits.... ) than to stay and fight, brain drain is huge issue.",/post/11895,2017-06-26T13:36:20.000Z,2017-06-26T13:36:20.000Z,11895,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1047 4809,v1.0,,"have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...",/post/858,2017-06-26T13:36:04.000Z,2017-06-26T13:36:04.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,80 11556,v1.0,,"The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...",/post/858,2017-06-26T13:35:58.000Z,2017-06-26T13:35:58.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1872 7907,v1.0,,"Women  demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed… crippled",/post/858,2017-06-26T13:35:48.000Z,2017-06-26T13:35:48.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,966 7150,v1.0,,"To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.",/post/858,2017-06-26T13:35:33.000Z,2017-06-26T13:35:33.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,766 11478,v1.0,,"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming. Women are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation. The violence being perpetrated against girls and women it takes on epidemic proportions. And instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their  life, their well-being. Women who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ... What are the primary tasks?  To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care. The right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee To be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research…. Many seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges. Women  demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed… crippled Many studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor, The whole society has benefits and profit from that, also economic empowerment of women can give them the strength and the power to fight for their rights. What is I have to emphasis totally crazy, to fight for something that is obvious and should be guaranteed. But since we live in such a country and such a world, which I will say freely that's gone completely crazy. The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...  I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do because it is not a choice any more it is our obligation.",/post/858,2017-06-26T13:35:22.000Z,2017-06-26T13:35:22.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1854 11372,v1.0,,"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming. Women are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation. The violence being perpetrated against girls and women it takes on epidemic proportions. And instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their  life, their well-being. Women who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ... What are the primary tasks?  To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care. The right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee To be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research…. Many seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges. Women  demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed… crippled Many studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor, The whole society has benefits and profit from that, also economic empowerment of women can give them the strength and the power to fight for their rights. What is I have to emphasis totally crazy, to fight for something that is obvious and should be guaranteed. But since we live in such a country and such a world, which I will say freely that's gone completely crazy. The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...  I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do because it is not a choice any more it is our obligation.",/post/858,2017-06-26T13:35:11.000Z,2017-06-26T13:35:11.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1823 6986,v1.0,,"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming. Women are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation. The violence being perpetrated against girls and women it takes on epidemic proportions. And instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their  life, their well-being. Women who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ... What are the primary tasks?  To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care. The right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee To be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research…. Many seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges. Women  demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed… crippled Many studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor, The whole society has benefits and profit from that, also economic empowerment of women can give them the strength and the power to fight for their rights. What is I have to emphasis totally crazy, to fight for something that is obvious and should be guaranteed. But since we live in such a country and such a world, which I will say freely that's gone completely crazy. The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...  I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do because it is not a choice any more it is our obligation.",/post/858,2017-06-26T13:34:55.000Z,2017-06-26T13:34:55.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,729 10343,v1.0,,"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming. Women are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation. The violence being perpetrated against girls and women it takes on epidemic proportions. And instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their  life, their well-being. Women who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ... What are the primary tasks?  To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care. The right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee To be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research…. Many seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges. Women  demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed… crippled Many studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor, The whole society has benefits and profit from that, also economic empowerment of women can give them the strength and the power to fight for their rights. What is I have to emphasis totally crazy, to fight for something that is obvious and should be guaranteed. But since we live in such a country and such a world, which I will say freely that's gone completely crazy. The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...  I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do because it is not a choice any more it is our obligation.",/post/858,2017-06-26T13:34:49.000Z,2017-06-26T13:34:49.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,1523 7586,v1.0,,"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming. Women are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation. The violence being perpetrated against girls and women it takes on epidemic proportions. And instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their  life, their well-being. Women who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ... What are the primary tasks?  To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care. The right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee To be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research…. Many seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges. Women  demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed… crippled Many studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor, The whole society has benefits and profit from that, also economic empowerment of women can give them the strength and the power to fight for their rights. What is I have to emphasis totally crazy, to fight for something that is obvious and should be guaranteed. But since we live in such a country and such a world, which I will say freely that's gone completely crazy. The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have to forget that terrible sentence, you're a girl, you you have to let go, you have to listen,  you must be good, obedient Well,  you do not have to do anything Be good and obedient and you'll be good and obedient patients If you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default,  you can be scientist, pilot, astroanut, everything you want Of course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing,  to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and  works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable and smart and successful women, because obviously while men are leding, we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is  always something wrong , they have to be perfect to be loved because they are  upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie and  to be good... It is a great theme, and very serious and  requires indispensable large and big steps to make the change, so we won't any more read about dark statistics or to be a part of it, I forgot about inadequate or not existing  health status of women and treating them, how horrible gynecologist acting, a large number of cancers that are not detected at time, shame,  when they give birth listen insults and so on...  I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do because it is not a choice any more it is our obligation.",/post/858,2017-06-26T13:34:42.000Z,2017-06-26T13:34:42.000Z,858,3323,AnnotatorStore::TextAnnotation,,,,,,,,,825,885 10623,v1.0,,"Changing attitudes and culture takes more. As you've said organising and getting the conversation going at a community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.",/post/20403,2017-06-26T13:34:00.000Z,2017-06-26T13:34:00.000Z,20403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1611 10904,v1.0,,"community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.",/post/20403,2017-06-26T13:33:51.000Z,2017-06-26T13:33:51.000Z,20403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1679 6282,v1.0,,"Changing attitudes and culture takes more. As you've said organising and getting the conversation going at a community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.",/post/20403,2017-06-26T13:33:32.000Z,2017-06-26T13:33:32.000Z,20403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,448 7149,v1.0,,"Getting these important subjects onto school curriculums would be a very good outcome. I created an app in 2001 ""Seeing Sense"" that became part of the curriculum in the schools in Northern Ireland, when working with Mark Willett Design Associates. It was a usefull educational tool, but education is just a part of the solution.",/post/20403,2017-06-26T13:33:26.000Z,2017-06-26T13:33:26.000Z,20403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,766 10768,v1.0,,"To organize support groups in the villages because  as well as smaller cities, seminars, give practical advice, different topics, famous and successful people can tell their stories of how they achieved success, to have overcome its crisis....",/post/16621,2017-06-26T13:33:11.000Z,2017-06-26T13:33:11.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1640 10490,v1.0,,"To organize workshops and lecturers to train women practical skills , make fund for scholarship to help women to get education,  improve skills in order to obtain job easier, economically become independent, or  learn how they can work from home",/post/16621,2017-06-26T13:33:02.000Z,2017-06-26T13:33:02.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1557 9605,v1.0,,"To organize webinars women can follow from home, or work,( as you know usually bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it's a shame to talk with a close  people and somewhat easier to turn to strangers...",/post/16621,2017-06-26T13:32:55.000Z,2017-06-26T13:32:55.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1354 10766,v1.0,,"To organize webinars women can follow from home, or work,( as you know usually bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it's a shame to talk with a close  people and somewhat easier to turn to strangers...",/post/16621,2017-06-26T13:32:43.000Z,2017-06-26T13:32:43.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1639 11458,v1.0,,"To organize webinars women can follow from home, or work,( as you know usually bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it's a shame to talk with a close  people and somewhat easier to turn to strangers...",/post/16621,2017-06-26T13:32:37.000Z,2017-06-26T13:32:37.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1848 5428,v1.0,,"a lot of positive and good examples What do you think about interactive workshops, psychologists, educators and sociologists playing with children so they can  adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe bad behavior in the name of love, oppression or degrading treatment from society or be abuse and suffer because they are poor?",/post/16621,2017-06-26T13:32:32.000Z,2017-06-26T13:32:32.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,308 7148,v1.0,,"What do you think about interactive workshops, psychologists, educators and sociologists playing with children so they can  adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe bad behavior in the name of love, oppression or degrading treatment from society or be abuse and suffer because they are poor?",/post/16621,2017-06-26T13:32:27.000Z,2017-06-26T13:32:27.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,766 11537,v1.0,,"What do you think about interactive workshops, psychologists, educators and sociologists playing with children so they can  adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe bad behavior in the name of love, oppression or degrading treatment from society or be abuse and suffer because they are poor?",/post/16621,2017-06-26T13:32:18.000Z,2017-06-26T13:32:18.000Z,16621,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1865 8300,v1.0,,"permitted by law. We too were dominated by church, but things do change. The third level education system is pretty good here. Recently Teach Solas resource centre got up and running. I wasn't involved myself apart from enjoying the parades and voting on the referendum. I don't think the journey was easy, but attitudes have changed greatly here. I hope that change can spread. I will ask them a bit more about their journey, maybe there are clues as to how? and where to start? One thing I remember is that the rainbow was used very strongly during campaigning.",/post/11931,2017-06-26T13:32:01.000Z,2017-06-26T13:32:01.000Z,11931,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1075 6116,v1.0,,"Hi @Branislava. Here in Ireland last year we had a refferendum on gay marriage and it is now permitted by law. We too were dominated by church, but things do change. The third level education system is pretty good here. Recently Teach Solas resource centre got up and running. I wasn't involved myself apart from enjoying the parades and voting on the referendum. I don't think the journey was easy, but attitudes have changed greatly here. I hope that change can spread. I will ask them a bit more about their journey, maybe there are clues as to how? and where to start? One thing I remember is that the rainbow was used very strongly during campaigning.",/post/11931,2017-06-26T13:31:56.000Z,2017-06-26T13:31:56.000Z,11931,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,430 9170,v1.0,,"We have to change family, education, political estambilsmenta, police, the mind is like a parachute works only when it is open it is easier to break an atom than a prejudice",/post/857,2017-06-26T13:31:45.000Z,2017-06-26T13:31:45.000Z,857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1261 9333,v1.0,,"Bearing in mind that Serbia is extremely patriarchal country that many many people primarily uneducated, ignorant, limited by dogma, the church has a strong influence, the police is on the side who persecute LGBTQ, laws are not adopted nor respected, even the media are not friendly. Being different in any sense means to be condemned, discriminated against, rejected. Like it is not enough that we have to deal with our demons and problems, and that's not enough, we have to fight with the rest of the world. And what is worse it is futile struggle, doomed to fail.  I'm not a member of   LGBTQ, I can not imagine what is happening in their soul, I believe it's scary and it's hard, extremely hard.  I am someone who looks soul who hears the words and I really am not interested in anything else, really can not understand why anyone would be bother by LGBTQ, I ask why? We are free, to do what we want, right? So why, Some give themselves the right to determine how we should behave, what to eat, who to love, how to dress, to be socially acceptable, and why we shoud care about their opinion. Unfortunately these moralists are the majority in our country, fake moralists who point out other people's mistakes to cover up their own, chasing people only that they would not be marginalized, persecution, condemn so they would not be convicted, these are people who also suffer, but they damage others and society as a whole, ALL of that can be cured.  First, people need to understand that we are all different, but equal, we all have the right and that nobody has the right to endangers or give us verdict how we're going to live, that everyone should be looking at themselves and their own life, to solve their problems and  not to care about other people's problems. tell me how wedding and adoption of a child endanger other families, how sex change threatens others, or dresses  make  someone uncomfortable ???? Imagine pain of  LGBTQ and you, with your limited minds consider them ill and reject them and persecute, torture and abuse  Our society have to change from the root, I regret and I am ashamed because I live in such society and  that situation is not changing We have to change family, education, political estambilsmenta, police, the mind is like a parachute works only when it is open it is easier to break an atom than a prejudice We need to do the impossible I believe that we can, step by step, it will not be easy,but we simply have to change everything , this is not a life and it is not worth to live like that",/post/857,2017-06-26T13:31:13.000Z,2017-06-26T13:31:13.000Z,857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1291 6985,v1.0,,"Bearing in mind that Serbia is extremely patriarchal country that many many people primarily uneducated, ignorant, limited by dogma, the church has a strong influence, the police is on the side who persecute LGBTQ, laws are not adopted nor respected, even the media are not friendly. Being different in any sense means to be condemned, discriminated against, rejected. Like it is not enough that we have to deal with our demons and problems, and that's not enough, we have to fight with the rest of the world. And what is worse it is futile struggle, doomed to fail.  I'm not a member of   LGBTQ, I can not imagine what is happening in their soul, I believe it's scary and it's hard, extremely hard.  I am someone who looks soul who hears the words and I really am not interested in anything else, really can not understand why anyone would be bother by LGBTQ, I ask why? We are free, to do what we want, right? So why, Some give themselves the right to determine how we should behave, what to eat, who to love, how to dress, to be socially acceptable, and why we shoud care about their opinion. Unfortunately these moralists are the majority in our country, fake moralists who point out other people's mistakes to cover up their own, chasing people only that they would not be marginalized, persecution, condemn so they would not be convicted, these are people who also suffer, but they damage others and society as a whole, ALL of that can be cured.  First, people need to understand that we are all different, but equal, we all have the right and that nobody has the right to endangers or give us verdict how we're going to live, that everyone should be looking at themselves and their own life, to solve their problems and  not to care about other people's problems. tell me how wedding and adoption of a child endanger other families, how sex change threatens others, or dresses  make  someone uncomfortable ???? Imagine pain of  LGBTQ and you, with your limited minds consider them ill and reject them and persecute, torture and abuse  Our society have to change from the root, I regret and I am ashamed because I live in such society and  that situation is not changing We have to change family, education, political estambilsmenta, police, the mind is like a parachute works only when it is open it is easier to break an atom than a prejudice We need to do the impossible I believe that we can, step by step, it will not be easy,but we simply have to change everything , this is not a life and it is not worth to live like that",/post/857,2017-06-26T13:30:53.000Z,2017-06-26T13:30:53.000Z,857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,729 8299,v1.0,,"Bearing in mind that Serbia is extremely patriarchal country that many many people primarily uneducated, ignorant, limited by dogma, the church has a strong influence, the police is on the side who persecute LGBTQ, laws are not adopted nor respected, even the media are not friendly. Being different in any sense means to be condemned, discriminated against, rejected. Like it is not enough that we have to deal with our demons and problems, and that's not enough, we have to fight with the rest of the world. And what is worse it is futile struggle, doomed to fail.  I'm not a member of   LGBTQ, I can not imagine what is happening in their soul, I believe it's scary and it's hard, extremely hard.  I am someone who looks soul who hears the words and I really am not interested in anything else, really can not understand why anyone would be bother by LGBTQ, I ask why? We are free, to do what we want, right? So why, Some give themselves the right to determine how we should behave, what to eat, who to love, how to dress, to be socially acceptable, and why we shoud care about their opinion. Unfortunately these moralists are the majority in our country, fake moralists who point out other people's mistakes to cover up their own, chasing people only that they would not be marginalized, persecution, condemn so they would not be convicted, these are people who also suffer, but they damage others and society as a whole, ALL of that can be cured.  First, people need to understand that we are all different, but equal, we all have the right and that nobody has the right to endangers or give us verdict how we're going to live, that everyone should be looking at themselves and their own life, to solve their problems and  not to care about other people's problems. tell me how wedding and adoption of a child endanger other families, how sex change threatens others, or dresses  make  someone uncomfortable ???? Imagine pain of  LGBTQ and you, with your limited minds consider them ill and reject them and persecute, torture and abuse  Our society have to change from the root, I regret and I am ashamed because I live in such society and  that situation is not changing We have to change family, education, political estambilsmenta, police, the mind is like a parachute works only when it is open it is easier to break an atom than a prejudice We need to do the impossible I believe that we can, step by step, it will not be easy,but we simply have to change everything , this is not a life and it is not worth to live like that",/post/857,2017-06-26T13:30:41.000Z,2017-06-26T13:30:41.000Z,857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,824,1075 5988,v1.0,,"Thanks for your interest for our work and model. Of course there's certainly room for export of some tools, trainings or even more... But we would like to discuss it more thorougly  with you on skype, to see what could be the plan and what are exactly your needs. We are very busy at the moment, preparing our ""registry week"" end of this month, so we will contact you in the beginning of July to make an appointment with you on skype.",/post/17902,2017-06-26T13:30:12.000Z,2017-06-26T13:30:12.000Z,17902,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,396 9604,v1.0,,"Also, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.",/post/15524,2017-06-26T13:30:00.000Z,2017-06-26T13:30:00.000Z,15524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,1354 8115,v1.0,,"Are your tools and publications available to people in other countries interested in following your model? I'm a nurse in Ireland involved with various community projects, and believe the street nurses model would be a great fit for here. Also, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.",/post/15524,2017-06-26T13:29:51.000Z,2017-06-26T13:29:51.000Z,15524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,1026 10425,v1.0,,"Are your tools and publications available to people in other countries interested in following your model? I'm a nurse in Ireland involved with various community projects, and believe the street nurses model would be a great fit for here. Also, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.",/post/15524,2017-06-26T13:29:39.000Z,2017-06-26T13:29:39.000Z,15524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,1540 4536,v1.0,,"The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients. Even though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5. The cloud service might be developed in NodeJS, with database in MongoDB and MySQL.",/post/33817,2017-06-26T13:29:07.000Z,2017-06-26T13:29:07.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,12 6338,v1.0,,"The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.",/post/33817,2017-06-26T13:28:45.000Z,2017-06-26T13:28:45.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,458 6348,v1.0,,"The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.",/post/33817,2017-06-26T13:28:38.000Z,2017-06-26T13:28:38.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,461 7028,v1.0,,"The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.",/post/33817,2017-06-26T13:28:34.000Z,2017-06-26T13:28:34.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,737 6500,v1.0,,"ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.",/post/33817,2017-06-26T13:27:41.000Z,2017-06-26T13:27:41.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,485 7774,v1.0,,"ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.",/post/33817,2017-06-26T13:27:35.000Z,2017-06-26T13:27:35.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,936 10521,v1.0,,"ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn’t allow foreign patient to fully explain their symptoms or their own pathologies. The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier. ResQ is conceived to to be used mainly during the period in which the migrant still doesn’t own a “Codice Fiscale” (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum). The reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment. In this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient. Therefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.",/post/33817,2017-06-26T13:27:29.000Z,2017-06-26T13:27:29.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1565 5612,v1.0,,"ResQ is conceived to ease the communication among physicians (involved in critical context such as temporary hospitals and reception centers) regarding the health state of foreigner patients who don’t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.",/post/33817,2017-06-26T13:27:24.000Z,2017-06-26T13:27:24.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,352 6337,v1.0,,The missing digitalization of the gathered health data and the consequent discontinuity of the healing process.,/post/33817,2017-06-26T13:27:12.000Z,2017-06-26T13:27:12.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,458 9242,v1.0,,The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.,/post/33817,2017-06-26T13:26:58.000Z,2017-06-26T13:26:58.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1271 9821,v1.0,,"Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.",/post/33817,2017-06-26T13:26:36.000Z,2017-06-26T13:26:36.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1424 8758,v1.0,,"Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.",/post/33817,2017-06-26T13:26:30.000Z,2017-06-26T13:26:30.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1150 7180,v1.0,,"Our project in a tweet ResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.",/post/33817,2017-06-26T13:26:15.000Z,2017-06-26T13:26:15.000Z,33817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,773 5611,v1.0,,"Licenza, che pensi di utilizzare Opensource Stato attuale del progetto* Il progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. Considerando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto. 1.0 Scoperta 1.1 Osservazione del contesto Doc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d’occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti. 1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.  ",/post/33729,2017-06-26T13:24:54.000Z,2017-06-26T13:24:54.000Z,33729,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,352 5457,v1.0,,"sounds like very good synergies are possible, @Winnie! I also thought it might be good to look at how others define citizen science recently...  Here is one link full of links: http://www.instructables.com/id/A-Scientists-Guide-to-Citizen-Science/ Happy Summer!!",/post/20399,2017-06-26T13:23:32.000Z,2017-06-26T13:23:32.000Z,20399,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,312 7147,v1.0,,"Winnie was telling me that this is accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:  you can demonstrate diy science and how it contributes to increasing health awareness and care  you demonstrate its openness, how communities take it on board and learn, then teach others etc.",/post/17617,2017-06-26T13:23:25.000Z,2017-06-26T13:23:25.000Z,17617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,766 4861,v1.0,,"Winnie was telling me that this is accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:  you can demonstrate diy science and how it contributes to increasing health awareness and care  you demonstrate its openness, how communities take it on board and learn, then teach others etc.",/post/17617,2017-06-26T13:23:18.000Z,2017-06-26T13:23:18.000Z,17617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,100 11536,v1.0,,"Winnie was telling me that this is accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:  you can demonstrate diy science and how it contributes to increasing health awareness and care  you demonstrate its openness, how communities take it on board and learn, then teach others etc.",/post/17617,2017-06-26T13:23:14.000Z,2017-06-26T13:23:14.000Z,17617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,1865 7754,v1.0,,"Winnie was telling me that this is accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:  you can demonstrate diy science and how it contributes to increasing health awareness and care  you demonstrate its openness, how communities take it on board and learn, then teach others etc.",/post/17617,2017-06-26T13:23:08.000Z,2017-06-26T13:23:08.000Z,17617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,924 8652,v1.0,,"Hi @Rachel , nice to read your ideas! I think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the workshop? We can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river! Another proposal by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?",/post/16325,2017-06-26T13:22:48.000Z,2017-06-26T13:22:48.000Z,16325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,1146 11535,v1.0,,"I think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the workshop? We can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river! Another proposal by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?",/post/16325,2017-06-26T13:22:39.000Z,2017-06-26T13:22:39.000Z,16325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,1865 4860,v1.0,,"Hi @Rachel , nice to read your ideas! I think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the workshop? We can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river! Another proposal by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?",/post/16325,2017-06-26T13:22:32.000Z,2017-06-26T13:22:32.000Z,16325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,100 7258,v1.0,,thanks!  apparently an acoustic based sensor that recognises running water sounds is the basis for the water stewardship plan (non-evil IoT! so many projects and ideas out there - it is implementation that is always the biggest challenge imho!,/post/12391,2017-06-26T13:22:24.000Z,2017-06-26T13:22:24.000Z,12391,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,792 8125,v1.0,,thanks!  apparently an acoustic based sensor that recognises running water sounds is the basis for the water stewardship plan (non-evil IoT! so many projects and ideas out there - it is implementation that is always the biggest challenge imho!,/post/12391,2017-06-26T13:22:18.000Z,2017-06-26T13:22:18.000Z,12391,3323,AnnotatorStore::TextAnnotation,,,,,,,,,830,1028 4859,v1.0,,"Hi! The diybio.org group made this code in 2011, as far as I know.  We have a handout for prospective members of Hackuarium that includes it too...  Here it is: Transparency Emphasize transparency and the sharing of ideas, knowledge, data and results. Safety Adopt safe practices. Open Access Promote citizen science and decentralized access to biotechnology. Education Help educate the public about biotechnology, its benefits and implications. Modesty Know you don’t know everything. Community Carefully listen to any concerns and questions and respond honestly Peaceful Purposes Biotechnology must only be used for peaceful purposes. Respect Respect humans and all living systems. Responsibility Recognize the complexity and dynamics of living systems and our responsibility towards them. Accountability Remain accountable for your actions and for upholding this code. DIYbio code of ethics, Draft from the European Delegation, May 2011    Probably there could be many versions of this out there now, of course! I should also note that DIT Research is more close to my heart (do it together!) than the original diybio... ciao for now, Rachel",/post/33818,2017-06-26T13:20:38.000Z,2017-06-26T13:20:38.000Z,33818,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,100 7257,v1.0,,"Hi! The diybio.org group made this code in 2011, as far as I know.  We have a handout for prospective members of Hackuarium that includes it too...  Here it is: Transparency Emphasize transparency and the sharing of ideas, knowledge, data and results. Safety Adopt safe practices. Open Access Promote citizen science and decentralized access to biotechnology. Education Help educate the public about biotechnology, its benefits and implications. Modesty Know you don’t know everything. Community Carefully listen to any concerns and questions and respond honestly Peaceful Purposes Biotechnology must only be used for peaceful purposes. Respect Respect humans and all living systems. Responsibility Recognize the complexity and dynamics of living systems and our responsibility towards them. Accountability Remain accountable for your actions and for upholding this code. DIYbio code of ethics, Draft from the European Delegation, May 2011    Probably there could be many versions of this out there now, of course! I should also note that DIT Research is more close to my heart (do it together!) than the original diybio... ciao for now, Rachel",/post/33818,2017-06-26T13:20:28.000Z,2017-06-26T13:20:28.000Z,33818,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,792 6320,v1.0,,"I clicked on the Theater of the Oppressed link and saw the point about cultural humility! @Shajara  Now that is a really a good idea!!",/post/33812,2017-06-26T13:20:14.000Z,2017-06-26T13:20:14.000Z,33812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,452 9465,v1.0,,"I am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!",/post/33812,2017-06-26T13:19:50.000Z,2017-06-26T13:19:50.000Z,33812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,1317 4702,v1.0,,"I clicked on the Theater of the Oppressed link and saw the point about cultural humility! @Shajara  Now that is a really a good idea!!   Did you know 'modesty' is the 5th principal in the diybio code of ethics, btw? I am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!",/post/33812,2017-06-26T13:19:46.000Z,2017-06-26T13:19:46.000Z,33812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,60 7916,v1.0,,"I clicked on the Theater of the Oppressed link and saw the point about cultural humility! @Shajara  Now that is a really a good idea!!   Did you know 'modesty' is the 5th principal in the diybio code of ethics, btw? I am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!",/post/33812,2017-06-26T13:19:40.000Z,2017-06-26T13:19:40.000Z,33812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,970 5840,v1.0,,"Thanks so much for the beautiful description.  This is a conversation we've been recently having at Woodbine.  @yannick i think it is really important how you combine the idea of space with the idea of care.  Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself.  Then with the ever increasing rent, you become more and more attached to ""work"" or the struggle to compile a bunch of part time jobs together.  Hence the ubiquitious greeting in the city is the ""I'm so busy, just really busy"" idea, that once said is usually completely understood to be a chronic state.  But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments.  To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city.  Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other.  In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven't felt in the city.  As one of our comrades said, ""we left the capital of the world, and in this little town, our world just got so much bigger.""   Excited to continue this conversation and see the work you all are doing!  Be well.",/post/27815,2017-06-26T13:18:53.000Z,2017-06-26T13:18:53.000Z,27815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,377 5009,v1.0,,"Woodbine.  @yannick i think it is really important how you combine the idea of space with the idea of care.  Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself.  Then with the ever increasing rent, you become more and more attached to ""work"" or the struggle to compile a bunch of part time jobs together.  Hence the ubiquitious greeting in the city is the ""I'm so busy, just really busy"" idea, that once said is usually completely understood to be a chronic state.  But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments.  To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city.  Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other.  In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven't felt in the city.  As one of our comrades said, ""we left the capital of the world, and in this little town, our world just got so much bigger.""   Excited to continue this conversation and see the work you all are doing!  Be well.",/post/27815,2017-06-26T13:18:39.000Z,2017-06-26T13:18:39.000Z,27815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,132 7895,v1.0,,"Thanks so much for the beautiful description.  This is a conversation we've been recently having at Woodbine.  @yannick i think it is really important how you combine the idea of space with the idea of care.  Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself.  Then with the ever increasing rent, you become more and more attached to ""work"" or the struggle to compile a bunch of part time jobs together.  Hence the ubiquitious greeting in the city is the ""I'm so busy, just really busy"" idea, that once said is usually completely understood to be a chronic state.  But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments.  To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city.  Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other.  In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven't felt in the city.  As one of our comrades said, ""we left the capital of the world, and in this little town, our world just got so much bigger.""   Excited to continue this conversation and see the work you all are doing!  Be well.",/post/27815,2017-06-26T13:18:23.000Z,2017-06-26T13:18:23.000Z,27815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,962 8208,v1.0,,"Thanks so much for the beautiful description.  This is a conversation we've been recently having at Woodbine.  @yannick i think it is really important how you combine the idea of space with the idea of care.  Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself.  Then with the ever increasing rent, you become more and more attached to ""work"" or the struggle to compile a bunch of part time jobs together.  Hence the ubiquitious greeting in the city is the ""I'm so busy, just really busy"" idea, that once said is usually completely understood to be a chronic state.  But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments.  To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city.  Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other.  In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven't felt in the city.  As one of our comrades said, ""we left the capital of the world, and in this little town, our world just got so much bigger.""   Excited to continue this conversation and see the work you all are doing!  Be well.",/post/27815,2017-06-26T13:18:18.000Z,2017-06-26T13:18:18.000Z,27815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1056 4759,v1.0,,"I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made  exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.  I will love to work out something with you. Lets connect. get in touch at : (+237) 670708533 :Looking forward to read from you",/post/27830,2017-06-26T13:17:20.000Z,2017-06-26T13:17:20.000Z,27830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,74 9887,v1.0,,"I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made  exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.  I will love to work out something with you. Lets connect. get in touch at : (+237) 670708533 :Looking forward to read from you soon.",/post/27830,2017-06-26T13:17:15.000Z,2017-06-26T13:17:15.000Z,27830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1441 7146,v1.0,,"I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made  exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.  I will love to work out something with you. Lets connect. get in touch at : (+237) 670708533 :Looking forward to read from you soon.",/post/27830,2017-06-26T13:17:03.000Z,2017-06-26T13:17:03.000Z,27830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,766 5987,v1.0,,"I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made  exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.  I will love to work out something with you. Lets connect. get in touch at : (+237) 670708533 :Looking forward to read from you soon.",/post/27830,2017-06-26T13:16:53.000Z,2017-06-26T13:16:53.000Z,27830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,396 4758,v1.0,,Hi @Gentlewest I have long thought about a concept for more effective teaching with the help of cheap (repairable) mp3 players and small printed cards for illustrations. The original idea behind this is to reach really rural and remote people and provide them with good access to useful information. But to start this I was thinking about which lectures make most sense - and I think you have a very good example of one (I also agree with @saeed.qaisrani ). So I think the wider topic of hygiene & health would be most helpful.,/post/26068,2017-06-26T13:16:33.000Z,2017-06-26T13:16:33.000Z,26068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,74 7145,v1.0,,Hi @Gentlewest I have long thought about a concept for more effective teaching with the help of cheap (repairable) mp3 players and small printed cards for illustrations. The original idea behind this is to reach really rural and remote people and provide them with good access to useful information. But to start this I was thinking about which lectures make most sense - and I think you have a very good example of one (I also agree with @saeed.qaisrani ). So I think the wider topic of hygiene & health would be most helpful.,/post/26068,2017-06-26T13:16:28.000Z,2017-06-26T13:16:28.000Z,26068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,766 7585,v1.0,,"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices  and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing  plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that  expose girls and women to violence  and  HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com I will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania. With Personal Warm Regards",/post/24949,2017-06-26T13:16:08.000Z,2017-06-26T13:16:08.000Z,24949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,885 7404,v1.0,,"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices  and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing  plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that  expose girls and women to violence  and  HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com I will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania. With Personal Warm Regards",/post/24949,2017-06-26T13:16:00.000Z,2017-06-26T13:16:00.000Z,24949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,833 7923,v1.0,,"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices  and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing  plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that  expose girls and women to violence  and  HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com I will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.",/post/24949,2017-06-26T13:15:52.000Z,2017-06-26T13:15:52.000Z,24949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,974 9886,v1.0,,"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices  and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing  plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that  expose girls and women to violence  and  HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com I will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.",/post/24949,2017-06-26T13:15:31.000Z,2017-06-26T13:15:31.000Z,24949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1441 7144,v1.0,,"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices  and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing  plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that  expose girls and women to violence  and  HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com I will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.",/post/24949,2017-06-26T13:15:26.000Z,2017-06-26T13:15:26.000Z,24949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,766 11578,v1.0,,"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices  and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing  plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that  expose girls and women to violence  and  HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com I will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.",/post/24949,2017-06-26T13:15:16.000Z,2017-06-26T13:15:16.000Z,24949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1873 9885,v1.0,,"This is another issue I have not thought could be added to the long list of being physically a woman. It is very brave what you are planning to. I live and work in Albania and even in this part of the world you might hear stories that do not seem real, all related to gender inequality or bias. We have hymenoplastia, the repair of the hymen in girls/women or the artificial return of virginity which is quit shocking for me to see that is very much common, more than you might think. I have read a lot of reports and articles on FGM and it does not make sense that it is a practice that happens in the US or Europe as well. I wish you luck and success with what you are doing. I have worked for several in the field of reproductive and sexual health, and safe sex. I do not know how I can be of help but I would love to if there will be any possibility; the world is actually smaller than it seems. Good luck again!",/post/24411,2017-06-26T13:14:58.000Z,2017-06-26T13:14:58.000Z,24411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1441 7403,v1.0,,"This is another issue I have not thought could be added to the long list of being physically a woman. It is very brave what you are planning to. I live and work in Albania and even in this part of the world you might hear stories that do not seem real, all related to gender inequality or bias. We have hymenoplastia, the repair of the hymen in girls/women or the artificial return of virginity which is quit shocking for me to see that is very much common, more than you might think. I have read a lot of reports and articles on FGM and it does not make sense that it is a practice that happens in the US or Europe as well. I wish you luck and success with what you are doing. I have worked for several in the field of reproductive and sexual health, and safe sex. I do not know how I can be of help but I would love to if there will be any possibility; the world is actually smaller than it seems. Good luck again!",/post/24411,2017-06-26T13:14:51.000Z,2017-06-26T13:14:51.000Z,24411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,833 10342,v1.0,,"This is another issue I have not thought could be added to the long list of being physically a woman. It is very brave what you are planning to. I live and work in Albania and even in this part of the world you might hear stories that do not seem real, all related to gender inequality or bias. We have hymenoplastia, the repair of the hymen in girls/women or the artificial return of virginity which is quit shocking for me to see that is very much common, more than you might think. I have read a lot of reports and articles on FGM and it does not make sense that it is a practice that happens in the US or Europe as well. I wish you luck and success with what you are doing. I have worked for several in the field of reproductive and sexual health, and safe sex. I do not know how I can be of help but I would love to if there will be any possibility; the world is actually smaller than it seems. Good luck again!",/post/24411,2017-06-26T13:14:45.000Z,2017-06-26T13:14:45.000Z,24411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1523 7584,v1.0,,"This is another issue I have not thought could be added to the long list of being physically a woman. It is very brave what you are planning to. I live and work in Albania and even in this part of the world you might hear stories that do not seem real, all related to gender inequality or bias. We have hymenoplastia, the repair of the hymen in girls/women or the artificial return of virginity which is quit shocking for me to see that is very much common, more than you might think. I have read a lot of reports and articles on FGM and it does not make sense that it is a practice that happens in the US or Europe as well. I wish you luck and success with what you are doing. I have worked for several in the field of reproductive and sexual health, and safe sex. I do not know how I can be of help but I would love to if there will be any possibility; the world is actually smaller than it seems. Good luck again!",/post/24411,2017-06-26T13:14:41.000Z,2017-06-26T13:14:41.000Z,24411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,885 6519,v1.0,,"Thank you for your encouragements. In fact when i volunteered with the world Bank, which took me to 25 villages in Cameroon to work with community health centers, what i saw grieved me so much in terms of infrstructure, sanitation and equipments. No lights at the clinics and lack of portable drinking water . Patients carry water from natural springs to take their drugs and minor or major surgeries cannot be performed at night due to lack of power supply. All of these, affects the quality of health care delivery. I am currently working on a proposal to help these health units get bore holes and solar enegry to power  up their facilities. Any links, contacts for funding will be of great help.",/post/21990,2017-06-26T13:14:19.000Z,2017-06-26T13:14:19.000Z,21990,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,490 10125,v1.0,,"Thank you for your encouragements. In fact when i volunteered with the world Bank, which took me to 25 villages in Cameroon to work with community health centers, what i saw grieved me so much in terms of infrstructure, sanitation and equipments. No lights at the clinics and lack of portable drinking water . Patients carry water from natural springs to take their drugs and minor or major surgeries cannot be performed at night due to lack of power supply. All of these, affects the quality of health care delivery. I am currently working on a proposal to help these health units get bore holes and solar enegry to power  up their facilities. Any links, contacts for funding will be of great help.",/post/21990,2017-06-26T13:14:15.000Z,2017-06-26T13:14:15.000Z,21990,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1451 6314,v1.0,,"The motivation of health workers to deliver services in developing countries has been described as a critical factor in the success of health systems in implementing programmes. How the sociocultural context and affects the values, motivation and actions involved in sexual and reproductive health services is important for policy development and programme planning. With interest in male circumcision as an HIV prevention option is also necessary, this study explored the perceptions and motivations  involved in sexual and reproductive health services, examining their implications for the possible future roll out of a national programme as well.",/post/21127,2017-06-26T13:13:53.000Z,2017-06-26T13:13:53.000Z,21127,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,449 6518,v1.0,,"The motivation of health workers to deliver services in developing countries has been described as a critical factor in the success of health systems in implementing programmes. How the sociocultural context and affects the values, motivation and actions involved in sexual and reproductive health services is important for policy development and programme planning. With interest in male circumcision as an HIV prevention option is also necessary, this study explored the perceptions and motivations  involved in sexual and reproductive health services, examining their implications for the possible future roll out of a national programme as well.",/post/21127,2017-06-26T13:13:38.000Z,2017-06-26T13:13:38.000Z,21127,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,490 11577,v1.0,,"I think, i could easily work with finr artists to talk about reproductive health and other issues of rpime concern to young people. Thank you",/post/11273,2017-06-26T13:13:25.000Z,2017-06-26T13:13:25.000Z,11273,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1873 9884,v1.0,,"I think, i could easily work with finr artists to talk about reproductive health and other issues of rpime concern to young people. Thank you",/post/11273,2017-06-26T13:13:21.000Z,2017-06-26T13:13:21.000Z,11273,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1441 4675,v1.0,,"@Alberto, thanks for the comments.  While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health.  At this point in NYC, there is still infrastructure for primary care and physical care within institutions.  In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more ""primary care"" functions.  But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health.  In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here.  We are thinking of treating acute mental health episodes, but to form the foundation for ""preventative"" communal mental health.",/post/26065,2017-06-26T13:12:10.000Z,2017-06-26T13:12:10.000Z,26065,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,53 9581,v1.0,,", thanks for the comments.  While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health.  At this point in NYC, there is still infrastructure for primary care and physical care within institutions.  In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more ""primary care"" functions.  But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health.  In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here.  We are thinking of treating acute mental health episodes, but to form the foundation for ""preventative"" communal mental health.",/post/26065,2017-06-26T13:12:03.000Z,2017-06-26T13:12:03.000Z,26065,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1348 4808,v1.0,,", thanks for the comments.  While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health.  At this point in NYC, there is still infrastructure for primary care and physical care within institutions.  In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more ""primary care"" functions.  But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health.  In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here.  We are thinking of treating acute mental health episodes, but to form the foundation for ""preventative"" communal mental health.",/post/26065,2017-06-26T13:11:56.000Z,2017-06-26T13:11:56.000Z,26065,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,80 5839,v1.0,,"@Alberto, thanks for the comments.  While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health.  At this point in NYC, there is still infrastructure for primary care and physical care within institutions.  In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more ""primary care"" functions.  But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health.  In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here.  We are thinking of treating acute mental health episodes, but to form the foundation for ""preventative"" communal mental health.",/post/26065,2017-06-26T13:11:39.000Z,2017-06-26T13:11:39.000Z,26065,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,377 8583,v1.0,,"@Alberto, thanks for the comments.  While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health.  At this point in NYC, there is still infrastructure for primary care and physical care within institutions.  In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more ""primary care"" functions.  But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health.  In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here.  We are thinking of treating acute mental health episodes, but to form the foundation for ""preventative"" communal mental health.",/post/26065,2017-06-26T13:11:23.000Z,2017-06-26T13:11:23.000Z,26065,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1140 5950,v1.0,,"Hi @asimong, super interesting reading about your cohousing community and the strategies you're exploring in seeking ways to care for each other's well being. I'm really curious to know more about your expereince with restorative circles and if the members who were trained have begun leading them. This is a model we've been looking at for our group. Our collective mental health, especially in the last year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or strategies for dealing with conflict, care for each others emotional, mental and spiritual well being.",/post/24158,2017-06-26T13:10:55.000Z,2017-06-26T13:10:55.000Z,24158,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,391 10137,v1.0,,"Hi @asimong, super interesting reading about your cohousing community and the strategies you're exploring in seeking ways to care for each other's well being. I'm really curious to know more about your expereince with restorative circles and if the members who were trained have begun leading them. This is a model we've been looking at for our group. Our collective mental health, especially in the last year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or strategies for dealing with conflict, care for each others emotional, mental and spiritual well being.",/post/24158,2017-06-26T13:10:50.000Z,2017-06-26T13:10:50.000Z,24158,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1456 5513,v1.0,,"seeking ways to care for each other's well being. I'm really curious to know more about your expereince with restorative circles and if the members who were trained have begun leading them. This is a model we've been looking at for our group. Our collective mental health, especially in the last year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or strategies for dealing with conflict, care for each others emotional, mental and spiritual well being.",/post/24158,2017-06-26T13:10:39.000Z,2017-06-26T13:10:39.000Z,24158,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,323 9596,v1.0,,"@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.",/post/25464,2017-06-26T13:09:37.000Z,2017-06-26T13:09:37.000Z,25464,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1353 9468,v1.0,,"@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.",/post/25464,2017-06-26T13:09:31.000Z,2017-06-26T13:09:31.000Z,25464,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1319 8509,v1.0,,"@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.",/post/25464,2017-06-26T13:09:24.000Z,2017-06-26T13:09:24.000Z,25464,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1133 8124,v1.0,,"""The iot assisted garden"" - might be a good fit for Open Science and Citizen Science for more inclusive healthcare. I think Ken will talk to @Winnie about this soon.",/post/24984,2017-06-26T13:09:06.000Z,2017-06-26T13:09:06.000Z,24984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1028 7576,v1.0,,"""The iot assisted garden"" - might be a good fit for Open Science and Citizen Science for more inclusive healthcare. I think Ken will talk to @Winnie about this soon.",/post/24984,2017-06-26T13:08:58.000Z,2017-06-26T13:08:58.000Z,24984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,883 4899,v1.0,,"Collaborations that have formed, and outcomes that have occured would be presented as digrams using the various logos of groups, on a timeline. Branding can be an effective language, shows diversity of collaborating groups through symbols/colour, and is also easy for the business sector and authoritive bodies to understand. It's also how I organise stuff in my head every few months, so I guess that could be a good next step for me.",/post/24984,2017-06-26T13:08:47.000Z,2017-06-26T13:08:47.000Z,24984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,113 5538,v1.0,,"Collaborations that have formed, and outcomes that have occured would be presented as digrams using the various logos of groups, on a timeline. Branding can be an effective language, shows diversity of collaborating groups through symbols/colour, and is also easy for the business sector and authoritive bodies to understand. It's also how I organise stuff in my head every few months, so I guess that could be a good next step for me.",/post/24984,2017-06-26T13:08:40.000Z,2017-06-26T13:08:40.000Z,24984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,326 10014,v1.0,,"From this understanding - how do we understand the instruments and tools of the collective, of citizens - what do they look like in relation to health and social care? Equally, how do we understand the instruments and tools of the state (such as policy) - how can these be designed to enable the collective response that is the basis of welfare in traditional societies?",/post/23982,2017-06-26T13:08:08.000Z,2017-06-26T13:08:08.000Z,23982,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1445 4897,v1.0,,So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?,/post/23982,2017-06-26T13:07:53.000Z,2017-06-26T13:07:53.000Z,23982,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,111 5079,v1.0,,So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?,/post/23982,2017-06-26T13:07:20.000Z,2017-06-26T13:07:20.000Z,23982,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,146 10013,v1.0,,So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?,/post/23982,2017-06-26T13:07:01.000Z,2017-06-26T13:07:01.000Z,23982,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1445 11182,v1.0,,"Theme: better understanding policy in context of a top-down system. Even good policies may be limited in their effectiveness - that is by the time they cascade down to the level of effect/impact they are often either diluted or do not produce the effects desired by the original intentions of the policy no matter how well meaning these might be. Another way to look at it would be this: living systems theory has turned on its head the Victorian world-view that imagined that unless mankind were imposing order from top down then chaos would ensue. The new sciences - nano biology, quantum theory - have revealed the extent to which order is a natural impulse (fractals being a beautify example) and that many of mankind’s efforts to date have disrupted this impulse.",/post/23982,2017-06-26T13:06:46.000Z,2017-06-26T13:06:46.000Z,23982,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1760 9504,v1.0,,"Theme: better understanding policy in context of a top-down system. Even good policies may be limited in their effectiveness - that is by the time they cascade down to the level of effect/impact they are often either diluted or do not produce the effects desired by the original intentions of the policy no matter how well meaning these might be. Another way to look at it would be this: living systems theory has turned on its head the Victorian world-view that imagined that unless mankind were imposing order from top down then chaos would ensue. The new sciences - nano biology, quantum theory - have revealed the extent to which order is a natural impulse (fractals being a beautify example) and that many of mankind’s efforts to date have disrupted this impulse. So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?  From this understanding - how do we understand the instruments and tools of the collective, of citizens - what do they look like in relation to health and social care? Equally, how do we understand the instruments and tools of the state (such as policy) - how can these be designed to enable the collective response that is the basis of welfare in traditional societies? The next question would then be how this might inform the nature of the session you’d offer. It seems there's so much you could contribute for joint exploration.  There seems to me to be a common thread in what I’ve encountered of what you’ve sent through. Its something about the format of the various happenings. e.g. Monastery, Galway Soup - that genuinely reflect values of welcome, bringing people in, shifting power, playing with stereotypical roles to create new experiences that have greater meaning - that get under the superficial. Does that make sense? And something about new recipes - the way you put together interesting elements to create new experiences/outcomes. Perhaps you’d want to focus on one of the three thematics? Sharing what’s really worked and using peer review (I’m gathering that this is something ER are particularly keen on) to solve some things that aren’t yet clear/sorted? Which of the three thematics connects most strongly to the health and social care? There’s also the tiny houses & homeless folks work you mentioned. Might this also be a possible session?  You’ve so much good work to choose from - would a way forward be for you to suggest 2-4 possible sessions and we work up the one that has the best connection to the theme?",/post/23982,2017-06-26T13:06:35.000Z,2017-06-26T13:06:35.000Z,23982,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1325 7720,v1.0,,"We’re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes. freeflowcreativity.co",/post/812,2017-06-26T13:05:54.000Z,2017-06-26T13:05:54.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,921 11310,v1.0,,"Keeping momentum, we tested unMonastery/Monastery in early December, 2017. 4 days at Cregg Castle, PreMonastery; a Rural Reconnaissance. A range of skilled individuals involved with a range community groups and initiatives, and collaboration with @Nadia (EdgeRyders LBG). We’ve just submitted our report to Galway 2020. Many outcomes during and after the event including the adding of stories to Opencare.",/post/812,2017-06-26T13:05:44.000Z,2017-06-26T13:05:44.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1799 9572,v1.0,,"I’m also Resilience Coordinator with An Áit Eile (The Other Place), a cultural organisation in Galway, with an amazing network of collaborators. In 2015 I was invited to open meetings by An Áit Eile (AÁE), mapping potential groups who could potentially fill a community led cultural hub in Galway. Some of the groups I’m active with matched perfectly, so they were an easy fit. I developed the idea as part of my college work, with input from AÁE.",/post/812,2017-06-26T13:05:24.000Z,2017-06-26T13:05:24.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1347 5736,v1.0,,I volunteer at a community/school garden (Soil Chroí Íosa) with Transition Galway and was a writer/editor and designer for our “A Vision for Galway 2030” document.,/post/812,2017-06-26T13:04:55.000Z,2017-06-26T13:04:55.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,363 10054,v1.0,,"I’m a designer, nurse, yoga teacher, food grower and performer, currently studying Business Enterprise and Community Development with Equal Ireland. I’m lucky to have had many learning opportunities, and the freedom to let that knowledge merge. I volunteer at a community/school garden (Soil Chroí Íosa) with Transition Galway and was a writer/editor and designer for our “A Vision for Galway 2030” document. I’m also Resilience Coordinator with An Áit Eile (The Other Place), a cultural organisation in Galway, with an amazing network of collaborators. In 2015 I was invited to open meetings by An Áit Eile (AÁE), mapping potential groups who could potentially fill a community led cultural hub in Galway. Some of the groups I’m active with matched perfectly, so they were an easy fit. I developed the idea as part of my college work, with input from AÁE. Next was “Pilgrim”, again collaborating with AÁE, entered for the European Capital of Culture 2020 bidbook for Galway. Working around 3 thematics, Monastery (inspired by unMonastery), Meitheal (Irish term for a work party) and Pilgrimage. In October we done this... Keeping momentum, we tested unMonastery/Monastery in early December, 2017. 4 days at Cregg Castle, PreMonastery; a Rural Reconnaissance. A range of skilled individuals involved with a range community groups and initiatives, and collaboration with @Nadia (EdgeRyders LBG). We’ve just submitted our report to Galway 2020. Many outcomes during and after the event including the adding of stories to Opencare. We’re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes. freeflowcreativity.com",/post/812,2017-06-26T13:04:45.000Z,2017-06-26T13:04:45.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1446 6115,v1.0,,"I liked reading from you because I can connect to some of the scenarios that you talked about. I live in Nigeria, which has been described so often as the most populous country in Africa and blessed with enormous natural resources. Yet, people live in abject poverty with the average households struggling to survive on $1 per day. I think the solutions we crave for should be worked out through love for one another. We should forgive our excesses and short comings then sit down together to work out appropriate solutions. I believe you can greatly impact the world by getting some of us to join you in your project.",/post/16245,2017-06-12T16:15:21.000Z,2017-06-12T16:15:21.000Z,16245,3323,AnnotatorStore::TextAnnotation,,,,,,,,,821,430 10787,v1.0,,"Dear Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that .... During a Cyclone: If a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.  If you decide to shelter at home: Turn off all electricity, gas and water and unplug all appliances Keep your Emergency Kit close at hand Bring your family into the strongest part of the house Keep listening to the radio for cyclone updates and remain indoors until advised If the building begins to break up, immediately seek shelter under a strong table or bench or under  a heavy mattress BEWARE THE CALM EYE OF THE CYCLONE.  Some people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside. If you must evacuate: If an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground. Turn off all electricity, gas and water, unplug all appliances and lock your doors Ensure all family members are wearing strong shoes and suitable clothing Take your Emergency Kit and your Evacuation Kit and commence your Evacuation Plan If you are visiting or holidaying in Queensland and do not have family or friends to shelter with, contact your accommodation manager immediately to identify options for evacuation. After a Cyclone: The time immediately after a cyclone is often just as dangerous as the initial event itself.  Many injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.  Once you have been advised that the cyclone has passed you must adhere to the following: Listen to your radio and remain indoors until advised If you are told to return to your home, do so using the recommended routes only Do not go sightseeing Check on your neighbours if necessary Do not use electrical appliances which have been wet until they are checked for safety Boil or purify your water until supplies are declared safe Stay away from damaged powerlines, fallen trees and flood water",/post/27823,2017-06-12T16:04:27.000Z,2017-06-12T16:04:27.000Z,27823,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,1647 10786,v1.0,,"Dear Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that .... During a Cyclone: If a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.  If you decide to shelter at home: Turn off all electricity, gas and water and unplug all appliances Keep your Emergency Kit close at hand Bring your family into the strongest part of the house Keep listening to the radio for cyclone updates and remain indoors until advised If the building begins to break up, immediately seek shelter under a strong table or bench or under  a heavy mattress BEWARE THE CALM EYE OF THE CYCLONE.  Some people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside. If you must evacuate: If an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground. Turn off all electricity, gas and water, unplug all appliances and lock your doors Ensure all family members are wearing strong shoes and suitable clothing Take your Emergency Kit and your Evacuation Kit and commence your Evacuation Plan If you are visiting or holidaying in Queensland and do not have family or friends to shelter with, contact your accommodation manager immediately to identify options for evacuation. After a Cyclone: The time immediately after a cyclone is often just as dangerous as the initial event itself.  Many injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.  Once you have been advised that the cyclone has passed you must adhere to the following: Listen to your radio and remain indoors until advised If you are told to return to your home, do so using the recommended routes only Do not go sightseeing Check on your neighbours if necessary Do not use electrical appliances which have been wet until they are checked for safety Boil or purify your water until supplies are declared safe Stay away from damaged powerlines, fallen trees and flood water",/post/27823,2017-06-12T16:04:05.000Z,2017-06-12T16:04:05.000Z,27823,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,1646 8882,v1.0,,"Dear Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that .... During a Cyclone: If a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.  If you decide to shelter at home: Turn off all electricity, gas and water and unplug all appliances Keep your Emergency Kit close at hand Bring your family into the strongest part of the house Keep listening to the radio for cyclone updates and remain indoors until advised If the building begins to break up, immediately seek shelter under a strong table or bench or under  a heavy mattress BEWARE THE CALM EYE OF THE CYCLONE.  Some people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside. If you must evacuate: If an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground. Turn off all electricity, gas and water, unplug all appliances and lock your doors Ensure all family members are wearing strong shoes and suitable clothing Take your Emergency Kit and your Evacuation Kit and commence your Evacuation Plan If you are visiting or holidaying in Queensland and do not have family or friends to shelter with, contact your accommodation manager immediately to identify options for evacuation. After a Cyclone: The time immediately after a cyclone is often just as dangerous as the initial event itself.  Many injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.  Once you have been advised that the cyclone has passed you must adhere to the following: Listen to your radio and remain indoors until advised If you are told to return to your home, do so using the recommended routes only Do not go sightseeing Check on your neighbours if necessary Do not use electrical appliances which have been wet until they are checked for safety Boil or purify your water until supplies are declared safe Stay away from damaged powerlines, fallen trees and flood wate",/post/27823,2017-06-12T16:03:53.000Z,2017-06-12T16:03:53.000Z,27823,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,1188 7468,v1.0,,"Dear Jenny Gkiougki, Appreciating your kind efforts which reflects the defination of food security too i.e. The final report of the 1996 World Food Summit states thatfood security ""exists when all people, at all times, have physical and economic access to sufficient, safe and nutritious food to meet their dietary needs and foodpreferences for an active and healthy life"".",/post/16179,2017-06-12T16:03:14.000Z,2017-06-12T16:03:14.000Z,16179,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,856 8114,v1.0,,"Hello Orange House, I am an educator a The International School in Minnesota, USA part of the SABIS School Network. Every summer, two students and I join other SABIS students and educator for a student leadership conference in Athens. During the conference, we volunteer around Athens to support and help local organizations. We were touched reading your article and we are wondering if we could be of any assistance. We are willing to come by and for a few hours and spend some time playing games with the kids, teaching languages (French, Spanish, German and/or English), etc. based on your needs.  Bravo for this great initiative and hope to heard from you soon.",/post/27813,2017-06-12T16:02:31.000Z,2017-06-12T16:02:31.000Z,27813,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1026 8113,v1.0,,"your concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa.  You could reach out to mbotiji@gmail.com. Thanks",/post/27796,2017-06-12T16:01:59.000Z,2017-06-12T16:01:59.000Z,27796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1026 8112,v1.0,,"Thanks! At the Department of Medicine of the University of Parma we are collaborating quite a lot with foreign countries. I will contact you.",/post/28457,2017-06-12T16:01:50.000Z,2017-06-12T16:01:50.000Z,28457,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1026 7441,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-06-12T16:00:31.000Z,2017-06-12T16:00:31.000Z,824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,791,852 7773,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-06-12T15:59:55.000Z,2017-06-12T15:59:55.000Z,824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,791,936 10520,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-06-12T15:59:42.000Z,2017-06-12T15:59:42.000Z,824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,791,1565 6499,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-06-12T15:59:32.000Z,2017-06-12T15:59:32.000Z,824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,791,485 4622,v1.0,,"Tutto è nato da una nostra esperienza Monica: “Nicoletta? Andiamo a mangiare una pizza?”  Nicoletta: “Certo! Prenoto per due al solito posto dove puoi mangiare anche tu?”  M.“Ok!”. Ristoratore: “Buona sera Signore, avete prenotato?” N. “Sì, per due; nome Nicoletta”. - Eccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l’ordine.  N.“Per me una prosciutto e funghi” M. “Io invece..premetto: sono intollerante al glutine e al lattosio...” il cameriere annuisce “...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...” C.“Sì signora”  M.”Bene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini” C. “Da bere?” N. ”Una birra per me!” C.”E lei?” M.”Io? Che cosa posso bere che non sia acqua?” C.”Abbiamo due birre senza glutine” M.”Quali?” C.”La Daura e la Peroni”. Giro lo sguardo verso Nicoletta con un’espressione rassegnata e penso ”...sempre quelle...” Passano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca é terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame però e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - “Chissà”. Arriva la pizza e a quel punto, mi assale lo sconforto più profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia... Non ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio! N. “Monica? Mi fai assaggiare?” M.”Certo!” N.”...Mmm...il sapore non è male ma questa non è una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. È proprio triste...”  M.“...Già...” --------------------------------- Questa serata per Monica e Nicoletta non è stata l’unica; altre l’avevano preceduta e altre ancora ne seguirono. Ad ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso: Monica elenca ad alta voce al cameriere le sue intolleranze,  il cameriere annuisce puntualmente,  Monica  si barcamena nella lettura di menu labirintici (a volte privi dell’elenco degli allergeni) dalla cucina arriva l’avviso che l’alimento richiesto non è disponibile Monica si accontenta di “ciò che propone la cucina” nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori E in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All’interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.    Qui in allegato la pizza di Monica",/post/824,2017-06-12T15:59:23.000Z,2017-06-12T15:59:23.000Z,824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,791,37 8036,v1.0,,"Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more. Thank you for comnmenting here, means a lot.",/post/25251,2017-06-12T15:56:25.000Z,2017-06-12T15:56:25.000Z,25251,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1010 10827,v1.0,,"Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more. Thank you for comnmenting here, means a lot.",/post/25251,2017-06-12T15:56:16.000Z,2017-06-12T15:56:16.000Z,25251,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1648 9435,v1.0,,"Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more. Thank you for comnmenting here, means a lot.",/post/25251,2017-06-12T15:56:05.000Z,2017-06-12T15:56:05.000Z,25251,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1310 9434,v1.0,,"On September 8th 2016, I have initiated an online campaign called  #PlantAtreeChallengeBD” The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It’s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem. Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline. Primarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each  other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10. To bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor’s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO’s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first carbon negative country.",/post/848,2017-06-12T15:55:07.000Z,2017-06-12T15:55:07.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1310 9433,v1.0,,"In Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader. Five seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:",/post/24340,2017-06-12T15:54:52.000Z,2017-06-12T15:54:52.000Z,24340,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1310 10826,v1.0,,"Hello dear @Noemi mam. Thank you foe your words, Yes we met once and my project is running well now as it is summer in my country, everyone is tired of this increasing heat , poeople are showing interest in planting trees for their own sake. We are offering a new option to the landlords , if they let us use their rooftops, they'll get paid in return. Few people joined already and more are joining. I am hopeful because I think deep inside everyone loves their planet and the idea of going green has a thousands og positive side. I will be posting few pictures of our improvement soon.",/post/18773,2017-06-12T15:53:50.000Z,2017-06-12T15:53:50.000Z,18773,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1648 9763,v1.0,,"An actual example, a few years ago our city hall gave all the green spaces in the city for ""rental"" to firms willing to maintain them - so the firms took their employees out for planting weekends. After that they get their name on the green space as the ""Carers"" of the space.",/post/18447,2017-06-12T15:53:23.000Z,2017-06-12T15:53:23.000Z,18447,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1396 11531,v1.0,,"I especially like the idea of talking to private companies - where I come from in Romania, I have many friends working in corporate environments who would like to volunteer more, or get their colleagues to volunteer more - and they dont have a fun way to do it, together (better than on their own..). Their thinking is: why dont we talk to management to convince them to give us 2 hours once a month to go out on a set cause. A good person to ""make the case"" and convince management in the company is the employee representative - who understands volunteering but also the interests of the company and knows how to fra",/post/18447,2017-06-12T15:53:12.000Z,2017-06-12T15:53:12.000Z,18447,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1864 4992,v1.0,,Downsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent)  time too thinly. Generally it was a good decision though.,/post/24301,2017-06-12T15:51:38.000Z,2017-06-12T15:51:38.000Z,24301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,129 9011,v1.0,,"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages). In retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.  Downsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent)  time too thinly. Generally it was a good decision though.",/post/24301,2017-06-12T15:51:30.000Z,2017-06-12T15:51:30.000Z,24301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,1226 4858,v1.0,,"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages). In retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.  Downsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent)  time too thinly. Generally it was a good decision though.",/post/24301,2017-06-12T15:51:16.000Z,2017-06-12T15:51:16.000Z,24301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,100 7143,v1.0,,"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages). In retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.  Downsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent)  time too thinly. Generally it was a good decision though.",/post/24301,2017-06-12T15:51:09.000Z,2017-06-12T15:51:09.000Z,24301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,766 4857,v1.0,,"Super interesting Damiano. We wrote a proposal for the same thing in December: install a DIYbio lab in a high school. We had a nice consortium of partners, but sadly it did not go through. I'd be very interested in reading the rest of the documents",/post/18972,2017-06-12T15:50:17.000Z,2017-06-12T15:50:17.000Z,18972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,100 7142,v1.0,,"Super interesting Damiano. We wrote a proposal for the same thing in December: install a DIYbio lab in a high school. We had a nice consortium of partners, but sadly it did not go through. I'd be very interested in reading the rest of the documents.",/post/18972,2017-06-12T15:50:10.000Z,2017-06-12T15:50:10.000Z,18972,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,766 9391,v1.0,,"The fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more in general, could allow the involvement of a much wider group of people in research processes and their benefit.",/post/18966,2017-06-12T15:49:45.000Z,2017-06-12T15:49:45.000Z,18966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,1305 4896,v1.0,,"The fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more in general, could allow the involvement of a much wider group of people in research processes and their benefit.",/post/18966,2017-06-12T15:49:38.000Z,2017-06-12T15:49:38.000Z,18966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,111 4615,v1.0,,"I focussed on agriculture, I have created a project (never realized) that was called Openphenotyping, it was about democratic plant phenotyping ( http://www.thefreedictionary.com/Phenotyping ) and it aimed to give the power of biotechnology to small farmers' cooperatives to maintain and exalt biodiversity, also,  through genetic modification.",/post/18966,2017-06-12T15:49:27.000Z,2017-06-12T15:49:27.000Z,18966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,32 7141,v1.0,,"@Noemi @alberto you might be interested in the work done by Eugenio Battaglia to bring low-cost biohacking-lab in every school, we tried to propose it to the Ministery of Education.  Here you find part of the documents https://drive.google.com/file/d/0B3a6iTS9jqfCY242M0g2VUp4QUU/view?usp=sharing (if you want I can share the rest)  In general, I think biohacking have an enormous potential, for educational purpose, it's already very valid.",/post/18966,2017-06-12T15:49:10.000Z,2017-06-12T15:49:10.000Z,18966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,766 4856,v1.0,,"Hello @WinniePoncelet, good job, I hope to come in Gent soon to visit the biohacker space. @Noemi @alberto you might be interested in the work done by Eugenio Battaglia to bring low-cost biohacking-lab in every school, we tried to propose it to the Ministery of Education.  Here you find part of the documents https://drive.google.com/file/d/0B3a6iTS9jqfCY242M0g2VUp4QUU/view?usp=sharing (if you want I can share the rest)  In general, I think biohacking have an enormous potential, for educational purpose, it's already very valid. I think the movement should be ready to take action to make aware of what could happen in few decades/years with genome editing and aging, etc. , that could be some unprecedented achievement but the risks that they could bridge economic inequality to biological inequality. I focussed on agriculture, I have created a project (never realized) that was called Openphenotyping, it was about democratic plant phenotyping ( http://www.thefreedictionary.com/Phenotyping ) and it aimed to give the power of biotechnology to small farmers' cooperatives to maintain and exalt biodiversity, also,  through genetic modification. The idea about Openphenotyping it was based on the fact that genome data became cheap to get, while phenotypic data represent one of the main barriers to research.  The fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more in general, could allow the involvement of a much wider group of people in research processes and their benefit. I never had the chance to realize the initiative, but I will be very glad to know more if there are similar actions taking off or another project that tries to tackle some major problems related to ""traditional"" biotech.",/post/18966,2017-06-12T15:48:41.000Z,2017-06-12T15:48:41.000Z,18966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,100 7620,v1.0,,"Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am sorry I haven't replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality, but  the level of participation and the style of governance. In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn't agree more.",/post/29081,2017-06-12T15:47:07.000Z,2017-06-12T15:47:07.000Z,29081,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,905 4562,v1.0,,"Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am sorry I haven't replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality, but  the level of participation and the style of governance. In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn't agree more.",/post/29081,2017-06-12T15:46:56.000Z,2017-06-12T15:46:56.000Z,29081,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,18 10596,v1.0,,"Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am sorry I haven't replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality, but  the level of participation and the style of governance. In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn't agree more.",/post/29081,2017-06-12T15:46:49.000Z,2017-06-12T15:46:49.000Z,29081,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1590 6387,v1.0,,"Hello @Mørbeck, good to meet you.  I am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus. The traditional way to do this was this: you would leave your parents' house, marry, settle down with your spouse and have children. This produced a ""one size fits all"" world, with most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are) allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized. Is this broadly correct? Because if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!  https://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups",/post/6682,2017-05-30T20:59:32.000Z,2017-05-30T20:59:32.000Z,6682,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,470 4649,v1.0,,"Hello @Mørbeck, good to meet you.  I am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus. The traditional way to do this was this: you would leave your parents' house, marry, settle down with your spouse and have children. This produced a ""one size fits all"" world, with most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are) allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized. Is this broadly correct? Because if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!  https://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups",/post/6682,2017-05-30T20:59:21.000Z,2017-05-30T20:59:21.000Z,6682,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,43 4648,v1.0,,"1. What is the problem/question you are trying to solve/explore? Frame it as a design question! How do the differences between family relationships influence the concept of care?  Family is the space in which we learn to care about other people and in optimal situations are being care for from others. Apart from the abstract idea of a close all-loving family, the reality often looks different and a multiple of imbalances can arise within and across different families. Viewing care as a fundamental good necessary to every human being, different family structures influence the social life of people and create misunderstandings across all the ecosystem. Someone who does not, for whatever reason, have access to care from his “natural” family, has to seek somewhere else, but meets the difficulty to be part of a society in which different types of care are structure and differentiated, i.e. typically hard emotional situations that need a specific type of care are dealt with the family members. Outside of these close circle, misunderstanding arise as why people should care and how to communicate the need for it.  Different family-backgrounds often produce individuals who deal with their emotional life differently. We live in a time where family relationships are being redefined and even though alternative families (single mother, single father, same gender marriages, etc.) are officially being more accepted in the open discourse, the psychological and practical implications are being overlooked. For example, turning your friend or lover into the main care giver—role officially being taken by your parents and/or brother/sisters—still carries social stigmas and difficulties in assessing the fluid role-relationship in play.  2. State the ultimate impact you would like to have. What would make you feel like you did something meaningful with your time? Re-think the traditional role of the family as a protection-space and care-giver; deconstruct its traditional proposes and definitions and underpin the imbalances, paradoxes, holes in the system. Center care as an extremely important aspect of our lives, a fundamental good which can have a domino-effect on all other aspects of our lives when not dealt with properly. Create a common linguistic understanding of different family backgrounds and correlate them to the psychological and social implications they carry out. Care is a fluid good and can be shared without the traditional format of a family. 3. What are some possible solutions to your problems or ways to answer your question? Think broadly. It's fine to start a project/learning process with a hunch or two, but make sure you allow for surprises. The definition of family might be broaden or the caring role and relationship be redefined. At the end, the important aspect is to awaken a conscious thinking about caring and its connection to vital energy, well-being and social possibility with other people. The intimacy by which we hide some aspects of our emotional life must be addressed with the hope a post-traditional exchange system can born out of it. 4. Write down some of the context and constraints that you are facing. They could be geographic, technological, time-based, or have to do with the population yo're trying to reach. Initially the question should be limited geographically and anthropologically to the western world. In future, a more global approach could be used.  5. Does your original question need a tweak? Try it again. How do the differences between family relationships influence the social life and exchange of care between individuals?",/post/656,2017-05-30T20:59:14.000Z,2017-05-30T20:59:14.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,43 6058,v1.0,,"Hello @Mørbeck, good to meet you.  I am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus. The traditional way to do this was this: you would leave your parents' house, marry, settle down with your spouse and have children. This produced a ""one size fits all"" world, with most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are) allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized. Is this broadly correct? Because if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!  https://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups",/post/6682,2017-05-30T20:59:04.000Z,2017-05-30T20:59:04.000Z,6682,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,416 5512,v1.0,,"Hello @Mørbeck, good to meet you.  I am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus. The traditional way to do this was this: you would leave your parents' house, marry, settle down with your spouse and have children. This produced a ""one size fits all"" world, with most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are) allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized. Is this broadly correct? Because if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!  https://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups",/post/6682,2017-05-30T20:58:59.000Z,2017-05-30T20:58:59.000Z,6682,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,323 10012,v1.0,,How do the differences between family relationships influence the social life and exchange of care between individuals?,/post/656,2017-05-30T20:58:43.000Z,2017-05-30T20:58:43.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,1445 5403,v1.0,,"The definition of family might be broaden or the caring role and relationship be redefined. At the end, the important aspect is to awaken a conscious thinking about caring and its connection to vital energy, well-being and social possibility with other people. The intimacy by which we hide some aspects of our emotional life must be addressed with the hope a post-traditional exchange system can born out of it.",/post/656,2017-05-30T20:58:24.000Z,2017-05-30T20:58:24.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,300 4636,v1.0,,"The definition of family might be broaden or the caring role and relationship be redefined. At the end, the important aspect is to awaken a conscious thinking about caring and its connection to vital energy, well-being and social possibility with other people. The intimacy by which we hide some aspects of our emotional life must be addressed with the hope a post-traditional exchange system can born out of it.",/post/656,2017-05-30T20:57:53.000Z,2017-05-30T20:57:53.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,39 6386,v1.0,,"Re-think the traditional role of the family as a protection-space and care-giver; deconstruct its traditional proposes and definitions and underpin the imbalances, paradoxes, holes in the system. Center care as an extremely important aspect of our lives, a fundamental good which can have a domino-effect on all other aspects of our lives when not dealt with properly. Create a common linguistic understanding of different family backgrounds and correlate them to the psychological and social implications they carry out. Care is a fluid good and can be shared without the traditional format of a family.",/post/656,2017-05-30T20:57:34.000Z,2017-05-30T20:57:34.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,470 9195,v1.0,,"Family is the space in which we learn to care about other people and in optimal situations are being care for from others. Apart from the abstract idea of a close all-loving family, the reality often looks different and a multiple of imbalances can arise within and across different families. Viewing care as a fundamental good necessary to every human being, different family structures influence the social life of people and create misunderstandings across all the ecosystem. Someone who does not, for whatever reason, have access to care from his “natural” family, has to seek somewhere else, but meets the difficulty to be part of a society in which different types of care are structure and differentiated, i.e. typically hard emotional situations that need a specific type of care are dealt with the family members. Outside of these close circle, misunderstanding arise as why people should care and how to communicate the need for it.  Different family-backgrounds often produce individuals who deal with their emotional life differently. We live in a time where family relationships are being redefined and even though alternative families (single mother, single father, same gender marriages, etc.) are officially being more accepted in the open discourse, the psychological and practical implications are being overlooked. For example, turning your friend or lover into the main care giver—role officially being taken by your parents and/or brother/sisters—still carries social stigmas and difficulties in assessing the fluid role-relationship in play.",/post/656,2017-05-30T20:57:01.000Z,2017-05-30T20:57:01.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,1268 6313,v1.0,,"Different family-backgrounds often produce individuals who deal with their emotional life differently. We live in a time where family relationships are being redefined and even though alternative families (single mother, single father, same gender marriages, etc.) are officially being more accepted in the open discourse, the psychological and practical implications are being overlooked. For example, turning your friend or lover into the main care giver—role officially being taken by your parents and/or brother/sisters—still carries social stigmas and difficulties in assessing the fluid role-relationship in play.  2. State the ultimate impact y",/post/656,2017-05-30T20:56:55.000Z,2017-05-30T20:56:55.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,449 5125,v1.0,,"Different family-backgrounds often produce individuals who deal with their emotional life differently. We live in a time where family relationships are being redefined and even though alternative families (single mother, single father, same gender marriages, etc.) are officially being more accepted in the open discourse, the psychological and practical implications are being overlooked. For example, turning your friend or lover into the main care giver—role officially being taken by your parents and/or brother/sisters—still carries social stigmas and difficulties in assessing the fluid role-relationship in play.",/post/656,2017-05-30T20:56:42.000Z,2017-05-30T20:56:42.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,149 5401,v1.0,,"Different family-backgrounds often produce individuals who deal with their emotional life differently. We live in a time where family relationships are being redefined and even though alternative families (single mother, single father, same gender marriages, etc.) are officially being more accepted in the open discourse, the psychological and practical implications are being overlooked. For example, turning your friend or lover into the main care giver—role officially being taken by your parents and/or brother/sisters—still carries social stigmas and difficulties in assessing the fluid role-relationship in play.",/post/656,2017-05-30T20:56:34.000Z,2017-05-30T20:56:34.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,298 9225,v1.0,,"Family is the space in which we learn to care about other people and in optimal situations are being care for from others. Apart from the abstract idea of a close all-loving family, the reality often looks different and a multiple of imbalances can arise within and across different families. Viewing care as a fundamental good necessary to every human being, different family structures influence the social life of people and create misunderstandings across all the ecosystem. Someone who does not, for whatever reason, have access to care from his “natural” family, has to seek somewhere else, but meets the difficulty to be part of a society in which different types of care are structure and differentiated, i.e. typically hard emotional situations that need a specific type of care are dealt with the family members. Outside of these close circle, misunderstanding arise as why people should care and how to communicate the need for it.",/post/656,2017-05-30T20:56:24.000Z,2017-05-30T20:56:24.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,1269 8022,v1.0,,"Family is the space in which we learn to care about other people and in optimal situations are being care for from others. Apart from the abstract idea of a close all-loving family, the reality often looks different and a multiple of imbalances can arise within and across different families. Viewing care as a fundamental good necessary to every human being, different family structures influence the social life of people and create misunderstandings across all the ecosystem. Someone who does not, for whatever reason, have access to care from his “natural” family, has to seek somewhere else, but meets the difficulty to be part of a society in which different types of care are structure and differentiated, i.e. typically hard emotional situations that need a specific type of care are dealt with the family members. Outside of these close circle, misunderstanding arise as why people should care and how to communicate the need for it.",/post/656,2017-05-30T20:56:13.000Z,2017-05-30T20:56:13.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,1000 10577,v1.0,,"Family is the space in which we learn to care about other people and in optimal situations are being care for from others. Apart from the abstract idea of a close all-loving family, the reality often looks different and a multiple of imbalances can arise within and across different families. Viewing care as a fundamental good necessary to every human being, different family structures influence the social life of people and create misunderstandings across all the ecosystem. Someone who does not, for whatever reason, have access to care from his “natural” family, has to seek somewhere else, but meets the difficulty to be part of a society in which different types of care are structure and differentiated, i.e. typically hard emotional situations that need a specific type of care are dealt with the family members. Outside of these close circle, misunderstanding arise as why people should care and how to communicate the need for it.",/post/656,2017-05-30T20:55:51.000Z,2017-05-30T20:55:51.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,1582 10011,v1.0,,How do the differences between family relationships influence the concept of care?,/post/656,2017-05-30T20:55:42.000Z,2017-05-30T20:55:42.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,1445 7387,v1.0,,"1. What is the problem/question you are trying to solve/explore? Frame it as a design question! How do the differences between family relationships influence the concept of care?  Family is the space in which we learn to care about other people and in optimal situations are being care for from others. Apart from the abstract idea of a close all-loving family, the reality often looks different and a multiple of imbalances can arise within and across different families. Viewing care as a fundamental good necessary to every human being, different family structures influence the social life of people and create misunderstandings across all the ecosystem. Someone who does not, for whatever reason, have access to care from his “natural” family, has to seek somewhere else, but meets the difficulty to be part of a society in which different types of care are structure and differentiated, i.e. typically hard emotional situations that need a specific type of care are dealt with the family members. Outside of these close circle, misunderstanding arise as why people should care and how to communicate the need for it.  Different family-backgrounds often produce individuals who deal with their emotional life differently. We live in a time where family relationships are being redefined and even though alternative families (single mother, single father, same gender marriages, etc.) are officially being more accepted in the open discourse, the psychological and practical implications are being overlooked. For example, turning your friend or lover into the main care giver—role officially being taken by your parents and/or brother/sisters—still carries social stigmas and difficulties in assessing the fluid role-relationship in play.  2. State the ultimate impact you would like to have. What would make you feel like you did something meaningful with your time? Re-think the traditional role of the family as a protection-space and care-giver; deconstruct its traditional proposes and definitions and underpin the imbalances, paradoxes, holes in the system. Center care as an extremely important aspect of our lives, a fundamental good which can have a domino-effect on all other aspects of our lives when not dealt with properly. Create a common linguistic understanding of different family backgrounds and correlate them to the psychological and social implications they carry out. Care is a fluid good and can be shared without the traditional format of a family. 3. What are some possible solutions to your problems or ways to answer your question? Think broadly. It's fine to start a project/learning process with a hunch or two, but make sure you allow for surprises. The definition of family might be broaden or the caring role and relationship be redefined. At the end, the important aspect is to awaken a conscious thinking about caring and its connection to vital energy, well-being and social possibility with other people. The intimacy by which we hide some aspects of our emotional life must be addressed with the hope a post-traditional exchange system can born out of it. 4. Write down some of the context and constraints that you are facing. They could be geographic, technological, time-based, or have to do with the population yo're trying to reach. Initially the question should be limited geographically and anthropologically to the western world. In future, a more global approach could be used.  5. Does your original question need a tweak? Try it again. How do the differences between family relationships influence the social life and exchange of care between individuals?",/post/656,2017-05-30T20:55:34.000Z,2017-05-30T20:55:34.000Z,656,3323,AnnotatorStore::TextAnnotation,,,,,,,,,623,824 6498,v1.0,,"SoundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:52:21.000Z,2017-05-30T20:52:21.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,485 6256,v1.0,,"Hi Laura, I had managed to miss this as we were in deep preparation mode ahead of launching OpenCare. Are you up for trying something else? I have two suggestions to make 1) Repost the material from the kickstarter campaign in your post above (if you like I can do it for you). This will make it more appealing for an Op3n fellowship 2) I am just about to start pursuing a number of fundraising avenues including fellowships to support my own experimental work. We can collaborate on this if you like?",/post/16500,2017-05-30T20:51:52.000Z,2017-05-30T20:51:52.000Z,16500,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,444 7079,v1.0,,"SoundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with ",/post/5117,2017-05-30T20:51:17.000Z,2017-05-30T20:51:17.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,756 4883,v1.0,,"SoundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:51:10.000Z,2017-05-30T20:51:10.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,104 6255,v1.0,,"True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:50:23.000Z,2017-05-30T20:50:23.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,444 11374,v1.0,,"SoundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:50:15.000Z,2017-05-30T20:50:15.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,1825 7140,v1.0,,"SoundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:50:09.000Z,2017-05-30T20:50:09.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,766 11380,v1.0,,"SoundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:49:45.000Z,2017-05-30T20:49:45.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,1828 4807,v1.0,,"oundSight Training will help blind people honing their listening to be more aware of the space around them. Developing a technology for blind people looked really challenging. At first we tried to develop something that could sense and reconstruct reality for them, a cane on steroids of sort. But while becoming closer, friends with them, our vision started changing: we were more and more exposed to their small habits, to their stories,  their successes and frustrations. And we realized that they didn’t need a technology that would mediate their perception of the environment, they really needed ways to interact with their surrounding as naturally as possible. But have I introduced us yet? We are @IreneLanza, @markomanka and Henrik Kjeldesen and it’s our pleasure and pride to present SoundSight Training, an educational tool, as the name suggests, to develop and hone the innate ability of humanking to explore one’ surroundings beyond the use of sight. In boring technical details, it is an acoustic virtual reality that simulates in real time the diffusion, reflection and distortion of user emitted sounds in different environments, offering small variations to capture the consequent modulation of sound features in a trial and error learning process, mediated by appropriate feedback about the results. Our mission is to make this tool as accessible as possible, and open source, to be owned and tinkered around by its community, and for this reason we are slowly and organically onboarding hackers, and blind people alike, like our friends, Cecilia, Luca and Matteo. True to this vision, we have turned to crowdfunding as the fundraising strategy of choice, and we are trying to exploit the kickstarter campaign and press attention to mobilitate people, and to experience holding a stake into the success of this adventure. We aim at allowing millions of blind people to train their hearing, and to learn how to echolocate and navigate in living environments. So, down to the important question: would you like to help us? https://www.kickstarter.com/projects/960729924/soundsight-training-allow-blind-people-to-see-with",/post/5117,2017-05-30T20:49:40.000Z,2017-05-30T20:49:40.000Z,5117,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5084,80 4508,v1.0,,"WeHandU will be an online site, but the focus is on customised items, thus it will be strongly connected to 3D printing technology.",/post/835,2017-05-30T20:43:38.000Z,2017-05-30T20:43:38.000Z,835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,6 9360,v1.0,,"WeHandU consists of a site where users can browse a database of existing solution, and can share their own ideas. A group of chosen user, called MENTORS, will help develop ideas that look promising, granting a solid know-how in many field (design, engineering, law, medicin, etc.).",/post/835,2017-05-30T20:43:24.000Z,2017-05-30T20:43:24.000Z,835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,1294 9671,v1.0,,WeHandU tryes to solve the problem everyone with disability encounters: prosthesis are not personalized and often need to customized in regard of each personal need.,/post/835,2017-05-30T20:43:15.000Z,2017-05-30T20:43:15.000Z,835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,1378 6497,v1.0,,"WeHandU aims to establish an online platform, where users can share, browse and modify projects capable of helping people affected by disability. WeHandU tryes to solve the problem everyone with disability encounters: prosthesis are not personalized and often need to customized in regard of each personal need. The target is everyone intersted in or affected by disability, ready to learn, design, share and produce their personal device to deal with one (or more) disability. WeHandU consists of a site where users can browse a database of existing solution, and can share their own ideas. A group of chosen user, called MENTORS, will help develop ideas that look promising, granting a solid know-how in many field (design, engineering, law, medicin, etc.). WeHandU will be an online site, but the focus is on customised items, thus it will be strongly connected to 3D printing technology. http://wehandu.it/it/ Creative Commons license The project is still gathering minds to achieve its goals. The site is online, but it's still an early build with very few functionalities. WeHandU is at the development stage: we need to put in practice our ideas!",/post/835,2017-05-30T20:43:07.000Z,2017-05-30T20:43:07.000Z,835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,485 6955,v1.0,,"WeHandU aims to establish an online platform, where users can share, browse and modify projects capable of helping people affected by disability. WeHandU tryes to solve the problem everyone with disability encounters: prosthesis are not personalized and often need to customized in regard of each personal need. The target is everyone intersted in or affected by disability, ready to learn, design, share and produce their personal device to deal with one (or more) disability. WeHandU consists of a site where users can browse a database of existing solution, and can share their own ideas. A group of chosen user, called MENTORS, will help develop ideas that look promising, granting a solid know-how in many field (design, engineering, law, medicin, etc.). WeHandU will be an online site, but the focus is on customised items, thus it will be strongly connected to 3D printing technology. http://wehandu.it/it/ Creative Commons license The project is still gathering minds to achieve its goals. The site is online, but it's still an early build with very few functionalities. WeHandU is at the development stage: we need to put in practice our ideas!",/post/835,2017-05-30T20:42:57.000Z,2017-05-30T20:42:57.000Z,835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,802,724 5855,v1.0,,"I love this quote too; ""Instead, being is an act or event that must happen in the space between the self and the world."" We hear a lot in our line of work - this guy has low self esteem - or this woman lacks self confidence. I now see from reading the article you sent that this is itself based on Cartesian thinking. And I think it goes way beyond loss of self esteem etc - I think we've been observing the people arriving at our door with profound loss of all sense of self. The article you sent helps to describe why that might be. Sense of self is coproduced in forming a sense of collective.",/post/27228,2017-05-30T20:38:45.000Z,2017-05-30T20:38:45.000Z,27228,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,378 5546,v1.0,,"Thanks @markomanka - this link is interesting. I love what it says about Ubuntu philosophy; ""I am because we are, and since we are, therefore I am."" Growing the sense of 'we' is so fundamental to every other generative and evolutionary human project - at least to my understanding so far. I think of it as our 'collective muscle' - our ability to think on behalf of the whole. And this muscle has become so emaciated by the experiences of modernity. Its not simply about 'being together' or connecting - virtually or physically. It has a markedly different quality. The Misak indigenous peoples of Columbia seem to take this to a whole other level. When we co-hosted a workshop with one of their elders late last year, I was really drawn in by their descriptions of the collective consciousness and how this only came about and was sustained by active engagement in Minga (collective work). You'll get a sense of the clarity of their thinking here: http://www.lifemosaic.net/eng/tol/life-plan/ though I don't think they mention Minga in this video.",/post/27228,2017-05-30T20:38:22.000Z,2017-05-30T20:38:22.000Z,27228,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,331 10009,v1.0,,"What kind of structures and processes are essential building blocks or make up the ’hardware’? What kind internal capacities and approaches make up the ‘software’ that keep a healthy organisation, healthy community or healthy societies humming with human flourishing?",/post/6304,2017-05-30T20:37:07.000Z,2017-05-30T20:37:07.000Z,6304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1445 10008,v1.0,,"How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?",/post/26676,2017-05-30T20:36:53.000Z,2017-05-30T20:36:53.000Z,26676,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1445 8582,v1.0,,"Have you, by any chance, read this https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?",/post/26676,2017-05-30T20:36:37.000Z,2017-05-30T20:36:37.000Z,26676,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1140 4806,v1.0,,"Have you, by any chance, read this https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?",/post/26676,2017-05-30T20:36:33.000Z,2017-05-30T20:36:33.000Z,26676,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,80 7984,v1.0,,"Have you, by any chance, read this https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?",/post/26676,2017-05-30T20:36:28.000Z,2017-05-30T20:36:28.000Z,26676,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,987 10836,v1.0,,"This is ust my own personal  take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for  run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired – the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.",/post/24900,2017-05-30T20:36:08.000Z,2017-05-30T20:36:08.000Z,24900,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1652 6127,v1.0,,"This is ust my own personal  take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for  run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired – the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.",/post/24900,2017-05-30T20:35:55.000Z,2017-05-30T20:35:55.000Z,24900,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,432 7163,v1.0,,"This is ust my own personal  take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for  run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired – the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.",/post/24900,2017-05-30T20:35:47.000Z,2017-05-30T20:35:47.000Z,24900,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,768 5004,v1.0,,"I do not have nearly your experience around care, so I'll defer to your judgment as to people's emotional needs. We started looking into care beccause, frankly, it keeps getting in the way. We are always trying to build something (an online community, a consulting business, a space for life and work... ). Building is hard, and normally underpaid because no one wants to pay for the costs of coordination and the risk-taking phase when you are building, but the thing you are building is not yielding its expected benefit because it's not finished. So people keep burning out, or having to take long breaks, or otherwise dropping the ball. That affects everyone else, is unfair on the tougher people who keep grinding it with less support, and fragilises everything we do.",/post/24900,2017-05-30T20:35:38.000Z,2017-05-30T20:35:38.000Z,24900,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,130 11417,v1.0,,"- I cannot help feel strongly that more than services, people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said “A life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.” and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.",/post/23520,2017-05-30T20:35:16.000Z,2017-05-30T20:35:16.000Z,23520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1838 10369,v1.0,,"- I cannot help feel strongly that more than services, people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said “A life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.” and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.",/post/23520,2017-05-30T20:35:06.000Z,2017-05-30T20:35:06.000Z,23520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1532 4924,v1.0,,- it looks like our work here in Glasgow has quite a bit in common with your work in Access Space and Makers although we’ve not quite gone digital yet. I agree that publicly-funded activity is limited in a number of ways and we’ve been similarly burned in partnerships in the past. Our organisation has survived a number of cuts and financial challenges and nearly didn’t make it after our EU employability funding came to an end after 7 years in 2012 (though I personally find the employability agenda deeply problematic). We started building a number of diverse income streams after that to create greater financial stability for the future. These have grown to become our trading subsidiary and we are trying to integrate the learning and development work we do with enterprise activities.,/post/23520,2017-05-30T20:34:42.000Z,2017-05-30T20:34:42.000Z,23520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,121 4923,v1.0,,"Whoa, funding cuts due to being 'too successful"" sounds like a familiar story - edgeryders at the end of our Council of Europe journey, could have gone for longer if incentives were better aligned, but in the end it might be better like this: an independent spinoff is probably an even better story. If you have blogged somewhere about the details of the affair, or the promising results, I'd be interested in reading.",/post/17052,2017-05-30T20:34:33.000Z,2017-05-30T20:34:33.000Z,17052,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,121 4922,v1.0,,"We (Access Space) were a minor partner, receiving less than 5% of the project budget - yet one of our clients, who we helped to prototype a key product, has created more jobs than the WHOLE PROGRAMME'S OBJECTIVE. How were we thanked for this? We had our budget cut.",/post/14151,2017-05-30T20:34:15.000Z,2017-05-30T20:34:15.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,121 7324,v1.0,,"Hello @Alberto, I enjoyed your Spawning the Reef blog post. Reminds me of Ivan Illich’s Tools for Conviviality; the big machines we created - perhaps health and social care institutions are the best examples of this - no longer serve humanity. In our own workshops, in watching how people positively respond to being needed instead of being ‘treated’ - I cannot help feel strongly that more than services, people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said “A life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.” and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.",/post/23520,2017-05-30T20:30:53.000Z,2017-05-30T20:30:53.000Z,23520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,805 8831,v1.0,,Making the ‘numbers look pretty’ (and less in the red!) has been tough and we’re at a point where we don’t know if we can make it work. We see clear potential but what happens as people have less money to spend? My hunch is that for localised manufacturing to work we need structural measures to offset the realities of the global marketplace and explore ways of interfacing and contributing to the growth of non-monetary economies.,/post/23520,2017-05-30T20:30:40.000Z,2017-05-30T20:30:40.000Z,23520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1164 7546,v1.0,,"We (Access Space) were a minor partner, receiving less than 5% of the project budget - yet one of our clients, who we helped to prototype a key product, has created more jobs than the WHOLE PROGRAMME'S OBJECTIVE. How were we thanked for this? We had our budget cut.",/post/14151,2017-05-30T20:30:16.000Z,2017-05-30T20:30:16.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,877 7545,v1.0,,Hello @James - it looks like our work here in Glasgow has quite a bit in common with your work in Access Space and Makers although we’ve not quite gone digital yet. I agree that publicly-funded activity is limited in a number of ways and we’ve been similarly burned in partnerships in the past. Our organisation has survived a number of cuts and financial challenges and nearly didn’t make it after our EU employability funding came to an end after 7 years in 2012 (though I personally find the employability agenda deeply problematic). We started building a number of diverse income streams after that to create greater financial stability for the future. These have grown to become our trading subsidiary and we are trying to integrate the learning and development work we do with enterprise activities.,/post/23520,2017-05-30T20:29:53.000Z,2017-05-30T20:29:53.000Z,23520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,877 4914,v1.0,,This wins the award for bleakest B-word take i've read this weak.,/post/21744,2017-05-30T20:29:27.000Z,2017-05-30T20:29:27.000Z,21744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,119 4913,v1.0,,"Meanwhile, of course, I have studiously avoided the implications of the B-word. However, as Britain dusts off its application to join the Third World, it'd be a very positive thing for us to build some bridges with our friends from the future. Any suggestions?",/post/19837,2017-05-30T20:29:22.000Z,2017-05-30T20:29:22.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,119 8330,v1.0,,"From our point-of-view at ""Makers"", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an ""automated manufacture pod"" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.",/post/19837,2017-05-30T20:29:11.000Z,2017-05-30T20:29:11.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1088 9246,v1.0,,"From our point-of-view at ""Makers"", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an ""automated manufacture pod"" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.",/post/19837,2017-05-30T20:28:55.000Z,2017-05-30T20:28:55.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1273 8402,v1.0,,"From our point-of-view at ""Makers"", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an ""automated manufacture pod"" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.",/post/19837,2017-05-30T20:28:37.000Z,2017-05-30T20:28:37.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1107 8395,v1.0,,"From our point-of-view at ""Makers"", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an ""automated manufacture pod"" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.",/post/19837,2017-05-30T20:28:29.000Z,2017-05-30T20:28:29.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1106 10636,v1.0,,"I suspect that we should understand these two projects as running in parallel, rather than collaboratively. MakEY (the project we're a partner in) is 100% focused on early years kids, devising workshops to help teachers gain confidence and skills to lead higher value making sessions for 5-8 year-olds, hopefully enthusing them with STEM. We're looking to have fun with robots, drawing, moulding things, playing with conductive materials and electricity; then we aim to develop best practices which we can disseminate to other school environments. A further objective may be to understand what kind of ""makerspace"" could be accommodated inside a school. As you'll no doubt be aware, there's an EU-wide problem with retaining young people in STEM learning, and this will put us in a poor position to compete globally, and make best use of the new transformations in manufacture.",/post/19837,2017-05-30T20:28:13.000Z,2017-05-30T20:28:13.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1618 7139,v1.0,,"I suspect that we should understand these two projects as running in parallel, rather than collaboratively. MakEY (the project we're a partner in) is 100% focused on early years kids, devising workshops to help teachers gain confidence and skills to lead higher value making sessions for 5-8 year-olds, hopefully enthusing them with STEM. We're looking to have fun with robots, drawing, moulding things, playing with conductive materials and electricity; then we aim to develop best practices which we can disseminate to other school environments. A further objective may be to understand what kind of ""makerspace"" could be accommodated inside a school. As you'll no doubt be aware, there's an EU-wide problem with retaining young people in STEM learning, and this will put us in a poor position to compete globally, and make best use of the new transformations in manufacture.",/post/19837,2017-05-30T20:27:59.000Z,2017-05-30T20:27:59.000Z,19837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,766 5537,v1.0,,"es Just one small thing: OpenCare is indeed a Horizon 2020 project (official landing page with all the logos, bells and whistles: http://opencare.cc). How could we, concretely, collaborate? Maybe you want to connect with @WinniePoncelet , spearheading a project to make an open source process to produce human insulin. Among other things, Winnie is putting together a session on citizen science in care at an event OpenCare is organising, called OpenVillage. Does this sound interesting to your junior school crowd?",/post/19274,2017-05-30T20:27:38.000Z,2017-05-30T20:27:38.000Z,19274,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,326 5965,v1.0,,"We're currently involved in a Horizon 2020 project, researching ways to introduce making into junior schools, encouraging engagement with Science, Technology, Engineering and Mathematics, and we'd welcome collaborations with other research projects. Hope to see some Edgeryders here in Sheffield soon!",/post/14151,2017-05-30T20:26:49.000Z,2017-05-30T20:26:49.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,395 8830,v1.0,,"If we can find this path, then the potential for replication is obvious. If not, I fear that the new ""maker economy"" will be so much hot air, and digital making will suck resources out of localities and neighbourhoods, just as have so many other waves of supposedly ""decentralising"" technologies. ""Makers"" has a website here: http://makersontheedge.com. We sell things that we and local people have made, plus interesting old, curious and unique things that we acquire. What we don't sell is mass manufactured stuff. We also run craft and making workshops. Oh, and if you want to come and visit, and maybe to a Makers residency, we have a self-contained flat above the shop which we rent on AirBNB here! https://www.airbnb.co.uk/rooms/13081880?preview",/post/14151,2017-05-30T20:26:42.000Z,2017-05-30T20:26:42.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1164 7323,v1.0,,"That led me to feel that there is no future in publicly-funded programmes, particularly when they involve asymmetric power relationships - a local authority, for example, can simply dictate to minor partners how a budget will be deployed. This is partnership in name only, So, I and my wife Lisa started ""Makers"" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that's completely self-sustaining",/post/14151,2017-05-30T20:26:32.000Z,2017-05-30T20:26:32.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,805 9555,v1.0,,"That led me to feel that there is no future in publicly-funded programmes, particularly when they involve asymmetric power relationships - a local authority, for example, can simply dictate to minor partners how a budget will be deployed. This is partnership in name only, So, I and my wife Lisa started ""Makers"" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that's completely self-sustaining",/post/14151,2017-05-30T20:26:21.000Z,2017-05-30T20:26:21.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1342 9812,v1.0,,"So, I and my wife Lisa started ""Makers"" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that's completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we'll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.",/post/14151,2017-05-30T20:25:58.000Z,2017-05-30T20:25:58.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1420 11314,v1.0,,"So, I and my wife Lisa started ""Makers"" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that's completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we'll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.",/post/14151,2017-05-30T20:25:52.000Z,2017-05-30T20:25:52.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1803 10825,v1.0,,"So, I and my wife Lisa started ""Makers"" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that's completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we'll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.",/post/14151,2017-05-30T20:25:45.000Z,2017-05-30T20:25:45.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1648 8401,v1.0,,"I left Access Space just after we'd delivered an incredibly successful EU funded project: Sheffield Community Network. The project's overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.",/post/14151,2017-05-30T20:25:28.000Z,2017-05-30T20:25:28.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1107 6141,v1.0,,"I left Access Space just after we'd delivered an incredibly successful EU funded project: Sheffield Community Network. The project's overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.",/post/14151,2017-05-30T20:25:09.000Z,2017-05-30T20:25:09.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,435 8188,v1.0,,"I left Access Space just after we'd delivered an incredibly successful EU funded project: Sheffield Community Network. The project's overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.",/post/14151,2017-05-30T20:24:56.000Z,2017-05-30T20:24:56.000Z,14151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1047 7791,v1.0,,"What kind internal capacities and approaches make up the ‘software’ that keep a healthy organisation, healthy community or healthy societies humming with human flourishing?",/post/6304,2017-05-30T20:24:02.000Z,2017-05-30T20:24:02.000Z,6304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,942 10547,v1.0,,What kind of structures and processes are essential building blocks or make up the ’hardware’?,/post/6304,2017-05-30T20:23:52.000Z,2017-05-30T20:23:52.000Z,6304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1574 8385,v1.0,,"It’s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we’ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said ‘the work is the therapy’ - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society? We’ve recently spent a year curating a collaborative process to explore what it means to ‘be GalGael’. It saw us going back to our beginnings and drawing on the learning from our days as an anti-motorway protest camp. We wrestled with our assumptions - which were shared and which were disputed? We explored whether our purpose was actually underneath it all - to bring about greater love. This contributes to our being in a good place to explore this theme more widely in our own organisation and its practical application in more depth.",/post/6304,2017-05-30T20:23:40.000Z,2017-05-30T20:23:40.000Z,6304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1102 6133,v1.0,,It’s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we’ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said ‘the work is the therapy’ - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society?,/post/6304,2017-05-30T20:23:26.000Z,2017-05-30T20:23:26.000Z,6304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,433 10191,v1.0,,"My work through the GalGael Trust based in the Govan area of Glasgow has offered some hints that actively generating a healthy culture is perhaps more effective in achieving in an anchored way the 'good intentions' of policy. Strong values guide actions, decisions and behaviour, influence language and how we treat one another. Our workshop sees people working, for the most, part side by side. We’ve had people with violent histories, people who suffer agoraphobia, depression and addiction. Yet something about the space we’ve created has meant that people largely get on, there’ve been no violent incidents in our 20 year history and people describe their doctor taking them off medication, sometimes for the first time in many years.",/post/6304,2017-05-30T20:22:27.000Z,2017-05-30T20:22:27.000Z,6304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6271,1482 4548,v1.0,,"What I am interested in when talking about communication is how it leads to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown of Ghent is pretty bad. It might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or moneywise) aspect. Your work as an artist is potentially a great help. Has your work on making complex issues around bodies of water acessible somehow contributed to citizen-led research?",/post/21041,2017-05-30T20:19:23.000Z,2017-05-30T20:19:23.000Z,21041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,16 11447,v1.0,,"What I am interested in when talking about communication is how it leads to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown of Ghent is pretty bad. It might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or moneywise) aspect. Your work as an artist is potentially a great help. Has your work on making complex issues around bodies of water acessible somehow contributed to citizen-led research?",/post/21041,2017-05-30T20:19:10.000Z,2017-05-30T20:19:10.000Z,21041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1844 11440,v1.0,,"What I am interested in when talking about communication is how it leads to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown of Ghent is pretty bad. It might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or moneywise) aspect. Your work as an artist is potentially a great help. Has your work on making complex issues around bodies of water acessible somehow contributed to citizen-led research?",/post/21041,2017-05-30T20:19:05.000Z,2017-05-30T20:19:05.000Z,21041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1843 7657,v1.0,,"What I am interested in when talking about communication is how it leads to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown of Ghent is pretty bad. It might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or moneywise) aspect. Your work as an artist is potentially a great help. Has your work on making complex issues around bodies of water acessible somehow contributed to citizen-led research?",/post/21041,2017-05-30T20:18:55.000Z,2017-05-30T20:18:55.000Z,21041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,910 5456,v1.0,,"What I am interested in when talking about communication is how it leads to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown of Ghent is pretty bad. It might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or moneywise) aspect. Your work as an artist is potentially a great help. Has your work on making complex issues around bodies of water acessible somehow contributed to citizen-led research?",/post/21041,2017-05-30T20:18:38.000Z,2017-05-30T20:18:38.000Z,21041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,312 7229,v1.0,,"What I am interested in when talking about communication is how it leads to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown of Ghent is pretty bad. It might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or moneywise) aspect. Your work as an artist is potentially a great help. Has your work on making complex issues around bodies of water acessible somehow contributed to citizen-led research?",/post/21041,2017-05-30T20:18:28.000Z,2017-05-30T20:18:28.000Z,21041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,784 5494,v1.0,,"For the introduction, do you need something like ""The Biological Regionalism Session discusses ways to use art as a way to introduce complicated environmental and health issues to a diverse audience""",/post/15247,2017-05-30T20:17:46.000Z,2017-05-30T20:17:46.000Z,15247,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,318 8111,v1.0,,"I'm sorry I was confused. I listed the questions that we hoped we could address by our presentation. My question is ""What is the best way share our project and our interest in working on other organizations around the world?""",/post/15247,2017-05-30T20:17:34.000Z,2017-05-30T20:17:34.000Z,15247,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1026 8426,v1.0,,"I'm sorry I was confused. I listed the questions that we hoped we could address by our presentation. My question is ""What is the best way share our project and our interest in working on other organizations around the world?""",/post/15247,2017-05-30T20:17:27.000Z,2017-05-30T20:17:27.000Z,15247,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1111 8425,v1.0,,"For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).",/post/6315,2017-05-30T20:17:13.000Z,2017-05-30T20:17:13.000Z,6315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1111 8869,v1.0,,"For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).",/post/6315,2017-05-30T20:17:01.000Z,2017-05-30T20:17:01.000Z,6315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1179 4701,v1.0,,"For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).",/post/6315,2017-05-30T20:16:53.000Z,2017-05-30T20:16:53.000Z,6315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,60 5493,v1.0,,"For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).",/post/6315,2017-05-30T20:16:16.000Z,2017-05-30T20:16:16.000Z,6315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,318 11439,v1.0,,"For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).",/post/6315,2017-05-30T20:16:11.000Z,2017-05-30T20:16:11.000Z,6315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6282,1843 11576,v1.0,,"Great name, and some very nice art.  In looking at your page in FB I also saw a link to the ""Youthopia""  https://www.youthopiabangla.org/index.php# which presents a lot of promising opprtunities as well as a number of meetups and get-togethers.  It's great to see this going on.  I agree that it is well worth the time to investigate and understand all of it better.",/post/21180,2017-05-30T20:15:25.000Z,2017-05-30T20:15:25.000Z,21180,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,1873 6954,v1.0,,"The project which we are currently working  if you go through the social media page of the Magical Art of Silence in Facebook, you can observe that we are working along with the diverse network of deaf and mute artists only  , 4  of our artists are deaf and mute and only 1 artist is non deaf and mute and mostly working on customized order.The fact is we have initiated this project without any funding and with minimum profit we do sell it via online and do participate for offline  sell and exhibitionas well.",/post/11777,2017-05-30T20:15:00.000Z,2017-05-30T20:15:00.000Z,11777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,724 8874,v1.0,,"The project which we are currently working  if you go through the social media page of the Magical Art of Silence in Facebook, you can observe that we are working along with the diverse network of deaf and mute artists only  , 4  of our artists are deaf and mute and only 1 artist is non deaf and mute and mostly working on customized order.The fact is we have initiated this project without any funding and with minimum profit we do sell it via online and do participate for offline  sell and exhibitionas well.",/post/11777,2017-05-30T20:14:56.000Z,2017-05-30T20:14:56.000Z,11777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,1183 6366,v1.0,,"The project which we are currently working  if you go through the social media page of the Magical Art of Silence in Facebook, you can observe that we are working along with the diverse network of deaf and mute artists only  , 4  of our artists are deaf and mute and only 1 artist is non deaf and mute and mostly working on customized order.The fact is we have initiated this project without any funding and with minimum profit we do sell it via online and do participate for offline  sell and exhibitionas well.",/post/11777,2017-05-30T20:14:50.000Z,2017-05-30T20:14:50.000Z,11777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,464 4700,v1.0,,"The project which we are currently working  if you go through the social media page of the Magical Art of Silence in Facebook, you can observe that we are working along with the diverse network of deaf and mute artists only  , 4  of our artists are deaf and mute and only 1 artist is non deaf and mute and mostly working on customized order.The fact is we have initiated this project without any funding and with minimum profit we do sell it via online and do participate for offline  sell and exhibitionas well.",/post/11777,2017-05-30T20:14:46.000Z,2017-05-30T20:14:46.000Z,11777,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,60 10847,v1.0,,"We finished a boot camp based on ‘From Sign Language to C++” based on Programming for Differently Able and especially for deaf   and the targeted group was around 14-18 with the help of two young, enthusiastic undergrads who worked as trainer on voluntary basis. BRIDGE foundation itself is consisted with all the youth volunteers and state department alumnus who are spirited for the community betterment; community based services, youth and civic engagement as well as future leaders of Green Earth campaign.",/post/6321,2017-05-30T20:14:26.000Z,2017-05-30T20:14:26.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,1658 7138,v1.0,,"We finished a boot camp based on ‘From Sign Language to C++” based on Programming for Differently Able and especially for deaf   and the targeted group was around 14-18 with the help of two young, enthusiastic undergrads who worked as trainer on voluntary basis. BRIDGE foundation itself is consisted with all the youth volunteers and state department alumnus who are spirited for the community betterment; community based services, youth and civic engagement as well as future leaders of Green Earth campaign.",/post/6321,2017-05-30T20:14:21.000Z,2017-05-30T20:14:21.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,766 7587,v1.0,,"The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future.",/post/6321,2017-05-30T20:13:51.000Z,2017-05-30T20:13:51.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,886 9623,v1.0,,"The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future.",/post/6321,2017-05-30T20:13:46.000Z,2017-05-30T20:13:46.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,1363 11464,v1.0,,"The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future.",/post/6321,2017-05-30T20:13:31.000Z,2017-05-30T20:13:31.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,1849 8793,v1.0,,"The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future.",/post/6321,2017-05-30T20:13:25.000Z,2017-05-30T20:13:25.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,1155 4535,v1.0,,"The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future.",/post/6321,2017-05-30T20:13:18.000Z,2017-05-30T20:13:18.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,12 7040,v1.0,,"After our first initiative we are really enthusiastic for our future endeavors as we participated in a workshop based on “Theater for Differently Able” which is funded by British Council Bangladesh along with an expert from U.K, Jeany Sealy  who herself is a deaf and also one of the organizers of London Paralympics. We are hopeful as the entire project is entitled “A different Shakespeare”, and all the actors and actresses are differently able, being deaf or physically immovable. It was neither a barrier nor limitation from being in performing arts in terms of being deaf and wheel chair users, losing any part of limbs but at the end being able to express in the way you are and this time the maximum participants were selected from BRIDGE foundation. We finished a boot camp based on ‘From Sign Language to C++” based on Programming for Differently Able and especially for deaf   and the targeted group was around 14-18 with the help of two young, enthusiastic undergrads who worked as trainer on voluntary basis. BRIDGE foundation itself is consisted with all the youth volunteers and state department alumnus who are spirited for the community betterment; community based services, youth and civic engagement as well as future leaders of Green Earth campaign. In 2015 December we ,the BRIDGE Foundation initiated the project “ARTPreneur for Differently Able Young Deaf Artists” where they do have opportunities to work under the experts through monthly basis workshop and selling their art work through online as well. In this first initiative “Alliance Françoise” supported us along with their in house artists and also CounterFoto supported us along with their venue where famous artist “Najib Tareque” came as guest lecturer and we do believe that they are the “Differently Able” and this a terminology that brings the positive vibe and disability is at the end all about our mind set and exclusion free society is important through more engagement and employment. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future. Last but not least we do urge to every activist and volunteer to support us being actively engaged as a volunteer through BRIDGE Foundation and work for the excluded group through sharing, teaching and capacity building being a facilitator for each and every differently able to be touched through voice, through your eyes, your touchy fingers, extended and helping hands and valuable time at the end. Mainstream has been done, has been doing and will be doing but what about excluded, scheduled and out stream people? if we don’t listen to voice of silence, to make the immovable a movable one through IT, technology and information which can lessen the gap of “Digital Divide’ and can ensure “Differently Able in Development “with a positive notion instead of “Disable in Development” the Sustainable and inclusive development will be a myth only. At the end I do believe you are not disabled unless you believe that and I am hopeful that the government initiated the strategies of inclusion for the “Differently Able” even though that are in the limited era but this is the beginning. One day there will be no separate school in the name of special education, and both the parents and teachers would be cooperative to include them and mainstream institutions, organizations and corporations will come forward to engage them and believe in their potentiality. Our team and BRIDGE foundation is proud to be with those who are associated with our initiative being special in terms of endeavor from the mainstream a long and lonely journey to go before we reach towards the goal along with individual efforts. https://www.facebook.com/theajalaproject/photos/a.307880219338955.1073741828.307875172672793/1055182401275396/?type=3&theater http://worldmerit.org/merit360.aspx/ Agent of Change 2016 http://thebangladeshtoday.com/2016/03/natasha-kabir-bangladeshi-contributing-worldwide-2/ https://www.youtube.com/watch?v=yr5JiMN48RU https://audioboom.com/boos/3569768-training-for-differently-abled-students-in-bangladesh http://www.britishcouncil.org.bd/en/events/diversity-week-2016  http://www.bracu.ac.bd/sites/default/files/academy/research-document/Proceeding%20of%20ICTL%202016%20Final.pdf September1, 2016 as Conference proceeding, Centre for Pedagogy, Independent University of Bangladesh,April22-23 2016, Publication title Socio-Cultural Economics Interlinked with the Differently Able in South Asia: From the Case Study of Inclusive Model of Creating Deaf Creative Sector Based Workers through Skill Based Trainingin Bangladesh [Working Paper] Questionnaire on “disability-inclusive policies” - Call for submissions",/post/6321,2017-05-30T20:12:58.000Z,2017-05-30T20:12:58.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,742 6365,v1.0,,"After our first initiative we are really enthusiastic for our future endeavors as we participated in a workshop based on “Theater for Differently Able” which is funded by British Council Bangladesh along with an expert from U.K, Jeany Sealy  who herself is a deaf and also one of the organizers of London Paralympics. We are hopeful as the entire project is entitled “A different Shakespeare”, and all the actors and actresses are differently able, being deaf or physically immovable. It was neither a barrier nor limitation from being in performing arts in terms of being deaf and wheel chair users, losing any part of limbs but at the end being able to express in the way you are and this time the maximum participants were selected from BRIDGE foundation. We finished a boot camp based on ‘From Sign Language to C++” based on Programming for Differently Able and especially for deaf   and the targeted group was around 14-18 with the help of two young, enthusiastic undergrads who worked as trainer on voluntary basis. BRIDGE foundation itself is consisted with all the youth volunteers and state department alumnus who are spirited for the community betterment; community based services, youth and civic engagement as well as future leaders of Green Earth campaign. In 2015 December we ,the BRIDGE Foundation initiated the project “ARTPreneur for Differently Able Young Deaf Artists” where they do have opportunities to work under the experts through monthly basis workshop and selling their art work through online as well. In this first initiative “Alliance Françoise” supported us along with their in house artists and also CounterFoto supported us along with their venue where famous artist “Najib Tareque” came as guest lecturer and we do believe that they are the “Differently Able” and this a terminology that brings the positive vibe and disability is at the end all about our mind set and exclusion free society is important through more engagement and employment. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future. Last but not least we do urge to every activist and volunteer to support us being actively engaged as a volunteer through BRIDGE Foundation and work for the excluded group through sharing, teaching and capacity building being a facilitator for each and every differently able to be touched through voice, through your eyes, your touchy fingers, extended and helping hands and valuable time at the end. Mainstream has been done, has been doing and will be doing but what about excluded, scheduled and out stream people? if we don’t listen to voice of silence, to make the immovable a movable one through IT, technology and information which can lessen the gap of “Digital Divide’ and can ensure “Differently Able in Development “with a positive notion instead of “Disable in Development” the Sustainable and inclusive development will be a myth only. At the end I do believe you are not disabled unless you believe that and I am hopeful that the government initiated the strategies of inclusion for the “Differently Able” even though that are in the limited era but this is the beginning. One day there will be no separate school in the name of special education, and both the parents and teachers would be cooperative to include them and mainstream institutions, organizations and corporations will come forward to engage them and believe in their potentiality. Our team and BRIDGE foundation is proud to be with those who are associated with our initiative being special in terms of endeavor from the mainstream a long and lonely journey to go before we reach towards the goal along with individual efforts. https://www.facebook.com/theajalaproject/photos/a.307880219338955.1073741828.307875172672793/1055182401275396/?type=3&theater http://worldmerit.org/merit360.aspx/ Agent of Change 2016 http://thebangladeshtoday.com/2016/03/natasha-kabir-bangladeshi-contributing-worldwide-2/ https://www.youtube.com/watch?v=yr5JiMN48RU https://audioboom.com/boos/3569768-training-for-differently-abled-students-in-bangladesh http://www.britishcouncil.org.bd/en/events/diversity-week-2016  http://www.bracu.ac.bd/sites/default/files/academy/research-document/Proceeding%20of%20ICTL%202016%20Final.pdf September1, 2016 as Conference proceeding, Centre for Pedagogy, Independent University of Bangladesh,April22-23 2016, Publication title Socio-Cultural Economics Interlinked with the Differently Able in South Asia: From the Case Study of Inclusive Model of Creating Deaf Creative Sector Based Workers through Skill Based Trainingin Bangladesh [Working Paper] Questionnaire on “disability-inclusive policies” - Call for submissions",/post/6321,2017-05-30T20:12:44.000Z,2017-05-30T20:12:44.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,464 6953,v1.0,,"After our first initiative we are really enthusiastic for our future endeavors as we participated in a workshop based on “Theater for Differently Able” which is funded by British Council Bangladesh along with an expert from U.K, Jeany Sealy  who herself is a deaf and also one of the organizers of London Paralympics. We are hopeful as the entire project is entitled “A different Shakespeare”, and all the actors and actresses are differently able, being deaf or physically immovable. It was neither a barrier nor limitation from being in performing arts in terms of being deaf and wheel chair users, losing any part of limbs but at the end being able to express in the way you are and this time the maximum participants were selected from BRIDGE foundation. We finished a boot camp based on ‘From Sign Language to C++” based on Programming for Differently Able and especially for deaf   and the targeted group was around 14-18 with the help of two young, enthusiastic undergrads who worked as trainer on voluntary basis. BRIDGE foundation itself is consisted with all the youth volunteers and state department alumnus who are spirited for the community betterment; community based services, youth and civic engagement as well as future leaders of Green Earth campaign. In 2015 December we ,the BRIDGE Foundation initiated the project “ARTPreneur for Differently Able Young Deaf Artists” where they do have opportunities to work under the experts through monthly basis workshop and selling their art work through online as well. In this first initiative “Alliance Françoise” supported us along with their in house artists and also CounterFoto supported us along with their venue where famous artist “Najib Tareque” came as guest lecturer and we do believe that they are the “Differently Able” and this a terminology that brings the positive vibe and disability is at the end all about our mind set and exclusion free society is important through more engagement and employment. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future. Last but not least we do urge to every activist and volunteer to support us being actively engaged as a volunteer through BRIDGE Foundation and work for the excluded group through sharing, teaching and capacity building being a facilitator for each and every differently able to be touched through voice, through your eyes, your touchy fingers, extended and helping hands and valuable time at the end. Mainstream has been done, has been doing and will be doing but what about excluded, scheduled and out stream people? if we don’t listen to voice of silence, to make the immovable a movable one through IT, technology and information which can lessen the gap of “Digital Divide’ and can ensure “Differently Able in Development “with a positive notion instead of “Disable in Development” the Sustainable and inclusive development will be a myth only. At the end I do believe you are not disabled unless you believe that and I am hopeful that the government initiated the strategies of inclusion for the “Differently Able” even though that are in the limited era but this is the beginning. One day there will be no separate school in the name of special education, and both the parents and teachers would be cooperative to include them and mainstream institutions, organizations and corporations will come forward to engage them and believe in their potentiality. Our team and BRIDGE foundation is proud to be with those who are associated with our initiative being special in terms of endeavor from the mainstream a long and lonely journey to go before we reach towards the goal along with individual efforts. https://www.facebook.com/theajalaproject/photos/a.307880219338955.1073741828.307875172672793/1055182401275396/?type=3&theater http://worldmerit.org/merit360.aspx/ Agent of Change 2016 http://thebangladeshtoday.com/2016/03/natasha-kabir-bangladeshi-contributing-worldwide-2/ https://www.youtube.com/watch?v=yr5JiMN48RU https://audioboom.com/boos/3569768-training-for-differently-abled-students-in-bangladesh http://www.britishcouncil.org.bd/en/events/diversity-week-2016  http://www.bracu.ac.bd/sites/default/files/academy/research-document/Proceeding%20of%20ICTL%202016%20Final.pdf September1, 2016 as Conference proceeding, Centre for Pedagogy, Independent University of Bangladesh,April22-23 2016, Publication title Socio-Cultural Economics Interlinked with the Differently Able in South Asia: From the Case Study of Inclusive Model of Creating Deaf Creative Sector Based Workers through Skill Based Trainingin Bangladesh [Working Paper] Questionnaire on “disability-inclusive policies” - Call for submissions",/post/6321,2017-05-30T20:12:37.000Z,2017-05-30T20:12:37.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,724 4699,v1.0,,"After our first initiative we are really enthusiastic for our future endeavors as we participated in a workshop based on “Theater for Differently Able” which is funded by British Council Bangladesh along with an expert from U.K, Jeany Sealy  who herself is a deaf and also one of the organizers of London Paralympics. We are hopeful as the entire project is entitled “A different Shakespeare”, and all the actors and actresses are differently able, being deaf or physically immovable. It was neither a barrier nor limitation from being in performing arts in terms of being deaf and wheel chair users, losing any part of limbs but at the end being able to express in the way you are and this time the maximum participants were selected from BRIDGE foundation. We finished a boot camp based on ‘From Sign Language to C++” based on Programming for Differently Able and especially for deaf   and the targeted group was around 14-18 with the help of two young, enthusiastic undergrads who worked as trainer on voluntary basis. BRIDGE foundation itself is consisted with all the youth volunteers and state department alumnus who are spirited for the community betterment; community based services, youth and civic engagement as well as future leaders of Green Earth campaign. In 2015 December we ,the BRIDGE Foundation initiated the project “ARTPreneur for Differently Able Young Deaf Artists” where they do have opportunities to work under the experts through monthly basis workshop and selling their art work through online as well. In this first initiative “Alliance Françoise” supported us along with their in house artists and also CounterFoto supported us along with their venue where famous artist “Najib Tareque” came as guest lecturer and we do believe that they are the “Differently Able” and this a terminology that brings the positive vibe and disability is at the end all about our mind set and exclusion free society is important through more engagement and employment. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. The special cases of physically disable students who are less in number as we expected that we would also be able to accommodate the wheel chair users along with ramp but at the end they could not make it due to support from their parents and distance, where we found we would have special session along with the guardian and parents also. Female Participation is required to be increased through consultation and motivation to find out their feasibility and access in future. Last but not least we do urge to every activist and volunteer to support us being actively engaged as a volunteer through BRIDGE Foundation and work for the excluded group through sharing, teaching and capacity building being a facilitator for each and every differently able to be touched through voice, through your eyes, your touchy fingers, extended and helping hands and valuable time at the end. Mainstream has been done, has been doing and will be doing but what about excluded, scheduled and out stream people? if we don’t listen to voice of silence, to make the immovable a movable one through IT, technology and information which can lessen the gap of “Digital Divide’ and can ensure “Differently Able in Development “with a positive notion instead of “Disable in Development” the Sustainable and inclusive development will be a myth only. At the end I do believe you are not disabled unless you believe that and I am hopeful that the government initiated the strategies of inclusion for the “Differently Able” even though that are in the limited era but this is the beginning. One day there will be no separate school in the name of special education, and both the parents and teachers would be cooperative to include them and mainstream institutions, organizations and corporations will come forward to engage them and believe in their potentiality. Our team and BRIDGE foundation is proud to be with those who are associated with our initiative being special in terms of endeavor from the mainstream a long and lonely journey to go before we reach towards the goal along with individual efforts. https://www.facebook.com/theajalaproject/photos/a.307880219338955.1073741828.307875172672793/1055182401275396/?type=3&theater http://worldmerit.org/merit360.aspx/ Agent of Change 2016 http://thebangladeshtoday.com/2016/03/natasha-kabir-bangladeshi-contributing-worldwide-2/ https://www.youtube.com/watch?v=yr5JiMN48RU https://audioboom.com/boos/3569768-training-for-differently-abled-students-in-bangladesh http://www.britishcouncil.org.bd/en/events/diversity-week-2016  http://www.bracu.ac.bd/sites/default/files/academy/research-document/Proceeding%20of%20ICTL%202016%20Final.pdf September1, 2016 as Conference proceeding, Centre for Pedagogy, Independent University of Bangladesh,April22-23 2016, Publication title Socio-Cultural Economics Interlinked with the Differently Able in South Asia: From the Case Study of Inclusive Model of Creating Deaf Creative Sector Based Workers through Skill Based Trainingin Bangladesh [Working Paper] Questionnaire on “disability-inclusive policies” - Call for submissions",/post/6321,2017-05-30T20:12:30.000Z,2017-05-30T20:12:30.000Z,6321,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6288,60 9437,v1.0,,"The plasmids need to be put in bacteria. Therefor, we have to make bacteria 'competent' (= able to take up 'naked' DNA) or we need to buy 'competent' bacteria. Buying is more expensive but more efficient.",/post/24451,2017-05-30T20:11:52.000Z,2017-05-30T20:11:52.000Z,24451,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6292,1311 9436,v1.0,,"Got some news that CCL is ready to ship us the plasmids within the week, and maybe the organisms. @ritavht has been looking up the stuff for growing up the organisms if they come as a culture. Now there's also the possibility that we'll start from the plasmids, so we should prepare for that as well. Within the week means I'll be out of action due to medical reasons. We can use this as a strength as I'll be home all day for sure to receive the samples . Is anyone up for leading the first rounds of lab work to get going with the plasmids/cultures? We can use this thread to further coordinate the lab work. Some pings for sharing the news:",/post/6325,2017-05-30T20:11:46.000Z,2017-05-30T20:11:46.000Z,6325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6292,1311 9097,v1.0,,"Got some news that CCL is ready to ship us the plasmids within the week, and maybe the organisms. @ritavht has been looking up the stuff for growing up the organisms if they come as a culture. Now there's also the possibility that we'll start from the plasmids, so we should prepare for that as well. Within the week means I'll be out of action due to medical reasons. We can use this as a strength as I'll be home all day for sure to receive the samples . Is anyone up for leading the first rounds of lab work to get going with the plasmids/cultures? We can use this thread to further coordinate the lab work. Some pings for sharing the news:",/post/6325,2017-05-30T20:10:56.000Z,2017-05-30T20:10:56.000Z,6325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6292,1254 9084,v1.0,,"Got some news that CCL is ready to ship us the plasmids within the week, and maybe the organisms. @ritavht has been looking up the stuff for growing up the organisms if they come as a culture. Now there's also the possibility that we'll start from the plasmids, so we should prepare for that as well. Within the week means I'll be out of action due to medical reasons. We can use this as a strength as I'll be home all day for sure to receive the samples . Is anyone up for leading the first rounds of lab work to get going with the plasmids/cultures? We can use this thread to further coordinate the lab work. Some pings for sharing the news:",/post/6325,2017-05-30T20:10:49.000Z,2017-05-30T20:10:49.000Z,6325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6292,1253 5986,v1.0,,"Hello dear, I am from BANGLADESH too. Glad to know there are such nice thoughts about other people in your plans. It is high time we take an action about these because otherwise who will? All the best with your proposal. I have a project too, visit maybe? : https://edgeryders.eu/en/one-simple-solution-for-global-warming-to-save-my-country",/post/8421,2017-05-29T22:10:43.000Z,2017-05-29T22:10:43.000Z,8421,3323,AnnotatorStore::TextAnnotation,,,,,,,,,807,396 7408,v1.0,,"@Noemi Yes, send the invitation, appreciate it.  As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related diseases kill thousands every year.  Just thought it was worth sharing. However, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa.  This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water – and provides employment for the locals and is an excellent small business model for community entrepreneurs.",/post/15020,2017-05-29T22:09:57.000Z,2017-05-29T22:09:57.000Z,15020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,677,836 11446,v1.0,,"@Noemi Yes, send the invitation, appreciate it.  As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related diseases kill thousands every year.  Just thought it was worth sharing. However, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa.  This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water – and provides employment for the locals and is an excellent small business model for community entrepreneurs.",/post/15020,2017-05-29T22:09:47.000Z,2017-05-29T22:09:47.000Z,15020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,677,1844 11438,v1.0,,"@Noemi Yes, send the invitation, appreciate it.  As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related diseases kill thousands every year.  Just thought it was worth sharing. However, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa.  This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water – and provides employment for the locals and is an excellent small business model for community entrepreneurs.",/post/15020,2017-05-29T22:09:42.000Z,2017-05-29T22:09:42.000Z,15020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,677,1843 10519,v1.0,,"I'm very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.",/post/15751,2017-05-29T22:09:07.000Z,2017-05-29T22:09:07.000Z,15751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1565 4740,v1.0,,"I have some questions but I will try to first off reply to Alberto by interpreting the text above: to my understanding the idea behind the digital service is one where in a first phase the experience is initially one-to-many and the users are receiving feedback, but what they are actually mostly doing is feeding some kind of artificial intelligence that will generate the knowledge about the specific intolerance. the many-to-many kind of interactions will come at later stage as a consequence of the first phase.",/post/15751,2017-05-29T22:08:22.000Z,2017-05-29T22:08:22.000Z,15751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,63 9359,v1.0,,"The idea of understanding one's own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes out), or a many-to-many interaction between users. Can user A see the diary of user B? Do they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?",/post/8578,2017-05-29T22:06:25.000Z,2017-05-29T22:06:25.000Z,8578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1294 9580,v1.0,,"Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues? Can we look at Care as something to cultivate rather than to delegate? New health issues are increasing rapidly, due to environmental conditions and GMOs as well as for the newly acquired technical ability to test for them. For many (new) health issues there is yet little knowledge. Often the research is guided by profit-driven decisions, in the interest of big pharmaceutical corporations or exclusively within the analytic tradition. To look at care as a life practice. We take a health issue like histamine intolerance as a concrete example for which it is clear and mandatory that food intake and lifestyle are determining the severity of the health condition. In defining “Care” I would like to work around the question: Is our diet and lifestyle shaped around products or can we brake out of this path and empower ourselves in designing products - an app in this case - that help us define which food and lifestyle combination is better for each unique person? Can a tool help eventually finding one's way to still eat or drink that food by combining it differently and so on? Need or problem you are attempting to solve* How can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it's a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing. ​Beneficiary, single person and/or community* Beneficiary will be both single persons and the community in a mutual exchange between users affected by the health condition and those who want to participate and make use of the app like doctors, researchers, practitioners and more. Solution, brief description of the project* A first version of the app will be essentially A GUIDED FOOD DIARY. Obtain information and make your own list of safe foods, referring to a build-in food list of: high-histamine, anti-histamine, anti-inflammatory and cross- check it with a list of typical symptoms and reactions. The idea is to allow users to add #tag foods, behaviors, and symptoms with the intention to generate knowledge and work in the direction of creating a community and use data-analysis for a second version of the app. The food diary can help create awareness and be a systematic tool in finding out which foods provoke reactions and to which degree. It can help to expand one's diet, follow elimination diet systems, help re-introduce single foods, and monitor whether these provoke any reactions or not. It can help apply more logic to why certain symptoms occur and when. It can be used to help one's general practitioner or specialist in doing more targeted testing. It can be a great support in case of multiple intolerances as well. ​Technologies already adopted or that you are planning to adopt* We are a two-women team whit design and development skills. We will start with IOS , and consequently adapt for Android. ​Website (or socials) We are planning a dedicated website that will follow all the steps of the project. ​License, that you are planning to use Open-source Current status/stage of the project ​1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community. 2) Observing the context - UI-UX and Algorithms, comparative analysis and design: by looking at existing apps, like: ""Food Intolerances"", ""All I Can Eat"", ""Your food Intolerance"", and other food intolerance apps, as well as other apps on different health issues, as for example, the menstrual cycle tracking app, “Clue”. 3) Sketch out of a wireframe flow for a testable minimum viable product or prototype. The wireframe will also address issues like users privacy and handling of private health information",/post/837,2017-05-29T22:05:02.000Z,2017-05-29T22:05:02.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1348 7196,v1.0,,I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luck.,/post/8438,2017-05-29T22:04:26.000Z,2017-05-29T22:04:26.000Z,8438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,777 4698,v1.0,,I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luck.,/post/8438,2017-05-29T22:04:15.000Z,2017-05-29T22:04:15.000Z,8438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,60 6198,v1.0,,I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luc,/post/8438,2017-05-29T22:04:10.000Z,2017-05-29T22:04:10.000Z,8438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,439 9723,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:02:56.000Z,2017-05-29T22:02:56.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1391 9722,v1.0,,"@Gentlewest hello and nice to meet you, I don't think I've met anyone from Cameroon until now. Small world, this Internet thing How do you see the change in behavior happening? Is anybody speaking publicly about this? One example of intervention which you might find useful, although i don't know your background, is throuhg art. @Nabeel_p  is working on awareness raising for public health issues and sets up large public art to get the message across. Some of us found it inspiring - have a look here? Nabeel do you see something like that tailored for reproductive health?  Also, guys: how much exposure of taboo is taboo?",/post/8524,2017-05-29T22:02:47.000Z,2017-05-29T22:02:47.000Z,8524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1391 4697,v1.0,,"@Gentlewest hello and nice to meet you, I don't think I've met anyone from Cameroon until now. Small world, this Internet thing How do you see the change in behavior happening? Is anybody speaking publicly about this? One example of intervention which you might find useful, although i don't know your background, is throuhg art. @Nabeel_p  is working on awareness raising for public health issues and sets up large public art to get the message across. Some of us found it inspiring - have a look here? Nabeel do you see something like that tailored for reproductive health?  Also, guys: how much exposure of taboo is taboo?",/post/8524,2017-05-29T22:02:32.000Z,2017-05-29T22:02:32.000Z,8524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,60 7922,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:02:04.000Z,2017-05-29T22:02:04.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,974 6274,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:01:57.000Z,2017-05-29T22:01:57.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,447 9571,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:01:47.000Z,2017-05-29T22:01:47.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1346 10344,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:01:41.000Z,2017-05-29T22:01:41.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1524 11555,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:01:20.000Z,2017-05-29T22:01:20.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1872 10339,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:01:09.000Z,2017-05-29T22:01:09.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1522 8524,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:00:53.000Z,2017-05-29T22:00:53.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1139 9883,v1.0,,"In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around  reproductive health or sex  education, they are usually severely punished  and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don't know that they have to provide pads for their girl children during menstruation. They don't even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which  cames out of the bodies as a result.  Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences.  As a result of lack of menstrual hygiene, due to absence of  dialogue between them and their parents,  i was amazed by the stories i got. Some said, as they approached their parents  when they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using  dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections.  As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these  adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge.  so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says ""Charity begins at home"" if  discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon  for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.",/post/849,2017-05-29T22:00:43.000Z,2017-05-29T22:00:43.000Z,849,3323,AnnotatorStore::TextAnnotation,,,,,,,,,816,1441 5198,v1.0,,"I had to re-read the post because I didnt understand at first whether this new super original type of health workers would train to become personnel, or it would be a training that is more alternative medical practice. I'm curious how freelancing works and if it is easy to become a temporary caregiver  in a hospital, clinic, or other medical facility with this certification? @jesslockhart  I think @jahn here was just reporting on the story, but maybe he knows the team personally to send your offer to them? That's very kind of you to come up with a design idea!",/post/20593,2017-05-29T21:59:20.000Z,2017-05-29T21:59:20.000Z,20593,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,195 7650,v1.0,,"I love this. Shifting the viewpoint to highlight the beauty and variety of people's different abilities. It really does seem like a win-win idea. Your photo here looks so modern and stylish, but when I go to your website it falls a little bit flat in interesting content. The concept though is so beautiful. I am a graphic designer, I can imagine a really beautiful brand overhaul to reflect this innovative project and an open source toolkit made for people/social entrepreneurs/investors who would like to implement discovering hands.",/post/14838,2017-05-29T21:59:07.000Z,2017-05-29T21:59:07.000Z,14838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,909 5867,v1.0,,"I love this. Shifting the viewpoint to highlight the beauty and variety of people's different abilities. It really does seem like a win-win idea. Your photo here looks so modern and stylish, but when I go to your website it falls a little bit flat in interesting content. The concept though is so beautiful. I am a graphic designer, I can imagine a really beautiful brand overhaul to reflect this innovative project and an open source toolkit made for people/social entrepreneurs/investors who would like to implement discovering hands.",/post/14838,2017-05-29T21:58:55.000Z,2017-05-29T21:58:55.000Z,14838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,381 10540,v1.0,,"We are operating as a social business because we believe in the our value proposition (to the healthcare sector, and institutions supporting people with disabilities). We are committed to the social ""win-win"" of our model: offering meaningful employment to blind women, and creating an opportunity for them where they have competitive strength; and helping to improve the breast cancer early identification situation and awareness for the most common cancer among women.",/post/764,2017-05-29T21:58:30.000Z,2017-05-29T21:58:30.000Z,764,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,1572 10466,v1.0,,"“Medical Tactile Examiners” (MTEs) are trained to deliver physical breast examinations at doctors’ practices. During a 9-month training period they learn how to use a standardized diagnostic method for examining the female breast. Additionally, all MTEs are trained in communication skills and breast-specific psychology, as well as administrative tasks typically carried out by a doctor’s assistant. MTEs are either directly employed by resident doctors or hospitals, or they work for different practices and/or hospitals on a freelance basis. Conventionally, a regular breast examination carried out by a gynecologist takes between 1 and 3 minutes. The discovering hands MTE invests at least 30 minutes for each session, not only examining the breast, but also educating patients on how to cope with the risk of breast cancer. Patients feel that they are well taken care of and receive the best possible preventive examination in a pleasant environment.",/post/764,2017-05-29T21:58:13.000Z,2017-05-29T21:58:13.000Z,764,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,1556 11379,v1.0,,"Breast cancer – the burden and early diagnosis Breast cancer is the most common cancer in women both in the developed and less developed world. It is estimated that worldwide over 508,000 women died in 2011 from breast cancer (Global Health Estimates, WHO 2013). This represents about 12% of all new cancer cases and 25% of all cancers in women. In all countries, early detection remains the cornerstone of breast cancer control in order to improve breast cancer outcome and survival. In health systems with developed infrastructure, physicians regularly examine the breast as part of a routine female check-up (usually once or twice a year) in addition to mammography. However, this routine procedure is  provided at varying levels of time investment and care. Discovering hands has a number of advantages: By using the extraordinary sensory capabilities of visually impaired women, a perceived “disability” is transformed into a capability. A completely new field of meaningful employment is created. “Medical Tactile Examiners” (MTEs) are trained to deliver physical breast examinations at doctors’ practices. During a 9-month training period they learn how to use a standardized diagnostic method for examining the female breast. Additionally, all MTEs are trained in communication skills and breast-specific psychology, as well as administrative tasks typically carried out by a doctor’s assistant. MTEs are either directly employed by resident doctors or hospitals, or they work for different practices and/or hospitals on a freelance basis. Conventionally, a regular breast examination carried out by a gynecologist takes between 1 and 3 minutes. The discovering hands MTE invests at least 30 minutes for each session, not only examining the breast, but also educating patients on how to cope with the risk of breast cancer. Patients feel that they are well taken care of and receive the best possible preventive examination in a pleasant environment. Preliminary qualitative results, conducted by the University of Essen, show that MTEs detect ~50% more and ~28% smaller tissue alterations in the breast than doctors (5-8mm vs. 10-15mm). A clinical, peer reviewed study is currently being conducted at the University of Erlangen. Our vision We are operating as a social business because we believe in the our value proposition (to the healthcare sector, and institutions supporting people with disabilities). We are committed to the social ""win-win"" of our model: offering meaningful employment to blind women, and creating an opportunity for them where they have competitive strength; and helping to improve the breast cancer early identification situation and awareness for the most common cancer among women. Current roll-out Discovering hands is planning to substantially increase the number of MTEs in the years to come. We currently operate in Germany and in Austria. In both India and Colombia we have pilot projects running with scale-up in planning. And we are interested in further country roll-out, which we operate through a social franchise. If you are a social entrepreneur and would like to implement discovering hands in your country, contact us. Also, if you are an impact investor and are interested in collaborating with us to further roll-out the model, please contact us too. We are interested in hearing from you!  http://www.discovering-hands.de",/post/764,2017-05-29T21:57:46.000Z,2017-05-29T21:57:46.000Z,764,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,1828 9579,v1.0,,"Breast cancer – the burden and early diagnosis Breast cancer is the most common cancer in women both in the developed and less developed world. It is estimated that worldwide over 508,000 women died in 2011 from breast cancer (Global Health Estimates, WHO 2013). This represents about 12% of all new cancer cases and 25% of all cancers in women. In all countries, early detection remains the cornerstone of breast cancer control in order to improve breast cancer outcome and survival. In health systems with developed infrastructure, physicians regularly examine the breast as part of a routine female check-up (usually once or twice a year) in addition to mammography. However, this routine procedure is  provided at varying levels of time investment and care. Discovering hands has a number of advantages: By using the extraordinary sensory capabilities of visually impaired women, a perceived “disability” is transformed into a capability. A completely new field of meaningful employment is created. “Medical Tactile Examiners” (MTEs) are trained to deliver physical breast examinations at doctors’ practices. During a 9-month training period they learn how to use a standardized diagnostic method for examining the female breast. Additionally, all MTEs are trained in communication skills and breast-specific psychology, as well as administrative tasks typically carried out by a doctor’s assistant. MTEs are either directly employed by resident doctors or hospitals, or they work for different practices and/or hospitals on a freelance basis. Conventionally, a regular breast examination carried out by a gynecologist takes between 1 and 3 minutes. The discovering hands MTE invests at least 30 minutes for each session, not only examining the breast, but also educating patients on how to cope with the risk of breast cancer. Patients feel that they are well taken care of and receive the best possible preventive examination in a pleasant environment. Preliminary qualitative results, conducted by the University of Essen, show that MTEs detect ~50% more and ~28% smaller tissue alterations in the breast than doctors (5-8mm vs. 10-15mm). A clinical, peer reviewed study is currently being conducted at the University of Erlangen. Our vision We are operating as a social business because we believe in the our value proposition (to the healthcare sector, and institutions supporting people with disabilities). We are committed to the social ""win-win"" of our model: offering meaningful employment to blind women, and creating an opportunity for them where they have competitive strength; and helping to improve the breast cancer early identification situation and awareness for the most common cancer among women. Current roll-out Discovering hands is planning to substantially increase the number of MTEs in the years to come. We currently operate in Germany and in Austria. In both India and Colombia we have pilot projects running with scale-up in planning. And we are interested in further country roll-out, which we operate through a social franchise. If you are a social entrepreneur and would like to implement discovering hands in your country, contact us. Also, if you are an impact investor and are interested in collaborating with us to further roll-out the model, please contact us too. We are interested in hearing from you!  http://www.discovering-hands.de",/post/764,2017-05-29T21:57:31.000Z,2017-05-29T21:57:31.000Z,764,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,1348 8428,v1.0,,"Breast cancer – the burden and early diagnosis Breast cancer is the most common cancer in women both in the developed and less developed world. It is estimated that worldwide over 508,000 women died in 2011 from breast cancer (Global Health Estimates, WHO 2013). This represents about 12% of all new cancer cases and 25% of all cancers in women. In all countries, early detection remains the cornerstone of breast cancer control in order to improve breast cancer outcome and survival. In health systems with developed infrastructure, physicians regularly examine the breast as part of a routine female check-up (usually once or twice a year) in addition to mammography. However, this routine procedure is  provided at varying levels of time investment and care. Discovering hands has a number of advantages: By using the extraordinary sensory capabilities of visually impaired women, a perceived “disability” is transformed into a capability. A completely new field of meaningful employment is created. “Medical Tactile Examiners” (MTEs) are trained to deliver physical breast examinations at doctors’ practices. During a 9-month training period they learn how to use a standardized diagnostic method for examining the female breast. Additionally, all MTEs are trained in communication skills and breast-specific psychology, as well as administrative tasks typically carried out by a doctor’s assistant. MTEs are either directly employed by resident doctors or hospitals, or they work for different practices and/or hospitals on a freelance basis. Conventionally, a regular breast examination carried out by a gynecologist takes between 1 and 3 minutes. The discovering hands MTE invests at least 30 minutes for each session, not only examining the breast, but also educating patients on how to cope with the risk of breast cancer. Patients feel that they are well taken care of and receive the best possible preventive examination in a pleasant environment. Preliminary qualitative results, conducted by the University of Essen, show that MTEs detect ~50% more and ~28% smaller tissue alterations in the breast than doctors (5-8mm vs. 10-15mm). A clinical, peer reviewed study is currently being conducted at the University of Erlangen. Our vision We are operating as a social business because we believe in the our value proposition (to the healthcare sector, and institutions supporting people with disabilities). We are committed to the social ""win-win"" of our model: offering meaningful employment to blind women, and creating an opportunity for them where they have competitive strength; and helping to improve the breast cancer early identification situation and awareness for the most common cancer among women. Current roll-out Discovering hands is planning to substantially increase the number of MTEs in the years to come. We currently operate in Germany and in Austria. In both India and Colombia we have pilot projects running with scale-up in planning. And we are interested in further country roll-out, which we operate through a social franchise. If you are a social entrepreneur and would like to implement discovering hands in your country, contact us. Also, if you are an impact investor and are interested in collaborating with us to further roll-out the model, please contact us too. We are interested in hearing from you!  http://www.discovering-hands.de",/post/764,2017-05-29T21:57:23.000Z,2017-05-29T21:57:23.000Z,764,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,1112 4909,v1.0,,"Breast cancer – the burden and early diagnosis Breast cancer is the most common cancer in women both in the developed and less developed world. It is estimated that worldwide over 508,000 women died in 2011 from breast cancer (Global Health Estimates, WHO 2013). This represents about 12% of all new cancer cases and 25% of all cancers in women. In all countries, early detection remains the cornerstone of breast cancer control in order to improve breast cancer outcome and survival. In health systems with developed infrastructure, physicians regularly examine the breast as part of a routine female check-up (usually once or twice a year) in addition to mammography. However, this routine procedure is  provided at varying levels of time investment and care. Discovering hands has a number of advantages: By using the extraordinary sensory capabilities of visually impaired women, a perceived “disability” is transformed into a capability. A completely new field of meaningful employment is created. “Medical Tactile Examiners” (MTEs) are trained to deliver physical breast examinations at doctors’ practices. During a 9-month training period they learn how to use a standardized diagnostic method for examining the female breast. Additionally, all MTEs are trained in communication skills and breast-specific psychology, as well as administrative tasks typically carried out by a doctor’s assistant. MTEs are either directly employed by resident doctors or hospitals, or they work for different practices and/or hospitals on a freelance basis. Conventionally, a regular breast examination carried out by a gynecologist takes between 1 and 3 minutes. The discovering hands MTE invests at least 30 minutes for each session, not only examining the breast, but also educating patients on how to cope with the risk of breast cancer. Patients feel that they are well taken care of and receive the best possible preventive examination in a pleasant environment. Preliminary qualitative results, conducted by the University of Essen, show that MTEs detect ~50% more and ~28% smaller tissue alterations in the breast than doctors (5-8mm vs. 10-15mm). A clinical, peer reviewed study is currently being conducted at the University of Erlangen. Our vision We are operating as a social business because we believe in the our value proposition (to the healthcare sector, and institutions supporting people with disabilities). We are committed to the social ""win-win"" of our model: offering meaningful employment to blind women, and creating an opportunity for them where they have competitive strength; and helping to improve the breast cancer early identification situation and awareness for the most common cancer among women. Current roll-out Discovering hands is planning to substantially increase the number of MTEs in the years to come. We currently operate in Germany and in Austria. In both India and Colombia we have pilot projects running with scale-up in planning. And we are interested in further country roll-out, which we operate through a social franchise. If you are a social entrepreneur and would like to implement discovering hands in your country, contact us. Also, if you are an impact investor and are interested in collaborating with us to further roll-out the model, please contact us too. We are interested in hearing from you!  http://www.discovering-hands.de",/post/764,2017-05-29T21:57:13.000Z,2017-05-29T21:57:13.000Z,764,3323,AnnotatorStore::TextAnnotation,,,,,,,,,731,117 5626,v1.0,,"I think it would be great to involve your friend from day one! s/he would probably have a lot of precious insights that would be highly needed to implement the best user experience for such a scenario. did you maybe elaborated the concept a little further? I would suggest to have a look at these http://urban-refugees.org/for-immediate-release-urban-refugees-to-develop-a-mobile-messaging-system-to-help-refugee-community-overcome-communication-challenges/ https://www.gsma.com/refugee-connectivity/apps-for-refugees/",/post/33800,2017-05-29T21:56:34.000Z,2017-05-29T21:56:34.000Z,33800,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,355 8757,v1.0,,"I think it would be great to involve your friend from day one! s/he would probably have a lot of precious insights that would be highly needed to implement the best user experience for such a scenario. did you maybe elaborated the concept a little further? I would suggest to have a look at these http://urban-refugees.org/for-immediate-release-urban-refugees-to-develop-a-mobile-messaging-system-to-help-refugee-community-overcome-communication-challenges/ https://www.gsma.com/refugee-connectivity/apps-for-refugees/",/post/33800,2017-05-29T21:56:20.000Z,2017-05-29T21:56:20.000Z,33800,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1150 10571,v1.0,,Hi! I would be grateful if you guys shared a link to my blog in social media if it's not too onerously. That would help more people see the useful tips I write. As for the OpenVillage Festival. When is it going to be?,/post/14787,2017-05-29T21:54:32.000Z,2017-05-29T21:54:32.000Z,14787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,814,1578 5492,v1.0,,"Being a scientist and environmentalist from Bangladesh myself, I can appreciate the simplicity of your project. There are of course some challenges associated with it. However, it's a great initiative. Well done!",/post/15576,2017-05-29T21:53:03.000Z,2017-05-29T21:53:03.000Z,15576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,318 10446,v1.0,,"Being a scientist and environmentalist from Bangladesh myself, I can appreciate the simplicity of your project. There are of course some challenges associated with it. However, it's a great initiative. Well done!",/post/15576,2017-05-29T21:52:53.000Z,2017-05-29T21:52:53.000Z,15576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1552 7859,v1.0,,"Hello @IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.  I wish you all the best in your efforts.",/post/8154,2017-05-29T21:52:40.000Z,2017-05-29T21:52:40.000Z,8154,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,958 5491,v1.0,,"Hello @IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.  I wish you all the best in your efforts.",/post/8154,2017-05-29T21:52:33.000Z,2017-05-29T21:52:33.000Z,8154,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,318 7228,v1.0,,"Hello @IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.  I wish you all the best in your efforts.",/post/8154,2017-05-29T21:52:29.000Z,2017-05-29T21:52:29.000Z,8154,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,784 8859,v1.0,,"Hello @IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.  I wish you all the best in your efforts.",/post/8154,2017-05-29T21:52:23.000Z,2017-05-29T21:52:23.000Z,8154,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1175 10445,v1.0,,"Hello @IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.  I wish you all the best in your efforts.",/post/8154,2017-05-29T21:52:15.000Z,2017-05-29T21:52:15.000Z,8154,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1552 5964,v1.0,,"part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be",/post/848,2017-05-29T21:51:21.000Z,2017-05-29T21:51:21.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,395 11529,v1.0,,"To bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor’s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO’s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very",/post/848,2017-05-29T21:51:09.000Z,2017-05-29T21:51:09.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1863 8317,v1.0,,"Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.",/post/848,2017-05-29T21:50:52.000Z,2017-05-29T21:50:52.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1081 7227,v1.0,,"Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.",/post/848,2017-05-29T21:50:45.000Z,2017-05-29T21:50:45.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,784 7354,v1.0,,"Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.",/post/848,2017-05-29T21:50:12.000Z,2017-05-29T21:50:12.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,817 5490,v1.0,,"On September 8th 2016, I have initiated an online campaign called  #PlantAtreeChallengeBD” The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It’s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem. Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline. Primarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each  other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10. To bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor’s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO’s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first",/post/848,2017-05-29T21:50:00.000Z,2017-05-29T21:50:00.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,318 6406,v1.0,,"On September 8th 2016, I have initiated an online campaign called  #PlantAtreeChallengeBD” The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It’s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem. Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline. Primarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each  other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10. To bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor’s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO’s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first carbon",/post/848,2017-05-29T21:49:50.000Z,2017-05-29T21:49:50.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,475 10824,v1.0,,"On September 8th 2016, I have initiated an online campaign called  #PlantAtreeChallengeBD” The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It’s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem. Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline. Primarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each  other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10. To bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor’s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO’s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first carbon negative",/post/848,2017-05-29T21:49:43.000Z,2017-05-29T21:49:43.000Z,848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,815,1648 10543,v1.0,,"project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run events branded as such - ""you should spend time with strangers, it's healthy and fun"". It's nice because it starts with a personal burning point and doesn't pretent it will find answers. Needing to find answers can be scary sometimes",/post/7822,2017-05-29T00:35:45.000Z,2017-05-29T00:35:45.000Z,7822,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,1573 5960,v1.0,,"A friend of mine, expat living in Cluj, has similar questions to yours and he's starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run events branded as such - ""you should spend time with strangers, it's healthy and fun"". It's nice because it starts with a personal burning point and doesn't pretent it will find answers. Needing to find answers can be scary sometimes",/post/7822,2017-05-29T00:35:25.000Z,2017-05-29T00:35:25.000Z,7822,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,394 10352,v1.0,,"It is very interesting to get to know and understand people, especially trying to know their interests, passions and habits. Body language is a key to getting to know and understanding people well.From the way they greet, sit eat and talk.Some people are introverts , while others are extroverts. some are timid and some are loud and very bold. But ig you find like -minded passion driven young people, lets say not for profit making team members, they will definitely share same goals which might be for collective good of their community. I will recommend, you read more on social phsychology and body language.",/post/15150,2017-05-29T00:35:07.000Z,2017-05-29T00:35:07.000Z,15150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,1528 5959,v1.0,,"It is very interesting to get to know and understand people, especially trying to know their interests, passions and habits. Body language is a key to getting to know and understanding people well.From the way they greet, sit eat and talk.Some people are introverts , while others are extroverts. some are timid and some are loud and very bold. But ig you find like -minded passion driven young people, lets say not for profit making team members, they will definitely share same goals which might be for collective good of their community. I will recommend, you read more on social phsychology and body language.",/post/15150,2017-05-29T00:34:56.000Z,2017-05-29T00:34:56.000Z,15150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,394 10579,v1.0,,"A friend of mine, expat living in Cluj, has similar questions to yours and he's starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run events branded as such - ""you should spend time with strangers, it's healthy and fun"". It's nice because it starts with a personal burning point and doesn't pretent it will find answers. Needing to find answers can be scary sometimes",/post/7822,2017-05-29T00:34:33.000Z,2017-05-29T00:34:33.000Z,7822,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,1583 4946,v1.0,,"A friend of mine, expat living in Cluj, has similar questions to yours and he's starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run events branded as such - ""you should spend time with strangers, it's healthy and fun"". It's nice because it starts with a personal burning point and doesn't pretent it will find answers. Needing to",/post/7822,2017-05-29T00:33:54.000Z,2017-05-29T00:33:54.000Z,7822,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,123 8100,v1.0,,"A friend of mine, expat living in Cluj, has similar questions to yours and he's starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run events branded as such - ""you should spend time with strangers, it's healthy and fun"". It's nice because it starts with a personal burning point and doesn't pretent it will find answers. Needing to",/post/7822,2017-05-29T00:33:24.000Z,2017-05-29T00:33:24.000Z,7822,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,1024 10699,v1.0,,"A friend of mine, expat living in Cluj, has similar questions to yours and he's starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run events branded as such - ""you should spend time with strangers, it's healthy and fun"".",/post/7822,2017-05-29T00:33:10.000Z,2017-05-29T00:33:10.000Z,7822,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,1628 10007,v1.0,,How can you get people to make symbiotic connections with each other by combining their intrest? How can you get people out of their comfortzones by increasing them? Can you make society act more social by making their their help more recognized? Are there new ways to make joyless but neccessary work more enjoyable? Nudging: should we manipulate people in a good way? Do we have to? Aren´t we doing it all the time anyway? Is there a way to defeat hypocritisy in some areas of social life?,/post/670,2017-05-29T00:32:06.000Z,2017-05-29T00:32:06.000Z,670,3323,AnnotatorStore::TextAnnotation,,,,,,,,,637,1445 5563,v1.0,,"The big advantage is that all global groups are interconnected for the information aspect. The international element will probably happen relatively smoothly if the right digital infrastructure and practises are in place, as there is a clear incentive to do so: faster learning, collective intelligence. Coordination costs should be low, there's only information being shared and this is cheap and fast if you have people who keep track of data.",/post/25366,2017-05-28T23:32:13.000Z,2017-05-28T23:32:13.000Z,25366,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,334 9891,v1.0,,"this is a pretty big thing. If you do skype with @WinniePoncelet I'd love to be a fly on the wall and see if I can contribute in some way. Do you know the question function of research gate? Insulin comes up with 385 researchers who follow the topic and 300 questions discussed. I often get good and detailed responses on things that you usually have a hard time finding in papers. Check here: https://www.researchgate.net/topic/insulin",/post/19886,2017-05-28T23:31:22.000Z,2017-05-28T23:31:22.000Z,19886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1443 4755,v1.0,,"The first is that Fairbnb should help valorize places that are underrated. For example, I'm from Italy (from Rome) and in my opinion, there are so many little places that are worth visiting, is really upsetting knowing that just a few cities here have the attention of international travelers.  For example, I rarely suggest to go in Rome (especially if you are young), go to Sicily if you can :)!! More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places. I recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs. For the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don't represent any more a place of opportunity. This is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.",/post/25049,2017-05-28T23:29:01.000Z,2017-05-28T23:29:01.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,72 10181,v1.0,,"I recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs. For the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don't represent any more a place of opportunity. This is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.",/post/25049,2017-05-28T23:28:43.000Z,2017-05-28T23:28:43.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1480 5450,v1.0,,"I recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs. For the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don't represent any more a place of opportunity. This is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.",/post/25049,2017-05-28T23:28:39.000Z,2017-05-28T23:28:39.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,311 7042,v1.0,,More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.,/post/25049,2017-05-28T23:28:24.000Z,2017-05-28T23:28:24.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,743 9655,v1.0,,More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.,/post/25049,2017-05-28T23:28:17.000Z,2017-05-28T23:28:17.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1372 10079,v1.0,,More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.,/post/25049,2017-05-28T23:28:08.000Z,2017-05-28T23:28:08.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1450 9426,v1.0,,More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.,/post/25049,2017-05-28T23:27:51.000Z,2017-05-28T23:27:51.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1308 7041,v1.0,,"For the support of Fairbnb outside big cities, I think two are the consideration needed: The first is that Fairbnb should help valorize places that are underrated. For example, I'm from Italy (from Rome) and in my opinion, there are so many little places that are worth visiting, is really upsetting knowing that just a few cities here have the attention of international travelers.  For example, I rarely suggest to go in Rome (especially if you are young), go to Sicily if you can :)!!",/post/25049,2017-05-28T23:27:31.000Z,2017-05-28T23:27:31.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,743 8474,v1.0,,"I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like ""successful"" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part). I think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.",/post/25049,2017-05-28T23:27:05.000Z,2017-05-28T23:27:05.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1123 5423,v1.0,,"I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like ""successful"" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part). I think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.",/post/25049,2017-05-28T23:26:20.000Z,2017-05-28T23:26:20.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,305 6254,v1.0,,"I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like ""successful"" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part). I think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.",/post/25049,2017-05-28T23:26:13.000Z,2017-05-28T23:26:13.000Z,25049,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,444 6496,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen. Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it. Counter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now. About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary. The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned. Right now we’re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can’t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers. Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand. Ultimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body’s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet. At the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we’re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we’re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow. Meanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it’s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek. Do you have any projects in health, medicine, or biohacking that you’d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you’d like to get involved with? Leave a comment and let us know.",/post/523,2017-05-28T23:18:31.000Z,2017-05-28T23:18:31.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,485 8937,v1.0,,"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse effects in biotech are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books). This is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories from the news today: http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right. The obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this. The potential of open medicine is there in the long term however. It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes. Anyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.",/post/27807,2017-05-28T23:18:12.000Z,2017-05-28T23:18:12.000Z,27807,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1201 7528,v1.0,,"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse effects in biotech are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books). This is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories from the news today: http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right. The obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this. The potential of open medicine is there in the long term however. It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes. Anyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.",/post/27807,2017-05-28T23:17:59.000Z,2017-05-28T23:17:59.000Z,27807,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,876 4878,v1.0,,"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse effects in biotech are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books). This is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories from the news today: http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right. The obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this. The potential of open medicine is there in the long term however. It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes. Anyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.",/post/27807,2017-05-28T23:17:44.000Z,2017-05-28T23:17:44.000Z,27807,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,102 8502,v1.0,,"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse effects in biotech are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books). This is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories from the news today: http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right. The obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this. The potential of open medicine is there in the long term however. It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes. Anyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.",/post/27807,2017-05-28T23:17:37.000Z,2017-05-28T23:17:37.000Z,27807,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1128 7544,v1.0,,"We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a  prospect, I doubt there would be enough that's novel about our work to qualify it as fundable science.",/post/26033,2017-05-28T23:16:58.000Z,2017-05-28T23:16:58.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,877 9224,v1.0,,"We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a  prospect, I doubt there would be enough that's novel about our work to qualify it as fundable science.",/post/26033,2017-05-28T23:16:50.000Z,2017-05-28T23:16:50.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1269 9096,v1.0,,"That's not quite the plan we've got planned for the project. We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now. The goal is first to make normal human insulin using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking. We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a  prospect, I doubt there would be enough that's novel about our work to qualify it as fundable science.",/post/26033,2017-05-28T23:16:10.000Z,2017-05-28T23:16:10.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1254 9083,v1.0,,"The goal is first to make normal human insulin using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the",/post/26033,2017-05-28T23:16:06.000Z,2017-05-28T23:16:06.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1253 9793,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen. Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it. Counter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now. About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary. The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned. Right now we’re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can’t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers. Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand. Ultimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body’s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet. At the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we’re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we’re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow. Meanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it’s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek. Do you have any projects in health, medicine, or biohacking that you’d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you’d like to get involved with? Leave a comment and let us know.",/post/523,2017-05-28T23:14:56.000Z,2017-05-28T23:14:56.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1412 9792,v1.0,,"The goal is first to make normal human insulin using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the",/post/26033,2017-05-28T23:14:46.000Z,2017-05-28T23:14:46.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1412 9669,v1.0,,"The goal is first to make normal human insulin using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the",/post/26033,2017-05-28T23:14:37.000Z,2017-05-28T23:14:37.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1377 7256,v1.0,,"That's not quite the plan we've got planned for the project. We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now. The goal is first to make normal human insulin using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking. We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a  prospect, I doubt there would be enough that's novel about our work to qualify it as fundable science.",/post/26033,2017-05-28T23:14:18.000Z,2017-05-28T23:14:18.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,792 10207,v1.0,,"That's not quite the plan we've got planned for the project. We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now. The goal is first to make normal human insulin using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking. We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a  prospect, I doubt there would be enough that's novel about our work to qualify it as fundable science.",/post/26033,2017-05-28T23:14:13.000Z,2017-05-28T23:14:13.000Z,26033,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1483 8295,v1.0,,"It's a valid point, @Rune . Honestly I am really scared by the ethical implications of research, any research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health, the ethics become less scary.  In practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe.",/post/24843,2017-05-28T23:13:59.000Z,2017-05-28T23:13:59.000Z,24843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1074 8040,v1.0,,"It's a valid point, @Rune . Honestly I am really scared by the ethical implications of research, any research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health, the ethics become less scary.  In practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe.",/post/24843,2017-05-28T23:13:54.000Z,2017-05-28T23:13:54.000Z,24843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1013 7255,v1.0,,"It's a valid point, @Rune . Honestly I am really scared by the ethical implications of research, any research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health, the ethics become less scary.  In practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe.",/post/24843,2017-05-28T23:13:48.000Z,2017-05-28T23:13:48.000Z,24843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,792 10078,v1.0,,"This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.",/post/20068,2017-05-28T23:13:29.000Z,2017-05-28T23:13:29.000Z,20068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1450 6240,v1.0,,"This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.",/post/20068,2017-05-28T23:13:14.000Z,2017-05-28T23:13:14.000Z,20068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,442 8039,v1.0,,"This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.  Lucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks – an additional advantage to your idea.",/post/20068,2017-05-28T23:13:01.000Z,2017-05-28T23:13:01.000Z,20068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1013 6898,v1.0,,"This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.  Lucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks – an additional advantage to your idea.",/post/20068,2017-05-28T23:12:53.000Z,2017-05-28T23:12:53.000Z,20068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,704 10053,v1.0,,"This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.  Lucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks – an additional advantage to your idea.",/post/20068,2017-05-28T23:12:39.000Z,2017-05-28T23:12:39.000Z,20068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1446 8110,v1.0,,"Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.  In the software world, we see this a lot. Turns out much software work is ""packetizable"": the whole is much more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think Wikipedia: it is so great because it spans human knowledge, but I can work on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.  @dfko , is making open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?",/post/19322,2017-05-28T23:12:17.000Z,2017-05-28T23:12:17.000Z,19322,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1026 9250,v1.0,,"Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.  In the software world, we see this a lot. Turns out much software work is ""packetizable"": the whole is much more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think Wikipedia: it is so great because it spans human knowledge, but I can work on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.  @dfko , is making open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?",/post/19322,2017-05-28T23:11:35.000Z,2017-05-28T23:11:35.000Z,19322,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1275 8109,v1.0,,"Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.  In the software world, we see this a lot. Turns out much software work is ""packetizable"": the whole is much more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think Wikipedia: it is so great because it spans human knowledge, but I can work on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.  @dfko , is making open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?",/post/19322,2017-05-28T23:11:23.000Z,2017-05-28T23:11:23.000Z,19322,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1026 4855,v1.0,,"Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.  In the software world, we see this a lot. Turns out much software work is ""packetizable"": the whole is much more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think Wikipedia: it is so great because it spans human knowledge, but I can work on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.  @dfko , is making open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?",/post/19322,2017-05-28T23:11:18.000Z,2017-05-28T23:11:18.000Z,19322,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,100 10234,v1.0,,"This is exactly the kind of scenario that motivates our work! To get there it seems we may need to move beyond a manual protocol to automating the production at a small scale though - as you mention, even professional underground organic chemists need a broader base of skill to express and purify proteins.",/post/22018,2017-05-28T23:10:57.000Z,2017-05-28T23:10:57.000Z,22018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1487 9223,v1.0,,"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that  get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)? If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and  3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based  research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?",/post/23568,2017-05-28T23:10:37.000Z,2017-05-28T23:10:37.000Z,23568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1269 5499,v1.0,,"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that  get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)? If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and  3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based  research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?",/post/23568,2017-05-28T23:10:16.000Z,2017-05-28T23:10:16.000Z,23568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,319 9841,v1.0,,"If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and  3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based  research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?",/post/23568,2017-05-28T23:09:58.000Z,2017-05-28T23:09:58.000Z,23568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1425 4854,v1.0,,"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that  get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)? If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and  3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based  research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?",/post/23568,2017-05-28T23:09:48.000Z,2017-05-28T23:09:48.000Z,23568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,100 7592,v1.0,,"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that  get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)? If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and  3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based  research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?",/post/23568,2017-05-28T23:09:43.000Z,2017-05-28T23:09:43.000Z,23568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,890 7254,v1.0,,"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that  get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)? If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and  3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based  research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?",/post/23568,2017-05-28T23:09:32.000Z,2017-05-28T23:09:32.000Z,23568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,792 5985,v1.0,,Great! Let's talk on Skype if you're up for that @dfko . I read @trythis  is also interested in joining the discussion. You can find me under my name on Skype (or Twitter) and we can find a moment to call via there.,/post/18398,2017-05-28T23:02:32.000Z,2017-05-28T23:02:32.000Z,18398,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,396 9320,v1.0,,"We've been occupied enough with holding the lab work together that we haven't gotten around to tackling the aspect of establishing partnerships with any sustained effort. Though perhaps a half-dozen potential collaborators with serious interest have reached out, we're still at the point of initial discussions. I'd love to discuss more about your hacker space in Ghent to see how you can get involved!",/post/17455,2017-05-28T23:02:23.000Z,2017-05-28T23:02:23.000Z,17455,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1284 9319,v1.0,,"I was wondering: which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally. The biohackerspace in Ghent, Belgium where I'm involved surely would be.",/post/14446,2017-05-28T23:02:14.000Z,2017-05-28T23:02:14.000Z,14446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1284 5958,v1.0,,"I was wondering: which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally. The biohackerspace in Ghent, Belgium where I'm involved surely would be.",/post/14446,2017-05-28T23:02:06.000Z,2017-05-28T23:02:06.000Z,14446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,394 4853,v1.0,,"I was wondering: which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally. The biohackerspace in Ghent, Belgium where I'm involved surely would be.",/post/14446,2017-05-28T23:01:34.000Z,2017-05-28T23:01:34.000Z,14446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,100 8108,v1.0,,"while. I was wondering: which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally. The biohackerspace in Ghent, Belgium where I'm involved surely would be.",/post/14446,2017-05-28T23:01:23.000Z,2017-05-28T23:01:23.000Z,14446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1026 10233,v1.0,,"We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work. It will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next steps.",/post/10742,2017-05-28T23:01:13.000Z,2017-05-28T23:01:13.000Z,10742,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1487 7543,v1.0,,"We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work. It will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next step",/post/10742,2017-05-28T23:01:03.000Z,2017-05-28T23:01:03.000Z,10742,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,877 6253,v1.0,,"We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work. It will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next steps.",/post/10742,2017-05-28T23:00:56.000Z,2017-05-28T23:00:56.000Z,10742,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,444 8501,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen. Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it. Counter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now. About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary. The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned. Right now we’re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can’t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers. Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand. Ultimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body’s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet. At the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we’re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we’re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow. Meanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it’s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek. Do you have any projects in health, medicine, or biohacking that you’d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you’d like to get involved with? Leave a comment and let us know.",/post/523,2017-05-28T23:00:46.000Z,2017-05-28T23:00:46.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1128 8500,v1.0,,"So looking at your crowdfunding, people not only support, but actually fund scientific research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led? How long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?",/post/10213,2017-05-28T23:00:34.000Z,2017-05-28T23:00:34.000Z,10213,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1128 4846,v1.0,,"So looking at your crowdfunding, people not only support, but actually fund scientific research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led? How long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?",/post/10213,2017-05-28T23:00:28.000Z,2017-05-28T23:00:28.000Z,10213,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,97 6897,v1.0,,"So looking at your crowdfunding, people not only support, but actually fund scientific research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led? How long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?",/post/10213,2017-05-28T23:00:18.000Z,2017-05-28T23:00:18.000Z,10213,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,704 9082,v1.0,,"So looking at your crowdfunding, people not only support, but actually fund scientific research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led? How long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?",/post/10213,2017-05-28T23:00:14.000Z,2017-05-28T23:00:14.000Z,10213,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1253 6252,v1.0,,"So looking at your crowdfunding, people not only support, but actually fund scientific research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led? How long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?",/post/10213,2017-05-28T23:00:09.000Z,2017-05-28T23:00:09.000Z,10213,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,444 8187,v1.0,,On a lighter note...,/post/13151,2017-05-28T22:58:18.000Z,2017-05-28T22:58:18.000Z,13151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1047 4696,v1.0,,On a lighter note...,/post/13151,2017-05-28T22:58:01.000Z,2017-05-28T22:58:01.000Z,13151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,60 7757,v1.0,,On a lighter note...,/post/13151,2017-05-28T22:57:57.000Z,2017-05-28T22:57:57.000Z,13151,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,925 4534,v1.0,,"our concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa.  You could reach out to mbotiji@gmail.com. Thanks",/post/27796,2017-05-24T01:12:58.000Z,2017-05-24T01:12:58.000Z,27796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,12 7072,v1.0,,"our concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa.  You could reach out to mbotiji@gmail.com. Thanks",/post/27796,2017-05-24T01:12:40.000Z,2017-05-24T01:12:40.000Z,27796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,751 7811,v1.0,,"Unfortunately the  community interactions are the goal and not the mean. I'm doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.",/post/11219,2017-05-24T01:12:14.000Z,2017-05-24T01:12:14.000Z,11219,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,950 10691,v1.0,,"It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are  our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y'all, return the favor by giving whch will go a long way of changing a life. "" sharing is caring"", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing",/post/27821,2017-05-24T01:10:56.000Z,2017-05-24T01:10:56.000Z,27821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1625 5422,v1.0,,"It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are  our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y'all, return the favor by giving whch will go a long way of changing a life. "" sharing is caring"", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing",/post/27821,2017-05-24T01:10:44.000Z,2017-05-24T01:10:44.000Z,27821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,305 8756,v1.0,,"It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are  our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y'all, return the favor by giving whch will go a long way of changing a life. "" sharing is caring"", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing",/post/27821,2017-05-24T01:10:20.000Z,2017-05-24T01:10:20.000Z,27821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1150 10653,v1.0,,"Ignorance and wrong beliefs surrounding disability, compounded with a negative and derogatory attitude of the community (including family members) have contributed to the marginal development in the disability sector in Bangladesh.",/post/840,2017-05-22T19:17:33.000Z,2017-05-22T19:17:33.000Z,840,3323,AnnotatorStore::TextAnnotation,,,,,,,,,807,1622 6984,v1.0,,"Ignorance and wrong beliefs surrounding disability, compounded with a negative and derogatory attitude of the community (including family members) have contributed to the marginal development in the disability sector in Bangladesh.",/post/840,2017-05-22T19:17:23.000Z,2017-05-22T19:17:23.000Z,840,3323,AnnotatorStore::TextAnnotation,,,,,,,,,807,729 8206,v1.0,,"No comprehensive empirical study has been conducted at present to determine the incidence and prevalence of disabilities in Bangladesh. The few studies that have been conducted reflect a medical rather than a social model of disability, and they are also limited in geographical coverage",/post/840,2017-05-22T19:17:15.000Z,2017-05-22T19:17:15.000Z,840,3323,AnnotatorStore::TextAnnotation,,,,,,,,,807,1055 6952,v1.0,,"Bangladesh is not only one of the most densely populated countries in the world (with 926 persons per square kilometer) but also located in the world's largest delta, facing the Himalayas in the North, bordering India in the West, North and East, Myanmar in the Southeast, and the Bay of Bengal in the South. No comprehensive empirical study has been conducted at present to determine the incidence and prevalence of disabilities in Bangladesh. The few studies that have been conducted reflect a medical rather than a social model of disability, and they are also limited in geographical coverage. While no reliable national data exist, anecdotal information and a number of micro studies generally suggest a disability prevalence rate of between 5 to 12 per cent. This is close to the WHO estimate, which states that 10 per cent of any given population can be considered to have some or other form of disability. Ignorance and wrong beliefs surrounding disability, compounded with a negative and derogatory attitude of the community (including family members) have contributed to the marginal development in the disability sector in Bangladesh. As Bangladesh makes progress in implementing its health policies on infant mortality rate, immunization coverage, and general health care, there is likely a lowering of incidence of disabilities. However, the gains due to improved health care can be outweighed by the triple effects of increased number of surviving children with disabilities, increased number of people incurring disabilities due to old age (e.g., cataracts and arthritis), and widespread malnutrition. Disabilities due to natural calamities and road traffic accidents imply that the prevalence of people having disabilities in Bangladesh is likely to continually rise over-time, although the nature and distribution of disabilities are also likely to change considerably.",/post/840,2017-05-22T19:17:09.000Z,2017-05-22T19:17:09.000Z,840,3323,AnnotatorStore::TextAnnotation,,,,,,,,,807,724 5623,v1.0,,Imagine a platform like this. Will you help me develop this idea and make it into a reality?,/post/845,2017-05-22T19:16:48.000Z,2017-05-22T19:16:48.000Z,845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,812,354 10895,v1.0,,"Current status/stage of the project ​1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community.",/post/837,2017-05-22T19:16:09.000Z,2017-05-22T19:16:09.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1678 6346,v1.0,,"them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users.",/post/837,2017-05-22T19:15:35.000Z,2017-05-22T19:15:35.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,460 7465,v1.0,,"users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it's a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing.",/post/837,2017-05-22T19:15:20.000Z,2017-05-22T19:15:20.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,854 10317,v1.0,,"How can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users.",/post/837,2017-05-22T19:15:10.000Z,2017-05-22T19:15:10.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1511 7814,v1.0,,To look at care as a life practice. We take a health issue like histamine intolerance as a concrete example for which it is clear and mandatory that food intake and lifestyle are determining the severity of the health condition. In defining “Care” I would like to work around the question: Is our diet and lifestyle shaped around products or can we brake out of this path and empower ourselves in designing products - an app in this case - that help us define which food and lifestyle combination is better for each unique person? Can a tool help eventually finding one's way to still eat or drink that food by combining it differently and so on?,/post/837,2017-05-22T19:14:54.000Z,2017-05-22T19:14:54.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,952 7772,v1.0,,"Need or problem you are attempting to solve* How can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it's a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing. ​Beneficiary, single person and/or community* Beneficiary will be both single persons and the community in a mutual exchange between users affected by the health condition and those who want to participate and make use of the app like doctors, researchers, practitioners and more. Solution, brief description of the project* A first version of the app will be essentially A GUIDED FOOD DIARY. Obtain information and make your own list of safe foods, referring to a build-in food list of: high-histamine, anti-histamine, anti-inflammatory and cross- check it with a list of typical symptoms and reactions. The idea is to allow users to add #tag foods, behaviors, and symptoms with the intention to generate knowledge and work in the direction of creating a community and use data-analysis for a second version of the app. The food diary can help create awareness and be a systematic tool in finding out which foods provoke reactions and to which degree. It can help to expand one's diet, follow elimination diet systems, help re-introduce single foods, and monitor whether these provoke any reactions or not. It can help apply more logic to why certain symptoms occur and when. It can be used to help one's general practitioner or specialist in doing more targeted testing. It can be a great support in case of multiple intolerances as well. ​Technologies already adopted or that you are planning to adopt* We are a two-women team whit design and development skills. We will start with IOS , and consequently adapt for Android. ​Website (or socials) We are planning a dedicated website that will follow all the steps of the project. ​License, that you are planning to use Open-source Current status/stage of the project ​1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community. 2) Observing the context - UI-UX and Algorithms, comparative analysis and design: by looking at existing apps, like: ""Food Intolerances"", ""All I Can Eat"", ""Your food Intolerance"", and other food intolerance apps, as well as other apps on different health issues, as for example, the menstrual cycle tracking app, “Clue”. 3) Sketch out of a wireframe flow for a testable minimum viable product or prototype. The wireframe will also address issues like users privacy and handling of private health information",/post/837,2017-05-22T19:14:43.000Z,2017-05-22T19:14:43.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,936 10518,v1.0,,"To look at care as a life practice. We take a health issue like histamine intolerance as a concrete example for which it is clear and mandatory that food intake and lifestyle are determining the severity of the health condition. In defining “Care” I would like to work around the question: Is our diet and lifestyle shaped around products or can we brake out of this path and empower ourselves in designing products - an app in this case - that help us define which food and lifestyle combination is better for each unique person? Can a tool help eventually finding one's way to still eat or drink that food by combining it differently and so on? Need or problem you are attempting to solve* How can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it's a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing. ​Beneficiary, single person and/or community* Beneficiary will be both single persons and the community in a mutual exchange between users affected by the health condition and those who want to participate and make use of the app like doctors, researchers, practitioners and more. Solution, brief description of the project* A first version of the app will be essentially A GUIDED FOOD DIARY. Obtain information and make your own list of safe foods, referring to a build-in food list of: high-histamine, anti-histamine, anti-inflammatory and cross- check it with a list of typical symptoms and reactions. The idea is to allow users to add #tag foods, behaviors, and symptoms with the intention to generate knowledge and work in the direction of creating a community and use data-analysis for a second version of the app. The food diary can help create awareness and be a systematic tool in finding out which foods provoke reactions and to which degree. It can help to expand one's diet, follow elimination diet systems, help re-introduce single foods, and monitor whether these provoke any reactions or not. It can help apply more logic to why certain symptoms occur and when. It can be used to help one's general practitioner or specialist in doing more targeted testing. It can be a great support in case of multiple intolerances as well. ​Technologies already adopted or that you are planning to adopt* We are a two-women team whit design and development skills. We will start with IOS , and consequently adapt for Android. ​Website (or socials) We are planning a dedicated website that will follow all the steps of the project. ​License, that you are planning to use Open-source Current status/stage of the project ​1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community. 2) Observing the context - UI-UX and Algorithms, comparative analysis and design: by looking at existing apps, like: ""Food Intolerances"", ""All I Can Eat"", ""Your food Intolerance"", and other food intolerance apps, as well as other apps on different health issues, as for example, the menstrual cycle tracking app, “Clue”. 3) Sketch out of a wireframe flow for a testable minimum viable product or prototype. The wireframe will also address issues like users privacy and handling of private health information",/post/837,2017-05-22T19:14:35.000Z,2017-05-22T19:14:35.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1565 9640,v1.0,,"Often the research is guided by profit-driven decisions, in the interest of big pharmaceutical corporations or exclusively within the analytic tradition.",/post/837,2017-05-22T19:14:18.000Z,2017-05-22T19:14:18.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1369 9815,v1.0,,Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues? Can we look at Care as something to cultivate rather than to delegate?,/post/837,2017-05-22T19:14:07.000Z,2017-05-22T19:14:07.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1421 9659,v1.0,,Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues? Can we look at Care as something to cultivate rather than to delegate?,/post/837,2017-05-22T19:13:55.000Z,2017-05-22T19:13:55.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1374 10006,v1.0,,Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues?,/post/837,2017-05-22T19:13:49.000Z,2017-05-22T19:13:49.000Z,837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,804,1445 5579,v1.0,,comfortable for the patient.,/post/33751,2017-05-22T19:13:10.000Z,2017-05-22T19:13:10.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,342 6347,v1.0,,"At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove’s collected data through a graphical interface and cartesian charts.",/post/33751,2017-05-22T19:12:58.000Z,2017-05-22T19:12:58.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,461 8043,v1.0,,"After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove",/post/33751,2017-05-22T19:12:40.000Z,2017-05-22T19:12:40.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,1015 7240,v1.0,,"reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.",/post/33751,2017-05-22T19:12:27.000Z,2017-05-22T19:12:27.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,788 6361,v1.0,,"reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.",/post/33751,2017-05-22T19:12:15.000Z,2017-05-22T19:12:15.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,462 8792,v1.0,,"reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.",/post/33751,2017-05-22T19:12:08.000Z,2017-05-22T19:12:08.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,1155 7610,v1.0,,"#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.  reHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming. Our beneficiaries are all those people who needs to have an experience feedback concerning the hand movements. reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space. reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.  To define our project we didn’t started from a theoretical concept. We started to make the prototype and to test it.  The development of reHub working prototype has been at the heart of our design process. As described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design. After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove’s collected data through a graphical interface and cartesian charts. We are looking for our final user(s), who will try our product and help us develop different options: Sport Gaming Educational Medical   We want to built a community and start a business strategy. We will publish tutorials, kits and software to make your glove. Everything to improve the glove solution. We want to develop 4 different kits to sell: with single sensors  only the electronics glove tailored complete of all components Websites & Social www.rehub.pro www.facebook.com/rehubglove",/post/33751,2017-05-22T19:11:53.000Z,2017-05-22T19:11:53.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,902 7723,v1.0,,"#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.  reHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming. Our beneficiaries are all those people who needs to have an experience feedback concerning the hand movements. reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space. reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.  To define our project we didn’t started from a theoretical concept. We started to make the prototype and to test it.  The development of reHub working prototype has been at the heart of our design process. As described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design. After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove’s collected data through a graphical interface and cartesian charts. We are looking for our final user(s), who will try our product and help us develop different options: Sport Gaming Educational Medical   We want to built a community and start a business strategy. We will publish tutorials, kits and software to make your glove. Everything to improve the glove solution. We want to develop 4 different kits to sell: with single sensors  only the electronics glove tailored complete of all components Websites & Social www.rehub.pro www.facebook.com/rehubglove",/post/33751,2017-05-22T19:11:48.000Z,2017-05-22T19:11:48.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,923 9846,v1.0,,"#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.  reHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming. Our beneficiaries are all those people who needs to have an experience feedback concerning the hand movements. reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space. reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.  To define our project we didn’t started from a theoretical concept. We started to make the prototype and to test it.  The development of reHub working prototype has been at the heart of our design process. As described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design. After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove’s collected data through a graphical interface and cartesian charts. We are looking for our final user(s), who will try our product and help us develop different options: Sport Gaming Educational Medical   We want to built a community and start a business strategy. We will publish tutorials, kits and software to make your glove. Everything to improve the glove solution. We want to develop 4 different kits to sell: with single sensors  only the electronics glove tailored complete of all components Websites & Social www.rehub.pro www.facebook.com/rehubglove",/post/33751,2017-05-22T19:11:41.000Z,2017-05-22T19:11:41.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,1427 9400,v1.0,,"#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.  reHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming. Our beneficiaries are all those people who needs to have an experience feedback concerning the hand movements. reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space. reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.  To define our project we didn’t started from a theoretical concept. We started to make the prototype and to test it.  The development of reHub working prototype has been at the heart of our design process. As described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design. After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove’s collected data through a graphical interface and cartesian charts. We are looking for our final user(s), who will try our product and help us develop different options: Sport Gaming Educational Medical   We want to built a community and start a business strategy. We will publish tutorials, kits and software to make your glove. Everything to improve the glove solution. We want to develop 4 different kits to sell: with single sensors  only the electronics glove tailored complete of all components Websites & Social www.rehub.pro www.facebook.com/rehubglove",/post/33751,2017-05-22T19:11:29.000Z,2017-05-22T19:11:29.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,1307 6495,v1.0,,"#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.  reHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming. Our beneficiaries are all those people who needs to have an experience feedback concerning the hand movements. reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance. ReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space. reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.  To define our project we didn’t started from a theoretical concept. We started to make the prototype and to test it.  The development of reHub working prototype has been at the heart of our design process. As described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design. After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove’s collected data through a graphical interface and cartesian charts. We are looking for our final user(s), who will try our product and help us develop different options: Sport Gaming Educational Medical   We want to built a community and start a business strategy. We will publish tutorials, kits and software to make your glove. Everything to improve the glove solution. We want to develop 4 different kits to sell: with single sensors  only the electronics glove tailored complete of all components Websites & Social www.rehub.pro www.facebook.com/rehubglove",/post/33751,2017-05-22T19:11:21.000Z,2017-05-22T19:11:21.000Z,33751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6600,485 7983,v1.0,,I do believe that they are “Differently Abled” and this terminology brings the positive vibe   and disability is at the end about our mindset and exclusion free society is important through more engagement and employment but still struggling for inclusion.,/post/838,2017-05-22T19:06:02.000Z,2017-05-22T19:06:02.000Z,838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,987 8873,v1.0,,"Magical Art of Silence: An Initiative from BRIDGE Foundation to create a space for the differently abled deaf and mute artists Natasha Israt Kabir, Founder and President of BRIDGE Foundation Background: In 2015 December, we (BRIDGE Foundation) initiated the project “ARTPreneurfor Differently Able” where they do have opportunities to work under the experts through monthly basis workshop and selling their artwork through online as well. In this initiative, “Alliance Françoise” and CounterFoto being our strategic partners supported along with their venues. Case studies: I do believe that they are “Differently Abled” and this terminology brings the positive vibe   and disability is at the end about our mindset and exclusion free society is important through more engagement and employment but still struggling for inclusion. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. From that venture, we felt more motivated to engage them while creating a space for their income generation. After that, we initiated more activities towards arts and crafts, with a successful art exhibition at the residence of Netherlands Embassy, May 2016. We got more opportunity to interact with the creative people and one of our artists Muhammad Sohel Ahmed got the opportunity to start his career as graphics designer at “Red and Orange” communication ,before him it was another deaf and mute youth who bagged a job in a local advertising media, DOT3PRD, who is Shafayth Hossain Asif (23) working as a graphics designer in advertising media.   Jannatul Ferdous Srity (23) another deaf and mute female artist, who worked as an intern along with a national NGO, Democracywatch. Mashiat Tanin (22) another artist is studying at the University of Development Alternative. Our targeted stakeholders We felt these spaces and inclusion for the differently abled would be the biggest challenge for our foundation and that is what has become a driven factor to start this new initiative to create a  space for deaf and mute artists for their income  generation along with the collaboration with the Embassies. As the head of Chancery Mr. Tanvir Kabir  from Bangladesh High Commission in Mexico  bought the deaf and mute artists paintings and an exhibition was held in Mexico City as well. The thing is still now the popularization of  buying paintings and it’s customers are limited, so we are focusing on more innovative design according to the demand of the market and apart from paining, we are also selling wool made products, handmade potteries and miniature arts as well through the online page of “Magical Art of Silence”. That is the new initiative when we started our  offline journey from January 13 th onwards at MIB ( Winter Meet Up Exhibit).   Conclusion : We do hope that more national and international NGOs, embassies would come forward to collaborate with us to promote their artwork through diary, desk calendar as well as via web pages and social networking as well.",/post/838,2017-05-22T19:05:47.000Z,2017-05-22T19:05:47.000Z,838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,1183 4695,v1.0,,"Magical Art of Silence: An Initiative from BRIDGE Foundation to create a space for the differently abled deaf and mute artists Natasha Israt Kabir, Founder and President of BRIDGE Foundation Background: In 2015 December, we (BRIDGE Foundation) initiated the project “ARTPreneurfor Differently Able” where they do have opportunities to work under the experts through monthly basis workshop and selling their artwork through online as well. In this initiative, “Alliance Françoise” and CounterFoto being our strategic partners supported along with their venues. Case studies: I do believe that they are “Differently Abled” and this terminology brings the positive vibe   and disability is at the end about our mindset and exclusion free society is important through more engagement and employment but still struggling for inclusion. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. From that venture, we felt more motivated to engage them while creating a space for their income generation. After that, we initiated more activities towards arts and crafts, with a successful art exhibition at the residence of Netherlands Embassy, May 2016. We got more opportunity to interact with the creative people and one of our artists Muhammad Sohel Ahmed got the opportunity to start his career as graphics designer at “Red and Orange” communication ,before him it was another deaf and mute youth who bagged a job in a local advertising media, DOT3PRD, who is Shafayth Hossain Asif (23) working as a graphics designer in advertising media.   Jannatul Ferdous Srity (23) another deaf and mute female artist, who worked as an intern along with a national NGO, Democracywatch. Mashiat Tanin (22) another artist is studying at the University of Development Alternative. Our targeted stakeholders We felt these spaces and inclusion for the differently abled would be the biggest challenge for our foundation and that is what has become a driven factor to start this new initiative to create a  space for deaf and mute artists for their income  generation along with the collaboration with the Embassies. As the head of Chancery Mr. Tanvir Kabir  from Bangladesh High Commission in Mexico  bought the deaf and mute artists paintings and an exhibition was held in Mexico City as well. The thing is still now the popularization of  buying paintings and it’s customers are limited, so we are focusing on more innovative design according to the demand of the market and apart from paining, we are also selling wool made products, handmade potteries and miniature arts as well through the online page of “Magical Art of Silence”. That is the new initiative when we started our  offline journey from January 13 th onwards at MIB ( Winter Meet Up Exhibit).   Conclusion : We do hope that more national and international NGOs, embassies would come forward to collaborate with us to promote their artwork through diary, desk calendar as well as via web pages and social networking as well.",/post/838,2017-05-22T19:05:19.000Z,2017-05-22T19:05:19.000Z,838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,60 6364,v1.0,,"Magical Art of Silence: An Initiative from BRIDGE Foundation to create a space for the differently abled deaf and mute artists Natasha Israt Kabir, Founder and President of BRIDGE Foundation Background: In 2015 December, we (BRIDGE Foundation) initiated the project “ARTPreneurfor Differently Able” where they do have opportunities to work under the experts through monthly basis workshop and selling their artwork through online as well. In this initiative, “Alliance Françoise” and CounterFoto being our strategic partners supported along with their venues. Case studies: I do believe that they are “Differently Abled” and this terminology brings the positive vibe   and disability is at the end about our mindset and exclusion free society is important through more engagement and employment but still struggling for inclusion. We successfully ended our  year along with participation in” Social Enterprise Day”,29 th December 2015 powered by British Council and facilitated by “ Better Stories” at their official venue. From that venture, we felt more motivated to engage them while creating a space for their income generation. After that, we initiated more activities towards arts and crafts, with a successful art exhibition at the residence of Netherlands Embassy, May 2016. We got more opportunity to interact with the creative people and one of our artists Muhammad Sohel Ahmed got the opportunity to start his career as graphics designer at “Red and Orange” communication ,before him it was another deaf and mute youth who bagged a job in a local advertising media, DOT3PRD, who is Shafayth Hossain Asif (23) working as a graphics designer in advertising media.   Jannatul Ferdous Srity (23) another deaf and mute female artist, who worked as an intern along with a national NGO, Democracywatch. Mashiat Tanin (22) another artist is studying at the University of Development Alternative. Our targeted stakeholders We felt these spaces and inclusion for the differently abled would be the biggest challenge for our foundation and that is what has become a driven factor to start this new initiative to create a  space for deaf and mute artists for their income  generation along with the collaboration with the Embassies. As the head of Chancery Mr. Tanvir Kabir  from Bangladesh High Commission in Mexico  bought the deaf and mute artists paintings and an exhibition was held in Mexico City as well. The thing is still now the popularization of  buying paintings and it’s customers are limited, so we are focusing on more innovative design according to the demand of the market and apart from paining, we are also selling wool made products, handmade potteries and miniature arts as well through the online page of “Magical Art of Silence”. That is the new initiative when we started our  offline journey from January 13 th onwards at MIB ( Winter Meet Up Exhibit).   Conclusion : We do hope that more national and international NGOs, embassies would come forward to collaborate with us to promote their artwork through diary, desk calendar as well as via web pages and social networking as well.",/post/838,2017-05-22T19:05:06.000Z,2017-05-22T19:05:06.000Z,838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,805,464 5048,v1.0,,"What is care for me? On the first thought care is a feeling for me. Something invisible. From the day on we live, we normally experience it - e.g. the care of our parents for us. It´s not just a physical kind of care, but also a mental. We care about each other. We care about each other even when the person is not physically there. Care creates a boundary. A boundary between people. Care is a form of dedication. You need trust and love to care about somebody. Care means including someone instead of excluding. To know that somebody cares about you is really important. It gives you a save feeling. The feeling, that you are not alone. A care-relationship can exist between families, friends, people and their pets or plants, a group of people, but also in a society. There are many care systems in society (like health care, social care...). But shouldn´t also the people in society take care of each other? Actions like helping an older person across the street/ offering a seating in the bus,.. can´t be covered by institutions in society. These small actions can only be covered by people in society. But how to establish the idea of taking care of people in need in society? And how to establish actions of caring in society? In a society of care, care is based on reciprocity. People help other people in need and receive help when the time comes when they need it.  Care is based on trust. But how to trust a stranger? For the stranger you are a stranger, too. Trust can only be developed by getting in touch with each other, by getting to know each other.",/post/668,2017-05-22T19:03:00.000Z,2017-05-22T19:03:00.000Z,668,3323,AnnotatorStore::TextAnnotation,,,,,,,,,635,141 8858,v1.0,,How to create a situation where people are motivated and have fun to participate?,/post/669,2017-05-22T19:02:23.000Z,2017-05-22T19:02:23.000Z,669,3323,AnnotatorStore::TextAnnotation,,,,,,,,,636,1175 4561,v1.0,,How to create a situation where people are motivated and have fun to participate?,/post/669,2017-05-22T19:02:16.000Z,2017-05-22T19:02:16.000Z,669,3323,AnnotatorStore::TextAnnotation,,,,,,,,,636,18 7221,v1.0,,How to empower people to have a better understanding for each other through meeting on an eye level?,/post/669,2017-05-22T19:01:45.000Z,2017-05-22T19:01:45.000Z,669,3323,AnnotatorStore::TextAnnotation,,,,,,,,,636,782 8149,v1.0,,Looking forward to seeing details of the second generation. If I talk to potential investers I will direct to your site. If there was some blog activity it would be reassuring for investers. Real-life examples of the product being used for diagnosis would also be a plus.,/post/8871,2017-05-22T19:00:56.000Z,2017-05-22T19:00:56.000Z,8871,3323,AnnotatorStore::TextAnnotation,,,,,,,,,729,1035 9503,v1.0,,"I'm curious what is an actionable proposal from the group and how it is being received..? Going straight into policy making seems like a titanic work, i'd be interested in how food waste is being approached at the policy level, if at all? This seems like a topic many people care about and which is already seeing promising small scale solutions, particularly in Germany.. with Foodsharing.de, Yunity, community gardens, pop up fridges and many others.",/post/9353,2017-05-22T18:59:59.000Z,2017-05-22T18:59:59.000Z,9353,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,1325 7484,v1.0,,"I'm curious what is an actionable proposal from the group and how it is being received..? Going straight into policy making seems like a titanic work, i'd be interested in how food waste is being approached at the policy level, if at all? This seems like a topic many people care about and which is already seeing promising small scale solutions, particularly in Germany.. with Foodsharing.de, Yunity, community gardens, pop up fridges and many others.",/post/9353,2017-05-22T18:59:49.000Z,2017-05-22T18:59:49.000Z,9353,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,860 10823,v1.0,,"On a superficial level, it may seem like the degrowth movement is all about economics and has little to do with care. Yet the vicious circle of increasing production and consumption that we call economic growth is quite clearly making a lot of people unhappy and sick. Beyond certain thresholds, more growth does not necessarily equal a better quality of life. Eliminating the external and internal pressures for senseless growth would allow us to reconsider human potential. Reducing working hours for example can lead to more time for exchange and support between people and new concepts for more societal participation. A post-growth economy is based on sustainable activity within planetary boundaries and a more healthy future!",/post/775,2017-05-22T18:59:37.000Z,2017-05-22T18:59:37.000Z,775,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,1648 9547,v1.0,,"On a superficial level, it may seem like the degrowth movement is all about economics and has little to do with care. Yet the vicious circle of increasing production and consumption that we call economic growth is quite clearly making a lot of people unhappy and sick. Beyond certain thresholds, more growth does not necessarily equal a better quality of life. Eliminating the external and internal pressures for senseless growth would allow us to reconsider human potential. Reducing working hours for example can lead to more time for exchange and support between people and new concepts for more societal participation. A post-growth economy is based on sustainable activity within planetary boundaries and a more healthy future!",/post/775,2017-05-22T18:59:25.000Z,2017-05-22T18:59:25.000Z,775,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,1340 9502,v1.0,,"The platform is based on a network called “Zivile Enquete Wachstum, Wohlstand Lebensqualität” (Civil Enquete Growth, Prosperity, Life Quality) that extends from the Degrowth-Conference 2014 in Leipzig. The network meets on a quarterly basis and includes representatives of a broad variety of civil society organizations and scientific institutions concerned with social or environmental issues. The intention is to raise awareness on post-growth-ideas, to facilitate an exchange between different levels and fields, and to create potential synergies. For instance, NGOs often lack a scientific or theoretical backbone for their work, while theoreticians often miss the benefit of practical experience. The sciences in turn lack the ability to communicate their findings to the public at large. The network also works with political foundations and unions, yet the work transcends party lines. Together they generate concrete suggestions for policies that look toward the notion of a post-growth society and they work on storytelling to communicate these proposals to a broader public.",/post/775,2017-05-22T18:59:18.000Z,2017-05-22T18:59:18.000Z,775,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,1325 7948,v1.0,,"The platform is based on a network called “Zivile Enquete Wachstum, Wohlstand Lebensqualität” (Civil Enquete Growth, Prosperity, Life Quality) that extends from the Degrowth-Conference 2014 in Leipzig. The network meets on a quarterly basis and includes representatives of a broad variety of civil society organizations and scientific institutions concerned with social or environmental issues. The intention is to raise awareness on post-growth-ideas, to facilitate an exchange between different levels and fields, and to create potential synergies. For instance, NGOs often lack a scientific or theoretical backbone for their work, while theoreticians often miss the benefit of practical experience. The sciences in turn lack the ability to communicate their findings to the public at large. The network also works with political foundations and unions, yet the work transcends party lines. Together they generate concrete suggestions for policies that look toward the notion of a post-growth society and they work on storytelling to communicate these proposals to a broader public.",/post/775,2017-05-22T18:59:04.000Z,2017-05-22T18:59:04.000Z,775,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,981 9230,v1.0,,"The platform is based on a network called “Zivile Enquete Wachstum, Wohlstand Lebensqualität” (Civil Enquete Growth, Prosperity, Life Quality) that extends from the Degrowth-Conference 2014 in Leipzig. The network meets on a quarterly basis and includes representatives of a broad variety of civil society organizations and scientific institutions concerned with social or environmental issues. The intention is to raise awareness on post-growth-ideas, to facilitate an exchange between different levels and fields, and to create potential synergies. For instance, NGOs often lack a scientific or theoretical backbone for their work, while theoreticians often miss the benefit of practical experience. The sciences in turn lack the ability to communicate their findings to the public at large. The network also works with political foundations and unions, yet the work transcends party lines. Together they generate concrete suggestions for policies that look toward the notion of a post-growth society and they work on storytelling to communicate these proposals to a broader public.",/post/775,2017-05-22T18:58:48.000Z,2017-05-22T18:58:48.000Z,775,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,1270 5489,v1.0,,"The seemingly unstoppable drive for ever-increasing economic growth is doing irreparable damage to the planet, to flora and fauna, and to human wellbeing. Fokus Wachstumswende is a project that offers a civil society platform connecting various civil society organizations and scientific institutions that are looking into alternatives to an economic model that is dependent upon constant growth, and thus the depletion of the environment and the exhaustion of human resources.",/post/775,2017-05-22T18:58:20.000Z,2017-05-22T18:58:20.000Z,775,3323,AnnotatorStore::TextAnnotation,,,,,,,,,742,318 7759,v1.0,,"The call itself is based (it has a record) on the physicality (fisicità) of the object, as it was a result of the main experience of WeMake with opencare, given that all services needed new design and that service and hardware may reach a ratio definitely in favour of the services (service 90%; hardware 10%).",/post/574,2017-05-22T18:54:52.000Z,2017-05-22T18:54:52.000Z,574,3323,AnnotatorStore::TextAnnotation,,,,,,,,,541,927 10338,v1.0,,"The call itself is based (it has a record) on the physicality (fisicità) of the object, as it was a result of the main experience of WeMake with opencare, given that all services needed new design and that service and hardware may reach a ratio definitely in favour of the services (service 90%; hardware 10%)",/post/574,2017-05-22T18:54:43.000Z,2017-05-22T18:54:43.000Z,574,3323,AnnotatorStore::TextAnnotation,,,,,,,,,541,1521 6403,v1.0,,if such an object is loaded by local care is opencare”.,/post/574,2017-05-22T18:53:56.000Z,2017-05-22T18:53:56.000Z,574,3323,AnnotatorStore::TextAnnotation,,,,,,,,,541,473 10005,v1.0,,"""what is opencare? What does fall under this category?""",/post/574,2017-05-22T18:53:34.000Z,2017-05-22T18:53:34.000Z,574,3323,AnnotatorStore::TextAnnotation,,,,,,,,,541,1445 5511,v1.0,,"Interesting way of phrasing it, ""social hiatus"". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood? For me and my colleagues in Edgeryders, being new to a city like Brussels (we live here but we are all expatriates) definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted and feel free to comment there or here.. do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?",/post/7784,2017-05-22T18:52:39.000Z,2017-05-22T18:52:39.000Z,7784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,323 8355,v1.0,,"Interesting way of phrasing it, ""social hiatus"". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood? For me and my colleagues in Edgeryders, being new to a city like Brussels (we live here but we are all expatriates) definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted and feel free to comment there or here.. do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?",/post/7784,2017-05-22T18:52:01.000Z,2017-05-22T18:52:01.000Z,7784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,1093 8932,v1.0,,"Interesting way of phrasing it, ""social hiatus"". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood? For me and my colleagues in Edgeryders, being new to a city like Brussels (we live here but we are all expatriates) definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted and feel free to comment there or here.. do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?",/post/7784,2017-05-22T18:51:54.000Z,2017-05-22T18:51:54.000Z,7784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,1197 6126,v1.0,,"Day 2: Decision to open up the focus, in order not to restrain to only the “venue” idea. Discussion on initiatives of social cohesion and networking we were aware of. After this, come back to the first idea, and refinement: not just a place for exchanging ideas, life experiences and knowledge, but also a relaxing , informal and cozy working space.",/post/834,2017-05-22T18:51:30.000Z,2017-05-22T18:51:30.000Z,834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,432 10424,v1.0,,"Highlight: the strong necessity for the concept to bring high utility to all the stakeholders involved (students, Bovisa dwellers, local workers/artisans).",/post/834,2017-05-22T18:51:13.000Z,2017-05-22T18:51:13.000Z,834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,1540 9425,v1.0,,"gathering place and knowledge sharing. Highlight: the strong necessity for the concept to bring high utility to all the stakeholders involved (students, Bovisa dwellers, local workers/artisans).",/post/834,2017-05-22T18:51:03.000Z,2017-05-22T18:51:03.000Z,834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,1308 7440,v1.0,,"food, a gathering place and knowledge sharing. Highlight: the strong necessity for the concept to bring high utility to all the stakeholders involved (students, Bovisa dwellers, local workers/artisans).",/post/834,2017-05-22T18:50:59.000Z,2017-05-22T18:50:59.000Z,834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,852 8931,v1.0,,"Day 1: Reflections on why the Bovisa neighborhood is living a social hiatus with the Politecnico campus, and the reasons behind the overall unpleasant feeling you live in the area. Many ideas, focusing on three themes: food, a gathering place and knowledge sharing. Highlight: the strong necessity for the concept to bring high utility to all the stakeholders involved (students, Bovisa dwellers, local workers/artisans).   Day 2: Decision to open up the focus, in order not to restrain to only the “venue” idea. Discussion on initiatives of social cohesion and networking we were aware of. After this, come back to the first idea, and refinement: not just a place for exchanging ideas, life experiences and knowledge, but also a relaxing , informal and cozy working space. Moment of stop and ideas recollection after the review with the professors: need of getting the focus back and to separate the working and the mere “socializing” side. Choice of a place that could be a reference for the neighborhood, opened longer than existing shops (maybe 24 hours), giving employment to locals, and access to a multifunctional working space for students. Possibility of eating, drinking, chatting, finding printers, tools and various working materials.",/post/834,2017-05-22T18:50:52.000Z,2017-05-22T18:50:52.000Z,834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,801,1197 9670,v1.0,,"A meeting with Rune and other collaborators turned in a interesting discussion about including patients in the process of manufacturing hands, or prothesis to grab forks and spoons to make people who miss some fingers, the hand or an arm, autonomous with eating. There are so many different applications and by 3D print it seems a viable way to save costs and have a just in time do it yourself scalable production of whatever the patient needs.",/post/839,2017-05-22T18:50:19.000Z,2017-05-22T18:50:19.000Z,839,3323,AnnotatorStore::TextAnnotation,,,,,,,,,806,1378 8294,v1.0,,"Of course there are many issues about copyright, legal implications, safety, patenting and certification. What is sure is the interest not only at WeMake and other fab labs, but from the bigger community of innovators taking action inside opencare framework.",/post/839,2017-05-22T18:50:12.000Z,2017-05-22T18:50:12.000Z,839,3323,AnnotatorStore::TextAnnotation,,,,,,,,,806,1074 8049,v1.0,,"Of course there are many issues about copyright, legal implications, safety, patenting and certification. What is sure is the interest not only at WeMake and other fab labs, but from the bigger community of innovators taking action inside opencare framework.",/post/839,2017-05-22T18:50:02.000Z,2017-05-22T18:50:02.000Z,839,3323,AnnotatorStore::TextAnnotation,,,,,,,,,806,1017 4507,v1.0,,"A new issue I could deal with, during these last weeks, has been the additive manufacturing (known by the most of us as 3D print). Part of the work at WeMake is done thanks to the 3d printers, machines that materialize objects from digital projects and templates. There are different types of 3D printers according to the type of material, process and size of manufacturing. The additive manufacturing is one of the most commons; the material i've seen so far is a kind of plastic wire warmed and turned into layers added on a base on which in few hours any object can take shape. There are prototypes and test objects all over the scaffolds and tables. After a while you get used to such unusual presence and start to think of materializing by print whatever. Really. In the past week Costantino and I went to Fondazione Bassetti in Milan to listen to Professor Jos Malda from Utrecht University about 3D printing in the biomedica sector. Moreover, I could discuss with some of the makers about possibile uses of printing cells and what are the scenarios about it. We talked also about the possibility to print food. When it comes to 3D printing everybody is open to discussion here. A meeting with Rune and other collaborators turned in a interesting discussion about including patients in the process of manufacturing hands, or prothesis to grab forks and spoons to make people who miss some fingers, the hand or an arm, autonomous with eating. There are so many different applications and by 3D print it seems a viable way to save costs and have a just in time do it yourself scalable production of whatever the patient needs. Of course there are many issues about copyright, legal implications, safety, patenting and certification. What is sure is the interest not only at WeMake and other fab labs, but from the bigger community of innovators taking action inside opencare framework.",/post/839,2017-05-22T18:49:29.000Z,2017-05-22T18:49:29.000Z,839,3323,AnnotatorStore::TextAnnotation,,,,,,,,,806,6 10004,v1.0,,So how do you build it if you live in societies where people's material needs are mostly satisfied?,/post/33793,2017-05-22T18:49:01.000Z,2017-05-22T18:49:01.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,1445 5541,v1.0,,"They also did things like ran communal bakeries instead of having individual ovens. I would say these are examples of cultures of collaboration born out of material necessity. This has been consistent with my own experience around how collaboration happens. It doesn't happen without a compelling reason... The enspiral crowd is running an interesting experiment. It seems to work within one context where people have aligned interests and a compelling driver of collaboration (economic activity), possibly other things too?",/post/33793,2017-05-22T18:48:53.000Z,2017-05-22T18:48:53.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,327 5536,v1.0,,"They also did things like ran communal bakeries instead of having individual ovens. I would say these are examples of cultures of collaboration born out of material necessity. This has been consistent with my own experience around how collaboration happens. It doesn't happen without a compelling reason... The enspiral crowd is running an interesting experiment. It seems to work within one context where people have aligned interests and a compelling driver of collaboration (economic activity), possibly other things too?",/post/33793,2017-05-22T18:48:24.000Z,2017-05-22T18:48:24.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,326 5570,v1.0,,"When we were in Matera with unMon, a local pharmacist held a lecture about the old system of community provided healthcare. And why it disappeared with modernity. According to him it was basically held together by the need to manage an important resource- water. In Matera there is a huge man-made underground reservoir of water, and a system for accessing it through wells. Each well is situated in a courtyard shared by a number of individual family houses. They collectively manage their shared well and according to him this was the key reason as to why there was such a strong sense of neighbourhood and mutual care amongst residents. Because of the day to day interaction and mutual dependence on one another to responsibly manage the shared resource. When the state moved people into modern dwelling (in the 80's?) then they had running water etc. No need for daily interaction and no dependency - the system broke.",/post/33793,2017-05-22T18:48:11.000Z,2017-05-22T18:48:11.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,336 10077,v1.0,,"provided healthcare. And why it disappeared with modernity. According to him it was basically held together by the need to manage an important resource- water. In Matera there is a huge man-made underground reservoir of water, and a system for accessing it through wells. Each well is situated in a courtyard shared by a number of individual family houses. They collectively manage their shared well and according to him this was the key reason as to why there was such a strong sense of neighbourhood and mutual care amongst residents. Because of the day to day interaction and mutual dependence on one another to responsibly manage the shared resource. When the state moved people into modern dwelling (in the 80's?) then they had running water etc. No need for daily interaction and no dependency - the system broke.",/post/33793,2017-05-22T18:48:04.000Z,2017-05-22T18:48:04.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,1450 9371,v1.0,,"Nous l’entendons partout : nous sommes dans une période transitionnelle, qu’elle soit positive (émergence d’économie collaborative, renouveau des modèles low-tech, création d’outils numériques de gestion décentralisée, …) ou négative (émergence d’organisations extrémistes, renouveau des partis populiste-fasciste, création de tactiques numérique de propagande,…) nous voyons que l’importance de se retrouver sous un arbre de valeur est d’une grande importance en ce moment. Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques.",/post/33747,2017-05-22T18:47:50.000Z,2017-05-22T18:47:50.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,1297 9370,v1.0,,"I read the enspiral post, it was interesting-  thanks for sharing! You're right, it's not the tools but people. There's",/post/33793,2017-05-22T18:47:34.000Z,2017-05-22T18:47:34.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,1297 7202,v1.0,,"I read the enspiral post, it was interesting-  thanks for sharing! You're right, it's not the tools but people. There's some valuable advice in there, maybe we can try some of them out here. But this term, emotional labour, it feels like",/post/33793,2017-05-22T18:47:21.000Z,2017-05-22T18:47:21.000Z,33793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,780 7201,v1.0,,"Je pense ne pas être le seul, en disant qu’une fois tous les x-temps dans le milieu socioculturel, événementiel ou de l’entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon énergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n’arrête pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c’est moi ? Une logique peu constructive mais tellement facile qu’elle nous éloigne du vrai problème : pourquoi n’apprenons nous pas la culture de la collaboration à partir du plus jeune âge ? Nous l’entendons partout : nous sommes dans une période transitionnelle, qu’elle soit positive (émergence d’économie collaborative, renouveau des modèles low-tech, création d’outils numériques de gestion décentralisée, …) ou négative (émergence d’organisations extrémistes, renouveau des partis populiste-fasciste, création de tactiques numérique de propagande,…) nous voyons que l’importance de se retrouver sous un arbre de valeur est d’une grande importance en ce moment. Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques. La Culture de la collaboration Comme n’importe quelle autre idée sociétale, elle devient omniprésente quand elle est vue comme une partie de notre ‘culture’. Mais aucune idée n’a fait partie de la société sans avoir été confectionnée d’une manière ou d’autre. Un premier pas pour aller vers cette ‘Culture de la collaboration’ est de voir l’information comme un bateau qui doit arriver à bon port. Ca ne sert à rien de tenir l’information pour soi, partage la avec la bonne personne, passe les bonnes idées comme si c’était un plateau de charcuterie à une soirée raclette. Chaque personne prendra bien soin de choisir l’info qui lui convient le plus. Car une information qui véhicule librement aide à améliorer le deuxième point : Ne perdez plus d’énergie à réinventer la roue mais essayer de contribuer avec des projets déjà existant. C’est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d’autres informations qu’on apprend beaucoup. Rester dans son enclos n’aide personne, même si le réflexe protectionniste se comprend : vous voulez contrôler votre idée contre un opportunisme qui pourrait se cacher derrière chaque recoin. Mais si nous acceptions, comme c’est déjà le cas dans les recherches universitaires, d’avoir un système de mentions générales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme. Recréer la membrane de confiance Car voilà, le grand problème qui se cache derrière cette peur innécessaire de la protection d’information: on à perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se méfier de l’autre. Car comme disait ce bon vieux Sartre: L’enfer c’est les autres. Mais si nous relisons la théorie du Darwinisme social nous voyons que c’est notre aptitude à collaborer qui à fait que nous avons survécu aux animaux dix fois plus grand que nous, aux périodes glaciaire et aux famines. Pour recréer cette membrane de confiance nous ne devons pas croire dans ‘les grand mouvements’, car comme les grandes histoires, elles sont mortes avant d’entrer dans la période post Moderne. Soyons comme Enspiral, un réseaux de petit groupes. Créons des petits faits, pour réapprendre à se faire confiance. On ne doit pas décrocher la lune, mais simplement savoir aider son voisin. La petite pierre que j’apporte à cet édifice est de prendre le café chaque matin avec quelqu’un d’autre, d’écouter son histoire et de voir ou je peut faire du lien. L’ego doit donner place à l’idée Dans notre société contemporaine nous donnons encore et toujours trop de place à l’ego, qui l’emporte souvent en discussion de l’idée. Mais voilà si nous voulons vraiment créer une culture de la collaboration nous devons mettre en place des freins à l’ego. De pouvoir être fier de l’ajout qu’on a donné à une idée. Ne plus voir la collaboration comme une simple économie du (mauvais) couple, ou chacun donne et qu’on fait les comptes quand ça ne va pas, mais se focaliser sur l’idée et les valeurs véhiculées en commun. Pour ça la collaboration doit se faire par les faits et non par les mots. Trop souvent la réunion précède la participation, mais c’est en faisant qu’on apprend plus de la personne, que chaque personne est mise à nue. Une expression inventée par Nicolas de OpenFab trouve ici parfait écho: nous devons créer l’atome de FAIRE. Un prochain pas pourrait être de redonner dans notre éducation collective une vraie place à la collaboration. Pas de travail- en groupe forcé qui mal organisé nous prouve que l’enfer c’est vraiment les autres, mais une culture de la collaboration ancré dans le système d’éducation général. Si vous avez des ressources la-dessus je suis preneur. Howard Rheingold | Who Said Collaboration Wasn’t Sustainable Jason Louv |The Next Buddha Will Be a Collective Daniel Christian Wahl | Collaboration and empathy as evolutionary success stories Enspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals",/post/33747,2017-05-22T18:47:11.000Z,2017-05-22T18:47:11.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,780 5622,v1.0,,"Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques.",/post/33747,2017-05-22T18:45:56.000Z,2017-05-22T18:45:56.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,354 7216,v1.0,,"Je pense ne pas être le seul, en disant qu’une fois tous les x-temps dans le milieu socioculturel, événementiel ou de l’entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon énergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n’arrête pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c’est moi ? Une logique peu constructive mais tellement facile qu’elle nous éloigne du vrai problème : pourquoi n’apprenons nous pas la culture de la collaboration à partir du plus jeune âge ? Nous l’entendons partout : nous sommes dans une période transitionnelle, qu’elle soit positive (émergence d’économie collaborative, renouveau des modèles low-tech, création d’outils numériques de gestion décentralisée, …) ou négative (émergence d’organisations extrémistes, renouveau des partis populiste-fasciste, création de tactiques numérique de propagande,…) nous voyons que l’importance de se retrouver sous un arbre de valeur est d’une grande importance en ce moment. Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques. La Culture de la collaboration Comme n’importe quelle autre idée sociétale, elle devient omniprésente quand elle est vue comme une partie de notre ‘culture’. Mais aucune idée n’a fait partie de la société sans avoir été confectionnée d’une manière ou d’autre. Un premier pas pour aller vers cette ‘Culture de la collaboration’ est de voir l’information comme un bateau qui doit arriver à bon port. Ca ne sert à rien de tenir l’information pour soi, partage la avec la bonne personne, passe les bonnes idées comme si c’était un plateau de charcuterie à une soirée raclette. Chaque personne prendra bien soin de choisir l’info qui lui convient le plus. Car une information qui véhicule librement aide à améliorer le deuxième point : Ne perdez plus d’énergie à réinventer la roue mais essayer de contribuer avec des projets déjà existant. C’est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d’autres informations qu’on apprend beaucoup. Rester dans son enclos n’aide personne, même si le réflexe protectionniste se comprend : vous voulez contrôler votre idée contre un opportunisme qui pourrait se cacher derrière chaque recoin. Mais si nous acceptions, comme c’est déjà le cas dans les recherches universitaires, d’avoir un système de mentions générales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme. Recréer la membrane de confiance Car voilà, le grand problème qui se cache derrière cette peur innécessaire de la protection d’information: on à perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se méfier de l’autre. Car comme disait ce bon vieux Sartre: L’enfer c’est les autres. Mais si nous relisons la théorie du Darwinisme social nous voyons que c’est notre aptitude à collaborer qui à fait que nous avons survécu aux animaux dix fois plus grand que nous, aux périodes glaciaire et aux famines. Pour recréer cette membrane de confiance nous ne devons pas croire dans ‘les grand mouvements’, car comme les grandes histoires, elles sont mortes avant d’entrer dans la période post Moderne. Soyons comme Enspiral, un réseaux de petit groupes. Créons des petits faits, pour réapprendre à se faire confiance. On ne doit pas décrocher la lune, mais simplement savoir aider son voisin. La petite pierre que j’apporte à cet édifice est de prendre le café chaque matin avec quelqu’un d’autre, d’écouter son histoire et de voir ou je peut faire du lien. L’ego doit donner place à l’idée Dans notre société contemporaine nous donnons encore et toujours trop de place à l’ego, qui l’emporte souvent en discussion de l’idée. Mais voilà si nous voulons vraiment créer une culture de la collaboration nous devons mettre en place des freins à l’ego. De pouvoir être fier de l’ajout qu’on a donné à une idée. Ne plus voir la collaboration comme une simple économie du (mauvais) couple, ou chacun donne et qu’on fait les comptes quand ça ne va pas, mais se focaliser sur l’idée et les valeurs véhiculées en commun. Pour ça la collaboration doit se faire par les faits et non par les mots. Trop souvent la réunion précède la participation, mais c’est en faisant qu’on apprend plus de la personne, que chaque personne est mise à nue. Une expression inventée par Nicolas de OpenFab trouve ici parfait écho: nous devons créer l’atome de FAIRE. Un prochain pas pourrait être de redonner dans notre éducation collective une vraie place à la collaboration. Pas de travail- en groupe forcé qui mal organisé nous prouve que l’enfer c’est vraiment les autres, mais une culture de la collaboration ancré dans le système d’éducation général. Si vous avez des ressources la-dessus je suis preneur. Howard Rheingold | Who Said Collaboration Wasn’t Sustainable Jason Louv |The Next Buddha Will Be a Collective Daniel Christian Wahl | Collaboration and empathy as evolutionary success stories Enspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals",/post/33747,2017-05-22T18:44:31.000Z,2017-05-22T18:44:31.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,781 7137,v1.0,,"Je pense ne pas être le seul, en disant qu’une fois tous les x-temps dans le milieu socioculturel, événementiel ou de l’entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon énergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n’arrête pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c’est moi ? Une logique peu constructive mais tellement facile qu’elle nous éloigne du vrai problème : pourquoi n’apprenons nous pas la culture de la collaboration à partir du plus jeune âge ? Nous l’entendons partout : nous sommes dans une période transitionnelle, qu’elle soit positive (émergence d’économie collaborative, renouveau des modèles low-tech, création d’outils numériques de gestion décentralisée, …) ou négative (émergence d’organisations extrémistes, renouveau des partis populiste-fasciste, création de tactiques numérique de propagande,…) nous voyons que l’importance de se retrouver sous un arbre de valeur est d’une grande importance en ce moment. Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques. La Culture de la collaboration Comme n’importe quelle autre idée sociétale, elle devient omniprésente quand elle est vue comme une partie de notre ‘culture’. Mais aucune idée n’a fait partie de la société sans avoir été confectionnée d’une manière ou d’autre. Un premier pas pour aller vers cette ‘Culture de la collaboration’ est de voir l’information comme un bateau qui doit arriver à bon port. Ca ne sert à rien de tenir l’information pour soi, partage la avec la bonne personne, passe les bonnes idées comme si c’était un plateau de charcuterie à une soirée raclette. Chaque personne prendra bien soin de choisir l’info qui lui convient le plus. Car une information qui véhicule librement aide à améliorer le deuxième point : Ne perdez plus d’énergie à réinventer la roue mais essayer de contribuer avec des projets déjà existant. C’est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d’autres informations qu’on apprend beaucoup. Rester dans son enclos n’aide personne, même si le réflexe protectionniste se comprend : vous voulez contrôler votre idée contre un opportunisme qui pourrait se cacher derrière chaque recoin. Mais si nous acceptions, comme c’est déjà le cas dans les recherches universitaires, d’avoir un système de mentions générales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme. Recréer la membrane de confiance Car voilà, le grand problème qui se cache derrière cette peur innécessaire de la protection d’information: on à perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se méfier de l’autre. Car comme disait ce bon vieux Sartre: L’enfer c’est les autres. Mais si nous relisons la théorie du Darwinisme social nous voyons que c’est notre aptitude à collaborer qui à fait que nous avons survécu aux animaux dix fois plus grand que nous, aux périodes glaciaire et aux famines. Pour recréer cette membrane de confiance nous ne devons pas croire dans ‘les grand mouvements’, car comme les grandes histoires, elles sont mortes avant d’entrer dans la période post Moderne. Soyons comme Enspiral, un réseaux de petit groupes. Créons des petits faits, pour réapprendre à se faire confiance. On ne doit pas décrocher la lune, mais simplement savoir aider son voisin. La petite pierre que j’apporte à cet édifice est de prendre le café chaque matin avec quelqu’un d’autre, d’écouter son histoire et de voir ou je peut faire du lien. L’ego doit donner place à l’idée Dans notre société contemporaine nous donnons encore et toujours trop de place à l’ego, qui l’emporte souvent en discussion de l’idée. Mais voilà si nous voulons vraiment créer une culture de la collaboration nous devons mettre en place des freins à l’ego. De pouvoir être fier de l’ajout qu’on a donné à une idée. Ne plus voir la collaboration comme une simple économie du (mauvais) couple, ou chacun donne et qu’on fait les comptes quand ça ne va pas, mais se focaliser sur l’idée et les valeurs véhiculées en commun. Pour ça la collaboration doit se faire par les faits et non par les mots. Trop souvent la réunion précède la participation, mais c’est en faisant qu’on apprend plus de la personne, que chaque personne est mise à nue. Une expression inventée par Nicolas de OpenFab trouve ici parfait écho: nous devons créer l’atome de FAIRE. Un prochain pas pourrait être de redonner dans notre éducation collective une vraie place à la collaboration. Pas de travail- en groupe forcé qui mal organisé nous prouve que l’enfer c’est vraiment les autres, mais une culture de la collaboration ancré dans le système d’éducation général. Si vous avez des ressources la-dessus je suis preneur. Howard Rheingold | Who Said Collaboration Wasn’t Sustainable Jason Louv |The Next Buddha Will Be a Collective Daniel Christian Wahl | Collaboration and empathy as evolutionary success stories Enspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals",/post/33747,2017-05-22T18:44:23.000Z,2017-05-22T18:44:23.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,766 10822,v1.0,,"Je pense ne pas être le seul, en disant qu’une fois tous les x-temps dans le milieu socioculturel, événementiel ou de l’entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon énergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n’arrête pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c’est moi ? Une logique peu constructive mais tellement facile qu’elle nous éloigne du vrai problème : pourquoi n’apprenons nous pas la culture de la collaboration à partir du plus jeune âge ? Nous l’entendons partout : nous sommes dans une période transitionnelle, qu’elle soit positive (émergence d’économie collaborative, renouveau des modèles low-tech, création d’outils numériques de gestion décentralisée, …) ou négative (émergence d’organisations extrémistes, renouveau des partis populiste-fasciste, création de tactiques numérique de propagande,…) nous voyons que l’importance de se retrouver sous un arbre de valeur est d’une grande importance en ce moment. Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques. La Culture de la collaboration Comme n’importe quelle autre idée sociétale, elle devient omniprésente quand elle est vue comme une partie de notre ‘culture’. Mais aucune idée n’a fait partie de la société sans avoir été confectionnée d’une manière ou d’autre. Un premier pas pour aller vers cette ‘Culture de la collaboration’ est de voir l’information comme un bateau qui doit arriver à bon port. Ca ne sert à rien de tenir l’information pour soi, partage la avec la bonne personne, passe les bonnes idées comme si c’était un plateau de charcuterie à une soirée raclette. Chaque personne prendra bien soin de choisir l’info qui lui convient le plus. Car une information qui véhicule librement aide à améliorer le deuxième point : Ne perdez plus d’énergie à réinventer la roue mais essayer de contribuer avec des projets déjà existant. C’est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d’autres informations qu’on apprend beaucoup. Rester dans son enclos n’aide personne, même si le réflexe protectionniste se comprend : vous voulez contrôler votre idée contre un opportunisme qui pourrait se cacher derrière chaque recoin. Mais si nous acceptions, comme c’est déjà le cas dans les recherches universitaires, d’avoir un système de mentions générales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme. Recréer la membrane de confiance Car voilà, le grand problème qui se cache derrière cette peur innécessaire de la protection d’information: on à perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se méfier de l’autre. Car comme disait ce bon vieux Sartre: L’enfer c’est les autres. Mais si nous relisons la théorie du Darwinisme social nous voyons que c’est notre aptitude à collaborer qui à fait que nous avons survécu aux animaux dix fois plus grand que nous, aux périodes glaciaire et aux famines. Pour recréer cette membrane de confiance nous ne devons pas croire dans ‘les grand mouvements’, car comme les grandes histoires, elles sont mortes avant d’entrer dans la période post Moderne. Soyons comme Enspiral, un réseaux de petit groupes. Créons des petits faits, pour réapprendre à se faire confiance. On ne doit pas décrocher la lune, mais simplement savoir aider son voisin. La petite pierre que j’apporte à cet édifice est de prendre le café chaque matin avec quelqu’un d’autre, d’écouter son histoire et de voir ou je peut faire du lien. L’ego doit donner place à l’idée Dans notre société contemporaine nous donnons encore et toujours trop de place à l’ego, qui l’emporte souvent en discussion de l’idée. Mais voilà si nous voulons vraiment créer une culture de la collaboration nous devons mettre en place des freins à l’ego. De pouvoir être fier de l’ajout qu’on a donné à une idée. Ne plus voir la collaboration comme une simple économie du (mauvais) couple, ou chacun donne et qu’on fait les comptes quand ça ne va pas, mais se focaliser sur l’idée et les valeurs véhiculées en commun. Pour ça la collaboration doit se faire par les faits et non par les mots. Trop souvent la réunion précède la participation, mais c’est en faisant qu’on apprend plus de la personne, que chaque personne est mise à nue. Une expression inventée par Nicolas de OpenFab trouve ici parfait écho: nous devons créer l’atome de FAIRE. Un prochain pas pourrait être de redonner dans notre éducation collective une vraie place à la collaboration. Pas de travail- en groupe forcé qui mal organisé nous prouve que l’enfer c’est vraiment les autres, mais une culture de la collaboration ancré dans le système d’éducation général. Si vous avez des ressources la-dessus je suis preneur. Howard Rheingold | Who Said Collaboration Wasn’t Sustainable Jason Louv |The Next Buddha Will Be a Collective Daniel Christian Wahl | Collaboration and empathy as evolutionary success stories Enspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals",/post/33747,2017-05-22T18:44:12.000Z,2017-05-22T18:44:12.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,1648 5535,v1.0,,"Je pense ne pas être le seul, en disant qu’une fois tous les x-temps dans le milieu socioculturel, événementiel ou de l’entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon énergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n’arrête pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c’est moi ? Une logique peu constructive mais tellement facile qu’elle nous éloigne du vrai problème : pourquoi n’apprenons nous pas la culture de la collaboration à partir du plus jeune âge ? Nous l’entendons partout : nous sommes dans une période transitionnelle, qu’elle soit positive (émergence d’économie collaborative, renouveau des modèles low-tech, création d’outils numériques de gestion décentralisée, …) ou négative (émergence d’organisations extrémistes, renouveau des partis populiste-fasciste, création de tactiques numérique de propagande,…) nous voyons que l’importance de se retrouver sous un arbre de valeur est d’une grande importance en ce moment. Les outils sont légions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration décentralisés : Github. Tous ont une armée de fans, mais tous ont le même problème : si il n’y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau décor. C’est comme donner des outils de permaculture à un fermier industriel : si il ne voit pas que les valeurs partagées sont un atout majeur, il restera avec ces méthodes classiques. La Culture de la collaboration Comme n’importe quelle autre idée sociétale, elle devient omniprésente quand elle est vue comme une partie de notre ‘culture’. Mais aucune idée n’a fait partie de la société sans avoir été confectionnée d’une manière ou d’autre. Un premier pas pour aller vers cette ‘Culture de la collaboration’ est de voir l’information comme un bateau qui doit arriver à bon port. Ca ne sert à rien de tenir l’information pour soi, partage la avec la bonne personne, passe les bonnes idées comme si c’était un plateau de charcuterie à une soirée raclette. Chaque personne prendra bien soin de choisir l’info qui lui convient le plus. Car une information qui véhicule librement aide à améliorer le deuxième point : Ne perdez plus d’énergie à réinventer la roue mais essayer de contribuer avec des projets déjà existant. C’est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d’autres informations qu’on apprend beaucoup. Rester dans son enclos n’aide personne, même si le réflexe protectionniste se comprend : vous voulez contrôler votre idée contre un opportunisme qui pourrait se cacher derrière chaque recoin. Mais si nous acceptions, comme c’est déjà le cas dans les recherches universitaires, d’avoir un système de mentions générales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme. Recréer la membrane de confiance Car voilà, le grand problème qui se cache derrière cette peur innécessaire de la protection d’information: on à perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se méfier de l’autre. Car comme disait ce bon vieux Sartre: L’enfer c’est les autres. Mais si nous relisons la théorie du Darwinisme social nous voyons que c’est notre aptitude à collaborer qui à fait que nous avons survécu aux animaux dix fois plus grand que nous, aux périodes glaciaire et aux famines. Pour recréer cette membrane de confiance nous ne devons pas croire dans ‘les grand mouvements’, car comme les grandes histoires, elles sont mortes avant d’entrer dans la période post Moderne. Soyons comme Enspiral, un réseaux de petit groupes. Créons des petits faits, pour réapprendre à se faire confiance. On ne doit pas décrocher la lune, mais simplement savoir aider son voisin. La petite pierre que j’apporte à cet édifice est de prendre le café chaque matin avec quelqu’un d’autre, d’écouter son histoire et de voir ou je peut faire du lien. L’ego doit donner place à l’idée Dans notre société contemporaine nous donnons encore et toujours trop de place à l’ego, qui l’emporte souvent en discussion de l’idée. Mais voilà si nous voulons vraiment créer une culture de la collaboration nous devons mettre en place des freins à l’ego. De pouvoir être fier de l’ajout qu’on a donné à une idée. Ne plus voir la collaboration comme une simple économie du (mauvais) couple, ou chacun donne et qu’on fait les comptes quand ça ne va pas, mais se focaliser sur l’idée et les valeurs véhiculées en commun. Pour ça la collaboration doit se faire par les faits et non par les mots. Trop souvent la réunion précède la participation, mais c’est en faisant qu’on apprend plus de la personne, que chaque personne est mise à nue. Une expression inventée par Nicolas de OpenFab trouve ici parfait écho: nous devons créer l’atome de FAIRE. Un prochain pas pourrait être de redonner dans notre éducation collective une vraie place à la collaboration. Pas de travail- en groupe forcé qui mal organisé nous prouve que l’enfer c’est vraiment les autres, mais une culture de la collaboration ancré dans le système d’éducation général. Si vous avez des ressources la-dessus je suis preneur. Howard Rheingold | Who Said Collaboration Wasn’t Sustainable Jason Louv |The Next Buddha Will Be a Collective Daniel Christian Wahl | Collaboration and empathy as evolutionary success stories Enspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals",/post/33747,2017-05-22T18:44:01.000Z,2017-05-22T18:44:01.000Z,33747,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,326 9322,v1.0,,"Yes i'm well aware that it's from an inner circle that collaboration needs to thrive, that is also why i love my coffee moments with passionated people, listening to their stories is rewarding on itself. I try to be at that moment as much possible in the present, just reactive enough toward that person. Thanks for sharing your thoughts about the subject",/post/33776,2017-05-22T18:43:43.000Z,2017-05-22T18:43:43.000Z,33776,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,1286 7415,v1.0,,"Well collaboration, is a term within it which includes a large field of understanding the term itself. @Yannick we were used to hear the word ""Crowd of sheeps"" which was a very powerfull intrigue to make people become more selfish and viewing from the wrong corner has made them to feel and get separated, so that the word collaboration was mistaken with a conspiracy word ""Crowd of sheeps"". It has nothing similar in this two words and i wuld like to concetrate more on the collaborative ways and methods. The collaboration itself, should begin as an inner movement and will, to enlight you within you and make you spread your aura with other people around you, startin from your home where you live, your school or college, your working place, your company or your weekends house neighbours.  You should concentrate on the connections to every each person neat you, and try to connect them with your inner will and try to transmit the message also with your aura. Start learning new things, start leraning new cultures and characters.  Making compliments and new friendships is the best way, to explore each others mind and ideas, collecting mutual interests and creating fellowships and spreading the collaboration breath. I am more spiritually bounded to this idea, because I am also a very social person and the topic was bolded for me as i readed it, and I hope you will endure the way.  Wish you all the best...",/post/33761,2017-05-22T18:43:23.000Z,2017-05-22T18:43:23.000Z,33761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,840 5534,v1.0,,"Well collaboration, is a term within it which includes a large field of understanding the term itself. @Yannick we were used to hear the word ""Crowd of sheeps"" which was a very powerfull intrigue to make people become more selfish and viewing from the wrong corner has made them to feel and get separated, so that the word collaboration was mistaken with a conspiracy word ""Crowd of sheeps"". It has nothing similar in this two words and i wuld like to concetrate more on the collaborative ways and methods. The collaboration itself, should begin as an inner movement and will, to enlight you within you and make you spread your aura with other people around you, startin from your home where you live, your school or college, your working place, your company or your weekends house neighbours.  You should concentrate on the connections to every each person neat you, and try to connect them with your inner will and try to transmit the message also with your aura. Start learning new things, start leraning new cultures and characters.  Making compliments and new friendships is the best way, to explore each others mind and ideas, collecting mutual interests and creating fellowships and spreading the collaboration breath. I am more spiritually bounded to this idea, because I am also a very social person and the topic was bolded for me as i readed it, and I hope you will endure the way.  Wish you all the best...",/post/33761,2017-05-22T18:43:14.000Z,2017-05-22T18:43:14.000Z,33761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6596,326 6004,v1.0,,"This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a triage system that helps participants understand the complete picture of a person’s health first through a longform interview, followed by periodic ‘check-ins’ or urgent calls with the committed group.  case ‘health practitioners’ are understood as those who share the responsibility of one another’s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a ‘health card’ is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation, and solidarity.",/post/826,2017-05-22T18:42:27.000Z,2017-05-22T18:42:27.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,406 10355,v1.0,,"This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a triage system that helps participants understand the complete picture of a person’s health first through a longform interview, followed by periodic ‘check-ins’ or urgent calls with the committed group.  case ‘health practitioners’ are understood as those who share the responsibility of one another’s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a ‘health card’ is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation, and solidarity.",/post/826,2017-05-22T18:42:22.000Z,2017-05-22T18:42:22.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,1531 4546,v1.0,,"This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a triage system that helps participants understand the complete picture of a person’s health first through a longform interview, followed by periodic ‘check-ins’ or urgent calls with the committed group.  case ‘health practitioners’ are understood as those who share the responsibility of one another’s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a ‘health card’ is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation, and solidarity.",/post/826,2017-05-22T18:41:59.000Z,2017-05-22T18:41:59.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,15 10061,v1.0,,"Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being.  PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support.",/post/826,2017-05-22T18:41:41.000Z,2017-05-22T18:41:41.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,1448 10595,v1.0,,"Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being.  PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support.",/post/826,2017-05-22T18:41:30.000Z,2017-05-22T18:41:30.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,1590 4520,v1.0,,"Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being.  PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support. This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a triage system that helps participants understand the complete picture of a person’s health first through a longform interview, followed by periodic ‘check-ins’ or urgent calls with the committed group.  case ‘health practitioners’ are understood as those who share the responsibility of one another’s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a ‘health card’ is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation, and solidarity.",/post/826,2017-05-22T18:41:13.000Z,2017-05-22T18:41:13.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,10 9554,v1.0,,"Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being.  PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support. This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a triage system that helps participants understand the complete picture of a person’s health first through a longform interview, followed by periodic ‘check-ins’ or urgent calls with the committed group.  case ‘health practitioners’ are understood as those who share the responsibility of one another’s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a ‘health card’ is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation, and solidarity.",/post/826,2017-05-22T18:40:58.000Z,2017-05-22T18:40:58.000Z,826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,793,1342 4912,v1.0,,"It's a grand idea and project.  Your writeup says it started in 2012.  How has it been going since then?  Has it got those men to talking with each other more?  I am sure it does, even if it is about the beermaking.  That by itself would show it as a success since those guys aren't so alone anymore..",/post/10198,2017-05-22T18:37:09.000Z,2017-05-22T18:37:09.000Z,10198,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,118 8523,v1.0,,"It's a grand idea and project.  Your writeup says it started in 2012.  How has it been going since then?  Has it got those men to talking with each other more?  I am sure it does, even if it is about the beermaking.  That by itself would show it as a success since those guys aren't so alone anymore..",/post/10198,2017-05-22T18:37:02.000Z,2017-05-22T18:37:02.000Z,10198,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,1138 8354,v1.0,,"It's a grand idea and project.  Your writeup says it started in 2012.  How has it been going since then?  Has it got those men to talking with each other more?  I am sure it does, even if it is about the beermaking.  That by itself would show it as a success since those guys aren't so alone anymore..",/post/10198,2017-05-22T18:36:57.000Z,2017-05-22T18:36:57.000Z,10198,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,1093 5838,v1.0,,"WHAT? A social enterprise beer brewing club. WHY? St. James’ Hospital, Dublin, commissioned a service design project in search of  a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.  The hospital is based in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City's walls – lands united with the city, but still keeping their own jurisdiction (hence ""liberties""). The area's history is still very relevant to the health of its residents. Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties is a city neighbourhood of opportunities and innovation, but its history - positive and negative - pervades. Although having undergone much urban regeneration as well as gentrification, the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing in the Liberties today.  On researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals. The project takes its inspiration from the highly successful Men’s Sheds mental health initiative whose motto is, “men don’t talk face to face, they talk shoulder to shoulder.” HOW? The brewing club for men over fifty in the locality – where they create a low percentage beer brewed by locals, for locals – harnesses existing local skill sets of the hundreds of Guinness factory retirees. The brewing club, ""Sláinte"", takes it name from the Irish word for ""cheers"", also meaning ""health"". The aim of the club is to encourage more responsible drinking through appreciation of the brewing process as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin’s Active Age Conference 2012. With Ireland's craft beer market having hit €59 million in 2016 (up form €40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club ""Sláinte"" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health. USER JOURNEY",/post/841,2017-05-22T18:36:34.000Z,2017-05-22T18:36:34.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,377 4911,v1.0,,"WHAT? A social enterprise beer brewing club. WHY? St. James’ Hospital, Dublin, commissioned a service design project in search of  a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.  The hospital is based in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City's walls – lands united with the city, but still keeping their own jurisdiction (hence ""liberties""). The area's history is still very relevant to the health of its residents. Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties is a city neighbourhood of opportunities and innovation, but its history - positive and negative - pervades. Although having undergone much urban regeneration as well as gentrification, the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing in the Liberties today.  On researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals. The project takes its inspiration from the highly successful Men’s Sheds mental health initiative whose motto is, “men don’t talk face to face, they talk shoulder to shoulder.” HOW? The brewing club for men over fifty in the locality – where they create a low percentage beer brewed by locals, for locals – harnesses existing local skill sets of the hundreds of Guinness factory retirees. The brewing club, ""Sláinte"", takes it name from the Irish word for ""cheers"", also meaning ""health"". The aim of the club is to encourage more responsible drinking through appreciation of the brewing process as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin’s Active Age Conference 2012. With Ireland's craft beer market having hit €59 million in 2016 (up form €40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club ""Sláinte"" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health. USER JOURNEY",/post/841,2017-05-22T18:36:19.000Z,2017-05-22T18:36:19.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,118 7824,v1.0,,"Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties is a city neighbourhood of opportunities and innovation, but its history - positive and negative - pervades. Although having undergone much urban regeneration as well as gentrification, the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing in the Liberties today.",/post/841,2017-05-22T18:36:02.000Z,2017-05-22T18:36:02.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,953 11317,v1.0,,"Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties is a city neighbourhood of opportunities and innovation, but its history - positive and negative - pervades. Although having undergone much urban regeneration as well as gentrification, the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing in the Liberties today.",/post/841,2017-05-22T18:35:50.000Z,2017-05-22T18:35:50.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,1804 9578,v1.0,,". The aim is to focus on reducing the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.",/post/841,2017-05-22T18:35:44.000Z,2017-05-22T18:35:44.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,1348 4605,v1.0,,"he aim is to focus on reducing the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.",/post/841,2017-05-22T18:35:37.000Z,2017-05-22T18:35:37.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,28 8522,v1.0,,"WHAT? A social enterprise beer brewing club. WHY? St. James’ Hospital, Dublin, commissioned a service design project in search of  a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.  The hospital is based in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City's walls – lands united with the city, but still keeping their own jurisdiction (hence ""liberties""). The area's history is still very relevant to the health of its residents. Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties is a city neighbourhood of opportunities and innovation, but its history - positive and negative - pervades. Although having undergone much urban regeneration as well as gentrification, the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing in the Liberties today.  On researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals. The project takes its inspiration from the highly successful Men’s Sheds mental health initiative whose motto is, “men don’t talk face to face, they talk shoulder to shoulder.” HOW? The brewing club for men over fifty in the locality – where they create a low percentage beer brewed by locals, for locals – harnesses existing local skill sets of the hundreds of Guinness factory retirees. The brewing club, ""Sláinte"", takes it name from the Irish word for ""cheers"", also meaning ""health"". The aim of the club is to encourage more responsible drinking through appreciation of the brewing process as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin’s Active Age Conference 2012. With Ireland's craft beer market having hit €59 million in 2016 (up form €40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club ""Sláinte"" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health. USER JOURNEY",/post/841,2017-05-22T18:35:20.000Z,2017-05-22T18:35:20.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,1138 10539,v1.0,,"WHAT? A social enterprise beer brewing club. WHY? St. James’ Hospital, Dublin, commissioned a service design project in search of  a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.  The hospital is based in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City's walls – lands united with the city, but still keeping their own jurisdiction (hence ""liberties""). The area's history is still very relevant to the health of its residents. Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties is a city neighbourhood of opportunities and innovation, but its history - positive and negative - pervades. Although having undergone much urban regeneration as well as gentrification, the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing in the Liberties today.  On researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals. The project takes its inspiration from the highly successful Men’s Sheds mental health initiative whose motto is, “men don’t talk face to face, they talk shoulder to shoulder.” HOW? The brewing club for men over fifty in the locality – where they create a low percentage beer brewed by locals, for locals – harnesses existing local skill sets of the hundreds of Guinness factory retirees. The brewing club, ""Sláinte"", takes it name from the Irish word for ""cheers"", also meaning ""health"". The aim of the club is to encourage more responsible drinking through appreciation of the brewing process as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin’s Active Age Conference 2012. With Ireland's craft beer market having hit €59 million in 2016 (up form €40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club ""Sláinte"" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health.",/post/841,2017-05-22T18:35:03.000Z,2017-05-22T18:35:03.000Z,841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,808,1572 4533,v1.0,,The viable solution seems to stay focused on the issue of accessibility in the milanese context for wheelchairs. It is something on which all the participants agree.,/post/33749,2017-05-22T18:34:19.000Z,2017-05-22T18:34:19.000Z,33749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6598,12 7930,v1.0,,"There is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings.",/post/33749,2017-05-22T18:34:03.000Z,2017-05-22T18:34:03.000Z,33749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6598,975 6951,v1.0,,"The idea to work on is about a “ramp on call” that occupies the ground for a very little time, the one needed for the disabled to access the shop and buy stuff. Otherwise there is the average ramp, already available where big shops, or post offices are. The results from the questionnaires about the absence of the ramps before many shops in Milan are considered. There is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings. Some last work is put on schedule for the end of august, as prototyping, the website, documents, the wiki, the video, etc.. All the effort is designed for the local side of the city and then it might be replayed in further city contexts. A solution for “calling” the ramp would be to create a button to push.",/post/33749,2017-05-22T18:33:52.000Z,2017-05-22T18:33:52.000Z,33749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6598,724 6494,v1.0,,"These notes and pictures were taken at WeMake in Milan during the meetings held on april 11th 2017 for the openrampette project   At WeMake people have being busy with a opencare project about customized ramps to make more shops accessibile to wheelchairs in Milan. It is called openrampette and is being developed with the Comune di Milano, another opencare partner. ... The group has a discussion about best ideas on the prototype and how to involve citizens of Milan in the design phase. There  are also needs to develop an app for openrampette. The discussion goes deep in understanding whether the job consisted in reviewing (advanced prototyping) or development. The problem is that there are not enough indoor skills to develop for mobile. Even IoT (Internet of Things) would have been interesting, but there were no news from the groups.There is a proposal about creating a course for app developers and an internship, but it doesn't seem feasible. The UX (User eXperience) approach is a main issue, but a simple “nice, try, next” way cannot work. There is agreement on the fact that the ramp should stay light and not, for instance, 40 kgs heavy.   In a presentation of the project there is a interesting discussion about understanding what is not included in the procedures (the rules enforced by the Municipality), and in the advantage of accessing the database mapping the ramps in the city. Some hypothetical cases are discussed. The idea to work on is about a “ramp on call” that occupies the ground for a very little time, the one needed for the disabled to access the shop and buy stuff. Otherwise there is the average ramp, already available where big shops, or post offices are. The results from the questionnaires about the absence of the ramps before many shops in Milan are considered. There is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings. Some last work is put on schedule for the end of august, as prototyping, the website, documents, the wiki, the video, etc.. All the effort is designed for the local side of the city and then it might be replayed in further city contexts. A solution for “calling” the ramp would be to create a button to push.",/post/33749,2017-05-22T18:33:22.000Z,2017-05-22T18:33:22.000Z,33749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6598,485 8791,v1.0,,"These notes and pictures were taken at WeMake in Milan during the meetings held on april 11th 2017 for the openrampette project   At WeMake people have being busy with a opencare project about customized ramps to make more shops accessibile to wheelchairs in Milan. It is called openrampette and is being developed with the Comune di Milano, another opencare partner. ... The group has a discussion about best ideas on the prototype and how to involve citizens of Milan in the design phase. There  are also needs to develop an app for openrampette. The discussion goes deep in understanding whether the job consisted in reviewing (advanced prototyping) or development. The problem is that there are not enough indoor skills to develop for mobile. Even IoT (Internet of Things) would have been interesting, but there were no news from the groups.There is a proposal about creating a course for app developers and an internship, but it doesn't seem feasible. The UX (User eXperience) approach is a main issue, but a simple “nice, try, next” way cannot work. There is agreement on the fact that the ramp should stay light and not, for instance, 40 kgs heavy.   In a presentation of the project there is a interesting discussion about understanding what is not included in the procedures (the rules enforced by the Municipality), and in the advantage of accessing the database mapping the ramps in the city. Some hypothetical cases are discussed. The idea to work on is about a “ramp on call” that occupies the ground for a very little time, the one needed for the disabled to access the shop and buy stuff. Otherwise there is the average ramp, already available where big shops, or post offices are. The results from the questionnaires about the absence of the ramps before many shops in Milan are considered. There is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings. Some last work is put on schedule for the end of august, as prototyping, the website, documents, the wiki, the video, etc.. All the effort is designed for the local side of the city and then it might be replayed in further city contexts. A solution for “calling” the ramp would be to create a button to push.",/post/33749,2017-05-22T18:33:16.000Z,2017-05-22T18:33:16.000Z,33749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6598,1155 11546,v1.0,,"A little bit later I met some people. They had a dream to build an online business. I told them about my passion for essay writing and they decided that they would help me. They thought it was a good business idea - to create a reliable essay writing service with reasonable prices. So they invested their money in my talent. Alex and Sammy hired good writers with a degree to write custom papers. My friends in Virginia were promoting our writing service on campus. We started to receive multiple orders. We were helping people who had troubles with their writing. Through some time we created a blog where we were writing tips on how to write certain kinds of academic papers and our clients were grateful for that because they got an opportunity to learn how to write properly by themselves. It was a success! We called our service EssayPro Club. Later it transformed to EssayHub - that was done because we wanted to create a brand, to let people know that we were here for them and we weren't going anywhere. So, that was my story of people believing in me. They gave my dream a shot and everybody won. I am still grateful to them because I now have my dream job and I can help people every day. So don't be afraid and believe in yourself and in people who surround you. It may give you a lifetime opportunity.",/post/847,2017-05-22T18:32:12.000Z,2017-05-22T18:32:12.000Z,847,3323,AnnotatorStore::TextAnnotation,,,,,,,,,814,1868 8186,v1.0,,"When I graduated I found myself without no job offers, no money and no place to live. All I could do was return to my hometown Gardena and try to find something there. The city is not that big, so I couldn't find much job opportunities for such an ambitious young writer as myself",/post/847,2017-05-22T18:31:55.000Z,2017-05-22T18:31:55.000Z,847,3323,AnnotatorStore::TextAnnotation,,,,,,,,,814,1047 11575,v1.0,,"When I graduated I found myself without no job offers, no money and no place to live. All I could do was return to my hometown Gardena and try to find something there. The city is not that big, so I couldn't find much job opportunities for such an ambitious young writer as myself",/post/847,2017-05-22T18:31:44.000Z,2017-05-22T18:31:44.000Z,847,3323,AnnotatorStore::TextAnnotation,,,,,,,,,814,1873 11544,v1.0,,Once I went to the University of Virginia. I wanted to study English literature. Years were passing by and I thought that soon I would be able to enter the big world and start working at my dream job. I always wanted to write - no matter if it would be fiction or journalistics. I loved essay writing so I knew I wouldn't be left jobless.,/post/847,2017-05-22T18:31:33.000Z,2017-05-22T18:31:33.000Z,847,3323,AnnotatorStore::TextAnnotation,,,,,,,,,814,1866 8581,v1.0,,"CAPE should be a special place for members and learners to revive, a place to flourish, a place for young and old. Sustainable mental health is a result of continuous enthusiasm to our own development and a willingness reconstruct our beliefs.",/post/765,2017-05-22T18:30:19.000Z,2017-05-22T18:30:19.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,1140 6043,v1.0,,"CAPE  aims to build a social net for the members, enacts ""share & care"" principles and provides a framework (legal body) for cooperative economy as well as a space for inter-generational ""new"", action based, co-operative learning.",/post/765,2017-05-22T18:30:10.000Z,2017-05-22T18:30:10.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,415 8033,v1.0,,"We are initiateing multilingual communities and living space with people who focus primarily on inner development. Where we are working on our consciousness, because the crisis in our society is a crisis of consciousness. We shift our focus inwards, develop our relationship skills and transform our social programming. There should be as few fixed guidelines as possible concerning the personality and lifestyle of the members except the common to work toward a higher level of development. There are no ideologies, no dogmatic requirements and no fixed concepts.“",/post/765,2017-05-22T18:29:56.000Z,2017-05-22T18:29:56.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,1006 10821,v1.0,,"Sustainable Engineering and Application Application of sustainable energy production; High-Tech in ecological production processes.",/post/765,2017-05-22T18:29:40.000Z,2017-05-22T18:29:40.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,1648 6197,v1.0,,"New Learning Creating Creative Learning (Spaces)",/post/765,2017-05-22T18:29:19.000Z,2017-05-22T18:29:19.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,439 8239,v1.0,,"New Learning Creating Creative Learning (Spaces)",/post/765,2017-05-22T18:29:15.000Z,2017-05-22T18:29:15.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,1072 8420,v1.0,,"As we have to exist within a framework of formal-operational rules (orange), at best early vision-logic (green), we have to establish a set of “organizational-bodies” to support the idea in the best way possible.",/post/765,2017-05-22T18:29:04.000Z,2017-05-22T18:29:04.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,1110 5700,v1.0,,"The CAPE Project has a low entrance barrier for collaborators, participators, and community builders. With that said, however, there can be a substantial learning curve when it comes to acquiring a comprehensive understanding of what is actually being proposed by the Project. It is important to remember that this community proposal represents an entirely different linguistic worldview than most (if not all) other worldviews present in modern society. Fundamentally, the Community’s design describes an entirely divergent way of living and of understanding reality than the many worldviews expressed among the current population of the planet. This can present a significant motivating challenge for those interested in this direction. The design specifications are dense in content and many individuals who read them for the first time feel like they are learning a new language and integrating a new worldview, which takes time and requires internal processing.",/post/765,2017-05-22T18:28:45.000Z,2017-05-22T18:28:45.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,357 7504,v1.0,,"To collaboratively design, develop, and implement the blueprint for an intentional need-fulfillment community where purposefully driven individuals are fulfilled in their development toward their highest potential state of human experience for themselves and all others.",/post/765,2017-05-22T18:28:33.000Z,2017-05-22T18:28:33.000Z,765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,732,872 5837,v1.0,,"Care and prevention spaces would be established in the middle of society, fulfilling the basic needs of all, which ensures the participation of all so that this approach corresponds to the wishes of all and fulfills their needs. To test this assumption requires a thorough basic research of existing resources, as well as bureaucratic hurdles, and to examine stakeholders, especially those who are not participating.",/post/542,2017-05-22T18:24:26.000Z,2017-05-22T18:24:26.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,377 10003,v1.0,,"""How can we increase the societal appreciation for a public welfare oriented social system?""",/post/542,2017-05-22T18:23:58.000Z,2017-05-22T18:23:58.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1445 7414,v1.0,,"Another group addressed the question of: ""How can we, based on commonalities, learn more from each other?""",/post/542,2017-05-22T18:23:29.000Z,2017-05-22T18:23:29.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,840 10002,v1.0,,"How can momentum be created for these spaces and networks?""",/post/542,2017-05-22T18:23:20.000Z,2017-05-22T18:23:20.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1445 10507,v1.0,,"The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces.",/post/542,2017-05-22T18:23:05.000Z,2017-05-22T18:23:05.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1563 4805,v1.0,,"The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces.",/post/542,2017-05-22T18:22:40.000Z,2017-05-22T18:22:40.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,80 10001,v1.0,,"""How can we engage individuals to support these structures, even if they ostensibly do not (yet) benefit from them?""",/post/542,2017-05-22T18:22:25.000Z,2017-05-22T18:22:25.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1445 11534,v1.0,,". A key component of the engagement in these areas could be workshops of all types and themes to be organized, offered and held by participants themselves.",/post/542,2017-05-22T18:22:15.000Z,2017-05-22T18:22:15.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1865 6251,v1.0,,"structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet.",/post/542,2017-05-22T18:22:05.000Z,2017-05-22T18:22:05.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,444 9675,v1.0,,"imultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet.",/post/542,2017-05-22T18:21:58.000Z,2017-05-22T18:21:58.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1381 10180,v1.0,,"ased on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet.",/post/542,2017-05-22T18:21:33.000Z,2017-05-22T18:21:33.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1480 4895,v1.0,,"the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,. Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up""",/post/542,2017-05-22T18:21:19.000Z,2017-05-22T18:21:19.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,111 6382,v1.0,,". Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together.",/post/542,2017-05-22T18:21:15.000Z,2017-05-22T18:21:15.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,467 10423,v1.0,,"ased on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure ca",/post/542,2017-05-22T18:21:08.000Z,2017-05-22T18:21:08.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1540 5078,v1.0,,"One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?"" in a process of collective brainstorming and idea development. As a central starting point was the agreement that care and prevention services should be provided by real people for real people, and thus to counteract the further dehumanization in care - both toward those being cared for, but also the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,.",/post/542,2017-05-22T18:20:54.000Z,2017-05-22T18:20:54.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,146 9577,v1.0,,"One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?""",/post/542,2017-05-22T18:20:40.000Z,2017-05-22T18:20:40.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1348 10000,v1.0,,"""How can we provide care and preventative care adequately and accessibly?""",/post/542,2017-05-22T18:20:33.000Z,2017-05-22T18:20:33.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1445 9311,v1.0,,"#OPENandChange Workshop Berlin “Living, working and ageing healthily within society” The OPENandChange workshop in Berlin began with a round for participants to introduce themselves. This led straight into individual and collective reflection and the mapping of questions that mattered to participants. Here, three key issues emerged, which participants gathered in three working groups to address. One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?"" in a process of collective brainstorming and idea development. As a central starting point was the agreement that care and prevention services should be provided by real people for real people, and thus to counteract the further dehumanization in care - both toward those being cared for, but also the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,. Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet. The necessary financial resources could be generated by a crowdfunding campaign, also to generate more public attention, especially online, for teaching/learning/exchange spaces for this innovation and strengthen the cohesion of the existing community. A key component of the engagement in these areas could be workshops of all types and themes to be organized, offered and held by participants themselves. These spaces could make a contribution to the initial formulation of questions, because a social community that is open and accessible for all faces the challenge of accessibility to prevention and care, supported by the Internet. Care and prevention again become a matter for the community, and are thus realized in a humane and proportionate way. This common ""bottom-up"" structure was made tangible in a first prototyping, which opened the question ""How can we engage individuals to support these structures, even if they ostensibly do not (yet) benefit from them?"" The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces. Decisions about the design of health promoting coexistence are shaped by the particpating actors themselves. Finally, assumptions were formulated, which should be examined, scrutinized and discussed in the network in order to make this approach more effective and more efficient. Because even subtle or unconscious perceptions and attitudes can potentially be found in each concept, it needs to be balanced by many, diverse and also conflicting perspectives on the concept to make it more resistant. It was also reflected that a certain basic attitude is required of all potential participants to form these care and prevention networks. Another important point is posed by the question of: ""How can momentum be created for these spaces and networks?"" Another group addressed the question of: ""How can we, based on commonalities, learn more from each other?"" In a idea development and brainstorming process on this issue, the importance of local and personal interaction was recognized. This includes the networking of stakeholders and users, potentially through an interactive map on the Internet such as used by www.berlinimwandel.de. It also requires the organizing of engaging workshops where actors can share their enthusiasm for relevant topics with others by presenting them as relevant themes, and optionally also to demonstrate activities to make them tangible. In addition, activities such as role reversals to expand the individuals' horizons of experience are possible, as is done, for example, in working with ""age suits"" – young people slip into full-body suits equipped with weights to enable the experience of having an aged body. In a first prototype lifting the existing resources were, theoretically and practically, visualized through a mapping of individual and collaborative networking, both online and offline and person. This process led to the realization that everything is actually there to the realization of this idea already what is needed, when the dedicated actors gathered as OPENandChange workshop, work together and share their resources and combine theory with practice. These assumptions to check it seems important in the first step to begin with themselves, so to make the possibility of designing a different world tangible. This iterative process leads to fresh insights. But the community-based approach not only leads to new insights, but can lead to a higher incidence of fun and joy, and ultimately health and well-being by strengthening group working experiences. The third working group focused on the question: ""How can we increase the societal appreciation for a public welfare oriented social system?"" Also during this idea development and brainstorming process, the need for people to meet in person in ""their"" area, city, country was emphasized. For example, working in interactive groups can lead to an intensification of togetherness and can make prevention and care topic. The supposedly negative connotations otherwise associated with these concepts such as disease, death and a feeling of helplessness are thus transformed. A positive attitude towards the subject is promoted, fears can be reduced, and at the same time the respect and appreciation for the work of nurses and caregivers is increased. In particular, a playful approach to the subject can support this project and convey the idea that all can benefit. Another important aspect for answering the initial question is to explore the current actual situation in care. The question as to why the appreciation in prevention and care sector is so low can lead to valuable information to help find solutions. In prototyping, the motto of ""living appreciation"" was made tangible and concrete: Care and prevention spaces would be established in the middle of society, fulfilling the basic needs of all, which ensures the participation of all so that this approach corresponds to the wishes of all and fulfills their needs. To test this assumption requires a thorough basic research of existing resources, as well as bureaucratic hurdles, and to examine stakeholders, especially those who are not participating. Based on the work of the three groups, the following definition of the problems was generated: •    Dehumanization of health and social systems •    The focus on treating symptoms rather than promoting healthy lifestyles •    Privatization and capitalization of public goods, which should be accessible to all The concrete solution that the participants collectively devised, states that: •    All we need is there if we work together and share our resources •    A paradigm shift is needed: ""From Pathogenesis to Salutogenesis"" – Solidary Health Promotion System with Global Knowledge Network and Local Action Spaces •    Working ""with people for people"" and connect visionaries, experts, institutions and places through concrete actions This solution leads to the following intended: •    Employing existing treasures: Mapping for individual and community networking, online and in person, in theory and practice •    Practising appreciation: Create care and prevention spaces in the middle of society to fulfill the basic needs of all and create new incentive/recognition structures in the long term •    Local systemic change: Developing new skills, resources and infrastructure that can be used by all of us: children, young people, adults, seniors (people in all phases of life). Strong arguments for the proposal are: •    Bottom-up structure with small relatively autonomous systems, who self-regulate the supply and demand of health and social services for individuals and communities •    Only through shared ownership effectiveness and sustainability can this be secured Our approaches, technologies and tactics are: •    Active participation of ALL leads to a prototype that works for the majority and meets their needs (human-centered development of global platform and local spaces) •    Collective, iterative structure combining theory and practice •    Global Knowledge Network – CAREPEDIA: bundled knowledge (Internet / platform) all have access to the ""central office"" •    Local Action Spaces: Locally designed and managed spaces for health-promoting coexistence ""From Pathogenesis to Salutogenesis"" We believe our solution will work because: We have existing needs (more than 80% of people want a functional and appreciative system for care and prevention ) and real effects from a dehumanized health and care system. We know many people and institutions that are interested in cooperating and who would gladly contribute their respective expertise. Another world is within reach. There are many projects and movements to prove it. We shall make this even more visible. Everything we need is already there. We need the courage to try it, to experience and live it. We can make an active contribution to this. Financial resources are not a challenge or necessity to achieve this. As expected results – in the context of existing cases – we use the following examples: Successful EcoVillages such as Mondragon (a community in the Basque Country without police). Giving spaces, exchange meets and free shops. Micro-agriculture in the city. Urban gardening. Community-supported agriculture creates new relationships between city and land. There are urban farming initiatives in Detroit, critical consumption movements in Italy (GAS), alternative currency systems such as WIR in Switzerland, and solidarity networks for food supply and health clinics in Greece, as well as Networks such as SOLIDAGO and Artabana in Germany. And many more. Furthermore, our proposal is confirmed by literature and scientific consensus such as in the field of neuronal research: Fear paralyzes reason and creativity and leads to depression due to stress and alienation . Yet willingness for lifelong learning, creates new neural connections. Further scientific findings such as the Hierarchy of Needs Maslow, the concept of The Ever-Present Origin (Stuttgart 1949-1953) by Jean Gebser, the classic theories of J.M. Baldwin, G.H. Mead, J. Piaget (The Psychology of the Child) and L. Kohlberg as well as related work by C. Gilligan, F. Oser and M. Parsons. Also the literature and research by Ken Wilber, Aurobindo Ghose, Ervin László, Don Beck, and Michael Murphy;  work on Emotional Intelligence by Daniel Goleman, und the research by Kropotkin, who proved that cooperation is more important than competition in the animal kingdom and is effective for the survival of the group. Also the ample literature on the topics of sustainable lifestyles, Solidarity economy, Holacracy and Sociocracy support our suggested solution. However, it is necessary to keep sight of the risks. Here there are also a number of examples that could occur either externally or internally: The risk that corporations hijack the ideas and commercialize them, such as happened with Carsharing and CoLiving. External factors such as war, social conflicts, the collapse of the financial system, climate change and its consequences, privatization of public goods such as drinking water, and environmental disasters could endanger our plans. But also our inner monsters, such as greed and the hunger for power  could torpedo the project. There is always a danger that the idea is not accepted, that the needs of the stakeholders are not met or met only partially; that there are ""too many cooks"" or that the concept can not be implemented due to conflicting priorities, or dependencies between partners and networks arise. Yet we see possibilities to work against these risks. Reality has proven that it already works, and many people are working toward this aim worldwide: We are many! We cooperate and we are a network. We have sufficient human capacity. Our approach is flexible and can be used in existing structures and institutions. Dependence on existing systems and infrastructures can be solved via an ""open-source"" approach that leads to a multiplying effect, where copying is allowed and actively encouraged. This leads to the reduction of fears, relaxation, deceleration, satisfaction and happiness. There will be systemic relief or elimination of the superfluous, as well as personal and societal development potential through inclusion and the integration of ""fringe groups"" such as unemployed, refugees or marginalized citizens. For evaluation it is intended to study these criteria and assumptions in order to confirm them: Self-organization in groups works. Positions, attitudes and values are part of a common vision. Skills are included and allocated according to an open source principle. The new system or the new platform reaches more people and connects more participants than previous systems or platforms. There are spaces where encounters already take place. Spaces can be created where encounters are possible. Spaces that meet various needs lead to added value for all. Interestingly, it can be stated that all three working groups arrived at very similar approaches and ideas, problems and solutions during this intense, exciting and inspiring eight hour workshop: A change of perspective and a paradigm shift is required - instead of focusing on fighting disease, working towards the promotion of health! Caroline Paulick-Thiel & Jahn Harrison, nextlearning e.V. Translation: Alexander Paulick-Thiel",/post/542,2017-05-22T18:20:21.000Z,2017-05-22T18:20:21.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1283 9603,v1.0,,"#OPENandChange Workshop Berlin “Living, working and ageing healthily within society” The OPENandChange workshop in Berlin began with a round for participants to introduce themselves. This led straight into individual and collective reflection and the mapping of questions that mattered to participants. Here, three key issues emerged, which participants gathered in three working groups to address. One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?"" in a process of collective brainstorming and idea development. As a central starting point was the agreement that care and prevention services should be provided by real people for real people, and thus to counteract the further dehumanization in care - both toward those being cared for, but also the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,. Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet. The necessary financial resources could be generated by a crowdfunding campaign, also to generate more public attention, especially online, for teaching/learning/exchange spaces for this innovation and strengthen the cohesion of the existing community. A key component of the engagement in these areas could be workshops of all types and themes to be organized, offered and held by participants themselves. These spaces could make a contribution to the initial formulation of questions, because a social community that is open and accessible for all faces the challenge of accessibility to prevention and care, supported by the Internet. Care and prevention again become a matter for the community, and are thus realized in a humane and proportionate way. This common ""bottom-up"" structure was made tangible in a first prototyping, which opened the question ""How can we engage individuals to support these structures, even if they ostensibly do not (yet) benefit from them?"" The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces. Decisions about the design of health promoting coexistence are shaped by the particpating actors themselves. Finally, assumptions were formulated, which should be examined, scrutinized and discussed in the network in order to make this approach more effective and more efficient. Because even subtle or unconscious perceptions and attitudes can potentially be found in each concept, it needs to be balanced by many, diverse and also conflicting perspectives on the concept to make it more resistant. It was also reflected that a certain basic attitude is required of all potential participants to form these care and prevention networks. Another important point is posed by the question of: ""How can momentum be created for these spaces and networks?"" Another group addressed the question of: ""How can we, based on commonalities, learn more from each other?"" In a idea development and brainstorming process on this issue, the importance of local and personal interaction was recognized. This includes the networking of stakeholders and users, potentially through an interactive map on the Internet such as used by www.berlinimwandel.de. It also requires the organizing of engaging workshops where actors can share their enthusiasm for relevant topics with others by presenting them as relevant themes, and optionally also to demonstrate activities to make them tangible. In addition, activities such as role reversals to expand the individuals' horizons of experience are possible, as is done, for example, in working with ""age suits"" – young people slip into full-body suits equipped with weights to enable the experience of having an aged body. In a first prototype lifting the existing resources were, theoretically and practically, visualized through a mapping of individual and collaborative networking, both online and offline and person. This process led to the realization that everything is actually there to the realization of this idea already what is needed, when the dedicated actors gathered as OPENandChange workshop, work together and share their resources and combine theory with practice. These assumptions to check it seems important in the first step to begin with themselves, so to make the possibility of designing a different world tangible. This iterative process leads to fresh insights. But the community-based approach not only leads to new insights, but can lead to a higher incidence of fun and joy, and ultimately health and well-being by strengthening group working experiences. The third working group focused on the question: ""How can we increase the societal appreciation for a public welfare oriented social system?"" Also during this idea development and brainstorming process, the need for people to meet in person in ""their"" area, city, country was emphasized. For example, working in interactive groups can lead to an intensification of togetherness and can make prevention and care topic. The supposedly negative connotations otherwise associated with these concepts such as disease, death and a feeling of helplessness are thus transformed. A positive attitude towards the subject is promoted, fears can be reduced, and at the same time the respect and appreciation for the work of nurses and caregivers is increased. In particular, a playful approach to the subject can support this project and convey the idea that all can benefit. Another important aspect for answering the initial question is to explore the current actual situation in care. The question as to why the appreciation in prevention and care sector is so low can lead to valuable information to help find solutions. In prototyping, the motto of ""living appreciation"" was made tangible and concrete: Care and prevention spaces would be established in the middle of society, fulfilling the basic needs of all, which ensures the participation of all so that this approach corresponds to the wishes of all and fulfills their needs. To test this assumption requires a thorough basic research of existing resources, as well as bureaucratic hurdles, and to examine stakeholders, especially those who are not participating. Based on the work of the three groups, the following definition of the problems was generated: •    Dehumanization of health and social systems •    The focus on treating symptoms rather than promoting healthy lifestyles •    Privatization and capitalization of public goods, which should be accessible to all The concrete solution that the participants collectively devised, states that: •    All we need is there if we work together and share our resources •    A paradigm shift is needed: ""From Pathogenesis to Salutogenesis"" – Solidary Health Promotion System with Global Knowledge Network and Local Action Spaces •    Working ""with people for people"" and connect visionaries, experts, institutions and places through concrete actions This solution leads to the following intended: •    Employing existing treasures: Mapping for individual and community networking, online and in person, in theory and practice •    Practising appreciation: Create care and prevention spaces in the middle of society to fulfill the basic needs of all and create new incentive/recognition structures in the long term •    Local systemic change: Developing new skills, resources and infrastructure that can be used by all of us: children, young people, adults, seniors (people in all phases of life). Strong arguments for the proposal are: •    Bottom-up structure with small relatively autonomous systems, who self-regulate the supply and demand of health and social services for individuals and communities •    Only through shared ownership effectiveness and sustainability can this be secured Our approaches, technologies and tactics are: •    Active participation of ALL leads to a prototype that works for the majority and meets their needs (human-centered development of global platform and local spaces) •    Collective, iterative structure combining theory and practice •    Global Knowledge Network – CAREPEDIA: bundled knowledge (Internet / platform) all have access to the ""central office"" •    Local Action Spaces: Locally designed and managed spaces for health-promoting coexistence ""From Pathogenesis to Salutogenesis"" We believe our solution will work because: We have existing needs (more than 80% of people want a functional and appreciative system for care and prevention ) and real effects from a dehumanized health and care system. We know many people and institutions that are interested in cooperating and who would gladly contribute their respective expertise. Another world is within reach. There are many projects and movements to prove it. We shall make this even more visible. Everything we need is already there. We need the courage to try it, to experience and live it. We can make an active contribution to this. Financial resources are not a challenge or necessity to achieve this. As expected results – in the context of existing cases – we use the following examples: Successful EcoVillages such as Mondragon (a community in the Basque Country without police). Giving spaces, exchange meets and free shops. Micro-agriculture in the city. Urban gardening. Community-supported agriculture creates new relationships between city and land. There are urban farming initiatives in Detroit, critical consumption movements in Italy (GAS), alternative currency systems such as WIR in Switzerland, and solidarity networks for food supply and health clinics in Greece, as well as Networks such as SOLIDAGO and Artabana in Germany. And many more. Furthermore, our proposal is confirmed by literature and scientific consensus such as in the field of neuronal research: Fear paralyzes reason and creativity and leads to depression due to stress and alienation . Yet willingness for lifelong learning, creates new neural connections. Further scientific findings such as the Hierarchy of Needs Maslow, the concept of The Ever-Present Origin (Stuttgart 1949-1953) by Jean Gebser, the classic theories of J.M. Baldwin, G.H. Mead, J. Piaget (The Psychology of the Child) and L. Kohlberg as well as related work by C. Gilligan, F. Oser and M. Parsons. Also the literature and research by Ken Wilber, Aurobindo Ghose, Ervin László, Don Beck, and Michael Murphy;  work on Emotional Intelligence by Daniel Goleman, und the research by Kropotkin, who proved that cooperation is more important than competition in the animal kingdom and is effective for the survival of the group. Also the ample literature on the topics of sustainable lifestyles, Solidarity economy, Holacracy and Sociocracy support our suggested solution. However, it is necessary to keep sight of the risks. Here there are also a number of examples that could occur either externally or internally: The risk that corporations hijack the ideas and commercialize them, such as happened with Carsharing and CoLiving. External factors such as war, social conflicts, the collapse of the financial system, climate change and its consequences, privatization of public goods such as drinking water, and environmental disasters could endanger our plans. But also our inner monsters, such as greed and the hunger for power  could torpedo the project. There is always a danger that the idea is not accepted, that the needs of the stakeholders are not met or met only partially; that there are ""too many cooks"" or that the concept can not be implemented due to conflicting priorities, or dependencies between partners and networks arise. Yet we see possibilities to work against these risks. Reality has proven that it already works, and many people are working toward this aim worldwide: We are many! We cooperate and we are a network. We have sufficient human capacity. Our approach is flexible and can be used in existing structures and institutions. Dependence on existing systems and infrastructures can be solved via an ""open-source"" approach that leads to a multiplying effect, where copying is allowed and actively encouraged. This leads to the reduction of fears, relaxation, deceleration, satisfaction and happiness. There will be systemic relief or elimination of the superfluous, as well as personal and societal development potential through inclusion and the integration of ""fringe groups"" such as unemployed, refugees or marginalized citizens. For evaluation it is intended to study these criteria and assumptions in order to confirm them: Self-organization in groups works. Positions, attitudes and values are part of a common vision. Skills are included and allocated according to an open source principle. The new system or the new platform reaches more people and connects more participants than previous systems or platforms. There are spaces where encounters already take place. Spaces can be created where encounters are possible. Spaces that meet various needs lead to added value for all. Interestingly, it can be stated that all three working groups arrived at very similar approaches and ideas, problems and solutions during this intense, exciting and inspiring eight hour workshop: A change of perspective and a paradigm shift is required - instead of focusing on fighting disease, working towards the promotion of health! Caroline Paulick-Thiel & Jahn Harrison, nextlearning e.V. Translation: Alexander Paulick-Thiel",/post/542,2017-05-22T18:20:03.000Z,2017-05-22T18:20:03.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1354 9658,v1.0,,"#OPENandChange Workshop Berlin “Living, working and ageing healthily within society” The OPENandChange workshop in Berlin began with a round for participants to introduce themselves. This led straight into individual and collective reflection and the mapping of questions that mattered to participants. Here, three key issues emerged, which participants gathered in three working groups to address. One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?"" in a process of collective brainstorming and idea development. As a central starting point was the agreement that care and prevention services should be provided by real people for real people, and thus to counteract the further dehumanization in care - both toward those being cared for, but also the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,. Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet. The necessary financial resources could be generated by a crowdfunding campaign, also to generate more public attention, especially online, for teaching/learning/exchange spaces for this innovation and strengthen the cohesion of the existing community. A key component of the engagement in these areas could be workshops of all types and themes to be organized, offered and held by participants themselves. These spaces could make a contribution to the initial formulation of questions, because a social community that is open and accessible for all faces the challenge of accessibility to prevention and care, supported by the Internet. Care and prevention again become a matter for the community, and are thus realized in a humane and proportionate way. This common ""bottom-up"" structure was made tangible in a first prototyping, which opened the question ""How can we engage individuals to support these structures, even if they ostensibly do not (yet) benefit from them?"" The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces. Decisions about the design of health promoting coexistence are shaped by the particpating actors themselves. Finally, assumptions were formulated, which should be examined, scrutinized and discussed in the network in order to make this approach more effective and more efficient. Because even subtle or unconscious perceptions and attitudes can potentially be found in each concept, it needs to be balanced by many, diverse and also conflicting perspectives on the concept to make it more resistant. It was also reflected that a certain basic attitude is required of all potential participants to form these care and prevention networks. Another important point is posed by the question of: ""How can momentum be created for these spaces and networks?"" Another group addressed the question of: ""How can we, based on commonalities, learn more from each other?"" In a idea development and brainstorming process on this issue, the importance of local and personal interaction was recognized. This includes the networking of stakeholders and users, potentially through an interactive map on the Internet such as used by www.berlinimwandel.de. It also requires the organizing of engaging workshops where actors can share their enthusiasm for relevant topics with others by presenting them as relevant themes, and optionally also to demonstrate activities to make them tangible. In addition, activities such as role reversals to expand the individuals' horizons of experience are possible, as is done, for example, in working with ""age suits"" – young people slip into full-body suits equipped with weights to enable the experience of having an aged body. In a first prototype lifting the existing resources were, theoretically and practically, visualized through a mapping of individual and collaborative networking, both online and offline and person. This process led to the realization that everything is actually there to the realization of this idea already what is needed, when the dedicated actors gathered as OPENandChange workshop, work together and share their resources and combine theory with practice. These assumptions to check it seems important in the first step to begin with themselves, so to make the possibility of designing a different world tangible. This iterative process leads to fresh insights. But the community-based approach not only leads to new insights, but can lead to a higher incidence of fun and joy, and ultimately health and well-being by strengthening group working experiences. The third working group focused on the question: ""How can we increase the societal appreciation for a public welfare oriented social system?"" Also during this idea development and brainstorming process, the need for people to meet in person in ""their"" area, city, country was emphasized. For example, working in interactive groups can lead to an intensification of togetherness and can make prevention and care topic. The supposedly negative connotations otherwise associated with these concepts such as disease, death and a feeling of helplessness are thus transformed. A positive attitude towards the subject is promoted, fears can be reduced, and at the same time the respect and appreciation for the work of nurses and caregivers is increased. In particular, a playful approach to the subject can support this project and convey the idea that all can benefit. Another important aspect for answering the initial question is to explore the current actual situation in care. The question as to why the appreciation in prevention and care sector is so low can lead to valuable information to help find solutions. In prototyping, the motto of ""living appreciation"" was made tangible and concrete: Care and prevention spaces would be established in the middle of society, fulfilling the basic needs of all, which ensures the participation of all so that this approach corresponds to the wishes of all and fulfills their needs. To test this assumption requires a thorough basic research of existing resources, as well as bureaucratic hurdles, and to examine stakeholders, especially those who are not participating. Based on the work of the three groups, the following definition of the problems was generated: •    Dehumanization of health and social systems •    The focus on treating symptoms rather than promoting healthy lifestyles •    Privatization and capitalization of public goods, which should be accessible to all The concrete solution that the participants collectively devised, states that: •    All we need is there if we work together and share our resources •    A paradigm shift is needed: ""From Pathogenesis to Salutogenesis"" – Solidary Health Promotion System with Global Knowledge Network and Local Action Spaces •    Working ""with people for people"" and connect visionaries, experts, institutions and places through concrete actions This solution leads to the following intended: •    Employing existing treasures: Mapping for individual and community networking, online and in person, in theory and practice •    Practising appreciation: Create care and prevention spaces in the middle of society to fulfill the basic needs of all and create new incentive/recognition structures in the long term •    Local systemic change: Developing new skills, resources and infrastructure that can be used by all of us: children, young people, adults, seniors (people in all phases of life). Strong arguments for the proposal are: •    Bottom-up structure with small relatively autonomous systems, who self-regulate the supply and demand of health and social services for individuals and communities •    Only through shared ownership effectiveness and sustainability can this be secured Our approaches, technologies and tactics are: •    Active participation of ALL leads to a prototype that works for the majority and meets their needs (human-centered development of global platform and local spaces) •    Collective, iterative structure combining theory and practice •    Global Knowledge Network – CAREPEDIA: bundled knowledge (Internet / platform) all have access to the ""central office"" •    Local Action Spaces: Locally designed and managed spaces for health-promoting coexistence ""From Pathogenesis to Salutogenesis"" We believe our solution will work because: We have existing needs (more than 80% of people want a functional and appreciative system for care and prevention ) and real effects from a dehumanized health and care system. We know many people and institutions that are interested in cooperating and who would gladly contribute their respective expertise. Another world is within reach. There are many projects and movements to prove it. We shall make this even more visible. Everything we need is already there. We need the courage to try it, to experience and live it. We can make an active contribution to this. Financial resources are not a challenge or necessity to achieve this. As expected results – in the context of existing cases – we use the following examples: Successful EcoVillages such as Mondragon (a community in the Basque Country without police). Giving spaces, exchange meets and free shops. Micro-agriculture in the city. Urban gardening. Community-supported agriculture creates new relationships between city and land. There are urban farming initiatives in Detroit, critical consumption movements in Italy (GAS), alternative currency systems such as WIR in Switzerland, and solidarity networks for food supply and health clinics in Greece, as well as Networks such as SOLIDAGO and Artabana in Germany. And many more. Furthermore, our proposal is confirmed by literature and scientific consensus such as in the field of neuronal research: Fear paralyzes reason and creativity and leads to depression due to stress and alienation . Yet willingness for lifelong learning, creates new neural connections. Further scientific findings such as the Hierarchy of Needs Maslow, the concept of The Ever-Present Origin (Stuttgart 1949-1953) by Jean Gebser, the classic theories of J.M. Baldwin, G.H. Mead, J. Piaget (The Psychology of the Child) and L. Kohlberg as well as related work by C. Gilligan, F. Oser and M. Parsons. Also the literature and research by Ken Wilber, Aurobindo Ghose, Ervin László, Don Beck, and Michael Murphy;  work on Emotional Intelligence by Daniel Goleman, und the research by Kropotkin, who proved that cooperation is more important than competition in the animal kingdom and is effective for the survival of the group. Also the ample literature on the topics of sustainable lifestyles, Solidarity economy, Holacracy and Sociocracy support our suggested solution. However, it is necessary to keep sight of the risks. Here there are also a number of examples that could occur either externally or internally: The risk that corporations hijack the ideas and commercialize them, such as happened with Carsharing and CoLiving. External factors such as war, social conflicts, the collapse of the financial system, climate change and its consequences, privatization of public goods such as drinking water, and environmental disasters could endanger our plans. But also our inner monsters, such as greed and the hunger for power  could torpedo the project. There is always a danger that the idea is not accepted, that the needs of the stakeholders are not met or met only partially; that there are ""too many cooks"" or that the concept can not be implemented due to conflicting priorities, or dependencies between partners and networks arise. Yet we see possibilities to work against these risks. Reality has proven that it already works, and many people are working toward this aim worldwide: We are many! We cooperate and we are a network. We have sufficient human capacity. Our approach is flexible and can be used in existing structures and institutions. Dependence on existing systems and infrastructures can be solved via an ""open-source"" approach that leads to a multiplying effect, where copying is allowed and actively encouraged. This leads to the reduction of fears, relaxation, deceleration, satisfaction and happiness. There will be systemic relief or elimination of the superfluous, as well as personal and societal development potential through inclusion and the integration of ""fringe groups"" such as unemployed, refugees or marginalized citizens. For evaluation it is intended to study these criteria and assumptions in order to confirm them: Self-organization in groups works. Positions, attitudes and values are part of a common vision. Skills are included and allocated according to an open source principle. The new system or the new platform reaches more people and connects more participants than previous systems or platforms. There are spaces where encounters already take place. Spaces can be created where encounters are possible. Spaces that meet various needs lead to added value for all. Interestingly, it can be stated that all three working groups arrived at very similar approaches and ideas, problems and solutions during this intense, exciting and inspiring eight hour workshop: A change of perspective and a paradigm shift is required - instead of focusing on fighting disease, working towards the promotion of health! Caroline Paulick-Thiel & Jahn Harrison, nextlearning e.V. Translation: Alexander Paulick-Thiel",/post/542,2017-05-22T18:19:52.000Z,2017-05-22T18:19:52.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1374 4532,v1.0,,"#OPENandChange Workshop Berlin “Living, working and ageing healthily within society” The OPENandChange workshop in Berlin began with a round for participants to introduce themselves. This led straight into individual and collective reflection and the mapping of questions that mattered to participants. Here, three key issues emerged, which participants gathered in three working groups to address. One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?"" in a process of collective brainstorming and idea development. As a central starting point was the agreement that care and prevention services should be provided by real people for real people, and thus to counteract the further dehumanization in care - both toward those being cared for, but also the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,. Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet. The necessary financial resources could be generated by a crowdfunding campaign, also to generate more public attention, especially online, for teaching/learning/exchange spaces for this innovation and strengthen the cohesion of the existing community. A key component of the engagement in these areas could be workshops of all types and themes to be organized, offered and held by participants themselves. These spaces could make a contribution to the initial formulation of questions, because a social community that is open and accessible for all faces the challenge of accessibility to prevention and care, supported by the Internet. Care and prevention again become a matter for the community, and are thus realized in a humane and proportionate way. This common ""bottom-up"" structure was made tangible in a first prototyping, which opened the question ""How can we engage individuals to support these structures, even if they ostensibly do not (yet) benefit from them?"" The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces. Decisions about the design of health promoting coexistence are shaped by the particpating actors themselves. Finally, assumptions were formulated, which should be examined, scrutinized and discussed in the network in order to make this approach more effective and more efficient. Because even subtle or unconscious perceptions and attitudes can potentially be found in each concept, it needs to be balanced by many, diverse and also conflicting perspectives on the concept to make it more resistant. It was also reflected that a certain basic attitude is required of all potential participants to form these care and prevention networks. Another important point is posed by the question of: ""How can momentum be created for these spaces and networks?"" Another group addressed the question of: ""How can we, based on commonalities, learn more from each other?"" In a idea development and brainstorming process on this issue, the importance of local and personal interaction was recognized. This includes the networking of stakeholders and users, potentially through an interactive map on the Internet such as used by www.berlinimwandel.de. It also requires the organizing of engaging workshops where actors can share their enthusiasm for relevant topics with others by presenting them as relevant themes, and optionally also to demonstrate activities to make them tangible. In addition, activities such as role reversals to expand the individuals' horizons of experience are possible, as is done, for example, in working with ""age suits"" – young people slip into full-body suits equipped with weights to enable the experience of having an aged body. In a first prototype lifting the existing resources were, theoretically and practically, visualized through a mapping of individual and collaborative networking, both online and offline and person. This process led to the realization that everything is actually there to the realization of this idea already what is needed, when the dedicated actors gathered as OPENandChange workshop, work together and share their resources and combine theory with practice. These assumptions to check it seems important in the first step to begin with themselves, so to make the possibility of designing a different world tangible. This iterative process leads to fresh insights. But the community-based approach not only leads to new insights, but can lead to a higher incidence of fun and joy, and ultimately health and well-being by strengthening group working experiences. The third working group focused on the question: ""How can we increase the societal appreciation for a public welfare oriented social system?"" Also during this idea development and brainstorming process, the need for people to meet in person in ""their"" area, city, country was emphasized. For example, working in interactive groups can lead to an intensification of togetherness and can make prevention and care topic. The supposedly negative connotations otherwise associated with these concepts such as disease, death and a feeling of helplessness are thus transformed. A positive attitude towards the subject is promoted, fears can be reduced, and at the same time the respect and appreciation for the work of nurses and caregivers is increased. In particular, a playful approach to the subject can support this project and convey the idea that all can benefit. Another important aspect for answering the initial question is to explore the current actual situation in care. The question as to why the appreciation in prevention and care sector is so low can lead to valuable information to help find solutions. In prototyping, the motto of ""living appreciation"" was made tangible and concrete: Care and prevention spaces would be established in the middle of society, fulfilling the basic needs of all, which ensures the participation of all so that this approach corresponds to the wishes of all and fulfills their needs. To test this assumption requires a thorough basic research of existing resources, as well as bureaucratic hurdles, and to examine stakeholders, especially those who are not participating. Based on the work of the three groups, the following definition of the problems was generated: •    Dehumanization of health and social systems •    The focus on treating symptoms rather than promoting healthy lifestyles •    Privatization and capitalization of public goods, which should be accessible to all The concrete solution that the participants collectively devised, states that: •    All we need is there if we work together and share our resources •    A paradigm shift is needed: ""From Pathogenesis to Salutogenesis"" – Solidary Health Promotion System with Global Knowledge Network and Local Action Spaces •    Working ""with people for people"" and connect visionaries, experts, institutions and places through concrete actions This solution leads to the following intended: •    Employing existing treasures: Mapping for individual and community networking, online and in person, in theory and practice •    Practising appreciation: Create care and prevention spaces in the middle of society to fulfill the basic needs of all and create new incentive/recognition structures in the long term •    Local systemic change: Developing new skills, resources and infrastructure that can be used by all of us: children, young people, adults, seniors (people in all phases of life). Strong arguments for the proposal are: •    Bottom-up structure with small relatively autonomous systems, who self-regulate the supply and demand of health and social services for individuals and communities •    Only through shared ownership effectiveness and sustainability can this be secured Our approaches, technologies and tactics are: •    Active participation of ALL leads to a prototype that works for the majority and meets their needs (human-centered development of global platform and local spaces) •    Collective, iterative structure combining theory and practice •    Global Knowledge Network – CAREPEDIA: bundled knowledge (Internet / platform) all have access to the ""central office"" •    Local Action Spaces: Locally designed and managed spaces for health-promoting coexistence ""From Pathogenesis to Salutogenesis"" We believe our solution will work because: We have existing needs (more than 80% of people want a functional and appreciative system for care and prevention ) and real effects from a dehumanized health and care system. We know many people and institutions that are interested in cooperating and who would gladly contribute their respective expertise. Another world is within reach. There are many projects and movements to prove it. We shall make this even more visible. Everything we need is already there. We need the courage to try it, to experience and live it. We can make an active contribution to this. Financial resources are not a challenge or necessity to achieve this. As expected results – in the context of existing cases – we use the following examples: Successful EcoVillages such as Mondragon (a community in the Basque Country without police). Giving spaces, exchange meets and free shops. Micro-agriculture in the city. Urban gardening. Community-supported agriculture creates new relationships between city and land. There are urban farming initiatives in Detroit, critical consumption movements in Italy (GAS), alternative currency systems such as WIR in Switzerland, and solidarity networks for food supply and health clinics in Greece, as well as Networks such as SOLIDAGO and Artabana in Germany. And many more. Furthermore, our proposal is confirmed by literature and scientific consensus such as in the field of neuronal research: Fear paralyzes reason and creativity and leads to depression due to stress and alienation . Yet willingness for lifelong learning, creates new neural connections. Further scientific findings such as the Hierarchy of Needs Maslow, the concept of The Ever-Present Origin (Stuttgart 1949-1953) by Jean Gebser, the classic theories of J.M. Baldwin, G.H. Mead, J. Piaget (The Psychology of the Child) and L. Kohlberg as well as related work by C. Gilligan, F. Oser and M. Parsons. Also the literature and research by Ken Wilber, Aurobindo Ghose, Ervin László, Don Beck, and Michael Murphy;  work on Emotional Intelligence by Daniel Goleman, und the research by Kropotkin, who proved that cooperation is more important than competition in the animal kingdom and is effective for the survival of the group. Also the ample literature on the topics of sustainable lifestyles, Solidarity economy, Holacracy and Sociocracy support our suggested solution. However, it is necessary to keep sight of the risks. Here there are also a number of examples that could occur either externally or internally: The risk that corporations hijack the ideas and commercialize them, such as happened with Carsharing and CoLiving. External factors such as war, social conflicts, the collapse of the financial system, climate change and its consequences, privatization of public goods such as drinking water, and environmental disasters could endanger our plans. But also our inner monsters, such as greed and the hunger for power  could torpedo the project. There is always a danger that the idea is not accepted, that the needs of the stakeholders are not met or met only partially; that there are ""too many cooks"" or that the concept can not be implemented due to conflicting priorities, or dependencies between partners and networks arise. Yet we see possibilities to work against these risks. Reality has proven that it already works, and many people are working toward this aim worldwide: We are many! We cooperate and we are a network. We have sufficient human capacity. Our approach is flexible and can be used in existing structures and institutions. Dependence on existing systems and infrastructures can be solved via an ""open-source"" approach that leads to a multiplying effect, where copying is allowed and actively encouraged. This leads to the reduction of fears, relaxation, deceleration, satisfaction and happiness. There will be systemic relief or elimination of the superfluous, as well as personal and societal development potential through inclusion and the integration of ""fringe groups"" such as unemployed, refugees or marginalized citizens. For evaluation it is intended to study these criteria and assumptions in order to confirm them: Self-organization in groups works. Positions, attitudes and values are part of a common vision. Skills are included and allocated according to an open source principle. The new system or the new platform reaches more people and connects more participants than previous systems or platforms. There are spaces where encounters already take place. Spaces can be created where encounters are possible. Spaces that meet various needs lead to added value for all. Interestingly, it can be stated that all three working groups arrived at very similar approaches and ideas, problems and solutions during this intense, exciting and inspiring eight hour workshop: A change of perspective and a paradigm shift is required - instead of focusing on fighting disease, working towards the promotion of health! Caroline Paulick-Thiel & Jahn Harrison, nextlearning e.V. Translation: Alexander Paulick-Thiel",/post/542,2017-05-22T18:19:30.000Z,2017-05-22T18:19:30.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,12 9155,v1.0,,"#OPENandChange Workshop Berlin “Living, working and ageing healthily within society” The OPENandChange workshop in Berlin began with a round for participants to introduce themselves. This led straight into individual and collective reflection and the mapping of questions that mattered to participants. Here, three key issues emerged, which participants gathered in three working groups to address. One group tackled the question of ""How can we provide care and preventative care adequately and accessibly?"" in a process of collective brainstorming and idea development. As a central starting point was the agreement that care and prevention services should be provided by real people for real people, and thus to counteract the further dehumanization in care - both toward those being cared for, but also the caregivers themselves, as has been spreading as a result of the savings and efficiency measures, particularly in the public sector care, such as hospitals and nursing homes,. Based on this arose an idea for central, physical places and spaces in which cross-generational knowledge sharing communities with a decentralized ""bottom-up"" structure can develop. This should activate the local community at large and encourage more people to visit and thus bringing them together. Simultaneously, through the use of modern telecommunications and the Internet, communities that are located in remote areas will be included – the challenge of inadequate or even non-existent Internet connections in these areas could be countered by open-source technology solutions, such as balloons that are equipped with Internet. The necessary financial resources could be generated by a crowdfunding campaign, also to generate more public attention, especially online, for teaching/learning/exchange spaces for this innovation and strengthen the cohesion of the existing community. A key component of the engagement in these areas could be workshops of all types and themes to be organized, offered and held by participants themselves. These spaces could make a contribution to the initial formulation of questions, because a social community that is open and accessible for all faces the challenge of accessibility to prevention and care, supported by the Internet. Care and prevention again become a matter for the community, and are thus realized in a humane and proportionate way. This common ""bottom-up"" structure was made tangible in a first prototyping, which opened the question ""How can we engage individuals to support these structures, even if they ostensibly do not (yet) benefit from them?"" The prototype incorporated the approach of small and relatively autonomous systems where the supply and demand of communities for health and social themes can not only be met, but also that such knowledge can be bundled onsite and via the internet everyone has access to the spaces. Decisions about the design of health promoting coexistence are shaped by the particpating actors themselves. Finally, assumptions were formulated, which should be examined, scrutinized and discussed in the network in order to make this approach more effective and more efficient. Because even subtle or unconscious perceptions and attitudes can potentially be found in each concept, it needs to be balanced by many, diverse and also conflicting perspectives on the concept to make it more resistant. It was also reflected that a certain basic attitude is required of all potential participants to form these care and prevention networks. Another important point is posed by the question of: ""How can momentum be created for these spaces and networks?"" Another group addressed the question of: ""How can we, based on commonalities, learn more from each other?"" In a idea development and brainstorming process on this issue, the importance of local and personal interaction was recognized. This includes the networking of stakeholders and users, potentially through an interactive map on the Internet such as used by www.berlinimwandel.de. It also requires the organizing of engaging workshops where actors can share their enthusiasm for relevant topics with others by presenting them as relevant themes, and optionally also to demonstrate activities to make them tangible. In addition, activities such as role reversals to expand the individuals' horizons of experience are possible, as is done, for example, in working with ""age suits"" – young people slip into full-body suits equipped with weights to enable the experience of having an aged body. In a first prototype lifting the existing resources were, theoretically and practically, visualized through a mapping of individual and collaborative networking, both online and offline and person. This process led to the realization that everything is actually there to the realization of this idea already what is needed, when the dedicated actors gathered as OPENandChange workshop, work together and share their resources and combine theory with practice. These assumptions to check it seems important in the first step to begin with themselves, so to make the possibility of designing a different world tangible. This iterative process leads to fresh insights. But the community-based approach not only leads to new insights, but can lead to a higher incidence of fun and joy, and ultimately health and well-being by strengthening group working experiences. The third working group focused on the question: ""How can we increase the societal appreciation for a public welfare oriented social system?"" Also during this idea development and brainstorming process, the need for people to meet in person in ""their"" area, city, country was emphasized. For example, working in interactive groups can lead to an intensification of togetherness and can make prevention and care topic. The supposedly negative connotations otherwise associated with these concepts such as disease, death and a feeling of helplessness are thus transformed. A positive attitude towards the subject is promoted, fears can be reduced, and at the same time the respect and appreciation for the work of nurses and caregivers is increased. In particular, a playful approach to the subject can support this project and convey the idea that all can benefit. Another important aspect for answering the initial question is to explore the current actual situation in care. The question as to why the appreciation in prevention and care sector is so low can lead to valuable information to help find solutions. In prototyping, the motto of ""living appreciation"" was made tangible and concrete: Care and prevention spaces would be established in the middle of society, fulfilling the basic needs of all, which ensures the participation of all so that this approach corresponds to the wishes of all and fulfills their needs. To test this assumption requires a thorough basic research of existing resources, as well as bureaucratic hurdles, and to examine stakeholders, especially those who are not participating. Based on the work of the three groups, the following definition of the problems was generated: •    Dehumanization of health and social systems •    The focus on treating symptoms rather than promoting healthy lifestyles •    Privatization and capitalization of public goods, which should be accessible to all The concrete solution that the participants collectively devised, states that: •    All we need is there if we work together and share our resources •    A paradigm shift is needed: ""From Pathogenesis to Salutogenesis"" – Solidary Health Promotion System with Global Knowledge Network and Local Action Spaces •    Working ""with people for people"" and connect visionaries, experts, institutions and places through concrete actions This solution leads to the following intended: •    Employing existing treasures: Mapping for individual and community networking, online and in person, in theory and practice •    Practising appreciation: Create care and prevention spaces in the middle of society to fulfill the basic needs of all and create new incentive/recognition structures in the long term •    Local systemic change: Developing new skills, resources and infrastructure that can be used by all of us: children, young people, adults, seniors (people in all phases of life). Strong arguments for the proposal are: •    Bottom-up structure with small relatively autonomous systems, who self-regulate the supply and demand of health and social services for individuals and communities •    Only through shared ownership effectiveness and sustainability can this be secured Our approaches, technologies and tactics are: •    Active participation of ALL leads to a prototype that works for the majority and meets their needs (human-centered development of global platform and local spaces) •    Collective, iterative structure combining theory and practice •    Global Knowledge Network – CAREPEDIA: bundled knowledge (Internet / platform) all have access to the ""central office"" •    Local Action Spaces: Locally designed and managed spaces for health-promoting coexistence ""From Pathogenesis to Salutogenesis"" We believe our solution will work because: We have existing needs (more than 80% of people want a functional and appreciative system for care and prevention ) and real effects from a dehumanized health and care system. We know many people and institutions that are interested in cooperating and who would gladly contribute their respective expertise. Another world is within reach. There are many projects and movements to prove it. We shall make this even more visible. Everything we need is already there. We need the courage to try it, to experience and live it. We can make an active contribution to this. Financial resources are not a challenge or necessity to achieve this. As expected results – in the context of existing cases – we use the following examples: Successful EcoVillages such as Mondragon (a community in the Basque Country without police). Giving spaces, exchange meets and free shops. Micro-agriculture in the city. Urban gardening. Community-supported agriculture creates new relationships between city and land. There are urban farming initiatives in Detroit, critical consumption movements in Italy (GAS), alternative currency systems such as WIR in Switzerland, and solidarity networks for food supply and health clinics in Greece, as well as Networks such as SOLIDAGO and Artabana in Germany. And many more. Furthermore, our proposal is confirmed by literature and scientific consensus such as in the field of neuronal research: Fear paralyzes reason and creativity and leads to depression due to stress and alienation . Yet willingness for lifelong learning, creates new neural connections. Further scientific findings such as the Hierarchy of Needs Maslow, the concept of The Ever-Present Origin (Stuttgart 1949-1953) by Jean Gebser, the classic theories of J.M. Baldwin, G.H. Mead, J. Piaget (The Psychology of the Child) and L. Kohlberg as well as related work by C. Gilligan, F. Oser and M. Parsons. Also the literature and research by Ken Wilber, Aurobindo Ghose, Ervin László, Don Beck, and Michael Murphy;  work on Emotional Intelligence by Daniel Goleman, und the research by Kropotkin, who proved that cooperation is more important than competition in the animal kingdom and is effective for the survival of the group. Also the ample literature on the topics of sustainable lifestyles, Solidarity economy, Holacracy and Sociocracy support our suggested solution. However, it is necessary to keep sight of the risks. Here there are also a number of examples that could occur either externally or internally: The risk that corporations hijack the ideas and commercialize them, such as happened with Carsharing and CoLiving. External factors such as war, social conflicts, the collapse of the financial system, climate change and its consequences, privatization of public goods such as drinking water, and environmental disasters could endanger our plans. But also our inner monsters, such as greed and the hunger for power  could torpedo the project. There is always a danger that the idea is not accepted, that the needs of the stakeholders are not met or met only partially; that there are ""too many cooks"" or that the concept can not be implemented due to conflicting priorities, or dependencies between partners and networks arise. Yet we see possibilities to work against these risks. Reality has proven that it already works, and many people are working toward this aim worldwide: We are many! We cooperate and we are a network. We have sufficient human capacity. Our approach is flexible and can be used in existing structures and institutions. Dependence on existing systems and infrastructures can be solved via an ""open-source"" approach that leads to a multiplying effect, where copying is allowed and actively encouraged. This leads to the reduction of fears, relaxation, deceleration, satisfaction and happiness. There will be systemic relief or elimination of the superfluous, as well as personal and societal development potential through inclusion and the integration of ""fringe groups"" such as unemployed, refugees or marginalized citizens. For evaluation it is intended to study these criteria and assumptions in order to confirm them: Self-organization in groups works. Positions, attitudes and values are part of a common vision. Skills are included and allocated according to an open source principle. The new system or the new platform reaches more people and connects more participants than previous systems or platforms. There are spaces where encounters already take place. Spaces can be created where encounters are possible. Spaces that meet various needs lead to added value for all. Interestingly, it can be stated that all three working groups arrived at very similar approaches and ideas, problems and solutions during this intense, exciting and inspiring eight hour workshop: A change of perspective and a paradigm shift is required - instead of focusing on fighting disease, working towards the promotion of health! Caroline Paulick-Thiel & Jahn Harrison, nextlearning e.V. Translation: Alexander Paulick-Thiel",/post/542,2017-05-22T18:19:14.000Z,2017-05-22T18:19:14.000Z,542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,509,1257 5610,v1.0,,"1.2 Acquisizione di idee, spunti, intuizioni Lo spunto iniziale che ha dato l’avvio al progetto è scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilità nel fornire informazioni dettagliate circa la patologia da affrontare. 1.3 Definizione del problema Il problema che abbiamo affrontato può essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilità di fornire tali informazioni allo specialista successivo. Doc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico può affrontare ogni nuova visita avendo già chiara l’anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilità di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica. 2.0 Definizione 2.1 Analisi delle soluzioni In seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro”c”: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario. 2.2 Ideazione del concept In seguito ai risultati scaturiti dalle tecniche di brainstorming, è stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc…). Queste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso. Infatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove è necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all’oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale è costretto ad assumersi la piena responsabilità dell’accuratezza e completezza delle informazioni fornite. 2.3 Proposta della soluzione In seguito alla ricerca svolta, è stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita. Abbiamo così progettato uno strumento gestionale che facilita l’organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende più efficiente la visita stessa poiché doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita. Doc.doc infatti può essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l’altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare. 3.0 Sviluppo 3.1 Progettazione e prova del prototipo Doc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io. Prima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalità. In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l’ambito di lavoro. A seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una “one primary task”, che nel caso di doc.doc consiste nell’aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti o medici di base, in studio o in visita a domicilio etc…) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si può avere una tangibile esperienza d’uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera cartella è sufficiente aprire il file index.html con il proprio browser, meglio se Chrome). Inoltre in seguito allo sviluppo del prototipo è stato condotto un piccolo usability testing che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si può prendere visione al link sopracitato. 3.2 Prova della fruibilità E’ stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilità stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine. Sono stati riscontrati alcuni problemi nella fruibilità dei dati della cartella clinica e delle funzionalità ad essa collegate (è infatti possibile anche iniziare una conversazione con un collega). L’organizzazione dei contenuti di quella determinata schermata è stata quindi modificata sulla base dei feedback ricevuti, così come l’intero look&feel dell’applicazione è stato rivisto coerentemente rispetto alle modifiche apportate. 4.0 Rilascio 4.1 Completamento del prodotto/servizio Il prototipo è già stato testato, ma andrebbe ulteriormente verificato su un campione più esteso di utenti, seguito eventualmente da un A/B testing. Conclusa la fase di usability testing sul prototipo, si procederà quindi con lo sviluppo di programmazione vero e proprio, la cui funzionalità verrà verificata ad ogni milestone raggiunta. Infine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio. 4.2 Rilascio finale E’ in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche. 4.3 Produzione Il team di sviluppo tecnico è ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE (http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.",/post/33729,2017-05-22T18:17:42.000Z,2017-05-22T18:17:42.000Z,33729,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,352 7771,v1.0,,"I find that implementing our app and the concept in the ONG sector dedicated to emergency situations is not only interesting and suitable, but needed and helpful. Since the app was initially designed to ease and facilitate both doctor and the patient in the transitory situations I was considering to contact and involve a friend working in the immigration reception center in Ancona to have more insight, information and clarify any doubts. Let me know what are your thoughts on this",/post/33789,2017-05-22T18:16:52.000Z,2017-05-22T18:16:52.000Z,33789,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,936 7179,v1.0,,"I find that implementing our app and the concept in the ONG sector dedicated to emergency situations is not only interesting and suitable, but needed and helpful. Since the app was initially designed to ease and facilitate both doctor and the patient in the transitory situations I was considering to contact and involve a friend working in the immigration reception center in Ancona to have more insight, information and clarify any doubts. Let me know what are your thoughts on this",/post/33789,2017-05-22T18:16:24.000Z,2017-05-22T18:16:24.000Z,33789,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,773 5404,v1.0,,"This made me think of trying to change the context of the concept and switch to scenarios such as the activity of ONGs like Doctors Without Borders, or thinking at care issues in refugee camps on European soil at this present day.",/post/33771,2017-05-22T18:16:09.000Z,2017-05-22T18:16:09.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,301 10141,v1.0,,"This made me think of trying to change the context of the concept and switch to scenarios such as the activity of ONGs like Doctors Without Borders, or thinking at care issues in refugee camps on European soil at this present day. I believe that re-thinking the service/app in terms of the specific needs in the scenarios above could lead to interesting solutions and could work for different reasons:",/post/33771,2017-05-22T18:15:49.000Z,2017-05-22T18:15:49.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1459 9241,v1.0,,2 Such a digital system/experience could be way more powerful when there is actually a language barrier and/or the patient itself is in a context s/he doesn't know very well how to swim in.,/post/33771,2017-05-22T18:15:24.000Z,2017-05-22T18:15:24.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1271 6273,v1.0,,"considerations: 1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital, primary care physicians, etc...) to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience... )",/post/33771,2017-05-22T18:15:17.000Z,2017-05-22T18:15:17.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,447 9840,v1.0,,"Now this leads to two different considerations: 1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital, primary care physicians, etc...) to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience... )",/post/33771,2017-05-22T18:15:08.000Z,2017-05-22T18:15:08.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1425 10868,v1.0,,"Now this leads to two different considerations: 1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital, primary care physicians, etc...) to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience... )",/post/33771,2017-05-22T18:14:39.000Z,2017-05-22T18:14:39.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,1666 5609,v1.0,,"Talking about the proposal, I like the idea of helping doctors communicating  more efficiently with each other in order to help patients, as a consequence, in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.",/post/33771,2017-05-22T18:14:34.000Z,2017-05-22T18:14:34.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,352 7027,v1.0,,"alking about the proposal, I like the idea of helping doctors communicating  more efficiently with each other in order to help patients, as a consequence, in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.",/post/33771,2017-05-22T18:14:25.000Z,2017-05-22T18:14:25.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,737 5607,v1.0,,"alking about the proposal, I like the idea of helping doctors communicating  more efficiently with each other in order to help patients, as a consequence, in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.",/post/33771,2017-05-22T18:14:05.000Z,2017-05-22T18:14:05.000Z,33771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6578,350 9424,v1.0,,"Hi @SaraAsnada I'm curious how did you get your first school? Did you have a building where you could organise things? Currently, running more schools and activties means that you have different places where people meet to learn?  I'm asking because you posted in Policies of Care - did the City help in the beginning or did you have your own assets?",/post/16570,2017-05-22T18:12:55.000Z,2017-05-22T18:12:55.000Z,16570,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,1308 5520,v1.0,,"Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?  Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).  Our schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it’s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical. The language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don’t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.  Montessori’s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group. During these years we’ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:  The discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize “The ground language” (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.  The comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named “Roots and Branches” (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.  Due to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group. The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.  From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.  Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages. The “Cascina” will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.",/post/828,2017-05-22T18:12:09.000Z,2017-05-22T18:12:09.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,325 5433,v1.0,,"Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages",/post/828,2017-05-22T18:11:53.000Z,2017-05-22T18:11:53.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,310 4694,v1.0,,"Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.",/post/828,2017-05-22T18:11:49.000Z,2017-05-22T18:11:49.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,60 10368,v1.0,,"From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.  Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.",/post/828,2017-05-22T18:11:39.000Z,2017-05-22T18:11:39.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,1532 6057,v1.0,,"From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.  Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.",/post/828,2017-05-22T18:11:32.000Z,2017-05-22T18:11:32.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,416 4948,v1.0,,"The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.",/post/828,2017-05-22T18:11:13.000Z,2017-05-22T18:11:13.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,124 11249,v1.0,,"The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.",/post/828,2017-05-22T18:10:58.000Z,2017-05-22T18:10:58.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,1775 8868,v1.0,,". In order to allow everybody to have the opportunity to express himself or herself, we don’t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.",/post/828,2017-05-22T18:10:38.000Z,2017-05-22T18:10:38.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,1179 7490,v1.0,,"Our schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it’s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical.",/post/828,2017-05-22T18:10:08.000Z,2017-05-22T18:10:08.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,864 8755,v1.0,,"Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?  Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).  Our schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it’s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical. The language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don’t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.  Montessori’s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group. During these years we’ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:  The discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize “The ground language” (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.  The comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named “Roots and Branches” (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.  Due to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group. The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.  From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.  Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages. The “Cascina” will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.",/post/828,2017-05-22T18:09:49.000Z,2017-05-22T18:09:49.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,1150 10854,v1.0,,"Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?  Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).  Our schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it’s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical. The language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don’t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.  Montessori’s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group. During these years we’ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:  The discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize “The ground language” (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.  The comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named “Roots and Branches” (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.  Due to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group. The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.  From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.  Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages. The “Cascina” will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.",/post/828,2017-05-22T18:09:38.000Z,2017-05-22T18:09:38.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,1659 7136,v1.0,,"Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?  Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).  Our schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it’s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical. The language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don’t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.  Montessori’s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group. During these years we’ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:  The discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize “The ground language” (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.  The comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named “Roots and Branches” (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.  Due to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group. The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.  From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.  Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The “Cascina” will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema wants to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages. The “Cascina” will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.",/post/828,2017-05-22T18:09:29.000Z,2017-05-22T18:09:29.000Z,828,3323,AnnotatorStore::TextAnnotation,,,,,,,,,795,766 7527,v1.0,,"The project is to be developed for individuals, hobby-farmers to the mega agricultural industries and it's not only for B2B bussineses.  We have more than a lot of arguments covering our requests and developing. Investing on this project will bring financial and social goods and will give a very effective and professional solution to this space of the working cycle. The website is just an presentation of our main activities, but programming and developing is something we do on other behalfs of time. You can also visit the social network, founded by our Team member Mr. Herolind Luzha and it's under https://www.itrendin.com/ to find or download it on forAndroid or IOS. We have 2 type of fundraising presentations and also a very precissive description of the project which i would gladly also share with you.",/post/14028,2017-05-22T18:07:16.000Z,2017-05-22T18:07:16.000Z,14028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,538,876 4614,v1.0,,"The project is to be developed for individuals, hobby-farmers to the mega agricultural industries and it's not only for B2B bussineses.  We have more than a lot of arguments covering our requests and developing. Investing on this project will bring financial and social goods and will give a very effective and professional solution to this space of the working cycle. The website is just an presentation of our main activities, but programming and developing is something we do on other behalfs of time. You can also visit the social network, founded by our Team member Mr. Herolind Luzha and it's under https://www.itrendin.com/ to find or download it on forAndroid or IOS. We have 2 type of fundraising presentations and also a very precissive description of the project which i would gladly also share with you.",/post/14028,2017-05-22T18:07:05.000Z,2017-05-22T18:07:05.000Z,14028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,538,32 7526,v1.0,,"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land. http://www.phoenixconnections.net",/post/571,2017-05-22T18:06:50.000Z,2017-05-22T18:06:50.000Z,571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,538,876 6493,v1.0,,"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land. http://www.phoenixconnections.net",/post/571,2017-05-22T18:06:41.000Z,2017-05-22T18:06:41.000Z,571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,538,485 7388,v1.0,,"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land. http://www.phoenixconnections.net",/post/571,2017-05-22T18:06:33.000Z,2017-05-22T18:06:33.000Z,571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,538,825 4613,v1.0,,"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land. http://www.phoenixconnections.net",/post/571,2017-05-22T18:06:26.000Z,2017-05-22T18:06:26.000Z,571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,538,32 8930,v1.0,,"We want to create weekly discovery walks around Bovisa guided by students or locals. The walks will focus each time on a different kind of places (shops, parks, bars etc. or design-oriented, food-oriented etc.), with the aim of getting students and people from the neighborhood together to know more about the opportunities offered in the area. There will be a stop in each place and the owner(s) will tell a story around a metaphorical fireplace about their experience in Bovisa and the place itself. For the owners it will be a way to promote their activity and at the same time visitors will be able to have a better overview of what the neighborhood offers.",/post/836,2017-05-22T18:05:33.000Z,2017-05-22T18:05:33.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1197 10690,v1.0,,"We want to create weekly discovery walks around Bovisa guided by students or locals. The walks will focus each time on a different kind of places (shops, parks, bars etc. or design-oriented, food-oriented etc.), with the aim of getting students and people from the neighborhood together to know more about the opportunities offered in the area. There will be a stop in each place and the owner(s) will tell a story around a metaphorical fireplace about their experience in Bovisa and the place itself. For the owners it will be a way to promote their activity and at the same time visitors will be able to have a better overview of what the neighborhood offers.",/post/836,2017-05-22T18:05:26.000Z,2017-05-22T18:05:26.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1625 11416,v1.0,,"We want to create weekly discovery walks around Bovisa guided by students or locals. The walks will focus each time on a different kind of places (shops, parks, bars etc. or design-oriented, food-oriented etc.), with the aim of getting students and people from the neighborhood together to know more about the opportunities offered in the area. There will be a stop in each place and the owner(s) will tell a story around a metaphorical fireplace about their experience in Bovisa and the place itself. For the owners it will be a way to promote their activity and at the same time visitors will be able to have a better overview of what the neighborhood offers.",/post/836,2017-05-22T18:05:17.000Z,2017-05-22T18:05:17.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1837 7353,v1.0,,"Using storyboard we analysed all the steps of our idea. By defining stages it was easier to manage the concept and structure it in all the aspects. We decided to collaborate with local people and shop owners for outlining these walks, contacting them directly. According to this we decided to reach customers using different channels, young people will be contacted through Facebook pages and neighbourhood through posters hanging around Bovisa’s area. We will plan walks concentrated on different topics that will change each week. People could remain in touch with events chatting our Whatsapp number. They will have the possibility to become part of our group, guiding teams or translating tour.",/post/836,2017-05-22T18:05:03.000Z,2017-05-22T18:05:03.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,817 11415,v1.0,,"Using storyboard we analysed all the steps of our idea. By defining stages it was easier to manage the concept and structure it in all the aspects. We decided to collaborate with local people and shop owners for outlining these walks, contacting them directly. According to this we decided to reach customers using different channels, young people will be contacted through Facebook pages and neighbourhood through posters hanging around Bovisa’s area. We will plan walks concentrated on different topics that will change each week. People could remain in touch with events chatting our Whatsapp number. They will have the possibility to become part of our group, guiding teams or translating tour.",/post/836,2017-05-22T18:04:55.000Z,2017-05-22T18:04:55.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1837 8341,v1.0,,"As a result of the exercise that we developed in class, we reflect in our needs as students and the offer we could make to residents of the neighborhood and as a result we identified the following areas of interaction: Free time: we are looking for a place to exchange skills and tools and a place to hang around in order to revalue time, a place to share cultures and for stories to be told. Language: we encounter some language barriers and are seeking for a “connector” to the local community, in exchange we can offer to learn a new language. Company: often we just need a shoulder to lean on or someone to trust our house keys, but also exchanging about work – we would offer mutual support. Food: in this case, we usually lack time and money, but are eager to eat healthy. We would like to share groceries, could use a hand while carrying the bulk home and prefer to eat together. In exchange for knowledge or tools we could offer a hand in household keeping. Eventually we identified food as common ground to access also other needs of care, as well as an initial starting point to engage both students and locals.",/post/836,2017-05-22T18:04:18.000Z,2017-05-22T18:04:18.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1090 10742,v1.0,,"As a result of the exercise that we developed in class, we reflect in our needs as students and the offer we could make to residents of the neighborhood and as a result we identified the following areas of interaction: Free time: we are looking for a place to exchange skills and tools and a place to hang around in order to revalue time, a place to share cultures and for stories to be told. Language: we encounter some language barriers and are seeking for a “connector” to the local community, in exchange we can offer to learn a new language. Company: often we just need a shoulder to lean on or someone to trust our house keys, but also exchanging about work – we would offer mutual support. Food: in this case, we usually lack time and money, but are eager to eat healthy. We would like to share groceries, could use a hand while carrying the bulk home and prefer to eat together. In exchange for knowledge or tools we could offer a hand in household keeping. Eventually we identified food as common ground to access also other needs of care, as well as an initial starting point to engage both students and locals.",/post/836,2017-05-22T18:04:15.000Z,2017-05-22T18:04:15.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1636 8340,v1.0,,"Day 1: As a result of the exercise that we developed in class, we reflect in our needs as students and the offer we could make to residents of the neighborhood and as a result we identified the following areas of interaction: Free time: we are looking for a place to exchange skills and tools and a place to hang around in order to revalue time, a place to share cultures and for stories to be told. Language: we encounter some language barriers and are seeking for a “connector” to the local community, in exchange we can offer to learn a new language. Company: often we just need a shoulder to lean on or someone to trust our house keys, but also exchanging about work – we would offer mutual support. Food: in this case, we usually lack time and money, but are eager to eat healthy. We would like to share groceries, could use a hand while carrying the bulk home and prefer to eat together. In exchange for knowledge or tools we could offer a hand in household keeping. Eventually we identified food as common ground to access also other needs of care, as well as an initial starting point to engage both students and locals.",/post/836,2017-05-22T18:02:40.000Z,2017-05-22T18:02:40.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1090 10741,v1.0,,"Day 1: As a result of the exercise that we developed in class, we reflect in our needs as students and the offer we could make to residents of the neighborhood and as a result we identified the following areas of interaction: Free time: we are looking for a place to exchange skills and tools and a place to hang around in order to revalue time, a place to share cultures and for stories to be told. Language: we encounter some language barriers and are seeking for a “connector” to the local community, in exchange we can offer to learn a new language. Company: often we just need a shoulder to lean on or someone to trust our house keys, but also exchanging about work – we would offer mutual support. Food: in this case, we usually lack time and money, but are eager to eat healthy. We would like to share groceries, could use a hand while carrying the bulk home and prefer to eat together. In exchange for knowledge or tools we could offer a hand in household keeping. Eventually we identified food as common ground to access also other needs of care, as well as an initial starting point to engage both students and locals.",/post/836,2017-05-22T18:02:35.000Z,2017-05-22T18:02:35.000Z,836,3323,AnnotatorStore::TextAnnotation,,,,,,,,,803,1636 10367,v1.0,,"How did you get hold of the space and for how long? While The Reef is similar in the idea of sharing physical space to support each other, the model for making it sustainable and not conditional on core team members or Edgeryders as an initial (small) investor is a challenge.. which is why we want to run a session on co-designing it during our Festival in the fall. Of course, this is designing by doing, as we cant afford a year of just planning. Would you be interested in joining the festival?",/post/14071,2017-05-22T18:01:50.000Z,2017-05-22T18:01:50.000Z,14071,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1532 5509,v1.0,,"The most concrete and useful info I found on your website is this: An 11.000 sqm house gives space to everyone who has an in^terest in contributing time, skills and resources into a manifestation of unconditional sharing and co-creation.",/post/14071,2017-05-22T18:01:39.000Z,2017-05-22T18:01:39.000Z,14071,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,322 10382,v1.0,,"An 11.000 sqm house gives space to everyone who has an in^terest in contributing time, skills and resources into a manifestation of unconditional sharing and co-creation.",/post/14071,2017-05-22T18:01:32.000Z,2017-05-22T18:01:32.000Z,14071,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1534 4754,v1.0,,"Hey dear fellow edgeryders! How can we create the most amazing world by being all of ourselves? How can we explore more of our loving and creative potential as well as create a world that reflects this inner beauty and love?  These are two vital questions for me and why I'm ""Creating new realities"". There's this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that's feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.  To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.  So can we do that? Create new realities and find deeper love within and for each other? Can we create and hold space? Can we set up a world that's a reflection of the love and creative potential? Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that's natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn't serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic? Over the last years I've been organizing several series of meetings about personal transformation and living from the heart (for instance; Vrij met Geld/ Free with Money). Also I've worked and lived with changemakers communities, for instance at the Synergyhub in Rotterdam and several ecovillages/ ecocenter's, as well as intensely researched the topic of enlightenment and spiritual growth and the physical world. Over the last months I've started writing a book: Step into creation - guidebook for a co-creative universe. Recently I've started a platform ""Creating new realities"". One of the important lessons I learned is: ""you can't co-create if you don't resonate"" and ""a little shift in perspective"" is often all you need to get back into flow. When I stop resisting, things happen. ""When I let go, I know"". Behind the known is a infinite field of potential. There lies true excitement. There is infinite inspiration at our disposal. And at the same time, it's nice to play with the physical. So to make the world a reflection of our spiritual growth. To let both go hand in hand. To grow and deepen the quality of relationships and communities. To develop the society and create things that represent our love for the world and the mystery of creation. These are some of my most important reflections over my experiences. That's what I'd love to inspire and catalyze! To create realities that are infinitely inspiring and joyful.  Looking forward to co-create with you!",/post/846,2017-05-22T18:01:11.000Z,2017-05-22T18:01:11.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,71 5508,v1.0,,"One of the important lessons I learned is: ""you can't co-create if you don't resonate"" and ""a little shift in perspective"" is often all you need to get back into flow. When I stop resisting, things happen. """,/post/846,2017-05-22T18:01:06.000Z,2017-05-22T18:01:06.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,322 10292,v1.0,,"Over the last years I've been organizing several series of meetings about personal transformation and living from the heart (for instance; Vrij met Geld/ Free with Money). Also I've worked and lived with changemakers communities, for instance at the Synergyhub in Rotterdam and several ecovillages/ ecocenter's, as well as intensely researched the topic of enlightenment and spiritual growth and the physical world. Over the last months I've started writing a book: Step into creation - guidebook for a co-creative universe. Recently I've started a platform ""Creating new realities"". One of the important lessons I learned is: ""you can't co-create if you don't resonate"" and ""a little shift in perspective"" is often all you need to get back into flow. When I stop resisting, things happen. ""When I let go, I know"". Behind the known is a infinite field of potential. There lies true excitement. There is infinite inspiration at our disposal. And at the same time, it's nice to play with the physical. So to make the world a reflection of our spiritual growth. To let both go hand in hand. To grow and deepen the quality of relationships and communities. To develop the society and create things that represent our love for the world and the mystery of creation. These are some of my most important reflections over my experiences. That's what I'd love to inspire and catalyze! To create realities that are infinitely inspiring and joyful.",/post/846,2017-05-22T18:00:58.000Z,2017-05-22T18:00:58.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1504 9245,v1.0,,shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential?,/post/846,2017-05-22T18:00:35.000Z,2017-05-22T18:00:35.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1273 9999,v1.0,,"Create new realities and find deeper love within and for each other? Can we create and hold space? Can we set up a world that's a reflection of the love and creative potential? Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that's natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn't serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic?",/post/846,2017-05-22T18:00:13.000Z,2017-05-22T18:00:13.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1445 9222,v1.0,,"Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that's natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn't serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic?",/post/846,2017-05-22T17:59:58.000Z,2017-05-22T17:59:58.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1269 8957,v1.0,,"To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.",/post/846,2017-05-22T17:59:43.000Z,2017-05-22T17:59:43.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1203 8384,v1.0,,"To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.",/post/846,2017-05-22T17:59:32.000Z,2017-05-22T17:59:32.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1102 7343,v1.0,,"To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.",/post/846,2017-05-22T17:59:23.000Z,2017-05-22T17:59:23.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,813 7178,v1.0,,"These are two vital questions for me and why I'm ""Creating new realities"". There's this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that's feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.",/post/846,2017-05-22T17:59:13.000Z,2017-05-22T17:59:13.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,772 11270,v1.0,,"These are two vital questions for me and why I'm ""Creating new realities"". There's this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that's feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.",/post/846,2017-05-22T17:59:04.000Z,2017-05-22T17:59:04.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1778 10622,v1.0,,"These are two vital questions for me and why I'm ""Creating new realities"". There's this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that's feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.  To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.  So can we do that? Create new realities and find deeper love within and for each other? Can we create and hold space? Can we set up a world that's a reflection of the love and creative potential? Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that's natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn't serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic? Over the last years I've been organizing several series of meetings about personal transformation and living from the heart (for instance; Vrij met Geld/ Free with Money). Also I've worked and lived with changemakers communities, for instance at the Synergyhub in Rotterdam and several ecovillages/ ecocenter's, as well as intensely researched the topic of enlightenment and spiritual growth and the physical world. Over the last months I've started writing a book: Step into creation - guidebook for a co-creative universe. Recently I've started a platform ""Creating new realities"". One of the important lessons I learned is: ""you can't co-create if you don't resonate"" and ""a little shift in perspective"" is often all you need to get back into flow. When I stop resisting, things happen. ""When I let go, I know"". Behind the known is a infinite field of potential. There lies true excitement. There is infinite inspiration at our disposal. And at the same time, it's nice to play with the physical. So to make the world a reflection of our spiritual growth. To let both go hand in hand. To grow and deepen the quality of relationships and communities. To develop the society and create things that represent our love for the world and the mystery of creation. These are some of my most important reflections over my experiences. That's what I'd love to inspire and catalyze! To create realities that are infinitely inspiring and joyful.  Looking forward to co-create with you! Ewoud",/post/846,2017-05-22T17:58:52.000Z,2017-05-22T17:58:52.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1610 9998,v1.0,,How can we create the most amazing world by being all of ourselves? How can we explore more of our loving and creative potential as well as create a world that reflects this inner beauty and love?,/post/846,2017-05-22T17:58:42.000Z,2017-05-22T17:58:42.000Z,846,3323,AnnotatorStore::TextAnnotation,,,,,,,,,813,1445 6437,v1.0,,"What an inspiring story, @MAZI. Thank you so much to share it. Knowing many people soffering from depression and knowing how they can be judged in the wrong way, it's very refereshing to see there is hope out there. How can people get in touch with you?",/post/16765,2017-05-22T17:56:27.000Z,2017-05-22T17:56:27.000Z,16765,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,483 10123,v1.0,,Our main problem is the lack of our place. And this prevents us to carry out many other goals we have in order to fill the ever increasing needs of greek society on mental health. It is known that the financial crisis in our country makes it even more difficult. We need all the assistance that could be given in every way.,/post/751,2017-05-22T17:56:06.000Z,2017-05-22T17:56:06.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1451 8207,v1.0,,Our main problem is the lack of our place. And this prevents us to carry out many other goals we have in order to fill the ever increasing needs of greek society on mental health. It is known that the financial crisis in our country makes it even more difficult. We need all the assistance that could be given in every way.,/post/751,2017-05-22T17:55:52.000Z,2017-05-22T17:55:52.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1056 8842,v1.0,,"Participants are people who have been diagnosed with mood disorder (Major Depressive Disorder, Dysthymic Disorder, Bipolar Disorder I and II and cyclothymic disorder). The groups often include relatives and friends of people with mood disorder. These groups do not have a therapeutic clinical role and therefore do not replace or supersede any medical, psychiatric or psychotherapeutic treatment that the participants may receive.",/post/751,2017-05-22T17:55:33.000Z,2017-05-22T17:55:33.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1169 6436,v1.0,,"From October 2014 until April 2016, MAZI participated as main partner in the program ''Citizens against depression"". The Programme aimed to strengthen civil society and enhance the contribution of NGOs to social justice, democracy and sustainable development. This project was funded by the Greek NGO Programme “We are all Citizens” which is part of the EEA & Norway Grants for Greece.",/post/751,2017-05-22T17:55:23.000Z,2017-05-22T17:55:23.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,483 10291,v1.0,,"This is not a program based on the “12 step” principle (ie. Alcoholics Anonymous). MAZI holds that each person has the knowledge and ability to find his personal path to ‘cure'. Hence, the groups are not based on any particular theoretical approach, except the value of established self-help and peer-support in a safe and non-critical environment.",/post/751,2017-05-22T17:55:15.000Z,2017-05-22T17:55:15.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1504 9602,v1.0,,"It is a collective and individual responsibility of each group member to make the discussion a safe place for sharing. We respect confidentiality, treating each other with respect, courtesy, understanding and compassion. Anyone wishing to share something has the opportunity to do so, with no participant monopolising the group’s time. The group allows each participant to speak without interruptions and side conversations. Everything said there, stays there, following the prime rule of confidentiality which must be respected and observed by all. This rule is only lifted when a member declares that it intends to do harm to himself/herself or to others.",/post/751,2017-05-22T17:54:44.000Z,2017-05-22T17:54:44.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1354 10190,v1.0,,"It is a collective and individual responsibility of each group member to make the discussion a safe place for sharing. We respect confidentiality, treating each other with respect, courtesy, understanding and compassion. Anyone wishing to share something has the opportunity to do so, with no participant monopolising the group’s time. The group allows each participant to speak without interruptions and side conversations. Everything said there, stays there, following the prime rule of confidentiality which must be respected and observed by all. This rule is only lifted when a member declares that it intends to do harm to himself/herself or to others.",/post/751,2017-05-22T17:54:36.000Z,2017-05-22T17:54:36.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1482 9771,v1.0,,to support and encourage members in regaining control and improving the quality of their lives and their relationships.,/post/751,2017-05-22T17:54:22.000Z,2017-05-22T17:54:22.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1401 10767,v1.0,,"In various foreign countries such groups (self-help or support groups) already count several years of experience and have proven their importance for effective self-management of Mood Disorders (in addition to any treatment). MAZI aspired to fill this gap in Greece. At this moment there are 3 groups in Athens and one in Thessaloniki. The ultimate goal is the creation and support of a nationwide network of regional annexes empowerment of people with mood disorder and mental health promotion. During the meet ups of MAZI’s self-help groups, the participants share their experiences, personal feelings, information and strategies that have been developed to deal with mood disorder and live a fulfilling life. These sessions are about peer-support through sharing personal experiences, knowledge, concerns, worries and strategies. Participants are people who have been diagnosed with mood disorder (Major Depressive Disorder, Dysthymic Disorder, Bipolar Disorder I and II and cyclothymic disorder). The groups often include relatives and friends of people with mood disorder. These groups do not have a therapeutic clinical role and therefore do not replace or supersede any medical, psychiatric or psychotherapeutic treatment that the participants may receive.",/post/751,2017-05-22T17:54:10.000Z,2017-05-22T17:54:10.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1640 10388,v1.0,,"During the meet ups of MAZI’s self-help groups, the participants share their experiences, personal feelings, information and strategies that have been developed to deal with mood disorder and live a fulfilling life. These sessions are about peer-support through sharing personal experiences, knowledge, concerns, worries and strategies.",/post/751,2017-05-22T17:53:44.000Z,2017-05-22T17:53:44.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1537 7693,v1.0,,"During the meet ups of MAZI’s self-help groups, the participants share their experiences, personal feelings, information and strategies that have been developed to deal with mood disorder and live a fulfilling life. These sessions are about peer-support through sharing personal experiences, knowledge, concerns, worries and strategies.",/post/751,2017-05-22T17:53:36.000Z,2017-05-22T17:53:36.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,915 10772,v1.0,,In various foreign countries such groups (self-help or support groups) already count several years of experience and have proven their importance for effective self-management of Mood Disorders (in addition to any treatment). MAZI aspired to fill this gap in Greece. At this moment there are 3 groups in Athens and one in Thessaloniki. The ultimate goal is the creation and support of a nationwide network of regional annexes empowerment of people with mood disorder and mental health promotion.,/post/751,2017-05-22T17:53:25.000Z,2017-05-22T17:53:25.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1641 5134,v1.0,,"HELLENIC ASSOCIATION FOR MOOD DISORDERS ""MAZI"" (“together” in Greek), is a non-profit organization established at 2010 by the majority of people with personal experience (patients and relatives) with Mood Disorders, friends of these people and professional experts with a special interest to participate in the effort of the association. The aim of the association is to support, empower and inform people suffering from mood disorder, their families and friends. The main vehicle for achieving this goal was the creation and support self-help groups for people with Mood Disorder.",/post/751,2017-05-22T17:53:09.000Z,2017-05-22T17:53:09.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,150 10279,v1.0,,"HELLENIC ASSOCIATION FOR MOOD DISORDERS ""MAZI"" (“together” in Greek), is a non-profit organization established at 2010 by the majority of people with personal experience (patients and relatives) with Mood Disorders, friends of these people and professional experts with a special interest to participate in the effort of the association. The aim of the association is to support, empower and inform people suffering from mood disorder, their families and friends. The main vehicle for achieving this goal was the creation and support self-help groups for people with Mood Disorder.",/post/751,2017-05-22T17:53:06.000Z,2017-05-22T17:53:06.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1499 10052,v1.0,,"HELLENIC ASSOCIATION FOR MOOD DISORDERS ""MAZI"" (“together” in Greek), is a non-profit organization established at 2010 by the majority of people with personal experience (patients and relatives) with Mood Disorders, friends of these people and professional experts with a special interest to participate in the effort of the association. The aim of the association is to support, empower and inform people suffering from mood disorder, their families and friends. The main vehicle for achieving this goal was the creation and support self-help groups for people with Mood Disorder. In various foreign countries such groups (self-help or support groups) already count several years of experience and have proven their importance for effective self-management of Mood Disorders (in addition to any treatment). MAZI aspired to fill this gap in Greece. At this moment there are 3 groups in Athens and one in Thessaloniki. The ultimate goal is the creation and support of a nationwide network of regional annexes empowerment of people with mood disorder and mental health promotion. During the meet ups of MAZI’s self-help groups, the participants share their experiences, personal feelings, information and strategies that have been developed to deal with mood disorder and live a fulfilling life. These sessions are about peer-support through sharing personal experiences, knowledge, concerns, worries and strategies. Participants are people who have been diagnosed with mood disorder (Major Depressive Disorder, Dysthymic Disorder, Bipolar Disorder I and II and cyclothymic disorder). The groups often include relatives and friends of people with mood disorder. These groups do not have a therapeutic clinical role and therefore do not replace or supersede any medical, psychiatric or psychotherapeutic treatment that the participants may receive. There are no expert lectures and no self-pity parties. These self-help groups are meet ups of optimism, hope and encouragement. The specific objectives of the programme are: to support and encourage members in regaining control and improving the quality of their lives and their relationships. to provide an environment of emotional support, which reduces isolation and alienation, moderates despair and increases optimism, personal responsibility and self-acceptance. to help members extract greater joy and satisfaction from life, in spite of difficulties, obstacles, frustrations and setbacks. to help members learn and practice new, more effective and satisfactory ways of relating to others. It is a collective and individual responsibility of each group member to make the discussion a safe place for sharing. We respect confidentiality, treating each other with respect, courtesy, understanding and compassion. Anyone wishing to share something has the opportunity to do so, with no participant monopolising the group’s time. The group allows each participant to speak without interruptions and side conversations. Everything said there, stays there, following the prime rule of confidentiality which must be respected and observed by all. This rule is only lifted when a member declares that it intends to do harm to himself/herself or to others. It is OK to share, but whoever doesn’t want to, is not obliged to do it. We are all equal, and no distinctions are permitted on the basis of gender, race or age. Everyone has the right to their own opinion and tries not to impose the accuracy or uniqueness of these views. We use the “I” language (or “I message”), we don’t teach, command or advise others. We only share our experiences, ie. “according to my own experience, it is very helpful to…” rather than “what you should do…” This is not a program based on the “12 step” principle (ie. Alcoholics Anonymous). MAZI holds that each person has the knowledge and ability to find his personal path to ‘cure'. Hence, the groups are not based on any particular theoretical approach, except the value of established self-help and peer-support in a safe and non-critical environment. From October 2014 until April 2016, MAZI participated as main partner in the program ''Citizens against depression"". The Programme aimed to strengthen civil society and enhance the contribution of NGOs to social justice, democracy and sustainable development. This project was funded by the Greek NGO Programme “We are all Citizens” which is part of the EEA & Norway Grants for Greece.",/post/751,2017-05-22T17:52:47.000Z,2017-05-22T17:52:47.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1446 8580,v1.0,,"HELLENIC ASSOCIATION FOR MOOD DISORDERS ""MAZI"" (“together” in Greek), is a non-profit organization established at 2010 by the majority of people with personal experience (patients and relatives) with Mood Disorders, friends of these people and professional experts with a special interest to participate in the effort of the association. The aim of the association is to support, empower and inform people suffering from mood disorder, their families and friends. The main vehicle for achieving this goal was the creation and support self-help groups for people with Mood Disorder. In various foreign countries such groups (self-help or support groups) already count several years of experience and have proven their importance for effective self-management of Mood Disorders (in addition to any treatment). MAZI aspired to fill this gap in Greece. At this moment there are 3 groups in Athens and one in Thessaloniki. The ultimate goal is the creation and support of a nationwide network of regional annexes empowerment of people with mood disorder and mental health promotion. During the meet ups of MAZI’s self-help groups, the participants share their experiences, personal feelings, information and strategies that have been developed to deal with mood disorder and live a fulfilling life. These sessions are about peer-support through sharing personal experiences, knowledge, concerns, worries and strategies. Participants are people who have been diagnosed with mood disorder (Major Depressive Disorder, Dysthymic Disorder, Bipolar Disorder I and II and cyclothymic disorder). The groups often include relatives and friends of people with mood disorder. These groups do not have a therapeutic clinical role and therefore do not replace or supersede any medical, psychiatric or psychotherapeutic treatment that the participants may receive. There are no expert lectures and no self-pity parties. These self-help groups are meet ups of optimism, hope and encouragement. The specific objectives of the programme are: to support and encourage members in regaining control and improving the quality of their lives and their relationships. to provide an environment of emotional support, which reduces isolation and alienation, moderates despair and increases optimism, personal responsibility and self-acceptance. to help members extract greater joy and satisfaction from life, in spite of difficulties, obstacles, frustrations and setbacks. to help members learn and practice new, more effective and satisfactory ways of relating to others. It is a collective and individual responsibility of each group member to make the discussion a safe place for sharing. We respect confidentiality, treating each other with respect, courtesy, understanding and compassion. Anyone wishing to share something has the opportunity to do so, with no participant monopolising the group’s time. The group allows each participant to speak without interruptions and side conversations. Everything said there, stays there, following the prime rule of confidentiality which must be respected and observed by all. This rule is only lifted when a member declares that it intends to do harm to himself/herself or to others. It is OK to share, but whoever doesn’t want to, is not obliged to do it. We are all equal, and no distinctions are permitted on the basis of gender, race or age. Everyone has the right to their own opinion and tries not to impose the accuracy or uniqueness of these views. We use the “I” language (or “I message”), we don’t teach, command or advise others. We only share our experiences, ie. “according to my own experience, it is very helpful to…” rather than “what you should do…” This is not a program based on the “12 step” principle (ie. Alcoholics Anonymous). MAZI holds that each person has the knowledge and ability to find his personal path to ‘cure'. Hence, the groups are not based on any particular theoretical approach, except the value of established self-help and peer-support in a safe and non-critical environment. From October 2014 until April 2016, MAZI participated as main partner in the program ''Citizens against depression"". The Programme aimed to strengthen civil society and enhance the contribution of NGOs to social justice, democracy and sustainable development. This project was funded by the Greek NGO Programme “We are all Citizens” which is part of the EEA & Norway Grants for Greece.",/post/751,2017-05-22T17:52:38.000Z,2017-05-22T17:52:38.000Z,751,3323,AnnotatorStore::TextAnnotation,,,,,,,,,718,1140 6913,v1.0,,"I've noticed, when discussing trust personally, that the meaning of trust is not as clear as it is sometimes assumed. To me there are levels of trust, that can be drawn out by asking questions like ""would you trust this person to..."" You can sort these questions by asking a bunch of them together about the same person. ""... take a letter to the post office""; ""... keep my house keys for emergency use""; ""... look after my child when I'm away"" (and what age of child?) ""... not to trick me or take advantage"" -- all these (and many more) might have different sets of people who I would trust in that way. For me, it's about having reasonable confidence that they would act in specific situations in a way similar to the way I would. Normally we get this only through personal experience. But if we documented trust more, we might be able to trust people based on the recommendations of other people we trust, for instance. Maybe worth exploring?",/post/16945,2017-05-22T17:48:19.000Z,2017-05-22T17:48:19.000Z,16945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,711 11269,v1.0,,"I agree with Alberto, epsecially in terms of having low risk starting points.  Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only ""let someone in"" after they have demonstrated in some way their worthiness.",/post/11618,2017-05-22T17:48:10.000Z,2017-05-22T17:48:10.000Z,11618,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1778 11268,v1.0,,"I've noticed, when discussing trust personally, that the meaning of trust is not as clear as it is sometimes assumed. To me there are levels of trust, that can be drawn out by asking questions like ""would you trust this person to..."" You can sort these questions by asking a bunch of them together about the same person. ""... take a letter to the post office""; ""... keep my house keys for emergency use""; ""... look after my child when I'm away"" (and what age of child?) ""... not to trick me or take advantage"" -- all these (and many more) might have different sets of people who I would trust in that way. For me, it's about having reasonable confidence that they would act in specific situations in a way similar to the way I would. Normally we get this only through personal experience. But if we documented trust more, we might be able to trust people based on the recommendations of other people we trust, for instance. Maybe worth exploring?",/post/16945,2017-05-22T17:48:03.000Z,2017-05-22T17:48:03.000Z,16945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1778 4753,v1.0,,"I agree with Alberto, epsecially in terms of having low risk starting points.  Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only ""let someone in"" after they have demonstrated in some way their worthiness.",/post/11618,2017-05-22T17:47:50.000Z,2017-05-22T17:47:50.000Z,11618,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,71 8388,v1.0,,"I agree with Alberto, epsecially in terms of having low risk starting points.  Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only ""let someone in"" after they have demonstrated in some way their worthiness.",/post/11618,2017-05-22T17:47:44.000Z,2017-05-22T17:47:44.000Z,11618,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1103 8387,v1.0,,"My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first. The trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.",/post/9116,2017-05-22T17:47:39.000Z,2017-05-22T17:47:39.000Z,9116,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1103 11267,v1.0,,"My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first. The trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.",/post/9116,2017-05-22T17:47:29.000Z,2017-05-22T17:47:29.000Z,9116,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1778 5533,v1.0,,"My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first. The trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.",/post/9116,2017-05-22T17:47:24.000Z,2017-05-22T17:47:24.000Z,9116,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,326 5532,v1.0,,When the discussion was coming to an end we all felt we had got a lot of information and the workshop was going to close. So Nadia came up with a good idea to end the workshop with something concrete. We all felt that one of the biggest issues in care is that we live to much on our own island and that if we want to make care better we need to share and collaborate. But to collaborate we need to create trust. So this exercise was given to every participant and will hopefully end up in solidifying the care network in Belgium. The following question was asked:,/post/788,2017-05-22T17:47:14.000Z,2017-05-22T17:47:14.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,326 5866,v1.0,,"Finding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow.",/post/788,2017-05-22T17:47:01.000Z,2017-05-22T17:47:01.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,381 7899,v1.0,,3) A story that binds us together - understanding how our different activities are related,/post/788,2017-05-22T17:46:40.000Z,2017-05-22T17:46:40.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,963 5957,v1.0,,3) A story that binds us together - understanding how our different activities are related,/post/788,2017-05-22T17:46:36.000Z,2017-05-22T17:46:36.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,394 10689,v1.0,,3) A story that binds us together - understanding how our different activities are related,/post/788,2017-05-22T17:46:09.000Z,2017-05-22T17:46:09.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1625 7031,v1.0,,4) Documentation: what does it mean? for us it has been in writing.,/post/788,2017-05-22T17:46:00.000Z,2017-05-22T17:46:00.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,738 6912,v1.0,,"1) Working trust is very different from social trust; and there needs to be a boundary.  2) What also worked for her is deciding to work on even a small project. 3) A story that binds us together - understanding how our different activities are related 4) Documentation: what does it mean? for us it has been in writing.",/post/788,2017-05-22T17:45:53.000Z,2017-05-22T17:45:53.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,711 5949,v1.0,,"For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.",/post/788,2017-05-22T17:45:41.000Z,2017-05-22T17:45:41.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,391 8419,v1.0,,"For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.",/post/788,2017-05-22T17:45:29.000Z,2017-05-22T17:45:29.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1110 9997,v1.0,,“‘Trust is an enabler to use the resources. How can that be created inside an eclectic group like this?’,/post/788,2017-05-22T17:45:22.000Z,2017-05-22T17:45:22.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1445 6312,v1.0,,"SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that.",/post/788,2017-05-22T17:45:14.000Z,2017-05-22T17:45:14.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,449 11266,v1.0,,"SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that. “‘Trust is an enabler to use the resources. How can that be created inside an eclectic group like this?’,asked Yannick.  For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.  Winnie reacted that your own people's trust is a constant, but gaining the network's trust is more difficult. With the help of Nadia we made a synthesis of the discussion 1) Working trust is very different from social trust; and there needs to be a boundary.  2) What also worked for her is deciding to work on even a small project. 3) A story that binds us together - understanding how our different activities are related 4) Documentation: what does it mean? for us it has been in writing. Finding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow. When the discussion was coming to an end we all felt we had got a lot of information and the workshop was going to close. So Nadia came up with a good idea to end the workshop with something concrete. We all felt that one of the biggest issues in care is that we live to much on our own island and that if we want to make care better we need to share and collaborate. But to collaborate we need to create trust. So this exercise was given to every participant and will hopefully end up in solidifying the care network in Belgium. The following question was asked: What can i bring to another organization, that also better myself as a person and is easily realizable? This question will be asked again at the next meeting we are organizing. If you want to join, fill in the framadate and put your contacts in comment. We will update this discussion at that point and see how we have concretized the thrust issue. https://framadate.org/gWB9QN65MCyedmrL",/post/788,2017-05-22T17:45:08.000Z,2017-05-22T17:45:08.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,1778 7503,v1.0,,"SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that. “‘Trust is an enabler to use the resources. How can that be created inside an eclectic group like this?’,asked Yannick.  For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.  Winnie reacted that your own people's trust is a constant, but gaining the network's trust is more difficult. With the help of Nadia we made a synthesis of the discussion 1) Working trust is very different from social trust; and there needs to be a boundary.  2) What also worked for her is deciding to work on even a small project. 3) A story that binds us together - understanding how our different activities are related 4) Documentation: what does it mean? for us it has been in writing. Finding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow. When the discussion was coming to an end we all felt we had got a lot of information and the workshop was going to close. So Nadia came up with a good idea to end the workshop with something concrete. We all felt that one of the biggest issues in care is that we live to much on our own island and that if we want to make care better we need to share and collaborate. But to collaborate we need to create trust. So this exercise was given to every participant and will hopefully end up in solidifying the care network in Belgium. The following question was asked: What can i bring to another organization, that also better myself as a person and is easily realizable? This question will be asked again at the next meeting we are organizing. If you want to join, fill in the framadate and put your contacts in comment. We will update this discussion at that point and see how we have concretized the thrust issue. https://framadate.org/gWB9QN65MCyedmrL",/post/788,2017-05-22T17:44:58.000Z,2017-05-22T17:44:58.000Z,788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,755,871 8005,v1.0,,"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest. Non-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?",/post/19608,2017-05-22T17:41:14.000Z,2017-05-22T17:41:14.000Z,19608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,996 6114,v1.0,,"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.",/post/19608,2017-05-22T17:40:24.000Z,2017-05-22T17:40:24.000Z,19608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,430 6311,v1.0,,"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.",/post/19608,2017-05-22T17:40:19.000Z,2017-05-22T17:40:19.000Z,19608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,449 9010,v1.0,,"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest. Non-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?",/post/19608,2017-05-22T17:40:11.000Z,2017-05-22T17:40:11.000Z,19608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1225 9008,v1.0,,"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest. Non-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?",/post/19608,2017-05-22T17:40:06.000Z,2017-05-22T17:40:06.000Z,19608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1224 6258,v1.0,,"I am also very updated with the cryptocurrencies and that has proven us that where is the will, there is a way which means that everything on what or which you work hard on for it will be perceived.  (Thumbs Up )",/post/26041,2017-05-22T17:39:40.000Z,2017-05-22T17:39:40.000Z,26041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,446 6026,v1.0,,"And achieving to create an cooperation community is a very, very smart idea as long as it will be promoted and shared with the community you live in or are planning to support. I would have a special request, as soon as you are planning an idea which will save and help the humankind, please try to create a fair cycle of the equality.",/post/26041,2017-05-22T17:39:29.000Z,2017-05-22T17:39:29.000Z,26041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,413 6042,v1.0,,"And achieving to create an cooperation community is a very, very smart idea as long as it will be promoted and shared with the community you live in or are planning to support. I would have a special request, as soon as you are planning an idea which will save and help the humankind, please try to create a fair cycle of the equality.",/post/26041,2017-05-22T17:39:23.000Z,2017-05-22T17:39:23.000Z,26041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,415 6239,v1.0,,"Well as very first I would like to graduate @ChristineSa you for your movement and idea at first of all. I have followed also a little the financial crisis in Greece through the news and the one and only thing that came across my mind is, that there are political conspiracies and reflectation of the crisis and the main reason is an earlier debt to the WEF and the Central Bank System",/post/26041,2017-05-22T17:39:06.000Z,2017-05-22T17:39:06.000Z,26041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,442 6374,v1.0,,"Well as very first I would like to graduate @ChristineSa you for your movement and idea at first of all. I have followed also a little the financial crisis in Greece through the news and the one and only thing that came across my mind is, that there are political conspiracies and reflectation of the crisis and the main reason is an earlier debt to the WEF and the Central Bank System.",/post/26041,2017-05-22T17:38:58.000Z,2017-05-22T17:38:58.000Z,26041,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,466 10422,v1.0,,"It's a great vision. Personally, I see a direct analogy with knowledge of using open source software. If we were to arrange ourselves into levels of knowledge, with one person at each level looking after a few at the level below, then all questions could be answered without the experts being overburdened. Why not the same with health? Well, the danger is undiagnosed serious conditions, and that has to be factored in somehow. But apart from that, it's what we do anyway in a small way. If there is something the matter, we start by asking maybe an older family member, then if that person is not sure, we can ask a nurse, then a general practitioner, then a specialist....",/post/21640,2017-05-22T17:38:25.000Z,2017-05-22T17:38:25.000Z,21640,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1540 9154,v1.0,,"It's a great vision. Personally, I see a direct analogy with knowledge of using open source software. If we were to arrange ourselves into levels of knowledge, with one person at each level looking after a few at the level below, then all questions could be answered without the experts being overburdened. Why not the same with health? Well, the danger is undiagnosed serious conditions, and that has to be factored in somehow. But apart from that, it's what we do anyway in a small way. If there is something the matter, we start by asking maybe an older family member, then if that person is not sure, we can ask a nurse, then a general practitioner, then a specialist....",/post/21640,2017-05-22T17:37:22.000Z,2017-05-22T17:37:22.000Z,21640,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1257 10820,v1.0,,"Do you think the mobile version of the tiny home would be suited for a larger event (60+ people)? Nadia may have told you, we are looking into modular structures but also environmentally friendly, so that after the event when time comes to wrap up there is no waste.. Like Alberto, I am curious about the climate suited and other favourable or unfavourable conditi",/post/14070,2017-05-22T17:36:57.000Z,2017-05-22T17:36:57.000Z,14070,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1648 8805,v1.0,,"Do you think the mobile version of the tiny home would be suited for a larger event (60+ people)? Nadia may have told you, we are looking into modular structures but also environmentally friendly, so that after the event when time comes to wrap up there is no waste.. Like Alberto, I am curious about the climate suited and other favourable or unfavourable conditi",/post/14070,2017-05-22T17:36:48.000Z,2017-05-22T17:36:48.000Z,14070,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1159 8804,v1.0,,"idea for large events. I work at festivals in ireland, and hope to build a teardrop trailer for myself this year. Air circulatiion can be a an important factor in hotter climates, but here in Ireland prolonged rain and wind are more important to consider. I'm a big fan of modular structures. Myself and Bernard have been chatting alot about moblie Wheelchair-acessible compost toilets, showers, washing facilities and lock boxes.",/post/20069,2017-05-22T17:36:40.000Z,2017-05-22T17:36:40.000Z,20069,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1159 10819,v1.0,,"Having met people working in sustainable housing and also at the policy level, there's two steps I found they follow: 1) moving away from cities to be able to run with greener technologies that dont otherwise get approved by authorities (by green tech I mean, for instance insulating with clay mixes, recycled pallettes, wool or cellulose..). 2) building more houses on larger pieces of land and adding an educational center near it to support community development.",/post/12304,2017-05-22T17:36:18.000Z,2017-05-22T17:36:18.000Z,12304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1648 7894,v1.0,,"Having met people working in sustainable housing and also at the policy level, there's two steps I found they follow: 1) moving away from cities to be able to run with greener technologies that dont otherwise get approved by authorities (by green tech I mean, for instance insulating with clay mixes, recycled pallettes, wool or cellulose..). 2) building more houses on larger pieces of land and adding an educational center near it to support community development.",/post/12304,2017-05-22T17:36:11.000Z,2017-05-22T17:36:11.000Z,12304,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,962 7893,v1.0,,I'd say any climate is suitable for a tiny house if it is well designed and built. Also looking at traditional building methods can be a good way of finding solutions to climatic challeges.,/post/10975,2017-05-22T17:35:46.000Z,2017-05-22T17:35:46.000Z,10975,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,962 9188,v1.0,,* What kind of opportunities exist being in their specific situation?,/post/16990,2017-05-22T17:34:44.000Z,2017-05-22T17:34:44.000Z,16990,3323,AnnotatorStore::TextAnnotation,,,,,,,,,798,1263 10206,v1.0,,1) Question 1 (Emad): How to enroll in any position within the academic world (or other) to be able to stay in a safe society like ours until they (him and his family) can return back home. Being Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family financially.,/post/16990,2017-05-22T17:34:18.000Z,2017-05-22T17:34:18.000Z,16990,3323,AnnotatorStore::TextAnnotation,,,,,,,,,798,1483 6950,v1.0,,I do really appreciate this idea as currently I am engaged to observe a different perspective based on how do the disaster management policies include and exclude the persons with disabilities,/post/26058,2017-05-22T17:33:10.000Z,2017-05-22T17:33:10.000Z,26058,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,724 6965,v1.0,,I do really appreciate this idea as currently I am engaged to observe a different perspective based on how do the disaster management policies include and exclude the persons with disabilities,/post/26058,2017-05-22T17:33:06.000Z,2017-05-22T17:33:06.000Z,26058,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,726 11301,v1.0,,"Alternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg",/post/26013,2017-05-22T17:32:41.000Z,2017-05-22T17:32:41.000Z,26013,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1796 5551,v1.0,,"For the past two years, we've been using sociocracy in our community organisation. Its brought flow and connection to all the different activites that take place in pursuit of our purpose and to sustain us as an organisation which can otherwise quickly feel like the left hand doesn't know what the right hand's doing. Its brought clarity to our decision making, and how our work is organised. I particularly value the use of consent rather than consensus which uses the criteria; 'is it good enough for now, safe enough to try' as the basic test in approving decisions. Perhaps you've come across it?",/post/23537,2017-05-22T17:31:21.000Z,2017-05-22T17:31:21.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,332 9996,v1.0,,"I am also curious about the connection between burnout and governance structures. If these are designed well, could they not act to distribute the work (and the stress) more evenly?",/post/23537,2017-05-22T17:31:07.000Z,2017-05-22T17:31:07.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1445 10581,v1.0,,"For the past two years, we've been using sociocracy in our community organisation. Its brought flow and connection to all the different activites that take place in pursuit of our purpose and to sustain us as an organisation which can otherwise quickly feel like the left hand doesn't know what the right hand's doing. Its brought clarity to our decision making, and how our work is organised. I particularly value the use of consent rather than consensus which uses the criteria; 'is it good enough for now, safe enough to try' as the basic test in approving decisions. Perhaps you've come across it?",/post/23537,2017-05-22T17:30:55.000Z,2017-05-22T17:30:55.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1585 7619,v1.0,,"I am also curious about the connection between burnout and governance structures. If these are designed well, could they not act to distribute the work (and the stress) more evenly? I'll need to reflect on and read more of the links in the thread above to see whether I agree that these are an 'attention sink'.",/post/23537,2017-05-22T17:30:46.000Z,2017-05-22T17:30:46.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,905 8021,v1.0,,I'm curious to know how the informal forums to share the 'tough stuff' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?,/post/23537,2017-05-22T17:30:39.000Z,2017-05-22T17:30:39.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1000 5597,v1.0,,I'm curious to know how the informal forums to share the 'tough stuff' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?,/post/23537,2017-05-22T17:30:30.000Z,2017-05-22T17:30:30.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,348 5003,v1.0,,I'm curious to know how the informal forums to share the 'tough stuff' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?,/post/23537,2017-05-22T17:30:24.000Z,2017-05-22T17:30:24.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,130 10051,v1.0,,"I like your description of your community garden becoming a 'laboratory for resilient forms of urban development'. If we're truly open to learning - the most surprising spaces can become laboratories for new methods and models. And I totally get what you say about how unhelpful the pressure to present to the external world the successes is, in sharing and learning from the excessive challenges that community work can present.",/post/23537,2017-05-22T17:30:06.000Z,2017-05-22T17:30:06.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1446 5735,v1.0,,"I like your description of your community garden becoming a 'laboratory for resilient forms of urban development'. If we're truly open to learning - the most surprising spaces can become laboratories for new methods and models. And I totally get what you say about how unhelpful the pressure to present to the external world the successes is, in sharing and learning from the excessive challenges that community work can present.",/post/23537,2017-05-22T17:29:59.000Z,2017-05-22T17:29:59.000Z,23537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,363 8065,v1.0,,"replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I'm not saying go back there, I am saying let's all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.",/post/22761,2017-05-20T20:20:15.000Z,2017-05-20T20:20:15.000Z,22761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1022 5705,v1.0,,"replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I'm not saying go back there, I am saying let's all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.",/post/22761,2017-05-20T20:20:06.000Z,2017-05-20T20:20:06.000Z,22761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,360 7330,v1.0,,"replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I'm not saying go back there, I am saying let's all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.",/post/22761,2017-05-20T20:17:29.000Z,2017-05-20T20:17:29.000Z,22761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,807 5569,v1.0,,"Ours is a rental situation, for now. I'm thinking even when you acquire property and co-own it in some way, there needs to be a provision for getting out. Yes, it's costly, but then most personal relationships or life problems are, when they hit a wall no?",/post/22476,2017-05-20T20:17:09.000Z,2017-05-20T20:17:09.000Z,22476,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,336 10366,v1.0,,"One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, ""it's just a job"" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.",/post/21701,2017-05-20T20:16:44.000Z,2017-05-20T20:16:44.000Z,21701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1532 6056,v1.0,,"One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, ""it's just a job"" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.",/post/21701,2017-05-20T20:16:38.000Z,2017-05-20T20:16:38.000Z,21701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,416 7199,v1.0,,"One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, ""it's just a job"" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.",/post/21701,2017-05-20T20:16:29.000Z,2017-05-20T20:16:29.000Z,21701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,779 10189,v1.0,,"One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, ""it's just a job"" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.",/post/21701,2017-05-20T20:16:22.000Z,2017-05-20T20:16:22.000Z,21701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1482 5699,v1.0,,"Also about wellbeing, this ties nicely to what @johncoate wrote above: need for codification (via allegiances, settling rituals/practices, social contract, decision making model or what you want to call it..):  there is no such thing as a perfectly inclusive space. If you try to include everyone, you’ll include people whose behaviour excludes others. Community is defined by its boundaries, so the question becomes, where do we want to draw our boundaries? What behaviours do we want to include? If someone is getting close to a border, how do we want to treat them? (source)",/post/19718,2017-05-20T20:16:10.000Z,2017-05-20T20:16:10.000Z,19718,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,357 8418,v1.0,,"Also about wellbeing, this ties nicely to what @johncoate wrote above: need for codification (via allegiances, settling rituals/practices, social contract, decision making model or what you want to call it..):  there is no such thing as a perfectly inclusive space. If you try to include everyone, you’ll include people whose behaviour excludes others. Community is defined by its boundaries, so the question becomes, where do we want to draw our boundaries? What behaviours do we want to include? If someone is getting close to a border, how do we want to treat them? (source)",/post/19718,2017-05-20T20:15:50.000Z,2017-05-20T20:15:50.000Z,19718,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1110 7618,v1.0,,"To skip to your interests @asimong , they are very rigorous in governance, and have a system where each person in the organisation has a steward who is sort of in charge of their wellbeing: they call it the stewarding circle.",/post/19718,2017-05-20T20:15:41.000Z,2017-05-20T20:15:41.000Z,19718,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,905 7719,v1.0,,"In Future Makers. the city authorities and the local ""city hackers"" agree on a street, or a square, or a park, that is marked as ""editable"". Within the limits set, everything is allowed, as long as the people build it themselves. We will then see what happens.",/post/29087,2017-05-20T20:14:30.000Z,2017-05-20T20:14:30.000Z,29087,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,921 11320,v1.0,,"Something in your project reminds me of a different project we are working on at Edgeryders. It's called Future Makers, and it's about DIY urbanism. Not so much city planning as city making, directly. It happens in three cities: Yerevan, Armenia; Rustavi, Georgia; and Luxor, Egypt, under the aegis of the United Nations Development Programme. Working with UNDP, we have noticed that there are groups of people who are trying to ""edit"" the city as if it were a wiki, without necessarily going through all the mandated procedure. Some of the ""edits"" are good, great in fact: look at this Cairo neighborhood were people got out with bulldozers and build four new ramps to access the ring road!",/post/29087,2017-05-20T20:14:16.000Z,2017-05-20T20:14:16.000Z,29087,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1805 7753,v1.0,,"Something in your project reminds me of a different project we are working on at Edgeryders. It's called Future Makers, and it's about DIY urbanism. Not so much city planning as city making, directly. It happens in three cities: Yerevan, Armenia; Rustavi, Georgia; and Luxor, Egypt, under the aegis of the United Nations Development Programme. Working with UNDP, we have noticed that there are groups of people who are trying to ""edit"" the city as if it were a wiki, without necessarily going through all the mandated procedure. Some of the ""edits"" are good, great in fact: look at this Cairo neighborhood were people got out with bulldozers and build four new ramps to access the ring road!",/post/29087,2017-05-20T20:14:08.000Z,2017-05-20T20:14:08.000Z,29087,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,924 11327,v1.0,,"After developing the concept entirely together with the explanation videos, we interviewed some of the involved stakeholders. First we spoke with two professors. We tested the feasibility of our proposal and how it might work in the context of a university laboratory. We also talked with some citizens. We tried to find out if they would be interested in taking part and trying to understand their needs and possibilities according to proposal. LINK to images of INTERVIEWS:",/post/26064,2017-05-20T20:13:51.000Z,2017-05-20T20:13:51.000Z,26064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1810 9712,v1.0,,"involved stakeholders. First we spoke with two professors. We tested the feasibility of our proposal and how it might work in the context of a university laboratory. We also talked with some citizens. We tried to find out if they would be interested in taking part and trying to understand their needs and possibilities according to proposal. LINK to images of INTERVIEWS:",/post/26064,2017-05-20T20:13:46.000Z,2017-05-20T20:13:46.000Z,26064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1388 8143,v1.0,,"After developing the concept entirely together with the explanation videos, we interviewed some of the involved stakeholders. First we spoke with two professors. We tested the feasibility of our proposal and how it might work in the context of a university laboratory. We also talked with some citizens. We tried to find out if they would be interested in taking part and trying to understand their needs and possibilities according to proposal. LINK to images of INTERVIEWS:",/post/26064,2017-05-20T20:13:36.000Z,2017-05-20T20:13:36.000Z,26064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1032 9711,v1.0,,"Based on the storyboard we developed our first video. It was about explaining the project. How it would be made possible externelly and internally. A second video was created to engage citizens on the platform: it is more friendly and direct, focused on all the aspects and the benefits for locals.",/post/24181,2017-05-20T20:13:23.000Z,2017-05-20T20:13:23.000Z,24181,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1388 6360,v1.0,,Then we used visuals to express every step that the different stakeholders would go through. We used these visuals to make the storyboard of one of our videos.,/post/20341,2017-05-20T20:13:06.000Z,2017-05-20T20:13:06.000Z,20341,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,462 11309,v1.0,,"We consider collaboration between students and locals as the strong tool to achieve this goal. Our concept starts with the platform where locals communicate their needs to the specific spaces in the neighborhood with the professors who are in charge of the workshop. Locals would define problematic spaces, spaces that can be transformed and improved. Professors will choose few places to be developed and launch the workshop.",/post/14908,2017-05-20T20:12:51.000Z,2017-05-20T20:12:51.000Z,14908,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1798 10708,v1.0,,'Connection between people and the space they live in plays a huge role in the development of any area. We noticed that in Bovisa this connection is lost as people are not willing to go outside and streets seem absolutely empty and dangerous in the evening.,/post/14908,2017-05-20T20:12:39.000Z,2017-05-20T20:12:39.000Z,14908,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1631 9758,v1.0,,'Connection between people and the space they live in plays a huge role in the development of any area. We noticed that in Bovisa this connection is lost as people are not willing to go outside and streets seem absolutely empty and dangerous in the evening,/post/14908,2017-05-20T20:12:33.000Z,2017-05-20T20:12:33.000Z,14908,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1395 9423,v1.0,,"Here is the 'formal description' and the visualization we created. 'Connection between people and the space they live in plays a huge role in the development of any area. We noticed that in Bovisa this connection is lost as people are not willing to go outside and streets seem absolutely empty and dangerous in the evening.",/post/14908,2017-05-20T20:12:28.000Z,2017-05-20T20:12:28.000Z,14908,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1308 8339,v1.0,,After that we identified the three main needs of the people of the neighbourhood and students.,/post/7855,2017-05-20T20:12:16.000Z,2017-05-20T20:12:16.000Z,7855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1090 10740,v1.0,,After that we identified the three main needs of the people of the neighbourhood and students.,/post/7855,2017-05-20T20:12:11.000Z,2017-05-20T20:12:11.000Z,7855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1636 8929,v1.0,,After that we identified the three main needs of the people of the neighbourhood and students.,/post/7855,2017-05-20T20:12:07.000Z,2017-05-20T20:12:07.000Z,7855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1197 7929,v1.0,,After the 'How to ...' questions we mapped out the different needs of the stakeholders and how they are co-realted.,/post/7855,2017-05-20T20:11:59.000Z,2017-05-20T20:11:59.000Z,7855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,975 4744,v1.0,,So our first step was to start drawing ideas and defining the needs of the two target groups. We looked into what the two groups can offer to each other and how possibly they can meet each other's needs.,/post/7855,2017-05-20T20:11:48.000Z,2017-05-20T20:11:48.000Z,7855,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,65 11519,v1.0,,"Hi EdgeRyders community!  We are a group of students from Politcecnico di Milano. Our story was started with the intent to share the process of one of our latest projects. The project is about engaging the inhabitatants of the Bovisa neighbourhood, Milano with the students of Politecnico to improve the environment they happily share. Hope this project interests you. If some of our work sparked some ideas in you, please don't hesitate to share them! Cheers!",/post/575,2017-05-20T20:11:37.000Z,2017-05-20T20:11:37.000Z,575,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1862 10739,v1.0,,"Hi EdgeRyders community!  We are a group of students from Politcecnico di Milano. Our story was started with the intent to share the process of one of our latest projects. The project is about engaging the inhabitatants of the Bovisa neighbourhood, Milano with the students of Politecnico to improve the environment they happily share. Hope this project interests you. If some of our work sparked some ideas in you, please don't hesitate to share them! Cheers!",/post/575,2017-05-20T20:11:31.000Z,2017-05-20T20:11:31.000Z,575,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1636 8928,v1.0,,"Hi EdgeRyders community!  We are a group of students from Politcecnico di Milano. Our story was started with the intent to share the process of one of our latest projects. The project is about engaging the inhabitatants of the Bovisa neighbourhood, Milano with the students of Politecnico to improve the environment they happily share. Hope this project interests you. If some of our work sparked some ideas in you, please don't hesitate to share them! Cheers!",/post/575,2017-05-20T20:11:22.000Z,2017-05-20T20:11:22.000Z,575,3323,AnnotatorStore::TextAnnotation,,,,,,,,,542,1197 9995,v1.0,,"I find it is recurring when the open tech/science ideas meet traditional ideas that the discussion is seldom held around the question: how can the different approaches learn from each other, in order to implement a better solution?",/post/27802,2017-05-20T20:10:22.000Z,2017-05-20T20:10:22.000Z,27802,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1445 6405,v1.0,,"To me, sadness, unproductivity and inefficiency are symptoms of not having found satisfying connections in life. But the answer to that is often not ""trying harder"" to find something. It might more often be letting go of images of oneself that one has taken on from other people. Finding oneself is easy to say, and really hard to do. Let go, be open, listen, accept help...",/post/29954,2017-05-20T20:04:58.000Z,2017-05-20T20:04:58.000Z,29954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,474 10257,v1.0,,"Full self-acceptance is very hard. Often we need the support of others to be able to see our ""shadow"" (in the Jungian sense). To me, sadness, unproductivity and inefficiency are symptoms of not having found satisfying connections in life. But the answer to that is often not ""trying harder"" to find something. It might more often be letting go of images of oneself that one has taken on from other people. Finding oneself is easy to say, and really hard to do. Let go, be open, listen, accept help...",/post/29954,2017-05-20T20:04:27.000Z,2017-05-20T20:04:27.000Z,29954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1498 5948,v1.0,,"One thing I do know about why one should not avoid conflict if something needs to be talked over, is that relationships with any history of resolving conflict are stronger because built into the bond is the knowledge that you can resolve something because you actually did it.",/post/15392,2017-05-20T20:02:27.000Z,2017-05-20T20:02:27.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,390 11277,v1.0,,"The basic thing we started with was an allegiance to the truth.  Not in a religious sense per se (as in ""I am the Truth, the Way, etc""), but just that every person was going to try to be as truthful as possible with themselves and everyone around them.",/post/15392,2017-05-20T20:01:48.000Z,2017-05-20T20:01:48.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1781 5859,v1.0,,"Next, compassion.  People who live together, and don't want to be a bunch of robots, need to find ways of being ok with each other's ways of being. As it said in a recent artticle about why Findhorn has lasted so long one guy said, ""everyone is willing to look at their stuff.""",/post/15392,2017-05-20T20:01:45.000Z,2017-05-20T20:01:45.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,380 5753,v1.0,,"together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-20T20:01:16.000Z,2017-05-20T20:01:16.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,369 5752,v1.0,,But disagreements happen.  Things go unsaid and build up.  So what then?,/post/15392,2017-05-20T20:01:06.000Z,2017-05-20T20:01:06.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,369 6055,v1.0,,"But the process for joining involves a lot of face time with community members over a number of visits and meetings.  I assume that when it comes to a vote  for admitting someone, most everyone considers the whole person and whether or not they will be good cohousing companions.",/post/15392,2017-05-20T20:00:57.000Z,2017-05-20T20:00:57.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,416 7892,v1.0,,"But the process for joining involves a lot of face time with community members over a number of visits and meetings.  I assume that when it comes to a vote  for admitting someone, most everyone considers the whole person and whether or not they will be good cohousing companions.",/post/15392,2017-05-20T20:00:46.000Z,2017-05-20T20:00:46.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,962 7489,v1.0,,"Those four are daunting to put into an agreement to say the least.  And maybe the group or the founders don't want such things to be formalised not because it is hard, but because it is better to not get formal with them.",/post/15392,2017-05-20T20:00:30.000Z,2017-05-20T20:00:30.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,864 10373,v1.0,,"Your Articles of Association and other agreements to which one signs when joining are generally material in nature.  There is a document about shared values, of which the formal ones are ecological values.  But it also says ""we would like our community to be built on trust, respect, friendship and understanding."" But those four are not part of the formal agreement from what I could see.",/post/15392,2017-05-20T20:00:07.000Z,2017-05-20T20:00:07.000Z,15392,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1533 9807,v1.0,,"I guess my question would be what plans do you have for encouraging participation in the platform outside of major cities? I can foresee that these are the areas where uptake of new platforms are often slowest, but that they are often areas with high levels of charity support and high levels of poverty. I'm thinking for example of an area like Cornwall in England (high use of holiday lettings and airbnb style accommodation, but also high levels of regional un/under-employment and low levels of Government engagement in service delivery)",/post/24694,2017-05-20T19:59:44.000Z,2017-05-20T19:59:44.000Z,24694,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1419 9657,v1.0,,"t is often the case in the UK that fundraising from grant making charities is tied directly to projects. It is very hard to get funding to cover ongoing overheads, and business expenses.",/post/24694,2017-05-20T19:59:35.000Z,2017-05-20T19:59:35.000Z,24694,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1373 11518,v1.0,,"Firstly, many supermarkets in the Uk have charity partners in the local community. They hold them for 3-4 months each. Every shopper who spends over a set amount (i think it is £20) is given a small plastic token. They are then encouraged to drop these tokens into a box by the main doors, selecting one of the 3 charities to recieve their donation.",/post/24694,2017-05-20T19:59:24.000Z,2017-05-20T19:59:24.000Z,24694,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1862 9453,v1.0,,see a couple of parallels between the service platform and a couple of initiative that run in the UK. I wonder if there's some extrapolation that can be taken from them.,/post/24694,2017-05-20T19:59:12.000Z,2017-05-20T19:59:12.000Z,24694,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1315 8366,v1.0,,"I don't have a fully formed idea, but I thought that projects that did well after the first crowdfunding could get back on the platform after 1 or 2 years. Also, the projects after funded should remain in a dedicated part of the platform to keep updated the community, and there anyone is free to donate more whenever they want. We need a little money to",/post/23282,2017-05-20T19:58:59.000Z,2017-05-20T19:58:59.000Z,23282,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1096 7525,v1.0,,"We need a little money to finalize the platform. Anyway, the activation process has said have many steps. The choice on how to redistribute part of the value generated by the users is made by them deciding to which project pledge their money. This could be also done by Hosts but not in the same % because will have too much ""power"" and the risk is that they will favorite projects that they know personally.",/post/23282,2017-05-20T19:58:54.000Z,2017-05-20T19:58:54.000Z,23282,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,876 8365,v1.0,,"Though I value the merit of doing stuff on a project basis as you describe, I also think for the complex issues like education, housing, medicine, sustained effort is needed. An overly large focus on well-defined projects limited in time risks perpetuating a 'quick fix' narrative and devaluating sustained effort that is not as 'sellable', in my opinion. I believe in a healthy mixture and I see most funding initiatives now focus on the project model, so I advocate for more of the long-term view. That being said: it's a big idea, but worth pursuing @Damiano . Say that you needed to choose one aspect (eg. connecting projects to hosts) and test it by the end of next week, what would you do?",/post/23259,2017-05-20T19:58:42.000Z,2017-05-20T19:58:42.000Z,23259,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1096 8369,v1.0,,"Though I value the merit of doing stuff on a project basis as you describe, I also think for the complex issues like education, housing, medicine, sustained effort is needed. An overly large focus on well-defined projects limited in time risks perpetuating a 'quick fix' narrative and devaluating sustained effort that is not as 'sellable', in my opinion. I believe in a healthy mixture and I see most funding initiatives now focus on the project model, so I advocate for more of the long-term view. That being said: it's a big idea, but worth pursuing @Damiano . Say that you needed to choose one aspect (eg. connecting projects to hosts) and test it by the end of next week, what would you do?",/post/23259,2017-05-20T19:58:38.000Z,2017-05-20T19:58:38.000Z,23259,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1097 9358,v1.0,,"Also, I proposed a model for the organization that is based on three levels: Foundation (Take care of the platform in general and connect the global community) National Associations (Help to select projects and to develop the organization in each state) Local Cooperatives (A group of citizens can apply to become a cooperative, it will have dedicated projects on the platform for that particular city, the aim is to do project together maybe about certain topics).",/post/23217,2017-05-20T19:58:21.000Z,2017-05-20T19:58:21.000Z,23217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1294 9656,v1.0,,"So about the host you pointed out an interesting thing, the model that I described is focussed more on projects and travelers than on hosts.  I was thinking about something like having the host deciding a single project to ""pledge"", and it will gain 1 extra day on the crowdfunding platform. This will create an incentive to find more accommodations and will engage more hosts.  Making host deciding in large part where the money generated through their apartment goes risk to create a system where people support the project of their friend or something that they have an interest in.. But of course, it's possible to imagine also another way to let hosts support more a certain cause.",/post/23217,2017-05-20T19:58:10.000Z,2017-05-20T19:58:10.000Z,23217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1373 9788,v1.0,,"money, spent in a certain way to achieve something defined, is more catchy than sustain the normal activities of an organization and is also easier to avoid that money are not spent in the right way.  So with ReGent you could apply for example to buy a camper and instruments to go around the city to do biohacking in schools. It should be for activity that is not normally done by the association (this may be different in places like Syria, etc.).",/post/23217,2017-05-20T19:57:59.000Z,2017-05-20T19:57:59.000Z,23217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1411 7542,v1.0,,"One of my goals is to allow plurality, especially for new initiative is always hard to find funding.  Anyway, this is something that needs to be discussed in depth, the nice thing about this is that it will create a perpetual passive funding that could literally enable thousands of valuable projects to reach their goals.",/post/23217,2017-05-20T19:57:55.000Z,2017-05-20T19:57:55.000Z,23217,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,877 9020,v1.0,,"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can choose to 'bind' their room to a specific cause, donating most of the returns to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?",/post/23131,2017-05-20T19:57:41.000Z,2017-05-20T19:57:41.000Z,23131,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1230 9452,v1.0,,"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can choose to 'bind' their room to a specific cause, donating most of the returns to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?",/post/23131,2017-05-20T19:57:29.000Z,2017-05-20T19:57:29.000Z,23131,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1315 7928,v1.0,,"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can choose to 'bind' their room to a specific cause, donating most of the returns to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?",/post/23131,2017-05-20T19:57:14.000Z,2017-05-20T19:57:14.000Z,23131,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,975 5197,v1.0,,"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can choose to 'bind' their room to a specific cause, donating most of the returns to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?",/post/23131,2017-05-20T19:56:52.000Z,2017-05-20T19:56:52.000Z,23131,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,193 8829,v1.0,,"What you are then doing is interfacing for projects to monetize excess capacity in their network. Instead of having to invest heavily into logistics, marketing, sales, everything that comes with selling something, you can rely on a 'service' like yours. I think this ties in nicely with the discussion here on business models for The Reef. Diversity is hard to do early on, but interfaces make it a little easier.",/post/23131,2017-05-20T19:56:40.000Z,2017-05-20T19:56:40.000Z,23131,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1164 9019,v1.0,,"5) Boicott Airbnb campaign, start a serious public debate with action (put the initiative as an anti-capitalistic model that could compete with the existing one)",/post/20627,2017-05-20T19:56:21.000Z,2017-05-20T19:56:21.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1230 9357,v1.0,,"1) Looking for 1000 projects (independent, possibly new, diverse to give everyone the chance to support the cause they care most).   This will be hosted on the platform for a certain amount of time and with a minimum and maximum goal (e.g. 5k-20k euros) when the platform will open. (I see the selection done thorugh an open call in different countries to have a worldwide coverage)",/post/20627,2017-05-20T19:56:08.000Z,2017-05-20T19:56:08.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1294 7961,v1.0,,"The idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users. Bonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money.",/post/20627,2017-05-20T19:56:01.000Z,2017-05-20T19:56:01.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,984 9451,v1.0,,"The idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users. Bonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money.",/post/20627,2017-05-20T19:55:54.000Z,2017-05-20T19:55:54.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1315 9787,v1.0,,The trick is that the 10% that goes to projects will bring users.,/post/20627,2017-05-20T19:55:44.000Z,2017-05-20T19:55:44.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1411 6250,v1.0,,"Basically, I see the MVP as an Airbnb with an additional feature, an easy system to crowdfund projects on the platform (60% local 40% from wherever you want). The fees will be more or less the same as Airbnb, 15%: 5% will be used to cover costs for the service, 10% will be allocated to projects directly by the travelers.",/post/20627,2017-05-20T19:55:39.000Z,2017-05-20T19:55:39.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,444 4541,v1.0,,"Fairbnb should have three: Hosts, travelers, and projects. Basically, I see the MVP as an Airbnb with an additional feature, an easy system to crowdfund projects on the platform (60% local 40% from wherever you want). The fees will be more or less the same as Airbnb, 15%: 5% will be used to cover costs for the service, 10% will be allocated to projects directly by the travelers. The trick is that the 10% that goes to projects will bring users.  The idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users. Bonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money. To offer a decent service and try to trigger the network effect at the beginning around 5000 accommodations are needed, distributed in all the major cities. The process I see is this: 1) Looking for 1000 projects (independent, possibly new, diverse to give everyone the chance to support the cause they care most).   This will be hosted on the platform for a certain amount of time and with a minimum and maximum goal (e.g. 5k-20k euros) when the platform will open. (I see the selection done thorugh an open call in different countries to have a worldwide coverage) 2) During the call and for two months after the selection the platform will be open just for hosts to register. 3) Projects will help to find at least five accommodations in their city. 4) The platform will open to everyone. 5) Boicott Airbnb campaign, start a serious public debate with action (put the initiative as an anti-capitalistic model that could compete with the existing one) Basically 5000 accomodations will solve the chicken and egg problem. With an average per night of 28 euros  5000 * 28 * 31 * 10/ 100000 It's an average of 434 euros a month for each project. This growth strategy is like the basic to avoid failure at the beginning, because I think it's possible like for everyone to find five people that will put their accommodation on the platform.  This strategy should be integrated with all the ""traditional"" strategies. The community that will form will be capable of doing much more.  The value proposition is easy to understand, if you travel with Fairbnb you do good by traveling (in a quantifiable way) instead of giving money to some billionaire. I think is really important to involve networks like Edgeryders, Ouishare, Global Changemakers, etc Hosting 5 projects for every organization will help to crowd-power the activation of the platform and engage existing networks that have been thinking about world's challenges a lot. -- This is basically how I see the activation process. Lots of people that use Airbnb use also other platforms (they are multi-homers) so probably both @Noemi",/post/20627,2017-05-20T19:55:27.000Z,2017-05-20T19:55:27.000Z,20627,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,14 9806,v1.0,,"practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms? The reason being is that the people who choose to share their homes or cars with others are often already on these other platforms and until they start to move over to new platforms there is no way for I the user to actually access the platform. I.e. I can't order a ride when there is no driver available.",/post/14269,2017-05-20T19:54:58.000Z,2017-05-20T19:54:58.000Z,14269,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1419 4540,v1.0,,"I think a platform like fairbnb will be a great alternative to those who don't agree with some of Airbnb's practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?",/post/14269,2017-05-20T19:54:52.000Z,2017-05-20T19:54:52.000Z,14269,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,14 9450,v1.0,,"I think a platform like fairbnb will be a great alternative to those who don't agree with some of Airbnb's practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?",/post/14269,2017-05-20T19:54:41.000Z,2017-05-20T19:54:41.000Z,14269,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1315 4658,v1.0,,"I think a platform like fairbnb will be a great alternative to those who don't agree with some of Airbnb's practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?",/post/14269,2017-05-20T19:54:34.000Z,2017-05-20T19:54:34.000Z,14269,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,44 11359,v1.0,,"@Damiano, thank you for sharing your ongoing work and thoughts here! It reflects something I've been considering a lot lately, which is how individual spending choices can be used to reflect and support our values.",/post/14269,2017-05-20T19:54:27.000Z,2017-05-20T19:54:27.000Z,14269,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1818 5996,v1.0,,"@Damiano, thank you for sharing your ongoing work and thoughts here! It reflects something I've been considering a lot lately, which is how individual spending choices can be used to reflect and support our values.",/post/14269,2017-05-20T19:54:19.000Z,2017-05-20T19:54:19.000Z,14269,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,402 9786,v1.0,,Yes.. a non-extractive P2P accommodation platform most likely is the best opportunity that we have to pilot a new model of sharing economy that could produce positive externalities at an unprecedented scale.,/post/829,2017-05-20T19:53:57.000Z,2017-05-20T19:53:57.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1411 9785,v1.0,,"For the strategy, the only real competitive advantage is, in the end, that % that get subtracted to every transaction. The % needed to merely run a platform is always much lower than the one taken, lots of this money are used for advertising, paying managers, and the majority of it become profit (this is true for platforms that have a solid business model ). It's how this subtle but substantial amount of money is used in an alternative way that could make the difference. Basically the money that is redistribute helps the platform to grow and it lower the Custumer Acquisition Cost in a platform that don't require a huge amount of users to reach the critical mass.",/post/10667,2017-05-20T19:53:50.000Z,2017-05-20T19:53:50.000Z,10667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1411 9356,v1.0,,"Competition between a non-extractive and an extractive platform is somehow like David against Golia. I think the key is to pick the right platform and to craft the perfect strategy that enhances intrinsic and extrinsic motivation for the users. For some reason (community-driven, aggregation platform, P2P are ordinary people, it produce lots of wealth by unlocking unused resources) I see Airbnb as the most suitable.",/post/10667,2017-05-20T19:53:30.000Z,2017-05-20T19:53:30.000Z,10667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1294 9449,v1.0,,"Competition between a non-extractive and an extractive platform is somehow like David against Golia. I think the key is to pick the right platform and to craft the perfect strategy that enhances intrinsic and extrinsic motivation for the users. For some reason (community-driven, aggregation platform, P2P are ordinary people, it produce lots of wealth by unlocking unused resources) I see Airbnb as the most suitable.",/post/10667,2017-05-20T19:53:26.000Z,2017-05-20T19:53:26.000Z,10667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1315 4657,v1.0,,"I do agree that until we figure out how to create valid alternatives, current platforms are indispensable.. there's no wayback... That's why we need to act to create a fairer digital economy where interests of people are central instead of profit, some of this platforms are almost impossible to create an alternative to, others I believe not.",/post/10667,2017-05-20T19:53:13.000Z,2017-05-20T19:53:13.000Z,10667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,44 9018,v1.0,,"I do agree that until we figure out how to create valid alternatives, current platforms are indispensable.. there's no wayback... That's why we need to act to create a fairer digital economy where interests of people are central instead of profit, some of this platforms are almost impossible to create an alternative to, others I believe not.",/post/10667,2017-05-20T19:53:01.000Z,2017-05-20T19:53:01.000Z,10667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1230 4539,v1.0,,"The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb). Since then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community. The platform with shared ownership and control will be non-extractive, inclusive and cooperative.",/post/829,2017-05-20T19:52:36.000Z,2017-05-20T19:52:36.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,14 10872,v1.0,,"The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb). Since then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community. The platform with shared ownership and control will be non-extractive, inclusive and cooperative.",/post/829,2017-05-20T19:52:31.000Z,2017-05-20T19:52:31.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1668 9422,v1.0,,"The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb). Since then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community. The platform with shared ownership and control will be non-extractive, inclusive and cooperative.",/post/829,2017-05-20T19:52:19.000Z,2017-05-20T19:52:19.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1308 9355,v1.0,,"The peer2peer accommodation market produces every year more than 1.5 billion dollars of revenues (the extracted part). If Fairbnb will be able to take even a little share of the market, an incredible number of non-profit initiatives could be funded. We want to use as little as possible of the revenues to keep up the platform and give back the majority of this money to communities through local projects thanks to a crowdfunding-like mechanism. If we succeed thousands biohackers spaces, social streets, art exhibitions, solidarity initiatives, refugees projects, etc. could be funded.",/post/829,2017-05-20T19:51:57.000Z,2017-05-20T19:51:57.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1294 4656,v1.0,,"The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb). Since then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community. The platform with shared ownership and control will be non-extractive, inclusive and cooperative.",/post/829,2017-05-20T19:51:51.000Z,2017-05-20T19:51:51.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,44 9601,v1.0,,(I’m not mentioning how we lost our privacy and the possibility to have control over the data that we generate because it could lead us too far),/post/829,2017-05-20T19:51:28.000Z,2017-05-20T19:51:28.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1354 8839,v1.0,,2) Platforms tend to become a natural monopoly due to the network effect.,/post/829,2017-05-20T19:51:19.000Z,2017-05-20T19:51:19.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1167 7322,v1.0,,"Well, during the last ten years our economy has been completely “platformed”: the largest taxi company doesn’t own any cars (Uber), the world’s biggest media owner creates no content (Facebook) and so on. In almost every sectors a single player with a “platform business model” dominates. There are two main problems with this:",/post/829,2017-05-20T19:51:10.000Z,2017-05-20T19:51:10.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,805 9438,v1.0,,"Well, during the last ten years our economy has been completely “platformed”: the largest taxi company doesn’t own any cars (Uber), the world’s biggest media owner creates no content (Facebook) and so on. In almost every sectors a single player with a “platform business model” dominates. There are two main problems with this:",/post/829,2017-05-20T19:51:00.000Z,2017-05-20T19:51:00.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1312 10383,v1.0,,"This story is about an ongoing project that could pilot a new model of sharing economy that by succeeding could lead to the flourish of a new collaborative economy. Fairbnb is in an early stage, we didn’t launch the beta yet, but I’m convinced for some reasons that I will briefly explain at the end, that it represents a huge opportunity to change the digital economy.",/post/829,2017-05-20T19:50:46.000Z,2017-05-20T19:50:46.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1535 7656,v1.0,,"Anyway, this part of my story is not what I’m here to write about. I’m here to write about emerging opportunities we have to finance bottom up initiatives, that are not exploiting, related to a viable strategy to transform existing sharing economy platforms in a mechanism to perpetually fund non-profit projects and grassroots initiatives.",/post/829,2017-05-20T19:50:31.000Z,2017-05-20T19:50:31.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,910 7541,v1.0,,"In general, there’s a tendency for new initiatives to struggle in the initial fundraising. It’s easier to get funded if you are already big or active enough. If you have applied for any grant, you know how competitive these things can be, and probably you understand how the abundances of projects and the lack of funding tend to lower the diversity of the ecosystems and sometimes discourage innovative ideas - This doesn’t apply to for-profit start-ups that can rely on other types of financial support (VC, Business angels, etc) -.",/post/829,2017-05-20T19:50:20.000Z,2017-05-20T19:50:20.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,877 7524,v1.0,,"In general, there’s a tendency for new initiatives to struggle in the initial fundraising. It’s easier to get funded if you are already big or active enough. If you have applied for any grant, you know how competitive these things can be, and probably you understand how the abundances of projects and the lack of funding tend to lower the diversity of the ecosystems and sometimes discourage innovative ideas - This doesn’t apply to for-profit start-ups that can rely on other types of financial support (VC, Business angels, etc) -.",/post/829,2017-05-20T19:50:10.000Z,2017-05-20T19:50:10.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,876 9153,v1.0,,"During my years at the University, where I studied biotechnology, my curiosity was fed by great Professors during the day and by biohackers geeks on the internet during the night. My first attempt to create a biohacker space dates at my freshman year, as you can imagine the excitement of my colleagues vanished due to the pressure of our studies and the difficulty of the journey. The problem wasn’t related to the goodness of the project, both other colleagues and professors seemed thrilled by the idea of having an open source lab for biotechnology. What stopped the initiative was the lack of support and guidance from existing organizations incapable of grasping and helping to fund new ideas.",/post/829,2017-05-20T19:39:56.000Z,2017-05-20T19:39:56.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,1257 4852,v1.0,,"most six years ago I took a gap year and, I decided to spend some time away from Italy, in Australia. Back there I found a guy that told me about this movement: the biohacking. Basically, a bunch of tinkerers started to use their garages as biotechnology laboratories with the aim to make those biological technologies available to everyone. From that moment I started a path that led me to follow many movements and initiatives that are trying to create alternatives to existing power infrastructures. My name is Damiano Avellino, I'm 24 years old. I’m one of the founders of Fairbnb and of other non-profit initiatives that seek to create a more inclusive and fair society.",/post/829,2017-05-20T19:39:43.000Z,2017-05-20T19:39:43.000Z,829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,796,100 7419,v1.0,,"One thing we've taken to doing, in order to give a space for the range of views and thoughts on these topics is we hold semesterly fishbowl discussions. Possibly your community could benefit from adopting this format as one of its methods for exploring issues that arise.",/post/8009,2017-05-17T19:29:24.000Z,2017-05-17T19:29:24.000Z,8009,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,843 8020,v1.0,,"Another point I wanted to touch on, is when you discussed wellbeing you asked if you could depend on informal relationships alone. I think it's important that individuals have access to professional care if/when they need it, but that doesn't diminish the role that informal relationships play in getting people to help and supporting them in their struggles. Along those lines, I think you might be interested in looking into bystander training, where members of your community who are interested can learn how to best support people, and connect them to the care they need. I'm not sure where you're based, but one I can recommend is Mental Health First Aid, which is offered (often for free) in a number of countries.",/post/8009,2017-05-17T19:28:38.000Z,2017-05-17T19:28:38.000Z,8009,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1000 8045,v1.0,,"The issues you're facing in your cohousing community actually sound a lot like the type we face in my university, especially how to align views on wellbeing when everyone comes from varied backgrounds, with sometimes completely divergent perspectives. One thing we've taken to doing, in order to give a space for the range of views and thoughts on these topics is we hold semesterly fishbowl discussions. Possibly your community could benefit from adopting this format as one of its methods for exploring issues that arise.  Another point I wanted to touch on, is when you discussed wellbeing you asked if you could depend on informal relationships alone. I think it's important that individuals have access to professional care if/when they need it, but that doesn't diminish the role that informal relationships play in getting people to help and supporting them in their struggles. Along those lines, I think you might be interested in looking into bystander training, where members of your community who are interested can learn how to best support people, and connect them to the care they need. I'm not sure where you're based, but one I can recommend is Mental Health First Aid, which is offered (often for free) in a number of countries. Hope some of this is useful! I would also love to hear more about how these issues are already being addressed within your community.",/post/8009,2017-05-17T19:28:06.000Z,2017-05-17T19:28:06.000Z,8009,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1016 8044,v1.0,,"live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a ""Common House"" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-17T19:28:00.000Z,2017-05-17T19:28:00.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1016 5519,v1.0,,"live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a ""Common House"" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-17T19:27:42.000Z,2017-05-17T19:27:42.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,325 9009,v1.0,,"We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?",/post/830,2017-05-17T19:27:20.000Z,2017-05-17T19:27:20.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1225 4945,v1.0,,"We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?",/post/830,2017-05-17T19:27:06.000Z,2017-05-17T19:27:06.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,123 10188,v1.0,,"Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's.",/post/830,2017-05-17T19:26:52.000Z,2017-05-17T19:26:52.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,1482 6170,v1.0,,"live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a ""Common House"" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-17T19:26:35.000Z,2017-05-17T19:26:35.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,437 5836,v1.0,,"live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a ""Common House"" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-17T19:26:12.000Z,2017-05-17T19:26:12.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,377 6054,v1.0,,"live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a ""Common House"" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-17T19:26:03.000Z,2017-05-17T19:26:03.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,416 7891,v1.0,,"live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a ""Common House"" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It's quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That's partly due to economic factors. It is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I'd like to focus just on one of the challenges that I see here: how we engage with our own and each other's well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally. Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for ""people like us"", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people's. We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling? This brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on? These are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other's resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.",/post/830,2017-05-17T19:25:58.000Z,2017-05-17T19:25:58.000Z,830,3323,AnnotatorStore::TextAnnotation,,,,,,,,,797,962 7135,v1.0,,"They are both asking me for help in finding a job at universities or doing a (another) PHD in Europe. His uncle, so he does not have to return to Iraq after his PHD finnishes in Leicester. His mother, to feel use full while waiting to go back to her country one day. So her my question: Where, how and what can they do to have the best results in their search for a university job or sudy? As I never did a PHD or worked at universities it is still a blank canvas for me. Thanks for taking the time for providing me with tips and tricks. Maria",/post/831,2017-05-17T19:25:06.000Z,2017-05-17T19:25:06.000Z,831,3323,AnnotatorStore::TextAnnotation,,,,,,,,,798,766 6318,v1.0,,"what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river’s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu’s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.                                                                 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.                                                                                                 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/).",/post/576,2017-05-17T19:20:04.000Z,2017-05-17T19:20:04.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,450 4737,v1.0,,"a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/). a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster.",/post/576,2017-05-17T19:19:53.000Z,2017-05-17T19:19:53.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,62 7134,v1.0,,"a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/). a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster.",/post/576,2017-05-17T19:19:47.000Z,2017-05-17T19:19:47.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,766 11437,v1.0,,"what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river’s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu’s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.                                                                 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.                                                                                                 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/).",/post/576,2017-05-17T19:18:56.000Z,2017-05-17T19:18:56.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,1843 10050,v1.0,,"what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river’s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu’s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.                                                                 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.",/post/576,2017-05-17T19:18:49.000Z,2017-05-17T19:18:49.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,1446 5488,v1.0,,"In 2014, I, Alberto Rey, had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800’s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.  My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset while creating insafe health issues to underserved populations. It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth, a colleague at the State University of New York and a graphic designer, joined the venture early in 2016 and his work has been integral to the project’s success. During Jason’s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project’s publications and the sales of my artwork. The Bagmati River Arts Project (http://www.bagmatiriverartproject.com/) includes exhibitions, lectures and a website that houses a project  overview, daily of blog of research in Kathmandu, sketchbooks, data, videos and links to the project's publication and documentary: an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River and related health concerns in the area. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river.  a book ,Complexities of Water: Bagmati River, Nepal and Beyond, is a publication that will examine how the holiest river in Nepal became spoiled by decades of pollution and policies that did not address issues related to climate change. It’s present condition is a result of is the result of government mismanagement and oversight, lack of concern for underrepresented communities who live along its banks, and extreme flooding and droughts due to climate change. Recent reports have ranked Nepal as one of the most vulnerable countries to climate change due to the high rate of urbanization, unchecked industrial development, severely low water supply, high pollution levels, increasingly frequent extreme floods and droughts, predictions of worsening conditions and lack of appropriate planning to mitigate or adapt to these conditions. Reports also list Nepal as an LDC (least developed country), which indicates its potential limitations to address these issues. This project hopes to bring international attention to this issue and hopefully some support to help provide finances to assist in addressing these issues.                                                                                                                                                                                                                   While examples of pollution and the effects of climate change can be found throughout Nepal, there is no better example of how bad the situation has become than what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river’s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu’s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.                                                                 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.                                                                                                 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/). a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/). a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster. All elements of the project listed above were finished and presented at the opening of the exhibition on November 20, 2016 at the Siddhartha Gallery in Kathmandu, Nepal. An exciting extension to this project is to have the artwork, publication, documentary, brochures and posters tour the United States and internationally. The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.Water issues are a worldwide concern and the Bagmati’s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.",/post/576,2017-05-17T19:18:33.000Z,2017-05-17T19:18:33.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,318 10163,v1.0,,"It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth, a colleague at the State University of New York and a graphic designer, joined the venture early in 2016 and his work has been integral to the project’s success. During Jason’s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project’s publications and the sales of my artwork.",/post/576,2017-05-17T19:17:50.000Z,2017-05-17T19:17:50.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,1474 7826,v1.0,,"In 2014, I, Alberto Rey, had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800’s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.  My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset while creating insafe health issues to underserved populations.",/post/576,2017-05-17T19:16:37.000Z,2017-05-17T19:16:37.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,954 4693,v1.0,,"In 2014, I, Alberto Rey, had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800’s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.  My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset while creating insafe health issues to underserved populations. It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth, a colleague at the State University of New York and a graphic designer, joined the venture early in 2016 and his work has been integral to the project’s success. During Jason’s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project’s publications and the sales of my artwork. The Bagmati River Arts Project (http://www.bagmatiriverartproject.com/) includes exhibitions, lectures and a website that houses a project  overview, daily of blog of research in Kathmandu, sketchbooks, data, videos and links to the project's publication and documentary: an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River and related health concerns in the area. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river.  a book ,Complexities of Water: Bagmati River, Nepal and Beyond, is a publication that will examine how the holiest river in Nepal became spoiled by decades of pollution and policies that did not address issues related to climate change. It’s present condition is a result of is the result of government mismanagement and oversight, lack of concern for underrepresented communities who live along its banks, and extreme flooding and droughts due to climate change. Recent reports have ranked Nepal as one of the most vulnerable countries to climate change due to the high rate of urbanization, unchecked industrial development, severely low water supply, high pollution levels, increasingly frequent extreme floods and droughts, predictions of worsening conditions and lack of appropriate planning to mitigate or adapt to these conditions. Reports also list Nepal as an LDC (least developed country), which indicates its potential limitations to address these issues. This project hopes to bring international attention to this issue and hopefully some support to help provide finances to assist in addressing these issues.                                                                                                                                                                                                                   While examples of pollution and the effects of climate change can be found throughout Nepal, there is no better example of how bad the situation has become than what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river’s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu’s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.                                                                 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.                                                                                                 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/). a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/). a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster. All elements of the project listed above were finished and presented at the opening of the exhibition on November 20, 2016 at the Siddhartha Gallery in Kathmandu, Nepal. An exciting extension to this project is to have the artwork, publication, documentary, brochures and posters tour the United States and internationally. The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.Water issues are a worldwide concern and the Bagmati’s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.   For more information please contact alberto@albertorey.com.     Project Leaders Alberto Rey – Distinguished Professor in the Department of Visual Arts and New Media at the State University of New York at Fredonia and for the past 18 years has been the Director and Founder of Children in the Stream Youth Fly fishing Program (https://albertorey.com/s-a-r-e-p-youth-fly-fishing-program/). He is also an Orvis endorsed fly fishing guide and is an environmental activist. (https://albertorey.com/) Jason Dilworth – Assistant Professor in the Department of Visual Arts and New Media at the State University of New York at Fredonia and founder and director of several social design projects. More information available at: www.projectmlab.com/Jason-Dilworth and www.designersandforests.us Past, Present and Future For the past decade, I have been working on site-specific installations that examine the local bodies of water near the exhibition venues and their relationships to enviornmental and health issues. When the regional investigations are included with other investigations from regions around the country and the world, the audience can make connections between their local region and other parts of the world. These installations are complex, ambitious, and include informational publications and with extensive text panels that outline the issues related to the bodies of water. The panels and publications include maps of the bodies of waters being investigated; water samples with scientific data outlining their chemical breakdown and pollutants; and images, graphs and videos from the data collection sites. We have recently partnered with the United States Forest Service and will begin the process of documenting the stories that outline the importance of clean accessible water in communties and the organizations that are helping communties by protecting this valuable resource.",/post/576,2017-05-17T19:14:38.000Z,2017-05-17T19:14:38.000Z,576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,543,60 10421,v1.0,,"I would like to make a comment to your idea and pssdgroup5 I must say that it is a brilliant topic and also a very huge space to contribute and envelope students and helping them on their way forward. I can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation. There are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn't make it to be a part of an exchange program as a participiant. Thumbs Up and wish you all the",/post/7661,2017-05-17T19:10:14.000Z,2017-05-17T19:10:14.000Z,7661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1540 7133,v1.0,,"I would like to make a comment to your idea and pssdgroup5 I must say that it is a brilliant topic and also a very huge space to contribute and envelope students and helping them on their way forward. I can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation. There are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn't make it to be a part of an exchange program as a participiant. Thumbs Up and wish you all the best...",/post/7661,2017-05-17T19:09:48.000Z,2017-05-17T19:09:48.000Z,7661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,766 10139,v1.0,,"I would like to make a comment to your idea and pssdgroup5 I must say that it is a brilliant topic and also a very huge space to contribute and envelope students and helping them on their way forward. I can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation. There are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn't make it to be a part of an exchange program as a participiant. Thumbs Up and wish you all the best...",/post/7661,2017-05-17T19:09:40.000Z,2017-05-17T19:09:40.000Z,7661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1457 11308,v1.0,,"We would like to achieve that goal through the involvement of some fix representative of University such as professors. They work as facilitator in order to promote this projects to different courses or levels. We would create an Identity for this initiative in order to make it visible and recognizable. By using a common platform, we want to show what we can do for them and stimulate the conversation about what could be done. Students will have the possibility to organize activities such as focus group, workshop, games etc. to collect knowledge and involving people. Exhibitions of the projects in the neighborhood could be the possibility to share the outcome with the community and make an evaluation of them. In this way, there will be the opportunity to take the most suitable solution and implement them.",/post/833,2017-05-17T19:09:15.000Z,2017-05-17T19:09:15.000Z,833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1798 9310,v1.0,,We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”.,/post/833,2017-05-17T18:53:43.000Z,2017-05-17T18:53:43.000Z,833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1283 8338,v1.0,,"TITLE: BOVISA X CO-DESIGN : Connecting students with the outside community WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”. WHAT? The people of the neighborhood offer us information about the real problems present and we provide them with solutions. Since design students work on different topics every year there is the possibility to develop projects from different areas of expertise and give to teams the opportunity to learn on the fly and testing their ideas in the real world. HOW? We would like to achieve that goal through the involvement of some fix representative of University such as professors. They work as facilitator in order to promote this projects to different courses or levels. We would create an Identity for this initiative in order to make it visible and recognizable. By using a common platform, we want to show what we can do for them and stimulate the conversation about what could be done. Students will have the possibility to organize activities such as focus group, workshop, games etc. to collect knowledge and involving people. Exhibitions of the projects in the neighborhood could be the possibility to share the outcome with the community and make an evaluation of them. In this way, there will be the opportunity to take the most suitable solution and implement them.",/post/833,2017-05-17T18:45:58.000Z,2017-05-17T18:45:58.000Z,833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1090 11517,v1.0,,"TITLE: BOVISA X CO-DESIGN : Connecting students with the outside community WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”. WHAT? The people of the neighborhood offer us information about the real problems present and we provide them with solutions. Since design students work on different topics every year there is the possibility to develop projects from different areas of expertise and give to teams the opportunity to learn on the fly and testing their ideas in the real world. HOW? We would like to achieve that goal through the involvement of some fix representative of University such as professors. They work as facilitator in order to promote this projects to different courses or levels. We would create an Identity for this initiative in order to make it visible and recognizable. By using a common platform, we want to show what we can do for them and stimulate the conversation about what could be done. Students will have the possibility to organize activities such as focus group, workshop, games etc. to collect knowledge and involving people. Exhibitions of the projects in the neighborhood could be the possibility to share the outcome with the community and make an evaluation of them. In this way, there will be the opportunity to take the most suitable solution and implement them.",/post/833,2017-05-17T18:45:54.000Z,2017-05-17T18:45:54.000Z,833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1862 8927,v1.0,,"TITLE: BOVISA X CO-DESIGN : Connecting students with the outside community WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”. WHAT? The people of the neighborhood offer us information about the real problems present and we provide them with solutions. Since design students work on different topics every year there is the possibility to develop projects from different areas of expertise and give to teams the opportunity to learn on the fly and testing their ideas in the real world. HOW? We would like to achieve that goal through the involvement of some fix representative of University such as professors. They work as facilitator in order to promote this projects to different courses or levels. We would create an Identity for this initiative in order to make it visible and recognizable. By using a common platform, we want to show what we can do for them and stimulate the conversation about what could be done. Students will have the possibility to organize activities such as focus group, workshop, games etc. to collect knowledge and involving people. Exhibitions of the projects in the neighborhood could be the possibility to share the outcome with the community and make an evaluation of them. In this way, there will be the opportunity to take the most suitable solution and implement them.",/post/833,2017-05-17T18:45:47.000Z,2017-05-17T18:45:47.000Z,833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1197 10738,v1.0,,"TITLE: BOVISA X CO-DESIGN : Connecting students with the outside community WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”. WHAT? The people of the neighborhood offer us information about the real problems present and we provide them with solutions. Since design students work on different topics every year there is the possibility to develop projects from different areas of expertise and give to teams the opportunity to learn on the fly and testing their ideas in the real world. HOW? We would like to achieve that goal through the involvement of some fix representative of University such as professors. They work as facilitator in order to promote this projects to different courses or levels. We would create an Identity for this initiative in order to make it visible and recognizable. By using a common platform, we want to show what we can do for them and stimulate the conversation about what could be done. Students will have the possibility to organize activities such as focus group, workshop, games etc. to collect knowledge and involving people. Exhibitions of the projects in the neighborhood could be the possibility to share the outcome with the community and make an evaluation of them. In this way, there will be the opportunity to take the most suitable solution and implement them.",/post/833,2017-05-17T18:45:40.000Z,2017-05-17T18:45:40.000Z,833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,800,1636 7039,v1.0,,"Similar to @Alberto,  I'm curious your experience with this so far. Spoken-word is a passion for me and I've definitely seen the power it has to give an outlet for people's voices.  I also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?",/post/33802,2017-05-17T18:39:23.000Z,2017-05-17T18:39:23.000Z,33802,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,742 4692,v1.0,,"Similar to @Alberto,  I'm curious your experience with this so far. Spoken-word is a passion for me and I've definitely seen the power it has to give an outlet for people's voices.  I also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?",/post/33802,2017-05-17T18:39:20.000Z,2017-05-17T18:39:20.000Z,33802,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,60 9464,v1.0,,"Similar to @Alberto,  I'm curious your experience with this so far. Spoken-word is a passion for me and I've definitely seen the power it has to give an outlet for people's voices.  I also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?",/post/33802,2017-05-17T18:39:15.000Z,2017-05-17T18:39:15.000Z,33802,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,1317 9463,v1.0,,I live in Amsterdam and I work a lot here with spoken word poetry and inclusion and self development. I am happy to share if you like!,/post/33781,2017-05-17T18:38:52.000Z,2017-05-17T18:38:52.000Z,33781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,1317 7016,v1.0,,"Are you based in Vilnius? Curious how your city, or Lithuania broadly, are dealing with diversity, and whether you look at it as an in-group thing (different groups within the same nation) or an out group. For example where I come from, Romania, the issue of diversity is treated at the politica/ media level as a matter of ethnic groups among the Romanian nationality. It's less a matter of incoming, new groups - where things look good in the quiet way: since we are not exposed to it so much or exposure brings in clear benefits rather than strains (i.e. tourism).",/post/33768,2017-05-17T18:38:44.000Z,2017-05-17T18:38:44.000Z,33768,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,732 4691,v1.0,,"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums. Whithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.",/post/33752,2017-05-17T18:38:29.000Z,2017-05-17T18:38:29.000Z,33752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,60 9462,v1.0,,"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums. Whithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.",/post/33752,2017-05-17T18:38:20.000Z,2017-05-17T18:38:20.000Z,33752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,1317 5518,v1.0,,"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums. Whithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.",/post/33752,2017-05-17T18:38:11.000Z,2017-05-17T18:38:11.000Z,33752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,325 6983,v1.0,,"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums. Whithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.",/post/33752,2017-05-17T18:37:59.000Z,2017-05-17T18:37:59.000Z,33752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,729 6310,v1.0,,"s today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums. Whithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.",/post/33752,2017-05-17T18:37:39.000Z,2017-05-17T18:37:39.000Z,33752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6601,449 6435,v1.0,,"From my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci.",/post/562,2017-05-17T18:05:56.000Z,2017-05-17T18:05:56.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,483 6359,v1.0,,Your idea of testing different ways of presenting data in communities sounds really interesting! Your project funded by the Making All Voices Initiative sounds amazing. Do you have any material to share with us about this? Same holds for the photovoice booklet you mentioned. Would love to learn from your rich experience.,/post/33825,2017-05-17T18:03:07.000Z,2017-05-17T18:03:07.000Z,33825,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,462 9229,v1.0,,The value for me lies in the intersection of these fields or knowledge bodies. and the relationships and collaborations forged. I am truly excited by this potentiality that remains on the fringes of studies and projects.,/post/33824,2017-05-17T18:02:52.000Z,2017-05-17T18:02:52.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1270 9380,v1.0,,"Further to your question, each commuinty in CT alone, nevermind SA, responds to these formats differently as they each have a varied social dynamic on their own. So a one-size-fits-all simply does not work in this context, hence us wanting to test out methods that are relative to the communities we work in. Additionally, commuities (esp townships) suffer from very different public health concerns, e.g. in Delft the issue we worked on was cardiovascular disease as a majority of persons are suffering from this wheres the community 2 km from my called Vrygrond TB is the main concern. Language variation is a big issue as its not homogenous.",/post/33824,2017-05-17T18:02:39.000Z,2017-05-17T18:02:39.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1301 10136,v1.0,,"s they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state ""If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn't want to be sick like that so he stopped"".",/post/33824,2017-05-17T18:02:19.000Z,2017-05-17T18:02:19.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1455 11376,v1.0,,"s they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state ""If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn't want to be sick like that so he stopped"".",/post/33824,2017-05-17T18:02:07.000Z,2017-05-17T18:02:07.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1826 5040,v1.0,,"This is a trying question. In my personal work using participatory methods and facilitation, I've found that audience members generally respond positively to these new formats, perhaps because it is visual and emotion-invoking. When producing the Digital stories and the Events with CCWs, we found people openly reacting to persons they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state ""If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn't want to be sick like that so he stopped"".",/post/33824,2017-05-17T18:01:44.000Z,2017-05-17T18:01:44.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,139 5722,v1.0,,"This is a trying question. In my personal work using participatory methods and facilitation, I've found that audience members generally respond positively to these new formats, perhaps because it is visual and emotion-invoking. When producing the Digital stories and the Events with CCWs, we found people openly reacting to persons they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state ""If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn't want to be sick like that so he stopped"".",/post/33824,2017-05-17T18:01:34.000Z,2017-05-17T18:01:34.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,361 10232,v1.0,,"@Noemi you've raised an important point. "" How do these 'larger audience' responds to new formats? What constitutes reaching results for you? More awareness? or more active behavior across the different community groups?""",/post/33824,2017-05-17T18:01:18.000Z,2017-05-17T18:01:18.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1487 4560,v1.0,,"The Work with local CCWs is still a focus for the Sustainable Livelihoods Foundation, who I was employed by. I managed various projects using various participatory approaches to explore lived experience and provide an outlet for expression. One of our projects funded by the Making All Voices iniative sought to bring these issues faced by CCWs to the City governance structure. It was a phenomenal experience trying to track down CABS and Clinic Boards (whom only exist on paper). There is a network we found that are actively working for the benefit of CCWs, but gov has cut funding for this network and introduced a new structure that is completely defunct and has no community representation (based on my findings in 2016).",/post/33824,2017-05-17T18:01:07.000Z,2017-05-17T18:01:07.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,18 6358,v1.0,,"assisted me in relaying scientific knowledge to other audiences. I've been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in ""digestable"" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I'm now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fa",/post/33824,2017-05-17T18:00:51.000Z,2017-05-17T18:00:51.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,462 7132,v1.0,,"I agree that visual approaches bridge educational divides and somewhat diffuses jargon. This has assisted me in relaying scientific knowledge to other audiences. I've been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in ""digestable"" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I'm now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fashion.",/post/33824,2017-05-17T18:00:45.000Z,2017-05-17T18:00:45.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,766 4690,v1.0,,"I agree that visual approaches bridge educational divides and somewhat diffuses jargon. This has assisted me in relaying scientific knowledge to other audiences. I've been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in ""digestable"" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I'm now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fashion.",/post/33824,2017-05-17T18:00:39.000Z,2017-05-17T18:00:39.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,60 4926,v1.0,,"So great to meet you. If you are based in CT, then please do reach out I'd love to meet with you and consider a conversation in person. I agree with you with regards to relaying information beyond academia and forging collaborations between academia and larger/broader audiences. This has been the preemptive step to the current project and various talks I've had with various institutions.",/post/33824,2017-05-17T18:00:32.000Z,2017-05-17T18:00:32.000Z,33824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,122 4925,v1.0,,"the moment I am trying to build bridges between the academic world and the larger audience, via video and photography. More specifically, trying to portrait the people behind the scientific numbers in a creative and emotionally touching way.",/post/33814,2017-05-17T17:59:53.000Z,2017-05-17T17:59:53.000Z,33814,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,122 9228,v1.0,,"With great interest I read your story. I absolutely agree that a beautiful collaboration between biomedical professionals/scientists, community members and artists is possible and necessary. Stimulating the dialogue between all these different actors sounds like a challenging, but important and rewarding task. At the moment I am trying to build bridges between the academic world and the larger audience, via video and photography. More specifically, trying to portrait the people behind the scientific numbers in a creative and emotionally touching way.",/post/33814,2017-05-17T17:59:32.000Z,2017-05-17T17:59:32.000Z,33814,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1270 4689,v1.0,,"And finally @WinniePoncelet, as these methods are very new and often hard to track scientifically I've chosen to look at impact and direct KAP (knowledge, attitude and practice) changes. This is a near impossibility in its own. The way I've sought to study the efficacy of drama as a method was to study variations of drama presentation including: deep characterization of characters; involving comedy in messages; shorter repetitive chanting or messaging in plays; plays in controlled environments to an invited, anticipating audience; pop up plays in local clinics to unsuspecting audiences. We interviewed persons with a set of questions focused on specific health messaging (i.e. TB and HIV focused) before and after plays.",/post/33803,2017-05-17T17:59:18.000Z,2017-05-17T17:59:18.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,60 7038,v1.0,,"to look at impact and direct KAP (knowledge, attitude and practice) changes. This is a near impossibility in its own. The way I've sought to study the efficacy of drama as a method was to study variations of drama presentation including: deep characterization of characters; involving comedy in messages; shorter repetitive chanting or messaging in plays; plays in controlled environments to an invited, anticipating audience; pop up plays in local clinics to unsuspecting audiences. We interviewed persons with a set of questions focused on specific health messaging (i.e. TB and HIV focused) before and after plays.",/post/33803,2017-05-17T17:59:11.000Z,2017-05-17T17:59:11.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,742 11574,v1.0,,"https://vimeo.com/186163072 (Youth video focused on CVD) and https://vimeo.com/190529779 (video developed by youth, elder populaton and Scientists collectively). Note that the youth developed a collaborative video and the adult population of the participants developed the Photovoice publication. We aimed to explore CVD from different generation's perspectives using differing tools. The adult population are community members that have kids or grandkids and have to consider them when purchasing, consuming or disposing of food, whereas the youth group were youth aged 18 - 28 that do not have to consider others when purchasing, consuming or disposing of food. If anyone is interested I'd be keen to write up a post and post or email persons copies of the Photobook.",/post/33803,2017-05-17T17:58:56.000Z,2017-05-17T17:58:56.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1873 9309,v1.0,,"methodology. It was phenomenal in highlighting illness, nutrition and general social dynamic in response to health. I'd be happy to share this as well as the Photovoice booklet. Please note that even though I managed the project the book was developed by the org that employed me. @NiekD & @Scigrades grade, I think you may find this to be a interesting method that is participatory in all aspects of the design of the product. The following collaborative videos (a participatory method in itself in which a community develops their own video highlighting a specific issue/cause they've isolated as important to develop: https://vimeo.com/186163072 (Youth video focused on CVD) and https://vimeo.com/190529779 (video developed by youth, elder populaton and Scientists collectively). Note that the youth developed a collaborative video and the adult population of the participants developed the Photovoice publication. We aimed to explore CVD from different generation's perspectives using differing tools. The adult population are community members that have kids or grandkids and have to consider them when purchasing, consuming or disposing of food, whereas the youth group were youth aged 18 - 28 that do not have to consider others when purchasing, consuming or disposing of food. If anyone is interested I'd be keen to write up a post and post or email persons copies of the Photobook.",/post/33803,2017-05-17T17:58:51.000Z,2017-05-17T17:58:51.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1283 7131,v1.0,,"Wow @WinniePoncelet @NiekD . Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org . I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I'd be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project: https://vimeo.com/180156715  and this video features one Digital Story from a community resident: https://www.youtube.com/watch?v=dy1PHfUMCQY.",/post/33803,2017-05-17T17:56:49.000Z,2017-05-17T17:56:49.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,766 11369,v1.0,,". Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org . I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I'd be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project: https://vimeo.com/180156715  and this video features one Digital Story from a community resident: https://www.youtube.com/watch?v=dy1PHfUMCQY.",/post/33803,2017-05-17T17:56:42.000Z,2017-05-17T17:56:42.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1822 11368,v1.0,,"I was recently in contact with a Belgian researcher working on stigma of TB and HIV/AIDS community health workers. As you see behind the links, she made two mini documentaries about people involved in those communities. She's now planning to make another round of videos/photographs. I find it a great way to communicate science and to highlight the community aspect.",/post/33787,2017-05-17T17:56:37.000Z,2017-05-17T17:56:37.000Z,33787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1822 5835,v1.0,,"Wow @WinniePoncelet @NiekD . Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org . I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I'd be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project: https://vimeo.com/180156715  and this video features one Digital Story from a community resident: https://www.youtube.com/watch?v=dy1PHfUMCQY.",/post/33803,2017-05-17T17:56:30.000Z,2017-05-17T17:56:30.000Z,33803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,377 7130,v1.0,,"@Scigrades also opened a call for input to make infographics around insulin/diabetes, to help with education and communication. It would be great to hear your input how he could shape these so that they may be relevant to re use in your context as well. Personally, I'm very interested in learning about the topics you will study as a 'researcher'. How will you be conducting this research?",/post/33787,2017-05-17T17:56:12.000Z,2017-05-17T17:56:12.000Z,33787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,766 9710,v1.0,,"The comment of the Senior suffering from diabetes is relevant to another discussion here on the platform. The Open Insulin team in Belgium is thinking of how to do educational outreach around diabetes, because knowledge on the topic is not very widespread. Here is some more info on Open Insulin and pinging @NiekD who proposed it and is also a passionate science communicator.",/post/33787,2017-05-17T17:56:04.000Z,2017-05-17T17:56:04.000Z,33787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1388 4736,v1.0,,"I was recently in contact with a Belgian researcher working on stigma of TB and HIV/AIDS community health workers. As you see behind the links, she made two mini documentaries about people involved in those communities. She's now planning to make another round of videos/photographs. I find it a great way to communicate science and to highlight the community aspect.",/post/33787,2017-05-17T17:55:50.000Z,2017-05-17T17:55:50.000Z,33787,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,62 6319,v1.0,,"For now I continue on my mission to test community- sensitive and -relevant means of expression and trying to find ways of using those tried and tested methods as communication tools. After all, what we want are healthier , expressive and inclusive communities whether you choose to define that territorially or otherwise. Only together can we progress...",/post/33730,2017-05-17T17:55:22.000Z,2017-05-17T17:55:22.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,451 9227,v1.0,,"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory, collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.",/post/33730,2017-05-17T17:54:52.000Z,2017-05-17T17:54:52.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1270 4977,v1.0,,"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory, collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.",/post/33730,2017-05-17T17:54:21.000Z,2017-05-17T17:54:21.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,126 5865,v1.0,,"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory, collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.",/post/33730,2017-05-17T17:54:10.000Z,2017-05-17T17:54:10.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,381 10420,v1.0,,"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory, collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.",/post/33730,2017-05-17T17:53:36.000Z,2017-05-17T17:53:36.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1540 4559,v1.0,,"Allow me to rewind, ever so slightly to paint a picture. I've previously sought to test photovoice as a participatory method by forging relationships with community members from an under-resourced community in Cape Town, South Africa, and Scientists from the University of the Western Cape. The project sought to bring these varied parties together in a participatory workshop process, after which community members were trained on DSLR cameras and instructed to capture the lived experience of food in their everyday lives. They could capture anything related but not limited to the purchase, consumption or disposal of food. This project revolved around Cardiovascular disease and the Scientists involved were Seniors at the Cardiovascular Research Unit at the University of Stellenbosch. The array of visual material and accompanying narrative was phenomenal and utterly beautiful. It shed light on the constant negotiation of food and consumption in these communities, including the availability of food, what kind of food was deemed healthy or not, when it was suitable for food to be disposed, food as celebration and community building etc. To me, and the Scientists involved, this process unveiled knowledge on food consumption behaviour and more structural issues imposed on these communities. It was never simply a ""I want KFC and I shall buy KFC"". This food choice is always compounded by budget, compromise, available options, time of the month, etc. People are consciously and constantly negotiating and re-negotiating choices. My heart broke when a Senior member of the project sample pulled me aside mid-project and told me ...",/post/33730,2017-05-17T17:53:14.000Z,2017-05-17T17:53:14.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,18 9709,v1.0,,"Since resigning from my formal employment, I've begun developing concepts using Street Arts and collaborations to install live arts installations driven toward Public Engagement. Now, Public Engagement as a term itself is not void of ambiguity and misuse for the purpose of funding or green-stamping our professional works. This isn't anyone's fault as it's a field that is developing. We should strive for full participation in our works, not merely using the term as a stamp of approval. My project aims to forge relationships with very different bodies of knowledge and social status, i.e. biomedical professionals/scientists, community members and artists, all of whom I argue have equally important and necessary knowledge to combat illness, increase the status of general Public Health and, simply put, fight a battle using a full arsenal of knowledge and weapons.",/post/33730,2017-05-17T17:52:51.000Z,2017-05-17T17:52:51.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1388 10704,v1.0,,"My name is Nabeel Petersen, a South African citizen on a mission to design and test novel methods for Science Communication, Research and to foster collaboration and stimulate dialogue. I have been employed in the non profit sector as a Project Manager on various projects, after having explored and tested theatrical/drama techniques and incorporating that into Science Communication and Health Messaging. And let me tell you, I am completely motivated and inspired by this community and others toward this goal and Public Engagement. My experience as a process facilitator includes various participatory methods including: photovoice, drama, collaborative/participatory video, workshop design and events design. I've resigned from my formal job in order to test additional methods which I believe have the power to stimulate dialogue, forge relationships across difference sectors and reach larger audiences in organic, fun and interactive means. Since resigning from my formal employment, I've begun developing concepts using Street Arts and collaborations to install live arts installations driven toward Public Engagement. Now, Public Engagement as a term itself is not void of ambiguity and misuse for the purpose of funding or green-stamping our professional works. This isn't anyone's fault as it's a field that is developing. We should strive for full participation in our works, not merely using the term as a stamp of approval. My project aims to forge relationships with very different bodies of knowledge and social status, i.e. biomedical professionals/scientists, community members and artists, all of whom I argue have equally important and necessary knowledge to combat illness, increase the status of general Public Health and, simply put, fight a battle using a full arsenal of knowledge and weapons.  Allow me to rewind, ever so slightly to paint a picture. I've previously sought to test photovoice as a participatory method by forging relationships with community members from an under-resourced community in Cape Town, South Africa, and Scientists from the University of the Western Cape. The project sought to bring these varied parties together in a participatory workshop process, after which community members were trained on DSLR cameras and instructed to capture the lived experience of food in their everyday lives. They could capture anything related but not limited to the purchase, consumption or disposal of food. This project revolved around Cardiovascular disease and the Scientists involved were Seniors at the Cardiovascular Research Unit at the University of Stellenbosch. The array of visual material and accompanying narrative was phenomenal and utterly beautiful. It shed light on the constant negotiation of food and consumption in these communities, including the availability of food, what kind of food was deemed healthy or not, when it was suitable for food to be disposed, food as celebration and community building etc. To me, and the Scientists involved, this process unveiled knowledge on food consumption behaviour and more structural issues imposed on these communities. It was never simply a ""I want KFC and I shall buy KFC"". This food choice is always compounded by budget, compromise, available options, time of the month, etc. People are consciously and constantly negotiating and re-negotiating choices. My heart broke when a Senior member of the project sample pulled me aside mid-project and told me ... ""Nabeel, I've suffered from Type 2 Diabetes for 15 years. At least thats what the doctors told me. They gave me medication and send me away each month. But never before has anyone told me what Diabetes is in a way that I understand. Never before have they taken time to talk with me. But now I have these scientists in my backyard. And they can't leave until I know my body""... It's necessary to point out that even though this community has an approximate population of 100 000 it only has one superstore that either of us would immediately turn our back on. Most food products are sourced from small kiosks on the corners. Yes, I am still in shock. How and why are the most vulnerable excluded from knowledge and provision of services? An alarm bell rang in my head that I could not ignore since I resigned. We've been running projects with a very specific agenda which more often than not in the non-profit sector provides an income and life for the administering organization. The sad truth is peoples knowledge are not given the kudos and respect it desperately needs. And in this battle, that may just be our most prize weapon.  Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory, collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means. Now. Back to my current project...  I have recently collaborated with the University of Cape Town's Swallowing the World project which is a curatorial project focused on the lived experience of TB. My team of graffiti artists and I joined the festival, set up 2.5 x 2.5m canvas in the middle of campus and contributed to this project on International TB Day. As the focus of the fest was on Destigmatization, we followed suit and allowed interaction between the audience and ourselves to influence or define the artpiece. A short video of our work:   This project will be installed in South Africa, India and Botswana simultaneously and attempts to use culturally- and community-sensitve street art forms. As such, we are holding participatory principles as central to the success of the project as we would like to design the project trajectory, outcomes and art installations/events with all participants. You may be thinking that no Funder finds this ideal. Alas, we're all wrong. We have had alot of interaction with a potential funder who chose to view the testing phase on UCT in livetime. This live time viewing feature of our project is something we would want to function very much like Edgeryders as it allows for collaborations and creativity between individuals and entities that may not traditionally interact.  This leaves me at your feet as I'd love feedback, interaction and potentially consider collaborations with not only this project but others moving forward. I'd love to work in varying contexts and establish relationships between and across scientists, community members and artists from varying countries. This will be my next step. Apart from the actual arts installations and events, as products, we will be developing a best practices publication focused on the entire project in each 3 countries. I will also carry my ""researcher"" hat for the duration of this project as I wish to study: the interaction; immediate knowledge transfer between scientists, community members and artists; retained knowledge and overall impact. I would openly accept any suggestions or feedback...  For now I continue on my mission to test community- sensitive and -relevant means of expression and trying to find ways of using those tried and tested methods as communication tools. After all, what we want are healthier , expressive and inclusive communities whether you choose to define that territorially or otherwise. Only together can we progress...",/post/33730,2017-05-17T17:52:27.000Z,2017-05-17T17:52:27.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,1630 4688,v1.0,,"My name is Nabeel Petersen, a South African citizen on a mission to design and test novel methods for Science Communication, Research and to foster collaboration and stimulate dialogue. I have been employed in the non profit sector as a Project Manager on various projects, after having explored and tested theatrical/drama techniques and incorporating that into Science Communication and Health Messaging. And let me tell you, I am completely motivated and inspired by this community and others toward this goal and Public Engagement. My experience as a process facilitator includes various participatory methods including: photovoice, drama, collaborative/participatory video, workshop design and events design. I've resigned from my formal job in order to test additional methods which I believe have the power to stimulate dialogue, forge relationships across difference sectors and reach larger audiences in organic, fun and interactive means. Since resigning from my formal employment, I've begun developing concepts using Street Arts and collaborations to install live arts installations driven toward Public Engagement. Now, Public Engagement as a term itself is not void of ambiguity and misuse for the purpose of funding or green-stamping our professional works. This isn't anyone's fault as it's a field that is developing. We should strive for full participation in our works, not merely using the term as a stamp of approval. My project aims to forge relationships with very different bodies of knowledge and social status, i.e. biomedical professionals/scientists, community members and artists, all of whom I argue have equally important and necessary knowledge to combat illness, increase the status of general Public Health and, simply put, fight a battle using a full arsenal of knowledge and weapons.  Allow me to rewind, ever so slightly to paint a picture. I've previously sought to test photovoice as a participatory method by forging relationships with community members from an under-resourced community in Cape Town, South Africa, and Scientists from the University of the Western Cape. The project sought to bring these varied parties together in a participatory workshop process, after which community members were trained on DSLR cameras and instructed to capture the lived experience of food in their everyday lives. They could capture anything related but not limited to the purchase, consumption or disposal of food. This project revolved around Cardiovascular disease and the Scientists involved were Seniors at the Cardiovascular Research Unit at the University of Stellenbosch. The array of visual material and accompanying narrative was phenomenal and utterly beautiful. It shed light on the constant negotiation of food and consumption in these communities, including the availability of food, what kind of food was deemed healthy or not, when it was suitable for food to be disposed, food as celebration and community building etc. To me, and the Scientists involved, this process unveiled knowledge on food consumption behaviour and more structural issues imposed on these communities. It was never simply a ""I want KFC and I shall buy KFC"". This food choice is always compounded by budget, compromise, available options, time of the month, etc. People are consciously and constantly negotiating and re-negotiating choices. My heart broke when a Senior member of the project sample pulled me aside mid-project and told me ... ""Nabeel, I've suffered from Type 2 Diabetes for 15 years. At least thats what the doctors told me. They gave me medication and send me away each month. But never before has anyone told me what Diabetes is in a way that I understand. Never before have they taken time to talk with me. But now I have these scientists in my backyard. And they can't leave until I know my body""... It's necessary to point out that even though this community has an approximate population of 100 000 it only has one superstore that either of us would immediately turn our back on. Most food products are sourced from small kiosks on the corners. Yes, I am still in shock. How and why are the most vulnerable excluded from knowledge and provision of services? An alarm bell rang in my head that I could not ignore since I resigned. We've been running projects with a very specific agenda which more often than not in the non-profit sector provides an income and life for the administering organization. The sad truth is peoples knowledge are not given the kudos and respect it desperately needs. And in this battle, that may just be our most prize weapon.  Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory, collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means. Now. Back to my current project...  I have recently collaborated with the University of Cape Town's Swallowing the World project which is a curatorial project focused on the lived experience of TB. My team of graffiti artists and I joined the festival, set up 2.5 x 2.5m canvas in the middle of campus and contributed to this project on International TB Day. As the focus of the fest was on Destigmatization, we followed suit and allowed interaction between the audience and ourselves to influence or define the artpiece. A short video of our work:   This project will be installed in South Africa, India and Botswana simultaneously and attempts to use culturally- and community-sensitve street art forms. As such, we are holding participatory principles as central to the success of the project as we would like to design the project trajectory, outcomes and art installations/events with all participants. You may be thinking that no Funder finds this ideal. Alas, we're all wrong. We have had alot of interaction with a potential funder who chose to view the testing phase on UCT in livetime. This live time viewing feature of our project is something we would want to function very much like Edgeryders as it allows for collaborations and creativity between individuals and entities that may not traditionally interact.  This leaves me at your feet as I'd love feedback, interaction and potentially consider collaborations with not only this project but others moving forward. I'd love to work in varying contexts and establish relationships between and across scientists, community members and artists from varying countries. This will be my next step. Apart from the actual arts installations and events, as products, we will be developing a best practices publication focused on the entire project in each 3 countries. I will also carry my ""researcher"" hat for the duration of this project as I wish to study: the interaction; immediate knowledge transfer between scientists, community members and artists; retained knowledge and overall impact. I would openly accept any suggestions or feedback...  For now I continue on my mission to test community- sensitive and -relevant means of expression and trying to find ways of using those tried and tested methods as communication tools. After all, what we want are healthier , expressive and inclusive communities whether you choose to define that territorially or otherwise. Only together can we progress...",/post/33730,2017-05-17T17:52:12.000Z,2017-05-17T17:52:12.000Z,33730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6579,60 11510,v1.0,,"Today we analyzed deeper the How, Who and What of our idea and we developed it better, defining the main actors, i.e. families with children, students and the already existing communities, and the stakeholders involved in the system such as students, teachers, parents, children, location owners and, finally, the public administration.",/post/31152,2017-05-17T17:51:45.000Z,2017-05-17T17:51:45.000Z,31152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1861 7927,v1.0,,"First we set the different touch-points of the encounter with how to reach the different stakeholders (Residents, associations and Students). We then created a timeline of the steps starting from knowing about the makers space to having it rehabilitated.",/post/29967,2017-05-17T17:51:01.000Z,2017-05-17T17:51:01.000Z,29967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,975 7926,v1.0,,"First step: stakeholders analysis and system map  We tried to define all the stakeholders involved in our project in order to discover what kind of relationship there could be among them and what they can offer to each other.",/post/30614,2017-05-17T17:50:53.000Z,2017-05-17T17:50:53.000Z,30614,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,975 7925,v1.0,,"Today we analyzed deeper the How, Who and What of our idea and we developed it better, defining the main actors, i.e. families with children, students and the already existing communities, and the stakeholders involved in the system such as students, teachers, parents, children, location owners and, finally, the public administration.",/post/31152,2017-05-17T17:50:39.000Z,2017-05-17T17:50:39.000Z,31152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,975 8337,v1.0,,"Today we analyzed deeper the How, Who and What of our idea and we developed it better, defining the main actors, i.e. families with children, students and the already existing communities, and the stakeholders involved in the system such as students, teachers, parents, children, location owners and, finally, the public administration.",/post/31152,2017-05-17T17:50:28.000Z,2017-05-17T17:50:28.000Z,31152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1090 10737,v1.0,,"Today we analyzed deeper the How, Who and What of our idea and we developed it better, defining the main actors, i.e. families with children, students and the already existing communities, and the stakeholders involved in the system such as students, teachers, parents, children, location owners and, finally, the public administration.",/post/31152,2017-05-17T17:50:18.000Z,2017-05-17T17:50:18.000Z,31152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 8057,v1.0,,happens inside polimi. Those events will be our physical touchpoints to present to the community our ideas/mock-up/prototype and receive feedbacks. For the community there will be the possibility to evaluate our proposal and promote the development of the best one.,/post/30614,2017-05-17T17:49:27.000Z,2017-05-17T17:49:27.000Z,30614,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1020 9308,v1.0,,"We are working on the possibility to open the design process to all the citizens. In order to envision our proposal and discover what are the values and touchpoints that make the new idea more valuable compared to the old one, we decided to envision both. We discovered that in the process we use nowaday, the citizen is involved only during the research and in a passive way.",/post/30614,2017-05-17T17:49:01.000Z,2017-05-17T17:49:01.000Z,30614,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1283 10736,v1.0,,"First we set the different touch-points of the encounter with how to reach the different stakeholders (Residents, associations and Students). We then created a timeline of the steps starting from knowing about the makers space to having it rehabilitated.",/post/29967,2017-05-17T17:48:46.000Z,2017-05-17T17:48:46.000Z,29967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 8336,v1.0,,"First we set the different touch-points of the encounter with how to reach the different stakeholders (Residents, associations and Students). We then created a timeline of the steps starting from knowing about the makers space to having it rehabilitated.",/post/29967,2017-05-17T17:48:40.000Z,2017-05-17T17:48:40.000Z,29967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1090 9307,v1.0,,We see a lot of potential in co-working together and how it can build a community.,/post/29967,2017-05-17T17:48:30.000Z,2017-05-17T17:48:30.000Z,29967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1283 10489,v1.0,,"Design students can offer their skills to the locals and together they build furniture, decoration, as well as interior and exterior elements of the place. In return students have the chance to improve their practical skills and exhibit their work.",/post/29086,2017-05-17T17:47:59.000Z,2017-05-17T17:47:59.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1557 9421,v1.0,,"After the first discussion, we decided to focus on the resources present in the neighbourhood. We felt the renovation of the cultural space Nuovo Armenia can be a projects bringing different cultures together. Our vision is to make the house of Associazione Nuovo Armenia a maker-space in Bovisa, where people can connect and different cultures can meet in order to increase the wellbeing of the neighborhood. Students and residents will have the possibility of co-working to create a place where they are not just guests but which is truly their own.",/post/29086,2017-05-17T17:47:41.000Z,2017-05-17T17:47:41.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1308 10365,v1.0,,"After the first discussion, we decided to focus on the resources present in the neighbourhood. We felt the renovation of the cultural space Nuovo Armenia can be a projects bringing different cultures together. Our vision is to make the house of Associazione Nuovo Armenia a maker-space in Bovisa, where people can connect and different cultures can meet in order to increase the wellbeing of the neighborhood. Students and residents will have the possibility of co-working to create a place where they are not just guests but which is truly their own.",/post/29086,2017-05-17T17:47:36.000Z,2017-05-17T17:47:36.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1532 9757,v1.0,,"After the first discussion, we decided to focus on the resources present in the neighbourhood. We felt the renovation of the cultural space Nuovo Armenia can be a projects bringing different cultures together. Our vision is to make the house of Associazione Nuovo Armenia a maker-space in Bovisa, where people can connect and different cultures can meet in order to increase the wellbeing of the neighborhood. Students and residents will have the possibility of co-working to create a place where they are not just guests but which is truly their own.",/post/29086,2017-05-17T17:47:31.000Z,2017-05-17T17:47:31.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1395 11516,v1.0,,We started with a brainstorming stating our needs as students and the needs of the residents to have a clear vision how to link the two together. As designers we clustered the needs into recreational activities and education. Culture can be a key factor in bringing residents of Bovisa together with the students.,/post/29086,2017-05-17T17:47:17.000Z,2017-05-17T17:47:17.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1862 8335,v1.0,,We started with a brainstorming stating our needs as students and the needs of the residents to have a clear vision how to link the two together. As designers we clustered the needs into recreational activities and education. Culture can be a key factor in bringing residents of Bovisa together with the students.,/post/29086,2017-05-17T17:47:07.000Z,2017-05-17T17:47:07.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1090 10735,v1.0,,We started with a brainstorming stating our needs as students and the needs of the residents to have a clear vision how to link the two together. As designers we clustered the needs into recreational activities and education. Culture can be a key factor in bringing residents of Bovisa together with the students.,/post/29086,2017-05-17T17:47:03.000Z,2017-05-17T17:47:03.000Z,29086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 11307,v1.0,,"We would like to achieve that goal through the involvement of some fix representative of University such as professors. They work as facilitator in order to promote this projects to different courses or levels. We would create an Identity for this initiative in order to make it visible and recognizable. By using a common platform, we want to show what we can do for them and stimulate the conversation about what could be done. Students will have the possibility to organize activities such as focus group, workshop, games etc. to collect knowledge and involving people. Exhibitions of the projects in the neighborhood could be the possibility to share the outcome with the community and make an evaluation of them. In this way, there will be the opportunity to take the most suitable solution and implement them.",/post/27829,2017-05-17T17:46:53.000Z,2017-05-17T17:46:53.000Z,27829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1798 9306,v1.0,,"BOVISA X CO-DESIGN Connecting students with the outside community  WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”.",/post/27829,2017-05-17T17:46:38.000Z,2017-05-17T17:46:38.000Z,27829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1283 11515,v1.0,,"BOVISA X CO-DESIGN Connecting students with the outside community  WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”.",/post/27829,2017-05-17T17:46:34.000Z,2017-05-17T17:46:34.000Z,27829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1862 10734,v1.0,,"BOVISA X CO-DESIGN Connecting students with the outside community  WHY? We would like to connect the university with the neighborhood through activities that can be useful for both parties. Bovisa is a neighborhood that has many real problems that students can solve or make it visible. Our idea is that the people’s needs or “projects brief” come from the interaction between students and community. Needs are based on problem that community faces every day. Community care about that problems and is interested in solving them. Nowadays we have students that go out of the university just to collect information and then come back to develop in a “secret” way they project they are working for. We would like to change the current design process through activities such as co-design to make feasible our project and make the people of Bovisa feel part of the “team”.",/post/27829,2017-05-17T17:46:19.000Z,2017-05-17T17:46:19.000Z,27829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 9305,v1.0,,"Most social innovation projects start from the bottom-up, engaging communities by leveraging common interests. In the same way, we believe that designers should start at the ground level when dealing with the complexity of social organizations: before looking at needs and solutions, they should start from the definition of a system of shared values. In line with the participatory nature of the topic, we intend to create a platform that uses co-design to research, define and communicate a new authentic identity for the Bovisa area.",/post/26067,2017-05-17T17:46:09.000Z,2017-05-17T17:46:09.000Z,26067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1283 5449,v1.0,,"people. That’s why we asked ourselves: How may we shape a relevant and unifying image for this area?",/post/26067,2017-05-17T17:45:58.000Z,2017-05-17T17:45:58.000Z,26067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,311 7932,v1.0,,"FACT 2: Bovisa is undefined. In the past, it was an industrial powerhouse. Today it’s something different, difficult to define. It lacks the identity that other areas have successfully established,  which also reflects on the feelings that people share towards their place. For that reason, we believe that Bovisa needs to state new, authentic values  to make its way to the minds and hearts of people. That’s why we asked ourselves: How may we shape a relevant and unifying image for this area?",/post/26067,2017-05-17T17:45:53.000Z,2017-05-17T17:45:53.000Z,26067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,976 11316,v1.0,,"FACT 2: Bovisa is undefined. In the past, it was an industrial powerhouse. Today it’s something different, difficult to define. It lacks the identity that other areas have successfully established,  which also reflects on the feelings that people share towards their place. For that reason, we believe that Bovisa needs to state new, authentic values  to make its way to the minds and hearts of people.",/post/26067,2017-05-17T17:45:43.000Z,2017-05-17T17:45:43.000Z,26067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1804 6309,v1.0,,"FACT 1: Bovisa is a meltin’pot. People from many nationalities live in this neighborhood and many exotic shops can be found walking in the streets. Here, people can find at a short distance Chinese takaways, Italian pizzerias, Japanese all-you-can-eats and Indian restaurants (just to name a few). Unfortunately, the wide geographical network does not convert into effective connections. That’s why we asked ourselves: How may we foster cultural exchange and engagement among different nationalities?",/post/26067,2017-05-17T17:45:34.000Z,2017-05-17T17:45:34.000Z,26067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,449 4944,v1.0,,"FACT 1: Bovisa is a meltin’pot. People from many nationalities live in this neighborhood and many exotic shops can be found walking in the streets. Here, people can find at a short distance Chinese takaways, Italian pizzerias, Japanese all-you-can-eats and Indian restaurants (just to name a few). Unfortunately, the wide geographical network does not convert into effective connections. That’s why we asked ourselves: How may we foster cultural exchange and engagement among different nationalities?",/post/26067,2017-05-17T17:45:29.000Z,2017-05-17T17:45:29.000Z,26067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,123 6041,v1.0,,"Students could experience the shops as places to work on their projects, get help from experts and use professional tools, while employees could acquire more visibility and get more customers. All this could happen through a powerful exchange of passions, knowledge and skills, in a stimulating atmosphere to co-work and to share meaningful stories. We want to give to Bovisa districts a new energy and vitality.",/post/20209,2017-05-17T17:45:07.000Z,2017-05-17T17:45:07.000Z,20209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,415 10434,v1.0,,"In this first step we envisioned a place where people could share their leisure time to help someone else. A place where managing time is key to achieve a care exchange. We would like to find a way to integrate different cultures in the Bovisa neighborhood and to make it last, even after the initial buzz.",/post/20209,2017-05-17T17:44:46.000Z,2017-05-17T17:44:46.000Z,20209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1544 4943,v1.0,,"In this first step we envisioned a place where people could share their leisure time to help someone else. A place where managing time is key to achieve a care exchange. We would like to find a way to integrate different cultures in the Bovisa neighborhood and to make it last, even after the initial buzz.",/post/20209,2017-05-17T17:44:34.000Z,2017-05-17T17:44:34.000Z,20209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,123 9240,v1.0,,"dealing with loneliness and the need for help with the language barriers we face everyday. Respecting the opportunities for providing care we can say that we thought about volunteering or giving situational Italian classes to the people of the Bovisa and Dergamo neighborhoods and also skill sharing with them. In this first step we envisioned a place where people could share their leisure time to help someone else. A place where managing time is key to achieve a care exchange. We would like to find a way to integrate different cultures in the Bovisa neighborhood and to make it last, even after the initial buzz.",/post/20209,2017-05-17T17:44:29.000Z,2017-05-17T17:44:29.000Z,20209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1271 8353,v1.0,,We thought about the needs for care that we had as students and then thought about how we could provide care to someone else. From the need of care we can highlight the need of company when dealing with loneliness and the need for help with the language barriers we face everyday. Respecting the opportunities for providing care we can say that we thought about volunteering or giving situational Italian classes to the people of the Bovisa and Dergamo neighborhoods and also skill sharing with them.,/post/20209,2017-05-17T17:44:20.000Z,2017-05-17T17:44:20.000Z,20209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1093 10733,v1.0,,We thought about the needs for care that we had as students and then thought about how we could provide care to someone else. From the need of care we can highlight the need of company when dealing with loneliness and the need for help with the language barriers we face everyday. Respecting the opportunities for providing care we can say that we thought about volunteering or giving situational Italian classes to the people of the Bovisa and Dergamo neighborhoods and also skill sharing with them.,/post/20209,2017-05-17T17:44:15.000Z,2017-05-17T17:44:15.000Z,20209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 8926,v1.0,,"The place will be the neighborhood of Bovisa itself, including pub, bars and the streets, where people can go around and have fun together re-conquering their city and establishing a magic circle similar to a village dimension.",/post/14770,2017-05-17T17:42:46.000Z,2017-05-17T17:42:46.000Z,14770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1197 7568,v1.0,,"Then, we analyzed the different aspects of the idea, considering the activities, the places, and the actors involved and we finally came up with our main idea: connecting students and locals in the late evening/night through games which are co-designed with the aim of exchange cultural useful insights; overcoming international barriers and having fun togeth",/post/14770,2017-05-17T17:42:29.000Z,2017-05-17T17:42:29.000Z,14770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,881 8976,v1.0,,"We tried to illustrate the future of Bovisa's neighborhood, collecting our positive visions about micro-interactions and care-related actions. As a consequence, we identified the most promising field of action, which revealed the night life in the neighborhood.",/post/14770,2017-05-17T17:42:19.000Z,2017-05-17T17:42:19.000Z,14770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1209 10419,v1.0,,"In the end, we came up with the idea of connecting students and people from Bovisa's neighborhood, building a micro-interactions-based economy in which people can exchange their know-how, their time and their design skills to improve knowledge or activities in the area. Examples of interactions can be related to helping people or students in their daily life in Bovisa or using design practices to solve problems for locals.",/post/14770,2017-05-17T17:42:02.000Z,2017-05-17T17:42:02.000Z,14770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1540 7472,v1.0,,"What families can give, on the other side, is more about involvement (for example sharing a dinner with a student - both Italian or foreigner one) and little everyday goods to share/lend.",/post/7571,2017-05-17T17:41:37.000Z,2017-05-17T17:41:37.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,857 8334,v1.0,,"Day 1 - 8th may 2017 At the beginning of the project, we started by a brainstorming session about the needs of the students in a usual working/studying day and what they can offer to Bovisa inhabit",/post/14770,2017-05-17T17:41:11.000Z,2017-05-17T17:41:11.000Z,14770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1090 10732,v1.0,,"At the beginning of the project, we started by a brainstorming session about the needs of the students in a usual working/studying day and what they can offer to Bovisa inhabitants.",/post/14770,2017-05-17T17:41:05.000Z,2017-05-17T17:41:05.000Z,14770,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 5621,v1.0,,"We finally chose to focus on a service that allows exchanges using an online platform. It will make people talk and interact in order to exchange cultural knowledge and everyday goods. We decided to focus on families with children and young generations living in Bovisa, since they are the future of this district.",/post/7571,2017-05-17T17:40:46.000Z,2017-05-17T17:40:46.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,354 4942,v1.0,,Afterwards we made another brainstorming on how the situation could change starting with the question “What might be done/improved?” and we arrived to many interesting ideas which derive from the 5 main clusters.,/post/7571,2017-05-17T17:40:38.000Z,2017-05-17T17:40:38.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,123 10076,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:40:18.000Z,2017-05-17T17:40:18.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1450 7162,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:40:13.000Z,2017-05-17T17:40:13.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,768 6308,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:39:58.000Z,2017-05-17T17:39:58.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,449 8925,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:39:47.000Z,2017-05-17T17:39:47.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1197 10731,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:39:41.000Z,2017-05-17T17:39:41.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 8333,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:39:35.000Z,2017-05-17T17:39:35.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1090 8332,v1.0,,"The aforementioned pushed the Politecnico University to challange itself asking “how can our student transitional community and residents develop positive interactions and give new life to the district?”. This is what the course – PSSD 2017 Networks of Care Collaborative encounters in/around the Bovisa campus – is about. Ezio Manzini and Liat Rogel, with Susanna De Besi wanted this to be the focus of their students’ work for this year. And they suggested the students to interact with the edgeryders community as their works progress. Today introduction ended with the following questions to students: Referring to your everyday interactions with Bovisa, when are you in need for care?  And when are you willing to provide care to somebody else?",/post/832,2017-05-17T17:39:27.000Z,2017-05-17T17:39:27.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1090 8352,v1.0,,"After a brainstorming, we found out 4 main areas of interest in the field “need for help”: Avoiding loneliness and increasing safety; Triggering motivation for exercising together; Improving the efficiency of residence resources; Overcoming cultural gaps by creating situations that make locals and foreigners interact/teach/learn/share. This was our main intention: “We would like to create an atmosphere that helps Bovisa inhabitants to overcome cultural stereotypes. We plan to build situations that make them interact/teach/learn/share with international neighborhood, feel familiar with each other and increase the feeling of safety”.",/post/7571,2017-05-17T17:39:12.000Z,2017-05-17T17:39:12.000Z,7571,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1093 10730,v1.0,,"The newly established School of Design attracted some 4,000 students which increased the demand for daily, standard, low cost services. That is what today Bovisa offers for the most, since the majority of the students live somewhere else. When students are off the district it changes its face: bookshops, fast food, bars, copy centres are closed and leave the district lifeless.",/post/832,2017-05-17T17:38:22.000Z,2017-05-17T17:38:22.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1636 11315,v1.0,,"This process exacerbates in those areas of the city that suffer sudden transformations and even more where a large chunk of the city change its function. This was the case of Bovisa district in Milan that undergone a dramatic change in the 90s’ when the dismissed industrial area (Ex-gasometri) left place to the current Bovisa Politecnico University. In the words of one of the professor at Politecnico “it’s like if a massive alien spacecraft has unexpectedly landed”. This is considered a general upgrading of the district but no doubt resulted in a subsequent change in the social life.",/post/832,2017-05-17T17:38:10.000Z,2017-05-17T17:38:10.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1804 5834,v1.0,,"Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people’s caring and collaborating capabilities and doing so, creating new forms of care-related communities.",/post/832,2017-05-17T17:37:48.000Z,2017-05-17T17:37:48.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,377 4900,v1.0,,"Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people’s caring and collaborating capabilities and doing so, creating new forms of care-related communities.",/post/832,2017-05-17T17:37:30.000Z,2017-05-17T17:37:30.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,114 10563,v1.0,,"Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people’s caring and collaborating capabilities and doing so, creating new forms of care-related communities.",/post/832,2017-05-17T17:37:05.000Z,2017-05-17T17:37:05.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1577 7321,v1.0,,"Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people’s caring and collaborating capabilities and doing so, creating new forms of care-related communities.",/post/832,2017-05-17T17:36:45.000Z,2017-05-17T17:36:45.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,805 8351,v1.0,,"Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people’s caring and collaborating capabilities and doing so, creating new forms of care-related communities.",/post/832,2017-05-17T17:36:35.000Z,2017-05-17T17:36:35.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,1093 5448,v1.0,,"Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people’s caring and collaborating capabilities and doing so, creating new forms of care-related communities.",/post/832,2017-05-17T17:36:28.000Z,2017-05-17T17:36:28.000Z,832,3323,AnnotatorStore::TextAnnotation,,,,,,,,,799,311 8754,v1.0,,"question instead of the municipality. When talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?) But did it become easier to learn a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?",/post/10365,2017-04-22T22:12:36.000Z,2017-04-22T22:12:36.000Z,10365,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,1150 10853,v1.0,,"I am wondering if the community would have gotten better if it was organised by the groups in question instead of the municipality. When talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?) But did it become easier to learn a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?",/post/10365,2017-04-22T22:12:31.000Z,2017-04-22T22:12:31.000Z,10365,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,1659 5721,v1.0,,"I am wondering if the community would have gotten better if it was organised by the groups in question instead of the municipality. When talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?) But did it become easier to learn a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?",/post/10365,2017-04-22T22:12:29.000Z,2017-04-22T22:12:29.000Z,10365,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,361 10049,v1.0,,"I’ve been asked what projects I think can really make a difference: Projects that work on the concept of resilience, avoid that people identify themselves with their own pain. We saw a lot of people that 5 or 6 months after their arrival start to fade, to turn off. During the first months you hope that your rights became effective, job, home.. But nothing happens. Your life becomes full of complaints. A very interesting school that is part of the community is for example, Asnada. It’s a Montessori/Experimental school. The idea is to teach in a different way. Helping people to use this new language not as a “stranger” language. Usually you start to have 2 languages: the native one that is the language of feelings and relationships and a second language that is the language of bureaucracy. The idea is to teach a language that helps you to construct your new identity, “create your new life here in a new language”. So the lessons became a workshop where we, all together, construct the language, with different ways, methods (arts, music, plays..) and also being a community. So in my opinion it’s really important to be able to find new ways to take care, creating effective spaces of meeting, of real exchange. Work on resilience, opening workshops where people can create something (for ex. FabLabs, Makerspaces..) using open technologies (like Raspberry Pi) could become new ways to take care of people in really big troubles, with strong vulnerabilities and help them to start again. Maybe Opencare, Edgeryders community could be the right place where to start!! What do you think?",/post/515,2017-04-22T22:12:20.000Z,2017-04-22T22:12:20.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,1446 7129,v1.0,,"Your students are not yours. To create a community we realized  real life meetings between teachers and schoolmakers. Every school has the possibility to post directly activities, news. So everyone can have an always updated map of time classes, levels, locations etc; But also a moment of exchange between teachers, methods and materials. The teachers all together wrote also an handbook for teachers (in Italian only). We also created an e-learning database to help people to find free resources on internet and a lot of videos (in 5 languages) to explain Laws. Education system...",/post/515,2017-04-22T22:12:16.000Z,2017-04-22T22:12:16.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,766 7220,v1.0,,"The question is more to create opportunities for people to be really active (refugees as #nospectators). There are language barriers, cultural misunderstandings, different contexts of life, different expectations.",/post/515,2017-04-22T22:07:50.000Z,2017-04-22T22:07:50.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,782 10618,v1.0,,"The history is long and I’ don’t want to become boring, but only to say that it’s not possible to speak about refugees in general when trying to be of real help. We have to think about the countries where we are and where they come from (for example 90% of Syrian refugees that arrived in Italy decided not to ask asylum here, but in other north EU countries), the migration routes, the particular war conditions, but also the economical ones..",/post/515,2017-04-22T22:07:19.000Z,2017-04-22T22:07:19.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,1606 4682,v1.0,,"In effect after the Arab Spring Revolution (2011) everything changed. A lot of people that came from Horn of Africa or from other Sub Saharian regions and were in Libya for work decided to come in Europe. Gaddafi’s death meant the end of every agreement “Petrol vs Migrants” that Italian Government had signed with Berlusconi in 2009 (for more details, this Guardian article). So you’d have more asylum seekers in Europe, but also different routes, different countries of origin, different reasons to leave their countries.",/post/515,2017-04-22T22:06:59.000Z,2017-04-22T22:06:59.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,57 4751,v1.0,,"A little bit about my experience: In particular I would like to speak about my working period during the so called “North  Africa Emergency” for 3 years. It was a really hard situation for our (Italian) reception system. We were in the paradoxical situation to tell them: “you are an asylum seeker, you HAVE to be an asylum seeker, if you want to have any chances to stay in Europe”.",/post/515,2017-04-22T22:06:38.000Z,2017-04-22T22:06:38.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,69 10852,v1.0,,"Hello all, my name is Franca, I come from Italy. About me.. philosopher, interested in post-structuralism, new ways to do international cooperation, passionate about Geopolitics and China-Africa relations. I’ve worked a lot with refugees, doing legal orientation, helping them to find houses, jobs, but also writing projects to get funds to create new spaces of inclusion. For me it’s interesting to see how many edgeryders are interested in migration or refugee issues and what are the connections to spring up from the many well known problems of working with refugees. I think that it’s possible to underline some key issues when talking about care in this context . Helping Relationships vs Peer Relationships Know your rights vs Rights as a cage Intercultural problems and Empathy Inclusiveness in our society/community: avoid ideological and too theoretical approach A little bit about my experience: In particular I would like to speak about my working period during the so called “North  Africa Emergency” for 3 years. It was a really hard situation for our (Italian) reception system. We were in the paradoxical situation to tell them: “you are an asylum seeker, you HAVE to be an asylum seeker, if you want to have any chances to stay in Europe”. In effect after the Arab Spring Revolution (2011) everything changed. A lot of people that came from Horn of Africa or from other Sub Saharian regions and were in Libya for work decided to come in Europe. Gaddafi’s death meant the end of every agreement “Petrol vs Migrants” that Italian Government had signed with Berlusconi in 2009 (for more details, this Guardian article). So you’d have more asylum seekers in Europe, but also different routes, different countries of origin, different reasons to leave their countries. In 2011 asylum seekers in Italy were more than 40.000 (4 times more than 2010, Eurostat) and Italy became the fourth country for the number of claims submitted, mainly from Nigeria,Tunisia, Ghana and Mali. Most of them have lived for many years in Libya, illiterate in their own native language, living in segregated conditions of work or in the terrible detention centers. The history is long and I’ don’t want to become boring, but only to say that it’s not possible to speak about refugees in general when trying to be of real help. We have to think about the countries where we are and where they come from (for example 90% of Syrian refugees that arrived in Italy decided not to ask asylum here, but in other north EU countries), the migration routes, the particular war conditions, but also the economical ones.. For all these reasons it was hard to prepare asylum seekers during North Africa Emergency because they came here for Lybian crisis and most didn’t leave their countries for reasons of “race, religion, nationality, membership of a particular social group, or political opinion” (Geneva Convention) or for war crisis in their countries (subsidiary protection). And so it was difficult to explain them that formally they have to be asylum seekers, that we need to find these elements in their stories. How could we help them? I usually do some group or individual meetings to inform them about procedures, about what does it mean to ask asylum and I prepare them for the Audition. How to help them to underline important elements in their stories, not lying... A lot of also ethical questions..(Legislation vs Reality) A relation of care: teaching a foreign language The relations between us is a relation of help. Sometimes you can help someone too much. The question is more to create opportunities for people to be really active (refugees as #nospectators). There are language barriers, cultural misunderstandings, different contexts of life, different expectations. In this complex and nonlinear context of work that I would like to start from the first point: the challenge to learn a new language, the language of the recipient country. It could be difficult and, in some situations, also impossible, like a WALL. This could be because learning a language means that you accept to be in a country, you decide to start again your life. For a lot of vulnerable people that are victims of violence (in their countries of origin or during the migration travel) it could become a catalyst of bed experiences. So learning a language becomes the first step to say: “I’m here. I would like to take part in this new society and new community.” For all these reasons we needed to share knowledge and experiences about “how to teach in more effective way?”, we needed to create a community - or better to create a space for a community of italian schools! So we started with: www.milano.Italianostranieri.org It is a platform of the Municipality of Milan to help foreigners find a school of Italian; there are a lot of problems to find the right schools, also because there are a lot of schools but not connected. We saw that there is this tendency to work alone, providing a service but without  sharing knowledge, critical points.. We knew people that attend 3 different classes, for months,  but they couldn’t speak Italian! So we decided to open our website to every school, private, public, run by volunteers, by NGOs. It’s not simple to help, to take care of someone. It’s a relation full of responsibilities, and good intentions often aren’t enough. We noticed also some schools that are so active in helping their students, helping them in legal stuff or finding jobs.. But all these activities could be dangerous, create a bubble, a dependence relation, mixed with ideological thoughts .. Your students are not yours. To create a community we realized  real life meetings between teachers and schoolmakers. Every school has the possibility to post directly activities, news. So everyone can have an always updated map of time classes, levels, locations etc; But also a moment of exchange between teachers, methods and materials. The teachers all together wrote also an handbook for teachers (in Italian only). We also created an e-learning database to help people to find free resources on internet and a lot of videos (in 5 languages) to explain Laws. Education system...   I’ve been asked what projects I think can really make a difference: Projects that work on the concept of resilience, avoid that people identify themselves with their own pain. We saw a lot of people that 5 or 6 months after their arrival start to fade, to turn off. During the first months you hope that your rights became effective, job, home.. But nothing happens. Your life becomes full of complaints. A very interesting school that is part of the community is for example, Asnada. It’s a Montessori/Experimental school. The idea is to teach in a different way. Helping people to use this new language not as a “stranger” language. Usually you start to have 2 languages: the native one that is the language of feelings and relationships and a second language that is the language of bureaucracy. The idea is to teach a language that helps you to construct your new identity, “create your new life here in a new language”. So the lessons became a workshop where we, all together, construct the language, with different ways, methods (arts, music, plays..) and also being a community. So in my opinion it’s really important to be able to find new ways to take care, creating effective spaces of meeting, of real exchange. Work on resilience, opening workshops where people can create something (for ex. FabLabs, Makerspaces..) using open technologies (like Raspberry Pi) could become new ways to take care of people in really big troubles, with strong vulnerabilities and help them to start again. Maybe Opencare, Edgeryders community could be the right place where to start!! What do you think?",/post/515,2017-04-22T22:06:12.000Z,2017-04-22T22:06:12.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,1659 8753,v1.0,,"ello all, my name is Franca, I come from Italy. About me.. philosopher, interested in post-structuralism, new ways to do international cooperation, passionate about Geopolitics and China-Africa relations. I’ve worked a lot with refugees, doing legal orientation, helping them to find houses, jobs, but also writing projects to get funds to create new spaces of inclusion. For me it’s interesting to see how many edgeryders are interested in migration or refugee issues and what are the connections to spring up from the many well known problems of working with refugees. I think that it’s possible to underline some key issues when talking about care in this context . Helping Relationships vs Peer Relationships Know your rights vs Rights as a cage Intercultural problems and Empathy Inclusiveness in our society/community: avoid ideological and too theoretical approach A little bit about my experience: In particular I would like to speak about my working period during the so called “North  Africa Emergency” for 3 years. It was a really hard situation for our (Italian) reception system. We were in the paradoxical situation to tell them: “you are an asylum seeker, you HAVE to be an asylum seeker, if you want to have any chances to stay in Europe”. In effect after the Arab Spring Revolution (2011) everything changed. A lot of people that came from Horn of Africa or from other Sub Saharian regions and were in Libya for work decided to come in Europe. Gaddafi’s death meant the end of every agreement “Petrol vs Migrants” that Italian Government had signed with Berlusconi in 2009 (for more details, this Guardian article). So you’d have more asylum seekers in Europe, but also different routes, different countries of origin, different reasons to leave their countries. In 2011 asylum seekers in Italy were more than 40.000 (4 times more than 2010, Eurostat) and Italy became the fourth country for the number of claims submitted, mainly from Nigeria,Tunisia, Ghana and Mali. Most of them have lived for many years in Libya, illiterate in their own native language, living in segregated conditions of work or in the terrible detention centers. The history is long and I’ don’t want to become boring, but only to say that it’s not possible to speak about refugees in general when trying to be of real help. We have to think about the countries where we are and where they come from (for example 90% of Syrian refugees that arrived in Italy decided not to ask asylum here, but in other north EU countries), the migration routes, the particular war conditions, but also the economical ones.. For all these reasons it was hard to prepare asylum seekers during North Africa Emergency because they came here for Lybian crisis and most didn’t leave their countries for reasons of “race, religion, nationality, membership of a particular social group, or political opinion” (Geneva Convention) or for war crisis in their countries (subsidiary protection). And so it was difficult to explain them that formally they have to be asylum seekers, that we need to find these elements in their stories. How could we help them? I usually do some group or individual meetings to inform them about procedures, about what does it mean to ask asylum and I prepare them for the Audition. How to help them to underline important elements in their stories, not lying... A lot of also ethical questions..(Legislation vs Reality) A relation of care: teaching a foreign language The relations between us is a relation of help. Sometimes you can help someone too much. The question is more to create opportunities for people to be really active (refugees as #nospectators). There are language barriers, cultural misunderstandings, different contexts of life, different expectations. In this complex and nonlinear context of work that I would like to start from the first point: the challenge to learn a new language, the language of the recipient country. It could be difficult and, in some situations, also impossible, like a WALL. This could be because learning a language means that you accept to be in a country, you decide to start again your life. For a lot of vulnerable people that are victims of violence (in their countries of origin or during the migration travel) it could become a catalyst of bed experiences. So learning a language becomes the first step to say: “I’m here. I would like to take part in this new society and new community.” For all these reasons we needed to share knowledge and experiences about “how to teach in more effective way?”, we needed to create a community - or better to create a space for a community of italian schools! So we started with: www.milano.Italianostranieri.org It is a platform of the Municipality of Milan to help foreigners find a school of Italian; there are a lot of problems to find the right schools, also because there are a lot of schools but not connected. We saw that there is this tendency to work alone, providing a service but without  sharing knowledge, critical points.. We knew people that attend 3 different classes, for months,  but they couldn’t speak Italian! So we decided to open our website to every school, private, public, run by volunteers, by NGOs. It’s not simple to help, to take care of someone. It’s a relation full of responsibilities, and good intentions often aren’t enough. We noticed also some schools that are so active in helping their students, helping them in legal stuff or finding jobs.. But all these activities could be dangerous, create a bubble, a dependence relation, mixed with ideological thoughts .. Your students are not yours. To create a community we realized  real life meetings between teachers and schoolmakers. Every school has the possibility to post directly activities, news. So everyone can have an always updated map of time classes, levels, locations etc; But also a moment of exchange between teachers, methods and materials. The teachers all together wrote also an handbook for teachers (in Italian only). We also created an e-learning database to help people to find free resources on internet and a lot of videos (in 5 languages) to explain Laws. Education system...   I’ve been asked what projects I think can really make a difference: Projects that work on the concept of resilience, avoid that people identify themselves with their own pain. We saw a lot of people that 5 or 6 months after their arrival start to fade, to turn off. During the first months you hope that your rights became effective, job, home.. But nothing happens. Your life becomes full of complaints. A very interesting school that is part of the community is for example, Asnada. It’s a Montessori/Experimental school. The idea is to teach in a different way. Helping people to use this new language not as a “stranger” language. Usually you start to have 2 languages: the native one that is the language of feelings and relationships and a second language that is the language of bureaucracy. The idea is to teach a language that helps you to construct your new identity, “create your new life here in a new language”. So the lessons became a workshop where we, all together, construct the language, with different ways, methods (arts, music, plays..) and also being a community. So in my opinion it’s really important to be able to find new ways to take care, creating effective spaces of meeting, of real exchange. Work on resilience, opening workshops where people can create something (for ex. FabLabs, Makerspaces..) using open technologies (like Raspberry Pi) could become new ways to take care of people in really big troubles, with strong vulnerabilities and help them to start again. Maybe Opencare, Edgeryders community could be the right place where to start!! What do you think?",/post/515,2017-04-22T22:05:38.000Z,2017-04-22T22:05:38.000Z,515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,482,1150 6125,v1.0,,"right..about the project. essentially we are a synergy hub for people who see that we need to strengthen the parallel reality..the "" normal"" - we work together to make these dreams come true... why do we protest? why do get angry at things? - ...and what good is that going to do when you know how the world is governed... that most of all we see is preplanned and we are just going along for the ride?// well... thats changing... people are waking up to the matrix... and yes... we are making a differnece..and yes we are turning back the tide... our quiet revolution is gaining momentum... and the establishment suddenly realise they wont have everything their own way anymore... we have a long - a very long way to go to raise the consiciousness....but we are doing it here...and with YOUR help... we can make this the EPI centre of that change...",/post/20239,2017-04-17T23:33:31.000Z,2017-04-17T23:33:31.000Z,20239,3323,AnnotatorStore::TextAnnotation,,,,,,,,,688,432 6381,v1.0,,As a global- world citizen I find Switzerland IDEAL for my needs to interact with others around the world. The internet and infrastructure is par excellent and although I dont speak much french or german I still mange to communictae well with others here who pass through this project as most have englsh as their seocnd language. Currently my viewpoint is that decentrlaisation or ism is the way forward for our humanity to go into. It is how we will save this planet from greed-exploitation and most of all ...false prop[aganda! - It is vital for me to work with people who are like minded and pragmatic. ..and who see the way ahead as visionaries..and I came across this project in Month Soleil two years ago...since then I have felt that I am doing something positive to bring in the NEW society. At mont soleil we are trying to create this new culture in the shadow of the old and become a model of what we all would like to see in the age to come. I have been involved in many differnet movemnet and when I discovered the decentralise now! movement which is based on the intelligent understaing and world view which I personally resonate with I am empowered to carry on the struggle.,/post/721,2017-04-17T23:33:03.000Z,2017-04-17T23:33:03.000Z,721,3323,AnnotatorStore::TextAnnotation,,,,,,,,,688,467 10075,v1.0,,"After all, choosing to make an investment in a grant application is different from making a sale, and requires different resource allocation and a strech anyhow - so of course choices at each time matter whether or not you are looking to position yourself or not.",/post/17366,2017-04-17T23:31:44.000Z,2017-04-17T23:31:44.000Z,17366,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,1450 6008,v1.0,,"Hey Noemi! Thanks for your reply. We don't feel the need to position ourselves so clearly. To the contrary: we would like to cooperate with as many diverse actors as possible. Being anti anything is what we try to avoid. We'd rather build something better together than criticize the old. However, I've noticed that in our field, making choices of who you work with and what you do, positions yourself clearly on a polarized spectrum no matter what. It's not always the case surely, but something that is there nevertheless. Thanks for sharing your experience. You're right; if what we do is in allignment with the values then the results will speak for themselves. This dilemma of choosing may well just be fear of shutting certain doors. Other doors will open and as long as our moral compass works, we'll get to where we want to be",/post/15018,2017-04-17T23:31:35.000Z,2017-04-17T23:31:35.000Z,15018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,409 6007,v1.0,,"With Edgeryders we had always had some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission and speaks for itself.",/post/7536,2017-04-17T23:31:23.000Z,2017-04-17T23:31:23.000Z,7536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,409 6025,v1.0,,"Hey Noemi! Thanks for your reply. We don't feel the need to position ourselves so clearly. To the contrary: we would like to cooperate with as many diverse actors as possible. Being anti anything is what we try to avoid. We'd rather build something better together than criticize the old. However, I've noticed that in our field, making choices of who you work with and what you do, positions yourself clearly on a polarized spectrum no matter what. It's not always the case surely, but something that is there nevertheless. Thanks for sharing your experience. You're right; if what we do is in allignment with the values then the results will speak for themselves. This dilemma of choosing may well just be fear of shutting certain doors. Other doors will open and as long as our moral compass works, we'll get to where we want to be",/post/15018,2017-04-17T23:31:07.000Z,2017-04-17T23:31:07.000Z,15018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,413 6201,v1.0,,"With Edgeryders we had always had some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission and speaks for itself.",/post/7536,2017-04-17T23:30:12.000Z,2017-04-17T23:30:12.000Z,7536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,440 9005,v1.0,,"What we do can be considered an experiment and in many ways, it’s not necessarily about biology. We hope that, in addition to growing a basic biological literacy, we help to build a shift in attitude. When we watch global developments, it is clear that the biggest problems we face don’t require technological solutions. Even problems that are directly caused by a misuse of technology, like climate change, could be headed towards a solution by changing our attitude, especially when combined with more sustainable bio-based technologies. A change in behaviour is not likely to happen overnight, but if we can build institutions that promote caring, collaboration and trust, we might be on our way.",/post/530,2017-04-17T23:28:56.000Z,2017-04-17T23:28:56.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,1222 4531,v1.0,,"We are likely at the start of a similar revolution like the digital revolution. That means we have the chance to try and anticipate this time round; to try and prepare people; to embed values, like openness and inclusiveness, that make sure we don’t need to fix the problems of accessibility and literacy afterwards.",/post/530,2017-04-17T23:28:37.000Z,2017-04-17T23:28:37.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,12 9181,v1.0,,"We are likely at the start of a similar revolution like the digital revolution. That means we have the chance to try and anticipate this time round; to try and prepare people; to embed values, like openness and inclusiveness, that make sure we don’t need to fix the problems of accessibility and literacy afterwards.",/post/530,2017-04-17T23:28:28.000Z,2017-04-17T23:28:28.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,1262 7973,v1.0,,"Caring with science More fundamentally, care is everyone’s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible’s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it’s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there’s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it’s communicated. This is only one of plenty of groups that don’t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover. Beyond the tools",/post/530,2017-04-17T23:28:09.000Z,2017-04-17T23:28:09.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,986 11292,v1.0,,"Caring with science More fundamentally, care is everyone’s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible’s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it’s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there’s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it’s communicated. This is only one of plenty of groups that don’t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover.",/post/530,2017-04-17T23:28:00.000Z,2017-04-17T23:28:00.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,1790 6949,v1.0,,"Caring with science More fundamentally, care is everyone’s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible’s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it’s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there’s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it’s communicated. This is only one of plenty of groups that don’t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover",/post/530,2017-04-17T23:27:49.000Z,2017-04-17T23:27:49.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,724 7523,v1.0,,"The question that I posed in the initial post was on how to fund education outside of, but as an addition to, the traditional state-funded system.",/post/530,2017-04-17T23:27:13.000Z,2017-04-17T23:27:13.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,876 5455,v1.0,,"The story to inspire a citizen scientist or biohacker is different from the story to inspire a child. Moreover, DIYbio has had issues with public perception. We find it important that knowledge is spread equally and that everyone can participate in an open discussion. We would not like a distorted image to shape decisions and opinions of people, leading them to self-censor and potentially miss out on learning opportunities.",/post/530,2017-04-17T23:26:59.000Z,2017-04-17T23:26:59.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,312 7752,v1.0,,"ReaGent has been going for about a year. We’ve experimented with several ways to bring biology closer to society. We've had children work with enzymes, build their own microscope, extract DNA and much more. The coming year, we will expand to reach more children and this scale-up entails several challenges.",/post/530,2017-04-17T23:26:46.000Z,2017-04-17T23:26:46.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,924 11284,v1.0,,"Aside from the perspective we teach, relevance is important as well. I hated biology in high school. If you had told me I’d be a bioengineer someday, I would have laughed in disbelief. The content of biology class often remains descriptive (you learn about the parts of a plant cell), while higher education and jobs are all about application (you use these plant cells to grow something useful, like a building). A child that likes engineering, design and coding should consider studying biology. This is fundamental if we want enough people to develop sustainable technologies for the future.",/post/530,2017-04-17T23:25:35.000Z,2017-04-17T23:25:35.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,1785 4874,v1.0,,ReaGent is an open biolab where anyone from any background can tinker with biology. We organize practical workshops for children from all backgrounds to get them in touch with biology in a fun way. We do this because the role of biological technologies will become increasingly bigger as we move towards a circular society. Education plays a fundamental role in allowing people to be a part of this process.,/post/530,2017-04-17T23:24:48.000Z,2017-04-17T23:24:48.000Z,530,3323,AnnotatorStore::TextAnnotation,,,,,,,,,497,101 10286,v1.0,,"If you contrast that with the wikipedia entry on self diagnosis, which say things like: ""One of the greatest dangers of self diagnosis in psychological syndromes, is that you may miss a medical disease that masquerades as a psychiatric syndrome. Self-diagnosis also undermines the role of the doctor-which is not the best way to start the relationship. Then there is the fact that we can know and see ourselves, but sometimes, we need a mirror to see ourselves more clearly. By self-diagnosing, you may be missing something that you cannot see. Another danger of self diagnosis is that you may think that there is more wrong with you than there actually is. Self-diagnosis is also a problem when you are in a state of denial about your symptoms."" I have to say it seems like there is something rotten in the state of Denmark. How much research money gets spent on improving methods of self diagnonsis exactly?",/post/21290,2017-04-17T23:21:44.000Z,2017-04-17T23:21:44.000Z,21290,3323,AnnotatorStore::TextAnnotation,,,,,,,,,701,1500 10179,v1.0,,What a wonderful job you're doing. Having experience in the health system we know how frustating can be to see how people can suffer and die from deseases that could be trated. What can be done in order to make these communities sustein themselves?!,/post/10424,2017-04-17T23:20:26.000Z,2017-04-17T23:20:26.000Z,10424,3323,AnnotatorStore::TextAnnotation,,,,,,,,,701,1480 10122,v1.0,,What a wonderful job you're doing. Having experience in the health system we know how frustating can be to see how people can suffer and die from deseases that could be trated. What can be done in order to make these communities sustein themselves?!,/post/10424,2017-04-17T23:19:47.000Z,2017-04-17T23:19:47.000Z,10424,3323,AnnotatorStore::TextAnnotation,,,,,,,,,701,1451 10121,v1.0,,"The group that started the initiative were limited to leftover equipment from the previous clinics and a small amount of supplies that they carried in with them.  One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from accessible healthcare.",/post/734,2017-04-17T23:19:36.000Z,2017-04-17T23:19:36.000Z,734,3323,AnnotatorStore::TextAnnotation,,,,,,,,,701,1451 8897,v1.0,,"There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication. The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa’s monastery.",/post/734,2017-04-17T23:19:02.000Z,2017-04-17T23:19:02.000Z,734,3323,AnnotatorStore::TextAnnotation,,,,,,,,,701,1193 10387,v1.0,,"@MAZI I figured you might want to read this. Thom, @Bernard @Teresa_Nilan and their team are incredibly committed to this project and I see you guys comparing notes. For reference, MAZI's story also makes a compelling case for peer support groups and they run these gatherings in both Athens and Thessaloniki. It seems to me they also have had some successes with funding coming in.",/post/21632,2017-04-17T23:17:25.000Z,2017-04-17T23:17:25.000Z,21632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1537 5833,v1.0,,"It is paradoxical and completely logical at once! I guess, in its own way, this is fairly typical of the idiosyncratic paths taken by communities of care. You work with the tools you find lying around, and they might be highly specific of your place and time.",/post/15044,2017-04-17T23:17:15.000Z,2017-04-17T23:17:15.000Z,15044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,377 7320,v1.0,,"But which ended up having to take on the role of innovators and start prototyping stuff, as institutional response was slow.",/post/15044,2017-04-17T23:17:05.000Z,2017-04-17T23:17:05.000Z,15044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,805 10771,v1.0,,"We also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions.",/post/757,2017-04-17T23:16:51.000Z,2017-04-17T23:16:51.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1641 9354,v1.0,,"We also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions.",/post/757,2017-04-17T23:16:40.000Z,2017-04-17T23:16:40.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1294 9420,v1.0,,"Currently delivered on a volunteer basis for proof of concept, our intent is to progress towards a cultural space and ‘crisis cafe’ on a social enterprise model, with a welcoming cafe-type front-of-house drop-in space that can be used as an open studio and learning space, with a supportive backstage of more intensive interventions, therapies and supports for those people in emotional distress. Our model is grounded in the value and authenticity of provision of supports and services that are delivered by people with the direct personal experience of the situations in question, and the expressed need based on our research for appropriate creative outlets that support emotional wellbeing and generate meaning and community for the participants.",/post/757,2017-04-17T23:08:20.000Z,2017-04-17T23:08:20.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1308 9304,v1.0,,"Where progress was slow or absent within the system, we took it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because",/post/757,2017-04-17T23:07:54.000Z,2017-04-17T23:07:54.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1283 5832,v1.0,,"What people experiencing mental health difficulties need most is to be shown compassion, empathy, a voice, to be listened to, to be believed in, somewhere to go where they will be given hope of a more meaningful life.’ Cosáin Community Wellness is a recent initiative to develop a peer-led community-based support system for people with emotional distress and mental health issues, and to promote wellness for all. Cosáin is the Irish word for ‘pathways', reflecting our belief in different paths not single roads, and the guidance, wisdom and support that we can find in the stories of each others individual journeys. All quotes within this article are from research performed by Galway Mental Health Services Consumer Panel, the local representative body of mental health service users for the geographic region. GMHSCP advocates for supports and services which are fit for purpose from the perspective of service users, and the integration of users of services into the design,  development and delivery of services, working in partnership with the Irish Health Services (HSE) based on the value of our lived experience of current systems of care, and the evidence of our own healing processes. ‘The most effective help I have experienced over the years, having had years of medication, psychotherapy, hospitalisation, is the support of peers, where I am treated as normal, with kindness, not judged, and not expected to conform to the medical model of treatment.’ Where progress was slow or absent within the system, we took it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because ‘it's a community based project concerned with 'well-being' which is preparing fertile ground for the empowerment and transformation of people, individually and as a group. It's organic growth reflects the personalities and desires of the people involved, making it of and for the people.’ Our belief is that properly resourced and equipped communities can provide more effective intervention in cases of crisis, care in a more person-centred and human manner, and both at a lower cost than the dominant acute-oriented, clinical and biomedical approaches. We believe that only approaches that are grounded in local communities and emerge from their dreams and aspirations can meet the needs which we are presented with in the time that we have. ‘My experience of large organisations is that the individual gets lost in the system and become just another number… I’m sick and tired of waiting for the HSE to offer people the support they want’ We also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions. ‘Being with people who are doing whatever we can to have our lives the way we want them, seeing the evidence that people can succeed, that we can make a difference – all this has a positive effect on my own mental health, self-esteem and my ability to shape my life the way I want it.’ We developed our initiative over the course of the Galway 2020 Bid process, using  participatory design exercises that brought together a range of groups and individuals including independent therapists, health professionals, service users and patients, and other interested parties who are seeking to develop new models of community-based health promotion and care. We then used the blank canvas of a disused city building, visioning and combining elements of artspace, green makerspace, and wellness supports that were brought together using the concept of an integrated cultural and community hub. During this time we came into contact with EdgeRyders and the Opencare research project, and welcomed the opportunity to form productive partnerships at European level with groups and initiatives with similar ethos. Our current operating model exists with the support of Galway City Museum, who have provided us with the use of a room one day a week for prototyping and co-design. This is taking place as part of the Galway City Cultural Strategy, which seeks to use  cultural resources and infrastructure for wellness supports and public health. These sessions were an extension of the earlier co-design process, deployed in a real-life environment for feedback from stakeholders and re-design. Our sessions to date have included artistic and creative process, peer support and educational sessions, based on the demand from service users.  Currently delivered on a volunteer basis for proof of concept, our intent is to progress towards a cultural space and ‘crisis cafe’ on a social enterprise model, with a welcoming cafe-type front-of-house drop-in space that can be used as an open studio and learning space, with a supportive backstage of more intensive interventions, therapies and supports for those people in emotional distress. Our model is grounded in the value and authenticity of provision of supports and services that are delivered by people with the direct personal experience of the situations in question, and the expressed need based on our research for appropriate creative outlets that support emotional wellbeing and generate meaning and community for the participants. ‘in Irish culture mental health tends to be seen as a failing by an individual, of an individual, in an individual. This attitude views the natural processes of emotional distress and recovery through a lens of pathology, individualised blame, guilt and shame. In contrast, rather than attempt to seek what Zygmunt Bauman called ‘individual solutions to collective problems’, an impossible task, we felt the need for the sake of our collective sanity, to use an approach based on collective support and interdependence. Our story is just beginning.",/post/757,2017-04-17T23:07:21.000Z,2017-04-17T23:07:21.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,377 7319,v1.0,,"Where progress was slow or absent within the system, we took it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because ‘it's a community based project concerned with 'well-being' which is preparing fertile ground for the empowerment and transformation of people, individually and as a group. It's organic growth reflects the personalities and desires of the people involved, making it of and for the people.’",/post/757,2017-04-17T23:07:04.000Z,2017-04-17T23:07:04.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,805 9353,v1.0,,"A peer-to-peer support group of mental health patients and caregivers. Which formed with the idea to give out recommendations for improving HSE (state-provided) services. But which ended up having to take on the role of innovators and start prototyping stuff, as institutional response was slow. And reconfigured itself in the context of the process through which Galway has re-invented itself to bid (successfully) for European Capital of Culture 2020. With its main ally so far being not a hospital or a clinic, but an Arts Museum.  It is paradoxical and completely logical at once! I guess, in its own way, this is fairly typical of the idiosyncratic paths taken by communities of care. You work with the tools you find lying around, and they might be highly specific of your place and time.  ECOC processes have one thing going for them: they do encourage everyone in the bidding city to think as a local community, like a piece of a local system. Maybe it made it more natural for a group interested in mental health issues and an arts museum to form an alliance.",/post/15044,2017-04-17T23:06:46.000Z,2017-04-17T23:06:46.000Z,15044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1294 8579,v1.0,,"What people experiencing mental health difficulties need most is to be shown compassion, empathy, a voice, to be listened to, to be believed in, somewhere to go where they will be given hope of a more meaningful life.’ Cosáin Community Wellness is a recent initiative to develop a peer-led community-based support system for people with emotional distress and mental health issues, and to promote wellness for all. Cosáin is the Irish word for ‘pathways', reflecting our belief in different paths not single roads, and the guidance, wisdom and support that we can find in the stories of each others individual journeys. All quotes within this article are from research performed by Galway Mental Health Services Consumer Panel, the local representative body of mental health service users for the geographic region. GMHSCP advocates for supports and services which are fit for purpose from the perspective of service users, and the integration of users of services into the design,  development and delivery of services, working in partnership with the Irish Health Services (HSE) based on the value of our lived experience of current systems of care, and the evidence of our own healing processes. ‘The most effective help I have experienced over the years, having had years of medication, psychotherapy, hospitalisation, is the support of peers, where I am treated as normal, with kindness, not judged, and not expected to conform to the medical model of treatment.’ Where progress was slow or absent within the system, we took it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because ‘it's a community based project concerned with 'well-being' which is preparing fertile ground for the empowerment and transformation of people, individually and as a group. It's organic growth reflects the personalities and desires of the people involved, making it of and for the people.’ Our belief is that properly resourced and equipped communities can provide more effective intervention in cases of crisis, care in a more person-centred and human manner, and both at a lower cost than the dominant acute-oriented, clinical and biomedical approaches. We believe that only approaches that are grounded in local communities and emerge from their dreams and aspirations can meet the needs which we are presented with in the time that we have. ‘My experience of large organisations is that the individual gets lost in the system and become just another number… I’m sick and tired of waiting for the HSE to offer people the support they want’ We also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions. ‘Being with people who are doing whatever we can to have our lives the way we want them, seeing the evidence that people can succeed, that we can make a difference – all this has a positive effect on my own mental health, self-esteem and my ability to shape my life the way I want it.’ We developed our initiative over the course of the Galway 2020 Bid process, using  participatory design exercises that brought together a range of groups and individuals including independent therapists, health professionals, service users and patients, and other interested parties who are seeking to develop new models of community-based health promotion and care. We then used the blank canvas of a disused city building, visioning and combining elements of artspace, green makerspace, and wellness supports that were brought together using the concept of an integrated cultural and community hub. During this time we came into contact with EdgeRyders and the Opencare research project, and welcomed the opportunity to form productive partnerships at European level with groups and initiatives with similar ethos. Our current operating model exists with the support of Galway City Museum, who have provided us with the use of a room one day a week for prototyping and co-design. This is taking place as part of the Galway City Cultural Strategy, which seeks to use  cultural resources and infrastructure for wellness supports and public health. These sessions were an extension of the earlier co-design process, deployed in a real-life environment for feedback from stakeholders and re-design. Our sessions to date have included artistic and creative process, peer support and educational sessions, based on the demand from service users.  Currently delivered on a volunteer basis for proof of concept, our intent is to progress towards a cultural space and ‘crisis cafe’ on a social enterprise model, with a welcoming cafe-type front-of-house drop-in space that can be used as an open studio and learning space, with a supportive backstage of more intensive interventions, therapies and supports for those people in emotional distress. Our model is grounded in the value and authenticity of provision of supports and services that are delivered by people with the direct personal experience of the situations in question, and the expressed need based on our research for appropriate creative outlets that support emotional wellbeing and generate meaning and community for the participants. ‘in Irish culture mental health tends to be seen as a failing by an individual, of an individual, in an individual. This attitude views the natural processes of emotional distress and recovery through a lens of pathology, individualised blame, guilt and shame. In contrast, rather than attempt to seek what Zygmunt Bauman called ‘individual solutions to collective problems’, an impossible task, we felt the need for the sake of our collective sanity, to use an approach based on collective support and interdependence. Our story is just beginning.",/post/757,2017-04-17T23:06:34.000Z,2017-04-17T23:06:34.000Z,757,3323,AnnotatorStore::TextAnnotation,,,,,,,,,724,1140 6196,v1.0,,"as I read about your project I startet to think about the way children see the world and take on challenges... when we grow older, we often loose the curiosity and enthusiasm we had as we were younger. Also the way we learn in school (at least as I remember it from my own schooldays) is based on facts and memorizing them. Getting to discover the miricales of life without judgement while seeking for ways to get further and learn to cope with difficulties is one of the most important thinks we got to teach each other... to challenge children to keep on thinking free and adults to get in that mood again. I love to see how your project is developing",/post/16092,2017-04-17T23:05:04.000Z,2017-04-17T23:05:04.000Z,16092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,439 6970,v1.0,,"as I read about your project I startet to think about the way children see the world and take on challenges... when we grow older, we often loose the curiosity and enthusiasm we had as we were younger. Also the way we learn in school (at least as I remember it from my own schooldays) is based on facts and memorizing them. Getting to discover the miricales of life without judgement while seeking for ways to get further and learn to cope with difficulties is one of the most important thinks we got to teach each other... to challenge children to keep on thinking free and adults to get in that mood again. I love to see how your project is developing",/post/16092,2017-04-17T23:04:53.000Z,2017-04-17T23:04:53.000Z,16092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,728 7128,v1.0,,"as I read about your project I startet to think about the way children see the world and take on challenges... when we grow older, we often loose the curiosity and enthusiasm we had as we were younger. Also the way we learn in school (at least as I remember it from my own schooldays) is based on facts and memorizing them. Getting to discover the miricales of life without judgement while seeking for ways to get further and learn to cope with difficulties is one of the most important thinks we got to teach each other... to challenge children to keep on thinking free and adults to get in that mood again. I love to see how your project is developing",/post/16092,2017-04-17T23:04:45.000Z,2017-04-17T23:04:45.000Z,16092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,766 4687,v1.0,,"In this framework, we organize a unique Creative Centre for our children which we called BIG BANG after SCHOOL’. This is a comprehensive program for elementary school children and kindergarten, where all participants are able to connect with music, cinema, dance, theater, arts as well as workshops in creative thinking, constructions, architecture and engineering. Additionally, we created a specific program for elementary courses such as science, history, philosophy and multilingualism. In this project, everyone is welcome to contribute in different ways besides financial support. This is a project designed to benefit children and parents who seek for alternative educational methods of learning and interacting with people and the natural environment.",/post/761,2017-04-17T23:03:38.000Z,2017-04-17T23:03:38.000Z,761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,60 4558,v1.0,,"In this framework, we organize a unique Creative Centre for our children which we called BIG BANG after SCHOOL’. This is a comprehensive program for elementary school children and kindergarten, where all participants are able to connect with music, cinema, dance, theater, arts as well as workshops in creative thinking, constructions, architecture and engineering. Additionally, we created a specific program for elementary courses such as science, history, philosophy and multilingualism. In this project, everyone is welcome to contribute in different ways besides financial support. This is a project designed to benefit children and parents who seek for alternative educational methods of learning and interacting with people and the natural environment.",/post/761,2017-04-17T23:03:31.000Z,2017-04-17T23:03:31.000Z,761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,18 10316,v1.0,,"The Big Bang Schools are furthering the vision of our initial project, the “School of Nature and Colours”. This is an educational role model of creative self-management, in which pupils are taught beyond the curriculum how to learn in-depth, sing, dance, stage theatrical plays, raise funds for their school through a vegetable garden and make their activities and campaigns are known to the public using social media.",/post/761,2017-04-17T23:02:26.000Z,2017-04-17T23:02:26.000Z,761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,1510 8885,v1.0,,"Central in our philosophy is that educational activities must take place within the natural environment and the whole procedure must be supported through workshops where pupils have the opportunity to discover and connect with new information. Our educational approach encourages the development of capacities through observation, flexibility, adaptability, evaluation, goal setting and self-confidence in order to create their own path of life.",/post/761,2017-04-17T23:01:26.000Z,2017-04-17T23:01:26.000Z,761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,1189 7335,v1.0,,"We used the name ‘Big Bang’ in a symbolic way to highlight the explosion of new ideas and the creation of brand new knowledge from scratch. A new Big Bang of Creation is about to start at Thessaloniki in the following 2 years (2018) hoping that the idea will expand to other Greek cities and abroad. A school where learning is accomplished experientially, in harmony and interaction with the natural environment, aiming to lead children on a wonderful quest.",/post/761,2017-04-17T23:01:12.000Z,2017-04-17T23:01:12.000Z,761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,810 7127,v1.0,,"The ‘Big Bang Schools’ is a new educational approach and a new type of schools that are re-designed for an era of exponential technological advance and social change. The project seeks to create innovation labs for real human challenges and the planet, helping shape the future instead of repeating the past. It is considered as a catalyst for a new civilization paradigm of joining forces towards “upgrading humanity”. We used the name ‘Big Bang’ in a symbolic way to highlight the explosion of new ideas and the creation of brand new knowledge from scratch. A new Big Bang of Creation is about to start at Thessaloniki in the following 2 years (2018) hoping that the idea will expand to other Greek cities and abroad. A school where learning is accomplished experientially, in harmony and interaction with the natural environment, aiming to lead children on a wonderful quest. Central in our philosophy is that educational activities must take place within the natural environment and the whole procedure must be supported through workshops where pupils have the opportunity to discover and connect with new information. Our educational approach encourages the development of capacities through observation, flexibility, adaptability, evaluation, goal setting and self-confidence in order to create their own path of life. The Big Bang Schools are furthering the vision of our initial project, the “School of Nature and Colours”. This is an educational role model of creative self-management, in which pupils are taught beyond the curriculum how to learn in-depth, sing, dance, stage theatrical plays, raise funds for their school through a vegetable garden and make their activities and campaigns are known to the public using social media. In this framework, we organize a unique Creative Centre for our children which we called BIG BANG after SCHOOL’. This is a comprehensive program for elementary school children and kindergarten, where all participants are able to connect with music, cinema, dance, theater, arts as well as workshops in creative thinking, constructions, architecture and engineering. Additionally, we created a specific program for elementary courses such as science, history, philosophy and multilingualism. In this project, everyone is welcome to contribute in different ways besides financial support. This is a project designed to benefit children and parents who seek for alternative educational methods of learning and interacting with people and the natural environment. My name is Angelos Patsias, an educator on my 30s who aims to launch various innovative activities that will help create a new educational system that will meet the specific needs of each and every place. I started my studies in Primary Level Education at the Democritus University of Thrace and I am currently reading issues for an MA candidate at the Faculty of Sociology at the University of Crete. My philosophy of life encourages me to encounter every difficult circumstance as an opportunity, and at the same time, I strongly believe that returning to the simple meaning of life is an essential action. My partner, Veta Georgiadou has been a kindergarten teacher in public schools for 22 years. Our collaboration in “Big Bang Schools’ project started when she watched my TEDx speech about ‘Breaking the walls between school and society’. As she usually says: ‘Children are the best tutors because they believe in miracles, the life at a present time, are full of enthusiasm and are creating all the time’. She studied pedagogics, eventually becoming a wife and mother of three children and her constant self-searching voyage with pupils, parents, teachers, who never stop learning and reforming is still ongoing. The third partner, Yiannis Sotirakos, is a serial entrepreneur developing projects and technologies towards “Upgrading Humanity”, and innovative educational and edutainment platforms to empower the youth.",/post/761,2017-04-17T23:00:08.000Z,2017-04-17T23:00:08.000Z,761,3323,AnnotatorStore::TextAnnotation,,,,,,,,,728,766 4830,v1.0,,"We love our people, our monuments, our trees, our bats and cats that come at night, and anybody else in the world who feels like us and realizes that this world should not belong to speculating private monsters or to cold public machines.",/post/21382,2017-04-17T22:59:26.000Z,2017-04-17T22:59:26.000Z,21382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,91 8512,v1.0,,"We also want to provide the lowest level of basic services, which the ""state"" is dropping out of, and this is where the issue of health and other care interests us.",/post/21382,2017-04-17T22:59:09.000Z,2017-04-17T22:59:09.000Z,21382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,1134 10594,v1.0,,"Communities can be built on imagining the past, children help us to imagine the future together and learn to build solidarity - we love our place and its history, but anybody from Senegal or from Germany who also loves them is welcome;",/post/21382,2017-04-17T22:57:35.000Z,2017-04-17T22:57:35.000Z,21382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,1590 7597,v1.0,,"However, we opened this garden in a situation of conflict, an object lesson for everybody on gentrification and the ruthlessness of real estate speculation: we did not put the politics into it, they did, and everybody has learned the lesson.",/post/21382,2017-04-17T22:57:15.000Z,2017-04-17T22:57:15.000Z,21382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,892 7275,v1.0,,"We are the families of the ""Oltrarno"", the other or wrong side of the Arno river in Florence, Italy. Facing a tough challenge - surviving in the Disneyland of the Renaissance, as a community. Right behind the Carmine church, where the Renaissance was born, families of the most varied background - both traditional and immigrant - run a garden which was donated to the population of the district by the American Red Cross in 1920 and has since been largely seized by a real estate speculator. A cross-section of ordinary people of every kind, who are beginning to work together to develop new ways of survival, friendship and beauty in an era where the ""state"" is no longer the key actor. As we discover our own needs, our strength, the power of working together, we find that we have a whole world of prospects before us, something much larger than the garden we started out with. We are here to listen and to learn, and of course we would be glad to show you around our side of Florence, should you ever drop by!",/post/766,2017-04-17T22:56:17.000Z,2017-04-17T22:56:17.000Z,766,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,798 7596,v1.0,,"We are the families of the ""Oltrarno"", the other or wrong side of the Arno river in Florence, Italy. Facing a tough challenge - surviving in the Disneyland of the Renaissance, as a community. Right behind the Carmine church, where the Renaissance was born, families of the most varied background - both traditional and immigrant - run a garden which was donated to the population of the district by the American Red Cross in 1920 and has since been largely seized by a real estate speculator. A cross-section of ordinary people of every kind, who are beginning to work together to develop new ways of survival, friendship and beauty in an era where the ""state"" is no longer the key actor. As we discover our own needs, our strength, the power of working together, we find that we have a whole world of prospects before us, something much larger than the garden we started out with. We are here to listen and to learn, and of course we would be glad to show you around our side of Florence, should you ever drop by!",/post/766,2017-04-17T22:56:09.000Z,2017-04-17T22:56:09.000Z,766,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,892 11193,v1.0,,"We are the families of the ""Oltrarno"", the other or wrong side of the Arno river in Florence, Italy. Facing a tough challenge - surviving in the Disneyland of the Renaissance, as a community. Right behind the Carmine church, where the Renaissance was born, families of the most varied background - both traditional and immigrant - run a garden which was donated to the population of the district by the American Red Cross in 1920 and has since been largely seized by a real estate speculator. A cross-section of ordinary people of every kind, who are beginning to work together to develop new ways of survival, friendship and beauty in an era where the ""state"" is no longer the key actor. As we discover our own needs, our strength, the power of working together, we find that we have a whole world of prospects before us, something much larger than the garden we started out with. We are here to listen and to learn, and of course we would be glad to show you around our side of Florence, should you ever drop by!",/post/766,2017-04-17T22:56:02.000Z,2017-04-17T22:56:02.000Z,766,3323,AnnotatorStore::TextAnnotation,,,,,,,,,733,1761 8513,v1.0,,"Field work: Street Nurses takes to the streets to meet patients directly in their environment, without asking for payment. We take care of them, earning their trust, and we motivate them to take charge of their personal care and health by accompanying them to specific care facilities, by actively listening to their needs and giving them advice.",/post/767,2017-04-17T22:54:14.000Z,2017-04-17T22:54:14.000Z,767,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,1135 4816,v1.0,,"Tools: Street Nurses develops prevention tools and information packages to raise awareness among homeless persons about the importance of personal care and health, to give them better access to care and to facilitate their medium - to long-term rehabilitation. Certain tools, however, are aimed at raising awareness among the general public about the situation of homeless people. Examples: list of showers in Brussels, map of fountains and free public conveniences, symptoms and interventions in case of hypothermia, Frostbite prevention poster, Heat stroke prevention poster",/post/767,2017-04-17T22:49:39.000Z,2017-04-17T22:49:39.000Z,767,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,83 7921,v1.0,,"Trainings: Street Nurses organizes different types of awareness-raising sessions and training courses in French or Dutch on ‘hygiene and precariousness’ and ‘basic first aid’.  These trainings are address to any target group that is likely to come into direct contact with homeless people or that works with people who live at home and have major hygiene issues. Our nurses organize sessions on site – in schools, in the offices of security guards and social workers, clinics etc.",/post/767,2017-04-17T22:49:26.000Z,2017-04-17T22:49:26.000Z,767,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,974 5102,v1.0,,"The follow-up of patients ends with the integration of the patient in accommodation where he or she is regularly supported by professionals and volunteers of Street Nurses, and a network of social associations. We aim to assist persons who live in extremely precarious situations by offering them a home and by permanently reintegrating them into society. This medium- to long-term goal is achieved by improving the living conditions and the hygiene of these individuals, as well as their self-esteem.",/post/767,2017-04-17T22:49:18.000Z,2017-04-17T22:49:18.000Z,767,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,147 9576,v1.0,,"Our work is also based on prevention and the dissemination of health information. We are medical and social intermediaries between, on the one hand, persons who live in an extremely precarious situation and on the other, healthcare professionals and social workers.",/post/767,2017-04-17T22:49:06.000Z,2017-04-17T22:49:06.000Z,767,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,1348 7854,v1.0,,"Street Nurses (Infirmiers de Rue): How do we help people living in the street for more than 10years? The non-profit organization Street Nurses was formed in April 2005, following a year and a half of field studies. Two Nurses realized that, despite there being many medical and social organizations in Brussels (Belgium), there were still a great number of homeless people in the Belgian capital. They noticed that personal care and health were major issues for homeless people and were convinced that they could solve these problems. The organization has three primary goals: field work, trainings and tools. Field work: Street Nurses takes to the streets to meet patients directly in their environment, without asking for payment. We take care of them, earning their trust, and we motivate them to take charge of their personal care and health by accompanying them to specific care facilities, by actively listening to their needs and giving them advice. Our work is also based on prevention and the dissemination of health information. We are medical and social intermediaries between, on the one hand, persons who live in an extremely precarious situation and on the other, healthcare professionals and social workers. The follow-up of patients ends with the integration of the patient in accommodation where he or she is regularly supported by professionals and volunteers of Street Nurses, and a network of social associations. We aim to assist persons who live in extremely precarious situations by offering them a home and by permanently reintegrating them into society. This medium- to long-term goal is achieved by improving the living conditions and the hygiene of these individuals, as well as their self-esteem. Trainings: Street Nurses organizes different types of awareness-raising sessions and training courses in French or Dutch on ‘hygiene and precariousness’ and ‘basic first aid’.  These trainings are address to any target group that is likely to come into direct contact with homeless people or that works with people who live at home and have major hygiene issues. Our nurses organize sessions on site – in schools, in the offices of security guards and social workers, clinics etc. Tools: Street Nurses develops prevention tools and information packages to raise awareness among homeless persons about the importance of personal care and health, to give them better access to care and to facilitate their medium - to long-term rehabilitation. Certain tools, however, are aimed at raising awareness among the general public about the situation of homeless people. Examples: list of showers in Brussels, map of fountains and free public conveniences, symptoms and interventions in case of hypothermia, Frostbite prevention poster, Heat stroke prevention poster Since 2005 the non-profit organization Street nurses has grown and its projects are continuously developed. Today, Street Nurses has the equivalent of 13,84 full-time staff members and approximately 60 volunteers. We saw the call by the Mac Arthur Foundation too, but we tough we were way to small to try and get it so we were very happy to receive the information trough DoucheFLux that this kind of initiative exists. We are mostly organized to search every year for new funds. We try to find the good balance between private, public and foundation funds but because of our high costs of wages it is difficult to fund foundations that are willing to support us. Most of them give only money for material or structural projects, not for day to day tasks, and that is what Street Nurses is all about. Since a couple of years we opened our work to an even more inclusive service. We have a collaboration going on with Social housing agencies in Brussels to try to give homeless people a decent home at the end. We participate to the program Housing First Brussels. We have a good network within the association field in Brussels, but when we go to specific funds we are not transcribed in their goals. For example, they help by giving furniture for kids, or funds for kid projects. But our main audience, people living on the street between 8 and 20 years is often forgotten. Something rather unique in the social field is that we have one of our colleagues that is paid by two different organizations, ours and another non-profit organization. This makes it possible to create a solid bridge between both organizations and have a great information flow. We think there is bright future is this way of work. Finally we organize a colloquium the 20th of October in Brussels that has as goal to eradicate homelessness in Brussels for ever. With the mindset: if even we can find homes for the most difficult audience, you can too! We want to share our experience in the field. It takes time and dedication for each of our people to do the whole process, from getting the confidence, to willing to have a stable home. But we want to show that the hard work also has direct results, and if we rally our forces we can go for a total abolishment of homelessness in Brussels!",/post/767,2017-04-17T22:48:51.000Z,2017-04-17T22:48:51.000Z,767,3323,AnnotatorStore::TextAnnotation,,,,,,,,,734,956 8752,v1.0,,"This sounds like a brilliant project. I really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market. More power to you. I will certainly follow your project very carefully.   I wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)",/post/9617,2017-04-17T22:48:21.000Z,2017-04-17T22:48:21.000Z,9617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,736,1150 8185,v1.0,,"This sounds like a brilliant project. I really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market. More power to you. I will certainly follow your project very carefully.   I wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)",/post/9617,2017-04-17T22:48:06.000Z,2017-04-17T22:48:06.000Z,9617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,736,1047 5956,v1.0,,"This sounds like a brilliant project. I really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market. More power to you. I will certainly follow your project very carefully.   I wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)",/post/9617,2017-04-17T22:48:01.000Z,2017-04-17T22:48:01.000Z,9617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,736,394 5955,v1.0,,"We try to list all our initiatives inside of Github organization SquatUp. We try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat. All our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us. It’s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other. So if you are a programmer, ”apptivist”, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps. If you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time. And last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue.",/post/769,2017-04-17T22:47:52.000Z,2017-04-17T22:47:52.000Z,769,3323,AnnotatorStore::TextAnnotation,,,,,,,,,736,394 4545,v1.0,,"All our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us.",/post/769,2017-04-17T22:46:55.000Z,2017-04-17T22:46:55.000Z,769,3323,AnnotatorStore::TextAnnotation,,,,,,,,,736,15 10846,v1.0,,"Therefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don’t even know what to do with all the money.",/post/769,2017-04-17T22:46:39.000Z,2017-04-17T22:46:39.000Z,769,3323,AnnotatorStore::TextAnnotation,,,,,,,,,736,1658 6174,v1.0,,"Some interesting facts from his paper: -social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands -7 % of houses totally empty -1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years From squatting to a participatory process -  a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.  In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space! It's an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123: Profit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised. Loic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.  Important detail: Stairs are used instead of working elevators as a social control mechanism.  Loic is trying to give more visibility to housing solutions - it's not easy, he says, and it's important to make good contact with the owner! ""First you squat, then you talk"" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail: loicdesiron@gmail.com",/post/791,2017-04-17T22:42:35.000Z,2017-04-17T22:42:35.000Z,791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,438 6173,v1.0,,"I really enjoyed Loic's presentation. It was very practical: disable lifts so you can use the stairway to have social control while leaving the space open, out services at ground level, reuse office space as highly flexible living quarters... I think this could be a general purpose tool. A sufficiently large, flexible and central building can act like a coral reef from many life forms to use it and transform it. In 123 Rue Royale we see a community kitchen and a library, for example.  @Yannick , is there a way that Loic himself could join this discussion? Would he be up for answering our comments?",/post/15857,2017-04-17T22:42:26.000Z,2017-04-17T22:42:26.000Z,15857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,438 6072,v1.0,,"I really enjoyed Loic's presentation. It was very practical: disable lifts so you can use the stairway to have social control while leaving the space open, out services at ground level, reuse office space as highly flexible living quarters... I think this could be a general purpose tool. A sufficiently large, flexible and central building can act like a coral reef from many life forms to use it and transform it. In 123 Rue Royale we see a community kitchen and a library, for example.  @Yannick , is there a way that Loic himself could join this discussion? Would he be up for answering our comments?",/post/15857,2017-04-17T22:42:17.000Z,2017-04-17T22:42:17.000Z,15857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,422 11345,v1.0,,"Some interesting facts from his paper: -social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands -7 % of houses totally empty -1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years From squatting to a participatory process -  a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.  In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space! It's an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123: Profit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised. Loic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.  Important detail: Stairs are used instead of working elevators as a social control mechanism.  Loic is trying to give more visibility to housing solutions - it's not easy, he says, and it's important to make good contact with the owner! ""First you squat, then you talk"" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail: loicdesiron@gmail.com",/post/791,2017-04-17T22:41:58.000Z,2017-04-17T22:41:58.000Z,791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,1815 7890,v1.0,,"Loic is trying to give more visibility to housing solutions - it's not easy, he says, and it's important to make good contact with the owner! ""First you squat, then you talk"" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail: loicdesiron@gmail.com",/post/791,2017-04-17T22:41:51.000Z,2017-04-17T22:41:51.000Z,791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,962 6124,v1.0,,"Some interesting facts from his paper: -social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands -7 % of houses totally empty -1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years From squatting to a participatory process -  a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.  In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space! It's an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123: Profit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised. Loic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.  Important detail: Stairs are used instead of working elevators as a social control mechanism.  Loic is trying to give more visibility to housing solutions - it's not easy, he says, and it's important to make good contact with the owner! ""First you squat, then you talk"" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail: loicdesiron@gmail.com",/post/791,2017-04-17T22:41:33.000Z,2017-04-17T22:41:33.000Z,791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,432 9419,v1.0,,"Some interesting facts from his paper: -social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands -7 % of houses totally empty -1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years From squatting to a participatory process -  a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.  In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space! It's an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123: Profit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised. Loic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.  Important detail: Stairs are used instead of working elevators as a social control mechanism.  Loic is trying to give more visibility to housing solutions - it's not easy, he says, and it's important to make good contact with the owner! ""First you squat, then you talk"" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail: loicdesiron@gmail.com",/post/791,2017-04-17T22:41:04.000Z,2017-04-17T22:41:04.000Z,791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,758,1308 11385,v1.0,,"..is that it lowers the barriers to this type of knowledge. It is about learning and starts with conversations, not therapy, which sounds much heavier and almost like you have to be a ""patient"" or close to one to access it. Who wants to be a ""patient"" and can walk in confidently? Probably very few people, or not even those who need it the most. Even the word ""trauma"" is so heavy that I can see how a friendlier setup and human face can help break the ice. Don't know if it's a strict deontological choice, but you might want to try an experiment where you dont use the word at all in your communication (for example for an event), you'd only use ""pain that doesn't go away"" or something..Then you explain the proper terminology while at it. Who knows, maybe you get even better results. Thank you for working on this piece Ybe. Quick heads up: your link to the list of things we can help with does not work.. so waiting. With @Nadia and a little luck we might meet you in Greece in December!",/post/8060,2017-04-17T22:39:46.000Z,2017-04-17T22:39:46.000Z,8060,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,1829 4903,v1.0,,"..is that it lowers the barriers to this type of knowledge. It is about learning and starts with conversations, not therapy, which sounds much heavier and almost like you have to be a ""patient"" or close to one to access it. Who wants to be a ""patient"" and can walk in confidently? Probably very few people, or not even those who need it the most. Even the word ""trauma"" is so heavy that I can see how a friendlier setup and human face can help break the ice. Don't know if it's a strict deontological choice, but you might want to try an experiment where you dont use the word at all in your communication (for example for an event), you'd only use ""pain that doesn't go away"" or something..Then you explain the proper terminology while at it. Who knows, maybe you get even better results. Thank you for working on this piece Ybe. Quick heads up: your link to the list of things we can help with does not work.. so waiting. With @Nadia and a little luck we might meet you in Greece in December!",/post/8060,2017-04-17T22:39:15.000Z,2017-04-17T22:39:15.000Z,8060,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,115 4902,v1.0,,"I don’t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of ‘self care’: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, … It is long known that helping on this ‘equal’ level, is often more effective than any method or technique. It is also known that the relationship between ‘therapist’ and ‘patient’ is a major factor when it comes to healing. If we combine both, ‘helping expertise’ and ‘being equal’, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes ‘us’ helpers and ‘them’ traumatized people equal human beings, fellow human beings. It restores humanity.",/post/795,2017-04-17T22:38:25.000Z,2017-04-17T22:38:25.000Z,795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,115 10278,v1.0,,"I don’t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of ‘self care’: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, … It is long known that helping on this ‘equal’ level, is often more effective than any method or technique. It is also known that the relationship between ‘therapist’ and ‘patient’ is a major factor when it comes to healing. If we combine both, ‘helping expertise’ and ‘being equal’, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes ‘us’ helpers and ‘them’ traumatized people equal human beings, fellow human beings. It restores humanity.",/post/795,2017-04-17T22:38:11.000Z,2017-04-17T22:38:11.000Z,795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,1499 8424,v1.0,,"teach them to intervene in their dreams by using their imagination, by rehearsing a different ending for their nightmare f.ex. We are all on a mission: to a certain degree we all need to become trauma specialists. First, we need to deal with our own trauma's and those of the people around us. We need to dare to feel and face our pain instead of running away from it. Second, there's too much suffering in the world as to leave its resolution to the clinical field or therapeutic setting. Therapeutic knowledge should be accessible to all of us, it should not be protected and copyrighted. Therapeutic knowledge should be alive in the world, not only in shrinks’ offices. That is why I do what I do: share my knowledge about trauma with you, share insights, methods and techniques from the field of trauma healing ... so that we can all, together, ease and soften the pain in our world.",/post/795,2017-04-17T22:37:34.000Z,2017-04-17T22:37:34.000Z,795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,1111 8778,v1.0,,"'Are you on a mission? And how come that trauma - such a heavy word, such a serious matter - is your passion?' That is what people ask me when they hear about my tour, about me and my bus traveling through Europe to talk and teach about trauma and to try to soften the pain of trauma. 'No, I am not on a mission (that is a far too 'religious word for me to befriend with) - and yes, trauma is my passion, and I do have a message. I really believe that pain should come in the open. That it should be de-tabooed: we should know more about it, understand better what traumatic pain is, how it functions, how it takes possession of us, we should be able to look at it more closely, to be with it (for a while). Trauma, pain, fear ... we'd rather not experience it or watch it happen in someone else's life. It is like with 'death': we know it is part of our lives, we all have to deal with it, and yet we don't - because it's (too) uncomfortable. How to talk about human mistreatments, heavy physical pain, profound disrespect of your person, or situations where you felt like if your life was in danger? How to share the feelings of loneliness and hopelessness that go with such pain? We often do not know how to do that, and try to ban painful events and feelings from our minds, we want to forget about it. It is something in pain itself too. We're hardwired to avoid and suppress pain. It helps us survive, it helps us to go on. Avoiding, minimizing and denying pain is our most natural, short term solution to deal with pain. It is a survival mechanism. It often takes a while, from seconds to minutes, to physically feel the pain caused by an accident, a car crash or a broken leg. Not feeling the pain gives us more time to save ourselves, to get away from danger.  Out of the car, walk away and call the ambulance f.ex. On the long term, however, not feeling isn’t very effective. Because it is impossible to heal from something we don't acknowledge. On the long term, suppressed pain comes back to us, like a boomerang. That is what trauma and traumatic pain is about: it is pain that doesn't seems to go away, pain that stays with us far too long, as a residue of what happened to us. I believe that this residual pain needs to be addressed more openly.   Traumatic pain can be softened - and it should be. Because unresolved trauma makes us sick, depressed and heavy-hearted. It deregulates us, deeply and on many levels: mind, heart and body. We know that traumatic pain lies at the heart of most contemporary diseases, be they mental or physical, we know that trauma adds to almost every sickness as a major contributing factor. And yet ... the knowledge about trauma and how to address it to lower its dramatic impact on our lives is far from common. That is what my tour is about: I want the world to be trauma-informed. I want people to come and look at the pictures on the bus and ask questions. I want them to learn about trauma and realize that healing is possible. We can all learn best practices regarding talking and coping. We can all learn to calm down and regulate a body in fight, flight or freeze modus. We can all learn techniques to stop nightmares and flashbacks. We can all learn to help traumatized persons recover. It often takes not more than 15 minutes to help people sleep better: help them release tension before they go to bed, by offering a relaxing breathing exercise, or teach them to intervene in their dreams by using their imagination, by rehearsing a different ending for their nightmare f.ex. We are all on a mission: to a certain degree we all need to become trauma specialists. First, we need to deal with our own trauma's and those of the people around us. We need to dare to feel and face our pain instead of running away from it. Second, there's too much suffering in the world as to leave its resolution to the clinical field or therapeutic setting. Therapeutic knowledge should be accessible to all of us, it should not be protected and copyrighted. Therapeutic knowledge should be alive in the world, not only in shrinks’ offices. That is why I do what I do: share my knowledge about trauma with you, share insights, methods and techniques from the field of trauma healing ... so that we can all, together, ease and soften the pain in our world.   I don’t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of ‘self care’: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, … It is long known that helping on this ‘equal’ level, is often more effective than any method or technique. It is also known that the relationship between ‘therapist’ and ‘patient’ is a major factor when it comes to healing. If we combine both, ‘helping expertise’ and ‘being equal’, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes ‘us’ helpers and ‘them’ traumatized people equal human beings, fellow human beings. It restores humanity. I’m now in the middle of planning my first big tour: driving down the Balkan route and visit Greece in December 2016 / January 2017. If you’re reading this and you want to support Trauma Tour, please check out my website, there’s a list of things you can do to help me : call me in for a training, be my local host on my way down to Greece, put me in contact with people who might need me … An easy and very effective way to support Trauma Tour is to make a financial contribution - I thank you for that! The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/795,2017-04-17T22:36:27.000Z,2017-04-17T22:36:27.000Z,795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,1153 11235,v1.0,,"'Are you on a mission? And how come that trauma - such a heavy word, such a serious matter - is your passion?' That is what people ask me when they hear about my tour, about me and my bus traveling through Europe to talk and teach about trauma and to try to soften the pain of trauma. 'No, I am not on a mission (that is a far too 'religious word for me to befriend with) - and yes, trauma is my passion, and I do have a message. I really believe that pain should come in the open. That it should be de-tabooed: we should know more about it, understand better what traumatic pain is, how it functions, how it takes possession of us, we should be able to look at it more closely, to be with it (for a while). Trauma, pain, fear ... we'd rather not experience it or watch it happen in someone else's life. It is like with 'death': we know it is part of our lives, we all have to deal with it, and yet we don't - because it's (too) uncomfortable. How to talk about human mistreatments, heavy physical pain, profound disrespect of your person, or situations where you felt like if your life was in danger? How to share the feelings of loneliness and hopelessness that go with such pain? We often do not know how to do that, and try to ban painful events and feelings from our minds, we want to forget about it. It is something in pain itself too. We're hardwired to avoid and suppress pain. It helps us survive, it helps us to go on. Avoiding, minimizing and denying pain is our most natural, short term solution to deal with pain. It is a survival mechanism. It often takes a while, from seconds to minutes, to physically feel the pain caused by an accident, a car crash or a broken leg. Not feeling the pain gives us more time to save ourselves, to get away from danger.  Out of the car, walk away and call the ambulance f.ex. On the long term, however, not feeling isn’t very effective. Because it is impossible to heal from something we don't acknowledge. On the long term, suppressed pain comes back to us, like a boomerang. That is what trauma and traumatic pain is about: it is pain that doesn't seems to go away, pain that stays with us far too long, as a residue of what happened to us. I believe that this residual pain needs to be addressed more openly.   Traumatic pain can be softened - and it should be. Because unresolved trauma makes us sick, depressed and heavy-hearted. It deregulates us, deeply and on many levels: mind, heart and body. We know that traumatic pain lies at the heart of most contemporary diseases, be they mental or physical, we know that trauma adds to almost every sickness as a major contributing factor. And yet ... the knowledge about trauma and how to address it to lower its dramatic impact on our lives is far from common. That is what my tour is about: I want the world to be trauma-informed. I want people to come and look at the pictures on the bus and ask questions. I want them to learn about trauma and realize that healing is possible. We can all learn best practices regarding talking and coping. We can all learn to calm down and regulate a body in fight, flight or freeze modus. We can all learn techniques to stop nightmares and flashbacks. We can all learn to help traumatized persons recover. It often takes not more than 15 minutes to help people sleep better: help them release tension before they go to bed, by offering a relaxing breathing exercise, or teach them to intervene in their dreams by using their imagination, by rehearsing a different ending for their nightmare f.ex. We are all on a mission: to a certain degree we all need to become trauma specialists. First, we need to deal with our own trauma's and those of the people around us. We need to dare to feel and face our pain instead of running away from it. Second, there's too much suffering in the world as to leave its resolution to the clinical field or therapeutic setting. Therapeutic knowledge should be accessible to all of us, it should not be protected and copyrighted. Therapeutic knowledge should be alive in the world, not only in shrinks’ offices. That is why I do what I do: share my knowledge about trauma with you, share insights, methods and techniques from the field of trauma healing ... so that we can all, together, ease and soften the pain in our world.   I don’t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of ‘self care’: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, … It is long known that helping on this ‘equal’ level, is often more effective than any method or technique. It is also known that the relationship between ‘therapist’ and ‘patient’ is a major factor when it comes to healing. If we combine both, ‘helping expertise’ and ‘being equal’, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes ‘us’ helpers and ‘them’ traumatized people equal human beings, fellow human beings. It restores humanity. I’m now in the middle of planning my first big tour: driving down the Balkan route and visit Greece in December 2016 / January 2017. If you’re reading this and you want to support Trauma Tour, please check out my website, there’s a list of things you can do to help me : call me in for a training, be my local host on my way down to Greece, put me in contact with people who might need me … An easy and very effective way to support Trauma Tour is to make a financial contribution - I thank you for that! The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/795,2017-04-17T22:36:17.000Z,2017-04-17T22:36:17.000Z,795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,762,1772 10386,v1.0,,"@Cindy, I was reading on your user profile about the support you get from the family you work for. Does this more positive experience reveal new approaches in your design? Or can those people on the ""right"" side of the debate also offer helpful insights? The advantage is that they can relate to both German peers and foreign peers, and so have more complete information. I would think they can become bridge builders in a solution design.",/post/16089,2017-04-17T22:32:43.000Z,2017-04-17T22:32:43.000Z,16089,3323,AnnotatorStore::TextAnnotation,,,,,,,,,630,1537 10532,v1.0,,How can learn people in this society to be tolerant and patient with others. These are characteristics that I see missing for example in the context of design.,/post/12342,2017-04-17T22:32:26.000Z,2017-04-17T22:32:26.000Z,12342,3323,AnnotatorStore::TextAnnotation,,,,,,,,,630,1571 10936,v1.0,,How can learn people in this society to be tolerant and patient with others. These are characteristics that I see missing for example in the context of design.,/post/12342,2017-04-17T22:32:18.000Z,2017-04-17T22:32:18.000Z,12342,3323,AnnotatorStore::TextAnnotation,,,,,,,,,630,1691 7399,v1.0,,"I think people who stay react badly to people on the move basically because they did not have the same experience to go far away from home and rebuild a home in other place, the most of this people were always in the same place, maybe because this place was very comfortable for them. they are people who maybe do not want to leave the comfort zone and take risk. So they can´t understand people on the move because they maybe didn´t try go on the move. The other reason maybe that people who stay living very well in this comfort zone and are afraid that people are coming can interfere in this zone. They are afraid to the unknown. The question maybe be is how can lose the fear to the unknown in this society? and What can bring people together ?",/post/11090,2017-04-17T22:31:40.000Z,2017-04-17T22:31:40.000Z,11090,3323,AnnotatorStore::TextAnnotation,,,,,,,,,630,829 8751,v1.0,,"I think people who stay react badly to people on the move basically because they did not have the same experience to go far away from home and rebuild a home in other place, the most of this people were always in the same place, maybe because this place was very comfortable for them. they are people who maybe do not want to leave the comfort zone and take risk. So they can´t understand people on the move because they maybe didn´t try go on the move. The other reason maybe that people who stay living very well in this comfort zone and are afraid that people are coming can interfere in this zone. They are afraid to the unknown. The question maybe be is how can lose the fear to the unknown in this society? and What can bring people together ?",/post/11090,2017-04-17T22:31:33.000Z,2017-04-17T22:31:33.000Z,11090,3323,AnnotatorStore::TextAnnotation,,,,,,,,,630,1150 5942,v1.0,,"Hallo Peter! This looks very much like a care model relatet to integral aspects as in ""Integral Theory"". For insiders there ist not much to mention... you are on the right pass, following the right train of thougt. We do have a simolar model in Mind but not only focussing on health, rather integrating health, learning, knowlege and cohabitation into a larger scheme. So we want to encourage you to not only reserach this and create a virtual environment but work with real communities, who get supported by your ideas. Bert",/post/15679,2017-04-17T22:29:13.000Z,2017-04-17T22:29:13.000Z,15679,3323,AnnotatorStore::TextAnnotation,,,,,,,,,643,389 7695,v1.0,,"Guess Germans want to spend the little freetime they have without getting stressed about more appointments. They just want to do what they feel like in that moment. If somebody wants to join spontaniously that´s fine. We are in touch with the people from let´sintegrate and are willing to extend their program on a less obligative way but to rise out of a situation. Thank´s for your comment!",/post/11135,2017-04-17T22:24:39.000Z,2017-04-17T22:24:39.000Z,11135,3323,AnnotatorStore::TextAnnotation,,,,,,,,,651,917 10060,v1.0,,"Hi @MarieScheurer !   I find that the proposition (for Germans) can make a difference: when you are asked to come and commit to do something and be responsible for it is different than when you are asked to join a social gathering, or simply have fun.  A proposition I loved was the one by Tonguesten (here on Edgeryders) - who are mixing language with culture, and frame it as being part of a community of language learners. Any idea of why they are reluctant and don't want to feel obligated?",/post/7835,2017-04-17T22:20:22.000Z,2017-04-17T22:20:22.000Z,7835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,651,1448 8060,v1.0,,"SAY HEY is a line of branded sports equipment, weather resistant stickers, bags and posters designed to facilitate social interaction between people who are attempting to learn a new language and customs, and local residents who like to engage in cultural exchange... or just make new friends SAY HEY is a tag that shows how open you are for new people to join. It will bring Berliners and newbies together.  Support our crowdfunding campaign: https://www.startnext.com/sayhey",/post/684,2017-04-17T22:04:41.000Z,2017-04-17T22:04:41.000Z,684,3323,AnnotatorStore::TextAnnotation,,,,,,,,,651,1021 10578,v1.0,,"How can we still create social interaction? That´s what we already tried out;) SPRACHPICKNICK IDEA AFTER RESEARCH: Giving German people a SIGN which could be a print on a shirt, sticker, bag, what ever that says: “Hey, join us!”/”Don´t be shy!”/”Take part!”… They´ll have the opportunity to put it on in a situation where they want foreign people to participate – Non-Germans wouldn´t have a as hard time to bring oneselfes to do the first step.",/post/684,2017-04-17T22:04:06.000Z,2017-04-17T22:04:06.000Z,684,3323,AnnotatorStore::TextAnnotation,,,,,,,,,651,1583 9239,v1.0,,"Language Barrier – How can we build a Bridge? Non-Germans want to learn German and want to take part in social life. Germans are not as enthusiastic yet. They don`t want to feel obligated. How can we still create social interaction? That´s what we already tried out;) SPRACHPICKNICK IDEA AFTER RESEARCH: Giving German people a SIGN which could be a print on a shirt, sticker, bag, what ever that says: “Hey, join us!”/”Don´t be shy!”/”Take part!”… They´ll have the opportunity to put it on in a situation where they want foreign people to participate – Non-Germans wouldn´t have a as hard time to bring oneselfes to do the first step. Background and research  People say the are willing to help, but they don´t want to feel obligated! There are two parties: the NEWBIES on the one hand and the Germans, or LOCALS on the other hand. Both of them are having different needs because they are in different situations. We were doing surveys with both groups. -NEWBIES: -NEWBIES are looking so badly for LOCALS who would like to spend just a little time with them! -NEWBIES are afraid of doing the first step towards LOCALS. -NEWBIES are afraid of being rejected. -LOCALS: -LOCALS are willing to help. -But they say they don´t have that much time and don’t want to have more appointments. -LOCALS don’t want to be responsible. -They want to stay spontaneous. How can we balance those two perspectives? The Campaign SAY HEY is a line of branded sports equipment, weather resistant stickers, bags and posters designed to facilitate social interaction between people who are attempting to learn a new language and customs, and local residents who like to engage in cultural exchange... or just make new friends SAY HEY is a tag that shows how open you are for new people to join. It will bring Berliners and newbies together.  Support our crowdfunding campaign: https://www.startnext.com/sayhey",/post/684,2017-04-17T22:03:29.000Z,2017-04-17T22:03:29.000Z,684,3323,AnnotatorStore::TextAnnotation,,,,,,,,,651,1271 8750,v1.0,,"Just stumbled upon this social enterprise creating community and business opportunities for migrant women chefs - especially through popup kitchens. Mazi Mas means ""with us"" in Greek. ""In the kitchen we speak the same language"" they say.. A beautiful presentation video is here: http://www.mazimas.co.uk/our-story/",/post/12481,2017-04-17T22:01:17.000Z,2017-04-17T22:01:17.000Z,12481,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,1150 5745,v1.0,,"Just stumbled upon this social enterprise creating community and business opportunities for migrant women chefs - especially through popup kitchens. Mazi Mas means ""with us"" in Greek. ""In the kitchen we speak the same language"" they say.. A beautiful presentation video is here: http://www.mazimas.co.uk/our-story/",/post/12481,2017-04-17T22:01:07.000Z,2017-04-17T22:01:07.000Z,12481,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,366 10538,v1.0,,"Just stumbled upon this social enterprise creating community and business opportunities for migrant women chefs - especially through popup kitchens. Mazi Mas means ""with us"" in Greek. ""In the kitchen we speak the same language"" they say.. A beautiful presentation video is here: http://www.mazimas.co.uk/our-story/",/post/12481,2017-04-17T22:00:58.000Z,2017-04-17T22:00:58.000Z,12481,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,1572 8749,v1.0,,"Thanks for sharing this with us @Luisa.  I was convinced of this approach ever since I heard Jeff, a community member in Athens telling us about Senait's Kitchen to actually provide employment for migrants - a little like a company shell. In a year they've gone through several iterations, bringing new migrants in the group of cooks, have catered to hundreds and are on their way of building a cooperative. Check out Options Foodlab: http://options.limited/about-options/",/post/9429,2017-04-17T22:00:30.000Z,2017-04-17T22:00:30.000Z,9429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,1150 5744,v1.0,,"Thanks for sharing this with us @Luisa.  I was convinced of this approach ever since I heard Jeff, a community member in Athens telling us about Senait's Kitchen to actually provide employment for migrants - a little like a company shell. In a year they've gone through several iterations, bringing new migrants in the group of cooks, have catered to hundreds and are on their way of building a cooperative. Check out Options Foodlab: http://options.limited/about-options/",/post/9429,2017-04-17T22:00:23.000Z,2017-04-17T22:00:23.000Z,9429,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,366 5743,v1.0,,"In the context of our design challenge, we joined the team of “Über den Tellerrand kochen” in their KitchenHub on May 28th to taste and learn about the many different ways to prepare spinach in different countries as for example in Afghanistan, Iran, Syria or South Tyrol. “Über den Tellerrand kochen” is a Berlin based social business, which by using food aims at “[…] creating a new togetherness among refugees and locals and achieving long-lasting integration in a process that involves people from all corners of society participating on their own initiative.” (https://ueberdentellerrandkochen.de/en/about/). About every month they organise a cooking event called “50 shades of…”. This time it was spinach. They put up different cooking stations where we were welcome to help the cooks. The informal and open-minded atmosphere made conversations of all sorts very easy. Here are some pictures of the event. For us the most important insight we gained is the following: The Afghan women who cooked told us that they live in a refugee camp where they do not have any cooking facility and are therefore more than happy about every chance to cook elsewhere. It relaxes and enables them to act out. Every second week they meet up at the KitchenHub to cook. To feel secured it is important to them to be only a small and female group on those days. Therefore the size of the group is kept small even though there has been an increasing demand. Such places are rare and seem to be deeply needed. We are going to cook with one of them in a park to try out whether outside cooking especially in terms of privacy is an option for them as well or not. We heard another related story at our experimental cooking night. Three friends from Syria joined us that day. Two of them are living in an emergency accommodation. The other one got transferred to another camp. The two former do not have access to any kitchen where they live, the latter can use the shared kitchen. From time to time his two friends even join him for cooking, because they really miss doing it. Not having access to cooking facilities seems to be a big issue. “Food security” including cooking is part of “feeling at home”. How can we enable people to do so?",/post/695,2017-04-17T21:59:45.000Z,2017-04-17T21:59:45.000Z,695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,366 8748,v1.0,,"In the context of our design challenge, we joined the team of “Über den Tellerrand kochen” in their KitchenHub on May 28th to taste and learn about the many different ways to prepare spinach in different countries as for example in Afghanistan, Iran, Syria or South Tyrol. “Über den Tellerrand kochen” is a Berlin based social business, which by using food aims at “[…] creating a new togetherness among refugees and locals and achieving long-lasting integration in a process that involves people from all corners of society participating on their own initiative.” (https://ueberdentellerrandkochen.de/en/about/). About every month they organise a cooking event called “50 shades of…”. This time it was spinach. They put up different cooking stations where we were welcome to help the cooks. The informal and open-minded atmosphere made conversations of all sorts very easy. Here are some pictures of the event. For us the most important insight we gained is the following: The Afghan women who cooked told us that they live in a refugee camp where they do not have any cooking facility and are therefore more than happy about every chance to cook elsewhere. It relaxes and enables them to act out. Every second week they meet up at the KitchenHub to cook. To feel secured it is important to them to be only a small and female group on those days. Therefore the size of the group is kept small even though there has been an increasing demand. Such places are rare and seem to be deeply needed. We are going to cook with one of them in a park to try out whether outside cooking especially in terms of privacy is an option for them as well or not. We heard another related story at our experimental cooking night. Three friends from Syria joined us that day. Two of them are living in an emergency accommodation. The other one got transferred to another camp. The two former do not have access to any kitchen where they live, the latter can use the shared kitchen. From time to time his two friends even join him for cooking, because they really miss doing it. Not having access to cooking facilities seems to be a big issue. “Food security” including cooking is part of “feeling at home”. How can we enable people to do so?",/post/695,2017-04-17T21:58:17.000Z,2017-04-17T21:58:17.000Z,695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,1150 6021,v1.0,,"In the context of our design challenge, we joined the team of “Über den Tellerrand kochen” in their KitchenHub on May 28th to taste and learn about the many different ways to prepare spinach in different countries as for example in Afghanistan, Iran, Syria or South Tyrol. “Über den Tellerrand kochen” is a Berlin based social business, which by using food aims at “[…] creating a new togetherness among refugees and locals and achieving long-lasting integration in a process that involves people from all corners of society participating on their own initiative.” (https://ueberdentellerrandkochen.de/en/about/). About every month they organise a cooking event called “50 shades of…”. This time it was spinach. They put up different cooking stations where we were welcome to help the cooks. The informal and open-minded atmosphere made conversations of all sorts very easy. Here are some pictures of the event. For us the most important insight we gained is the following: The Afghan women who cooked told us that they live in a refugee camp where they do not have any cooking facility and are therefore more than happy about every chance to cook elsewhere. It relaxes and enables them to act out. Every second week they meet up at the KitchenHub to cook. To feel secured it is important to them to be only a small and female group on those days. Therefore the size of the group is kept small even though there has been an increasing demand. Such places are rare and seem to be deeply needed. We are going to cook with one of them in a park to try out whether outside cooking especially in terms of privacy is an option for them as well or not. We heard another related story at our experimental cooking night. Three friends from Syria joined us that day. Two of them are living in an emergency accommodation. The other one got transferred to another camp. The two former do not have access to any kitchen where they live, the latter can use the shared kitchen. From time to time his two friends even join him for cooking, because they really miss doing it. Not having access to cooking facilities seems to be a big issue. “Food security” including cooking is part of “feeling at home”. How can we enable people to do so?",/post/695,2017-04-17T21:57:54.000Z,2017-04-17T21:57:54.000Z,695,3323,AnnotatorStore::TextAnnotation,,,,,,,,,662,412 5020,v1.0,,"I am Sabina Ulubeanu, a 36 years old mother who also like to describe herself as „ just a composer”. In the autumn of 2009, at 30, I suddenly began to feel sick: very weak, short of breath and I became yellow. My daughter was 7, and my son was 2. I was still breastfeeding and thought I was just tired and stressed out. What came next was an avalanche of investigations and meetings with doctors form many hospitals. After ruling out all sorts of terrible diseases and trying different treatments with no success, I went to Vienna where my condition was confirmed: Autoimmune Hemolytic Anemia. The newest drug for AIHA (Rituximab)  was still not approved in Romania for this rare disease, so I basically moved to Vienna where thet gave it to me, with no positive outcome, and finally I had my spleen removed and got well. It happened in  March 2012. In November 2012 I was again in Vienna for artistic reasons (and the usual check-up). This is when I read for the first time about the Network of Cytostatics. Everything was familiar to me: the oldest pharmacy in Vienna, the office above Mariahilferstr, but mostly, the struggle to regain one's health.... It was too soon for me to get involved, tha trauma was too recent.  But in February 2013, a good friend, Simona Tache, shared on Facebook a status about needing someone going to Bucharest from Vienna.  It clicked something inside me and I responded.  What came next was overwhelming.  Yes, I travelled home with medicine, calmly taking them through security and bringing them to Valeriu, the taxi driver that distributed them to the ones in need. More important was the fact that doing a simple thing, an easy gesture, meant helping someone's health and fighting a system that seemed not to care about the people. Everyone I talked to about the network felt the same: it is the least we can do!  I truly believe people have the need to do good, to offer, to help each other. The Network was a way of getting people together for a good purpose. I think it is the main reason it worked so well. It responded the needs of others, but also our own need to give (time/ help/ encouragement). My own personal gain, though, was tremendous. Not only you feel good helping others, but I became very good friends with Vlad Voiculescu, the initiator if the Network, supporting each other in many other so called impossible projects or just knowing we are there at a click or phone call away. I got involved because I knew what it means to be helpless against a disease and I will remain involved for as long as I will live, because this Network might not be needed now for cancer drugs, but it created a gathering of great souls that will be for sure needed for many other aspects of our society that need deep and profound healing.",/post/698,2017-04-17T21:54:13.000Z,2017-04-17T21:54:13.000Z,698,3323,AnnotatorStore::TextAnnotation,,,,,,,,,665,135 10433,v1.0,,"I am Sabina Ulubeanu, a 36 years old mother who also like to describe herself as „ just a composer”. In the autumn of 2009, at 30, I suddenly began to feel sick: very weak, short of breath and I became yellow. My daughter was 7, and my son was 2. I was still breastfeeding and thought I was just tired and stressed out. What came next was an avalanche of investigations and meetings with doctors form many hospitals. After ruling out all sorts of terrible diseases and trying different treatments with no success, I went to Vienna where my condition was confirmed: Autoimmune Hemolytic Anemia. The newest drug for AIHA (Rituximab)  was still not approved in Romania for this rare disease, so I basically moved to Vienna where thet gave it to me, with no positive outcome, and finally I had my spleen removed and got well. It happened in  March 2012. In November 2012 I was again in Vienna for artistic reasons (and the usual check-up). This is when I read for the first time about the Network of Cytostatics. Everything was familiar to me: the oldest pharmacy in Vienna, the office above Mariahilferstr, but mostly, the struggle to regain one's health.... It was too soon for me to get involved, tha trauma was too recent.  But in February 2013, a good friend, Simona Tache, shared on Facebook a status about needing someone going to Bucharest from Vienna.  It clicked something inside me and I responded.  What came next was overwhelming.  Yes, I travelled home with medicine, calmly taking them through security and bringing them to Valeriu, the taxi driver that distributed them to the ones in need. More important was the fact that doing a simple thing, an easy gesture, meant helping someone's health and fighting a system that seemed not to care about the people. Everyone I talked to about the network felt the same: it is the least we can do!  I truly believe people have the need to do good, to offer, to help each other. The Network was a way of getting people together for a good purpose. I think it is the main reason it worked so well. It responded the needs of others, but also our own need to give (time/ help/ encouragement). My own personal gain, though, was tremendous. Not only you feel good helping others, but I became very good friends with Vlad Voiculescu, the initiator if the Network, supporting each other in many other so called impossible projects or just knowing we are there at a click or phone call away. I got involved because I knew what it means to be helpless against a disease and I will remain involved for as long as I will live, because this Network might not be needed now for cancer drugs, but it created a gathering of great souls that will be for sure needed for many other aspects of our society that need deep and profound healing.",/post/698,2017-04-17T21:54:02.000Z,2017-04-17T21:54:02.000Z,698,3323,AnnotatorStore::TextAnnotation,,,,,,,,,665,1543 5101,v1.0,,"I am Sabina Ulubeanu, a 36 years old mother who also like to describe herself as „ just a composer”. In the autumn of 2009, at 30, I suddenly began to feel sick: very weak, short of breath and I became yellow. My daughter was 7, and my son was 2. I was still breastfeeding and thought I was just tired and stressed out. What came next was an avalanche of investigations and meetings with doctors form many hospitals. After ruling out all sorts of terrible diseases and trying different treatments with no success, I went to Vienna where my condition was confirmed: Autoimmune Hemolytic Anemia. The newest drug for AIHA (Rituximab)  was still not approved in Romania for this rare disease, so I basically moved to Vienna where thet gave it to me, with no positive outcome, and finally I had my spleen removed and got well. It happened in  March 2012. In November 2012 I was again in Vienna for artistic reasons (and the usual check-up). This is when I read for the first time about the Network of Cytostatics. Everything was familiar to me: the oldest pharmacy in Vienna, the office above Mariahilferstr, but mostly, the struggle to regain one's health.... It was too soon for me to get involved, tha trauma was too recent.  But in February 2013, a good friend, Simona Tache, shared on Facebook a status about needing someone going to Bucharest from Vienna.  It clicked something inside me and I responded.  What came next was overwhelming.  Yes, I travelled home with medicine, calmly taking them through security and bringing them to Valeriu, the taxi driver that distributed them to the ones in need. More important was the fact that doing a simple thing, an easy gesture, meant helping someone's health and fighting a system that seemed not to care about the people. Everyone I talked to about the network felt the same: it is the least we can do!  I truly believe people have the need to do good, to offer, to help each other. The Network was a way of getting people together for a good purpose. I think it is the main reason it worked so well. It responded the needs of others, but also our own need to give (time/ help/ encouragement). My own personal gain, though, was tremendous. Not only you feel good helping others, but I became very good friends with Vlad Voiculescu, the initiator if the Network, supporting each other in many other so called impossible projects or just knowing we are there at a click or phone call away. I got involved because I knew what it means to be helpless against a disease and I will remain involved for as long as I will live, because this Network might not be needed now for cancer drugs, but it created a gathering of great souls that will be for sure needed for many other aspects of our society that need deep and profound healing.",/post/698,2017-04-17T21:53:53.000Z,2017-04-17T21:53:53.000Z,698,3323,AnnotatorStore::TextAnnotation,,,,,,,,,665,147 5720,v1.0,,"Definitely! There are several documentary crews coming over to Greece in the last 1.5 years with some really great questions. Here is an example: https://www.youtube.com/watch?v=A0KNbKvYn5w And here is my documentary ""Farming on Crisis?"" (2012), which shares the stories of young people returning to the land, in seek of ways out of unemployment. I do believe that in the context of #Brexit, there are several interesting lessons to be learned from the social solutions prototyped by communities in Greece, what I like to call the ""Plan C"". Producing a positive, thoughtful documentary film for the transition process happening in Greece is an idea I am very keen in discussing further.",/post/11826,2017-04-17T21:52:59.000Z,2017-04-17T21:52:59.000Z,11826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,361 5732,v1.0,,"Definitely! There are several documentary crews coming over to Greece in the last 1.5 years with some really great questions. Here is an example: https://www.youtube.com/watch?v=A0KNbKvYn5w And here is my documentary ""Farming on Crisis?"" (2012), which shares the stories of young people returning to the land, in seek of ways out of unemployment. I do believe that in the context of #Brexit, there are several interesting lessons to be learned from the social solutions prototyped by communities in Greece, what I like to call the ""Plan C"". Producing a positive, thoughtful documentary film for the transition process happening in Greece is an idea I am very keen in discussing further.",/post/11826,2017-04-17T21:52:47.000Z,2017-04-17T21:52:47.000Z,11826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,362 10537,v1.0,,"Finally, I asked how would he explain his entrepreneurial path to those opposing the market? He said a couple of things I find hilarious and worth considering. First of all, that activism is for city people - while he wanted to go back to his olive groves and do the farm life. Secondly, there is a dire need of changing the way people do business - in a sustainable way, with respect to diversity, with a different concept of what's valuable. It's not the price of land and potential golf courses, not the cheap fast forest. Thirdly, doing things like bread plates is not a rocket science - but if successful it points towards effective and regenerative entrepreneurship. Therefore, an entrepreneur doing such kind of work realizes the visions of an activist - by actually convincing a chain of restaurants to deliver local, better coffee or beer, by cutting off the middlemen. It means millions of people affected in a positive way. It takes a solid ethical concept and guts to take risks, but it pays off in many ways. And it fills the unemployment gap, which wastes the potential of a whole generation now. Interacting with the system is the way for Pavlos. And I really like the fact he's not used to failing.",/post/704,2017-04-17T21:52:15.000Z,2017-04-17T21:52:15.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1572 9180,v1.0,,"Now, as the demos has been neglected and their voice hijacked during the last referendum, it's time to accept, at least tolerate, widespread civil disobedience that will drive the movement. 62% that disagreed has been silent so far, but it will have to speak soon. Even more, what seems to be an alternative idea, is not alternative anymore there - it's the only way out. Greece is exploring the open data tools and sharing knowledge, prototyping new was of accountability, transparency, decision making. And here the health and care appear again. Pavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece. These are the ways in which delivering health care has changed, in which social organization has challenged the systemic shortcomings. From those experiments and pieces emerges a complex, wide image of more inclusive future. It is built on the exchange of ideas and practices in an open manner. It rethinks the way we deliver care in a more decentralized way, more concentrated on prevention. It reframes urban food systems by educating people on the impact of what they eat on their health. Contemporary lifestyle jeopardizes 50 years of development in the health sector - food related diseases, new viruses, climate change, they all have a huge, negative impact on the quality of our lives. Technology and science, accompanied by open data and sharing, can prevent disastrous effects of those phenomena.",/post/704,2017-04-17T21:50:17.000Z,2017-04-17T21:50:17.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1262 7655,v1.0,,"Now, as the demos has been neglected and their voice hijacked during the last referendum, it's time to accept, at least tolerate, widespread civil disobedience that will drive the movement. 62% that disagreed has been silent so far, but it will have to speak soon. Even more, what seems to be an alternative idea, is not alternative anymore there - it's the only way out. Greece is exploring the open data tools and sharing knowledge, prototyping new was of accountability, transparency, decision making. And here the health and care appear again. Pavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece. These are the ways in which delivering health care has changed, in which social organization has challenged the systemic shortcomings. From those experiments and pieces emerges a complex, wide image of more inclusive future. It is built on the exchange of ideas and practices in an open manner. It rethinks the way we deliver care in a more decentralized way, more concentrated on prevention. It reframes urban food systems by educating people on the impact of what they eat on their health. Contemporary lifestyle jeopardizes 50 years of development in the health sector - food related diseases, new viruses, climate change, they all have a huge, negative impact on the quality of our lives. Technology and science, accompanied by open data and sharing, can prevent disastrous effects of those phenomena.",/post/704,2017-04-17T21:50:09.000Z,2017-04-17T21:50:09.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,910 6373,v1.0,,The Greek crisis has a side that not many people talk about - how would paying back the debt affects its environment. Pavlos believes paying off the money lent from the international institutions would create a huge ecological debt in terms of lack of sustainable land use and waste management.,/post/704,2017-04-17T21:49:45.000Z,2017-04-17T21:49:45.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,466 8107,v1.0,,"And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, ""restoring the zombie economy"", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?  Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.",/post/704,2017-04-17T21:49:35.000Z,2017-04-17T21:49:35.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1026 10554,v1.0,,"And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, ""restoring the zombie economy"", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?  Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.",/post/704,2017-04-17T21:49:24.000Z,2017-04-17T21:49:24.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1575 10048,v1.0,,"And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, ""restoring the zombie economy"", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?  Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.",/post/704,2017-04-17T21:48:39.000Z,2017-04-17T21:48:39.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1446 10818,v1.0,,"And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, ""restoring the zombie economy"", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?  Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.",/post/704,2017-04-17T21:48:31.000Z,2017-04-17T21:48:31.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1648 8148,v1.0,,"Pavlos is involved with climatetracker.org, an international team of young writers and quite possibly the biggest environmental youth movement of people from all around the world. These are decentralized and nonhierarchical groups led by activists in the Carribean, Europe, Latin America. They cover events in UN or COPs but also do investigative journalism on a local scale. Their work unmasks lobbies and harmful practices and has been published in key media across the globe. They also organize webinars and campaigns and often encourage writers to concentrate on a certain issue in a given period of time.",/post/704,2017-04-17T21:48:17.000Z,2017-04-17T21:48:17.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,1034 5487,v1.0,,"Besides the food, there is a whole chunk of attention devoted solely to climate change. As @Pavlos said, since he was a kid he saw degradation all around - his little coastal hometown, in North-Eastern Greece, surrounded by olive orchards, was always the reference point of a good life in a good space. Seeing the country devastated by urban sprawl, beaches consumed by villas and bars, and people being happy about this, worried him since a long time. So, after receiving education in Scotland, Germany, and researching native tribes of China and Thailand, he didn't only come back to Greece to rethink its food culture. He also decided to work on the climate.  Pavlos is involved with climatetracker.org, an international team of young writers and quite possibly the biggest environmental youth movement of people from all around the world. These are decentralized and nonhierarchical groups led by activists in the Carribean, Europe, Latin America. They cover events in UN or COPs but also do investigative journalism on a local scale. Their work unmasks lobbies and harmful practices and has been published in key media across the globe. They also organize webinars and campaigns and often encourage writers to concentrate on a certain issue in a given period of time.  And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, ""restoring the zombie economy"", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?  Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.  The Greek crisis has a side that not many people talk about - how would paying back the debt affects its environment. Pavlos believes paying off the money lent from the international institutions would create a huge ecological debt in terms of lack of sustainable land use and waste management.  Now, as the demos has been neglected and their voice hijacked during the last referendum, it's time to accept, at least tolerate, widespread civil disobedience that will drive the movement. 62% that disagreed has been silent so far, but it will have to speak soon. Even more, what seems to be an alternative idea, is not alternative anymore there - it's the only way out. Greece is exploring the open data tools and sharing knowledge, prototyping new was of accountability, transparency, decision making. And here the health and care appear again. Pavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece. These are the ways in which delivering health care has changed, in which social organization has challenged the systemic shortcomings. From those experiments and pieces emerges a complex, wide image of more inclusive future. It is built on the exchange of ideas and practices in an open manner. It rethinks the way we deliver care in a more decentralized way, more concentrated on prevention. It reframes urban food systems by educating people on the impact of what they eat on their health. Contemporary lifestyle jeopardizes 50 years of development in the health sector - food related diseases, new viruses, climate change, they all have a huge, negative impact on the quality of our lives. Technology and science, accompanied by open data and sharing, can prevent disastrous effects of those phenomena.  Finally, I asked how would he explain his entrepreneurial path to those opposing the market? He said a couple of things I find hilarious and worth considering. First of all, that activism is for city people - while he wanted to go back to his olive groves and do the farm life. Secondly, there is a dire need of changing the way people do business - in a sustainable way, with respect to diversity, with a different concept of what's valuable. It's not the price of land and potential golf courses, not the cheap fast forest. Thirdly, doing things like bread plates is not a rocket science - but if successful it points towards effective and regenerative entrepreneurship. Therefore, an entrepreneur doing such kind of work realizes the visions of an activist - by actually convincing a chain of restaurants to deliver local, better coffee or beer, by cutting off the middlemen. It means millions of people affected in a positive way. It takes a solid ethical concept and guts to take risks, but it pays off in many ways. And it fills the unemployment gap, which wastes the potential of a whole generation now. Interacting with the system is the way for Pavlos. And I really like the fact he's not used to failing.  You can read the first part of the article here: https://edgeryders.eu/en/transforming-food-systems-in-post-crisis-greece-conversation-with",/post/704,2017-04-17T21:47:36.000Z,2017-04-17T21:47:36.000Z,704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,671,318 6424,v1.0,,"over decades we lost our acces to knowlege, public decision making (if there was ever such a thing?) and there is much need to create a base for organizational intelligence and social decision making. There are some tools available like wikipedia and e-govenance, gut to difficult to manage for the broad society and often higly manipulated by ""editors"". To find a way for decisionmaking, maintaining bottom up decision making by meta-rules that can be adjusted in an iterative democratic manner and making wisdom available not driven by profit intersts. I wish you good luck, because your issues have a high priority for societal development and as well for a socio-economic development.",/post/20815,2017-04-17T21:42:14.000Z,2017-04-17T21:42:14.000Z,20815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,479 5550,v1.0,,"over decades we lost our acces to knowlege, public decision making (if there was ever such a thing?) and there is much need to create a base for organizational intelligence and social decision making. There are some tools available like wikipedia and e-govenance, gut to difficult to manage for the broad society and often higly manipulated by ""editors"". To find a way for decisionmaking, maintaining bottom up decision making by meta-rules that can be adjusted in an iterative democratic manner and making wisdom available not driven by profit intersts. I wish you good luck, because your issues have a high priority for societal development and as well for a socio-economic development.",/post/20815,2017-04-17T21:41:54.000Z,2017-04-17T21:41:54.000Z,20815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,332 8449,v1.0,,"I was trained as an economist, and I find it easiest to think about what you do in terms of fixing a market failure. In a perfectly functioning market, the stuff that is only a few months away from being productive would be immediately picked up by somebody who spots an opportunity for gain.  What do you think causes the market failure? Why is it that you can look at a paper and see the opportunity, while others cannot?",/post/9055,2017-04-17T21:39:03.000Z,2017-04-17T21:39:03.000Z,9055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1116 7567,v1.0,,"The first area of interest is care-related and it focuses on creating assistive technologies for people with disabilities, and on offering them for free (and under open source licences). Among these are games for blind children, which have been developed in collaboration with schools for the blind - they helped us design them, tested and now use them. The process allowed us to bring together blind and non-blind people to work together. These games have more than 3,500 downloads from all around the world, got much media attention - and we constantly get positive feedback from people using them. So we continue developing more games for the bind.",/post/528,2017-04-17T21:37:37.000Z,2017-04-17T21:37:37.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,881 4739,v1.0,,"And finally, the fourth pillar of our work is the Artificial Intelligence business. One of the outcomes of our work is NewSum that produces automated news summaries, and works in many languages. Or PServer application, that helps you personalise other applications.",/post/528,2017-04-17T21:30:56.000Z,2017-04-17T21:30:56.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,63 8150,v1.0,,"The third scope of our work is supporting civil society with our IT skills. One of the results of such collaborations is a volunteer management platform - available for free, as well.",/post/528,2017-04-17T21:30:49.000Z,2017-04-17T21:30:49.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1036 9050,v1.0,,"The second area of our work is e- democracy. In this strand, we’ve built an open source platform DemocracIT that supports the process of public consultation, which is theoretically common in Greece, but tedious in reality. We’ve tested it and presented to the governmental bodies. Besides, there is also ActiveCommons platform, which we’ve designed to foster collaboration for the common good between It caters organisations, NGOs and groups of people who want to change something and need an effective tool for collaboration.",/post/528,2017-04-17T21:30:24.000Z,2017-04-17T21:30:24.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1246 6423,v1.0,,"The second area of our work is e- democracy. In this strand, we’ve built an open source platform DemocracIT that supports the process of public consultation, which is theoretically common in Greece, but tedious in reality. We’ve tested it and presented to the governmental bodies. Besides, there is also ActiveCommons platform, which we’ve designed to foster collaboration for the common good between It caters organisations, NGOs and groups of people who want to change something and need an effective tool for collaboration.",/post/528,2017-04-17T21:30:04.000Z,2017-04-17T21:30:04.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,479 9152,v1.0,,"The first area of interest is care-related and it focuses on creating assistive technologies for people with disabilities, and on offering them for free (and under open source licences). Among these are games for blind children, which have been developed in collaboration with schools for the blind - they helped us design them, tested and now use them. The process allowed us to bring together blind and non-blind people to work together. These games have more than 3,500 downloads from all around the world, got much media attention - and we constantly get positive feedback from people using them. So we continue developing more games for the bind.",/post/528,2017-04-17T21:29:40.000Z,2017-04-17T21:29:40.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1257 8423,v1.0,,"""EU is spending billions of euros in research projects. Consortia of research institutes and big EU companies receive huge amounts of money to produce amazing technologies. Technologies that need only a few months of work to become great, potentially life­changing products. But most of them remain unused for years within the walls of the institutes that produce them. It seems absurd, but rarely does anyone undertake the little work that is required to bring top notch scientific results to our everyday lives. It is also common that researchers simply cannot grasp the direct impact a technology they create can have on everyday life, if applied in a friendly, accessible way."" He wanted to see it change - and so in 2012 he founded an organisation with a mission to publish and transform that knowledge into ready to use solutions. He could not take it any longer. So, he and his cordial friend Vassilis (Salapatas) decided to bridge this gap between research and society. In 2012 they formed SciFY (Science For You), an Not for profit organization that does exactly this: take scientific results, and then form a community of entrepreneurs, volunteers, researchers and end users to build useful final products to solve everyday problems. And they offer them for free. To all.",/post/528,2017-04-17T21:28:11.000Z,2017-04-17T21:28:11.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1111 11283,v1.0,,"He could not take it any longer. So, he and his cordial friend Vassilis (Salapatas) decided to bridge this gap between research and society. In 2012 they formed SciFY (Science For You), an Not for profit organization that does exactly this: take scientific results, and then form a community of entrepreneurs, volunteers, researchers and end users to build useful final products to solve everyday problems. And they offer them for free. To all.",/post/528,2017-04-17T21:27:33.000Z,2017-04-17T21:27:33.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1785 9095,v1.0,,"""EU is spending billions of euros in research projects. Consortia of research institutes and big EU companies receive huge amounts of money to produce amazing technologies. Technologies that need only a few months of work to become great, potentially life­changing products. But most of them remain unused for years within the walls of the institutes that produce them. It seems absurd, but rarely does anyone undertake the little work that is required to bring top notch scientific results to our everyday lives. It is also common that researchers simply cannot grasp the direct impact a technology they create can have on everyday life, if applied in a friendly, accessible way.""",/post/528,2017-04-17T21:27:12.000Z,2017-04-17T21:27:12.000Z,528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,495,1254 10120,v1.0,,"UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.",/post/803,2017-04-16T02:41:15.000Z,2017-04-16T02:41:15.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,1451 6517,v1.0,,"UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.",/post/803,2017-04-16T02:41:00.000Z,2017-04-16T02:41:00.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,490 9466,v1.0,,"Sharing this:the ibreastexam, low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.  This is the full article:  UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.",/post/803,2017-04-16T02:40:53.000Z,2017-04-16T02:40:53.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,1318 9575,v1.0,,"Sharing this:the ibreastexam, low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.",/post/803,2017-04-16T02:40:39.000Z,2017-04-16T02:40:39.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,1348 10253,v1.0,,"Sharing this:the ibreastexam, low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.",/post/803,2017-04-16T02:40:31.000Z,2017-04-16T02:40:31.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,1495 6492,v1.0,,"Sharing this:the ibreastexam, low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.  This is the full article:  UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services. The test is painless and radiation free, and takes less than 5 minutes to complete. The device can be used by any doctor or health worker and the results are available at the point-of-care.ibreastexam assesses differences in tissue elasticity between malignant and non-cancerous breast tissue, and its tactile sensor measures shear stiffness and tissue compression when applied to the skin. A clinical study conducted in India reported that the test maintained high specificity and outperformed an expert clinician who conducted a conventional clinical breast examination. All malignant lesions were identified by the device, while the clinician failed to identify a non-palpable lesion. UE Lifesciences won the 2016 Hitlab world cup at the Hitlab Innovators Summit in New York for their ibreastexam system. This prize is awarded to a healthcare startup deemed to have made an outstanding contribution in improving the delivery and accessibility of healthcare worldwide. Matthew Campisi, CTO of UE LifeSciences made the following statement: “We are truly grateful to have won the HITLAB World Cup and to be part of such a terrific program. As we continue to scale our ibreastexam product offering, collaboration with partners like HITLAB will help create awareness and establish key partnerships.” Video: https://vimeo.com/75510451",/post/803,2017-04-16T02:40:23.000Z,2017-04-16T02:40:23.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,485 4908,v1.0,,"Sharing this:the ibreastexam, low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.  This is the full article:  UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services. The test is painless and radiation free, and takes less than 5 minutes to complete. The device can be used by any doctor or health worker and the results are available at the point-of-care.ibreastexam assesses differences in tissue elasticity between malignant and non-cancerous breast tissue, and its tactile sensor measures shear stiffness and tissue compression when applied to the skin. A clinical study conducted in India reported that the test maintained high specificity and outperformed an expert clinician who conducted a conventional clinical breast examination. All malignant lesions were identified by the device, while the clinician failed to identify a non-palpable lesion. UE Lifesciences won the 2016 Hitlab world cup at the Hitlab Innovators Summit in New York for their ibreastexam system. This prize is awarded to a healthcare startup deemed to have made an outstanding contribution in improving the delivery and accessibility of healthcare worldwide. Matthew Campisi, CTO of UE LifeSciences made the following statement: “We are truly grateful to have won the HITLAB World Cup and to be part of such a terrific program. As we continue to scale our ibreastexam product offering, collaboration with partners like HITLAB will help create awareness and establish key partnerships.” Video: https://vimeo.com/75510451",/post/803,2017-04-16T02:40:11.000Z,2017-04-16T02:40:11.000Z,803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,770,117 8747,v1.0,,"Refugee Food Journeys As we all know Greece has been struck the hardest from the influx of refugees in recent years and we felt we needed to include them in our quest for food sovereignty. This part of our research focuses on matters of food consumption and food waste in refugee camps. This is our  first video on this issue:",/post/560,2017-04-16T02:38:46.000Z,2017-04-16T02:38:46.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,1150 11325,v1.0,,a look into peri-urban gardening in terms of autonomy and,/post/560,2017-04-16T02:38:24.000Z,2017-04-16T02:38:24.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,1806 4640,v1.0,,alternative currencies and food economies;,/post/560,2017-04-16T02:38:16.000Z,2017-04-16T02:38:16.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,41 4655,v1.0,,"Action Research through participatory video making In the capacity of co-facilitator I am working together with Christabel Buchanan -from the Coventry Centre for Agroecology Water and Resilience, on ‘Real Food Utopias’: an action research project mapping and tracking alternative food systems and economies in and around Thessaloniki. We made an open call inviting individuals from a variety of formal and informal groups. Through this process we came up collectively with a series of themes to be further explored. We then held training sessions on participatory video-making (from story boarding to collective editing) and then formed working groups for each theme. Then we organise public showings to get feedback and to instigate discussion and hopefully action by community members -like the creation of a Food Policy Council.",/post/560,2017-04-16T02:38:06.000Z,2017-04-16T02:38:06.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,44 7439,v1.0,,"In the capacity of co-facilitator I am working together with Christabel Buchanan -from the Coventry Centre for Agroecology Water and Resilience, on ‘Real Food Utopias’: an action research project mapping and tracking alternative food systems and economies in and around Thessaloniki. We made an open call inviting individuals from a variety of formal and informal groups. Through this process we came up collectively with a series of themes to be further explored. We then held training sessions on participatory video-making (from story boarding to collective editing) and then formed working groups for each theme. Then we organise public showings to get feedback and to instigate discussion and hopefully action by community members -like the creation of a Food Policy Council",/post/560,2017-04-16T02:37:56.000Z,2017-04-16T02:37:56.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,852 5770,v1.0,,"URGENCI – The Global Network for Community Supported Agriculture (CSA) Since June 2015 I am a member of the Urgenci kernel -the steering committee for the European part of the movement, and the European Research Group on CSA -with which we conducted the first ever European census on CSA -the report can be found here. Our second major undertaking for 2015-2016 was the creation of a European Declaration on CSA. This involved the research group drafting a first proposal which we had to take back to our respective countries for consultations and then collectivise everything again and come up with a final draft that was formally presented at the third European meeting on CSA (the report on that will be out soon, but here you can find out more about what we did in Ostrava). Here is the declaration and this is footage from the historical moment of its first announcement:",/post/560,2017-04-16T02:37:33.000Z,2017-04-16T02:37:33.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,376 8048,v1.0,,"Patenting the Cardiopad He also turned to the intellectual property (IP) system to help advance his work. In December 2011, he applied for a patent via the Organisation Africaine de la Propriété Intellectuelle (OAPI) in Yaounde [see box]. OAPI later granted him a patent (No. 16213) on his technology, covering some aspects of both the software and the hardware. Obtaining a patent was an important step for Mr. Zang. “I did it to reassure myself,” he said, “also to protect the product, and to have a lot more credibility in the eyes of, for example, partners with whom I wanted to sign contracts in order to be able to produce and then sell the product.” When funds permit, he also plans to register the Cardiopad, and his company, Himore Medical, which currently produces the tablet, as trademarks. “The intellectual property system can help us in Africa – it can add credibility to African products. And credibility has repercussions on the business plan because if you aren’t credible, it’s difficult to sell your product,” says Mr. Zang.",/post/555,2017-04-16T02:36:51.000Z,2017-04-16T02:36:51.000Z,555,3323,AnnotatorStore::TextAnnotation,,,,,,,,,522,1017 7522,v1.0,,"For now, he is searching for more funding, hoping to build upon the CHF 50,000 grant he received as a Rolex Award Young Laureate 2014. While funding issues have been a constraint, the pilot tablets he has been able to produce are now being tested in hospitals in Cameroon.",/post/555,2017-04-16T02:36:29.000Z,2017-04-16T02:36:29.000Z,555,3323,AnnotatorStore::TextAnnotation,,,,,,,,,522,876 10178,v1.0,,"By making it possible to perform tests, such as an electrocardiogram (ECG) in far-flung villages, the tablet is bringing high-quality cardiac care to remote and often poorly equipped countryside clinics where many Cameroonians go for their health care. It connects rural patients suffering from heart disease, many of whom do not have the means, the time, the contacts or the strength to travel to the big city, with Cameroon’s few, primarily urban-based cardiologists.",/post/555,2017-04-16T02:35:54.000Z,2017-04-16T02:35:54.000Z,555,3323,AnnotatorStore::TextAnnotation,,,,,,,,,522,1480 6491,v1.0,,"I read this story and found it of interest. In a remote clinic in Mbankomo a doctor attaches electrodes to the chest of a patient lying on an examining table and records the patient’s heart data on an African-designed touch screen medical tablet. The readings are then transferred wirelessly, over the mobile-phone network to specialists in distant urban centers for interpretation, diagnosis and prescribed treatment.",/post/555,2017-04-16T02:35:44.000Z,2017-04-16T02:35:44.000Z,555,3323,AnnotatorStore::TextAnnotation,,,,,,,,,522,485 6092,v1.0,,"Ultimately, Mr. Zang’s dream is to continue working to “improve life conditions” by branching out into other areas of medical technology, envisioning specially adapted devices for echography and radiology. In the Mbankomo clinic, the lack of these higher-end materials is evident. Surrounded by a tidy plot of well-brushed soil dotted with shade trees, the one-story clinic is austere. Patient consulting rooms are cooled by open windows, but little advanced machinery is on display. Mr. Zang says doctors at the facility are overwhelmed by the health needs of patients, which range from the mundane to the mortal. Connecting these clinics to better-resourced hospitals elsewhere via the mobile phone system is establishing a lifeline. Mr. Zang hopes ultimately to manufacture the Cardiopad in Cameroon, and to help the country develop as a manufacturing center for lower-cost devices specifically tailored to low-resource environments and markets, like those in West Africa. “This will help lower the cost of medical exams and the cost of good health across the regions, in the villages,” he says. “That’s it, that’s the dream that is smoldering in me.”",/post/555,2017-04-16T02:35:30.000Z,2017-04-16T02:35:30.000Z,555,3323,AnnotatorStore::TextAnnotation,,,,,,,,,522,427 10524,v1.0,,"Stress Management collar is one of our ideas about stress. Nowadays everyone knows that stress is one of the most important problems of our lives and most difficult to manage it totally. Our idea is mostly for manage it during the traffic jams. The collar have multiple features on it and might be a solution to help some of us. The basic idea was to create a flexible tangible object like collar which would do some kind of massage to the wearer to lower the tension of the moment. Another important feature is the ability to spray every a specific time adjusted by us a smell that what researches have shown relax the person (grass, flower, forest etc).",/post/778,2017-04-16T02:31:33.000Z,2017-04-16T02:31:33.000Z,778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,745,1566 8451,v1.0,,"Stress Management collar is one of our ideas about stress. Nowadays everyone knows that stress is one of the most important problems of our lives and most difficult to manage it totally. Our idea is mostly for manage it during the traffic jams. The collar have multiple features on it and might be a solution to help some of us. The basic idea was to create a flexible tangible object like collar which would do some kind of massage to the wearer to lower the tension of the moment. Another important feature is the ability to spray every a specific time adjusted by us a smell that what researches have shown relax the person (grass, flower, forest etc).",/post/778,2017-04-16T02:31:06.000Z,2017-04-16T02:31:06.000Z,778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,745,1118 6514,v1.0,,"Breast Cancer Recognizer Idea is about detecting the breast with a prototype which have a skin recognition and accelometre to map the breast. It is necessary because every women and men needs to check their breasts once a month. And the techniques of detecting the breast cancer early is so complicated. First with 2 fingers you should message your arm pit. With 3 fingers you should rub down your breast in a circle to the niple... We can optimize this with a prototype. What are the main aspects of this project? Our goal is to detect the cancer in early stage. Our perspective is “it can happen to anyone” It is an awareness and caring project. So we encourage all the people to look after theirselves with our prototype and catch the cancer before it is too late. How to? We should show supervisors the research and prototype of Yemen University’s to think about more simple ways to make this prototype happen. Because their system is so complex and difficult to built with only Arduinos. http://www.wseas.us/e-library/conferences/2014/Lisbon/BIOENV/BIOENV-20.pdf",/post/774,2017-04-16T02:29:46.000Z,2017-04-16T02:29:46.000Z,774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,741,488 9574,v1.0,,"Breast Cancer Recognizer Idea is about detecting the breast with a prototype which have a skin recognition and accelometre to map the breast. It is necessary because every women and men needs to check their breasts once a month. And the techniques of detecting the breast cancer early is so complicated. First with 2 fingers you should message your arm pit. With 3 fingers you should rub down your breast in a circle to the niple... We can optimize this with a prototype. What are the main aspects of this project? Our goal is to detect the cancer in early stage. Our perspective is “it can happen to anyone” It is an awareness and caring project. So we encourage all the people to look after theirselves with our prototype and catch the cancer before it is too late. How to? We should show supervisors the research and prototype of Yemen University’s to think about more simple ways to make this prototype happen. Because their system is so complex and difficult to built with only Arduinos. http://www.wseas.us/e-library/conferences/2014/Lisbon/BIOENV/BIOENV-20.pdf",/post/774,2017-04-16T02:29:34.000Z,2017-04-16T02:29:34.000Z,774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,741,1348 4907,v1.0,,"Breast Cancer Recognizer Idea is about detecting the breast with a prototype which have a skin recognition and accelometre to map the breast. It is necessary because every women and men needs to check their breasts once a month. And the techniques of detecting the breast cancer early is so complicated. First with 2 fingers you should message your arm pit. With 3 fingers you should rub down your breast in a circle to the niple... We can optimize this with a prototype. What are the main aspects of this project? Our goal is to detect the cancer in early stage. Our perspective is “it can happen to anyone” It is an awareness and caring project. So we encourage all the people to look after theirselves with our prototype and catch the cancer before it is too late. How to? We should show supervisors the research and prototype of Yemen University’s to think about more simple ways to make this prototype happen. Because their system is so complex and difficult to built with only Arduinos. http://www.wseas.us/e-library/conferences/2014/Lisbon/BIOENV/BIOENV-20.pdf",/post/774,2017-04-16T02:29:25.000Z,2017-04-16T02:29:25.000Z,774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,741,117 6490,v1.0,,"Autistic children have limited behaviours about social connections and they can easily get confused from hearing more than one sound when they are outside. We want to help the children to get out into the world without fear. Usually children get very scared of loud noises and it a ects their behaviour. They nd it very intimidating. We propose to care for them by designing a device that lets them hear their parent’s and other familiar voices, phasing out other sounds like those of tra c, crowd, machines etc.   What are the main aspects of this project? The main aspect of this project is to use technology that is not only advanced but also very much user friendly. The prototype will be able to have speech recognition so that it detects the sounds of certain people and lets them through but not intimidating sounds like those of tra c and machines   How to? We can -use noise cancelling technology and speech recognition software to design the prototype -introducing simple gestures to use and control the headphones   Links for reference: http://oureverydaylife.com/use-headphones-children-autism-12460.html http://www.got-autism.com/blog/?tag=headphones-for-kids-with-asd     What have been done? There hasn’t been anything speci c that has been designed for autistic children that serves the purpose we intend to solve. There have been independent approaches to speech recognition through software and headphones through software.",/post/772,2017-04-16T02:28:44.000Z,2017-04-16T02:28:44.000Z,772,3323,AnnotatorStore::TextAnnotation,,,,,,,,,739,485 4767,v1.0,,"Autistic children have limited behaviours about social connections and they can easily get confused from hearing more than one sound when they are outside. We want to help the children to get out into the world without fear. Usually children get very scared of loud noises and it a ects their behaviour. They nd it very intimidating. We propose to care for them by designing a device that lets them hear their parent’s and other familiar voices, phasing out other sounds like those of tra c, crowd, machines etc.   What are the main aspects of this project? The main aspect of this project is to use technology that is not only advanced but also very much user friendly. The prototype will be able to have speech recognition so that it detects the sounds of certain people and lets them through but not intimidating sounds like those of tra c and machines   How to? We can -use noise cancelling technology and speech recognition software to design the prototype -introducing simple gestures to use and control the headphones   Links for reference: http://oureverydaylife.com/use-headphones-children-autism-12460.html http://www.got-autism.com/blog/?tag=headphones-for-kids-with-asd     What have been done? There hasn’t been anything speci c that has been designed for autistic children that serves the purpose we intend to solve. There have been independent approaches to speech recognition through software and headphones through software.",/post/772,2017-04-16T02:28:24.000Z,2017-04-16T02:28:24.000Z,772,3323,AnnotatorStore::TextAnnotation,,,,,,,,,739,78 8992,v1.0,,"Autistic children have limited behaviours about social connections and they can easily get confused from hearing more than one sound when they are outside. We want to help the children to get out into the world without fear. Usually children get very scared of loud noises and it a ects their behaviour. They nd it very intimidating. We propose to care for them by designing a device that lets them hear their parent’s and other familiar voices, phasing out other sounds like those of tra c, crowd, machines etc.   What are the main aspects of this project? The main aspect of this project is to use technology that is not only advanced but also very much user friendly. The prototype will be able to have speech recognition so that it detects the sounds of certain people and lets them through but not intimidating sounds like those of tra c and machines   How to? We can -use noise cancelling technology and speech recognition software to design the prototype -introducing simple gestures to use and control the headphones   Links for reference: http://oureverydaylife.com/use-headphones-children-autism-12460.html http://www.got-autism.com/blog/?tag=headphones-for-kids-with-asd     What have been done? There hasn’t been anything speci c that has been designed for autistic children that serves the purpose we intend to solve. There have been independent approaches to speech recognition through software and headphones through software.",/post/772,2017-04-16T02:28:14.000Z,2017-04-16T02:28:14.000Z,772,3323,AnnotatorStore::TextAnnotation,,,,,,,,,739,1217 6489,v1.0,,"We want to provide care for people living in neighbour- hoods with lot of noise around them. Noise can a ect physical and mental health of people. Noise pollution in the cities can take a toll on the quality of life of the people. Research has shown that noise pollution can cause problems like heart diseases, stress, lack of sleep and hearing loss to some extent. The average recom- mended noise exposure limit is 55 decibels. However, tra c accounts for 70 decibels and construction machin- ery accounts for about 120 decibels. These are the major generators of sound in the city and well beyond the average exposure limit. We want to provide care to the people living with so much noise around them by using technology.   What are the main aspects of this project? The main aspect of this project is to use technology to provide care for the people so that they have a healthy lifestyle   How to? We can -use transducers on the walls or windows of the house. -sensors that sense the movement of people in the house, detecting whether to switch the device on -LCD screen showing the decibel levels outside   Links for reference: http://www.explainthatstu .com/noisecancellingheadphones.html http://doctord.dyndns.org/Pubs/POTENT.htm   What have been done? www.silentium.com/blog http://www.ippinka.com/blog/sono-peace-quiet-home/ https://www.kickstarter.com/projects/wnc/whisper-the-noise-canceler https://www.indiegogo.com/projects/muzo-personal-zone-creator-w-noise-blocking-tech-sound-sleep#/",/post/771,2017-04-16T02:27:49.000Z,2017-04-16T02:27:49.000Z,771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,738,485 8991,v1.0,,"We want to provide care for people living in neighbour- hoods with lot of noise around them. Noise can a ect physical and mental health of people. Noise pollution in the cities can take a toll on the quality of life of the people. Research has shown that noise pollution can cause problems like heart diseases, stress, lack of sleep and hearing loss to some extent. The average recom- mended noise exposure limit is 55 decibels. However, tra c accounts for 70 decibels and construction machin- ery accounts for about 120 decibels. These are the major generators of sound in the city and well beyond the average exposure limit. We want to provide care to the people living with so much noise around them by using technology.   What are the main aspects of this project? The main aspect of this project is to use technology to provide care for the people so that they have a healthy lifestyle   How to? We can -use transducers on the walls or windows of the house. -sensors that sense the movement of people in the house, detecting whether to switch the device on -LCD screen showing the decibel levels outside   Links for reference: http://www.explainthatstu .com/noisecancellingheadphones.html http://doctord.dyndns.org/Pubs/POTENT.htm   What have been done? www.silentium.com/blog http://www.ippinka.com/blog/sono-peace-quiet-home/ https://www.kickstarter.com/projects/wnc/whisper-the-noise-canceler https://www.indiegogo.com/projects/muzo-personal-zone-creator-w-noise-blocking-tech-sound-sleep#/",/post/771,2017-04-16T02:27:38.000Z,2017-04-16T02:27:38.000Z,771,3323,AnnotatorStore::TextAnnotation,,,,,,,,,738,1217 11456,v1.0,,"With our prototype, we propose to make the lives of someone with parkinson’s simpler. Our prototype will be wearables that can monitor the motor symptoms of the patient. Our prototype will monitor the common symptoms like tremor and stiffness in the human body, and if the symptoms are showing an uncommon behaviour, the prototype can beam the information to the smartphone to remind the patient or the caregiver to take the medicines to or to see the neurologist.",/post/768,2017-04-16T02:26:53.000Z,2017-04-16T02:26:53.000Z,768,3323,AnnotatorStore::TextAnnotation,,,,,,,,,735,1847 10517,v1.0,,"A lot of research-based apps and services are available today that help in better understanding the symptoms of Parkinson’s. Apps like mPower and Parkinson’s Central are monitoring the patient’s health from their rdaily movements and tasks along with daily or weekly surveys. With our prototype, we not only propose to help in tracking symptoms to better understand the disease but we also want to help the patient in the best way possible.",/post/768,2017-04-16T02:26:33.000Z,2017-04-16T02:26:33.000Z,768,3323,AnnotatorStore::TextAnnotation,,,,,,,,,735,1565 9179,v1.0,,"@Simonedb I agree with you that it is extremely important to remain open to other ideas and projects, and this is why we were so happy to participate at the Edgeryders workshop in Thessaloniki where we met this amazing community of people! At the same time, it is also important to have clear values and objectives, so that people trust you. So openness, cooperation and values can go a long way and can bring very creative results, especially on a large or global scale.",/post/24572,2017-04-16T02:22:26.000Z,2017-04-16T02:22:26.000Z,24572,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,1262 11265,v1.0,,"@WinniePoncelet this is certainly not an easy task, especially when the effort is being made on a global scale and you are trying to create change in a global scale. But we hope that cooperation can help with all the progress. The biggest challenge I see is trust and empowerment, people to trust each other and believe that collectively they can change things. So trust to each other and trust to collective power, rather than being disconnected and antagonistic. From so many sides we are being trained to not trust each other and our collective power, but I believe that culture is gradually changing and people are becoming more inclined to create communities and cooperate. Technology and to a certain extent the economic crisis have supported that.",/post/24572,2017-04-16T02:21:55.000Z,2017-04-16T02:21:55.000Z,24572,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,1778 7363,v1.0,,"One of the tools to connect those and at the same time to untie ourselves from the banking system is alternative currency networks and FairCoin is already doing this on a global level. However the currency is just a tool, what is most important is the vision and the values that incorporate the efforts. In Thessaloniki, we started quite recently but there is already some places that joined and we hope to see more of them joining very soon. In Greece there is more places in Athens and the island of Crete, where FairCoin is further connected to the local currency of Herakleion. @Noemi you can find a global directory with all the places using FairCoin here.",/post/24572,2017-04-16T02:21:33.000Z,2017-04-16T02:21:33.000Z,24572,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,821 4644,v1.0,,"FairCoop is, in fact, a lot of projects with a unifying mission behind all of them: to build alternative, grassroots-driven economy, which will be participatory, fair and belong to the people. All of the members of our global collective want to see that happen.   The FairCoop Thessaloniki is a local group linked to the global movement. We’re all dealing in different ways with the establishment of tools and processes that would bring about alternative, cooperative economies.   In the case of our city, to some extent, it’s done by implementation of alternative cryptocurrency, faircoin, developed by the FairCoop. We try to understand ways in which this currency, and a local currency introduced after the crisis, can coexist and supplement each other. In any case, the goal is to free ourselves from proprietary technologies and capitalist banking systems - by creating a parallel circular model, ideally connecting and supporting a whole ecosystem of projects locally and globally.   There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community’s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.   We also plan to replace the public system with a cooperative one. For now, it’s a hurdle - but in the future, it will be possible. The condition? The strong community behind it.   FairCoop exists since 2 years, and in Thessaloniki, it started a few months ago. We have links with dozens of cooperatives, organizations, initiatives and communities - such as Bitcoin community, P2P foundation, Catalonia Cooperative, etc. We’ve brought on board more than 1000 people so far. Yet, there’s still a lot to be done. We need to connect and build stronger alliances even in the cities - in Thessaloniki, many existing initiatives remain disconnected from each other. We need to develop models of integral cooperation on different levels. Bring decentralized technologies to local communities to make them more resilient. And seed the idea of cooperation, which will replace competition.",/post/741,2017-04-16T02:21:01.000Z,2017-04-16T02:21:01.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,42 4643,v1.0,,"Our group is based in Thessaloniki but it is connected with a global network of tools and projects with the vision to expand an alternative and fair economy through cooperation, or let’s say to create sustainable economic solutions through cooperativism. In Greece there is already many cooperatives, especially created as a result of the economic crisis, either under a legal form or remaining informal, and we want to support their networking as well as to expand the network through creating new cooperative initiatives.",/post/24572,2017-04-16T02:20:47.000Z,2017-04-16T02:20:47.000Z,24572,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,42 6024,v1.0,,"Our group is based in Thessaloniki but it is connected with a global network of tools and projects with the vision to expand an alternative and fair economy through cooperation, or let’s say to create sustainable economic solutions through cooperativism. In Greece there is already many cooperatives, especially created as a result of the economic crisis, either under a legal form or remaining informal, and we want to support their networking as well as to expand the network through creating new cooperative initiatives. One of the tools to connect those and at the same time to untie ourselves from the banking system is alternative currency networks and FairCoin is already doing this on a global level. However the currency is just a tool, what is most important is the vision and the values that incorporate the efforts. In Thessaloniki, we started quite recently but there is already some places that joined and we hope to see more of them joining very soon. In Greece there is more places in Athens and the island of Crete, where FairCoin is further connected to the local currency of Herakleion. @Noemi you can find a global directory with all the places using FairCoin here. @WinniePoncelet this is certainly not an easy task, especially when the effort is being made on a global scale and you are trying to create change in a global scale. But we hope that cooperation can help with all the progress. The biggest challenge I see is trust and empowerment, people to trust each other and believe that collectively they can change things. So trust to each other and trust to collective power, rather than being disconnected and antagonistic. From so many sides we are being trained to not trust each other and our collective power, but I believe that culture is gradually changing and people are becoming more inclined to create communities and cooperate. Technology and to a certain extent the economic crisis have supported that. @Simonedb I agree with you that it is extremely important to remain open to other ideas and projects, and this is why we were so happy to participate at the Edgeryders workshop in Thessaloniki where we met this amazing community of people! At the same time, it is also important to have clear values and objectives, so that people trust you. So openness, cooperation and values can go a long way and can bring very creative results, especially on a large or global scale. I invite people interested in our efforts to visit FairCoop’s website and if you wish to be more actively involved or have ideas to share, please leave a message or join our telegram groups which we use for networking and communication, by sending an e-mail to: coop@fair.coop! PS: @Noemi, I don’t think we have met before, do you mean the Festival of Solidarity and Cooperative Economy in Athens? I have been there, but since I live in Thessaloniki I am not part of the organizing team. However our group here is connected with the people in Athens and also people organizing the festival. There is another Christina among them so perhaps this is who you mean?",/post/24572,2017-04-16T02:20:15.000Z,2017-04-16T02:20:15.000Z,24572,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,413 8002,v1.0,,"I'm very intrigued by this idea: ""Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine."". It would leave out the parties who suck the most money of out of the local communities. But more interestingly, it would allow for personalized medicine. People with rare diseases or allergies, who are often neglected by corporations based on economical incentives. Empowering these people with the tools to provide for themselves or have a close one provide for them seems like a revolutionary way forward. Then again, safety and legal hurdles quickly come to mind. I hope there's at least room for experimenting with it. 1000 people is already a lot... Congratulations! What do you feel is the biggest challenge in order to connect these existing, fragmented initiatives and replace competition in favor of cooperation?",/post/7658,2017-04-16T02:18:49.000Z,2017-04-16T02:18:49.000Z,7658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,994 4506,v1.0,,"I'm very intrigued by this idea: ""Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine."". It would leave out the parties who suck the most money of out of the local communities. But more interestingly, it would allow for personalized medicine. People with rare diseases or allergies, who are often neglected by corporations based on economical incentives. Empowering these people with the tools to provide for themselves or have a close one provide for them seems like a revolutionary way forward. Then again, safety and legal hurdles quickly come to mind. I hope there's at least room for experimenting with it. 1000 people is already a lot... Congratulations! What do you feel is the biggest challenge in order to connect these existing, fragmented initiatives and replace competition in favor of cooperation?",/post/7658,2017-04-16T02:18:39.000Z,2017-04-16T02:18:39.000Z,7658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,6 9352,v1.0,,"FairCoop exists since 2 years, and in Thessaloniki, it started a few months ago. We have links with dozens of cooperatives, organizations, initiatives and communities - such as Bitcoin community, P2P foundation, Catalonia Cooperative, etc. We’ve brought on board more than 1000 people so far. Yet, there’s still a lot to be done. We need to connect and build stronger alliances even in the cities - in Thessaloniki, many existing initiatives remain disconnected from each other. We need to develop models of integral cooperation on different levels. Bring decentralized technologies to local communities to make them more resilient. And seed the idea of cooperation, which will replace competition.",/post/741,2017-04-16T02:17:41.000Z,2017-04-16T02:17:41.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,1294 9221,v1.0,,"There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community’s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.",/post/741,2017-04-16T02:17:29.000Z,2017-04-16T02:17:29.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,1269 4505,v1.0,,"There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community’s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.",/post/741,2017-04-16T02:16:50.000Z,2017-04-16T02:16:50.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,6 4804,v1.0,,"There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community’s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.",/post/741,2017-04-16T02:16:45.000Z,2017-04-16T02:16:45.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,80 5831,v1.0,,"There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community’s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.",/post/741,2017-04-16T02:16:29.000Z,2017-04-16T02:16:29.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,377 7362,v1.0,,"In the case of our city, to some extent, it’s done by implementation of alternative cryptocurrency, faircoin, developed by the FairCoop. We try to understand ways in which this currency, and a local currency introduced after the crisis, can coexist and supplement each other. In any case, the goal is to free ourselves from proprietary technologies and capitalist banking systems - by creating a parallel circular model, ideally connecting and supporting a whole ecosystem of projects locally and globally.",/post/741,2017-04-16T02:16:17.000Z,2017-04-16T02:16:17.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,821 7654,v1.0,,"FairCoop is, in fact, a lot of projects with a unifying mission behind all of them: to build alternative, grassroots-driven economy, which will be participatory, fair and belong to the people. All of the members of our global collective want to see that happen.",/post/741,2017-04-16T01:31:25.000Z,2017-04-16T01:31:25.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,910 6023,v1.0,,"FairCoop is, in fact, a lot of projects with a unifying mission behind all of them: to build alternative, grassroots-driven economy, which will be participatory, fair and belong to the people. All of the members of our global collective want to see that happen.   The FairCoop Thessaloniki is a local group linked to the global movement. We’re all dealing in different ways with the establishment of tools and processes that would bring about alternative, cooperative economies.   In the case of our city, to some extent, it’s done by implementation of alternative cryptocurrency, faircoin, developed by the FairCoop. We try to understand ways in which this currency, and a local currency introduced after the crisis, can coexist and supplement each other. In any case, the goal is to free ourselves from proprietary technologies and capitalist banking systems - by creating a parallel circular model, ideally connecting and supporting a whole ecosystem of projects locally and globally.   There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community’s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.   We also plan to replace the public system with a cooperative one. For now, it’s a hurdle - but in the future, it will be possible. The condition? The strong community behind it.   FairCoop exists since 2 years, and in Thessaloniki, it started a few months ago. We have links with dozens of cooperatives, organizations, initiatives and communities - such as Bitcoin community, P2P foundation, Catalonia Cooperative, etc. We’ve brought on board more than 1000 people so far. Yet, there’s still a lot to be done. We need to connect and build stronger alliances even in the cities - in Thessaloniki, many existing initiatives remain disconnected from each other. We need to develop models of integral cooperation on different levels. Bring decentralized technologies to local communities to make them more resilient. And seed the idea of cooperation, which will replace competition.",/post/741,2017-04-16T01:31:16.000Z,2017-04-16T01:31:16.000Z,741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,708,413 7768,v1.0,,"GNU Health is a sister initiative which we discovered at the Open Source Initiative and some time later at the Internation Symposium on Open Collaboration. GNU Health concept is simple as free software: all people should collaborate to build a common of knowledge instead of building competitive, exclusive systems that hinder access to healthcare services of quality. GNU Health ensures that the different therapists and doctors who follow our children have the best available information about them, so that they can provide the best advices for the best health outcomes. Thanks for all efforts put in developing this project!",/post/13941,2017-04-16T01:30:26.000Z,2017-04-16T01:30:26.000Z,13941,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,934 7499,v1.0,,"GNU Health is a sister initiative which we discovered at the Open Source Initiative and some time later at the Internation Symposium on Open Collaboration. GNU Health concept is simple as free software: all people should collaborate to build a common of knowledge instead of building competitive, exclusive systems that hinder access to healthcare services of quality. GNU Health ensures that the different therapists and doctors who follow our children have the best available information about them, so that they can provide the best advices for the best health outcomes. Thanks for all efforts put in developing this project!",/post/13941,2017-04-16T01:29:49.000Z,2017-04-16T01:29:49.000Z,13941,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,868 9791,v1.0,,"South is showing North the benefits of Free Software in Healthcare .  No matter the hemisphere, we have to keep re-inforcing the concepts of Community, Freedom, Independence and Dignity. Many people still have the misconception - and find attractive - about ""gratis"" and not about ""libre"".  Whenever we get a request on GNU Health, I spend quite a bit of time making sure that they get the philosophy behind the project. So, the transition is happening, but there is quite a bit of work ahead in the ""developed"" world, where Health is in the hand of private corporations, far from being public and universal.",/post/11539,2017-04-16T01:29:36.000Z,2017-04-16T01:29:36.000Z,11539,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1412 7498,v1.0,,"South is showing North the benefits of Free Software in Healthcare .  No matter the hemisphere, we have to keep re-inforcing the concepts of Community, Freedom, Independence and Dignity. Many people still have the misconception - and find attractive - about ""gratis"" and not about ""libre"".  Whenever we get a request on GNU Health, I spend quite a bit of time making sure that they get the philosophy behind the project. So, the transition is happening, but there is quite a bit of work ahead in the ""developed"" world, where Health is in the hand of private corporations, far from being public and universal.",/post/11539,2017-04-16T01:29:20.000Z,2017-04-16T01:29:20.000Z,11539,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,868 8001,v1.0,,"Money helps us move faster, but it’s the people who make us achieve really remarkable things. We understand how medicine can be improved, changed, how it needs to be adjusted to the cultural setting, and based on individual needs, precisely addressed.",/post/535,2017-04-16T01:29:09.000Z,2017-04-16T01:29:09.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,994 9790,v1.0,,"These institutions and countries are independent now from proprietary solutions, which should be the integral principle in health care. Their work and experience help to improve the community. It’s a lot of solidarity, equity and community work as a result. And they’re free from external vendors, institutions, licenses, they can modify the modules and create new ones - for example, the module dealing with Injury Surveillance System was built in response to the needs in Jamaica.",/post/535,2017-04-16T01:28:56.000Z,2017-04-16T01:28:56.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1412 8075,v1.0,,"GNU Health is, in fact, a philosophy. It is about multidisciplinary communities with various tasks that contribute to more effective, more empathetic, more patient and health-oriented care. It’s about a new mindset and a new attitude of health professionals, whose work cannot be efficient without a human approach to the patients and a deep understanding of their condition. Nutrition, exercise, prevention, information, empathy, affection, family, hygiene, education, technology, housing conditions - these and many more aspects have to be taken care of and supplement each other.",/post/535,2017-04-16T01:28:21.000Z,2017-04-16T01:28:21.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1023 8106,v1.0,,"The system is being used in various places. In Argentina and Laos, it has been implemented by neurological and trauma rehabilitation and centers a few years ago. It is being installed in Argentina in districts to manage primary health centers. The Ministry of Health of Morelos, Mexico for the province. The biggest hospital in Laos, a reference in tropical diseases, runs on it as well. The government of Jamaica started a couple of years ago the implementation project for managing the Public Health system of the island.",/post/535,2017-04-16T01:28:13.000Z,2017-04-16T01:28:13.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1026 7177,v1.0,,"Later on, we have added more functionalities, for example, Universal Patient’s ID that supports centralisation of information about a person - this way you’re not a new patient to each one of your doctors, but your story is accessible to health professionals.The ID does not allow the duplication of either individuals or patient medical history at the health center. On the upcoming features, the GNU Health Federation, will allow to aggregate information coming from multiple contexts, and",/post/535,2017-04-16T01:13:40.000Z,2017-04-16T01:13:40.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,771 10396,v1.0,,"A little bit later, GNU took its recent shape of The Free Health and Hospital Information System, which is available in a form of wiki - dynamic as the health (care) itself and consistently updated. It can be installed and used by hospitals, governments, institutions, under a free license. As health and care are parts of a complex, multi-etiological and anthropological issues, the system we’ve created allows management and analysis of a huge amount of data and aspects: Individual and community management: demographics, domiciliary units, families, operational areas and sectors, ... Patient management: Socioeconomics, lifestyle, encounters / evaluations, hospitalizations, lab reports, genetics, clinical history, ... Health center management: Finances, stock, pharmacy , laboratory, Dx imaging, beds, operating rooms, appointments, supply chain management, human resources, … Information management: Reporting, Demographics and Epidemiology",/post/535,2017-04-16T01:13:19.000Z,2017-04-16T01:13:19.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1539 8448,v1.0,,"And so we shifted towards the creation of the System of Health, a system that would integrate care providers, institutions, individuals. A system rooted in the idea of Social and Integrative Medicine, which promotes education, good nutrition, family affection, physical exercise, and sanitary housing conditions, along with the state of the art innovations in the areas of precision medicine, (epi)genetics, bioinformatics, as the best and most sustainable public policies one can make. With this concept in mind,  GNU Health (any pronunciation is OK, but I like the concept of ""new"") was born in 2008.",/post/535,2017-04-16T01:12:27.000Z,2017-04-16T01:12:27.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1115 7836,v1.0,,"The longer I worked in some of the poorer countries, the better I understood that the pressing need is actually more basic - kids need good nutrition before they can go to school. And the ever present reductionist Model of Disease has to be changed into a holistic System of Health Promotion and Disease Prevention. There are various reasons why countries fail at providing the best care possible: too much privatization, too much technology supplanting good, basic policies. Doctors being more drug sellers than anything else. Omnipresent micro-specialization, which pushes medicine even more towards seeing a person as particular organs instead of a whole, complex, bio-psicho-social-spiritual being.",/post/535,2017-04-16T01:12:13.000Z,2017-04-16T01:12:13.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,955 9034,v1.0,,"The longer I worked in some of the poorer countries, the better I understood that the pressing need is actually more basic - kids need good nutrition before they can go to school. And the ever present reductionist Model of Disease has to be changed into a holistic System of Health Promotion and Disease Prevention. There are various reasons why countries fail at providing the best care possible: too much privatization, too much technology supplanting good, basic policies. Doctors being more drug sellers than anything else. Omnipresent micro-specialization, which pushes medicine even more towards seeing a person as particular organs instead of a whole, complex, bio-psicho-social-spiritual being.",/post/535,2017-04-16T01:12:03.000Z,2017-04-16T01:12:03.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,1234 6488,v1.0,,"It’s mostly about changing the arrogant and irrealistic medical system, which operates outside of the communities and is based on universal, cookie-cutter solutions.   We’ve started the process in 2006 - our organisation,GNU Solidario, started as an educational initiative. The initial goal was to create free software with education and academic programs embedded into it, which would be accessible to remote areas in Latin America for example (I have worked there for many years).   The longer I worked in some of the poorer countries, the better I understood that the pressing need is actually more basic - kids need good nutrition before they can go to school. And the ever present reductionist Model of Disease has to be changed into a holistic System of Health Promotion and Disease Prevention. There are various reasons why countries fail at providing the best care possible: too much privatization, too much technology supplanting good, basic policies. Doctors being more drug sellers than anything else. Omnipresent micro-specialization, which pushes medicine even more towards seeing a person as particular organs instead of a whole, complex, bio-psicho-social-spiritual being.   And so we shifted towards the creation of the System of Health, a system that would integrate care providers, institutions, individuals. A system rooted in the idea of Social and Integrative Medicine, which promotes education, good nutrition, family affection, physical exercise, and sanitary housing conditions, along with the state of the art innovations in the areas of precision medicine, (epi)genetics, bioinformatics, as the best and most sustainable public policies one can make. With this concept in mind,  GNU Health (any pronunciation is OK, but I like the concept of ""new"") was born in 2008.   A little bit later, GNU took its recent shape of The Free Health and Hospital Information System, which is available in a form of wiki - dynamic as the health (care) itself and consistently updated. It can be installed and used by hospitals, governments, institutions, under a free license. As health and care are parts of a complex, multi-etiological and anthropological issues, the system we’ve created allows management and analysis of a huge amount of data and aspects: Individual and community management: demographics, domiciliary units, families, operational areas and sectors, ... Patient management: Socioeconomics, lifestyle, encounters / evaluations, hospitalizations, lab reports, genetics, clinical history, ... Health center management: Finances, stock, pharmacy , laboratory, Dx imaging, beds, operating rooms, appointments, supply chain management, human resources, … Information management: Reporting, Demographics and Epidemiology   Access to this information and ability to interpret and understand it is a precondition to an effective (health) care system, and it has to complement the work of nurses, teachers, mothers and fathers, social workers and doctors… Our role is to provide these institutions with a system capable of handling and processing huge amounts of data, and based on these findings - craft optimized prevention and deploy effective teams to tackle challenges. Our maps, for example, can show in real time spots in which the outbreaks of dengue happens, allowing for fast reaction. But it does much more than that - it shows the relations between health and family violence and teenage pregnancy. It underlines social determinants. It grasps the relations between economy and well-being.   Later on, we have added more functionalities, for example, Universal Patient’s ID that supports centralisation of information about a person - this way you’re not a new patient to each one of your doctors, but your story is accessible to health professionals.The ID does not allow the duplication of either individuals or patient medical history at the health center. On the upcoming features, the GNU Health Federation, will allow to aggregate information coming from multiple contexts, and   GNU Health is, in fact, a philosophy. It is about multidisciplinary communities with various tasks that contribute to more effective, more empathetic, more patient and health-oriented care. It’s about a new mindset and a new attitude of health professionals, whose work cannot be efficient without a human approach to the patients and a deep understanding of their condition. Nutrition, exercise, prevention, information, empathy, affection, family, hygiene, education, technology, housing conditions - these and many more aspects have to be taken care of and supplement each other.   The system is being used in various places. In Argentina and Laos, it has been implemented by neurological and trauma rehabilitation and centers a few years ago. It is being installed in Argentina in districts to manage primary health centers. The Ministry of Health of Morelos, Mexico for the province. The biggest hospital in Laos, a reference in tropical diseases, runs on it as well. The government of Jamaica started a couple of years ago the implementation project for managing the Public Health system of the island.   These institutions and countries are independent now from proprietary solutions, which should be the integral principle in health care. Their work and experience help to improve the community. It’s a lot of solidarity, equity and community work as a result. And they’re free from external vendors, institutions, licenses, they can modify the modules and create new ones - for example, the module dealing with Injury Surveillance System was built in response to the needs in Jamaica.   Money helps us move faster, but it’s the people who make us achieve really remarkable things. We understand how medicine can be improved, changed, how it needs to be adjusted to the cultural setting, and based on individual needs, precisely addressed.",/post/535,2017-04-16T01:11:38.000Z,2017-04-16T01:11:38.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,485 7497,v1.0,,"We’ve started the process in 2006 - our organisation,GNU Solidario, started as an educational initiative. The initial goal was to create free software with education and academic programs embedded into it, which would be accessible to remote areas in Latin America for example (I have worked there for many years).",/post/535,2017-04-16T01:11:31.000Z,2017-04-16T01:11:31.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,868 6014,v1.0,,"It’s mostly about changing the arrogant and irrealistic medical system, which operates outside of the communities and is based on universal, cookie-cutter solutions.",/post/535,2017-04-16T01:11:06.000Z,2017-04-16T01:11:06.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,411 7765,v1.0,,"It’s mostly about changing the arrogant and irrealistic medical system, which operates outside of the communities and is based on universal, cookie-cutter solutions.   We’ve started the process in 2006 - our organisation,GNU Solidario, started as an educational initiative. The initial goal was to create free software with education and academic programs embedded into it, which would be accessible to remote areas in Latin America for example (I have worked there for many years).   The longer I worked in some of the poorer countries, the better I understood that the pressing need is actually more basic - kids need good nutrition before they can go to school. And the ever present reductionist Model of Disease has to be changed into a holistic System of Health Promotion and Disease Prevention. There are various reasons why countries fail at providing the best care possible: too much privatization, too much technology supplanting good, basic policies. Doctors being more drug sellers than anything else. Omnipresent micro-specialization, which pushes medicine even more towards seeing a person as particular organs instead of a whole, complex, bio-psicho-social-spiritual being.   And so we shifted towards the creation of the System of Health, a system that would integrate care providers, institutions, individuals. A system rooted in the idea of Social and Integrative Medicine, which promotes education, good nutrition, family affection, physical exercise, and sanitary housing conditions, along with the state of the art innovations in the areas of precision medicine, (epi)genetics, bioinformatics, as the best and most sustainable public policies one can make. With this concept in mind,  GNU Health (any pronunciation is OK, but I like the concept of ""new"") was born in 2008.   A little bit later, GNU took its recent shape of The Free Health and Hospital Information System, which is available in a form of wiki - dynamic as the health (care) itself and consistently updated. It can be installed and used by hospitals, governments, institutions, under a free license. As health and care are parts of a complex, multi-etiological and anthropological issues, the system we’ve created allows management and analysis of a huge amount of data and aspects: Individual and community management: demographics, domiciliary units, families, operational areas and sectors, ... Patient management: Socioeconomics, lifestyle, encounters / evaluations, hospitalizations, lab reports, genetics, clinical history, ... Health center management: Finances, stock, pharmacy , laboratory, Dx imaging, beds, operating rooms, appointments, supply chain management, human resources, … Information management: Reporting, Demographics and Epidemiology   Access to this information and ability to interpret and understand it is a precondition to an effective (health) care system, and it has to complement the work of nurses, teachers, mothers and fathers, social workers and doctors… Our role is to provide these institutions with a system capable of handling and processing huge amounts of data, and based on these findings - craft optimized prevention and deploy effective teams to tackle challenges. Our maps, for example, can show in real time spots in which the outbreaks of dengue happens, allowing for fast reaction. But it does much more than that - it shows the relations between health and family violence and teenage pregnancy. It underlines social determinants. It grasps the relations between economy and well-being.   Later on, we have added more functionalities, for example, Universal Patient’s ID that supports centralisation of information about a person - this way you’re not a new patient to each one of your doctors, but your story is accessible to health professionals.The ID does not allow the duplication of either individuals or patient medical history at the health center. On the upcoming features, the GNU Health Federation, will allow to aggregate information coming from multiple contexts, and   GNU Health is, in fact, a philosophy. It is about multidisciplinary communities with various tasks that contribute to more effective, more empathetic, more patient and health-oriented care. It’s about a new mindset and a new attitude of health professionals, whose work cannot be efficient without a human approach to the patients and a deep understanding of their condition. Nutrition, exercise, prevention, information, empathy, affection, family, hygiene, education, technology, housing conditions - these and many more aspects have to be taken care of and supplement each other.   The system is being used in various places. In Argentina and Laos, it has been implemented by neurological and trauma rehabilitation and centers a few years ago. It is being installed in Argentina in districts to manage primary health centers. The Ministry of Health of Morelos, Mexico for the province. The biggest hospital in Laos, a reference in tropical diseases, runs on it as well. The government of Jamaica started a couple of years ago the implementation project for managing the Public Health system of the island.   These institutions and countries are independent now from proprietary solutions, which should be the integral principle in health care. Their work and experience help to improve the community. It’s a lot of solidarity, equity and community work as a result. And they’re free from external vendors, institutions, licenses, they can modify the modules and create new ones - for example, the module dealing with Injury Surveillance System was built in response to the needs in Jamaica.   Money helps us move faster, but it’s the people who make us achieve really remarkable things. We understand how medicine can be improved, changed, how it needs to be adjusted to the cultural setting, and based on individual needs, precisely addressed.",/post/535,2017-04-16T01:10:34.000Z,2017-04-16T01:10:34.000Z,535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,502,932 10688,v1.0,,"No one has a monopoly on truth, it is somewhere in the middle, I don’t have it, but I have part of it, we complete each other, you and me are pieces of the puzzle. Let’s talk with each others, accept each other.",/post/797,2017-04-16T01:08:45.000Z,2017-04-16T01:08:45.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1625 7389,v1.0,,"Under these conditions the best thing you can get to is the Egyptian model, with hungry ignorant people afraid to be like those in Syria or Iraq, governed by fascist goverments.",/post/797,2017-04-16T01:08:27.000Z,2017-04-16T01:08:27.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,826 11420,v1.0,,"I’m talking here about the weapons/arms markets, and other markets based on the dead bodies of other states. Especially after watching the news talking about Aleppo, Mosul … etc Cheap games to prolong the war, unlimited support for the parties of the conflict, in exchange for contracts and concessions we will know in the future.",/post/797,2017-04-16T01:07:17.000Z,2017-04-16T01:07:17.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1839 11371,v1.0,,"I’m talking here about the weapons/arms markets, and other markets based on the dead bodies of other states. Especially after watching the news talking about Aleppo, Mosul … etc Cheap games to prolong the war, unlimited support for the parties of the conflict, in exchange for contracts and concessions we will know in the future.",/post/797,2017-04-16T01:07:09.000Z,2017-04-16T01:07:09.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1823 7906,v1.0,,"The respect for the human person, the system of rights and duties, which I respected from the first day. But living in the middle east gives you the chance to see the dark face of that world, the military training field I came from taught me to not believe the existing models, the part of relations of states specifically.",/post/797,2017-04-16T01:06:35.000Z,2017-04-16T01:06:35.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,966 6113,v1.0,,"There is no perfection of course, being in Europe allows me to discover the value of freedom, human value, accept differences, respect the personal space, working hard. To be precise I have to admit that the western civilization is the mirror which we see the deterioration of our situation through it, and the image we want to be closer to.",/post/797,2017-04-16T01:06:18.000Z,2017-04-16T01:06:18.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,430 8843,v1.0,,"Of course every rule has exception but the united community can overcome it. Every citizen has moral responsibilities and he is already indebted to the communit",/post/797,2017-04-16T01:06:12.000Z,2017-04-16T01:06:12.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1170 9863,v1.0,,"The poor celebrate double in our holidays because of a race for goodness, because the concept of ""Eid"" in the perception of Islam linked to ""Zakat"" which is basically the process of cleansing the money by giving the poor his legitimate right of the money which is 2,5 percent of annual profits in secret. If there is no secrecy Allah does not accept it . And many annual grants to the poor some of it linked to time, and some linked to personal events like ""Akika"" which is slaughtering two rams and distributing them to the poor when the child is born.",/post/797,2017-04-16T01:05:59.000Z,2017-04-16T01:05:59.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1432 11584,v1.0,,"The poor celebrate double in our holidays because of a race for goodness, because the concept of ""Eid"" in the perception of Islam linked to ""Zakat"" which is basically the process of cleansing the money by giving the poor his legitimate right of the money which is 2,5 percent of annual profits in secret. If there is no secrecy Allah does not accept it .",/post/797,2017-04-16T01:05:47.000Z,2017-04-16T01:05:47.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1876 5421,v1.0,,"The poor celebrate double in our holidays because of a race for goodness, because the concept of ""Eid"" in the perception of Islam linked to ""Zakat"" which is basically the process of cleansing the money by giving the poor his legitimate right of the money which is 2,5 percent of annual profits in secret. If there is no secrecy Allah does not accept it .",/post/797,2017-04-16T01:05:35.000Z,2017-04-16T01:05:35.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,305 10432,v1.0,,"Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of ""grace conversation"" in Damascus which provides medicine for thousands of families from excess medication at other families, and also ""maoayed alrahman"" which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities. In addition to internal displacement thousands of families are participating with their homes and food and many other live examples.",/post/797,2017-04-16T01:05:28.000Z,2017-04-16T01:05:28.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1543 10430,v1.0,,"Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of ""grace conversation"" in Damascus which provides medicine for thousands of families from excess medication at other families, and also ""maoayed alrahman"" which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities. In addition to internal displacement thousands of families are participating with their homes and food and many other live examples.",/post/797,2017-04-16T01:05:12.000Z,2017-04-16T01:05:12.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1542 8507,v1.0,,"Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of ""grace conversation"" in Damascus which provides medicine for thousands of families from excess medication at other families, and also ""maoayed alrahman"" which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities. In addition to internal displacement thousands of families are participating with their homes and food and many other live examples.",/post/797,2017-04-16T01:05:01.000Z,2017-04-16T01:05:01.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1131 10593,v1.0,,"Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of ""grace conversation"" in Damascus which provides medicine for thousands of families from excess medication at other families, and also ""maoayed alrahman"" which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities. In addition to internal displacement thousands of families are participating with their homes and food and many other live examples.",/post/797,2017-04-16T01:04:48.000Z,2017-04-16T01:04:48.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1590 4663,v1.0,,By the way altruism is still there and it is main reason why the Syrians in Syria are still alive,/post/797,2017-04-16T01:04:40.000Z,2017-04-16T01:04:40.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,47 9882,v1.0,,"Based on the above, we had to find mechanisms to ensure us to life in the light of repression, but we are lucky, all we had to do is follow a system of solidarity that exists already in our values and upbringing. One of the basics of this system, the most simple rule of it, you find in the words of prophet Mohammad: ""he does not enter the paradise, he who whoever sleeps full of, while his neighbor is hungry"".",/post/797,2017-04-16T01:04:24.000Z,2017-04-16T01:04:24.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1440 4819,v1.0,,"The previous scene sums up the role of our government in our lives, a direct enemy you try to avoid day by day, and freedom of expression is guaranteed on the walls of bathrooms in prisons.",/post/797,2017-04-16T01:04:10.000Z,2017-04-16T01:04:10.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,86 9016,v1.0,,"Hello @Henrike and @DavidFromAntwerp , I could not help noticing that your approach is closed to that of our friend Giulio Quaggiotto, except he applies it to social and economic development of regions: http://www.nesta.org.uk/blog/fall-love-solution-not-problem . What he does is not ask people ""what do you need?"", but ""what are you already doing to solve this problem?"", or even ""what are you already doing that is good for your local community?"".  With a little help from Google Translate I looked into Flipped Job Market. It is really refreshing. What are your results so far, Henrike?",/post/21821,2017-04-15T20:28:18.000Z,2017-04-15T20:28:18.000Z,21821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,721,1229 10602,v1.0,,"Hello @Henrike and @DavidFromAntwerp , I could not help noticing that your approach is closed to that of our friend Giulio Quaggiotto, except he applies it to social and economic development of regions: http://www.nesta.org.uk/blog/fall-love-solution-not-problem . What he does is not ask people ""what do you need?"", but ""what are you already doing to solve this problem?"", or even ""what are you already doing that is good for your local community?"".  With a little help from Google Translate I looked into Flipped Job Market. It is really refreshing. What are your results so far, Henrike?",/post/21821,2017-04-15T20:28:12.000Z,2017-04-15T20:28:12.000Z,21821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,721,1592 7562,v1.0,,"into complexity (VUCA-World). In my journey to find answers for leadership I´ve learned about Otto Scharmer and Theory U. I love to find a project on that plattform which is connecting to that kind of thinking and using that approach. In our project flipped job market we also take on the challenge for a new mindset in order to live the full potential with lies in every one of us.",/post/21101,2017-04-15T20:27:58.000Z,2017-04-15T20:27:58.000Z,21101,3323,AnnotatorStore::TextAnnotation,,,,,,,,,721,880 9015,v1.0,,"Solutions and problems have not so much to do with each other. Solutions are there without the problem. We need to stop looking at the problems and just start focussing on solutions all around us. Problems will not thrive in a solution focused mindset. I studied Family science and Solution focused cognitive Therapy. I have a lot of friends who work with the same mindset and can live the authentic happines without being attached to anything. Le me learn this to people who want to evolve in their feelings of happines and the dull distractions of stress. By motivational speech and a focus towards what does work I can make groups see different towards a situation so solutions come up that have nothing to do with the problem but yet as if by magic, the problem will dissapear. I follow 3 main principles trough out this proces. We need to be aware of our Self towards Nature, our Self towards Others and our Self towards our Self.",/post/754,2017-04-15T20:27:43.000Z,2017-04-15T20:27:43.000Z,754,3323,AnnotatorStore::TextAnnotation,,,,,,,,,721,1229 10601,v1.0,,"Solutions and problems have not so much to do with each other. Solutions are there without the problem. We need to stop looking at the problems and just start focussing on solutions all around us. Problems will not thrive in a solution focused mindset. I studied Family science and Solution focused cognitive Therapy. I have a lot of friends who work with the same mindset and can live the authentic happines without being attached to anything. Le me learn this to people who want to evolve in their feelings of happines and the dull distractions of stress. By motivational speech and a focus towards what does work I can make groups see different towards a situation so solutions come up that have nothing to do with the problem but yet as if by magic, the problem will dissapear. I follow 3 main principles trough out this proces. We need to be aware of our Self towards Nature, our Self towards Others and our Self towards our Self.",/post/754,2017-04-15T20:27:28.000Z,2017-04-15T20:27:28.000Z,754,3323,AnnotatorStore::TextAnnotation,,,,,,,,,721,1592 9591,v1.0,,"Saturday: baby milk bottle official price = 10 pounds Sunday: baby milk bottle not available in markets Monday: army goes down to the market with 30 million milk bottles, the price: 30 pounds, the media goes like: “the army saved our babies, long live the army”",/post/797,2017-04-15T20:25:08.000Z,2017-04-15T20:25:08.000Z,797,3323,AnnotatorStore::TextAnnotation,,,,,,,,,764,1350 7521,v1.0,,"2) Funding and resources: I would need start up funding for the first couple of years to get the project to a self-financing stage, and a trusted accountant and solisitor to take care of such things.",/post/17562,2017-04-15T20:23:34.000Z,2017-04-15T20:23:34.000Z,17562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,775,876 4621,v1.0,,"Nice to meet you. Thank you for your comment. Well for the alcohol-free space, I would need:  1) One or two dedicated and trustworthy people who are as passionate as me about the idea, in Galway who could commit part time hours to work in it, and possibly be coloborators or managers with me, because I am not sure I want to be alone in the decision making and managing at this time. 2) Funding and resources: I would need start up funding for the first couple of years to get the project to a self-financing stage, and a trusted accountant and solisitor to take care of such things.  3) A suitable venue/building in the city centre. It would be ideal to own a building, or be donated one, but I would settle for renting, it is more important that the space exists. 4) I would need to be able to give my full time and energy commitment to the project for a couple of years. (this is where a partner would be handy)  In the mean time what I could be doing is running regular monthly/twice monthly events in rented spaces, to build up a customer following and awareness of the project. This would require a smaller investment of money, resources and time.  I currenlty do not have any money to invest in either of these options.  I would need to make money from it to make it sustainable and be able to dedicate enough time to make it the best it can be.  Thanks for asking, it has helped me think about where I am and where I'm going",/post/17562,2017-04-15T20:23:26.000Z,2017-04-15T20:23:26.000Z,17562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,775,36 10323,v1.0,,"I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care priorities in a whole different light. Or the layers you mention (""opinion"" ""contradict"" etc). But if you have an ethnographer analysing the more in-depth conversation, isn't that covered? @jimmytidey is involved in mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes? http://localnets.org/",/post/33416,2017-04-15T20:05:47.000Z,2017-04-15T20:05:47.000Z,33416,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5407,1514 10336,v1.0,,"I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care priorities in a whole different light. Or the layers you mention (""opinion"" ""contradict"" etc). But if you have an ethnographer analysing the more in-depth conversation, isn't that covered? @jimmytidey is involved in mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes? http://localnets.org/",/post/33416,2017-04-15T20:05:41.000Z,2017-04-15T20:05:41.000Z,33416,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5407,1519 8648,v1.0,,"I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care priorities in a whole different light. Or the layers you mention (""opinion"" ""contradict"" etc). But if you have an ethnographer analysing the more in-depth conversation, isn't that covered? @jimmytidey is involved in mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes? http://localnets.org/",/post/33416,2017-04-15T20:05:07.000Z,2017-04-15T20:05:07.000Z,33416,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5407,1143 10335,v1.0,,"Open your heart. Imagine you read posts, you are trying to understand what is going on in the Op3nCare crowd, maybe looking how newcomers are doing, maybe looking for places where lively debates take (took) place. How does the sentiment scale used in the demo serves your search? How would you go from the sentiment map to the data you are looking for? Come on guys, be generous, tell me all -- I need it to fuel WP5. Thanks!",/post/15809,2017-04-15T20:04:44.000Z,2017-04-15T20:04:44.000Z,15809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5407,1519 8647,v1.0,,"We have mentioned it would be interesting to provide sentiment analysis feedback to those who would monitor conversations taking place on the forum. I am interested in finding an appropriate sentiment landscape, I thought the experiment by C. Healy would be worth trying. You enter words, the app scrapes twitter for you and then displays a cloudpoint (points correspond to tweets). Go play! I am also interested in your feedback about the utility of such a viz. How would you intuitively use such a represntation? Just look at it? Drive the navigation between posts (here tweets) from that viz? Query the posts and get back to the authors' neighborhood (in the crowd of all authors)? Etc.",/post/5440,2017-04-15T20:04:27.000Z,2017-04-15T20:04:27.000Z,5440,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5407,1143 10334,v1.0,,"We have mentioned it would be interesting to provide sentiment analysis feedback to those who would monitor conversations taking place on the forum. I am interested in finding an appropriate sentiment landscape, I thought the experiment by C. Healy would be worth trying. You enter words, the app scrapes twitter for you and then displays a cloudpoint (points correspond to tweets). Go play! I am also interested in your feedback about the utility of such a viz. How would you intuitively use such a represntation? Just look at it? Drive the navigation between posts (here tweets) from that viz? Query the posts and get back to the authors' neighborhood (in the crowd of all authors)? Etc.",/post/5440,2017-04-15T20:04:21.000Z,2017-04-15T20:04:21.000Z,5440,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5407,1519 11419,v1.0,,"Answering that question requires examining the roots of the conflict, the context in which it arose, and the factors that have kept it going. This study offers some frank evaluations of the efforts made over the years to resolve the conflict, some of which have not been discussed publicly except in the partisan narratives of one side or the other.",/post/33808,2017-04-15T19:59:10.000Z,2017-04-15T19:59:10.000Z,33808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,1839 5947,v1.0,,"Answering that question requires examining the roots of the conflict, the context in which it arose, and the factors that have kept it going. This study offers some frank evaluations of the efforts made over the years to resolve the conflict, some of which have not been discussed publicly except in the partisan narratives of one side or the other.",/post/33808,2017-04-15T19:59:04.000Z,2017-04-15T19:59:04.000Z,33808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,390 10626,v1.0,,"This is awful news given all the psoitive information you were sharing with us at LOTE5. I'm upset (but not surprised) that this issue is receiving absolutely no attention in UK. I will do what i can to share stories Alex",/post/33769,2017-04-15T19:58:26.000Z,2017-04-15T19:58:26.000Z,33769,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,1614 10625,v1.0,,"We need all the attention and help we can get to spread the message out to the world to ""illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet."" Maria Titizyan",/post/33738,2017-04-15T19:58:11.000Z,2017-04-15T19:58:11.000Z,33738,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,1614 8024,v1.0,,"Even though me and most of the people I know haven't really grasped the reality in this information blockade, this is war...this is what war looks like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it started...",/post/33738,2017-04-15T19:57:51.000Z,2017-04-15T19:57:51.000Z,33738,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,1002 11418,v1.0,,"War is like a dirty toilet that no one wants to clean someone said... Violence begets violence and war is the ugliest human invention. For the past  4 days our lives here in Armenia have turned upside down...Things are calm in Yerevan but the situation in Nagorno-Karabakh is on everyone's mind. Most people know at least someone who is on the front lines, mostly 18-20 year old boys serving their mandatory 2 year service,  though hundreds of volunteers and army reserve forces are joining. It’s hard to shift my mind and concentrate on work at all in this situation...I've been idly browsing and refreshing the news (local - only official info that is of course censored, intl - absence of reaction and investigative journalism, and azeri- misleading statements and false accusations) since Saturday morning when the shootings began. Even though me and most of the people I know haven't really grasped the reality in this information blockade, this is war...this is what war looks like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it started... First thing on my mind - I do not want my daugher to witness the horror we've been through...second thought - Armenian and Azeri people should gather at the border in masses and have free hugs...third thought - war is inevitable, this is the reality, people too brainwashed by their governments, full of false patriotism, nationalism and machism...peacemaking failed once again... We dance and send our children to fight the enemy, this is the only way...both sides consider each other agressors and feel the necessity to protect themselves/reclaim their lands....false declarations of ceasefires, provocative war crimes, rejoicing in the losses of ""the enemy"" just like in a football match and asking the gods to protect our boys on the frontline...and the international community that can only do so much  as to ""condemn"" the violence... Thoughts and prayers are not enough here. An escalation of this situation may lead to a full blown war that can set this region back for decades. As I am too paralized to form my own thoughts, I'll just quote some of the most objective and reasonable comments I've seen on the internets in the ocean of misleading and incorrect information for the past couple of days. We need all the attention and help we can get to spread the message out to the world to ""illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet."" Maria Titizyan ""The timing of these events should not be a surprise. Azerbaijan's economy is in terrible shape right now. Their currency dropped 40% in value against the dollar in January. Their entire economy is almost completely tied to oil and oil prices are at the lowest point in a decade. Mass protests against corruption and a depressed economy in Azerbaijan have increased in recent months. Invading Nagorno-Karabagh is an attempt to boost nationalism and act as a distraction from real problems at home. All that plus Russia's deteriorating relationship with Turkey, a strong political ally of Azerbaijan, creates a terrible condition for Azerbajian to act aggressively against Nagorno-Karabakh.""  Erik Yesayan ""Armed with the knowledge of the history of this conflict, it is easy to discern that it is not in Artsakh’s interests to break the peace and renew hostilities. Instead, it is Azerbaijan that wishes to retake control of land which, due to the political maneuvering of a third higher power, temporarily fell into its hands but over which it has no legitimate claim."" Aram Hovasapyan Right now both sides agreed on a temporary ceasefire while Armenia's president is meeting OSCE in Vienna and Azeri PM is in Iran to attend a meeting with foreign ministers of Iran and Turkey...hope this will de-escalate sooner than later... Additional reading: https://goo.gl/ci3lFU http://goo.gl/x4XTSJ http://goo.gl/j6jqUe http://goo.gl/1jv07R",/post/33738,2017-04-15T19:54:06.000Z,2017-04-15T19:54:06.000Z,33738,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,1839 5946,v1.0,,"War is like a dirty toilet that no one wants to clean someone said... Violence begets violence and war is the ugliest human invention. For the past  4 days our lives here in Armenia have turned upside down...Things are calm in Yerevan but the situation in Nagorno-Karabakh is on everyone's mind. Most people know at least someone who is on the front lines, mostly 18-20 year old boys serving their mandatory 2 year service,  though hundreds of volunteers and army reserve forces are joining. It’s hard to shift my mind and concentrate on work at all in this situation...I've been idly browsing and refreshing the news (local - only official info that is of course censored, intl - absence of reaction and investigative journalism, and azeri- misleading statements and false accusations) since Saturday morning when the shootings began. Even though me and most of the people I know haven't really grasped the reality in this information blockade, this is war...this is what war looks like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it started... First thing on my mind - I do not want my daugher to witness the horror we've been through...second thought - Armenian and Azeri people should gather at the border in masses and have free hugs...third thought - war is inevitable, this is the reality, people too brainwashed by their governments, full of false patriotism, nationalism and machism...peacemaking failed once again... We dance and send our children to fight the enemy, this is the only way...both sides consider each other agressors and feel the necessity to protect themselves/reclaim their lands....false declarations of ceasefires, provocative war crimes, rejoicing in the losses of ""the enemy"" just like in a football match and asking the gods to protect our boys on the frontline...and the international community that can only do so much  as to ""condemn"" the violence... Thoughts and prayers are not enough here. An escalation of this situation may lead to a full blown war that can set this region back for decades. As I am too paralized to form my own thoughts, I'll just quote some of the most objective and reasonable comments I've seen on the internets in the ocean of misleading and incorrect information for the past couple of days. We need all the attention and help we can get to spread the message out to the world to ""illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet."" Maria Titizyan ""The timing of these events should not be a surprise. Azerbaijan's economy is in terrible shape right now. Their currency dropped 40% in value against the dollar in January. Their entire economy is almost completely tied to oil and oil prices are at the lowest point in a decade. Mass protests against corruption and a depressed economy in Azerbaijan have increased in recent months. Invading Nagorno-Karabagh is an attempt to boost nationalism and act as a distraction from real problems at home. All that plus Russia's deteriorating relationship with Turkey, a strong political ally of Azerbaijan, creates a terrible condition for Azerbajian to act aggressively against Nagorno-Karabakh.""  Erik Yesayan ""Armed with the knowledge of the history of this conflict, it is easy to discern that it is not in Artsakh’s interests to break the peace and renew hostilities. Instead, it is Azerbaijan that wishes to retake control of land which, due to the political maneuvering of a third higher power, temporarily fell into its hands but over which it has no legitimate claim."" Aram Hovasapyan Right now both sides agreed on a temporary ceasefire while Armenia's president is meeting OSCE in Vienna and Azeri PM is in Iran to attend a meeting with foreign ministers of Iran and Turkey...hope this will de-escalate sooner than later... Additional reading: https://goo.gl/ci3lFU http://goo.gl/x4XTSJ http://goo.gl/j6jqUe http://goo.gl/1jv07R",/post/33738,2017-04-15T19:53:56.000Z,2017-04-15T19:53:56.000Z,33738,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,390 11370,v1.0,,"War is like a dirty toilet that no one wants to clean someone said... Violence begets violence and war is the ugliest human invention. For the past  4 days our lives here in Armenia have turned upside down...Things are calm in Yerevan but the situation in Nagorno-Karabakh is on everyone's mind. Most people know at least someone who is on the front lines, mostly 18-20 year old boys serving their mandatory 2 year service,  though hundreds of volunteers and army reserve forces are joining. It’s hard to shift my mind and concentrate on work at all in this situation...I've been idly browsing and refreshing the news (local - only official info that is of course censored, intl - absence of reaction and investigative journalism, and azeri- misleading statements and false accusations) since Saturday morning when the shootings began. Even though me and most of the people I know haven't really grasped the reality in this information blockade, this is war...this is what war looks like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it started... First thing on my mind - I do not want my daugher to witness the horror we've been through...second thought - Armenian and Azeri people should gather at the border in masses and have free hugs...third thought - war is inevitable, this is the reality, people too brainwashed by their governments, full of false patriotism, nationalism and machism...peacemaking failed once again... We dance and send our children to fight the enemy, this is the only way...both sides consider each other agressors and feel the necessity to protect themselves/reclaim their lands....false declarations of ceasefires, provocative war crimes, rejoicing in the losses of ""the enemy"" just like in a football match and asking the gods to protect our boys on the frontline...and the international community that can only do so much  as to ""condemn"" the violence... Thoughts and prayers are not enough here. An escalation of this situation may lead to a full blown war that can set this region back for decades. As I am too paralized to form my own thoughts, I'll just quote some of the most objective and reasonable comments I've seen on the internets in the ocean of misleading and incorrect information for the past couple of days. We need all the attention and help we can get to spread the message out to the world to ""illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet."" Maria Titizyan ""The timing of these events should not be a surprise. Azerbaijan's economy is in terrible shape right now. Their currency dropped 40% in value against the dollar in January. Their entire economy is almost completely tied to oil and oil prices are at the lowest point in a decade. Mass protests against corruption and a depressed economy in Azerbaijan have increased in recent months. Invading Nagorno-Karabagh is an attempt to boost nationalism and act as a distraction from real problems at home. All that plus Russia's deteriorating relationship with Turkey, a strong political ally of Azerbaijan, creates a terrible condition for Azerbajian to act aggressively against Nagorno-Karabakh.""  Erik Yesayan ""Armed with the knowledge of the history of this conflict, it is easy to discern that it is not in Artsakh’s interests to break the peace and renew hostilities. Instead, it is Azerbaijan that wishes to retake control of land which, due to the political maneuvering of a third higher power, temporarily fell into its hands but over which it has no legitimate claim."" Aram Hovasapyan Right now both sides agreed on a temporary ceasefire while Armenia's president is meeting OSCE in Vienna and Azeri PM is in Iran to attend a meeting with foreign ministers of Iran and Turkey...hope this will de-escalate sooner than later... Additional reading: https://goo.gl/ci3lFU http://goo.gl/x4XTSJ http://goo.gl/j6jqUe http://goo.gl/1jv07R",/post/33738,2017-04-15T19:53:49.000Z,2017-04-15T19:53:49.000Z,33738,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6587,1823 6307,v1.0,,"That's very informative, @jdossou80@yahoo.com, thanks.  It seems that in the USA and Europe there is a ""middle generation"": people that got on the Internet when it was still relatively new, let's say before 2006. Those people managed to see the tail end of the noncommercial Internet; and they remember what it means for using a website to to be ""hard"": slow dialup connections, textual interfaces, floppy disks with vintage browsers like Mosaic and Netscape. These people make good online collaborators; they go for content and community, and if they need to work a little harder to get it they will. This means they will forgive you websites like Edgeryders, that do not have the usability firepower of Facebook.  Younger people here are harder to engage. They have never known anything but superfast Internet with integrated video, always available on their smartphones. They do not miss the free, noncommercial web of the early days, an  have less patience for minor technical flaws.  From what you say, Africa skipped the early phase of the Internet. Almost everyone who is online now got online in the last 5 years. They have never known anything but Facebook. It is the only game in town.",/post/23162,2017-04-15T19:52:07.000Z,2017-04-15T19:52:07.000Z,23162,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,449 6905,v1.0,,"That's very informative, @jdossou80@yahoo.com, thanks.  It seems that in the USA and Europe there is a ""middle generation"": people that got on the Internet when it was still relatively new, let's say before 2006. Those people managed to see the tail end of the noncommercial Internet; and they remember what it means for using a website to to be ""hard"": slow dialup connections, textual interfaces, floppy disks with vintage browsers like Mosaic and Netscape. These people make good online collaborators; they go for content and community, and if they need to work a little harder to get it they will. This means they will forgive you websites like Edgeryders, that do not have the usability firepower of Facebook.  Younger people here are harder to engage. They have never known anything but superfast Internet with integrated video, always available on their smartphones. They do not miss the free, noncommercial web of the early days, an  have less patience for minor technical flaws.  From what you say, Africa skipped the early phase of the Internet. Almost everyone who is online now got online in the last 5 years. They have never known anything but Facebook. It is the only game in town.",/post/23162,2017-04-15T19:51:57.000Z,2017-04-15T19:51:57.000Z,23162,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,709 10418,v1.0,,"1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases.   Beyond the key ""theoretical"" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.  The online facebook group, is not a tool for curative or palliative care such as online consultations with drug prescriptions. Medical doctors are involved in the discussions and if required, they can give offline, specific orientations to go for curative consultations; but discussions in the group, do not involve curative or palliative care. 2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation  on some specific subject with high interest and later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you",/post/21489,2017-04-15T19:51:40.000Z,2017-04-15T19:51:40.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1540 10687,v1.0,,"1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases.   Beyond the key ""theoretical"" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.  The online facebook group, is not a tool for curative or palliative care such as online consultations with drug prescriptions. Medical doctors are involved in the discussions and if required, they can give offline, specific orientations to go for curative consultations; but discussions in the group, do not involve curative or palliative care. 2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation  on some specific subject with high interest and later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you want. 3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.  4- Offline events. We realized early in our learning process in the group, that online presence alone is not going to help us reaching our goals. We organize collaboratively offline events: physical activities (walks), risk factors screening, interactive conferences and workshops. All those events are organized by members of the group. We use the online tools to recruit members who want to collaborate in the organization. We share with them some key principles and support. We use the online tools as well for advertisement of the events. The access to all the physical event is free of charge. We use a collaborative process to raise the funding, using members of the group that has skills and key positions in potential funding structures. By doing so, we were capable of raising up to 25000 dollars in 2015 to organize physical events. This is happening in a context where the ministry of health do not have any internal budget for this kind of event. The local representation of WHO makes about 2000 dollars only available for this kind of event. In the organization of those offline events, community members hold a lot of power in the process.",/post/21489,2017-04-15T19:51:24.000Z,2017-04-15T19:51:24.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1625 8316,v1.0,,"4- Offline events. We realized early in our learning process in the group, that online presence alone is not going to help us reaching our goals. We organize collaboratively offline events: physical activities (walks), risk factors screening, interactive conferences and workshops. All those events are organized by members of the group. We use the online tools to recruit members who want to collaborate in the organization. We share with them some key principles and support. We use the online tools as well for advertisement of the events. The access to all the physical event is free of charge. We use a collaborative process to raise the funding, using members of the group that has skills and key positions in potential funding structures. By doing so, we were capable of raising up to 25000 dollars in 2015 to organize physical events. This is happening in a context where the ministry of health do not have any internal budget for this kind of event. The local representation of WHO makes about 2000 dollars only available for this kind of event. In the organization of those offline events, community members hold a lot of power in the process.",/post/21489,2017-04-15T19:51:09.000Z,2017-04-15T19:51:09.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1081 11219,v1.0,,"I wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and  even spam (as I write this, someone calling themselves ""Marcel Enyonam"" is offering cheap loans on about ten posts). My main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what? I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it's just me",/post/8193,2017-04-15T19:50:52.000Z,2017-04-15T19:50:52.000Z,8193,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1771 11218,v1.0,,"3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.",/post/21489,2017-04-15T19:50:39.000Z,2017-04-15T19:50:39.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1771 6904,v1.0,,"3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.",/post/21489,2017-04-15T19:50:32.000Z,2017-04-15T19:50:32.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,709 6306,v1.0,,"3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.",/post/21489,2017-04-15T19:50:20.000Z,2017-04-15T19:50:20.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,449 5531,v1.0,,"2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation  on some specific subject with high interest and later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you want.",/post/21489,2017-04-15T19:50:12.000Z,2017-04-15T19:50:12.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,326 9004,v1.0,,"1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases.   Beyond the key ""theoretical"" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.",/post/21489,2017-04-15T19:49:58.000Z,2017-04-15T19:49:58.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1222 7352,v1.0,,"1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases.   Beyond the key ""theoretical"" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.",/post/21489,2017-04-15T19:49:50.000Z,2017-04-15T19:49:50.000Z,21489,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,817 8315,v1.0,,"What I like most about your initiative is that you organise offline gatherings like the walk, and I'm curious how they work, if you learn new stories. For example, some people here in the community mentioned how for them health- or social care is about reciprocity: People help other people in need and receive help when the time comes when they need it. Do you know how the people in your group relate to care? Is it a service or more a commmunity that they are part of",/post/15220,2017-04-15T19:47:06.000Z,2017-04-15T19:47:06.000Z,15220,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1081 5530,v1.0,,"My main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what? I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it's just me",/post/8193,2017-04-15T19:46:55.000Z,2017-04-15T19:46:55.000Z,8193,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,326 10350,v1.0,,"My main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what? I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it's just me",/post/8193,2017-04-15T19:46:47.000Z,2017-04-15T19:46:47.000Z,8193,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1527 9622,v1.0,,"I wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and  even spam (as I write this, someone calling themselves ""Marcel Enyonam"" is offering cheap loans on about ten posts).",/post/8193,2017-04-15T19:46:31.000Z,2017-04-15T19:46:31.000Z,8193,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1363 7351,v1.0,,"I wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and  even spam (as I write this, someone calling themselves ""Marcel Enyonam"" is offering cheap loans on about ten posts).",/post/8193,2017-04-15T19:46:15.000Z,2017-04-15T19:46:15.000Z,8193,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,817 7350,v1.0,,"Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.",/post/672,2017-04-15T19:46:04.000Z,2017-04-15T19:46:04.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,817 5013,v1.0,,"The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.  Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 € to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.",/post/672,2017-04-15T19:45:44.000Z,2017-04-15T19:45:44.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,134 10572,v1.0,,"The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.  Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 € to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.",/post/672,2017-04-15T19:45:35.000Z,2017-04-15T19:45:35.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1579 5749,v1.0,,"Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.",/post/672,2017-04-15T19:45:26.000Z,2017-04-15T19:45:26.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,368 5830,v1.0,,"Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.",/post/672,2017-04-15T19:45:08.000Z,2017-04-15T19:45:08.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,377 10417,v1.0,,"Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.",/post/672,2017-04-15T19:45:00.000Z,2017-04-15T19:45:00.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1540 5620,v1.0,,"Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.",/post/672,2017-04-15T19:44:43.000Z,2017-04-15T19:44:43.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,354 7264,v1.0,,"We aim here to present briefly Cœur d’Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution.  Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity.",/post/672,2017-04-15T19:44:30.000Z,2017-04-15T19:44:30.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,793 7540,v1.0,,"As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, Cœur d’Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.",/post/672,2017-04-15T19:44:09.000Z,2017-04-15T19:44:09.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,877 5025,v1.0,,"As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, Cœur d’Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.",/post/672,2017-04-15T19:44:01.000Z,2017-04-15T19:44:01.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,137 6516,v1.0,,"I'm Jean-Paul Dossou, from Benin in West-Africa.  Some wise people do perceive already the unsustainability of the current health care provision organization in western developped countries, but this is the dreamed model, that developping countries are running to. Is it possible to ""jump a generation"" in the organization of health care provision in developping countries? This is the underlying question of the ""modern"" collaborative care expriences we are going to share in this post about Coeur d'Or. As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, Cœur d’Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way. We aim here to present briefly Cœur d’Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution.  Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity. Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD. The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.  Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 € to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers. The rapid development of telecommunications improves the access of a growing number of people to Internet and social media. A critical mass of the group improves its political influence and creates a web tool that can help for a viral diffusion. Cœur d’Or demonstrates the feasibility of using social media as an innovative approach for offering promotional and preventive care on health issues in sub-Saharan Africa. It opens new windows for thinking and dreaming again for an effective community participation in all its dimensions in the global south. Thank you very much for your comments and questions.",/post/672,2017-04-15T19:43:50.000Z,2017-04-15T19:43:50.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,490 9573,v1.0,,"I'm Jean-Paul Dossou, from Benin in West-Africa.  Some wise people do perceive already the unsustainability of the current health care provision organization in western developped countries, but this is the dreamed model, that developping countries are running to. Is it possible to ""jump a generation"" in the organization of health care provision in developping countries? This is the underlying question of the ""modern"" collaborative care expriences we are going to share in this post about Coeur d'Or. As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, Cœur d’Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way. We aim here to present briefly Cœur d’Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution.  Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity. Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD. The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.  Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 € to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers. The rapid development of telecommunications improves the access of a growing number of people to Internet and social media. A critical mass of the group improves its political influence and creates a web tool that can help for a viral diffusion. Cœur d’Or demonstrates the feasibility of using social media as an innovative approach for offering promotional and preventive care on health issues in sub-Saharan Africa. It opens new windows for thinking and dreaming again for an effective community participation in all its dimensions in the global south. Thank you very much for your comments and questions.",/post/672,2017-04-15T19:43:36.000Z,2017-04-15T19:43:36.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1348 10570,v1.0,,"I'm Jean-Paul Dossou, from Benin in West-Africa.  Some wise people do perceive already the unsustainability of the current health care provision organization in western developped countries, but this is the dreamed model, that developping countries are running to. Is it possible to ""jump a generation"" in the organization of health care provision in developping countries? This is the underlying question of the ""modern"" collaborative care expriences we are going to share in this post about Coeur d'Or. As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, Cœur d’Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way. We aim here to present briefly Cœur d’Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution.  Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity. Cœur d’Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.  A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD. The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.  Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 € to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers. The rapid development of telecommunications improves the access of a growing number of people to Internet and social media. A critical mass of the group improves its political influence and creates a web tool that can help for a viral diffusion. Cœur d’Or demonstrates the feasibility of using social media as an innovative approach for offering promotional and preventive care on health issues in sub-Saharan Africa. It opens new windows for thinking and dreaming again for an effective community participation in all its dimensions in the global south. Thank you very much for your comments and questions.",/post/672,2017-04-15T19:43:27.000Z,2017-04-15T19:43:27.000Z,672,3323,AnnotatorStore::TextAnnotation,,,,,,,,,639,1578 7671,v1.0,,"In speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...",/post/19688,2017-04-15T19:41:03.000Z,2017-04-15T19:41:03.000Z,19688,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,912 5596,v1.0,,"I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability. In speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability... Anyway, thank for posting.",/post/19688,2017-04-15T19:40:44.000Z,2017-04-15T19:40:44.000Z,19688,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,348 11384,v1.0,,"I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability. In speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability... Anyway, thank for posting.",/post/19688,2017-04-15T19:40:37.000Z,2017-04-15T19:40:37.000Z,19688,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,1829 6948,v1.0,,"I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability. In speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability... Anyway, thank for posting.",/post/19688,2017-04-15T19:40:32.000Z,2017-04-15T19:40:32.000Z,19688,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,724 6947,v1.0,,"You might want to get in touch with members in Milano for a slightly different problem and approach - they zoomed in on the problem of wheelchair mobility and how disabled people can't push their own wheelchairs and be on their own. Better designed wheelchairs would ideally increase one's autonomy and freedom to move. It takes out of the equation the need to be accompanied at any step, which is after all a practical reality identified by the group in discussions and something which can affect how others treat you.  It would be interesting to study how perspective differ - what goes on in people's heads when they see someone helped versus when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.",/post/8596,2017-04-15T19:40:08.000Z,2017-04-15T19:40:08.000Z,8596,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,724 4803,v1.0,,"You might want to get in touch with members in Milano for a slightly different problem and approach - they zoomed in on the problem of wheelchair mobility and how disabled people can't push their own wheelchairs and be on their own. Better designed wheelchairs would ideally increase one's autonomy and freedom to move. It takes out of the equation the need to be accompanied at any step, which is after all a practical reality identified by the group in discussions and something which can affect how others treat you.  It would be interesting to study how perspective differ - what goes on in people's heads when they see someone helped versus when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.",/post/8596,2017-04-15T19:40:01.000Z,2017-04-15T19:40:01.000Z,8596,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,80 8790,v1.0,,"You might want to get in touch with members in Milano for a slightly different problem and approach - they zoomed in on the problem of wheelchair mobility and how disabled people can't push their own wheelchairs and be on their own. Better designed wheelchairs would ideally increase one's autonomy and freedom to move. It takes out of the equation the need to be accompanied at any step, which is after all a practical reality identified by the group in discussions and something which can affect how others treat you.  It would be interesting to study how perspective differ - what goes on in people's heads when they see someone helped versus when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.",/post/8596,2017-04-15T19:39:57.000Z,2017-04-15T19:39:57.000Z,8596,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,1155 5410,v1.0,,"So here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies? Another example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don’t think otherwise to begin with. Could it be that some of us—people without physical disabilities—think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people’s opinion.",/post/694,2017-04-15T19:39:45.000Z,2017-04-15T19:39:45.000Z,694,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,303 11383,v1.0,,"“Don’t assume a person with a disability is easily offended.”                                                                                      —“Disability Etiquette” from Wikipedia.    At the beginning of the research, we asked ourselves, “What is disability?”According to Cerebral Palsy: A Guide for Care by Bachrach Miller, the terms regarding disability are defined as such: “Impairment is the correct term to use to define a deviation from normal, such as not being able to make a muscle move…Disability is the term used to define a restriction in the ability to perform a normal activity of daily living which someone of the same age is able to perform. … Handicap is the term used to describe a child or adult who, because of the disability, is unable to achieve the normal role in society commensurate with his age and socio-cultural milieu…All disabled people are impaired, and all handicapped people are disabled, but a person can be impaired and not necessarily be disabled, and a person can be disabled without being handicapped.”[1] Nowadays, more and more people begin to pay attention to how to address people with disabilities. The use of “people-first language”* in English aims to “avoid the subconscious dehumanization when discussing people with disabilities”[2]. However, as the researches continue and after we interviewed a few people with disabilities, we soon realized that language is not really a problem. Every person we interviewed all said that the word “disability” doesn’t bother them at all and they don’t mind being called “disabled” because it is a fact. (Interview with Raul Krauthausen by @Moriel). So here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies? Another example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don’t think otherwise to begin with. Could it be that some of us—people without physical disabilities—think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people’s opinion.",/post/694,2017-04-15T19:39:21.000Z,2017-04-15T19:39:21.000Z,694,3323,AnnotatorStore::TextAnnotation,,,,,,,,,661,1829 8746,v1.0,,"in Greece, many solidarity groups the last years have been cooking on the street for homeless or refugees. Especially the previous year, when thousands of refugees have crossed greece to move on other european countries, solidarity groups in islands, Eidomeni (on the borders with Makedonia) and city centers have cooked for them, or helped them cooking by themeselves. Nowadays, after borders close-down, the refugees remained in camps try also to enrich their poor meals by cooking with self-designed apparatu",/post/19759,2017-04-15T19:38:27.000Z,2017-04-15T19:38:27.000Z,19759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1150 7853,v1.0,,"in Greece, many solidarity groups the last years have been cooking on the street for homeless or refugees. Especially the previous year, when thousands of refugees have crossed greece to move on other european countries, solidarity groups in islands, Eidomeni (on the borders with Makedonia) and city centers have cooked for them, or helped them cooking by themeselves. Nowadays, after borders close-down, the refugees remained in camps try also to enrich their poor meals by cooking with self-designed apparatu",/post/19759,2017-04-15T19:38:21.000Z,2017-04-15T19:38:21.000Z,19759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,956 9756,v1.0,,"in Greece, many solidarity groups the last years have been cooking on the street for homeless or refugees. Especially the previous year, when thousands of refugees have crossed greece to move on other european countries, solidarity groups in islands, Eidomeni (on the borders with Makedonia) and city centers have cooked for them, or helped them cooking by themeselves. Nowadays, after borders close-down, the refugees remained in camps try also to enrich their poor meals by cooking with self-designed apparatu",/post/19759,2017-04-15T19:38:16.000Z,2017-04-15T19:38:16.000Z,19759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1395 6020,v1.0,,"in Greece, many solidarity groups the last years have been cooking on the street for homeless or refugees. Especially the previous year, when thousands of refugees have crossed greece to move on other european countries, solidarity groups in islands, Eidomeni (on the borders with Makedonia) and city centers have cooked for them, or helped them cooking by themeselves. Nowadays, after borders close-down, the refugees remained in camps try also to enrich their poor meals by cooking with self-designed apparatu",/post/19759,2017-04-15T19:38:10.000Z,2017-04-15T19:38:10.000Z,19759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,412 6317,v1.0,,"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco where people gather in parks in the evenings and bring their tagine out to cook and mingle while enjoying the cool breeze from the Atlas mountains..",/post/15186,2017-04-15T19:38:02.000Z,2017-04-15T19:38:02.000Z,15186,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,450 6316,v1.0,,"Hey @Noemi, this is just something cultural that people have always been doing in Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is not allowed to cook in public parks any more even though they use a traditional portable clay pot for coal/making fire and there is no hasard in cooking open air in such way... When people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available",/post/18382,2017-04-15T19:37:57.000Z,2017-04-15T19:37:57.000Z,18382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,450 6019,v1.0,,"Hey @Noemi, this is just something cultural that people have always been doing in Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is not allowed to cook in public parks any more even though they use a traditional portable clay pot for coal/making fire and there is no hasard in cooking open air in such way... When people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.",/post/18382,2017-04-15T19:37:48.000Z,2017-04-15T19:37:48.000Z,18382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,412 9755,v1.0,,"Hey @Noemi, this is just something cultural that people have always been doing in Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is not allowed to cook in public parks any more even though they use a traditional portable clay pot for coal/making fire and there is no hasard in cooking open air in such way... When people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.",/post/18382,2017-04-15T19:37:41.000Z,2017-04-15T19:37:41.000Z,18382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1395 8293,v1.0,,"Hey @Noemi, this is just something cultural that people have always been doing in Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is not allowed to cook in public parks any more even though they use a traditional portable clay pot for coal/making fire and there is no hasard in cooking open air in such way... When people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.",/post/18382,2017-04-15T19:37:37.000Z,2017-04-15T19:37:37.000Z,18382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1074 5698,v1.0,,"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco where people gather in parks in the evenings and bring their tagine out to cook and mingle while enjoying the cool breeze from the Atlas mountains...",/post/15186,2017-04-15T19:37:22.000Z,2017-04-15T19:37:22.000Z,15186,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,357 6018,v1.0,,"their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter.",/post/506,2017-04-15T19:36:49.000Z,2017-04-15T19:36:49.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,412 6017,v1.0,,"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco where people gather in parks in the evenings and bring their tagine out to cook and mingle while enjoying the cool breeze from the Atlas mountains...",/post/15186,2017-04-15T19:36:39.000Z,2017-04-15T19:36:39.000Z,15186,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,412 10855,v1.0,,"It finally was the comment of a fellow student, which led us to modify our topic to what it is about now. She told us about an interview her group conducted with three Syrian refugees. During their conversation the interviewees mentioned the huge summer barbecues they always would have had back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. Having been asked if they are organising similar activities here in summertime, they denied. They thought that in Berlin it was forbidden to have a barbecue anywhere outside and did not want to act against the law seen their uncertain statuses. Still they miss them. It was this story which made us change the question to: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?”",/post/506,2017-04-15T19:36:24.000Z,2017-04-15T19:36:24.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1660 7402,v1.0,,"Reviewing our notes we got to understand, that for the people we had talked to “feeling at home” in the context of food culture was a lot about the interactive customs and traditions which they had been surrounded by most of their lives. The Syrian guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. He told us, that this maybe does not happen in bigger towns but in villages as in smaller or medium-sized towns it does.",/post/506,2017-04-15T19:35:59.000Z,2017-04-15T19:35:59.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,832 6272,v1.0,,"Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews?",/post/506,2017-04-15T19:35:46.000Z,2017-04-15T19:35:46.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,447 6305,v1.0,,"Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews?",/post/506,2017-04-15T19:35:40.000Z,2017-04-15T19:35:40.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,449 11573,v1.0,,"Both the Syrian guy and the Korean girl are still cooking dishes they know from back home, even though it never tastes as good as it does when their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter.",/post/506,2017-04-15T19:35:25.000Z,2017-04-15T19:35:25.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1873 8059,v1.0,,"In terms of food culture we found out that it is mostly about eating as an occasion. It’s about the taste, but even more about the surrounding atmosphere. The Syrian guy once got invited to the home of a Syrian family also living in Berlin for dinner. The food was “yummy” and “It tasted, just like it does when my mom cooks.”, but what he enjoyed even more were the conversations, the way things were handled around the table. The two little boys of the family were fighting over the remote control just like he and his siblings used to do back home. There was a lot of fooling around which not just he but everyone enjoyed.",/post/506,2017-04-15T19:35:18.000Z,2017-04-15T19:35:18.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1021 7464,v1.0,,"The title picture shows the ""PopUpGrill"" (http://journal.aetherapparel.com/2014/04/03/pop-up-grill/). A great project by Jonas Rylander which we find very inspiring for our design challenge you can read about in the following post. What are the expectations about the use of public spaces when it comes to cooking on the street? Even tough I already put up a short résumé of our research phase here, now follows the detailed version to allow an even better understanding for everyone interested. Also we would like to share the other surprising insights we have gained so far. Maybe they are helpful to one or the other and maybe some of you would like to contribute. What are your thoughts on and what is your interpretation of all this? We would be very thankful for any comments! To first introduce us: We are a group of 4 university students from Berlin, three product designers and one socio economic communication designer and call ourselves “A Taste of Home”. How we came up with the name and the following design question, I will tell below: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” Two month ago we went into the field asking ourselves “How can food preparation contribute to make people on the move feel at home and include other people living in this “foreign” country?” Amongst others we ended up talking to one 24 year-old guy from Syria and one girl from Korea about the same age. One had to flee home and the other moved for love. Both of them are living in a caring environment. One in a shared flat with wonderful people (“locals”) who are all very closed to each other and the other together with her boyfriend who originally is from Germany. After having found out about this we dropped the second half of our starting question “[…] and include other people living in this “foreign” country?” , because we did not see this need anymore. They are already sharing their everyday life with “locals”, therefore also cooking with them. At least in this context one could say, they are well integrated. This left us with “How can food preparation contribute to make people on the move feel at home?” In terms of food culture we found out that it is mostly about eating as an occasion. It’s about the taste, but even more about the surrounding atmosphere. The Syrian guy once got invited to the home of a Syrian family also living in Berlin for dinner. The food was “yummy” and “It tasted, just like it does when my mom cooks.”, but what he enjoyed even more were the conversations, the way things were handled around the table. The two little boys of the family were fighting over the remote control just like he and his siblings used to do back home. There was a lot of fooling around which not just he but everyone enjoyed. Both the Syrian guy and the Korean girl are still cooking dishes they know from back home, even though it never tastes as good as it does when their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter. Before going on and explaining how we reshaped our design question with this knowledge in mind, I would like to share one more surprising insight we gained through the two interviews. Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews? To go on with the process of our research I would first like to recall the reshaped design question: “How can food preparation contribute to make people on the move feel at home?” It still seemed like the question was to broad to be solved in one design project. This is why we changed the target group “people on the move” to “young migrants” (20-30 years of age). We felt that the latter was more suitable for coming up with a specific design and the people we had interviewed both fit in this category. We then went back to synthesising the interviews once more and found that they were totally worth a second look. There was this whole topic of interactive food customs and traditions we yet had not paid enough attention to. Reviewing our notes we got to understand, that for the people we had talked to “feeling at home” in the context of food culture was a lot about the interactive customs and traditions which they had been surrounded by most of their lives. The Syrian guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. He told us, that this maybe does not happen in bigger towns but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends. They wanted to have some good Korean food, chat and meet new people. It turned out to be a disappointment. It was too expensive – there was even an entrance fee – and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. Considering these stories it made sense to rephrase or specify our question to: “How can we enable young migrants to integrate interactive food customs / traditions they like and bring from their cultures of origin into Berlin’s community life?” Furthermore it was then that we came up with our group name “A Taste of Home”. It finally was the comment of a fellow student, which led us to modify our topic to what it is about now. She told us about an interview her group conducted with three Syrian refugees. During their conversation the interviewees mentioned the huge summer barbecues they always would have had back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. Having been asked if they are organising similar activities here in summertime, they denied. They thought that in Berlin it was forbidden to have a barbecue anywhere outside and did not want to act against the law seen their uncertain statuses. Still they miss them. It was this story which made us change the question to: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” This question has to be considered on different levels. The higher-level question is: “How to harmonize the expectations about how to use public spaces?” What do “newcomers”, what do “locals”, what does everyone using those places want and how can the once being mutually exclusive to each other being handled? The second level is the topic of cooking on the street. Where, how and in which contexts is cooking in public spaces wanted? And last but not least the design challenge is about getting to know the legal frame and making it graspable for everyone. All this is related to the fact, that there are a lot of refugees staying in camps where they do not have any opportunity to cook at all or even if they receive “food money” instead of catering, they only have access to a shared kitchen. Another guy from Syria we cooked with lives in such a place. He told us, that the huge number of people who are sharing the kitchen there is often keeping him away from cooking. Though some of his friends who are living in another camp without cooking facilities sometimes join him for cooking. How can we enable them to make cooking a regular part of their lives again?",/post/506,2017-04-15T19:34:47.000Z,2017-04-15T19:34:47.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,853 7438,v1.0,,"The title picture shows the ""PopUpGrill"" (http://journal.aetherapparel.com/2014/04/03/pop-up-grill/). A great project by Jonas Rylander which we find very inspiring for our design challenge you can read about in the following post. What are the expectations about the use of public spaces when it comes to cooking on the street? Even tough I already put up a short résumé of our research phase here, now follows the detailed version to allow an even better understanding for everyone interested. Also we would like to share the other surprising insights we have gained so far. Maybe they are helpful to one or the other and maybe some of you would like to contribute. What are your thoughts on and what is your interpretation of all this? We would be very thankful for any comments! To first introduce us: We are a group of 4 university students from Berlin, three product designers and one socio economic communication designer and call ourselves “A Taste of Home”. How we came up with the name and the following design question, I will tell below: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” Two month ago we went into the field asking ourselves “How can food preparation contribute to make people on the move feel at home and include other people living in this “foreign” country?” Amongst others we ended up talking to one 24 year-old guy from Syria and one girl from Korea about the same age. One had to flee home and the other moved for love. Both of them are living in a caring environment. One in a shared flat with wonderful people (“locals”) who are all very closed to each other and the other together with her boyfriend who originally is from Germany. After having found out about this we dropped the second half of our starting question “[…] and include other people living in this “foreign” country?” , because we did not see this need anymore. They are already sharing their everyday life with “locals”, therefore also cooking with them. At least in this context one could say, they are well integrated. This left us with “How can food preparation contribute to make people on the move feel at home?” In terms of food culture we found out that it is mostly about eating as an occasion. It’s about the taste, but even more about the surrounding atmosphere. The Syrian guy once got invited to the home of a Syrian family also living in Berlin for dinner. The food was “yummy” and “It tasted, just like it does when my mom cooks.”, but what he enjoyed even more were the conversations, the way things were handled around the table. The two little boys of the family were fighting over the remote control just like he and his siblings used to do back home. There was a lot of fooling around which not just he but everyone enjoyed. Both the Syrian guy and the Korean girl are still cooking dishes they know from back home, even though it never tastes as good as it does when their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter. Before going on and explaining how we reshaped our design question with this knowledge in mind, I would like to share one more surprising insight we gained through the two interviews. Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews? To go on with the process of our research I would first like to recall the reshaped design question: “How can food preparation contribute to make people on the move feel at home?” It still seemed like the question was to broad to be solved in one design project. This is why we changed the target group “people on the move” to “young migrants” (20-30 years of age). We felt that the latter was more suitable for coming up with a specific design and the people we had interviewed both fit in this category. We then went back to synthesising the interviews once more and found that they were totally worth a second look. There was this whole topic of interactive food customs and traditions we yet had not paid enough attention to. Reviewing our notes we got to understand, that for the people we had talked to “feeling at home” in the context of food culture was a lot about the interactive customs and traditions which they had been surrounded by most of their lives. The Syrian guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. He told us, that this maybe does not happen in bigger towns but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends. They wanted to have some good Korean food, chat and meet new people. It turned out to be a disappointment. It was too expensive – there was even an entrance fee – and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. Considering these stories it made sense to rephrase or specify our question to: “How can we enable young migrants to integrate interactive food customs / traditions they like and bring from their cultures of origin into Berlin’s community life?” Furthermore it was then that we came up with our group name “A Taste of Home”. It finally was the comment of a fellow student, which led us to modify our topic to what it is about now. She told us about an interview her group conducted with three Syrian refugees. During their conversation the interviewees mentioned the huge summer barbecues they always would have had back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. Having been asked if they are organising similar activities here in summertime, they denied. They thought that in Berlin it was forbidden to have a barbecue anywhere outside and did not want to act against the law seen their uncertain statuses. Still they miss them. It was this story which made us change the question to: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” This question has to be considered on different levels. The higher-level question is: “How to harmonize the expectations about how to use public spaces?” What do “newcomers”, what do “locals”, what does everyone using those places want and how can the once being mutually exclusive to each other being handled? The second level is the topic of cooking on the street. Where, how and in which contexts is cooking in public spaces wanted? And last but not least the design challenge is about getting to know the legal frame and making it graspable for everyone. All this is related to the fact, that there are a lot of refugees staying in camps where they do not have any opportunity to cook at all or even if they receive “food money” instead of catering, they only have access to a shared kitchen. Another guy from Syria we cooked with lives in such a place. He told us, that the huge number of people who are sharing the kitchen there is often keeping him away from cooking. Though some of his friends who are living in another camp without cooking facilities sometimes join him for cooking. How can we enable them to make cooking a regular part of their lives again?",/post/506,2017-04-15T19:34:39.000Z,2017-04-15T19:34:39.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,852 8292,v1.0,,"The title picture shows the ""PopUpGrill"" (http://journal.aetherapparel.com/2014/04/03/pop-up-grill/). A great project by Jonas Rylander which we find very inspiring for our design challenge you can read about in the following post. What are the expectations about the use of public spaces when it comes to cooking on the street? Even tough I already put up a short résumé of our research phase here, now follows the detailed version to allow an even better understanding for everyone interested. Also we would like to share the other surprising insights we have gained so far. Maybe they are helpful to one or the other and maybe some of you would like to contribute. What are your thoughts on and what is your interpretation of all this? We would be very thankful for any comments! To first introduce us: We are a group of 4 university students from Berlin, three product designers and one socio economic communication designer and call ourselves “A Taste of Home”. How we came up with the name and the following design question, I will tell below: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” Two month ago we went into the field asking ourselves “How can food preparation contribute to make people on the move feel at home and include other people living in this “foreign” country?” Amongst others we ended up talking to one 24 year-old guy from Syria and one girl from Korea about the same age. One had to flee home and the other moved for love. Both of them are living in a caring environment. One in a shared flat with wonderful people (“locals”) who are all very closed to each other and the other together with her boyfriend who originally is from Germany. After having found out about this we dropped the second half of our starting question “[…] and include other people living in this “foreign” country?” , because we did not see this need anymore. They are already sharing their everyday life with “locals”, therefore also cooking with them. At least in this context one could say, they are well integrated. This left us with “How can food preparation contribute to make people on the move feel at home?” In terms of food culture we found out that it is mostly about eating as an occasion. It’s about the taste, but even more about the surrounding atmosphere. The Syrian guy once got invited to the home of a Syrian family also living in Berlin for dinner. The food was “yummy” and “It tasted, just like it does when my mom cooks.”, but what he enjoyed even more were the conversations, the way things were handled around the table. The two little boys of the family were fighting over the remote control just like he and his siblings used to do back home. There was a lot of fooling around which not just he but everyone enjoyed. Both the Syrian guy and the Korean girl are still cooking dishes they know from back home, even though it never tastes as good as it does when their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter. Before going on and explaining how we reshaped our design question with this knowledge in mind, I would like to share one more surprising insight we gained through the two interviews. Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews? To go on with the process of our research I would first like to recall the reshaped design question: “How can food preparation contribute to make people on the move feel at home?” It still seemed like the question was to broad to be solved in one design project. This is why we changed the target group “people on the move” to “young migrants” (20-30 years of age). We felt that the latter was more suitable for coming up with a specific design and the people we had interviewed both fit in this category. We then went back to synthesising the interviews once more and found that they were totally worth a second look. There was this whole topic of interactive food customs and traditions we yet had not paid enough attention to. Reviewing our notes we got to understand, that for the people we had talked to “feeling at home” in the context of food culture was a lot about the interactive customs and traditions which they had been surrounded by most of their lives. The Syrian guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. He told us, that this maybe does not happen in bigger towns but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends. They wanted to have some good Korean food, chat and meet new people. It turned out to be a disappointment. It was too expensive – there was even an entrance fee – and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. Considering these stories it made sense to rephrase or specify our question to: “How can we enable young migrants to integrate interactive food customs / traditions they like and bring from their cultures of origin into Berlin’s community life?” Furthermore it was then that we came up with our group name “A Taste of Home”. It finally was the comment of a fellow student, which led us to modify our topic to what it is about now. She told us about an interview her group conducted with three Syrian refugees. During their conversation the interviewees mentioned the huge summer barbecues they always would have had back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. Having been asked if they are organising similar activities here in summertime, they denied. They thought that in Berlin it was forbidden to have a barbecue anywhere outside and did not want to act against the law seen their uncertain statuses. Still they miss them. It was this story which made us change the question to: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” This question has to be considered on different levels. The higher-level question is: “How to harmonize the expectations about how to use public spaces?” What do “newcomers”, what do “locals”, what does everyone using those places want and how can the once being mutually exclusive to each other being handled? The second level is the topic of cooking on the street. Where, how and in which contexts is cooking in public spaces wanted? And last but not least the design challenge is about getting to know the legal frame and making it graspable for everyone. All this is related to the fact, that there are a lot of refugees staying in camps where they do not have any opportunity to cook at all or even if they receive “food money” instead of catering, they only have access to a shared kitchen. Another guy from Syria we cooked with lives in such a place. He told us, that the huge number of people who are sharing the kitchen there is often keeping him away from cooking. Though some of his friends who are living in another camp without cooking facilities sometimes join him for cooking. How can we enable them to make cooking a regular part of their lives again?",/post/506,2017-04-15T19:34:22.000Z,2017-04-15T19:34:22.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1074 9754,v1.0,,"The title picture shows the ""PopUpGrill"" (http://journal.aetherapparel.com/2014/04/03/pop-up-grill/). A great project by Jonas Rylander which we find very inspiring for our design challenge you can read about in the following post. What are the expectations about the use of public spaces when it comes to cooking on the street? Even tough I already put up a short résumé of our research phase here, now follows the detailed version to allow an even better understanding for everyone interested. Also we would like to share the other surprising insights we have gained so far. Maybe they are helpful to one or the other and maybe some of you would like to contribute. What are your thoughts on and what is your interpretation of all this? We would be very thankful for any comments! To first introduce us: We are a group of 4 university students from Berlin, three product designers and one socio economic communication designer and call ourselves “A Taste of Home”. How we came up with the name and the following design question, I will tell below: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” Two month ago we went into the field asking ourselves “How can food preparation contribute to make people on the move feel at home and include other people living in this “foreign” country?” Amongst others we ended up talking to one 24 year-old guy from Syria and one girl from Korea about the same age. One had to flee home and the other moved for love. Both of them are living in a caring environment. One in a shared flat with wonderful people (“locals”) who are all very closed to each other and the other together with her boyfriend who originally is from Germany. After having found out about this we dropped the second half of our starting question “[…] and include other people living in this “foreign” country?” , because we did not see this need anymore. They are already sharing their everyday life with “locals”, therefore also cooking with them. At least in this context one could say, they are well integrated. This left us with “How can food preparation contribute to make people on the move feel at home?” In terms of food culture we found out that it is mostly about eating as an occasion. It’s about the taste, but even more about the surrounding atmosphere. The Syrian guy once got invited to the home of a Syrian family also living in Berlin for dinner. The food was “yummy” and “It tasted, just like it does when my mom cooks.”, but what he enjoyed even more were the conversations, the way things were handled around the table. The two little boys of the family were fighting over the remote control just like he and his siblings used to do back home. There was a lot of fooling around which not just he but everyone enjoyed. Both the Syrian guy and the Korean girl are still cooking dishes they know from back home, even though it never tastes as good as it does when their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter. Before going on and explaining how we reshaped our design question with this knowledge in mind, I would like to share one more surprising insight we gained through the two interviews. Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews? To go on with the process of our research I would first like to recall the reshaped design question: “How can food preparation contribute to make people on the move feel at home?” It still seemed like the question was to broad to be solved in one design project. This is why we changed the target group “people on the move” to “young migrants” (20-30 years of age). We felt that the latter was more suitable for coming up with a specific design and the people we had interviewed both fit in this category. We then went back to synthesising the interviews once more and found that they were totally worth a second look. There was this whole topic of interactive food customs and traditions we yet had not paid enough attention to. Reviewing our notes we got to understand, that for the people we had talked to “feeling at home” in the context of food culture was a lot about the interactive customs and traditions which they had been surrounded by most of their lives. The Syrian guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. He told us, that this maybe does not happen in bigger towns but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends. They wanted to have some good Korean food, chat and meet new people. It turned out to be a disappointment. It was too expensive – there was even an entrance fee – and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. Considering these stories it made sense to rephrase or specify our question to: “How can we enable young migrants to integrate interactive food customs / traditions they like and bring from their cultures of origin into Berlin’s community life?” Furthermore it was then that we came up with our group name “A Taste of Home”. It finally was the comment of a fellow student, which led us to modify our topic to what it is about now. She told us about an interview her group conducted with three Syrian refugees. During their conversation the interviewees mentioned the huge summer barbecues they always would have had back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. Having been asked if they are organising similar activities here in summertime, they denied. They thought that in Berlin it was forbidden to have a barbecue anywhere outside and did not want to act against the law seen their uncertain statuses. Still they miss them. It was this story which made us change the question to: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” This question has to be considered on different levels. The higher-level question is: “How to harmonize the expectations about how to use public spaces?” What do “newcomers”, what do “locals”, what does everyone using those places want and how can the once being mutually exclusive to each other being handled? The second level is the topic of cooking on the street. Where, how and in which contexts is cooking in public spaces wanted? And last but not least the design challenge is about getting to know the legal frame and making it graspable for everyone. All this is related to the fact, that there are a lot of refugees staying in camps where they do not have any opportunity to cook at all or even if they receive “food money” instead of catering, they only have access to a shared kitchen. Another guy from Syria we cooked with lives in such a place. He told us, that the huge number of people who are sharing the kitchen there is often keeping him away from cooking. Though some of his friends who are living in another camp without cooking facilities sometimes join him for cooking. How can we enable them to make cooking a regular part of their lives again?",/post/506,2017-04-15T19:34:14.000Z,2017-04-15T19:34:14.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1395 8745,v1.0,,"The title picture shows the ""PopUpGrill"" (http://journal.aetherapparel.com/2014/04/03/pop-up-grill/). A great project by Jonas Rylander which we find very inspiring for our design challenge you can read about in the following post. What are the expectations about the use of public spaces when it comes to cooking on the street? Even tough I already put up a short résumé of our research phase here, now follows the detailed version to allow an even better understanding for everyone interested. Also we would like to share the other surprising insights we have gained so far. Maybe they are helpful to one or the other and maybe some of you would like to contribute. What are your thoughts on and what is your interpretation of all this? We would be very thankful for any comments! To first introduce us: We are a group of 4 university students from Berlin, three product designers and one socio economic communication designer and call ourselves “A Taste of Home”. How we came up with the name and the following design question, I will tell below: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” Two month ago we went into the field asking ourselves “How can food preparation contribute to make people on the move feel at home and include other people living in this “foreign” country?” Amongst others we ended up talking to one 24 year-old guy from Syria and one girl from Korea about the same age. One had to flee home and the other moved for love. Both of them are living in a caring environment. One in a shared flat with wonderful people (“locals”) who are all very closed to each other and the other together with her boyfriend who originally is from Germany. After having found out about this we dropped the second half of our starting question “[…] and include other people living in this “foreign” country?” , because we did not see this need anymore. They are already sharing their everyday life with “locals”, therefore also cooking with them. At least in this context one could say, they are well integrated. This left us with “How can food preparation contribute to make people on the move feel at home?” In terms of food culture we found out that it is mostly about eating as an occasion. It’s about the taste, but even more about the surrounding atmosphere. The Syrian guy once got invited to the home of a Syrian family also living in Berlin for dinner. The food was “yummy” and “It tasted, just like it does when my mom cooks.”, but what he enjoyed even more were the conversations, the way things were handled around the table. The two little boys of the family were fighting over the remote control just like he and his siblings used to do back home. There was a lot of fooling around which not just he but everyone enjoyed. Both the Syrian guy and the Korean girl are still cooking dishes they know from back home, even though it never tastes as good as it does when their moms cook. They both said that they left home to early to develop great cooking skills and learn all the tricks. In Korea traditionally a woman would only start cooking by herself after her marriage. Nowadays a lot of young people are leaving the country, respectively their parents’ homes, not being married and therefore without the entire knowledge. But as said before, they are both still trying and sometimes calling their mothers to ask for help. The Korean girl once even tried to sign up for a traditional Korean cooking class to improve her skills but unfortunately it was immediately booked up. Since then she has been hoping for a new opportunity. It seems that missing the food one grew up with is a good motivation to become active. Good food triggers people to do something. It is important to put the emphasis on the word something, because both of the interviewees recognized that it is also the missing time, which keeps them from cooking all the recipes they used to love back home. Some just take too much time in preparation: “Maybe 4 to 5 hours.”, the Syrian guy told us. Having to divide their time between work, German classes, socialising and cooking most of the days they are not willing to spent these many hours on the latter. Before going on and explaining how we reshaped our design question with this knowledge in mind, I would like to share one more surprising insight we gained through the two interviews. Talking about food and well being the Syrian guy told us that when he had just arrived to Germany, he did not like to eat outside. It disgusted him. Not being able to see the food preparation made him feel uncomfortable. We tried to find out the reason for this, whether it was because he eats Halal, which he does or it was out of cleanliness concerns, but yet could not manage to do so. We still have to ask again. What happened here shows one of the difficulties we had conducting the interviews. The question triggered some awkwardness. This we felt, but why we were not able to tell. Was it because the subject was sensitive to the respondent and his eating customs? Was it because he did want to offend us since we were talking about German food? How can we overcome such awkwardness whenever it occurs in future interviews? To go on with the process of our research I would first like to recall the reshaped design question: “How can food preparation contribute to make people on the move feel at home?” It still seemed like the question was to broad to be solved in one design project. This is why we changed the target group “people on the move” to “young migrants” (20-30 years of age). We felt that the latter was more suitable for coming up with a specific design and the people we had interviewed both fit in this category. We then went back to synthesising the interviews once more and found that they were totally worth a second look. There was this whole topic of interactive food customs and traditions we yet had not paid enough attention to. Reviewing our notes we got to understand, that for the people we had talked to “feeling at home” in the context of food culture was a lot about the interactive customs and traditions which they had been surrounded by most of their lives. The Syrian guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. He told us, that this maybe does not happen in bigger towns but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends. They wanted to have some good Korean food, chat and meet new people. It turned out to be a disappointment. It was too expensive – there was even an entrance fee – and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. Considering these stories it made sense to rephrase or specify our question to: “How can we enable young migrants to integrate interactive food customs / traditions they like and bring from their cultures of origin into Berlin’s community life?” Furthermore it was then that we came up with our group name “A Taste of Home”. It finally was the comment of a fellow student, which led us to modify our topic to what it is about now. She told us about an interview her group conducted with three Syrian refugees. During their conversation the interviewees mentioned the huge summer barbecues they always would have had back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. Having been asked if they are organising similar activities here in summertime, they denied. They thought that in Berlin it was forbidden to have a barbecue anywhere outside and did not want to act against the law seen their uncertain statuses. Still they miss them. It was this story which made us change the question to: “How can we help newcomers to use public spaces to their full extend because they do not know which activities are legal in these spaces and do not want to act against the law?” This question has to be considered on different levels. The higher-level question is: “How to harmonize the expectations about how to use public spaces?” What do “newcomers”, what do “locals”, what does everyone using those places want and how can the once being mutually exclusive to each other being handled? The second level is the topic of cooking on the street. Where, how and in which contexts is cooking in public spaces wanted? And last but not least the design challenge is about getting to know the legal frame and making it graspable for everyone. All this is related to the fact, that there are a lot of refugees staying in camps where they do not have any opportunity to cook at all or even if they receive “food money” instead of catering, they only have access to a shared kitchen. Another guy from Syria we cooked with lives in such a place. He told us, that the huge number of people who are sharing the kitchen there is often keeping him away from cooking. Though some of his friends who are living in another camp without cooking facilities sometimes join him for cooking. How can we enable them to make cooking a regular part of their lives again?",/post/506,2017-04-15T19:34:04.000Z,2017-04-15T19:34:04.000Z,506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,473,1150 5984,v1.0,,"Hello Rozina,  really nice to read about your approach to redesign communities and to get more involvement on a local level. Great that such initiative gets the respons of the local autority. Would you be interested to share your story at the Brussels Open&Change Workshop, it would be nice to hear your story and share it with other people to craft new durable solutions out of it. You can find the mapping of all contacted persons that i did at the moment here: https://metamaps.cc/maps/2175 , and you can contact me through mail if you want to discuss further. event page: https://www.facebook.com/events/280924708934187/ Kindly regards",/post/15721,2017-04-15T19:33:22.000Z,2017-04-15T19:33:22.000Z,15721,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,396 5983,v1.0,,"Hi Rezina, Please feel free to reach out if you need me. I can also link you in conversation to my Dad who has a much more detailed and in-depth knowledge of the whole system here in the UK.",/post/12578,2017-04-15T19:33:10.000Z,2017-04-15T19:33:10.000Z,12578,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,396 5982,v1.0,,"I hope you don't mind if I reach out to you, with your experience and knowledge of the BIDs in your area in the future. Thanks again!  Rozina",/post/11534,2017-04-15T19:33:03.000Z,2017-04-15T19:33:03.000Z,11534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,396 4843,v1.0,,"I have linked to many of the UK BIDs and they have been incredibly supportive. Also, recently in Edinburgh there was the World Towns Leadership Summit, in which one of the organizers was BIDs Scotland along with IDA of Northern America. It was incredible to hear the stories of what some of the partnerships had indeed achieved in their communities. From Capetown to Copenhagen, it was quite an eye opener.  I hope you don't mind if I reach out to you, with your experience and knowledge of the BIDs in your area in the future.",/post/11534,2017-04-15T19:32:52.000Z,2017-04-15T19:32:52.000Z,11534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,96 9492,v1.0,,"Thanks for your insight and your positive comments.  Yes, I agree that it's best to run the BID projects with the BID task force community rather than soley relying on the politicians to lead. Although, at the moment it's still quite challenging for politicians here in Belgium to change the cultural mindset of opening up to public/private/citizen partnerships. Hence why some initiatives have been at grass roots level with the community itself. I sincerely hope this will change over time.",/post/11534,2017-04-15T19:32:46.000Z,2017-04-15T19:32:46.000Z,11534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1323 9507,v1.0,,"Thanks for your insight and your positive comments.  Yes, I agree that it's best to run the BID projects with the BID task force community rather than soley relying on the politicians to lead. Although, at the moment it's still quite challenging for politicians here in Belgium to change the cultural mindset of opening up to public/private/citizen partnerships. Hence why some initiatives have been at grass roots level with the community itself. I sincerely hope this will change over time.",/post/11534,2017-04-15T19:32:42.000Z,2017-04-15T19:32:42.000Z,11534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1327 9506,v1.0,,"It is much better for the BID groups to be politically autonomous and to save the time and energy of local politicians and civil servants. This way you get to use that time and energy on BID directed outcomes, rather than them spending it all in discussion and meetings. It really does help get things moving!",/post/7852,2017-04-15T19:32:29.000Z,2017-04-15T19:32:29.000Z,7852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1327 9014,v1.0,,"From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.",/post/7852,2017-04-15T19:32:20.000Z,2017-04-15T19:32:20.000Z,7852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1228 5719,v1.0,,"From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.",/post/7852,2017-04-15T19:32:09.000Z,2017-04-15T19:32:09.000Z,7852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,361 11528,v1.0,,"From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.",/post/7852,2017-04-15T19:31:58.000Z,2017-04-15T19:31:58.000Z,7852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1863 4842,v1.0,,"I have much experiene of the BID structure myself as my home town of Bedford in the UK was one of the first to adopt the structure and my father was the Director of the Board for many years before standing down last year. From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax. It is much better for the BID groups to be politically autonomous and to save the time and energy of local politicians and civil servants. This way you get to use that time and energy on BID directed outcomes, rather than them spending it all in discussion and meetings. It really does help get things moving! I wish you all the best for you other initiatives too. Your aims are very laudable.",/post/7852,2017-04-15T19:31:46.000Z,2017-04-15T19:31:46.000Z,7852,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,96 4841,v1.0,,"I'm an Interior Architect, Business Woman, Mother and active citizen. I have been running my own Design business for the past 9 years ever since I have left the corporate hospitality world. I started with my company Design2Style in partnership with my Husband, designing residential & interiors and developing brand design for companies. Over time, my interest and knowledge of design thinking and strategy increased, gaining experience in projects and from attending various conferences on the subject, which resulted in moving forward, evolving personally and professionally. I launched Belgium Design Council, which applies design thinking on the project's infrastructural level. This allowed me to move from aesthetic design to applying design thinking processes in ‘designing’ communities. We're working on several projects at the moment. I've got increasingly interested in Business Improvement District concept over the last couple of years, which existed since the 1960’s/70’s in the Northern America, and concentrated on socio-economical regeneration for business and communities as a whole. The combination of a geographical zone including businesses, community, people and the collaboration of those elements creating successful public, private and citizen partnerships, in order to enhance people's lives and environments. Creating sustainable socio/economic regeneration. BIDs and similar partnerships have been launched around the world - in Sweden, Scotland, Germany, England - and one of them is our non-profit organization of BIDs Belgium. We're also planning to launch BID EU in the near future, in order to create a platform for sharing best practices with each other and filter these down to ground level. I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts. We have also been developing and presenting the general information and interactive sessions for the BIDs in Brussels. We invited architects, developers, retailers, freelancers and members of the communities and explained the concept, but also ask them for feedback. There has been positive feedback and some are really keen on implementing, but they need guidance - and we want to prepare and adapt the framework which has been shared by other BID countries, which would be useful and simplify the launching of BIDs across Belgium. The model works this way: by defining the geographical zone, having a collaborative approach to working together as a community, whilst addressing the issue that is of priority and defining the projects for that area. BIDs can be supported by a levy that business owners, citizens, and the municipality contributes to. Crowd-funding has also been used to support local projects. Some cities have it already in Belgium, albeit these are a slightly different models - Mechelen and Ghent for example. The BID is a non-profit organization, with a task force representation with an open source, collaborative and transparent approach and it needs to be inclusive of the Open Care element. I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend.  Our son will be changing to a further specialised school closer to our home now. I have spoken with the principal and he is very interested some of the creative inclusive projects I have suggested, but the school has no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work. My Husband and I are also heavily involved in another nonprofit organization in Brussels and volunteer at a local football club, with over 300 youth from various backgrounds. We also have a goal of making this youth more inclusive and open - both for children with special needs, but also for refugees, who get refused from other football clubs around the city for example. We will introduce the first refugee children into the club for the coming season, which we are very proud of, as we see this as part of the wider community work we are involved in. It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring. This is why we decided to be active citizens, to get involved in various initiatives we are working on, pulling in our network and knowledge base - and turn things around by, inspiring, collaborating and sharing information, including enlisting more volunteers from the football club to the BIDs projects, showing that non-hierarchical organisations welcome everyone. It's important to talk, share, bring people together, because it's part of the process of change - and this is where OpenCare comes as a partner. Do you design better communities yourself? Do you have experience in different projects that solve problems of local groups by mobilizing them and the resources available at hand? Or maybe you know of an interesting project that feeds into this challenge? Share your story by leaving a comment, or by submitting your own post here.",/post/716,2017-04-15T19:31:38.000Z,2017-04-15T19:31:38.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,96 4549,v1.0,,"This is why we decided to be active citizens, to get involved in various initiatives we are working on, pulling in our network and knowledge base - and turn things around by, inspiring, collaborating and sharing information, including enlisting more volunteers from the football club to the BIDs projects, showing that non-hierarchical organisations welcome everyone. It's important to talk, share, bring people together, because it's part of the process of change - and this is where OpenCare comes as a partner.",/post/716,2017-04-15T19:31:22.000Z,2017-04-15T19:31:22.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,17 9491,v1.0,,"It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.",/post/716,2017-04-15T19:31:14.000Z,2017-04-15T19:31:14.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1323 9178,v1.0,,"It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.",/post/716,2017-04-15T19:30:54.000Z,2017-04-15T19:30:54.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1262 11527,v1.0,,"It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.",/post/716,2017-04-15T19:30:48.000Z,2017-04-15T19:30:48.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1863 5473,v1.0,,"It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.",/post/716,2017-04-15T19:30:36.000Z,2017-04-15T19:30:36.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,315 9820,v1.0,,"My Husband and I are also heavily involved in another nonprofit organization in Brussels and volunteer at a local football club, with over 300 youth from various backgrounds. We also have a goal of making this youth more inclusive and open - both for children with special needs, but also for refugees, who get refused from other football clubs around the city for example. We will introduce the first refugee children into the club for the coming season, which we are very proud of, as we see this as part of the wider community work we are involved in.",/post/716,2017-04-15T19:30:30.000Z,2017-04-15T19:30:30.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1424 10624,v1.0,,"My Husband and I are also heavily involved in another nonprofit organization in Brussels and volunteer at a local football club, with over 300 youth from various backgrounds. We also have a goal of making this youth more inclusive and open - both for children with special needs, but also for refugees, who get refused from other football clubs around the city for example. We will introduce the first refugee children into the club for the coming season, which we are very proud of, as we see this as part of the wider community work we are involved in.",/post/716,2017-04-15T19:30:22.000Z,2017-04-15T19:30:22.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1612 5427,v1.0,,"I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend.  Our son will be changing to a further specialised school closer to our home now. I have spoken with the principal and he is very interested some of the creative inclusive projects I have suggested, but the school has no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.",/post/716,2017-04-15T19:30:13.000Z,2017-04-15T19:30:13.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,308 10617,v1.0,,"I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend.  Our son will be changing to a further specialised school closer to our home now. I have spoken with the principal and he is very interested some of the creative inclusive projects I have suggested, but the school has no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.",/post/716,2017-04-15T19:30:07.000Z,2017-04-15T19:30:07.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1605 6946,v1.0,,"I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend.  Our son will be changing to a further specialised school closer to our home now. I have spoken with the principal and he is very interested some of the creative inclusive projects I have suggested, but the school has no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.",/post/716,2017-04-15T19:30:01.000Z,2017-04-15T19:30:01.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,724 5529,v1.0,,"We have also been developing and presenting the general information and interactive sessions for the BIDs in Brussels. We invited architects, developers, retailers, freelancers and members of the communities and explained the concept, but also ask them for feedback. There has been positive feedback and some are really keen on implementing, but they need guidance - and we want to prepare and adapt the framework which has been shared by other BID countries, which would be useful and simplify the launching of BIDs across Belgium. The model works this way: by defining the geographical zone, having a collaborative approach to working together as a community, whilst addressing the issue that is of priority and defining the projects for that area. BIDs can be supported by a levy that business owners, citizens, and the municipality contributes to. Crowd-funding has also been used to support local projects. Some cities have it already in Belgium, albeit these are a slightly different models - Mechelen and Ghent for example. The BID is a non-profit organization, with a task force representation with an open source, collaborative and transparent approach and it needs to be inclusive of the Open Care element.",/post/716,2017-04-15T19:29:48.000Z,2017-04-15T19:29:48.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,326 11572,v1.0,,". I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.",/post/716,2017-04-15T19:29:05.000Z,2017-04-15T19:29:05.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1873 11367,v1.0,,"l. I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.",/post/716,2017-04-15T19:28:59.000Z,2017-04-15T19:28:59.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1820 7982,v1.0,,"I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.",/post/716,2017-04-15T19:28:45.000Z,2017-04-15T19:28:45.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,987 10817,v1.0,,Creating sustainable socio/economic regeneration.,/post/716,2017-04-15T19:28:30.000Z,2017-04-15T19:28:30.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1648 9762,v1.0,,"We're working on several projects at the moment. I've got increasingly interested in Business Improvement District concept over the last couple of years, which existed since the 1960’s/70’s in the Northern America, and concentrated on socio-economical regeneration for business and communities as a whole. The combination of a geographical zone including businesses, community, people and the collaboration of those elements creating successful public, private and citizen partnerships,",/post/716,2017-04-15T19:28:22.000Z,2017-04-15T19:28:22.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,1396 6513,v1.0,,"I'm an Interior Architect, Business Woman, Mother and active citizen. I have been running my own Design business for the past 9 years ever since I have left the corporate hospitality world. I started with my company Design2Style in partnership with my Husband, designing residential & interiors and developing brand design for companies. Over time, my interest and knowledge of design thinking and strategy increased, gaining experience in projects and from attending various conferences on the subject, which resulted in moving forward, evolving personally and professionally. I launched Belgium Design Council, which applies design thinking on the project's infrastructural level. This allowed me to move from aesthetic design to applying design thinking processes in ‘designing’ communities.",/post/716,2017-04-15T19:28:10.000Z,2017-04-15T19:28:10.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,487 6512,v1.0,,"I'm an Interior Architect, Business Woman, Mother and active citizen. I have been running my own Design business for the past 9 years ever since I have left the corporate hospitality world. I started with my company Design2Style in partnership with my Husband, designing residential & interiors and developing brand design for companies. Over time, my interest and knowledge of design thinking and strategy increased, gaining experience in projects and from attending various conferences on the subject, which resulted in moving forward, evolving personally and professionally. I launched Belgium Design Council, which applies design thinking on the project's infrastructural level. This allowed me to move from aesthetic design to applying design thinking processes in ‘designing’ communities.",/post/716,2017-04-15T19:27:54.000Z,2017-04-15T19:27:54.000Z,716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,683,486 10816,v1.0,,"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the  creating a benefit to the community: here's the story: How Bangladeshi inventors are making eco-friendly air conditioners from plastic bottles What can you make with old plastic bottles? A vase? A flowerpot? … an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they’ve helped people to install these units-- which don’t need electricity to function-- in more than 25,000 households in developing areas of the country. “Most people live in tin huts… in the summer, it’s like being in sauna in the Sahara”",/post/33744,2017-04-15T19:25:19.000Z,2017-04-15T19:25:19.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1648 10815,v1.0,,"I honestly think this is a very interesting and practical idea. The ones involved in this activity didn’t only help those people be more comfortable with the weather conditions from there. You helped the environment too. (Now I’m thinking about the long time that it takes for plastics to biodegrade – such a well-known problem.) You basically killed two birds with one stone. I think this is the kind of initiative we all need to solve the problems around us. So happy for this! Well done! Also, are you planning to extend this project into other countries or regions? Do you have the resources? I’m very curious.",/post/33790,2017-04-15T19:25:05.000Z,2017-04-15T19:25:05.000Z,33790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1648 7091,v1.0,,"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the  creating a benefit to the community: here's the story:",/post/33744,2017-04-15T19:24:50.000Z,2017-04-15T19:24:50.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,758 7090,v1.0,,"I honestly think this is a very interesting and practical idea. The ones involved in this activity didn’t only help those people be more comfortable with the weather conditions from there. You helped the environment too. (Now I’m thinking about the long time that it takes for plastics to biodegrade – such a well-known problem.) You basically killed two birds with one stone. I think this is the kind of initiative we all need to solve the problems around us. So happy for this! Well done! Also, are you planning to extend this project into other countries or regions? Do you have the resources? I’m very curious.",/post/33790,2017-04-15T19:24:37.000Z,2017-04-15T19:24:37.000Z,33790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,758 8744,v1.0,,I've already suggested this as a possible build project to help support people living in refugee shelters in Europe. I hope that we could find a way to implement it during the summer months.,/post/33760,2017-04-15T19:24:17.000Z,2017-04-15T19:24:17.000Z,33760,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1150 8661,v1.0,,I've already suggested this as a possible build project to help support people living in refugee shelters in Europe. I hope that we could find a way to implement it during the summer months.,/post/33760,2017-04-15T19:24:10.000Z,2017-04-15T19:24:10.000Z,33760,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1149 10313,v1.0,,"The beauty of it all is how easy these units are to make. First of all, the raw materials are easy to find: people don’t recycle here, so the streets are littered with bottles. We show people how to make them and then ask them to both do it on their own and to teach others. We also made a how-to pdf that’s up on our website and includes an easy step-by-step process. It’s free and people get immediate results!",/post/33744,2017-04-15T19:23:57.000Z,2017-04-15T19:23:57.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1509 9761,v1.0,,"To distribute the Eco-Coolers, we teamed up with Grameen Intel Social Business Ltd. because they work in a lot of villages in Bangladesh [Editor’s note: Grameen Intel is social business platform that’s a partnership between NGO Grameen and the company Intel]. We sent our teams out to the villages where Grameen Intel works to teach people how to make our Eco-Coolers.",/post/33744,2017-04-15T19:23:37.000Z,2017-04-15T19:23:37.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1396 9613,v1.0,,The Grey group decided to take it on as a pro-bono project. We like to give back -- it’s core to our company. We decided to make and distribute these units for free. We designed the first prototype in March last year and finally finalised it at the end of February this year. That’s just when the weather starts getting hot in Bangladesh.,/post/33744,2017-04-15T19:23:28.000Z,2017-04-15T19:23:28.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1357 7792,v1.0,,"We are a flood-prone nation, so in rural Bangladesh, most people build their homes out of tin, instead of mud. About 70% of Bangladesh's population lives in these homes. But the problem with these tin huts is that they get unbearably hot in the summer, especially in northern and central Bangladesh. I’ve been in these huts. It’s like being in a sauna in the Sahara.",/post/33744,2017-04-15T19:23:08.000Z,2017-04-15T19:23:08.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,943 10488,v1.0,,"What can you make with old plastic bottles? A vase? A flowerpot? … an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they’ve helped people to install these units-- which don’t need electricity to function-- in more than 25,000 households in developing areas of the country. “Most people live in tin huts… in the summer, it’s like being in sauna in the Sahara”",/post/33744,2017-04-15T19:22:46.000Z,2017-04-15T19:22:46.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1557 6486,v1.0,,"What can you make with old plastic bottles? A vase? A flowerpot? … an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they’ve helped people to install these units-- which don’t need electricity to function-- in more than 25,000 households in developing areas of the country. “Most people live in tin huts… in the summer, it’s like being in sauna in the Sahara”",/post/33744,2017-04-15T19:22:28.000Z,2017-04-15T19:22:28.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,485 4618,v1.0,,"What can you make with old plastic bottles? A vase? A flowerpot? … an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they’ve helped people to install these units-- which don’t need electricity to function-- in more than 25,000 households in developing areas of the country. “Most people live in tin huts… in the summer, it’s like being in sauna in the Sahara”",/post/33744,2017-04-15T19:22:17.000Z,2017-04-15T19:22:17.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,34 9888,v1.0,,"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the  creating a benefit to the community: here's the story: How Bangladeshi inventors are making eco-friendly air conditioners from plastic bottles",/post/33744,2017-04-15T19:22:06.000Z,2017-04-15T19:22:06.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1442 9811,v1.0,,"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the  creating a benefit to the community: here's the story:",/post/33744,2017-04-15T19:21:53.000Z,2017-04-15T19:21:53.000Z,33744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6593,1420 10592,v1.0,,"So I suspect the best advice is to hang in there, and keep building. Also, the world is watching now, more than ever. Solidarity has ever new ways of showing its face",/post/15843,2017-04-15T19:02:48.000Z,2017-04-15T19:02:48.000Z,15843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1590 9525,v1.0,,"That feeling of powerlessness in the face of politics is present in many people's minds, no matter where they are in the world or the regime governing them.. Unfortunately it's hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.",/post/15843,2017-04-15T19:02:33.000Z,2017-04-15T19:02:33.000Z,15843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1333 9523,v1.0,,"That feeling of powerlessness in the face of politics is present in many people's minds, no matter where they are in the world or the regime governing them.. Unfortunately it's hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.",/post/15843,2017-04-15T19:02:25.000Z,2017-04-15T19:02:25.000Z,15843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1332 9557,v1.0,,"That feeling of powerlessness in the face of politics is present in many people's minds, no matter where they are in the world or the regime governing them.. Unfortunately it's hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.",/post/15843,2017-04-15T19:02:14.000Z,2017-04-15T19:02:14.000Z,15843,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1343 11201,v1.0,,"Transition management does not seek to involve stakeholders or to represent a given population; it focuses on selecting change agents. However, any concept of selective involvement comes with tensions. For example, doubts can surface regarding democratic legitimacy. Making clear that transition management is not a decision-making process can assuage these: it creates a setting for mutual inspiration among societal actors, in which new ideas, connections, and actions can emerge.",/post/33784,2017-04-15T19:00:58.000Z,2017-04-15T19:00:58.000Z,33784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1767 10707,v1.0,,"Social streets: We heard about social streets not long ago via Giulia Ganugi. She's a PhD student Sociology in Bologna. Her research is about the Social Street phenomenon, born in Bologna three years ago and spreaded throughout Italy and the world. She visited us in Ghent to know more about the Living Street-experiment.",/post/33778,2017-04-15T19:00:46.000Z,2017-04-15T19:00:46.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1631 10546,v1.0,,"Social streets: We heard about social streets not long ago via Giulia Ganugi. She's a PhD student Sociology in Bologna. Her research is about the Social Street phenomenon, born in Bologna three years ago and spreaded throughout Italy and the world. She visited us in Ghent to know more about the Living Street-experiment.",/post/33778,2017-04-15T19:00:41.000Z,2017-04-15T19:00:41.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1574 9753,v1.0,,"“From streetparking to neighborhood parking”: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just 'around the corner'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at 'long distance parkings'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.",/post/33778,2017-04-15T19:00:29.000Z,2017-04-15T19:00:29.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1395 8924,v1.0,,"“From streetparking to neighborhood parking”: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just 'around the corner'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at 'long distance parkings'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.",/post/33778,2017-04-15T19:00:24.000Z,2017-04-15T19:00:24.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1197 11216,v1.0,,"“From streetparking to neighborhood parking”: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just 'around the corner'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at 'long distance parkings'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.",/post/33778,2017-04-15T19:00:18.000Z,2017-04-15T19:00:18.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1770 10505,v1.0,,We started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (“arena”) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf  (page 24),/post/33778,2017-04-15T19:00:01.000Z,2017-04-15T19:00:01.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1562 11200,v1.0,,We started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (“arena”) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf  (page 24),/post/33778,2017-04-15T18:59:51.000Z,2017-04-15T18:59:51.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1767 5472,v1.0,,"The city of Ghent (thanks to the European MUSIC-project) coördinated the first year of thinking, dreaming and creating a strong group (see also https://drift.eur.nl/wp-content/uploads/2016/11/DRIFT-Transition_management_in_the_urban_context-guidance_manual.pdf) . Then the group organised themselves, with sponsorship money and a lot of volunteer time of the pioneers of the first hour.",/post/33778,2017-04-15T18:59:40.000Z,2017-04-15T18:59:40.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,315 10504,v1.0,,We started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (“arena”) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf  (page 24),/post/33778,2017-04-15T18:59:07.000Z,2017-04-15T18:59:07.000Z,33778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1562 7237,v1.0,,"place serious cleanup efforts. But for most small manufacturers in my native Emilia, these were just costs. The benefits went, by definition, to the whole planet.  However, here's what happened over the decades: businesses started to realise they had done (albeit kicking and screaming) the decent thing. The region had become more livable. As a territory (and not so much as single businesses) they had indeed gathered some competitiveness.  In your case, I think, ""it's an opportunity"" is a little more true. Your barber salon or gorcery store has a ramp. The parent with the stroller, the person in the wheelchair can get in easily. They get a good experience. They are more likely to come back to you. But even here, I suspect that the ""area"" approach is going to be stronger: the message that registers is not ""you, personally, can gain a business advantage by servicing people with reduced mobility"", but ""here in Milano we make everyone feel welcome"". Not so much the extra profit, but the civic pride. Not the homo oeconomicus, but the ""we"".",/post/19824,2017-04-15T18:58:04.000Z,2017-04-15T18:58:04.000Z,19824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,787 5994,v1.0,,"You're right, in the CarrotMob people, as in the money spenders, are supporters, because they do it for the cause more than financial consumption. NB they are different than the civic and environmental activists and may not be prone to acting by themselves or coming to your meetings. But they are a force in that they can be activated in well designed campaigns. It's like awareness raising, but with actions as outputs (in many cases it means buying from those businesses to reward their move towards greater sustainability).",/post/17073,2017-04-15T18:57:49.000Z,2017-04-15T18:57:49.000Z,17073,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,400 4557,v1.0,,"Thanx @Noemi, we have already got through @Living_street since it was instigated by a Municipality, but we had missed @CarrotMob. We find it quite inspirational since it is purely based on positive instences. In fact in our pilot phase starting 14th april we've included (you've got me... I am directly involved) many different stakeholders including active citizens. Even if we haven't thought of them as consumers, therefore, empowered with ""incentives"".",/post/14016,2017-04-15T18:57:39.000Z,2017-04-15T18:57:39.000Z,14016,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,18 7236,v1.0,,"Speaking of incentives, I heard good things about the CarrotMob approach Generically speaking, the logic behind it is pretty cool: businesses who agree to make changes in how they work get a boost in consumer support. I'm sure Milano must have similar groups of community organisers that can (again) be credible interfaces - so ""mobs"" actually show up and make a difference in the incentive structure.",/post/10471,2017-04-15T18:57:29.000Z,2017-04-15T18:57:29.000Z,10471,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,787 7235,v1.0,,"Going where innovation beats we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into co-design sessions pivoting around their necessities may generate unexpected outcomes.",/post/819,2017-04-15T18:57:22.000Z,2017-04-15T18:57:22.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,787 9674,v1.0,,Prototyping policies by monitoring and evaluating this experimentation.,/post/819,2017-04-15T18:56:52.000Z,2017-04-15T18:56:52.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,1380 9303,v1.0,,"Co-designing / mobilizing resources of course we will not predefine outputs, but rather keep the sessions open to any outcomes.",/post/819,2017-04-15T18:56:45.000Z,2017-04-15T18:56:45.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,1283 5562,v1.0,,Dealing with collective intelligence is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.,/post/819,2017-04-15T18:56:35.000Z,2017-04-15T18:56:35.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,334 7233,v1.0,,"It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.",/post/819,2017-04-15T18:56:12.000Z,2017-04-15T18:56:12.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,786 9752,v1.0,,"Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable. The story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017. In November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject. Lisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies. It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders. Cristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity. This is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight. Listening it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors.    Including as the collaboration with the trade association got closed we’ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers. Going where innovation beats we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into co-design sessions pivoting around their necessities may generate unexpected outcomes. Dealing with collective intelligence is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it. This is where we stand now and the next steps are: Co-designing / mobilizing resources of course we will not predefine outputs, but rather keep the sessions open to any outcomes. Prototyping policies by monitoring and evaluating this experimentation. We are aware that talking about “enforcing” a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process. Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions. It would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.",/post/819,2017-04-15T18:55:52.000Z,2017-04-15T18:55:52.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,1395 5543,v1.0,,"Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable. The story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017. In November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject. Lisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies. It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders. Cristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity. This is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight. Listening it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors.    Including as the collaboration with the trade association got closed we’ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers. Going where innovation beats we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into co-design sessions pivoting around their necessities may generate unexpected outcomes. Dealing with collective intelligence is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it. This is where we stand now and the next steps are: Co-designing / mobilizing resources of course we will not predefine outputs, but rather keep the sessions open to any outcomes. Prototyping policies by monitoring and evaluating this experimentation. We are aware that talking about “enforcing” a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process. Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions. It would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.",/post/819,2017-04-15T18:55:43.000Z,2017-04-15T18:55:43.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,329 9501,v1.0,,"Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable. The story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017. In November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject. Lisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies. It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders. Cristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity. This is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight. Listening it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors.    Including as the collaboration with the trade association got closed we’ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers. Going where innovation beats we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into co-design sessions pivoting around their necessities may generate unexpected outcomes. Dealing with collective intelligence is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it. This is where we stand now and the next steps are: Co-designing / mobilizing resources of course we will not predefine outputs, but rather keep the sessions open to any outcomes. Prototyping policies by monitoring and evaluating this experimentation. We are aware that talking about “enforcing” a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process. Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions. It would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.",/post/819,2017-04-15T18:55:30.000Z,2017-04-15T18:55:30.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,1325 6039,v1.0,,"Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable. The story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017. In November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject. Lisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies. It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders. Cristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity. This is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight. Listening it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors.    Including as the collaboration with the trade association got closed we’ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers. Going where innovation beats we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into co-design sessions pivoting around their necessities may generate unexpected outcomes. Dealing with collective intelligence is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it. This is where we stand now and the next steps are: Co-designing / mobilizing resources of course we will not predefine outputs, but rather keep the sessions open to any outcomes. Prototyping policies by monitoring and evaluating this experimentation. We are aware that talking about “enforcing” a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process. Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions. It would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.",/post/819,2017-04-15T18:55:17.000Z,2017-04-15T18:55:17.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,414 8789,v1.0,,"Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable. The story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017. In November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject. Lisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies. It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders. Cristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity. This is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight. Listening it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors.    Including as the collaboration with the trade association got closed we’ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers. Going where innovation beats we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into co-design sessions pivoting around their necessities may generate unexpected outcomes. Dealing with collective intelligence is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it. This is where we stand now and the next steps are: Co-designing / mobilizing resources of course we will not predefine outputs, but rather keep the sessions open to any outcomes. Prototyping policies by monitoring and evaluating this experimentation. We are aware that talking about “enforcing” a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process. Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions. It would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.",/post/819,2017-04-15T18:55:00.000Z,2017-04-15T18:55:00.000Z,819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,786,1155 9873,v1.0,,"intense physical experience: smelling the laser in the morning will push you humans in flesh and blood (AFK) can use different kind of communications channels (they can also make faces without using emoticons) people around us can act as serendipity triggers (I.E. “Did you know that you can do this ..”) having a lot of materials and tools at hand can foster your ingenuity   iteration is key: discard a yesterday idea and try the today, new one you’re not alone: working in your office is great, but having people around you is awesome! tacit knowledge: learning from others makers (designers, artists, tinkerers...) working around you is an hidden but huge diffused competence and skills repository explore different points of view about your project: There’s the s*** you know, the s*** you know you don’t know, and the s*** you don’t know you don’t know (right?). online + offline = GREAT THINGS!",/post/6206,2017-04-15T18:53:30.000Z,2017-04-15T18:53:30.000Z,6206,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6173,1435 8314,v1.0,,"intense physical experience: smelling the laser in the morning will push you humans in flesh and blood (AFK) can use different kind of communications channels (they can also make faces without using emoticons) people around us can act as serendipity triggers (I.E. “Did you know that you can do this ..”) having a lot of materials and tools at hand can foster your ingenuity   iteration is key: discard a yesterday idea and try the today, new one you’re not alone: working in your office is great, but having people around you is awesome! tacit knowledge: learning from others makers (designers, artists, tinkerers...) working around you is an hidden but huge diffused competence and skills repository explore different points of view about your project: There’s the s*** you know, the s*** you know you don’t know, and the s*** you don’t know you don’t know (right?). online + offline = GREAT THINGS!",/post/6206,2017-04-15T18:53:21.000Z,2017-04-15T18:53:21.000Z,6206,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6173,1081 4921,v1.0,,"Through this special edition of residency we are trying to create an active and participatory link between the online and offline collaboration. On one hand online collaboration is a great experience: you can get inspiration by reading stories, learning from all around the world experiences, finding technical documentation, forking and contributing to different projects. On the other hand, the live (aka ""offline"") experience (working in a makerspace / fablab) will add some other things:",/post/6206,2017-04-15T18:52:57.000Z,2017-04-15T18:52:57.000Z,6206,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6173,120 8400,v1.0,,"The opencare Maker in Residence is the first edition of a special residency programme that provides support, assistance, resources and acceleration to Makers - from all over the world - who are interested in developing / validating / iterating an open source project in the health and care field. Makers can live and work on-site at WeMake for a period of time that may vary from minimum 2 to maximum 8 weeks, providing an opportunity for intense collaboration, creativity, and learning to improve their project.",/post/6206,2017-04-15T18:52:46.000Z,2017-04-15T18:52:46.000Z,6206,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6173,1107 9151,v1.0,,"The opencare Maker in Residence is the first edition of a special residency programme that provides support, assistance, resources and acceleration to Makers - from all over the world - who are interested in developing / validating / iterating an open source project in the health and care field. Makers can live and work on-site at WeMake for a period of time that may vary from minimum 2 to maximum 8 weeks, providing an opportunity for intense collaboration, creativity, and learning to improve their project",/post/6206,2017-04-15T18:52:39.000Z,2017-04-15T18:52:39.000Z,6206,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6173,1257 9399,v1.0,,"Hubotics was presented at the OpenCare Deep Games event at CERN earlier this year. As it's early in the development stage, modifications of design are being achieved to maximize customizability and accessibility to a large community in need.  For the full article here:  here: https://goo.gl/vFqiY3",/post/21506,2017-04-15T18:52:04.000Z,2017-04-15T18:52:04.000Z,21506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1307 8646,v1.0,,"Technically, it's pretty clear. You'd create your own project on Edgeryders. You have a forum and some other basic functionalities (tasks, documents, wikis). We would code your work using OpenEthnographer, and change the APIs so that your (coded) conversation is added to GraphRyder. This way, it becomes part of the OpenCare study. Insight produced would pertain to design/social science (what is collaboration for you, how it differs from collaboration in other OpenCare projects, how the group works as a group). They would not, I am afraid, pertain to biology!  Socially, it's not clear at all what would happen. Maybe nothing. Maybe OpenInsulin Global – like OpenCare – will find itself with 80 people participating in your group. This could be another source of insight: gauging how interesting what you do is to others. For me the degree of active interest in OpenCare was a real surprise!",/post/27407,2017-04-15T18:51:23.000Z,2017-04-15T18:51:23.000Z,27407,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1143 7797,v1.0,,"On the matter of ""the crowd"": this is prevalent on so many levels. Going against this is at the core of why we do what we do in science communication and engagement. The narrative is always ""the public"" and ""science"" as seperate entities. This vocabulary already skews everything at the base. There's always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most harmfully, from those that work in the exact departments dedicated to ""linking science and society"", often unintentionally.",/post/27222,2017-04-15T18:51:11.000Z,2017-04-15T18:51:11.000Z,27222,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,946 9621,v1.0,,"On the matter of ""the crowd"": this is prevalent on so many levels. Going against this is at the core of why we do what we do in science communication and engagement. The narrative is always ""the public"" and ""science"" as seperate entities. This vocabulary already skews everything at the base. There's always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most harmfully, from those that work in the exact departments dedicated to ""linking science and society"", often unintentionally.",/post/27222,2017-04-15T18:51:03.000Z,2017-04-15T18:51:03.000Z,27222,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1363 8645,v1.0,,"This is great! I'd love to delve deeper. I've got a good intuitive understanding of what you're coding, but I'm not familiar with the practicalities and limitations. Thinking out loud here, I'm wondering if we can somehow run part of the Open Insulin research (or any lab research for that matter) on the platform and analyse that. What insight could it produce and how? Ping @trythis and @dfko . In your case, you have a blanco somehow with the ""team only"" conversation. It allows for some crude conclusions. I wonder if you can refine the insight somehow. An other possibility: how would a blanco look if you ran this on a random research project? Run an algorithm on a classical lab diary and an open lab diary on a highly similar research topic, with types of contributors etc. taken into account? This and other options seem unpractical as the format of classical research is not very compatible. Does anyone have any ideas? On the matter of ""the crowd"": this is prevalent on so many levels. Going against this is at the core of why we do what we do in science communication and engagement. The narrative is always ""the public"" and ""science"" as seperate entities. This vocabulary already skews everything at the base. There's always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most harmfully, from those that work in the exact departments dedicated to ""linking science and society"", often unintentionally.",/post/27222,2017-04-15T18:50:46.000Z,2017-04-15T18:50:46.000Z,27222,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1143 9620,v1.0,,"After reading @WinniePoncelet 's thoughts, @Amelia and I thought to make this post part of the ethnographic coding. The role of citizens in citizen science  is super-interesting, and it is part of a larger discussion on the role of communities in care, or any activity that involves ""the crowd"". @markomanka wrote in the OpenCare proposal that ""the crowd is often considered a rightless volunteer"". In science, citizens are only supposed to provide the data, but rarely process them or interpret them. In policy, they are supposed to be stakeholders and express desired and suggest ideas, but rarely to then execute them.",/post/26661,2017-04-15T18:50:31.000Z,2017-04-15T18:50:31.000Z,26661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1363 5454,v1.0,,"After reading @WinniePoncelet 's thoughts, @Amelia and I thought to make this post part of the ethnographic coding. The role of citizens in citizen science  is super-interesting, and it is part of a larger discussion on the role of communities in care, or any activity that involves ""the crowd"". @markomanka wrote in the OpenCare proposal that ""the crowd is often considered a rightless volunteer"". In science, citizens are only supposed to provide the data, but rarely process them or interpret them. In policy, they are supposed to be stakeholders and express desired and suggest ideas, but rarely to then execute them.",/post/26661,2017-04-15T18:50:07.000Z,2017-04-15T18:50:07.000Z,26661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,312 9818,v1.0,,"Reflexivity and objectivity are very connected in ethnography. It's impressive to see and compare visually the two networks and your comments are so useful for the paper! I'm trying to go deeper in how boundaries and tasks between the opencare network and the research are constructed and sometimes solved. By an ecosystemic and emergent approach all this gets high meaning.",/post/23783,2017-04-15T18:49:53.000Z,2017-04-15T18:49:53.000Z,23783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1423 8599,v1.0,,"It just dawns on me as I read the example you are giving: as we prepare to write a paper on going from online interactions to collaboration of sorts with Federico, Ezio & co., we are in fact collaborating in the very process set out by opencare. So the very approach in writing the paper is a testimonial to its core argument. This is turning into very advanced research analysis",/post/20179,2017-04-15T18:49:38.000Z,2017-04-15T18:49:38.000Z,20179,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1142 8598,v1.0,,"The potential goes beyond that well into actual research. Coupled with the use of the Edgeryders platform, it's valuable as digital infrastructure to manage a research project, a way of setting up a 'meta' research regarding the process, an analysis tool to see if there is actual merit to a participatory process, and a way for pouring everything into hard conclusions.",/post/14733,2017-04-15T18:49:13.000Z,2017-04-15T18:49:13.000Z,14733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1142 9302,v1.0,,"I was at a conference dedicated to the topic last week; a full programme, even quite diverse for most standards, and data collection and related issues were all anyone wanted to talk about. Insight does not progress if the wrong questions are being asked. It is detrimental if forms of participatory science are looked at only in this way. A perspective like the one you just posted could help to radically change that, to show that better questions should be asked.",/post/14733,2017-04-15T18:49:04.000Z,2017-04-15T18:49:04.000Z,14733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1283 5453,v1.0,,"For example, citizen science as an approach is overwhelmingly commonly reduced to an alternative method for collecting data. A tool, not a different process. A way to collect data and involve people a little by doing so, rather than involving people in the whole process and having them collect data in addition to formulating questions, designing experiments etc. all along the way.",/post/14733,2017-04-15T18:48:47.000Z,2017-04-15T18:48:47.000Z,14733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,312 4635,v1.0,,"In my experience with alternative research models, and especially when interacting with classically trained researchers, it does not occur to them that there are possible correlations between the research process and the value of the research outcomes. They are locked in how they have been doing things for years, naturally.",/post/14733,2017-04-15T18:48:42.000Z,2017-04-15T18:48:42.000Z,14733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,39 9890,v1.0,,"In my experience with alternative research models, and especially when interacting with classically trained researchers, it does not occur to them that there are possible correlations between the research process and the value of the research outcomes. They are locked in how they have been doing things for years, naturally.",/post/14733,2017-04-15T18:48:33.000Z,2017-04-15T18:48:33.000Z,14733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1443 4544,v1.0,,"Another advantage of doing things this way is increased accountability to the people who take part in the main conversation, the one about care. Through the research team forum, they can ask question and make proposals. This should mitigate the perceived risk of researchers taking an exploitative attitude towards people's contributions. The operative word here is ""perceived"". We have the best intentions, but we recognize this is not enough. We are determined to demonstrate them to the community, and transparency goes a long way towards doing it.",/post/6175,2017-04-15T18:48:17.000Z,2017-04-15T18:48:17.000Z,6175,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,15 9889,v1.0,,"What are the consequences of all this activity? More diversity in research. More space for participation. With a bit of luck, more and higher quality scientific output.",/post/6175,2017-04-15T18:47:52.000Z,2017-04-15T18:47:52.000Z,6175,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,1443 5718,v1.0,,"In the network diagrams, nodes are color- and size coded by in-degree. You can think of in-degree as a measure of the interest that the person's contribution elicits in the conversation. By this metric, it is clear that self-selected community members who just jump in are making a major contribution to the OpenCare research effort. T",/post/6175,2017-04-15T18:47:30.000Z,2017-04-15T18:47:30.000Z,6175,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6142,361 9177,v1.0,,"@ the Story you mentioned- quite interesting! open discussions help..... can’t get any more open than Twitter.  Using it to share info, raise awareness and openly discuss mental health problems from different perspectives. Social media is changing the world, and its changing how people with issues connect with each other. The capability to learn from , share not only in the immediate localities but over the globe.",/post/27824,2017-04-15T18:45:35.000Z,2017-04-15T18:45:35.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1262 8578,v1.0,,"There was distress tolerance, learning how to improve coping skills, groups range in diverse areas.  Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available.  Mental wellness was brought into the light – which it’s ok to talk about it. From there the students that were not really “interested” took another look at the options available with a different perspective.",/post/27824,2017-04-15T18:45:23.000Z,2017-04-15T18:45:23.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1140 6067,v1.0,,"There was distress tolerance, learning how to improve coping skills, groups range in diverse areas.  Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available.  Mental wellness was brought into the light – which it’s ok to talk about it. From there the students that were not really “interested” took another look at the options available with a different perspective.",/post/27824,2017-04-15T18:45:14.000Z,2017-04-15T18:45:14.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,419 11533,v1.0,,"There was distress tolerance, learning how to improve coping skills, groups range in diverse areas.  Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available.  Mental wellness was brought into the light – which it’s ok to talk about it. From there the students that were not really “interested” took another look at the options available with a different perspective.",/post/27824,2017-04-15T18:45:05.000Z,2017-04-15T18:45:05.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1865 10729,v1.0,,"Being a university student – as you know -- can be a difficult balancing act. It is easy to get weighed down with the pressures of academics, social life, and choosing a major and so on.  If personal problems are piled on top of these pressures, it’s easy to get overwhelmed. There were different groups and workshops which made it easy for them to identify with.",/post/27824,2017-04-15T18:44:53.000Z,2017-04-15T18:44:53.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1636 10444,v1.0,,"The program was for all students. As far as what was the “crossover” there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone’s inquiry. Which made the students in control of the situation.  Which is always of value.",/post/27824,2017-04-15T18:44:35.000Z,2017-04-15T18:44:35.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1551 9600,v1.0,,"The program was for all students. As far as what was the “crossover” there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone’s inquiry. Which made the students in control of the situation.  Which is always of value.",/post/27824,2017-04-15T18:44:25.000Z,2017-04-15T18:44:25.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1354 6006,v1.0,,"The program was for all students. As far as what was the “crossover” there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone’s inquiry. Which made the students in control of the situation.  Which is always of value.",/post/27824,2017-04-15T18:44:17.000Z,2017-04-15T18:44:17.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,408 11571,v1.0,,"@Noemi The program was for all students. As far as what was the “crossover” there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone’s inquiry. Which made the students in control of the situation.  Which is always of value.",/post/27824,2017-04-15T18:44:03.000Z,2017-04-15T18:44:03.000Z,27824,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1873 5100,v1.0,,"It was made almost mandatory by the dean and resident advisers to participate in these groups. There was resistance at first by many and that kind of tapered off. Being a psychology major we helped develop these groups in collaboration with various student groups. It was quite astonishing to see the resistance then you see the connection that was made over time and the participants, well some of them anyway changed their direction and went into this field so maybe it was a chance to tap into their real path they were destined to follow. Through difficulties, we usually discover what we were meant to do. Each one teach one to reach one! Networks can indeed support and enhance the quality of life and provide a buffer against adverse life events and difficul",/post/26061,2017-04-15T18:43:47.000Z,2017-04-15T18:43:47.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,147 10770,v1.0,,"It was made almost mandatory by the dean and resident advisers to participate in these groups. There was resistance at first by many and that kind of tapered off. Being a psychology major we helped develop these groups in collaboration with various student groups. It was quite astonishing to see the resistance then you see the connection that was made over time and the participants, well some of them anyway changed their direction and went into this field so maybe it was a chance to tap into their real path they were destined to follow. Through difficulties, we usually discover what we were meant to do. Each one teach one to reach one! Networks can indeed support and enhance the quality of life and provide a buffer against adverse life events and difficul",/post/26061,2017-04-15T18:43:37.000Z,2017-04-15T18:43:37.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1641 6434,v1.0,,"On another note, at university, they had “programs” in place and designed to enhance the student’s life, as @Sharon mentioned young adults can be very hard on themselves.  Aided in concerns or problems such as a feeling of low self-esteem, anxiety, depression and academic concerns.",/post/26061,2017-04-15T18:43:18.000Z,2017-04-15T18:43:18.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,483 11570,v1.0,,"On another note, at university, they had “programs” in place and designed to enhance the student’s life, as @Sharon mentioned young adults can be very hard on themselves.  Aided in concerns or problems such as a feeling of low self-esteem, anxiety, depression and academic concerns.",/post/26061,2017-04-15T18:43:11.000Z,2017-04-15T18:43:11.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1873 10394,v1.0,,"While it’s true that each of us is unique and may have unique circumstances, none of us is alone in our struggles.  It great reduces isolation and alienation. It increases the sense that “we’re all in this together,” and kind of normalizes the individual situations. While members, in turn, encourage each other for support, feedback, and connection, instead of getting all that from the clinician.  By sharing experiences we all learn from each other and navigate out of their current situation and ultimately helps to find your voice in the sense of relating to others.  On the flipside, it takes strength and some recognition of the needs of others to function well in a group, not be destroyed by it. Creating the community atmosphere to overcome challenges and gain confidence.",/post/26061,2017-04-15T18:43:00.000Z,2017-04-15T18:43:00.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1538 10562,v1.0,,"While it’s true that each of us is unique and may have unique circumstances, none of us is alone in our struggles.  It great reduces isolation and alienation. It increases the sense that “we’re all in this together,” and kind of normalizes the individual situations. While members, in turn, encourage each other for support, feedback, and connection, instead of getting all that from the clinician.  By sharing experiences we all learn from each other and navigate out of their current situation and ultimately helps to find your voice in the sense of relating to others.  On the flipside, it takes strength and some recognition of the needs of others to function well in a group, not be destroyed by it. Creating the community atmosphere to overcome challenges and gain confidence.",/post/26061,2017-04-15T18:42:46.000Z,2017-04-15T18:42:46.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1577 10652,v1.0,,"@Noemi @Sharon Interesting topic- thank you @Sharon for sharing. my background is in clinical psychology and International Business so this is coming from a different perspective. There are substantial benefits to group therapy, in addition to human and contact and the openness of being completely vulnerable. Too often, there is a stigma attached and people don’t want to share their experience and rather keep in within.  Group therapy helps realize you’re not alone. Many patients enter therapy with the disquieting thought that they are unique in their situation, that they alone have certain frightening or unacceptable problems and thoughts.",/post/26061,2017-04-15T18:42:38.000Z,2017-04-15T18:42:38.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1622 7692,v1.0,,"@Noemi @Sharon Interesting topic- thank you @Sharon for sharing. my background is in clinical psychology and International Business so this is coming from a different perspective. There are substantial benefits to group therapy, in addition to human and contact and the openness of being completely vulnerable. Too often, there is a stigma attached and people don’t want to share their experience and rather keep in within.  Group therapy helps realize you’re not alone. Many patients enter therapy with the disquieting thought that they are unique in their situation, that they alone have certain frightening or unacceptable problems and thoughts.",/post/26061,2017-04-15T18:42:29.000Z,2017-04-15T18:42:29.000Z,26061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,915 7920,v1.0,,"I also have ideas regarding more efficient or senior friendly showering (hygiene) methods, mostly foam based. Recently I brainstormed for a self driving car mod (https://cocreate.localmotors.com/RaMansell/healthy-movement/) that could work in rehab as well, so some ideas are still warm. I had actually proposed to make it incontinence friendly as well.",/post/20346,2017-03-13T17:45:19.000Z,2017-03-13T17:45:19.000Z,20346,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,974 10330,v1.0,,"I also have ideas regarding more efficient or senior friendly showering (hygiene) methods, mostly foam based. Recently I brainstormed for a self driving car mod (https://cocreate.localmotors.com/RaMansell/healthy-movement/) that could work in rehab as well, so some ideas are still warm. I had actually proposed to make it incontinence friendly as well.",/post/20346,2017-03-13T17:45:08.000Z,2017-03-13T17:45:08.000Z,20346,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1517 10329,v1.0,,"Hi, @trythis, I did some research when my children were small. There are a number of patents (probably run out now) having excellent solutions. I think the solution is probably a two piece combination:  1 controlling unit 2 disposable/washable sensor At the time I considered a simple humidity sensor (measuring the impedance in the diaper, but its only effective for urine. What is the current state of gas detectors? A small one that could detect some compound in feces?",/post/17399,2017-03-13T17:44:56.000Z,2017-03-13T17:44:56.000Z,17399,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1517 5981,v1.0,,"Hi, @trythis, I did some research when my children were small. There are a number of patents (probably run out now) having excellent solutions. I think the solution is probably a two piece combination:  1 controlling unit 2 disposable/washable sensor At the time I considered a simple humidity sensor (measuring the impedance in the diaper, but its only effective for urine. What is the current state of gas detectors? A small one that could detect some compound in feces?",/post/17399,2017-03-13T17:44:42.000Z,2017-03-13T17:44:42.000Z,17399,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,396 10328,v1.0,,"and I know some profs that work in an appropriate sensor field (e.g. Petra Pötschke in Dresden). Hit me if you'd like to sit down to brainstorm a little.",/post/15017,2017-03-13T17:44:34.000Z,2017-03-13T17:44:34.000Z,15017,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1517 11425,v1.0,,What’s the problem? The issues are 1. many times diapers are changed un-necessarily and 2. many times they are NOT changed at the right moment. First case is a waste of money and environmental resources. Second case is health hazard (especially for the elderly).,/post/722,2017-03-13T17:44:19.000Z,2017-03-13T17:44:19.000Z,722,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1841 11424,v1.0,,"The issue was another: Waste of resources due to untimely change and lack of timely change None have to do with the type of Diaper",/post/11236,2017-03-13T17:44:06.000Z,2017-03-13T17:44:06.000Z,11236,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1841 10814,v1.0,,True to that. I suspect from how you approach this that the ecofriendly solutions are just smokescreen?,/post/7867,2017-03-13T17:43:55.000Z,2017-03-13T17:43:55.000Z,7867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1648 10327,v1.0,,"I'm a bit swamped now, but if anyone is interested to go through numerous existing sensor apps and see if there is something there.",/post/7867,2017-03-13T17:43:48.000Z,2017-03-13T17:43:48.000Z,7867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1517 9639,v1.0,,"Critical obstacle: You think Mr. Pumpers will sponsor a 50% reduction of his profit?",/post/722,2017-03-13T17:43:31.000Z,2017-03-13T17:43:31.000Z,722,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1369 10813,v1.0,,"Excuseme the fowl language, but it’s appropriate here.  We all know (or will) the insane cost of them. We spend lots of money on them on the household and institutional budgets. Several times a day we throw away these 30 cents items, often without needing to. Every human will or have used them for years. For multinational corporations they are the sweet smell of money, for us…well it depends. Surely a disaster for the environment.",/post/722,2017-03-13T17:42:44.000Z,2017-03-13T17:42:44.000Z,722,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,1648 6485,v1.0,,"Solution: With cheap modern technology you could easily make a ‘pamper sniffer’ (please be aware of active patents). This 10€ sniffer would signal yellow (a drop of pee is absorbed so it’s not yet urgent) red (the sh.t has hit the fan, change now). Those IOT freaks will upgrade to an app telling the carer: what, who, and the GPS coordinates of the sinner.  Critical obstacle: You think Mr. Pumpers will sponsor a 50% reduction of his profit? Opportunity:  Someone could get very rich, society will save and environment spared. Personally I would gladly have paid 100€ for a 'pamper sniffer' when my kids were small. I’d happily pay 200€ as a gift for my dad and please go ahead charge my children 1000€ when the time comes where I’m in deep …. (provided the nurse obay the alarm). Bill of materials (draft). Moist sensor/gas sensor, battery, led/buzzer/xxx, microcontroller…",/post/722,2017-03-13T17:41:46.000Z,2017-03-13T17:41:46.000Z,722,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,485 6902,v1.0,,"Excuseme the fowl language, but it’s appropriate here.  We all know (or will) the insane cost of them. We spend lots of money on them on the household and institutional budgets. Several times a day we throw away these 30 cents items, often without needing to. Every human will or have used them for years. For multinational corporations they are the sweet smell of money, for us…well it depends. Surely a disaster for the environment.  What are we talking about? This is the situation. You are a caring person and you see tears. What’s the problem? Parents know the drill. The usual detection algorithm starts. A check flowchart: pain? hunger? …. or is it the ‘bottom line’? The sweet or not so-sweet smell tells you what you have to do. You will also know about the silent-positive; no alarm and no change leads to a pain in the bottom. We dry the tears and invest in curing the wounds. Soon this leads you to adopt the institutional approach. The institutional approach is to change at specific times, whether needed or not. The vacant slot is usually before feeding and ofthen clean ones goes to pollute our dump-yard. What goes in, must come out and then the sh.t hits the fan. The unscheduled aftermath sometimes goes undetected (silent-positive). This scheme goes for our elderly as well. The poor person is left unchanged.  You know what we are talking about here, don’t you? DIAPERS. Those wonderful disposable ones that have released tremendous time resources, given mothers time to breathe, for which, we gladly pay the price.  What’s the problem? The issues are 1. many times diapers are changed un-necessarily and 2. many times they are NOT changed at the right moment. First case is a waste of money and environmental resources. Second case is health hazard (especially for the elderly). The theoretical solution is simple: Change when needed. In practice: you can’t go around sniffing there every 20 minutes, especially not as institutional employee. Solution: With cheap modern technology you could easily make a ‘pamper sniffer’ (please be aware of active patents). This 10€ sniffer would signal yellow (a drop of pee is absorbed so it’s not yet urgent) red (the sh.t has hit the fan, change now). Those IOT freaks will upgrade to an app telling the carer: what, who, and the GPS coordinates of the sinner.  Critical obstacle: You think Mr. Pumpers will sponsor a 50% reduction of his profit? Opportunity:  Someone could get very rich, society will save and environment spared. Personally I would gladly have paid 100€ for a 'pamper sniffer' when my kids were small. I’d happily pay 200€ as a gift for my dad and please go ahead charge my children 1000€ when the time comes where I’m in deep …. (provided the nurse obay the alarm). Bill of materials (draft). Moist sensor/gas sensor, battery, led/buzzer/xxx, microcontroller…",/post/722,2017-03-13T17:41:32.000Z,2017-03-13T17:41:32.000Z,722,3323,AnnotatorStore::TextAnnotation,,,,,,,,,689,707 9845,v1.0,,"mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of ""regulation by design"" as well as ""safety by design"" we first considered regulation and safety and build our development according to the main guidelines.  Then i haven't heard about the group about exploring open alternatives in (e)health and healthcare support. Could tell me more ? Finally, thank you for both links, they are very interesting.",/post/11010,2017-03-13T17:40:48.000Z,2017-03-13T17:40:48.000Z,11010,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1426 9844,v1.0,,"Oh, thanks for the reply. ""regulation by design"".. this is new to me and I hardly get what it means, so when you have some time do tell.",/post/12316,2017-03-13T17:40:38.000Z,2017-03-13T17:40:38.000Z,12316,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1426 6484,v1.0,,"community and a non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of ""regulation by design"" as well as ""safety by design"" we first considered regulation and safety and build our development according to the main guidelines.",/post/11010,2017-03-13T17:40:24.000Z,2017-03-13T17:40:24.000Z,11010,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,485 10205,v1.0,,"@Noemi, thank you for your comment. Safety and regulation are very important for us and as a community and a non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of ""regulation by design"" as well as ""safety by design"" we first considered regulation and safety and build our development according to the main guidelines.  Then i haven't heard about the group about exploring open alternatives in (e)health and healthcare support. Could tell me more ? Finally, thank you for both links, they are very interesting.",/post/11010,2017-03-13T17:40:03.000Z,2017-03-13T17:40:03.000Z,11010,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1483 9839,v1.0,,"community and a non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of ""regulation by design"" as well as ""safety by design"" we first considered regulation and safety and build our development according to the main guidelines.  Then i haven't heard about the group about exploring open alternatives in (e)health and healthcare support. Could tell me more ? Finally, thank you for both links, they are very interesting",/post/11010,2017-03-13T17:39:57.000Z,2017-03-13T17:39:57.000Z,11010,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1425 9150,v1.0,,"Open source game apps as solutions to respiratory diseases! Efforts to open up software eg pacemakers for heart conditions to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated if you could jump in and tell us how you cover the regulatory issues so that your product can actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?",/post/7382,2017-03-13T17:39:45.000Z,2017-03-13T17:39:45.000Z,7382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1257 9838,v1.0,,"@Olivier hi, welcome on board. Are you part of the group coming together later this month to explore open alternatives in (e)health and healthcare support? I'm adding here two recent opensource projects that we know of for medical treatment, and which you might enjoy connecting with. Open source game apps as solutions to respiratory diseases! Efforts to open up software eg pacemakers for heart conditions to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated if you could jump in and tell us how you cover the regulatory issues so that your product can actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?",/post/7382,2017-03-13T17:39:26.000Z,2017-03-13T17:39:26.000Z,7382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1425 10204,v1.0,,"@Olivier hi, welcome on board. Are you part of the group coming together later this month to explore open alternatives in (e)health and healthcare support? I'm adding here two recent opensource projects that we know of for medical treatment, and which you might enjoy connecting with. Open source game apps as solutions to respiratory diseases! Efforts to open up software eg pacemakers for heart conditions to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated if you could jump in and tell us how you cover the regulatory issues so that your product can actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?",/post/7382,2017-03-13T17:39:18.000Z,2017-03-13T17:39:18.000Z,7382,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1483 8481,v1.0,,"Our project has been supported by the Fondation Pierre Fabre, which believes in our approach and that our concept could be used in Africa, where doctors lack medical imaging devices. They provide financial support and other resources - and the more we have, the faster and more efficiently we can do our work.",/post/732,2017-03-13T17:39:08.000Z,2017-03-13T17:39:08.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1126 7520,v1.0,,"Our project has been supported by the Fondation Pierre Fabre, which believes in our approach and that our concept could be used in Africa, where doctors lack medical imaging devices. They provide financial support and other resources - and the more we have, the faster and more efficiently we can do our work.",/post/732,2017-03-13T17:38:58.000Z,2017-03-13T17:38:58.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,876 6901,v1.0,,"This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros  our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It’s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.",/post/732,2017-03-13T17:38:08.000Z,2017-03-13T17:38:08.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,706 6091,v1.0,,"market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros  our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It’s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.",/post/732,2017-03-13T17:38:00.000Z,2017-03-13T17:38:00.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,427 7077,v1.0,,"This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles",/post/732,2017-03-13T17:37:47.000Z,2017-03-13T17:37:47.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,755 11290,v1.0,,"This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles.",/post/732,2017-03-13T17:37:38.000Z,2017-03-13T17:37:38.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1788 9149,v1.0,,"This idea emerged as a combination of our passion for open technology and community engagement. Using technologies that have existed since the 70s,with a bit of tweaking, are cheap and perfectly functional to make this idea come true. We then give access to these tools and knowledge to anyone interested, and to encourage them to try new things out. This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros  our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It’s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.",/post/732,2017-03-13T17:37:21.000Z,2017-03-13T17:37:21.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1257 9168,v1.0,,"This idea emerged as a combination of our passion for open technology and community engagement. Using technologies that have existed since the 70s,with a bit of tweaking, are cheap and perfectly functional to make this idea come true. We then give access to these tools and knowledge to anyone interested, and to encourage them to try new things out. This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros  our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It’s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.",/post/732,2017-03-13T17:37:13.000Z,2017-03-13T17:37:13.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1259 6483,v1.0,,"I started my journey as a science and economics student. After graduation, I spent years working for French and international industrial companies, after which I quit and went on to work in the humanitarian field throughout Southeast Asia. With the arrival of new technologies and the community approach using the Internet to connect people, it became clear to me that there are now widespread and relatively cheap tools of empowerment readily available. Upon my return to Europe, I decided to work on the development of such ideas. This led to the inception of the echOpen project. The idea started from a chat among friends, an engineer (Luc) previously employed in the ultrasound industry, a mathematician and physician (Mehdi) and a radiologist (Pierre). We discussed smartphones: widespread devices that are more sophisticated than the computers that sent people to the moon a few decades ago. How could we use this technology to improve health care, considering that now almost everyone have one in his/her pocket? This idea emerged as a combination of our passion for open technology and community engagement. Using technologies that have existed since the 70s,with a bit of tweaking, are cheap and perfectly functional to make this idea come true. We then give access to these tools and knowledge to anyone interested, and to encourage them to try new things out. This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros  our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It’s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients. We launched the project in late 2014, but the actual work really began in August 2015. Hosted by the hospital Hotel Dieu, right next to the Notre Dame in Paris, we have an open space with an interesting, eclectic ecosystem of researchers, community members, senior professionals working in the technical and medical areas of ultrasound technology, radiologists, experts in echography, medical laboratories, universities, and schools, etc. Earlier this year, we developed a functional prototype of the tool - it works, but the quality of the image is not satisfactory. With the involvement of more than 200 people, mostly from France but also in Asia, Africa, and the Americas, we are now improving the quality of echOpen. Our deadline to complete the new medical-quality prototype is this December. Our project has been supported by the Fondation Pierre Fabre, which believes in our approach and that our concept could be used in Africa, where doctors lack medical imaging devices. They provide financial support and other resources - and the more we have, the faster and more efficiently we can do our work. We are constantly looking for both funding and new profiles to get involved within the community, anyone from developers, to designers, engineers, legal experts, and community managers. We are also working on making our wiki more accessible to English-speaking members. If you have some ideas, tips, or want to share similar work with us - leave a comment or contact us.",/post/732,2017-03-13T17:36:55.000Z,2017-03-13T17:36:55.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,485 10516,v1.0,,We discussed smartphones: widespread devices that are more sophisticated than the computers that sent people to the moon a few decades ago.,/post/732,2017-03-13T17:36:46.000Z,2017-03-13T17:36:46.000Z,732,3323,AnnotatorStore::TextAnnotation,,,,,,,,,699,1565 4818,v1.0,,"@Noemi I mention @To-Steki in my story but it was before it's participation so I must correct the name and tag it. About 6 months the people from Steki made the delivery of all of those backpacks (that I was preparing) to Eidomeni. And we have had a very good cooperation. By the way, in Thessaloniki there are many active and solidarity groups. In their own way but active and helpful! This list is in greek but maybe you can have an idea.It's a short mapping of Thessaloniki's Municipality area  http://www.thessaloniki.gr/userfiles/file/Dioikisi(NeosOEY)/AytTmEthelNeolaias/LISTA1842016.pdf",/post/19323,2017-03-13T17:35:38.000Z,2017-03-13T17:35:38.000Z,19323,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,85 8906,v1.0,,"Today, the Migrants Social Centre faces many financial challenges, putting at risk its continuity and operations. Our Refugee Hostel was for years the only hosting structure for immigrants in Thessaloniki, offering free accommodation to 70 adults and children. When the Public Electricity Company cut the power in the hostel due to high debt, we reconnected the supply to our name. The existing debt will stop all activities and solidarity action housed and supported by the Centre. This includes the solidarity courses for locals and immigrants, the kitchen, the collection and distribution of relief items. Therefore, we address solidarity collectives in Greece and abroad, asking for contributions to repay this debt.",/post/748,2017-03-13T17:35:08.000Z,2017-03-13T17:35:08.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,1194 7035,v1.0,,"It is a completely self-organised place, depending exclusively on volunteers’ work and all of us who participate in it. Financially, the Social Centre is solely supported by donations of the participating groups and the profits of the clubroom.",/post/748,2017-03-13T17:34:55.000Z,2017-03-13T17:34:55.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,740 5742,v1.0,,"In the Solidarity Kitchen, people who currently offer their services come from those who initially asked to have access to lunch on weekends. Also, we would like to highlight the contribution of Room 39’s members, who deliver meals to homeless people all over the city center on bikes. It is the only initiative in Thessaloniki that serves food directly to the public spots where homeless people live every night.",/post/748,2017-03-13T17:34:47.000Z,2017-03-13T17:34:47.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,366 9193,v1.0,,"like theatrical and cultural groups. Initiatives of the Migrants Social Centre also include voluntary actions of practical solidarity groups such as “Out of the Classroom” that offers free courses in Greeks and immigrants (Greek and foreign language lessons, additional teaching to Junior High School and High School students). It also runs: a Solidarity Kitchen that offers meal and companionship to hundreds of people every weekend. Room39 that gathers and distributes relief items and food to refugees and homeless. A Legal Support Group for refugees and immigrants and many other temporary or permanent activities. Other collectivities that reside independently in the Migrants Social Centre are Indigenous People of Biafra, the Network for Unemployed and Precarious Workers, the Network for Political and Social Rights, Ethical, Technological & Idealistic Association the Theatrical and Tango Group of Immigrants’ Place, and much more.",/post/748,2017-03-13T17:34:35.000Z,2017-03-13T17:34:35.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,1266 10591,v1.0,,"Initiatives of the Migrants Social Centre also include voluntary actions of practical solidarity groups such as “Out of the Classroom” that offers free courses in Greeks and immigrants (Greek and foreign language lessons, additional teaching to Junior High School and High School students). It also runs: a Solidarity Kitchen that offers meal and companionship to hundreds of people every weekend. Room39 that gathers and distributes relief items and food to refugees and homeless. A Legal Support Group for refugees and immigrants and many other temporary or permanent activities. Other collectivities that reside independently in the Migrants Social Centre are Indigenous People of Biafra, the Network for Unemployed and Precarious Workers, the Network for Political and Social Rights, Ethical, Technological & Idealistic Association the Theatrical and Tango Group of Immigrants’ Place, and much more.",/post/748,2017-03-13T17:34:27.000Z,2017-03-13T17:34:27.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,1590 4673,v1.0,,"It was established in 2004 on the initiative of Antiracist Initiative of Thessaloniki and since 2009 it is housed in a historic area of the city center. Beyond the Antiracist Initiative, its 3 floors currently house approximately 20 movements, labor, migration and social collectives, assemblies and other initiatives, like theatrical and cultural groups.",/post/748,2017-03-13T17:34:17.000Z,2017-03-13T17:34:17.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,52 7852,v1.0,,"The Centre caters to the needs of immigrants, homeless, unemployed, low-income pensioners and locals in general, who have the opportunity to meet basic and social needs. This extends from food and clothing to socializing in the clubroom of the Centre. It is also open to local and foreign collectivities, such as theatrical groups or other alternative schemes that can’t afford much money to rent a place in order to operate. And is accessed by both Greeks and immigrants (especially children) who lack educational opportunities.",/post/748,2017-03-13T17:34:07.000Z,2017-03-13T17:34:07.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,956 9418,v1.0,,"The Migrants Social Centre is a multifunctional space of solidarity in practice towards immigrants and at the same time serves as an open social center and meeting point for various movements and political resistance groups. The Centre caters to the needs of immigrants, homeless, unemployed, low-income pensioners and locals in general, who have the opportunity to meet basic and social needs. This extends from food and clothing to socializing in the clubroom of the Centre. It is also open to local and foreign collectivities, such as theatrical groups or other alternative schemes that can’t afford much money to rent a place in order to operate. And is accessed by both Greeks and immigrants (especially children) who lack educational opportunities. It was established in 2004 on the initiative of Antiracist Initiative of Thessaloniki and since 2009 it is housed in a historic area of the city center. Beyond the Antiracist Initiative, its 3 floors currently house approximately 20 movements, labor, migration and social collectives, assemblies and other initiatives, like theatrical and cultural groups. Initiatives of the Migrants Social Centre also include voluntary actions of practical solidarity groups such as “Out of the Classroom” that offers free courses in Greeks and immigrants (Greek and foreign language lessons, additional teaching to Junior High School and High School students). It also runs: a Solidarity Kitchen that offers meal and companionship to hundreds of people every weekend. Room39 that gathers and distributes relief items and food to refugees and homeless. A Legal Support Group for refugees and immigrants and many other temporary or permanent activities. Other collectivities that reside independently in the Migrants Social Centre are Indigenous People of Biafra, the Network for Unemployed and Precarious Workers, the Network for Political and Social Rights, Ethical, Technological & Idealistic Association the Theatrical and Tango Group of Immigrants’ Place, and much more. We are reaching out to citizens and other local organizations through a dedicated website and our Facebook page, which includes all information that needs to be transferred to people in need. Additionally, we keep cooperating with collectivities all over the city and not only with these that are housed in the Migrants Social Centre, like the local social solidarity clinic. In the Solidarity Kitchen, people who currently offer their services come from those who initially asked to have access to lunch on weekends. Also, we would like to highlight the contribution of Room 39’s members, who deliver meals to homeless people all over the city center on bikes. It is the only initiative in Thessaloniki that serves food directly to the public spots where homeless people live every night. It is a completely self-organised place, depending exclusively on volunteers’ work and all of us who participate in it. Financially, the Social Centre is solely supported by donations of the participating groups and the profits of the clubroom. Today, the Migrants Social Centre faces many financial challenges, putting at risk its continuity and operations. Our Refugee Hostel was for years the only hosting structure for immigrants in Thessaloniki, offering free accommodation to 70 adults and children. When the Public Electricity Company cut the power in the hostel due to high debt, we reconnected the supply to our name. The existing debt will stop all activities and solidarity action housed and supported by the Centre. This includes the solidarity courses for locals and immigrants, the kitchen, the collection and distribution of relief items. Therefore, we address solidarity collectives in Greece and abroad, asking for contributions to repay this debt.",/post/748,2017-03-13T17:33:54.000Z,2017-03-13T17:33:54.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,1308 8743,v1.0,,"he Migrants Social Centre is a multifunctional space of solidarity in practice towards immigrants and at the same time serves as an open social center and meeting point for various movements and political resistance groups. The Centre caters to the needs of immigrants, homeless, unemployed, low-income pensioners and locals in general, who have the opportunity to meet basic and social needs. This extends from food and clothing to socializing in the clubroom of the Centre. It is also open to local and foreign collectivities, such as theatrical groups or other alternative schemes that can’t afford much money to rent a place in order to operate. And is accessed by both Greeks and immigrants (especially children) who lack educational opportunities. It was established in 2004 on the initiative of Antiracist Initiative of Thessaloniki and since 2009 it is housed in a historic area of the city center. Beyond the Antiracist Initiative, its 3 floors currently house approximately 20 movements, labor, migration and social collectives, assemblies and other initiatives, like theatrical and cultural groups. Initiatives of the Migrants Social Centre also include voluntary actions of practical solidarity groups such as “Out of the Classroom” that offers free courses in Greeks and immigrants (Greek and foreign language lessons, additional teaching to Junior High School and High School students). It also runs: a Solidarity Kitchen that offers meal and companionship to hundreds of people every weekend. Room39 that gathers and distributes relief items and food to refugees and homeless. A Legal Support Group for refugees and immigrants and many other temporary or permanent activities. Other collectivities that reside independently in the Migrants Social Centre are Indigenous People of Biafra, the Network for Unemployed and Precarious Workers, the Network for Political and Social Rights, Ethical, Technological & Idealistic Association the Theatrical and Tango Group of Immigrants’ Place, and much more. We are reaching out to citizens and other local organizations through a dedicated website and our Facebook page, which includes all information that needs to be transferred to people in need. Additionally, we keep cooperating with collectivities all over the city and not only with these that are housed in the Migrants Social Centre, like the local social solidarity clinic. In the Solidarity Kitchen, people who currently offer their services come from those who initially asked to have access to lunch on weekends. Also, we would like to highlight the contribution of Room 39’s members, who deliver meals to homeless people all over the city center on bikes. It is the only initiative in Thessaloniki that serves food directly to the public spots where homeless people live every night. It is a completely self-organised place, depending exclusively on volunteers’ work and all of us who participate in it. Financially, the Social Centre is solely supported by donations of the participating groups and the profits of the clubroom. Today, the Migrants Social Centre faces many financial challenges, putting at risk its continuity and operations. Our Refugee Hostel was for years the only hosting structure for immigrants in Thessaloniki, offering free accommodation to 70 adults and children. When the Public Electricity Company cut the power in the hostel due to high debt, we reconnected the supply to our name. The existing debt will stop all activities and solidarity action housed and supported by the Centre. This includes the solidarity courses for locals and immigrants, the kitchen, the collection and distribution of relief items. Therefore, we address solidarity collectives in Greece and abroad, asking for contributions to repay this debt.",/post/748,2017-03-13T17:33:43.000Z,2017-03-13T17:33:43.000Z,748,3323,AnnotatorStore::TextAnnotation,,,,,,,,,715,1150 9994,v1.0,,"What can i bring to another organization, that also better myself as a person and is easily realizable?",/post/541,2017-03-13T17:32:18.000Z,2017-03-13T17:32:18.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1445 11264,v1.0,,"Finding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow.",/post/541,2017-03-13T17:31:56.000Z,2017-03-13T17:31:56.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1778 7030,v1.0,,4) Documentation: what does it mean? for us it has been in writing.,/post/541,2017-03-13T17:31:48.000Z,2017-03-13T17:31:48.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,738 8934,v1.0,,"Winnie reacted that your own people's trust is a constant, but gaining the network's trust is more difficult.",/post/541,2017-03-13T17:31:21.000Z,2017-03-13T17:31:21.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1199 11263,v1.0,,"‘Trust is an enabler to use the resources. How can that be created inside an eclectic group like this?’,asked Yannick.  For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.",/post/541,2017-03-13T17:31:01.000Z,2017-03-13T17:31:01.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1778 7502,v1.0,,"SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that.",/post/541,2017-03-13T17:30:52.000Z,2017-03-13T17:30:52.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,871 9739,v1.0,,"Previously office building occupied by the French community which had been vacant for 15 years. Groups of squatters moved in and made a deal with the owner to run different workshops - bike fixing, woodwork, IT etc. Some interesting facts from his paper: -social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands -7 % of houses totally empty -1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years From squatting to a participatory process -  a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.  In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space! It's an office building, which means people can change the layout easily. Difference between buildings for profit and the testcase of 123: Profit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised. Loic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.  Important detail: Stairs instead of working elevators as a social control mechanism. Loic is trying to give more visibility to housing solutions - it's not easy, take good contact with the owner! First you squad, then you talk.",/post/541,2017-03-13T17:30:24.000Z,2017-03-13T17:30:24.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1393 7889,v1.0,,"Previously office building occupied by the French community which had been vacant for 15 years. Groups of squatters moved in and made a deal with the owner to run different workshops - bike fixing, woodwork, IT etc. Some interesting facts from his paper: -social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands -7 % of houses totally empty -1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years From squatting to a participatory process -  a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.  In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space! It's an office building, which means people can change the layout easily. Difference between buildings for profit and the testcase of 123: Profit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised. Loic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.  Important detail: Stairs instead of working elevators as a social control mechanism. Loic is trying to give more visibility to housing solutions - it's not easy, take good contact with the owner! First you squad, then you talk.",/post/541,2017-03-13T17:30:12.000Z,2017-03-13T17:30:12.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,962 5697,v1.0,,"eople understood there is a strategy and structure, so they get a sense of belonging. If everybody contributes something, we become as a community.",/post/541,2017-03-13T17:29:38.000Z,2017-03-13T17:29:38.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,357 11526,v1.0,,"s seen encouraging results after talking to her mayor, and right now she's trying to create a youth platform for citizenship and sports - an IDEO design type of commune.",/post/541,2017-03-13T17:29:22.000Z,2017-03-13T17:29:22.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1863 9760,v1.0,,"Business Improvements Design Belgium (BIDs): they are about creating a new geographical zone and linking community businesses to it, ideal for private - public partnerships.",/post/541,2017-03-13T17:29:11.000Z,2017-03-13T17:29:11.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1396 9819,v1.0,,"Projects to make the sports clubs more inclusive because they were closed for refugees; also hardly accessible by children with special needs. So with other people they pushed for inclusivity and speaking to the Belgium Football Union, but also preparing a strategy for the next few years.",/post/541,2017-03-13T17:28:53.000Z,2017-03-13T17:28:53.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1424 4672,v1.0,,"Projects to make the sports clubs more inclusive because they were closed for refugees; also hardly accessible by children with special needs. So with other people they pushed for inclusivity and speaking to the Belgium Football Union, but also preparing a strategy for the next few years.",/post/541,2017-03-13T17:28:42.000Z,2017-03-13T17:28:42.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,52 7981,v1.0,,"Projects to make the sports clubs more inclusive because they were closed for refugees; also hardly accessible by children with special needs. So with other people they pushed for inclusivity and speaking to the Belgium Football Union, but also preparing a strategy for the next few years.",/post/541,2017-03-13T17:28:22.000Z,2017-03-13T17:28:22.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,987 4671,v1.0,,"The challenge: another way to make social work, so not only people that studied for the social sector. To take the social dream out of the social field and bring it to other fields. Because they are fed up of all the social help, they just want a happy life: it is not only important to have an home, but also to create great moments. To create equal relationships. break racism against the poor.",/post/541,2017-03-13T17:27:56.000Z,2017-03-13T17:27:56.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,52 11248,v1.0,,"Doucheflux helps them to get more self-esteem, but it is difficult because sometimes it feel that we are infantilizing them, and if you do that mistake they don't come anymore",/post/541,2017-03-13T17:27:42.000Z,2017-03-13T17:27:42.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1775 7219,v1.0,,"4 years old project, we are opening a huge house to help people out of the marge, we will have 20 showers, 150 lockers, medical service, laundries, a pharmecy, and other needed services for this part of people, which is missing  Second pillar is activities: DoucheFlux is 50m2 at the moment, so we work at other spaces, we make activities that promote self esteem for these people, they are totally embedded in the system, they can't escape what is happening about them, they find it difficult to get further, so their mechanism is that they just stop trying, because they don't feel empowered anymore Doucheflux helps them to get more self-esteem, but it is difficult because sometimes it feel that we are infantilizing them, and if you do that mistake they don't come anymore The challenge: another way to make social work, so not only people that studied for the social sector. To take the social dream out of the social field and bring it to other fields. Because they are fed up of all the social help, they just want a happy life: it is not only important to have an home, but also to create great moments. To create equal relationships. break racism against the poor.",/post/541,2017-03-13T17:27:36.000Z,2017-03-13T17:27:36.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,782 10442,v1.0,,"4 years old project, we are opening a huge house to help people out of the marge, we will have 20 showers, 150 lockers, medical service, laundries, a pharmecy, and other needed services for this part of people, which is missing  Second pillar is activities: DoucheFlux is 50m2 at the moment, so we work at other spaces, we make activities that promote self esteem for these people, they are totally embedded in the system, they can't escape what is happening about them, they find it difficult to get further, so their mechanism is that they just stop trying, because they don't feel empowered anymore Doucheflux helps them to get more self-esteem, but it is difficult because sometimes it feel that we are infantilizing them, and if you do that mistake they don't come anymore The challenge: another way to make social work, so not only people that studied for the social sector. To take the social dream out of the social field and bring it to other fields. Because they are fed up of all the social help, they just want a happy life: it is not only important to have an home, but also to create great moments. To create equal relationships. break racism against the poor.",/post/541,2017-03-13T17:27:26.000Z,2017-03-13T17:27:26.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1549 11375,v1.0,,"Loic: The core needs he noticed in others is to learn information about what others are doing, get information about collaborations; and second, the need for visibility. Personally he has come here for housing project, but Winnie's story is useful to hear also professionally.",/post/541,2017-03-13T17:25:43.000Z,2017-03-13T17:25:43.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1826 4898,v1.0,,"SIDENOTE: Multiple times in the discussion a same metaphor that was introduced by Alkasem was used by the participants. He noted that our western society made us all ‘boxpeople’. He finds it so strange that we are all living next to each other, but that we aren’t interacting better. We put old people in a home and (mentally) sick people in a closed environment. I found that metaphor really strong and something to use when we are trying to connect multiple organizations.",/post/541,2017-03-13T17:25:32.000Z,2017-03-13T17:25:32.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,112 11280,v1.0,,Gilles: Strongly believes in open source and data sharing solutions - everyone is looking for someone who can help them with a solution eg. to develop a website to help the project moving.,/post/541,2017-03-13T17:25:05.000Z,2017-03-13T17:25:05.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1783 11279,v1.0,,"Adeline: Everybody here came with a need, to find ways to come up with a solution, tous le monde est venue avec un besoin, elle espère aider à trouver une solution.",/post/541,2017-03-13T17:24:56.000Z,2017-03-13T17:24:56.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1783 10277,v1.0,,I worked for several years around the project of self-care.,/post/541,2017-03-13T17:24:41.000Z,2017-03-13T17:24:41.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1499 7758,v1.0,,"Jean: There is a desire of using new ways of technology to organize his place within the society je cherche a me socialiser, trouver une occupation profitable, mais je voudrais rester dans la marginalité. Find a meaning in his life, but stay at the edge of society.",/post/541,2017-03-13T17:24:26.000Z,2017-03-13T17:24:26.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,926 8473,v1.0,,"Jean: There is a desire of using new ways of technology to organize his place within the society je cherche a me socialiser, trouver une occupation profitable, mais je voudrais rester dans la marginalité. Find a meaning in his life, but stay at the edge of society.",/post/541,2017-03-13T17:23:00.000Z,2017-03-13T17:23:00.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1122 10860,v1.0,,"Jean: There is a desire of using new ways of technology to organize his place within the society je cherche a me socialiser, trouver une occupation profitable, mais je voudrais rester dans la marginalité. Find a meaning in his life, but stay at the edge of society.",/post/541,2017-03-13T17:22:50.000Z,2017-03-13T17:22:50.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1663 10835,v1.0,,"Alkasem: i have question to all of you: where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:  the core family concept has been broken down - after uni and growing up you have to carry yourself; so there is no glue which keeps family together in North Africa systems are weak -so there has always been a cultural support; whereas in the West the system is supposed to take care of everything Here (in the West) you are free, but alone! ""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link)",/post/541,2017-03-13T17:22:32.000Z,2017-03-13T17:22:32.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1651 6304,v1.0,,"Alkasem: i have question to all of you: where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:  the core family concept has been broken down - after uni and growing up you have to carry yourself; so there is no glue which keeps family together in North Africa systems are weak -so there has always been a cultural support; whereas in the West the system is supposed to take care of everything Here (in the West) you are free, but alone! ""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link)",/post/541,2017-03-13T17:22:17.000Z,2017-03-13T17:22:17.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,449 7851,v1.0,,"Alkasem: i have question to all of you: where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:  the core family concept has been broken down - after uni and growing up you have to carry yourself; so there is no glue which keeps family together in North Africa systems are weak -so there has always been a cultural support; whereas in the West the system is supposed to take care of everything Here (in the West) you are free, but alone! ""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link)",/post/541,2017-03-13T17:22:10.000Z,2017-03-13T17:22:10.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,956 10769,v1.0,,"Lotfi: Nous étions trois entités, je suis avec Selvi, nous avons eu une maison de repos, Xander travaille avec des enfants autiste, Alkasem, il espère qu'il pourrait faire son métier de médecin. On a parlé d'intergénérationnel, comment créer des mini société ou il y a des échange. Au delà d'un certain âge: il y a pas de support. Alkasem a fait la parallèle de comment le système de soin ce passe en moyen orient, une culture musulman de l'entraide. On impose de donner de l'argent au pauvre. Tout le monde vie ici dans sa bulle, il n’y a pas de transversalité.",/post/541,2017-03-13T17:21:56.000Z,2017-03-13T17:21:56.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1641 8905,v1.0,,"Lotfi: Nous étions trois entités, je suis avec Selvi, nous avons eu une maison de repos, Xander travaille avec des enfants autiste, Alkasem, il espère qu'il pourrait faire son métier de médecin. On a parlé d'intergénérationnel, comment créer des mini société ou il y a des échange. Au delà d'un certain âge: il y a pas de support. Alkasem a fait la parallèle de comment le système de soin ce passe en moyen orient, une culture musulman de l'entraide. On impose de donner de l'argent au pauvre. Tout le monde vie ici dans sa bulle, il n’y a pas de transversalité.",/post/541,2017-03-13T17:21:33.000Z,2017-03-13T17:21:33.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1194 9551,v1.0,,"Laurent: 3 different projects, which have something in common, with people being excluded by the system because they are poor or sick.",/post/541,2017-03-13T17:20:57.000Z,2017-03-13T17:20:57.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1341 7286,v1.0,,"Laurent: 3 different projects, which have something in common, with people being excluded by the system because they are poor or sick. Empowerment for these populations is at the core of each project. Behind each there is a diagnosis of how the excluded population can have lost access to institutional support. If something is possible, it is on the edge, where people can regain access to their lives.",/post/541,2017-03-13T17:20:48.000Z,2017-03-13T17:20:48.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,802 7318,v1.0,,"Laurent: 3 different projects, which have something in common, with people being excluded by the system because they are poor or sick. Empowerment for these populations is at the core of each project. Behind each there is a diagnosis of how the excluded population can have lost access to institutional support. If something is possible, it is on the edge, where people can regain access to their lives.",/post/541,2017-03-13T17:20:35.000Z,2017-03-13T17:20:35.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,805 6392,v1.0,,"Winnie: he noticed that every project has some community in it, but communities experience different ways of being in the world, different incentives for being in a community.",/post/541,2017-03-13T17:20:25.000Z,2017-03-13T17:20:25.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,472 8393,v1.0,,2) social networks: people and groups which move fluidly across organisations and shaping the norms as they wish,/post/541,2017-03-13T17:18:29.000Z,2017-03-13T17:18:29.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1105 10302,v1.0,,"1) self selection: individuals get involved in something because they want to, and contribute because they want to",/post/541,2017-03-13T17:18:19.000Z,2017-03-13T17:18:19.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1507 9148,v1.0,,Edgeryders is an open source platform that combines online and offline moments to find through other ways than the mainstream solutions for sociatal problems. Mission is to support members to create self-sustaining projects.,/post/541,2017-03-13T17:17:43.000Z,2017-03-13T17:17:43.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1257 10312,v1.0,,Edgeryders is an open source platform that combines online and offline moments to find through other ways than the mainstream solutions for sociatal problems. Mission is to support members to create self-sustaining projects.,/post/541,2017-03-13T17:17:36.000Z,2017-03-13T17:17:36.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1509 9993,v1.0,,"Can healthcare systems work like Wikipedia, StackOverflow or other massively coordinated systems with very limited control and overhead?",/post/541,2017-03-13T17:17:24.000Z,2017-03-13T17:17:24.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1445 8394,v1.0,,Without surprise the most active and responsive people came from the makers and changemakers scene. They immediately connected to the higher goal and activated their network,/post/541,2017-03-13T16:48:12.000Z,2017-03-13T16:48:12.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1106 9512,v1.0,,"The least responsive network where the politicians, coming back from their annual non-active period it was difficult to activate them. Every attempt ended up in a dead end.",/post/541,2017-03-13T16:47:55.000Z,2017-03-13T16:47:55.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1330 9876,v1.0,,"Finally we had one person that helped think out of the box in a really disruptive way. He was a Syrian refugee that had to postpone his medical studies/Ph.D.  To flee the country and gave us a lot of material to think about. He saw us as 'boxpeople', living in a bubble and putting others in bubbles. Elderly, homeless people, psychological ill are all given a space outside society. They maybe didn't have the most efficient healthcare system, but he explained it was much more humane. It made us think a lot about how we see care in the west. He was also the person that pointed out the problem of trust we create in the west.",/post/541,2017-03-13T16:46:34.000Z,2017-03-13T16:46:34.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1436 11262,v1.0,,"2.    How do we create trust between unbeknown organizations that share the same way of thinking? We had a great test case: around 15 organizations that came together for the first time, all sharing the same ideas and willing to collaborate to learn from each other. After a lot of discussions we discovered trust was the main issue.  So we tried to frame how trust is built and concluded that we needed to start with small projects with each other, these projects don’t need to be longer  than a couple of minutes/hours, this way people start to bond. After that each following project can become more complex to create a stronger bodn between the participants.  We listed a couple of thing each would do, to immidiate have a Proof Of Concept.",/post/541,2017-03-13T16:45:16.000Z,2017-03-13T16:45:16.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,1778 6914,v1.0,,"After the first round of discussions we noticed that all kind of organizations are ready to become more collaborative, but they are missing the step-by-step tools to achieve this. They all are conscious about the power of collaboration, but have never had successful long lasting experiences. The goal of this workshop was to find the key elements to make a collaborative initiative succeed, this leads us to the second point.",/post/541,2017-03-13T16:45:06.000Z,2017-03-13T16:45:06.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,712 5528,v1.0,,"After the first round of discussions we noticed that all kind of organizations are ready to become more collaborative, but they are missing the step-by-step tools to achieve this. They all are conscious about the power of collaboration, but have never had successful long lasting experiences. The goal of this workshop was to find the key elements to make a collaborative initiative succeed, this leads us to the second point.",/post/541,2017-03-13T16:45:00.000Z,2017-03-13T16:45:00.000Z,541,3323,AnnotatorStore::TextAnnotation,,,,,,,,,508,326 6482,v1.0,,"This is a story how a new initiative Soundsight Training promises help for blind and visually impaired gain more mobility and independence. The website for Soundsight Training is http://www.soundsight.ch   Developing a technology that could sense and reconstruct reality for blind people can be one approach. But, a technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings is actually empowering then to be independent from aid devices.",/post/701,2017-03-13T16:18:34.000Z,2017-03-13T16:18:34.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,485 11525,v1.0,,"One part of the story I don't understand is: where does the transformative muscle come from? The arena you describe was made of 20 people. That's not a large number, certainly not large enough, in and of itself, to secure legitimacy. And yet, you guys were able to wield real influence, with the city giving you permission to try things out. How did this happen? Did you have a ""bureaucrat hacker"" in the administration championing you?",/post/33762,2017-03-13T16:16:24.000Z,2017-03-13T16:16:24.000Z,33762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1863 7519,v1.0,,I suppose you needed some financial support to get the Living Street experiment going. Evaluation is a particularly hard task to get people to do as voluntary work. Where did that come from?,/post/33762,2017-03-13T16:16:00.000Z,2017-03-13T16:16:00.000Z,33762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,876 11514,v1.0,,"The Trojan Lab and the volunteers from the Living streets are now helping the local government to think about and rethink how Living Streets would look like without the role of the Trojan Lab. What’s in it for the city administration: it involves bringing different public stakeholders together with those who have participated from the streets, to think how it can continue in the upcoming years. Are you also dreaming of a living street? Share your stories with the pioneers of Ghent.",/post/33746,2017-03-13T16:15:31.000Z,2017-03-13T16:15:31.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1862 11494,v1.0,,"The Trojan Lab and the volunteers from the Living streets are now helping the local government to think about and rethink how Living Streets would look like without the role of the Trojan Lab. What’s in it for the city administration: it involves bringing different public stakeholders together with those who have participated from the streets, to think how it can continue in the upcoming years. Are you also dreaming of a living street? Share your stories with the pioneers of Ghent.",/post/33746,2017-03-13T16:15:25.000Z,2017-03-13T16:15:25.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1860 5717,v1.0,,"The project is driven by the communities in the city. The Trojan Lab started the mapping and year after year new people were interested to help and lead the process, or involve others. The quality check was always done by the organization. Pieter: “In terms of social cohesion, it’s crystal clear after 51 Living Street-processes in Ghent, we created a new space at street level that improves relations between residents, between the city government and his residents and we discovered innovative solutions to redesign the street and park the car at a neighborhood parking.",/post/33746,2017-03-13T16:15:00.000Z,2017-03-13T16:15:00.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,361 4499,v1.0,,"Pieter: “We started engaging people with the question “What if?”; mapping the ideas and also the interests of people. “How do I look at my neighborhood?” from the perspective of social security, traffic, safety, more green in the streets,... For each remark we mobilize our network and creativity to support initiators from each street to find solutions. After that process is done, the people come up with a vision for their living street, that will be implemented in practice. Evaluation is an ongoing process, so things can be changed during it.”",/post/33746,2017-03-13T16:14:46.000Z,2017-03-13T16:14:46.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,5 7935,v1.0,,"Pieter: “We started engaging people with the question “What if?”; mapping the ideas and also the interests of people. “How do I look at my neighborhood?” from the perspective of social security, traffic, safety, more green in the streets,... For each remark we mobilize our network and creativity to support initiators from each street to find solutions. After that process is done, the people come up with a vision for their living street, that will be implemented in practice. Evaluation is an ongoing process, so things can be changed during it.”",/post/33746,2017-03-13T16:14:38.000Z,2017-03-13T16:14:38.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,978 9992,v1.0,,"1) How can we evolve from street park to neighborhood parking? 2) How can we turn grey streets to more lively/colorful streets? 3) If we create spaces on street level where people can meet each other and come together in a peaceful way, will this strengthen social cohesion in the neighborhood?",/post/33746,2017-03-13T16:14:13.000Z,2017-03-13T16:14:13.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1445 8969,v1.0,,"Pieter: “We evaluated it with the city administration and wanted to carry on. We needed a legal status for two reasons: first, to be legally covered when things go wrong, and be able to protect ourselves and the project. A second is that we were starting to work with money, we had private sponsors and companies saying they were interested in what we are trying to discover. We organized an NGO, very close to the city organisation, because we wanted to change the system.” The mission of that NGO (The Trojan Lab) was - within the timeframe of 5 years, and importantly, in between 2 elections - organizing as many as possible experiments and gather lessons, see what dynamics all this can start. We’ll stop before the elections to make sure that every political group has the possibility to take the lessons and translate them into the government system.",/post/33746,2017-03-13T16:14:01.000Z,2017-03-13T16:14:01.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1207 11524,v1.0,,"identified, that needed to be made to achieve that vision. “Hard choices” they called them: two of them were the basis for the Living Street project. So: 1) The arena had the vision 2) They determined some critical hard choices, policy making decisions 3) At that point the arena had developed about 10 ideas for how this can be put in practice. Living Streets was one of these ideas. Pieter: “After 6 months we pitched these ideas and while the city’s work was done at the time, we didn’t feel we were done. I will always remember that night. These 20 people sat in a bar and said “how can we make our ideas real”. That’s how it all started.”",/post/33746,2017-03-13T16:13:46.000Z,2017-03-13T16:13:46.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1863 9488,v1.0,,"1) The arena had the vision 2) They determined some critical hard choices, policy making decisions 3) At that point the arena had developed about 10 ideas for how this can be put in practice. Living Streets was one of these ideas.",/post/33746,2017-03-13T16:13:36.000Z,2017-03-13T16:13:36.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1322 11319,v1.0,,"“Local authorities are no longer perceived as the only party expected to solve complex issues in cities” (source) This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens. Living Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people’s relationship with city officials.",/post/33746,2017-03-13T16:12:44.000Z,2017-03-13T16:12:44.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1805 8788,v1.0,,"The story begins with the city administration itself: in 2011 it was part of a European program about the transition to a climate neutral city. The result was that we should rethink the mobility system in order to become climate neutral. Beginning of 2012, the city of Ghent started a transition arena. Pieter was one of the 20 people involved in this arena, as he used to work for the National Railway Company and involved in sustainable mobility development. These 20 people were brought together, and had the opportunity to be critical on the current system but also had the power of imagining a future vision, how it could be better.",/post/33746,2017-03-13T16:12:33.000Z,2017-03-13T16:12:33.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1155 10706,v1.0,,"“Local authorities are no longer perceived as the only party expected to solve complex issues in cities” (source) This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens. Living Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people’s relationship with city officials.",/post/33746,2017-03-13T16:12:19.000Z,2017-03-13T16:12:19.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1631 9301,v1.0,,"“Local authorities are no longer perceived as the only party expected to solve complex issues in cities” (source) This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens. Living Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people’s relationship with city officials.",/post/33746,2017-03-13T16:12:13.000Z,2017-03-13T16:12:13.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1283 8923,v1.0,,"“Local authorities are no longer perceived as the only party expected to solve complex issues in cities” (source) This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens. Living Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people’s relationship with city officials.",/post/33746,2017-03-13T16:12:00.000Z,2017-03-13T16:12:00.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,1197 5447,v1.0,,"“Local authorities are no longer perceived as the only party expected to solve complex issues in cities” (source) This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens. Living Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people’s relationship with city officials.",/post/33746,2017-03-13T16:11:54.000Z,2017-03-13T16:11:54.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,311 5469,v1.0,,"This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens. Living Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people’s relationship with city officials.",/post/33746,2017-03-13T16:11:48.000Z,2017-03-13T16:11:48.000Z,33746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6595,313 9770,v1.0,,"The Reef and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time. There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?",/post/6850,2017-03-13T15:20:29.000Z,2017-03-13T15:20:29.000Z,6850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1401 6169,v1.0,,"and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time. There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?",/post/6850,2017-03-13T15:20:20.000Z,2017-03-13T15:20:20.000Z,6850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,437 8815,v1.0,,"and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time. There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?",/post/6850,2017-03-13T15:20:01.000Z,2017-03-13T15:20:01.000Z,6850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1162 9417,v1.0,,"Five years later and having had some breakthroughs as we think together about how to live and work meaningfully in the 21st century, it feels it's now time to look for a physical home. We call it The Reef and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time. There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?",/post/6850,2017-03-13T15:19:46.000Z,2017-03-13T15:19:46.000Z,6850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1308 7501,v1.0,,"It seems like you really know what you want from life, which is something not many of us can say even those who value freedom just as much and above all. I have been working on Edgeryders and putting a lot of my energy into building the kind of thriving network you mention but using an Internet island of people who think and dream alike.",/post/6850,2017-03-13T15:19:36.000Z,2017-03-13T15:19:36.000Z,6850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,869 9769,v1.0,,"Over the last year or so, I did a lot of work designing and fabricating two, 40ft high cube containers which I have created all on site at the Castle. My aim was firstly to create a purpose built mobile event venue and an alternative workshop space. The design includes a large indoor/outdoor space between them, with a mobile roof covering and a neat modular floor system.   More work is needed however to bring them to the standard required for holding events, and with the added potential as developing it further as a demo concept home. This project has me excited, motivated and inspired. I see it as a real positive alternative to the mainstream approach of building another traditional home.  I took the opportunity to create a new start in life, moving towards a positive creative lifestyle.  Freedom is my top Value and this approach has given me that sense of freedom to move.   Also it gives me the ability, to build my own home for a lot cheaper than traditional building. I feel we all need to simplify our lives, to our basic needs and have time to enjoy the - true simple pleasures and treasures in life. I rekoned, If I care for the Castle, the Castle will Care for Me and many more to come...",/post/815,2017-03-13T15:19:15.000Z,2017-03-13T15:19:15.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1401 7500,v1.0,,"Over the last year or so, I did a lot of work designing and fabricating two, 40ft high cube containers which I have created all on site at the Castle. My aim was firstly to create a purpose built mobile event venue and an alternative workshop space. The design includes a large indoor/outdoor space between them, with a mobile roof covering and a neat modular floor system.   More work is needed however to bring them to the standard required for holding events, and with the added potential as developing it further as a demo concept home. This project has me excited, motivated and inspired. I see it as a real positive alternative to the mainstream approach of building another traditional home.  I took the opportunity to create a new start in life, moving towards a positive creative lifestyle.  Freedom is my top Value and this approach has given me that sense of freedom to move.   Also it gives me the ability, to build my own home for a lot cheaper than traditional building. I feel we all need to simplify our lives, to our basic needs and have time to enjoy the - true simple pleasures and treasures in life.",/post/815,2017-03-13T15:18:55.000Z,2017-03-13T15:18:55.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,869 8814,v1.0,,"Recently when An Ait Eile approached me about with the Monastery concept I was very interested. It was easy to see how it could map onto what my hopes and plans for the castle. So we held a PreMonastery event which was a great success. And since that I with Kashi from Cosáin, a local wellness group hosted an amazing “Butterfly Wings” weekend. (Therapeutic Painting Workshop)",/post/815,2017-03-13T15:16:48.000Z,2017-03-13T15:16:48.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1162 6123,v1.0,,"I contacted the new owners to see where they stood and a few months later I sent them my strong proposal where I aimed to take on the castle as is, and start an artist’s residence and a cultural music venue. Thankfully they accepted my proposal and we have a great Win Win arrangement in place. I had a lot of red tape and restrictions holding things back however I’ve been pretty much living my dream here at the castle for 4 amazing years. It’s a perfect space /place for artists to live and work together. It certainly is for me, I love it here, so much because it just feels like the right path for me and also I got to connect with so many creative, talented people here.  When my Aunt had the Castle as B&B with a strong  traditional music energy here, Dusty Springfield, Sinead O Connor, Shane Mac Gowan from the Pogues, all stayed here on occasion, back in the day. Dusty wrote in the guest book, it was her special healing place.",/post/815,2017-03-13T15:15:54.000Z,2017-03-13T15:15:54.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,432 6172,v1.0,,"I contacted the new owners to see where they stood and a few months later I sent them my strong proposal where I aimed to take on the castle as is, and start an artist’s residence and a cultural music venue. Thankfully they accepted my proposal and we have a great Win Win arrangement in place. I had a lot of red tape and restrictions holding things back however I’ve been pretty much living my dream here at the castle for 4 amazing years. It’s a perfect space /place for artists to live and work together. It certainly is for me, I love it here, so much because it just feels like the right path for me and also I got to connect with so many creative, talented people here.  When my Aunt had the Castle as B&B with a strong  traditional music energy here, Dusty Springfield, Sinead O Connor, Shane Mac Gowan from the Pogues, all stayed here on occasion, back in the day. Dusty wrote in the guest book, it was her special healing place.",/post/815,2017-03-13T15:15:45.000Z,2017-03-13T15:15:45.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,438 9416,v1.0,,"I contacted the new owners to see where they stood and a few months later I sent them my strong proposal where I aimed to take on the castle as is, and start an artist’s residence and a cultural music venue. Thankfully they accepted my proposal and we have a great Win Win arrangement in place. I had a lot of red tape and restrictions holding things back however I’ve been pretty much living my dream here at the castle for 4 amazing years. It’s a perfect space /place for artists to live and work together. It certainly is for me, I love it here, so much because it just feels like the right path for me and also I got to connect with so many creative, talented people here.  When my Aunt had the Castle as B&B with a strong  traditional music energy here, Dusty Springfield, Sinead O Connor, Shane Mac Gowan from the Pogues, all stayed here on occasion, back in the day. Dusty wrote in the guest book, it was her special healing place.",/post/815,2017-03-13T15:15:34.000Z,2017-03-13T15:15:34.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1308 4735,v1.0,,"While working on other creative projects, I also developed a therapeutic painting Workshop fusing my passion, with my training and skills in NLP (Neuro Linguistic Programming) and Timeline therapy. I call it “Butterfly Wings”. It was suddenly the time to put it into action.  I had recently separated from my wife and was seeking many new positives changes in my Life.  I started searching for a healing place to host my therapeutic workshop.",/post/815,2017-03-13T15:15:11.000Z,2017-03-13T15:15:11.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,62 10903,v1.0,,"kids. While working on other creative projects, I also developed a therapeutic painting Workshop fusing my passion, with my training and skills in NLP (Neuro Linguistic Programming) and Timeline therapy. I call it “Butterfly Wings”. It was suddenly the time to put it into action.  I had recently separated from my wife and was seeking many new positives changes in my Life.  I started searching for a healing place to host my therapeutic workshop.",/post/815,2017-03-13T15:14:54.000Z,2017-03-13T15:14:54.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,1679 4686,v1.0,,"I discovered my passion for Art activities early in life and haven’t looked back since. Art College taught me the fundamentals of art, but it’s the journey of life that provided me with inspiration.  I feel my Paintings are very personal and reflects my own Timeline of life, In my process of painting I have found doors for me to explore and develop a greater inner spiritual connection to myself and our external  Angels.  I Love to sense and discover connections in life and with wonderful people and enjoy where and how they go…… My exhibition of original oil Paintings hangs in the two large reception rooms of Cregg Castle. I call it the “Gallery of Angels”. It’s a dream space to have my own semi-permanent solo show.  I fell in love early in life and built a little purple cottage in the countryside of Galway.  Lorraine and I got married and had two wonderful boys, Jaeden and Zach. My twin Ivan, a sculptor now living in Whales, and I as young artists took on spaces for exhibitions because we didn't want to charge extra to clients as in commercial galleries. I was always interested in spaces, and ended up building my second home as well, with a purpose built Montessori school which I ran with my wife Lorraine. I took care of the project management and the arty play part. I feel some choose our school because there was a male influence and contribution, and feel it helped with some of the more distant relationships between some hard working fathers and their kids. While working on other creative projects, I also developed a therapeutic painting Workshop fusing my passion, with my training and skills in NLP (Neuro Linguistic Programming) and Timeline therapy. I call it “Butterfly Wings”. It was suddenly the time to put it into action.  I had recently separated from my wife and was seeking many new positives changes in my Life.  I started searching for a healing place to host my therapeutic workshop. My grandfather used to own Cregg Castle and then was passed to my Aunt, so I thought I would visit Cregg and see what the new owners were doing with it. When I got there the Castle was in disrepair and had been sadly boarded up for 4 years. I contacted the new owners to see where they stood and a few months later I sent them my strong proposal where I aimed to take on the castle as is, and start an artist’s residence and a cultural music venue. Thankfully they accepted my proposal and we have a great Win Win arrangement in place. I had a lot of red tape and restrictions holding things back however I’ve been pretty much living my dream here at the castle for 4 amazing years. It’s a perfect space /place for artists to live and work together. It certainly is for me, I love it here, so much because it just feels like the right path for me and also I got to connect with so many creative, talented people here.  When my Aunt had the Castle as B&B with a strong  traditional music energy here, Dusty Springfield, Sinead O Connor, Shane Mac Gowan from the Pogues, all stayed here on occasion, back in the day. Dusty wrote in the guest book, it was her special healing place. I’ve had quite a few artists in residence over the years, come and go, and have hosted many music and cultural events, film and photo shoots, bush craft courses and other random stuff. I have now most parts of the castle as liveable again. Artists have helped me fix up spaces as and we needed them, each artist having a living/studio space and also use of the many large communal spaces. Last year I opened one room for Airbnb guests. I have many foreign visitors all year and they are all delighted to come and stay in a real Irish Castle. https://www.airbnb.ie/rooms/7479769?preview https://www.facebook.com/creggcastlefriends/?pnref=lhc My Pony - Arrow, Donkey - Houdini and Cat - Pixie are a huge contribution to the positive healing energy here. Recently when An Ait Eile approached me about with the Monastery concept I was very interested. It was easy to see how it could map onto what my hopes and plans for the castle. So we held a PreMonastery event which was a great success. And since that I with Kashi from Cosáin, a local wellness group hosted an amazing “Butterfly Wings” weekend. (Therapeutic Painting Workshop) Over the last year or so, I did a lot of work designing and fabricating two, 40ft high cube containers which I have created all on site at the Castle. My aim was firstly to create a purpose built mobile event venue and an alternative workshop space. The design includes a large indoor/outdoor space between them, with a mobile roof covering and a neat modular floor system.   More work is needed however to bring them to the standard required for holding events, and with the added potential as developing it further as a demo concept home. This project has me excited, motivated and inspired. I see it as a real positive alternative to the mainstream approach of building another traditional home.  I took the opportunity to create a new start in life, moving towards a positive creative lifestyle.  Freedom is my top Value and this approach has given me that sense of freedom to move.   Also it gives me the ability, to build my own home for a lot cheaper than traditional building. I feel we all need to simplify our lives, to our basic needs and have time to enjoy the - true simple pleasures and treasures in life. I rekoned, If I care for the Castle, the Castle will Care for Me and many more to come... Alan Murray",/post/815,2017-03-13T15:14:03.000Z,2017-03-13T15:14:03.000Z,815,3323,AnnotatorStore::TextAnnotation,,,,,,,,,782,60 6094,v1.0,,something which would be helpful is information about one time costs and running costs involved for participants? How do they compare to regular market rates for purchasing property in Milano?,/post/29076,2017-03-13T15:12:43.000Z,2017-03-13T15:12:43.000Z,29076,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,428 4757,v1.0,,"@WinniePoncelet for the local coordination I am a huge fan of audio recordings. Especially if the group is not huge, but maybe not everyone is on the same page, or arrives later - it is great to catch up, or look up things you didn't get the first time around. Also if you eventually want to share parts with another group it gets much easier. Either by writing a (late) summary or (if in English) just pushing part of the convo to them. One nice thing is that a written summary posted will probably have a high fraction of the key terms that are relevant for ethnographic analysis.",/post/25699,2017-03-13T15:12:14.000Z,2017-03-13T15:12:14.000Z,25699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,74 10542,v1.0,,"Also, build informal social events where people just meet. In what we do ""sales"" basically means really understanding what people you come across need and connect it with something you are doing. Then there's the research work to understand how they can put money into hiring you. Once you know this you can make an offer. So maybe it could work to split these tasks across the collective? We're getting there as we move into a space.",/post/23272,2017-03-13T15:11:31.000Z,2017-03-13T15:11:31.000Z,23272,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1573 8019,v1.0,,"Also, build informal social events where people just meet. In what we do ""sales"" basically means really understanding what people you come across need and connect it with something you are doing. Then there's the research work to understand how they can put money into hiring you. Once you know this you can make an offer. So maybe it could work to split these tasks across the collective? We're getting there as we move into a space.",/post/23272,2017-03-13T15:11:22.000Z,2017-03-13T15:11:22.000Z,23272,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,999 10215,v1.0,,"@Alberto have you figured something out for the sales? I see a similar issue popping up for us and we haven't found an answer yet. In our case, there will be some recurring and organic inflow of missions and we're counting on that to make it easier. Though we really do need long shots as well.",/post/23191,2017-03-13T15:07:12.000Z,2017-03-13T15:07:12.000Z,23191,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1485 10214,v1.0,,"The traditional solution is commission on sales. We found out quickly that it does not work for a company like Edgeryders, small and new and trying to make way. Reason: we agreed we would try to grow based on overdelivery. We would compensate the risk taken by clients in hiring us by being excellent value for money. This means we would be hurt by taking 10% of or budget out to pay for the commission: we need all the money to provide the service. Essentially, we are foregoing commission to invest in reputation.  The problem is mitigated by none of us being only a salesperson. Each person in ER gets intrigued by a project, and tries to sell it because she means to then work on it. With us, the project's champion must lead it; almost always the champion is the one closing the deal, or having worked a lot on it. So we can compensate this person by paying her a little more generously once the sale has been made. It's like an informal commission.",/post/23247,2017-03-13T15:05:32.000Z,2017-03-13T15:05:32.000Z,23247,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1485 8828,v1.0,,"The traditional solution is commission on sales. We found out quickly that it does not work for a company like Edgeryders, small and new and trying to make way. Reason: we agreed we would try to grow based on overdelivery. We would compensate the risk taken by clients in hiring us by being excellent value for money. This means we would be hurt by taking 10% of or budget out to pay for the commission: we need all the money to provide the service. Essentially, we are foregoing commission to invest in reputation.  The problem is mitigated by none of us being only a salesperson. Each person in ER gets intrigued by a project, and tries to sell it because she means to then work on it. With us, the project's champion must lead it; almost always the champion is the one closing the deal, or having worked a lot on it. So we can compensate this person by paying her a little more generously once the sale has been made. It's like an informal commission.",/post/23247,2017-03-13T15:05:13.000Z,2017-03-13T15:05:13.000Z,23247,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 7436,v1.0,,"The trap is what to me is a deadly combination: a lot of flexibility and many roles to choose from, on one hand, and being a generalist .on the other hand. These two can sometimes get you to drift off and not focus on one area at a time -> hence some extra messiness in a flat organisation, as prompted by @Yannick.",/post/25125,2017-02-28T02:20:07.000Z,2017-02-28T02:20:07.000Z,25125,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,851 5864,v1.0,,"think that i'm lucky that i have a mixture of practical and esoteric skills that allow me to find a happy place doing a variety of tasks. I often find that the more 'mindless' a physical task is the more it opens my mind up to thinking about the bigger picture. That said, i have found that i only really excel when i'm allowed to focus on one area at a time. If i need to be a doer, then i can't also be a prepper. The same with preparing and leading; Leading and thinking. I do also think that 'thinking' and 'leading' are mutually exclusive properties. I believe that leaders emerge naturally from each section or strata. You see this kind of strategic leadership built into highly heirarchical organisations like the armed forces. You have 'doer' leaders and 'prepper' leaders and 'thinker' leaders.",/post/24272,2017-02-28T02:19:56.000Z,2017-02-28T02:19:56.000Z,24272,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,381 9654,v1.0,,"Here it is: there is a positive correlation between being good at different things, like thinking, prepping and executing in your scheme. Smart, hard working people tend to be better on all three (or n-) dimensions with respect to others. So, I very much share @Noemi 's point of view: when we meet an interesting person, we try to imagine a role for her, then try to create the conditions for us to be able to offer her that role. But, at the same time, the role is embedded in the project, not in the organisation. People can try their hand at roles, then maybe move on to different ones in the next project.",/post/20914,2017-02-28T02:19:24.000Z,2017-02-28T02:19:24.000Z,20914,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,1372 5863,v1.0,,"Here it is: there is a positive correlation between being good at different things, like thinking, prepping and executing in your scheme. Smart, hard working people tend to be better on all three (or n-) dimensions with respect to others. So, I very much share @Noemi 's point of view: when we meet an interesting person, we try to imagine a role for her, then try to create the conditions for us to be able to offer her that role. But, at the same time, the role is embedded in the project, not in the organisation. People can try their hand at roles, then maybe move on to different ones in the next project.",/post/20914,2017-02-28T02:19:12.000Z,2017-02-28T02:19:12.000Z,20914,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,381 5862,v1.0,,"A final point: a flat organisation has leaders of its own, even informal - I can't imagine not having leaders, even multiple ones, giving direction to the org. Don't you have them in your large group Yannick? Falkwinge, who wrote about making great ideas happen with many people contributing, was saying that managing day to day operations require ""one portion classic project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm’s goals, culture, and values as it grows."" OK, his Pirate Party was a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills distrbuted within the leadership may help the general organisation and support others to fall into specific roles..",/post/15147,2017-02-28T02:18:58.000Z,2017-02-28T02:18:58.000Z,15147,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,381 8233,v1.0,,"A final point: a flat organisation has leaders of its own, even informal - I can't imagine not having leaders, even multiple ones, giving direction to the org. Don't you have them in your large group Yannick? Falkwinge, who wrote about making great ideas happen with many people contributing, was saying that managing day to day operations require ""one portion classic project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm’s goals, culture, and values as it grows."" OK, his Pirate Party was a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills distrbuted within the leadership may help the general organisation and support others to fall into specific roles..",/post/15147,2017-02-28T02:17:48.000Z,2017-02-28T02:17:48.000Z,15147,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,1067 7427,v1.0,,"A final point: a flat organisation has leaders of its own, even informal - I can't imagine not having leaders, even multiple ones, giving direction to the org. Don't you have them in your large group Yannick? Falkwinge, who wrote about making great ideas happen with many people contributing, was saying that managing day to day operations require ""one portion classic project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm’s goals, culture, and values as it grows."" OK, his Pirate Party was a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills distrbuted within the leadership may help the general organisation and support others to fall into specific roles..",/post/15147,2017-02-28T02:17:42.000Z,2017-02-28T02:17:42.000Z,15147,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,845 9653,v1.0,,"What I found that works is treating everything as a project in and of itself and assigning roles within the project. A making of sales, an event, a funded project, anything. In another one, roles can change, but as long as you have someone acting as a PM with that skillset (probably a prepper?) that takes on the responsibility to think about roles and enable them in the project team.",/post/15147,2017-02-28T02:17:33.000Z,2017-02-28T02:17:33.000Z,15147,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,1372 10231,v1.0,,"I remember talking with Celine in Bxl about the perks and not of a flat group organising. The hardest part I'm experiencing is with growing - if you have a small team starting up people are more than willing to do everything and teach themselves what they don't usually do in order to make it work. When numbers are in, it takes a conscious effort just to establish processes, or make norms more explicit i.e. double check understanding of the task at hand; make sure there is at least someone committed to the task; reinforcing that it's OK to ask for help; to fail etc.",/post/15147,2017-02-28T02:17:25.000Z,2017-02-28T02:17:25.000Z,15147,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,1487 7361,v1.0,,Yet teams often still fail. Where lies the problem? Are we not taking the insight far enough?,/post/8124,2017-02-28T02:16:04.000Z,2017-02-28T02:16:04.000Z,8124,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,820 9991,v1.0,,Yet teams often still fail. Where lies the problem? Are we not taking the insight far enough?,/post/8124,2017-02-28T02:15:49.000Z,2017-02-28T02:15:49.000Z,8124,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,1445 7796,v1.0,,"The big difference with a vertical organization is that in a flat organization those three categories aren’t intended. Where you have specific roles inside a hierarchical organization build around power the thinker will always be above the prepper that will be above the doer. When you see everybody as equal we try to divide also the categories equal, but there is the catch: not a lot of people have throughout their lifetime chosen to equally distribute their skill points.",/post/785,2017-02-28T02:15:06.000Z,2017-02-28T02:15:06.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,946 5861,v1.0,,"Unless you are a superhuman that can do everything alone, in an organization it is rather intelligent to search for each other complementary skills. A thinker with a lot of energy to give to do will need a preparation master as his right hand. How bigger the group how more difficult it is to find a balance, but have five thinkers and one prepper you will never get the job done.",/post/785,2017-02-28T02:14:12.000Z,2017-02-28T02:14:12.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,381 7574,v1.0,,"Visualize your own strengths and weaknesses as a finite set of skill points like in a video game. In your short or long-lived life you earned skill points through events and big moments. You gathered your knowledge into one of those categories and how more you collect how more you can handle in that category, but other way around: tackling tasks inside a category you aren’t good is time and energy consuming with an inefficient consequence as a a result.",/post/785,2017-02-28T02:14:05.000Z,2017-02-28T02:14:05.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,882 5527,v1.0,,"This two part evaluation exercise is a follow up on the most discussed topic in our Brussels Workshop. We talked most of the day about collaboration and how we want to find better ways to create fruitful coaction. If we want to be abble to work together inside our value system, we need to understand how we work. If fruitful collaboration means working togheter while feeling good towards each other in a mutual environment of respect, these two thought bubbles could be for you.",/post/785,2017-02-28T02:13:49.000Z,2017-02-28T02:13:49.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,326 11342,v1.0,,"You could argument that everybody needs to do his part of preparation, and you can’t only be the philosopher, but I lean to see a collective as an ecosystem where each other strengths are put up front and we organize ourselves around this.",/post/785,2017-02-28T02:13:38.000Z,2017-02-28T02:13:38.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,1813 6136,v1.0,,"You could argument that everybody needs to do his part of preparation, and you can’t only be the philosopher, but I lean to see a collective as an ecosystem where each other strengths are put up front and we organize ourselves around this.",/post/785,2017-02-28T02:13:27.000Z,2017-02-28T02:13:27.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,434 7426,v1.0,,"Modern organizations, starting as a local and small group of people tend to go fast in an horizontal or flat organization structure. People are seen as equal and every role is important, it helps to feel involved, and makes the range of possibilities bigger. But without a leader the group misses sometimes direction and efficiency is less visible. Roles are then distributed and somebody becomes head of design, head of funds or head of communication. Productivity is flowing again, but for me a subtler barrier is still in the way. From idea to task you still need preparation, and that is something I’m completely lacking of.",/post/785,2017-02-28T02:13:05.000Z,2017-02-28T02:13:05.000Z,785,3323,AnnotatorStore::TextAnnotation,,,,,,,,,752,845 6357,v1.0,,"I re-read the paper and made myself a map of the story with Tulip, extracting names of persons and/or organizations by hand. The grouped nodes with outer/inner labels is one of the marvelous things you can do with the software",/post/23566,2017-02-28T01:56:38.000Z,2017-02-28T01:56:38.000Z,23566,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,462 10695,v1.0,,"I re-read the paper and made myself a map of the story with Tulip, extracting names of persons and/or organizations by hand. The grouped nodes with outer/inner labels is one of the marvelous things you can do with the software",/post/23566,2017-02-28T01:56:26.000Z,2017-02-28T01:56:26.000Z,23566,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,1627 6356,v1.0,,"You seem to have stumbled into networks as a storytelling technique. Of course all visualisations tell stories, but in OpenCare we are telling stories of collaboration and interconnectedness, so networks work particularly well. Is it worth doing some work on, trying to come up with self-explanatory visualizations?",/post/17129,2017-02-28T01:56:17.000Z,2017-02-28T01:56:17.000Z,17129,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,462 10694,v1.0,,"You seem to have stumbled into networks as a storytelling technique. Of course all visualisations tell stories, but in OpenCare we are telling stories of collaboration and interconnectedness, so networks work particularly well. Is it worth doing some work on, trying to come up with self-explanatory visualizations?",/post/17129,2017-02-28T01:56:10.000Z,2017-02-28T01:56:10.000Z,17129,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,1627 9147,v1.0,,"Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!",/post/10762,2017-02-28T01:55:57.000Z,2017-02-28T01:55:57.000Z,10762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,1257 6896,v1.0,,"Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!",/post/10762,2017-02-28T01:55:48.000Z,2017-02-28T01:55:48.000Z,10762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,704 5575,v1.0,,"Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!",/post/10762,2017-02-28T01:55:44.000Z,2017-02-28T01:55:44.000Z,10762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,339 5854,v1.0,,"Great, great story. It is however reported as a solo heroic strive rather than as a community effort. The article does mention the ""biotech hacker space Counter Culture Labs"", and then the Open Insulin project, but makes it sound as if the individual initiative were what mattered in solving the situation. I would be interested to know more about the story, and learn about the collective effort that was put in. (Although it could well have been the result of individual effort after all.) On ""where to put this stuff"", I suppose we should start archiving these stories somehow. My guess is a wiki would do it ok (but I understand ER wikis have been used as single page wikis most of the time). A (collection of) hackpad (or anything similar) would probably be fine.",/post/6667,2017-02-28T01:55:30.000Z,2017-02-28T01:55:30.000Z,6667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,378 7998,v1.0,,"Great, great story. It is however reported as a solo heroic strive rather than as a community effort. The article does mention the ""biotech hacker space Counter Culture Labs"", and then the Open Insulin project, but makes it sound as if the individual initiative were what mattered in solving the situation. I would be interested to know more about the story, and learn about the collective effort that was put in. (Although it could well have been the result of individual effort after all.) On ""where to put this stuff"", I suppose we should start archiving these stories somehow. My guess is a wiki would do it ok (but I understand ER wikis have been used as single page wikis most of the time). A (collection of) hackpad (or anything similar) would probably be fine.",/post/6667,2017-02-28T01:55:23.000Z,2017-02-28T01:55:23.000Z,6667,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5359,993 9167,v1.0,,"phone.   I am also working on another project that helps introduce Bedouin women and kids in the mountains to smart textiles, and I am a consultant to the Wikimedia Foundation (the one that runs Wikipedia), working on helping find out what readers want (because no body knows yet, imagine!).   As part of OpenCare team from WeMake, where I am working on both the strategy and the harvesting of the online community and helping the people define projects that they want to implement. Moving on, I will help with physical prototyping aspects.  I believe Opencare is a wonderful initiative,  that reminds us of simple solutions that can make a difference in our lives, yet nobody thinks about them, because nobody knows those exists at first place.  Many thanks to @Costantino for offering me this opportunity.",/post/5524,2017-02-28T01:52:35.000Z,2017-02-28T01:52:35.000Z,5524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5491,1259 9146,v1.0,,"project for an opensource laser cutter, called Risha, that operates via mobile phone.   I am also working on another project that helps introduce Bedouin women and kids in the mountains to smart textiles, and I am a consultant to the Wikimedia Foundation (the one that runs Wikipedia), working on helping find out what readers want (because no body knows yet, imagine!).   As part of OpenCare team from WeMake, where I am working on both the strategy and the harvesting of the online community and helping the people define projects that they want to implement. Moving on, I will help with physical prototyping aspects.  I believe Opencare is a wonderful initiative,  that reminds us of simple solutions that can make a difference in our lives, yet nobody thinks about them, because nobody knows those exists at first place.  Many thanks to @Costantino for offering me this opportunity.   I speak Arabic, English, French and Spanish (proficiency is in the same order :).  I am Egyptian, and these days I live between Alexandria and Dahab (a small city in Sinai)   Nice to meet you everyone, please let me know if you have any questions.",/post/5524,2017-02-28T01:52:01.000Z,2017-02-28T01:52:01.000Z,5524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5491,1257 10891,v1.0,,"pensource laser cutter, called Risha, that operates via mobile phone.   I am also working on another project that helps introduce Bedouin women and kids in the mountains to smart textiles, and I am a consultant to the Wikimedia Foundation (the one that runs Wikipedia), working on helping find out what readers want (because no body knows yet, imagine!).",/post/5524,2017-02-28T01:51:44.000Z,2017-02-28T01:51:44.000Z,5524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5491,1676 8007,v1.0,,"Ok, but what becomes the ""being strangers to each other"" when it combines with a ""feeling unequal to the other""? Being alien to each other? To what extend are the strategies you develop or suggest effective in that case? Did some have (good or bad) experiences for that case? But if one develops specific strategies for that case, one takes the risk to confirm the unequality one wants to overcome or sublimate! The question I raise is relevant, I think, for any type for ""feeling unequal"". Any hint?",/post/23506,2017-02-28T01:50:54.000Z,2017-02-28T01:50:54.000Z,23506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,997 10698,v1.0,,"Ok, but what becomes the ""being strangers to each other"" when it combines with a ""feeling unequal to the other""? Being alien to each other? To what extend are the strategies you develop or suggest effective in that case? Did some have (good or bad) experiences for that case? But if one develops specific strategies for that case, one takes the risk to confirm the unequality one wants to overcome or sublimate! The question I raise is relevant, I think, for any type for ""feeling unequal"". Any hint?",/post/23506,2017-02-28T01:50:47.000Z,2017-02-28T01:50:47.000Z,23506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1628 5517,v1.0,,"Researchers in this area have figured out why humans have evolved rites of passage, which can be very costly (in some tribes, young men especially have to go through gruesome trials to become full members of the tribe). So where's the benefit? The benefit is that these rituals cement the tribe's cohesion, making it more fit to withstand intergroup competition, a major driver of human evolution (and suspected to have been a driver of non-human primates before we came around). How can rituals cement cohesion across participants? They harness certain biases in human cognition. For example, it has been found that doing things in sync enhances the propensity to cooperate. Consider the following experiment.",/post/19934,2017-02-28T01:50:21.000Z,2017-02-28T01:50:21.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,325 5516,v1.0,,"I saw your post after recent activity on this thread @Alberto... I was wondering if you have read anything about rites of passage in more detail? What is the aspect that creates stronger cohesion? Is it the selection process and 'insider vs outsider' dynamic, is it the sharing of pain and hardship that creates stronger connections between individuals, maybe another reason? I'll recommend this book as well for everyone who is interested in the topic.",/post/21816,2017-02-28T01:50:04.000Z,2017-02-28T01:50:04.000Z,21816,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,325 10156,v1.0,,"I saw your post after recent activity on this thread @Alberto... I was wondering if you have read anything about rites of passage in more detail? What is the aspect that creates stronger cohesion? Is it the selection process and 'insider vs outsider' dynamic, is it the sharing of pain and hardship that creates stronger connections between individuals, maybe another reason? I'll recommend this book as well for everyone who is interested in the topic.",/post/21816,2017-02-28T01:49:58.000Z,2017-02-28T01:49:58.000Z,21816,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1472 7718,v1.0,,"So, to make strangers connect, a sensible strategy seems to be to ""think like a hacker"" and exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem to be hardwired for forming groups. It is very, very easy to make humans behave like a group – check out",/post/19934,2017-02-28T01:49:50.000Z,2017-02-28T01:49:50.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,921 7898,v1.0,,"So, to make strangers connect, a sensible strategy seems to be to ""think like a hacker"" and exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem to be hardwired for forming groups. It is very, very easy to make humans behave like a group – check out Wilfred Bion's work for that",/post/19934,2017-02-28T01:49:35.000Z,2017-02-28T01:49:35.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,963 10697,v1.0,,"So, to make strangers connect, a sensible strategy seems to be to ""think like a hacker"" and exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem to be hardwired for forming groups. It is very, very easy to make humans behave like a group – check out Wilfred Bion's work for that.",/post/19934,2017-02-28T01:49:29.000Z,2017-02-28T01:49:29.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1628 6022,v1.0,,"Participants are randomly divided in two groups. People in group A are asked to perform a simple physical act in sync with each other, like clapping hands. People in group B are asked to per form the same act, but not in sync. All participants are asked to play a simple game where they need to choose between a ""cooperate"" and a ""defect"" strategy, like the Prisoner's dilemma.  Members of group A have a measurably higher probability to cooperate.",/post/19934,2017-02-28T01:49:21.000Z,2017-02-28T01:49:21.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,413 10155,v1.0,,"Researchers in this area have figured out why humans have evolved rites of passage, which can be very costly (in some tribes, young men especially have to go through gruesome trials to become full members of the tribe). So where's the benefit? The benefit is that these rituals cement the tribe's cohesion, making it more fit to withstand intergroup competition, a major driver of human evolution (and suspected to have been a driver of non-human primates before we came around). How can rituals cement cohesion across participants? They harness certain biases in human cognition. For example, it has been found that doing things in sync enhances the propensity to cooperate. Consider the following experiment.",/post/19934,2017-02-28T01:49:04.000Z,2017-02-28T01:49:04.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1472 7278,v1.0,,"There is a concept at the crossroads of evolutionary biology, anthropology and psychology called cultural evolution. The idea is that, in humans, culture and biology intertwine dynamically: evolutionary pressure makes us evolve mixed packages of genes and culture that make us fitter for survival. These packages repurpose and harness pre-existent packages. If you want to know more, this book is a fantastic introduction.",/post/19934,2017-02-28T01:48:23.000Z,2017-02-28T01:48:23.000Z,19934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,800 7897,v1.0,,"Back in the hippie glory days some of the more spiritually-inclined ones of us routinely engaged in this sort of mini-meditation with another person. It wasn't structured; we would just do it when we felt like it.  It often led to better mutual understanding and empathy, which was usually discerned in whatever conversation followed the session.",/post/17086,2017-02-28T01:47:07.000Z,2017-02-28T01:47:07.000Z,17086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,963 7215,v1.0,,"Back in the hippie glory days some of the more spiritually-inclined ones of us routinely engaged in this sort of mini-meditation with another person. It wasn't structured; we would just do it when we felt like it.  It often led to better mutual understanding and empathy, which was usually discerned in whatever conversation followed the session.",/post/17086,2017-02-28T01:46:54.000Z,2017-02-28T01:46:54.000Z,17086,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,781 8812,v1.0,,"A very basic event which happened in a lot of cities over the last years, including where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one would stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in. More about this and a video: https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/",/post/14948,2017-02-28T01:46:41.000Z,2017-02-28T01:46:41.000Z,14948,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1161 8056,v1.0,,"A very basic event which happened in a lot of cities over the last years, including where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one would stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in. More about this and a video: https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/",/post/14948,2017-02-28T01:46:28.000Z,2017-02-28T01:46:28.000Z,14948,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1020 10696,v1.0,,"A very basic event which happened in a lot of cities over the last years, including where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one would stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in. More about this and a video: https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/",/post/14948,2017-02-28T01:46:21.000Z,2017-02-28T01:46:21.000Z,14948,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1628 7896,v1.0,,"A very basic event which happened in a lot of cities over the last years, including where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one would stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in. More about this and a video: https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/",/post/14948,2017-02-28T01:46:14.000Z,2017-02-28T01:46:14.000Z,14948,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,963 8811,v1.0,,"My question is, how to bring people with completely different cultures, backgrounds and interest to a moment of human interaction. It can be a a very short moment, where people are connected and they are released in there routines again, but with something that remains. In the best case, it could happen, that it creates long term connections but this is not my biggest intention. I can imagine to build up installations (maybe super small but many), manage meetings, organize happenings (flash mops) and document all this for a exhibition which presents the activity to a broader public. It will take place in Berlin, basically because our uni is here, but it also is a awesome place for multicultural interaction. The challenges will be to coordinate many people, finding locations and founding the project.",/post/657,2017-02-28T01:45:59.000Z,2017-02-28T01:45:59.000Z,657,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1161 9415,v1.0,,"My question is, how to bring people with completely different cultures, backgrounds and interest to a moment of human interaction. It can be a a very short moment, where people are connected and they are released in there routines again, but with something that remains. In the best case, it could happen, that it creates long term connections but this is not my biggest intention. I can imagine to build up installations (maybe super small but many), manage meetings, organize happenings (flash mops) and document all this for a exhibition which presents the activity to a broader public. It will take place in Berlin, basically because our uni is here, but it also is a awesome place for multicultural interaction. The challenges will be to coordinate many people, finding locations and founding the project.",/post/657,2017-02-28T01:45:41.000Z,2017-02-28T01:45:41.000Z,657,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1308 8058,v1.0,,"My question is, how to bring people with completely different cultures, backgrounds and interest to a moment of human interaction. It can be a a very short moment, where people are connected and they are released in there routines again, but with something that remains. In the best case, it could happen, that it creates long term connections but this is not my biggest intention. I can imagine to build up installations (maybe super small but many), manage meetings, organize happenings (flash mops) and document all this for a exhibition which presents the activity to a broader public. It will take place in Berlin, basically because our uni is here, but it also is a awesome place for multicultural interaction. The challenges will be to coordinate many people, finding locations and founding the project.",/post/657,2017-02-28T01:45:26.000Z,2017-02-28T01:45:26.000Z,657,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1021 8055,v1.0,,"My question is, how to bring people with completely different cultures, backgrounds and interest to a moment of human interaction. It can be a a very short moment, where people are connected and they are released in there routines again, but with something that remains. In the best case, it could happen, that it creates long term connections but this is not my biggest intention. I can imagine to build up installations (maybe super small but many), manage meetings, organize happenings (flash mops) and document all this for a exhibition which presents the activity to a broader public. It will take place in Berlin, basically because our uni is here, but it also is a awesome place for multicultural interaction. The challenges will be to coordinate many people, finding locations and founding the project.",/post/657,2017-02-28T01:44:25.000Z,2017-02-28T01:44:25.000Z,657,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1020 10765,v1.0,,"My question is, how to bring people with completely different cultures, backgrounds and interest to a moment of human interaction. It can be a a very short moment, where people are connected and they are released in there routines again, but with something that remains. In the best case, it could happen, that it creates long term connections but this is not my biggest intention. I can imagine to build up installations (maybe super small but many), manage meetings, organize happenings (flash mops) and document all this for a exhibition which presents the activity to a broader public. It will take place in Berlin, basically because our uni is here, but it also is a awesome place for multicultural interaction. The challenges will be to coordinate many people, finding locations and founding the project.",/post/657,2017-02-28T01:43:41.000Z,2017-02-28T01:43:41.000Z,657,3323,AnnotatorStore::TextAnnotation,,,,,,,,,624,1639 7214,v1.0,,"A key takeaway for me personally is this: in a lot of cases what breaks how we think about mental illness is the belief that it needs to be fixed, that patients need to go back to some initial state of wellbeing; families, through proximity and attachment, are most prone to exemplify this in the daily lives of someone recovering after treatment - through a way of expressing emotions like 1) criticism 2) hostility 3) emotional overinvolvement. The mechanisms seem complex (can be subtleties, or just body language..), but it turns out that all 3 point to how difficult it is for family to accept and empathize, and only load too much pressure on the person in question. Strangers, on the other hand, do not really care THAT much and can be better healers because they ""don't see you as a bundle of problems that need to be fixed"".",/post/13011,2017-02-28T01:42:59.000Z,2017-02-28T01:42:59.000Z,13011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,781 10764,v1.0,,"A key takeaway for me personally is this: in a lot of cases what breaks how we think about mental illness is the belief that it needs to be fixed, that patients need to go back to some initial state of wellbeing; families, through proximity and attachment, are most prone to exemplify this in the daily lives of someone recovering after treatment - through a way of expressing emotions like 1) criticism 2) hostility 3) emotional overinvolvement. The mechanisms seem complex (can be subtleties, or just body language..), but it turns out that all 3 point to how difficult it is for family to accept and empathize, and only load too much pressure on the person in question. Strangers, on the other hand, do not really care THAT much and can be better healers because they ""don't see you as a bundle of problems that need to be fixed"".",/post/13011,2017-02-28T01:42:53.000Z,2017-02-28T01:42:53.000Z,13011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1639 9220,v1.0,,"re: my observation above. I was just listening to one of my favourite podcasts Invisibilia, and their latest episode talks about mental health patients and alternatives to failing recovery systems all over the world. Like some here already intuit, meaningful help can come from supportive community environments (interesting examples from a town in Belgium called Geel where families host ""patients"" for decades!, or housing sites in NYC with 40% mentally ill people living among the others).",/post/13011,2017-02-28T01:42:01.000Z,2017-02-28T01:42:01.000Z,13011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1269 8577,v1.0,,"re: my observation above. I was just listening to one of my favourite podcasts Invisibilia, and their latest episode talks about mental health patients and alternatives to failing recovery systems all over the world. Like some here already intuit, meaningful help can come from supportive community environments (interesting examples from a town in Belgium called Geel where families host ""patients"" for decades!, or housing sites in NYC with 40% mentally ill people living among the others).",/post/13011,2017-02-28T01:41:54.000Z,2017-02-28T01:41:54.000Z,13011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1140 6433,v1.0,,"When you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy, this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning point where you decide that something needs to happen, that you need some kind of help now, because you don't know what to do anymore, and then you are told that the next possible appointment is in 8 weeks.",/post/15782,2017-02-28T01:41:41.000Z,2017-02-28T01:41:41.000Z,15782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,483 8576,v1.0,,"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment. As a first contact, the university counsellor was a good help. However, the number of appointments one can have with them is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time until they find someone they feel comfortable with. I saw a doctor too, which did some tests to see that there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.  When you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy, this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning point where you decide that something needs to happen, that you need some kind of help now, because you don't know what to do anymore, and then you are told that the next possible appointment is in 8 weeks.  What am I going to do until then? Is it possible to somehow improve this process? What kinds of other temporary support structures might there be that could help people in distress?",/post/15782,2017-02-28T01:41:26.000Z,2017-02-28T01:41:26.000Z,15782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1140 4681,v1.0,,"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.",/post/15782,2017-02-28T01:40:16.000Z,2017-02-28T01:40:16.000Z,15782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,54 11413,v1.0,,"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment. As a first contact, the university counsellor was a good help. However, the number of appointments one can have with them is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time until they find someone they feel comfortable with. I saw a doctor too, which did some tests to see that there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.  When you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy, this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning point where you decide that something needs to happen, that you need some kind of help now, because you don't know what to do anymore, and then you are told that the next possible appointment is in 8 weeks.  What am I going to do until then? Is it possible to somehow improve this process? What kinds of other temporary support structures might there be that could help people in distress?",/post/15782,2017-02-28T01:40:03.000Z,2017-02-28T01:40:03.000Z,15782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1836 8362,v1.0,,"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment. As a first contact, the university counsellor was a good help. However, the number of appointments one can have with them is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time until they find someone they feel comfortable with. I saw a doctor too, which did some tests to see that there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.  When you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy, this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning point where you decide that something needs to happen, that you need some kind of help now, because you don't know what to do anymore, and then you are told that the next possible appointment is in 8 weeks.  What am I going to do until then? Is it possible to somehow improve this process? What kinds of other temporary support structures might there be that could help people in distress?",/post/15782,2017-02-28T01:39:53.000Z,2017-02-28T01:39:53.000Z,15782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1095 10875,v1.0,,"I think the wording is a good point. Mental health to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available out there, how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further. I'm looking forward to the online discussion on Monday, thank you for setting it up!",/post/12885,2017-02-28T01:39:35.000Z,2017-02-28T01:39:35.000Z,12885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1669 10651,v1.0,,"I think the wording is a good point. Mental health to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available out there, how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further. I'm looking forward to the online discussion on Monday, thank you for setting it up!",/post/12885,2017-02-28T01:39:27.000Z,2017-02-28T01:39:27.000Z,12885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1622 8575,v1.0,,"I think the wording is a good point. Mental health to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available out there, how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further. I'm looking forward to the online discussion on Monday, thank you for setting it up!",/post/12885,2017-02-28T01:39:18.000Z,2017-02-28T01:39:18.000Z,12885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1140 10874,v1.0,,"This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally.  @Moushira suggested yesterday in our community call that engaging people to share their issues shouldn't be put under headers of ""mental health"" but under something more like ""emotional health"". Similarly,  @Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness can contribute to lowering the threshold as mentioned above. Guys, next Monday we are hosting an online conversation about emotional care, feel free to join in at 4:30 PM. PS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.",/post/12389,2017-02-28T01:39:08.000Z,2017-02-28T01:39:08.000Z,12389,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1669 8574,v1.0,,"This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally.  @Moushira suggested yesterday in our community call that engaging people to share their issues shouldn't be put under headers of ""mental health"" but under something more like ""emotional health"". Similarly,  @Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness can contribute to lowering the threshold as mentioned above. Guys, next Monday we are hosting an online conversation about emotional care, feel free to join in at 4:30 PM. PS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.",/post/12389,2017-02-28T01:39:01.000Z,2017-02-28T01:39:01.000Z,12389,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1140 7198,v1.0,,"This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally.  @Moushira suggested yesterday in our community call that engaging people to share their issues shouldn't be put under headers of ""mental health"" but under something more like ""emotional health"". Similarly,  @Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness can contribute to lowering the threshold as mentioned above. Guys, next Monday we are hosting an online conversation about emotional care, feel free to join in at 4:30 PM. PS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.",/post/12389,2017-02-28T01:38:48.000Z,2017-02-28T01:38:48.000Z,12389,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,779 5039,v1.0,,"This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally.  @Moushira suggested yesterday in our community call that engaging people to share their issues shouldn't be put under headers of ""mental health"" but under something more like ""emotional health"". Similarly,  @Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness can contribute to lowering the threshold as mentioned above. Guys, next Monday we are hosting an online conversation about emotional care, feel free to join in at 4:30 PM. PS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.",/post/12389,2017-02-28T01:38:39.000Z,2017-02-28T01:38:39.000Z,12389,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,139 7809,v1.0,,".  This was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical) well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.",/post/11003,2017-02-28T01:38:15.000Z,2017-02-28T01:38:15.000Z,11003,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,948 8573,v1.0,,"This was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical) well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.",/post/11003,2017-02-28T01:37:17.000Z,2017-02-28T01:37:17.000Z,11003,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1140 9879,v1.0,,"This was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical) well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.",/post/11003,2017-02-28T01:37:08.000Z,2017-02-28T01:37:08.000Z,11003,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1437 5619,v1.0,,"As we are still in the research phase, I actually wanted to stay away from thinking of a very specific solution already. There is a similar site called emotionalbaggagecheck.com, where you can either submit your thoughts anonymously or help someone who submitted a text by sharing a song and some kind words. The platform I was thinking of was more an idea of improving the communication between affected people, so that there is a lower threshold of reaching out for support when you feel bad. I was hoping to hear what experiences other people have had, what sort of stressors they struggle with and how they handle this. This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally",/post/11003,2017-02-28T01:36:56.000Z,2017-02-28T01:36:56.000Z,11003,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,354 5595,v1.0,,"thanks for getting back to me. I definitively consider myself lucky and realize that I have a very strong support system. The thing that struck me was that even in my comparatively 'good' situation, it was so difficult for me to communicate my feelings. For me, this was a huge added pressure and kept me from getting help for a long time. In our project group, we are investigating how young people, particularly in creative professions/fields of study, deal with issues of mental well-being, who they share their feelings with, or why they don't.",/post/11003,2017-02-28T01:36:41.000Z,2017-02-28T01:36:41.000Z,11003,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,348 10393,v1.0,,"thanks for getting back to me. I definitively consider myself lucky and realize that I have a very strong support system. The thing that struck me was that even in my comparatively 'good' situation, it was so difficult for me to communicate my feelings. For me, this was a huge added pressure and kept me from getting help for a long time. In our project group, we are investigating how young people, particularly in creative professions/fields of study, deal with issues of mental well-being, who they share their feelings with, or why they don't.",/post/11003,2017-02-28T01:36:31.000Z,2017-02-28T01:36:31.000Z,11003,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1538 6481,v1.0,,"What made you share this, @Pauline? What design do you have in mind for the mutual understanding platform you see as a solution? One initiative I came across while researching the web for the mental health debate in OpenCare is BlueHackers - they have an IRC channel they use where anyone can drop in for a random conversation. It could be that sharing with strangers is sometimes easier than with closer people, so you could be on to something. But maybe you're not thinking of online platform?",/post/7523,2017-02-28T01:36:02.000Z,2017-02-28T01:36:02.000Z,7523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,485 9990,v1.0,,How do you deal with emotional issues? In what situations do you share your thoughts with others? How does this make you feel? What might prevent you from seeking support?,/post/677,2017-02-28T01:35:27.000Z,2017-02-28T01:35:27.000Z,677,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1445 10838,v1.0,,What helped me most in the end wasn’t necessarily talking about anything in those situations. Discussing these things with a neutral person such as a therapist was a much better framework for me to sort out my thoughts without the added complications of emotional attachment. The greatest help for me was just someone being there and giving me a hug. Telling me that they know it sucks and just sharing a little bit of the suckiness in that moment.,/post/677,2017-02-28T01:35:20.000Z,2017-02-28T01:35:20.000Z,677,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1653 10686,v1.0,,"Everyone around me seemed to manage just fine, effortlessly juggling scholastic and social expectations. So I thought it must be my fault that I was barely holding it together. I was ashamed to admit that I was struggling and ask for help. When I finally gathered enough courage to talk openly about my problems with my friends and family members, I was stunned how much it resonated. Once I had shared my troubles, many of them would admit some of their own. These were people that I had known for more than 10 years, people that I thought I knew inside out, suddenly telling me about insecurities of theirs that I never even suspected them to have. Such moments of connection were a very special experience.",/post/677,2017-02-28T01:34:52.000Z,2017-02-28T01:34:52.000Z,677,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1625 10719,v1.0,,"Long before I was finally diagnosed with depression 1 year ago, I struggled with intense feelings of stress and self-loathing, feelings that were overwhelming me, because I could not really understand what and why I was experiencing. I consider myself privileged to be born into a comfortable middle class life, to have a supportive family and friends, no academic problems. In theory, I was supposed to be happy. So why was I feeling so paralysed and helpless? Considering there are so many people who have it much worse than me, feeling sad seemed irrational, unjustified and shameful.",/post/677,2017-02-28T01:34:10.000Z,2017-02-28T01:34:10.000Z,677,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1632 8572,v1.0,,"Long before I was finally diagnosed with depression 1 year ago, I struggled with intense feelings of stress and self-loathing, feelings that were overwhelming me, because I could not really understand what and why I was experiencing. I consider myself privileged to be born into a comfortable middle class life, to have a supportive family and friends, no academic problems. In theory, I was supposed to be happy. So why was I feeling so paralysed and helpless? Considering there are so many people who have it much worse than me, feeling sad seemed irrational, unjustified and shameful. Everyone around me seemed to manage just fine, effortlessly juggling scholastic and social expectations. So I thought it must be my fault that I was barely holding it together. I was ashamed to admit that I was struggling and ask for help. When I finally gathered enough courage to talk openly about my problems with my friends and family members, I was stunned how much it resonated. Once I had shared my troubles, many of them would admit some of their own. These were people that I had known for more than 10 years, people that I thought I knew inside out, suddenly telling me about insecurities of theirs that I never even suspected them to have. Such moments of connection were a very special experience. However, at times it was also exhilarating. It's not easy for either party. Opening up, even to the people I trust most, took a great deal of mental effort. Then, I didn’t know how to properly express what I felt. And they didn’t know how to react. I didn’t know what kind of reaction I was hoping for. I didn’t want to burden or worry anyone. How often did I find myself alone in my room bawling my eyes out, finally calling my mother or my best friend, just to hang up 5 minutes later even more frustrated and miserable and guilty than before. They were only trying to help me to the best of their abilities, but somehow all well-meant compliments and advice only made me feel worse. I didn’t think they could truly understand me and it was so difficult to communicate what I wanted to say, when I didn't even really know what that was myself. When they tried to relate their own experiences to mine, it felt like they were comparing a broken arm to a papercut. When they were trying to give me tips on health and well-being, it felt patronizing, as if I didn’t know and try that already. This was nothing that doing a round of Yoga or 8 hours of sleep or being more social could simply ‘fix’. Just thinking such things added to my guilt and shame, because it was like I was taking their attempts of help for granted. Devils circle. What helped me most in the end wasn’t necessarily talking about anything in those situations. Discussing these things with a neutral person such as a therapist was a much better framework for me to sort out my thoughts without the added complications of emotional attachment. The greatest help for me was just someone being there and giving me a hug. Telling me that they know it sucks and just sharing a little bit of the suckiness in that moment. EDIT: How do you deal with emotional issues? In what situations do you share your thoughts with others? How does this make you feel? What might prevent you from seeking support?",/post/677,2017-02-28T01:34:00.000Z,2017-02-28T01:34:00.000Z,677,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,1140 6432,v1.0,,"Long before I was finally diagnosed with depression 1 year ago, I struggled with intense feelings of stress and self-loathing, feelings that were overwhelming me, because I could not really understand what and why I was experiencing. I consider myself privileged to be born into a comfortable middle class life, to have a supportive family and friends, no academic problems. In theory, I was supposed to be happy. So why was I feeling so paralysed and helpless? Considering there are so many people who have it much worse than me, feeling sad seemed irrational, unjustified and shameful. Everyone around me seemed to manage just fine, effortlessly juggling scholastic and social expectations. So I thought it must be my fault that I was barely holding it together. I was ashamed to admit that I was struggling and ask for help. When I finally gathered enough courage to talk openly about my problems with my friends and family members, I was stunned how much it resonated. Once I had shared my troubles, many of them would admit some of their own. These were people that I had known for more than 10 years, people that I thought I knew inside out, suddenly telling me about insecurities of theirs that I never even suspected them to have. Such moments of connection were a very special experience. However, at times it was also exhilarating. It's not easy for either party. Opening up, even to the people I trust most, took a great deal of mental effort. Then, I didn’t know how to properly express what I felt. And they didn’t know how to react. I didn’t know what kind of reaction I was hoping for. I didn’t want to burden or worry anyone. How often did I find myself alone in my room bawling my eyes out, finally calling my mother or my best friend, just to hang up 5 minutes later even more frustrated and miserable and guilty than before. They were only trying to help me to the best of their abilities, but somehow all well-meant compliments and advice only made me feel worse. I didn’t think they could truly understand me and it was so difficult to communicate what I wanted to say, when I didn't even really know what that was myself. When they tried to relate their own experiences to mine, it felt like they were comparing a broken arm to a papercut. When they were trying to give me tips on health and well-being, it felt patronizing, as if I didn’t know and try that already. This was nothing that doing a round of Yoga or 8 hours of sleep or being more social could simply ‘fix’. Just thinking such things added to my guilt and shame, because it was like I was taking their attempts of help for granted. Devils circle. What helped me most in the end wasn’t necessarily talking about anything in those situations. Discussing these things with a neutral person such as a therapist was a much better framework for me to sort out my thoughts without the added complications of emotional attachment. The greatest help for me was just someone being there and giving me a hug. Telling me that they know it sucks and just sharing a little bit of the suckiness in that moment. EDIT: How do you deal with emotional issues? In what situations do you share your thoughts with others? How does this make you feel? What might prevent you from seeking support?",/post/677,2017-02-28T01:33:50.000Z,2017-02-28T01:33:50.000Z,677,3323,AnnotatorStore::TextAnnotation,,,,,,,,,644,483 4941,v1.0,,"HOW CAN WE MOTIVATE GERMANS AND NON-GERMANS TO GO ON ACTIVITIES TOGETHER FOR IMPROVING THE SPEAKING OF GERMAN AND TO MAKE INTEGRATION EASIER? #1Reasearch with Non-Germans: -having a hard time to make German friends -are not brave enough to start a contact -think that the language is the biggest barrier -bad luck with tandem partners: they are not easy to find for every language / they don´t arrive at the appointment -high interest in small activities together with a German person to improve German and to lose fear of socialisation -they are having a better time learning German if they live together with Germans / it´s easier to get known to eaven more Germans if you already know even one -integration as a result of speaking German and speaking German as a result of integration / no integration as a result of not speaking German and not speaking German as a result of no integration   #Research with Germans: -if they have time they would probaply spend it with a person who wants to learn German -if they would get small gifts / rabatt / coupons they would be motivated to take foreign people to their private activities -proposed activities would be visit of zoo, museums, city trips, sports, going outside, taking a walk, workshops etc.   FURTHER PLANNED STEPS / OPEN QUESTIONS: -how can we define the group of people? -which activities are reasonable? -where do we catch the people? -what motivates Germans? -is the volenteer center / language school / a bar /etc. a good place? Happy for comments, ideas, experience etc.!!! Sunny regards, Marie",/post/7850,2017-02-28T01:32:40.000Z,2017-02-28T01:32:40.000Z,7850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,471,123 9238,v1.0,,"HOW CAN WE MOTIVATE GERMANS AND NON-GERMANS TO GO ON ACTIVITIES TOGETHER FOR IMPROVING THE SPEAKING OF GERMAN AND TO MAKE INTEGRATION EASIER? #1Reasearch with Non-Germans: -having a hard time to make German friends -are not brave enough to start a contact -think that the language is the biggest barrier -bad luck with tandem partners: they are not easy to find for every language / they don´t arrive at the appointment -high interest in small activities together with a German person to improve German and to lose fear of socialisation -they are having a better time learning German if they live together with Germans / it´s easier to get known to eaven more Germans if you already know even one -integration as a result of speaking German and speaking German as a result of integration / no integration as a result of not speaking German and not speaking German as a result of no integration   #Research with Germans: -if they have time they would probaply spend it with a person who wants to learn German -if they would get small gifts / rabatt / coupons they would be motivated to take foreign people to their private activities -proposed activities would be visit of zoo, museums, city trips, sports, going outside, taking a walk, workshops etc.   FURTHER PLANNED STEPS / OPEN QUESTIONS: -how can we define the group of people? -which activities are reasonable? -where do we catch the people? -what motivates Germans? -is the volenteer center / language school / a bar /etc. a good place? Happy for comments, ideas, experience etc.!!! Sunny regards, Marie",/post/7850,2017-02-28T01:31:44.000Z,2017-02-28T01:31:44.000Z,7850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,471,1271 10851,v1.0,,"HOW CAN WE MOTIVATE GERMANS AND NON-GERMANS TO GO ON ACTIVITIES TOGETHER FOR IMPROVING THE SPEAKING OF GERMAN AND TO MAKE INTEGRATION EASIER? #1Reasearch with Non-Germans: -having a hard time to make German friends -are not brave enough to start a contact -think that the language is the biggest barrier -bad luck with tandem partners: they are not easy to find for every language / they don´t arrive at the appointment -high interest in small activities together with a German person to improve German and to lose fear of socialisation -they are having a better time learning German if they live together with Germans / it´s easier to get known to eaven more Germans if you already know even one -integration as a result of speaking German and speaking German as a result of integration / no integration as a result of not speaking German and not speaking German as a result of no integration   #Research with Germans: -if they have time they would probaply spend it with a person who wants to learn German -if they would get small gifts / rabatt / coupons they would be motivated to take foreign people to their private activities -proposed activities would be visit of zoo, museums, city trips, sports, going outside, taking a walk, workshops etc.   FURTHER PLANNED STEPS / OPEN QUESTIONS: -how can we define the group of people? -which activities are reasonable? -where do we catch the people? -what motivates Germans? -is the volenteer center / language school / a bar /etc. a good place? Happy for comments, ideas, experience etc.!!! Sunny regards, Marie",/post/7850,2017-02-28T01:31:23.000Z,2017-02-28T01:31:23.000Z,7850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,471,1659 10850,v1.0,,"How can we integrate non-germans by motivating germans to teach them more about their culture / lenguage? Inspiration:",/post/504,2017-02-28T01:31:03.000Z,2017-02-28T01:31:03.000Z,504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,471,1659 6303,v1.0,,"How can we integrate non-germans by motivating germans to teach them more about their culture / lenguage? Inspiration:",/post/504,2017-02-28T01:30:53.000Z,2017-02-28T01:30:53.000Z,504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,471,449 8221,v1.0,,"How can we integrate non-germans by motivating germans to teach them more about their culture / lenguage? Inspiration:",/post/504,2017-02-28T01:30:39.000Z,2017-02-28T01:30:39.000Z,504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,471,1061 5945,v1.0,,"Shouldn't a community that is healthy be better at caring for its members than one where conflicts take over? (with the shades of grey in between of couse - happiness and conflict are no absolutes). If so, then learning to minimise conflict or other kinds of distress should make it easier for activists to stay well. On learning: we're all doing that, but no matter how much you learn, if you can't keep the lights on with people staying well, then it's only a matter of time.. As an example, a paintbrush factory-turned-contemporary art space where I'm from in Cluj saw a huge blow after 7 years - one of the splitting factions has trademarked the brand with EU's OHIM, and anyone in the art community is now somewhat part of that conflict. The brand is affected, reputations too, and of course the influence achieved over the years and ability to attract funding might be too.. I'm sure there's many stories like that out there. Anyway, just a thought. thanks again for the piece",/post/22469,2017-02-28T01:29:38.000Z,2017-02-28T01:29:38.000Z,22469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,390 9051,v1.0,,".. (call it what you want) is that it makes it easier to see how/ if it would translate to other groups or settings. What we don't know about the ER style of do-ocracy yet is how it would work in a real life, physical place that is not an infinite playground or resource after all - that's why I asked @marcoclausen about ruling over the vegetable beds.",/post/22469,2017-02-28T01:29:14.000Z,2017-02-28T01:29:14.000Z,22469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1247 7026,v1.0,,".. (call it what you want) is that it makes it easier to see how/ if it would translate to other groups or settings. What we don't know about the ER style of do-ocracy yet is how it would work in a real life, physical place that is not an infinite playground or resource after all - that's why I asked @marcoclausen about ruling over the vegetable beds.",/post/22469,2017-02-28T01:27:52.000Z,2017-02-28T01:27:52.000Z,22469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,736 7025,v1.0,,"Agree on all fronts, @marcoclausen . After three years of do-ocracy in Edgeryders, we are not blind to its flaws. It comes down to the lesser evil, I guess. It kind of works with us, but I would definitely not try to implement it at the nation-state level, at least not without major major revision!  However, do-ocracy is itself a set of rules. I like to think of it in terms of Protocol, a word that we used a lot when working on the unMonastery: https://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for I am familiar with Graber's work, and, like you, I enjoyed it too.",/post/21673,2017-02-28T01:27:26.000Z,2017-02-28T01:27:26.000Z,21673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,736 7617,v1.0,,"thanks for the reply. i totally understand the wish do not get mixed up with organizational structures. and even though i don't like the word ""governance"" too much, i think for a long term survivale of projects, and also to keep them transparent and open, there should be next to the possibility to do also some general rules and mechanism. i also refer here to the idea of the commons, that are often practically related to very clear rules (including sanctions, and instruments to deal with conflict). I think Jo Freemans ""the tyranny of structurelessness"" (http://www.jofreeman.com/joreen/tyranny.htm) is still - after 40 years -  relevant, and i also enjoyed reading David Graebers ""Utopia of Rules"" where he also refers to Freeman.",/post/19633,2017-02-28T01:27:09.000Z,2017-02-28T01:27:09.000Z,19633,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,905 10728,v1.0,,"thanks for the reply. i totally understand the wish do not get mixed up with organizational structures. and even though i don't like the word ""governance"" too much, i think for a long term survivale of projects, and also to keep them transparent and open, there should be next to the possibility to do also some general rules and mechanism. i also refer here to the idea of the commons, that are often practically related to very clear rules (including sanctions, and instruments to deal with conflict). I think Jo Freemans ""the tyranny of structurelessness"" (http://www.jofreeman.com/joreen/tyranny.htm) is still - after 40 years -  relevant, and i also enjoyed reading David Graebers ""Utopia of Rules"" where he also refers to Freeman.",/post/19633,2017-02-28T01:27:02.000Z,2017-02-28T01:27:02.000Z,19633,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1635 5565,v1.0,,"Excellent piece @marcoclausen . It resonates with other stories and opinion I have heard, especially in the context on the unMonastery: many so-called social innovation initiatives (including, er, Edgeryders itself) are constantly at risk of burning out the (relatively) few people who pull most of the weight.  Noemi above seems to endorse governance as a way to mitigate friction. My point of view is that governance often is an attention sink, and could potentially make burnout worse. This is why we are so interested in do-ocracy as a way of life: it has low overhead.  On the other hand, I could not agree more on collective learning. Our own version of that is an emphasis on documentation, so that people have a shared, written, searchable and evolving knowledge base. I think this is working quite well for us.",/post/16817,2017-02-28T01:26:38.000Z,2017-02-28T01:26:38.000Z,16817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,335 5002,v1.0,,"Excellent piece @marcoclausen . It resonates with other stories and opinion I have heard, especially in the context on the unMonastery: many so-called social innovation initiatives (including, er, Edgeryders itself) are constantly at risk of burning out the (relatively) few people who pull most of the weight.  Noemi above seems to endorse governance as a way to mitigate friction. My point of view is that governance often is an attention sink, and could potentially make burnout worse. This is why we are so interested in do-ocracy as a way of life: it has low overhead.  On the other hand, I could not agree more on collective learning. Our own version of that is an emphasis on documentation, so that people have a shared, written, searchable and evolving knowledge base. I think this is working quite well for us.",/post/16817,2017-02-28T01:26:30.000Z,2017-02-28T01:26:30.000Z,16817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,130 6383,v1.0,,"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.",/post/12111,2017-02-28T01:25:49.000Z,2017-02-28T01:25:49.000Z,12111,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,468 7616,v1.0,,"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.",/post/12111,2017-02-28T01:25:21.000Z,2017-02-28T01:25:21.000Z,12111,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,905 6521,v1.0,,"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.",/post/12111,2017-02-28T01:25:13.000Z,2017-02-28T01:25:13.000Z,12111,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,491 7615,v1.0,,"I'm curious, how did you learn to deal with conflicts as your network expanded so much over the years? Do you have a governance structure in place that helps you work out solutions inside the community: for example if there are differences of opinions between gardeners, beekeepers, neighborhood conveners, the association members and various groups stewarding Prinzessinnengarten. After all, you only have a limited number of vegetable beds, right?",/post/10375,2017-02-28T01:25:03.000Z,2017-02-28T01:25:03.000Z,10375,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,905 5944,v1.0,,"I'm curious, how did you learn to deal with conflicts as your network expanded so much over the years? Do you have a governance structure in place that helps you work out solutions inside the community: for example if there are differences of opinions between gardeners, beekeepers, neighborhood conveners, the association members and various groups stewarding Prinzessinnengarten. After all, you only have a limited number of vegetable beds, right?",/post/10375,2017-02-28T01:24:53.000Z,2017-02-28T01:24:53.000Z,10375,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,390 7810,v1.0,,"Community groups often focus on single questions, spaces, conflicts. They often react under economic and time pressure to immediate problems. They act within marginalized or weak political and economical communities. They deal with institutions and stakeholders with more time, much power, and resources whereas they rely on limited personal resources or precarious funding. Simultaneously there are a lot of joy, learning and personal empowerment involved as well as a sense of a meaningful life and community relations. However, the risk of failing is high, which can lead to frustration and disintegration.",/post/507,2017-02-28T01:24:38.000Z,2017-02-28T01:24:38.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,949 5099,v1.0,,"For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a form to win even when you lose.",/post/507,2017-02-28T01:23:06.000Z,2017-02-28T01:23:06.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,147 4940,v1.0,,"For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a form to win even when you lose.",/post/507,2017-02-28T01:22:51.000Z,2017-02-28T01:22:51.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,123 5542,v1.0,,"For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a form to win even when you lose.",/post/507,2017-02-28T01:22:40.000Z,2017-02-28T01:22:40.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,328 5001,v1.0,,"Over time, this situation can result in what you might call an „activism-burnout“. When this happens, physical, mental, and social damages are far too often just seen as a personal or biographical drama. These individual burn-outs are likely to be accompanied by a weakening or even a collapse of the organizations and initiatives that are often carried by the engagement of single individuals. The disintegration can lead to a situation where an organization loses knowledge, expertise, networks, and spirit.",/post/507,2017-02-28T01:21:51.000Z,2017-02-28T01:21:51.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,130 10315,v1.0,,"There is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.",/post/507,2017-02-28T01:21:37.000Z,2017-02-28T01:21:37.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1510 9570,v1.0,,"There is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.",/post/507,2017-02-28T01:21:20.000Z,2017-02-28T01:21:20.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1345 9219,v1.0,,"In taking over responsibilities in issues that affect the whole society - refugees, climate change, social and ecological justice, to name just a few - community-based and grassroots initiatives play an increasing role in tackling these challenges and their effects on the local level. They are breeding grounds for social innovations and new bottom-up-strategies. Often people take initiative when traditional or institutional forms of care and support decline or do not meet people’s needs. Community gardens and urban agriculture- the field in which I am personally engaged- can serve as a good example. Without being part of planning, or political programs, these places are mostly created by local, self-organized initiatives. Based on local engagement and alternative forms of economy and often without public or financial support, community gardens contribute to the well-being, social inclusion, healthy and sustainable lifestyles, biodiversity, the physical- as well as the social climate. Not only they contribute to the physical health of their participants, but also to their sense of dignity and self-esteem.",/post/507,2017-02-28T01:21:02.000Z,2017-02-28T01:21:02.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1269 5564,v1.0,,"In taking over responsibilities in issues that affect the whole society - refugees, climate change, social and ecological justice, to name just a few - community-based and grassroots initiatives play an increasing role in tackling these challenges and their effects on the local level. They are breeding grounds for social innovations and new bottom-up-strategies. Often people take initiative when traditional or institutional forms of care and support decline or do not meet people’s needs. Community gardens and urban agriculture- the field in which I am personally engaged- can serve as a good example. Without being part of planning, or political programs, these places are mostly created by local, self-organized initiatives. Based on local engagement and alternative forms of economy and often without public or financial support, community gardens contribute to the well-being, social inclusion, healthy and sustainable lifestyles, biodiversity, the physical- as well as the social climate. Not only they contribute to the physical health of their participants, but also to their sense of dignity and self-esteem. There is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize. Over time, this situation can result in what you might call an „activism-burnout“. When this happens, physical, mental, and social damages are far too often just seen as a personal or biographical drama. These individual burn-outs are likely to be accompanied by a weakening or even a collapse of the organizations and initiatives that are often carried by the engagement of single individuals. The disintegration can lead to a situation where an organization loses knowledge, expertise, networks, and spirit. For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a form to win even when you lose. Community groups often focus on single questions, spaces, conflicts. They often react under economic and time pressure to immediate problems. They act within marginalized or weak political and economical communities. They deal with institutions and stakeholders with more time, much power, and resources whereas they rely on limited personal resources or precarious funding. Simultaneously there are a lot of joy, learning and personal empowerment involved as well as a sense of a meaningful life and community relations. However, the risk of failing is high, which can lead to frustration and disintegration. Community care structures can help to ease this stress not only in giving support but also in a form of what we call „collective learning“. They can work as an archive for the knowledge, the experiences and know-how being created in grassroots and community initiatives. Thus, they allow activists to see themselves not only as part of a singular local fight that you might win or lose but as contributors to a collective living memory.",/post/507,2017-02-28T01:19:22.000Z,2017-02-28T01:19:22.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,335 5829,v1.0,,"In taking over responsibilities in issues that affect the whole society - refugees, climate change, social and ecological justice, to name just a few - community-based and grassroots initiatives play an increasing role in tackling these challenges and their effects on the local level. They are breeding grounds for social innovations and new bottom-up-strategies. Often people take initiative when traditional or institutional forms of care and support decline or do not meet people’s needs. Community gardens and urban agriculture- the field in which I am personally engaged- can serve as a good example. Without being part of planning, or political programs, these places are mostly created by local, self-organized initiatives. Based on local engagement and alternative forms of economy and often without public or financial support, community gardens contribute to the well-being, social inclusion, healthy and sustainable lifestyles, biodiversity, the physical- as well as the social climate. Not only they contribute to the physical health of their participants, but also to their sense of dignity and self-esteem. There is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize. Over time, this situation can result in what you might call an „activism-burnout“. When this happens, physical, mental, and social damages are far too often just seen as a personal or biographical drama. These individual burn-outs are likely to be accompanied by a weakening or even a collapse of the organizations and initiatives that are often carried by the engagement of single individuals. The disintegration can lead to a situation where an organization loses knowledge, expertise, networks, and spirit. For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a form to win even when you lose. Community groups often focus on single questions, spaces, conflicts. They often react under economic and time pressure to immediate problems. They act within marginalized or weak political and economical communities. They deal with institutions and stakeholders with more time, much power, and resources whereas they rely on limited personal resources or precarious funding. Simultaneously there are a lot of joy, learning and personal empowerment involved as well as a sense of a meaningful life and community relations. However, the risk of failing is high, which can lead to frustration and disintegration. Community care structures can help to ease this stress not only in giving support but also in a form of what we call „collective learning“. They can work as an archive for the knowledge, the experiences and know-how being created in grassroots and community initiatives. Thus, they allow activists to see themselves not only as part of a singular local fight that you might win or lose but as contributors to a collective living memory.",/post/507,2017-02-28T01:19:00.000Z,2017-02-28T01:19:00.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,377 8922,v1.0,,"To discuss questions arising from this kind of community engagement, Elizabeth Calderon-Lüning, Marco Clausen, and Asa Sonjasdotter initiated the Neighbourhood Academy in 2015:a self-organized open platform for urban and rural knowledge sharing, cultural practice and activism. This bottom-up academy combines different knowledge- and experienced-based formats: non-standardized knowledge, hands-on know-how, sensuous narratives and research methods. People, organizations, and projects from different neighborhoods come together. Participants can come from Berlin-Kreuzberg or the region around Berlin just as likely as from Detroit or rural areas in Greece to find common ground for learning and teaching.",/post/507,2017-02-28T01:16:03.000Z,2017-02-28T01:16:03.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1197 11318,v1.0,,"In cooperation with local institutions, with universities and international partners, the Prinzessinnengarten became a laboratory for resilient forms of urban development. In a pragmatic manner, we have been asking questions on how to deal with urgent issues such as climate change, dwindling resources, food sovereignty and the loss of biodiversity. The answers being experienced and experimented on all strive toward the creation of a resilient city, not only taking global challenges such as climate change into consideration but also incorporating local actors in the building of practical and local solutions.",/post/507,2017-02-28T01:14:13.000Z,2017-02-28T01:14:13.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1805 5764,v1.0,,"In cooperation with local institutions, with universities and international partners, the Prinzessinnengarten became a laboratory for resilient forms of urban development. In a pragmatic manner, we have been asking questions on how to deal with urgent issues such as climate change, dwindling resources, food sovereignty and the loss of biodiversity. The answers being experienced and experimented on all strive toward the creation of a resilient city, not only taking global challenges such as climate change into consideration but also incorporating local actors in the building of practical and local solutions.",/post/507,2017-02-28T01:14:00.000Z,2017-02-28T01:14:00.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,372 7410,v1.0,,"Prinzessinnengarten, as well as other urban gardens in Germany, have been able to develop small economies around its activities. Prinzessinnengarten has been able to support 15 full-time jobs during it seasons, being financially independent through its economic activities such as horticulture, the tending of a small café, selling its products, as well as giving training in gardening, ecology or the planning of further gardens. At the same time, it has been able to offer high quality, healthy and ecological food at affordable prices.",/post/507,2017-02-27T19:04:04.000Z,2017-02-27T19:04:04.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,838 10311,v1.0,,"Prinzessinnengarten, as well as other urban gardens in Germany, have been able to develop small economies around its activities. Prinzessinnengarten has been able to support 15 full-time jobs during it seasons, being financially independent through its economic activities such as horticulture, the tending of a small café, selling its products, as well as giving training in gardening, ecology or the planning of further gardens. At the same time, it has been able to offer high quality, healthy and ecological food at affordable prices.",/post/507,2017-02-27T19:03:56.000Z,2017-02-27T19:03:56.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1509 10416,v1.0,,"The Prinzessinnengarten is a communal project; our vegetable beds are shared without anyone claiming individual ownership. Over the course of four years, supporters from the local community have dirtied their hands in order to. This takes place in a neighborhood that is one of the most densely developed and socially most vulnerable in the city. Here a garden evolved that can sustain itself financially and that grew into a locus of social exchange and mutual learning.",/post/507,2017-02-27T19:02:45.000Z,2017-02-27T19:02:45.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1540 5734,v1.0,,"The Prinzessinnengarten is a communal project; our vegetable beds are shared without anyone claiming individual ownership. Over the course of four years, supporters from the local community have dirtied their hands in order to. This takes place in a neighborhood that is one of the most densely developed and socially most vulnerable in the city. Here a garden evolved that can sustain itself financially and that grew into a locus of social exchange and mutual learning.",/post/507,2017-02-27T19:01:50.000Z,2017-02-27T19:01:50.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,363 11324,v1.0,,"At Moritzplatz, a busy roundabout in the center of bustling Berlin-Kreuzberg, well over a thousand supporters have helped the site to grow, turning a lot that was vacant for 60 years into a flourishing garden. Without specific expertise, with little money and motivated by the idea of a communally used garden in the center of the city, we began in summer 2009 to put down the first roots of a flourishing garden between cement and rubble. By now, a huge diversity of plants is growing here as well as a diversity of social relations. People of different origins and of different ages meet and exchange their knowledge and their experience",/post/507,2017-02-27T19:01:24.000Z,2017-02-27T19:01:24.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,1806 5828,v1.0,,"Community-based initiatives contribute in a lot of different ways to the well-being of a community and the people participating. These contributions can take the form of directly supporting people and communities through giving them access to education, healthy food, social support, nature, informations about political and administrative procedures. Indirectly they also allow the development of a culture of mutual help, sharing and empowerment. This post is a description of what we have learned about care structures in communities during our years as community activists building Prinzessinengarten an urban garden in Berlin. But let’s start from the beginning….",/post/507,2017-02-27T19:01:12.000Z,2017-02-27T19:01:12.000Z,507,3323,AnnotatorStore::TextAnnotation,,,,,,,,,474,377 7767,v1.0,,"c) least but not last, three trainees (all nurses) are collaborating online to create emojis on healthcare, diagnosis and surgery issues. More to come... Seen your interest it might be useful to share some thoughts and network a bit on such perspective together in a videoconference perhaps..",/post/27809,2017-02-27T18:57:23.000Z,2017-02-27T18:57:23.000Z,27809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,934 7195,v1.0,,"c) least but not last, three trainees (all nurses) are collaborating online to create emojis on healthcare, diagnosis and surgery issues. More to come... Seen your interest it might be useful to share some thoughts and network a bit on such perspective together in a videoconference perhaps..",/post/27809,2017-02-27T18:57:13.000Z,2017-02-27T18:57:13.000Z,27809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,776 7071,v1.0,,"Yes, there are some first outcomes: a) the open infrastructure was presented at EMEMITALIA,  the national congress on e-Learning that in Modena on september 6th",/post/27809,2017-02-27T18:56:02.000Z,2017-02-27T18:56:02.000Z,27809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,751 9176,v1.0,,"Really encouraging to read this, Frederico. I am involved in an emerging group (we call it Caring for Life) looking to acquire care homes in the UK and start to liberate the staff and transform the way care is given. Like you, we are inspired by an open paradigm of care giving, as well as stories of self-managing organisations such as Buurtzorg. It is early days yet but when we have got a bit further, it would be good to hear more about your work and  approach",/post/26035,2017-02-27T18:55:51.000Z,2017-02-27T18:55:51.000Z,26035,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,1262 5061,v1.0,,"Really encouraging to read this, Frederico. I am involved in an emerging group (we call it Caring for Life) looking to acquire care homes in the UK and start to liberate the staff and transform the way care is given. Like you, we are inspired by an open paradigm of care giving, as well as stories of self-managing organisations such as Buurtzorg. It is early days yet but when we have got a bit further, it would be good to hear more about your work and  approach",/post/26035,2017-02-27T18:55:40.000Z,2017-02-27T18:55:40.000Z,26035,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,144 9067,v1.0,,"I got excited reading your piece @Federico Monaco! Your approach to learning and willingness to experiment is exactly what the educational system needs right now. This sums it up quite well for me: ""By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals."". @trythis has some interesting points of inspiration as well... Are there any particular sources of inspiration you use to come up with new ways of teaching? Have your experiments ever backfired?",/post/23739,2017-02-27T18:55:17.000Z,2017-02-27T18:55:17.000Z,23739,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,1250 7126,v1.0,,"I got excited reading your piece @Federico Monaco! Your approach to learning and willingness to experiment is exactly what the educational system needs right now. This sums it up quite well for me: ""By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals."". @trythis has some interesting points of inspiration as well... Are there any particular sources of inspiration you use to come up with new ways of teaching? Have your experiments ever backfired?",/post/23739,2017-02-27T18:54:48.000Z,2017-02-27T18:54:48.000Z,23739,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,766 7125,v1.0,,"year). While seems easier to involve patients, patrons and makers in open discussion about innovation and shared practices, the world of education and professionals themselves should undergo a rethinking towards wide collaboration and practicing in communities in the fast changing, seamless and heterogenous world we all live in.",/post/14715,2017-02-27T18:52:41.000Z,2017-02-27T18:52:41.000Z,14715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,766 5526,v1.0,,"While seems easier to involve patients, patrons and makers in open discussion about innovation and shared practices, the world of education and professionals themselves should undergo a rethinking towards wide collaboration and practicing in communities in the fast changing, seamless and heterogenous world we all live in.",/post/14715,2017-02-27T18:51:29.000Z,2017-02-27T18:51:29.000Z,14715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,326 7766,v1.0,,"Therefore i would like to engage other scholars, makers, educators, archivists, patients and who else inspired by an open paradigm of healthcare in contributing to a p2p learning project to advance healthcare professions curricula and innovate where possibile and to open knowledge filed the higher education for healthcare professions. Please add your comment to participate.",/post/524,2017-02-27T18:51:11.000Z,2017-02-27T18:51:11.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,934 7070,v1.0,,"actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they’re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education.",/post/524,2017-02-27T18:50:41.000Z,2017-02-27T18:50:41.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,751 9351,v1.0,,"Another one is to replace yearly reports from traineeship by an online book, accessible to everyone and encouraging discussion. And it actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they’re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education.",/post/524,2017-02-27T18:50:28.000Z,2017-02-27T18:50:28.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,1294 7194,v1.0,,"At the moment I’m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students.",/post/524,2017-02-27T18:47:56.000Z,2017-02-27T18:47:56.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,776 5625,v1.0,,"Innovation and openness of knowledge must become the cutting edge paradigm within universities, hospitals and healthcare policies.   I’ve been granted research scholarships for the past years and I use them to bring change in two main areas of education: technologies and practices of innovation. It’s about bringing these two aspects, also existing in collaborative economies, communities, in hacker groups and activists promoting open access to knowledge, data and technology to stubborn, hermetic ecosystems of higher education.   My current project, a weblab named Puntozero (http://puntozero.github.io/), explores the ways in which teachers, professors, tutors and students -used to the traditional model of lecturing a class and equipping people with theoretical knowledge and in-field training- might integrate in a community of practice to innovate the way of learning. This year there are about 150 students involved. The brainstorming about proposals include more talking to the patients, who want to collaborate and surely want to see medicine more friendly, more efficient, more human. It is important to change the way we see health care - not as a prestigious, restricted profession for a selected group of professional, but as a practice that has been there for thousands of years, a huge amount of collective wisdom that pioneered and support what we call medicine and care right now.   It’s fascinating to play with the idea of a healthcare student classroom where, instead of feeding people with theories, teachers would create space where students meet makers of all sorts and discuss various technological innovations with them, and spend time with their patients, getting hands on experience in various cases. By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals. Their work style would be more inclusive and horizontal, and they would be more interested in critical thinking and discussion, sharing and transparency.   At the moment I’m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students.   Another one is to replace yearly reports from traineeship by an online book, accessible to everyone and encouraging discussion. And it actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they’re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education.   I’m interested in joining the OPENandchange with the mission of tweaking and/or revolutionizing the classroom and the health care education and training. I want to create more opportunities for students to meet people who change the way care is given in different ways - by making devices, by creating informal institutions, in fablabs and elderly houses. I want to prepare workshops where makers and patients would be working along the health care providers on new solutions. And I want to empower alternative ways of giving care, outside of the formal profession, initiatives driven by values other than money - by the idea of being helpful, virtue of serving each other, and actual engagement.   Therefore i would like to engage other scholars, makers, educators, archivists, patients and who else inspired by an open paradigm of healthcare in contributing to a p2p learning project to advance healthcare professions curricula and innovate where possibile and to open knowledge filed the higher education for healthcare professions. Please add your comment to participate.",/post/524,2017-02-27T18:47:05.000Z,2017-02-27T18:47:05.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,355 5604,v1.0,,"At the moment I’m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students.",/post/524,2017-02-27T18:46:52.000Z,2017-02-27T18:46:52.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,350 9300,v1.0,,"It’s fascinating to play with the idea of a healthcare student classroom where, instead of feeding people with theories, teachers would create space where students meet makers of all sorts and discuss various technological innovations with them, and spend time with their patients, getting hands on experience in various cases. By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals. Their work style would be more inclusive and horizontal, and they would be more interested in critical thinking and discussion, sharing and transparency.",/post/524,2017-02-27T18:46:35.000Z,2017-02-27T18:46:35.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,1283 5077,v1.0,,"My current project, a weblab named Puntozero (http://puntozero.github.io/), explores the ways in which teachers, professors, tutors and students -used to the traditional model of lecturing a class and equipping people with theoretical knowledge and in-field training- might integrate in a community of practice to innovate the way of learning. This year there are about 150 students involved. The brainstorming about proposals include more talking to the patients, who want to collaborate and surely want to see medicine more friendly, more efficient, more human. It is important to change the way we see health care - not as a prestigious, restricted profession for a selected group of professional, but as a practice that has been there for thousands of years, a huge amount of collective wisdom that pioneered and support what we call medicine and care right now.",/post/524,2017-02-27T18:45:17.000Z,2017-02-27T18:45:17.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,146 7124,v1.0,,"I’ve been granted research scholarships for the past years and I use them to bring change in two main areas of education: technologies and practices of innovation. It’s about bringing these two aspects, also existing in collaborative economies, communities, in hacker groups and activists promoting open access to knowledge, data and technology to stubborn, hermetic ecosystems of higher education.   My current project, a weblab named Puntozero (http://puntozero.github.io/), explores the ways in which teachers, professors, tutors and students -used to the traditional model of lecturing a class and equipping people with theoretical knowledge and in-field training- might integrate in a community of practice to innovate the way of learning. This year there are about 150 students involved. The brainstorming about proposals include more talking to the patients, who want to collaborate and surely want to see medicine more friendly, more efficient, more human. It is important to change the way we see health care - not as a prestigious, restricted profession for a selected group of professional, but as a practice that has been there for thousands of years, a huge amount of collective wisdom that pioneered and support what we call medicine and care right now.   It’s fascinating to play with the idea of a healthcare student classroom where, instead of feeding people with theories, teachers would create space where students meet makers of all sorts and discuss various technological innovations with them, and spend time with their patients, getting hands on experience in various cases. By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals. Their work style would be more inclusive and horizontal, and they would be more interested in critical thinking and discussion, sharing and transparency.   At the moment I’m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students.   Another one is to replace yearly reports from traineeship by an online book, accessible to everyone and encouraging discussion. And it actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they’re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education.   I’m interested in joining the OPENandchange with the mission of tweaking and/or revolutionizing the classroom and the health care education and training. I want to create more opportunities for students to meet people who change the way care is given in different ways - by making devices, by creating informal institutions, in fablabs and elderly houses. I want to prepare workshops where makers and patients would be working along the health care providers on new solutions. And I want to empower alternative ways of giving care, outside of the formal profession, initiatives driven by values other than money - by the idea of being helpful, virtue of serving each other, and actual engagement.   Therefore i would like to engage other scholars, makers, educators, archivists, patients and who else inspired by an open paradigm of healthcare in contributing to a p2p learning project to advance healthcare professions curricula and innovate where possibile and to open knowledge filed the higher education for healthcare professions. Please add your comment to participate.",/post/524,2017-02-27T18:43:47.000Z,2017-02-27T18:43:47.000Z,524,3323,AnnotatorStore::TextAnnotation,,,,,,,,,491,766 10230,v1.0,,"Back to Care Change, I have always had the feeling of being able to change the things surrounding me. The challenge is to see if I could scale-up and bring this change to a larger environment. It has been a year now since I have been able to free myself from the stress of working on a project, for a boss and a structure. I work today to find projects in which I have the leverage to validate assumptions while bringing intrinsic value to the holders of such project",/post/526,2017-02-26T22:31:45.000Z,2017-02-26T22:31:45.000Z,526,3323,AnnotatorStore::TextAnnotation,,,,,,,,,493,1487 4572,v1.0,,"The values ​​that I carry and tried to synthesize in my business card are those of agile actors. Lean means going through iterations before setting-up a comprehensive plan and establishing a strategy. The concept of stereo relates to the progress made in the world of 3D capture. Virtual Reality (VR) has a lot of facets including stereoscopy, which has existed since the film era.",/post/526,2017-02-26T22:31:30.000Z,2017-02-26T22:31:30.000Z,526,3323,AnnotatorStore::TextAnnotation,,,,,,,,,493,20 10047,v1.0,,"I am not really a specialist in any particular field. At most, I am a good generalist. What I do is connecting the dots, creating links, bringing well-being in environments in which I try to create value. Some would say I bring resilience.",/post/526,2017-02-26T22:29:13.000Z,2017-02-26T22:29:13.000Z,526,3323,AnnotatorStore::TextAnnotation,,,,,,,,,493,1446 7850,v1.0,,"(California) launched a service called SHWASHLOCK (SHowers, WASHing machines and LOCKers). The idea for this service had come from a bunch of residents, some of whom were homeless, hanging out on the city's Public Electronic Network (PEN). At the time, of course, there was no Internet: PEN was a civic network accessible locally. SHWASHLOCK is the first public service designed on a computer network that I know of. Santa Monica's libraries had terminals connected to the PEN, and some homeless residents were using the libraries. This is how homeless and homed residents were able to come to share a common hangout, and design together a simple, but very useful service.  It turns out that online spaces are quite good at removing some of the social markers that make interaction across social groups so awkward (and more power to you, @Laurent_d'Ursel , for overcoming that awkardness!). In the words of Donald Paschal, one of the homeless residents:  “PEN is a great equalizer. No one on PEN knew that I was homeless until I told them. After I told them, I was still treated like a human being… the most remarkable thing about the PEN community is that a City Council member and a pauper can coexist, albeit not always in perfect harmony, but on an equal basis.” More info on SHWASHLOCK and its implications for public participation online: http://www.cottica.net/2012/08/29/the-computers-of-the-excluded/",/post/15043,2017-02-26T22:28:07.000Z,2017-02-26T22:28:07.000Z,15043,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,956 10441,v1.0,,"This reminds me of one of my favourite networked computing stories: back in 1990, the City of Santa Monica (California) launched a service called SHWASHLOCK (SHowers, WASHing machines and LOCKers). The idea for this service had come from a bunch of residents, some of whom were homeless, hanging out on the city's Public Electronic Network (PEN). At the time, of course, there was no Internet: PEN was a civic network accessible locally. SHWASHLOCK is the first public service designed on a computer network that I know of. Santa Monica's libraries had terminals connected to the PEN, and some homeless residents were using the libraries. This is how homeless and homed residents were able to come to share a common hangout, and design together a simple, but very useful service.  It turns out that online spaces are quite good at removing some of the social markers that make interaction across social groups so awkward (and more power to you, @Laurent_d'Ursel , for overcoming that awkardness!). In the words of Donald Paschal, one of the homeless residents:  “PEN is a great equalizer. No one on PEN knew that I was homeless until I told them. After I told them, I was still treated like a human being… the most remarkable thing about the PEN community is that a City Council member and a pauper can coexist, albeit not always in perfect harmony, but on an equal basis.” More info on SHWASHLOCK and its implications for public participation online: http://www.cottica.net/2012/08/29/the-computers-of-the-excluded/",/post/15043,2017-02-26T22:27:57.000Z,2017-02-26T22:27:57.000Z,15043,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,1549 8904,v1.0,,"We are also facing some challenges around financing (we think we have reached the limits of private donations in the country at this point) and we consider turning the space into a public-­private entity. Our bargaining chip is all our achievement ­ we hope the formal institutions will see it as a necessity to support an initiative that has gone so far on its own. We have 50 volunteers, we employ and pay only one person (we want to extend it to at least 2­3), and all that without a single euro from the state. I’m optimistic about it ­ I don’t think anyone would like to see us closed at that point.",/post/727,2017-02-26T22:27:09.000Z,2017-02-26T22:27:09.000Z,727,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,1194 10289,v1.0,,"The mission of DoucheFLUX is to promote self­-esteem and help homeless people regain a positive image of themselves. The activities we propose do not make them feel intimidated. We forbade the usage of the words such as ""culture"" or ""art"" in the space, as well. Together with these precarious people, we produce a magazine, that is published 4­5 times a year. We also release a monthly broadcast, organize meetings in schools and film debates. Recently, we’ve been busy designing a board game that allows regular people to understand and experience the hardships and challenges of homelessness. The idea wasn’t mine ­ one of the homeless people proposed it as a way to engage with passers­by. We are preparing the beta version to be ready for the Brussels Game Festival.
After the opening of the building, which should happen by the end of the year, we will finally extend our services beyond going to the streets and establishing relations with the homeless. We will have 20 showers ­ 7 for women, 12 for men, and one for people on wheelchair. There will be also medical area and daily medical staff which our guests can appoint. This simple thing will hopefully fix once and for all the problem with access to showers in Brussels. We’re in the capital of Europe, but for people on the street there is only La Fontaine, which provides one shower per person a week, and you even have to be lucky to get it.",/post/727,2017-02-26T22:26:57.000Z,2017-02-26T22:26:57.000Z,727,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,1503 11411,v1.0,,"It started as a nonprofit in May 2012, but we still took a year to outline some of the details and propose a solid program. It remained complex and ambitious ­ and it’s important to keep it that way. The organization managed to raise money from private sources to buy and renovate a building in Brussels (in fact we are still short of renovation money, and we are looking for 500.000 to get the job done). The space is so huge (650 square meters) that we can both offer support to many homeless people and invite other organizations working on the topic to use it. There is another reason why we made it so big ­ if the place was small and crowded with homeless from, say, Morocco, a Belgian single homeless person wouldn’t enter, even if we offered what they needed. It would just feel overwhelming. The mission of DoucheFLUX is to promote self­-esteem and help homeless people regain a positive image of themselves. The activities we propose do not make them feel intimidated. We forbade the usage of the words such as ""culture"" or ""art"" in the space, as well. Together with these precarious people, we produce a magazine, that is published 4­5 times a year. We also release a monthly broadcast, organize meetings in schools and film debates. Recently, we’ve been busy designing a board game that allows regular people to understand and experience the hardships and challenges of homelessness. The idea wasn’t mine ­ one of the homeless people proposed it as a way to engage with passers­by. We are preparing the beta version to be ready for the Brussels Game Festival.
After the opening of the building, which should happen by the end of the year, we will finally extend our services beyond going to the streets and establishing relations with the homeless. We will have 20 showers ­ 7 for women, 12 for men, and one for people on wheelchair. There will be also medical area and daily medical staff which our guests can appoint. This simple thing will hopefully fix once and for all the problem with access to showers in Brussels. We’re in the capital of Europe, but for people on the street there is only La Fontaine, which provides one shower per person a week, and you even have to be lucky to get it. Obviously, if we have showers, we need to have laundry. And the lockers. A huge problem among this community: there are virtually no lockers in Brussels, therefore people constantly get robbed and lose their things. As a result, they end up in a vicious circle of bureaucracy to get back whatever papers and permissions they need, and incredible insecurity. We will have 400 lockers, from super small for medicine and documents, to bigger ones. And finally, we would like to open a help desk at DoucheFlux one day. Which means we don’t want to become the only organization covering all their needs ­ but to provide them with information on where they could be offered help with other problems. We want this to be accompanied by the first centralized website, simple and intuitive so that people who don’t speak French or Flemish will be able to navigate it. It’s incredible how untransparent Brussels is to these people ­ they have no idea where to find a lawyer, where to sleep, eat, get their medicine or find work. This idea is supported by everyone from the field in the city. We are also facing some challenges around financing (we think we have reached the limits of private donations in the country at this point) and we consider turning the space into a public-­private entity. Our bargaining chip is all our achievement ­ we hope the formal institutions will see it as a necessity to support an initiative that has gone so far on its own. We have 50 volunteers, we employ and pay only one person (we want to extend it to at least 2­3), and all that without a single euro from the state. I’m optimistic about it ­ I don’t think anyone would like to see us closed at that point. Would you like to share you experience with work with vulnerable social groups? What are the hardships, common misconceptions, institutional obstacles you find exceptionally striking? What is your strategy to engage with these groups and help them overcome mistrust and lack of confidence?",/post/727,2017-02-26T22:25:41.000Z,2017-02-26T22:25:41.000Z,727,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,1834 10440,v1.0,,"The mission of DoucheFLUX is to promote self­-esteem and help homeless people regain a positive image of themselves. The activities we propose do not make them feel intimidated. We forbade the usage of the words such as ""culture"" or ""art"" in the space, as well. Together with these precarious people, we produce a magazine, that is published 4­5 times a year. We also release a monthly broadcast, organize meetings in schools and film debates. Recently, we’ve been busy designing a board game that allows regular people to understand and experience the hardships and challenges of homelessness. The idea wasn’t mine ­ one of the homeless people proposed it as a way to engage with passers­by. We are preparing the beta version to be ready for the Brussels Game Festival.
After the opening of the building, which should happen by the end of the year, we will finally extend our services beyond going to the streets and establishing relations with the homeless. We will have 20 showers ­ 7 for women, 12 for men, and one for people on wheelchair. There will be also medical area and daily medical staff which our guests can appoint. This simple thing will hopefully fix once and for all the problem with access to showers in Brussels. We’re in the capital of Europe, but for people on the street there is only La Fontaine, which provides one shower per person a week, and you even have to be lucky to get it.",/post/727,2017-02-26T22:25:31.000Z,2017-02-26T22:25:31.000Z,727,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,1549 11247,v1.0,,"So, in 2010 we settled upon a subject that addressed the homeless people in Brussels. We did it without them, but for them ­ and invited them to join us. It was the first time we came to know some of this population, and the more discovered and understood about them, the more stories and testimonies we collected about their lives, the less sense it made to just wrap everything up and move on to something new. One of the follow­ups of this process was a book, in which we gathered and edited short stories from homeless people we’ve met. It was published in both Flemish and French, and it made many institutions hate us, as many people in that book frankly complained about their work. Ok, we have a bright and pretty broad vision of affairs. Now, what? We had to propose something, and the more I thought of it, the bigger it became in my head. It was overwhelming and ambitions, and I felt I can’t start. That was until I met a woman, who happened to be my former student from the French classes I teach. She was a perfect partner: Flemish, woman, and a businesswoman on top of it. Together we framed the project and made it ripe for implementation in early 2012. It started as a nonprofit in May 2012, but we still took a year to outline some of the details and propose a solid program. It remained complex and ambitious ­ and it’s important to keep it that way. The organization managed to raise money from private sources to buy and renovate a building in Brussels (in fact we are still short of renovation money, and we are looking for 500.000 to get the job done). The space is so huge (650 square meters) that we can both offer support to many homeless people and invite other organizations working on the topic to use it. There is another reason why we made it so big ­ if the place was small and crowded with homeless from, say, Morocco, a Belgian single homeless person wouldn’t enter, even if we offered what they needed. It would just feel overwhelming. The mission of DoucheFLUX is to promote self­-esteem and help homeless people regain a positive image of themselves. The activities we propose do not make them feel intimidated. We forbade the usage of the words such as ""culture"" or ""art"" in the space, as well. Together with these precarious people, we produce a magazine, that is published 4­5 times a year. We also release a monthly broadcast, organize meetings in schools and film debates. Recently, we’ve been busy designing a board game that allows regular people to understand and experience the hardships and challenges of homelessness. The idea wasn’t mine ­ one of the homeless people proposed it as a way to engage with passers­by. We are preparing the beta version to be ready for the Brussels Game Festival.
After the opening of the building, which should happen by the end of the year, we will finally extend our services beyond going to the streets and establishing relations with the homeless. We will have 20 showers ­ 7 for women, 12 for men, and one for people on wheelchair. There will be also medical area and daily medical staff which our guests can appoint. This simple thing will hopefully fix once and for all the problem with access to showers in Brussels. We’re in the capital of Europe, but for people on the street there is only La Fontaine, which provides one shower per person a week, and you even have to be lucky to get it. Obviously, if we have showers, we need to have laundry. And the lockers. A huge problem among this community: there are virtually no lockers in Brussels, therefore people constantly get robbed and lose their things. As a result, they end up in a vicious circle of bureaucracy to get back whatever papers and permissions they need, and incredible insecurity. We will have 400 lockers, from super small for medicine and documents, to bigger ones. And finally, we would like to open a help desk at DoucheFlux one day. Which means we don’t want to become the only organization covering all their needs ­ but to provide them with information on where they could be offered help with other problems. We want this to be accompanied by the first centralized website, simple and intuitive so that people who don’t speak French or Flemish will be able to navigate it. It’s incredible how untransparent Brussels is to these people ­ they have no idea where to find a lawyer, where to sleep, eat, get their medicine or find work. This idea is supported by everyone from the field in the city. We are also facing some challenges around financing (we think we have reached the limits of private donations in the country at this point) and we consider turning the space into a public-­private entity. Our bargaining chip is all our achievement ­ we hope the formal institutions will see it as a necessity to support an initiative that has gone so far on its own. We have 50 volunteers, we employ and pay only one person (we want to extend it to at least 2­3), and all that without a single euro from the state. I’m optimistic about it ­ I don’t think anyone would like to see us closed at that point. Would you like to share you experience with work with vulnerable social groups? What are the hardships, common misconceptions, institutional obstacles you find exceptionally striking? What is your strategy to engage with these groups and help them overcome mistrust and lack of confidence?",/post/727,2017-02-26T22:23:51.000Z,2017-02-26T22:23:51.000Z,727,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,1775 7849,v1.0,,"So, in 2010 we settled upon a subject that addressed the homeless people in Brussels. We did it without them, but for them ­ and invited them to join us. It was the first time we came to know some of this population, and the more discovered and understood about them, the more stories and testimonies we collected about their lives, the less sense it made to just wrap everything up and move on to something new. One of the follow­ups of this process was a book, in which we gathered and edited short stories from homeless people we’ve met. It was published in both Flemish and French, and it made many institutions hate us, as many people in that book frankly complained about their work. Ok, we have a bright and pretty broad vision of affairs. Now, what? We had to propose something, and the more I thought of it, the bigger it became in my head. It was overwhelming and ambitions, and I felt I can’t start. That was until I met a woman, who happened to be my former student from the French classes I teach. She was a perfect partner: Flemish, woman, and a businesswoman on top of it. Together we framed the project and made it ripe for implementation in early 2012. It started as a nonprofit in May 2012, but we still took a year to outline some of the details and propose a solid program. It remained complex and ambitious ­ and it’s important to keep it that way. The organization managed to raise money from private sources to buy and renovate a building in Brussels (in fact we are still short of renovation money, and we are looking for 500.000 to get the job done). The space is so huge (650 square meters) that we can both offer support to many homeless people and invite other organizations working on the topic to use it. There is another reason why we made it so big ­ if the place was small and crowded with homeless from, say, Morocco, a Belgian single homeless person wouldn’t enter, even if we offered what they needed. It would just feel overwhelming. The mission of DoucheFLUX is to promote self­-esteem and help homeless people regain a positive image of themselves. The activities we propose do not make them feel intimidated. We forbade the usage of the words such as ""culture"" or ""art"" in the space, as well. Together with these precarious people, we produce a magazine, that is published 4­5 times a year. We also release a monthly broadcast, organize meetings in schools and film debates. Recently, we’ve been busy designing a board game that allows regular people to understand and experience the hardships and challenges of homelessness. The idea wasn’t mine ­ one of the homeless people proposed it as a way to engage with passers­by. We are preparing the beta version to be ready for the Brussels Game Festival.
After the opening of the building, which should happen by the end of the year, we will finally extend our services beyond going to the streets and establishing relations with the homeless. We will have 20 showers ­ 7 for women, 12 for men, and one for people on wheelchair. There will be also medical area and daily medical staff which our guests can appoint. This simple thing will hopefully fix once and for all the problem with access to showers in Brussels. We’re in the capital of Europe, but for people on the street there is only La Fontaine, which provides one shower per person a week, and you even have to be lucky to get it. Obviously, if we have showers, we need to have laundry. And the lockers. A huge problem among this community: there are virtually no lockers in Brussels, therefore people constantly get robbed and lose their things. As a result, they end up in a vicious circle of bureaucracy to get back whatever papers and permissions they need, and incredible insecurity. We will have 400 lockers, from super small for medicine and documents, to bigger ones. And finally, we would like to open a help desk at DoucheFlux one day. Which means we don’t want to become the only organization covering all their needs ­ but to provide them with information on where they could be offered help with other problems. We want this to be accompanied by the first centralized website, simple and intuitive so that people who don’t speak French or Flemish will be able to navigate it. It’s incredible how untransparent Brussels is to these people ­ they have no idea where to find a lawyer, where to sleep, eat, get their medicine or find work. This idea is supported by everyone from the field in the city. We are also facing some challenges around financing (we think we have reached the limits of private donations in the country at this point) and we consider turning the space into a public-­private entity. Our bargaining chip is all our achievement ­ we hope the formal institutions will see it as a necessity to support an initiative that has gone so far on its own. We have 50 volunteers, we employ and pay only one person (we want to extend it to at least 2­3), and all that without a single euro from the state. I’m optimistic about it ­ I don’t think anyone would like to see us closed at that point. Would you like to share you experience with work with vulnerable social groups? What are the hardships, common misconceptions, institutional obstacles you find exceptionally striking? What is your strategy to engage with these groups and help them overcome mistrust and lack of confidence?",/post/727,2017-02-26T22:23:42.000Z,2017-02-26T22:23:42.000Z,727,3323,AnnotatorStore::TextAnnotation,,,,,,,,,694,956 8392,v1.0,,"A network of the people who participated in village psy, encounters in psychotherapy ,has been established after the first encounter this summer, who continue  to communicate with each other through social media, so contact is ensured, along with an  ongoing exchange of ideas. Some, we hear, who live in the same cities,   have had  the chance to meet up since August. However since, participants are spread all over Greece and some live abroad,  getting everyone together  before the next venture is difficult. There is an idea, based on demand,of a smaller scale  experiental workshop encounter in 'the village' , a sort of follow up, in a few months time for those who can attend. The idea of community  and belonging  can somehow be maintened through social networking for some time , but ultimately the natural environment and the physical encounter are crucial for a longterm positive outcome , as they are  an essential part of the therapeutic process .",/post/26037,2017-02-26T22:21:17.000Z,2017-02-26T22:21:17.000Z,26037,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1105 8105,v1.0,,"A network of the people who participated in village psy, encounters in psychotherapy ,has been established after the first encounter this summer, who continue  to communicate with each other through social media, so contact is ensured, along with an  ongoing exchange of ideas. Some, we hear, who live in the same cities,   have had  the chance to meet up since August. However since, participants are spread all over Greece and some live abroad,  getting everyone together  before the next venture is difficult. There is an idea, based on demand,of a smaller scale  experiental workshop encounter in 'the village' , a sort of follow up, in a few months time for those who can attend. The idea of community  and belonging  can somehow be maintened through social networking for some time , but ultimately the natural environment and the physical encounter are crucial for a longterm positive outcome , as they are  an essential part of the therapeutic process .",/post/26037,2017-02-26T22:21:09.000Z,2017-02-26T22:21:09.000Z,26037,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1026 10902,v1.0,,"During this time -some people joined for  five days, others for the whole period,- in the picturesque village of pinakates,  in its courtyards ,the old primary school, open spaces in nature, participants attended experiential workshops in the mornings and informal lectures in  the evenings. The spaces worked even better than we had envisioned , as they provided true havens for working with such a serious topic as trauma. The combination of the art therapies ,such as music and drama, with more talking, person centered ,existential cures-psychotherapies worked really well as they ended up serving complimentarily. One day , the one dedicated to therapeutic horse riding, participants had the opportunity to actually ride  horses and get in touch with the very special relationship on which this type of therapy is based. Overall, during the ten days ,participants came and went ,yet still managed through the great dynamic that developed and spread , to  form a small but very powerful community which worked in depth, made strong bonds and parted enthusiastic and full of experiences.",/post/11214,2017-02-26T22:20:25.000Z,2017-02-26T22:20:25.000Z,11214,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1679 11532,v1.0,,"During this time -some people joined for  five days, others for the whole period,- in the picturesque village of pinakates,  in its courtyards ,the old primary school, open spaces in nature, participants attended experiential workshops in the mornings and informal lectures in  the evenings. The spaces worked even better than we had envisioned , as they provided true havens for working with such a serious topic as trauma. The combination of the art therapies ,such as music and drama, with more talking, person centered ,existential cures-psychotherapies worked really well as they ended up serving complimentarily. One day , the one dedicated to therapeutic horse riding, participants had the opportunity to actually ride  horses and get in touch with the very special relationship on which this type of therapy is based. Overall, during the ten days ,participants came and went ,yet still managed through the great dynamic that developed and spread , to  form a small but very powerful community which worked in depth, made strong bonds and parted enthusiastic and full of experiences.",/post/11214,2017-02-26T22:20:15.000Z,2017-02-26T22:20:15.000Z,11214,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1865 8877,v1.0,,"The first session of Village Psy has taken place between 18-28 August in Pinakates, under the theme “Centaur Chiron: Myth - Trauma - Therapy”. The title pays tribute to the mythological figure who roamed the Mountains of Pelion, where Pinakates is located. This first trial offered opportunities for receiving feedback from participants, aiming to improve the process in following sessions. And it resulted in both creation of a very strong community, but also ideas and solutions beyond our imagination.",/post/529,2017-02-26T22:19:44.000Z,2017-02-26T22:19:44.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1185 11513,v1.0,,"Beyond the personal connection with the village of Pinakates, the inspiration for choosing the location stemmed from the need of a place where people can stay together, ensuring continuity, contact and sharing throughout the process. At Village Psy, everything is done in a community, and that is the importance of the word “Village”. In this context, we are collaborating with local hostels and restaurants and the village’s Cultural Association. Other collaborations involve graphic designers and web developers, although all content is generated by them. At present, the main objective is to get Village Psy established, attracting more and more people in its sessions. However, there are ambitious ideas for similar activities related to alternative and holistic therapy, running in parallel in the surrounding villages, but also the creation of other such respective villages in other areas, so that they can work and connect together. This would allow Village Psy escape its physical boundaries and work towards the creation of a platform for the generation and diffusion of knowledge, always connecting therapy with the landscape and the natural environment.",/post/529,2017-02-26T22:18:42.000Z,2017-02-26T22:18:42.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1862 10290,v1.0,,"General population who is interested in self-improvement. Fellow psychologists, counselors of mental health or other professionals, who have finished their studies and are looking to come in contact with different approaches in their professional development. All those who would like to continue their training in counseling or psychotherapy and wish to be exposed to different schools of psychotherapy. This includes students who want to specialize in something they do not know, who in 8 days can experience nine different approaches in order to arrive at what is the most compatible with their own interests.",/post/529,2017-02-26T22:18:16.000Z,2017-02-26T22:18:16.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1504 10856,v1.0,,"The team focuses on facilitation of organizational work -not coaching in the seminars- something that allows them to retrieve various tools and previous experience. On the course of this collaboration, the two founders discovered abilities that even themselves were not aware of. Dimitris is very business savvy, while Atalandi is more into the arts and very protected from all forms of institutionalization. Although we’re different, we have managed to develop “the same language” and excellent communication, allowing the project to move further.",/post/529,2017-02-26T22:17:59.000Z,2017-02-26T22:17:59.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1661 8884,v1.0,,"Village Psy is an original idea of Dimitris Pantelis and Atalandi Apergi. The initial idea came 3 years ago, in a discussion under an old plane tree in the village of Pinakates. The discussion revolved around how psychotherapy connects with nature, and how this connection could be expanded to benefit more people. This idea has since evolved to a vision which connects two pillars: 1) thematic tourism and 2) making the process sustainable, repeatable and stable over time.",/post/529,2017-02-26T22:17:10.000Z,2017-02-26T22:17:10.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1189 10812,v1.0,,"Village Psy is an original idea of Dimitris Pantelis and Atalandi Apergi. The initial idea came 3 years ago, in a discussion under an old plane tree in the village of Pinakates. The discussion revolved around how psychotherapy connects with nature, and how this connection could be expanded to benefit more people. This idea has since evolved to a vision which connects two pillars: 1) thematic tourism and 2) making the process sustainable, repeatable and stable over time.",/post/529,2017-02-26T22:16:51.000Z,2017-02-26T22:16:51.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1648 11192,v1.0,,"Village Psy is an original idea of Dimitris Pantelis and Atalandi Apergi. The initial idea came 3 years ago, in a discussion under an old plane tree in the village of Pinakates. The discussion revolved around how psychotherapy connects with nature, and how this connection could be expanded to benefit more people. This idea has since evolved to a vision which connects two pillars: 1) thematic tourism and 2) making the process sustainable, repeatable and stable over time.",/post/529,2017-02-26T22:16:46.000Z,2017-02-26T22:16:46.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1761 7761,v1.0,,"There are numerous examples from similar healing events in ancient Greece, such as the Asclepeia showing the importance of nature in healing. Drawing from this inspiration, Village Psy combines experiential workshops, presentations, and parallel events to visitors who are looking to combine their summer holidays with self-development.",/post/529,2017-02-26T22:15:47.000Z,2017-02-26T22:15:47.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,928 9691,v1.0,,"In Pinakates, a small village on Mt. Pelion in Central Greece, two friends have decided to create Village Psy. Our project aims to foster the exchange of knowledge and ideas through an open dialogue and spontaneous experiential expression which gives space for personal development. The main objective of Village Psy is to bring together people who have a common interest in issues related to psychotherapy, personal development, and self-improvement. The whole process goes beyond the format of conferences and seminars in enclosed spaces but integrates elements of the natural environment. There are numerous examples from similar healing events in ancient Greece, such as the Asclepeia showing the importance of nature in healing. Drawing from this inspiration, Village Psy combines experiential workshops, presentations, and parallel events to visitors who are looking to combine their summer holidays with self-development. The people behind the idea Village Psy is an original idea of Dimitris Pantelis and Atalandi Apergi. The initial idea came 3 years ago, in a discussion under an old plane tree in the village of Pinakates. The discussion revolved around how psychotherapy connects with nature, and how this connection could be expanded to benefit more people. This idea has since evolved to a vision which connects two pillars: 1) thematic tourism and 2) making the process sustainable, repeatable and stable over time.   Atalandi has a degree in Sociology and is a post-graduate in Text & Performance Studies. She has also completed a 4-year specialized post-graduate training diploma in drama therapy, and further enriched her psychotherapeutic training and experience with seminars in various psychiatric structures. As a drama therapist, she has clinical experience with different populations, including drug addicts, immigrants, abused women, psychiatric patients, the elderly and people with learning disabilities. Atalandi is a member of the European Association of Psychotherapy (EAP), The British Association of Dramatherapists, the Panhellenic Professional Union of Dramatherapists, a member of the editing team of a thematic magazine dealing with drama therapy and a volunteer for WWF-Hellas. Dimitris studied Economics & Business Administration and has worked for 15 years in the banking and telecommunications sector on public relations, sales, and client service. He then continued with studies in Integrative Counselling & Psychotherapy and training on treatments of multi-cultural communities following natural disasters. Dimitris is a member of the local community council, a member of the Mountaineering Club “Pan” and member of the Hellenic Counselling Society. The project runs on the basis of trust and good chemistry between the two founders. The whole concept has been tested in the past through collaboration in smaller scale projects, such as seminars. Their relationship is based on complementarity and mutualism, not rivalries. Driving motivation by their own inspiration, the two of us develop the project locally, being aware of other seminars and educational activities that take place in different places. However, this is the first attempt to connect psychotherapy with nature, while offering access to knowledge stemming from different schools of therapy. The team focuses on facilitation of organizational work -not coaching in the seminars- something that allows them to retrieve various tools and previous experience. On the course of this collaboration, the two founders discovered abilities that even themselves were not aware of. Dimitris is very business savvy, while Atalandi is more into the arts and very protected from all forms of institutionalization. Although we’re different, we have managed to develop “the same language” and excellent communication, allowing the project to move further. Village Psy is the work of two persons, who are usually busy with other tasks. Atalandi is raising two small children, while Dimitris is preparing for his exams in the Nursing School. During the last months, Village Psy has been occupying nearly half of their everyday lives. Although it is difficult to understand this time commitment, seeing the results allows them to realize that this is a lot of work. According to Atalandi, the whole process entails a risk. “It is amazing how you begin with an idea and in a few days or weeks, you see it taking off. The more  you believe in your vision and the more passionate you are about it, the more you can overcome many personal obstacles”. For Dimitris, this project is important because it allowed him to “trust collaboration again”. Who benefits from Village Psy? The target group of the project includes men and women of 25+ years of age, but there is no restriction in terms of age, gender or background. This audience is distributed as follows: General population who is interested in self-improvement. Fellow psychologists, counselors of mental health or other professionals, who have finished their studies and are looking to come in contact with different approaches in their professional development. All those who would like to continue their training in counseling or psychotherapy and wish to be exposed to different schools of psychotherapy. This includes students who want to specialize in something they do not know, who in 8 days can experience nine different approaches in order to arrive at what is the most compatible with their own interests. The ideal place for Village Psy Beyond the personal connection with the village of Pinakates, the inspiration for choosing the location stemmed from the need of a place where people can stay together, ensuring continuity, contact and sharing throughout the process. At Village Psy, everything is done in a community, and that is the importance of the word “Village”. In this context, we are collaborating with local hostels and restaurants and the village’s Cultural Association. Other collaborations involve graphic designers and web developers, although all content is generated by them. At present, the main objective is to get Village Psy established, attracting more and more people in its sessions. However, there are ambitious ideas for similar activities related to alternative and holistic therapy, running in parallel in the surrounding villages, but also the creation of other such respective villages in other areas, so that they can work and connect together. This would allow Village Psy escape its physical boundaries and work towards the creation of a platform for the generation and diffusion of knowledge, always connecting therapy with the landscape and the natural environment.   Towards concept validation For this first year (2016) the project runs on experimental mode, under the auspices of Kondyli Publishers (www.kondyli.gr). This is a thematic publisher, owned by Dimitris, which specializes on issues relevant to psychotherapy. There are thoughts to change the legal entity behind Village Psy, and establish a new one, once the concept is tested and running in a way that is sustainable. Our project has attracted the attention of the press, with many media publishing press releases, interviews or articles. At the same time, a dedicated website (www.village-psy.gr) and Facebook page (www.facebook.com/villagepsy) includes all information that needs to be transferred to potential beneficiaries. The first session of Village Psy has taken place between 18-28 August in Pinakates, under the theme “Centaur Chiron: Myth - Trauma - Therapy”. The title pays tribute to the mythological figure who roamed the Mountains of Pelion, where Pinakates is located. This first trial offered opportunities for receiving feedback from participants, aiming to improve the process in following sessions. And it resulted in both creation of a very strong community, but also ideas and solutions beyond our imagination.   Are you developing different ways of approaching mental health and therapy yourself? Are there things around this topic you'd like to discuss with us, share, ask about, criticize? Let us know in a comment below the post.",/post/529,2017-02-26T22:15:10.000Z,2017-02-26T22:15:10.000Z,529,3323,AnnotatorStore::TextAnnotation,,,,,,,,,496,1385 8863,v1.0,,"Preventive mourning was used as a concept,  and was the theme of one of the experiental workshops during our psychotherapeutic encounters at village psy. During these workshops which took place in nature,up in the mountain of the Centaurs -where Centaur Chiron the wounded therapist is said to have llived -we were exploring various aspects of trauma. Preventive mourning is the  symbolic or realistic expectaction of loss which  awakens practices of mourning which are in many ways different than mourning after the loss . There are various questions one can ask around this topic,  which essentially  focuses on what it means for an individual to envisage and feel  the losses that are about to come in ones life . The notion was thoroughly explored and many questions were asked:  how do we as individuals react to this notion on a sentimental, cognitive, behavioural, relational level?which is the most difficult part of this experience for us?what experience can we draw from our own lives or our work? how does this impacts ones relationship with ones self and self awareness? how does is impact various aspect of our lives and on who we are? The discussion concentrated around coping mechanisms that we   have drawn from our own experiences of trauma and loss.  We talked about what    helped us and  our clients  deal with what was happening at the time, and how we/they changed after the experience. Concepts such as life appreciation, meaninginfulness etc were also part   of the discussion.",/post/24446,2017-02-26T22:14:30.000Z,2017-02-26T22:14:30.000Z,24446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1176 10901,v1.0,,"Preventive mourning was used as a concept,  and was the theme of one of the experiental workshops during our psychotherapeutic encounters at village psy. During these workshops which took place in nature,up in the mountain of the Centaurs -where Centaur Chiron the wounded therapist is said to have llived -we were exploring various aspects of trauma. Preventive mourning is the  symbolic or realistic expectaction of loss which  awakens practices of mourning which are in many ways different than mourning after the loss . There are various questions one can ask around this topic,  which essentially  focuses on what it means for an individual to envisage and feel  the losses that are about to come in ones life . The notion was thoroughly explored and many questions were asked:  how do we as individuals react to this notion on a sentimental, cognitive, behavioural, relational level?which is the most difficult part of this experience for us?what experience can we draw from our own lives or our work? how does this impacts ones relationship with ones self and self awareness? how does is impact various aspect of our lives and on who we are? The discussion concentrated around coping mechanisms that we   have drawn from our own experiences of trauma and loss.  We talked about what    helped us and  our clients  deal with what was happening at the time, and how we/they changed after the experience. Concepts such as life appreciation, meaninginfulness etc were also part   of the discussion.",/post/24446,2017-02-26T22:13:11.000Z,2017-02-26T22:13:11.000Z,24446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1679 11234,v1.0,,"Preventive mourning was used as a concept,  and was the theme of one of the experiental workshops during our psychotherapeutic encounters at village psy. During these workshops which took place in nature,up in the mountain of the Centaurs -where Centaur Chiron the wounded therapist is said to have llived -we were exploring various aspects of trauma. Preventive mourning is the  symbolic or realistic expectaction of loss which  awakens practices of mourning which are in many ways different than mourning after the loss . There are various questions one can ask around this topic,  which essentially  focuses on what it means for an individual to envisage and feel  the losses that are about to come in ones life . The notion was thoroughly explored and many questions were asked:  how do we as individuals react to this notion on a sentimental, cognitive, behavioural, relational level?which is the most difficult part of this experience for us?what experience can we draw from our own lives or our work? how does this impacts ones relationship with ones self and self awareness? how does is impact various aspect of our lives and on who we are? The discussion concentrated around coping mechanisms that we   have drawn from our own experiences of trauma and loss.  We talked about what    helped us and  our clients  deal with what was happening at the time, and how we/they changed after the experience. Concepts such as life appreciation, meaninginfulness etc were also part   of the discussion.",/post/24446,2017-02-26T22:13:00.000Z,2017-02-26T22:13:00.000Z,24446,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1772 7021,v1.0,,"My observation is that many actors in Thessaloniki are active in more than one initiative, so there is this type of ""fluid"" flowing from one project to the other. Most of these people are characterising themselves as people ""that care"", and there is a strong sentiment of solidarity. Different groups have different approached on running their projects. For example, there are a few of them that mistrust any type of institutional suppport. This makes some people also get engaged in another project. The result is a very diverse set of attitudes towards volunteer action and the wider frame of care, something that is making it difficult to map, engage and scale. This is probably the case also in Athens, however communities in the capital have more opportunities in terms of funding, interaction spaces and publicity.",/post/11806,2017-02-26T22:12:34.000Z,2017-02-26T22:12:34.000Z,11806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,733 5827,v1.0,,"The care communities of Greece are the unsung heroes of this crisis. They formed quickly, evolve slowly and are present where both and the public sector fail: providing free, open care to the most sensitive target groups (ie. homeless, elderly, immigrants). Given the financial, political and administrative support they diserve, these communities could transform the game, and offer the hope of recovery to all Greeks, but also Europe as a whole.",/post/736,2017-02-26T22:08:59.000Z,2017-02-26T22:08:59.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,377 8204,v1.0,,"The transition to such a system is not without obstacles, especially by virtue of the lack of political sense in the crisis-stricken country that is experiencing the deepest recession since World War II. Nevertheless, after 7 years of fighting the crisis, some cells inside the society start having a very clear idea about the pathway forward.",/post/736,2017-02-26T22:08:42.000Z,2017-02-26T22:08:42.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1054 6238,v1.0,,"The transition to such a system is not without obstacles, especially by virtue of the lack of political sense in the crisis-stricken country that is experiencing the deepest recession since World War II. Nevertheless, after 7 years of fighting the crisis, some cells inside the society start having a very clear idea about the pathway forward.",/post/736,2017-02-26T22:06:26.000Z,2017-02-26T22:06:26.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,442 9175,v1.0,,"For the participants, the future of care innovation is closely connected to openess and the availability of public space. Not surprisingly, many people appreciated the power of urban gardening in offering green spaces, but also in building a sense of community in the neighbourhood.",/post/736,2017-02-26T22:06:06.000Z,2017-02-26T22:06:06.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1262 9751,v1.0,,"For the participants, the future of care innovation is closely connected to openess and the availability of public space. Not surprisingly, many people appreciated the power of urban gardening in offering green spaces, but also in building a sense of community in the neighbourhood.",/post/736,2017-02-26T22:06:01.000Z,2017-02-26T22:06:01.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1395 8644,v1.0,,"Citizens were asked to engage into collaborative dialogue on the future of care in Greece, using the World Café method. Participants were divided in two groups and shared ideas on different and multi-level care structures. People from one group swapped with the other, in oder to cross-polinate their knowledge which was later harvested to reveal interesting connnections between different aspects of care. The new paradigm focuses on synergies at different levels, putting emphasis on notions and ideas that bring people together, build trust, strengthen relationships in communities. From the level of housing, neighbourhoods and schools, all the way to managing structures of public health and social care. Interesting ideas were shared from participants, for example how we can train care stuff in novel and specialised approaches such as ""preventive"" mourning. Others talk of the need for communal spaces in blocks of flat, where residents can share tools or creative moments, enhancing social interaction in the buildings they live. For the participants, the future of care innovation is closely connected to openess and the availability of public space. Not surprisingly, many people appreciated the power of urban gardening in offering green spaces, but also in building a sense of community in the neighbourhood.",/post/736,2017-02-26T22:05:53.000Z,2017-02-26T22:05:53.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1143 10923,v1.0,,"Besides public hospitals and private clinics, these structures harbour initiatives ranging from non-profit actions by international and domestic NGOs or philanthropic organisations (including the church), to volunteer initiatives and informal groups. Over the last years, such initiatives have focused on the distribution of primary need goods (ie. clothes, food, education), based on a strong narrative around the solidarity and exchange economy. In parallel with citizen-led initiatives, many city councils have launched municipal Social Grocery stores or Pharmacies. In many cases, local community action is combined with public social structures.",/post/736,2017-02-26T22:04:06.000Z,2017-02-26T22:04:06.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1683 8968,v1.0,,"Besides public hospitals and private clinics, these structures harbour initiatives ranging from non-profit actions by international and domestic NGOs or philanthropic organisations (including the church), to volunteer initiatives and informal groups. Over the last years, such initiatives have focused on the distribution of primary need goods (ie. clothes, food, education), based on a strong narrative around the solidarity and exchange economy. In parallel with citizen-led initiatives, many city councils have launched municipal Social Grocery stores or Pharmacies. In many cases, local community action is combined with public social structures.",/post/736,2017-02-26T22:03:59.000Z,2017-02-26T22:03:59.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,1207 7317,v1.0,,"The current care system of Greece is characterised by mainstream centralised structures defined (and accepted) by the public health system, marked by chronic problems related to inefficiency, corruption and lack of funding. The severity of the ongoing financial crisis in Greece has further incapacitated the public care system, but it has given rise to a milieu of social, citizen-led projects who leverage volunteerism to care for the most under-privileged parts of the society.",/post/736,2017-02-26T22:03:47.000Z,2017-02-26T22:03:47.000Z,736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,703,805 7123,v1.0,,"Well, this is for sure. I guess our school system was designed in a context where socialization happened outside the school and peer structures were robust. And maybe they are not that robust anymore, and anyway teenagers have very little time. This, by the way, is danah boyd's take on teens and social media in It's complicated: families saturate teenagers time with what she calls adult-approved activities, and they escape into social media to Just Hang Out.",/post/22646,2017-02-26T22:00:09.000Z,2017-02-26T22:00:09.000Z,22646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,766 10576,v1.0,,"Socialization is the elephant in the room and teenagers are in no mans land Well, this is for sure. I guess our school system was designed in a context where socialization happened outside the school and peer structures were robust. And maybe they are not that robust anymore, and anyway teenagers have very little time. This, by the way, is danah boyd's take on teens and social media in It's complicated: families saturate teenagers time with what she calls adult-approved activities, and they escape into social media to Just Hang Out.",/post/22646,2017-02-26T21:59:55.000Z,2017-02-26T21:59:55.000Z,22646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1582 10575,v1.0,,"parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important, from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.",/post/22212,2017-02-26T21:59:42.000Z,2017-02-26T21:59:42.000Z,22212,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1582 7903,v1.0,,", and I agree with your observations. Education is above all a human relationship, in fact a proxy of parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important, from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.",/post/22212,2017-02-26T21:58:51.000Z,2017-02-26T21:58:51.000Z,22212,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,965 7122,v1.0,,"I don't find what you say nihilist at all @Alberto , and I agree with your observations. Education is above all a human relationship, in fact a proxy of parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important, from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.",/post/22212,2017-02-26T21:58:35.000Z,2017-02-26T21:58:35.000Z,22212,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,766 7121,v1.0,,"I may have a nihilistic view, but it seems to me that there is no conclusive evidence for any educational method to be inherently superior to others. The typical story is this: young, smart, charismatic teacher becomes dissatisfied with how things are done in schools. He or she proceeds to start a new school that immediately outperforms the average existing school on all relevant parameters.  Maybe the methodology really did the trick. This, however, does not explain why all methodologies seem to work so well: Montessori, Steiner, Ecole 42, home schooling... So, here's another possibility: young, smart, charismatic people who care so much about teaching to leave a secure job to invent their own way of doing it are likely to be better than average teachers. They would do well with any methodology.  This would explain at least one case: that of the abandonment of the ""notionist"" paradigm in the West, supported by solid research results. Children schooled in the new way, more attentive to developing creativity and social skills, outperformed their traditionally schooled peers. But sure enough, 30 years later Western universities were flooded by graduates from very traditional Asian schools, and they kicked the Westerner's asses to kingdom come.  It does not make sense that creativity-oriented schooling is both superior and inferior to traditional cramming-oriented schooling. What's going on here could be regression to the mean. If you generalize any methodology to the mainstream you are going to get no more than average results, because this is what happens with average teachers teaching to average learners. I expect that the same will happen to generalized Arduinos in schools.",/post/20565,2017-02-26T21:58:12.000Z,2017-02-26T21:58:12.000Z,20565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,766 4659,v1.0,,"However, more and more teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am surfing that wave, but STEM has become a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium are implementing smart boards, apps, school fablabs etc. without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc. rely on technology to avoid changing their behavior. Ironic, because reality is the opposite. We do new biology education and that is our trojan horse: we can hide a new method in the new technological content that we bring. This also means that these changes to the methods won't be too radical. What we do is accepted as a technological innovation, but hopefully the changes in method will add to the slow collective learning process on different methods.",/post/15297,2017-02-26T21:57:33.000Z,2017-02-26T21:57:33.000Z,15297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,45 10858,v1.0,,"However, more and more teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am surfing that wave, but STEM has become a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium are implementing smart boards, apps, school fablabs etc. without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc. rely on technology to avoid changing their behavior. Ironic, because reality is the opposite. We do new biology education and that is our trojan horse: we can hide a new method in the new technological content that we bring. This also means that these changes to the methods won't be too radical. What we do is accepted as a technological innovation, but hopefully the changes in method will add to the slow collective learning process on different methods.",/post/15297,2017-02-26T21:56:55.000Z,2017-02-26T21:56:55.000Z,15297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1662 7120,v1.0,,"I like this idea of neighborhood driven education. In my home town we are also planning a project in this direction, so I will follow these stories with interest :).  The correlation between how you teach and what a child learns and ultimately which kind of person it becomes is a hard one. There's so many different opinions on what is the best way of educating and each seems to have its merits. In practise there's already quite some alternatives - at least in Belgium - like Steiner and Freinet schools. My experience with those schools is limited and I have not seen miracles. How does your philospophy relate to the existing alternatives? Like @Noemi says, it's a hard case for radical changes. That's not necessarily a bad thing. There needs to be room for experiment, but education is important enough that we should prevent major failures, even for a small group. The norm will shift slowly as educators themselves learn. I think it's that learning aspect that makes the difference. I hear the saddest stories while working with children. Usually it's educators lacking insight in themselves and their practise, as well as a very static approach to their profession. They are factory workers: follow the protocol, complete the checklist, get good numbers. However, more and more teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am surfing that wave, but STEM has become a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium are implementing smart boards, apps, school fablabs etc. without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc. rely on technology to avoid changing their behavior. Ironic, because reality is the opposite. We do new biology education and that is our trojan horse: we can hide a new method in the new technological content that we bring. This also means that these changes to the methods won't be too radical. What we do is accepted as a technological innovation, but hopefully the changes in method will add to the slow collective learning process on different methods.",/post/15297,2017-02-26T21:56:19.000Z,2017-02-26T21:56:19.000Z,15297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,766 8921,v1.0,,"I like this idea of neighborhood driven education. In my home town we are also planning a project in this direction, so I will follow these stories with interest :).  The correlation between how you teach and what a child learns and ultimately which kind of person it becomes is a hard one. There's so many different opinions on what is the best way of educating and each seems to have its merits. In practise there's already quite some alternatives - at least in Belgium - like Steiner and Freinet schools. My experience with those schools is limited and I have not seen miracles. How does your philospophy relate to the existing alternatives? Like @Noemi says, it's a hard case for radical changes. That's not necessarily a bad thing. There needs to be room for experiment, but education is important enough that we should prevent major failures, even for a small group. The norm will shift slowly as educators themselves learn. I think it's that learning aspect that makes the difference. I hear the saddest stories while working with children. Usually it's educators lacking insight in themselves and their practise, as well as a very static approach to their profession. They are factory workers: follow the protocol, complete the checklist, get good numbers. However, more and more teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am surfing that wave, but STEM has become a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium are implementing smart boards, apps, school fablabs etc. without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc. rely on technology to avoid changing their behavior. Ironic, because reality is the opposite. We do new biology education and that is our trojan horse: we can hide a new method in the new technological content that we bring. This also means that these changes to the methods won't be too radical. What we do is accepted as a technological innovation, but hopefully the changes in method will add to the slow collective learning process on different methods.",/post/15297,2017-02-26T21:55:58.000Z,2017-02-26T21:55:58.000Z,15297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1197 9759,v1.0,,"Hello again, @Altamirula . Your ideas about the future of learning seem more than reasonable to me, and in fact just yesterday I was at a conference where an educational policy maker kept referencing the idea of schools as learning hubs - questioning how to get there. Those of us in the room thought there's little hope for  a radical makeover, except maybe through public-private partnerships - if you do like TOPIO in Greece - the girls in Thessaloniki do neighborhood youth empowerment through artistic expression, pretty beautiful it seems, hav a look? What stage is Future Tools at, can we help in any way? Are you in Spain now? I can't tell from the post..",/post/8262,2017-02-26T21:55:41.000Z,2017-02-26T21:55:41.000Z,8262,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1396 8238,v1.0,,"«Future Tools» is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood’s daily activities and funnel the parents’ interest in social promotion for their kids towards a more inclusive society.",/post/796,2017-02-26T21:52:35.000Z,2017-02-26T21:52:35.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1071 10364,v1.0,,"«Future Tools» is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood’s daily activities and funnel the parents’ interest in social promotion for their kids towards a more inclusive society. The abundance of open resources that can be freely accessed through personal learning environments to learn digital skills —such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world— is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future.",/post/796,2017-02-26T21:52:24.000Z,2017-02-26T21:52:24.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1532 4498,v1.0,,"«Future Tools» project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. «Future Tools» is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation.",/post/796,2017-02-26T21:51:12.000Z,2017-02-26T21:51:12.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,5 7316,v1.0,,Traditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways.,/post/796,2017-02-26T21:51:00.000Z,2017-02-26T21:51:00.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,805 7119,v1.0,,"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge. Europe's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population. The rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future. Education, learning & the value of teenagers Traditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways. Teenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant. «Future Tools» project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. «Future Tools» is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation. Provide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways «Future Tools» will engage people in fostering a society with greater equality, solidarity and sustainability. «Future Tools» is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood’s daily activities and funnel the parents’ interest in social promotion for their kids towards a more inclusive society. The abundance of open resources that can be freely accessed through personal learning environments to learn digital skills —such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world— is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future. Neighboring environment The neighborhood as a community comes to relevance in the task of «helping grow adults». The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities. It is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community. It is sometimes sad hear stating that what is being promoted for innovation in the field of education —on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other— are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.",/post/796,2017-02-26T21:50:52.000Z,2017-02-26T21:50:52.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,766 10869,v1.0,,"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge. Europe's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population. The rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future. Education, learning & the value of teenagers Traditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways. Teenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant. «Future Tools» project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. «Future Tools» is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation. Provide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways «Future Tools» will engage people in fostering a society with greater equality, solidarity and sustainability. «Future Tools» is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood’s daily activities and funnel the parents’ interest in social promotion for their kids towards a more inclusive society. The abundance of open resources that can be freely accessed through personal learning environments to learn digital skills —such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world— is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future. Neighboring environment The neighborhood as a community comes to relevance in the task of «helping grow adults». The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities. It is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community. It is sometimes sad hear stating that what is being promoted for innovation in the field of education —on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other— are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.",/post/796,2017-02-26T21:50:42.000Z,2017-02-26T21:50:42.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1667 11569,v1.0,,"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge. Europe's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population. The rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future. Education, learning & the value of teenagers Traditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways. Teenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant. «Future Tools» project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. «Future Tools» is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation. Provide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways «Future Tools» will engage people in fostering a society with greater equality, solidarity and sustainability. «Future Tools» is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood’s daily activities and funnel the parents’ interest in social promotion for their kids towards a more inclusive society. The abundance of open resources that can be freely accessed through personal learning environments to learn digital skills —such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world— is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future. Neighboring environment The neighborhood as a community comes to relevance in the task of «helping grow adults». The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities. It is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community. It is sometimes sad hear stating that what is being promoted for innovation in the field of education —on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other— are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.",/post/796,2017-02-26T21:50:35.000Z,2017-02-26T21:50:35.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1873 8920,v1.0,,"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge. Europe's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population. The rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future. Education, learning & the value of teenagers Traditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways. Teenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant. «Future Tools» project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. «Future Tools» is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation. Provide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways «Future Tools» will engage people in fostering a society with greater equality, solidarity and sustainability. «Future Tools» is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood’s daily activities and funnel the parents’ interest in social promotion for their kids towards a more inclusive society. The abundance of open resources that can be freely accessed through personal learning environments to learn digital skills —such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world— is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future. Neighboring environment The neighborhood as a community comes to relevance in the task of «helping grow adults». The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities. It is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community. It is sometimes sad hear stating that what is being promoted for innovation in the field of education —on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other— are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.",/post/796,2017-02-26T21:50:27.000Z,2017-02-26T21:50:27.000Z,796,3323,AnnotatorStore::TextAnnotation,,,,,,,,,763,1197 7608,v1.0,,"Actually, I just started volunteering there some weeks ago. For their Spring Opening Fest, I helped set up and supervise a little stall for people to make Stockbrot. At first, it was us preparing the bread for the guests and then they would cook it over the fire. However, some of the refugees that were there were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough. Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped you a little!",/post/26945,2017-02-26T21:48:51.000Z,2017-02-26T21:48:51.000Z,26945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,899 10487,v1.0,,"were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough. Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped you a little!",/post/26945,2017-02-26T21:48:42.000Z,2017-02-26T21:48:42.000Z,26945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1557 5733,v1.0,,"there is a community garden called Himmelbeet in Wedding that might be an interesting project for you to check out! Volunteers can just come in during the opening hours and just see what kind of work there is to do - usually always something, from gardening to building stuff to preparing workshops. They have alot of projets going on and would be more than happy to talk to you, I am sure. I believe that some refugees work there too, or would be very welcome at least!  Actually, I just started volunteering there some weeks ago. For their Spring Opening Fest, I helped set up and supervise a little stall for people to make Stockbrot. At first, it was us preparing the bread for the guests and then they would cook it over the fire. However, some of the refugees that were there were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough. Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped you a little!",/post/26945,2017-02-26T21:48:26.000Z,2017-02-26T21:48:26.000Z,26945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,363 7607,v1.0,,"Since they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).",/post/26014,2017-02-26T21:48:18.000Z,2017-02-26T21:48:18.000Z,26014,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,899 9374,v1.0,,"Since they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).",/post/26014,2017-02-26T21:48:08.000Z,2017-02-26T21:48:08.000Z,26014,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1298 4802,v1.0,,"Seeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools? Boredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better. At this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.",/post/26014,2017-02-26T21:47:37.000Z,2017-02-26T21:47:37.000Z,26014,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,80 8742,v1.0,,"Thank you all for your responses! I'm afraid, I haven't yet caught up with the whole routine, so sorry for my impoliteness of answering late.. We (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out. How is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men. Right now, we're in contact with a group of Syrians, around 25-32 of age, who have given us insights on daily life in the camp but also daily life in Syria and we have spoken about the small moments that create the feeling of home. Since they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical). Seeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools? Boredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better. At this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.",/post/26014,2017-02-26T21:47:22.000Z,2017-02-26T21:47:22.000Z,26014,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1150 11246,v1.0,,"We (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out. How is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men. Right now, we're in contact with a group of Syrians, around 25-32 of age, who have given us insights on daily life in the camp but also daily life in Syria and we have spoken about the small moments that create the feeling of home. Since they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical). Seeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools? Boredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better. At this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.",/post/26014,2017-02-26T21:47:13.000Z,2017-02-26T21:47:13.000Z,26014,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1775 11554,v1.0,,"We (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out. How is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men.",/post/26014,2017-02-26T21:46:35.000Z,2017-02-26T21:46:35.000Z,26014,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1871 9362,v1.0,,"I am no expert, but I think you are on to something @lujia. This idea of everyone being simultaneously care giver and care receiver is the cornerstone of OpenCare. The commercial is cute too!",/post/24875,2017-02-26T21:45:45.000Z,2017-02-26T21:45:45.000Z,24875,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1296 11245,v1.0,,"As time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, ""belittled"" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn't spend much time on this project so my answer to my question might sound cheesy.  I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that time to work out.",/post/23723,2017-02-26T21:45:30.000Z,2017-02-26T21:45:30.000Z,23723,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1775 4801,v1.0,,"As time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, ""belittled"" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn't spend much time on this project so my answer to my question might sound cheesy.  I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that time to work out.",/post/23723,2017-02-26T21:45:24.000Z,2017-02-26T21:45:24.000Z,23723,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,80 4840,v1.0,,"As time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, ""belittled"" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn't spend much time on this project so my answer to my question might sound cheesy.  I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that time to work out.",/post/23723,2017-02-26T21:45:11.000Z,2017-02-26T21:45:11.000Z,23723,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,95 4800,v1.0,,"The area I focused on was disability. I interviewed a few people on the street who were in a wheelchair, and did a half day experiment rolling myself in a wheelchair. It was quite an experience I have to say. I suddenly found myself shorter than everyone else -- both physically and psychologically. Many people offered me help, and of course I told them the truth, but I felt if I were really disabled, I wouldn't simply say yes because I wouldn't want to trouble others and would want to be as independent as possible. On the other hand, when I see a handicapped person, and a few of my classmates agreed on this, sometimes I am not sure if I should help him/her because I don't want to assume that they can't perform certain actions and offend them.",/post/23723,2017-02-26T21:44:17.000Z,2017-02-26T21:44:17.000Z,23723,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,80 6945,v1.0,,"The area I focused on was disability. I interviewed a few people on the street who were in a wheelchair, and did a half day experiment rolling myself in a wheelchair. It was quite an experience I have to say. I suddenly found myself shorter than everyone else -- both physically and psychologically. Many people offered me help, and of course I told them the truth, but I felt if I were really disabled, I wouldn't simply say yes because I wouldn't want to trouble others and would want to be as independent as possible. On the other hand, when I see a handicapped person, and a few of my classmates agreed on this, sometimes I am not sure if I should help him/her because I don't want to assume that they can't perform certain actions and offend them.",/post/23723,2017-02-26T21:44:09.000Z,2017-02-26T21:44:09.000Z,23723,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,724 9373,v1.0,,"People first, mission second.",/post/20040,2017-02-26T21:43:46.000Z,2017-02-26T21:43:46.000Z,20040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1298 11244,v1.0,,"But we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people.",/post/20040,2017-02-26T21:43:33.000Z,2017-02-26T21:43:33.000Z,20040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1775 10310,v1.0,,"Hi Dennis, We see this same problem with many of the short term volunteers in Calais. A lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to help of their agency; their freedom to act normally. When i first started working on the camp i fell into the same trap. I was helping to build shelters, but i was also a little scared for myself: my safety, my equipment, 'getting the job done correctly'. It was only by standing back from the action and just talking to some of the camp residents who were trying to help us that i found out more about them. Many of them had been engineers or builders before they embarked on their journey to a safer life. I realised that these people were more qualified than i was, had more reason to make sure the shelter was built well and could be trusted with our equipment because it was of great value to them that we had brought it to the camp. I had to turn off the switch in my head that was about 'me' and truely be there for them. But it could only be done by firstly opening a dialogue, then through mutual understanding and cooperation. As the day went on the residents who were working with us drifted away (to do tasks like cooking, eating, prayer, preparation for the nighttime, talking to family at home/friends in other countries) and we found ourselves continuing the work as our orginal team. That was the moment that we really started to help them. We could treat this task as a job, we could committ 100% of our time and resources to finishing the job quickly, because that's why we had come out there. As a result 16 people had a drier, warmer place to sleep that night. But we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people. People first, mission second.",/post/20040,2017-02-26T21:42:45.000Z,2017-02-26T21:42:45.000Z,20040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1508 8741,v1.0,,"Hi Dennis, We see this same problem with many of the short term volunteers in Calais. A lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to help of their agency; their freedom to act normally. When i first started working on the camp i fell into the same trap. I was helping to build shelters, but i was also a little scared for myself: my safety, my equipment, 'getting the job done correctly'. It was only by standing back from the action and just talking to some of the camp residents who were trying to help us that i found out more about them. Many of them had been engineers or builders before they embarked on their journey to a safer life. I realised that these people were more qualified than i was, had more reason to make sure the shelter was built well and could be trusted with our equipment because it was of great value to them that we had brought it to the camp. I had to turn off the switch in my head that was about 'me' and truely be there for them. But it could only be done by firstly opening a dialogue, then through mutual understanding and cooperation. As the day went on the residents who were working with us drifted away (to do tasks like cooking, eating, prayer, preparation for the nighttime, talking to family at home/friends in other countries) and we found ourselves continuing the work as our orginal team. That was the moment that we really started to help them. We could treat this task as a job, we could committ 100% of our time and resources to finishing the job quickly, because that's why we had come out there. As a result 16 people had a drier, warmer place to sleep that night. But we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people. People first, mission second.",/post/20040,2017-02-26T21:42:38.000Z,2017-02-26T21:42:38.000Z,20040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1150 4799,v1.0,,"A lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to help of their agency; their freedom to act normally.",/post/20040,2017-02-26T21:42:32.000Z,2017-02-26T21:42:32.000Z,20040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,80 4606,v1.0,,"A lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to help of their agency; their freedom to act normally.",/post/20040,2017-02-26T21:42:26.000Z,2017-02-26T21:42:26.000Z,20040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,29 11243,v1.0,,"You are  a designer – you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!",/post/15984,2017-02-26T21:41:53.000Z,2017-02-26T21:41:53.000Z,15984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1775 9369,v1.0,,"You are  a designer – you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!",/post/15984,2017-02-26T21:41:48.000Z,2017-02-26T21:41:48.000Z,15984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1297 9875,v1.0,,"You are  a designer – you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!",/post/15984,2017-02-26T21:41:40.000Z,2017-02-26T21:41:40.000Z,15984,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1436 4839,v1.0,,"Unfortunately this dichotomy between provider/ receiver of services is still very common in the non-profit sector. Just look at how funding applications for initiatives supporting refugees are framed. It seems that the moment you define them as category in need- no matter the language variations, you have a problem already. Curious if our friends in Milano who are now doing many workshops to engage with groups in the city are seeing this kind of differentiation felt at the very level of individuals who are ""in need"" of care? Ping @zoescope @Alberto_Simonetti, as we were lately wondering how to frame discourse..",/post/9249,2017-02-26T21:41:30.000Z,2017-02-26T21:41:30.000Z,9249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,95 11242,v1.0,,"If a refugee wishes for work, it almost automatically seems like a matter of impossibility: ""We cannot even provide our own people with jobs, how do you think you would fit into that picture?"" Maybe, that was a misunderstanding. Maybe, what was meant was rather: ""I'm tired of sitting around all day. I want to feel useful again. I don't want to be helped only. I also want to be in a position of helping others!""",/post/665,2017-02-26T21:41:17.000Z,2017-02-26T21:41:17.000Z,665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1775 10129,v1.0,,"I once helped supplying refugees with clothes. Our group of volunteers carried box after box and it would happen that some of the refugees ask to help us. We would refuse their offers and told them that it's okay to go rest and let us do the work. I didn't realise at that time that we treated them like children, belittling them, taking their integrity and giving them the feeling of uselessness. Out of arrogant goodwill. So how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It's clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?",/post/665,2017-02-26T21:40:23.000Z,2017-02-26T21:40:23.000Z,665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1452 4798,v1.0,,"So how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It's clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?",/post/665,2017-02-26T21:40:12.000Z,2017-02-26T21:40:12.000Z,665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,80 7213,v1.0,,"That being told, I must confess, I couldn't imagine how it must be to find oneself in such a situation. If I don't know their needs and wishes, how could I possibly dare saying that I'm helping with whatever I think that would help them? If a refugee wishes for work, it almost automatically seems like a matter of impossibility: ""We cannot even provide our own people with jobs, how do you think you would fit into that picture?"" Maybe, that was a misunderstanding. Maybe, what was meant was rather: ""I'm tired of sitting around all day. I want to feel useful again. I don't want to be helped only. I also want to be in a position of helping others!"" I once helped supplying refugees with clothes. Our group of volunteers carried box after box and it would happen that some of the refugees ask to help us. We would refuse their offers and told them that it's okay to go rest and let us do the work. I didn't realise at that time that we treated them like children, belittling them, taking their integrity and giving them the feeling of uselessness. Out of arrogant goodwill. So how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It's clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?",/post/665,2017-02-26T21:39:53.000Z,2017-02-26T21:39:53.000Z,665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,781 8740,v1.0,,"Despite being child to parents who had both been refugees themselves, that part of their past has never been openly talked about in our house.They told me once in full detail and never since. Once in a while, they would share bits and pieces of memories from all the way from Vietnam to Germany: How my grandmother took my mother to the docks in the middle of the night. The boats. The sea. How my father was captured by the Navy. The ""re-education camp"". The second try... the good people at the boarding home they were allowed to stay at. Fellow refugee children they made friends with. Attending school in a totally foreign language at day. Learning that very foreign language in the evenings. Working - and eventually not only being able to make their own living, but being able to make another person's living as well - in other words, not only having a child, but ensuring a safe and promising future for that child. That being told, I must confess, I couldn't imagine how it must be to find oneself in such a situation. If I don't know their needs and wishes, how could I possibly dare saying that I'm helping with whatever I think that would help them? If a refugee wishes for work, it almost automatically seems like a matter of impossibility: ""We cannot even provide our own people with jobs, how do you think you would fit into that picture?"" Maybe, that was a misunderstanding. Maybe, what was meant was rather: ""I'm tired of sitting around all day. I want to feel useful again. I don't want to be helped only. I also want to be in a position of helping others!"" I once helped supplying refugees with clothes. Our group of volunteers carried box after box and it would happen that some of the refugees ask to help us. We would refuse their offers and told them that it's okay to go rest and let us do the work. I didn't realise at that time that we treated them like children, belittling them, taking their integrity and giving them the feeling of uselessness. Out of arrogant goodwill. So how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It's clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?",/post/665,2017-02-26T21:38:50.000Z,2017-02-26T21:38:50.000Z,665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,632,1150 4642,v1.0,,"I think a basic income for everyone would be a good start to an alternative economy. It would tackle the fear of not having enough. Thus, everyone of us could contribute freely to society providing things and services we're good at. For me (traumatherapist on wheels) it would be a perfect solution : be able to work / to give to the world without having to think about 'will I earn enough mony doing so?' In Finland, a basic income experiment is on its way - I am very curious what the outcome will be, and, eventually, how this wil change economy and society!",/post/27793,2017-02-26T21:37:32.000Z,2017-02-26T21:37:32.000Z,27793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,42 4825,v1.0,,"I think a basic income for everyone would be a good start to an alternative economy. It would tackle the fear of not having enough. Thus, everyone of us could contribute freely to society providing things and services we're good at. For me (traumatherapist on wheels) it would be a perfect solution : be able to work / to give to the world without having to think about 'will I earn enough mony doing so?' In Finland, a basic income experiment is on its way - I am very curious what the outcome will be, and, eventually, how this wil change economy and society!",/post/27793,2017-02-26T21:37:03.000Z,2017-02-26T21:37:03.000Z,27793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,88 7483,v1.0,,Food waste is largely about food that doesn't even end up in your fridge - it gets wasted before that. See example of supermarkets throwing away perfectly good food as a very common one.,/post/26946,2017-02-26T21:36:52.000Z,2017-02-26T21:36:52.000Z,26946,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,860 7482,v1.0,,"Somewhere people were calling for money to buy food to be distributed on poor people during the Ramadan. I can't see how do you waste food. Do you cook food, eat and through the remaining away instead of storing it in the fridge for next day?",/post/26016,2017-02-26T21:36:42.000Z,2017-02-26T21:36:42.000Z,26016,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,860 4641,v1.0,,"I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina",/post/24581,2017-02-26T21:36:16.000Z,2017-02-26T21:36:16.000Z,24581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,42 7606,v1.0,,"I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina",/post/24581,2017-02-26T21:35:51.000Z,2017-02-26T21:35:51.000Z,24581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,897 7604,v1.0,,"I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina",/post/24581,2017-02-26T21:35:40.000Z,2017-02-26T21:35:40.000Z,24581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,896 6112,v1.0,,"I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Din",/post/24581,2017-02-26T21:35:27.000Z,2017-02-26T21:35:27.000Z,24581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,430 8777,v1.0,,"Like @Carolina, I am interested, mostly in the traveling tour. @noelito pointed me years ago to a project by European Alternatives called TransEuropa Caravans where a group would go from place to place to meet initiatives and work out storytelling formats for connecting them. See this video as example:",/post/21417,2017-02-26T21:33:23.000Z,2017-02-26T21:33:23.000Z,21417,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,1153 5618,v1.0,,"Once the MVP of the plattform is finished it will be used in first to turn foodsharing into a international movement.   Statement about communitys: ...just some in every contry with the same intention, well connected could easily create momentum. Creating community/movement: I’m  looking for a team of 9-30 activists, interested in playing oasis game simliar settings, while traveling together and being filmed. I will start with in Europe. (if someone likes to do same/simliar somewhere else: DO IT! :-)) Do we need money? One of the only reason why we may feel like, is of having a lack of connections. Once a network is big enough it’s self-supporting. That’s something I’m highly interested to work on.",/post/674,2017-02-26T21:31:18.000Z,2017-02-26T21:31:18.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,354 10527,v1.0,,"Sharing everything (you like to). For that we’re working on a open source multible sharing platform called yunity.org. But it’s not “only” about creating a plattform, it’s on the same about creating/supporting a social architecture brining people together with a focus on collaration.",/post/674,2017-02-26T21:31:06.000Z,2017-02-26T21:31:06.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,1568 9145,v1.0,,"Sharing everything (you like to). For that we’re working on a open source multible sharing platform called yunity.org. But it’s not “only” about creating a plattform, it’s on the same about creating/supporting a social architecture brining people together with a focus on collaration.",/post/674,2017-02-26T21:30:56.000Z,2017-02-26T21:30:56.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,1257 5769,v1.0,,"While 30-40% of all produced food is wasted a good start is about preventing the waste while sharing the saved food freely. In Germany there’s since about 3 years a movent existing called foodsharing just doing exactly this. In this very moment we’re working on to turn it international. While this movment started from the idea of saving food, there’s still the main focus on. Step by step I would like to create a bigger focus direction eatable cities, community supported agricultre and freeGardens.",/post/674,2017-02-26T21:30:37.000Z,2017-02-26T21:30:37.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,376 9721,v1.0,,"While 30-40% of all produced food is wasted a good start is about preventing the waste while sharing the saved food freely. In Germany there’s since about 3 years a movent existing called foodsharing just doing exactly this. In this very moment we’re working on to turn it international. While this movment started from the idea of saving food, there’s still the main focus on. Step by step I would like to create a bigger focus direction eatable cities, community supported agricultre and freeGardens.",/post/674,2017-02-26T21:30:15.000Z,2017-02-26T21:30:15.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,1390 7471,v1.0,,"While 30-40% of all produced food is wasted a good start is about preventing the waste while sharing the saved food freely. In Germany there’s since about 3 years a movent existing called foodsharing just doing exactly this. In this very moment we’re working on to turn it international. While this movment started from the idea of saving food, there’s still the main focus on. Step by step I would like to create a bigger focus direction eatable cities, community supported agricultre and freeGardens. If anybody is interested in here, just conntact me. Sharing everything (you like to). For that we’re working on a open source multible sharing platform called yunity.org. But it’s not “only” about creating a plattform, it’s on the same about creating/supporting a social architecture brining people together with a focus on collaration.",/post/674,2017-02-26T21:29:07.000Z,2017-02-26T21:29:07.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,857 7481,v1.0,,"While 30-40% of all produced food is wasted a good start is about preventing the waste while sharing the saved food freely. In Germany there’s since about 3 years a movent existing called foodsharing just doing exactly this. In this very moment we’re working on to turn it international. While this movment started from the idea of saving food, there’s still the main focus on. Step by step I would like to create a bigger focus direction eatable cities, community supported agricultre and freeGardens.",/post/674,2017-02-26T21:28:50.000Z,2017-02-26T21:28:50.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,860 5525,v1.0,,It’s about sharing and collaboration instead of sensless competition. Same as it creates trust and connections towards each other.,/post/674,2017-02-26T21:28:35.000Z,2017-02-26T21:28:35.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,326 10381,v1.0,,It’s about sharing and collaboration instead of sensless competition. Same as it creates trust and connections towards each other.,/post/674,2017-02-26T21:28:26.000Z,2017-02-26T21:28:26.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,1534 11195,v1.0,,"something taken from the comon. It’s a resource holded by private/group until accepted trade occurs. Two maigor(possible) problems can be apier from that. Obviosly as soon as there are enough people trading, it creates a force. Resources you’re mainly able to resieve are needed to be in exchange. It’s creating a “need” to search for trading oportunities for your own service. Which is then aswell creating a extrinsic motivation, which then turns in modern markets in a direction where people following  “oportunities for a trade” instead of activities intrinsic motivated. Like that I find my self where a lot’s people doing jobs they would never do under “normal condicions”. Having more “marketpower” is then directly related to having more power over people.",/post/674,2017-02-26T21:27:49.000Z,2017-02-26T21:27:49.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,1763 7605,v1.0,,"….but before having a view on trading I would like to go a step further. Because what is needed before beeing able to trade is property. Property itself can be understood as something taken from the comon. It’s a resource holded by private/group until accepted trade occurs. Two maigor(possible) problems can be apier from that. Obviosly as soon as there are enough people trading, it creates a force. Resources you’re mainly able to resieve are needed to be in exchange. It’s creating a “need” to search for trading oportunities for your own service. Which is then aswell creating a extrinsic motivation, which then turns in modern markets in a direction where people following  “oportunities for a trade” instead of activities intrinsic motivated. Like that I find my self where a lot’s people doing jobs they would never do under “normal condicions”. Having more “marketpower” is then directly related to having more power over people. There might be many solutions to declining this trend. Me personly resonate quiet strongly to those related to the gifteconomy. Somehow I have the feeling while creating a gifteconomy it’s at the same work on all the habbits which let the world look like how it is now. It’s about sharing and collaboration instead of sensless competition. Same as it creates trust and connections towards each other. Taking care about something (someone) “just” because you want to. You do because you love to help and because you’re passionated about. But what if not enough people think like that? The world is already full of volunteers. And once more resources are free available again, more could do so.   Starting with food: Everything you’ll like to do not alone you need people. Nothing more brings people that easy together then food. Everybody needs to eat. To have this resource free available could be a big step.   While 30-40% of all produced food is wasted a good start is about preventing the waste while sharing the saved food freely. In Germany there’s since about 3 years a movent existing called foodsharing just doing exactly this. In this very moment we’re working on to turn it international. While this movment started from the idea of saving food, there’s still the main focus on. Step by step I would like to create a bigger focus direction eatable cities, community supported agricultre and freeGardens. If anybody is interested in here, just conntact me. Sharing everything (you like to). For that we’re working on a open source multible sharing platform called yunity.org. But it’s not “only” about creating a plattform, it’s on the same about creating/supporting a social architecture brining people together with a focus on collaration.   Once the MVP of the plattform is finished it will be used in first to turn foodsharing into a international movement.   Statement about communitys: ...just some in every contry with the same intention, well connected could easily create momentum. Creating community/movement: I’m  looking for a team of 9-30 activists, interested in playing oasis game simliar settings, while traveling together and being filmed. I will start with in Europe. (if someone likes to do same/simliar somewhere else: DO IT! :-)) Do we need money? One of the only reason why we may feel like, is of having a lack of connections. Once a network is big enough it’s self-supporting. That’s something I’m highly interested to work o",/post/674,2017-02-26T21:27:37.000Z,2017-02-26T21:27:37.000Z,674,3323,AnnotatorStore::TextAnnotation,,,,,,,,,641,897 6076,v1.0,,"THE OPTIONS EXPRESSED IN THIS PAGE ARE ENGAGING ONLY THE AUTHOR. The Malagasy people seem to have lost the desire to resist standing up to defend their rights, even though they are being trampled on a daily basis. According to statistics, 92% of Malagasy lived below the poverty threshold but no one rose up. When social pressure is too much, the point of rupture is not far, and the accumulation of frustration and deprivation often results in bloody explosions. However, this can be avoided. Just put yourself to nonviolent civil resistance! Nowadays, the Malagasy people are tired of going down to the streets to claim their rights as citizens. Why make the strike if it is to have each time the same scenario: Teaser bombs, lost bullets and blood flowing, as was the case in 1972, 2002, or in 2009? Why manifesting because it is the politicians who benefit in the end? Today, people prefer to stay at home and rant about the social network instead of expressing their frustration in public and questioning their leaders. And yet, it is not the subjects of contestation which are wanting. Traffics of all kinds, corruption, bad governance, lack of accountability of elected officials, non-respect of laws, hamper development of the country. It is now essential that the Malagasy rediscover that power belongs to them and that they learn how to fight against injustice, without dilatory maneuvering of the politicians, and without violence. As Martin Luther King Jr pointed out, active nonviolence is not a method for cowards. On the contrary, it is a real resistance. It is the art of using non-violent power to achieve sociopolitical objectives, especially through symbolic protests. This practice was popularized from 1921 by exemplary personalities like Gandhi in India, by Nelson Mandela and Steve Biko in South Africa, or Martin Luther King Jr in his fight against segregation. The Malagasy also experimented with nonviolent civil resistance, for example through publications in satirical journals under colonization, but the practice gradually lost face to the rise of the military and police repression, but Also facing the weariness of the main concerned - the citizens. Contemporary movements such as Wake-up Madagascar are now trying to awaken citizens' consciences and to revive non-violent civil resistance. Short-lived symbolic actions that do not create crowds and are therefore not illegal are regularly organized to denounce the fact of society that make jasper. Expose empty plates to say that the Malagasy are hungry, to walk in the streets of Antananarivo to demand the ratification of a charter on democracy or to make the dead on the place of independence in the city center of the capital to denounce the words which undermine the country are for example, part of the non-violent civil resistance. It is precisely to spread this philosophy on the desire for change through non-violent actions that many projects such as LIANA or Learning Initiative Aiming at Non Violent Action which was initiated by Wake Up Madagascar, Liberty 32 and the WYLD program Women and Youth's League for Democracy with the support of the International Center for Non-Violent Conflict. Since the 70's during the 1st Republic in Madagascar, Malagasy people have been manipulate and influenced by politicians who wants a place on government by force. This article is about about my own personal opinion. You can add a comment, give suggestions or critics",/post/813,2017-02-26T21:18:25.000Z,2017-02-26T21:18:25.000Z,813,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,426 10059,v1.0,,"THE OPTIONS EXPRESSED IN THIS PAGE ARE ENGAGING ONLY THE AUTHOR. The Malagasy people seem to have lost the desire to resist standing up to defend their rights, even though they are being trampled on a daily basis. According to statistics, 92% of Malagasy lived below the poverty threshold but no one rose up. When social pressure is too much, the point of rupture is not far, and the accumulation of frustration and deprivation often results in bloody explosions. However, this can be avoided. Just put yourself to nonviolent civil resistance! Nowadays, the Malagasy people are tired of going down to the streets to claim their rights as citizens. Why make the strike if it is to have each time the same scenario: Teaser bombs, lost bullets and blood flowing, as was the case in 1972, 2002, or in 2009? Why manifesting because it is the politicians who benefit in the end? Today, people prefer to stay at home and rant about the social network instead of expressing their frustration in public and questioning their leaders. And yet, it is not the subjects of contestation which are wanting. Traffics of all kinds, corruption, bad governance, lack of accountability of elected officials, non-respect of laws, hamper development of the country. It is now essential that the Malagasy rediscover that power belongs to them and that they learn how to fight against injustice, without dilatory maneuvering of the politicians, and without violence. As Martin Luther King Jr pointed out, active nonviolence is not a method for cowards. On the contrary, it is a real resistance. It is the art of using non-violent power to achieve sociopolitical objectives, especially through symbolic protests. This practice was popularized from 1921 by exemplary personalities like Gandhi in India, by Nelson Mandela and Steve Biko in South Africa, or Martin Luther King Jr in his fight against segregation. The Malagasy also experimented with nonviolent civil resistance, for example through publications in satirical journals under colonization, but the practice gradually lost face to the rise of the military and police repression, but Also facing the weariness of the main concerned - the citizens. Contemporary movements such as Wake-up Madagascar are now trying to awaken citizens' consciences and to revive non-violent civil resistance. Short-lived symbolic actions that do not create crowds and are therefore not illegal are regularly organized to denounce the fact of society that make jasper. Expose empty plates to say that the Malagasy are hungry, to walk in the streets of Antananarivo to demand the ratification of a charter on democracy or to make the dead on the place of independence in the city center of the capital to denounce the words which undermine the country are for example, part of the non-violent civil resistance. It is precisely to spread this philosophy on the desire for change through non-violent actions that many projects such as LIANA or Learning Initiative Aiming at Non Violent Action which was initiated by Wake Up Madagascar, Liberty 32 and the WYLD program Women and Youth's League for Democracy with the support of the International Center for Non-Violent Conflict. Since the 70's during the 1st Republic in Madagascar, Malagasy people have been manipulate and influenced by politicians who wants a place on government by force. This article is about about my own personal opinion. You can add a comment, give suggestions or critics",/post/813,2017-02-26T21:17:57.000Z,2017-02-26T21:17:57.000Z,813,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1448 9007,v1.0,,"even though they are being trampled on a daily basis. According to statistics, 92% of Malagasy lived below the poverty threshold but no one rose up. When social pressure is too much, the point of rupture is not far, and the accumulation of frustration and deprivation often results in bloody explosions. However, this can be avoided. Just put yourself to nonviolent civil resistance! Nowadays, the Malagasy people are tired of going down to the streets to claim their rights as citizens. Why make the strike if it is to have each time the same scenario: Teaser bombs, lost bullets and blood flowing, as was the case in 1972, 2002, or in 2009? Why manifesting because it is the politicians who benefit in the end? Today, people prefer to stay at home and rant about the social network instead of expressing their frustration in public and questioning their leaders. And yet, it is not the subjects of contestation which are wanting. Traffics of all kinds, corruption, bad governance, lack of accountability of elected officials, non-respect of laws, hamper development of the country. It is now essential that the Malagasy rediscover that power belongs to them and that they learn how to fight against injustice, without dilatory maneuvering of the politicians, and without violence. As Martin Luther King Jr pointed out, active nonviolence is not a method for cowards. On the contrary, it is a real resistance. It is the art of using non-violent power to achieve sociopolitical objectives, especially through symbolic protests. This practice was popularized from 1921 by exemplary personalities like Gandhi in India, by Nelson Mandela and Steve Biko in South Africa, or Martin Luther King Jr in his fight against segregation. The Malagasy also experimented with nonviolent civil resistance, for example through publications in satirical journals under colonization, but the practice gradually lost face to the rise of the military and police repression, but Also facing the weariness of the main concerned - the citizens. Contemporary movements such as Wake-up Madagascar are now trying to awaken citizens' consciences and to revive non-violent civil resistance. Short-lived symbolic actions that do not create crowds and are therefore not illegal are regularly organized to denounce the fact of society that make jasper. Expose empty plates to say that the Malagasy are hungry, to walk in the streets of Antananarivo to demand the ratification of a charter on democracy or to make the dead on the place of independence in the city center of the capital to denounce the words which undermine the country are for example, part of the non-violent civil resistance. It is precisely to spread this philosophy on the desire for change through non-violent actions that many projects such as LIANA or Learning Initiative Aiming at Non Violent Action which was initiated by Wake Up Madagascar, Liberty 32 and the WYLD program Women and Youth's League for Democracy with the support of the International Center for Non-Violent Conflict. Since the 70's during the 1st Republic in Madagascar, Malagasy people have been manipulate and influenced by politicians who wants a place on government by force. This article is about about my own personal opinion. You can add a comment, give suggestions or critics",/post/813,2017-02-26T21:17:49.000Z,2017-02-26T21:17:49.000Z,813,3323,AnnotatorStore::TextAnnotation,,,,,,,,,780,1224 4797,v1.0,,"http://www.seva.org has been working to save eyesight in Nepal for many years.  SEVA was co-founded by Dr. Larry Brilliant, who co-founded The WELL.  I don't know if they work directly with Dr. Ruit, but it would not surprise me. From the SEVA website, ""Since 1978, Seva has worked with partners in Nepal to develop a network of eye care providers and services. Seva Nepal, a local Seva Foundation office, supports continuing medical education, professional training, and provides surgical equipment and supplies, all of which serve to increase the quality of patient care.  All aspects of Seva Nepal’s programs serve to build the capacity of local hospitals to deliver high quality, sustainable eye care. By equipping our partners with the tools they need to provide quality, efficient services, Seva builds locally-run eye care programs that are self-sustaining within 5-10 years of establishment.""",/post/20294,2017-02-26T21:16:18.000Z,2017-02-26T21:16:18.000Z,20294,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,80 4882,v1.0,,"http://www.seva.org has been working to save eyesight in Nepal for many years.  SEVA was co-founded by Dr. Larry Brilliant, who co-founded The WELL.  I don't know if they work directly with Dr. Ruit, but it would not surprise me. From the SEVA website, ""Since 1978, Seva has worked with partners in Nepal to develop a network of eye care providers and services. Seva Nepal, a local Seva Foundation office, supports continuing medical education, professional training, and provides surgical equipment and supplies, all of which serve to increase the quality of patient care.  All aspects of Seva Nepal’s programs serve to build the capacity of local hospitals to deliver high quality, sustainable eye care. By equipping our partners with the tools they need to provide quality, efficient services, Seva builds locally-run eye care programs that are self-sustaining within 5-10 years of establishment.""",/post/20294,2017-02-26T21:16:03.000Z,2017-02-26T21:16:03.000Z,20294,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,104 5716,v1.0,,"""Within a matter of hours, the team can turn a dusty schoolhouse, or whatever building is available, into an equivalent medical ward where sight-restoring surgery is carried out to comparable standards found in the developed world."" (source) This looks like a good fit for community-driven care. You still need ophtalmologists, but the infrastructure around the treatment is minimal and can be conjured by communities. So... is it happening?",/post/14907,2017-02-26T21:15:07.000Z,2017-02-26T21:15:07.000Z,14907,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,361 5826,v1.0,,"""Within a matter of hours, the team can turn a dusty schoolhouse, or whatever building is available, into an equivalent medical ward where sight-restoring surgery is carried out to comparable standards found in the developed world."" (source) This looks like a good fit for community-driven care. You still need ophtalmologists, but the infrastructure around the treatment is minimal and can be conjured by communities. So... is it happening?",/post/14907,2017-02-26T21:14:54.000Z,2017-02-26T21:14:54.000Z,14907,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,377 6480,v1.0,,"The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world’s biggest project aiming at removing cataract for the poorest: through a ten minute microsurgery with articial lens implantation. The project is extraordinary and has been documented in media all over the world. My favorite aspects of it are: The lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece. The surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands; His lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars) The doctor himself has cured around 120.000 people By funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others; In Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150. This simple idea turned out incredibly effective and is tested now in other countries. http://www.cureblindness.org/eye-on-the-world/press http://www.tilganga.org/",/post/709,2017-02-26T21:14:04.000Z,2017-02-26T21:14:04.000Z,709,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,485 6090,v1.0,,"The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world’s biggest project aiming at removing cataract for the poorest: through a ten minute microsurgery with articial lens implantation. The project is extraordinary and has been documented in media all over the world. My favorite aspects of it are: The lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece. The surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands; His lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars) The doctor himself has cured around 120.000 people By funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others; In Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150. This simple idea turned out incredibly effective and is tested now in other countries. http://www.cureblindness.org/eye-on-the-world/press http://www.tilganga.org/",/post/709,2017-02-26T21:13:46.000Z,2017-02-26T21:13:46.000Z,709,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,427 10776,v1.0,,"The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world’s biggest project aiming at removing cataract for the poorest: through a ten minute microsurgery with articial lens implantation. The project is extraordinary and has been documented in media all over the world. My favorite aspects of it are: The lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece. The surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands; His lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars) The doctor himself has cured around 120.000 people By funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others; In Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150. This simple idea turned out incredibly effective and is tested now in other countries. http://www.cureblindness.org/eye-on-the-world/press http://www.tilganga.org/",/post/709,2017-02-26T21:13:36.000Z,2017-02-26T21:13:36.000Z,709,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,1644 4881,v1.0,,"The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world’s biggest project aiming at removing cataract for the poorest: through a ten minute microsurgery with articial lens implantation. The project is extraordinary and has been documented in media all over the world. My favorite aspects of it are: The lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece. The surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands; His lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars) The doctor himself has cured around 120.000 people By funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others; In Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150. This simple idea turned out incredibly effective and is tested now in other countries. http://www.cureblindness.org/eye-on-the-world/press http://www.tilganga.org/",/post/709,2017-02-26T21:13:29.000Z,2017-02-26T21:13:29.000Z,709,3323,AnnotatorStore::TextAnnotation,,,,,,,,,676,104 6111,v1.0,,"ab_channel=AmandaPousetteW some similarities, no? I think the app doesnt really exist yet. but I think I could put you in touch with the person behind it all, Amanda...?! best,",/post/23928,2017-02-26T21:10:41.000Z,2017-02-26T21:10:41.000Z,23928,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,430 8739,v1.0,,"From what you presented and how funny it seems, I think people can easily take it as an adventure call and that’s nice. But I think you should pay attention so that the purpose of your project is understood: the fact that it’s referring to refugees groups. For example, is the app going to be in German? Or what other languages? Refugees might have difficulties learning German (and not only refugees, newcomers too)… How is the project evolving, by the way?",/post/20130,2017-02-26T21:10:33.000Z,2017-02-26T21:10:33.000Z,20130,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,1150 9237,v1.0,,"From what you presented and how funny it seems, I think people can easily take it as an adventure call and that’s nice. But I think you should pay attention so that the purpose of your project is understood: the fact that it’s referring to refugees groups. For example, is the app going to be in German? Or what other languages? Refugees might have difficulties learning German (and not only refugees, newcomers too)… How is the project evolving, by the way?",/post/20130,2017-02-26T21:10:19.000Z,2017-02-26T21:10:19.000Z,20130,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,1271 9414,v1.0,,gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and cafés. Still we have collect more but this will happen as soon as we get it expanded. We work on it.,/post/16457,2017-02-26T21:09:22.000Z,2017-02-26T21:09:22.000Z,16457,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,1308 5446,v1.0,,@Alberto gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and cafés. Still we have collect more but this will happen as soon as we get it expanded. We work on it.,/post/16457,2017-02-26T21:09:17.000Z,2017-02-26T21:09:17.000Z,16457,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,311 7573,v1.0,,@Alberto gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and cafés. Still we have collect more but this will happen as soon as we get it expanded. We work on it.,/post/16457,2017-02-26T21:09:06.000Z,2017-02-26T21:09:06.000Z,16457,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,882 4976,v1.0,,"take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Cafés and Eventspaces be a part of our project. So for example we lead a participant to a café and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience. So our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment. Milan/Newcomer",/post/699,2017-02-26T21:08:56.000Z,2017-02-26T21:08:56.000Z,699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,126 5445,v1.0,,"Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Cafés and Eventspaces be a part of our project. So for example we lead a participant to a café and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience. So our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment. Milan/Newcomer",/post/699,2017-02-26T21:08:49.000Z,2017-02-26T21:08:49.000Z,699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,311 9413,v1.0,,"Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Cafés and Eventspaces be a part of our project. So for example we lead a participant to a café and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience. So our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment. Milan/Newcomer",/post/699,2017-02-26T21:08:27.000Z,2017-02-26T21:08:27.000Z,699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,1308 8738,v1.0,,"After a very long research phase me and my team from Newcomer now have conceptualized a smartphone-app, which familiarizes not only refugees but any newcomers with their environment. Our team is working in the Hacking Utopia project at UDK (University of Arts) in Berlin. We are two product designers and two communication students. Main target group are refugees why we mostly talked to young men from syria. Of course they are facing a lot of problems and some are probably more serious tha the one we are trying to solve. We found out that -waiting for german bureaucracy to give them the needed papers and learning german- a lot of them feel lost in their new environment. Although our focus is on refugees Newcomer is for everyone, who is new in the city. Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Cafés and Eventspaces be a part of our project. So for example we lead a participant to a café and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience. So our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment. Milan/Newcomer",/post/699,2017-02-26T21:08:14.000Z,2017-02-26T21:08:14.000Z,699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,1150 6479,v1.0,,"After a very long research phase me and my team from Newcomer now have conceptualized a smartphone-app, which familiarizes not only refugees but any newcomers with their environment. Our team is working in the Hacking Utopia project at UDK (University of Arts) in Berlin. We are two product designers and two communication students. Main target group are refugees why we mostly talked to young men from syria. Of course they are facing a lot of problems and some are probably more serious tha the one we are trying to solve. We found out that -waiting for german bureaucracy to give them the needed papers and learning german- a lot of them feel lost in their new environment. Although our focus is on refugees Newcomer is for everyone, who is new in the city. Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Cafés and Eventspaces be a part of our project. So for example we lead a participant to a café and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience. So our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment. Milan/Newcomer",/post/699,2017-02-26T21:08:10.000Z,2017-02-26T21:08:10.000Z,699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,485 10515,v1.0,,"After a very long research phase me and my team from Newcomer now have conceptualized a smartphone-app, which familiarizes not only refugees but any newcomers with their environment. Our team is working in the Hacking Utopia project at UDK (University of Arts) in Berlin. We are two product designers and two communication students. Main target group are refugees why we mostly talked to young men from syria. Of course they are facing a lot of problems and some are probably more serious tha the one we are trying to solve. We found out that -waiting for german bureaucracy to give them the needed papers and learning german- a lot of them feel lost in their new environment. Although our focus is on refugees Newcomer is for everyone, who is new in the city. Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Cafés and Eventspaces be a part of our project. So for example we lead a participant to a café and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience. So our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment. Milan/Newcomer",/post/699,2017-02-26T21:08:04.000Z,2017-02-26T21:08:04.000Z,699,3323,AnnotatorStore::TextAnnotation,,,,,,,,,666,1565 9673,v1.0,,"Hi @Matteo, nice to meet you and welcome to opencare. Let us know how we can support this and do share if anything comes out of this seminar that speaks about communities' role and contributing to better services. I hope there will be a chance for opencare to provide some serious reality checks, and from my experience that tends to happen when you have more than one perspective - policy, citizen, interest groups etc..",/post/8335,2017-02-26T21:00:21.000Z,2017-02-26T21:00:21.000Z,8335,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6075,1380 10046,v1.0,,"the neighbouring houses. Stamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can't imagine not growing some food every year. It feels like the most rational thing I do with my time.",/post/20731,2017-02-26T20:58:26.000Z,2017-02-26T20:58:26.000Z,20731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1446 8216,v1.0,,"Thanks, we've had some struggles such as low volunteer numbers and consistancy of volunteers. Still haven't cracked that. I think there's potential for job creation as we outlined here and here in our visioning document, and submitted to Galway City Council, as they invited submissions from community groups for policy suggestions (particularly Policy 5.). Gaining employment doing something I enjoy, that also benefits my community was a driving force for at the start. There doesn't appear to be real jobs materialising in this area in Galway, so I'm staring to shift my gaze a little. Plenty of successes there though; learning, eating, conversation, connections and engagement with school activities. This year the focus is on getting more involvement from parents of the school kids and people in the neighbouring houses. Stamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can't imagine not growing some food every year. It feels like the most rational thing I do with my time.",/post/20731,2017-02-26T20:58:09.000Z,2017-02-26T20:58:09.000Z,20731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1058 11399,v1.0,,"Thanks, we've had some struggles such as low volunteer numbers and consistancy of volunteers. Still haven't cracked that. I think there's potential for job creation as we outlined here and here in our visioning document, and submitted to Galway City Council, as they invited submissions from community groups for policy suggestions (particularly Policy 5.). Gaining employment doing something I enjoy, that also benefits my community was a driving force for at the start. There doesn't appear to be real jobs materialising in this area in Galway, so I'm staring to shift my gaze a little. Plenty of successes there though; learning, eating, conversation, connections and engagement with school activities. This year the focus is on getting more involvement from parents of the school kids and people in the neighbouring houses. Stamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can't imagine not growing some food every year. It feels like the most rational thing I do with my time.",/post/20731,2017-02-26T20:57:44.000Z,2017-02-26T20:57:44.000Z,20731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1832 7315,v1.0,,"For myself, the lessons - far and beyond the existance of institutional policies per se - are those which are carried by the people involved: civil servants or citizens directly involved in these processes. For example I remember the story about Rustavi's participatory budgeting and Revaz's enthusiasm to be involved in implementation. However, there is more to learn about the outcomes of it - for example, in Cluj where I live they ran a 3 step process starting from the neighborhood level. But it involved a lot of deliberation - as Alberto was writing above, that means showing up at neighborhood meetings (physical). They nonetheless got to testing it at the city level, but a lot of the energy got dissipated in sending in proposals to compete for online votes (>400 projects)! and ending up funding very few with little money (1000 eur per winning project - about 50 of them).  I don't want to think of the amount that went into the administration of it, but you see where this goes. That was in 2014-2015, no news since, and more importantly, it's unclear whether it was considered successful or not in order to move further in an upgraded version. Anyway, this is just an example..  hope Rustavi will do much better, but also that people running it are considering risks too.",/post/30992,2017-02-26T20:56:28.000Z,2017-02-26T20:56:28.000Z,30992,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,805 11423,v1.0,,"For myself, the lessons - far and beyond the existance of institutional policies per se - are those which are carried by the people involved: civil servants or citizens directly involved in these processes. For example I remember the story about Rustavi's participatory budgeting and Revaz's enthusiasm to be involved in implementation. However, there is more to learn about the outcomes of it - for example, in Cluj where I live they ran a 3 step process starting from the neighborhood level. But it involved a lot of deliberation - as Alberto was writing above, that means showing up at neighborhood meetings (physical). They nonetheless got to testing it at the city level, but a lot of the energy got dissipated in sending in proposals to compete for online votes (>400 projects)! and ending up funding very few with little money (1000 eur per winning project - about 50 of them).  I don't want to think of the amount that went into the administration of it, but you see where this goes. That was in 2014-2015, no news since, and more importantly, it's unclear whether it was considered successful or not in order to move further in an upgraded version. Anyway, this is just an example..  hope Rustavi will do much better, but also that people running it are considering risks too.",/post/30992,2017-02-26T20:56:21.000Z,2017-02-26T20:56:21.000Z,30992,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1841 11422,v1.0,,"The social contract underpinning participation is often not clear. I participate, then what? What we suggest gets implemented? What we suggest gets considered? How do I know decisions have not been made beforehands, and the decision maker ris just looking for a rubberstamp? Recent example: after an online and offline consultation with 1.8 million participants on Italian schools, number 1 request that emerged was to have teachers evaluated by independent experts, and not by their own headmasters. The government, nevertheless, decided to reject that request. Assuming the average participants spent two hours participating (very conservative assumption), that means the waste of 3.6 million hours. In European standards (1,732 productive hours in a year), that the equivalent of about 2,000 years of human work. Not cool. The social contract issue is the easiest one to fix.",/post/30886,2017-02-26T20:55:57.000Z,2017-02-26T20:55:57.000Z,30886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1841 7161,v1.0,,"The social contract underpinning participation is often not clear. I participate, then what? What we suggest gets implemented? What we suggest gets considered? How do I know decisions have not been made beforehands, and the decision maker ris just looking for a rubberstamp? Recent example: after an online and offline consultation with 1.8 million participants on Italian schools, number 1 request that emerged was to have teachers evaluated by independent experts, and not by their own headmasters. The government, nevertheless, decided to reject that request. Assuming the average participants spent two hours participating (very conservative assumption), that means the waste of 3.6 million hours. In European standards (1,732 productive hours in a year), that the equivalent of about 2,000 years of human work. Not cool. The social contract issue is the easiest one to fix.",/post/30886,2017-02-26T20:55:50.000Z,2017-02-26T20:55:50.000Z,30886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,767 7314,v1.0,,"Participatory processes are designed by civil servants, with other civil servants and ""usual suspect"" stakeholders (like professional business and trade union representatives) in mind. In your rural development example, I see that they worked through offline meetings, convened in cities and on weekdays at 11.00 am. That choice is going to prevent the most interesting potential participants (the local entrepreneur, the teacher, the parent of small children...) from showing up. People who reliably do show up are the people paid to participate, like representatives and lobbyists... but those already have channels to talk to the government. The other option would be to convene during the evenings, but, at least in Italy, civil servants do not like this at all. The option is almost never even discussed. So, most of the collective brainpower is ruled out before the process even starts.",/post/30886,2017-02-26T20:54:37.000Z,2017-02-26T20:54:37.000Z,30886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,805 6422,v1.0,,"Like you, I am interested in participation. My own work has been about ways that the Internet can enable more effective forms of participatory democracy. I even wrote a book about this. My point of departure was that participation as we inherited it from the 20th has not made a substantial impact on decision quality or societal cohesion, at least not in Italy, not even in the best cases. There are many reasons why this happens. Some of them:",/post/30886,2017-02-26T20:54:21.000Z,2017-02-26T20:54:21.000Z,30886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,479 4556,v1.0,,"Like you, I am interested in participation. My own work has been about ways that the Internet can enable more effective forms of participatory democracy. I even wrote a book about this. My point of departure was that participation as we inherited it from the 20th has not made a substantial impact on decision quality or societal cohesion, at least not in Italy, not even in the best cases. There are many reasons why this happens. Some of them: Participatory processes are designed by civil servants, with other civil servants and ""usual suspect"" stakeholders (like professional business and trade union representatives) in mind. In your rural development example, I see that they worked through offline meetings, convened in cities and on weekdays at 11.00 am. That choice is going to prevent the most interesting potential participants (the local entrepreneur, the teacher, the parent of small children...) from showing up. People who reliably do show up are the people paid to participate, like representatives and lobbyists... but those already have channels to talk to the government. The other option would be to convene during the evenings, but, at least in Italy, civil servants do not like this at all. The option is almost never even discussed. So, most of the collective brainpower is ruled out before the process even starts. The ""technology of participation"" (the town hall meeting) is non-scalable. This means (a) every participant will spend most of her time being talked to and (b) people will need to keep any intervention short. This means there is no time to explore issues and scenarios. This is why I like so much online forums like Edgeryders: you can participate in your own time (when you are off work, when your children are asleep...); take time to make your case; and no one is forced to be reading anyone else. We choose to engage with contributions we find interesting. The social contract underpinning participation is often not clear. I participate, then what? What we suggest gets implemented? What we suggest gets considered? How do I know decisions have not been made beforehands, and the decision maker ris just looking for a rubberstamp? Recent example: after an online and offline consultation with 1.8 million participants on Italian schools, number 1 request that emerged was to have teachers evaluated by independent experts, and not by their own headmasters. The government, nevertheless, decided to reject that request. Assuming the average participants spent two hours participating (very conservative assumption), that means the waste of 3.6 million hours. In European standards (1,732 productive hours in a year), that the equivalent of about 2,000 years of human work. Not cool. The social contract issue is the easiest one to fix. I have recently been involved in contributing to Italy's 3rd action plan under the Open Government Partnership (as an activist, unpaid). My brothers-and-sisters-in-arms and myself made these points quite forcefully, and they have been adopted by the government. Here's to hoping for better times.",/post/30886,2017-02-26T20:52:56.000Z,2017-02-26T20:52:56.000Z,30886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,18 10229,v1.0,,"The ""technology of participation"" (the town hall meeting) is non-scalable. This means (a) every participant will spend most of her time being talked to and (b) people will need to keep any intervention short. This means there is no time to explore issues and scenarios. This is why I like so much online forums like Edgeryders: you can participate in your own time (when you are off work, when your children are asleep...); take time to make your case; and no one is forced to be reading anyone else. We choose to engage with contributions we find interesting.",/post/30886,2017-02-26T20:52:46.000Z,2017-02-26T20:52:46.000Z,30886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1487 9264,v1.0,,"Naomi and I continued the discussion on e-mail a bit and she asked me to copy my response regarding some examples of citizen participation in Georgia. Again, these are just a few examples off the top of my head - I didn't have time to do full scale research of this topic.  but if needed, I can carve out some time to look into it more, if it's for a specific purpose. Here it goes:",/post/30612,2017-02-26T20:52:13.000Z,2017-02-26T20:52:13.000Z,30612,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1282 11509,v1.0,,"development of the National Rural Development Strategy (I was a part of this working group from the Ministry of Justice side, this is why it comes to mind, but I am sure other examples are out there too): http://enpard.ge/en/public-consultations-on-rural-development-national-strategy-of-georgia/ Also, Georgia is a pretty active part of the Open Government Partnership, and as evidenced in the Action Plan, ""1.3 Empowering citizens to engage in the legislative process"", the Government of Georgia (GoG) has been working towards opening up the process of legislation and policy-making, to be more open to citizens.If you want, I can ask my relevant colleagues, who were involved in OGP processes to contact you with some more information.  http://www.parliament.ge/uploads/other/37/37370.pdf  Also, the Public Service Development Agency (with the support of GoG, EU and Sida) has been building Community Centers (CCs) in rural areas in Georgia, where local population can receive over 200 private and public services in one space. Additionally, these centers have conference rooms, which can be used by the local population/government/any interested person or group to host meetings and public discussions on any topic. The CCs are very active and there are lots of events in the centers organized by CSOs and local governments.  www.centri.gov.ge Additionally, the Rustavi municipality, which is involved in our UNDP-UNV project, has an ongoing participatory budgeting project, which is a good way to involve citizens in decision-making. http://www.vng-international.nl/blog/rustavi-city-starts-involving-citizens-its-budgeting-process/ Finally, the Office of the State Minister of Georgia for Reconciliation and Civic Equality developed a Civic Equality and Integration State Strategy and Action Plan with active involvement of NGOs, like United Nations Association of Georgia, European Center for Minority issues and Public Defender's Office. http://smr.gov.ge/FileList.aspx?ID=34",/post/30612,2017-02-26T20:51:44.000Z,2017-02-26T20:51:44.000Z,30612,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1861 9368,v1.0,,"I really liked this slogan on your website, team Medic Mobile! I don't know if ""community health worker"" is a term you use for both official and volunteering members (it appears they are different from professionals though) but the fact they they are real power users of the technology and take the message to local governments seems like quite an asset. Is there professionalization happening and are the ranks of CHWs growing ..? I suspect there  must be other kinds of rewards other than intrinsic, given that these people are crucial in providing care and their work is largely underpaid. Very curious, thanks for the response. This story could be interesting for @Marc_Elva , @rem_it , @Maria , @Michel .",/post/7961,2017-02-11T19:57:51.000Z,2017-02-11T19:57:51.000Z,7961,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1297 9144,v1.0,,"Is it open source? Can I deploy my own? All our software is open source. You can certainly deploy our tools yourself, especially our DIY toolkit. All of our code is available online at Github.",/post/564,2017-02-11T19:57:44.000Z,2017-02-11T19:57:44.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1257 11508,v1.0,,"How do you coordinate with local government and politicians? We are usually working with long term community-based partners. Ideally, organizations who already work with the local government. At some point, we want the local government to take over our mobile tools; the goal is always for the ministry to take over. We also sit on advisory committees and advise national eHealth and mHealth strategy in many of the countries where we work. We are committed to sustainable use of our tools. For that, we have to work hand in hand with local and national governments.",/post/564,2017-02-11T19:57:37.000Z,2017-02-11T19:57:37.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1861 5825,v1.0,,"In general, we know that reactive systems that rely on sick patients showing up at facilities don't achieve equitable health outcomes. Health systems should be proactive and timely by design: mobile tools have an important role to play in bringing health workers to families' doorsteps often and early.",/post/564,2017-02-11T19:57:28.000Z,2017-02-11T19:57:28.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,377 7835,v1.0,,"We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions – around complex protocols for under 5 child health, for example. We’re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows.",/post/564,2017-02-11T19:57:03.000Z,2017-02-11T19:57:03.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,955 8042,v1.0,,"We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions – around complex protocols for under 5 child health, for example. We’re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows.",/post/564,2017-02-11T19:56:57.000Z,2017-02-11T19:56:57.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1015 6385,v1.0,,"We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions – around complex protocols for under 5 child health, for example. We’re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows. In general, we know that reactive systems that rely on sick patients showing up at facilities don't achieve equitable health outcomes. Health systems should be proactive and timely by design: mobile tools have an important role to play in bringing health workers to families' doorsteps often and early.",/post/564,2017-02-11T19:56:45.000Z,2017-02-11T19:56:45.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,469 8326,v1.0,,"Ideally, yes, but we’ve worked with many CHWs that have mixed or low literacy. For example, the Female Community Health Volunteer (FCHV) network in Nepal has mixed literacy. We’ve equipped them with basic phones where the FCHV can text something very basic like “P 12 Jill” to mean “Jill is pregnant, her last menstrual period (LMP) was 12 weeks ago.” Then, Medic Mobile will send the health worker SMS messages, reminding her to remind Jill about her antenatal care checkups. Someone with a low level of literacy can still use these messages, and we provide booklets/guides to make sure they can remember how. We also have a thorough training process, where we start with teaching these health workers (if needed) how to turn on their phones, how to enter characters, everything from soup to nuts. In Nepal specifically, many FCHVs have reported feeling more empowered and motivated after being trained to use these mobile tools for their work.",/post/564,2017-02-11T19:56:34.000Z,2017-02-11T19:56:34.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1085 7054,v1.0,,"2) Where community health workers can come in for complex health conditions is in coordinating access, screening, and adherence to treatment. For example, with HIV. Thirty years ago, the World Health Organization suggested that delivering HIV care to the ultra poor was “too difficult, that there wasn’t enough money, it was too difficult to get people to adhere to medications out in the community.” Partners In Health (whose work is very influential for us) showed that community health workers can support people in adhering to HIV medication. Same for TB. They proved that if you make the drugs available, you can even support the treatment of Multi-Drug Resistant TB through CHWs– where you have to take drugs daily for almost two years (and they have terrible side effects). Again, this is through trained community health workers in a process they call “accompaniment,” where CHWs are following up every day, providing support and guidance and ensuring that people are taking meds. In India, there’s been a lot of success with the Home Based Newborn Care protocol which provides guidance to community health workers around the first 45 days of life and navigating the major risks to a child’s life during that period.",/post/564,2017-02-11T19:56:19.000Z,2017-02-11T19:56:19.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,746 6062,v1.0,,"2) Where community health workers can come in for complex health conditions is in coordinating access, screening, and adherence to treatment. For example, with HIV. Thirty years ago, the World Health Organization suggested that delivering HIV care to the ultra poor was “too difficult, that there wasn’t enough money, it was too difficult to get people to adhere to medications out in the community.” Partners In Health (whose work is very influential for us) showed that community health workers can support people in adhering to HIV medication.",/post/564,2017-02-11T19:56:10.000Z,2017-02-11T19:56:10.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,417 10119,v1.0,,"Broadly, when you’re dealing with delivering care for complex health conditions in resource-poor settings, there’s two issues:",/post/564,2017-02-11T19:55:42.000Z,2017-02-11T19:55:42.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1451 7340,v1.0,,"1) Practically, you need what Paul Farmer calls “staff, stuff, space, systems.” You need expert knowledge. For example, to treat cancer, you need a professionalized cadre, you need certain goods like chemotherapy drugs, etc. All of that won’t be delivered solely through community health workers.",/post/564,2017-02-11T19:55:32.000Z,2017-02-11T19:55:32.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,811 10514,v1.0,,"As far as tools, we have tools for basic phones and smartphones (Android exclusively). We work with implementing partners and/or governments to equip health workers with these tools.",/post/564,2017-02-11T19:54:57.000Z,2017-02-11T19:54:57.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1565 7609,v1.0,,"Medic believes that health is a human right. We know that global health disparities around the world are vast, and it’s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact.",/post/564,2017-02-11T19:54:39.000Z,2017-02-11T19:54:39.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,901 5738,v1.0,,"Medic believes that health is a human right. We know that global health disparities around the world are vast, and it’s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact.",/post/564,2017-02-11T19:54:29.000Z,2017-02-11T19:54:29.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,364 6524,v1.0,,"What are the services that Medic Mobile provides? Medic believes that health is a human right. We know that global health disparities around the world are vast, and it’s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact. For example, a community health worker can support in the following ways: Identifying and supporting pregnant women; Helping ensure the pregnant woman gets four antenatal care checkups, and identify any danger signs. (Having frequent checkups increases the chance the mother will give birth in a facility and survive child birth.) Ensure that children are vaccinated fully; Screen children and adults for common diseases (diarrhea, malaria), malnutrition, mental health, etc. In many of these scenarios, community health workers serve as first responders, so that patients can start getting treatment quickly. Medic Mobile’s tools are oriented around specific evidence-based use cases that have a clear impact logic. For example, we know that if we support a pregnant woman receiving a full course of antenatal care, she is more likely to deliver in a facility and survive child birth. Our use cases currently are: Antenatal care Childhood immunizations Under 5 child health Stock monitoring Disease surveillance What the means is that in above areas, we have a ton of evidence and experience that our tools work. For a new use case - say, an area of health services or protocol that we’re not as familiar with - we have to do a lot of design. The design and product development teams are very tightly integrated. As far as tools, we have tools for basic phones and smartphones (Android exclusively). We work with implementing partners and/or governments to equip health workers with these tools.",/post/564,2017-02-11T19:54:08.000Z,2017-02-11T19:54:08.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,492 7909,v1.0,,"Our approach has its roots in service and human-centered design. A lot of people are using these ideas now. Seven years ago, when we started, they were not so well known. We have a whole team of designers, including regional designers who use a participatory, ethnographic, HCD approach. They do in-depth site visits and investigate the context in which the apps will be used, and use a variety of techniques to do so: system mapping, role playing, in-depth interviewing. Some questions they might ask: “What is the current workflow? Ideal workflow?”, “What is the day-to-day like for end users?” It’s an intensive and essential process.",/post/564,2017-02-11T19:53:51.000Z,2017-02-11T19:53:51.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,968 9299,v1.0,,"Our approach has its roots in service and human-centered design. A lot of people are using these ideas now. Seven years ago, when we started, they were not so well known. We have a whole team of designers, including regional designers who use a participatory, ethnographic, HCD approach. They do in-depth site visits and investigate the context in which the apps will be used, and use a variety of techniques to do so: system mapping, role playing, in-depth interviewing. Some questions they might ask: “What is the current workflow? Ideal workflow?”, “What is the day-to-day like for end users?” It’s an intensive and essential process.",/post/564,2017-02-11T19:53:36.000Z,2017-02-11T19:53:36.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1283 8649,v1.0,,"This is an interview with Mobile Medic, an organisation working on delivering care in the developing world through mobile phones.  Mobile Medic were approached through the OpenCare Twitter mapping process. Can you tell us a bit about the background of Medic Mobile? Medic Mobile builds mobile and web tools for health workers, helping them provide better care that reaches everyone. Operating as a nonprofit technology company, we develop free and open-source tools that can be adapted for specific uses, backed by evidence. Health workers currently use Medic Mobile to register every pregnancy, immunize infants against illnesses, track disease outbreaks faster, keep stock of essential medicines, and communicate about emergencies. Our platform is built for the last mile of healthcare, supporting over 12,000 community health workers in 23 countries. We currently have 52 staff and three hubs: San Francisco, USA; Kathmandu, Nepal; Nairobi, Kenya. Not all of our staff works out of these hubs - about ⅓ of the team is remote. We spend a lot of time on Slack! Our approach has its roots in service and human-centered design. A lot of people are using these ideas now. Seven years ago, when we started, they were not so well known. We have a whole team of designers, including regional designers who use a participatory, ethnographic, HCD approach. They do in-depth site visits and investigate the context in which the apps will be used, and use a variety of techniques to do so: system mapping, role playing, in-depth interviewing. Some questions they might ask: “What is the current workflow? Ideal workflow?”, “What is the day-to-day like for end users?” It’s an intensive and essential process. We’re inspired by a whole host of organizations in this space, including IDEO, Acumen, etc. 100% of our staff do a HCD crash course. Specifically for our designers, we have our own design curriculum, and many of them come from an HCD or anthropology background. What are the services that Medic Mobile provides? Medic believes that health is a human right. We know that global health disparities around the world are vast, and it’s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact. For example, a community health worker can support in the following ways: Identifying and supporting pregnant women; Helping ensure the pregnant woman gets four antenatal care checkups, and identify any danger signs. (Having frequent checkups increases the chance the mother will give birth in a facility and survive child birth.) Ensure that children are vaccinated fully; Screen children and adults for common diseases (diarrhea, malaria), malnutrition, mental health, etc. In many of these scenarios, community health workers serve as first responders, so that patients can start getting treatment quickly. Medic Mobile’s tools are oriented around specific evidence-based use cases that have a clear impact logic. For example, we know that if we support a pregnant woman receiving a full course of antenatal care, she is more likely to deliver in a facility and survive child birth. Our use cases currently are: Antenatal care Childhood immunizations Under 5 child health Stock monitoring Disease surveillance What the means is that in above areas, we have a ton of evidence and experience that our tools work. For a new use case - say, an area of health services or protocol that we’re not as familiar with - we have to do a lot of design. The design and product development teams are very tightly integrated. As far as tools, we have tools for basic phones and smartphones (Android exclusively). We work with implementing partners and/or governments to equip health workers with these tools. I was interested that you mentioned delivering advanced/complex care this way? Broadly, when you’re dealing with delivering care for complex health conditions in resource-poor settings, there’s two issues: 1) Practically, you need what Paul Farmer calls “staff, stuff, space, systems.” You need expert knowledge. For example, to treat cancer, you need a professionalized cadre, you need certain goods like chemotherapy drugs, etc. All of that won’t be delivered solely through community health workers. 2) Where community health workers can come in for complex health conditions is in coordinating access, screening, and adherence to treatment. For example, with HIV. Thirty years ago, the World Health Organization suggested that delivering HIV care to the ultra poor was “too difficult, that there wasn’t enough money, it was too difficult to get people to adhere to medications out in the community.” Partners In Health (whose work is very influential for us) showed that community health workers can support people in adhering to HIV medication. Same for TB. They proved that if you make the drugs available, you can even support the treatment of Multi-Drug Resistant TB through CHWs– where you have to take drugs daily for almost two years (and they have terrible side effects). Again, this is through trained community health workers in a process they call “accompaniment,” where CHWs are following up every day, providing support and guidance and ensuring that people are taking meds. In India, there’s been a lot of success with the Home Based Newborn Care protocol which provides guidance to community health workers around the first 45 days of life and navigating the major risks to a child’s life during that period. Community health workers are starting to be used in the US, too – in Harlem, First Nation communities, and the rural South. So CHWs can definitely support health issues that are complex and difficult, and in fact, can probably do so more effectively and with more touch points than a physician could. Do health workers have to be literate to use Medic tools? Ideally, yes, but we’ve worked with many CHWs that have mixed or low literacy. For example, the Female Community Health Volunteer (FCHV) network in Nepal has mixed literacy. We’ve equipped them with basic phones where the FCHV can text something very basic like “P 12 Jill” to mean “Jill is pregnant, her last menstrual period (LMP) was 12 weeks ago.” Then, Medic Mobile will send the health worker SMS messages, reminding her to remind Jill about her antenatal care checkups. Someone with a low level of literacy can still use these messages, and we provide booklets/guides to make sure they can remember how. We also have a thorough training process, where we start with teaching these health workers (if needed) how to turn on their phones, how to enter characters, everything from soup to nuts. In Nepal specifically, many FCHVs have reported feeling more empowered and motivated after being trained to use these mobile tools for their work. How are your tools evolving? That’s a very timely question. We are combining what we’ve learned over the last 6-7 years and developing apps that support key shifts that we’re seeing in global health care delivery. We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions – around complex protocols for under 5 child health, for example. We’re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows. In general, we know that reactive systems that rely on sick patients showing up at facilities don't achieve equitable health outcomes. Health systems should be proactive and timely by design: mobile tools have an important role to play in bringing health workers to families' doorsteps often and early. How do you coordinate with local government and politicians? We are usually working with long term community-based partners. Ideally, organizations who already work with the local government. At some point, we want the local government to take over our mobile tools; the goal is always for the ministry to take over. We also sit on advisory committees and advise national eHealth and mHealth strategy in many of the countries where we work. We are committed to sustainable use of our tools. For that, we have to work hand in hand with local and national governments. Is it open source? Can I deploy my own? All our software is open source. You can certainly deploy our tools yourself, especially our DIY toolkit. All of our code is available online at Github.",/post/564,2017-02-11T19:53:12.000Z,2017-02-11T19:53:12.000Z,564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,531,1144 5507,v1.0,,"@Noemi absolutely will share the developments about how the various communities contributed. With the intent on making it available to everyone on the global scale, we will answer production costs, and acquisition related questions at a later date.",/post/26022,2017-02-11T19:50:04.000Z,2017-02-11T19:50:04.000Z,26022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,322 5506,v1.0,,"Will be looking forward to updates @Maria. I would especially be interested to read about the process of getting communities involved and what their contribution was. Is there a business model behind, how will production costs be covered so that more people can acquire Soundsight  (or buy?)?",/post/24829,2017-02-11T19:49:59.000Z,2017-02-11T19:49:59.000Z,24829,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,322 11378,v1.0,,"Thank you for the comments regarding SoundSight. @andra Pop The project is moving along at its pace, as much time is dedicated to working with the blind community, as they are part of the co-creation team. There is indeed an initial prototype that has been tested. Yes, there is a lot of work and research being done to find ways to improve life for partially-sighted and blind people. This software transforms lives for the better and will be available for everyone.  It’s a great step in improving the human race's understanding of its own vast and incomprehensible capabilities. There will a follow-up and we will share on the developments.",/post/23605,2017-02-11T19:49:49.000Z,2017-02-11T19:49:49.000Z,23605,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1828 5505,v1.0,,"Thank you for the comments regarding SoundSight. @andra Pop The project is moving along at its pace, as much time is dedicated to working with the blind community, as they are part of the co-creation team. There is indeed an initial prototype that has been tested. Yes, there is a lot of work and research being done to find ways to improve life for partially-sighted and blind people. This software transforms lives for the better and will be available for everyone.  It’s a great step in improving the human race's understanding of its own vast and incomprehensible capabilities. There will a follow-up and we will share on the developments.",/post/23605,2017-02-11T19:49:42.000Z,2017-02-11T19:49:42.000Z,23605,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,322 10325,v1.0,,"The article contains a few phrases I really liked and I would like to express my delight about them. I think of the “Can other senses compensate for sight deficiency?” problem which is asked at the beginning. Also, I think of the “a technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings” thing. This is such a nice, simple and healthy way of talking about the project and building it. I checked the website too and I liked the fact that it says a lot about the project and what's coming next. I would really like this to extend and I hope to hear more about this in the near future. Thanks for sharing!",/post/7466,2017-02-11T19:49:23.000Z,2017-02-11T19:49:23.000Z,7466,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1516 10465,v1.0,,"“This software has the potential to enrich the lives of people who are blind and visually impaired. Everyone can learn this skill, it’s accessible to everyone and when we design for greater accessibility, everyone benefits.” says Irene Lanza.    Improving performance, challenging yourself, to overcome limitations, all of this effects humanity’s growth, expansion and well-being. The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.",/post/701,2017-02-11T19:49:09.000Z,2017-02-11T19:49:09.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1556 10448,v1.0,,"It’s a virtual reality environment based on audio. The training is completed with practice in the real world until the student becomes fully independent from the simulation. Further explanation of how can be found here. SoundSight attracted the attention of the Italian government and a number of organisations and advocates that offered its support.  Among them were, Cecilia Camellini, Champion Paralympic Swimmer. When asked what she thought of SoundSight, “with training and effort athletes can improve performance.”",/post/701,2017-02-11T19:48:47.000Z,2017-02-11T19:48:47.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1553 11373,v1.0,,"It’s a virtual reality environment based on audio. The training is completed with practice in the real world until the student becomes fully independent from the simulation. Further explanation of how can be found here. SoundSight attracted the attention of the Italian government and a number of organisations and advocates that offered its support.  Among them were, Cecilia Camellini, Champion Paralympic Swimmer. When asked what she thought of SoundSight, “with training and effort athletes can improve performance.”",/post/701,2017-02-11T19:48:37.000Z,2017-02-11T19:48:37.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1825 8787,v1.0,,"and visually impaired people is a clear unmet need. However, most blind and visually impaired people want to go out and enjoy independent mobility. The environment in which we live is becoming increasingly complex. Even a journey across a city  requires a range of skills including being able to avoid obstacles on the pavement, to walk in the right direction, play a sport and the list goes on. These tasks may seem trivial, but for someone with a vision impairment, this is a challenge and a skill that needs to be learned. SoundSight enables the development of a hearing talent that compensates for the missing eyesight.",/post/701,2017-02-11T19:48:11.000Z,2017-02-11T19:48:11.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1155 7078,v1.0,,"Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight.  The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.",/post/701,2017-02-11T19:47:46.000Z,2017-02-11T19:47:46.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,756 9379,v1.0,,"Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight.  The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.",/post/701,2017-02-11T19:47:39.000Z,2017-02-11T19:47:39.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1301 4796,v1.0,,"Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight.  The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.",/post/701,2017-02-11T19:47:29.000Z,2017-02-11T19:47:29.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,80 11377,v1.0,,"This is a story how a new initiative Soundsight Training promises help for blind and visually impaired gain more mobility and independence. The website for Soundsight Training is http://www.soundsight.ch   Developing a technology that could sense and reconstruct reality for blind people can be one approach. But, a technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings is actually empowering then to be independent from aid devices. Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight.  The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities. The Journey begins Irene Lanza, Management Engineer, CEO of SoundSight Training, knows it’s possible. Irene came in contact with the Scimpulse Foundation while participating in the Challenge Based Innovation program of Ides2quare at CERN in Geneva. The challenge was to design something that enabled blind people to perceive the surrounding environment. It was then the idea was planted.  Many opted for a mobile device approach, something else called the attention of Irene. Teaching the blind to echolocate themselves? Through this experience, Irene had the opportunity to interact with the visually impaired. Through working with mothers of blind children and getting to hear their stories, setbacks and concerns the more Irene wanted to do something to support and empower them. Guidance of blind and visually impaired people is a clear unmet need. However, most blind and visually impaired people want to go out and enjoy independent mobility. The environment in which we live is becoming increasingly complex. Even a journey across a city  requires a range of skills including being able to avoid obstacles on the pavement, to walk in the right direction, play a sport and the list goes on. These tasks may seem trivial, but for someone with a vision impairment, this is a challenge and a skill that needs to be learned. SoundSight enables the development of a hearing talent that compensates for the missing eyesight. See With Sound   SoundSight Training was developed to enable the blind to see with sound. Together, with Henrik Kjeldsen and Dr. Marco Manca the first prototype of an echolocation training system, was created.  It’s a virtual reality environment based on audio. The training is completed with practice in the real world until the student becomes fully independent from the simulation. Further explanation of how can be found here. SoundSight attracted the attention of the Italian government and a number of organisations and advocates that offered its support.  Among them were, Cecilia Camellini, Champion Paralympic Swimmer. When asked what she thought of SoundSight, “with training and effort athletes can improve performance.”   Experience the world more independently SoundSight Training is a spinoff of the Let Me See Project, the first from the ScimPulse Foundation  I.M.mortal research program. It was a 3 year journey that started from a workshop and now partners with governmental organizations to impulse the idea forward beyond the prototype stage. Now it has its own heartbeat. SoundSight Training designed to helping people explore the world more independently. “This software has the potential to enrich the lives of people who are blind and visually impaired. Everyone can learn this skill, it’s accessible to everyone and when we design for greater accessibility, everyone benefits.” says Irene Lanza.    Improving performance, challenging yourself, to overcome limitations, all of this effects humanity’s growth, expansion and well-being. The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon. For more information about SoundSight initiative, please visit www.soundsight.ch",/post/701,2017-02-11T19:47:10.000Z,2017-02-11T19:47:10.000Z,701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,668,1828 5763,v1.0,,"@Bernard I am looking at the Transition Galway website: Since October 2012 we have been working on the Transition Galway community garden [...]  It’s a nice wee plot, kindly offered by the school to our group. Together with the pupils, parents, teachers and members of the community we have been growing food and improving biodiversity. A TG-school collaboration around gardening, biodiversity and community building that's been going onto five years. That's impressive. This is how you build a culture of teamwork and societal resilience. If you guys can start a community garden and keep at it for five years, you can probably get ambitious. Where do you think the stamina come from?",/post/19534,2017-02-11T19:41:45.000Z,2017-02-11T19:41:45.000Z,19534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,372 9720,v1.0,,"@Bernard I am looking at the Transition Galway website: Since October 2012 we have been working on the Transition Galway community garden [...]  It’s a nice wee plot, kindly offered by the school to our group. Together with the pupils, parents, teachers and members of the community we have been growing food and improving biodiversity. A TG-school collaboration around gardening, biodiversity and community building that's been going onto five years. That's impressive. This is how you build a culture of teamwork and societal resilience. If you guys can start a community garden and keep at it for five years, you can probably get ambitious. Where do you think the stamina come from?",/post/19534,2017-02-11T19:41:08.000Z,2017-02-11T19:41:08.000Z,19534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1390 7020,v1.0,,"Aye/yes, a big diverse melting pot of stuff. Not pigeonholing, but allowing each group to have their own identity. It could be more clearly spelled out in our mission, and might do so in time, but also being aware that the arts can draw people in, but health and enironmental issues can sometimes scare people off. More structure and over longer timeframe feature in our recent proposal, but not too ridgid. Care can be tough work. Rest, play and time to breathe hopfully will lead to stronger, healthier, more productive outcomes. Speaking of outcomes... Cosáin are doing an overnight art therapy session with Alan at Cregg Castle tomorrow and Sunday. Also, when promoting ""What Now?"" I spoke with Claddagh Arts Centre, so when I went looking for help to build an outdoor classroom at the Transition Galway school/community garden, Michael from the centre gave his time, machinery and a very genorous price on stonework. Busy week = very happy school princial:)",/post/19435,2017-02-11T19:40:46.000Z,2017-02-11T19:40:46.000Z,19435,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,733 5824,v1.0,,"I think that's the point of being a collective, right? It's relevant to have a shell like AAE which enables its different members and people connected to it to do things based on what interests them - it means that when you do an arts event there are people who run workshops on the side and activities that have a wellbeing component. It is community care at its core, because they are social activities where people inevitably learn from each other. Does care need a clearly spelled out mission? I don't know. I've always liked how AAE feels very free, but at the same time I'm wondering if working together with Galway 2020, consumer panels in Cosain etc and needing to projectify in a more structural way is useful, and the more strategic level taken since your early days helps your work or not? Obviously, doers will always be doers no matter what I'm just wondering though.",/post/19282,2017-02-11T19:40:37.000Z,2017-02-11T19:40:37.000Z,19282,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,377 11550,v1.0,,"Yes, that's it. Taking it further though, would be to create rural/nature situations where healthcare professionals can rejuvinate and connect with people from different professions. And yoga, nature based activity and arts for teens in rural settings. There is already a will for this to happen from Foróige, as a means to curtail troubeld behaviours. ..and the elderly, we especially need alternative services as our elderly population grows.",/post/18305,2017-02-11T19:40:17.000Z,2017-02-11T19:40:17.000Z,18305,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1870 7603,v1.0,,"host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.",/post/14308,2017-02-11T19:40:07.000Z,2017-02-11T19:40:07.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,895 7602,v1.0,,"Yes, that's it. Taking it further though, would be to create rural/nature situations where healthcare professionals can rejuvinate and connect with people from different professions. And yoga, nature based activity and arts for teens in rural settings. There is already a will for this to happen from Foróige, as a means to curtail troubeld behaviours. ..and the elderly, we especially need alternative services as our elderly population grows.",/post/18305,2017-02-11T19:39:49.000Z,2017-02-11T19:39:49.000Z,18305,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,895 9736,v1.0,,"a side effect of doing culture is (over time) a reduction in treatment of acute health conditions.  I am starting to think that this is where most of the impact of communities on care comes from. Communities can ""corral"" us into avoiding destructive choices (heavy drinking, overeating...). They provide support in wellness/preventative activities, and that reduces human and financial costs of havingn to treat acute afflictions down the line.",/post/17145,2017-02-11T19:39:35.000Z,2017-02-11T19:39:35.000Z,17145,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1392 5823,v1.0,,"a side effect of doing culture is (over time) a reduction in treatment of acute health conditions.  I am starting to think that this is where most of the impact of communities on care comes from. Communities can ""corral"" us into avoiding destructive choices (heavy drinking, overeating...). They provide support in wellness/preventative activities, and that reduces human and financial costs of havingn to treat acute afflictions down the line.",/post/17145,2017-02-11T19:39:24.000Z,2017-02-11T19:39:24.000Z,17145,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,377 10811,v1.0,,"AÁE originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. A",/post/14308,2017-02-11T19:39:06.000Z,2017-02-11T19:39:06.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1648 4734,v1.0,,"participants. Outcomes from preMon include a collaboration between Cosáin and Paisúin Fáisuin, where they ran an event and raised €1440.  And Cosáin doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.",/post/14308,2017-02-11T19:38:56.000Z,2017-02-11T19:38:56.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,62 9735,v1.0,,"at ""Our Place"" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla  (social inclusion in a socio-economically disadvantaged area). at What Now? A Cultural Weekender, there was Yoga by GLG (50% of donations went to familycarers.ie), mandala making by Cosáin (community wellness group) and teen open-mike by Foróige, tribal dancing, reclaimed pallet furniture as part of design exhibition and much more. We'll be revamping our website in time and a fuller picture of that will appear. at preMonastery (report on website soon), which itself was semi-retreat in nature, yoga and mental wellbeing featured. A preliminary looks at the feedback forms suggests positive effects wellness of participants. Outcomes from preMon include a collaboration between Cosáin and Paisúin Fáisuin, where they ran an event and raised €1440.  And Cosáin doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources. AÁE originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. AÁE's arts reviews and events are key to engagement, facillitating connection of groups and situations of care at local level.  And celebration:) David's statement is from June 2015, it starts with arts, then evolution:)",/post/14308,2017-02-11T19:38:31.000Z,2017-02-11T19:38:31.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1392 11549,v1.0,,"at ""Our Place"" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla  (social inclusion in a socio-economically disadvantaged area). at What Now? A Cultural Weekender, there was Yoga by GLG (50% of donations went to familycarers.ie), mandala making by Cosáin (community wellness group) and teen open-mike by Foróige, tribal dancing, reclaimed pallet furniture as part of design exhibition and much more. We'll be revamping our website in time and a fuller picture of that will appear. at preMonastery (report on website soon), which itself was semi-retreat in nature, yoga and mental wellbeing featured. A preliminary looks at the feedback forms suggests positive effects wellness of participants. Outcomes from preMon include a collaboration between Cosáin and Paisúin Fáisuin, where they ran an event and raised €1440.  And Cosáin doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources. AÁE originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. AÁE's arts reviews and events are key to engagement, facillitating connection of groups and situations of care at local level.  And celebration:) David's statement is from June 2015, it starts with arts, then evolution:)",/post/14308,2017-02-11T19:38:13.000Z,2017-02-11T19:38:13.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1870 11548,v1.0,,"at ""Our Place"" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla  (social inclusion in a socio-economically disadvantaged area).",/post/14308,2017-02-11T19:38:00.000Z,2017-02-11T19:38:00.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1870 5715,v1.0,,"Through collaboration, listening to local caring initatives/groups and providing what we can. I see community and care as part of culture alongside the arts. Examples;",/post/14308,2017-02-11T19:37:49.000Z,2017-02-11T19:37:49.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,361 5524,v1.0,,"Through collaboration, listening to local caring initatives/groups and providing what we can. I see community and care as part of culture alongside the arts. Examples;",/post/14308,2017-02-11T19:37:38.000Z,2017-02-11T19:37:38.000Z,14308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,326 9989,v1.0,,"where do you see the interface between culture, community and care?",/post/6885,2017-02-11T19:37:31.000Z,2017-02-11T19:37:31.000Z,6885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,1445 7575,v1.0,,I volunteer at a community/school garden (Soil Chroí Íosa) with Transition Galway and was a writer/editor and designer for our “A Vision for Galway 2030” document.,/post/812,2017-02-11T19:37:18.000Z,2017-02-11T19:37:18.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,883 7705,v1.0,,"We’re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes.",/post/812,2017-02-11T19:37:10.000Z,2017-02-11T19:37:10.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,920 7717,v1.0,,"We’re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes.",/post/812,2017-02-11T19:37:01.000Z,2017-02-11T19:37:01.000Z,812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,779,921 9143,v1.0,,"The project is not yet open-source, we are indeed brainstorming on the type of licenses under which to release it. This will definitely affect the way it is going to be constructed/built/distributed, so unfortunately we have no answers yet on this regard. We have not run any complete clinical assessment but we are planning to start some pilot studies on single users in the near future in order to assess the usability and functionality of the device.",/post/17989,2017-02-11T19:31:47.000Z,2017-02-11T19:31:47.000Z,17989,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1257 7313,v1.0,,"* Optimistic research. No, rather pragmatic - If something does not work try something different. The different is to eliminate the last variable (confounder is the term) not yet controlled in 50years of research: FAILING INSTITUTIONS (article on edgeryders).",/post/33426,2017-02-11T19:31:04.000Z,2017-02-11T19:31:04.000Z,33426,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,805 7987,v1.0,,Solutions not marketed is a complex one. As graduate student I believed (was taught) that if it works it will be sold. That’s not the way of business. Healthcare is business. Hard cold  business. A businees where 90%  of the healthcare budget is spend on a solution that does not work. 90% (EU data) is spend on treating cronic diseases. Why are they cronic? Because the cure we are paying is not working... ok I’m being cheeky here,/post/33426,2017-02-11T19:30:52.000Z,2017-02-11T19:30:52.000Z,33426,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,988 9326,v1.0,,"* ‚Disabled ones’ are in this case people, the participants, looking for a alleviation for lack of body function. In contrast to established health care ( were the patient is often a passive receiver patiently waiting for ....), the WeHandU (see above reply) philosophy is NOT to decide what is best for a patient. Rather a person living with an impairment is looking for a way to resolve that HE/SHE considers a problem and hopefully resolve/alleviate it in a creative environment (I am often contacted by such people). The ‚not-patient’ but participant is... a participant. People not ‚wanting any aid’ (and they are most) will not come in WeHandU. (BTW. Disabled people is not existing in the modern vocabulary)",/post/33426,2017-02-11T19:30:39.000Z,2017-02-11T19:30:39.000Z,33426,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1288 11306,v1.0,,"In addition to possible support from OpenCare (for which we are just now drafting terms with Marco) you might want to look into a uni partner that would be willing to assign students to work for it and make it part of a semester assignment, that should really help kickstart.  Of course, this may be too advanced stuff for coursework, I have no idea.  What's a good timeline? Is it reasonable to expect advances in 6 months? They can be, if not research results, community mobilization results, contributing to global documentation and similar things. Well done!",/post/25463,2017-02-11T19:28:34.000Z,2017-02-11T19:28:34.000Z,25463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1797 9648,v1.0,,"I'm optimistic about the uptake of the project by the community here. The main challenge that I see now for us is the local coordination cost (Ghent or Belgium level TBD). I've (tried to) set up, participated in and observed a few similar local research collaborations. They all had high coordination costs. This insight comes from scientific fields that are way less of a pain than biotech/pharma, so I can't see it turning out easier than expected. Another challenge is gathering relevant insights in terms of process to have some insights at the end of the road. More so when you haven't set it up right at the beginning: having to change process during the project is costly.",/post/25366,2017-02-11T19:28:18.000Z,2017-02-11T19:28:18.000Z,25366,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1371 8104,v1.0,,"The big advantage is that all global groups are interconnected for the information aspect. The international element will probably happen relatively smoothly if the right digital infrastructure and practises are in place, as there is a clear incentive to do so: faster learning, collective intelligence. Coordination costs should be low, there's only information being shared and this is cheap and fast if you have people who keep track of data.",/post/25366,2017-02-11T19:27:57.000Z,2017-02-11T19:27:57.000Z,25366,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1026 8342,v1.0,,"In my view, there's two clear levels to this: local collaboration and international collaboration. Both are interesting to research seperately, and the combination even more so. For good measure, local research groups participating in this are (or should be) inevitably autonomous in practical aspects. Save the occasional shipping of a sample to replicate experiments or other small stuff like that. This entails that the local element will have coordination costs in the form of time, money and energy to keep the community and project going through a potentially long and tough research track.",/post/25366,2017-02-11T19:27:46.000Z,2017-02-11T19:27:46.000Z,25366,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1091 8223,v1.0,,"In my view, there's two clear levels to this: local collaboration and international collaboration. Both are interesting to research seperately, and the combination even more so. For good measure, local research groups participating in this are (or should be) inevitably autonomous in practical aspects. Save the occasional shipping of a sample to replicate experiments or other small stuff like that. This entails that the local element will have coordination costs in the form of time, money and energy to keep the community and project going through a potentially long and tough research track.",/post/25366,2017-02-11T19:27:30.000Z,2017-02-11T19:27:30.000Z,25366,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1062 5980,v1.0,,"@dfko and me ended up Skyping on Monday. It was kind of last minute after long silences and trying to find overlap in each of our hectic agendas. Sorry @trythis and @Alberto ! I'll try to give a short summary. We discussed that as I'm more active on ER, I can serve as a link here. The project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter. We'll be launching a chapter in Belgium to see if our community is up for joining this. Like that we will test the international collaboration and see where it leads us, perhaps others will join as well. There's a diversity of angles, eg. we could contribute more in terms of communication, while the others are more technically adept. It's interesting to me that each group can have their own approach, and all contributing to the same goal. I'm reaching out to the other labs in Belgium to see if they are up for joining. There's already a good diversity there (arts, technical, educational, ...). Does anyone have any ideas in terms of collaboration process? We're in a new field to set this up at such a scale.",/post/23778,2017-02-11T19:26:53.000Z,2017-02-11T19:26:53.000Z,23778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,396 5523,v1.0,,"@dfko and me ended up Skyping on Monday. It was kind of last minute after long silences and trying to find overlap in each of our hectic agendas. Sorry @trythis and @Alberto ! I'll try to give a short summary. We discussed that as I'm more active on ER, I can serve as a link here. The project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter. We'll be launching a chapter in Belgium to see if our community is up for joining this. Like that we will test the international collaboration and see where it leads us, perhaps others will join as well. There's a diversity of angles, eg. we could contribute more in terms of communication, while the others are more technically adept. It's interesting to me that each group can have their own approach, and all contributing to the same goal. I'm reaching out to the other labs in Belgium to see if they are up for joining. There's already a good diversity there (arts, technical, educational, ...). Does anyone have any ideas in terms of collaboration process? We're in a new field to set this up at such a scale.",/post/23778,2017-02-11T19:26:42.000Z,2017-02-11T19:26:42.000Z,23778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,326 8103,v1.0,,"The project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter. We'll be launching a chapter in Belgium to see if our community is up for joining this. Like that we will test the international collaboration and see where it leads us, perhaps others will join as well.",/post/23778,2017-02-11T19:26:32.000Z,2017-02-11T19:26:32.000Z,23778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1026 9892,v1.0,,Do you know the question function of research gate? Insulin comes up with 385 researchers who follow the topic and 300 questions discussed. I often get good and detailed responses on things that you usually have a hard time finding in papers. Check here: https://www.researchgate.net/topic/insulin,/post/19886,2017-02-11T19:26:03.000Z,2017-02-11T19:26:03.000Z,19886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1444 5979,v1.0,,I'm sure there are more people with similar stories and who would love to help you - us included. Let me know if you want to skype sometime to discuss what we can contribute. Have you reached out or collaborated internationally before?,/post/14307,2017-02-11T19:25:45.000Z,2017-02-11T19:25:45.000Z,14307,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,396 9535,v1.0,,"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results: common decency is no longer enough and one has to have grit. In other words, I feel more and more that any ambitious effort to lead to greater equality, access, fairness in the world needs to become somewhat political and build consistent support behind them.",/post/6933,2017-02-11T19:25:31.000Z,2017-02-11T19:25:31.000Z,6933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1334 9534,v1.0,,"Thanks for the analysis Noemi. Grit is about all we've got right now! It's gotten us some results in the lab and gotten many people interested in helping out. And it has been key, in the preceding years, to founding the hacker space itself that we work out of. We've gone out on a limb and inspired some people and now we need to make the most of this interest. Influencing politics in favor of the values we're trying to serve is a side interest of most of the team and we're hoping in collaborating with Edgeryders here to be able to contribute to these broader questions even as we focus on our scientific and engineering work.",/post/11314,2017-02-11T19:25:20.000Z,2017-02-11T19:25:20.000Z,11314,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1334 7986,v1.0,,"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results: common decency is no longer enough and one has to have grit. In other words, I feel more and more that any ambitious effort to lead to greater equality, access, fairness in the world needs to become somewhat political and build consistent support behind them.  Example: look at Academia as a space for sharing expertise and see whether it is going in the right direction paywalling everything and being very slow to reform in terms of open access policies. What you have is a set of no-way-out reactions, people like A. Swartz or this lady in Kazakhstan taking action in their own hands. I would not favor those of course, but middle ways are long term battles with a lot of coordination across the net. Repeat, repeat, repeat..",/post/6933,2017-02-11T19:24:59.000Z,2017-02-11T19:24:59.000Z,6933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,988 9544,v1.0,,"Example: look at Academia as a space for sharing expertise and see whether it is going in the right direction paywalling everything and being very slow to reform in terms of open access policies. What you have is a set of no-way-out reactions, people like A. Swartz or this lady in Kazakhstan taking action in their own hands. I would not favor those of course, but middle ways are long term battles with a lot of coordination across the net. Repeat, repeat, repeat..",/post/6933,2017-02-11T19:24:47.000Z,2017-02-11T19:24:47.000Z,6933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1337 10863,v1.0,,"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results: common decency is no longer enough and one has to have grit. In other words, I feel more and more that any ambitious effort to lead to greater equality, access, fairness in the world needs to become somewhat political and build consistent support behind them.",/post/6933,2017-02-11T19:24:34.000Z,2017-02-11T19:24:34.000Z,6933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1665 9668,v1.0,,"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results: common decency is no longer enough and one has to have grit. In other words, I feel more and more that any ambitious effort to lead to greater equality, access, fairness in the world needs to become somewhat political and build consistent support behind them",/post/6933,2017-02-11T19:23:32.000Z,2017-02-11T19:23:32.000Z,6933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1377 7339,v1.0,,"We’ve had the good fortune to have many experts in relevant fields reach out to advise us to smooth out our path, but many important questions remain, and the most important ones remain for us to find new answers. Scientists who are reading this – can we count on you to contribute your expertise in protein expression and purification? Organizers – can you share with us your vision for expanding these efforts into a movement with participation from parallel groups like ours around the world?",/post/552,2017-02-11T19:23:16.000Z,2017-02-11T19:23:16.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,811 7787,v1.0,,"If all goes well, we hope our techniques will be available to people with diabetes, especially to help meet the needs of people in resource-poor and lower-income countries. However, it’s hard to say at this point when we might be able to deliver a result useful for making a pharmaceutical-grade product. After the scientific work, which might take a few years, there will be the work of seeking business partnerships and going through more engineering work and the biosimilar approval process in the US. In other areas of the world, it may be simpler, but might also involve more unusual local political considerations. We’re hoping that our work will inspire others to move in parallel alongside us and increase the chances that one group will succeed quickly, and there are some preliminary signs that this is happening, which could yield results sooner. But there’s no doubt we’re at the start of a very long and winding road. We’ve had the good fortune to have many experts in relevant fields reach out to advise us to smooth out our path, but many important questions remain, and the most important ones remain for us to find new answers. Scientists who are reading this – can we count on you to contribute your expertise in protein expression and purification? Organizers – can you share with us your vision for expanding these efforts into a movement with participation from parallel groups like ours around the world?",/post/552,2017-02-11T19:21:26.000Z,2017-02-11T19:21:26.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,940 6089,v1.0,,"If all goes well, we hope our techniques will be available to people with diabetes, especially to help meet the needs of people in resource-poor and lower-income countries. However, it’s hard to say at this point when we might be able to deliver a result useful for making a pharmaceutical-grade product. After the scientific work, which might take a few years, there will be the work of seeking business partnerships and going through more engineering work and the biosimilar approval process in the US. In other areas of the world, it may be simpler, but might also involve more unusual local political considerations. We’re hoping that our work will inspire others to move in parallel alongside us and increase the chances that one group will succeed quickly, and there are some preliminary signs that this is happening, which could yield results sooner. But there’s no doubt we’re at the start of a very long and winding road. We’ve had the good fortune to have many experts in relevant fields reach out to advise us to smooth out our path, but many important questions remain, and the most important ones remain for us to find new answers. Scientists who are reading this – can we count on you to contribute your expertise in protein expression and purification? Organizers – can you share with us your vision for expanding these efforts into a movement with participation from parallel groups like ours around the world?",/post/552,2017-02-11T19:21:17.000Z,2017-02-11T19:21:17.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,427 10118,v1.0,,"We face two main challenges. First, while we are a group of talented and curious folks, most of us are learning challenging lab protocols from scratch, and second, we’re working with limited amounts of time and money, fitting the work into gaps in our schedules left by work or school, and mainly relying on surplus equipment and reagents that add delays and uncertainties to our work. So progress can be slow and involve a lot of detours on top of those implied by the already uncertain nature of scientific investigation, and we have to dig deep to figure out what to do next when something goes wrong. We do our best to learn fast, but it’s difficult to follow up on everything we should with our limited time and resources and background knowledge. There’s a lot of practical wisdom around making insulin that doesn’t show up directly in the papers published in scientific journals, and we’re learning these nuances of making things work as we go. Much of the value we hope to provide to the community is documenting as much of this practical wisdom as we can, and perhaps eventually automating the kind of work we’re doing by hand right now.",/post/552,2017-02-11T19:21:02.000Z,2017-02-11T19:21:02.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1451 9081,v1.0,,"If we can achieve the creation of open source insulin, it could contribute to at least three important goals - first, by making insulin production more economical at a smaller scale, and opening up manufacturing to much more competition, it could improve cost and access for patients. Second, we hope the protocol will serve as a basis for future research into improvements to insulin - variants that are longer acting, shorter acting, more temperature stable, and so on - that address different concerns that arise in treatment. Third, we hope it might serve as a basis for research and production of other proteins by small groups, and open up participation in research and development to accelerate progress in other aspects of diabetes treatment besides insulin and other areas of science and medicine besides diabetes treatment. Currently we’re working on a novel method to produce human insulin, which is not patented, and as far as I know is not patentable. There are variations on normal human insulin to make them longer or shorter acting, which involve very small changes to the sequence that codes for human insulin.",/post/552,2017-02-11T19:20:45.000Z,2017-02-11T19:20:45.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1253 6895,v1.0,,"If we can achieve the creation of open source insulin, it could contribute to at least three important goals - first, by making insulin production more economical at a smaller scale, and opening up manufacturing to much more competition, it could improve cost and access for patients. Second, we hope the protocol will serve as a basis for future research into improvements to insulin - variants that are longer acting, shorter acting, more temperature stable, and so on - that address different concerns that arise in treatment. Third, we hope it might serve as a basis for research and production of other proteins by small groups, and open up participation in research and development to accelerate progress in other aspects of diabetes treatment besides insulin and other areas of science and medicine besides diabetes treatment. Currently we’re working on a novel method to produce human insulin, which is not patented, and as far as I know is not patentable. There are variations on normal human insulin to make them longer or shorter acting, which involve very small changes to the sequence that codes for human insulin.",/post/552,2017-02-11T19:20:38.000Z,2017-02-11T19:20:38.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,704 4851,v1.0,,"Open source software and the hacker culture that makes it was a major inspiration for biohackers to organize as such. “Biohacker” derives from the term “hacker” in the sense used in the communities of early pioneers of computing, where it’s a term used to refer to people who seek to understand how things work on the inside, instead of just using products as a consumer. Hackers are people who seek to modify things to serve their own purposes, instead of just accepting them as being limited to their originally intended purposes. It’s an approach that emphasizes the philosophical concepts of phronesis and techne, which describe an embodied, contextualized, practical approach to things, applied to science and technology. Biohackers are people who take a practical approach to understanding and engineering biological systems, and look beyond appearances and inside the black boxes of commercial products to understand the substance and true implications of things.",/post/552,2017-02-11T19:20:34.000Z,2017-02-11T19:20:34.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,100 7704,v1.0,,"Open Insulin is one of many projects at Counter Culture Labs, a biohacker space in Oakland, CA. Counter Culture Labs was founded around 2011-2012 by a group of hackers with diverse backgrounds and interests. Members joined us from Sudo Room, another hacker space in Oakland, and Biocurious, a biohacker space in Sunnyvale. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Eventually, the community we built in the hacker space reached a critical mass of knowledge and interest around the idea of starting to producing insulin with a manual protocol, but one designed to be simpler and less expensive than existing methods. We named the project “Open Insulin” to reflect a commitment to make the results freely available to any interested party and publish our methods openly. The name was a deliberate reference to open source software. Open source, as many readers may know fro",/post/552,2017-02-11T19:20:09.000Z,2017-02-11T19:20:09.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,920 4850,v1.0,,"Open Insulin is one of many projects at Counter Culture Labs, a biohacker space in Oakland, CA. Counter Culture Labs was founded around 2011-2012 by a group of hackers with diverse backgrounds and interests. Members joined us from Sudo Room, another hacker space in Oakland, and Biocurious, a biohacker space in Sunnyvale. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Eventually, the community we built in the hacker space reached a critical mass of knowledge and interest around the idea of starting to producing insulin with a manual protocol, but one designed to be simpler and less expensive than existing methods. We named the project “Open Insulin” to reflect a commitment to make the results freely available to any interested party and publish our methods openly. The name was a deliberate reference to open source software. Open source, as many readers may know from the software world, is the practice of making all information necessary to produce and modify a product publicly available along with the product itself. It started in software as an alternative to the practice of providing only machine-readable copies of programs, which can’t be understood or practically changed by users of the software. Without access to human-readable code, users and other stakeholders were shut out of their own tools. Open source methods of production are relevant not just to aligning incentives and improving the economics of software development, but also to scientific reproducibility and transparency, and in both software and science, open source can enable more participation and progress than trying to hold secrets close. In medicine in general, and diabetes treatments in particular, I think it holds one of the keys to breaking through the barrier between promising research and a stagnant market of treatments available to patients, just as it made software much more efficient to produce and use and enabled a great deal more innovation than was otherwise possible.",/post/552,2017-02-11T19:20:01.000Z,2017-02-11T19:20:01.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,100 9142,v1.0,,"Open Insulin is one of many projects at Counter Culture Labs, a biohacker space in Oakland, CA. Counter Culture Labs was founded around 2011-2012 by a group of hackers with diverse backgrounds and interests. Members joined us from Sudo Room, another hacker space in Oakland, and Biocurious, a biohacker space in Sunnyvale. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Eventually, the community we built in the hacker space reached a critical mass of knowledge and interest around the idea of starting to producing insulin with a manual protocol, but one designed to be simpler and less expensive than existing methods. We named the project “Open Insulin” to reflect a commitment to make the results freely available to any interested party and publish our methods openly. The name was a deliberate reference to open source software. Open source, as many readers may know from the software world, is the practice of making all information necessary to produce and modify a product publicly available along with the product itself. It started in software as an alternative to the practice of providing only machine-readable copies of programs, which can’t be understood or practically changed by users of the software. Without access to human-readable code, users and other stakeholders were shut out of their own tools. Open source methods of production are relevant not just to aligning incentives and improving the economics of software development, but also to scientific reproducibility and transparency, and in both software and science, open source can enable more participation and progress than trying to hold secrets close. In medicine in general, and diabetes treatments in particular, I think it holds one of the keys to breaking through the barrier between promising research and a stagnant market of treatments available to patients, just as it made software much more efficient to produce and use and enabled a great deal more innovation than was otherwise possible.",/post/552,2017-02-11T19:19:51.000Z,2017-02-11T19:19:51.000Z,552,3323,AnnotatorStore::TextAnnotation,,,,,,,,,519,1257 8047,v1.0,,"adopted. And only if radical openness is adopted one can truly claim no responsibility over the final ""accidents"" that will always happen (only that which does not work, will not break). Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model ""exploitative"", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.",/post/23523,2017-02-11T02:41:05.000Z,2017-02-11T02:41:05.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1017 7716,v1.0,,* What you say about ‚bypassing’ is actually the reason for hacking - for opencare. Once you certify your product is ‚frozen’. Yes it’s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.,/post/33426,2017-02-11T02:40:24.000Z,2017-02-11T02:40:24.000Z,33426,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,921 9837,v1.0,,* What you say about ‚bypassing’ is actually the reason for hacking - for opencare. Once you certify your product is ‚frozen’. Yes it’s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.,/post/33426,2017-02-11T02:39:47.000Z,2017-02-11T02:39:47.000Z,33426,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1425 5012,v1.0,,* What you say about ‚bypassing’ is actually the reason for hacking - for opencare. Once you certify your product is ‚frozen’. Yes it’s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.,/post/33426,2017-02-11T02:39:36.000Z,2017-02-11T02:39:36.000Z,33426,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,133 9988,v1.0,,"""how long will this work continuously?"", ""what will be the safety mechanism once it turns off, as instance because of battery exhaustion?"", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?"",...",/post/23523,2017-02-11T02:38:32.000Z,2017-02-11T02:38:32.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1445 9325,v1.0,,"For the sake of our understanding, let me be pedant and allow me to stress that disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status. A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a ""because"".",/post/23523,2017-02-11T02:38:01.000Z,2017-02-11T02:38:01.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1288 7075,v1.0,,"Research, and ""citizen science"", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.",/post/23523,2017-02-11T02:37:34.000Z,2017-02-11T02:37:34.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,752 8046,v1.0,,"almost ""ethical"": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as gut feeling here, but I am open to discuss it in depth later) the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final ""accidents"" that will always happen (only that which does not work, will not break). Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model ""exploitative"", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.",/post/23523,2017-02-11T02:37:28.000Z,2017-02-11T02:37:28.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1017 9767,v1.0,,"However, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be ""ok, let's ignore this step and bypass it"". There are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents' costs, etc on the side of providers). Of course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that is almost ""ethical"": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as gut feeling here, but I am open to discuss it in depth later) the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final ""accidents"" that will always happen (only that which does not work, will not break). Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model ""exploitative"", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later. So, what would be the general ecosystem' services that would keep this garden grow orderly? I don't see this answered (that's not an easy one, indeed) Research, and ""citizen science"", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble. For the sake of our understanding, let me be pedant and allow me to stress that disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status. A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a ""because"". I would like to not dig too deep in the question about why the current ""solutions"" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let's be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don't normally ask themselves questions like ""how long will this work continuously?"", ""what will be the safety mechanism once it turns off, as instance because of battery exhaustion?"", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?"",... Let's not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter ""being poor means having too much end of the month""... it may steal a smile, but it's a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.",/post/23523,2017-02-11T02:37:10.000Z,2017-02-11T02:37:10.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1400 10203,v1.0,,"potential benefit than the access to the devices in itself. However, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be ""ok, let's ignore this step and bypass it"". There are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents' costs, etc on the side of providers). Of course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that is almost ""ethical"": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as gut feeling here, but I am open to discuss it in depth later) the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final ""accidents"" that will always happen (only that which does not work, will not break). Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model ""exploitative"", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later. So, what would be the general ecosystem' services that would keep this garden grow orderly? I don't see this answered (that's not an easy one, indeed) Research, and ""citizen science"", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble. For the sake of our understanding, let me be pedant and allow me to stress that disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status. A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a ""because"". I would like to not dig too deep in the question about why the current ""solutions"" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let's be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don't normally ask themselves questions like ""how long will this work continuously?"", ""what will be the safety mechanism once it turns off, as instance because of battery exhaustion?"", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?"",... Let's not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter ""being poor means having too much end of the month""... it may steal a smile, but it's a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.",/post/23523,2017-02-11T02:36:58.000Z,2017-02-11T02:36:58.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1483 7253,v1.0,,"I would like to start from the bottom of it. Transforming patients (or their closest carers) into makers is an interesting perspective. We know from citizen science that this first hands involvement often offers a stimulus to personal studies, and reflection about the identity of the problem, and the problem holder. One could argue this is an even more important potential benefit than the access to the devices in itself. However, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be ""ok, let's ignore this step and bypass it"". There are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents' costs, etc on the side of providers). Of course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that is almost ""ethical"": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as gut feeling here, but I am open to discuss it in depth later) the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final ""accidents"" that will always happen (only that which does not work, will not break). Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model ""exploitative"", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later. So, what would be the general ecosystem' services that would keep this garden grow orderly? I don't see this answered (that's not an easy one, indeed) Research, and ""citizen science"", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble. For the sake of our understanding, let me be pedant and allow me to stress that disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status. A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a ""because"". I would like to not dig too deep in the question about why the current ""solutions"" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let's be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don't normally ask themselves questions like ""how long will this work continuously?"", ""what will be the safety mechanism once it turns off, as instance because of battery exhaustion?"", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?"",... Let's not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter ""being poor means having too much end of the month""... it may steal a smile, but it's a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.",/post/23523,2017-02-11T02:36:47.000Z,2017-02-11T02:36:47.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,792 8291,v1.0,,"However, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be ""ok, let's ignore this step and bypass it"". There are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents' costs, etc on the side of providers). Of course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that is almost ""ethical"": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as gut feeling here, but I am open to discuss it in depth later) the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final ""accidents"" that will always happen (only that which does not work, will not break). Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model ""exploitative"", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later. So, what would be the general ecosystem' services that would keep this garden grow orderly? I don't see this answered (that's not an easy one, indeed) Research, and ""citizen science"", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble. For the sake of our understanding, let me be pedant and allow me to stress that disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status. A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a ""because"". I would like to not dig too deep in the question about why the current ""solutions"" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let's be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don't normally ask themselves questions like ""how long will this work continuously?"", ""what will be the safety mechanism once it turns off, as instance because of battery exhaustion?"", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?"",... Let's not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter ""being poor means having too much end of the month""... it may steal a smile, but it's a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.",/post/23523,2017-02-11T02:36:33.000Z,2017-02-11T02:36:33.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1074 5452,v1.0,,"ransforming patients (or their closest carers) into makers is an interesting perspective. We know from citizen science that this first hands involvement often offers a stimulus to personal studies, and reflection about the identity of the problem, and the problem holder. One could argue this is an even more important potential benefit than the access to the devices in itself.",/post/23523,2017-02-11T02:36:13.000Z,2017-02-11T02:36:13.000Z,23523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,312 7239,v1.0,,"Our proposal is that it should be an 'association' of participants (the patients), mentors (patients who done it) and facilitators (e.g. us-researchers, clinicians, etc....) Participants come and see if WeHandU has a solution  that solves the problem. If yes, then they becomes associates with a moral obligation to become mentors (helping newbees). This part should be free. Eventually facilitators time has to be payed in some way (It's probably impossible to convince a professional therapist to work for free) Are there some projects we can learn from?",/post/17893,2017-02-11T02:35:18.000Z,2017-02-11T02:35:18.000Z,17893,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,788 9298,v1.0,,"Our proposal is that it should be an 'association' of participants (the patients), mentors (patients who done it) and facilitators (e.g. us-researchers, clinicians, etc....) Participants come and see if WeHandU has a solution  that solves the problem. If yes, then they becomes associates with a moral obligation to become mentors (helping newbees). This part should be free. Eventually facilitators time has to be payed in some way (It's probably impossible to convince a professional therapist to work for free) Are there some projects we can learn from?",/post/17893,2017-02-11T02:35:02.000Z,2017-02-11T02:35:02.000Z,17893,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1283 4555,v1.0,,"It should not be so difficult to set up something like a voucher system for disabled people. You've got a condition? Here's your voucher, head off to your local makerspace, someone will talk to you. There's a condition, though: you'll need to be an active participant, not a passive consumer. You'll need to help with design, testing, providing feedback. In other words, you will need to join a community of makers. Your exact role will depend on your skillset and enthusiasm: the harder you work, the better the outcome solution will fit your particular condition.",/post/16243,2017-02-11T02:34:30.000Z,2017-02-11T02:34:30.000Z,16243,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,18 9297,v1.0,,"In this hacking event we will help a person to create his/her neuroprosthesis to recover hand or foot function. This could be a kickoff workshop for a project the we call WeHandU - a hackerspace for people with spinal cord injury,stroke, multiple sclerosis. It fits perfectly to a 100k grant coming up in september, but we need to recruit paricipants before time runs out.",/post/11841,2017-02-11T02:34:10.000Z,2017-02-11T02:34:10.000Z,11841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1283 7715,v1.0,,"Regarding @Costantino, I have been airing the idea of making a 'neuroprostethics' hacking event. We need the right subject (patient), a clinician (OpenCare type) and clear some formal issues. Some people that I had in mind had to drop out (for logistic and health problems).",/post/11841,2017-02-11T02:33:53.000Z,2017-02-11T02:33:53.000Z,11841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,921 8203,v1.0,,"Good point on the organizations @Noemi. I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there. Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?",/post/11841,2017-02-11T02:33:35.000Z,2017-02-11T02:33:35.000Z,11841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1053 10867,v1.0,,"Good point on the organizations @Noemi. I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there. Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?",/post/11841,2017-02-11T02:33:08.000Z,2017-02-11T02:33:08.000Z,11841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1666 11507,v1.0,,"Good point on the organizations @Noemi. I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there. Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?",/post/11841,2017-02-11T02:32:34.000Z,2017-02-11T02:32:34.000Z,11841,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1861 9987,v1.0,,"Could we leave people with a physical handicap to become a maker, create their own assistive technology? Would it be possible for, for example, researchers to help people living with a disability to hack a dropped foot correcting device like connecting an Arduino with an extension board? Will doctors provide indications of how to find the assistive technology, which might solve your health issue? That would mean that people should take responsibility for their own rehabilitation devices. They would have full ownership. Clearly they must be guided by healthcare professionals and experts without conflict of interests to ensure that everything is done ethically, safe and sound. How? Maybe if we reunite people living with physical challenges with researchers they would both benefit and research becomes action and functionally useful to the society? What do you think?",/post/516,2017-02-11T02:28:31.000Z,2017-02-11T02:28:31.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1445 9836,v1.0,,"As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I’ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970’ies anymore. In the name of assuring ‘quality’, ‘safety’ etc,  we need to manufacture, CE mark, register as a medical device and so on!.  To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price.  Why should people, already challenged economically by loss of health, spend 5-10 k€  for a device that could be made much cheaper?",/post/516,2017-02-11T02:28:16.000Z,2017-02-11T02:28:16.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1425 10202,v1.0,,"As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I’ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970’ies anymore. In the name of assuring ‘quality’, ‘safety’ etc,  we need to manufacture, CE mark, register as a medical device and so on!.  To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price.  Why should people, already challenged economically by loss of health, spend 5-10 k€  for a device that could be made much cheaper?",/post/516,2017-02-11T02:28:10.000Z,2017-02-11T02:28:10.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1483 8245,v1.0,,"As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I’ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970’ies anymore. In the name of assuring ‘quality’, ‘safety’ etc,  we need to manufacture, CE mark, register as a medical device and so on!.  To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price.  Why should people, already challenged economically by loss of health, spend 5-10 k€  for a device that could be made much cheaper?",/post/516,2017-02-11T02:28:00.000Z,2017-02-11T02:28:00.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1073 7985,v1.0,,"So a relatively simple method of restoring the hand function in people having broken their neck (cervical spinal cord injury), that has been demonstrated useful in a large clinical trial has not become available to people who really need it because it does not fit the ‘business model’  of modern health care systems !?",/post/516,2017-02-11T02:27:30.000Z,2017-02-11T02:27:30.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,988 9296,v1.0,,"numbers. However, as long as assistive technology is not used it’s difficult to identify exactly where to improve it.  We know that consumers must be involved early in the development, it’s difficult to do so in a realistic setting. We realize that marketing assistive technology is different than selling a robot vacuum cleaner.",/post/516,2017-02-11T02:25:32.000Z,2017-02-11T02:25:32.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1283 6013,v1.0,,"They need one solution that fits many, because the modern health care model reduce human life in cost/benefit analysis to numbers. However, as long as assistive technology is not used it’s difficult to identify exactly where to improve it.  We know that consumers must be involved early in the development, it’s difficult to do so in a realistic setting. We realize that marketing assistive technology is different than selling a robot vacuum cleaner.",/post/516,2017-02-11T02:25:15.000Z,2017-02-11T02:25:15.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,411 10866,v1.0,,So on the one hand we spend million dollar research to refine technology that is not widely used!!!!. Will our institutions and society implement the provision of such technology!?,/post/516,2017-02-11T02:23:25.000Z,2017-02-11T02:23:25.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1666 11282,v1.0,,"Please, don’t get me wrong. The research contribute with important results, but obviously there is a problem of transferring the research results into the benefit of people with physical challenges.",/post/516,2017-02-11T02:22:49.000Z,2017-02-11T02:22:49.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1785 7312,v1.0,,"Another hypothesis could be an issue of lack of flexibility of the healthcare system, not beeing able to provide state of the art technology to patients !?",/post/516,2017-02-11T02:22:28.000Z,2017-02-11T02:22:28.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,805 4746,v1.0,,"I have been active in the field for 20 years working at major rehabilitation institutions, but I’ve only rarely seen patients being offered these assistive technologies and more rarely seen them  used outside the hospital. Is the problem (as some people with SCI have entrusted me) that there is no such demand or ‘new hope’ for walking? After all, wheels are more efficient than legs - provided accessibility!!!",/post/516,2017-02-11T02:22:18.000Z,2017-02-11T02:22:18.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,67 7507,v1.0,,"First of all they told me where my ideas were no good and what research needed to be done. Together we coined a method, not an ambitious cure, just a simple idea that could help a bit and during my Ph.D dissertation, we demonstrated feasibility of restoring the hand function using electrical activation of the paralysed muscles. Not a fits all solution and not perfect, but as people say: when you have nothing, a little is a lot, and for some people it works well (see the video)",/post/516,2017-02-11T02:21:46.000Z,2017-02-11T02:21:46.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,873 9367,v1.0,,"Just to give an example:  My mother suffered from a slipped disc so passing the vacuum cleaner was a low back pain for her. As a good boy I stated: ""When I grow up mom, I’ll invent a cleaning robot to do the job for you"". Someone beat me to it - the cleaning robot is a reality - it sells well, and substitutes the socializing cleaning woman once offered to the elderly. I see now that a cleaning robot is not what a mother really wants. She just wants a good boy saying: “mom, I'll do that part of the cleaning with you”, and do it right away.",/post/516,2017-02-11T02:20:45.000Z,2017-02-11T02:20:45.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1297 5028,v1.0,,"Can we improve life conditions, and how? A fundamental question is: do we meet the ‘clients’ needs?",/post/516,2017-02-11T02:20:25.000Z,2017-02-11T02:20:25.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,138 7934,v1.0,,do we meet the ‘clients’ needs?,/post/516,2017-02-11T02:20:08.000Z,2017-02-11T02:20:08.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,977 9986,v1.0,,"Can we improve life conditions, and how? A fundamental question is: do we meet the ‘clients’ needs?",/post/516,2017-02-11T02:19:50.000Z,2017-02-11T02:19:50.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1445 6478,v1.0,,"Just to give an example:  My mother suffered from a slipped disc so passing the vacuum cleaner was a low back pain for her. As a good boy I stated: ""When I grow up mom, I’ll invent a cleaning robot to do the job for you"". Someone beat me to it - the cleaning robot is a reality - it sells well, and substitutes the socializing cleaning woman once offered to the elderly. I see now that a cleaning robot is not what a mother really wants. She just wants a good boy saying: “mom, I'll do that part of the cleaning with you”, and do it right away. Until doing my masters, the disabled people were an unknown phenomenon to me. They were not seen, not talked about. I was introduced to young people suddenly wheelchair bound with very limited personal independence due to a spinal cord injury.  They were really nice people and kindly explained about the complexity of such sudden change in abilities and about the need to regain some functional movements. First of all they told me where my ideas were no good and what research needed to be done. Together we coined a method, not an ambitious cure, just a simple idea that could help a bit and during my Ph.D dissertation, we demonstrated feasibility of restoring the hand function using electrical activation of the paralysed muscles. Not a fits all solution and not perfect, but as people say: when you have nothing, a little is a lot, and for some people it works well (see the video) We still research in restoration of walking in paraplegic patients and quite a few assistive devices have been marketed (braces, functional electrical stimulation and robots ). I have been active in the field for 20 years working at major rehabilitation institutions, but I’ve only rarely seen patients being offered these assistive technologies and more rarely seen them  used outside the hospital. Is the problem (as some people with SCI have entrusted me) that there is no such demand or ‘new hope’ for walking? After all, wheels are more efficient than legs - provided accessibility!!! Another hypothesis could be an issue of lack of flexibility of the healthcare system, not beeing able to provide state of the art technology to patients !? Still, for more than forty years we continue producing scientific publications with conclusions like: “…the work carried out so far proves that functional movements can be restored...We therefore believe that patients can benefit. Further research should be carried out”. Please, don’t get me wrong. The research contribute with important results, but obviously there is a problem of transferring the research results into the benefit of people with physical challenges. So far business oriented people responds that it’s because the solutions are not technically good enough, that they only fit a few thousand patients and we continue the research for enhancements to the technology and demonstrate clinically effectiveness. On the other hand less ambitious solutions have been available since the 60’ties, to alleviate the simple problem of foot drop. It applies to thousands of people living with stroke, multiple sclerosis or spinal cord injury. It’s a little electrical device providing electrical impulses to the muscle that lifts the foot and I’ve encountered many people with stroke and multiple sclerosis who gained significantly in mobility (see this user statement). Despite demonstrated clinical efficiency and the immediate advantages it’s almost never proposed to the patients of the health care system (except for the UK [11]). Why??? So on the one hand we spend million dollar research to refine technology that is not widely used!!!!. Will our institutions and society implement the provision of such technology!? They need one solution that fits many, because the modern health care model reduce human life in cost/benefit analysis to numbers. However, as long as assistive technology is not used it’s difficult to identify exactly where to improve it.  We know that consumers must be involved early in the development, it’s difficult to do so in a realistic setting. We realize that marketing assistive technology is different than selling a robot vacuum cleaner. So a relatively simple method of restoring the hand function in people having broken their neck (cervical spinal cord injury), that has been demonstrated useful in a large clinical trial has not become available to people who really need it because it does not fit the ‘business model’  of modern health care systems !? As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I’ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970’ies anymore. In the name of assuring ‘quality’, ‘safety’ etc,  we need to manufacture, CE mark, register as a medical device and so on!.  To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price.  Why should people, already challenged economically by loss of health, spend 5-10 k€  for a device that could be made much cheaper? That’s where the revolution of OpenCare –with a subset of community driven provision of assistive technology - comes in. Could we leave people with a physical handicap to become a maker, create their own assistive technology? Would it be possible for, for example, researchers to help people living with a disability to hack a dropped foot correcting device like connecting an Arduino with an extension board? Will doctors provide indications of how to find the assistive technology, which might solve your health issue? That would mean that people should take responsibility for their own rehabilitation devices. They would have full ownership. Clearly they must be guided by healthcare professionals and experts without conflict of interests to ensure that everything is done ethically, safe and sound. How? Maybe if we reunite people living with physical challenges with researchers they would both benefit and research becomes action and functionally useful to the society? What do you think?",/post/516,2017-02-11T02:19:24.000Z,2017-02-11T02:19:24.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,485 11493,v1.0,,"Definitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!",/post/31537,2017-02-10T20:50:09.000Z,2017-02-10T20:50:09.000Z,31537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1860 4991,v1.0,,"Definitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!",/post/31537,2017-02-10T20:50:02.000Z,2017-02-10T20:50:02.000Z,31537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,129 5822,v1.0,,"Another benefit found was that building such local links ensured the elderly were ""monitored"" as in an eye was kept on their health and quality of life, and people could be referred to locally available facilities that they may not have been aware of or may have been reluctant to request or attend. Definitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!",/post/31537,2017-02-10T20:49:51.000Z,2017-02-10T20:49:51.000Z,31537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,377 7176,v1.0,,"There's been a lot of mention of finding new ways of addressing the issues with caring for the elderly in recent weeks, especially with the problems of capacity in A&E and more general hospital wards due to the lack of the necessary social care. Heard of a scheme in Wakefield the other day, where triage is used between various branches of care (hospital, local GP / nurses, local or community facilities such as care homes) which was proving very effective at managing need and ensuring ""efficient"" (for want of a better word) addressing of peoples' needs. (Some volunteer services, such as Help the Aged and the like were involved to help with transport and checking on a patient when they were ready to go home, rather than them waiting for ambulance services and staff from social care services to check on their immediate needs once back - but this did seem better than the individual concerned waiting unnecessarily in hospital, at huge cost.)",/post/31537,2017-02-10T20:49:31.000Z,2017-02-10T20:49:31.000Z,31537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,770 9590,v1.0,,"(Drives me mad that the public purse is spending billions on obesity, whilst big food corporates are profiting from cheap, sugary, snack sales...) The preventative works with mental health and capacity too - keeping active and interacting with others helps no end.",/post/31537,2017-02-10T20:49:23.000Z,2017-02-10T20:49:23.000Z,31537,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1349 6053,v1.0,,"http://www.owch.org.uk/ https://www.theguardian.com/society/2015/feb/16/co-housing-people-things-common-live-together-older-people https://www.dezeen.com/2016/12/09/pollard-thomas-edwards-architecture-first-older-co-housing-scheme-owch-uk/   http://cohousing.org.uk/resource/introduction-senior-cohousing https://www.jrf.org.uk/report/senior-cohousing-communities-%E2%80%93-alternative-approach-uk http://www.which.co.uk/elderly-care/housing-options/property-downsizing/432093-cohousing http://www.housinglin.org.uk/Topics/browse/Housing/HousingforOlderPeople/Cohousing/",/post/30613,2017-02-10T20:49:08.000Z,2017-02-10T20:49:08.000Z,30613,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,416 6052,v1.0,,"@zazie , co-housing for people that are not (yet) in need of personal, direct care makes sense to me. Because:",/post/30534,2017-02-10T20:48:59.000Z,2017-02-10T20:48:59.000Z,30534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,416 5821,v1.0,,"It is something that communities can do very well. Comparative advantage kicks in: it makes more sense for smart communities to focus on the relatively health and help them stay healthy, and for professional, capital-intensive orgs to dealt with acute conditions and non-self sufficient individuals.",/post/30534,2017-02-10T20:48:50.000Z,2017-02-10T20:48:50.000Z,30534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,377 9589,v1.0,,"Because: It is prevention. Healthier, more connected lives make for fewer years in care homes. People who retain a degree of self-sufficiency might be able to stay at home longer is their home is social and intergenerational. Prevention has great ROI; but our health care systems spend almost all of their resources on response instead. My feeling is that, to reduce the costs of health care, you should start running and climbing clubs rather than hospital wards.",/post/30534,2017-02-10T20:48:24.000Z,2017-02-10T20:48:24.000Z,30534,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1349 9985,v1.0,,"It's interesting then to wonder what still needs to happen for a large scale shift. And who will lead it: citizens, government, private sector, ...?",/post/30319,2017-02-10T20:48:02.000Z,2017-02-10T20:48:02.000Z,30319,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1445 8141,v1.0,,"It's interesting then to wonder what still needs to happen for a large scale shift. And who will lead it: citizens, government, private sector, ...? The potential is there and many (business or other) models are possible to tap into it. This calls for a catalyst I think: a party that is relatively uninvolved to help accelerate things in the right way, whatever that is, preferrably by facilitating implementation.",/post/30319,2017-02-10T20:47:52.000Z,2017-02-10T20:47:52.000Z,30319,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1030 7539,v1.0,,"think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS £2bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)",/post/29962,2017-02-10T20:47:02.000Z,2017-02-10T20:47:02.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,877 8321,v1.0,,"visual acuity...) Again - the major issue is the fact that we don't have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere...",/post/29962,2017-02-10T20:46:44.000Z,2017-02-10T20:46:44.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1082 8064,v1.0,,"(Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their ""day environment,"" and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS £2bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)",/post/29962,2017-02-10T20:46:24.000Z,2017-02-10T20:46:24.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1022 11366,v1.0,,"Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in.",/post/29962,2017-02-10T20:46:00.000Z,2017-02-10T20:46:00.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1820 6281,v1.0,,"Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in.",/post/29962,2017-02-10T20:45:48.000Z,2017-02-10T20:45:48.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,448 5409,v1.0,,"Again, I do think we need to start thinking about things in terms of the housing we are building. We can't just keep building homes for young families or ""trendy"" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of ""affordable flats"" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in.",/post/29962,2017-02-10T20:45:39.000Z,2017-02-10T20:45:39.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,302 6051,v1.0,,"@WinniePoncelet -: There are starting to be some cohousing projects in the UK, but these seem to be focused around shared living for those who do not yet need care (aimed at the over 50s, rather than the more senior). It seems people in such projects envisage sharing a carer as they get to the point of needing help. I'm not sure of the viability of staying in such a place when serious dementia  or physical ailments start to occur; equally regular medication may require a qualified nurse and preventative care may require qualified staff on hand 24/7. Again, I do think we need to start thinking about things in terms of the housing we are building. We can't just keep building homes for young families or ""trendy"" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of ""affordable flats"" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in. I'd listen to my previous post above on the actual issues of budgets, who pays for what when interacting with the powers-that-be, etc. What I can say from these initial cohousing projects is that they're a start, but don't yet seem to consider serious (legally covered) nursing care. (Are you aware of companies like McCarthy and Stone who build retirement homes, by the way? Perhaps schemes like that could be a way to progress the idea of cohousing and start people living together, with care facilities and good environments provided on top of their existing model.) (Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their ""day environment,"" and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS £2bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...) Again - the major issue is the fact that we don't have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere... I better stop at this point, or I'll get political again",/post/29962,2017-02-10T20:45:25.000Z,2017-02-10T20:45:25.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,416 6168,v1.0,,"@WinniePoncelet -: There are starting to be some cohousing projects in the UK, but these seem to be focused around shared living for those who do not yet need care (aimed at the over 50s, rather than the more senior). It seems people in such projects envisage sharing a carer as they get to the point of needing help. I'm not sure of the viability of staying in such a place when serious dementia  or physical ailments start to occur; equally regular medication may require a qualified nurse and preventative care may require qualified staff on hand 24/7. Again, I do think we need to start thinking about things in terms of the housing we are building. We can't just keep building homes for young families or ""trendy"" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of ""affordable flats"" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in. I'd listen to my previous post above on the actual issues of budgets, who pays for what when interacting with the powers-that-be, etc. What I can say from these initial cohousing projects is that they're a start, but don't yet seem to consider serious (legally covered) nursing care. (Are you aware of companies like McCarthy and Stone who build retirement homes, by the way? Perhaps schemes like that could be a way to progress the idea of cohousing and start people living together, with care facilities and good environments provided on top of their existing model.) (Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their ""day environment,"" and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS £2bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...) Again - the major issue is the fact that we don't have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere... I better stop at this point, or I'll get political again",/post/29962,2017-02-10T20:45:15.000Z,2017-02-10T20:45:15.000Z,29962,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,437 6088,v1.0,,"The cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, £8000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients.",/post/29077,2017-02-10T20:44:50.000Z,2017-02-10T20:44:50.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,427 10117,v1.0,,"The cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, £8000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients.",/post/29077,2017-02-10T20:44:39.000Z,2017-02-10T20:44:39.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1451 9984,v1.0,,"s this reflective of our focus on youth and the ""invisibility"" of the elderly, our fear of aging and death nowadays, marketing, the cult of the self and independence, or somesuch?",/post/29077,2017-02-10T20:44:21.000Z,2017-02-10T20:44:21.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1445 6271,v1.0,,"ess onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the ""invisibility"" of the elderly, our fear of aging and death nowadays, marketing, the cult of the self and independence, or somesuch?",/post/29077,2017-02-10T20:43:59.000Z,2017-02-10T20:43:59.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,447 6280,v1.0,,"placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the ""invisibility"" of the elderly, our fear of aging and death nowadays, marketing, the cult of the self and independence, or somesuch?",/post/29077,2017-02-10T20:43:49.000Z,2017-02-10T20:43:49.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,448 8225,v1.0,,"Another issue mentioned is the fact that people are often going in to care homes later in life, and when they need more care. (It's mentioned that residents used to arrive driving themselves to a residential care home!) It does seem the last resort now, with people hanging on as long as possible in their own homes, even if that means being on their own and struggling with shopping, cooking, etc.; less onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the ""invisibility"" of the elderly, our fear of aging and death nowadays, marketing, the cult of the self and independence, or somesuch?",/post/29077,2017-02-10T20:43:36.000Z,2017-02-10T20:43:36.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1064 5060,v1.0,,"For those in the UK, this programme was excellent! (A VPN may help those elsewhere...) http://www.bbc.co.uk/programmes/b08c2mlk Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc. The issue of addressing bed-blocking, specifically elderly patients in expensive hospital beds not being able to be released due to cuts in necessary social care provision (e.g. home visits to check on the former patient, giving medication, or even just checking the patient has all they need in terms of feeding and other basic care essentials) is mentioned, along with the practical difficulty of addressing it using the common-sense idea of utilising much cheaper spare capacity in care homes. Another issue mentioned is the fact that people are often going in to care homes later in life, and when they need more care. (It's mentioned that residents used to arrive driving themselves to a residential care home!) It does seem the last resort now, with people hanging on as long as possible in their own homes, even if that means being on their own and struggling with shopping, cooking, etc.; less onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the ""invisibility"" of the elderly, our fear of aging and death nowadays, marketing, the cult of the self and independence, or somesuch? Programme description -: ""Care Homes - The care home business is heading for a crisis according to Evan Davis's guests in this edition of The Bottom Line. The cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, £8000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients. John Ransford of the HC-One group provides care for mainly publicly funded residents. He tells Evan that 24 hour care for the elderly has to be provided for less than the cost of a night in a Travelodge. Evan's guests believe that the care sector's business model is unsustainable. Find out what they think will happen next. Dr. Jane Townson. Chief Executive Officer, Somerset Care Group John Ransford, Non-Executive Director, HC-One William Laing, Founder and a Director of Laing Buisson, Healthcare Intelligence Company""",/post/29077,2017-02-10T20:43:24.000Z,2017-02-10T20:43:24.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,144 4831,v1.0,,"The issue of addressing bed-blocking, specifically elderly patients in expensive hospital beds not being able to be released due to cuts in necessary social care provision (e.g. home visits to check on the former patient, giving medication, or even just checking the patient has all they need in terms of feeding and other basic care essentials) is mentioned, along with the practical difficulty of addressing it using the common-sense idea of utilising much cheaper spare capacity in care homes.",/post/29077,2017-02-10T20:42:48.000Z,2017-02-10T20:42:48.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,92 4990,v1.0,,"Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.",/post/29077,2017-02-10T20:42:38.000Z,2017-02-10T20:42:38.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,129 11506,v1.0,,"Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.",/post/29077,2017-02-10T20:42:29.000Z,2017-02-10T20:42:29.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1861 11492,v1.0,,"Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.",/post/29077,2017-02-10T20:42:22.000Z,2017-02-10T20:42:22.000Z,29077,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1860 11523,v1.0,,"It is often the ambition of projects to serve as an example for others to be inspired. Do we need to move up a level; is the example a government needs, one of another government trying a new way of governing, rather than an example of people doing something differently (eg. elderly care). The latter would be 'just a policy decision', the former would be 'the way in which policy decisions are made' and perhaps more relatable to a government?",/post/28735,2017-02-10T20:41:00.000Z,2017-02-10T20:41:00.000Z,28735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1863 9851,v1.0,,"Thanks for the headsup @Alberto . Insightful words from @zazie . I have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?",/post/28735,2017-02-10T20:40:52.000Z,2017-02-10T20:40:52.000Z,28735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1429 6167,v1.0,,"I have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?",/post/28735,2017-02-10T20:40:39.000Z,2017-02-10T20:40:39.000Z,28735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,437 8099,v1.0,,"Thanks for the headsup @Alberto . Insightful words from @zazie . I have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?",/post/28735,2017-02-10T20:40:32.000Z,2017-02-10T20:40:32.000Z,28735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1024 9983,v1.0,,"I have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?",/post/28735,2017-02-10T20:40:23.000Z,2017-02-10T20:40:23.000Z,28735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1445 5059,v1.0,,"To return to the main points - I do think small care institutions can bring advantages, good personal care and rewarding relationships, but we do need to look at funding in this country. We also need to look at how we consider and treat the elderly in this country. These are big issues, but it is a matter of priority. I don't wish to turn this in to a political comment, but the current thinking seems to be aimed at small government, austerity and cutting services and council funding. Sooner or later we will have to accept more taxes if we want good social services. I do like the ideas initially expressed at the top of this thread, but it would seem to get these accepted and off-the-ground one would have to push for acceptance from the council, government or regulatory body concerned. I am sure there would be interest in alternative care provision, given the struggles in the sector at the moment, and I'm sure families of those needing care would be interested in such alternatives too.",/post/27817,2017-02-10T20:40:09.000Z,2017-02-10T20:40:09.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,144 5408,v1.0,,"Sizes of residential housing is also an issue. Many people now buy new-build houses with small rooms and little extra space compared to older homes, hence there isn't always the capacity to bring in an elderly relative. Again this comes back to the issue of housebuilding, supply and demand, selling off of social housing, developers maximising profits by building small homes on greenfield sites whilst ignoring the many brownfield sites or old, disused homes that could be brought up to standard... Nothing in this world is disconnected!",/post/27817,2017-02-10T20:39:55.000Z,2017-02-10T20:39:55.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,302 6279,v1.0,,"I do feel interaction with local community institutions would also help - retaining an existing GP, interacting with local schools and even nurseries, community gardens, parks and the like - though obviously this would depend on the mental and physical fitness of the person concerned. Fundamentally we still see care homes as a last resort, rather than a good place to be, and a large part of that is due to the lack of community interaction. I see some sheltered or assisted housing, where there are good communal facilities and assistance available if needed, but the person is otherwise living in their own flat or rooms... Such premises could be combined with a more typical care home, so there is a mix of people within the institution, though this could present issues handling medical needs.",/post/27817,2017-02-10T20:39:39.000Z,2017-02-10T20:39:39.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,448 5820,v1.0,,"I do feel interaction with local community institutions would also help - retaining an existing GP, interacting with local schools and even nurseries, community gardens, parks and the like - though obviously this would depend on the mental and physical fitness of the person concerned. Fundamentally we still see care homes as a last resort, rather than a good place to be, and a large part of that is due to the lack of community interaction. I see some sheltered or assisted housing, where there are good communal facilities and assistance available if needed, but the person is otherwise living in their own flat or rooms... Such premises could be combined with a more typical care home, so there is a mix of people within the institution, though this could present issues handling medical needs.",/post/27817,2017-02-10T20:39:25.000Z,2017-02-10T20:39:25.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,377 6270,v1.0,,"we need societal change in this area. We seem to be more keen on housing our elderly relatives in care homes in the UK than say, South East Asia or Southern Europe. More interaction should be encouraged. (I've seen some families who barely see their parents once they've been moved in to a care home!)",/post/27817,2017-02-10T20:39:14.000Z,2017-02-10T20:39:14.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,447 5819,v1.0,,"Perhaps a graduated move towards care premises would be good, whereby a suitable one could be found in the local community and the potential resident spends some time there to build connections and tie them to existing links in the community outside, rather than that person going through an instant switch involving the sale of their own house and them being suddenly moved in to a care premises. Ideally, children and other family would be near enough to visit and spend time there too, but again we need societal change in this area. We seem to be more keen on housing our elderly relatives in care homes in the UK than say, South East Asia or Southern Europe. More interaction should be encouraged. (I've seen some families who barely see their parents once they've been moved in to a care home!)",/post/27817,2017-02-10T20:39:04.000Z,2017-02-10T20:39:04.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,377 8098,v1.0,,"(Equally mixed communities and inter-generational interaction would help, but this is increasingly rare. Housing seems to be led by developers keen to focus on young families who have income to buy new-builds on new estates, and marketing focuses on the younger age groups that go our and spend their disposable income, hence society focuses around such people. What would help is a societal background that valued the more elderly or mature, for their experience, wisdom and human stories.)",/post/27817,2017-02-10T20:38:54.000Z,2017-02-10T20:38:54.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1024 11365,v1.0,,"(Equally mixed communities and inter-generational interaction would help, but this is increasingly rare. Housing seems to be led by developers keen to focus on young families who have income to buy new-builds on new estates, and marketing focuses on the younger age groups that go our and spend their disposable income, hence society focuses around such people. What would help is a societal background that valued the more elderly or mature, for their experience, wisdom and human stories.)",/post/27817,2017-02-10T20:38:47.000Z,2017-02-10T20:38:47.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1820 6969,v1.0,,"What I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I've mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and inspection by checklist...",/post/27817,2017-02-10T20:38:26.000Z,2017-02-10T20:38:26.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,727 7639,v1.0,,"What I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I've mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and inspection by checklist...",/post/27817,2017-02-10T20:38:20.000Z,2017-02-10T20:38:20.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,906 9835,v1.0,,"What I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I've mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and inspection by checklist...",/post/27817,2017-02-10T20:38:07.000Z,2017-02-10T20:38:07.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1425 8222,v1.0,,"Part of the issue is funding. Larger premises or chains do lead to economies of scale and can help with staffing (whereas a single, small institution may need to resort to agency staff on occasion - which can be very expensive). The other side of this is that large operators can seem to get away with things that a small or single premises operator would not, simply as to rebuke them or suspend their activities would result in chaos for service users, never mind the relationships that develop with a large care provider and a local council or clinical commissioning group. (I've seen examples of large corporates who provide home care services being inspected and noises being made by staff who complain they are not alloted time to travel between appointments, etc., yet nothing seems to be done, despite the obvious failings.",/post/27817,2017-02-10T20:37:52.000Z,2017-02-10T20:37:52.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1062 9543,v1.0,,"I suspect some in Government aren't in a position or of a mind to focus on the service users at the moment, but rather see some dubious measures as essential cost-cutting / profit maximisation on the part of the corporate body. Another point to bear in mind is the connections between certain politicians, financiers, and industry - as with many sectors!)",/post/27817,2017-02-10T20:37:38.000Z,2017-02-10T20:37:38.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1337 7538,v1.0,,"Part of the issue is funding. Larger premises or chains do lead to economies of scale and can help with staffing (whereas a single, small institution may need to resort to agency staff on occasion - which can be very expensive). The other side of this is that large operators can seem to get away with things that a small or single premises operator would not, simply as to rebuke them or suspend their activities would result in chaos for service users, never mind the relationships that develop with a large care provider and a local council or clinical commissioning group. (I've seen examples of large corporates who provide home care services being inspected and noises being made by staff who complain they are not alloted time to travel between appointments, etc., yet nothing seems to be done, despite the obvious failings. I suspect some in Government aren't in a position or of a mind to focus on the service users at the moment, but rather see some dubious measures as essential cost-cutting / profit maximisation on the part of the corporate body. Another point to bear in mind is the connections between certain politicians, financiers, and industry - as with many sectors!)",/post/27817,2017-02-10T20:36:43.000Z,2017-02-10T20:36:43.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,877 4989,v1.0,,"There is good reason for the regulatory framework, but the overhead for both parties (regulatory body and care institution) has become increasingly high and ever-changing, as with many top-down bureaucratic systems. (In the UK the body has gone through some changes after criticism regarding its efficacy , but it was formed from good intentions to stop care providers simply taking the money and ""housing"" the elderly or needy. There have been issues with maltreatment, theft, poor care, etc., just as there has in other social care areas, so some standards need to be set and monitoring carried out by a third party.",/post/27817,2017-02-10T20:36:14.000Z,2017-02-10T20:36:14.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,129 9834,v1.0,,"There is good reason for the regulatory framework, but the overhead for both parties (regulatory body and care institution) has become increasingly high and ever-changing, as with many top-down bureaucratic systems. (In the UK the body has gone through some changes after criticism regarding its efficacy , but it was formed from good intentions to stop care providers simply taking the money and ""housing"" the elderly or needy. There have been issues with maltreatment, theft, poor care, etc., just as there has in other social care areas, so some standards need to be set and monitoring carried out by a third party.",/post/27817,2017-02-10T20:36:06.000Z,2017-02-10T20:36:06.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1425 6087,v1.0,,"The UK Government (and others) are looking at the issue as a major priority, given our aging population as the baby boom generation feed through and medical advances mean longer lives... Meeting the cost is a big debate here, especially in a time of ""austerity"" and widescale removal of central government funding.",/post/27817,2017-02-10T20:35:55.000Z,2017-02-10T20:35:55.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,427 4604,v1.0,,"The UK Government (and others) are looking at the issue as a major priority, given our aging population as the baby boom generation feed through and medical advances mean longer lives... Meeting the cost is a big debate here, especially in a time of ""austerity"" and widescale removal of central government funding.",/post/27817,2017-02-10T20:35:41.000Z,2017-02-10T20:35:41.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,28 10600,v1.0,,"Hopefully, we will see more innovative ways of care develop, especially with the idea of co-living / caring, that can benefit both parties, not just be an act of charity or goodwill / volunteering...",/post/27817,2017-02-10T20:35:26.000Z,2017-02-10T20:35:26.000Z,27817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1591 5978,v1.0,,"If you want to stay informed, let me know your email address and I can add you onto our list. It sounds like you could add a lot of useful knowledge and experience so I may well want to get in touch at some stage and tap into that. Would that be OK?",/post/27642,2017-02-10T20:34:57.000Z,2017-02-10T20:34:57.000Z,27642,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,396 7813,v1.0,,"At the moment, we are proceeding slowly and cautiously. I think the principle of ""First do no harm"" applies - we are not about to go out and buy a load of care homes and think we can instantly transform them. We are working with people in the field and looking for existing homes with open-minded owners  we can work with.",/post/27642,2017-02-10T20:34:46.000Z,2017-02-10T20:34:46.000Z,27642,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,951 5407,v1.0,,"Thanks Zazie, I appreciate your note of caution. I have heard this from others I have spoken to, and am not about to leap into something blindly. On the other hand, it is clear that a radical shake up will be needed over the coming years so thinking creatively will be desperatley needed. This may include, among other thnigs, challenging the way the CQC thinks and operates.",/post/27642,2017-02-10T20:34:37.000Z,2017-02-10T20:34:37.000Z,27642,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,302 8097,v1.0,,"Have seen good examples of ""care villages"" elsewhere, especially designed to deal with dementia and Alzheimer's cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused society.",/post/26047,2017-02-10T20:34:10.000Z,2017-02-10T20:34:10.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1024 8063,v1.0,,"Have seen good examples of ""care villages"" elsewhere, especially designed to deal with dementia and Alzheimer's cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused society.",/post/26047,2017-02-10T20:33:55.000Z,2017-02-10T20:33:55.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1022 4795,v1.0,,"Have seen good examples of ""care villages"" elsewhere, especially designed to deal with dementia and Alzheimer's cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused society.",/post/26047,2017-02-10T20:33:47.000Z,2017-02-10T20:33:47.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,80 5104,v1.0,,"Have seen good examples of ""care villages"" elsewhere, especially designed to deal with dementia and Alzheimer's cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused society.",/post/26047,2017-02-10T20:33:33.000Z,2017-02-10T20:33:33.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,148 5058,v1.0,,"Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing ""funky"" things with premises, unless one works really hard), etc. The idea of making endless profits by shoving people in a care home and doing nothing for them is a myth, as is the idea of private equity jumping in to the sector to clean up... (Look at the spate of the disposals and failures in the sector.) Trust me, as someone with knowledge and experience in the sector, there are a LOT easier ways to make money, especially by pure property plays. WHY would a new corporate go in to such a demanding area, unless they had experience or size advantages / consolidation to bring to it? Not sure how you'd bring in clients; if council funded, you'd definitely need to comply with regulations, equally if private you'd need to comply and attract customers. (Remember the market is competitive and low return, and council-funded clients will barely cover your minimum staffing and food costs.) Perhaps voluntarily attending such an entity would work? Yes - to the idea of intergenerational interaction and care, yes to more community involvement and interaction for residents; but also yes to actually researching the practicalities involved... Have seen good examples of ""care villages"" elsewhere, especially designed to deal with dementia and Alzheimer's cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused society. (I'd suggest looking up CQC documentation - available online, together with detailed requirements for various levels of care e.g. residential without nursing, residential with nursing, dementia care, etc.)",/post/26047,2017-02-10T20:33:24.000Z,2017-02-10T20:33:24.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,144 8096,v1.0,,"Yes - to the idea of intergenerational interaction and care, yes to more community involvement and interaction for residents; but also yes to actually researching the practicalities involved...",/post/26047,2017-02-10T20:33:03.000Z,2017-02-10T20:33:03.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1024 8816,v1.0,,"Not sure how you'd bring in clients; if council funded, you'd definitely need to comply with regulations, equally if private you'd need to comply and attract customers. (Remember the market is competitive and low return, and council-funded clients will barely cover your minimum staffing and food costs.) Perhaps voluntarily attending such an entity would work?",/post/26047,2017-02-10T20:32:56.000Z,2017-02-10T20:32:56.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1163 11505,v1.0,,"Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing ""funky"" things with premises, unless one works really hard), etc.",/post/26047,2017-02-10T20:32:37.000Z,2017-02-10T20:32:37.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1861 9833,v1.0,,"Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing ""funky"" things with premises, unless one works really hard), etc.",/post/26047,2017-02-10T20:32:28.000Z,2017-02-10T20:32:28.000Z,26047,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1425 8053,v1.0,,"Hi Noemi, in response  to your post, I would say we want to be inter- dependent,  not independent!    I guess I wrote the original post in rather a hurry, in response to the Open&Change  call, so  it probably didn't get it quite right.   I see our project as forging some third way between state or charity  ownership on the one hand, and private for-profit ownership on the other.  it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.  I envisage a movement of care homes,  highly networked,  helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are  starting slowly",/post/24250,2017-02-10T20:32:03.000Z,2017-02-10T20:32:03.000Z,24250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1019 10922,v1.0,,"Hi Noemi, in response  to your post, I would say we want to be inter- dependent,  not independent!    I guess I wrote the original post in rather a hurry, in response to the Open&Change  call, so  it probably didn't get it quite right.   I see our project as forging some third way between state or charity  ownership on the one hand, and private for-profit ownership on the other.  it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.  I envisage a movement of care homes,  highly networked,  helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are  starting slowly",/post/24250,2017-02-10T20:31:43.000Z,2017-02-10T20:31:43.000Z,24250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1683 5098,v1.0,,"Hi Noemi, in response  to your post, I would say we want to be inter- dependent,  not independent!    I guess I wrote the original post in rather a hurry, in response to the Open&Change  call, so  it probably didn't get it quite right.   I see our project as forging some third way between state or charity  ownership on the one hand, and private for-profit ownership on the other.  it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.  I envisage a movement of care homes,  highly networked,  helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are  starting slowly",/post/24250,2017-02-10T20:31:16.000Z,2017-02-10T20:31:16.000Z,24250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,147 5818,v1.0,,"Hi Noemi, in response  to your post, I would say we want to be inter- dependent,  not independent!    I guess I wrote the original post in rather a hurry, in response to the Open&Change  call, so  it probably didn't get it quite right.   I see our project as forging some third way between state or charity  ownership on the one hand, and private for-profit ownership on the other.  it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.  I envisage a movement of care homes,  highly networked,  helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are  starting slowly",/post/24250,2017-02-10T20:31:05.000Z,2017-02-10T20:31:05.000Z,24250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,377 9318,v1.0,,"Hi Noemi, in response  to your post, I would say we want to be inter- dependent,  not independent!    I guess I wrote the original post in rather a hurry, in response to the Open&Change  call, so  it probably didn't get it quite right.   I see our project as forging some third way between state or charity  ownership on the one hand, and private for-profit ownership on the other.  it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.  I envisage a movement of care homes,  highly networked,  helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are  starting slowly",/post/24250,2017-02-10T20:30:49.000Z,2017-02-10T20:30:49.000Z,24250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1284 5057,v1.0,,"Hi Noemi, in response  to your post, I would say we want to be inter- dependent,  not independent!    I guess I wrote the original post in rather a hurry, in response to the Open&Change  call, so  it probably didn't get it quite right.   I see our project as forging some third way between state or charity  ownership on the one hand, and private for-profit ownership on the other.  it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.  I envisage a movement of care homes,  highly networked,  helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are  starting slowly",/post/24250,2017-02-10T20:30:31.000Z,2017-02-10T20:30:31.000Z,24250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,144 6477,v1.0,,"Where: Italy When: 2013   Who: Marco Sangiorgio, Vincenzo Iadisernia, Antonio Ianiero (Unterwelt) Tweet: UGO is a home automation system which allows users to control home devices through speech recognition technology. Few examples: turn on and off the light, lift or lower a rolling shutter, signal gas leak, exc.   Similar ideas: (http://hackaday.com/2013/08/11/voice-controlled-home-automation-uses-raspberry-pi-and-lightwaverf/)VoicePod (http://www.voicepod.com/videos/), AmazonEcho (http://www.cnet.com/products/amazon-echo-review/)   Links: http://www.unterwelt.it/ugo https://www.youtube.com/watch?v=j02W99Z8GNI",/post/763,2017-01-27T23:51:13.000Z,2017-01-27T23:51:13.000Z,763,3323,AnnotatorStore::TextAnnotation,,,,,,,,,730,485 11386,v1.0,,"Where: Italy When: 2013   Who: Marco Sangiorgio, Vincenzo Iadisernia, Antonio Ianiero (Unterwelt) Tweet: UGO is a home automation system which allows users to control home devices through speech recognition technology. Few examples: turn on and off the light, lift or lower a rolling shutter, signal gas leak, exc.   Similar ideas: (http://hackaday.com/2013/08/11/voice-controlled-home-automation-uses-raspberry-pi-and-lightwaverf/)VoicePod (http://www.voicepod.com/videos/), AmazonEcho (http://www.cnet.com/products/amazon-echo-review/)   Links: http://www.unterwelt.it/ugo https://www.youtube.com/watch?v=j02W99Z8GNI",/post/763,2017-01-27T23:51:07.000Z,2017-01-27T23:51:07.000Z,763,3323,AnnotatorStore::TextAnnotation,,,,,,,,,730,1830 7407,v1.0,,"Where: Barcelona, Spain When: 2014 Who: Mauricio Cordova Few lines description: Is it a device / software / service FairCap is a device produced with open source technologies.   Type of community involved (elders, deaf/blind/autism… disability, etc) The project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don’t have access to drinkable water and therefore are characterized by premature deaths due to this reason.   How big is the community involved What is the solution proposed How is the project currently affecting users’ life? FairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users’s life.   Is the project developed or still in the development phase? The project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$. Are there similar projects or attempts to solve the same problem? There are several: SolarBag ® (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)   Why: How is it open? What kind of license did they use to publish it? (links to documentation/repo are welcome) FairCup is completely open source, available to download and released under Creative Commons licence. Can you clone/fork it? Yes Is it freely available? The source files are downloadable for free Is it affordable? (please compare) The estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters. Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?) The founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.   How does it “care”? Does it solve a medical issue? Does it solve a social issue? Does it solve an everyday issue for a specific (disadvantaged) community? Yes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.   Link: http://faircap.org/ http://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/",/post/33728,2017-01-27T19:29:46.000Z,2017-01-27T19:29:46.000Z,33728,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6577,836 9141,v1.0,,"Where: Barcelona, Spain When: 2014 Who: Mauricio Cordova Few lines description: Is it a device / software / service FairCap is a device produced with open source technologies.   Type of community involved (elders, deaf/blind/autism… disability, etc) The project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don’t have access to drinkable water and therefore are characterized by premature deaths due to this reason.   How big is the community involved What is the solution proposed How is the project currently affecting users’ life? FairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users’s life.   Is the project developed or still in the development phase? The project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$. Are there similar projects or attempts to solve the same problem? There are several: SolarBag ® (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)   Why: How is it open? What kind of license did they use to publish it? (links to documentation/repo are welcome) FairCup is completely open source, available to download and released under Creative Commons licence. Can you clone/fork it? Yes Is it freely available? The source files are downloadable for free Is it affordable? (please compare) The estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters. Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?) The founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.   How does it “care”? Does it solve a medical issue? Does it solve a social issue? Does it solve an everyday issue for a specific (disadvantaged) community? Yes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.   Link: http://faircap.org/ http://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/",/post/33728,2017-01-27T19:29:23.000Z,2017-01-27T19:29:23.000Z,33728,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6577,1257 6476,v1.0,,"Where: Barcelona, Spain When: 2014 Who: Mauricio Cordova Few lines description: Is it a device / software / service FairCap is a device produced with open source technologies.   Type of community involved (elders, deaf/blind/autism… disability, etc) The project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don’t have access to drinkable water and therefore are characterized by premature deaths due to this reason.   How big is the community involved What is the solution proposed How is the project currently affecting users’ life? FairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users’s life.   Is the project developed or still in the development phase? The project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$. Are there similar projects or attempts to solve the same problem? There are several: SolarBag ® (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)   Why: How is it open? What kind of license did they use to publish it? (links to documentation/repo are welcome) FairCup is completely open source, available to download and released under Creative Commons licence. Can you clone/fork it? Yes Is it freely available? The source files are downloadable for free Is it affordable? (please compare) The estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters. Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?) The founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.   How does it “care”? Does it solve a medical issue? Does it solve a social issue? Does it solve an everyday issue for a specific (disadvantaged) community? Yes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.   Link: http://faircap.org/ http://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/",/post/33728,2017-01-27T19:29:12.000Z,2017-01-27T19:29:12.000Z,33728,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6577,485 11436,v1.0,,"Where: Barcelona, Spain When: 2014 Who: Mauricio Cordova Few lines description: Is it a device / software / service FairCap is a device produced with open source technologies.   Type of community involved (elders, deaf/blind/autism… disability, etc) The project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don’t have access to drinkable water and therefore are characterized by premature deaths due to this reason.   How big is the community involved What is the solution proposed How is the project currently affecting users’ life? FairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users’s life.   Is the project developed or still in the development phase? The project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$. Are there similar projects or attempts to solve the same problem? There are several: SolarBag ® (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)   Why: How is it open? What kind of license did they use to publish it? (links to documentation/repo are welcome) FairCup is completely open source, available to download and released under Creative Commons licence. Can you clone/fork it? Yes Is it freely available? The source files are downloadable for free Is it affordable? (please compare) The estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters. Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?) The founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.   How does it “care”? Does it solve a medical issue? Does it solve a social issue? Does it solve an everyday issue for a specific (disadvantaged) community? Yes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.   Link: http://faircap.org/ http://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/",/post/33728,2017-01-27T19:28:57.000Z,2017-01-27T19:28:57.000Z,33728,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6577,1843 8919,v1.0,,"On Tuesday 19th, City of Milan and WeMake will present OpenCare to ""San Gottardo Social Street"". The event will take place at ""Welfare di tutti"" Space in Corso San Gottardo, 41, Milan, from 7 p.m. The purpose of the Social Street is to promote socialization between neighbors resident in the same street in order to build relationships, to interchange needs, to share expertise and knowledges, to implement common interest projects, with common benefits from a closer social interaction. To reach this zero cost objective, without opening new sites or platforms, Social Street makes use of the creation of Facebook closed groups. So what better place to promote Open Care than another ""open"" community!?",/post/5564,2017-01-27T19:28:09.000Z,2017-01-27T19:28:09.000Z,5564,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5531,1196 9324,v1.0,,"First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months. @Rune I think we have some miscommunication here. I'm not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has 'similar' issues to the issues of open source. On your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by  P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don't believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper ""Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses"" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis. There are many more things we might discuss about regulation, such as the FDA's limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM By making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I'm not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I'm happy to provide more reading and evidence, when time permits.",/post/26028,2017-01-27T19:15:40.000Z,2017-01-27T19:15:40.000Z,26028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1288 8480,v1.0,,"First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months. @Rune I think we have some miscommunication here. I'm not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has 'similar' issues to the issues of open source. On your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by  P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don't believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper ""Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses"" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis. There are many more things we might discuss about regulation, such as the FDA's limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM By making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I'm not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I'm happy to provide more reading and evidence, when time permits.",/post/26028,2017-01-27T19:15:22.000Z,2017-01-27T19:15:22.000Z,26028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1125 9832,v1.0,,"First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months. @Rune I think we have some miscommunication here. I'm not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has 'similar' issues to the issues of open source. On your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by  P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don't believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper ""Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses"" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis. There are many more things we might discuss about regulation, such as the FDA's limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM By making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I'm not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I'm happy to provide more reading and evidence, when time permits.",/post/26028,2017-01-27T19:15:08.000Z,2017-01-27T19:15:08.000Z,26028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1425 10201,v1.0,,"First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months. @Rune I think we have some miscommunication here. I'm not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has 'similar' issues to the issues of open source. On your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by  P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don't believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper ""Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses"" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis. There are many more things we might discuss about regulation, such as the FDA's limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM By making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I'm not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I'm happy to provide more reading and evidence, when time permits.",/post/26028,2017-01-27T19:14:59.000Z,2017-01-27T19:14:59.000Z,26028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1483 9140,v1.0,,"First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months. @Rune I think we have some miscommunication here. I'm not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has 'similar' issues to the issues of open source. On your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by  P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don't believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper ""Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses"" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis. There are many more things we might discuss about regulation, such as the FDA's limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM By making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I'm not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I'm happy to provide more reading and evidence, when time permits.",/post/26028,2017-01-27T19:14:51.000Z,2017-01-27T19:14:51.000Z,26028,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1257 9831,v1.0,,"I can't really answer your question ""Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals?"" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms. As for "" Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ?"": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer's names? Not sure, but couldn't you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product? Of course I agree that such probing questions need to be asked, and you can't expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome. However, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term. Lastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto's comment.",/post/21955,2017-01-27T19:14:31.000Z,2017-01-27T19:14:31.000Z,21955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1425 9139,v1.0,,"I can't really answer your question ""Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals?"" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms. As for "" Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ?"": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer's names? Not sure, but couldn't you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product? Of course I agree that such probing questions need to be asked, and you can't expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome. However, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term. Lastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto's comment.",/post/21955,2017-01-27T19:14:23.000Z,2017-01-27T19:14:23.000Z,21955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1257 9662,v1.0,,"I can't really answer your question ""Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals?"" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms. As for "" Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ?"": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer's names? Not sure, but couldn't you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product? Of course I agree that such probing questions need to be asked, and you can't expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome. However, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term. Lastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto's commen",/post/21955,2017-01-27T19:14:03.000Z,2017-01-27T19:14:03.000Z,21955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1376 10200,v1.0,,"I can't really answer your question ""Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals?"" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms. As for "" Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ?"": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer's names? Not sure, but couldn't you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product? Of course I agree that such probing questions need to be asked, and you can't expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome. However, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term. Lastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto's comment.",/post/21955,2017-01-27T19:13:51.000Z,2017-01-27T19:13:51.000Z,21955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1483 9661,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:13:37.000Z,2017-01-27T19:13:37.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1376 9138,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.",/post/21205,2017-01-27T19:13:26.000Z,2017-01-27T19:13:26.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1257 7714,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:13:09.000Z,2017-01-27T19:13:09.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,921 8479,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:12:58.000Z,2017-01-27T19:12:58.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1125 10785,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:12:45.000Z,2017-01-27T19:12:45.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1646 9830,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:12:38.000Z,2017-01-27T19:12:38.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1425 8290,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:12:21.000Z,2017-01-27T19:12:21.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1074 10199,v1.0,,"I’m not sure to what extent @Eireann Leverett ‘s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of ‘opensource’. It's accessible to 3’rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment  documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters have grown to feed lawyers and bureaucrats ) Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last edited by someone with an obfuscated name ? More interesting. Is there some documentation that opensource software is more reliable compared to proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don’t think you would accept being beta tester of your pacemaker. Non life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service. P.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.   Bottom line @Alberto It would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices. Please let it be based upon evidence and legal references",/post/21205,2017-01-27T19:12:16.000Z,2017-01-27T19:12:16.000Z,21205,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1483 9249,v1.0,,"Thanks Natalia and Eireann for reporting on this. I had read Marie's story a while ago on the internet and was impressed by the humility with which she had approached medical security. After all, she rightly stated that the benefits of having the pacemaker far outweigh the risk - which is why probably many patients are looking away or de-prioritizing this. I'm also reminded of @Rune's story where an upgraded medical care also needs an alliance between patients/consumers and researchers (he's arguing for more system availability for cheap, effective medical tech).",/post/16928,2017-01-27T19:12:00.000Z,2017-01-27T19:12:00.000Z,16928,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1274 6345,v1.0,,"Thanks Natalia and Eireann for reporting on this. I had read Marie's story a while ago on the internet and was impressed by the humility with which she had approached medical security. After all, she rightly stated that the benefits of having the pacemaker far outweigh the risk - which is why probably many patients are looking away or de-prioritizing this. I'm also reminded of @Rune's story where an upgraded medical care also needs an alliance between patients/consumers and researchers (he's arguing for more system availability for cheap, effective medical tech).",/post/16928,2017-01-27T19:11:52.000Z,2017-01-27T19:11:52.000Z,16928,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,459 9667,v1.0,,"I've met Éireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content. Then I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff. Éireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann’s years of assessing devices for security holes, they wouldn’t normally be “allowed” to investigate the security of such devices. This implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable. I suggest you watch this great video from 32C3, where Marie and Éireann tell about their journey. Obviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it. But that's not all - Éireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is “Safer. Sooner. Together.” He contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. Finally, Éireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.",/post/712,2017-01-27T19:11:06.000Z,2017-01-27T19:11:06.000Z,712,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1377 9248,v1.0,,"Éireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann’s years of assessing devices for security holes, they wouldn’t normally be “allowed” to investigate the security of such devices. This implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable. I suggest you watch this great video from 32C3, where Marie and Éireann tell about their journey. Obviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it. But that's not all - Éireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is “Safer. Sooner. Together.” He contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. Finally, Éireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.",/post/712,2017-01-27T19:10:50.000Z,2017-01-27T19:10:50.000Z,712,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1274 8478,v1.0,,"I've met Éireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content. Then I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff. Éireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann’s years of assessing devices for security holes, they wouldn’t normally be “allowed” to investigate the security of such devices. This implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable. I suggest you watch this great video from 32C3, where Marie and Éireann tell about their journey. Obviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it. But that's not all - Éireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is “Safer. Sooner. Together.” He contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. Finally, Éireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.",/post/712,2017-01-27T19:10:43.000Z,2017-01-27T19:10:43.000Z,712,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1125 7713,v1.0,,"I've met Éireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content. Then I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff. Éireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann’s years of assessing devices for security holes, they wouldn’t normally be “allowed” to investigate the security of such devices. This implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable. I suggest you watch this great video from 32C3, where Marie and Éireann tell about their journey. Obviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it. But that's not all - Éireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is “Safer. Sooner. Together.” He contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. Finally, Éireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.",/post/712,2017-01-27T19:10:34.000Z,2017-01-27T19:10:34.000Z,712,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,921 10198,v1.0,,"I've met Éireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content. Then I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff. Éireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann’s years of assessing devices for security holes, they wouldn’t normally be “allowed” to investigate the security of such devices. This implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable. I suggest you watch this great video from 32C3, where Marie and Éireann tell about their journey. Obviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it. But that's not all - Éireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is “Safer. Sooner. Together.” He contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. Finally, Éireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.",/post/712,2017-01-27T19:10:25.000Z,2017-01-27T19:10:25.000Z,712,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,1483 6344,v1.0,,"I've met Éireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content. Then I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff. Éireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann’s years of assessing devices for security holes, they wouldn’t normally be “allowed” to investigate the security of such devices. This implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable. I suggest you watch this great video from 32C3, where Marie and Éireann tell about their journey. Obviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it. But that's not all - Éireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is “Safer. Sooner. Together.” He contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices. Finally, Éireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.",/post/712,2017-01-27T19:10:18.000Z,2017-01-27T19:10:18.000Z,712,3323,AnnotatorStore::TextAnnotation,,,,,,,,,679,459 10045,v1.0,,"Eventually I developed some resilience towards these inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don’t have on having a shrink try to figure out what is the matter with me…and how to fix it.",/post/18288,2017-01-22T22:40:57.000Z,2017-01-22T22:40:57.000Z,18288,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1446 10184,v1.0,,"""Some may call it depression. Let’s say I am wary about medicalisation of the human condition, so to me it is just sadness. When I was younger these dips were more profound. Debilitating even. At some point a psychiatrist prompted me to take medication. I refused, opting instead to deal with what I thought might be the root causes….by changing my profession, lifestyle and social environment. Eventually I developed some resilience towards these inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don’t have on having a shrink try to figure out what is the matter with me…and how to fix it. Last week, the sadness returned. This time I am unable to find solace in the work. I am unsure as to why. It is not dramatic and there is no cause for alarm. However, I’ve noticed that the less time I spend on online, the better I feel. In part I think it is because communication for work purposes and to stay in touch with people about whom I care increasingly happen in the same channels. Which is not sustainable in the long run. So I am leaving Facebook, Twitter and linkedin for now. I will not cancel my accounts, but will not be checking them on a regular basis or keeping them updated. If you wish to stay in touch with me you have several choices: 1) To be kept up to date with information about Edgeryders, unMonastery and future projects and opportunities I am involved in building, subscribe to Nadia at Work. 2) If you are interested in reading me on more general topics like culture, tech, politics, art, religion, science, travels and life in general, subscribe to  News from Nadia. 3) If you want to hang out you can always call me on skype (my alias is: niasan) or come visit me in Brussels, where I now live. I do hope you will choose to stay in touch one way or another. To those of you who choose otherwise, thank you for the time we have spent together- I do wish you all the best and hope our paths cross again sooner rather than later.",/post/18288,2017-01-22T22:40:49.000Z,2017-01-22T22:40:49.000Z,18288,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1481 8571,v1.0,,"""Some may call it depression. Let’s say I am wary about medicalisation of the human condition, so to me it is just sadness. When I was younger these dips were more profound. Debilitating even. At some point a psychiatrist prompted me to take medication. I refused, opting instead to deal with what I thought might be the root causes….by changing my profession, lifestyle and social environment. Eventually I developed some resilience towards these inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don’t have on having a shrink try to figure out what is the matter with me…and how to fix it. Last week, the sadness returned. This time I am unable to find solace in the work. I am unsure as to why. It is not dramatic and there is no cause for alarm. However, I’ve noticed that the less time I spend on online, the better I feel. In part I think it is because communication for work purposes and to stay in touch with people about whom I care increasingly happen in the same channels. Which is not sustainable in the long run. So I am leaving Facebook, Twitter and linkedin for now. I will not cancel my accounts, but will not be checking them on a regular basis or keeping them updated. If you wish to stay in touch with me you have several choices: 1) To be kept up to date with information about Edgeryders, unMonastery and future projects and opportunities I am involved in building, subscribe to Nadia at Work. 2) If you are interested in reading me on more general topics like culture, tech, politics, art, religion, science, travels and life in general, subscribe to  News from Nadia. 3) If you want to hang out you can always call me on skype (my alias is: niasan) or come visit me in Brussels, where I now live. I do hope you will choose to stay in touch one way or another. To those of you who choose otherwise, thank you for the time we have spent together- I do wish you all the best and hope our paths cross again sooner rather than later. With love, Nadia""",/post/18288,2017-01-22T22:40:43.000Z,2017-01-22T22:40:43.000Z,18288,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1140 9982,v1.0,,"We are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time.",/post/678,2017-01-22T22:40:01.000Z,2017-01-22T22:40:01.000Z,678,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1445 10392,v1.0,,"I was lonely for most of my life, I don't have anything too complicated with my family and I had a few friends while growing up but I'd never let anyone in. I had never exposed myself or talked about my feelings. As time went by I got better and better at it. A very good listener my friends called me. Even today I still find myself shifting the subject of the conversation whenever it gets to me. I tried to act like I was Ok, or maybe I was just not aware. I had an eating disorder and a sleeping disorder and it got pretty bad at some points. Almost every night I'd stay in bed awake waiting for my family members to go to sleep, then I'd storm the fridge eating like 4 hungry people, go back to bed feel horrible and couldn't fall asleep. I lived like that for many years, sometimes it was better sometimes worst. I can't tell what drove into seeking help but around the age of 22 I told my mother I think I need help. She was very happy that it came from me rather than her as she was thinking the same. I started going to therapy. It took me nearly 4 months to gain the trust I needed to open my heart but with time my therapist and I became closer and through our conversations I slowly began to understand what my life was missing: love, family and friends. Yeah I've had my loving family, a few friends and a number of short romances but none of it real because I didn't allow it to be, I've never been me. 4 years later I'm studying industrial design and doing Erasmus in UdK Berlin. As part of our human centered design course ""Hacking Utopia"", my partner Pauline and I are focusing on the challenge how we might boost each other's mental and spiritual resilience. After posting here story to Edgeryders, our team member Nele was recommended in a comment to watch Brene Browns Ted talk, The Power of Vulnerability. We have found it so inspiring, it was exactly what we were talking about. At the moment we are trying not to have any idea of how our product will look like so that we can have a neutral research and hopefully a surprising result, but we are looking in the direction of a design intervention that will encourage people to be vulnerable and share their feelings with their loved ones. Both Pauline and I went through therapy and we both agree that what was missing in our lives was the ability to share our difficulties with our close ones. We discovered that both of us had to use objects in order to speak to our therapists. I had to put a cushion over my knees and Pauline was always keeping her hands busy by playing with hair bands or ripping pieces of paper, avoiding eye contact. We were wondering whether you might have made any similar interesting experiences/observations to share with. Do you feel comfortable sharing your feeling with others? Can you get people to open up to you? We are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time. Also, if you have any other Ideas, thoughts, articles, projects, products or whatever you think can inspire us further please let us know. Thank you so much for reading so far, Team JUS. P.s. - We really liked this short video and wish we could make a sofa that feels as good as the hug in the picture above.",/post/678,2017-01-22T22:39:51.000Z,2017-01-22T22:39:51.000Z,678,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1538 10391,v1.0,,"this is an interesting question. A couple of years ago I met someone whom I hadn't seen in a long time, a university pal. We had a long conversation about death because his Dad was unwell. Without thinking much of it I wrote a post about our encounter here. Check out the comments, you may find them of interest. When younger I found it quite difficult to even acknowledge feelings let alone talk about them. Especially not if it was a space where I knew I would be meeting the same people again and again. Something about not being able to shed skin and then move on made it feel like a trap. Then something snapped last year. I felt unable and unwilling to not be sad and let others know what was going on and what I needed to be ok + how they could interact with me. I unpublished it from my personal blog, but if it's helpful to you I can republish it here. Let me know.",/post/14743,2017-01-22T22:39:44.000Z,2017-01-22T22:39:44.000Z,14743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1538 10044,v1.0,,"I was lonely for most of my life, I don't have anything too complicated with my family and I had a few friends while growing up but I'd never let anyone in. I had never exposed myself or talked about my feelings. As time went by I got better and better at it. A very good listener my friends called me. Even today I still find myself shifting the subject of the conversation whenever it gets to me. I tried to act like I was Ok, or maybe I was just not aware. I had an eating disorder and a sleeping disorder and it got pretty bad at some points. Almost every night I'd stay in bed awake waiting for my family members to go to sleep, then I'd storm the fridge eating like 4 hungry people, go back to bed feel horrible and couldn't fall asleep. I lived like that for many years, sometimes it was better sometimes worst. I can't tell what drove into seeking help but around the age of 22 I told my mother I think I need help. She was very happy that it came from me rather than her as she was thinking the same. I started going to therapy. It took me nearly 4 months to gain the trust I needed to open my heart but with time my therapist and I became closer and through our conversations I slowly began to understand what my life was missing: love, family and friends. Yeah I've had my loving family, a few friends and a number of short romances but none of it real because I didn't allow it to be, I've never been me. 4 years later I'm studying industrial design and doing Erasmus in UdK Berlin. As part of our human centered design course ""Hacking Utopia"", my partner Pauline and I are focusing on the challenge how we might boost each other's mental and spiritual resilience. After posting here story to Edgeryders, our team member Nele was recommended in a comment to watch Brene Browns Ted talk, The Power of Vulnerability. We have found it so inspiring, it was exactly what we were talking about. At the moment we are trying not to have any idea of how our product will look like so that we can have a neutral research and hopefully a surprising result, but we are looking in the direction of a design intervention that will encourage people to be vulnerable and share their feelings with their loved ones. Both Pauline and I went through therapy and we both agree that what was missing in our lives was the ability to share our difficulties with our close ones. We discovered that both of us had to use objects in order to speak to our therapists. I had to put a cushion over my knees and Pauline was always keeping her hands busy by playing with hair bands or ripping pieces of paper, avoiding eye contact. We were wondering whether you might have made any similar interesting experiences/observations to share with. Do you feel comfortable sharing your feeling with others? Can you get people to open up to you? We are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time. Also, if you have any other Ideas, thoughts, articles, projects, products or whatever you think can inspire us further please let us know. Thank you so much for reading so far, Team JUS. P.s. - We really liked this short video and wish we could make a sofa that feels as good as the hug in the picture above.",/post/678,2017-01-22T22:39:22.000Z,2017-01-22T22:39:22.000Z,678,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1446 8570,v1.0,,"I was lonely for most of my life, I don't have anything too complicated with my family and I had a few friends while growing up but I'd never let anyone in. I had never exposed myself or talked about my feelings. As time went by I got better and better at it. A very good listener my friends called me. Even today I still find myself shifting the subject of the conversation whenever it gets to me. I tried to act like I was Ok, or maybe I was just not aware. I had an eating disorder and a sleeping disorder and it got pretty bad at some points. Almost every night I'd stay in bed awake waiting for my family members to go to sleep, then I'd storm the fridge eating like 4 hungry people, go back to bed feel horrible and couldn't fall asleep. I lived like that for many years, sometimes it was better sometimes worst. I can't tell what drove into seeking help but around the age of 22 I told my mother I think I need help. She was very happy that it came from me rather than her as she was thinking the same. I started going to therapy. It took me nearly 4 months to gain the trust I needed to open my heart but with time my therapist and I became closer and through our conversations I slowly began to understand what my life was missing: love, family and friends. Yeah I've had my loving family, a few friends and a number of short romances but none of it real because I didn't allow it to be, I've never been me. 4 years later I'm studying industrial design and doing Erasmus in UdK Berlin. As part of our human centered design course ""Hacking Utopia"", my partner Pauline and I are focusing on the challenge how we might boost each other's mental and spiritual resilience. After posting here story to Edgeryders, our team member Nele was recommended in a comment to watch Brene Browns Ted talk, The Power of Vulnerability. We have found it so inspiring, it was exactly what we were talking about. At the moment we are trying not to have any idea of how our product will look like so that we can have a neutral research and hopefully a surprising result, but we are looking in the direction of a design intervention that will encourage people to be vulnerable and share their feelings with their loved ones. Both Pauline and I went through therapy and we both agree that what was missing in our lives was the ability to share our difficulties with our close ones. We discovered that both of us had to use objects in order to speak to our therapists. I had to put a cushion over my knees and Pauline was always keeping her hands busy by playing with hair bands or ripping pieces of paper, avoiding eye contact. We were wondering whether you might have made any similar interesting experiences/observations to share with. Do you feel comfortable sharing your feeling with others? Can you get people to open up to you? We are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time. Also, if you have any other Ideas, thoughts, articles, projects, products or whatever you think can inspire us further please let us know. Thank you so much for reading so far, Team JUS. P.s. - We really liked this short video and wish we could make a sofa that feels as good as the hug in the picture above.",/post/678,2017-01-22T22:36:45.000Z,2017-01-22T22:36:45.000Z,678,3323,AnnotatorStore::TextAnnotation,,,,,,,,,645,1140 6110,v1.0,,"lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.  Problem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!  Good luck with the project and keep us up to",/post/14420,2017-01-22T22:35:30.000Z,2017-01-22T22:35:30.000Z,14420,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,430 6109,v1.0,,"Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).  It may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages. I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety, hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds (""we have to comply with all these expensive regulations, whereas these guys just go gray economy"").  In passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.  So, I guess a first step towards A Taste of Home is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?",/post/6539,2017-01-22T22:35:18.000Z,2017-01-22T22:35:18.000Z,6539,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,430 6302,v1.0,,"How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? This is the design challenge we want to solve during the on-going term or lets just say face at the moment. It came up to us through some interviews we and friends conducted in the last weeks with refugees or other newcomers in Berlin. What are your thoughts on this? To make it easier for everyone interested to follow I will try to sum up the thoughts we had and the experiences we made recently. Starting with the question “How can food help people on the move to feel at home wherever they are at the moment?” amongst others we got to talk to a 24 year old guy from Syria and a girl from Korea about the same age. One had to flee home and the other moved for love. Some of the most remarkable insights we got are about food some are not. Two I want to share because they add to our design question. The guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. Maybe this does not happen in big towns he says but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends, to chat, meet new people and have some good Korean food but it ended up being too expensive, there was even an entrance fee and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. After those interviews we talked about the “Berlin Thaipark”, were mostly Thai women sell homemade southeast Asian dishes on their blankets more or less being tolerated by the bureaucracy; about a great project by the New York based designer Candy Chang called Street vendor guide where she visualizes the most commonly violated rules in this context for the vendors themselves; and asked ourselves: How can we enable migrants to integrate the interactive food customs / traditions they like and bring from their culture of origin into Berlins community life? Later on one of our fellow students told us the following: A group of Syrian refugees mentioned the huge summer barbecues they would always have in summertime back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. When being asked if they are doing similar activities here in summertime they deny. They think that it is forbidden to have a barbecue anywhere outside and do not want to act against the law seen their uncertain status. Still they miss them. That basically is how we ended up facing the design question already mentioned above: How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? So far we, a group of 4 university students, call our little project A Taste of Home and would be more than happy about any comments.",/post/683,2017-01-22T22:34:58.000Z,2017-01-22T22:34:58.000Z,683,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,449 8018,v1.0,,"Everyone, thank you for your support! @Alberto, yes it makes total sense to get into the regulations and we are on it. Right now it looks like our project is more and more shifting to the not “commercial” side. There is already a big need just for cooking opportunities. @Yannick I like the idea of collecting the successful examples. With @Nadia we talked about a possible meeting with all the parties involved. A meeting where we would bring the people we got to know while researching in the last weeks and some law expert together. We think it would be very nice to give them the opportunity to directly talk and find out about the things, which matter most to them. Though we would prefer an informal atmosphere to allow a secure feeling for everyone. This really is important to them! That is why we do not want to invite someone from the “parks and open spaces department” at least not officially. We found out that they are the responsible ones here in Berlin. We already tried to find someone from a citizen initiative or from our broader circle of friends, but so far could not manage. By any chance do you have any idea whom we could ask? What do you think about formal vs. informal?",/post/20863,2017-01-22T22:34:49.000Z,2017-01-22T22:34:49.000Z,20863,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,999 8017,v1.0,,"You are probably not asking me, @Luisa (what do I know about the Parks and Open Spaces Department in Berlin, apart from the fact that its nam is probably one really long German word?). But if you can pull it off, an informal, safe discussion between the authorities and the people is very valuable. If you have a courageous politician or senior public officer at hand, you could ask her to come along as facilitator; the Parks people would feel authorized to attend because she is there, and they could have a chat off the record. But you need the right person.",/post/23189,2017-01-22T22:34:43.000Z,2017-01-22T22:34:43.000Z,23189,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,999 8289,v1.0,,@Louisa good luck with your idea!  I've had something like this in mind but I didn't find enough funs for this Urban Cooking. You can have a formal green light if the municipality (or whatever) agrees and then you can organise the routine part like informal just for the atmosphere. In Greece we have strict rules (only in papers) about public spaces but every municipality has special Regulatory Decisions. The municipality services inform about the legality and in cooperation with the councilors or/and the citizens apply the final idea. Did you ask the topical authorities about that?,/post/22447,2017-01-22T22:34:34.000Z,2017-01-22T22:34:34.000Z,22447,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 8288,v1.0,,"Everyone, thank you for your support! @Alberto, yes it makes total sense to get into the regulations and we are on it. Right now it looks like our project is more and more shifting to the not “commercial” side. There is already a big need just for cooking opportunities. @Yannick I like the idea of collecting the successful examples. With @Nadia we talked about a possible meeting with all the parties involved. A meeting where we would bring the people we got to know while researching in the last weeks and some law expert together. We think it would be very nice to give them the opportunity to directly talk and find out about the things, which matter most to them. Though we would prefer an informal atmosphere to allow a secure feeling for everyone. This really is important to them! That is why we do not want to invite someone from the “parks and open spaces department” at least not officially. We found out that they are the responsible ones here in Berlin. We already tried to find someone from a citizen initiative or from our broader circle of friends, but so far could not manage. By any chance do you have any idea whom we could ask? What do you think about formal vs. informal?",/post/20863,2017-01-22T22:34:13.000Z,2017-01-22T22:34:13.000Z,20863,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 8287,v1.0,,"Where I come from a funny thing is happening: everyone loves festivals, especially during this time of the year, May-June before students are out of town for holidays. We had very strict regulations about sitting on the grass in our central park, you know that kind of green space where you really want to spend time in nature but can't because it's too cosmeticized? Nowadays there's Jazz in the Park and the Big Hammock Day and these kinds of events which start as one offs but then create a demand and become a habit. What they have in common is that they start with a big push.",/post/18648,2017-01-22T22:34:02.000Z,2017-01-22T22:34:02.000Z,18648,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 9750,v1.0,,"Where I come from a funny thing is happening: everyone loves festivals, especially during this time of the year, May-June before students are out of town for holidays. We had very strict regulations about sitting on the grass in our central park, you know that kind of green space where you really want to spend time in nature but can't because it's too cosmeticized? Nowadays there's Jazz in the Park and the Big Hammock Day and these kinds of events which start as one offs but then create a demand and become a habit. What they have in common is that they start with a big push.",/post/18648,2017-01-22T22:33:57.000Z,2017-01-22T22:33:57.000Z,18648,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1395 4827,v1.0,,"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.  Problem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!  Good luck with the project and keep us up to date!",/post/14420,2017-01-22T22:33:46.000Z,2017-01-22T22:33:46.000Z,14420,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,89 4826,v1.0,,"Seriously? In Italy BBQs in the park are big – well, in Milano at least, now that I think of it I never saw it done in Emilia Romagna. I think the fad was started by the Peruvian community, who moved in in force. There are even web pages on ""the best parks to do BBQ in Milan"", or Rome, or whatever: http://www.viaggiamo.it/parchi-dove-fare-grigliate-a-milano/ This is fairly typical:",/post/17140,2017-01-22T22:33:38.000Z,2017-01-22T22:33:38.000Z,17140,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,89 8286,v1.0,,"Whaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels eith",/post/18277,2017-01-22T22:33:25.000Z,2017-01-22T22:33:25.000Z,18277,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 9749,v1.0,,"Seriously? In Italy BBQs in the park are big – well, in Milano at least, now that I think of it I never saw it done in Emilia Romagna. I think the fad was started by the Peruvian community, who moved in in force. There are even web pages on ""the best parks to do BBQ in Milan"", or Rome, or whatever: http://www.viaggiamo.it/parchi-dove-fare-grigliate-a-milano/ This is fairly typical:",/post/17140,2017-01-22T22:33:11.000Z,2017-01-22T22:33:11.000Z,17140,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1395 8285,v1.0,,"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.  Problem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!  Good luck with the project and keep us up to date!",/post/14420,2017-01-22T22:32:56.000Z,2017-01-22T22:32:56.000Z,14420,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 9748,v1.0,,"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.  Problem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!  Good luck with the project and keep us up to date!",/post/14420,2017-01-22T22:32:51.000Z,2017-01-22T22:32:51.000Z,14420,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1395 9829,v1.0,,"Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).  It may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages. I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety, hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds (""we have to comply with all these expensive regulations, whereas these guys just go gray economy"").  In passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.  So, I guess a first step towards A Taste of Home is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?",/post/6539,2017-01-22T22:32:41.000Z,2017-01-22T22:32:41.000Z,6539,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1425 8284,v1.0,,"Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).  It may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages. I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety, hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds (""we have to comply with all these expensive regulations, whereas these guys just go gray economy"").  In passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.  So, I guess a first step towards A Taste of Home is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?",/post/6539,2017-01-22T22:32:32.000Z,2017-01-22T22:32:32.000Z,6539,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 9981,v1.0,,How can we enable migrants to integrate the interactive food customs / traditions they like and bring from their culture of origin into Berlins community life?,/post/683,2017-01-22T22:32:12.000Z,2017-01-22T22:32:12.000Z,683,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1445 8283,v1.0,,"How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? This is the design challenge we want to solve during the on-going term or lets just say face at the moment. It came up to us through some interviews we and friends conducted in the last weeks with refugees or other newcomers in Berlin. What are your thoughts on this? To make it easier for everyone interested to follow I will try to sum up the thoughts we had and the experiences we made recently. Starting with the question “How can food help people on the move to feel at home wherever they are at the moment?” amongst others we got to talk to a 24 year old guy from Syria and a girl from Korea about the same age. One had to flee home and the other moved for love. Some of the most remarkable insights we got are about food some are not. Two I want to share because they add to our design question. The guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. Maybe this does not happen in big towns he says but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends, to chat, meet new people and have some good Korean food but it ended up being too expensive, there was even an entrance fee and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. After those interviews we talked about the “Berlin Thaipark”, were mostly Thai women sell homemade southeast Asian dishes on their blankets more or less being tolerated by the bureaucracy; about a great project by the New York based designer Candy Chang called Street vendor guide where she visualizes the most commonly violated rules in this context for the vendors themselves; and asked ourselves: How can we enable migrants to integrate the interactive food customs / traditions they like and bring from their culture of origin into Berlins community life? Later on one of our fellow students told us the following: A group of Syrian refugees mentioned the huge summer barbecues they would always have in summertime back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. When being asked if they are doing similar activities here in summertime they deny. They think that it is forbidden to have a barbecue anywhere outside and do not want to act against the law seen their uncertain status. Still they miss them. That basically is how we ended up facing the design question already mentioned above: How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? So far we, a group of 4 university students, call our little project A Taste of Home and would be more than happy about any comments.",/post/683,2017-01-22T22:31:57.000Z,2017-01-22T22:31:57.000Z,683,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1074 9747,v1.0,,"How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? This is the design challenge we want to solve during the on-going term or lets just say face at the moment. It came up to us through some interviews we and friends conducted in the last weeks with refugees or other newcomers in Berlin. What are your thoughts on this? To make it easier for everyone interested to follow I will try to sum up the thoughts we had and the experiences we made recently. Starting with the question “How can food help people on the move to feel at home wherever they are at the moment?” amongst others we got to talk to a 24 year old guy from Syria and a girl from Korea about the same age. One had to flee home and the other moved for love. Some of the most remarkable insights we got are about food some are not. Two I want to share because they add to our design question. The guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. Maybe this does not happen in big towns he says but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends, to chat, meet new people and have some good Korean food but it ended up being too expensive, there was even an entrance fee and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. After those interviews we talked about the “Berlin Thaipark”, were mostly Thai women sell homemade southeast Asian dishes on their blankets more or less being tolerated by the bureaucracy; about a great project by the New York based designer Candy Chang called Street vendor guide where she visualizes the most commonly violated rules in this context for the vendors themselves; and asked ourselves: How can we enable migrants to integrate the interactive food customs / traditions they like and bring from their culture of origin into Berlins community life? Later on one of our fellow students told us the following: A group of Syrian refugees mentioned the huge summer barbecues they would always have in summertime back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. When being asked if they are doing similar activities here in summertime they deny. They think that it is forbidden to have a barbecue anywhere outside and do not want to act against the law seen their uncertain status. Still they miss them. That basically is how we ended up facing the design question already mentioned above: How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? So far we, a group of 4 university students, call our little project A Taste of Home and would be more than happy about any comments.",/post/683,2017-01-22T22:31:52.000Z,2017-01-22T22:31:52.000Z,683,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1395 8737,v1.0,,"How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? This is the design challenge we want to solve during the on-going term or lets just say face at the moment. It came up to us through some interviews we and friends conducted in the last weeks with refugees or other newcomers in Berlin. What are your thoughts on this? To make it easier for everyone interested to follow I will try to sum up the thoughts we had and the experiences we made recently. Starting with the question “How can food help people on the move to feel at home wherever they are at the moment?” amongst others we got to talk to a 24 year old guy from Syria and a girl from Korea about the same age. One had to flee home and the other moved for love. Some of the most remarkable insights we got are about food some are not. Two I want to share because they add to our design question. The guy misses the Syrian nights where as he tells everyone takes their coaches and pillows outside, drinks tea, smokes, chats and just sleeps on the streets. Maybe this does not happen in big towns he says but in villages as in smaller or medium-sized towns it does. The girl told us that she is missing the Korean street food a lot. Once she tried out a Korean street food market here in Berlin, but did not like it. She went there with some friends, to chat, meet new people and have some good Korean food but it ended up being too expensive, there was even an entrance fee and the food was just not good. In Korea she always used to eat outside with her friends. Cooking was a family thing; eating out was for all other social events. After those interviews we talked about the “Berlin Thaipark”, were mostly Thai women sell homemade southeast Asian dishes on their blankets more or less being tolerated by the bureaucracy; about a great project by the New York based designer Candy Chang called Street vendor guide where she visualizes the most commonly violated rules in this context for the vendors themselves; and asked ourselves: How can we enable migrants to integrate the interactive food customs / traditions they like and bring from their culture of origin into Berlins community life? Later on one of our fellow students told us the following: A group of Syrian refugees mentioned the huge summer barbecues they would always have in summertime back in Syria: a lot of friends, family, a lot of food, somewhere in the nature, in a park. When being asked if they are doing similar activities here in summertime they deny. They think that it is forbidden to have a barbecue anywhere outside and do not want to act against the law seen their uncertain status. Still they miss them. That basically is how we ended up facing the design question already mentioned above: How can we help newcomers to use public spaces to their full extent, because they do not know what activities are legal in these spaces and are afraid to act against the law? So far we, a group of 4 university students, call our little project A Taste of Home and would be more than happy about any comment",/post/683,2017-01-22T22:31:45.000Z,2017-01-22T22:31:45.000Z,683,3323,AnnotatorStore::TextAnnotation,,,,,,,,,650,1150 5977,v1.0,,"Hi @Rune, just got on this comment now. Great! Let's get in touch. monaco.federico@gmail.com",/post/26948,2017-01-22T22:31:19.000Z,2017-01-22T22:31:19.000Z,26948,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,396 9049,v1.0,,"I'm seeking contributions, participants and co-organizers for a webinar at the end of the month about discussing on e-patients and online communities on healthcare issues and forms of activism, networking and engagement of patients, citizens, makers, etc.. in research and social shaping of medical and healthcare technology. Anyone interested is welcome in co-designing or sketching the best formula for such a live event!",/post/21418,2017-01-22T22:31:03.000Z,2017-01-22T22:31:03.000Z,21418,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1246 7069,v1.0,,"I'm seeking contributions, participants and co-organizers for a webinar at the end of the month about discussing on e-patients and online communities on healthcare issues and forms of activism, networking and engagement of patients, citizens, makers, etc.. in research and social shaping of medical and healthcare technology. Anyone interested is welcome in co-designing or sketching the best formula for such a live event!",/post/21418,2017-01-22T22:30:40.000Z,2017-01-22T22:30:40.000Z,21418,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,751 9295,v1.0,,"At the end of january, the STOA (Science & Technology Office Assessment of the European Parliament) hosted a workshop about the study of the ""Impact and Potential of collaborative Internet and additive manufacturing technologies"". There are many clues and references about 3D printing development, trends in the field of education and healthcare. The possible scenarios are depicted thanks to a DELPHI-like study involving experts from all over Europe.",/post/15268,2017-01-22T22:30:33.000Z,2017-01-22T22:30:33.000Z,15268,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1283 9294,v1.0,,"Thank you for your comment @Noemi I'm not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see.. Unfortunately the  community interactions are the goal and not the mean. I'm doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus. The idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I'd love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.  What about starting in June talking about ""e-patients and EHMs""? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist.",/post/11219,2017-01-22T22:29:56.000Z,2017-01-22T22:29:56.000Z,11219,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1283 11305,v1.0,,"Thank you for your comment @Noemi I'm not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see.. Unfortunately the  community interactions are the goal and not the mean. I'm doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus. The idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I'd love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.  What about starting in June talking about ""e-patients and EHMs""? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist",/post/11219,2017-01-22T22:29:50.000Z,2017-01-22T22:29:50.000Z,11219,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1797 7068,v1.0,,"Thank you for your comment @Noemi I'm not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see.. Unfortunately the  community interactions are the goal and not the mean. I'm doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus. The idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I'd love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.  What about starting in June talking about ""e-patients and EHMs""? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist.",/post/11219,2017-01-22T22:29:39.000Z,2017-01-22T22:29:39.000Z,11219,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,751 9293,v1.0,,", wow it struck me to see similarities in our approaches - the open approach to community learning in particular, and the focus on process. It seems you're more interested in teaching students collaborative practices than growing their knowledge of healthcare, which should follow naturally as an outcome (by the way do you measure that in any way?). I have looked for the community interactions but the only space I found was this one (empty?) https://puntozero.github.io/community.html Should I go somewhere else? One last point for now, your timeline follows closely OpenCare as well. Is it possible for non-registered students to participate in the webinars? If so, we might consider partnering up - as many community members here speak Italian and could be interested to join.",/post/8059,2017-01-22T22:29:21.000Z,2017-01-22T22:29:21.000Z,8059,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1283 7067,v1.0,,"The project includes a accessible site via the github pages and the social networks' groups and profiles; at the same time it supports activities, communication and resources for about 150 students of 5 healthcare professions Masters on 5 e-Learning communities of the University of Parma, in Italy. The MOODLE environment used by students and tutors is shared open source and downloadable from here. Free to comment, join and collaborate with us!",/post/686,2017-01-22T22:29:03.000Z,2017-01-22T22:29:03.000Z,686,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,751 9066,v1.0,,"The World Wide Web is increasingly useful to experiment, produce and research for identities, relations and objects in the field of ""Healthcare & Innovation"" such as Open Source, Open Access, 3D printing and Additive manufacturing, HCWH (Health Care Without Harm), Augmented and Virtual Reality, Co-Working, Workscaping and other important and emerging issues. The bet of PUNTOZERO is to call for interest and shape a networking model motivating healthcare professionals in sharing experiences and co-driving innovation and care programs together with patients and open networks. Read our agenda. The idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about ""healthcare"", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable ""umwelt"" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.",/post/686,2017-01-22T22:28:53.000Z,2017-01-22T22:28:53.000Z,686,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1249 9292,v1.0,,"The World Wide Web is increasingly useful to experiment, produce and research for identities, relations and objects in the field of ""Healthcare & Innovation"" such as Open Source, Open Access, 3D printing and Additive manufacturing, HCWH (Health Care Without Harm), Augmented and Virtual Reality, Co-Working, Workscaping and other important and emerging issues. The bet of PUNTOZERO is to call for interest and shape a networking model motivating healthcare professionals in sharing experiences and co-driving innovation and care programs together with patients and open networks. Read our agenda. The idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about ""healthcare"", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable ""umwelt"" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.",/post/686,2017-01-22T22:28:40.000Z,2017-01-22T22:28:40.000Z,686,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1283 7972,v1.0,,"The idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about ""healthcare"", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable ""umwelt"" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.",/post/686,2017-01-22T22:28:21.000Z,2017-01-22T22:28:21.000Z,686,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,986 10685,v1.0,,"The World Wide Web is increasingly useful to experiment, produce and research for identities, relations and objects in the field of ""Healthcare & Innovation"" such as Open Source, Open Access, 3D printing and Additive manufacturing, HCWH (Health Care Without Harm), Augmented and Virtual Reality, Co-Working, Workscaping and other important and emerging issues. The bet of PUNTOZERO is to call for interest and shape a networking model motivating healthcare professionals in sharing experiences and co-driving innovation and care programs together with patients and open networks. Read our agenda. The idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about ""healthcare"", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable ""umwelt"" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.",/post/686,2017-01-22T22:28:15.000Z,2017-01-22T22:28:15.000Z,686,3323,AnnotatorStore::TextAnnotation,,,,,,,,,653,1625 10133,v1.0,,"What if working together for the good of all was the most common business model? Discover A new Economy, starring seven initiatives including Sensorica and ours. Thanks @Positive-Voice for your comment.",/post/29074,2017-01-22T22:25:15.000Z,2017-01-22T22:25:15.000Z,29074,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1453 6355,v1.0,,"We are working on the outcomes to be shown, for example visualizing the evolution of lung capacity, effects of doing therapy or not, etc.",/post/26038,2017-01-22T22:25:02.000Z,2017-01-22T22:25:02.000Z,26038,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,462 10132,v1.0,,"@Michel we started with CF and asthma but the idea is that projects emerge in different places. As a patient said, its a doctor's thing to separate diseases... but usually, asthma, allergies, etc are mixed. And yes it will include also games about good breathing and hopefully, people not affected with diseases can also become more aware about their health and invest in prevention. ^^",/post/26038,2017-01-22T22:24:56.000Z,2017-01-22T22:24:56.000Z,26038,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1453 10131,v1.0,,"Nice work @breathinggame, It's really a good revolution therapy treatment for lungs and chest weakness . I'm sure that is not only those who have chest disease but also those who are in good condition. It's really needs to tell that it's a personal device. Is not necessary to tell that kids are curious and they can bring trouble sometime. Is there any level for  any step of lungs illness?  And is that need any assistance to check the evolution of the patient?",/post/24000,2017-01-22T22:24:40.000Z,2017-01-22T22:24:40.000Z,24000,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1453 9137,v1.0,,"Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.",/post/19731,2017-01-22T22:24:14.000Z,2017-01-22T22:24:14.000Z,19731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1257 9017,v1.0,,"Many learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.",/post/19731,2017-01-22T22:24:00.000Z,2017-01-22T22:24:00.000Z,19731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1230 9218,v1.0,,"Many learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.",/post/19731,2017-01-22T22:23:49.000Z,2017-01-22T22:23:49.000Z,19731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1269 10883,v1.0,,"Regarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved.",/post/19731,2017-01-22T22:23:20.000Z,2017-01-22T22:23:20.000Z,19731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1672 7566,v1.0,,"Hi @Noemi and @Alberto. Thanks for your feedbacks. In 2014, we started with the positive expiratory pressure therapy for CF children. It was in fact not the best move as the exercice takes about 30 minutes daily, which would require a lot of resources to have interesting games, plus the fact that the exercice is quite strict, so challenging to make it interesting. We then thought about other, more free gameplays, which we have to develop. We are now working on mini-games for asthma, that are about triggers and how to take the medicine. We want to reuse the work done for CF to build short games for aerosoltherapy. Regarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved. Many learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels. We invite you to subscribe to our YouTube, where we are going to release 15 interviews of what participants learned during the last gamejam. In the next months, we intend to do gamejams in Montreal, Geneva, and possibly Paris and Lima if you d'like to join there or remotely!",/post/19731,2017-01-22T22:23:06.000Z,2017-01-22T22:23:06.000Z,19731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,881 10130,v1.0,,"Hi @Noemi and @Alberto. Thanks for your feedbacks. In 2014, we started with the positive expiratory pressure therapy for CF children. It was in fact not the best move as the exercice takes about 30 minutes daily, which would require a lot of resources to have interesting games, plus the fact that the exercice is quite strict, so challenging to make it interesting. We then thought about other, more free gameplays, which we have to develop. We are now working on mini-games for asthma, that are about triggers and how to take the medicine. We want to reuse the work done for CF to build short games for aerosoltherapy. Regarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved. Many learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels. We invite you to subscribe to our YouTube, where we are going to release 15 interviews of what participants learned during the last gamejam. In the next months, we intend to do gamejams in Montreal, Geneva, and possibly Paris and Lima if you d'like to join there or remotely!",/post/19731,2017-01-22T22:23:00.000Z,2017-01-22T22:23:00.000Z,19731,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1453 9291,v1.0,,"On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver.",/post/735,2017-01-22T22:22:18.000Z,2017-01-22T22:22:18.000Z,735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1283 9166,v1.0,,We also develop open-source hardware such as flowmeter for domesic use,/post/735,2017-01-22T22:22:11.000Z,2017-01-22T22:22:11.000Z,735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1259 5714,v1.0,,"decentralized, anonimyzed data to advance public health research (blockchain/IPFS). On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver.",/post/735,2017-01-22T22:22:00.000Z,2017-01-22T22:22:00.000Z,735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,361 6343,v1.0,,"nd shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS).",/post/735,2017-01-22T22:21:38.000Z,2017-01-22T22:21:38.000Z,735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,459 9077,v1.0,,"d shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS).",/post/735,2017-01-22T22:21:33.000Z,2017-01-22T22:21:33.000Z,735,3323,AnnotatorStore::TextAnnotation,,,,,,,,,702,1251 8455,v1.0,,"Epoxy is not cheap (unless it is a day over shelf life - ask around at boat builders or wind power manufacturers, perhaps in Rostock) but it can get a lot of stuff done. If you put some glass fiber (ask the same people for scraps) on the cardboard honeycomb it becomes very strong (but only moderately so in compression). You should not work where people live, and have good ventilation (wear glasses, gloves, read the fine print), but composites experience is very marketable, especially if you can work clean and precise. Is there magnetic stuff around (bed frames, parts of walls)? If yes you can buy a big batch of magnets (the strong ones are neodym) and use them to fix wall paper, fabric or similar. They can be pretty small and cheap and still get a lot done, also for improvised electronics. Do people use batteries a lot? Perhaps you can switch to rechargeable - with some help from Panasonic? You can build powerpacks for mobile electronics. A very basic kit will let you do a Repair Cafe and bring in more tools and parts (talk to Ifixit.com). A small amount of epoxy will also come in very handy there.",/post/27795,2017-01-22T22:09:56.000Z,2017-01-22T22:09:56.000Z,27795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1121 6475,v1.0,,"Epoxy is not cheap (unless it is a day over shelf life - ask around at boat builders or wind power manufacturers, perhaps in Rostock) but it can get a lot of stuff done. If you put some glass fiber (ask the same people for scraps) on the cardboard honeycomb it becomes very strong (but only moderately so in compression). You should not work where people live, and have good ventilation (wear glasses, gloves, read the fine print), but composites experience is very marketable, especially if you can work clean and precise. Is there magnetic stuff around (bed frames, parts of walls)? If yes you can buy a big batch of magnets (the strong ones are neodym) and use them to fix wall paper, fabric or similar. They can be pretty small and cheap and still get a lot done, also for improvised electronics. Do people use batteries a lot? Perhaps you can switch to rechargeable - with some help from Panasonic? You can build powerpacks for mobile electronics. A very basic kit will let you do a Repair Cafe and bring in more tools and parts (talk to Ifixit.com). A small amount of epoxy will also come in very handy there.",/post/27795,2017-01-22T22:09:41.000Z,2017-01-22T22:09:41.000Z,27795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,485 5976,v1.0,,Hi @Tomma I wrote you a PM. If there still is something I can perhaps help with give me a ping. Regarding tools there are certain methods that use almost 0 tools but can still get a lot done. https://cocreate.localmotors.com/nowbreakit/epoxy-minimal-mess-small-footprint-approach/,/post/27795,2017-01-22T22:09:31.000Z,2017-01-22T22:09:31.000Z,27795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,396 10309,v1.0,,"thanks for your thoughts! The idea of an ""interactive camp"" whithout the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different ""problems"" from each other but to organize the camp differently from the very first:",/post/26018,2017-01-22T22:09:18.000Z,2017-01-22T22:09:18.000Z,26018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1508 9290,v1.0,,"Hey everyone, thanks for your thoughts! The idea of an ""interactive camp"" whithout the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different ""problems"" from each other but to organize the camp differently from the very first: ""We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."" and as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here: http://www.roc21.net) The idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move to a better place as soon as possible.  But in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp where we were building stuff all together, was really nice because we were doing something with our hands and totally forgot the situation around us.",/post/26018,2017-01-22T22:09:04.000Z,2017-01-22T22:09:04.000Z,26018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1283 11398,v1.0,,"Hey everyone, thanks for your thoughts! The idea of an ""interactive camp"" whithout the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different ""problems"" from each other but to organize the camp differently from the very first: ""We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."" and as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here: http://www.roc21.net) The idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move to a better place as soon as possible.  But in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp where we were building stuff all together, was really nice because we were doing something with our hands and totally forgot the situation around us.",/post/26018,2017-01-22T22:08:57.000Z,2017-01-22T22:08:57.000Z,26018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1832 8736,v1.0,,"Hey everyone, thanks for your thoughts! The idea of an ""interactive camp"" whithout the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different ""problems"" from each other but to organize the camp differently from the very first: ""We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."" and as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here: http://www.roc21.net) The idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move to a better place as soon as possible.  But in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp where we were building stuff all together, was really nice because we were doing something with our hands and totally forgot the situation around us.",/post/26018,2017-01-22T22:08:49.000Z,2017-01-22T22:08:49.000Z,26018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1150 11397,v1.0,,"Hi there, i'm following this interesting discussion. I wonder if making possibile for the people inside the camp to be trained to welcome coming refugees (e.g.: moms helping with the arrival of next mothers in terms of understanding the needs, welcoming mothers, showing them around the camp and the area, taking contacts with the staff) and let them re-configure the camp as a collective action taken by the guests themselves to welcome better new refugees might help to overgo frustration and lack of communication. Having a daily goal -especially a shared one- might help and leaving one day the camp knowing that you did a part to make a better place of it would turn a ""senseless part of my life"" in a good memory of commitment and engagement.",/post/24325,2017-01-22T22:08:39.000Z,2017-01-22T22:08:39.000Z,24325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1832 11396,v1.0,,"Alex and Tomma can of course give you a more informed view, but on the top of my head I ask myself what goes in the mind of someone who landed there and expects this to be temporary and short, only to see that days go by and turn into months. Volunteering is predicated on some sort of idle capacity - but would those trapped perceive that they have that time? with being busy to figure out their own situation and wanting to escape it.. (Alex makes the point of difficulty to engage here - fyi I very much liked the idea of going through community leaders to see what possiblilities are worth trying or not).",/post/25129,2017-01-22T22:08:33.000Z,2017-01-22T22:08:33.000Z,25129,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1832 10116,v1.0,,"Alex and Tomma can of course give you a more informed view, but on the top of my head I ask myself what goes in the mind of someone who landed there and expects this to be temporary and short, only to see that days go by and turn into months. Volunteering is predicated on some sort of idle capacity - but would those trapped perceive that they have that time? with being busy to figure out their own situation and wanting to escape it.. (Alex makes the point of difficulty to engage here - fyi I very much liked the idea of going through community leaders to see what possiblilities are worth trying or not).",/post/25129,2017-01-22T22:08:26.000Z,2017-01-22T22:08:26.000Z,25129,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1451 5696,v1.0,,"Hi there, i'm following this interesting discussion. I wonder if making possibile for the people inside the camp to be trained to welcome coming refugees (e.g.: moms helping with the arrival of next mothers in terms of understanding the needs, welcoming mothers, showing them around the camp and the area, taking contacts with the staff) and let them re-configure the camp as a collective action taken by the guests themselves to welcome better new refugees might help to overgo frustration and lack of communication. Having a daily goal -especially a shared one- might help and leaving one day the camp knowing that you did a part to make a better place of it would turn a ""senseless part of my life"" in a good memory of commitment and engagement.",/post/24325,2017-01-22T22:08:11.000Z,2017-01-22T22:08:11.000Z,24325,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,357 9980,v1.0,,What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?,/post/681,2017-01-22T22:07:37.000Z,2017-01-22T22:07:37.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1445 8735,v1.0,,"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people. The first time we visited I was surprised how „good“ the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).  The ICC Messe is a former congress centrum which was recently rebuilt to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling. Inside of each room there are 4 bunk beds, so in total 8 people per room (familys are usually separated and live in private rooms, also: the rooms are separated by gender). Usually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.  Firstly we asked how people organize themselves in the room. The Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying „Kühlschrank“. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official „meals“. They boil the eggs in a water cooker by the way!  Another interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living. Also very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night. Berivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light. Another very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night. Also they put pictures from magazines on the wall to make the atmosphere a little more cosy. But still even if they find the possibility to hack something there is a lot of stuff just flying around in the room. There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore. What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?",/post/681,2017-01-22T22:07:31.000Z,2017-01-22T22:07:31.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1150 11241,v1.0,,"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about. I frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn) Creating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.",/post/22200,2017-01-22T22:07:22.000Z,2017-01-22T22:07:22.000Z,22200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1775 8734,v1.0,,"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about. I frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn) Creating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your proje",/post/22200,2017-01-22T22:07:10.000Z,2017-01-22T22:07:10.000Z,22200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1150 4794,v1.0,,"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about. I frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn) Creating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.",/post/22200,2017-01-22T22:07:05.000Z,2017-01-22T22:07:05.000Z,22200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,80 10187,v1.0,,"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about. I frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn) Creating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.",/post/22200,2017-01-22T22:06:57.000Z,2017-01-22T22:06:57.000Z,22200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1482 10074,v1.0,,"thanks for your support. To your questions Alex: Yes they are allowed to leave the camp. Its kind of hard for them to bring friends inside who dont live there though (pretty weird feeling because it was so easy for us to enter)  We actually had a little experiment today and brought materials like duckt tape, cable ties, strings, cardboard (materials that you dont necessarily need proffessional tools for) to one room to see what would happen. Just after a little time os insecurity they started finding solutions in terms of ""unpacking"". That seems to be the biggest issue.. The room is a organised mess and they wanted to have items to put their stuff in. It was a really cool experience to see how everyone together was solving problems. In the end we had two really nice shelf constructions! There is a lot of unused material inside the camp, that is going to be thrown away.. if there would be better communication between the organisation and the refugees they could probably use these too.. (to be fair: the Malteser who are running the camp are already having kind of good communication.. so far we only good positive feedback and lots of permissions!)  But i really like the idea of going out of the camp to get materials, also because in the end its about not only having the courage to hack the ""comfort zone"" but to feel able and free in the ""outside world"" (that is really a feeling of home)",/post/21277,2017-01-22T22:06:50.000Z,2017-01-22T22:06:50.000Z,21277,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1450 8215,v1.0,,"thanks for your support. To your questions Alex: Yes they are allowed to leave the camp. Its kind of hard for them to bring friends inside who dont live there though (pretty weird feeling because it was so easy for us to enter)  We actually had a little experiment today and brought materials like duckt tape, cable ties, strings, cardboard (materials that you dont necessarily need proffessional tools for) to one room to see what would happen. Just after a little time os insecurity they started finding solutions in terms of ""unpacking"". That seems to be the biggest issue.. The room is a organised mess and they wanted to have items to put their stuff in. It was a really cool experience to see how everyone together was solving problems. In the end we had two really nice shelf constructions! There is a lot of unused material inside the camp, that is going to be thrown away.. if there would be better communication between the organisation and the refugees they could probably use these too.. (to be fair: the Malteser who are running the camp are already having kind of good communication.. so far we only good positive feedback and lots of permissions!)  But i really like the idea of going out of the camp to get materials, also because in the end its about not only having the courage to hack the ""comfort zone"" but to feel able and free in the ""outside world"" (that is really a feeling of home)",/post/21277,2017-01-22T22:06:34.000Z,2017-01-22T22:06:34.000Z,21277,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1057 10363,v1.0,,"Hi Tomma, Thank you so much for sharing this. It's fascinating to see that there isn't a huge difference between the way people react to their spaces in an official camp and an unofficial camp like the Calais 'Jungle'. Noone ever likes the food that is provided. Are residents allowed out of the camp during the day? Are they allowed to bring anything they want back in with them? Or are they basically in detention? Because if the can leave and bring anything back in then why not provide a space nearby where they can come and collect donated items, tools etc in exchange for doing something else (e.g. cooking food for a cafe, running a cafe, teaching arabic, sharing their culture etc)",/post/16163,2017-01-22T22:06:20.000Z,2017-01-22T22:06:20.000Z,16163,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1532 4741,v1.0,,".do you think you could get permission?  Another think that you might consider was pointed out by Alex (volunteer in Calais/ Dunkirk camps) in a response to Milan's similar efforts: ""My suggestion is first to ask them how you can help, rather than guessing. We talk to community leaders on the camp every 2 weeks and ask for suggestions so we can improve our processes""  That conversation is here, should you wish to exchange ideas. Very excited to see you guys doing so much practical research, keep it up!",/post/9576,2017-01-22T22:06:01.000Z,2017-01-22T22:06:01.000Z,9576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,64 6195,v1.0,,"There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore. What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?",/post/681,2017-01-22T22:05:43.000Z,2017-01-22T22:05:43.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,439 8214,v1.0,,"There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore. What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?",/post/681,2017-01-22T22:05:30.000Z,2017-01-22T22:05:30.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1057 7751,v1.0,,"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people. The first time we visited I was surprised how „good“ the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).  The ICC Messe is a former congress centrum which was recently rebuilt to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling. Inside of each room there are 4 bunk beds, so in total 8 people per room (familys are usually separated and live in private rooms, also: the rooms are separated by gender). Usually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.  Firstly we asked how people organize themselves in the room. The Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying „Kühlschrank“. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official „meals“. They boil the eggs in a water cooker by the way!  Another interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living. Also very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night. Berivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light. Another very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night. Also they put pictures from magazines on the wall to make the atmosphere a little more cosy. But still even if they find the possibility to hack something there is a lot of stuff just flying around in the room. There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore. What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?",/post/681,2017-01-22T22:05:23.000Z,2017-01-22T22:05:23.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,924 9385,v1.0,,"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people. The first time we visited I was surprised how „good“ the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).  The ICC Messe is a former congress centrum which was recently rebuilt to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling. Inside of each room there are 4 bunk beds, so in total 8 people per room (familys are usually separated and live in private rooms, also: the rooms are separated by gender). Usually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.  Firstly we asked how people organize themselves in the room. The Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying „Kühlschrank“. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official „meals“. They boil the eggs in a water cooker by the way!  Another interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living. Also very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night. Berivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light. Another very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night. Also they put pictures from magazines on the wall to make the atmosphere a little more cosy. But still even if they find the possibility to hack something there is a lot of stuff just flying around in the room. There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore. What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?",/post/681,2017-01-22T22:05:02.000Z,2017-01-22T22:05:02.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,1302 7888,v1.0,,"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people. The first time we visited I was surprised how „good“ the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).  The ICC Messe is a former congress centrum which was recently rebuilt to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling. Inside of each room there are 4 bunk beds, so in total 8 people per room (familys are usually separated and live in private rooms, also: the rooms are separated by gender). Usually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.  Firstly we asked how people organize themselves in the room. The Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying „Kühlschrank“. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official „meals“. They boil the eggs in a water cooker by the way!  Another interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living. Also very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night. Berivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light. Another very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night. Also they put pictures from magazines on the wall to make the atmosphere a little more cosy. But still even if they find the possibility to hack something there is a lot of stuff just flying around in the room. There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore. What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?",/post/681,2017-01-22T22:04:27.000Z,2017-01-22T22:04:27.000Z,681,3323,AnnotatorStore::TextAnnotation,,,,,,,,,648,962 6301,v1.0,,"I think the work you are doing is great. I am an anthropologist who studies young people's practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm). It strikes me that the language of ""shit happens"" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all. It would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!",/post/24338,2017-01-22T21:42:34.000Z,2017-01-22T21:42:34.000Z,24338,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,449 11483,v1.0,,"I think the work you are doing is great. I am an anthropologist who studies young people's practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm). It strikes me that the language of ""shit happens"" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all. It would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!",/post/24338,2017-01-22T21:42:26.000Z,2017-01-22T21:42:26.000Z,24338,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1857 11482,v1.0,,"You guys have a very interesting list of perks for those willing to experience distress, kudos. So you want to raise awareness about serious issues through humor, or a lighthearted approach. I'm guessing there is a difference to be made in approaching awareness this way versus advocating for mental support through humor. For the latter: does (self) irony help embrace the shitiness of one's situation? hm, not sure.",/post/9367,2017-01-22T21:42:15.000Z,2017-01-22T21:42:15.000Z,9367,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1857 11481,v1.0,,"I do not know much firsthand about depression and mental discomfort (lucky me). But I have heard that positive messages are not uplifting on depressed people, on the contrary. If you have doubts about when and how much to be humorous, you could look around for research about the matter. I am sure there must be loads, though I myself cannot think of anything...",/post/12669,2017-01-22T21:42:07.000Z,2017-01-22T21:42:07.000Z,12669,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1857 11480,v1.0,,"I really enjoyed reading this article and I find familiar to me some of your influences (the Tumblr users, I’ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don’t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this – like I am). Thanks for sharing this and good luck with it! What are the next ""challanges"" going to consist of? Let me know if you need a young girl’s opinion. I’m really interested into this subject and I would like to give some help.",/post/14581,2017-01-22T21:41:58.000Z,2017-01-22T21:41:58.000Z,14581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1856 8569,v1.0,,"I really enjoyed reading this article and I find familiar to me some of your influences (the Tumblr users, I’ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don’t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this – like I am). Thanks for sharing this and good luck with it! What are the next ""challanges"" going to consist of? Let me know if you need a young girl’s opinion. I’m really interested into this subject and I would like to give some help.",/post/14581,2017-01-22T21:41:53.000Z,2017-01-22T21:41:53.000Z,14581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1140 6194,v1.0,,"I really enjoyed reading this article and I find familiar to me some of your influences (the Tumblr users, I’ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don’t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this – like I am). Thanks for sharing this and good luck with it! What are the next ""challanges"" going to consist of? Let me know if you need a young girl’s opinion. I’m really interested into this subject and I would like to give some help.",/post/14581,2017-01-22T21:41:49.000Z,2017-01-22T21:41:49.000Z,14581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,439 8568,v1.0,,"I think the work you are doing is great. I am an anthropologist who studies young people's practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm). It strikes me that the language of ""shit happens"" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all. It would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!",/post/24338,2017-01-22T21:41:42.000Z,2017-01-22T21:41:42.000Z,24338,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1140 8567,v1.0,,"i would like to give you a reference of soemthing big which lasted for many decades and had a solid scientific background and support. it is much differnet from your project but in some way it was aimed at showing and trating mind problematic people (sorry for my english) to a different open normal way: a big area (ex psichiatric hospital) transformed into a living community with srvices and cultural events partially manged by people which woudl ahve been reclused. http://www.olinda.org/cittaolinda/paolo-pini   google should help in putting into english",/post/27798,2017-01-22T21:41:34.000Z,2017-01-22T21:41:34.000Z,27798,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1140 4530,v1.0,,"I think the work you are doing is great. I am an anthropologist who studies young people's practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm). It strikes me that the language of ""shit happens"" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all. It would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!",/post/24338,2017-01-22T21:41:04.000Z,2017-01-22T21:41:04.000Z,24338,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,12 9878,v1.0,,"Thank you! I think the main thing we are trying to do is make this topic more approachable. More than humor it's perhaps about the casual language and the interactive methods like the simulators and surveys. Of course it is still a serious topic and the options for professional help should be presented in a serious manner. We don't want to make fun of the shittiness itself, but rather criticize the social standards concerning emotional wellbeing, in a somewhat satirical / cynical way. As far as using irony or humor to embrace the shittiness, I think that's very personal. Those comics that we mentioned for example often deal with these issues in a funny way and receive many comments saying that it's helpful. But surely there is also people who deal with it differently.",/post/11930,2017-01-22T21:40:20.000Z,2017-01-22T21:40:20.000Z,11930,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1437 10654,v1.0,,"We will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one's body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three.",/post/511,2017-01-22T21:39:50.000Z,2017-01-22T21:39:50.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1623 7212,v1.0,,"A related approach can be found in the various devices that exist to simulate old age. Suits like ‘GERT’ are designed to make the wearer feel the impairments that come with aging: stiffness and limited mobility, decreasing strength, blurred sight, muffled hearing. The concept was originally developed to enable caretakers of elderly people to better understand the needs and fears of their patients. Now, gadgets with similar effects, designed by students at Weimar University, are being exhibited at the Hygiene Museum in Dresden, allowing the public to gain the same understanding.",/post/511,2017-01-22T21:39:29.000Z,2017-01-22T21:39:29.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,781 4815,v1.0,,"INSPIRATION There are a number of inspiring projects who deal with exactly this issue of awareness. One clever way artists are spreading awareness is over the internet. Tumblr users like Rubyetc, Beth Evans or Sarah’s Scribbles have gained quite a following with their funny, relatable comics about everyday struggles. Seeing that you are not alone in your suffering can be very comforting. Recently, illustrator Gemma Correll created a series of drawings as part of an online awareness campaign for Mental Health America to visualize what #mentalillnessfeelslike. Their campaign encourages people to open up about their conditions and harvest the power of sharing.",/post/511,2017-01-22T21:39:16.000Z,2017-01-22T21:39:16.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,83 9877,v1.0,,"OUR GOAL We want to challenge the current attitude towards psychological care. Our project tries to de-stigmatize psychological pain and make the sensitive, 'taboo' issue of mental health more present and approachable to the public. We believe that udnerstanding and empathy is vital to provide good care for people that are suffering from emotional distress. We want to make it clear that feeling shitty is nothing to be ashamed of, but actually a very common thing. Also, we want the impact of these feelings to be understandable, so that more people can offer informed, helpful responses. When this happens, the threshold of reaching out is lowered, which in return allows problems to be addressed before they develop into serious mental conditions.",/post/511,2017-01-22T21:39:07.000Z,2017-01-22T21:39:07.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1437 4497,v1.0,,"The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students.",/post/511,2017-01-22T21:38:54.000Z,2017-01-22T21:38:54.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,5 10718,v1.0,,"The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students. As part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems – be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support when everyone tries to hide their struggles. As a result, most people don’t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves. Yet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence, stemming from a general lack of awareness.",/post/511,2017-01-22T21:38:46.000Z,2017-01-22T21:38:46.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1632 11568,v1.0,,"USER INTERVIEWS The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students. As part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems – be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support when everyone tries to hide their struggles. As a result, most people don’t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves. Yet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence, stemming from a general lack of awareness.",/post/511,2017-01-22T21:38:36.000Z,2017-01-22T21:38:36.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1873 11334,v1.0,,"Pauline and I are both product design students and together with Nele and Luisa who study communications we are team UP. In the context of ""Hacking Utopia"", a human centered design project at the University of Arts Berlin, we are investigating mental health. This article explains our approach of boosting mental resilience and give you the chance to get involved in our project.",/post/511,2017-01-22T21:38:20.000Z,2017-01-22T21:38:20.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1811 10390,v1.0,,"In our previous contributions on Edgeryders we described how we started off with the question of making sadness, unproductivity and inefficiency less shameful. We discovered two TED talks that influenced us greatly: The power of vulnerability by Brene Brown and Depression, the secret we share by Andrew Solomon. As later confirmed by the psychologists we interviewed, these talks made us understand that sharing our feelings is a key step towards mental resilience. Establishing a sustainable, personal connection this is necessary for recovery and growth. When we hide our condition, we ignore it, it becomes worse.",/post/511,2017-01-22T21:38:07.000Z,2017-01-22T21:38:07.000Z,511,3323,AnnotatorStore::TextAnnotation,,,,,,,,,478,1538 9855,v1.0,,"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !? Once I searched medline (a database of scientific publications)  to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' . Can it really be that there is a enormous hole in healthcare research here? Could it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?",/post/24439,2017-01-22T21:37:20.000Z,2017-01-22T21:37:20.000Z,24439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1431 9854,v1.0,,"Thank you for your comment. You are right by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.",/post/25187,2017-01-22T21:37:10.000Z,2017-01-22T21:37:10.000Z,25187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1431 9033,v1.0,,"Thank you for your comment. You are right by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.",/post/25187,2017-01-22T21:37:03.000Z,2017-01-22T21:37:03.000Z,25187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 5019,v1.0,,"Thank you for your comment. You are right by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.",/post/25187,2017-01-22T21:36:58.000Z,2017-01-22T21:36:58.000Z,25187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,135 9979,v1.0,,"Could it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?",/post/24439,2017-01-22T21:36:52.000Z,2017-01-22T21:36:52.000Z,24439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1445 9032,v1.0,,"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !? Once I searched medline (a database of scientific publications)  to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' . Can it really be that there is a enormous hole in healthcare research here? Could it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?",/post/24439,2017-01-22T21:36:43.000Z,2017-01-22T21:36:43.000Z,24439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 8205,v1.0,,"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !? Once I searched medline (a database of scientific publications)  to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' . Can it really be that there is a enormous hole in healthcare research here? Could it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?",/post/24439,2017-01-22T21:36:37.000Z,2017-01-22T21:36:37.000Z,24439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1055 7463,v1.0,,"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !? Once I searched medline (a database of scientific publications)  to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' . Can it really be that there is a enormous hole in healthcare research here? Could it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?",/post/24439,2017-01-22T21:36:24.000Z,2017-01-22T21:36:24.000Z,24439,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,853 5018,v1.0,,"Hi Pavlos, Thank you very much for taking the time to reply to our initiative! We agree that a varied diet is of big importance to any of us (not only cancer-patients). Can you provide us with more information/sources of research concerning the variety that you are referring to?  A core aspect that needs to be considered specifically when talking about ""anti-cancer"" nutrition is that carbs and sugar should be avoided or reduced to a minimum because they ""feed"" cancer cells. What we are trying to say with this goes hand in hand with our comment on Noemi's post: to come across as a reliable and relevant source of information, the platform needs to state very explicitly what it is focusing on concerning nutrition, still at one point you have to choose a certain framework of aspects which build the basis of, in our case, the platform. No one can ensure a 100% holistic approach, but you can already get a lot further by having this intention. In the end research today might state that milk (just as an example) is bad for us and tomorrow another research might state the opposite. Its all about the framework that you define and the beliefs you formulate as a basis.",/post/22262,2017-01-22T21:35:53.000Z,2017-01-22T21:35:53.000Z,22262,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,135 9031,v1.0,,"Hi Pavlos, Thank you very much for taking the time to reply to our initiative! We agree that a varied diet is of big importance to any of us (not only cancer-patients). Can you provide us with more information/sources of research concerning the variety that you are referring to?  A core aspect that needs to be considered specifically when talking about ""anti-cancer"" nutrition is that carbs and sugar should be avoided or reduced to a minimum because they ""feed"" cancer cells. What we are trying to say with this goes hand in hand with our comment on Noemi's post: to come across as a reliable and relevant source of information, the platform needs to state very explicitly what it is focusing on concerning nutrition, still at one point you have to choose a certain framework of aspects which build the basis of, in our case, the platform. No one can ensure a 100% holistic approach, but you can already get a lot further by having this intention. In the end research today might state that milk (just as an example) is bad for us and tomorrow another research might state the opposite. Its all about the framework that you define and the beliefs you formulate as a basis.",/post/22262,2017-01-22T21:35:47.000Z,2017-01-22T21:35:47.000Z,22262,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 7467,v1.0,,"Hi @Denise Carry, I think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I'm afraid), even by most ""food fanatics"" or ""health hypers"", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?",/post/20297,2017-01-22T21:35:36.000Z,2017-01-22T21:35:36.000Z,20297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,855 7462,v1.0,,"Hi @Denise Carry, I think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I'm afraid), even by most ""food fanatics"" or ""health hypers"", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?",/post/20297,2017-01-22T21:35:19.000Z,2017-01-22T21:35:19.000Z,20297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,853 9030,v1.0,,"Hi @Denise Carry, I think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I'm afraid), even by most ""food fanatics"" or ""health hypers"", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?",/post/20297,2017-01-22T21:35:12.000Z,2017-01-22T21:35:12.000Z,20297,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 9029,v1.0,,"Having a platform where a lot of people talk to each other and share experiences that sometimes contradict each other is a lot like a forum, and making it difficult to arrive at sound advice. What would make it into real collective intelligence is research and analysis on nutrition. This would weigh a lot more than advice from a small groups of food experts (as Rune observes below). If you ever want to go that way and structure information online into a research dataset, or wish to include this in your support raising efforts, consider Edgeryders for partnering up. Alberto just wrote about how you can use network analysis and ethnography to analise texts and reach new knowledge that as a platform manager or user you can't readily see, especially if you have contributions in the orders of thousands.",/post/18512,2017-01-22T21:34:49.000Z,2017-01-22T21:34:49.000Z,18512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 8499,v1.0,,"Having a platform where a lot of people talk to each other and share experiences that sometimes contradict each other is a lot like a forum, and making it difficult to arrive at sound advice. What would make it into real collective intelligence is research and analysis on nutrition. This would weigh a lot more than advice from a small groups of food experts (as Rune observes below). If you ever want to go that way and structure information online into a research dataset, or wish to include this in your support raising efforts, consider Edgeryders for partnering up. Alberto just wrote about how you can use network analysis and ethnography to analise texts and reach new knowledge that as a platform manager or user you can't readily see, especially if you have contributions in the orders of thousands.",/post/18512,2017-01-22T21:34:45.000Z,2017-01-22T21:34:45.000Z,18512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1128 9853,v1.0,,"We realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!",/post/17838,2017-01-22T21:34:36.000Z,2017-01-22T21:34:36.000Z,17838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1431 5953,v1.0,,"Hi Noemi, Thanks for your reply, its much appreciated! You are definitely right about the controversiality of advice. Main cause of this is, in our opinion, the so-called island approach, where there is little space for a holistic view on the patient! Specialists tend to stay within the boundries of their area of expertise (even if the advice turns out not to be the best for the particular patient). We realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!  Your already helping by sharing your thoughts, opinion and experience. We are happy to learn more from experts and get in touch with people that can provide relevant advice!  Carry and Denise",/post/17838,2017-01-22T21:34:23.000Z,2017-01-22T21:34:23.000Z,17838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,392 5561,v1.0,,"Hi Noemi, Thanks for your reply, its much appreciated! You are definitely right about the controversiality of advice. Main cause of this is, in our opinion, the so-called island approach, where there is little space for a holistic view on the patient! Specialists tend to stay within the boundries of their area of expertise (even if the advice turns out not to be the best for the particular patient). We realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!  Your already helping by sharing your thoughts, opinion and experience. We are happy to learn more from experts and get in touch with people that can provide relevant advice!  Carry and Denise",/post/17838,2017-01-22T21:34:15.000Z,2017-01-22T21:34:15.000Z,17838,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,334 5952,v1.0,,"One of the most schizofrenic thing about medical treatments is, in my opinion, controversial advice. I always tell myself that the moment I will have a real condition I will need to ask for many many opinions in order to be satisfied with recommendations. Even with the ""healthy food"" trends which you remark, it is becoming harder and harder to find truth or specialists with real credentials. If hospital dieticians are in the wrong, then the only way seems to be more access to information, and at some point the more accurate one is filtered in. I like your approach, and maybe reading about other online communities could be useful to your design: for example another edgeryder in Benin is running awareness raising for cardio vascular diseases on a massive facebook group, but the reason they manage to keep it relatively uncontroversial, as far as I understood, is that: 1) they don't deal with curative or palliative care, only preventative and 2) they have moderators ensuring a healthy and accurate stream of information. This is their story. Also, how can we help?",/post/16818,2017-01-22T21:33:54.000Z,2017-01-22T21:33:54.000Z,16818,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,392 5391,v1.0,,"One of the most schizofrenic thing about medical treatments is, in my opinion, controversial advice. I always tell myself that the moment I will have a real condition I will need to ask for many many opinions in order to be satisfied with recommendations. Even with the ""healthy food"" trends which you remark, it is becoming harder and harder to find truth or specialists with real credentials. If hospital dieticians are in the wrong, then the only way seems to be more access to information, and at some point the more accurate one is filtered in. I like your approach, and maybe reading about other online communities could be useful to your design: for example another edgeryder in Benin is running awareness raising for cardio vascular diseases on a massive facebook group, but the reason they manage to keep it relatively uncontroversial, as far as I understood, is that: 1) they don't deal with curative or palliative care, only preventative and 2) they have moderators ensuring a healthy and accurate stream of information. This is their story. Also, how can we help?",/post/16818,2017-01-22T21:33:44.000Z,2017-01-22T21:33:44.000Z,16818,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,297 7863,v1.0,,"As long as I remember we have been told to eat healthy / As long as I remember hospital food has had the reputation of being awful As long as I have been having my lunches in a hospital I’ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc. As long as I have been having my lunches in a hospital the meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit. So starting at the hospital we are told one thing and given the opposite. The logical conclusion is that change should start at the hospital. It same goes for schools down to kindergardens.",/post/11833,2017-01-22T21:33:36.000Z,2017-01-22T21:33:36.000Z,11833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,959 9028,v1.0,,"As long as I remember we have been told to eat healthy / As long as I remember hospital food has had the reputation of being awful As long as I have been having my lunches in a hospital I’ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc. As long as I have been having my lunches in a hospital the meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit. So starting at the hospital we are told one thing and given the opposite. The logical conclusion is that change should start at the hospital. It same goes for schools down to kindergardens.",/post/11833,2017-01-22T21:33:30.000Z,2017-01-22T21:33:30.000Z,11833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 7461,v1.0,,"As long as I remember we have been told to eat healthy / As long as I remember hospital food has had the reputation of being awful As long as I have been having my lunches in a hospital I’ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc. As long as I have been having my lunches in a hospital the meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit. So starting at the hospital we are told one thing and given the opposite. The logical conclusion is that change should start at the hospital. It same goes for schools down to kindergardens.",/post/11833,2017-01-22T21:33:21.000Z,2017-01-22T21:33:21.000Z,11833,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,853 7460,v1.0,,"This makes a ton of sense. Everyone says that sport and healthy food are good for non-sick people: they should be even more important for people who are sick! I, too, lead a reasonably healthy lifestyle. I do not have cancer now, but – realistically – I will at some point. And I will want the same kind of advice that you also looked for.  I would totally support this idea! @markomanka , you are a doctor. Any thoughts?",/post/9737,2017-01-22T21:33:15.000Z,2017-01-22T21:33:15.000Z,9737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,853 6938,v1.0,,"Channels Short-term: online (info and community) Long-term: face to face (workshops on two main subjects) Activities: develop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc., contact points in the Netherlands on sports coaches to contact for guidance, set up sports projects and readings about healthy food and sports for cancer patients, create communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don’t have a partner.",/post/711,2017-01-22T21:32:42.000Z,2017-01-22T21:32:42.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,720 8000,v1.0,,"Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects. Challenge (Customized) advice serving cancer patients during treatment (chemo, radiation,…) to ensure optimal nutrition and exercise. focusing on natural instead of artificially produced ingredients emphasizing the importance of regular and moderately intensive exercise.",/post/711,2017-01-22T21:32:27.000Z,2017-01-22T21:32:27.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,994 10415,v1.0,,"We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.",/post/711,2017-01-22T21:31:44.000Z,2017-01-22T21:31:44.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1540 10784,v1.0,,"We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.",/post/711,2017-01-22T21:31:36.000Z,2017-01-22T21:31:36.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1646 7311,v1.0,,"Currently there are all kinds of ‘food fanatics’ and ‘health hypes’. We are convinced that healthy food should not be a trend. We don’t want to focus on trends or hypes; our focus lies at informing people about healthy food and “back to basic”. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don’t have enough time to guide a patient in the best way and many dieticians follow the ‘old’ rules and are promoting the medical food of the pharmaceutics industry. We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food. Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side e",/post/711,2017-01-22T21:31:23.000Z,2017-01-22T21:31:23.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,805 7288,v1.0,,"In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising. At home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape? Through the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase). The information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight. Currently there are all kinds of ‘food fanatics’ and ‘health hypes’. We are convinced that healthy food should not be a trend. We don’t want to focus on trends or hypes; our focus lies at informing people about healthy food and “back to basic”. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don’t have enough time to guide a patient in the best way and many dieticians follow the ‘old’ rules and are promoting the medical food of the pharmaceutics industry. We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food. Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects. Challenge (Customized) advice serving cancer patients during treatment (chemo, radiation,…) to ensure optimal nutrition and exercise. focusing on natural instead of artificially produced ingredients emphasizing the importance of regular and moderately intensive exercise. Channels Short-term: online (info and community) Long-term: face to face (workshops on two main subjects) Activities: develop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc., contact points in the Netherlands on sports coaches to contact for guidance, set up sports projects and readings about healthy food and sports for cancer patients, create communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don’t have a partner. Type of community involved Community consists of cancer patients (no age restrictions or type of cancer) Solution proposed; effect on users life? Ensure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.   How is it open? It is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)   How does it ‘care’? This platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects “healthy nutrition” and “exercise”. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.",/post/711,2017-01-22T21:30:48.000Z,2017-01-22T21:30:48.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,803 9027,v1.0,,"In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising. At home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape? Through the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase). The information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight. Currently there are all kinds of ‘food fanatics’ and ‘health hypes’. We are convinced that healthy food should not be a trend. We don’t want to focus on trends or hypes; our focus lies at informing people about healthy food and “back to basic”. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don’t have enough time to guide a patient in the best way and many dieticians follow the ‘old’ rules and are promoting the medical food of the pharmaceutics industry. We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food. Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects. Challenge (Customized) advice serving cancer patients during treatment (chemo, radiation,…) to ensure optimal nutrition and exercise. focusing on natural instead of artificially produced ingredients emphasizing the importance of regular and moderately intensive exercise. Channels Short-term: online (info and community) Long-term: face to face (workshops on two main subjects) Activities: develop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc., contact points in the Netherlands on sports coaches to contact for guidance, set up sports projects and readings about healthy food and sports for cancer patients, create communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don’t have a partner. Type of community involved Community consists of cancer patients (no age restrictions or type of cancer) Solution proposed; effect on users life? Ensure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.   How is it open? It is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)   How does it ‘care’? This platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects “healthy nutrition” and “exercise”. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.",/post/711,2017-01-22T21:30:39.000Z,2017-01-22T21:30:39.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,1234 7459,v1.0,,"In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising. At home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape? Through the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase). The information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight. Currently there are all kinds of ‘food fanatics’ and ‘health hypes’. We are convinced that healthy food should not be a trend. We don’t want to focus on trends or hypes; our focus lies at informing people about healthy food and “back to basic”. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don’t have enough time to guide a patient in the best way and many dieticians follow the ‘old’ rules and are promoting the medical food of the pharmaceutics industry. We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food. Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects. Challenge (Customized) advice serving cancer patients during treatment (chemo, radiation,…) to ensure optimal nutrition and exercise. focusing on natural instead of artificially produced ingredients emphasizing the importance of regular and moderately intensive exercise. Channels Short-term: online (info and community) Long-term: face to face (workshops on two main subjects) Activities: develop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc., contact points in the Netherlands on sports coaches to contact for guidance, set up sports projects and readings about healthy food and sports for cancer patients, create communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don’t have a partner. Type of community involved Community consists of cancer patients (no age restrictions or type of cancer) Solution proposed; effect on users life? Ensure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.   How is it open? It is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)   How does it ‘care’? This platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects “healthy nutrition” and “exercise”. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.",/post/711,2017-01-22T21:30:21.000Z,2017-01-22T21:30:21.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,853 5017,v1.0,,"In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising. At home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape? Through the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase). The information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight. Currently there are all kinds of ‘food fanatics’ and ‘health hypes’. We are convinced that healthy food should not be a trend. We don’t want to focus on trends or hypes; our focus lies at informing people about healthy food and “back to basic”. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don’t have enough time to guide a patient in the best way and many dieticians follow the ‘old’ rules and are promoting the medical food of the pharmaceutics industry. We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu’s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy. Next to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food. Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects. Challenge (Customized) advice serving cancer patients during treatment (chemo, radiation,…) to ensure optimal nutrition and exercise. focusing on natural instead of artificially produced ingredients emphasizing the importance of regular and moderately intensive exercise. Channels Short-term: online (info and community) Long-term: face to face (workshops on two main subjects) Activities: develop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc., contact points in the Netherlands on sports coaches to contact for guidance, set up sports projects and readings about healthy food and sports for cancer patients, create communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don’t have a partner. Type of community involved Community consists of cancer patients (no age restrictions or type of cancer) Solution proposed; effect on users life? Ensure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.   How is it open? It is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)   How does it ‘care’? This platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects “healthy nutrition” and “exercise”. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.",/post/711,2017-01-22T21:30:14.000Z,2017-01-22T21:30:14.000Z,711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,678,135 7511,v1.0,,"thank you for the in dept questionary. We started doing the bigger work in the building the last couple of weeks. We were happely surprised that the water problem didn't harm the wood that hard. On the first floor we have a sort of chill room that is used as a backstage for the bar downstairs as well, a multi media room with possibility to watch movies or have podcast sessions, a closed room for private meetings and a toilet. The second space is used as recording and repetition space at the moment, but will graduatily become multifunctional too. On the third floor we have a big open space with lots of natural light and a working plumbing system. The electricity has been cleaned and we are installing now new wires. We will install a kitchen in low tech design there and we still have space for other things. On the fourth floor we have access to a roof of 40m2 and also a ceiling that was renewed not that long ago, we only have some problems of mushrooms there that need to be taken care of. On the long term we hope to have complete green energy providers , solar is possible. But also trying to create a consience for not using to much energy. On the fourth floor we hope to bring a sauna, sleeping capsules and also an urban garden on the roof, all this is being analysed at the moment. We have 2 handy mans, a designer, a woodworker and an interieur designer helping in the house at the moment. We also have access to different FabLabs around Brussels that will come help us later on. We maybe going to try to contact the bellastock organization of brussels to work around the industrial resources.",/post/26951,2017-01-22T21:29:25.000Z,2017-01-22T21:29:25.000Z,26951,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,875 7510,v1.0,,"Could you please share some details on the physical condition of the Bonifooi building and how, functionally, the space is intended to work? I looked at some street view pictures of the building and it looks in good shape but very old, though the windows look new. How are things on the interior? What is the composition of the building structure? What utilities are there, and are they updated? What sort of wiring and plumbing? How are the floors set out and are they partitioned? Do you have roof access and what is it like? How do you intended to use the space? Will people live there, in a coliving manner? Will there be a workshop, kitchen, studio, urban farm, etc.? Do you intend to do any sort of light production? Your experience with the N55 spacefram bike suggests you might be working with those and similar constructions. Does the city/landowner allow you to use wind and solar?  What sort of building resources do you have at-hand in your group. Is there fab lab access? People with wood or metalworking skills? Is there some good source of industrial cast-offs nearby?",/post/26029,2017-01-22T21:28:49.000Z,2017-01-22T21:28:49.000Z,26029,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,875 7887,v1.0,,"Could you please share some details on the physical condition of the Bonifooi building and how, functionally, the space is intended to work? I looked at some street view pictures of the building and it looks in good shape but very old, though the windows look new. How are things on the interior? What is the composition of the building structure? What utilities are there, and are they updated? What sort of wiring and plumbing? How are the floors set out and are they partitioned? Do you have roof access and what is it like? How do you intended to use the space? Will people live there, in a coliving manner? Will there be a workshop, kitchen, studio, urban farm, etc.? Do you intend to do any sort of light production? Your experience with the N55 spacefram bike suggests you might be working with those and similar constructions. Does the city/landowner allow you to use wind and solar?  What sort of building resources do you have at-hand in your group. Is there fab lab access? People with wood or metalworking skills? Is there some good source of industrial cast-offs nearby?",/post/26029,2017-01-22T21:28:42.000Z,2017-01-22T21:28:42.000Z,26029,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,962 9746,v1.0,,"Could you please share some details on the physical condition of the Bonifooi building and how, functionally, the space is intended to work? I looked at some street view pictures of the building and it looks in good shape but very old, though the windows look new. How are things on the interior? What is the composition of the building structure? What utilities are there, and are they updated? What sort of wiring and plumbing? How are the floors set out and are they partitioned? Do you have roof access and what is it like? How do you intended to use the space? Will people live there, in a coliving manner? Will there be a workshop, kitchen, studio, urban farm, etc.? Do you intend to do any sort of light production? Your experience with the N55 spacefram bike suggests you might be working with those and similar constructions. Does the city/landowner allow you to use wind and solar?  What sort of building resources do you have at-hand in your group. Is there fab lab access? People with wood or metalworking skills? Is there some good source of industrial cast-offs nearby?",/post/26029,2017-01-22T21:28:35.000Z,2017-01-22T21:28:35.000Z,26029,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,1395 5975,v1.0,,hello @dante i went carefully through all your links and was really impressed by all the data and information you found about the different situations in Brussels. I would like to discuss further and share some more insight. Are you around Brussels for the moment?,/post/20274,2017-01-22T21:28:18.000Z,2017-01-22T21:28:18.000Z,20274,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,396 5992,v1.0,,"Modification as constancy Finally, another way resilience can be created is by being in a constantly changing environment. Therefore Huis VDH doesn’t have fixed spaces. Every room can be rearranged to have a different use. Having this as one of the ground rules, we create a constant reality of change that makes us well trained in the art of adaptation, a virtue needed in times of crisis. In September, we will be, thanks to @Nadia, hosting the Open Care Weekend for Brussels.We see it as an opportunity to use our space for a common goal and adapt it while having people using the space. It will be our first external happening and we are really excited. When working for Huis VDH, I have a phrase by Bachelard that always comes to mind: “Our House is our first universe, a real cosmos in every sense of the word” We can’t forget about the complexity of a home when we want to harmonize it. In cosmos, planets collide, new stars are born and a black hole sometimes sucks up even galaxies. This will be the same for people, ideas and principles. The most important for the wellbeing of this microcosm will be the search for constant balance.",/post/520,2017-01-22T21:27:48.000Z,2017-01-22T21:27:48.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,398 9217,v1.0,,"Putting ourselves outside the system In the first six months, I was convinced we could create a complete system without the need of money. Only through exchange we could rebuild the house. This gave us a clear barrier to work around, and even if after six months we partially let money in our system, we were trained to think about solutions without money by using the skills, knowledge and resources of one another. This is one of the many ways we try to build challenges to ourselves to constantly think out of the box. When crisis occurs, we need to think and find solutions fast. Creating these exercises in a calm period will help create resilience in all members.",/post/520,2017-01-22T21:27:00.000Z,2017-01-22T21:27:00.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,1269 10414,v1.0,,"Shared knowledge Open Source is all around us, and also in Huis VDH. After living for 5 weeks in an open source innovation camp called POC21, I find solutions to every kind of problem through this model of thinking. Knowledge is there to be shared and if we create the right methodology we will find more easily solutions to any kind of problems. That is why we started mapping out every encounter we had through metamaps, we budget our work with cobudget and use a sharing file system inside the house.",/post/520,2017-01-22T21:26:53.000Z,2017-01-22T21:26:53.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,1540 6237,v1.0,,"One big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.",/post/520,2017-01-22T21:26:37.000Z,2017-01-22T21:26:37.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,442 5444,v1.0,,"From Maison Du People to Huis VDH, a story about citizen centred design. Since I was a guide and learned about the architect Horta and his Art Nouveau Style, I’m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks… I gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn’t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented. So there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born. It’s all in the name, for Huis VDH it is no other. ‘Huis’ means ‘home’ in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: “ that the power of a community is bigger than the sum of all parts.” One big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.",/post/520,2017-01-22T21:26:31.000Z,2017-01-22T21:26:31.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,311 6474,v1.0,,"From Maison Du People to Huis VDH, a story about citizen centred design. Since I was a guide and learned about the architect Horta and his Art Nouveau Style, I’m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks… I gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn’t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented. So there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born. It’s all in the name, for Huis VDH it is no other. ‘Huis’ means ‘home’ in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: “ that the power of a community is bigger than the sum of all parts.” One big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.",/post/520,2017-01-22T21:26:22.000Z,2017-01-22T21:26:22.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,485 11333,v1.0,,"From Maison Du People to Huis VDH, a story about citizen centred design. Since I was a guide and learned about the architect Horta and his Art Nouveau Style, I’m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks… I gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn’t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented. So there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born. It’s all in the name, for Huis VDH it is no other. ‘Huis’ means ‘home’ in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: “ that the power of a community is bigger than the sum of all parts.” One big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.",/post/520,2017-01-22T21:26:15.000Z,2017-01-22T21:26:15.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,1811 10043,v1.0,,"From 2012 onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn’t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop  further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d’Accroche (part of the project Vélo M2, explained here) in that neighbourhood, hoping to bring them some resilience.",/post/520,2017-01-22T21:25:44.000Z,2017-01-22T21:25:44.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,1446 7595,v1.0,,"From 2012 onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn’t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop  further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d’Accroche (part of the project Vélo M2, explained here) in that neighbourhood, hoping to bring them some resilience.",/post/520,2017-01-22T21:25:32.000Z,2017-01-22T21:25:32.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,892 9745,v1.0,,"But Huis VDH doesn’t fall from the sky. For me, being in good care in the city has always meant having a healthy living environment. To create such a good environment we need good city planners and a great vision on public space. Something Brussels is still lacking... Once upon a time, there was public space. From 2012 onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn’t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop  further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d’Accroche (part of the project Vélo M2, explained here) in that neighbourhood, hoping to bring them some resilience.",/post/520,2017-01-22T21:25:19.000Z,2017-01-22T21:25:19.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,1395 7886,v1.0,,"From Maison Du People to Huis VDH, a story about citizen centred design. Since I was a guide and learned about the architect Horta and his Art Nouveau Style, I’m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks… I gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn’t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented. So there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born. It’s all in the name, for Huis VDH it is no other. ‘Huis’ means ‘home’ in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: “ that the power of a community is bigger than the sum of all parts.” One big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification. Shared knowledge Open Source is all around us, and also in Huis VDH. After living for 5 weeks in an open source innovation camp called POC21, I find solutions to every kind of problem through this model of thinking. Knowledge is there to be shared and if we create the right methodology we will find more easily solutions to any kind of problems. That is why we started mapping out every encounter we had through metamaps, we budget our work with cobudget and use a sharing file system inside the house. Showing your vulnerable self When working in a collective environment, we tend to show our better self, hiding our flaws in the first place. But a strong collective group is as strong as its weakest link, and therefore we find it important that we are open and honest to each other. Having personal problems is something common, but sharing them is less. We try to create a trust field around Huis VDH where personal development is as important as the common goal of the organization. Caring about each other as a human being before seeing it as a resource for a project. In order to bring this theory into practice, we have made the first floor as cosy as possible, so people can just hang around and talk freely to each other. We make meetings short and efficient so there is time to discuss at the bar the more intimate stuff, not with all, but with whom we trust. Putting ourselves outside the system In the first six months, I was convinced we could create a complete system without the need of money. Only through exchange we could rebuild the house. This gave us a clear barrier to work around, and even if after six months we partially let money in our system, we were trained to think about solutions without money by using the skills, knowledge and resources of one another. This is one of the many ways we try to build challenges to ourselves to constantly think out of the box. When crisis occurs, we need to think and find solutions fast. Creating these exercises in a calm period will help create resilience in all members. Modification as constancy Finally, another way resilience can be created is by being in a constantly changing environment. Therefore Huis VDH doesn’t have fixed spaces. Every room can be rearranged to have a different use. Having this as one of the ground rules, we create a constant reality of change that makes us well trained in the art of adaptation, a virtue needed in times of crisis. In September, we will be, thanks to @Nadia, hosting the Open Care Weekend for Brussels.We see it as an opportunity to use our space for a common goal and adapt it while having people using the space. It will be our first external happening and we are really excited. When working for Huis VDH, I have a phrase by Bachelard that always comes to mind: “Our House is our first universe, a real cosmos in every sense of the word” We can’t forget about the complexity of a home when we want to harmonize it. In cosmos, planets collide, new stars are born and a black hole sometimes sucks up even galaxies. This will be the same for people, ideas and principles. The most important for the wellbeing of this microcosm will be the search for constant balance. In September we will be co-hosting the Brussels OPENandChange Workshop and that will kick off our Huis VDH. In the follow up we are working on a concept called Pirate Kitchen: using the resources from dumpster diving or own grown combined with hobby cooks we want to bring each week around 10 people gravitating around the same interest / problem / field but don’t know or rarely meet. We wouldn’t give them any explanation about whom they will meet, only that they will have a dinner with interesting  people. They will have to find out why they are all here, and what they could bring to each other. A sort of blind date for change makers. Could this be an interesting form, or does it already occur in some places? I’d appreciate any feedback in a comment below, and see you on 10-11 September for the workshop!   The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/520,2017-01-22T21:25:01.000Z,2017-01-22T21:25:01.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,962 7885,v1.0,,"Hello Edgeryders For my fellowship I will write about Huis VDH, which I introduced earlier. In short: ‘Huis VDH wants to give time and resources to people to experiment, try, fail and succeed around new models for the present and future of Brussels. We are convinced that the magic happens by connecting citizen’s skills and needs. We aim to become a laboratory for urban change hosting citizens in search of anchor.’ But Huis VDH doesn’t fall from the sky. For me, being in good care in the city has always meant having a healthy living environment. To create such a good environment we need good city planners and a great vision on public space. Something Brussels is still lacking... Once upon a time, there was public space. From 2012 onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn’t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop  further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d’Accroche (part of the project Vélo M2, explained here) in that neighbourhood, hoping to bring them some resilience.",/post/520,2017-01-22T21:24:51.000Z,2017-01-22T21:24:51.000Z,520,3323,AnnotatorStore::TextAnnotation,,,,,,,,,487,962 11304,v1.0,,"I was reading this article and thought you might find it informative - results from a study on Irish students from 22 universities saying that a third go through mental distress and less than 1 in 4 look for support. So worrying. I'm now trying to get hold of the original study. A mental health community initiative in Ireland that we know of is Cosain - a an organic healing centre by peers of all ages, running as a prototype in the city museum! - curious what you think. Also new in the conversation since you were last online - a volunteer led organisation running twitter chats on mental health. Definitely check them out, maybe you can do something together as they are always looking for hosts!",/post/27808,2017-01-22T21:22:46.000Z,2017-01-22T21:22:46.000Z,27808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1797 8566,v1.0,,"I was reading this article and thought you might find it informative - results from a study on Irish students from 22 universities saying that a third go through mental distress and less than 1 in 4 look for support. So worrying. I'm now trying to get hold of the original study. A mental health community initiative in Ireland that we know of is Cosain - a an organic healing centre by peers of all ages, running as a prototype in the city museum! - curious what you think. Also new in the conversation since you were last online - a volunteer led organisation running twitter chats on mental health. Definitely check them out, maybe you can do something together as they are always looking for hosts!",/post/27808,2017-01-22T21:22:38.000Z,2017-01-22T21:22:38.000Z,27808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1140 4680,v1.0,,"This project was developed during Hacking Utopia - a three month course on product design for social and demographic change. The course format was developed by Prof. Susanne Stauch (@Susa)  and Nadia EL-Imam (me) in a partnership between UDK (Berlin University of the Arts) and Edgeryders: The Shit Show is an interactive pop-up exhibition designed to make the sensitive, 'taboo' issue of mental health more present and approachable to the public. Psychological struggles are still stigmatized, making it hard to reach out for help. We want to offer an alternative way for people to engage with the topic and develop mechanisms for support and resilience. Mental illnesses are one of the most widespread disabilities worldwide. In Germany alone, 4 million people are affected by issues like anxiety or depression. Yet, it’s a secret we all share. Seeking help for psychological struggles is still strongly associated with shame. Even being sad or stressed or unproductive is seen as personal weakness. As a result, many people find it difficult to talk about emotional problems – be it a missed project deadline, a loss in the family or an eating disorder. It’s easier to open up to someone who has similar problems and can empathize. But how to identify the people that can offer support when everyone tries to hide their struggles? Most people that are in emotional distress don’t decide to seek help until they have been in increasing pain for a prolonged amount of time. Only about 35% of people suffering from depression are receiving treatment. On average, 11 months have passed before even these few seek out professional help. The Shit Show is one approach towards addressing this pressing situation. The students : Omri Kaufmann, Pauline Schlautmann, Luisa Weyrich and Nele Groeger are in here so you can contact them directly) (@Omri_Kaufmann , @Pauline , @LuisaWey and @NeleG )... I know they're very passionate about the topic, and would love to bring this initiative to other Schools and Universities. They're even running a crowdfunding campaign to finance the costs involved. Perhaps there",/post/26034,2017-01-22T21:22:19.000Z,2017-01-22T21:22:19.000Z,26034,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,54 8565,v1.0,,"This project was developed during Hacking Utopia - a three month course on product design for social and demographic change. The course format was developed by Prof. Susanne Stauch (@Susa)  and Nadia EL-Imam (me) in a partnership between UDK (Berlin University of the Arts) and Edgeryders: The Shit Show is an interactive pop-up exhibition designed to make the sensitive, 'taboo' issue of mental health more present and approachable to the public. Psychological struggles are still stigmatized, making it hard to reach out for help. We want to offer an alternative way for people to engage with the topic and develop mechanisms for support and resilience. Mental illnesses are one of the most widespread disabilities worldwide. In Germany alone, 4 million people are affected by issues like anxiety or depression. Yet, it’s a secret we all share. Seeking help for psychological struggles is still strongly associated with shame. Even being sad or stressed or unproductive is seen as personal weakness. As a result, many people find it difficult to talk about emotional problems – be it a missed project deadline, a loss in the family or an eating disorder. It’s easier to open up to someone who has similar problems and can empathize. But how to identify the people that can offer support when everyone tries to hide their struggles? Most people that are in emotional distress don’t decide to seek help until they have been in increasing pain for a prolonged amount of time. Only about 35% of people suffering from depression are receiving treatment. On average, 11 months have passed before even these few seek out professional help. The Shit Show is one approach towards addressing this pressing situation. The students : Omri Kaufmann, Pauline Schlautmann, Luisa Weyrich and Nele Groeger are in here so you can contact them directly) (@Omri_Kaufmann , @Pauline , @LuisaWey and @NeleG )... I know they're very passionate about the topic, and would love to bring this initiative to other Schools and Universities. They're even running a crowdfunding campaign to finance the costs involved. Perhaps there is room for collaboration",/post/26034,2017-01-22T21:22:10.000Z,2017-01-22T21:22:10.000Z,26034,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1140 9688,v1.0,,", @Shajara ! This school of yours sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?",/post/14631,2017-01-22T21:21:54.000Z,2017-01-22T21:21:54.000Z,14631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1383 9872,v1.0,,"Hello, @Alberto ! I think I may have not been clear in that while my school takes classes through the online platform we do live together during the school year. Though you do raise an interesting point of how to facilitate a similar sense of community through online communities. Have been a memeber of a few I think a big mistake a lot of groups try and do is replicate in person activites, like a bunch of people just hanging out through webcam. And to me that will always fall short of the live in person dynamic. I think one answer is to organizng physical met ups based off of promitiy of people, which works to an extent. But for me the best online communities I've been in have used the fact the memebers are so spread out to there advantage. I think a good example of this is Under 30 Changemakers, which hosts discussions and training through google hangouts. Instead of having broad web-chats they pre-choose discussion topics based off of community interests or world events and invite their memebers to bring in their perspective. That way people come in already invested in the topic and feel more connected to the community by interacting with members who share their passions.  Also, another activity that seems to go well it when people sign up to be matched with another random member for a skype session. The excitment of not knowing who you'll met but that you have this one community incommon is pretty enaging.",/post/17278,2017-01-22T21:21:47.000Z,2017-01-22T21:21:47.000Z,17278,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1435 9687,v1.0,,"Hello, @Alberto ! I think I may have not been clear in that while my school takes classes through the online platform we do live together during the school year. Though you do raise an interesting point of how to facilitate a similar sense of community through online communities. Have been a memeber of a few I think a big mistake a lot of groups try and do is replicate in person activites, like a bunch of people just hanging out through webcam. And to me that will always fall short of the live in person dynamic. I think one answer is to organizng physical met ups based off of promitiy of people, which works to an extent. But for me the best online communities I've been in have used the fact the memebers are so spread out to there advantage. I think a good example of this is Under 30 Changemakers, which hosts discussions and training through google hangouts. Instead of having broad web-chats they pre-choose discussion topics based off of community interests or world events and invite their memebers to bring in their perspective. That way people come in already invested in the topic and feel more connected to the community by interacting with members who share their passions.  Also, another activity that seems to go well it when people sign up to be matched with another random member for a skype session. The excitment of not knowing who you'll met but that you have this one community incommon is pretty enaging.",/post/17278,2017-01-22T21:21:39.000Z,2017-01-22T21:21:39.000Z,17278,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1383 9871,v1.0,,"Welcome, @Shajara ! This school of yours sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?",/post/14631,2017-01-22T21:21:23.000Z,2017-01-22T21:21:23.000Z,14631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1435 7066,v1.0,,"Welcome, @Shajara ! This school of yours sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?",/post/14631,2017-01-22T21:20:52.000Z,2017-01-22T21:20:52.000Z,14631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,751 11303,v1.0,,"I was doing a little research the other day into this group called WeCommunities  for health professionals - they organise dedicated regular twitter chats and  a recent one was ""What is it like being a student mental health nurse?"" They have it all archived should you want to have a look. I myself need to learn more about how it works, but it seems like there is a need for coping and sharing lessons as a professional too.",/post/7096,2017-01-22T21:20:43.000Z,2017-01-22T21:20:43.000Z,7096,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1797 8564,v1.0,,"I was doing a little research the other day into this group called WeCommunities  for health professionals - they organise dedicated regular twitter chats and  a recent one was ""What is it like being a student mental health nurse?"" They have it all archived should you want to have a look. I myself need to learn more about how it works, but it seems like there is a need for coping and sharing lessons as a professional too.",/post/7096,2017-01-22T21:20:36.000Z,2017-01-22T21:20:36.000Z,7096,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1140 7834,v1.0,,While we still working on figuring out a lot of how we address student well being (and build this university) it’s become clear that the future of student care must be holistic and not just reactive.,/post/724,2017-01-22T21:20:27.000Z,2017-01-22T21:20:27.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,955 10684,v1.0,,"The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their “Minerva Talk”, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.",/post/724,2017-01-22T21:20:21.000Z,2017-01-22T21:20:21.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1625 9350,v1.0,,"This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.",/post/724,2017-01-22T21:20:11.000Z,2017-01-22T21:20:11.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1294 10276,v1.0,,"The answer is Cultivating Care through Community! This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.",/post/724,2017-01-22T21:20:06.000Z,2017-01-22T21:20:06.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1499 5817,v1.0,,"The answer is Cultivating Care through Community! This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need. In addition, it’s no longer enough to focus solely on the counseling department’s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed. The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their “Minerva Talk”, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.   While we still working on figuring out a lot of how we address student well being (and build this university) it’s become clear that the future of student care must be holistic and not just reactive.",/post/724,2017-01-22T21:19:39.000Z,2017-01-22T21:19:39.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,377 5768,v1.0,,"The answer is Cultivating Care through Community! This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need. In addition, it’s no longer enough to focus solely on the counseling department’s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed. The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their “Minerva Talk”, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.   While we still working on figuring out a lot of how we address student well being (and build this university) it’s become clear that the future of student care must be holistic and not just reactive.",/post/724,2017-01-22T21:19:30.000Z,2017-01-22T21:19:30.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,375 10115,v1.0,,"Accessibility of Resources: In the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late. This has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues?",/post/724,2017-01-22T21:19:22.000Z,2017-01-22T21:19:22.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1451 7065,v1.0,,"All of this is facilitated by Minerva’s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students.   This unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students’ mental health and wellness! Minerva students’ have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities.",/post/724,2017-01-22T21:19:14.000Z,2017-01-22T21:19:14.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,751 7118,v1.0,,"I am a member of the Inaugural Class of Minerva Schools at K.G.I., as well as Minerva’s, Mental Health Services Programs Coordinator for Berlin and Buenos Aries. Which sounds great, but seriously, what the heck does that even mean? Minerva is a new university that aims to reimagine the paradigm of higher education, based on the science of learning. All classes are seminars, with a flipped classroom structure. Meaning that we students, learn the content on our own and spend time engaging with the deeper concepts behind the material. Moving the emphasis away from the professor teaching and instead towards students learning. All of this is facilitated by Minerva’s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students.   This unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students’ mental health and wellness! Minerva students’ have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities. Accessibility of Resources: In the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late. This has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues? The answer is Cultivating Care through Community! This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need. In addition, it’s no longer enough to focus solely on the counseling department’s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed. The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their “Minerva Talk”, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.   While we still working on figuring out a lot of how we address student well being (and build this university) it’s become clear that the future of student care must be holistic and not just reactive.   I’m curious to hear your thoughts and also what you are working on! Please connect with me or comment below.",/post/724,2017-01-22T21:18:47.000Z,2017-01-22T21:18:47.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,766 11302,v1.0,,"I am a member of the Inaugural Class of Minerva Schools at K.G.I., as well as Minerva’s, Mental Health Services Programs Coordinator for Berlin and Buenos Aries. Which sounds great, but seriously, what the heck does that even mean? Minerva is a new university that aims to reimagine the paradigm of higher education, based on the science of learning. All classes are seminars, with a flipped classroom structure. Meaning that we students, learn the content on our own and spend time engaging with the deeper concepts behind the material. Moving the emphasis away from the professor teaching and instead towards students learning. All of this is facilitated by Minerva’s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students.   This unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students’ mental health and wellness! Minerva students’ have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities. Accessibility of Resources: In the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late. This has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues? The answer is Cultivating Care through Community! This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need. In addition, it’s no longer enough to focus solely on the counseling department’s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed. The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their “Minerva Talk”, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.   While we still working on figuring out a lot of how we address student well being (and build this university) it’s become clear that the future of student care must be holistic and not just reactive.   I’m curious to hear your thoughts and also what you are working on! Please connect with me or comment below.",/post/724,2017-01-22T21:18:39.000Z,2017-01-22T21:18:39.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1797 8563,v1.0,,"I am a member of the Inaugural Class of Minerva Schools at K.G.I., as well as Minerva’s, Mental Health Services Programs Coordinator for Berlin and Buenos Aries. Which sounds great, but seriously, what the heck does that even mean? Minerva is a new university that aims to reimagine the paradigm of higher education, based on the science of learning. All classes are seminars, with a flipped classroom structure. Meaning that we students, learn the content on our own and spend time engaging with the deeper concepts behind the material. Moving the emphasis away from the professor teaching and instead towards students learning. All of this is facilitated by Minerva’s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students.   This unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students’ mental health and wellness! Minerva students’ have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities. Accessibility of Resources: In the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late. This has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues? The answer is Cultivating Care through Community! This is where my work comes in. As a student working on the school’s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need. In addition, it’s no longer enough to focus solely on the counseling department’s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed. The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their “Minerva Talk”, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.   While we still working on figuring out a lot of how we address student well being (and build this university) it’s become clear that the future of student care must be holistic and not just reactive.   I’m curious to hear your thoughts and also what you are working on! Please connect with me or comment below.",/post/724,2017-01-22T21:18:29.000Z,2017-01-22T21:18:29.000Z,724,3323,AnnotatorStore::TextAnnotation,,,,,,,,,691,1140 7506,v1.0,,"Despite a cold and rainy evening the FES cycling event was successful.  The test riders got carried away pedalling with FES activated legs. This was an open air event showing functional and fun use of scientific results. The imperession was that the BerkelBike was useful and we should work on making more readily available. More information here:http://wehandu.it/it/eventi/",/post/29078,2017-01-22T21:13:13.000Z,2017-01-22T21:13:13.000Z,29078,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,873 6328,v1.0,,"Hi @Alberto, you are very right.. However I have been cycling around milano on tandem with a trailer (thats a long veicule) and two kids. I've learned that the trick is to know where to go and its a challenge (https://edgeryders.eu/en/can-we-hack-or-tweak-maps-to-help-where-infrastructure-fails-for-soft) we have to work on after our kick off event :http://wehandu.it/it/fesbici/",/post/27818,2017-01-22T21:12:54.000Z,2017-01-22T21:12:54.000Z,27818,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,454 7074,v1.0,,Yes @Alberto that's the key and why we do a FES cycling event. We also need marketing guys to promote and recruit (we have not been effective at that). Can you or others help out?,/post/26960,2017-01-22T21:12:47.000Z,2017-01-22T21:12:47.000Z,26960,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,752 7073,v1.0,,"scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition – it is unusually flat for Italy, and that helps. When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness. Bicycle lanes where almost absent. As a consequence, only ""extreme cycling"" happened: young, fit men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this: But over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles a day. Eventually, the city council started to take cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.  What this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of early adopters that pave the way (literally, in this case) for everyone else.",/post/26048,2017-01-22T21:12:39.000Z,2017-01-22T21:12:39.000Z,26048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,752 11199,v1.0,,"Traffic is scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition – it is unusually flat for Italy, and that helps. When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness. Bicycle lanes where almost absent. As a consequence, only ""extreme cycling"" happened: young, fit men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this: But over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles a day. Eventually, the city council started to take cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.  What this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of early adopters that pave the way (literally, in this case) for everyone else.",/post/26048,2017-01-22T21:12:20.000Z,2017-01-22T21:12:20.000Z,26048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,1765 10197,v1.0,,"Traffic is scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition – it is unusually flat for Italy, and that helps. When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness. Bicycle lanes where almost absent. As a consequence, only ""extreme cycling"" happened: young, fit men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this: But over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles a day. Eventually, the city council started to take cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.",/post/26048,2017-01-22T21:12:13.000Z,2017-01-22T21:12:13.000Z,26048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,1483 6327,v1.0,,"Traffic is scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition – it is unusually flat for Italy, and that helps. When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness. Bicycle lanes where almost absent. As a consequence, only ""extreme cycling"" happened: young, fit men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this: But over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles a day. Eventually, the city council started to take cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.  What this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of early adopters that pave the way (literally, in this case) for everyone else.",/post/26048,2017-01-22T21:12:04.000Z,2017-01-22T21:12:04.000Z,26048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,454 8786,v1.0,,"Thanks for sharing this @Rune. I cannot begin to imagine how good it must feel for someone with paralyzed legs to bike independently again. We have good biking infrastructure in my city/Belgium in general, but I rarely see handbikes actually.  About where to try the FES bikes: are the bikes customized to the user? Or could you imagine a network of users who are up for letting others test their bike from time to time. On top of that people meet and connect, they are more involved and it's not a huge cost for anyone.",/post/19646,2017-01-22T21:10:27.000Z,2017-01-22T21:10:27.000Z,19646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,1155 6326,v1.0,,"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I’m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling?",/post/759,2017-01-22T21:10:17.000Z,2017-01-22T21:10:17.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,454 6325,v1.0,,"Thanks for sharing this @Rune. I cannot begin to imagine how good it must feel for someone with paralyzed legs to bike independently again. We have good biking infrastructure in my city/Belgium in general, but I rarely see handbikes actually.  About where to try the FES bikes: are the bikes customized to the user? Or could you imagine a network of users who are up for letting others test their bike from time to time. On top of that people meet and connect, they are more involved and it's not a huge cost for anyone.",/post/19646,2017-01-22T21:10:07.000Z,2017-01-22T21:10:07.000Z,19646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,454 8029,v1.0,,"it's really amazing, nice job @Rune, in my country there is a lot of people who suffer from weakening leg muscle and poliomelite.  Those people are usually left aside and need someone's hand to move. On the other side, infrastructure and access to office, public area are not yet developed.",/post/13970,2017-01-22T21:09:58.000Z,2017-01-22T21:09:58.000Z,13970,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,1004 8785,v1.0,,"it's really amazing, nice job @Rune, in my country there is a lot of people who suffer from weakening leg muscle and poliomelite.  Those people are usually left aside and need someone's hand to move. On the other side, infrastructure and access to office, public area are not yet developed.",/post/13970,2017-01-22T21:09:52.000Z,2017-01-22T21:09:52.000Z,13970,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,1155 7703,v1.0,,"My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”.",/post/759,2017-01-22T21:09:26.000Z,2017-01-22T21:09:26.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,920 6278,v1.0,,"My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”.",/post/759,2017-01-22T21:09:14.000Z,2017-01-22T21:09:14.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,448 7980,v1.0,,"How can we build research into practice or at least make options much more accessible? The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community Even handbikes which are more popular can’t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.",/post/759,2017-01-22T21:09:02.000Z,2017-01-22T21:09:02.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,987 5406,v1.0,,"The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community",/post/759,2017-01-22T21:08:53.000Z,2017-01-22T21:08:53.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,302 8028,v1.0,,"How can we build research into practice or at least make options much more accessible? The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community Even handbikes which are more popular can’t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients. My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”. Why should you, me or anyone care about the future of research? you want to see your tax money spent well, don’t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/759,2017-01-22T21:08:42.000Z,2017-01-22T21:08:42.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,1004 6086,v1.0,,"How can we build research into practice or at least make options much more accessible? The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community Even handbikes which are more popular can’t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients. My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”. Why should you, me or anyone care about the future of research? you want to see your tax money spent well, don’t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/759,2017-01-22T21:08:19.000Z,2017-01-22T21:08:19.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,427 4529,v1.0,,"How can we build research into practice or at least make options much more accessible? The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community Even handbikes which are more popular can’t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients. My own group’s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: “The FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living”. Why should you, me or anyone care about the future of research? you want to see your tax money spent well, don’t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/759,2017-01-22T21:08:10.000Z,2017-01-22T21:08:10.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,12 7505,v1.0,,"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I’m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling? FES - short for functional electrical stimulation - can be used to activate paralyzed muscles by impulses imitating the nervous system in the most natural way possible. We have come a long way with our research and it is possible to use this technique to let people with paralyzed legs cycle again. For some reason there are very few people who know about this so I’d like to share this knowledge with you. We cycle to move, but also to maintain fit. It can be both fun and functional. But, if your legs don't obey you anymore, you will probably not consider it a possibility. Paralyzed legs can result from an accident breaking your back, a stroke or a sneaking disease like the multiple sclerosis.   People caring for and curing you need to be very pragmatic, and you with them. Mobility then becomes reduced to passive transport, a dietetic approach to avoiding getting fat and medication of pressure sores and other side effects from lack of physical exercise. That’s where the publicly unknown FES research comes into play. Years of clinical research have consolidated the benefits, but we need to spread the news and understand more about it. Some people may already have heard of handbikes. They allow you to cover greater distances than manual wheelchairs. They are special tricycles where you use the hands for pedaling. FES, on the other side, is applied via adhesive electrodes or incorporated in bicycle shorts. The stimulus activates the muscles of the buttocks and thighs in sync with the ride.  However only the leg muscles can challenge the cardiovascular system to get physically fit. Some people with for example spinal cord injury (paraplegia) may be able to use FES for activating these large muscles.  With FES cycling they can cover greater distances with greater speed and due to activation of large muscles they get (bene-)fit and feel physical well-being. The research community has tried to promote a more widespread use of FES cycling by arranging races (see here) and publications with the user's statements of the pros and cons (see here).",/post/759,2017-01-22T21:07:15.000Z,2017-01-22T21:07:15.000Z,759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,726,873 5713,v1.0,,"We got hold of things like kiwis, lemons, green salad and baby spinach in too decent shape. Such good food is dumped every single day! We’d love more people to join, run events or just wave, from here and from the Internet. We’re thinking of hosting more intimate meals cooked from our own food surplus but for extended friends circles, then gradually expand so the new people coming in at every step are immersed in an already knowledgeable group. I have a hunch this favors deeper learning and behavior change. Another thing we’d like to do is move forward with Yello Fridge (community based, outdoor and public) an idea that only needs a neighborhood space to get started. I’d also be curious to hear if you’ve participated in similar food related events. Do you have advice for how to run community dinners regularly and outstandingly?",/post/798,2017-01-22T21:05:31.000Z,2017-01-22T21:05:31.000Z,798,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,361 5741,v1.0,,"We got hold of things like kiwis, lemons, green salad and baby spinach in too decent shape. Such good food is dumped every single day! We’d love more people to join, run events or just wave, from here and from the Internet. We’re thinking of hosting more intimate meals cooked from our own food surplus but for extended friends circles, then gradually expand so the new people coming in at every step are immersed in an already knowledgeable group. I have a hunch this favors deeper learning and behavior change. Another thing we’d like to do is move forward with Yello Fridge (community based, outdoor and public) an idea that only needs a neighborhood space to get started. I’d also be curious to hear if you’ve participated in similar food related events. Do you have advice for how to run community dinners regularly and outstandingly?",/post/798,2017-01-22T21:05:19.000Z,2017-01-22T21:05:19.000Z,798,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,366 6016,v1.0,,"We set up a 60 people afternoon event in a week, in a very lightweight mode. I think it’s worth sharing why and how we did it: Context exists - a Repair Cafe Week full of activities in town and already talking about circular economy. That helped promote the event in only a few days time in a period quite busy for Cluj, helped it be part of a bigger mobilization and also get some media attention. Large enough venue is available - The Paintbrush Factory, a former factory-turned-contemporary-art-collective has a cosy room for events equipped with minimal cooking infrastructure; we were able to bring add-ons with no problem (except the lights going off for like an hour, but well, can’t plan it all! :-)) Crazy levels of enthusiasm and capacity are just.. there! I don’t know if it’s the food effect, but so many people chimed in and brought own assets to the table: Cimbru, a local food truck with patient cooks helping everyone find a role; Casa de Cultura Permanenta, a local open house already prototyping circularity in every possible way! and their resident volunteers; FWC team coordinating on an online wiki to plan and split tasks; photographers supporting the cause; Local markets and a large shopping centre donating throw away food and also pretty decent one! It took us up to two hours to collect 35 kg of fruit and vegetables. You spend more time getting to and from locations than on the actual food collection. Outstanding community connectors gently nudging everyone - how else could you mobilize effortlessly a team of teams?! @Ponyo  is one of them for sure. Some pocket money is available - we spent 200 Romanian lei (<50 EUR) in cash shopping for extra ingredients. That’s it, the rest of the funding was in kind (think small contributions like cooking tools brought from home, venue and electricity offered for free, gas to get to the venue etc). Saturday afternoon time - people were available, they came and enjoyed working in the kitchen or just hang out as you’d usually do on weekends. Appetite for food, drinks, conversation - we had 5 lovely courses including desserts (will just say: La Bonbonniere :P), a variety of locally sourced drinks and pretty diverse people, although mostly young.",/post/798,2017-01-22T21:03:56.000Z,2017-01-22T21:03:56.000Z,798,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,412 5712,v1.0,,"Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual performance before we started eating. I've been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn't come out always as great as I remember it - that's probably the rule of cooking with random leftovers).",/post/23981,2017-01-22T21:03:26.000Z,2017-01-22T21:03:26.000Z,23981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,361 6015,v1.0,,"Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual performance before we started eating. I've been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn't come out always as great as I remember it - that's probably the rule of cooking with random leftovers).",/post/23981,2017-01-22T21:03:19.000Z,2017-01-22T21:03:19.000Z,23981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,412 7480,v1.0,,"Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual performance before we started eating. I've been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn't come out always as great as I remember it - that's probably the rule of cooking with random leftovers).",/post/23981,2017-01-22T21:03:13.000Z,2017-01-22T21:03:13.000Z,23981,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,860 7479,v1.0,,"A much-needed initiative and a fun night at that, congratulations! In Belgium there is a lot of stuff happening around food surplus. Plenty of young people are launching projects and little companies around the idea. Mainly in Brussels, but also in Ghent and other cities. There's a an overarching organisation that connects and supports all the initiatives: Food Surplus Entrepreneurs Network. They share experience, knowledge, connections and raise awareness. The last weeks they did a succesful campaign for recuperating surplus apples, Juice for Change. Fruit leftovers are a major problem for Belgian farmers at the moment. From idea to execution and launching their crowdfunding it took about one week, with plenty of volunteers pitching in. I hear similar community dinners popping up here and there, but I haven't been.",/post/19863,2017-01-22T21:02:49.000Z,2017-01-22T21:02:49.000Z,19863,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,860 5711,v1.0,,"I'm Sabina, an Environmental Protection master's student from Cluj, Ro, who has attended the event. I was honestly very impressed with the event, I congratulate the initiative and the work behind it and even if I was there only to help with the preparing of the food, tasting of the delicious soup and amazing carrot cake, I couldn't help but notice and fully enjoy the community feeling roaming around while slicing potatoes and washing dishes while the food was being prepared by the chefs and volunteers. Even though my thesis is precisely on Food Waste, and I've gained knowledge on the issue while researching, I was so sad to find out about the baby spinach, lemon and other products that were left to rot next to one of the hypermarkets' dumpsters in town.  ... I can only be happy the Food Waste Combat team came 'to the rescue' and I hope I will be able to attend more of their events (and give a helping hand) that would slowly bring awareness regarding this burning issue that we only see the smoke of... yet.",/post/14250,2017-01-22T21:02:34.000Z,2017-01-22T21:02:34.000Z,14250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,361 7478,v1.0,,"I'm Sabina, an Environmental Protection master's student from Cluj, Ro, who has attended the event. I was honestly very impressed with the event, I congratulate the initiative and the work behind it and even if I was there only to help with the preparing of the food, tasting of the delicious soup and amazing carrot cake, I couldn't help but notice and fully enjoy the community feeling roaming around while slicing potatoes and washing dishes while the food was being prepared by the chefs and volunteers. Even though my thesis is precisely on Food Waste, and I've gained knowledge on the issue while researching, I was so sad to find out about the baby spinach, lemon and other products that were left to rot next to one of the hypermarkets' dumpsters in town.  ... I can only be happy the Food Waste Combat team came 'to the rescue' and I hope I will be able to attend more of their events (and give a helping hand) that would slowly bring awareness regarding this burning issue that we only see the smoke of... yet.",/post/14250,2017-01-22T21:02:26.000Z,2017-01-22T21:02:26.000Z,14250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,860 10927,v1.0,,You don’t have to be an expert on food or run a civic organisation to claim a say in a pressing issue - the issue is 100% unresolved and no one can claim authority on it.. so: blank slate to experiment!,/post/10666,2017-01-22T21:01:44.000Z,2017-01-22T21:01:44.000Z,10666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,1685 7477,v1.0,,"Lately I’ve been having sudden cravings to get offline and do to things with my hands which don’t involve a keyboard. With several people in town we hosted a community dinner as a way to take action against something happening every day under our noses - massive good food throwaway. By households, restaurants, markets and especially supermarkets, by you, by your family, by your neighbor, by me. We collected food close to being dumped and got people to cook together and share a meal while interacting heavily around the issue. I won’t ramble about why it’s important we pay more attention to food overall - from where and how far it comes from, the cost of having nicely chopped avocados on a restaurant plate, to how we pick stuff off the supermarket shelves and never wonder where the brown bananas are going, to how we realize our canned peas are overdue after having been hidden in overstuffed fridges or pantries (it’s a trap!). You know this already, right? Food Waste Combat in Cluj (FWC) is a local collective experimenting with creative ways to address the issue, and I joined them for many selfish reasons, but mostly because I’d like to see food activism reach educated, resourceful urbanites. I’m one of them and I think as a group we can do better. We’re well positioned to use a tiny bit of our time doing something other than work, other than expensive hobbies, other than just consuming. It seems teaching each other how to eat is a pretty low hanging fruit.",/post/798,2017-01-22T21:00:45.000Z,2017-01-22T21:00:45.000Z,798,3323,AnnotatorStore::TextAnnotation,,,,,,,,,765,860 7034,v1.0,,"I came across this article about a competition in South Korea where people do, well, nothing and immediately thought of this conversation thread... ""Since the first competition was held two years ago, it's evolved into a full-on pageant with a panel of judges and a set of strict rules—no phones, no talking, no checking your watch, no dozing off. WoopsYang said more than 2,000 people signed up for the 70 contestant slots this year, and she had to hold qualifying rounds to select the best candidates."" Full article available here: http://www.vice.com/read/doing-nothing-has-become-a-sport-in-south-korea",/post/27792,2017-01-22T19:53:51.000Z,2017-01-22T19:53:51.000Z,27792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,739 6069,v1.0,,"After realising the community in which i grew up actually applied huge subconscious pressure on me through their projections of myself, through their expectations especially, and that so many of my life's actions were led by those thoughts in my head which were not really my thoughts. (i actually got married because everyone was telling me it's the right time and after some time it made sense...how crazy!).",/post/26015,2017-01-22T19:53:31.000Z,2017-01-22T19:53:31.000Z,26015,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,420 6911,v1.0,,"Hello friends, Very interesting topic and quite a common problem as well i believe. I will share with you few things in hope it is beneficial :). Haven't felt depression in years, sadness very rarely and short termed. I believe sadness comes from our inability to accept a certain situation, our resistence to it. If there is a situation we don't like we have only two choices: Accept it as it is or change it or at least try to change it. In both situations we shouldn't be depressed. If de did all in our power and failed to change it, we should be satisfied with ourselves and accept the outcome, since there is no alternative. However i do believe once sadness comes we should not try to supress it, let it run its course because anything else would be commiting violence upon our own nature and sadness would still manifest itself somehow. Good at school, always calm and good kid, inventive, reading since i was 5, playing chess since my 6th year...i can't really tell how many times i heard my family members say this dreadful phrase to their children: ""just take Jasen's example, can't you be like him"".  Than i was 27, married, hated my job, didn't love my wife, i was miserable and had a lot of health issues. I started wondering: ""how did i end up right here at this moment in life?"" I knew i totally went off my path but didn't yet realise how or where is my path.  After realising the community in which i grew up actually applied huge subconscious pressure on me through their projections of myself, through their expectations especially, and that so many of my life's actions were led by those thoughts in my head which were not really my thoughts. (i actually got married because everyone was telling me it's the right time and after some time it made sense...how crazy!). My next step was selfexploration, i had to get to know myself. I stayed at home reading books for months, Carlos Castaneda's books were an amazing discovery at that time. I went into nature for periods of isolation where i spent my time in silence and thought, and finally after some time i started meditating.  As far as success is concerned i agree with Alberto. Should we measure ourselves in comparison to others or by finding our own system of values and definition of success? For example i have 0 debt, built my own house by the age of 28, a good car and pretty much anything i need materially now...most of my friends think i am succesful. I would however consider myself succesful if i could succeed in creating a well balanced family full of love and respect, or if i could be nothing but a positive and inspiring experience for anyone who meets me. Or if i could attain permanent state of meditation for example. Also i have been with many women, and ofcourse friends i went out with always considered me lucky or succesful with women. Well again my definition of success is very different: i would have preferred to stay with the first one i loved...or with any i loved. Now, in retrospective i rather think i failed miserably with some of those women and brought really bad kharma on me through those ""successes"" :).",/post/26015,2017-01-22T19:53:18.000Z,2017-01-22T19:53:18.000Z,26015,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,710 4634,v1.0,,"Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don't think it's quite that simple. ""Being different"", going by a different value system, is itself entropic. Here's why: to accomplish anything, we humans need other humans. Other humans are attracted by ""successful"" (as per the dominant canon of what ""successful"" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners. So, being perceived as successful increases your chances of actually being successful.  That's not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.  An unfortunate consequence of this is that, the more different you want to be, the more energy you need to invest promoting yourself. The message is ""look at me, I am not a failure, I am a success by my own measure"". Social media are full of this, often cloaked in hyper-individualistic narratives, of the ""I quit my day job to follow my dream"" type. Which is ironic, because hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need for social acceptance.",/post/24963,2017-01-22T19:53:02.000Z,2017-01-22T19:53:02.000Z,24963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,39 5695,v1.0,,"Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don't think it's quite that simple. ""Being different"", going by a different value system, is itself entropic. Here's why: to accomplish anything, we humans need other humans. Other humans are attracted by ""successful"" (as per the dominant canon of what ""successful"" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners. So, being perceived as successful increases your chances of actually being successful.  That's not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.  An unfortunate consequence of this is that, the more different you want to be, the more energy you need to invest promoting yourself. The message is ""look at me, I am not a failure, I am a success by my own measure"". Social media are full of this, often cloaked in hyper-individualistic narratives, of the ""I quit my day job to follow my dream"" type. Which is ironic, because hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need for social acceptance.",/post/24963,2017-01-22T19:52:53.000Z,2017-01-22T19:52:53.000Z,24963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,357 6910,v1.0,,"Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don't think it's quite that simple. ""Being different"", going by a different value system, is itself entropic. Here's why: to accomplish anything, we humans need other humans. Other humans are attracted by ""successful"" (as per the dominant canon of what ""successful"" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners. So, being perceived as successful increases your chances of actually being successful.  That's not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.  An unfortunate consequence of this is that, the more different you want to be, the more energy you need to invest promoting yourself. The message is ""look at me, I am not a failure, I am a success by my own measure"". Social media are full of this, often cloaked in hyper-individualistic narratives, of the ""I quit my day job to follow my dream"" type. Which is ironic, because hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need for social acceptance.",/post/24963,2017-01-22T19:52:35.000Z,2017-01-22T19:52:35.000Z,24963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,710 6909,v1.0,,"I feel your plea, and as @KiraVde says I also wish I would not give too many fucks. Myself, I am afraid of taking things easy and slowing down, because I feel that if I am not going forward I am going backwards (by whatever standard!) and.. what if I stopped caring? That scares me the most I guess. At the same time I see a spiritual path in finding new ways of changing yourself to overcome challenges. I see these situations like signals telling me to adapt and find a new way to fit better.",/post/23909,2017-01-22T19:52:19.000Z,2017-01-22T19:52:19.000Z,23909,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,710 10042,v1.0,,"Saying that, the best strategy I have found up to now is to try to be rested, eat well, exercise, pursue some hobby and be happy. In exactly that order. As you build up energy the number of fucks given dramatically decreases and you are psychologically more resiliant. Sometimes very resiliant.",/post/23909,2017-01-22T19:52:10.000Z,2017-01-22T19:52:10.000Z,23909,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1446 6908,v1.0,,"One time I sat in grand écart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age, I'm not prepared to take the risk. When the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things. One: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary. Two: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass? On the question of how to help people to cope with expectations they can't and don't want to meet -  I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.",/post/20396,2017-01-22T19:51:57.000Z,2017-01-22T19:51:57.000Z,20396,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,710 6071,v1.0,,"One time I sat in grand écart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age, I'm not prepared to take the risk. When the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things. One: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary. Two: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass? On the question of how to help people to cope with expectations they can't and don't want to meet -  I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.",/post/20396,2017-01-22T19:51:48.000Z,2017-01-22T19:51:48.000Z,20396,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,421 6070,v1.0,,"I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case). Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does „real“ self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?  I think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own. How can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?",/post/666,2017-01-22T19:51:31.000Z,2017-01-22T19:51:31.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,421 6068,v1.0,,"One time I sat in grand écart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age, I'm not prepared to take the risk. When the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things. One: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary. Two: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass? On the question of how to help people to cope with expectations they can't and don't want to meet -  I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.",/post/20396,2017-01-22T19:51:17.000Z,2017-01-22T19:51:17.000Z,20396,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,420 10275,v1.0,,"I fully recognize myself -maybe a year back or so - in this picture. The advice I've been given is to learn first  to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the ""professional"" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can't do it alone, and shouldn't. So the challenge is finding those like minded communities which Alberto mentions and dreaming up solutions to make it better for more people. If you know of good projects do recommend, I'm very interested. This talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it already:",/post/16075,2017-01-22T19:51:01.000Z,2017-01-22T19:51:01.000Z,16075,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1499 4982,v1.0,,"I fully recognize myself -maybe a year back or so - in this picture. The advice I've been given is to learn first  to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the ""professional"" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can't do it alone, and shouldn't. So the challenge is finding those like minded communities which Alberto mentions and dreaming up solutions to make it better for more people. If you know of good projects do recommend, I'm very interested. This talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it already",/post/16075,2017-01-22T19:50:54.000Z,2017-01-22T19:50:54.000Z,16075,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,127 6907,v1.0,,"I fully recognize myself -maybe a year back or so - in this picture. The advice I've been given is to learn first  to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the ""professional"" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can't do it alone, and shouldn't. So the challenge is finding those like minded communities which Alberto mentions and dreaming up solutions to make it better for more people. If you know of good projects do recommend, I'm very interested. This talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it alread",/post/16075,2017-01-22T19:50:46.000Z,2017-01-22T19:50:46.000Z,16075,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,710 6906,v1.0,,"Hello Alberto, nice to meet you too! „But I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself in some other way.“ Exactly! Thanks for your ideas and input. I think that your idea of changing my own perception on success and failure is really a good starting point. But it is a piece of a much more complex puzzle, I guess. Building communities of like-minded people sounds good, too, and I see how the unMonastery project contributes to that. Maybe one could also find a way to promote an alternative vision for society within „mainstream culture“, whatever this is...",/post/11888,2017-01-22T19:50:33.000Z,2017-01-22T19:50:33.000Z,11888,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,710 6404,v1.0,,"We should not take the analogy too far, of course. But I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself in some other way. Maybe, then, it will not be a vulnerability at all that you do not like ticking boxes! In my experience, it helps to find communities of like-minded people, because it takes a lot of effort to be alone in upholding an alternative vision of society!",/post/9396,2017-01-22T19:50:17.000Z,2017-01-22T19:50:17.000Z,9396,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,474 4981,v1.0,,"I was and I am a part of that. And it strikes me that this kind of neoliberal thinking of „your life (and your success/failure) is your responsibility“ leads us sometimes to very harsh assumptions about ourselves and our peers. I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case). Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does „real“ self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?  I think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own. How can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?",/post/666,2017-01-22T19:49:51.000Z,2017-01-22T19:49:51.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,127 10274,v1.0,,"As the years went by, I began to understand that it was not the fact that Tina loved ticking off to-do-lists that  seemed so strange to me. It was the logic of efficiency, that I began to see everywhere. Peers trying to „get it all right“, to „avoid failing“. To master their own life as it was some kind of stress test. And to always be ready for the next job interview, a smooth and pleasing CV at hand. I was and I am a part of that. And it strikes me that this kind of neoliberal thinking of „your life (and your success/failure) is your responsibility“ leads us sometimes to very harsh assumptions about ourselves and our peers. I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case). Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does „real“ self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?  I think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own. How can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?",/post/666,2017-01-22T19:49:32.000Z,2017-01-22T19:49:32.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1499 8562,v1.0,,"Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does „real“ self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?",/post/666,2017-01-22T19:49:13.000Z,2017-01-22T19:49:13.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1140 10041,v1.0,,"Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does „real“ self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?",/post/666,2017-01-22T19:49:08.000Z,2017-01-22T19:49:08.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1446 4496,v1.0,,"I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case).",/post/666,2017-01-22T19:48:55.000Z,2017-01-22T19:48:55.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,5 8933,v1.0,,"I was and I am a part of that. And it strikes me that this kind of neoliberal thinking of „your life (and your success/failure) is your responsibility“ leads us sometimes to very harsh assumptions about ourselves and our peers. I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case). Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does „real“ self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?  I think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own. How can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?",/post/666,2017-01-22T19:48:47.000Z,2017-01-22T19:48:47.000Z,666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,633,1198 9349,v1.0,,"Great to see you made your way to Edgeryders @WinniePoncelet and thanks @Alex Levene for bringing me into this loop! I am indeed working with Winnie and a few others on an P2P initiative to let people grow edible insects at home. I saw the project as a slow burner. It is hard to bring the P2P approach to the public and it's a constant experiment to find the right approach to get is going. For me and the others, the project is going down on the priority ladder of all our activities...",/post/20249,2017-01-22T19:47:01.000Z,2017-01-22T19:47:01.000Z,20249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,1294 4848,v1.0,,"Thank you for sharing Noemi, that's also quite an interesting approach. Biotech is still in the early stage, but it should be possible. What I am especially curious about is how we can cooperate with different actors on the controversial issues, like GMO. We don't pick any side, because we don't think there should be polarized sides: we want to tell a nuanced story, which is the hardest task of all. But as soon as you involve big biotech, concerned citizens might drop out and self-censor. The same could happen vice versa. Perhaps it is ideal to steer clear of the subject for a while, there are so many other interesting things to talk about anyway. I've not met @Rozina, but I saw her around on some events in Brussels. I believe she was talking about schools for children with special needs, if I am not mistaken. But perhaps the same holds true for standard schools, we will try and find out",/post/18946,2017-01-22T19:46:38.000Z,2017-01-22T19:46:38.000Z,18946,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,99 5963,v1.0,,"In most of Europe schools have no money (I do not know the situation in Flanders). But they make great partners. In Italy, we have a legislation (and, by now, a tradition) of local businesses supporting extracurricular activities in schools. Good school principals build a network of local businesses they work with. So, it could work like this: you involve a school, then – together with the school principal – you target local businesses to support the activity.  Anyway, @WinniePoncelet , congrats, that's a great project. I live in Brussels, and will keep you guys on the map with a view of looking you up. We visited Gent just a couple of weeks ago with @teirdes – we would have knocked on your door if we had known you existed!",/post/18286,2017-01-22T19:46:22.000Z,2017-01-22T19:46:22.000Z,18286,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,395 4873,v1.0,,"Hi Noemi, thanks for that video. The instant sound of kombucha slime landing on that table blasting through my speakers made me laugh out loud during my morning coffee. An example of a workshop is a DNA Cluedo (or Clue?) game where children in group have to solve a murder using biochemical and forensic techniques. We haven't crossed any language borders yet, but hopefully we will in the future :). We're now going to start testing out in what way we can work together with schools. So far it seems like they have very limited means. We will try and make it work regardless, the way you mention might work. Thanks for the tips",/post/17283,2017-01-22T19:46:01.000Z,2017-01-22T19:46:01.000Z,17283,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,101 7117,v1.0,,"Hi Noemi, thanks for that video. The instant sound of kombucha slime landing on that table blasting through my speakers made me laugh out loud during my morning coffee. An example of a workshop is a DNA Cluedo (or Clue?) game where children in group have to solve a murder using biochemical and forensic techniques. We haven't crossed any language borders yet, but hopefully we will in the future :). We're now going to start testing out in what way we can work together with schools. So far it seems like they have very limited means. We will try and make it work regardless, the way you mention might work. Thanks for the tips",/post/17283,2017-01-22T19:45:55.000Z,2017-01-22T19:45:55.000Z,17283,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,766 9174,v1.0,,"Places like ReaGent spark creativity in sciences by working in an accessible, open and flexible manner. Their mission now is to give access to this type of education to the whole of Flanders, and extend their network by inviting for example designers to come and create biodegradable materials. As OPENandchange allied, ReaGent would bring about the same qualities to the application: they would bring scientific education, which in turn would be used in innovation and hacking applicable in care. If you have advice or another project which is relevant, let's discuss it here. A question to get the discussion going: what is the fairest way in the long term to fund education outside of, but as an addition to, the traditional state-funded system - from who and how?",/post/715,2017-01-22T19:45:18.000Z,2017-01-22T19:45:18.000Z,715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,1262 4872,v1.0,,"People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future. The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it’s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.",/post/715,2017-01-22T19:45:09.000Z,2017-01-22T19:45:09.000Z,715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,101 4538,v1.0,,"People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future. The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it’s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.",/post/715,2017-01-22T19:45:02.000Z,2017-01-22T19:45:02.000Z,715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,13 9173,v1.0,,"People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future. The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it’s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.",/post/715,2017-01-22T19:44:54.000Z,2017-01-22T19:44:54.000Z,715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,1262 4847,v1.0,,"Reagent is a term used in chemistry to describe a process in which one determines a presence of a substance by sparking a chemical reaction with it. In Ghent, ReaGent is a space opened by enthusiasts of bioengineering in order to spark interest and passion for natural sciences among the citizens of the city. And to prove that the increasing know-how will play a huge role in innovation and future of technology, also with a local focus. People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future. The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it’s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it. I have been involved in ReaGent since over a year. The space offers both paid and unpaid access and program - the privileged ones fund this way free classes for poorer children. Part of the funding comes also from the memberships, which guarantee access to the lab 2 days a week. Places like ReaGent spark creativity in sciences by working in an accessible, open and flexible manner. Their mission now is to give access to this type of education to the whole of Flanders, and extend their network by inviting for example designers to come and create biodegradable materials. As OPENandchange allied, ReaGent would bring about the same qualities to the application: they would bring scientific education, which in turn would be used in innovation and hacking applicable in care. If you have advice or another project which is relevant, let's discuss it here. A question to get the discussion going: what is the fairest way in the long term to fund education outside of, but as an addition to, the traditional state-funded system - from who and how?",/post/715,2017-01-22T19:44:37.000Z,2017-01-22T19:44:37.000Z,715,3323,AnnotatorStore::TextAnnotation,,,,,,,,,682,99 7794,v1.0,,"So this is a cheap herbal remedy. It grows really well in these tropical regions, and quite fast too. So it does not take up a lot of cost in production, except for its processing which could cost quite a bit. But this advantage allows us to produce en masse and a cost efficient rate, so we are able to give it out to the public at incredibly cheap prices - cheap enough to have daily supplies affordable by just anyone. Since these are teas in tea bags, it makes it even better.",/post/22191,2017-01-22T19:44:07.000Z,2017-01-22T19:44:07.000Z,22191,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,944 8498,v1.0,,"ello Ivan, what a great research project you have going on! If you can push the research further and pour it into some kind of organisation for distribution, I bet it would have a large impact. How do you think you could make the tea reach the people who need it most but can't afford it, and avoid it only reaching the happy few (like the often prosperous superfood buyers as Noemi mentioned) who don't really need it but can afford it?",/post/20937,2017-01-22T19:43:56.000Z,2017-01-22T19:43:56.000Z,20937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,1128 4888,v1.0,,"Thank you @Alberto, for commenting and reading. No, the rats did not take the tea. We injected the bioactive agents (the contents) of the leaves into the rats. Then we observed them with a glucometer. And yes, I think sipping the moringa tea would provide blood regulatory function. Because during digestion, this enters from the gut into the bloodstream, and that's where it serves this function. I have already conducted experiments on this with diabetic humans too (who take the tea), and indeed the moringa tea has very powerful blood regulatory effect.",/post/11034,2017-01-22T19:43:39.000Z,2017-01-22T19:43:39.000Z,11034,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,106 8845,v1.0,,"Thank you @Alberto, for commenting and reading. No, the rats did not take the tea. We injected the bioactive agents (the contents) of the leaves into the rats. Then we observed them with a glucometer. And yes, I think sipping the moringa tea would provide blood regulatory function. Because during digestion, this enters from the gut into the bloodstream, and that's where it serves this function. I have already conducted experiments on this with diabetic humans too (who take the tea), and indeed the moringa tea has very powerful blood regulatory effe",/post/11034,2017-01-22T19:43:35.000Z,2017-01-22T19:43:35.000Z,11034,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,1171 6894,v1.0,,"This is good news to diabetic sufferers in Africa; it is good news to poor children and families in Africa who cannot afford quality health care. This is good news to hypertensive patients and the obese. This is good news to Africa. My dream is that this project greatly lowers mortality rate in Africa, and if we are not being too optimistic, perhaps...just perhaps, we may begin to realize stronger development.",/post/725,2017-01-22T19:43:24.000Z,2017-01-22T19:43:24.000Z,725,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,704 8844,v1.0,,"My name is Ivan Ezeigbo. I am 20 years old, and currently a sophomore at Minerva Schools at KGI, California, USA. I was inspired by Monica Marcu’s book, The Miracle Tree, to research with a team back in Nigeria on the blood regulatory power of the contents of the leaves of a very medicinal plant. It is a herbal plant that has just drawn a lot of attention in its potential to cure over three hundred ailments. This is the Moringa Oleifera. We experimented on Wistar albino rats. The idea was to inject alloxan intraperitoneally to all groups of Wistar albino rats with healthy working pancreas (alloxan increases blood sugar level, thus inducing hyperglycaemia or making them “pseudo-diabetic”). The bioactive agents of moringa leaves were extracted with ethanol and water, and two groups of the rats were treated each with these contents. An additional group was treated with synthetic insulin (insulin is a natural blood regulatory hormone that brings down blood sugar level), and all three groups were observed. We discovered that the group of Wistar albino rats treated with the bioactive agents of the moringa leaves extracted with water had a SIGNIFICANTLY SIMILAR blood sugar level as those treated with synthetic insulin, and less significant with those treated with ethanol. This unearthened two truths. First, moringa has powerful blood regulatory effects, almost equivalent to the natural insulin. Secondly, water is a better extraction agent than ethanol, unlike the case for many other plant leaves. Aside its blood regulatory power, moringa also cures diarrhea, and many other bacterial and fungal infections. It is also a healthy store for numerous nutrients, vitamins and amino acids. It also thrives very well in these tropical regions of Africa, especially the Southern Nigeria. Armed with this knowledge, I took up the entrepreneurial project of making moringa teas using tea bags because this would not only help a lot of poor people in Nigeria, and Africa in general, who cannot afford or obtain quality health care, but would be a cheap and accessible way of maintaining a healthy lifestyle. Furthermore, since water is a good extraction agent for moringa, moringa teas would provide consumers the maximal health benefits. Even though, I have not had the necessary funding and have been self-funding this project, my motivation to help people live longer and healthier has kept this dream going, and I have not tired out in bringing this to fruition. I am still conducting researches and experiments on my tea, and I have just purchased about two plots of land for moringa farming. I would still need to set up an industry where these teas will be processed.",/post/725,2017-01-22T19:43:13.000Z,2017-01-22T19:43:13.000Z,725,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,1171 7793,v1.0,,"My name is Ivan Ezeigbo. I am 20 years old, and currently a sophomore at Minerva Schools at KGI, California, USA. I was inspired by Monica Marcu’s book, The Miracle Tree, to research with a team back in Nigeria on the blood regulatory power of the contents of the leaves of a very medicinal plant. It is a herbal plant that has just drawn a lot of attention in its potential to cure over three hundred ailments. This is the Moringa Oleifera. We experimented on Wistar albino rats. The idea was to inject alloxan intraperitoneally to all groups of Wistar albino rats with healthy working pancreas (alloxan increases blood sugar level, thus inducing hyperglycaemia or making them “pseudo-diabetic”). The bioactive agents of moringa leaves were extracted with ethanol and water, and two groups of the rats were treated each with these contents. An additional group was treated with synthetic insulin (insulin is a natural blood regulatory hormone that brings down blood sugar level), and all three groups were observed. We discovered that the group of Wistar albino rats treated with the bioactive agents of the moringa leaves extracted with water had a SIGNIFICANTLY SIMILAR blood sugar level as those treated with synthetic insulin, and less significant with those treated with ethanol. This unearthened two truths. First, moringa has powerful blood regulatory effects, almost equivalent to the natural insulin. Secondly, water is a better extraction agent than ethanol, unlike the case for many other plant leaves. Aside its blood regulatory power, moringa also cures diarrhea, and many other bacterial and fungal infections. It is also a healthy store for numerous nutrients, vitamins and amino acids. It also thrives very well in these tropical regions of Africa, especially the Southern Nigeria. Armed with this knowledge, I took up the entrepreneurial project of making moringa teas using tea bags because this would not only help a lot of poor people in Nigeria, and Africa in general, who cannot afford or obtain quality health care, but would be a cheap and accessible way of maintaining a healthy lifestyle. Furthermore, since water is a good extraction agent for moringa, moringa teas would provide consumers the maximal health benefits. Even though, I have not had the necessary funding and have been self-funding this project, my motivation to help people live longer and healthier has kept this dream going, and I have not tired out in bringing this to fruition. I am still conducting researches and experiments on my tea, and I have just purchased about two plots of land for moringa farming. I would still need to set up an industry where these teas will be processed.",/post/725,2017-01-22T19:43:04.000Z,2017-01-22T19:43:04.000Z,725,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,944 9550,v1.0,,"This is good news to diabetic sufferers in Africa; it is good news to poor children and families in Africa who cannot afford quality health care. This is good news to hypertensive patients and the obese. This is good news to Africa. My dream is that this project greatly lowers mortality rate in Africa, and if we are not being too optimistic, perhaps...just perhaps, we may begin to realize stronger development.",/post/725,2017-01-22T19:42:46.000Z,2017-01-22T19:42:46.000Z,725,3323,AnnotatorStore::TextAnnotation,,,,,,,,,692,1341 8282,v1.0,,"Since the crisis begun, it is becoming increasingly difficult to do anything in a formal, legal way. This is one of the main reasons why most groups here operate under the radar -which on the other hand is not necessarily a bad thing. But this means that growth comes in relatively slow steps and is hindered by the lack of access to funds and other resources. For example, setting up an NGO costs around €1000 and has an annual €1000 ‘trade tax’ (literally a levy to allow you to do business) -this applies to social enterprises too. And although this is not as bad as having to prepay 100% of next year’s taxation like with most small businesses (or 50% for farmers) it still might pose a problem for people who want to do exactly that: do something without business profit in mind.",/post/560,2017-01-22T19:30:48.000Z,2017-01-22T19:30:48.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,1074 9216,v1.0,,"Hellenic Network for Agroecology, Food Sovereignty and Access to Land Since the crisis begun, it is becoming increasingly difficult to do anything in a formal, legal way. This is one of the main reasons why most groups here operate under the radar -which on the other hand is not necessarily a bad thing. But this means that growth comes in relatively slow steps and is hindered by the lack of access to funds and other resources. For example, setting up an NGO costs around €1000 and has an annual €1000 ‘trade tax’ (literally a levy to allow you to do business) -this applies to social enterprises too. And although this is not as bad as having to prepay 100% of next year’s taxation like with most small businesses (or 50% for farmers) it still might pose a problem for people who want to do exactly that: do something without business profit in mind.",/post/560,2017-01-22T19:30:41.000Z,2017-01-22T19:30:41.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,1269 8102,v1.0,,"Together with Antonis Diamantidis, a fellow food sovereignty activist, farmer, and organiser of a CSA group of producers called ‘Corinthian Orchard’ we have just launched this scheme aiming to create direct links between small agroecological producers of Greece and CSAs, food coops etc in other European countries by providing each party with what they need in a fair and respectful way. Our goal is to not compete with the local farmers and thus we will only export produce that is consumed but does not grow in their regions -like citrus fruits and olive oil. Through this we will be actively supporting small Greek farmers, who suffer from land fragmentation and stand...at the bottom of the food chain with respect to the markets and the middlemen. We are also hoping to include ‘ugly fruits’ in this scheme raising even more awareness on food dumping/waste/loss issues. For more information on this please look here or write to antonis@perivolikorinthou.gr",/post/560,2017-01-22T19:30:34.000Z,2017-01-22T19:30:34.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,1026 7116,v1.0,,"in mind is summarized in the following fields of action: Assist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible. In collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides. Save Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land’s status as a common good. Increase awareness and offer technical support, training, and tools to create CSA schemes around the country. Promote the creation of Food Policy Councils around the country. Become the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes. So if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces",/post/560,2017-01-22T19:30:25.000Z,2017-01-22T19:30:25.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,766 10413,v1.0,,"Assist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible. In collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides. Save Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land’s status as a common good. Increase awareness and offer technical support, training, and tools to create CSA schemes around the country. Promote the creation of Food Policy Councils around the country. Become the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes. So if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces",/post/560,2017-01-22T19:30:13.000Z,2017-01-22T19:30:13.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,1540 4793,v1.0,,"Assist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible. In collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides. Save Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land’s status as a common good. Increase awareness and offer technical support, training, and tools to create CSA schemes around the country. Promote the creation of Food Policy Councils around the country. Become the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes. So if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces",/post/560,2017-01-22T19:29:54.000Z,2017-01-22T19:29:54.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,80 7476,v1.0,,"Hellenic Network for Agroecology, Food Sovereignty and Access to Land Since the crisis begun, it is becoming increasingly difficult to do anything in a formal, legal way. This is one of the main reasons why most groups here operate under the radar -which on the other hand is not necessarily a bad thing. But this means that growth comes in relatively slow steps and is hindered by the lack of access to funds and other resources. For example, setting up an NGO costs around €1000 and has an annual €1000 ‘trade tax’ (literally a levy to allow you to do business) -this applies to social enterprises too. And although this is not as bad as having to prepay 100% of next year’s taxation like with most small businesses (or 50% for farmers) it still might pose a problem for people who want to do exactly that: do something without business profit in mind. So in this context, I am happy to announce that we are currently in the process of setting up our grass-roots non-profit organisation to to help us with our endeavours in these fields. What we have in mind is summarized in the following fields of action: Assist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible. In collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides. Save Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land’s status as a common good. Increase awareness and offer technical support, training, and tools to create CSA schemes around the country. Promote the creation of Food Policy Councils around the country. Become the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes. So if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces",/post/560,2017-01-22T19:29:47.000Z,2017-01-22T19:29:47.000Z,560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,527,859 10582,v1.0,,"Be it inflated or just rubbery soft (silicone is a great material to play with at home!). One particularly interesting aspect is that it uses a different engineering paradigm I dare say. Usually things are treated as broken if they deform (past an elongation of 0.2% typically). If you look at the majority of what matters on this planet - deformations (sometimes quite large) are the norm! The reasons there is such a difference in approaches is to a large degree historical and does NOT make much sense for very many applications. In fact prothesis are a nice example of the old paradigm hit the wall pretty bad: If you replace a bone (which is pretty soft compared to what we usually design for in the engineering world!) with a much ""stiffer"" (technical term) artificial limb and you now jump with such a replaced bone things don't end well. While the artificial limb can (and does) take higher stresses - their neighboring bones typically do not - and eventually are wrecked. Fly feet, cockroach feet, gecko feet are also utterly fascinating subjects if you delve into them!",/post/6954,2017-01-22T19:29:07.000Z,2017-01-22T19:29:07.000Z,6954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5103,1586 8733,v1.0,,"I was reminded of this story when reading the headlines these days, how Germany's trend of receiving refugees was considerably reversed in 2016 and worse, people are now sent back to the borders of Europe (elsewhere called ""voluntary deportations""?!). Also, I re-assigned this story to the ""Policies of Care"" challenge. | @Franca",/post/7469,2017-01-22T19:28:02.000Z,2017-01-22T19:28:02.000Z,7469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1150 6427,v1.0,,"I was reminded of this story when reading the headlines these days, how Germany's trend of receiving refugees was considerably reversed in 2016 and worse, people are now sent back to the borders of Europe (elsewhere called ""voluntary deportations""?!). Also, I re-assigned this story to the ""Policies of Care"" challenge. | @Franca",/post/7469,2017-01-22T19:27:55.000Z,2017-01-22T19:27:55.000Z,7469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,482 8776,v1.0,,"Hey, I now think this post may have slipped attention because it doesn't have ""boat clinics"" in its title! Thanks for getting the story, Natalia. I find it meaningful that while it was one small idea in the beginning, it has evolved into a public program due to involvement of district administration, WB and UNICEF - all of which helped it scale and work out a run-of-the-mill approach. I found this telling quote by a gov employee: ""The government has the resources and the mandate to create a thousand Ships of Hope that will bring health to people who are at the receiving end of a highly volatile and moody river. We need the  humility and the willingness to learn from those who know better""",/post/7189,2017-01-22T19:27:12.000Z,2017-01-22T19:27:12.000Z,7189,3323,AnnotatorStore::TextAnnotation,,,,,,,,,675,1153 7430,v1.0,,"Hey, I now think this post may have slipped attention because it doesn't have ""boat clinics"" in its title! Thanks for getting the story, Natalia. I find it meaningful that while it was one small idea in the beginning, it has evolved into a public program due to involvement of district administration, WB and UNICEF - all of which helped it scale and work out a run-of-the-mill approach. I found this telling quote by a gov employee: ""The government has the resources and the mandate to create a thousand Ships of Hope that will bring health to people who are at the receiving end of a highly volatile and moody river. We need the  humility and the willingness to learn from those who know better""",/post/7189,2017-01-22T19:27:05.000Z,2017-01-22T19:27:05.000Z,7189,3323,AnnotatorStore::TextAnnotation,,,,,,,,,675,847 7429,v1.0,,"There’s not much focus on Asia in our research - therefore, I’d like to present you some inspiring initiatives from India and Nepal, which present a very different approach to delivering care: actually delivering it. First, of them is MV Akha, a floating clinic that travels along Brahmaputra Netri to the inhabitants of the saporis/the islands. One look at the map of the region is enough to understand how difficult for them it would be to access hospitals and doctors otherwise. 2500 islands sit on the Indian part of the river, which starts from the Tibetan mountains and flows through the Assam region, being a home to 3 million people, 10% of the region’s population. There are numerous reasons why providing these places with health care is particularly difficult: due to huge shortages of doctors in India to start with (0.7 per 1000 people), shifting territories of these islands, unstable population and difficult living conditions: they’re connected to the land by boats and suffer from frequent energy and drinking water deficit. Not to mention strikingly high numbers in maternal and infant mortality. Sanjoy Hazarika pitched the idea of floating clinics to the World Bank in 2000 and received their support - 20,000 dollars to start with. One year later the first boat sailed to bring care to the Assamese, and until today, 14 more followed. The project was eventually joined by the state, which established a public-private partnership with the trust and started funding the offered service. Each month around 20.000 people in total are reached by these facilities. Some of the doctors who joined the ships helped to improve their service. One of the keys to success is frequency - by ensuring that each island is visited at least once a month it is possible to take good care of immunization and condition of pregnant women. They also bring the basic medicine, which is cheap in India - but if one needs to hire a boat to get it, the costs soar. And the service provided by the boat is free - the funds provided by the state amount for 72 400 000 million rupees per year - which, after covering the costs of the boat and the staff, means that there are 480 rupees per person left. Around 5 dollars per year. More about the project here: http://www.c-nes.org/programmes/boat-clinics Photo comes from http://www.tehelka.com/2014/07/boat-clinics-provide-healthcare-to-3-million-people-in-assams-river-islands/",/post/708,2017-01-22T19:26:50.000Z,2017-01-22T19:26:50.000Z,708,3323,AnnotatorStore::TextAnnotation,,,,,,,,,675,847 8775,v1.0,,"There’s not much focus on Asia in our research - therefore, I’d like to present you some inspiring initiatives from India and Nepal, which present a very different approach to delivering care: actually delivering it. First, of them is MV Akha, a floating clinic that travels along Brahmaputra Netri to the inhabitants of the saporis/the islands. One look at the map of the region is enough to understand how difficult for them it would be to access hospitals and doctors otherwise. 2500 islands sit on the Indian part of the river, which starts from the Tibetan mountains and flows through the Assam region, being a home to 3 million people, 10% of the region’s population. There are numerous reasons why providing these places with health care is particularly difficult: due to huge shortages of doctors in India to start with (0.7 per 1000 people), shifting territories of these islands, unstable population and difficult living conditions: they’re connected to the land by boats and suffer from frequent energy and drinking water deficit. Not to mention strikingly high numbers in maternal and infant mortality. Sanjoy Hazarika pitched the idea of floating clinics to the World Bank in 2000 and received their support - 20,000 dollars to start with. One year later the first boat sailed to bring care to the Assamese, and until today, 14 more followed. The project was eventually joined by the state, which established a public-private partnership with the trust and started funding the offered service. Each month around 20.000 people in total are reached by these facilities. Some of the doctors who joined the ships helped to improve their service. One of the keys to success is frequency - by ensuring that each island is visited at least once a month it is possible to take good care of immunization and condition of pregnant women. They also bring the basic medicine, which is cheap in India - but if one needs to hire a boat to get it, the costs soar. And the service provided by the boat is free - the funds provided by the state amount for 72 400 000 million rupees per year - which, after covering the costs of the boat and the staff, means that there are 480 rupees per person left. Around 5 dollars per year. More about the project here: http://www.c-nes.org/programmes/boat-clinics Photo comes from http://www.tehelka.com/2014/07/boat-clinics-provide-healthcare-to-3-million-people-in-assams-river-islands/",/post/708,2017-01-22T19:26:44.000Z,2017-01-22T19:26:44.000Z,708,3323,AnnotatorStore::TextAnnotation,,,,,,,,,675,1153 8774,v1.0,,"First, of them is MV Akha, a floating clinic that travels along Brahmaputra Netri to the inhabitants of the saporis/the islands. One look at the map of the region is enough to understand how difficult for them it would be to access hospitals and doctors otherwise. 2500 islands sit on the Indian part of the river, which starts from the Tibetan mountains and flows through the Assam region, being a home to 3 million people, 10% of the region’s population.",/post/708,2017-01-22T19:26:33.000Z,2017-01-22T19:26:33.000Z,708,3323,AnnotatorStore::TextAnnotation,,,,,,,,,675,1153 6473,v1.0,,"Where: Hungary When: 2013   Who: Róbert Csordás, Gergely Joós, Tibor Szabó   About: MobilECG is an opensource clinical ECG. It is designed to record with 2 to 10 wires for up to 5 days. The device can be connected to a mobile device wirelessly.",/post/762,2017-01-22T19:21:40.000Z,2017-01-22T19:21:40.000Z,762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,729,485 9136,v1.0,,"Where: Hungary When: 2013   Who: Róbert Csordás, Gergely Joós, Tibor Szabó   About: MobilECG is an opensource clinical ECG. It is designed to record with 2 to 10 wires for up to 5 days. The device can be connected to a mobile device wirelessly.",/post/762,2017-01-22T19:21:32.000Z,2017-01-22T19:21:32.000Z,762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,729,1257 8779,v1.0,,"Where: Hungary When: 2013   Who: Róbert Csordás, Gergely Joós, Tibor Szabó   About: MobilECG is an opensource clinical ECG. It is designed to record with 2 to 10 wires for up to 5 days. The device can be connected to a mobile device wirelessly.",/post/762,2017-01-22T19:21:26.000Z,2017-01-22T19:21:26.000Z,762,3323,AnnotatorStore::TextAnnotation,,,,,,,,,729,1154 10486,v1.0,,"I’m an artist, photographer and animator based in Galway, Ireland. I got a chance to be part of an exhibition with Galway Design Hub painting pallet furniture. It was part of An Áit Eile’s “What Now?” event at Arus na nGael and the Arts Centre in the heart of the city. I remember arriving at the venue, there was an energy there that was contagious, it was electric. All of these people coming together to create an event, to celebrate design. I am big into animation and drawing, I love photography, I'm in first year of art college where i'm involved with the CCAFS (Climate Change Agriculture and Food Security) society in the National University of Ireland (NUIG). One thing I helped with was clothes swaps, to try to counteract the issues around clothing production. I’ve just participated in AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. What interested me about coming to Cregg was the idea of different people getting together with a myriad of skills, living together, using a space and learning from each other, in pretty much every way possible. It’s exciting!",/post/807,2017-01-22T19:20:45.000Z,2017-01-22T19:20:45.000Z,807,3323,AnnotatorStore::TextAnnotation,,,,,,,,,774,1557 10040,v1.0,,"What a story, @Timothy_Daly. Thank you for sharing it with us, and welcome to Edgeryders and OpenCare, our research project.  This really makes you wonder, reminded me of the Rosenhan experiment. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. Do you have ideas on how to better the situation for someone like Dave? is a temp squat really doing anything good for him, or what would be a way to recovery that is dignifying? If you're involved in or know of systematic community efforts, do tell.   If you're more into the research and observation: we're struggling to put together a brief for stories about mental resilience, a set of questions that are solution-oriented and not intimidate people to share things that after all are very private in an online environment. Help if this is something of interest to you?",/post/7227,2017-01-22T19:20:04.000Z,2017-01-22T19:20:04.000Z,7227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,1446 4519,v1.0,,"What a story, @Timothy_Daly. Thank you for sharing it with us, and welcome to Edgeryders and OpenCare, our research project.  This really makes you wonder, reminded me of the Rosenhan experiment. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. Do you have ideas on how to better the situation for someone like Dave? is a temp squat really doing anything good for him, or what would be a way to recovery that is dignifying? If you're involved in or know of systematic community efforts, do tell.   If you're more into the research and observation: we're struggling to put together a brief for stories about mental resilience, a set of questions that are solution-oriented and not intimidate people to share things that after all are very private in an online environment. Help if this is something of interest to you?",/post/7227,2017-01-22T19:19:59.000Z,2017-01-22T19:19:59.000Z,7227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,9 5124,v1.0,,"When we arrived to move into the house, we seemed like an unlikely crew. There were three lads living there already - Kieron, Dave and Billy. Kieron was the leader. He had a drill. Billy was very pale and very thin - kind of morose somehow while at the same time desperately optimistic. He looked like he hadn't seen a vitamin in months. Dave on the other hand, was just mad. At this point, quite obviously, even certifiably, mad. Just a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. They say what doesn't kill you makes you stronger, but I'm not so sure I believe them. Dave's approach was to break out of the place and find himself a squat to live in with a couple of mates and several total strangers, one of whom had been recognised by Kieron from a free party, when they bumped into each other down at the job centre. Its amazing what gets hatched down at the job centre, and I'm not talking about anyone finding a job. But anyway, when we turned up at the squat, Dave was living on the sofa in the lounge in a haze of ashtray cigarettes and cheap cider, eyeing the curtains nervously and never far away from a large knife. You got the feeling he was pretty keen never to go back inside that place if there was anything he had to say about it. And he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either. Dave seemed to be doing pretty well as far as I could see, considering everything that he'd gone through so far in his life. He told me his Dad was always drunk and often violent. He said his mother had been killed, shot by a farmer standing in front of her dog trying to protect him while out for a walk. That was when he left home. He'd had a job as the look-out for a gang of thieves that robbed industrial units at the age of nine. A little later he'd gone to live with a family of Irish travellers who'd trained him to be a bareknuckle boxer, a discipline at which he was apparently quite talented. Some time after that he'd bought a house, back when they gave mortgages to people with no job, no credit rating and no intention whatsoever to make even a single repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment.   On the one hand, Kieron and Billy were quite happy to have Dave and his knives living on the sofa. After all, this was a squat, and you never know what might go down. Sometimes you have to defend a place, and while Kieron liked his drill, that was about the limit of his handiness. And if anything serious went off you'd most likely find Billy in a cupboard. So Dave had his uses. And anyway, they were mates. But in this condition, he wasn't exactly easy company. So naturally, Billy and Kieron started to pal up a little. They shared a floor in the house with a kitchen in it, they went outside from time to time. They liked to get stoned together, and have a laugh. But this was unsettling to Dave somehow. He'd been mates with Billy for years, since the time he bought the house. He had no family left, no real friends after all the alcoholism, the drugs, the crime, and the madness. Billy was about all he had. And now he was feeling him drifting away. It all came to a head one full moon. It 'd been building for a while. You could feel it all through the house, under the neon strip lights in the corridors. Tension. The more Dave got wound up, the more Kieron and Billy retreated into their little flat. Sometimes you could hear him shouting incoherently in the lounge on his own. It wasn't very reassuring. But on this particular night, we found him shouting slightly more coherently, and it wasn't at himself. It was directed at Kieron. Dave was pacing the lounge, muttering to himself, wild-eyed. Then suddenly, something snapped. He grabbed his largest knife from under the cushions of the sofa and stormed out in the direction of the stairs. Larissa, sharp as ever, phoned Kieron fast and told him to lock his door. She was just in time.   'Yer fuckin big gay bastard! Open t'door.'   'Fuck off Dave' said Kieron, with his foot set hard against the door to keep his demented friend from getting in.   It wasn't looking good. Dave was stabbing the door repeatedly with his enormous blade, while Kieron, who fortunately for him liked to eat a hearty meal, was leaning against it with all his weight.   'Open t'door or I'll fookin kill yer both'   If I open t'door, that's when you'll fookin kill us both, was more what it looked like.   The rest of us were gathering downstairs in the lounge. We'd known these people a week, and this was the only place we had to live. We were not ecstatic about the situation. And besides, we were worried, as much for Dave as for Kieron and Billy. We really liked Dave. He was a lovely lad, underneath all the addictive behaviour, the paranoia and the threat of imminent violence. I'd had a good connection with him from the start. We both had Irish ancestry. We shared a dark sense of humour. Dave's kind of funny was to make unbelievably hot curries, knowing that Billy didn't like them, but that he had no money and that there was no other food in the house. And then to watch Billy eating them, as his face got redder and redder, and his expressions grew ever more absurd. That was like Dave's perfect joke. So anyway, I headed up the stairs, with Dom close behind. The stairwell was pulsating, neon, harsh light. Nowhere to hide. Kieron's door was closed now, with the giant knife stuck in it, wobbling, and Dave half-shouting half-sobbing, desperately scared of losing his friend, his mind, his freedom. I wondered about his family history, and how much comprehension he had of his own emotional reality. It can't have been easy for him. And I thought about my own safety. But however erratic he'd been acting, I didn't feel any kind of malicious intent would be directed towards me.   'Dave, Dave. Dave man, it's me.'   Dave was in his own world, and it was breaking down.   'Dave, what's up man? Why don't you put the knife down?'   He kicked the door a couple of times, just desperate now, more than dangerous. My heart broke for him.   'Dave, you're bleeding mate! Look. Let me see that hand.'   Dave looked at his palm, which had been cut by the knife as he had rammed it repeatedly into the door. It wasn't serious, but it was badly enough to make a fair mess. The sight of his own blood seemed to bring him back to himself. All the fight had gone out of him now. You could see he was ready to be taken care of.   'You should get that seen to Dave. You want me to come with you mate, we'll go down to the A&E dept at the bottom of the road?'   He let me lead him away, still staring at his bloody palm, and I placed my arm around his shoulders as Dom discretely removed the knife from the door and hid it out of sight. The crisis it seemed, was over. At least for now. But still, we had an evidently pretty broken human being on our hands, and what the hell were we going to do about that?",/post/502,2017-01-22T19:19:42.000Z,2017-01-22T19:19:42.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,149 4518,v1.0,,"a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.",/post/502,2017-01-22T19:19:30.000Z,2017-01-22T19:19:30.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,9 7310,v1.0,,"Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.",/post/502,2017-01-22T19:19:25.000Z,2017-01-22T19:19:25.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,805 8281,v1.0,,"he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates",/post/502,2017-01-22T19:19:13.000Z,2017-01-22T19:19:13.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,1074 7309,v1.0,,"he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either.",/post/502,2017-01-22T19:19:03.000Z,2017-01-22T19:19:03.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,805 4583,v1.0,,"repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment.",/post/502,2017-01-22T19:18:44.000Z,2017-01-22T19:18:44.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,23 10039,v1.0,,"When we arrived to move into the house, we seemed like an unlikely crew. There were three lads living there already - Kieron, Dave and Billy. Kieron was the leader. He had a drill. Billy was very pale and very thin - kind of morose somehow while at the same time desperately optimistic. He looked like he hadn't seen a vitamin in months. Dave on the other hand, was just mad. At this point, quite obviously, even certifiably, mad. Just a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. They say what doesn't kill you makes you stronger, but I'm not so sure I believe them. Dave's approach was to break out of the place and find himself a squat to live in with a couple of mates and several total strangers, one of whom had been recognised by Kieron from a free party, when they bumped into each other down at the job centre. Its amazing what gets hatched down at the job centre, and I'm not talking about anyone finding a job. But anyway, when we turned up at the squat, Dave was living on the sofa in the lounge in a haze of ashtray cigarettes and cheap cider, eyeing the curtains nervously and never far away from a large knife. You got the feeling he was pretty keen never to go back inside that place if there was anything he had to say about it. And he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either. Dave seemed to be doing pretty well as far as I could see, considering everything that he'd gone through so far in his life. He told me his Dad was always drunk and often violent. He said his mother had been killed, shot by a farmer standing in front of her dog trying to protect him while out for a walk. That was when he left home. He'd had a job as the look-out for a gang of thieves that robbed industrial units at the age of nine. A little later he'd gone to live with a family of Irish travellers who'd trained him to be a bareknuckle boxer, a discipline at which he was apparently quite talented. Some time after that he'd bought a house, back when they gave mortgages to people with no job, no credit rating and no intention whatsoever to make even a single repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment.   On the one hand, Kieron and Billy were quite happy to have Dave and his knives living on the sofa. After all, this was a squat, and you never know what might go down. Sometimes you have to defend a place, and while Kieron liked his drill, that was about the limit of his handiness. And if anything serious went off you'd most likely find Billy in a cupboard. So Dave had his uses. And anyway, they were mates. But in this condition, he wasn't exactly easy company. So naturally, Billy and Kieron started to pal up a little. They shared a floor in the house with a kitchen in it, they went outside from time to time. They liked to get stoned together, and have a laugh. But this was unsettling to Dave somehow. He'd been mates with Billy for years, since the time he bought the house. He had no family left, no real friends after all the alcoholism, the drugs, the crime, and the madness. Billy was about all he had. And now he was feeling him drifting away. It all came to a head one full moon. It 'd been building for a while. You could feel it all through the house, under the neon strip lights in the corridors. Tension. The more Dave got wound up, the more Kieron and Billy retreated into their little flat. Sometimes you could hear him shouting incoherently in the lounge on his own. It wasn't very reassuring. But on this particular night, we found him shouting slightly more coherently, and it wasn't at himself. It was directed at Kieron. Dave was pacing the lounge, muttering to himself, wild-eyed. Then suddenly, something snapped. He grabbed his largest knife from under the cushions of the sofa and stormed out in the direction of the stairs. Larissa, sharp as ever, phoned Kieron fast and told him to lock his door. She was just in time.   'Yer fuckin big gay bastard! Open t'door.'   'Fuck off Dave' said Kieron, with his foot set hard against the door to keep his demented friend from getting in.   It wasn't looking good. Dave was stabbing the door repeatedly with his enormous blade, while Kieron, who fortunately for him liked to eat a hearty meal, was leaning against it with all his weight.   'Open t'door or I'll fookin kill yer both'   If I open t'door, that's when you'll fookin kill us both, was more what it looked like.   The rest of us were gathering downstairs in the lounge. We'd known these people a week, and this was the only place we had to live. We were not ecstatic about the situation. And besides, we were worried, as much for Dave as for Kieron and Billy. We really liked Dave. He was a lovely lad, underneath all the addictive behaviour, the paranoia and the threat of imminent violence. I'd had a good connection with him from the start. We both had Irish ancestry. We shared a dark sense of humour. Dave's kind of funny was to make unbelievably hot curries, knowing that Billy didn't like them, but that he had no money and that there was no other food in the house. And then to watch Billy eating them, as his face got redder and redder, and his expressions grew ever more absurd. That was like Dave's perfect joke. So anyway, I headed up the stairs, with Dom close behind. The stairwell was pulsating, neon, harsh light. Nowhere to hide. Kieron's door was closed now, with the giant knife stuck in it, wobbling, and Dave half-shouting half-sobbing, desperately scared of losing his friend, his mind, his freedom. I wondered about his family history, and how much comprehension he had of his own emotional reality. It can't have been easy for him. And I thought about my own safety. But however erratic he'd been acting, I didn't feel any kind of malicious intent would be directed towards me.   'Dave, Dave. Dave man, it's me.'   Dave was in his own world, and it was breaking down.   'Dave, what's up man? Why don't you put the knife down?'   He kicked the door a couple of times, just desperate now, more than dangerous. My heart broke for him.   'Dave, you're bleeding mate! Look. Let me see that hand.'   Dave looked at his palm, which had been cut by the knife as he had rammed it repeatedly into the door. It wasn't serious, but it was badly enough to make a fair mess. The sight of his own blood seemed to bring him back to himself. All the fight had gone out of him now. You could see he was ready to be taken care of.   'You should get that seen to Dave. You want me to come with you mate, we'll go down to the A&E dept at the bottom of the road?'   He let me lead him away, still staring at his bloody palm, and I placed my arm around his shoulders as Dom discretely removed the knife from the door and hid it out of sight. The crisis it seemed, was over. At least for now. But still, we had an evidently pretty broken human being on our hands, and what the hell were we going to do about that?",/post/502,2017-01-22T19:18:23.000Z,2017-01-22T19:18:23.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,1446 8561,v1.0,,"When we arrived to move into the house, we seemed like an unlikely crew. There were three lads living there already - Kieron, Dave and Billy. Kieron was the leader. He had a drill. Billy was very pale and very thin - kind of morose somehow while at the same time desperately optimistic. He looked like he hadn't seen a vitamin in months. Dave on the other hand, was just mad. At this point, quite obviously, even certifiably, mad. Just a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. They say what doesn't kill you makes you stronger, but I'm not so sure I believe them. Dave's approach was to break out of the place and find himself a squat to live in with a couple of mates and several total strangers, one of whom had been recognised by Kieron from a free party, when they bumped into each other down at the job centre. Its amazing what gets hatched down at the job centre, and I'm not talking about anyone finding a job. But anyway, when we turned up at the squat, Dave was living on the sofa in the lounge in a haze of ashtray cigarettes and cheap cider, eyeing the curtains nervously and never far away from a large knife. You got the feeling he was pretty keen never to go back inside that place if there was anything he had to say about it. And he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either. Dave seemed to be doing pretty well as far as I could see, considering everything that he'd gone through so far in his life. He told me his Dad was always drunk and often violent. He said his mother had been killed, shot by a farmer standing in front of her dog trying to protect him while out for a walk. That was when he left home. He'd had a job as the look-out for a gang of thieves that robbed industrial units at the age of nine. A little later he'd gone to live with a family of Irish travellers who'd trained him to be a bareknuckle boxer, a discipline at which he was apparently quite talented. Some time after that he'd bought a house, back when they gave mortgages to people with no job, no credit rating and no intention whatsoever to make even a single repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment.   On the one hand, Kieron and Billy were quite happy to have Dave and his knives living on the sofa. After all, this was a squat, and you never know what might go down. Sometimes you have to defend a place, and while Kieron liked his drill, that was about the limit of his handiness. And if anything serious went off you'd most likely find Billy in a cupboard. So Dave had his uses. And anyway, they were mates. But in this condition, he wasn't exactly easy company. So naturally, Billy and Kieron started to pal up a little. They shared a floor in the house with a kitchen in it, they went outside from time to time. They liked to get stoned together, and have a laugh. But this was unsettling to Dave somehow. He'd been mates with Billy for years, since the time he bought the house. He had no family left, no real friends after all the alcoholism, the drugs, the crime, and the madness. Billy was about all he had. And now he was feeling him drifting away. It all came to a head one full moon. It 'd been building for a while. You could feel it all through the house, under the neon strip lights in the corridors. Tension. The more Dave got wound up, the more Kieron and Billy retreated into their little flat. Sometimes you could hear him shouting incoherently in the lounge on his own. It wasn't very reassuring. But on this particular night, we found him shouting slightly more coherently, and it wasn't at himself. It was directed at Kieron. Dave was pacing the lounge, muttering to himself, wild-eyed. Then suddenly, something snapped. He grabbed his largest knife from under the cushions of the sofa and stormed out in the direction of the stairs. Larissa, sharp as ever, phoned Kieron fast and told him to lock his door. She was just in time.   'Yer fuckin big gay bastard! Open t'door.'   'Fuck off Dave' said Kieron, with his foot set hard against the door to keep his demented friend from getting in.   It wasn't looking good. Dave was stabbing the door repeatedly with his enormous blade, while Kieron, who fortunately for him liked to eat a hearty meal, was leaning against it with all his weight.   'Open t'door or I'll fookin kill yer both'   If I open t'door, that's when you'll fookin kill us both, was more what it looked like.   The rest of us were gathering downstairs in the lounge. We'd known these people a week, and this was the only place we had to live. We were not ecstatic about the situation. And besides, we were worried, as much for Dave as for Kieron and Billy. We really liked Dave. He was a lovely lad, underneath all the addictive behaviour, the paranoia and the threat of imminent violence. I'd had a good connection with him from the start. We both had Irish ancestry. We shared a dark sense of humour. Dave's kind of funny was to make unbelievably hot curries, knowing that Billy didn't like them, but that he had no money and that there was no other food in the house. And then to watch Billy eating them, as his face got redder and redder, and his expressions grew ever more absurd. That was like Dave's perfect joke. So anyway, I headed up the stairs, with Dom close behind. The stairwell was pulsating, neon, harsh light. Nowhere to hide. Kieron's door was closed now, with the giant knife stuck in it, wobbling, and Dave half-shouting half-sobbing, desperately scared of losing his friend, his mind, his freedom. I wondered about his family history, and how much comprehension he had of his own emotional reality. It can't have been easy for him. And I thought about my own safety. But however erratic he'd been acting, I didn't feel any kind of malicious intent would be directed towards me.   'Dave, Dave. Dave man, it's me.'   Dave was in his own world, and it was breaking down.   'Dave, what's up man? Why don't you put the knife down?'   He kicked the door a couple of times, just desperate now, more than dangerous. My heart broke for him.   'Dave, you're bleeding mate! Look. Let me see that hand.'   Dave looked at his palm, which had been cut by the knife as he had rammed it repeatedly into the door. It wasn't serious, but it was badly enough to make a fair mess. The sight of his own blood seemed to bring him back to himself. All the fight had gone out of him now. You could see he was ready to be taken care of.   'You should get that seen to Dave. You want me to come with you mate, we'll go down to the A&E dept at the bottom of the road?'   He let me lead him away, still staring at his bloody palm, and I placed my arm around his shoulders as Dom discretely removed the knife from the door and hid it out of sight. The crisis it seemed, was over. At least for now. But still, we had an evidently pretty broken human being on our hands, and what the hell were we going to do about that?",/post/502,2017-01-22T19:18:13.000Z,2017-01-22T19:18:13.000Z,502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,469,1140 7762,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:16:09.000Z,2017-01-22T19:16:09.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,929 8095,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:15:59.000Z,2017-01-22T19:15:59.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1024 10849,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:15:45.000Z,2017-01-22T19:15:45.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1659 10810,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:15:35.000Z,2017-01-22T19:15:35.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1648 9719,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:15:28.000Z,2017-01-22T19:15:28.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1390 5731,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:15:17.000Z,2017-01-22T19:15:17.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,362 10038,v1.0,,"I've been a carpenter for 12 years, and for the last five I've been studying permaculture and horticulture. Last year I worked and lived on an organic farm learning how to care for the land. I'm currently living at home in Connemara, County Galway, setting up a market garden. I want to heal the land, and at the same time heal myself. Protecting and improving the health of the environment is an essential part of community, and the educational aspects are just as important as the production and supply of vegetables.   I’m also an Irish (Gaelic) speaker. My native language is important to me and is the primary language in Connemara. I would like to preserve old skills and knowledge by involving the old and young in the process of gardening, having them teach each other while strengthening their connection with nature.   I’ve recently attended AÁE’s pre-unMonastery event, a “Rural Reconnaissance” at Cregg Castle. It’s opened up more possibilities and the support of a network. I understand healing the land and I’m beginning to understand more about how humans heal too! It’s also inspired me to look at my current “tiny home” build with new eyes. Smaller, more mobile.  I love designing, making and the climate of the west of Ireland! Natural materials married with modern solutions also interests me. Old sitting beside new, form in balance with function. Design harmony.",/post/801,2017-01-22T19:15:00.000Z,2017-01-22T19:15:00.000Z,801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,768,1446 4620,v1.0,,"My dream is to create an alcohol-free social and entertainment venue in Galway. Ireland desperately needs alcohol-free spaces. An inclusive space for people to come together with music, dancing and activities, with rooms for workshops, classes and meetings.",/post/808,2017-01-22T19:14:26.000Z,2017-01-22T19:14:26.000Z,808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,775,36 7884,v1.0,,"started doing social media work 5 years ago. One of my creations is a facebook group 'House Hunting Galway (for sound people)’, facilitating people to network to find housing and house mates. It’s really important to have a safe space to live with people who suit you. The group grew to 26,000 people and counting. Another facebook group I started is Galway Underground Gigs, which has 6,000 members. I’m always connecting people with the right people, projects and events. Galway is a magic place that draws people here from all over the world, and I get to meet the most inspirational people.",/post/808,2017-01-22T19:14:14.000Z,2017-01-22T19:14:14.000Z,808,3323,AnnotatorStore::TextAnnotation,,,,,,,,,775,962 8560,v1.0,,"This is a beautiful story. In an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms. It seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they’re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them tech-savvy skills like using email, social media and Skype. The bonding created from spending time together is incredibly important for everyone. Social relationships are key to human well-being and in the maintenance of health. The intergenerational living model started in 2012, with a few more nursing homes follow.  Regular social interaction is necessary for mental health as well as social interaction. Read the complete story here:  https://goo.gl/LYUpPP",/post/809,2017-01-22T19:13:32.000Z,2017-01-22T19:13:32.000Z,809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,776,1140 5056,v1.0,,"This is a beautiful story. In an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms. It seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they’re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them tech-savvy skills like using email, social media and Skype. The bonding created from spending time together is incredibly important for everyone. Social relationships are key to human well-being and in the maintenance of health. The intergenerational living model started in 2012, with a few more nursing homes follow.  Regular social interaction is necessary for mental health as well as social interaction. Read the complete story here:  https://goo.gl/LYUpPP",/post/809,2017-01-22T19:13:22.000Z,2017-01-22T19:13:22.000Z,809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,776,144 8094,v1.0,,"This is a beautiful story. In an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms. It seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they’re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them tech-savvy skills like using email, social media and Skype. The bonding created from spending time together is incredibly important for everyone. Social relationships are key to human well-being and in the maintenance of health. The intergenerational living model started in 2012, with a few more nursing homes follow.  Regular social interaction is necessary for mental health as well as social interaction. Read the complete story here:  https://goo.gl/LYUpPP",/post/809,2017-01-22T19:13:17.000Z,2017-01-22T19:13:17.000Z,809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,776,1024 6166,v1.0,,"This is a beautiful story. In an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms. It seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they’re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them tech-savvy skills like using email, social media and Skype. The bonding created from spending time together is incredibly important for everyone. Social relationships are key to human well-being and in the maintenance of health. The intergenerational living model started in 2012, with a few more nursing homes follow.  Regular social interaction is necessary for mental health as well as social interaction. Read the complete story here:  https://goo.gl/LYUpPP",/post/809,2017-01-22T19:13:12.000Z,2017-01-22T19:13:12.000Z,809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,776,437 6431,v1.0,,"This is a beautiful story. In an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms. It seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they’re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them tech-savvy skills like using email, social media and Skype. The bonding created from spending time together is incredibly important for everyone. Social relationships are key to human well-being and in the maintenance of health. The intergenerational living model started in 2012, with a few more nursing homes follow.  Regular social interaction is necessary for mental health as well as social interaction. Read the complete story here:  https://goo.gl/LYUpPP",/post/809,2017-01-22T19:13:07.000Z,2017-01-22T19:13:07.000Z,809,3323,AnnotatorStore::TextAnnotation,,,,,,,,,776,483 5027,v1.0,,"Right on @Noemi :-). The article made me reflect on two different associations: 1. Often we (technicians) get carried away by fascinating possibilities of technology. Tech becomes interresting in it's own right rather than a means to solve a specific problem and @Moushira has a good start on that. Sometimes it even creates new health problems. Here the the mouse as a modern a health hazard comes into mind (it's provoking RSI, Carpal tunnel syndrome etc. simply put: wrist problems). It's easy to imagine similar issue",/post/16244,2017-01-22T19:12:36.000Z,2017-01-22T19:12:36.000Z,16244,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,138 10865,v1.0,,"1. Often we (technicians) get carried away by fascinating possibilities of technology. Tech becomes interresting in it's own right rather than a means to solve a specific problem and @Moushira has a good start on that. Sometimes it even creates new health problems. Here the the mouse as a modern a health hazard comes into mind (it's provoking RSI, Carpal tunnel syndrome etc. simply put: wrist problems). It's easy to imagine similar issues.",/post/16244,2017-01-22T19:12:24.000Z,2017-01-22T19:12:24.000Z,16244,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,1666 6472,v1.0,,"2. Some years ago i converted an old pc mouse into a ""finger extensometer"". Drilling a hole, springloading the optical encoding wheel wrapped with some fishing line. The line goes out though the hole and in the other end it was attached to a rubberring. That ring could be put on the e.g. index finger.  The idea was to solve a clinical issue with a tool for the physiotherapist training fingerextenstion of the impaired hand. (The typical hemiplegic hand after a stroke). Either the user could get a biofeedback when exercising finger extension, or it could be an evaluation tool to keeping track on the progress by providing objective measurement of amount of finger extension. If this 'Maestro' can do this task and if it is really easy to clone it could be a good candidate for this work (http://ifess.org/node/824). Currently there are some protocols (using expensive movement analysis labs), but if this could be a <50€ DIY instrument for a OpenCare rehabilitation it could be great. Anyone wants to continue the work? Who can make a pilot case study with a patient? (A validation of repeatability,reliability and correlation with a golden standard).  Stuff for an article (https://edgeryders.eu/en/opencare-research/quality-of-life-technologies-an-opportunity-for#comment-24005)",/post/16244,2017-01-22T19:12:12.000Z,2017-01-22T19:12:12.000Z,16244,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,485 8784,v1.0,,"BOM Arduino Pro Mini https://www.sparkfun.com/products/11113 9DOF IMU sensor stick https://www.sparkfun.com/products/10724 Copper tape (or any other small conductive material) 3 resistors (1~10 mega ohm, big resistance is better) Wires, tape 3D printer Link: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/ https://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es",/post/512,2017-01-22T19:11:44.000Z,2017-01-22T19:11:44.000Z,512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,1155 6471,v1.0,,"Hello everyone,  as Wemake we would like to share more research around existing products that align with the concept of care.   This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.  Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.  The posts to follow will elaborate on different technologies applied in open projects around the theme of care.   Maestro About:  Making your own finger mounted input device to control the cursor. Country: USA Year: 2015 By: Jonggi Hong - student of the course “Tangible Interactive Computing” taken by Professor Jon Froehlich at the University of Maryland, College Park.   It is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course ""Tangible Interactive Computing"" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers. How is it open? Maestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic). Anyone can clone and fork it. Source code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though:    BOM Arduino Pro Mini https://www.sparkfun.com/products/11113 9DOF IMU sensor stick https://www.sparkfun.com/products/10724 Copper tape (or any other small conductive material) 3 resistors (1~10 mega ohm, big resistance is better) Wires, tape 3D printer Link: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/ https://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es",/post/512,2017-01-22T19:11:37.000Z,2017-01-22T19:11:37.000Z,512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,485 9289,v1.0,,"Hello everyone,  as Wemake we would like to share more research around existing products that align with the concept of care.   This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.  Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.  The posts to follow will elaborate on different technologies applied in open projects around the theme of care.   Maestro About:  Making your own finger mounted input device to control the cursor. Country: USA Year: 2015 By: Jonggi Hong - student of the course “Tangible Interactive Computing” taken by Professor Jon Froehlich at the University of Maryland, College Park.   It is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course ""Tangible Interactive Computing"" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers. How is it open? Maestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic). Anyone can clone and fork it. Source code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though:    BOM Arduino Pro Mini https://www.sparkfun.com/products/11113 9DOF IMU sensor stick https://www.sparkfun.com/products/10724 Copper tape (or any other small conductive material) 3 resistors (1~10 mega ohm, big resistance is better) Wires, tape 3D printer Link: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/ https://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es",/post/512,2017-01-22T19:11:31.000Z,2017-01-22T19:11:31.000Z,512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,1283 9135,v1.0,,"Hello everyone,  as Wemake we would like to share more research around existing products that align with the concept of care.   This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.  Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.  The posts to follow will elaborate on different technologies applied in open projects around the theme of care.   Maestro About:  Making your own finger mounted input device to control the cursor. Country: USA Year: 2015 By: Jonggi Hong - student of the course “Tangible Interactive Computing” taken by Professor Jon Froehlich at the University of Maryland, College Park.   It is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course ""Tangible Interactive Computing"" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers. How is it open? Maestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic). Anyone can clone and fork it. Source code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though:    BOM Arduino Pro Mini https://www.sparkfun.com/products/11113 9DOF IMU sensor stick https://www.sparkfun.com/products/10724 Copper tape (or any other small conductive material) 3 resistors (1~10 mega ohm, big resistance is better) Wires, tape 3D printer Link: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/ https://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es",/post/512,2017-01-22T19:11:15.000Z,2017-01-22T19:11:15.000Z,512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,1257 7750,v1.0,,"Hello everyone,  as Wemake we would like to share more research around existing products that align with the concept of care.   This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.  Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.  The posts to follow will elaborate on different technologies applied in open projects around the theme of care.   Maestro About:  Making your own finger mounted input device to control the cursor. Country: USA Year: 2015 By: Jonggi Hong - student of the course “Tangible Interactive Computing” taken by Professor Jon Froehlich at the University of Maryland, College Park.   It is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course ""Tangible Interactive Computing"" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers. How is it open? Maestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic). Anyone can clone and fork it. Source code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though:    BOM Arduino Pro Mini https://www.sparkfun.com/products/11113 9DOF IMU sensor stick https://www.sparkfun.com/products/10724 Copper tape (or any other small conductive material) 3 resistors (1~10 mega ohm, big resistance is better) Wires, tape 3D printer Link: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/ https://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es",/post/512,2017-01-22T19:11:07.000Z,2017-01-22T19:11:07.000Z,512,3323,AnnotatorStore::TextAnnotation,,,,,,,,,479,924 8093,v1.0,,"Interesting story, @Yannick . I play computer games a bit myself, and found myself thinking about how the ""intergenerational up-levelling"" would work. Would the game need to know your age? And register your grandma's as a player? And she would ""approve"" your up-levelling? Gamers have a long tradition of ""cheatsheets"", and I can very well see someone logging in as gramdma to get the magic sword. If you (the game designer) fight it, then you get into a mess of identity verification...  I wonder if anyone has tried to design games where the gameplay itself favour intergenerational teams. Imagine a detective game where you'd need to be familiar with both youth-friendly and older generation-friendly cultural references. These can be quite badass: my mother's slightly older cousins, who lived through WW2 at the age of about 10, could tell the weapon from the sound of gunfire, or whether an aircraft was doing reconnaisance or likely to bomb their asses based on the engine's whine. I would have no idea ho to make it interesting to the young kids, though...",/post/20567,2017-01-22T19:09:43.000Z,2017-01-22T19:09:43.000Z,20567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,1024 7572,v1.0,,"Interesting story, @Yannick . I play computer games a bit myself, and found myself thinking about how the ""intergenerational up-levelling"" would work. Would the game need to know your age? And register your grandma's as a player? And she would ""approve"" your up-levelling? Gamers have a long tradition of ""cheatsheets"", and I can very well see someone logging in as gramdma to get the magic sword. If you (the game designer) fight it, then you get into a mess of identity verification...  I wonder if anyone has tried to design games where the gameplay itself favour intergenerational teams. Imagine a detective game where you'd need to be familiar with both youth-friendly and older generation-friendly cultural references. These can be quite badass: my mother's slightly older cousins, who lived through WW2 at the age of about 10, could tell the weapon from the sound of gunfire, or whether an aircraft was doing reconnaisance or likely to bomb their asses based on the engine's whine. I would have no idea ho to make it interesting to the young kids, though...",/post/20567,2017-01-22T19:09:39.000Z,2017-01-22T19:09:39.000Z,20567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,882 7565,v1.0,,"I see cowork spaces and hubs going for gaming nights targeted at youth, but it would look even better if they opened up the participants' age to include older people - maybe less pc and console games and more board games? The latter tend to be more social quicklier. Will keep your thoughts in mind.",/post/7467,2017-01-22T19:09:28.000Z,2017-01-22T19:09:28.000Z,7467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,881 10857,v1.0,,"A couple of years ago i participated to a contest called ‘5 voor 13’ that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don’t visit grandma anymore because she is to old… For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together. I grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn’t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I’m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my ‘mémé’ stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.   So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii’s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden? Well you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together. After presenting this project i finished third and got 500 euro’s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.  I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.",/post/783,2017-01-22T19:09:14.000Z,2017-01-22T19:09:14.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,1662 7175,v1.0,,For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.,/post/783,2017-01-22T19:08:38.000Z,2017-01-22T19:08:38.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,770 8092,v1.0,,"A couple of years ago i participated to a contest called ‘5 voor 13’ that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don’t visit grandma anymore because she is to old… For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together. I grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn’t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I’m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my ‘mémé’ stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.",/post/783,2017-01-22T19:08:31.000Z,2017-01-22T19:08:31.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,1024 8091,v1.0,,"So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii’s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?",/post/783,2017-01-22T19:07:59.000Z,2017-01-22T19:07:59.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,1024 10228,v1.0,,"So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii’s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?",/post/783,2017-01-22T19:07:51.000Z,2017-01-22T19:07:51.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,1487 6470,v1.0,,"A couple of years ago i participated to a contest called ‘5 voor 13’ that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don’t visit grandma anymore because she is to old… For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together. I grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn’t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I’m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my ‘mémé’ stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.   So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii’s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden? Well you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together. After presenting this project i finished third and got 500 euro’s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.  I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.",/post/783,2017-01-22T19:07:27.000Z,2017-01-22T19:07:27.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,485 7571,v1.0,,"A couple of years ago i participated to a contest called ‘5 voor 13’ that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don’t visit grandma anymore because she is to old… For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together. I grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn’t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I’m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my ‘mémé’ stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.   So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii’s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden? Well you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together. After presenting this project i finished third and got 500 euro’s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.  I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.",/post/783,2017-01-22T19:07:18.000Z,2017-01-22T19:07:18.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,882 7564,v1.0,,"A couple of years ago i participated to a contest called ‘5 voor 13’ that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don’t visit grandma anymore because she is to old… For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together. I grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn’t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I’m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my ‘mémé’ stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.   So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii’s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden? Well you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together. After presenting this project i finished third and got 500 euro’s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.  I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.",/post/783,2017-01-22T19:07:10.000Z,2017-01-22T19:07:10.000Z,783,3323,AnnotatorStore::TextAnnotation,,,,,,,,,750,881 10240,v1.0,,"Hi @Michel, I've harvested dandelion root to make a coffee-like drink before, and eaten the leaves and flowers. They're said to be good for the liver and in the past it was drunk by farmers, here in Ireland, to help maintain energy during in the winter months. I have no research to back these claims so I avoid using language stating it as fact. In Ireland we call them ""wet-the-beds"" which may indicate that they have diuretic properties:) They grow everywhere here, but sadly many gardeners see them as weeds and spray them with glyphosates. If dandelion roots were a ""cancer cure"" that would be great, but I don't think the claim is valid without links to clear research. If that research is ongoing that's excellent, I'm excited to hear more.",/post/20554,2017-01-22T19:06:43.000Z,2017-01-22T19:06:43.000Z,20554,3323,AnnotatorStore::TextAnnotation,,,,,,,,,772,1492 8497,v1.0,,"Hi @Michel, I've harvested dandelion root to make a coffee-like drink before, and eaten the leaves and flowers. They're said to be good for the liver and in the past it was drunk by farmers, here in Ireland, to help maintain energy during in the winter months. I have no research to back these claims so I avoid using language stating it as fact. In Ireland we call them ""wet-the-beds"" which may indicate that they have diuretic properties:) They grow everywhere here, but sadly many gardeners see them as weeds and spray them with glyphosates. If dandelion roots were a ""cancer cure"" that would be great, but I don't think the claim is valid without links to clear research. If that research is ongoing that's excellent, I'm excited to hear more.",/post/20554,2017-01-22T19:06:36.000Z,2017-01-22T19:06:36.000Z,20554,3323,AnnotatorStore::TextAnnotation,,,,,,,,,772,1128 8496,v1.0,,"That's right, I have a former colleague a botanist for being exact when I was working in the raining forest on the East of Madagascar whose work with a Professor called Daniel RAMAMPIERIKA. They search and apply on plants and biogas & ecological energy since 2013. The advice on how dandelion's roots come from that former colleague. The advantage of this research is we still have pure primary forest and the good positive point is they're trying to preserve those forest by researching and working on biogas and ecological energy.",/post/14143,2017-01-22T19:06:21.000Z,2017-01-22T19:06:21.000Z,14143,3323,AnnotatorStore::TextAnnotation,,,,,,,,,772,1128 5055,v1.0,,"hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too). What do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships? Do  you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I'm curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this.",/post/20540,2017-01-22T19:03:12.000Z,2017-01-22T19:03:12.000Z,20540,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,144 5748,v1.0,,"The way I understand it, managing real estate in an overheated real estate market like the UK's makes more money than producing care services. Hence the tension of these hedge funds that, as a result of being bottom-line oriented, focus on the buildings and not on the people.  The separation of assets from activities makes a ton of sense. I looked up community land trusts on Wikipedia (https://en.wikipedia.org/wiki/Community_land_trust), and I think I now understand how that might work. It seems to me there is an ""upstream"" problem: finding the money to take a valuable piece of real estate off the market forever, damn the capital gain. I don't see how this can be completely solved. The advantage of the CLT model is that you only have to do that ONCE. Once you have done it, the land is secure (except if the CLT goes bust, but I imagine CLTs are supposed to be very risk-averse). Am I getting this right? CLTs might be of interest to @Nadia in view of The Reef.",/post/17506,2017-01-22T19:02:44.000Z,2017-01-22T19:02:44.000Z,17506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,367 5747,v1.0,,"We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority. In care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human ""resources"" and patients as ""consumers"" of health care services, squeezing the system to extract wealth. This is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having ""owners"" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to ""delivery of health services"", which is quite a different thing. A useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn't otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure. To put it another way, using financial language, owning land has a different time horizon and a different risk profile  from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That's the theory anyhow.",/post/15711,2017-01-22T19:02:32.000Z,2017-01-22T19:02:32.000Z,15711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,367 7883,v1.0,,"We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority. In care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human ""resources"" and patients as ""consumers"" of health care services, squeezing the system to extract wealth. This is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having ""owners"" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to ""delivery of health services"", which is quite a different thing. A useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn't otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure. To put it another way, using financial language, owning land has a different time horizon and a different risk profile  from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That's the theory anyhow.",/post/15711,2017-01-22T19:02:07.000Z,2017-01-22T19:02:07.000Z,15711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,962 9610,v1.0,,"We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority. In care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human ""resources"" and patients as ""consumers"" of health care services, squeezing the system to extract wealth. This is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having ""owners"" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to ""delivery of health services"", which is quite a different thing. A useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn't otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure. To put it another way, using financial language, owning land has a different time horizon and a different risk profile  from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That's the theory anyhow.",/post/15711,2017-01-22T19:02:00.000Z,2017-01-22T19:02:00.000Z,15711,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1356 8280,v1.0,,"Legal structure:  Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home.  There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitabilit",/post/758,2017-01-22T19:01:33.000Z,2017-01-22T19:01:33.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1074 8391,v1.0,,"Care home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person's ""support system"". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected.",/post/758,2017-01-22T19:01:23.000Z,2017-01-22T19:01:23.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1105 5816,v1.0,,traditional community-based approaches to care-giving that are human-centred and sustainable.,/post/758,2017-01-22T19:00:50.000Z,2017-01-22T19:00:50.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,377 5097,v1.0,,"networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.",/post/758,2017-01-22T19:00:43.000Z,2017-01-22T19:00:43.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,147 9134,v1.0,,"open source communities, that harness collective intelligence to find new solutions to old problems; networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large. traditional community-based approaches to care-giving that are human-centred and sustainable.",/post/758,2017-01-22T19:00:39.000Z,2017-01-22T19:00:39.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1257 9609,v1.0,,"At the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the ""growth opportunities”.  The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff.",/post/758,2017-01-22T19:00:23.000Z,2017-01-22T19:00:23.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,1356 7308,v1.0,,"At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population’s increasingly complex care needs.",/post/758,2017-01-22T19:00:13.000Z,2017-01-22T19:00:13.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,805 7638,v1.0,,"At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population’s increasingly complex care needs.",/post/758,2017-01-22T19:00:07.000Z,2017-01-22T19:00:07.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,906 7174,v1.0,,"What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That’s our dream.  A bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix).  It is a familiar story.  The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly. At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population’s increasingly complex care needs. At the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the ""growth opportunities”.  The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff. Caring for Life is a diverse team has come together to seek a better solution. We are inspired by: open source communities, that harness collective intelligence to find new solutions to old problems; networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large. traditional community-based approaches to care-giving that are human-centred and sustainable. We intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see.  Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK. A key operating principle will be to involve all ""stakeholders"".  Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture. Care home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person's ""support system"". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected. Legal structure:  Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home.  There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability. Getting started:  Our intent is to start by acquiring control of one care home.  In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.  This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.  The home is currently subject to ""special measures”, imposed by the Care Quality Commission.",/post/758,2017-01-22T18:59:45.000Z,2017-01-22T18:59:45.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,770 4603,v1.0,,"What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That’s our dream.  A bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix).  It is a familiar story.  The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly. At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population’s increasingly complex care needs. At the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the ""growth opportunities”.  The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff. Caring for Life is a diverse team has come together to seek a better solution. We are inspired by: open source communities, that harness collective intelligence to find new solutions to old problems; networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large. traditional community-based approaches to care-giving that are human-centred and sustainable. We intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see.  Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK. A key operating principle will be to involve all ""stakeholders"".  Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture. Care home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person's ""support system"". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected. Legal structure:  Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home.  There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability. Getting started:  Our intent is to start by acquiring control of one care home.  In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.  This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.  The home is currently subject to ""special measures”, imposed by the Care Quality Commission.",/post/758,2017-01-22T18:59:38.000Z,2017-01-22T18:59:38.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,28 4792,v1.0,,"What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That’s our dream.",/post/758,2017-01-22T18:59:28.000Z,2017-01-22T18:59:28.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,80 5054,v1.0,,"What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That’s our dream.  A bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix).  It is a familiar story.  The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly. At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population’s increasingly complex care needs. At the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the ""growth opportunities”.  The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff. Caring for Life is a diverse team has come together to seek a better solution. We are inspired by: open source communities, that harness collective intelligence to find new solutions to old problems; networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large. traditional community-based approaches to care-giving that are human-centred and sustainable. We intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see.  Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK. A key operating principle will be to involve all ""stakeholders"".  Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture. Care home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person's ""support system"". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected. Legal structure:  Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home.  There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability. Getting started:  Our intent is to start by acquiring control of one care home.  In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.  This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.  The home is currently subject to ""special measures”, imposed by the Care Quality Commission.",/post/758,2017-01-22T18:59:19.000Z,2017-01-22T18:59:19.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,144 5064,v1.0,,"What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That’s our dream.  A bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix).  It is a familiar story.  The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly. At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population’s increasingly complex care needs. At the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the ""growth opportunities”.  The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff. Caring for Life is a diverse team has come together to seek a better solution. We are inspired by: open source communities, that harness collective intelligence to find new solutions to old problems; networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large. traditional community-based approaches to care-giving that are human-centred and sustainable. We intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see.  Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK. A key operating principle will be to involve all ""stakeholders"".  Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture. Care home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person's ""support system"". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected. Legal structure:  Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home.  There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability. Getting started:  Our intent is to start by acquiring control of one care home.  In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.  This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.  The home is currently subject to ""special measures”, imposed by the Care Quality Commission.",/post/758,2017-01-22T18:59:02.000Z,2017-01-22T18:59:02.000Z,758,3323,AnnotatorStore::TextAnnotation,,,,,,,,,725,145 11358,v1.0,,"In my view, ML goes much beyond this kind of vision and the virtuous link between economic value and social impact is a very interesting and challenging aspect also for the local administration that looks at this case with much interest.",/post/14528,2017-01-22T18:58:02.000Z,2017-01-22T18:58:02.000Z,14528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1817 10536,v1.0,,"For all these reasons, ML can be considered a special case in the city of Milan where the revitalization of the neighbourhood markets  (as lot of them have been closed or are not vital at all), has so far been addressed in a more conventional way. In fact, starting from a public tender aimed at reallocating empty spaces and at revamping local markets, some of those markets have been reopened, basically around the idea of hybridization between food trading, restaurants, entertainment, paying particular attention to the quality and fairness of the products (for example “zero kilometer” production philosophy). Good examples are “Mercato del Suffragio” or “Darsena”.",/post/14528,2017-01-22T18:57:11.000Z,2017-01-22T18:57:11.000Z,14528,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1572 9384,v1.0,,"The device has been designed to allow (and/or complement) simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow flexion/extension). The main idea behind its development is that of enabling its use directly at people's homes, in order to allow intensive sessions directly in activities of daily living. As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface. In the simplest case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc). In a rehab setting, for example post-stroke, the exoskeleton's motions could be derived by decoding user's intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer. In an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton's motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears the device. In a case like the one you've mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user's needs/residual abilities, one could enable specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc. In all the previous scenarios, as specified by @Noemi, data related to the user's progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.",/post/13646,2017-01-22T18:56:01.000Z,2017-01-22T18:56:01.000Z,13646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1302 6469,v1.0,,"The device has been designed to allow (and/or complement) simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow flexion/extension). The main idea behind its development is that of enabling its use directly at people's homes, in order to allow intensive sessions directly in activities of daily living. As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface. In the simplest case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc). In a rehab setting, for example post-stroke, the exoskeleton's motions could be derived by decoding user's intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer. In an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton's motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears the device. In a case like the one you've mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user's needs/residual abilities, one could enable specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc. In all the previous scenarios, as specified by @Noemi, data related to the user's progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.",/post/13646,2017-01-22T18:55:49.000Z,2017-01-22T18:55:49.000Z,13646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,485 9398,v1.0,,"The device has been designed to allow (and/or complement) simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow flexion/extension). The main idea behind its development is that of enabling its use directly at people's homes, in order to allow intensive sessions directly in activities of daily living. As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface. In the simplest case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc). In a rehab setting, for example post-stroke, the exoskeleton's motions could be derived by decoding user's intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer. In an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton's motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears the device. In a case like the one you've mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user's needs/residual abilities, one could enable specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc. In all the previous scenarios, as specified by @Noemi, data related to the user's progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.",/post/13646,2017-01-22T18:55:43.000Z,2017-01-22T18:55:43.000Z,13646,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1307 9397,v1.0,,"Very interesting. I had a complicated above elbow fracture resulting in 70% muscle wastage, reduced movement of elbow joint and fingers, and removal of the funny bone nerve. I found using plastic bottles filled with water as weights very useful. Easy to change the weight and squeezing the bottle as I lifted was effective at getting the work to where it's needed (and free). In what ways do you think the product in the picture would work better than a plastic bottle? Strenghtening multi-directional movement?",/post/8386,2017-01-22T18:55:19.000Z,2017-01-22T18:55:19.000Z,8386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1307 7862,v1.0,,"Yes, this is indeed a good solution for getting treatement.  But not for surgeries, or patiens coming from all over the country to the main universitary medical center, in the capital of Romania, patiens with special cases who need the most skilled doctors arround them until they have a diagnose.  Actually, the current Minister of health, Vlad, is also coming up with solutions to rebuild the hospitals into viable clean insititutions.",/post/21302,2017-01-22T18:54:32.000Z,2017-01-22T18:54:32.000Z,21302,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,959 5063,v1.0,,"I can see it being a solution. Setting up someone with an IV is not rocket science; many people can be taught, and then help their neighbors who were not taught. Like with defibrillators: the Community First Responders scheme in the UK teaches people how to defibrillate each other in 3 days: http://www.communityfirstresponders.org.uk/",/post/17879,2017-01-22T18:54:22.000Z,2017-01-22T18:54:22.000Z,17879,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,145 6380,v1.0,,"Yes, @Alberto, there were many times when I was just travelling to the hospital to get my IV and then go home. There are also private clinics where people just go and receive the cytostatics. Though, for surgeries and patiens from all over the country this is not a solution...",/post/16281,2017-01-22T18:54:12.000Z,2017-01-22T18:54:12.000Z,16281,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,467 7861,v1.0,,"Yes, @Alberto, there were many times when I was just travelling to the hospital to get my IV and then go home. There are also private clinics where people just go and receive the cytostatics. Though, for surgeries and patiens from all over the country this is not a solution...",/post/16281,2017-01-22T18:54:08.000Z,2017-01-22T18:54:08.000Z,16281,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,959 7860,v1.0,,"I totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around. If Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well. Some aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.  @Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?",/post/11109,2017-01-22T18:54:00.000Z,2017-01-22T18:54:00.000Z,11109,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,959 6379,v1.0,,"I totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around. If Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well. Some aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.  @Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?",/post/11109,2017-01-22T18:53:57.000Z,2017-01-22T18:53:57.000Z,11109,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,467 5062,v1.0,,"I totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around. If Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well. Some aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.  @Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?",/post/11109,2017-01-22T18:53:48.000Z,2017-01-22T18:53:48.000Z,11109,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,145 5815,v1.0,,"But maybe the reason of this high rate participation in the network of cytostatics is older than we think, with roots in the communist era. Back then, there was a solution for everything: from lack of food to lack of clothes. Everyone knew someone who could help. The only area not available for this kind of help was healthcare. Both doctors and patients were helpless against a system that didn’t truly provide for its beneficiaries. So people developed a true phobia of hospitals, seen as horrible places, dirty and dangerous, a place where some medical act was provided, but where the family took care of the sick person in the most common sense of the term: from bed sheets to food and hygiene products. The 80s and the 90s were the worse years in terms of healthcare.  The money was less and less, the needs higher. The Network did not come out of nowhere. It came from a long series of malfunctions and struggles, from a time  filled with nightmares that still populates one of the best Romanian doctor’s dreams. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/517,2017-01-22T18:53:29.000Z,2017-01-22T18:53:29.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,377 8101,v1.0,,"One of the actions that Vlad took in the short period of time he’s been in charge is to make a smart alliance with  more countries: Bulgaria, Moldova, Croatia, Latvia, Macedonia, Poland, Serbia, Slovenia and Slovakia,  in order to get better access to medication. More countries means more people, so a much  bigger market, a fact that would discourage the Pharma companies to ignore it by withdrawing a medicine  by citing  small numbers in sales.",/post/517,2017-01-22T18:52:54.000Z,2017-01-22T18:52:54.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,1025 7307,v1.0,,The whole System in itself acted like a cancer: remissions and relapses.,/post/517,2017-01-22T18:52:43.000Z,2017-01-22T18:52:43.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,805 5016,v1.0,,The whole System in itself acted like a cancer: remissions and relapses.,/post/517,2017-01-22T18:52:36.000Z,2017-01-22T18:52:36.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,135 7306,v1.0,,"How did things eventually change and what’s the situation so far? After the article on Hotnews about the Network, a high number of interviews with the authorities filled the tv news evening after evening. The situation was indeed outrageous: you pay the taxes, you have medicine 100% compensated by the state because you pay those taxes, but when it comes to it, they are nowhere available in Romania, and you have to buy them outside the country.  Cornered by jurnalists, the Minister of Health made hundreds of promises, with some results. Things were sometimes better, and sometimes worse. The whole System in itself acted like a cancer: remissions and relapses. At the moment, Vlad Voiculescu is the new Minister of Health. After a tragic event in October 2015, known as the Colectiv fire, where 64 people died, the whole Government was changed and a lot of young – under 45- dynamic people were named in key positions. One of the actions that Vlad took in the short period of time he’s been in charge is to make a smart alliance with  more countries: Bulgaria, Moldova, Croatia, Latvia, Macedonia, Poland, Serbia, Slovenia and Slovakia,  in order to get better access to medication. More countries means more people, so a much  bigger market, a fact that would discourage the Pharma companies to ignore it by withdrawing a medicine  by citing  small numbers in sales.",/post/517,2017-01-22T18:52:24.000Z,2017-01-22T18:52:24.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,805 10431,v1.0,,"Were all members sufferers or family of sufferers? Was anybody other than Vlad in charge? When the article about the Network emerged, over 300 people joined the network through the website medicamente-lipsa.ro and found ways to bring home what was missing. Not all of them had sick members of their families. For most, it was just the little they could do in this horrible situation. The website was Med-Alert ‘s Association’ initiative, where Vlad is a founder, and there were more people involved in obtaining the cytostatics and other medicines. Still, Vlad is the one who got the dice rolling. He has the gift of inspiring others to do good, and it’s contagious. Even though the majority of people involved did not now about each other, and many still do not know until this day, as little contact between the carriers of the medicines has happened. Still, the ones who met in real life bonded immediately and I will always state that the main gain of the Network was the amazing friendships resulting from it.",/post/517,2017-01-22T18:52:11.000Z,2017-01-22T18:52:11.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,1543 5096,v1.0,,"Were all members sufferers or family of sufferers? Was anybody other than Vlad in charge? When the article about the Network emerged, over 300 people joined the network through the website medicamente-lipsa.ro and found ways to bring home what was missing. Not all of them had sick members of their families. For most, it was just the little they could do in this horrible situation. The website was Med-Alert ‘s Association’ initiative, where Vlad is a founder, and there were more people involved in obtaining the cytostatics and other medicines. Still, Vlad is the one who got the dice rolling. He has the gift of inspiring others to do good, and it’s contagious. Even though the majority of people involved did not now about each other, and many still do not know until this day, as little contact between the carriers of the medicines has happened. Still, the ones who met in real life bonded immediately and I will always state that the main gain of the Network was the amazing friendships resulting from it.",/post/517,2017-01-22T18:52:07.000Z,2017-01-22T18:52:07.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,147 8244,v1.0,,"Drained both mentally and financially, I moved to Vienna, became self employed, paid a high tax on healthcare, tried Rituximab with very little success, worked throughout my illness and also got a splenectomy when a terrible  relapse made it clear there is no other way out of this. A few months after, I read an article on a website: How I became a member in the cytostatic network. There were many similarities with my struggle: people not having access to medication as cheap as dexamethason, a description of the oldest Pharmacy in Vienna, which I knew so well, and most of all, the solidarity.  A few weeks later though, I joined the network of Cytostatics.  I was going home for a concert and my good friend Simona Tache shared a status form a Youngman who asked if someone is going to Bucharest from Vienna. I knew exactly what it was about, the dots were easy to connect. I met Vlad Voiculescu that evening, and the next day I followed the instructions and took the  transport to Bucharest. Basically, transportation worked like this: You take the medicines in a thermal bag, put it in the fridge and take them out only when you leave the house for the airport. At the security, you take it out and tell the officers you have sensitive medicine there. Sometime they ask you who is it for, sometimes they don’t. You are only allowed to have it for your self or  your family. For me, anyone suffering in Romania is family….so it never felt like lying. In Bucharest, you had Valeriu waiting for you at the airport, or you met him later in the day. Valeriu is a taxi driver who delivers the cytostatics to the Pavel Association – a NGO working for the children in Fundeni, or directly to the ones in need, sick people or caregivers. The news about the Network circulated by word of mouth. Some people knew about its existence, some didn’t. The only thing they knew is that there is someone in Vienna who buys medicines if you give him the prescription and that you can pay him when you can. There was no financial gain, on the contrary. Vlad would receive the prescriptions, buy the cytostatics out of his own pocket and then got the money later. Or much later. No deadlines, no pressure. Just the will to help.",/post/517,2017-01-22T18:51:47.000Z,2017-01-22T18:51:47.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,1073 7305,v1.0,,"How did she know and how does this relate to the problems of cytostatics in Romania? For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country. So when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was. During my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was “lucky”: only had to buy once dexamethason for myself, but they were not so lucky:  either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with ”the dossier”), either they had to figure out how to obtain certain medication themselves. But two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment  reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn’t.",/post/517,2017-01-22T18:51:34.000Z,2017-01-22T18:51:34.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,805 8508,v1.0,,"For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country. So when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was. During my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was “lucky”: only had to buy once dexamethason for myself, but they were not so lucky:  either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with ”the dossier”), either they had to figure out how to obtain certain medication themselves. But two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment  reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn’t.",/post/517,2017-01-22T18:51:17.000Z,2017-01-22T18:51:17.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,1132 8213,v1.0,,"For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country. So when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was. During my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was “lucky”: only had to buy once dexamethason for myself, but they were not so lucky:  either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with ”the dossier”), either they had to figure out how to obtain certain medication themselves. But two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment  reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn’t.",/post/517,2017-01-22T18:51:05.000Z,2017-01-22T18:51:05.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,1057 5424,v1.0,,"This story of mine only wanted to come out through an interview carried out online by Noemi. Hopefully it gives you a peek inside the very personal experience of being part of a sort of grand thing – a network of people becoming active in the healthcare provision chain and caring for each other despite not having met.     Noemi: Introduce us to the time when the cytostatics network came about. Was someone ill able or unable to access treatment from healthcare providers? How did they go by? Sabina: It was the fall of 2009 when it all started for me: the dizziness, the fatigue, trouble breathing, walking, doing  basically anything. In October, I just put it on my crazy life style: mother of two, finishing the PhD, teaching at the Music University.  In November it was clear something else was going on. So I went to a private lab- the thought of a state hospital was too scary- and had a blood work done. Except it did not work the usual way: the results could not be read due to a strange characteristic of the sample. I knew it was a bad sign, so I turned to my adoptive grandmother, dr. Mirjam Bercovici. She figured it out in minutes, wrote me a recommendation letter and sent me to a real hospital. Autoimmune Hemolytic Anemia – a very rare blood disease- was confirmed and three years of fighting it in Romania and Austria followed. How did she know and how does this relate to the problems of cytostatics in Romania? For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country. So when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was. During my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was “lucky”: only had to buy once dexamethason for myself, but they were not so lucky:  either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with ”the dossier”), either they had to figure out how to obtain certain medication themselves. But two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment  reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn’t. Was anyone inside hospitals listening or fighting back? The situation was rather strange. The drug was expensive, not approved for my AIHA, but available in theory. My roommates  with Lymphoma could get it based on the dossier (so not standard). But they were missing other drugs, cheaper cytostatics like Bleomicin, compensated 100% from the state! It was like in the times when Mirjam Bercovici was active, all over again. Like nothing had changed in 40 years. Frustration was working both sides, because treatments sessions were postponed, sick people and doctors being equally worried. All I knew was that doctors advised patients to figure out how to get the drugs. I had no idea how the people got it, as I was preoccupied with my own, at that time unsolvable, health issues.",/post/517,2017-01-22T18:50:20.000Z,2017-01-22T18:50:20.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,306 5015,v1.0,,"This story of mine only wanted to come out through an interview carried out online by Noemi. Hopefully it gives you a peek inside the very personal experience of being part of a sort of grand thing – a network of people becoming active in the healthcare provision chain and caring for each other despite not having met.     Noemi: Introduce us to the time when the cytostatics network came about. Was someone ill able or unable to access treatment from healthcare providers? How did they go by? Sabina: It was the fall of 2009 when it all started for me: the dizziness, the fatigue, trouble breathing, walking, doing  basically anything. In October, I just put it on my crazy life style: mother of two, finishing the PhD, teaching at the Music University.  In November it was clear something else was going on. So I went to a private lab- the thought of a state hospital was too scary- and had a blood work done. Except it did not work the usual way: the results could not be read due to a strange characteristic of the sample. I knew it was a bad sign, so I turned to my adoptive grandmother, dr. Mirjam Bercovici. She figured it out in minutes, wrote me a recommendation letter and sent me to a real hospital. Autoimmune Hemolytic Anemia – a very rare blood disease- was confirmed and three years of fighting it in Romania and Austria followed. How did she know and how does this relate to the problems of cytostatics in Romania? For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country. So when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was. During my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was “lucky”: only had to buy once dexamethason for myself, but they were not so lucky:  either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with ”the dossier”), either they had to figure out how to obtain certain medication themselves. But two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment  reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn’t. Was anyone inside hospitals listening or fighting back? The situation was rather strange. The drug was expensive, not approved for my AIHA, but available in theory. My roommates  with Lymphoma could get it based on the dossier (so not standard). But they were missing other drugs, cheaper cytostatics like Bleomicin, compensated 100% from the state! It was like in the times when Mirjam Bercovici was active, all over again. Like nothing had changed in 40 years. Frustration was working both sides, because treatments sessions were postponed, sick people and doctors being equally worried. All I knew was that doctors advised patients to figure out how to get the drugs. I had no idea how the people got it, as I was preoccupied with my own, at that time unsolvable, health issues.",/post/517,2017-01-22T18:50:09.000Z,2017-01-22T18:50:09.000Z,517,3323,AnnotatorStore::TextAnnotation,,,,,,,,,484,135 9172,v1.0,,"My sister lives in classical Cité house in Ghent. Cité houses are small, cheap houses that were built for the former poor working classes back in the day. They are mostly built in a way that allows more interaction between the inhabitants. There is a shared open space in the middle, which is free of traffic and is usually filled in with things people chose: tables, barbecues, little gardens, ... The cité where my sister lives is very lively. There are a lot of social interactions because people spend a lot of time outside, organise things together, borrow stuff, etc. Everyone knows everyone. Then again, this is a lot less the case in the cité right next to my sister's. People don't interact that much and the social ties aren't as rich. I'm not sure what causes this, because the same basic elements are there. Does it come down to the people? What do you think?",/post/26044,2017-01-22T18:49:19.000Z,2017-01-22T18:49:19.000Z,26044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1262 7882,v1.0,,"My sister lives in classical Cité house in Ghent. Cité houses are small, cheap houses that were built for the former poor working classes back in the day. They are mostly built in a way that allows more interaction between the inhabitants. There is a shared open space in the middle, which is free of traffic and is usually filled in with things people chose: tables, barbecues, little gardens, ... The cité where my sister lives is very lively. There are a lot of social interactions because people spend a lot of time outside, organise things together, borrow stuff, etc. Everyone knows everyone. Then again, this is a lot less the case in the cité right next to my sister's. People don't interact that much and the social ties aren't as rich. I'm not sure what causes this, because the same basic elements are there. Does it come down to the people? What do you think?",/post/26044,2017-01-22T18:49:07.000Z,2017-01-22T18:49:07.000Z,26044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,962 7881,v1.0,,"It is very important for social, psycological health to change the environment we are living in. Current living environments are a cause for all kinds of problems. So we want to encourage you to design new community and cooprative spaces for living and working. Bert",/post/20801,2017-01-22T18:48:52.000Z,2017-01-22T18:48:52.000Z,20801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,962 8559,v1.0,,"It is very important for social, psycological health to change the environment we are living in. Current living environments are a cause for all kinds of problems. So we want to encourage you to design new community and cooprative spaces for living and working.",/post/20801,2017-01-22T18:48:46.000Z,2017-01-22T18:48:46.000Z,20801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1140 8090,v1.0,,"@LotfiAndSelvi  @Noemi Intergenerational communities are indeed necessary to increase social connectedness and cultivate building better living conditions for the older generation. Whether its students living with the care homes and volunteering to have the elderly care for the young, it’s a circle. This may also be of interest Connecting generations is not just a ""nice idea"" I think it’s necessary. For the younger generation who may have not had the presence of grandparents or the presence of older generations creating an influence in their life this is an added value for them, it connects the past, present and future in one conversation. Whether you’re at either end of life- there are similarities.  There are tremendous benefits of these connections. There is a lot of talk to help older people, but perhaps they can help the young. It's the experiences of life in a multigenerational, interdependent, abstract community that, more than anything else, teaches us how to be human. The older generation often is faced with isolation- which in turn creates the backdrop for cognitive decline. We all know that. If we can improve the standing of older adults in society, and nurture what they can bring through to the table, then we can achieve a better community with a better quality of life for all ages. With their practical knowledge, some may use the term wisdom, gained from experience, and because they carry with them a whole world lost to younger generation, they may well be our greatest social capital. There are some projects out there, but its a topic craving attention. In the US there is an initiative with this care model called Generations of Hope.",/post/26052,2017-01-22T18:47:43.000Z,2017-01-22T18:47:43.000Z,26052,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,1024 6050,v1.0,,", this reminds me of another Belgian project called DUO for a JOB. Their tagline 'integenerational coaching' sums it up well: older people passing on their skills to young people with a migrant background. Is that something you envision as well? It might be insightful to talk to them as well. In my home town we have a related story going on. The old movie theater  in the city centre, a beautiful building with a rich history and emotional meaning for a lot of people, was bought by project developers after bankruptcy. They plan to install service flats where elderly that are still okay can live in co-housing with people who need care, like other elderly or young people with a disability. Yet the whole project has a very commercial smell hanging around it. Do you meet similar stories, is there an impact on the sector?",/post/24001,2017-01-22T18:47:37.000Z,2017-01-22T18:47:37.000Z,24001,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,416 8089,v1.0,,"Hey @LotfiAndSelvi, this reminds me of another Belgian project called DUO for a JOB. Their tagline 'integenerational coaching' sums it up well: older people passing on their skills to young people with a migrant background. Is that something you envision as well? It might be insightful to talk to them as well. In my home town we have a related story going on. The old movie theater  in the city centre, a beautiful building with a rich history and emotional meaning for a lot of people, was bought by project developers after bankruptcy. They plan to install service flats where elderly that are still okay can live in co-housing with people who need care, like other elderly or young people with a disability. Yet the whole project has a very commercial smell hanging around it. Do you meet similar stories, is there an impact on the sector?",/post/24001,2017-01-22T18:47:28.000Z,2017-01-22T18:47:28.000Z,24001,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,1024 7173,v1.0,,"There are a number of interesting intergenerational care projects internationally - including: Present Perfect - USA & Fureai Kippu - Japan. The Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.  I understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.",/post/20476,2017-01-22T18:47:20.000Z,2017-01-22T18:47:20.000Z,20476,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,770 6165,v1.0,,"There are a number of interesting intergenerational care projects internationally - including: Present Perfect - USA & Fureai Kippu - Japan. The Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.  I understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.",/post/20476,2017-01-22T18:47:14.000Z,2017-01-22T18:47:14.000Z,20476,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,437 8088,v1.0,,"There are a number of interesting intergenerational care projects internationally - including: Present Perfect - USA & Fureai Kippu - Japan. The Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.  I understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.",/post/20476,2017-01-22T18:47:10.000Z,2017-01-22T18:47:10.000Z,20476,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,1024 7880,v1.0,,"Hello,  We are Lotfi and Selvi, a couple of engaged people with an eclectic cultural background. We opened an elderly home twenty years ago, but stopped a couple of years ago because the field wasn't interesting anymore. Now  we are active on all kind of different levels inside healthcare organizations but we still have a dream to realise a new way of looking at elderly care.  We come from different backgrounds from Africa, mixed cultures, and saw how they treat their elderly within the community. We lost that touch with our elderly here in the west, we use the homes a place to bring the elderly, but we we forget they are viable resources for the development of our society. Their knowledge, their experience is a vital organe for society. So why not build more inclusivly we tought? That is where we started thinking about a mini city where the elderly home would be in the center, but where families, schools, shops could intertwine with the daily practice of the elderly. Having elderly people in your surroundings is great for the development of a local neighborhood so why don't we finance more project with that in mind? For me it is partially because the politics isn't ready in Belgium to start this discussion. People started to have the idea it is ok to bring your elderly to a home, so why brutally change it? But for me it is something politics need to invest now, to experiment and learn about these new methods so we can prepare the future, where the elderly will even be an even bigger number of people if we follow the population piramde of Western countries.  I would love to find out if other projects around the world are looking at the same problem, and using more design solutions to reconnect the elderly and their homes with the other generations.",/post/789,2017-01-22T18:47:02.000Z,2017-01-22T18:47:02.000Z,789,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,962 7879,v1.0,,"So the lovely @CommonFutures has just shared this in response to my tweet asking for help: Intergenerational Housing in Deventer. It's really something: a project started in 2013 for a new elderly retirement home where students pushed back by unaffordable student housing can also live without paying rent, and in exchange volunteering 30 hrs of social activities per month.",/post/15200,2017-01-22T18:46:52.000Z,2017-01-22T18:46:52.000Z,15200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,962 8087,v1.0,,"So the lovely @CommonFutures has just shared this in response to my tweet asking for help: Intergenerational Housing in Deventer. It's really something: a project started in 2013 for a new elderly retirement home where students pushed back by unaffordable student housing can also live without paying rent, and in exchange volunteering 30 hrs of social activities per month.",/post/15200,2017-01-22T18:46:47.000Z,2017-01-22T18:46:47.000Z,15200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,1024 6049,v1.0,,"Hi @LotfiAndSelvi, you say the elderly ""are viable resources for the development of our society"" - what do you have in mind? Twenty years of working for them must be pretty righ in insights. I only know of very sporadic activities that are intergenerational - and most happen around holidays: for example youth taking presents to care homes and spending time with their new grannies for a day or so. It seems to put a smile on people's faces, but of course its not substantial, as what you are talking about.  Curious if new (co)living models such as @Simonedb's has good news about what can be achieved if generations help each other remain active under the same roof. Are you seeing that Simone or is everyone in your houses still fairly young?",/post/8168,2017-01-22T18:46:38.000Z,2017-01-22T18:46:38.000Z,8168,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,416 8086,v1.0,,"Hi @LotfiAndSelvi, you say the elderly ""are viable resources for the development of our society"" - what do you have in mind? Twenty years of working for them must be pretty righ in insights. I only know of very sporadic activities that are intergenerational - and most happen around holidays: for example youth taking presents to care homes and spending time with their new grannies for a day or so. It seems to put a smile on people's faces, but of course its not substantial, as what you are talking about.  Curious if new (co)living models such as @Simonedb's has good news about what can be achieved if generations help each other remain active under the same roof. Are you seeing that Simone or is everyone in your houses still fairly young?",/post/8168,2017-01-22T18:46:33.000Z,2017-01-22T18:46:33.000Z,8168,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,1024 6164,v1.0,,"Hello,  We are Lotfi and Selvi, a couple of engaged people with an eclectic cultural background. We opened an elderly home twenty years ago, but stopped a couple of years ago because the field wasn't interesting anymore. Now  we are active on all kind of different levels inside healthcare organizations but we still have a dream to realise a new way of looking at elderly care.  We come from different backgrounds from Africa, mixed cultures, and saw how they treat their elderly within the community. We lost that touch with our elderly here in the west, we use the homes a place to bring the elderly, but we we forget they are viable resources for the development of our society. Their knowledge, their experience is a vital organe for society. So why not build more inclusivly we tought? That is where we started thinking about a mini city where the elderly home would be in the center, but where families, schools, shops could intertwine with the daily practice of the elderly. Having elderly people in your surroundings is great for the development of a local neighborhood so why don't we finance more project with that in mind? For me it is partially because the politics isn't ready in Belgium to start this discussion. People started to have the idea it is ok to bring your elderly to a home, so why brutally change it? But for me it is something politics need to invest now, to experiment and learn about these new methods so we can prepare the future, where the elderly will even be an even bigger number of people if we follow the population piramde of Western countries.  I would love to find out if other projects around the world are looking at the same problem, and using more design solutions to reconnect the elderly and their homes with the other generations.",/post/789,2017-01-22T18:46:21.000Z,2017-01-22T18:46:21.000Z,789,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,437 8085,v1.0,,"That is where we started thinking about a mini city where the elderly home would be in the center, but where families, schools, shops could intertwine with the daily practice of the elderly. Having elderly people in your surroundings is great for the development of a local neighborhood so why don't we finance more project with that in mind? For me it is partially because the politics isn't ready in Belgium to start this discussion. People started to have the idea it is ok to bring your elderly to a home, so why brutally change it? But for me it is something politics need to invest now, to experiment and learn about these new methods so we can prepare the future, where the elderly will even be an even bigger number of people if we follow the population piramde of Western countries.  I would love to find out if other projects around the world are looking at the same problem, and using more design solutions to reconnect the elderly and their homes with the other generations.",/post/789,2017-01-22T18:46:09.000Z,2017-01-22T18:46:09.000Z,789,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,1024 7172,v1.0,,"Hello,  We are Lotfi and Selvi, a couple of engaged people with an eclectic cultural background. We opened an elderly home twenty years ago, but stopped a couple of years ago because the field wasn't interesting anymore. Now  we are active on all kind of different levels inside healthcare organizations but we still have a dream to realise a new way of looking at elderly care.  We come from different backgrounds from Africa, mixed cultures, and saw how they treat their elderly within the community. We lost that touch with our elderly here in the west, we use the homes a place to bring the elderly, but we we forget they are viable resources for the development of our society. Their knowledge, their experience is a vital organe for society. So why not build more inclusivly we tought? That is where we started thinking about a mini city where the elderly home would be in the center, but where families, schools, shops could intertwine with the daily practice of the elderly. Having elderly people in your surroundings is great for the development of a local neighborhood so why don't we finance more project with that in mind? For me it is partially because the politics isn't ready in Belgium to start this discussion. People started to have the idea it is ok to bring your elderly to a home, so why brutally change it? But for me it is something politics need to invest now, to experiment and learn about these new methods so we can prepare the future, where the elderly will even be an even bigger number of people if we follow the population piramde of Western countries.  I would love to find out if other projects around the world are looking at the same problem, and using more design solutions to reconnect the elderly and their homes with the other generations.",/post/789,2017-01-22T18:45:57.000Z,2017-01-22T18:45:57.000Z,789,3323,AnnotatorStore::TextAnnotation,,,,,,,,,756,770 4901,v1.0,,I think your story reflect what I am trying to say with my traumatour: that to be really helpful we should break down the walls between professionals  patients/clients. Instead we should sit together and share what we know and feel and can do to get better and stay well - as fellow human beings. Holding on to hope together is so much easier dan trying to do that on your own...,/post/24011,2017-01-22T18:45:19.000Z,2017-01-22T18:45:19.000Z,24011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,115 5993,v1.0,,"Because if it is, this would make a fantastic pattern of what we call open care. What ""open"" is about, is that the separation between producers and consumers becomes blurred. In open source software, you help improving the software that you use instead of buying a commercial project. In mental health, you improve your own condition as a patient by becoming a healer yourself. This makes plenty of intuitive sense, and has the additional advantage that it has a very sustainable economic model.",/post/20042,2017-01-22T18:44:58.000Z,2017-01-22T18:44:58.000Z,20042,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,399 8558,v1.0,,"Thank you so much for sharing your experience and your story with us. I found your words enlightening and moving. It's great to see that you feel comfortable and confident sharing with us, and that what you are doing with Cosain, GROW and these other areas are not only helping you with the day-to-day steps that are required, but are also helping to improve the lives of others around you in your community. Mental health has been an interesting topic on Edgeryders during OpenCare. We had/are having an discussion around MH and creativity here: https://edgeryders.eu/en/under-pressure-on-the-relationship-between-creativity-and-emotional this has also led to an interesting project: https://edgeryders.eu/en/the-shit-show-a-mental-health-awareness-campaign It seems to me that many people are experiencing some of the stresses and strains of MH issues (to varying degrees and levels) and that many of us are missing the knowledge or practice to be able to work through these problems. Perhaps your training and experience can help guide the community towards some practical steps to help with improving MH for all of us.",/post/7098,2017-01-22T18:44:34.000Z,2017-01-22T18:44:34.000Z,7098,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,1140 8232,v1.0,,I am a co-founder of Cosáin. A wellness centre based in the city. Cosáin supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cosáin is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering:,/post/562,2017-01-22T18:44:03.000Z,2017-01-22T18:44:03.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,1067 4587,v1.0,,"Soon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work. It would be 15 years later before I did this and found the benefits of it. Last year I completed 12 weeks of training with 4 hours per week work with the Irish Advocacy Network. I am now in the early stages of serving on one of these Consumer Panels as secretary, representing the views of service users in the Galway mental health area.",/post/562,2017-01-22T18:43:57.000Z,2017-01-22T18:43:57.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,24 9461,v1.0,,"I was the facilitator of my weekly GROW group for over two years and we hold Hope for each other. Last year I took up the opportunity of attending a creative writing class freely given by Galway writer Rita Ann Higgins primarily for GROW members. Our members got the chance to have their poems and short stories published in a booklet and I enjoyed reciting two of my poems at the GROW National Conference in Galway. During the past few years I have also been involved with Advancing Recovery in Ireland (ARI). Service users like myself have been working with HSE staff, and we have been planning the introduction of Recovery Colleges, Peer Support worker positions and Consumer Panels.",/post/562,2017-01-22T18:43:45.000Z,2017-01-22T18:43:45.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,1317 7287,v1.0,,I find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW.,/post/562,2017-01-22T18:43:27.000Z,2017-01-22T18:43:27.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,803 10900,v1.0,,I find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW.,/post/562,2017-01-22T18:43:08.000Z,2017-01-22T18:43:08.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,1679 4495,v1.0,,"On one occasion for some reason I lost this faith in the future. This wasn’t any kind of impulsive plan or drunken depression. Instead I gradually began to see the future without me as a part of it. I got rid of all my books, got rid of all my CDs and records. I closed bank accounts, I cancelled mailing lists. I booked an appointment with Free Legal Aid with the intention of creating a will.",/post/562,2017-01-22T18:42:47.000Z,2017-01-22T18:42:47.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,5 7858,v1.0,,"Since my teenage years I have had swings from wildly optimistic grandiose hopes to rock bottom loss of all vestiges of hope. Suicidal ideation can prosper in the absence of hope. Luckily during many of the extreme lows I just try and go into hibernation mode, having a strong belief that if I just get through the oncoming weeks and months then things will have to improve.",/post/562,2017-01-22T18:42:41.000Z,2017-01-22T18:42:41.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,958 10762,v1.0,,"My friend Deirdre was very successful academically but struggled feeling the engineering course she was doing was cold and soulless. In correspondence back and over we discussed how banal many of the subjects were and did she really want to end up as an engineer instead of something with more soul like a musician or writer. Deirdre took a year out in 3rd year and worked with IBM. She did well with IBM and returned to Trinity to finish her engineering course and did very well graduating with a first class honours degree. After graduating Deirdre and I didn’t stay in contact as much. A bit like my father I remember seeing her visit me when I was in the intensive unit in a psychiatric hospital in Dublin. I could tell she found it very hard to see me so unwell and I felt she must have wondered was there a risk of her becoming so unwell. Even though Deirdre had seen me in hospital she still never would discuss with me her own mental health or her hopes or fears. After many months of being out of contact with Deirdre I tried to get in touch with her. There was no reply to her phone or email address. Thinking she might have changed jobs I did an internet search for her name. To my horror I came across a Memorial website to Deirdre. Phoning her parents they confirmed the tragic news. Her father told me the story of Deirdre’s last days. Deirdre has been suffering low mood and nothing anybody could do seemed to help. Worried for her safely her parents asked her to come home to Wexford to visit them, otherwise they would have to insist on visiting her in Dublin. That weekend they did everything to try to lift her mood, visiting family and friends and going to shops and restaurants. However Deirdre went back to Dublin. That Monday her mother phoned her at lunch time. Deirdre said she was going to lunch with work colleagues. However the truth was Deirdre had taken a huge overdose of medication that morning, months’ worth of medication she has stopped taking. When her boyfriend returned home that evening Deirdre was dead. You can’t do an autopsy into someone’s state of mind. Deidre had a great job, a steady boyfriend and had just bought a new apartment.",/post/562,2017-01-22T18:42:33.000Z,2017-01-22T18:42:33.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,1638 10761,v1.0,,"Many of us have lost loved ones to suicide. The loss is devastating. I lost my father and my friend Deirdre to suicide. My father had been diagnosed with Bipolar and suffered from the condition from middle-age. Looking back I can see the times he was manic or high, singing loudly on the half hour drive to school where he taught every day. I vividly remember during my teenage years his first admission to psychiatric hospital my Dad weeping with happiness when he was released home on leave for a few days at Christmas.",/post/562,2017-01-22T18:42:13.000Z,2017-01-22T18:42:13.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,1638 4880,v1.0,,"psychiatrist. That psychiatrist whom I saw for 13 years admitted me to hospital. I suffer from Bipolar 1, meaning I suffer very high highs or mania, and very suicidal lows. When I get my highs medication seems to have very little effect on me. Instead it is a case of spending months in the safe confines of a hospital until the mania subsides. When I have my lows I get very suicidal and on two separate admissions for depression I have had to resort to Electroconvulsive Therapy (ECT) to treat my severe depression. There is quite a lot of controversy over ECT. I believe that it is a useful treatment of last resort. When a patient is in hospital and has been suicidal and catatonic with depression for many weeks with various medications being tried to no avail then I think ECT should be considered.",/post/562,2017-01-22T18:42:03.000Z,2017-01-22T18:42:03.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,103 7390,v1.0,,That Christmas my health deteriorated and I acquired glandular fever. After a short hospital stay I returned home to suffer months of crippling fatigue. I have battled with severe fatigue ever since.  I was ill for most of that year and was idle until I won a place in Information Technology in the University in Galway. Even though I was living at home I was very happy to attend this course. I found this University more relaxed and got on very well with my classmates. For some reason I suffered a breakdown during my final term of my degree. I didn’t tell friends or family but had meetings with some of the lecturers to see could I postpone my final exams.,/post/562,2017-01-22T18:41:54.000Z,2017-01-22T18:41:54.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,827 6430,v1.0,,"From my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci.",/post/562,2017-01-22T18:41:34.000Z,2017-01-22T18:41:34.000Z,562,3323,AnnotatorStore::TextAnnotation,,,,,,,,,529,483 6963,v1.0,,"One thing it has brought into stark relief for me is the interplay between using Opencare projects to try to build community [as well as make people healthier], as is often the case with Community Acupuncture projects, and the sort of thing that is possible when strong bonds of solidarity [being poor, being Amish] already exist. Unfortunately, in much of Europe, it seems like many people have used rising living standards as a way of stepping out of engagement with community and society - and it is only when economic or other disasters strike that they are forced into connection with one another once more. The best way to deal with the uncertain futures ahead would be for people to start building those localised, horizontal connections beforehand - but the cynic in me suggests that they will always wait until necessity forces their hand.",/post/20101,2017-01-22T18:40:28.000Z,2017-01-22T18:40:28.000Z,20101,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,726 5694,v1.0,,"One thing it has brought into stark relief for me is the interplay between using Opencare projects to try to build community [as well as make people healthier], as is often the case with Community Acupuncture projects, and the sort of thing that is possible when strong bonds of solidarity [being poor, being Amish] already exist. Unfortunately, in much of Europe, it seems like many people have used rising living standards as a way of stepping out of engagement with community and society - and it is only when economic or other disasters strike that they are forced into connection with one another once more. The best way to deal with the uncertain futures ahead would be for people to start building those localised, horizontal connections beforehand - but the cynic in me suggests that they will always wait until necessity forces their hand.",/post/20101,2017-01-22T18:40:18.000Z,2017-01-22T18:40:18.000Z,20101,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,357 4579,v1.0,,"WinniePoncelet, and glad to hear you found the cause of the problem in the end. Your distinction between authority and power is very useful. The point about different cultures reifying the system vs the person is also very relevant here - the problems around regulation and recognition of traditional acupuncture in the west can basically all be traced back to the original error of accepting the setting of the terms of debate around the technique 'acupuncture' rather than the practitioner. Indeed, I call myself an 'acupuncturist' because people are familiar with the term - but a doctor or physio who has done a few weekends training in the technique can also legitimately call themselves an acupuncturist. In reality, I am a 'traditional medicine practitioner' who uses a variety of techniques, including acupuncture. The main point of coming to me is for my knowledge of chinese medicine theory, my diagnostic skill and my years of training in using the needle [or cup, or hand] to effect change in the body. And there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'. So I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual. This is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine. But evidently part of keeping them engaged is providing that sense of medical authority that they want. So now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.",/post/18817,2017-01-22T18:39:44.000Z,2017-01-22T18:39:44.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,21 4479,v1.0,,"Indeed, I call myself an 'acupuncturist' because people are familiar with the term - but a doctor or physio who has done a few weekends training in the technique can also legitimately call themselves an acupuncturist. In reality, I am a 'traditional medicine practitioner' who uses a variety of techniques, including acupuncture. The main point of coming to me is for my knowledge of chinese medicine theory, my diagnostic skill and my years of training in using the needle [or cup, or hand] to effect change in the body.",/post/18817,2017-01-22T18:39:38.000Z,2017-01-22T18:39:38.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,3 5390,v1.0,,"So I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual. This is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine. But evidently part of keeping them engaged is providing that sense of medical authority that they want. So now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.",/post/18817,2017-01-22T18:39:30.000Z,2017-01-22T18:39:30.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,297 9332,v1.0,,"So I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual. This is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine. But evidently part of keeping them engaged is providing that sense of medical authority that they want. So now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.",/post/18817,2017-01-22T18:39:25.000Z,2017-01-22T18:39:25.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1290 10066,v1.0,,And there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'.,/post/18817,2017-01-22T18:39:17.000Z,2017-01-22T18:39:17.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1449 9215,v1.0,,And there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'.,/post/18817,2017-01-22T18:39:13.000Z,2017-01-22T18:39:13.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1269 6300,v1.0,,"practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted). I think that might be a western thing, linked to what surfaced in the discussions with @alkasem23 about differences in",/post/18779,2017-01-22T18:39:01.000Z,2017-01-22T18:39:01.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,449 6299,v1.0,,Your distinction between authority and power is very useful. The point about different cultures reifying the system vs the person is also very relevant here - the problems around regulation and recognition of traditional acupuncture in the west can basically all be traced back to the original error of accepting the setting of the terms of debate around the technique 'acupuncture' rather than the practitioner.,/post/18817,2017-01-22T18:38:45.000Z,2017-01-22T18:38:45.000Z,18817,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,449 11272,v1.0,,"Also interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted). I think that might be a western thing, linked to what surfaced in the discussions with @alkasem23 about differences in care with Syria: in the west we put our trust in and rely on systems rather than other people. In some other cultures, people probably put their belief mainly in a person, the doctor.",/post/18779,2017-01-22T18:38:03.000Z,2017-01-22T18:38:03.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1779 10285,v1.0,,"Easier interactions through the internet, powerful search engines, a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't always provide correct information, these factors also lead people to challenge the authority in terms of knowledge of the practitioner in the classical doctor's office. I think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare.",/post/18779,2017-01-22T18:37:48.000Z,2017-01-22T18:37:48.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1500 10436,v1.0,,"Importantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of experimentation with new methods in the stories here on Edgeryders share some sort of community aspect. This illustrates a shift to lending authority to a collective rather than a system or a person. The collective can consist of patients, doctors or other caregivers and is likely a mixture ideally. In Syria the collective is mainly the family, according to Alkasem.",/post/18779,2017-01-22T18:37:38.000Z,2017-01-22T18:37:38.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1546 5389,v1.0,,"I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I'd still like try it out when the opportunity presents itself. It's an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on guidance by an expert is in large part the result of the patients not being as familiar with acupuncture as the expert. Yet patients are there for a reason: at some level, they believe in the positive potential of the treatment. This common belief of both parties is the base for authority and lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear: authority is different from power. I can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn't ever seem to heal or resolve themselves and only got worse over the years. At the start I always left the clinic with a smile, which always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just a number, and that treating symptoms is faster and easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs. Finding the real cause takes longer, is harder and is more expensive, at least in the short term. I got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was after I ultimately found the cause and cure (very simple ones at that) that whatever remained of my belief vanished. With that gone, there was no more common belief between me and the doctor, so the authority vanished. My language can't hide it: I found the solution, not a doctor or a system. For this specific illness, I will not lend authority very easily anymore either. I'm lucky, as I have a general idea of healthcare through my studies and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings. Also interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted). I think that might be a western thing, linked to what surfaced in the discussions with @alkasem23 about differences in care with Syria: in the west we put our trust in and rely on systems rather than other people. In some other cultures, people probably put their belief mainly in a person, the doctor. Easier interactions through the internet, powerful search engines, a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't always provide correct information, these factors also lead people to challenge the authority in terms of knowledge of the practitioner in the classical doctor's office. I think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare. Importantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of experimentation with new methods in the stories here on Edgeryders share some sort of community aspect. This illustrates a shift to lending authority to a collective rather than a system or a person. The collective can consist of patients, doctors or other caregivers and is likely a mixture ideally. In Syria the collective is mainly the family, according to Alkasem. Looking through this lens of authority is interesting and can be applied to many aspects of our daily lives. The matter is fresh in my head from a Dutch book I just finished reading, which I hope gets translated to English. If anyone is interested: the book builds on work by Hannah Arendt that you can certainly find",/post/18779,2017-01-22T18:37:29.000Z,2017-01-22T18:37:29.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,297 7304,v1.0,,"I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I'd still like try it out when the opportunity presents itself. It's an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on guidance by an expert is in large part the result of the patients not being as familiar with acupuncture as the expert. Yet patients are there for a reason: at some level, they believe in the positive potential of the treatment. This common belief of both parties is the base for authority and lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear: authority is different from power. I can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn't ever seem to heal or resolve themselves and only got worse over the years. At the start I always left the clinic with a smile, which always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just a number, and that treating symptoms is faster and easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs. Finding the real cause takes longer, is harder and is more expensive, at least in the short term. I got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was after I ultimately found the cause and cure (very simple ones at that) that whatever remained of my belief vanished. With that gone, there was no more common belief between me and the doctor, so the authority vanished. My language can't hide it: I found the solution, not a doctor or a system. For this specific illness, I will not lend authority very easily anymore either. I'm lucky, as I have a general idea of healthcare through my studies and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings. Also interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted). I think that might be a western thing, linked to what surfaced in the discussions with @alkasem23 about differences in care with Syria: in the west we put our trust in and rely on systems rather than other people. In some other cultures, people probably put their belief mainly in a person, the doctor. Easier interactions through the internet, powerful search engines, a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't always provide correct information, these factors also lead people to challenge the authority in terms of knowledge of the practitioner in the classical doctor's office. I think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare. Importantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of experimentation with new methods in the stories here on Edgeryders share some sort of community aspect. This illustrates a shift to lending authority to a collective rather than a system or a person. The collective can consist of patients, doctors or other caregivers and is likely a mixture ideally. In Syria the collective is mainly the family, according to Alkasem. Looking through this lens of authority is interesting and can be applied to many aspects of our daily lives. The matter is fresh in my head from a Dutch book I just finished reading, which I hope gets translated to English. If anyone is interested: the book builds on work by Hannah Arendt that you can certainly find",/post/18779,2017-01-22T18:37:11.000Z,2017-01-22T18:37:11.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,805 9331,v1.0,,"I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I'd still like try it out when the opportunity presents itself. It's an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on guidance by an expert is in large part the result of the patients not being as familiar with acupuncture as the expert. Yet patients are there for a reason: at some level, they believe in the positive potential of the treatment. This common belief of both parties is the base for authority and lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear: authority is different from power. I can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn't ever seem to heal or resolve themselves and only got worse over the years. At the start I always left the clinic with a smile, which always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just a number, and that treating symptoms is faster and easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs. Finding the real cause takes longer, is harder and is more expensive, at least in the short term. I got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was after I ultimately found the cause and cure (very simple ones at that) that whatever remained of my belief vanished. With that gone, there was no more common belief between me and the doctor, so the authority vanished. My language can't hide it: I found the solution, not a doctor or a system. For this specific illness, I will not lend authority very easily anymore either. I'm lucky, as I have a general idea of healthcare through my studies and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings. Also interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted). I think that might be a western thing, linked to what surfaced in the discussions with @alkasem23 about differences in care with Syria: in the west we put our trust in and rely on systems rather than other people. In some other cultures, people probably put their belief mainly in a person, the doctor. Easier interactions through the internet, powerful search engines, a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't always provide correct information, these factors also lead people to challenge the authority in terms of knowledge of the practitioner in the classical doctor's office. I think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare. Importantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of experimentation with new methods in the stories here on Edgeryders share some sort of community aspect. This illustrates a shift to lending authority to a collective rather than a system or a person. The collective can consist of patients, doctors or other caregivers and is likely a mixture ideally. In Syria the collective is mainly the family, according to Alkasem. Looking through this lens of authority is interesting and can be applied to many aspects of our daily lives. The matter is fresh in my head from a Dutch book I just finished reading, which I hope gets translated to English. If anyone is interested: the book builds on work by Hannah Arendt that you can certainly find",/post/18779,2017-01-22T18:36:59.000Z,2017-01-22T18:36:59.000Z,18779,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1290 9330,v1.0,,"Talk about a slow revolution! It makes sense to me that we're hardwired to take univocal instructions more seriously, it shows that the doctor is not doubting his approach. Patient-doctor dynamics in healthcare is probably cultural too - we've heard stories from China where ambivalence or open endedness in medical consultations inspired fear more than confidence.",/post/18496,2017-01-22T18:36:27.000Z,2017-01-22T18:36:27.000Z,18496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1290 9329,v1.0,,"But it turns out that people actually want a bit more guidance / authority than that - perhaps this is just the legacy of hierarchical healthcare, that they feel more comfortable with a model that they are familiar with, or perhaps it is actually a greater part of being a therapist than I previously considered; that the nature of therapy is such that you need to have a degree of authority for the patient to productively assimilate the treatment. This obviously raises interesting questions about some of the 'horizontalist' projects featured in Opencare!",/post/17844,2017-01-22T18:36:11.000Z,2017-01-22T18:36:11.000Z,17844,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1290 9169,v1.0,,"as doing the clinic during the day, but a lot of people had problems getting childcare or said they could not come because of their working hours, so I am thinking I will run it from the afternoon into the evening instead, to give people a chance to come along who otherwise couldn't. The other option would be Saturday morning, which would certainly get people in",/post/17844,2017-01-22T18:35:23.000Z,2017-01-22T18:35:23.000Z,17844,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1260 4578,v1.0,,"Yes, I think there could be some very interesting cross-over with the WeHandU-type approach. Notwithstanding what I said in reply to @Alberto below about the need to retain a degree of 'expert-pateint' hierarchy, I am very interested in exploring the prospects for more collaborative healing. Indeed, the nature of Traditional East Asian Medicine is very collaborative already - patients can be given exercises to do, dietary changes, self-moxa kits, or herbal teas that all supplement and reinforce the acupuncture treatment, meaning that they are far more involved in their own journey back to wellness.",/post/11802,2017-01-22T18:34:53.000Z,2017-01-22T18:34:53.000Z,11802,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,21 10464,v1.0,,"One idea I had was to supplement the clinic with a once-a-week 'Moxa Club' where people could come and learn to safely use moxa on each other. Many more people could be treated simultaneously than is possible with just one acupuncturist; if partners, friends or family came together, they could then continue treatments at home; and the overall message - that people should be learning the skills to keep themselves healthy - would be inherent in the model.",/post/11802,2017-01-22T18:34:45.000Z,2017-01-22T18:34:45.000Z,11802,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1556 5814,v1.0,,"It is a little like a digital advertising screen, broadcasting a single, one-way message to a public who have no choice but to receive it. Just like a digital advertising screen, this kind of healthcare can seem cutting-edge, innovative and technologically impressive, but its values do not respect the uniqueness of individual or place, nor do they promote communal solidarity and empowerment. So long as this is the case, communities will continue to vote with their feet, seeking out new forms of adaptive Open Care that address their real mental, physical and social needs.",/post/549,2017-01-22T18:34:16.000Z,2017-01-22T18:34:16.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,377 10372,v1.0,,"It is a little like a digital advertising screen, broadcasting a single, one-way message to a public who have no choice but to receive it. Just like a digital advertising screen, this kind of healthcare can seem cutting-edge, innovative and technologically impressive, but its values do not respect the uniqueness of individual or place, nor do they promote communal solidarity and empowerment. So long as this is the case, communities will continue to vote with their feet, seeking out new forms of adaptive Open Care that address their real mental, physical and social needs.",/post/549,2017-01-22T18:34:02.000Z,2017-01-22T18:34:02.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1533 6012,v1.0,,"Nevertheless, the popularity and effectiveness of CMACs speak for themselves. All too often, the state-established institutions of care remain locked into a post-imperial perspective, treating the body, the patient or the polis as the passive subject of a homogenised, top-down intervention.",/post/549,2017-01-22T18:33:50.000Z,2017-01-22T18:33:50.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,411 10065,v1.0,,"Problems still remain, not least with the institutional resistance to acupuncture – often based on little more than ill-informed prejudice against ‘alternative’ medicine. There are clashes within the acupuncture community, as well, on how best to treat, and issues with providing quality-assurance and redress to patients whilst working outside the usual channels and institutions of healthcare.",/post/549,2017-01-22T18:33:12.000Z,2017-01-22T18:33:12.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1449 11240,v1.0,,"Like many of the other projects featured in OpenCare, the flexibility of Community Acupuncture – light on infrastructure, expensive medical equipment or architectural requirements, reliant instead on the portable diagnostic and treatment skills of the practitioner – makes it well-suited to navigating a disrupted present and an uncertain future. Quite aside from its effectiveness at treating unexplained and chronic conditions (the kind mainstream Western medicine does not excel at curing), having the ability to treat without reliance on fragile, resource-intensive and environmentally-damaging industrial supply chains may well prove to be a great asset in the near future. Indeed, the worth of this is already being proven through the work of charitable foundations like World Medicine, who have set up successful CMACs in poor, rural areas of India, Palestine, Nepal and Sri Lanka.",/post/549,2017-01-22T18:32:28.000Z,2017-01-22T18:32:28.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1774 9026,v1.0,,"To ask, as a state bureaucrat convinced of the usefulness of CMACs might, “how can we replicate this so that we can roll it out across the country at an official level?” rather misses the point; it is precisely by being embedded in the community that this process of creative mutation can occur, and precisely by meeting patients outside the usual structures of state-sanctioned medical authority that a more horizontal trust and respect can be created, and a more creative approach to healthcare provision enacted.",/post/549,2017-01-22T18:31:59.000Z,2017-01-22T18:31:59.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1232 7915,v1.0,,"True disruption, then, might not look like the world-spanning, high-octane revolutions beloved of the senior executives. It might look like slowness; like quietness; like a return to engagement at the scale of the human being. It might just turn out that old is the new new.",/post/549,2017-01-22T18:31:04.000Z,2017-01-22T18:31:04.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,969 10497,v1.0,,"True disruption, then, might not look like the world-spanning, high-octane revolutions beloved of the senior executives. It might look like slowness; like quietness; like a return to engagement at the scale of the human being. It might just turn out that old is the new new.",/post/549,2017-01-22T18:30:46.000Z,2017-01-22T18:30:46.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,1559 6987,v1.0,,"Passing through Kobenhavn airport this morning, a digital advertising screen promoted this month’s ‘Presidents Summit’ on the topic of ‘Disruption’: “Disruption will change your job. Disruption will change your company. Disruption will change the world. Join our world leading summit and learn how to lead the change and make sure you are one of tomorrow's frontrunners.” That the idea of ‘disruption’ has moved from the radical edge of digital culture and post-2008 political insurgency to the topic of a plenary meeting of senior executives – featuring speeches by Apple’s Steve Wozniak and arch-Brexiteer Nigel Farage – shows the degree to which the concept has spread through society to become the ‘new normal’; a sign, perhaps, of just how much the pace of social, technological and economic change has increased since I fretted about the novel impact of moving images on the urban populace. But it also raises the question of how much of this disruption is merely cosmetic – or, rather, how much the very genuine disruption of ordinary lives only serves to bolster the established iniquities of our current economic and political status quo. If disruption is merely another business opportunity from the playbook of ‘creative destruction’ capitalism, if the elite response to it is simply to fight harder to be one of ‘tomorrow’s frontrunners’ (while those who can’t keep up must, presumably, be left behind), then perhaps this is merely another case of plus ça change, plus c'est la même chose. If so, what would genuine disruption look like? Is it possible that it might look like the opposite of all this? That it might look like a rejection of these kinds of disruption? The stories emerging from the OpenCare initiative suggest that this may be the case. Again and again, the tales that emerge are of a less hierarchical, more empowering approach to health and care; of individualised, human-scale responses to unique instances of wider social problems; of a movement away from the paradigm that measures ‘efficiency’ of care in terms of speed, throughput or numbers discharged – measured, in short, on how fast the system can cease to be in relationship with the citizens who have sought aid. True disruption, then, might not look like the world-spanning, high-octane revolutions beloved of the senior executives. It might look like slowness; like quietness; like a return to engagement at the scale of the human being. It might just turn out that old is the new new.",/post/549,2017-01-22T18:30:33.000Z,2017-01-22T18:30:33.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,730 6926,v1.0,,"Fifteen years ago, I wrote an academic paper on the incipient technology of digital advertising screens, the way they were likely to change our experience of urban living and the challenges they posed to our conceptions of self, privacy and the public realm. At the time, such technologies were the stuff of science fiction movies – part of the classic ‘Blade Runner’ aesthetic of cosmopolitan dystopia. Most people did not anticipate their widespread adoption, and certainly did not consider their subtle social implications; but for those who did, perhaps the most haunting fear about their probable dissemination was the certainty that the social and psychological changes they engendered would quickly become the new status quo, unnoticed and unquestioned.",/post/549,2017-01-22T18:30:18.000Z,2017-01-22T18:30:18.000Z,549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,516,716 5076,v1.0,,@Sharon you are so right to say that deep healing comes through human contact and openess -,/post/24078,2017-01-22T18:29:00.000Z,2017-01-22T18:29:00.000Z,24078,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,146 9048,v1.0,,"Noemi kindly introduced me to @kate g ,Vital Networks is an incredible post! It is hard not to feel exhilarated by her vision of the potential that virtual networks may have as healing spaces. It is a complex and interesting field of design. The challenge of consciously designing, around real as oppose to superficial human needs and the provision of useful, honest information. The balance required in creating a network space of safety, trust and openness.  The lack of inhibition that can come through using virtual online communities, can obviously pose negatives, along with the positives and would require the building in of sensitive, nurturing supports to accommodate this. It is an exciting area and challenge though,I'm excited to follow it.",/post/22821,2017-01-22T18:28:52.000Z,2017-01-22T18:28:52.000Z,22821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1245 10349,v1.0,,"I really like the puzzle analogy you used and I agree, through every interaction we are always taking and filtering what clicks and fits with  us. You are absolutely right in saying, the form that the group or community takes, absolutely differs from person to person.I too can relate, to having good friends on and offline and love the fact that a group came through for you through darker times.",/post/22821,2017-01-22T18:28:34.000Z,2017-01-22T18:28:34.000Z,22821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1527 11300,v1.0,,"I really like the puzzle analogy you used and I agree, through every interaction we are always taking and filtering what clicks and fits with  us. You are absolutely right in saying, the form that the group or community takes, absolutely differs from person to person.I too can relate, to having good friends on and offline and love the fact that a group came through for you through darker times.",/post/22821,2017-01-22T18:28:26.000Z,2017-01-22T18:28:26.000Z,22821,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1795 6391,v1.0,,"Defining what constitutes a community, a group, or what is just collection of individuals that share a friend is not the point. I guess you could say that the form the group or community takes differs for everyone. Or that the healing process is about meaningful interactions with others, however that may work for you. Helping others is an underrated aspect of this.",/post/22611,2017-01-22T18:28:16.000Z,2017-01-22T18:28:16.000Z,22611,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,472 7691,v1.0,,"You say some people find the idea of a group therapy unsettling. I am one of those people. It's not the sharing with strangers or the speaking up. I could even live with the religious connotations, though I have a light allergy to most things that involve ritual. I think the reason is the lack of richness I experience in these group interactions. I find one on one conversations or reading people's stories like yours much more rewarding.  However, when I went through a darker period, it was also a group of people that helped me get out. It was a series of stories and great conversations, offline and online, one person at a time. Most of them will never meet each other. Defining what constitutes a community, a group, or what is just collection of individuals that share a friend is not the point. I guess you could say that the form the group or community takes differs for everyone. Or that the healing process is about meaningful interactions with others, however that may work for you. Helping others is an underrated aspect of this.",/post/22611,2017-01-22T18:28:08.000Z,2017-01-22T18:28:08.000Z,22611,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,915 10348,v1.0,,"t's a harsh truth that there is no cookie cutter strategy, that everyone has to go through their own process, solve their own puzzle. Although this process is different for everyone, for each part of it there are similarities with someone, somewhere. To me it appears that a big part of the search is identifying pieces of your puzzle in other people (eg. some advice) and testing if it gets you closer to finishing your puzzle. That's where community comes in handy: a large group of people equals a lot of potentially useful pieces. The analogy is a simplification, but it helps me make sense of it.",/post/22611,2017-01-22T18:27:58.000Z,2017-01-22T18:27:58.000Z,22611,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1527 11299,v1.0,,"t's a harsh truth that there is no cookie cutter strategy, that everyone has to go through their own process, solve their own puzzle. Although this process is different for everyone, for each part of it there are similarities with someone, somewhere. To me it appears that a big part of the search is identifying pieces of your puzzle in other people (eg. some advice) and testing if it gets you closer to finishing your puzzle. That's where community comes in handy: a large group of people equals a lot of potentially useful pieces. The analogy is a simplification, but it helps me make sense of it.",/post/22611,2017-01-22T18:27:38.000Z,2017-01-22T18:27:38.000Z,22611,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1795 6515,v1.0,,"Many people find the religious connotations in group therapy settings a little off putting. It boils down to the individual bing able, to adapt and personalise it to their own belief system.  A nondenominational, peer group could definitely foster more openness, in how mental health support is offered.",/post/22093,2017-01-22T18:27:28.000Z,2017-01-22T18:27:28.000Z,22093,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,489 9860,v1.0,,"Many people find the religious connotations in group therapy settings a little off putting. It boils down to the individual bing able, to adapt and personalise it to their own belief system.  A nondenominational, peer group could definitely foster more openness, in how mental health support is offered. I agree with you @Alberto , that a good way to help people experiencing mental health issues, might be to empower individuals in becoming healers for others, by participating in a community healing itself.",/post/22093,2017-01-22T18:27:17.000Z,2017-01-22T18:27:17.000Z,22093,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1432 7690,v1.0,,"Like Alan, I also attended meetings run by GROW for a year, therefore I can relate to the benefits that a peer group have to offer. New tasks were set weekly for each member to get proactive about. It encourages people to be proactive in understanding their situation and actively engage in ways to improve it. Each member was required to ring another member between meetings, to connect with others. This social aspect is extremely important. The accountability to a group/community at the end of the week is a great motivator for many. Sitting and sharing with a group of people in a circle, with people who are being open and honest about the issues they are experiencing, is hugely healing for everyone in that circle. It can offer huge relief, to find that type of honest connection and understanding. From that space, confidence to manage /overcome a challenge can grow.",/post/22093,2017-01-22T18:27:10.000Z,2017-01-22T18:27:10.000Z,22093,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,915 9348,v1.0,,"Like Alan, I also attended meetings run by GROW for a year, therefore I can relate to the benefits that a peer group have to offer. New tasks were set weekly for each member to get proactive about. It encourages people to be proactive in understanding their situation and actively engage in ways to improve it. Each member was required to ring another member between meetings, to connect with others. This social aspect is extremely important. The accountability to a group/community at the end of the week is a great motivator for many. Sitting and sharing with a group of people in a circle, with people who are being open and honest about the issues they are experiencing, is hugely healing for everyone in that circle. It can offer huge relief, to find that type of honest connection and understanding. From that space, confidence to manage /overcome a challenge can grow.",/post/22093,2017-01-22T18:27:03.000Z,2017-01-22T18:27:03.000Z,22093,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1294 11298,v1.0,,"However, everyone is so unique.Everyone has to go through their own diagnosis process,  in their own way and within their own unique set of circumstances.",/post/22093,2017-01-22T18:26:56.000Z,2017-01-22T18:26:56.000Z,22093,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1795 9347,v1.0,,"community"" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you",/post/20576,2017-01-22T18:26:35.000Z,2017-01-22T18:26:35.000Z,20576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1294 10899,v1.0,,"community"" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you think?",/post/20576,2017-01-22T18:26:31.000Z,2017-01-22T18:26:31.000Z,20576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1679 5813,v1.0,,"community"" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you think?",/post/20576,2017-01-22T18:26:19.000Z,2017-01-22T18:26:19.000Z,20576,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,377 4577,v1.0,,Glad to hear the acupuncture was helpful! I was talking to an Irish acupuncturist just the other day and it sounds like they face many of the same hurdles around perception and bureaucracy there that we do in the UK.,/post/15313,2017-01-22T18:25:53.000Z,2017-01-22T18:25:53.000Z,15313,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,21 8184,v1.0,,"It's left me wondering how widely your experience is shared by people in Ireland - to what degree the economic situation over the last decade has eroded people's ability to cope, or woken people up to the need for solidarity and community, or just caused (young) people to leave the country, and how that feels to those who still live there.",/post/15313,2017-01-22T18:25:47.000Z,2017-01-22T18:25:47.000Z,15313,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1047 11567,v1.0,,"It's left me wondering how widely your experience is shared by people in Ireland - to what degree the economic situation over the last decade has eroded people's ability to cope, or woken people up to the need for solidarity and community, or just caused (young) people to leave the country, and how that feels to those who still live there.",/post/15313,2017-01-22T18:25:40.000Z,2017-01-22T18:25:40.000Z,15313,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1873 11566,v1.0,,"think this can be especially difficult for young adults, who can judge themselves so harshly, as they don’t yet have the life experience to understand that they are not alone. As they are only developing emotionally, many have not yet realised their innate potential to cope and solve life’s challenges. In rural areas especially it would be great to raise more awareness of the mental health therapeutic options available to people.",/post/11421,2017-01-22T18:25:12.000Z,2017-01-22T18:25:12.000Z,11421,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1873 7689,v1.0,,"My experience of group therapy for a year was very beneficial to me. Deep healing I believe comes through human contact and openness. Healthy people solve everyday problems through talking with friends and family. When struggling with a problem in the area of mental health, we know the stigma around it creates a barrier to open discussion with those around you, even friends and loved ones. This can cause it to fester and become an even bigger problem ,which can increase isolation.",/post/11421,2017-01-22T18:25:06.000Z,2017-01-22T18:25:06.000Z,11421,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,915 10437,v1.0,,"I know it is funny how we gravitate toward anything that offers some short-lived stability, even though everything about life is so impermanent. Some of us are programmed more than others to cling tightly to things that make us feel secure, instead of embracing change that comes our way.",/post/11421,2017-01-22T18:24:53.000Z,2017-01-22T18:24:53.000Z,11421,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1547 4676,v1.0,,"During college I had done some volunteering, and so, knew that I had a leaning towards working in business for a social cause. The other constraint I had over the years, was an accumulation of a few gaps in my C.V because of past mental health issues. I had started suffering from anxiety in my teens which really affected my self-esteem. This condition really impacted my development. So, by the time my friends were going to college at 18, I stayed at home and was happy to take care of my grandmother who needed support. I was on and off medication for a long time. I tried lots of things, individual counselling and group therapy, which really did help me. Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki.",/post/810,2017-01-22T18:24:35.000Z,2017-01-22T18:24:35.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,54 5812,v1.0,,"The other side of the coin is, that I have fortunately come to discover, the absolute profound healing and joy that comes from people around us, the hearts and minds of people who genuinely care.",/post/810,2017-01-22T18:24:08.000Z,2017-01-22T18:24:08.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,377 5075,v1.0,,"The other side of the coin is, that I have fortunately come to discover, the absolute profound healing and joy that comes from people around us, the hearts and minds of people who genuinely care.",/post/810,2017-01-22T18:24:00.000Z,2017-01-22T18:24:00.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,146 8183,v1.0,,"Hi my name is Sharon. I’m currently working part-time in a charity shop, employed three days and in receipt of a social welfare subsidy for the other days. I am also studying a postgrad diploma part-time in Sustainable Development. Having completed a Bachelor of Business and an honours degree in Information Systems Management in 2013, I was hopeful that I could find employment. After completing the course, I decided however, that I did not want to work with technology on a continuous basis, as I found that the final specialised year was soulless. During college I had done some volunteering, and so, knew that I had a leaning towards working in business for a social cause. The other constraint I had over the years, was an accumulation of a few gaps in my C.V because of past mental health issues. I had started suffering from anxiety in my teens which really affected my self-esteem. This condition really impacted my development. So, by the time my friends were going to college at 18, I stayed at home and was happy to take care of my grandmother who needed support. I was on and off medication for a long time. I tried lots of things, individual counselling and group therapy, which really did help me. Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki. Unfortunately, we live in a society that places huge stigma around mental health issues so in terms of employment, people are encouraged to cover up any such issues. The C.V gaps gave me less of a competitive edge in the job market and I was 8 months unemployed after college. The emphasis placed on having experience to get jobs can be an obstacle. Even though I had experience volunteering throughout my time at college, I found that companies don’t recognise volunteer work, because you haven’t been paid for it. I decided to return to volunteering again, for a wonderful NGO where after 3 months a shop management position presented itself. That was like winning the lotto for me, I can tell you! I don’t like the money grabbing, I need there to be a social dimension and something more sustainable. Unfortunately,only 8 months in, this wonderful NGO working to support development overseas had to close their Irish operations, to make the charity more sustainable. I went on to get my current job as a charity shop assistant, again after an 8-month search. I love working in this environment, as you get to meet real heroes with real struggles and tales of survival. In 2015, my Mum got cancer. My beautiful Mum has always been a brave and determined warrior. My folks have undergone a lot of problems with housing during the economic downturn in Ireland. They moved in with one of my uncles who is a diagnosed schizophrenic to take care of him. They each have always played the role of carers in both of their large families, often taking on huge burdens of care for their siblings, very selflessly and very much to their own disadvantage. The thanks they end up getting for their efforts, is having to look for a new home while Mum was in the early stages of cancer, due to one uncle behaving very aggressively and selfishly toward them.Mum did not need to be further subjected to that kind of stressful behaviour. Thankfully, after a short search period, my folks ended up moving into a house in my neighbourhood.This was hugely beneficial to me, as I was then positioned to be of help to them, where I could, in supporting Mum on her journey to recovery. The past few years have really been a very harsh eye opener for me, into the affects an economic crisis has on people’s lives. It has detrimental impacts on people’s health, welfare, living conditions and psyches. The other side of the coin is, that I have fortunately come to discover, the absolute profound healing and joy that comes from people around us, the hearts and minds of people who genuinely care. That sense of community and connection is the most important aspect to life and has certainly helped me and my family to cope through the last few years. There is a dire need for an extension of this supportive community, in tackling the many varied and complex social issues of our time. The most recent suicide and cancer statistics, highlight the absolute urgency, in finding alternative ways, of connecting and supporting the people who are struggling within our communities. Thanks to all involved in Edgeryders for all your hard effort in attempting to achieve that! I hope this community will be very successful in its reach. Love and best wishes to you all! X",/post/810,2017-01-22T18:23:22.000Z,2017-01-22T18:23:22.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1047 10650,v1.0,,"Unfortunately, we live in a society that places huge stigma around mental health issues so in terms of employment, people are encouraged to cover up any such issues. The C.V gaps gave me less of a competitive edge in the job market and I was 8 months unemployed after college. The emphasis placed on having experience to get jobs can be an obstacle. Even though I had experience volunteering throughout my time at college, I found that companies don’t recognise volunteer work, because you haven’t been paid for it.",/post/810,2017-01-22T18:23:13.000Z,2017-01-22T18:23:13.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1622 9849,v1.0,,"The other constraint I had over the years, was an accumulation of a few gaps in my C.V because of past mental health issues. I had started suffering from anxiety in my teens which really affected my self-esteem. This condition really impacted my development. So, by the time my friends were going to college at 18, I stayed at home and was happy to take care of my grandmother who needed support. I was on and off medication for a long time. I tried lots of things, individual counselling and group therapy, which really did help me. Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki.",/post/810,2017-01-22T18:23:04.000Z,2017-01-22T18:23:04.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1428 4576,v1.0,,"The other constraint I had over the years, was an accumulation of a few gaps in my C.V because of past mental health issues. I had started suffering from anxiety in my teens which really affected my self-esteem. This condition really impacted my development. So, by the time my friends were going to college at 18, I stayed at home and was happy to take care of my grandmother who needed support. I was on and off medication for a long time. I tried lots of things, individual counselling and group therapy, which really did help me. Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki.",/post/810,2017-01-22T18:22:57.000Z,2017-01-22T18:22:57.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,21 4478,v1.0,,"The other constraint I had over the years, was an accumulation of a few gaps in my C.V because of past mental health issues. I had started suffering from anxiety in my teens which really affected my self-esteem. This condition really impacted my development. So, by the time my friends were going to college at 18, I stayed at home and was happy to take care of my grandmother who needed support. I was on and off medication for a long time. I tried lots of things, individual counselling and group therapy, which really did help me. Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki.",/post/810,2017-01-22T18:22:52.000Z,2017-01-22T18:22:52.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,3 5014,v1.0,,"In 2015, my Mum got cancer. My beautiful Mum has always been a brave and determined warrior. My folks have undergone a lot of problems with housing during the economic downturn in Ireland. They moved in with one of my uncles who is a diagnosed schizophrenic to take care of him. They each have always played the role of carers in both of their large families, often taking on huge burdens of care for their siblings, very selflessly and very much to their own disadvantage. The thanks they end up getting for their efforts, is having to look for a new home while Mum was in the early stages of cancer, due to one uncle behaving very aggressively and selfishly toward them.Mum did not need to be further subjected to that kind of stressful behaviour. Thankfully, after a short search period, my folks ended up moving into a house in my neighbourhood.This was hugely beneficial to me, as I was then positioned to be of help to them, where I could, in supporting Mum on her journey to recovery.",/post/810,2017-01-22T18:22:27.000Z,2017-01-22T18:22:27.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,135 8557,v1.0,,"Hi my name is Sharon. I’m currently working part-time in a charity shop, employed three days and in receipt of a social welfare subsidy for the other days. I am also studying a postgrad diploma part-time in Sustainable Development. Having completed a Bachelor of Business and an honours degree in Information Systems Management in 2013, I was hopeful that I could find employment. After completing the course, I decided however, that I did not want to work with technology on a continuous basis, as I found that the final specialised year was soulless. During college I had done some volunteering, and so, knew that I had a leaning towards working in business for a social cause. The other constraint I had over the years, was an accumulation of a few gaps in my C.V because of past mental health issues. I had started suffering from anxiety in my teens which really affected my self-esteem. This condition really impacted my development. So, by the time my friends were going to college at 18, I stayed at home and was happy to take care of my grandmother who needed support. I was on and off medication for a long time. I tried lots of things, individual counselling and group therapy, which really did help me. Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki. Unfortunately, we live in a society that places huge stigma around mental health issues so in terms of employment, people are encouraged to cover up any such issues. The C.V gaps gave me less of a competitive edge in the job market and I was 8 months unemployed after college. The emphasis placed on having experience to get jobs can be an obstacle. Even though I had experience volunteering throughout my time at college, I found that companies don’t recognise volunteer work, because you haven’t been paid for it. I decided to return to volunteering again, for a wonderful NGO where after 3 months a shop management position presented itself. That was like winning the lotto for me, I can tell you! I don’t like the money grabbing, I need there to be a social dimension and something more sustainable. Unfortunately,only 8 months in, this wonderful NGO working to support development overseas had to close their Irish operations, to make the charity more sustainable. I went on to get my current job as a charity shop assistant, again after an 8-month search. I love working in this environment, as you get to meet real heroes with real struggles and tales of survival. In 2015, my Mum got cancer. My beautiful Mum has always been a brave and determined warrior. My folks have undergone a lot of problems with housing during the economic downturn in Ireland. They moved in with one of my uncles who is a diagnosed schizophrenic to take care of him. They each have always played the role of carers in both of their large families, often taking on huge burdens of care for their siblings, very selflessly and very much to their own disadvantage. The thanks they end up getting for their efforts, is having to look for a new home while Mum was in the early stages of cancer, due to one uncle behaving very aggressively and selfishly toward them.Mum did not need to be further subjected to that kind of stressful behaviour. Thankfully, after a short search period, my folks ended up moving into a house in my neighbourhood.This was hugely beneficial to me, as I was then positioned to be of help to them, where I could, in supporting Mum on her journey to recovery. The past few years have really been a very harsh eye opener for me, into the affects an economic crisis has on people’s lives. It has detrimental impacts on people’s health, welfare, living conditions and psyches. The other side of the coin is, that I have fortunately come to discover, the absolute profound healing and joy that comes from people around us, the hearts and minds of people who genuinely care. That sense of community and connection is the most important aspect to life and has certainly helped me and my family to cope through the last few years. There is a dire need for an extension of this supportive community, in tackling the many varied and complex social issues of our time. The most recent suicide and cancer statistics, highlight the absolute urgency, in finding alternative ways, of connecting and supporting the people who are struggling within our communities. Thanks to all involved in Edgeryders for all your hard effort in attempting to achieve that! I hope this community will be very successful in its reach. Love and best wishes to you all! X",/post/810,2017-01-22T18:22:10.000Z,2017-01-22T18:22:10.000Z,810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,777,1140 8732,v1.0,,"We don't have contact with the refugees anymore, the camps ate far from the town and nobody listens to any ideas. So, the only thing I can do it's to keep it for my list. It's difficult to explain the situation here...",/post/26963,2017-01-22T18:21:30.000Z,2017-01-22T18:21:30.000Z,26963,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1150 10930,v1.0,,"The only thing you really need are the number punches. With them you can quickly improvise a (reusable) ticket system. The details of implementing it can be all kinds of ways - not necessarily a first come, first serve. What I could imagine works fairly well is having a clock-like indicator which groups of tickets are called for when, and if available a loudspeaker that can also call things out. One nice thing about the fimo stuff is that it is pretty easy to mix in a unique way, so making fakes is very difficult. And you have to look closely to see the number on it, which reduces fighting for the ""best numbers"" (you also do count downs vs count ups). A pack of 570g can easily be made into 570 tickets. Cost per 1000 such long lasting tickets would be around 30 EUR.",/post/26056,2017-01-22T18:21:17.000Z,2017-01-22T18:21:17.000Z,26056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1688 6468,v1.0,,"There are many ways and materials to improvise these from (https://en.wikipedia.org/wiki/Salt_dough ASIN B00O0PRFHM paper or clay (perhaps ""non-firing"") and number punches ( B01M1VBFNS )).",/post/26056,2017-01-22T18:21:08.000Z,2017-01-22T18:21:08.000Z,26056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,485 11346,v1.0,,"Hey @Alberto! Actually Malagasy government on something else. Since ever,the health department is on a vitamin A and mosquito net campaign,  vaccination against poliomelite ""weaknesses of ligaments"" every year. And there is no update since 2006, The Malagasy Institute of statistics on deep water. Just for record, a doctor is caring a thousand people so 1/1000 people, we are estimated about 20 000 000 habitant. Here is a picture of a doctor make you know how it's look like on administration building for public health.",/post/17289,2017-01-10T17:36:59.000Z,2017-01-10T17:36:59.000Z,17289,3323,AnnotatorStore::TextAnnotation,,,,,,,,,673,1816 4749,v1.0,,"Hello @Michel , thanks for this great story (and thanks for taking the time of writing in English, unfortunately most people in Edgeryders do not speak or read Malagasy). Wow, I had no idea asthma was that common in your part of the world.  I am wondering if asthma treatment would lend itself to cheap, open source, DIY treatment. it is a chronic condition – plenty of time for the patient to learn to manage it it is treated with well-understood drugs  which are delivered with relatively simple machines (inhalers) lifestyle and environmental modificiations also affect it – as Michel says, defend the forest, asthma management gets better for everyone living near it. This sounds like something communities could try to crack. Does this make sense, @markomanka and @Costantino ? Would this be a possible area to work in?",/post/14837,2017-01-10T17:36:43.000Z,2017-01-10T17:36:43.000Z,14837,3323,AnnotatorStore::TextAnnotation,,,,,,,,,673,68 10809,v1.0,,"Actually it's our future generations lives is on the line metaphorically and literally. Nature and man can't be separated. As my thoughts, training for peasants for new method of rice planting unsteady of slash and burn. Biogas can replace the charcoal and wood used as  combustion of 80% of Malagasy people.  Education for all and ordinance and penalties can be applied for any means of illegal way.  It's just a small sand into the gears to overcome or slow down this fast truck.",/post/706,2017-01-10T17:36:32.000Z,2017-01-10T17:36:32.000Z,706,3323,AnnotatorStore::TextAnnotation,,,,,,,,,673,1648 5486,v1.0,,"More than the half of the forest in my country has been cutted for combustion, furnitures, slash and burn,... Following population growth from 15 million to 20 during the last 30 years. Public health and sanitation are trying as they can and have to keep us healthy; with this growing population; open fire and carbonic gas are growing following this, carbonic gas from factories and cars... Nowadays, 80% of kids under 5 years seem asthmatic. I know that when I was asking the pediatrician in a pediatric hospital, where I brought my 3 years old nephew for lungs exam. For information, only few people who have enough money can afford treatment like aerosol ""inhale"", medicines,...",/post/706,2017-01-10T17:36:11.000Z,2017-01-10T17:36:11.000Z,706,3323,AnnotatorStore::TextAnnotation,,,,,,,,,673,318 5974,v1.0,,"@Moushira,I'm sorry to hear that it's a 'stellar' solution. We try to be very practical, applied and earth bound. stage =  version 2.x forked from experience 1999. Hardware 11 & 2.0. (Sorry, It's an iterative process.) We are prototyping the concept within the next weeks. Let's have a chat/brainstorm. I'm very interested.",/post/28458,2017-01-10T17:35:07.000Z,2017-01-10T17:35:07.000Z,28458,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,396 6467,v1.0,,"Though wheelchairs not my speciality I have seen several solutions presented by scholars. For example:; Stairclimbing see:http://portale.siva.it/en-GB/databases/products/isoSearch?classification=122315 (so the NHS offers zero) In theory its simple: https://www.youtube.com/watch?v=ik286spRM1w why dont you just buy one of these? https://www.youtube.com/watch?v=AaZLoUYXDSs or https://www.youtube.com/watch?v=O7otewMk9pc ( I actually saw one on the street the other day) Who dares hack a segway? And who dares using it?",/post/26020,2017-01-10T17:34:46.000Z,2017-01-10T17:34:46.000Z,26020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,485 11463,v1.0,,"Though wheelchairs not my speciality I have seen several solutions presented by scholars. For example:; Stairclimbing see:http://portale.siva.it/en-GB/databases/products/isoSearch?classification=122315 (so the NHS offers zero) In theory its simple: https://www.youtube.com/watch?v=ik286spRM1w why dont you just buy one of these? https://www.youtube.com/watch?v=AaZLoUYXDSs or https://www.youtube.com/watch?v=O7otewMk9pc ( I actually saw one on the street the other day) Who dares hack a segway? And who dares using it?",/post/26020,2017-01-10T17:34:39.000Z,2017-01-10T17:34:39.000Z,26020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1849 11462,v1.0,,"@Moushira, with 'Would it be possible to think of a mechanical system that can be attached to all “standard” wheelchairs,  that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? ' you ask for the stars, but if we realize the WeHandU, i'ts about what you ask. You join in with an idea for a solution/someone has a proposal, together we realize. You test the solution and you are happy , U reiterate improvements or abandon. Most important: We and U document opensource the result of the work for others to build on. It's not the stars but wouldn't it be getting you to the moon be good enough ?",/post/23367,2017-01-10T17:33:36.000Z,2017-01-10T17:33:36.000Z,23367,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1849 11461,v1.0,,"The approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point: ""wheelchair"" = ""no"" Whereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects (""nodes"" or ""ways"") in OpenStreetMap rather than to coordinates. The results are stored as a layer in a CSV file on the city's open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer: http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826  This was done by the wonderful @piersoft and fellow citizens.",/post/19845,2017-01-10T17:33:20.000Z,2017-01-10T17:33:20.000Z,19845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1849 8431,v1.0,,"The approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point: ""wheelchair"" = ""no"" Whereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects (""nodes"" or ""ways"") in OpenStreetMap rather than to coordinates. The results are stored as a layer in a CSV file on the city's open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer: http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826  This was done by the wonderful @piersoft and fellow citizens.",/post/19845,2017-01-10T17:33:15.000Z,2017-01-10T17:33:15.000Z,19845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1114 4528,v1.0,,"The approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point: ""wheelchair"" = ""no"" Whereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects (""nodes"" or ""ways"") in OpenStreetMap rather than to coordinates. The results are stored as a layer in a CSV file on the city's open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer: http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826  This was done by the wonderful @piersoft and fellow citizens.",/post/19845,2017-01-10T17:33:08.000Z,2017-01-10T17:33:08.000Z,19845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,12 8783,v1.0,,"You can find the map on www.wheelmap.org. The wheelmap is a map for wheelchair accessible places. You can find places, evaluate places you have already been to, or inscribe places. The map shall help people in wheelchairs or with other mobility limitations to plan their day easier. When I met Raul Krauthausen for an interview, we looked for a place on the wheelchair, that fits us both: based on the location and the accessibility.",/post/14204,2017-01-10T17:32:56.000Z,2017-01-10T17:32:56.000Z,14204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1155 11460,v1.0,,"You can find the map on www.wheelmap.org. The wheelmap is a map for wheelchair accessible places. You can find places, evaluate places you have already been to, or inscribe places. The map shall help people in wheelchairs or with other mobility limitations to plan their day easier. When I met Raul Krauthausen for an interview, we looked for a place on the wheelchair, that fits us both: based on the location and the accessibility.",/post/14204,2017-01-10T17:32:43.000Z,2017-01-10T17:32:43.000Z,14204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1849 8430,v1.0,,"You can find the map on www.wheelmap.org. The wheelmap is a map for wheelchair accessible places. You can find places, evaluate places you have already been to, or inscribe places. The map shall help people in wheelchairs or with other mobility limitations to plan their day easier. When I met Raul Krauthausen for an interview, we looked for a place on the wheelchair, that fits us both: based on the location and the accessibility.",/post/14204,2017-01-10T17:32:39.000Z,2017-01-10T17:32:39.000Z,14204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1114 5405,v1.0,,"They are taking a different approach in asking how to create environments which are    inclusive by design and not by label. Someone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them. They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.",/post/8631,2017-01-10T17:32:17.000Z,2017-01-10T17:32:17.000Z,8631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,302 6944,v1.0,,"They are taking a different approach in asking how to create environments which are    inclusive by design and not by label. Someone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them. They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.",/post/8631,2017-01-10T17:32:07.000Z,2017-01-10T17:32:07.000Z,8631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,724 6466,v1.0,,"They are taking a different approach in asking how to create environments which are    inclusive by design and not by label. Someone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them. They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.",/post/8631,2017-01-10T17:32:02.000Z,2017-01-10T17:32:02.000Z,8631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,485 6465,v1.0,,"Would it be possible to think of a mechanical system that can be attached to all “standard” wheelchairs,  that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits?   Any thoughts?",/post/689,2017-01-10T17:31:48.000Z,2017-01-10T17:31:48.000Z,689,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,485 11459,v1.0,,"If you are paralyzed, you are most likely using a wheelchair, and if you use a wheelchair, then you need someone to push the wheelchair in order to help you navigate through the city.   Not only does this make the challenged person feel like a burden, but it adds another layer of inconvenience, which is privacy.    Due to the nature of how most wheelchairs are designed, the person who aids the person who needs care, has to accompany this person everywhere, limiting the chances of being able to navigate the city or any place independently while enjoying privacy and a little independence.  The challenge gets worse in places like train stations, airports, metro stations, basically any place with stairs, an over crowded, and the requirement of different modes of motion.  Would it be possible to think of a mechanical system that can be attached to all “standard” wheelchairs,  that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits?   Any thoughts?",/post/689,2017-01-10T17:31:17.000Z,2017-01-10T17:31:17.000Z,689,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1849 8782,v1.0,,"If you are paralyzed, you are most likely using a wheelchair, and if you use a wheelchair, then you need someone to push the wheelchair in order to help you navigate through the city.   Not only does this make the challenged person feel like a burden, but it adds another layer of inconvenience, which is privacy.    Due to the nature of how most wheelchairs are designed, the person who aids the person who needs care, has to accompany this person everywhere, limiting the chances of being able to navigate the city or any place independently while enjoying privacy and a little independence.  The challenge gets worse in places like train stations, airports, metro stations, basically any place with stairs, an over crowded, and the requirement of different modes of motion.  Would it be possible to think of a mechanical system that can be attached to all “standard” wheelchairs,  that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits?   Any thoughts?",/post/689,2017-01-10T17:31:09.000Z,2017-01-10T17:31:09.000Z,689,3323,AnnotatorStore::TextAnnotation,,,,,,,,,656,1155 9133,v1.0,,"Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users’ houses (services?), all these are open questions that we will be working on for the next phase.",/post/806,2017-01-10T17:27:45.000Z,2017-01-10T17:27:45.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1257 6085,v1.0,,"Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users’ houses (services?), all these are open questions that we will be working on for the next phase.",/post/806,2017-01-10T17:27:38.000Z,2017-01-10T17:27:38.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,427 10513,v1.0,,The device can be controlled by means of a smartphone app or by a program with predefined motions/tasks.,/post/806,2017-01-10T17:27:24.000Z,2017-01-10T17:27:24.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1565 7331,v1.0,,"Today, together with Roberto and Chiara, we keep on improving our devices and iterate on the designs in order to achieve a concept as usable and useful as possible while maximizing customizability and accessibility. Our latest device consists of an exoskeleton with 3 active degrees of freedom for controlling the shoulder abduction/adduction, shoulder flexion/extension and elbow flexion/extension of its wearer.",/post/806,2017-01-10T17:27:18.000Z,2017-01-10T17:27:18.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,808 7712,v1.0,,"After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one’s own body is one of the most gratifying experiences everyone could hope for, that’s how the idea of creating an exoskeleton to be used in everyday’s life was born.",/post/806,2017-01-10T17:27:04.000Z,2017-01-10T17:27:04.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,921 9647,v1.0,,"I remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the “latest” rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one’s own body is one of the most gratifying experiences everyone could hope for, that’s how the idea of creating an exoskeleton to be used in everyday’s life was born.",/post/806,2017-01-10T17:26:50.000Z,2017-01-10T17:26:50.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1371 6943,v1.0,,"The Hubotics project started in late 2013. At that point I was about to finish my Master’s studies and I wanted to add a practical side to my technical skills as an engineer and as a passionate DIYer by developing accessible technologies and aids which could have helped improving independence for people suffering from motor disabilities. Actually, the reason why I decided to study engineering and became a builder and hacker stemmed from my personal experience with my sister Chiara, who suffers from a motor disability. I remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the “latest” rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one’s own body is one of the most gratifying experiences everyone could hope for, that’s how the idea of creating an exoskeleton to be used in everyday’s life was born.",/post/806,2017-01-10T17:26:36.000Z,2017-01-10T17:26:36.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,724 9396,v1.0,,"Last October, during the Makerfaire in Rome, the opencare WeMake team was exhibiting in front of project Hubotics!   A DIY solution that provides customized physiotherapy at home.  Composed of 3D printed parts, and a simple mobile app, the solution works in a way that makes it easy to stimulate muscles and nerves of the patient who needs therapy, with customized motion and power.    A wonderful family was in the Hubotics booth.  I had a chance to interview Luca, the project co-founder, who was demonstrating the project and openly shared the story of his solution below. The project is still in development and is in need of testers, read the story and see if you can take part in the project in its current status. 1.  How did you start the project? What were your motivations? The Hubotics project started in late 2013. At that point I was about to finish my Master’s studies and I wanted to add a practical side to my technical skills as an engineer and as a passionate DIYer by developing accessible technologies and aids which could have helped improving independence for people suffering from motor disabilities. Actually, the reason why I decided to study engineering and became a builder and hacker stemmed from my personal experience with my sister Chiara, who suffers from a motor disability. I remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the “latest” rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one’s own body is one of the most gratifying experiences everyone could hope for, that’s how the idea of creating an exoskeleton to be used in everyday’s life was born. 2. Did you start alone? How long did it take to develop the initial prototype? How was it funded? Around that time, I started speaking about these ideas with Roberto, a friend with whom I had studied between Torino and Milano. Together, we started brainstorming and discussing and we finally converged on the idea of developing a low-cost, 3D printed exoskeleton for rehabilitation and assistance of upper-limbs, directly at people’s homes. The idea was proposed at the Telecom Italia WCAP accelerator in Catania that believed in the project and decided to fund us. This allowed us to buy the 3D printers and the components to build and iterate on our ideas and prototypes. The first reliable prototype of the device, finalized in one year, consisted of a wearable, smartphone-controlled, elbow exoskeleton. After showing the device at the MakerFaire 2015 in Rome and gathering plenty of positive feedback, we understood that the project had plenty of potential and decided to keep working on it. What is your current status now? Today, together with Roberto and Chiara, we keep on improving our devices and iterate on the designs in order to achieve a concept as usable and useful as possible while maximizing customizability and accessibility. Our latest device consists of an exoskeleton with 3 active degrees of freedom for controlling the shoulder abduction/adduction, shoulder flexion/extension and elbow flexion/extension of its wearer. The device can be controlled by means of a smartphone app or by a program with predefined motions/tasks. 5. How do you see it moving forward? What kind of help/expertise/data that is missing for moving to a next phase? Our main objective in the near future is running experiments with potential users of the exoskeleton and their relatives, in order to gather further feedback and improve our devices based on this.  Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users’ houses (services?), all these are open questions that we will be working on for the next phase.",/post/806,2017-01-10T17:26:20.000Z,2017-01-10T17:26:20.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,1307 4504,v1.0,,"Last October, during the Makerfaire in Rome, the opencare WeMake team was exhibiting in front of project Hubotics!   A DIY solution that provides customized physiotherapy at home.  Composed of 3D printed parts, and a simple mobile app, the solution works in a way that makes it easy to stimulate muscles and nerves of the patient who needs therapy, with customized motion and power.",/post/806,2017-01-10T17:26:08.000Z,2017-01-10T17:26:08.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,6 7749,v1.0,,"A DIY solution that provides customized physiotherapy at home.  Composed of 3D printed parts, and a simple mobile app, the solution works in a way that makes it easy to stimulate muscles and nerves of the patient who needs therapy, with customized motion and power.    A wonderful family was in the Hubotics booth.  I had a chance to interview Luca, the project co-founder, who was demonstrating the project and openly shared the story of his solution below. The project is still in development and is in need of testers, read the story and see if you can take part in the project in its current status. 1.  How did you start the project? What were your motivations? The Hubotics project started in late 2013. At that point I was about to finish my Master’s studies and I wanted to add a practical side to my technical skills as an engineer and as a passionate DIYer by developing accessible technologies and aids which could have helped improving independence for people suffering from motor disabilities. Actually, the reason why I decided to study engineering and became a builder and hacker stemmed from my personal experience with my sister Chiara, who suffers from a motor disability. I remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the “latest” rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one’s own body is one of the most gratifying experiences everyone could hope for, that’s how the idea of creating an exoskeleton to be used in everyday’s life was born. 2. Did you start alone? How long did it take to develop the initial prototype? How was it funded? Around that time, I started speaking about these ideas with Roberto, a friend with whom I had studied between Torino and Milano. Together, we started brainstorming and discussing and we finally converged on the idea of developing a low-cost, 3D printed exoskeleton for rehabilitation and assistance of upper-limbs, directly at people’s homes. The idea was proposed at the Telecom Italia WCAP accelerator in Catania that believed in the project and decided to fund us. This allowed us to buy the 3D printers and the components to build and iterate on our ideas and prototypes. The first reliable prototype of the device, finalized in one year, consisted of a wearable, smartphone-controlled, elbow exoskeleton. After showing the device at the MakerFaire 2015 in Rome and gathering plenty of positive feedback, we understood that the project had plenty of potential and decided to keep working on it. What is your current status now? Today, together with Roberto and Chiara, we keep on improving our devices and iterate on the designs in order to achieve a concept as usable and useful as possible while maximizing customizability and accessibility. Our latest device consists of an exoskeleton with 3 active degrees of freedom for controlling the shoulder abduction/adduction, shoulder flexion/extension and elbow flexion/extension of its wearer. The device can be controlled by means of a smartphone app or by a program with predefined motions/tasks. 5. How do you see it moving forward? What kind of help/expertise/data that is missing for moving to a next phase? Our main objective in the near future is running experiments with potential users of the exoskeleton and their relatives, in order to gather further feedback and improve our devices based on this.  Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users’ houses (services?), all these are open questions that we will be working on for the next phase.",/post/806,2017-01-10T17:25:58.000Z,2017-01-10T17:25:58.000Z,806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,773,924 10142,v1.0,,"My name is Erika. With Luca, Jacopo and Alice we started Dynamoscopio (""those who observe change""). We are a strange mix of designers, researchers, and practitioners of urban transformation. We are anthropologists, architects, economists. In 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue. The neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in. First we investigated the area, and put our findings into a documentary film (trailer). As we did so, we fell in love with the local market, Mercato Lorenteggio (henceforth ML). This market had a problem: in 2005 a large supermarket had moved into the area. Its competition was driving many local shops out of business – including several of those in ML. It was clear that the market was on its way out. By then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments. We tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation. So we did several things. With the shopkeepers, we redefined ML's unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People's Designation of Origin). This means local products – Milano is a farming city, with many farms to the immediate south of the city. It also mean ""new local"" products, for example we sell teff used in Eritrean and Ethiopian cuisine. We made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called ""Fai la spesa per la tua scuola"" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating. We mobilized the community on restoring the façade of the ML building. A Milan-based company donated the materials; the local people contributed manpower. Physical work on the space creates ownership and mobilization. Also, it was a great party (timelapse video)! We pushed the mixed use of ML as a place for culture and socializing as well as commerce. For example, we organize courses of Arabic languages (requested by many migrant families), knitting events, etc. The market has wide corridors, and can host up to 1,000 people. We moved in ourselves. Dynamoscopio runs a tiny cultural space (20 square meters) inside ML. We offer wi-fi too. In general, we are trying to reinvent the physical space of ML and the kind of local commerce that it offers. Who pays for this? We started out with grants. Milan is home to several charitable foundations, and some of them focus on the poorer neighborhoods. With time, we are moving towards a more sustainable mix of revenue streams. Even the shopkeepers, now, are chipping in: this is great, because it a sign of increased sustainability. Also, the work we do in Lorenteggio is good PR, and it helps Dynamoscopio get clients. We think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. ""Taking care"" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community. We are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too. Considering, our work with ML is going rather well. In 2012 it was on its way out, with several shops closed: in 2016 all stalls are in use, and the market is thriving. The space has become more beautiful and welcoming. Still, there are many things we would like to improve. For example, last year we organized two ""swap markets"", and they failed badly. Both events were popular, with a lot of people in attendance. But these were people from outside the neighborhood, many of them hipsters. This created tension, because the locals see them as harbingers that they will be priced out of the neighborhood. Another pain point is that we are unable to monitor our impact. Shopkeepers are reluctant to disclose how much money they are making. We do not even have a system to count the number of people present in the market. We would love to have some kind of tool, but somehow this sort of work always gets deprioritized, there is so much to do. Also, we are not sure how much longer we can afford to stay engaged with ML. But we worry. What happens when we stop pushing? Another example: for a while, a guy named Manuel ran a vegetable garden outside ML. People loved it. But when Manuel withdrew, the whole thing dried out. These dynamics look great, but they are not always sustainable. Do you know of any similar experience? We would love to compare notes.",/post/804,2017-01-10T17:25:28.000Z,2017-01-10T17:25:28.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1461 9744,v1.0,,"My name is Erika. With Luca, Jacopo and Alice we started Dynamoscopio (""those who observe change""). We are a strange mix of designers, researchers, and practitioners of urban transformation. We are anthropologists, architects, economists. In 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue. The neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in. First we investigated the area, and put our findings into a documentary film (trailer). As we did so, we fell in love with the local market, Mercato Lorenteggio (henceforth ML). This market had a problem: in 2005 a large supermarket had moved into the area. Its competition was driving many local shops out of business – including several of those in ML. It was clear that the market was on its way out. By then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments. We tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation. So we did several things. With the shopkeepers, we redefined ML's unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People's Designation of Origin). This means local products – Milano is a farming city, with many farms to the immediate south of the city. It also mean ""new local"" products, for example we sell teff used in Eritrean and Ethiopian cuisine. We made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called ""Fai la spesa per la tua scuola"" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating. We mobilized the community on restoring the façade of the ML building. A Milan-based company donated the materials; the local people contributed manpower. Physical work on the space creates ownership and mobilization. Also, it was a great party (timelapse video)! We pushed the mixed use of ML as a place for culture and socializing as well as commerce. For example, we organize courses of Arabic languages (requested by many migrant families), knitting events, etc. The market has wide corridors, and can host up to 1,000 people. We moved in ourselves. Dynamoscopio runs a tiny cultural space (20 square meters) inside ML. We offer wi-fi too. In general, we are trying to reinvent the physical space of ML and the kind of local commerce that it offers. Who pays for this? We started out with grants. Milan is home to several charitable foundations, and some of them focus on the poorer neighborhoods. With time, we are moving towards a more sustainable mix of revenue streams. Even the shopkeepers, now, are chipping in: this is great, because it a sign of increased sustainability. Also, the work we do in Lorenteggio is good PR, and it helps Dynamoscopio get clients. We think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. ""Taking care"" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community. We are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too. Considering, our work with ML is going rather well. In 2012 it was on its way out, with several shops closed: in 2016 all stalls are in use, and the market is thriving. The space has become more beautiful and welcoming. Still, there are many things we would like to improve. For example, last year we organized two ""swap markets"", and they failed badly. Both events were popular, with a lot of people in attendance. But these were people from outside the neighborhood, many of them hipsters. This created tension, because the locals see them as harbingers that they will be priced out of the neighborhood. Another pain point is that we are unable to monitor our impact. Shopkeepers are reluctant to disclose how much money they are making. We do not even have a system to count the number of people present in the market. We would love to have some kind of tool, but somehow this sort of work always gets deprioritized, there is so much to do. Also, we are not sure how much longer we can afford to stay engaged with ML. But we worry. What happens when we stop pushing? Another example: for a while, a guy named Manuel ran a vegetable garden outside ML. People loved it. But when Manuel withdrew, the whole thing dried out. These dynamics look great, but they are not always sustainable. Do you know of any similar experience? We would love to compare notes.",/post/804,2017-01-10T17:25:16.000Z,2017-01-10T17:25:16.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1395 8918,v1.0,,"My name is Erika. With Luca, Jacopo and Alice we started Dynamoscopio (""those who observe change""). We are a strange mix of designers, researchers, and practitioners of urban transformation. We are anthropologists, architects, economists. In 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue. The neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in. First we investigated the area, and put our findings into a documentary film (trailer). As we did so, we fell in love with the local market, Mercato Lorenteggio (henceforth ML). This market had a problem: in 2005 a large supermarket had moved into the area. Its competition was driving many local shops out of business – including several of those in ML. It was clear that the market was on its way out. By then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments. We tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation. So we did several things. With the shopkeepers, we redefined ML's unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People's Designation of Origin). This means local products – Milano is a farming city, with many farms to the immediate south of the city. It also mean ""new local"" products, for example we sell teff used in Eritrean and Ethiopian cuisine. We made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called ""Fai la spesa per la tua scuola"" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating. We mobilized the community on restoring the façade of the ML building. A Milan-based company donated the materials; the local people contributed manpower. Physical work on the space creates ownership and mobilization. Also, it was a great party (timelapse video)! We pushed the mixed use of ML as a place for culture and socializing as well as commerce. For example, we organize courses of Arabic languages (requested by many migrant families), knitting events, etc. The market has wide corridors, and can host up to 1,000 people. We moved in ourselves. Dynamoscopio runs a tiny cultural space (20 square meters) inside ML. We offer wi-fi too. In general, we are trying to reinvent the physical space of ML and the kind of local commerce that it offers. Who pays for this? We started out with grants. Milan is home to several charitable foundations, and some of them focus on the poorer neighborhoods. With time, we are moving towards a more sustainable mix of revenue streams. Even the shopkeepers, now, are chipping in: this is great, because it a sign of increased sustainability. Also, the work we do in Lorenteggio is good PR, and it helps Dynamoscopio get clients. We think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. ""Taking care"" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community. We are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too. Considering, our work with ML is going rather well. In 2012 it was on its way out, with several shops closed: in 2016 all stalls are in use, and the market is thriving. The space has become more beautiful and welcoming. Still, there are many things we would like to improve. For example, last year we organized two ""swap markets"", and they failed badly. Both events were popular, with a lot of people in attendance. But these were people from outside the neighborhood, many of them hipsters. This created tension, because the locals see them as harbingers that they will be priced out of the neighborhood. Another pain point is that we are unable to monitor our impact. Shopkeepers are reluctant to disclose how much money they are making. We do not even have a system to count the number of people present in the market. We would love to have some kind of tool, but somehow this sort of work always gets deprioritized, there is so much to do. Also, we are not sure how much longer we can afford to stay engaged with ML. But we worry. What happens when we stop pushing? Another example: for a while, a guy named Manuel ran a vegetable garden outside ML. People loved it. But when Manuel withdrew, the whole thing dried out. These dynamics look great, but they are not always sustainable. Do you know of any similar experience? We would love to compare notes.",/post/804,2017-01-10T17:24:55.000Z,2017-01-10T17:24:55.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1196 10848,v1.0,,"We are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too.",/post/804,2017-01-10T17:24:24.000Z,2017-01-10T17:24:24.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1659 6402,v1.0,,"We think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. ""Taking care"" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community.",/post/804,2017-01-10T17:23:52.000Z,2017-01-10T17:23:52.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,473 7681,v1.0,,"We made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called ""Fai la spesa per la tua scuola"" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating.",/post/804,2017-01-10T17:23:25.000Z,2017-01-10T17:23:25.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,914 8331,v1.0,,"With the shopkeepers, we redefined ML's unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People's Designation of Origin). This means local products – Milano is a farming city, with many farms to the immediate south of the city. It also mean ""new local"" products, for example we sell teff used in Eritrean and Ethiopian cuisine.",/post/804,2017-01-10T17:23:15.000Z,2017-01-10T17:23:15.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1089 8447,v1.0,,"We tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation.",/post/804,2017-01-10T17:23:00.000Z,2017-01-10T17:23:00.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1115 10037,v1.0,,"By then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments.",/post/804,2017-01-10T17:22:51.000Z,2017-01-10T17:22:51.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,1446 7594,v1.0,,"The neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in.",/post/804,2017-01-10T17:22:39.000Z,2017-01-10T17:22:39.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,892 7878,v1.0,,"In 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue.",/post/804,2017-01-10T17:22:30.000Z,2017-01-10T17:22:30.000Z,804,3323,AnnotatorStore::TextAnnotation,,,,,,,,,771,962 7848,v1.0,,"It's become clearer that homelessness correlates much more with inequality (especially affordability in housing) than with a country's wealth, which is what might explain cultural shocks as one moves from east to west.. I'm reminded of a friend of mine studying in the US who simply couldn't get past having seen so many people living in the streets in San Francisco. I would be definitely interested to read about the specifics of family dynamics in Laos, so if you ever find the time do go for it.",/post/29547,2017-01-10T17:21:23.000Z,2017-01-10T17:21:23.000Z,29547,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,956 8006,v1.0,,"It's become clearer that homelessness correlates much more with inequality (especially affordability in housing) than with a country's wealth, which is what might explain cultural shocks as one moves from east to west.. I'm reminded of a friend of mine studying in the US who simply couldn't get past having seen so many people living in the streets in San Francisco. I would be definitely interested to read about the specifics of family dynamics in Laos, so if you ever find the time do go for it.",/post/29547,2017-01-10T17:21:17.000Z,2017-01-10T17:21:17.000Z,29547,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,997 4832,v1.0,,"I ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl through the streets. At different times I saw him receiving food from the small food stalls on the street. I had befriended a local woman, let's call her Babs, through a common friend and I asked her about this man. Babs immediately knew who I meant. She said that there were not many beggars and homeless people in Savannakhet, a city of 120,000 people and second largest city in Laos. There used to be many people asking for money on the streets a few years earlier. Most of them came from large, poor families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas. The reasoning was that the families were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests on the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out. Babs said that now, there only remain a few homeless people who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors. Babs mentioned that there were plenty of mentally and physically disabled people due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their family.",/post/29080,2017-01-10T17:21:05.000Z,2017-01-10T17:21:05.000Z,29080,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,93 6942,v1.0,,"can try to condense some other impressions and stories from Laos. I ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl through the streets. At different times I saw him receiving food from the small food stalls on the street. I had befriended a local woman, let's call her Babs, through a common friend and I asked her about this man. Babs immediately knew who I meant. She said that there were not many beggars and homeless people in Savannakhet, a city of 120,000 people and second largest city in Laos. There used to be many people asking for money on the streets a few years earlier. Most of them came from large, poor families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas. The reasoning was that the families were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests on the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out. Babs said that now, there only remain a few homeless people who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors. Babs mentioned that there were plenty of mentally and physically disabled people due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their family.",/post/29080,2017-01-10T17:20:13.000Z,2017-01-10T17:20:13.000Z,29080,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,724 7847,v1.0,,"During my short time in Laos, I couldn't help noticing analogies to this story. If anyone finds this useful, I can try to condense some other impressions and stories from Laos. I ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl through the streets. At different times I saw him receiving food from the small food stalls on the street. I had befriended a local woman, let's call her Babs, through a common friend and I asked her about this man. Babs immediately knew who I meant. She said that there were not many beggars and homeless people in Savannakhet, a city of 120,000 people and second largest city in Laos. There used to be many people asking for money on the streets a few years earlier. Most of them came from large, poor families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas. The reasoning was that the families were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests on the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out. Babs said that now, there only remain a few homeless people who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors. Babs mentioned that there were plenty of mentally and physically disabled people due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their fam",/post/29080,2017-01-10T17:20:08.000Z,2017-01-10T17:20:08.000Z,29080,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,956 7115,v1.0,,"That is a beautiful example of this harmful shift towards 'control' and 'planning', inspired by uncertainty and distrust, while we should be shifting towards a dynamic interplay between 'noticing' and 'steering', inspired by best estimates and trust. I do think that institutions and companies are (perhaps unknowingly) looking for these qualities when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the 'noticing' and 'steering' qualities to realise what they are actually looking for and thus be good at recruiting the people who have what it takes. You have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.",/post/30485,2017-01-10T17:19:16.000Z,2017-01-10T17:19:16.000Z,30485,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,766 7637,v1.0,,"@Alberto That is a beautiful example of this harmful shift towards 'control' and 'planning', inspired by uncertainty and distrust, while we should be shifting towards a dynamic interplay between 'noticing' and 'steering', inspired by best estimates and trust. I do think that institutions and companies are (perhaps unknowingly) looking for these qualities when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the 'noticing' and 'steering' qualities to realise what they are actually looking for and thus be good at recruiting the people who have what it takes. You have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.",/post/30485,2017-01-10T17:19:08.000Z,2017-01-10T17:19:08.000Z,30485,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,906 6005,v1.0,,"@Alberto That is a beautiful example of this harmful shift towards 'control' and 'planning', inspired by uncertainty and distrust, while we should be shifting towards a dynamic interplay between 'noticing' and 'steering', inspired by best estimates and trust. I do think that institutions and companies are (perhaps unknowingly) looking for these qualities when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the 'noticing' and 'steering' qualities to realise what they are actually looking for and thus be good at recruiting the people who have what it takes. You have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.",/post/30485,2017-01-10T17:18:56.000Z,2017-01-10T17:18:56.000Z,30485,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,407 4988,v1.0,,"I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt's operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business (""missions"", as they are known in the public sector) need an authorization from the highest political level (giunta in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.  Changing this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).",/post/30444,2017-01-10T17:18:36.000Z,2017-01-10T17:18:36.000Z,30444,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,129 4983,v1.0,,"I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt's operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business (""missions"", as they are known in the public sector) need an authorization from the highest political level (giunta in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.  Changing this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).",/post/30444,2017-01-10T17:18:26.000Z,2017-01-10T17:18:26.000Z,30444,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,128 7636,v1.0,,"@WinniePoncelet I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt's operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business (""missions"", as they are known in the public sector) need an authorization from the highest political level (giunta in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.  Changing this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).",/post/30444,2017-01-10T17:18:19.000Z,2017-01-10T17:18:19.000Z,30444,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,906 5730,v1.0,,"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called “Real Food Utopia” as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts). The workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it. I am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad. I am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.  I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains. We would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects. We are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an “umbrella” project which consists of several innovative schemes. The main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece’s rural areas and promote an economy that is based on social solidarity and alternative currencies. What we have in mind is summarized in the following fields of action: Exporting network of agricultural products in Northern Europe (especially citrus, olive oil and “ugly” fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices. Promotion of food security and food sovereignty in Greece. Respond to the mainstream challenges by using our ingenuity and creativity for social –nonpersonal- benefits. Reduce food waste promoting “ugly” fruits and vegetables focusing on good quality. Boost local economies and offer technical support to Community Supported Agriculture schemes. Creation of an official Greek hub for non formal groups working on food sovereignty that lack financial support. Saving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group.",/post/750,2017-01-06T20:37:56.000Z,2017-01-06T20:37:56.000Z,750,3323,AnnotatorStore::TextAnnotation,,,,,,,,,717,362 10808,v1.0,,"our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad. I am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.  I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains.",/post/750,2017-01-06T20:36:35.000Z,2017-01-06T20:36:35.000Z,750,3323,AnnotatorStore::TextAnnotation,,,,,,,,,717,1648 4791,v1.0,,"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called “Real Food Utopia” as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts). The workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it. I am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad. I am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.  I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains. We would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects. We are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an “umbrella” project which consists of several innovative schemes. The main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece’s rural areas and promote an economy that is based on social solidarity and alternative currencies. What we have in mind is summarized in the following fields of action: Exporting network of agricultural products in Northern Europe (especially citrus, olive oil and “ugly” fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices. Promotion of food security and food sovereignty in Greece. Respond to the mainstream challenges by using our ingenuity and creativity for social –nonpersonal- benefits. Reduce food waste promoting “ugly” fruits and vegetables focusing on good quality. Boost local economies and offer technical support to Community Supported Agriculture schemes. Creation of an official Greek hub for non formal groups working on food sovereignty that lack financial support. Saving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group.",/post/750,2017-01-06T20:36:21.000Z,2017-01-06T20:36:21.000Z,750,3323,AnnotatorStore::TextAnnotation,,,,,,,,,717,80 7458,v1.0,,"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called “Real Food Utopia” as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts). The workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it. I am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad. I am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.  I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains. We would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects. We are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an “umbrella” project which consists of several innovative schemes. The main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece’s rural areas and promote an economy that is based on social solidarity and alternative currencies. What we have in mind is summarized in the following fields of action: Exporting network of agricultural products in Northern Europe (especially citrus, olive oil and “ugly” fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices. Promotion of food security and food sovereignty in Greece. Respond to the mainstream challenges by using our ingenuity and creativity for social –nonpersonal- benefits. Reduce food waste promoting “ugly” fruits and vegetables focusing on good quality. Boost local economies and offer technical support to Community Supported Agriculture schemes. Creation of an official Greek hub for non formal groups working on food sovereignty that lack financial support. Saving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group.",/post/750,2017-01-06T20:36:05.000Z,2017-01-06T20:36:05.000Z,750,3323,AnnotatorStore::TextAnnotation,,,,,,,,,717,853 7475,v1.0,,"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called “Real Food Utopia” as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts). The workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it. I am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad. I am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.  I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains. We would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects. We are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an “umbrella” project which consists of several innovative schemes. The main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece’s rural areas and promote an economy that is based on social solidarity and alternative currencies. What we have in mind is summarized in the following fields of action: Exporting network of agricultural products in Northern Europe (especially citrus, olive oil and “ugly” fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices. Promotion of food security and food sovereignty in Greece. Respond to the mainstream challenges by using our ingenuity and creativity for social –nonpersonal- benefits. Reduce food waste promoting “ugly” fruits and vegetables focusing on good quality. Boost local economies and offer technical support to Community Supported Agriculture schemes. Creation of an official Greek hub for non formal groups working on food sovereignty that lack financial support. Saving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership. Increase awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group",/post/750,2017-01-06T20:35:55.000Z,2017-01-06T20:35:55.000Z,750,3323,AnnotatorStore::TextAnnotation,,,,,,,,,717,859 10162,v1.0,,"@Matthias, I just came across this article about Washington's rivers... yet the situation not so much different from those we discuss here, and some tips how to engage in different ways with the area.",/post/21206,2017-01-06T19:47:57.000Z,2017-01-06T19:47:57.000Z,21206,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,1474 10161,v1.0,,Yes the Bagmati does have its issues but it's cultural importance is intriguing. The residents of Kathmandu have been cleaning up the banks of the river for the past 150 Saturdays and they have not missed a single Saturday yet even during the earthquake which is  it is remarkable. Yes I think that the arts has a way of bringing together a lot of different groups and using aesthetics is a way to introduce complicated issues  in a accessible manner.,/post/14306,2017-01-06T19:46:16.000Z,2017-01-06T19:46:16.000Z,14306,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,1474 6315,v1.0,,Yes the Bagmati does have its issues but it's cultural importance is intriguing. The residents of Kathmandu have been cleaning up the banks of the river for the past 150 Saturdays and they have not missed a single Saturday yet even during the earthquake which is  it is remarkable. Yes I think that the arts has a way of bringing together a lot of different groups and using aesthetics is a way to introduce complicated issues  in a accessible manner.,/post/14306,2017-01-06T19:45:40.000Z,2017-01-06T19:45:40.000Z,14306,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,450 5485,v1.0,,"And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term",/post/10812,2017-01-06T19:44:15.000Z,2017-01-06T19:44:15.000Z,10812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,318 10160,v1.0,,"And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term",/post/10812,2017-01-06T19:44:03.000Z,2017-01-06T19:44:03.000Z,10812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,1474 4733,v1.0,,"And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term",/post/10812,2017-01-06T19:42:42.000Z,2017-01-06T19:42:42.000Z,10812,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,62 11512,v1.0,,"C. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website. D. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design.",/post/752,2017-01-06T19:41:14.000Z,2017-01-06T19:41:14.000Z,752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,1862 4732,v1.0,,"B. a book is being published (available in November 2016) that documents the importance of the Bagmati River, the cause for the pollution, climate change effects on the Kathmandu Valley and its groundwater, and plans to improve the condition of the river. The role of this publication, like the exhibition, is to use aesthetics as a way to make the scientific data accessible to a wider audience. Artists from the United States and Nepal will be included in the publication. The publication will be made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on this website. C. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website. D. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. All elements of the project listed above will be finished and presented at the opening of the exhibition in November 20, 2016 when Jason and I plan to return to Kathmandu. An exciting extension to this project is the plan to ship the artwork, publication, documentary, brochures and posters back to the United States where it will tour around the country and, possibly, internationally. Water issues are a worldwide concern and the Bagmati’s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.   The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition. For more information please contact alberto@albertorey.com.",/post/752,2017-01-06T19:39:25.000Z,2017-01-06T19:39:25.000Z,752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,62 10159,v1.0,,"In 2014, I had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800’s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.  My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset. It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. I was excited about extending my body of work beyond the Western Hemisphere and to working with a culturally diverse community. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in me starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth joined the venture early in 2016 and his work has been integral to the project’s success. During Jason’s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project’s publications and the sales of my artwork. The Bagmati River Arts Project includes: A. an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river. B. a book is being published (available in November 2016) that documents the importance of the Bagmati River, the cause for the pollution, climate change effects on the Kathmandu Valley and its groundwater, and plans to improve the condition of the river. The role of this publication, like the exhibition, is to use aesthetics as a way to make the scientific data accessible to a wider audience. Artists from the United States and Nepal will be included in the publication. The publication will be made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on this website. C. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website. D. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. All elements of the project listed above will be finished and presented at the opening of the exhibition in November 20, 2016 when Jason and I plan to return to Kathmandu. An exciting extension to this project is the plan to ship the artwork, publication, documentary, brochures and posters back to the United States where it will tour around the country and, possibly, internationally. Water issues are a worldwide concern and the Bagmati’s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.   The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition. For more information please contact alberto@albertorey.com.",/post/752,2017-01-06T19:38:06.000Z,2017-01-06T19:38:06.000Z,752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,1474 10644,v1.0,,"In 2014, I had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800’s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.  My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset.",/post/752,2017-01-06T19:37:55.000Z,2017-01-06T19:37:55.000Z,752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,1621 5484,v1.0,,"In 2014, I had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800’s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.  My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset. It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. I was excited about extending my body of work beyond the Western Hemisphere and to working with a culturally diverse community. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in me starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth joined the venture early in 2016 and his work has been integral to the project’s success. During Jason’s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project’s publications and the sales of my artwork. The Bagmati River Arts Project includes: A. an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river. B. a book is being published (available in November 2016) that documents the importance of the Bagmati River, the cause for the pollution, climate change effects on the Kathmandu Valley and its groundwater, and plans to improve the condition of the river. The role of this publication, like the exhibition, is to use aesthetics as a way to make the scientific data accessible to a wider audience. Artists from the United States and Nepal will be included in the publication. The publication will be made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on this website. C. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website. D. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river’s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University’s School of Art, Center for Art and Design. All elements of the project listed above will be finished and presented at the opening of the exhibition in November 20, 2016 when Jason and I plan to return to Kathmandu. An exciting extension to this project is the plan to ship the artwork, publication, documentary, brochures and posters back to the United States where it will tour around the country and, possibly, internationally. Water issues are a worldwide concern and the Bagmati’s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.   The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition. For more information please contact alberto@albertorey.com.",/post/752,2017-01-06T19:37:38.000Z,2017-01-06T19:37:38.000Z,752,3323,AnnotatorStore::TextAnnotation,,,,,,,,,719,318 5483,v1.0,,"Wow, @Michel , this is really sad. Climate change looks really different from Madagascar, with 14 cyclones a year...  I would not know, really, but I imagine that communities can help. Our friend @Nick_Davitashvili and the rest of the wonderful Guerrilla Gardeners in Tbilisi, Georgia, did many things to improve their city, and eventually led a massive effort to clean up after a flood had hit Tbilisi hard in 2015. Mention of the flood is at 19.00, but I recommend you watch the whole thing to get an idea of how they operate.",/post/7745,2017-01-06T19:34:52.000Z,2017-01-06T19:34:52.000Z,7745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,318 5482,v1.0,,As,/post/800,2017-01-06T19:34:31.000Z,2017-01-06T19:34:31.000Z,800,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,318 6962,v1.0,,"As an Island located in southern Emispher, between the Indian Ocean and Africa. Madagascar is on target of cyclones which is born in the Ocean Indian. The number of this natural catastrophe was changing recently from 4 to 18 or more. All of those cyclones doesn't passed through the Island but only the strongest, those who doesn't get weak by the way 2 or 3 sometimes . The climate changing from human consumption: forest, petroleum and gas that we spread out (carbonic gas, chemical gas, etc) is growing since the last 50 years. It's also a fact of cyclones generator, from Northern Emispher to Southern accompanied by climate changing.  Every year starting on October until February according to the old cyclonic season we have to be also ready for change caused by climate changing. Fixings doors and windows, put some bags of sand one the roof. Get some supplies for those who can afford ( dry food, medicines, batteries, candles and matches, water purifier etc...). Those things are looking like routine for those who knows, It's really Important for all of us.  Nature is really uncontrollable. It's happened constantly that crops and plantation are also victim from this natural catastrophe. After ""the passage "" of cyclon, food rupture and malnutrition are next challenge followed by sickness from dirty water, death.    Is there any way to overcome or slowing down this fast extinction?",/post/800,2017-01-06T19:33:49.000Z,2017-01-06T19:33:49.000Z,800,3323,AnnotatorStore::TextAnnotation,,,,,,,,,767,726 5123,v1.0,,"Even in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women's work – looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects – accounts for a far greater proportion of what working-class people do when they're working than hammering, carving, hoisting, or harvesting things. This is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers recently had to explain to indignant commuters, ""ticket takers"" don't in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused. Caring too much. That's the curse of the working classes.",/post/24339,2017-01-06T19:33:05.000Z,2017-01-06T19:33:05.000Z,24339,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,149 8182,v1.0,,"I think you would enjoy this @careday-team. I re-read it and thought of your angle, which allows for many explorations left and right: an article making a case that most of the work people do is on each other! so care work is just too unseen and mostly in underpriviledged jobs, genders to a minimum. Working classes as care classes, that's a strange idea that never occured to me: Even in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women's work – looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects – accounts for a far greater proportion of what working-class people do when they're working than hammering, carving, hoisting, or harvesting things. This is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers recently had to explain to indignant commuters, ""ticket takers"" don't in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused. Caring too much. That's the curse of the working classes.",/post/24339,2017-01-06T19:32:57.000Z,2017-01-06T19:32:57.000Z,24339,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,1047 7583,v1.0,,"work is just too unseen and mostly in underpriviledged jobs, genders to a minimum. Working classes as care classes, that's a strange idea that never occured to me: Even in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women's work – looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects – accounts for a far greater proportion of what working-class people do when they're working than hammering, carving, hoisting, or harvesting things. This is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers recently had to explain to indignant commuters, ""ticket takers"" don't in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused.",/post/24339,2017-01-06T19:32:40.000Z,2017-01-06T19:32:40.000Z,24339,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,885 11311,v1.0,,"On the other side, unpaid care work it's somehting many of us do in our lives - out of love, pleasure, even a sense of duty as Alex pointed out in his story of refugee volunteering. For a lot of people care - and I've seen older generation women in my family, care is indeed something they ""can't switch off"" from because it is where they find meaning in their lives. After retiring, they, and not their husbands were the ones who were able to take on paid care roles (eg caring for small children) as those skills remain valued at an old age. Indeed underpaid, and yet the only surplus income in the family.",/post/17209,2017-01-06T15:34:49.000Z,2017-01-06T15:34:49.000Z,17209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,1800 7582,v1.0,,"Thanks for sharing the links, from the ministry's communication I picked up on something new: ""The question of women's employment is thus closely linked to the question of the social organization of care work"" So the risk is that the more care work you do around the house, the more you risk being paid less because of inability to take up fulltime work and provide for yourself at an old age..?",/post/17209,2017-01-06T15:34:24.000Z,2017-01-06T15:34:24.000Z,17209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,885 5133,v1.0,,"Thanks for sharing the links, from the ministry's communication I picked up on something new: ""The question of women's employment is thus closely linked to the question of the social organization of care work"" So the risk is that the more care work you do around the house, the more you risk being paid less because of inability to take up fulltime work and provide for yourself at an old age..? On the other side, unpaid care work it's somehting many of us do in our lives - out of love, pleasure, even a sense of duty as Alex pointed out in his story of refugee volunteering. For a lot of people care - and I've seen older generation women in my family, care is indeed something they ""can't switch off"" from because it is where they find meaning in their lives. After retiring, they, and not their husbands were the ones who were able to take on paid care roles (eg caring for small children) as those skills remain valued at an old age. Indeed underpaid, and yet the only surplus income in the family.  Do other policies like paternal leave work in Germany? In Romania it's currently at only 10% of fathers taking it",/post/17209,2017-01-06T15:34:12.000Z,2017-01-06T15:34:12.000Z,17209,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,150 5132,v1.0,,"It did already happen! For the first time in 2016, but only online and in german. Nevertheless we got great responses and media coverage, support by lots of people, who posted their positions on this subject and a supporting statement from the german Ministry for Family Affairs. So 'Equal Care Day, 29.2.' seems to be an established day in certain circles, but of course we'd like more people to know about it, to discuss it, to raise awareness to the lack of appreciation of care work - so now we're looking forward to 29.2.2020, and hope to find fellows who spread the idea to other countries and sponsors to organize a live event on this special day.",/post/14231,2017-01-06T15:34:00.000Z,2017-01-06T15:34:00.000Z,14231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,150 10341,v1.0,,"EQUAL CARE DAY in order to draw attention to the lack of appreciation for care work in general and caring for children, sick, old or disabled people in our society. Do we really want people working with machines to be recognized and paid better than those working with people? To illustrate the unfair distribution of this work: 80% of care work is done by women, professionally and even more privately: 80%. That’s why the Equal Care Day will occur only every four years, as a reminder that, in Germany, men would take four years to equal the care work performed by women in a single year. Care work isn’t a private matter. It’s not an individual decision, but something that affects and calls for all of us. At best, we defer the problem by paying through outsourcing. The effects of this uneven distribution especially affect men, not only morally, because they give up most of their duties and responsibilities, but also personally. After retiring, a lot of men regret not having saved more time to spend with their children, their families This is especially significant given mens’ shorter life expectancy (5 years, on average) as compared to women – one of the reasons for that is that they’re less careful with their own bodies (unhealthy diet, belated reaction to/ignorance of symptoms, risky behavior, higher use of drugs, higher risk of suicide), maybe not individually, but statistically. P.S. PayGap and CareGap already exists in childrens's rooms The imbalance starts out from children’s rooms, not just because the adult world conveys narrow role models – but also because children themselves experience the CareGap as well as the PayGap: In average, boys’ allowances are higher than girls’ and girls are expected to help with housework and look after younger siblings a lot more than boys. We pass on a mix of sexism, racism and classism to the next Generation in a very subtle way.",/post/749,2017-01-06T15:33:07.000Z,2017-01-06T15:33:07.000Z,749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,1523 11412,v1.0,,"EQUAL CARE DAY in order to draw attention to the lack of appreciation for care work in general and caring for children, sick, old or disabled people in our society. Do we really want people working with machines to be recognized and paid better than those working with people? To illustrate the unfair distribution of this work: 80% of care work is done by women, professionally and even more privately: 80%. That’s why the Equal Care Day will occur only every four years, as a reminder that, in Germany, men would take four years to equal the care work performed by women in a single year. Care work isn’t a private matter. It’s not an individual decision, but something that affects and calls for all of us. At best, we defer the problem by paying through outsourcing. The effects of this uneven distribution especially affect men, not only morally, because they give up most of their duties and responsibilities, but also personally. After retiring, a lot of men regret not having saved more time to spend with their children, their families This is especially significant given mens’ shorter life expectancy (5 years, on average) as compared to women – one of the reasons for that is that they’re less careful with their own bodies (unhealthy diet, belated reaction to/ignorance of symptoms, risky behavior, higher use of drugs, higher risk of suicide), maybe not individually, but statistically. P.S. PayGap and CareGap already exists in childrens's rooms The imbalance starts out from children’s rooms, not just because the adult world conveys narrow role models – but also because children themselves experience the CareGap as well as the PayGap: In average, boys’ allowances are higher than girls’ and girls are expected to help with housework and look after younger siblings a lot more than boys. We pass on a mix of sexism, racism and classism to the next Generation in a very subtle way.",/post/749,2017-01-06T15:32:41.000Z,2017-01-06T15:32:41.000Z,749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,1835 7581,v1.0,,"To illustrate the unfair distribution of this work: 80% of care work is done by women, professionally and even more privately: 80%. That’s why the Equal Care Day will occur only every four years, as a reminder that, in Germany, men would take four years to equal the care work performed by women in a single year.",/post/749,2017-01-06T15:32:32.000Z,2017-01-06T15:32:32.000Z,749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,885 5122,v1.0,,"EQUAL CARE DAY in order to draw attention to the lack of appreciation for care work in general and caring for children, sick, old or disabled people in our society. Do we really want people working with machines to be recognized and paid better than those working with people? To illustrate the unfair distribution of this work: 80% of care work is done by women, professionally and even more privately: 80%. That’s why the Equal Care Day will occur only every four years, as a reminder that, in Germany, men would take four years to equal the care work performed by women in a single year. Care work isn’t a private matter. It’s not an individual decision, but something that affects and calls for all of us. At best, we defer the problem by paying through outsourcing. The effects of this uneven distribution especially affect men, not only morally, because they give up most of their duties and responsibilities, but also personally. After retiring, a lot of men regret not having saved more time to spend with their children, their families This is especially significant given mens’ shorter life expectancy (5 years, on average) as compared to women – one of the reasons for that is that they’re less careful with their own bodies (unhealthy diet, belated reaction to/ignorance of symptoms, risky behavior, higher use of drugs, higher risk of suicide), maybe not individually, but statistically. P.S. PayGap and CareGap already exists in childrens's rooms The imbalance starts out from children’s rooms, not just because the adult world conveys narrow role models – but also because children themselves experience the CareGap as well as the PayGap: In average, boys’ allowances are higher than girls’ and girls are expected to help with housework and look after younger siblings a lot more than boys. We pass on a mix of sexism, racism and classism to the next Generation in a very subtle way.",/post/749,2017-01-06T15:32:15.000Z,2017-01-06T15:32:15.000Z,749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,149 5131,v1.0,,"in order to draw attention to the lack of appreciation for care work in general and caring for children, sick, old or disabled people in our society. Do we really want people working with machines to be recognized and paid better than those working with people? To illustrate the unfair distribution of this work: 80% of care work is done by women, professionally and even more privately: 80%. That’s why the Equal Care Day will occur only every four years, as a reminder that, in Germany, men would take four years to equal the care work performed by women in a single year. Care work isn’t a private matter. It’s not an individual decision, but something that affects and calls for all of us. At best, we defer the problem by paying through outsourcing. The effects of this uneven distribution especially affect men, not only morally, because they give up most of their duties and responsibilities, but also personally. After retiring, a lot of men regret not having saved more time to spend with their children, their families This is especially significant given mens’ shorter life expectancy (5 years, on average) as compared to women – one of the reasons for that is that they’re less careful with their own bodies (unhealthy diet, belated reaction to/ignorance of symptoms, risky behavior, higher use of drugs, higher risk of suicide), maybe not individually, but statistically. P.S. PayGap and CareGap already exists in childrens's rooms The imbalance starts out from children’s rooms, not just because the adult world conveys narrow role models – but also because children themselves experience the CareGap as well as the PayGap: In average, boys’ allowances are higher than girls’ and girls are expected to help with housework and look after younger siblings a lot more than boys. We pass on a mix of sexism, racism and classism to the next Generation in a very subtle way.",/post/749,2017-01-06T15:31:36.000Z,2017-01-06T15:31:36.000Z,749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,716,150 5811,v1.0,,"At the time, I had proposed we roll out a challenge on autonomy and responsibility. Pre-welfare states (19th century), welfare was basically invented by European mutual assistance societies, in turn part of the workers' movement. I imagine that, in the early days, these societies were small enough that the choice of treating someone would visibily drain the common pool of resources. So, in those days, maybe European factory workers thought a bit more like the Amish. A modern-day version of that, though I only know anecdotes about it, is implemented by @lasindias .  I think autonomy is also an interesting scenario in terms of policy, and fits well into @Lakomaa 's and @Tino_Sanandaji 's institutional economics framework.  My summary from the article:  The Amish refuse to have insurance. ""When someone gets sick, the church collects alms to help the patient cover expenses."" This might happen at a time when the community has other objectives as well (""setting up a farm for a young couple""). You can ask of the community to support your treatment, but its costs are not simply discharged into an anonymous ""system"": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and ""[Amish] communities are highly interested in health education and disease prevention"". For this reason, the Amish use genetic screening of children. Prevention is so important that its benefits trump the disadvantages of dealing with the world at large. They develop their own treatments (one for burns is described in the article). They navigate, with some difficulties, the interface with the mainstream medical world: clinical testing etc. These treatments tend to be very cheap.  Communities negotiate discounts, which hospitals are willing to offer in exchange for payment in full at the time of service. In one example (a child treated with surgery for colon cancer) price was negotiated down to 19,000 USD from 172,000, a 90% discount. ""For Americans with health insurance, it may come as a surprise that hospital costs are negotiable"".  The Amish don't sue. ""When the Amish told [a doctor] they understand doctors are human and make mistakes, he had to pause to let that sink in. To them, he was not simply a member of the medical establishment, but an autonomous individual doing his best, given the choices and information before him.""",/post/14083,2017-01-06T15:30:11.000Z,2017-01-06T15:30:11.000Z,14083,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,377 10929,v1.0,,"This might happen at a time when the community has other objectives as well (""setting up a farm for a young couple""). You can ask of the community to support your treatment, but its costs are not simply discharged into an anonymous ""system"": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and ""[Amish] communities are highly interested in health education and disease prevention"".",/post/14083,2017-01-06T14:31:05.000Z,2017-01-06T14:31:05.000Z,14083,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,1686 10928,v1.0,,"I came across this great article on how the Amish culture and their approach towards healthcare in the United States. The Amish - a culture of independance and thrift may be a way to balance community support and individual responsibility. A cost-conscious, community-based take on American healthcare may be able to teach the general population a thing or two about dealing with a broken healthcare system. Health care practices vary considerably across Amish communities and from family to family. Many Amish use modern medical services, but others turn to alternative forms of treatment within their community.  The Amish society accepts responsibility for their own actions and chooses not to depend on services offered by the state and Amish communities opt out of the government-funded insurance. Opposed to commercial insurance and they pride themselves on taking care of their own. To assist one another, they willingly offer donations when a member of their community becomes ill. It may not fit in this area, but I thought it was an interesting read a thought I would share.   Excerpt from the article:   Plain communities are highly interested in health education and disease prevention. Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system. “In the Amish world, healthcare is seen as a ministry,” says Wengerd, “which is exactly what healthcare in the [non-Plain] world used to be.” Remember apprenticeships and house calls? The doctor used to be viewed like a minister who sacrificed his life for the patient, but there has been a shift. “The patient now sacrifices his livelihood for the doctor’s wellbeing.”   Read the full article here :  http://qz.com/695101/the-amish-understand-a-crucial-element-of-modern-medicine-that-most-americans-dont/",/post/713,2017-01-06T14:30:54.000Z,2017-01-06T14:30:54.000Z,713,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,1686 4790,v1.0,,"At the time, I had proposed we roll out a challenge on autonomy and responsibility. Pre-welfare states (19th century), welfare was basically invented by European mutual assistance societies, in turn part of the workers' movement. I imagine that, in the early days, these societies were small enough that the choice of treating someone would visibily drain the common pool of resources. So, in those days, maybe European factory workers thought a bit more like the Amish. A modern-day version of that, though I only know anecdotes about it, is implemented by @lasindias .  I think autonomy is also an interesting scenario in terms of policy, and fits well into @Lakomaa 's and @Tino_Sanandaji 's institutional economics framework.  My summary from the article:  The Amish refuse to have insurance. ""When someone gets sick, the church collects alms to help the patient cover expenses."" This might happen at a time when the community has other objectives as well (""setting up a farm for a young couple""). You can ask of the community to support your treatment, but its costs are not simply discharged into an anonymous ""system"": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and ""[Amish] communities are highly interested in health education and disease prevention"". For this reason, the Amish use genetic screening of children. Prevention is so important that its benefits trump the disadvantages of dealing with the world at large. They develop their own treatments (one for burns is described in the article). They navigate, with some difficulties, the interface with the mainstream medical world: clinical testing etc. These treatments tend to be very cheap.  Communities negotiate discounts, which hospitals are willing to offer in exchange for payment in full at the time of service. In one example (a child treated with surgery for colon cancer) price was negotiated down to 19,000 USD from 172,000, a 90% discount. ""For Americans with health insurance, it may come as a surprise that hospital costs are negotiable"".  The Amish don't sue. ""When the Amish told [a doctor] they understand doctors are human and make mistakes, he had to pause to let that sink in. To them, he was not simply a member of the medical establishment, but an autonomous individual doing his best, given the choices and information before him.""",/post/14083,2017-01-06T14:29:12.000Z,2017-01-06T14:29:12.000Z,14083,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,80 4789,v1.0,,"@Susa and I had a chat with Glenn from the Woodbine collective in New York about their own approaches towards building autonomous and resilient communities. And they are especially interesting to me because unlike the Amish, they are in the starting phase. As Glenn described it a subgroup in the Occupy movement decided that they would focus their energy on teaching themselves, and others, to become self-reliant communities. They do this through a kind of structured learning program along tracks, when we spoke they were just about to start building the health track. Which reminds me, I need to get back in touch with them!",/post/6704,2017-01-06T14:28:50.000Z,2017-01-06T14:28:50.000Z,6704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,80 9323,v1.0,,"The doctor used to be viewed like a minister who sacrificed his life for the patient, but there has been a shift. “The patient now sacrifices his livelihood for the doctor’s wellbeing.”",/post/713,2017-01-06T14:28:26.000Z,2017-01-06T14:28:26.000Z,713,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,1287 9638,v1.0,,"Plain communities are highly interested in health education and disease prevention. Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system.",/post/713,2017-01-06T14:28:17.000Z,2017-01-06T14:28:17.000Z,713,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,1369 9542,v1.0,,"Plain communities are highly interested in health education and disease prevention. Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system.",/post/713,2017-01-06T14:28:06.000Z,2017-01-06T14:28:06.000Z,713,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,1337 4788,v1.0,,"I came across this great article on how the Amish culture and their approach towards healthcare in the United States. The Amish - a culture of independance and thrift may be a way to balance community support and individual responsibility. A cost-conscious, community-based take on American healthcare may be able to teach the general population a thing or two about dealing with a broken healthcare system. Health care practices vary considerably across Amish communities and from family to family. Many Amish use modern medical services, but others turn to alternative forms of treatment within their community.  The Amish society accepts responsibility for their own actions and chooses not to depend on services offered by the state and Amish communities opt out of the government-funded insurance. Opposed to commercial insurance and they pride themselves on taking care of their own. To assist one another, they willingly offer donations when a member of their community becomes ill. It may not fit in this area, but I thought it was an interesting read a thought I would share.   Excerpt from the article:   Plain communities are highly interested in health education and disease prevention. Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system. “In the Amish world, healthcare is seen as a ministry,” says Wengerd, “which is exactly what healthcare in the [non-Plain] world used to be.” Remember apprenticeships and house calls? The doctor used to be viewed like a minister who sacrificed his life for the patient, but there has been a shift. “The patient now sacrifices his livelihood for the doctor’s wellbeing.”   Read the full article here :  http://qz.com/695101/the-amish-understand-a-crucial-element-of-modern-medicine-that-most-americans-dont/",/post/713,2017-01-06T14:25:06.000Z,2017-01-06T14:25:06.000Z,713,3323,AnnotatorStore::TextAnnotation,,,,,,,,,680,80 8243,v1.0,,"This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.    ""Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies. When asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.  “What I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,” says Aiken. “I think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.”",/post/26054,2017-01-06T14:24:28.000Z,2017-01-06T14:24:28.000Z,26054,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1073 5432,v1.0,,"This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.    ""Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies. When asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.  “What I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,” says Aiken. “I think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.”",/post/26054,2017-01-06T14:24:09.000Z,2017-01-06T14:24:09.000Z,26054,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,309 4516,v1.0,,"This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.    ""Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies. When asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.  “What I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,” says Aiken. “I think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.”",/post/26054,2017-01-06T14:23:56.000Z,2017-01-06T14:23:56.000Z,26054,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,8 9588,v1.0,,"So what's going on with prevention of unwanted pregnancies? Public health people I have talked to tend to shrug and say it's endemic. The window of opportunity for stupid and careless behaviour is a little too wide, the drive for instant gratification over prudence is literally a biological imperative, and even the best contraceptives only have a 99.99% effectiveness. If, say, in Italy you have about 20 million couples, if 10% of them are having sex tonight and all of them use contraception, you are going to get 200 unwanted pregnancies tonight, in just one European country. Best you can do is reduce the incidence of such incidents, but no human society ever achieved zero unwanted pregnancies.",/post/24734,2017-01-06T14:23:12.000Z,2017-01-06T14:23:12.000Z,24734,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1349 9734,v1.0,,"So what's going on with prevention of unwanted pregnancies? Public health people I have talked to tend to shrug and say it's endemic. The window of opportunity for stupid and careless behaviour is a little too wide, the drive for instant gratification over prudence is literally a biological imperative, and even the best contraceptives only have a 99.99% effectiveness. If, say, in Italy you have about 20 million couples, if 10% of them are having sex tonight and all of them use contraception, you are going to get 200 unwanted pregnancies tonight, in just one European country. Best you can do is reduce the incidence of such incidents, but no human society ever achieved zero unwanted pregnancies.",/post/24734,2017-01-06T14:23:06.000Z,2017-01-06T14:23:06.000Z,24734,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1392 9587,v1.0,,"While this story documents the power of underground networks to find pragmatic solutions, I am wondering if and why ""P2P care"" solutions do not equally pop up to create solutions through prevention (that is, preventing the pregnancies in the first place)? It could be that P2P solutions have a problem with collective motivation here, just as governments tend to rather react that act proactively, but more severe since P2P / underground solutions are so resource constrained. If so, that could point to a major issue with all P2P solutions into care (that is, making for a nice research focus). I'm pretty sure there is common ground to say prefentive solutions are preferrable (assuming that women who are undergoing abortion would have preferred not to, that is, not to have become pregnant in the first place). So, no need to refer to laws or morals. Even if the law allows it, there is still reason to prevent pregnancy. So even though contraception is widely available in Europe, on a society scale there are still this many unwanted pregnancies. What I'm wondering here is about the reasons for this, and what P2P initiatives can do and are doing here? Of course this will have to do a lot with slow-changing ""fuzzy targets"" like culture, taboos, sexual practices and preferences. A crazy story from Nepal about how all this impairs the use of ""normal"" contraceptives among the young generation is this one (Natalia found it some time last year). But in Europe …? What's going on here?",/post/23368,2017-01-06T14:21:56.000Z,2017-01-06T14:21:56.000Z,23368,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1349 9346,v1.0,,"While this story documents the power of underground networks to find pragmatic solutions, I am wondering if and why ""P2P care"" solutions do not equally pop up to create solutions through prevention (that is, preventing the pregnancies in the first place)? It could be that P2P solutions have a problem with collective motivation here, just as governments tend to rather react that act proactively, but more severe since P2P / underground solutions are so resource constrained. If so, that could point to a major issue with all P2P solutions into care (that is, making for a nice research focus). I'm pretty sure there is common ground to say prefentive solutions are preferrable (assuming that women who are undergoing abortion would have preferred not to, that is, not to have become pregnant in the first place). So, no need to refer to laws or morals. Even if the law allows it, there is still reason to prevent pregnancy. So even though contraception is widely available in Europe, on a society scale there are still this many unwanted pregnancies. What I'm wondering here is about the reasons for this, and what P2P initiatives can do and are doing here? Of course this will have to do a lot with slow-changing ""fuzzy targets"" like culture, taboos, sexual practices and preferences. A crazy story from Nepal about how all this impairs the use of ""normal"" contraceptives among the young generation is this one (Natalia found it some time last year). But in Europe …? What's going on here?",/post/23368,2017-01-06T14:21:27.000Z,2017-01-06T14:21:27.000Z,23368,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1294 5810,v1.0,,"These stories are quite ghastly. The silver lining is that communities tend to step into giving care, and to do so more when the care problem is ""close to home"". In the end, reproductive health and control over one's body are an absolute, so prohibitions don't work. People go underground, organize informal networks, and things happen anyway.  And this means that, maybe, a good way to do public policy on care is just to let people free to provide for each other, then step in to help with those which are obviously the most pressing concerns, such as this one. Concerns are revealed by the efforts put into addressing them, even when that means breaking laws and running the risks associated with it.  Of course, my remarks refer to a theoretical world without politics, where all decision makers are serene, evidence-oriented and well-meaning.",/post/19626,2017-01-06T14:20:31.000Z,2017-01-06T14:20:31.000Z,19626,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,377 4515,v1.0,,"In fact, I think that the abortion underground functions so well purely because  and thanks to the hypocrisy of the Polish society. Probably after decades of liberal regulations to some extent women are aware of the fact that abortions are needed, but catholic brainwashing has been so effective, that they're trapped between the moral and the pragmatic views on abortion. Now what seems to prove this is that women are not interested in lobbying for their right to abortion - they somehow agree to comply with the rules by having them underground and accepting the stigma, rather than fighting for their rights. Imagine even if the lowest estimate of 80.000 women having illegal abortions a year is right, and 10 percent of them would be up to fight with the system on that, we'd have a pretty great leverage to change the law by now. But we don't. have that. Well, at least until now - but this remains to be seen because we also have a conservative revival going on and if the church steps in, you never know who'd stay on top of things. I'd rather not expect us going any more liberal than we're at the moment.  Another thing is that part of the available options just use the loopholes, they're not illegal. I guess you can't stop a woman from going abroad or having pills. And a lot of turning the blind eye on the doctors who i believe are well known for doing the abortions despite working underground. About the movement now, I think there is a chance for some momentum - but I'm not too optimistic about it. We're observing a bit mobilization of civil society ever since the new government came into power, but that rarely brought any results. At the end, they use their democratic victory to pass any decision they seem fit - and giving up on a project of an outrageous reform just to keep rather shameful status quo is not a huge failure for them I believe. We might be building awareness and capacity for the future right now. Let's see.",/post/16930,2017-01-06T14:20:15.000Z,2017-01-06T14:20:15.000Z,16930,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,8 9859,v1.0,,"that abortions are needed, but catholic brainwashing has been so effective, that they're trapped between the moral and the pragmatic views on abortion. Now what seems to prove this is that women are not interested in lobbying for their right to abortion - they somehow agree to comply with the rules by having them underground and accepting the stigma, rather than fighting for their rights. Imagine even if the lowest estimate of 80.000 women having illegal abortions a year is right, and 10 percent of them would be up to fight with the system on that, we'd have a pretty great leverage to change the law by now. But we don't. have that. Well, at least until now - but this remains to be seen because we also have a conservative revival going on and if the church steps in, you never know who'd stay on top of things. I'd rather not expect us going any more liberal than we're at the moment.",/post/16930,2017-01-06T14:19:50.000Z,2017-01-06T14:19:50.000Z,16930,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1432 6204,v1.0,,"""Podziemne Państwo Kobiet"" is both a documentary and a collection of abortion stories from Polish women who had illegal abortions in the past two decades. Poland most likely is the only country in the world that had abortions legal by law (1956-1993) and changed it ""backward"". We ended up having one of the most restrictive laws in the world, and the legislators were smart, by avoiding criminalizing women (with whom society would sympathize) and focusing instead on everyone else who assists with abortions (the penalties are up to 8 years in prison), creating a system of fear and paranoia.  The first thing that strikes about abortion in Poland is the statistics - according to Polish Ministry of Health in 2013, there were 744 legal abortions and 718 of them due to the risk of birth defects. 3 of them due to rape and 23 due to the risk posed to women health. In 2015 there were 1044 legal abortions. For a country with 38 million inhabitants, these numbers seem just wrong. In Spain or UK, these numbers are 200 or 400 times higher. And it's estimated that illegal abortions every year account for between 80.000- 200.000 cases in Poland.  So, what kind of abortions are available in the underground and how do women access it? Chirurgical abortions are one of the common ways. They usually happen in hidden spaces, often barely up to any standards, with basic equipment, sometimes only in the presence of doctor (women who come to get the abortion might end up assisting them). The price of an abortion is at least 2000 zl (500 euros), and it tends to go up with the standard. In some cases, when doctors are well connected, they can even perform them in hospitals, which would double the price. Many doctors who refused to perform a legal abortion are perfectly fine with doing it illegally after settling the price with their patients.  Considering that the minimal wage in Poland is 1850 zl, and the average is 4000 (yet many people struggle to get contracts, work on 3/4 of full time, or often work on irregular gigs earning even less than 1000 zł a month with no minimal wage per hour), the price is quite prohibitive and exclusive. Many women end up taking loans to pay off their abortions.  Nowadays, women contact pro-choice organizations to find out who can help them with abortion. Since the 90ties, press and internet advertisements were the ways to find doctors who'd perform them. Such services would be named as ""painless restoration of menstruation"" - and involve either chirurgical help or access to drugs, highly overpriced. In many cases a friend or a relative knows who does it in your town. The fear and paranoia remain anyhow - women are asked to leave the clinic right after the procedure is done, regardless of their condition, in order not to bring suspicion. They're asked to park their cars far away from the place of appointment.  Some of the informal groups specialize in organizing abortions abroad. Ciocia Basia, a group of volunteer activist, helps to organize legal abortions in Berlin. For a price of 290/390 euros, they arrange pharmacological and chirurgical abortions in clinics, help with translations and offer a couch for the women coming over. Another popular destination is Slovakia and Czech Republic - it's super easy to find websites in Poland of clinics in these countries that provide with professional and anonymous help. Prices are similar to those in Polish underground. And then you have the pharmacological abortion. There are two drugs containing misoprostol registered and available in Poland, one of which can be bought without the prescription. Women usually end up making up stories about stomach pain or rheumatic grandmothers to buy them. Sometimes both of them can be obtained from ""under the counter"", forums also advise to ask a man to help buy them. Misoprostol should be accompanied by mifepristone to increase effectiveness (the combination of both has 98% effectiveness, while only misoprostol alone is between 80-90%), but the latter drug is not registered in Poland. In this case organizations such as Women on Waves help to buy and ship them from other countries (they ask for donation of minimum of 70 euros, but they do support women in economic difficulties by providing them for free). It is well known that some of the doctors write prescriptions for these drugs (a pack of 12 costs 25 zl, but can be sold 10 or more times more expensive on the black market) and help women get access to them via advertisements. It's impossible to track as these drugs are not refunded by the state - therefore not registered anywhere.  Due to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek abortions or just had one, share their stories and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It's recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save lives in some instances of home abortions.  I am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.",/post/793,2017-01-06T14:19:31.000Z,2017-01-06T14:19:31.000Z,793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,441 8279,v1.0,,"""Podziemne Państwo Kobiet"" is both a documentary and a collection of abortion stories from Polish women who had illegal abortions in the past two decades. Poland most likely is the only country in the world that had abortions legal by law (1956-1993) and changed it ""backward"". We ended up having one of the most restrictive laws in the world, and the legislators were smart, by avoiding criminalizing women (with whom society would sympathize) and focusing instead on everyone else who assists with abortions (the penalties are up to 8 years in prison), creating a system of fear and paranoia.  The first thing that strikes about abortion in Poland is the statistics - according to Polish Ministry of Health in 2013, there were 744 legal abortions and 718 of them due to the risk of birth defects. 3 of them due to rape and 23 due to the risk posed to women health. In 2015 there were 1044 legal abortions. For a country with 38 million inhabitants, these numbers seem just wrong. In Spain or UK, these numbers are 200 or 400 times higher. And it's estimated that illegal abortions every year account for between 80.000- 200.000 cases in Poland.  So, what kind of abortions are available in the underground and how do women access it? Chirurgical abortions are one of the common ways. They usually happen in hidden spaces, often barely up to any standards, with basic equipment, sometimes only in the presence of doctor (women who come to get the abortion might end up assisting them). The price of an abortion is at least 2000 zl (500 euros), and it tends to go up with the standard. In some cases, when doctors are well connected, they can even perform them in hospitals, which would double the price. Many doctors who refused to perform a legal abortion are perfectly fine with doing it illegally after settling the price with their patients.  Considering that the minimal wage in Poland is 1850 zl, and the average is 4000 (yet many people struggle to get contracts, work on 3/4 of full time, or often work on irregular gigs earning even less than 1000 zł a month with no minimal wage per hour), the price is quite prohibitive and exclusive. Many women end up taking loans to pay off their abortions.  Nowadays, women contact pro-choice organizations to find out who can help them with abortion. Since the 90ties, press and internet advertisements were the ways to find doctors who'd perform them. Such services would be named as ""painless restoration of menstruation"" - and involve either chirurgical help or access to drugs, highly overpriced. In many cases a friend or a relative knows who does it in your town. The fear and paranoia remain anyhow - women are asked to leave the clinic right after the procedure is done, regardless of their condition, in order not to bring suspicion. They're asked to park their cars far away from the place of appointment.  Some of the informal groups specialize in organizing abortions abroad. Ciocia Basia, a group of volunteer activist, helps to organize legal abortions in Berlin. For a price of 290/390 euros, they arrange pharmacological and chirurgical abortions in clinics, help with translations and offer a couch for the women coming over. Another popular destination is Slovakia and Czech Republic - it's super easy to find websites in Poland of clinics in these countries that provide with professional and anonymous help. Prices are similar to those in Polish underground. And then you have the pharmacological abortion. There are two drugs containing misoprostol registered and available in Poland, one of which can be bought without the prescription. Women usually end up making up stories about stomach pain or rheumatic grandmothers to buy them. Sometimes both of them can be obtained from ""under the counter"", forums also advise to ask a man to help buy them. Misoprostol should be accompanied by mifepristone to increase effectiveness (the combination of both has 98% effectiveness, while only misoprostol alone is between 80-90%), but the latter drug is not registered in Poland. In this case organizations such as Women on Waves help to buy and ship them from other countries (they ask for donation of minimum of 70 euros, but they do support women in economic difficulties by providing them for free). It is well known that some of the doctors write prescriptions for these drugs (a pack of 12 costs 25 zl, but can be sold 10 or more times more expensive on the black market) and help women get access to them via advertisements. It's impossible to track as these drugs are not refunded by the state - therefore not registered anywhere.  Due to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek abortions or just had one, share their stories and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It's recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save lives in some instances of home abortions.  I am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.",/post/793,2017-01-06T14:19:24.000Z,2017-01-06T14:19:24.000Z,793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1074 10683,v1.0,,"Due to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek abortions or just had one, share their stories and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It's recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save lives in some instances of home abortions.  I am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.",/post/793,2017-01-06T14:19:08.000Z,2017-01-06T14:19:08.000Z,793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,1625 4514,v1.0,,"""Podziemne Państwo Kobiet"" is both a documentary and a collection of abortion stories from Polish women who had illegal abortions in the past two decades. Poland most likely is the only country in the world that had abortions legal by law (1956-1993) and changed it ""backward"". We ended up having one of the most restrictive laws in the world, and the legislators were smart, by avoiding criminalizing women (with whom society would sympathize) and focusing instead on everyone else who assists with abortions (the penalties are up to 8 years in prison), creating a system of fear and paranoia.  The first thing that strikes about abortion in Poland is the statistics - according to Polish Ministry of Health in 2013, there were 744 legal abortions and 718 of them due to the risk of birth defects. 3 of them due to rape and 23 due to the risk posed to women health. In 2015 there were 1044 legal abortions. For a country with 38 million inhabitants, these numbers seem just wrong. In Spain or UK, these numbers are 200 or 400 times higher. And it's estimated that illegal abortions every year account for between 80.000- 200.000 cases in Poland.  So, what kind of abortions are available in the underground and how do women access it? Chirurgical abortions are one of the common ways. They usually happen in hidden spaces, often barely up to any standards, with basic equipment, sometimes only in the presence of doctor (women who come to get the abortion might end up assisting them). The price of an abortion is at least 2000 zl (500 euros), and it tends to go up with the standard. In some cases, when doctors are well connected, they can even perform them in hospitals, which would double the price. Many doctors who refused to perform a legal abortion are perfectly fine with doing it illegally after settling the price with their patients.  Considering that the minimal wage in Poland is 1850 zl, and the average is 4000 (yet many people struggle to get contracts, work on 3/4 of full time, or often work on irregular gigs earning even less than 1000 zł a month with no minimal wage per hour), the price is quite prohibitive and exclusive. Many women end up taking loans to pay off their abortions.  Nowadays, women contact pro-choice organizations to find out who can help them with abortion. Since the 90ties, press and internet advertisements were the ways to find doctors who'd perform them. Such services would be named as ""painless restoration of menstruation"" - and involve either chirurgical help or access to drugs, highly overpriced. In many cases a friend or a relative knows who does it in your town. The fear and paranoia remain anyhow - women are asked to leave the clinic right after the procedure is done, regardless of their condition, in order not to bring suspicion. They're asked to park their cars far away from the place of appointment.  Some of the informal groups specialize in organizing abortions abroad. Ciocia Basia, a group of volunteer activist, helps to organize legal abortions in Berlin. For a price of 290/390 euros, they arrange pharmacological and chirurgical abortions in clinics, help with translations and offer a couch for the women coming over. Another popular destination is Slovakia and Czech Republic - it's super easy to find websites in Poland of clinics in these countries that provide with professional and anonymous help. Prices are similar to those in Polish underground. And then you have the pharmacological abortion. There are two drugs containing misoprostol registered and available in Poland, one of which can be bought without the prescription. Women usually end up making up stories about stomach pain or rheumatic grandmothers to buy them. Sometimes both of them can be obtained from ""under the counter"", forums also advise to ask a man to help buy them. Misoprostol should be accompanied by mifepristone to increase effectiveness (the combination of both has 98% effectiveness, while only misoprostol alone is between 80-90%), but the latter drug is not registered in Poland. In this case organizations such as Women on Waves help to buy and ship them from other countries (they ask for donation of minimum of 70 euros, but they do support women in economic difficulties by providing them for free). It is well known that some of the doctors write prescriptions for these drugs (a pack of 12 costs 25 zl, but can be sold 10 or more times more expensive on the black market) and help women get access to them via advertisements. It's impossible to track as these drugs are not refunded by the state - therefore not registered anywhere.  Due to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek abortions or just had one, share their stories and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It's recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save lives in some instances of home abortions.  I am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.",/post/793,2017-01-06T14:18:25.000Z,2017-01-06T14:18:25.000Z,793,3323,AnnotatorStore::TextAnnotation,,,,,,,,,760,8 4554,v1.0,,"we consume. Nothing is set. The future is what we make it. So it is up to us 'the people' to decide whether we want to continue living a life of subordinates, never resuimng our own responsibilities (which is actually much easier as there is always someone else to blame for our problems) or to finally ascend and take (our) matters into our own hands. Food policy councils are only as good, representative and successful as the people that comprise them..",/post/12835,2017-01-06T14:16:00.000Z,2017-01-06T14:16:00.000Z,12835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,18 9505,v1.0,,"I think perhaps there are other people more qualified by me to answer this: those involved in places where they have already set up such mechanisms like the people in the city of Corke and many others outside the EU borders. But if I were to give my personal opinion, as I said in the article I believe htat every action has a political meaning -picking up my fork, paying for whatever I decide to buy is done to fill my stomach, but without realising it much it is also a highly political action. Because with every bite and every buy I choose and I shape the world I want to live in. The point is that 'we the people' finally decide to take action, to become involved and to gain for the first time ever our own sovereignty -at least when it comes to what food we consume. Nothing is set. The future is what we make it. So it is up to us 'the people' to decide whether we want to continue living a life of subordinates, never resuimng our own responsibilities (which is actually much easier as there is always someone else to blame for our problems) or to finally ascend and take (our) matters into our own hands. Food policy councils are only as good, representative and successful as the people that comprise them...",/post/12835,2017-01-06T14:15:38.000Z,2017-01-06T14:15:38.000Z,12835,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,1326 7748,v1.0,,"But FoodSov and Agroecology are also about being practical and hands-on, hence the phrase about growing food and not writing manifestos. 70% of the world's food is produced -contrary to mass belief, by small farmers around the world. We are an active movement, we put food on our table every day, and that's no small thing. We just need to realise the importance and value of that, and unite with our natural allies -e.g. the producers and bringers of our food and health (for as a wise farmer once said 'we are not in the business of producing mere food! I like to say that what I do for a living is cultivate people's health').",/post/11122,2017-01-06T14:15:08.000Z,2017-01-06T14:15:08.000Z,11122,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,924 9487,v1.0,,"Food Sovereignty and Agroecology are political matters at heart -hence the (obvious) connection with governments and policy makers -as you correctly pointed out. What ‘we the people’ fail to recognize is that ‘that’ (governors and policy-makers) should be us! We need to play a more active role where our livelihoods and our present and future are concerned! So we need to find ways (and where there isn’t one, create it) to push for changes in policy, in the way our affairs are run (and whom by). This is why pushing for the creation of Food Policy Councils is an idea I stand by, and this is why one of the main pillars of the FoodSov movement is related to this specific sector -ie political lobbying and advocacy. After all, the word 'eco' in greek means house, the place where one lives, and we can't be proper (agro)ecologists without giving enough attention into how this house is run!",/post/11122,2017-01-06T14:10:23.000Z,2017-01-06T14:10:23.000Z,11122,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,1322 10485,v1.0,,by combining forces with someone that knows how to farm we stand to gain lots more than if go at it on our own. So I would say find local farmers to source your food from and co-produce together.,/post/11122,2017-01-06T14:10:00.000Z,2017-01-06T14:10:00.000Z,11122,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,1557 7474,v1.0,,"I’m glad the idea (and the movement) of Food Sovereignty is spreading! And I will grant you that becoming self sustainable and autonomous is no easy feet. On the other hand, everything is as simple or as hard as we make it out to be. In nature everything is connected and everything functions through viable, long-term, symbiotic relationships. In this new model of a new society based on solidarity, collaboration, and fairness we are",/post/11122,2017-01-06T14:09:39.000Z,2017-01-06T14:09:39.000Z,11122,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,859 5522,v1.0,,"I’m glad the idea (and the movement) of Food Sovereignty is spreading! And I will grant you that becoming self sustainable and autonomous is no easy feet. On the other hand, everything is as simple or as hard as we make it out to be. In nature everything is connected and everything functions through viable, long-term, symbiotic relationships. In this new model of a new society based on solidarity, collaboration, and fairness we are trying to create and advocate, I really do not think that anything can be achieved without partnerships. Nothing in nature works alone, why should we? Hence concepts like CSA are strong representatives of this new type of communities we need to evolve into. It also stands to reason that no-one can know everything and have experience (let alone expertise) in every field; by combining forces with someone that knows how to farm we stand to gain lots more than if go at it on our own. So I would say find local farmers to source your food from and co-produce together.",/post/11122,2017-01-06T14:09:24.000Z,2017-01-06T14:09:24.000Z,11122,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,326 4787,v1.0,,"I am interested in creating a new agricultural production model, focusing on agroecology and self-sufficiency and I believe we need to pursue the transition to a new way of thinking and living. We live in a time of confluence where the old and the new are still co-existing and that creates a very challenging atmosphere, so people need support, tools and skills to make it through. We need to get involved with things like Community Supported Agriculture (CSA); sharing risks, responsibilities and rewards between growers and eaters of food, creating a new concept of human relationships, and new kinds of communities. Out of the ten million inhabitants of Greece almost half live in the area around Athens and one in Thessaloniki. There are whole regions -especially in the mountainous parts of the country, filled with ghost towns. The cities are dying due to the continuous austerity packs that suffocate entrepreneurship and chances of finding work. We need to revive rural areas by promoting small-scale agriculture, empowering farmers and inspiring rural lifestyle, by combining traditions and technology, and promote an economy based on social solidarity and alternative currencies.   This is also, in its heart, a political issue: we need to emancipate ourselves as political beings, as citizens and as consumers and we need to create a new way for governing and caring for our societies and be responsible custodians of the abundance of nature for ourselves and all other species and for the generations to come.    *For my take on the crisis as a “virtual crisis” and what it means for our food, please watch my short speech during Solikon Berlin (The Solidarity Economy European Congress 2015) last year.",/post/559,2017-01-06T14:08:32.000Z,2017-01-06T14:08:32.000Z,559,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,80 7473,v1.0,,"The next cornerstone came in August 2011 when I was fortunate enough to be part of the Greek delegation for the first Nyeleni Forum on European Food Sovereignty. That was it for me. I decided to stay. And help. With all my strength. Since then, I dedicated myself and all my resources to bringing about change -and what a ride it’s been! I can honestly say that I have never before worked as hard and with such persistence -even when I was working for a paycheck! Of course that meant many sacrifices on my part and a complete change of lifestyle as I immersed myself in the gift economy and found out how it is to have your needs met without money being the first resort. Since then I got involved with and instigated the creation of various groups, collectives, anti-privatisation initiatives etc. In October 2011 I co-organised the first Greek meeting on Food Sovereignty. In 2014 I organised the Permaculture Caravan -roaming the country for six weeks with Permaculturist Peter Cow spreading the ideas of autonomy and self sustainability and creating a new hype for Permaculture around the country. I joined ‘Neighbourhoods In Action’ -a group of eco-activists that managed to get elected in local government council of Thessaloniki -and played an important role in our municipality signing the Milan Urban Food Policy Pact for the creation of Food Policy Councils. I am currently trying to put our municipality in the European Network for Cities for Agroecology, and I am the focal point for Greece -ie contact person, for the European Food Sovereignty Movement and URGENCI -the Community Supported Agriculture Movement. I am interested in creating a new agricultural production model, focusing on agroecology and self-sufficiency and I believe we need to pursue the transition to a new way of thinking and living. We live in a time of confluence where the old and the new are still co-existing and that creates a very challenging atmosphere, so people need support, tools and skills to make it through. We need to get involved with things like Community Supported Agriculture (CSA); sharing risks, responsibilities and rewards between growers and eaters of food, creating a new concept of human relationships, and new kinds of communities. Out of the ten million inhabitants of Greece almost half live in the area around Athens and one in Thessaloniki. There are whole regions -especially in the mountainous parts of the country, filled with ghost towns. The cities are dying due to the continuous austerity packs that suffocate entrepreneurship and chances of finding work. We need to revive rural areas by promoting small-scale agriculture, empowering farmers and inspiring rural lifestyle, by combining traditions and technology, and promote an economy based on social solidarity and alternative currencies.   This is also, in its heart, a political issue: we need to emancipate ourselves as political beings, as citizens and as consumers and we need to create a new way for governing and caring for our societies and be responsible custodians of the abundance of nature for ourselves and all other species and for the generations to come.    *For my take on the crisis as a “virtual crisis” and what it means for our food, please watch my short speech during Solikon Berlin (The Solidarity Economy European Congress 2015) last year.",/post/559,2017-01-06T14:05:27.000Z,2017-01-06T14:07:14.000Z,559,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,859 9672,v1.0,,"The proof came in May 2011 and the infamous ‘indignation’ or ‘occupy the squares’ movement. I was there from the very first day, and although it was very amateuristic and problematic in various levels (and has been widely exploited for political gain) still, it was a strong, life-changing experience for most of us involved. I had never before (except from history books) seen Greeks come together in such ways and with such plurality and diversity. God-fearing pensioners working alongside young budding anarchists; apolitical housewives and disillusioned political-party members, all stepping out and taking initiative, organising, sharing openly their feelings and their food, showing solidarity, standing hand-in-hand to face the teargas and police brutality... The zombies had a heart!",/post/559,2017-01-06T14:04:29.000Z,2017-01-06T14:04:29.000Z,559,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,1379 7680,v1.0,,"The proof came in May 2011 and the infamous ‘indignation’ or ‘occupy the squares’ movement. I was there from the very first day, and although it was very amateuristic and problematic in various levels (and has been widely exploited for political gain) still, it was a strong, life-changing experience for most of us involved. I had never before (except from history books) seen Greeks come together in such ways and with such plurality and diversity. God-fearing pensioners working alongside young budding anarchists; apolitical housewives and disillusioned political-party members, all stepping out and taking initiative, organising, sharing openly their feelings and their food, showing solidarity, standing hand-in-hand to face the teargas and police brutality... The zombies had a heart!",/post/559,2017-01-06T14:04:21.000Z,2017-01-06T14:04:21.000Z,559,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,914 4987,v1.0,,These words are the preface for my MBA thesis for which I had to interact with Greek officials -and hence got a first hand experience of the stagnant and chaotic ways of its bureaucracy.,/post/559,2017-01-06T14:03:41.000Z,2017-01-06T14:03:41.000Z,559,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,129 7635,v1.0,,These words are the preface for my MBA thesis for which I had to interact with Greek officials -and hence got a first hand experience of the stagnant and chaotic ways of its bureaucracy.,/post/559,2017-01-06T14:03:34.000Z,2017-01-06T14:03:34.000Z,559,3323,AnnotatorStore::TextAnnotation,,,,,,,,,526,906 9789,v1.0,,"Ce texte est une pastiche qui n'a jamais été publié suite au faite que le jour de publication était le jour des attentat en France. J'ai rencontré Yannick qui m'a proposé de partager ce texte ici, car comme d'autre idée la réappropriation de l'espace commun a comme bénéfice des gens plus sain d'esprit dans la ville. Voici notre proposition:  Une nouvelle Maison du Peuple! Aujourd’hui est un jour historique pour Bruxelles. Après de longs mois d’incertitude, le conseil communal à enfin tranché: le Palais de la Bourse deviendra le lieu commun de tous les bruxellois. Ils ont à nouveau une Maison du Peuple! Ce temple architectural est évidemment d’abord un choix symbolique. Après y avoir accepté la très controversée exposition Behind The Numbers glorifiant le néo-liberalisme, la Ville s’est rendue compte qu’il fallait donner une autre destination à cet endroit que celle de pure spéculation commerciale et d'activité touristique. En transformant une partie de la Bourse en Maison du Peuple elle redonne une place aux Bruxellois au cœur du centre historique! Donnez la ville aux habitants, et tout le monde s’en portera mieux On ne comptait plus le nombre d’actions contre les plans de la Ville: plates-formes citoyennes, regroupements de commerçants, actions ludiques diverses... Qui ne se souvient du banc de 30 m déposé au milieu de la Grand place, ou des centaines de gens pique-niquant place de la Bourse, de l'action de revendication des escaliers de la Bourse comme tribune libre d'expression politique lors du KunstenFestivaldesarts? L’espace public était devenu un haut lieu de débat, mais paradoxalement ne recevait pas d’endroit adéquat pour le mener (une Agora). La participation ne remuait que du vent, les riverains ne se sentaient pas entendus. La ville était taillée sur mesure pour les eurocrates, les touristes Chinois, avec commerces ouverts le dimanche, tandis que le Bruxellois devait se contenter d’une ville certes prestigieuse, mais sans lieu où il fait bon vivre, une ville d'expériences individuelles juxtaposées, atomisées, sans liens. Le Beer Tempel projeté dans le Palais de la Bourse aura une entrée par l’arrière, et c'est très bien ainsi. Mais sans occuper tout l'espace, il comprendra une nouvelle Maison du Peuple, où chacun pourrait débattre de ce qui se passe dans la ville, où les initiatives bottom-up pourront croître, de nouvelles idées pour une ville meilleure surgir. Il importe de faire de ce lieu symbolique qu'est la Bourse un espace de libre débat, une Agora. Il s'agit de rendre la ville aux habitants pour que tout le monde en profite, pour que l’habitant s’y sente bien. Alors le touriste, le commerçant et tout les autres s'y sentiront bien aussi. La Ville espère avec cette Maison du Peuple calmer les tensions palpables par le biais d’une communication plus ouverte: un endroit de rencontre et d’écoute sera ainsi aménagé dans le bâtiment. En revitalisant de cette façon la Bourse, en lui donnant une échelle humaine, la Ville aide à fabriquer le tissu social des prochaines décennies. Bien sûr, le touriste y aura sa place, car la Maison du peuple sera ouverte a tous. Mais nous ne voulons pas que la centralité habitée soit confisquée par une vitrine à touristes. A la Maison du Peuple, les touristes pourraient rencontrer des Bruxellois, trouver des bons plans pour une visite de Bruxelles vue par ses habitants, trouver le plaisir culturel de ville plus qu'une consommation grégaire. Utopie et Réalité? Et maintenant vient la chute: on est encore bien loin de cette possible utopie à Bruxelles et c’est bien dommage. On dirait que la peur panique du désordre social jette la Ville dans les bras de la société du spectacle, attractive aux investisseurs, par la privatisation de l’espace public, le non-débat constant avec les acteurs locaux, un trafic encore plus monstrueux, et de plus en plus de gens en désaccord avec chacun mais encore plus avec la politique bruxelloise... Une souffle nouveau, un bref moment d’air frais pourrait nous sortir de là, donc amis Bruxellois, politiciens donnez-nous cette Maison du Peuple à la Bourse.  Sinon on la prendra!",/post/784,2017-01-06T13:52:48.000Z,2017-01-06T13:52:48.000Z,784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,751,1412 9608,v1.0,,"Ce texte est une pastiche qui n'a jamais été publié suite au faite que le jour de publication était le jour des attentat en France. J'ai rencontré Yannick qui m'a proposé de partager ce texte ici, car comme d'autre idée la réappropriation de l'espace commun a comme bénéfice des gens plus sain d'esprit dans la ville. Voici notre proposition:  Une nouvelle Maison du Peuple! Aujourd’hui est un jour historique pour Bruxelles. Après de longs mois d’incertitude, le conseil communal à enfin tranché: le Palais de la Bourse deviendra le lieu commun de tous les bruxellois. Ils ont à nouveau une Maison du Peuple! Ce temple architectural est évidemment d’abord un choix symbolique. Après y avoir accepté la très controversée exposition Behind The Numbers glorifiant le néo-liberalisme, la Ville s’est rendue compte qu’il fallait donner une autre destination à cet endroit que celle de pure spéculation commerciale et d'activité touristique. En transformant une partie de la Bourse en Maison du Peuple elle redonne une place aux Bruxellois au cœur du centre historique! Donnez la ville aux habitants, et tout le monde s’en portera mieux On ne comptait plus le nombre d’actions contre les plans de la Ville: plates-formes citoyennes, regroupements de commerçants, actions ludiques diverses... Qui ne se souvient du banc de 30 m déposé au milieu de la Grand place, ou des centaines de gens pique-niquant place de la Bourse, de l'action de revendication des escaliers de la Bourse comme tribune libre d'expression politique lors du KunstenFestivaldesarts? L’espace public était devenu un haut lieu de débat, mais paradoxalement ne recevait pas d’endroit adéquat pour le mener (une Agora). La participation ne remuait que du vent, les riverains ne se sentaient pas entendus. La ville était taillée sur mesure pour les eurocrates, les touristes Chinois, avec commerces ouverts le dimanche, tandis que le Bruxellois devait se contenter d’une ville certes prestigieuse, mais sans lieu où il fait bon vivre, une ville d'expériences individuelles juxtaposées, atomisées, sans liens. Le Beer Tempel projeté dans le Palais de la Bourse aura une entrée par l’arrière, et c'est très bien ainsi. Mais sans occuper tout l'espace, il comprendra une nouvelle Maison du Peuple, où chacun pourrait débattre de ce qui se passe dans la ville, où les initiatives bottom-up pourront croître, de nouvelles idées pour une ville meilleure surgir. Il importe de faire de ce lieu symbolique qu'est la Bourse un espace de libre débat, une Agora. Il s'agit de rendre la ville aux habitants pour que tout le monde en profite, pour que l’habitant s’y sente bien. Alors le touriste, le commerçant et tout les autres s'y sentiront bien aussi. La Ville espère avec cette Maison du Peuple calmer les tensions palpables par le biais d’une communication plus ouverte: un endroit de rencontre et d’écoute sera ainsi aménagé dans le bâtiment. En revitalisant de cette façon la Bourse, en lui donnant une échelle humaine, la Ville aide à fabriquer le tissu social des prochaines décennies. Bien sûr, le touriste y aura sa place, car la Maison du peuple sera ouverte a tous. Mais nous ne voulons pas que la centralité habitée soit confisquée par une vitrine à touristes. A la Maison du Peuple, les touristes pourraient rencontrer des Bruxellois, trouver des bons plans pour une visite de Bruxelles vue par ses habitants, trouver le plaisir culturel de ville plus qu'une consommation grégaire. Utopie et Réalité? Et maintenant vient la chute: on est encore bien loin de cette possible utopie à Bruxelles et c’est bien dommage. On dirait que la peur panique du désordre social jette la Ville dans les bras de la société du spectacle, attractive aux investisseurs, par la privatisation de l’espace public, le non-débat constant avec les acteurs locaux, un trafic encore plus monstrueux, et de plus en plus de gens en désaccord avec chacun mais encore plus avec la politique bruxelloise... Une souffle nouveau, un bref moment d’air frais pourrait nous sortir de là, donc amis Bruxellois, politiciens donnez-nous cette Maison du Peuple à la Bourse.  Sinon on la prendra!",/post/784,2017-01-06T13:52:23.000Z,2017-01-06T13:52:23.000Z,784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,751,1356 9743,v1.0,,"Ce texte est une pastiche qui n'a jamais été publié suite au faite que le jour de publication était le jour des attentat en France. J'ai rencontré Yannick qui m'a proposé de partager ce texte ici, car comme d'autre idée la réappropriation de l'espace commun a comme bénéfice des gens plus sain d'esprit dans la ville. Voici notre proposition:  Une nouvelle Maison du Peuple! Aujourd’hui est un jour historique pour Bruxelles. Après de longs mois d’incertitude, le conseil communal à enfin tranché: le Palais de la Bourse deviendra le lieu commun de tous les bruxellois. Ils ont à nouveau une Maison du Peuple! Ce temple architectural est évidemment d’abord un choix symbolique. Après y avoir accepté la très controversée exposition Behind The Numbers glorifiant le néo-liberalisme, la Ville s’est rendue compte qu’il fallait donner une autre destination à cet endroit que celle de pure spéculation commerciale et d'activité touristique. En transformant une partie de la Bourse en Maison du Peuple elle redonne une place aux Bruxellois au cœur du centre historique! Donnez la ville aux habitants, et tout le monde s’en portera mieux On ne comptait plus le nombre d’actions contre les plans de la Ville: plates-formes citoyennes, regroupements de commerçants, actions ludiques diverses... Qui ne se souvient du banc de 30 m déposé au milieu de la Grand place, ou des centaines de gens pique-niquant place de la Bourse, de l'action de revendication des escaliers de la Bourse comme tribune libre d'expression politique lors du KunstenFestivaldesarts? L’espace public était devenu un haut lieu de débat, mais paradoxalement ne recevait pas d’endroit adéquat pour le mener (une Agora). La participation ne remuait que du vent, les riverains ne se sentaient pas entendus. La ville était taillée sur mesure pour les eurocrates, les touristes Chinois, avec commerces ouverts le dimanche, tandis que le Bruxellois devait se contenter d’une ville certes prestigieuse, mais sans lieu où il fait bon vivre, une ville d'expériences individuelles juxtaposées, atomisées, sans liens. Le Beer Tempel projeté dans le Palais de la Bourse aura une entrée par l’arrière, et c'est très bien ainsi. Mais sans occuper tout l'espace, il comprendra une nouvelle Maison du Peuple, où chacun pourrait débattre de ce qui se passe dans la ville, où les initiatives bottom-up pourront croître, de nouvelles idées pour une ville meilleure surgir. Il importe de faire de ce lieu symbolique qu'est la Bourse un espace de libre débat, une Agora. Il s'agit de rendre la ville aux habitants pour que tout le monde en profite, pour que l’habitant s’y sente bien. Alors le touriste, le commerçant et tout les autres s'y sentiront bien aussi. La Ville espère avec cette Maison du Peuple calmer les tensions palpables par le biais d’une communication plus ouverte: un endroit de rencontre et d’écoute sera ainsi aménagé dans le bâtiment. En revitalisant de cette façon la Bourse, en lui donnant une échelle humaine, la Ville aide à fabriquer le tissu social des prochaines décennies. Bien sûr, le touriste y aura sa place, car la Maison du peuple sera ouverte a tous. Mais nous ne voulons pas que la centralité habitée soit confisquée par une vitrine à touristes. A la Maison du Peuple, les touristes pourraient rencontrer des Bruxellois, trouver des bons plans pour une visite de Bruxelles vue par ses habitants, trouver le plaisir culturel de ville plus qu'une consommation grégaire. Utopie et Réalité? Et maintenant vient la chute: on est encore bien loin de cette possible utopie à Bruxelles et c’est bien dommage. On dirait que la peur panique du désordre social jette la Ville dans les bras de la société du spectacle, attractive aux investisseurs, par la privatisation de l’espace public, le non-débat constant avec les acteurs locaux, un trafic encore plus monstrueux, et de plus en plus de gens en désaccord avec chacun mais encore plus avec la politique bruxelloise... Une souffle nouveau, un bref moment d’air frais pourrait nous sortir de là, donc amis Bruxellois, politiciens donnez-nous cette Maison du Peuple à la Bourse.  Sinon on la prendra!",/post/784,2017-01-06T13:52:03.000Z,2017-01-06T13:52:03.000Z,784,3323,AnnotatorStore::TextAnnotation,,,,,,,,,751,1395 7024,v1.0,,"usual do-ocracy judo: ""Ah, you're right. How about you set the whole group up with a tool that everyone, including you, can live with? We are happy to shift, if you put in the work yourself!"". But this is a group of advanced doers, hacker ethics and hacker skills. It does not always work.",/post/18826,2017-01-06T13:51:35.000Z,2017-01-06T13:51:35.000Z,18826,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,736 8417,v1.0,,I really enjoyed reading your piece on rules of human-to-human interaction. I love the idea of the open source do-ocracy and the comparison between the rule and Darwin's laws.,/post/18649,2017-01-06T13:50:47.000Z,2017-01-06T13:50:47.000Z,18649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1110 7653,v1.0,,"@Alberto, totally agree that there must be ""initial innovators"" who take responsibility for cultivating said culture. By naturally, I just meant that the desire for change would (hopefully) come from the grassroots level, from the bottom up, rather than the usual attempts of governments to create change from the top down without any real public consultation.",/post/18649,2017-01-06T13:50:42.000Z,2017-01-06T13:50:42.000Z,18649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,910 8416,v1.0,,"ut I think it's the work that really matters, that really makes the difference. I have even been doing some work about designing ""rules"" for healthy, constructive human-to-human interaction. I call it Protocol, and it emerged in the context of the unMonastery prototype. If you are interested, here it is: https://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for",/post/18271,2017-01-06T13:50:21.000Z,2017-01-06T13:50:21.000Z,18271,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1110 5710,v1.0,,"I think you are right to point out that it's not so much the tech/system/structure, but the spirit that animates it that is most important.  As such, our focus is on personal and community empowerment, through cultivating confidence and critical thought within people. The hope is that the majority of people are good natured and society will begin to balance itself naturally. The tech already being in place and widely distributed to speed up the process.",/post/17091,2017-01-06T13:49:52.000Z,2017-01-06T13:49:52.000Z,17091,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,361 9366,v1.0,,"I think you are right to point out that it's not so much the tech/system/structure, but the spirit that animates it that is most important.  As such, our focus is on personal and community empowerment, through cultivating confidence and critical thought within people. The hope is that the majority of people are good natured and society will begin to balance itself naturally. The tech already being in place and widely distributed to speed up the process.",/post/17091,2017-01-06T13:49:10.000Z,2017-01-06T13:49:10.000Z,17091,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1297 7062,v1.0,,"I am quite passionate about the idea of electronic democracy (well, actually I know more about electronically facilitated government, or even governance). I personally ran some government projects that used social software, and even wrote a book about this stuff. In fact, Edgeryders itself was born as one of those projects!",/post/14196,2017-01-06T13:48:27.000Z,2017-01-06T13:48:27.000Z,14196,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,750 10588,v1.0,,"I am quite passionate about the idea of electronic democracy (well, actually I know more about electronically facilitated government, or even governance). I personally ran some government projects that used social software, and even wrote a book about this stuff. In fact, Edgeryders itself was born as one of those projects!",/post/14196,2017-01-06T13:48:13.000Z,2017-01-06T13:48:13.000Z,14196,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1588 9365,v1.0,,"The main takeaway from my experience of several years is this: it's not about the tech. The tech is important, of course, but it's the culture that the community builds around using the tech that drives the process. One of the most remarkable guys who hangs out Edgeryders, @johncoate , used to work for The WELL, the world's very first online community that was intentionally designed as such. He sent me a screenshot of the opening screen:",/post/14196,2017-01-06T13:48:00.000Z,2017-01-06T13:48:00.000Z,14196,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1297 6010,v1.0,,"In our society convenience is often considered to be king. If we make it as easier for people to educate themselves, develop well-informed opinions and give them a means of expressing those opinions, this will lead to increase in confidence, and a desire to participate in the democratic process.",/post/558,2017-01-06T13:47:23.000Z,2017-01-06T13:47:23.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,410 6009,v1.0,,"Is the liquid democracy application up somewhere, or have you tested it? I think you're spot on to assume people will only use new democratic tools if they are convenient. I believe this to be true even for those already educated in civic participation, and more broadly this also stands for engagement with most technologies - especially given the broad offer.",/post/6848,2017-01-06T13:47:00.000Z,2017-01-06T13:47:00.000Z,6848,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,410 10587,v1.0,,"The software development is in progress, but not yet ready to test. I will keep you updated though and maybe you can tell me what you think?",/post/10763,2017-01-06T13:46:47.000Z,2017-01-06T13:46:47.000Z,10763,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1588 10535,v1.0,,"While it would be great if we could release the direct democracy software and everything would sort itself, we are not banking on it. We realise that people can be skeptical of any kind of change and also reluctant to accept any more responsibility than they already have. So, as a grassroots organisation first and foremost, we hope to use the above social enterprises to provide working alternative models on the ground in our communities to show them that there are better and fairer ways of doing things. We believe that through social enterprises like the ones above, which are scaleable and replicable, we can work with and change the systems that exist from within. “Hack the system”, as they say. I’ve recently attended An Áit Eile’s pre-unMonastery event in Cregg Castle and see even more opportunities for positive change and connections between the many initiatives in Galway and beyond.",/post/558,2017-01-06T13:46:30.000Z,2017-01-06T13:46:30.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1572 10586,v1.0,,"While it would be great if we could release the direct democracy software and everything would sort itself, we are not banking on it. We realise that people can be skeptical of any kind of change and also reluctant to accept any more responsibility than they already have. So, as a grassroots organisation first and foremost, we hope to use the above social enterprises to provide working alternative models on the ground in our communities to show them that there are better and fairer ways of doing things. We believe that through social enterprises like the ones above, which are scaleable and replicable, we can work with and change the systems that exist from within. “Hack the system”, as they say. I’ve recently attended An Áit Eile’s pre-unMonastery event in Cregg Castle and see even more opportunities for positive change and connections between the many initiatives in Galway and beyond.",/post/558,2017-01-06T13:46:21.000Z,2017-01-06T13:46:21.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1588 10585,v1.0,,"One project we are currently working on in this regard is direct/liquid democracy software that will act as a platform for debating, voting and also as a resource for relevant information and simplified summaries of existing and proposed legislation. The plan is to spread the application nationwide in an open-source manner and generate enough interest and demand from the public that the government have no choice but to adopt it, or an improved form, voted on by the public. In our society convenience is often considered to be king. If we make it as easier for people to educate themselves, develop well-informed opinions and give them a means of expressing those opinions, this will lead to increase in confidence, and a desire to participate in the democratic process.",/post/558,2017-01-06T13:46:06.000Z,2017-01-06T13:46:06.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,1588 6941,v1.0,,"One project we are currently working on in this regard is direct/liquid democracy software that will act as a platform for debating, voting and also as a resource for relevant information and simplified summaries of existing and proposed legislation. The plan is to spread the application nationwide in an open-source manner and generate enough interest and demand from the public that the government have no choice but to adopt it, or an improved form, voted on by the public. In our society convenience is often considered to be king. If we make it as easier for people to educate themselves, develop well-informed opinions and give them a means of expressing those opinions, this will lead to increase in confidence, and a desire to participate in the democratic process.",/post/558,2017-01-06T13:45:54.000Z,2017-01-06T13:45:54.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,723 7114,v1.0,,"I’m fairly new to this scene, having only developed a ""social conscience"" relatively recently. Though my formal adult education focused on History and Irish language, the majority of my experience and skill comes from a background of entrepreneurship and business management.   I'm 25 now and I feel the time to take responsibility and become an active citizen is long overdue. However, unfortunately, this is not the mindset of the many Irish citizens at the moment. Apart from a select few controversial issues, there seems to be a general sense of apathy towards taking active roles in addressing our societal problems and creating a better future for Ireland. As far as I can see, this is mainly due to a combination of: - distractions of modern life - inadequate political and sociological education, and a lack of cultivation of critical thought in our school system - a feeling of disenfranchisement due to a series of corrupt and/or incapable governments - lack of easy-to-use infrastructure for the public to communicate their opinions and desires to government and have those opinions and desires reflected in legislation.   While the distractions of modern life may live on, the group I work with ""Grassroots Ireland"" looks to tackle the other three issues. We are a grassroots, community-led movement that aims to empower people to become active citizens through providing simplified education opportunities and resources on useful topics such as politics, sociology, law and economics, so that people can understand and begin to shape the systems that govern their lives. This, along with the promotion of critical thought and positive mental and physical health, we believe, will naturally breed community development and social progress.   One project we are currently working on in this regard is direct/liquid democracy software that will act as a platform for debating, voting and also as a resource for relevant information and simplified summaries of existing and proposed legislation. The plan is to spread the application nationwide in an open-source manner and generate enough interest and demand from the public that the government have no choice but to adopt it, or an improved form, voted on by the public. In our society convenience is often considered to be king. If we make it as easier for people to educate themselves, develop well-informed opinions and give them a means of expressing those opinions, this will lead to increase in confidence, and a desire to participate in the democratic process.   Some other projects we are working on at the moment are: - A community hub that will act as a café and safe physical space to build a community and active citizenry around, for educational talks, wellness classes of all kinds, meetings of community groups and just somewhere to encourage the discussion of important issues - A community garden and vegetable growing co-op. - A renewable energy co-op   While it would be great if we could release the direct democracy software and everything would sort itself, we are not banking on it. We realise that people can be skeptical of any kind of change and also reluctant to accept any more responsibility than they already have. So, as a grassroots organisation first and foremost, we hope to use the above social enterprises to provide working alternative models on the ground in our communities to show them that there are better and fairer ways of doing things. We believe that through social enterprises like the ones above, which are scaleable and replicable, we can work with and change the systems that exist from within. “Hack the system”, as they say. I’ve recently attended An Áit Eile’s pre-unMonastery event in Cregg Castle and see even more opportunities for positive change and connections between the many initiatives in Galway and beyond.",/post/558,2017-01-06T13:45:33.000Z,2017-01-06T13:45:33.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,766 4553,v1.0,,"We are a grassroots, community-led movement that aims to empower people to become active citizens through providing simplified education opportunities and resources on useful topics such as politics, sociology, law and economics, so that people can understand and begin to shape the systems that govern their lives. This, along with the promotion of critical thought and positive mental and physical health, we believe, will naturally breed community development and social progress.   One project we are currently working on in this regard is direct/liquid democracy software that will act as a platform for debating, voting and also as a resource for relevant information and simplified summaries of existing and proposed legislation. The plan is to spread the application nationwide in an open-source manner and generate enough interest and demand from the public that the government have no choice but to adopt it, or an improved form, voted on by the public. In our society convenience is often considered to be king. If we make it as easier for people to educate themselves, develop well-informed opinions and give them a means of expressing those opinions, this will lead to increase in confidence, and a desire to participate in the democratic process.   Some other projects we are working on at the moment are: - A community hub that will act as a café and safe physical space to build a community and active citizenry around, for educational talks, wellness classes of all kinds, meetings of community groups and just somewhere to encourage the discussion of important issues - A community garden and vegetable growing co-op. - A renewable energy co-op   While it would be great if we could release the direct democracy software and everything would sort itself, we are not banking on it. We realise that people can be skeptical of any kind of change and also reluctant to accept any more responsibility than they already have. So, as a grassroots organisation first and foremost, we hope to use the above social enterprises to provide working alternative models on the ground in our communities to show them that there are better and fairer ways of doing things. We believe that through social enterprises like the ones above, which are scaleable and replicable, we can work with and change the systems that exist from within. “Hack the system”, as they say. I’ve recently attended An Áit Eile’s pre-unMonastery event in Cregg Castle and see even more opportunities for positive change and connections between the many initiatives in Galway and beyond.",/post/558,2017-01-06T13:45:13.000Z,2017-01-06T13:45:13.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,18 5468,v1.0,,"I’m fairly new to this scene, having only developed a ""social conscience"" relatively recently. Though my formal adult education focused on History and Irish language, the majority of my experience and skill comes from a background of entrepreneurship and business management.   I'm 25 now and I feel the time to take responsibility and become an active citizen is long overdue. However, unfortunately, this is not the mindset of the many Irish citizens at the moment. Apart from a select few controversial issues, there seems to be a general sense of apathy towards taking active roles in addressing our societal problems and creating a better future for Ireland. As far as I can see, this is mainly due to a combination of: - distractions of modern life - inadequate political and sociological education, and a lack of cultivation of critical thought in our school system - a feeling of disenfranchisement due to a series of corrupt and/or incapable governments - lack of easy-to-use infrastructure for the public to communicate their opinions and desires to government and have those opinions and desires reflected in legislation.   While the distractions of modern life may live on, the group I work with ""Grassroots Ireland"" looks to tackle the other three issues. We are a grassroots, community-led movement that aims to empower people to become active citizens through providing simplified education opportunities and resources on useful topics such as politics, sociology, law and economics, so that people can understand and begin to shape the systems that govern their lives. This, along with the promotion of critical thought and positive mental and physical health, we believe, will naturally breed community development and social progress.   One project we are currently working on in this regard is direct/liquid democracy software that will act as a platform for debating, voting and also as a resource for relevant information and simplified summaries of existing and proposed legislation. The plan is to spread the application nationwide in an open-source manner and generate enough interest and demand from the public that the government have no choice but to adopt it, or an improved form, voted on by the public. In our society convenience is often considered to be king. If we make it as easier for people to educate themselves, develop well-informed opinions and give them a means of expressing those opinions, this will lead to increase in confidence, and a desire to participate in the democratic process.   Some other projects we are working on at the moment are: - A community hub that will act as a café and safe physical space to build a community and active citizenry around, for educational talks, wellness classes of all kinds, meetings of community groups and just somewhere to encourage the discussion of important issues - A community garden and vegetable growing co-op. - A renewable energy co-op   While it would be great if we could release the direct democracy software and everything would sort itself, we are not banking on it. We realise that people can be skeptical of any kind of change and also reluctant to accept any more responsibility than they already have. So, as a grassroots organisation first and foremost, we hope to use the above social enterprises to provide working alternative models on the ground in our communities to show them that there are better and fairer ways of doing things. We believe that through social enterprises like the ones above, which are scaleable and replicable, we can work with and change the systems that exist from within. “Hack the system”, as they say. I’ve recently attended An Áit Eile’s pre-unMonastery event in Cregg Castle and see even more opportunities for positive change and connections between the many initiatives in Galway and beyond.",/post/558,2017-01-06T13:44:59.000Z,2017-01-06T13:44:59.000Z,558,3323,AnnotatorStore::TextAnnotation,,,,,,,,,525,313 11455,v1.0,,"Well there are literature in abundance. I once worked with Ruth https://www.kcl.ac.uk/prospectus/staff/index/id/779/alpha//header_search/+/from/searchall  And have some vague memories about why the thoratic region may be better  http://biomch-l.isbweb.org/archive/index.php/t-7395.html Also the latest siamoc 2016 conference had some interesting posters on algorithms and field data for fall detection apps that could be of inspiration. The project idea looks good and it could develop into a great alternative to actigraph? @francesco Zava why dont you harvest internal experiences from the magic group?",/post/20226,2017-01-06T13:43:41.000Z,2017-01-06T13:43:41.000Z,20226,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1847 8847,v1.0,,"Well there are literature in abundance. I once worked with Ruth https://www.kcl.ac.uk/prospectus/staff/index/id/779/alpha//header_search/+/from/searchall  And have some vague memories about why the thoratic region may be better  http://biomch-l.isbweb.org/archive/index.php/t-7395.html Also the latest siamoc 2016 conference had some interesting posters on algorithms and field data for fall detection apps that could be of inspiration. The project idea looks good and it could develop into a great alternative to actigraph? @francesco Zava why dont you harvest internal experiences from the magic group?",/post/20226,2017-01-06T13:42:50.000Z,2017-01-06T13:42:50.000Z,20226,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1172 11454,v1.0,,"I can see how calibrating the accelerometer 's sensitivity would be a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just",/post/7159,2017-01-06T13:42:29.000Z,2017-01-06T13:42:29.000Z,7159,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1847 7366,v1.0,,"I can see how calibrating the accelerometer 's sensitivity would be a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just curious.",/post/7159,2017-01-06T13:42:21.000Z,2017-01-06T13:42:21.000Z,7159,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,823 7365,v1.0,,"Greetings, so after the successful show in Makerfaire Rome, InPe has been getting ready for testing phase. In our current status our electronics and code, are working with reasonable accuracy, however, we are missing crucial data from testing phase.  We have so far only tested inPe, in very simple ways in order to change the code:  Like holding InPe and throwing it at distance, but would it mean for someone wearing InPe, to shake hands with someone else, to lean on the wall, to walk with a stick or a cane? Would this trigger false alarm? or actually untrigger the alarm when needed? These are questions that we need to answer.",/post/6068,2017-01-06T13:42:11.000Z,2017-01-06T13:42:11.000Z,6068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,823 11453,v1.0,,"yup, designing inpe as a belt accessory kind of device, is something that we investigated.  Lets see how this goes with testing.  Although, given our testing scenarios, activities like sitting down, doing to bed, would also bear risk of accuracy with the central body location.",/post/10878,2017-01-06T13:41:50.000Z,2017-01-06T13:41:50.000Z,10878,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1847 8846,v1.0,,"I can see how calibrating the accelerometer 's sensitivity would be a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just curious",/post/7159,2017-01-06T13:41:44.000Z,2017-01-06T13:41:44.000Z,7159,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1172 8035,v1.0,,"Situations ranging from daily doing basic movements such as walking, sitting down, eating, all the way to more detailed situations such as climbing a stair, or sleeping, are scenarios that we plan to test in the upcoming 2 months.   We have already published InPe’s dedicated website http://inpe.opencare.cc, and will continue to add further testing stories, updates and data as we move on.   Stay tuned. More photos will follow in future post",/post/6068,2017-01-06T13:41:32.000Z,2017-01-06T13:41:32.000Z,6068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1009 6464,v1.0,,"In the current phase, Inpe, is designed as an arm band, similar to the ones runners put around their upper arms to hold their phones.   It comes in two buttoned layers, where it is easy to see the inside components, tweak, and fix. The same items could be used on the leg too. For the next iteration, we would love to keep the same idea of making the inside as open and as accessible as possible.",/post/6068,2017-01-06T13:41:17.000Z,2017-01-06T13:41:17.000Z,6068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,485 11452,v1.0,,"n the current phase, Inpe, is designed as an arm band, similar to the ones runners put around their upper arms to hold their phones.   It comes in two buttoned layers, where it is easy to see the inside components, tweak, and fix. The same items could be used on the leg too. For the next iteration, we would love to keep the same idea of making the inside as open and as accessible as possible.",/post/6068,2017-01-06T13:41:08.000Z,2017-01-06T13:41:08.000Z,6068,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6035,1847 10503,v1.0,,"When we set out to solve a complex problem in our organisation, we start with small actions that change the context a little. Small experiments that can fail, but the lessons of which can scale big. A great example in government is a challenge this month of my own city where they will distribute 1,300,000 euros among civilian projects that aim to have a positive impact on the city. Citizen vote will account for 70% in the decision where the money goes. I don't think popularity contests are the best way to do this either, but it's a beginning and will change the playing field. Yet this is already at the interface with the public, at the policy level. Most possible small experiments I can think of would all very likely fail at another point: the government itself. The processes, people, time perception, incentive structures, ... Seperately these things are not huge problems, but together they form a problem where there are little starting points to start solving it. I'd say the most important problem for the government to solve today, is the government itself, not the policies it produces. So we need small actions in that aspect, eg. hiring a few recruiters that recognise the skills needed to implement change. And then you can sustainably keep producing good policy, even parallel while changing the internals.",/post/30318,2017-01-03T15:48:29.000Z,2017-01-03T15:48:29.000Z,30318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1562 5973,v1.0,,"Also the project of @Yannick seems very interesting and I would like to know more… could you give us more details? As we announced we launched a challenge.   Could you read it and tell us if you think it’s interesting written in this way or if you want to change something.. Every your suggestion will be precious!!!   Now we are starting to disseminate the challenge among some local partners, NGOs, associations that are working with us, but also among other local italian municipalities.   Could you help us to engage other political actors, as @Alberto suggested??",/post/29961,2017-01-03T15:47:54.000Z,2017-01-03T15:47:54.000Z,29961,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,396 9513,v1.0,,"in my opinion you have touched a key point. When you work in a public administration the relation between technicians and politicians are crucial, in particular if you want to do something, if you want really realize new and innovative projects. In many situations for example the fact that a politician is engaged in a project became the only possibility to realize the projects.   In many situations I saw terrible fights ‘politicians versus technicians’, but also collaborative approach, with a sharing of knowledge, working together for the same objectives.   Also the project of @Yannick seems very interesting and I would like to know more… could you give us more details? As we announced we launched a challenge.   Could you read it and tell us if you think it’s interesting written in this way or if you want to change something.. Every your suggestion will be precious!!!   Now we are starting to disseminate the challenge among some local partners, NGOs, associations that are working with us, but also among other local italian municipalities.   Could you help us to engage other political actors, as @Alberto suggested??   It could be really great and potentially of huge impact… what do you think??",/post/29961,2017-01-03T15:47:45.000Z,2017-01-03T15:47:45.000Z,29961,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1331 4975,v1.0,,"in my opinion you have touched a key point. When you work in a public administration the relation between technicians and politicians are crucial, in particular if you want to do something, if you want really realize new and innovative projects. In many situations for example the fact that a politician is engaged in a project became the only possibility to realize the projects.",/post/29961,2017-01-03T15:47:33.000Z,2017-01-03T15:47:33.000Z,29961,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,126 5617,v1.0,,", “A government platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.”",/post/29961,2017-01-03T15:47:26.000Z,2017-01-03T15:47:26.000Z,29961,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,354 9214,v1.0,,"But a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don't have the proposal from politics: let's just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.",/post/29073,2017-01-03T15:46:47.000Z,2017-01-03T15:46:47.000Z,29073,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1269 7634,v1.0,,"My own experience: I contacted the city anyway a few months back. I mailed with the responsible politician and she directed me to the civil servant at the bottom of the 'food chain'. We met, she was impressed by our project and clearly wanted to help. She promised me to take the message back up the food chain, but assured me it would take a while, and keep me updated along the way. The department got restructured, so this was slowing things down. Fast forward 2 months, no news, and our project is already in a different stage. Time flows differently for the government, I hope people age slower as a perk for working there. A government platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.",/post/28966,2017-01-03T15:46:29.000Z,2017-01-03T15:46:29.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,906 7303,v1.0,,"Winnie i know what you are discribing, with my years of activism i had mostly the same kind of experience  with policy makers in Brussels. Getting funds is tricky because you need to behave a certain way because 'they' have the power in hand, you have to calculate who is going to get the portefieulle in next couple of years and so on.  But a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don't have the proposal from politics: let's just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.  Hope i could contribute to this nice debate;",/post/29073,2017-01-03T15:46:19.000Z,2017-01-03T15:46:19.000Z,29073,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,805 11522,v1.0,,"Winnie i know what you are discribing, with my years of activism i had mostly the same kind of experience  with policy makers in Brussels. Getting funds is tricky because you need to behave a certain way because 'they' have the power in hand, you have to calculate who is going to get the portefieulle in next couple of years and so on.  But a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don't have the proposal from politics: let's just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.  Hope i could contribute to this nice debate;",/post/29073,2017-01-03T15:43:14.000Z,2017-01-03T15:43:14.000Z,29073,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1863 9524,v1.0,,A government platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.,/post/28966,2017-01-03T15:43:04.000Z,2017-01-03T15:43:04.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1333 11521,v1.0,,"My own experience: I contacted the city anyway a few months back. I mailed with the responsible politician and she directed me to the civil servant at the bottom of the 'food chain'. We met, she was impressed by our project and clearly wanted to help. She promised me to take the message back up the food chain, but assured me it would take a while, and keep me updated along the way. The department got restructured, so this was slowing things down. Fast forward 2 months, no news, and our project is already in a different stage. Time flows differently for the government, I hope people age slower as a perk for working there.",/post/28966,2017-01-03T15:42:40.000Z,2017-01-03T15:42:40.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1863 9522,v1.0,,"Maybe this is how at least a little good can come from it. Our city has an image of being progressive and there are lots of projects that prove this. In the end however, politicians mainly want to get re-elected or get a better position next term. This means they need to live up to public expectations and produce impact in the short term. The fact that people here expect politicians to be more progressive, means the politician's output will have to be more progressive in order to make a career. As a result we have a pretty awesome city. However, it's a sugary coating that hides the broken way in which we are governed.",/post/28966,2017-01-03T15:42:22.000Z,2017-01-03T15:42:22.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1332 7302,v1.0,,"I've been to a few city organised or backed 'workshops' meant to shape the future of the city. The workshops all lack the same: citizens present. Generally, they are organised during working hours and the only participants are civil servants and companies/entrepreneurs that have an economic stake in the issue. The details of how these workshops go, are pathetic. And it's packaged and sold to the citizens as 'co-creation'. Last one was most striking. A workshop on urban planning, commissioned by the city and organised by the same organisations that were involved in an ongoing massive real estate scandal. The workshop itself featured only entrepreneurs and project developers, talking about matters that affect everyone. Already at this basic level, the city fails. How can anything good come from such a basis?",/post/28966,2017-01-03T15:41:57.000Z,2017-01-03T15:41:57.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,805 8217,v1.0,,"I've been to a few city organised or backed 'workshops' meant to shape the future of the city. The workshops all lack the same: citizens present. Generally, they are organised during working hours and the only participants are civil servants and companies/entrepreneurs that have an economic stake in the issue. The details of how these workshops go, are pathetic. And it's packaged and sold to the citizens as 'co-creation'. Last one was most striking. A workshop on urban planning, commissioned by the city and organised by the same organisations that were involved in an ongoing massive real estate scandal. The workshop itself featured only entrepreneurs and project developers, talking about matters that affect everyone. Already at this basic level, the city fails. How can anything good come from such a basis?",/post/28966,2017-01-03T15:41:43.000Z,2017-01-03T15:41:43.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1059 5616,v1.0,,"We’are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.",/post/27810,2017-01-03T15:41:08.000Z,2017-01-03T15:41:08.000Z,27810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,354 5615,v1.0,,"""We’are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.""",/post/28966,2017-01-03T15:40:56.000Z,2017-01-03T15:40:56.000Z,28966,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,354 9099,v1.0,,"In my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process.",/post/27810,2017-01-03T15:40:23.000Z,2017-01-03T15:40:23.000Z,27810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1255 6038,v1.0,,"So the problem of scalability. We are seeing in our City and in Edgeryders, a lot of interesting care projects, community driven, but the idea is that the role for Government is to guarantee the scalability. What is the scalability? In my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process. So, in our case, the Local Administration has to became an observator, a facilitator of these initiatives, helping them to evaluate their own effectiveness and impact. In our experiences we’re observing many interesting care projects that are developed by communities, using new approaches to care, involving new actors (makers, hackers..) These experiences are helping us to change also our services directly, to manage our services in new ways, trying to recompose the fragmented network of Care. I think that Government could be not an obstacle, or a part of the problem, risk that @WinniePoncelet reported, but  (hopefully!!) a part of the solution: if tha PA can change its perspective and tries  not to be THE actor, the only care provider really allowed to do something, but one of the actors. Also, maybe, to guarantee not to fall to a neoliberalism way to solve problems..   But in which role? We’are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.   But it’s not simple, and of course we’re talking in general.   We want to open a challenge about this topic because we would like to stimulate a debate and also find concrete examples about the role that in each project could/should be done by a Public Administration (in particular Municipalities). We‘ll share also some stories of our administration that in our opinion are going in this direction, to rethink traditional services in the new context of Care. This conversation could maybe became also a way to create a path for discussing how civil servants could continue to believe to do a “real work” and not just a prescribed, traditional work, @PhilippeDrouillon. What do you think?",/post/27810,2017-01-03T15:40:11.000Z,2017-01-03T15:40:11.000Z,27810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,414 10227,v1.0,,"So the problem of scalability. We are seeing in our City and in Edgeryders, a lot of interesting care projects, community driven, but the idea is that the role for Government is to guarantee the scalability. What is the scalability? In my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process. So, in our case, the Local Administration has to became an observator, a facilitator of these initiatives, helping them to evaluate their own effectiveness and impact. In our experiences we’re observing many interesting care projects that are developed by communities, using new approaches to care, involving new actors (makers, hackers..) These experiences are helping us to change also our services directly, to manage our services in new ways, trying to recompose the fragmented network of Care. I think that Government could be not an obstacle, or a part of the problem, risk that @WinniePoncelet reported, but  (hopefully!!) a part of the solution: if tha PA can change its perspective and tries  not to be THE actor, the only care provider really allowed to do something, but one of the actors. Also, maybe, to guarantee not to fall to a neoliberalism way to solve problems..   But in which role? We’are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.   But it’s not simple, and of course we’re talking in general.   We want to open a challenge about this topic because we would like to stimulate a debate and also find concrete examples about the role that in each project could/should be done by a Public Administration (in particular Municipalities). We‘ll share also some stories of our administration that in our opinion are going in this direction, to rethink traditional services in the new context of Care. This conversation could maybe became also a way to create a path for discussing how civil servants could continue to believe to do a “real work” and not just a prescribed, traditional work, @PhilippeDrouillon. What do you think?",/post/27810,2017-01-03T15:39:56.000Z,2017-01-03T15:39:56.000Z,27810,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1487 4786,v1.0,,"Indeed distributed decision making processes (cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them), the autonomy of each team and individual in his/her area of competence and responsibility (where each person is sometimes leader and sometimes follower) combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones to move forward in the right direction.",/post/24331,2017-01-03T15:39:36.000Z,2017-01-03T15:39:36.000Z,24331,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,80 5549,v1.0,,"Indeed distributed decision making processes (cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them), the autonomy of each team and individual in his/her area of competence and responsibility (where each person is sometimes leader and sometimes follower) combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones to move forward in the right direction.",/post/24331,2017-01-03T15:39:27.000Z,2017-01-03T15:39:27.000Z,24331,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,332 10484,v1.0,,"ndeed distributed decision making processes (cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them), the autonomy of each team and individual in his/her area of competence and responsibility (where each person is sometimes leader and sometimes follower) combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones to move forward in the right direction.",/post/24331,2017-01-03T15:39:17.000Z,2017-01-03T15:39:17.000Z,24331,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1557 9814,v1.0,,"What is meant by heath at work ? Do we speak about fitness, yoga and mindfulness ? If so, it is just an approach to relieve people and allow them to go on in an unsatisfactory environment. If it comes on top of the characteristics I mentioned hereabove, it will be the ice on the cake.",/post/24331,2017-01-03T15:38:53.000Z,2017-01-03T15:38:53.000Z,24331,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1421 7247,v1.0,,"@Noemi, My two cents about your questions. The ethical suffering can occur in any organization where it is required to do things that are too far from what actual work should look like in the eyes of the concerned people who are passionated about what they do. I've observed such situations in not for profit AND in for profit organizations even though the purpose and the values behind the organization were sensefull for people. It is about the meaning of the work to be done and the way it is asked.",/post/24331,2017-01-03T15:38:32.000Z,2017-01-03T15:38:32.000Z,24331,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,791 7246,v1.0,,"One main finding made by field researchers about burn out is that one of the main factors that leads people to burn out is ""ethical suffering"" (litteral translation of the original expression in French ""souffrance éthique"") and",/post/15056,2017-01-03T15:38:18.000Z,2017-01-03T15:38:18.000Z,15056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,791 4894,v1.0,,"Bottom-up initiatives follow the same reasoning to a large extent. Government is one of the obstacles to be overcome, because they're perceived as ingerently part of the problem, almost an external factor that is unchangeable. But they have to do it with less means, less people and less power (leading to the burnout problem). Additionally, the whole neo-liberal side will see these projects and initiators as 'one of them', because of the shared 'entrepreneurial activism'. For an outsider, the difference between both fades.",/post/20946,2017-01-03T15:37:54.000Z,2017-01-03T15:37:54.000Z,20946,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,111 8371,v1.0,,"The ideal of May '68 has become ingrained in the way the mainstream thinks. The loss of faith in government and institutions has become part of a normal way of thinking. Management and corporations have adopted it in a way: they want to get rid of the old and slow processes, they want radical disruption asap and would like as few interventions by government as possible. Government is mainly seen as an obstacle at this point.",/post/20946,2017-01-03T15:37:43.000Z,2017-01-03T15:37:43.000Z,20946,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1099 9213,v1.0,,"The ideal of May '68 has become ingrained in the way the mainstream thinks. The loss of faith in government and institutions has become part of a normal way of thinking. Management and corporations have adopted it in a way: they want to get rid of the old and slow processes, they want radical disruption asap and would like as few interventions by government as possible. Government is mainly seen as an obstacle at this point.",/post/20946,2017-01-03T15:37:34.000Z,2017-01-03T15:37:34.000Z,20946,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1269 10926,v1.0,,Most 'activism' today is done by do-ers. Bottom-up initiatives that took it upon themselves to solve problems that governments should take care of. They noted that this shift to just getting your hands dirty and not wait for government action is actually quite a neo-liberal way of solving problems.,/post/20946,2017-01-03T15:37:17.000Z,2017-01-03T15:37:17.000Z,20946,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1685 10924,v1.0,,"By new ways of giving back the floor to doers, do you mean new decision making models? Or more tolerance for the doers in an organisation run in traditional way, a way of compromising?",/post/17774,2017-01-03T15:36:48.000Z,2017-01-03T15:36:48.000Z,17774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1684 10925,v1.0,,"A large amount of professionals who get burnt out couldn't live anymore with the contradiction between what is asked and what should really be done. And I don't speak about ethics from ideological point of view. Just the tension between what is asked and what true professionals believe should be done (eg : social workers in big institutions, engineers in industrial companies, nurses in hospitals,...). The fact that there is no place anymore for true dialogue, exchanges and co-construction around their own practices worsened the situation.",/post/15056,2017-01-03T15:36:37.000Z,2017-01-03T15:36:37.000Z,15056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1685 7252,v1.0,,And this is without mentioning the ethical conflicts that workers can have between their own values and those shown withing the organizations they work for. And this is another (big) story.,/post/15056,2017-01-03T15:36:16.000Z,2017-01-03T15:36:16.000Z,15056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,792 7971,v1.0,,"So bringing ""real' work in the center of the operations by giving back the floor to those who act is a way that is currently implemented in a few organizations to significantly reduce the risk of burn out. By organizations, I mean not-for-profit, for-profit or public organizations. None of them is immune to this illness...especially the not-for-profit ones like NGOs.",/post/15056,2017-01-03T15:36:06.000Z,2017-01-03T15:36:06.000Z,15056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,986 5000,v1.0,,"One main finding made by field researchers about burn out is that one of the main factors that leads people to burn out is ""ethical suffering"" (litteral translation of the original expression in French ""souffrance éthique"") and this before workload. What does that mean ? Stress often comes from a conflict of values between prescribed work and ""real"" work, ""real"" in the sense of what really has to be done in a correct way. A large amount of professionals who get burnt out couldn't live anymore with the contradiction between what is asked and what should really be done. And I don't speak about ethics from ideological point of view. Just the tension between what is asked and what true professionals believe should be done (eg : social workers in big institutions, engineers in industrial companies, nurses in hospitals,...). The fact that there is no place anymore for true dialogue, exchanges and co-construction around their own practices worsened the situation. So bringing ""real' work in the center of the operations by giving back the floor to those who act is a way that is currently implemented in a few organizations to significantly reduce the risk of burn out. By organizations, I mean not-for-profit, for-profit or public organizations. None of them is immune to this illness...especially the not-for-profit ones like NGOs. And this is without mentioning the ethical conflicts that workers can have between their own values and those shown withing the organizations they work for. And this is another (big) story.",/post/15056,2017-01-03T15:34:41.000Z,2017-01-03T15:34:41.000Z,15056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,130 10921,v1.0,,"I'm grateful to Ginette for her opinions and super curious to see if she has experienced victories too in her work, even small ones. In a conversation I had the other day with a friend well versed in NGO work and having quit, she mentioned something suprising to me: that for her it is the proper third sector having a chance of changing things, not the bottom up grassroots. So you see, all sorts of distinctions are being made, but I recognize the bottom line - the need for structured processes, paths to access resources, influence etc.",/post/7853,2017-01-03T15:34:13.000Z,2017-01-03T15:34:13.000Z,7853,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1683 10226,v1.0,,"I explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn’t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government.",/post/726,2017-01-03T15:33:45.000Z,2017-01-03T15:33:45.000Z,726,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,1487 5041,v1.0,,"or global movements. First when I asked her to give a short opinion about the bottom up imitatives organizing care related projects she responded: I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective. I was really surprised by this ballsy argument so I invited over for a drink on the hottest day of the year (35°C!) and we had a tomato juice and a great conversation. We dived immediately into the subject. Care is a government issue for  her that isn’t at all taken care (pun intended) of. Why does the government give as much power to the pharmaceutical industry for example? Why can Nestlé become the number one partner of a government organization called ‘Kind En Gezin’ that helps parents of new-born through the first year? For her our role as activist and change makers is to put pressure on the government to make change on a big scale possible. I explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn’t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government. But Ginette isn’t the person to only be sceptic and give critic towards ideas. She likes finding solutions. So before I explain her the principle of the workshop we talk a bit further on the big problems ahead. For her everything can be put into three categories: poverty, elderly care and work ethics. Poverty makes it impossible to take care of each other; it is a vicious circle that is difficult to get out of. Even with the best projects, people without money will not get towards it. Elderly care is also a big problem in European countries, care became profit and it is all about efficiency. Only a rearrangement about how we look at elderly care can get us out of this problem. Finally there is the way we look at work and how it makes us sick: burn out is one of the biggest epidemics of this century and involves pulls the whole family downwards. Not one political party is discussing these problems on a larger scale and that is problematic for her. The resources are there, but the unwillingness of changing is bigger. Politicians aren’t trained to be vectors of change; they are the ones that bring continuity. It’s the civilians that need to push the change and politics to implement it. Dark times ahead? Maybe, but this discussion made me think more clearly about the workshop and what we need to take notice of when bringing care-project together. Like within the makers movement it is important to find a balance between corporate and counter culture partners, within care it is also important to have an open approach towards policy makers. Yes we are in a ruff path at the moment, and trust is at an all time low towards politicians. But therefor it is the moment to open our arms to welcome them towards new ways of organizing care. We need much more and easier collaboration between projects. We need especially that knowledge of the government to tackle complex problems with multiple partners. We need to take them by the hand and show them what there is possible within an open care system The discussion I want to open towards the community is: Is involving the policy makers important, or will it be obsolete in the future? What kind of dialogue can care taking projects take towards it?",/post/726,2017-01-03T15:33:12.000Z,2017-01-03T15:33:12.000Z,726,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,140 7647,v1.0,,"First when I asked her to give a short opinion about the bottom up imitatives organizing care related projects she responded: I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective. I was really surprised by this ballsy argument so I invited over for a drink on the hottest day of the year (35°C!) and we had a tomato juice and a great conversation. We dived immediately into the subject. Care is a government issue for  her that isn’t at all taken care (pun intended) of. Why does the government give as much power to the pharmaceutical industry for example? Why can Nestlé become the number one partner of a government organization called ‘Kind En Gezin’ that helps parents of new-born through the first year? For her our role as activist and change makers is to put pressure on the government to make change on a big scale possible. I explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn’t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government. But Ginette isn’t the person to only be sceptic and give critic towards ideas. She likes finding solutions. So before I explain her the principle of the workshop we talk a bit further on the big problems ahead. For her everything can be put into three categories: poverty, elderly care and work ethics. Poverty makes it impossible to take care of each other; it is a vicious circle that is difficult to get out of. Even with the best projects, people without money will not get towards it. Elderly care is also a big problem in European countries, care became profit and it is all about efficiency. Only a rearrangement about how we look at elderly care can get us out of this problem. Finally there is the way we look at work and how it makes us sick: burn out is one of the biggest epidemics of this century and involves pulls the whole family downwards. Not one political party is discussing these problems on a larger scale and that is problematic for her. The resources are there, but the unwillingness of changing is bigger. Politicians aren’t trained to be vectors of change; they are the ones that bring continuity. It’s the civilians that need to push the change and politics to implement it. Dark times ahead? Maybe, but this discussion made me think more clearly about the workshop and what we need to take notice of when bringing care-project together. Like within the makers movement it is important to find a balance between corporate and counter culture partners, within care it is also important to have an open approach towards policy makers. Yes we are in a ruff path at the moment, and trust is at an all time low towards politicians. But therefor it is the moment to open our arms to welcome them towards new ways of organizing care. We need much more and easier collaboration between projects. We need especially that knowledge of the government to tackle complex problems with multiple partners. We need to take them by the hand and show them what there is possible within an open care system The discussion I want to open towards the community is: Is involving the policy makers important, or will it be obsolete in the future? What kind of dialogue can care taking projects take towards it?",/post/726,2017-01-03T15:33:03.000Z,2017-01-03T15:33:03.000Z,726,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,907 6037,v1.0,,"First when I asked her to give a short opinion about the bottom up imitatives organizing care related projects she responded: I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective. I was really surprised by this ballsy argument so I invited over for a drink on the hottest day of the year (35°C!) and we had a tomato juice and a great conversation. We dived immediately into the subject. Care is a government issue for  her that isn’t at all taken care (pun intended) of. Why does the government give as much power to the pharmaceutical industry for example? Why can Nestlé become the number one partner of a government organization called ‘Kind En Gezin’ that helps parents of new-born through the first year? For her our role as activist and change makers is to put pressure on the government to make change on a big scale possible. I explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn’t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government. But Ginette isn’t the person to only be sceptic and give critic towards ideas. She likes finding solutions. So before I explain her the principle of the workshop we talk a bit further on the big problems ahead. For her everything can be put into three categories: poverty, elderly care and work ethics. Poverty makes it impossible to take care of each other; it is a vicious circle that is difficult to get out of. Even with the best projects, people without money will not get towards it. Elderly care is also a big problem in European countries, care became profit and it is all about efficiency. Only a rearrangement about how we look at elderly care can get us out of this problem. Finally there is the way we look at work and how it makes us sick: burn out is one of the biggest epidemics of this century and involves pulls the whole family downwards. Not one political party is discussing these problems on a larger scale and that is problematic for her. The resources are there, but the unwillingness of changing is bigger. Politicians aren’t trained to be vectors of change; they are the ones that bring continuity. It’s the civilians that need to push the change and politics to implement it. Dark times ahead? Maybe, but this discussion made me think more clearly about the workshop and what we need to take notice of when bringing care-project together. Like within the makers movement it is important to find a balance between corporate and counter culture partners, within care it is also important to have an open approach towards policy makers. Yes we are in a ruff path at the moment, and trust is at an all time low towards politicians. But therefor it is the moment to open our arms to welcome them towards new ways of organizing care. We need much more and easier collaboration between projects. We need especially that knowledge of the government to tackle complex problems with multiple partners. We need to take them by the hand and show them what there is possible within an open care system The discussion I want to open towards the community is: Is involving the policy makers important, or will it be obsolete in the future? What kind of dialogue can care taking projects take towards it?",/post/726,2017-01-03T15:32:53.000Z,2017-01-03T15:32:53.000Z,726,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,414 5038,v1.0,,I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective.,/post/726,2017-01-03T15:32:31.000Z,2017-01-03T15:32:31.000Z,726,3323,AnnotatorStore::TextAnnotation,,,,,,,,,693,139 8643,v1.0,,"I will start from Alberto’s post last two lines:  if considered useful, I would be happy to wrote something on “Building gateways between online and offline engagement” (I am not sure to understand which activities should I coordinate but, I am sure, some explanations will follow. Here few first thoughts/feedbacks on the Alberto’s post (more will follow). Premise 1: if the Milano consortium meeting taught participants that “bringing the offline debate online is hard” and that there are at least, “two different approaches”, it means that this meeting and workshop have been successful (as a matter of fact, at least of what the workshop was concerned, its goal was exactly to trigger a conversation on this point).   Premise 2: I understand that the OpenCare research asks for promoting on-line discussions on the issue of open care and, then, measuring, representing them as graphs and discussing these results.  NB: writing OpenCare I refer to this specific research – writing open care, I intend the issue of open caring activities in general (as I did in previous posts). 1. Alberto is right saying that the two different approaches he indicates emerged in the workshop conversations.  But, in my view, these two approaches are of quite different nature, and cannot be proposed as polarized answers to the same question. In fact, in general terms, the issue of care can be the subject of a wide range of conversations: (A) some conversations aim at solving specific problems (we can call them “vertical conversations”, generating “vertical projects”); (B) other conversations aim at creating environments  where other, vertical conversations can emerge and be enhanced (we can call them “horizontal conversations”, generating “horizontal projects”). 2. In this framework, I would rephrase the two approaches emerged in the workshop, and the related questions, in this way: Approach (A) opencare issue: (A.1): how to deal with, and possibly solve, specific care-related issues in an open way (for what regards both processes and results). opencare issue: (A.2) how much of this open result-oriented activity can be done on-line and, therefore, how much measurable conversations can be generated. Approach (B) opencare issue (B.1): how to engage in useful discussions on-line people who are interested/active in care-related issues. opencare issue: (B.2) how these on-line conversations can be triggered and supported and, finally, how much measurable conversations can be generated. In my opinion, both (A) and (B) are relevant and should be considered, for the sake of the OpenCare research, the focus has to be on the point 2 (A.2 and B.2). NB but  it must be observed that there would be no need to have (B) if –at a given point - it would not generate (A) 3. I think that, for the sake of both open care and OpenCare, we should have a third level o in our questions, that is: A.3/B.3 what are the advantages, in terms of care giving, of having rich on-line conversations like these A.2 and B.2 ones? How to make them more effective in practical terms and more capable to create a new culture of care?",/post/19944,2016-12-30T22:49:23.000Z,2016-12-30T22:49:23.000Z,19944,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1143 4920,v1.0,,"will start from Alberto’s post last two lines:  if considered useful, I would be happy to wrote something on “Building gateways between online and offline engagement” (I am not sure to understand which activities should I coordinate but, I am sure, some explanations will follow. Here few first thoughts/feedbacks on the Alberto’s post (more will follow). Premise 1: if the Milano consortium meeting taught participants that “bringing the offline debate online is hard” and that there are at least, “two different approaches”, it means that this meeting and workshop have been successful (as a matter of fact, at least of what the workshop was concerned, its goal was exactly to trigger a conversation on this point).   Premise 2: I understand that the OpenCare research asks for promoting on-line discussions on the issue of open care and, then, measuring, representing them as graphs and discussing these results.  NB: writing OpenCare I refer to this specific research – writing open care, I intend the issue of open caring activities in general (as I did in previous posts). 1. Alberto is right saying that the two different approaches he indicates emerged in the workshop conversations.  But, in my view, these two approaches are of quite different nature, and cannot be proposed as polarized answers to the same question. In fact, in general terms, the issue of care can be the subject of a wide range of conversations: (A) some conversations aim at solving specific problems (we can call them “vertical conversations”, generating “vertical projects”); (B) other conversations aim at creating environments  where other, vertical conversations can emerge and be enhanced (we can call them “horizontal conversations”, generating “horizontal projects”). 2. In this framework, I would rephrase the two approaches emerged in the workshop, and the related questions, in this way: Approach (A) opencare issue: (A.1): how to deal with, and possibly solve, specific care-related issues in an open way (for what regards both processes and results). opencare issue: (A.2) how much of this open result-oriented activity can be done on-line and, therefore, how much measurable conversations can be generated. Approach (B) opencare issue (B.1): how to engage in useful discussions on-line people who are interested/active in care-related issues. opencare issue: (B.2) how these on-line conversations can be triggered and supported and, finally, how much measurable conversations can be generated. In my opinion, both (A) and (B) are relevant and should be considered, for the sake of the OpenCare research, the focus has to be on the point 2 (A.2 and B.2). NB but  it must be observed that there would be no need to have (B) if –at a given point - it would not generate (A) 3. I think that, for the sake of both open care and OpenCare, we should have a third level o in our questions, that is: A.3/B.3 what are the advantages, in terms of care giving, of having rich on-line conversations like these A.2 and B.2 ones? How to make them more effective in practical terms and more capable to create a new culture of care?",/post/19944,2016-12-30T22:49:08.000Z,2016-12-30T22:49:08.000Z,19944,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,120 8641,v1.0,,"Storytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating some other points. What about the rest of the points which in our data strategy need to be attributed to distinct users? So what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.  My assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation. @Alberto I especially like point 2) modeling online-offline. Sign me up for that.",/post/17100,2016-12-30T22:30:27.000Z,2016-12-30T22:30:27.000Z,17100,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1143 4919,v1.0,,"Storytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating some other points. What about the rest of the points which in our data strategy need to be attributed to distinct users? So what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.  My assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation. @Alberto I especially like point 2) modeling online-offline. Sign me up for that.",/post/17100,2016-12-30T22:30:11.000Z,2016-12-30T22:30:11.000Z,17100,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,120 10693,v1.0,,"Storytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating some other points. What about the rest of the points which in our data strategy need to be attributed to distinct users? So what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.  My assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation. @Alberto I especially like point 2) modeling online-offline. Sign me up for that.",/post/17100,2016-12-30T22:29:52.000Z,2016-12-30T22:29:52.000Z,17100,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1626 10692,v1.0,,"I read a peace lately , in french, about bringing back the 'journalisme flaneur', a person between a tourist (in the broader sence of the word) and note taker.  The way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it's a less objective note taking, but a richer experience for the reader i think.  And to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term 'conteur' in french is the best word to describe that.",/post/14343,2016-12-30T22:29:18.000Z,2016-12-30T22:29:18.000Z,14343,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1626 4918,v1.0,,"Hey,  I read a peace lately , in french, about bringing back the 'journalisme flaneur', a person between a tourist (in the broader sence of the word) and note taker.  The way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it's a less objective note taking, but a richer experience for the reader i think.  And to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term 'conteur' in french is the best word to describe that.",/post/14343,2016-12-30T22:29:00.000Z,2016-12-30T22:29:00.000Z,14343,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,120 8640,v1.0,,"Hey,  I read a peace lately , in french, about bringing back the 'journalisme flaneur', a person between a tourist (in the broader sence of the word) and note taker.  The way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it's a less objective note taking, but a richer experience for the reader i think.  And to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term 'conteur' in french is the best word to describe that.",/post/14343,2016-12-30T22:28:47.000Z,2016-12-30T22:28:47.000Z,14343,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1143 5739,v1.0,,"t LOTE4 and LOTE5 we used the concept of ""community journalists"", semi-organized note-takers. It worked like this: People volunteered for the Documentation Team (LOTEs are ""no spectators event"", you have to volunteer for something to get a ticket).  A team leader would set up Hackpads or other repositories for notes. Important: these need to support real-time collaborative editing, so a wiki like you have on wikimedia or edgeryders will not work. The team would have its own briefing on the morning of the first day. People would sign up for the different sessions, trying to cover them all. They would also receive some format indications. A format I personally used is attributed first person quotes. Example: BEN – I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others.   In session, everyone would be encouraged to help with note-taking, but the documentation ream members took the lead. That made it easy for people less confident with note-taking to chip in maybe just a little, adding some points here and there or even just correcting typos. After the session, everyone was encouraged to go to the hackpad and make corrections as needed. If my point of view was misrepresented, I could correct for it. If you don't correct, it means you are OK with it (""open""). I imagine a documentation team could be guided to produce notes that make more sense from an ethnographer's point of view.  Notice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their job well.",/post/10953,2016-12-30T22:28:12.000Z,2016-12-30T22:28:12.000Z,10953,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,365 4917,v1.0,,"t LOTE4 and LOTE5 we used the concept of ""community journalists"", semi-organized note-takers. It worked like this: People volunteered for the Documentation Team (LOTEs are ""no spectators event"", you have to volunteer for something to get a ticket).  A team leader would set up Hackpads or other repositories for notes. Important: these need to support real-time collaborative editing, so a wiki like you have on wikimedia or edgeryders will not work. The team would have its own briefing on the morning of the first day. People would sign up for the different sessions, trying to cover them all. They would also receive some format indications. A format I personally used is attributed first person quotes. Example: BEN – I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others.   In session, everyone would be encouraged to help with note-taking, but the documentation ream members took the lead. That made it easy for people less confident with note-taking to chip in maybe just a little, adding some points here and there or even just correcting typos. After the session, everyone was encouraged to go to the hackpad and make corrections as needed. If my point of view was misrepresented, I could correct for it. If you don't correct, it means you are OK with it (""open""). I imagine a documentation team could be guided to produce notes that make more sense from an ethnographer's point of view.  Notice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their job well.",/post/10953,2016-12-30T22:27:35.000Z,2016-12-30T22:27:35.000Z,10953,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,120 8639,v1.0,,"t LOTE4 and LOTE5 we used the concept of ""community journalists"", semi-organized note-takers. It worked like this: People volunteered for the Documentation Team (LOTEs are ""no spectators event"", you have to volunteer for something to get a ticket).  A team leader would set up Hackpads or other repositories for notes. Important: these need to support real-time collaborative editing, so a wiki like you have on wikimedia or edgeryders will not work. The team would have its own briefing on the morning of the first day. People would sign up for the different sessions, trying to cover them all. They would also receive some format indications. A format I personally used is attributed first person quotes. Example: BEN – I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others.   In session, everyone would be encouraged to help with note-taking, but the documentation ream members took the lead. That made it easy for people less confident with note-taking to chip in maybe just a little, adding some points here and there or even just correcting typos. After the session, everyone was encouraged to go to the hackpad and make corrections as needed. If my point of view was misrepresented, I could correct for it. If you don't correct, it means you are OK with it (""open""). I imagine a documentation team could be guided to produce notes that make more sense from an ethnographer's point of view.  Notice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their job well.",/post/10953,2016-12-30T22:17:02.000Z,2016-12-30T22:17:02.000Z,10953,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1143 8638,v1.0,,"A lot of what you say in the second half of this post makes sense but is very much outside my field of understanding or activity. I was stuck by some of the thoughts in the first half around creating content from discussions and events. Is the perhaps an area where an overlap with the citizen journalism scene may yield results. People are invited to participate in the event as a 'journalist' (distinct from a note taker), the objective is the try to capture the essence of the event, the connections between people and ideas etc (I'm thinking of the posts from @Yannick  at Re:Publica - https://edgeryders.eu/en/blog/republica-what-i-learned-about-cities-as-open-systems-political) There is still an important space for note takers and people who try to capture the detail of what hapens and is said, but this is attached to a narrative or story that engages the audience. With regards finding ways of bringing intros into offline conversations, i'm not sure if there is a comfortable and efficient way of creating a solution withour being overly prescriptive about how an event or discussion is structured. One could pre-organise a series of questions that you want to answer and post them in a digital space so that whilst the discussion happens people can aso engage online to think of answers. But i worry that you start to dictate the flow of conversation too much in the offline world. It's a very difficult path to tread.",/post/7056,2016-12-30T22:15:34.000Z,2016-12-30T22:15:34.000Z,7056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1143 4916,v1.0,,"There is still an important space for note takers and people who try to capture the detail of what hapens and is said, but this is attached to a narrative or story that engages the audience. With regards finding ways of bringing intros into offline conversations, i'm not sure if there is a comfortable and efficient way of creating a solution withour being overly prescriptive about how an event or discussion is structured. One could pre-organise a series of questions that you want to answer and post them in a digital space so that whilst the discussion happens people can aso engage online to think of answers. But i worry that you start to dictate the flow of conversation too much in the offline world. It's a very difficult path to tread.",/post/7056,2016-12-30T22:15:05.000Z,2016-12-30T22:15:05.000Z,7056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,120 4915,v1.0,,"I was stuck by some of the thoughts in the first half around creating content from discussions and events. Is the perhaps an area where an overlap with the citizen journalism scene may yield results. People are invited to participate in the event as a 'journalist' (distinct from a note taker), the objective is the try to capture the essence of the event, the connections between people and ideas etc (I'm thinking of the posts from @Yannick  at Re:Publica - https://edgeryders.eu/en/blog/republica-what-i-learned-about-cities-as-open-systems-political)",/post/7056,2016-12-30T22:14:51.000Z,2016-12-30T22:14:51.000Z,7056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,120 7263,v1.0,,"An ethnography of makers collaboration. How important is the space? How important is StackOverflow or similar? What constitues ""good"" collaboration (Alessandro: ""the less interactive and more efficient, the better"")?",/post/6069,2016-12-30T22:13:38.000Z,2016-12-30T22:13:38.000Z,6069,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,793 8146,v1.0,,"This resonates with an Edgeryders conversation thread that predates opencare. It says this: the ""meeting"" or ""assembly"" format claims to be inclusive, but in fact it is not. Instead, it rewards extrovert, confident, even narcissistic personalities. Introverts don't like to speak in public, certainly not without thinking things through. So they never speak. This issue has come to the fore in the hacker community, where many skilled developers identify as intros. Intros like online, where they can take time to think things through, and where they do not have to interrupt others to claim space. See for example this great comment by @trythis and the thread that comes with it. As a result, offline spaces are exclusionary. They do not know it... because they exclude the people who never speak up.",/post/6069,2016-12-30T22:13:03.000Z,2016-12-30T22:13:03.000Z,6069,3323,AnnotatorStore::TextAnnotation,,,,,,,,,6036,1033 8556,v1.0,,"Here's an example of ""community approach"" to mental health care in Armenia. It is a tiny drop in the sea but still I am excited to know it exists here, even though it's rather a ""provider vs vulnerable group"" approach as  @Alberto put it.",/post/27794,2016-12-27T19:55:57.000Z,2016-12-27T19:55:57.000Z,27794,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1140 5809,v1.0,,"Here's an example of ""community approach"" to mental health care in Armenia. It is a tiny drop in the sea but still I am excited to know it exists here, even though it's rather a ""provider vs vulnerable group"" approach as  @Alberto put it.",/post/27794,2016-12-27T19:55:39.000Z,2016-12-27T19:55:39.000Z,27794,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,377 9047,v1.0,,"If you Google ""mental health support group"" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something).  If you add ""online"" to that you still get relevant results, though far fewer. My question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on.  Or, how can the exisiting activity be supplemented or improved?  Or, is the idea to use online communication to reach entirely other people than who uses these existing resources?",/post/24665,2016-12-27T19:49:31.000Z,2016-12-27T19:49:31.000Z,24665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1245 7688,v1.0,,"If you Google ""mental health support group"" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something).  If you add ""online"" to that you still get relevant results, though far fewer. My question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on.  Or, how can the exisiting activity be supplemented or improved?  Or, is the idea to use online communication to reach entirely other people than who uses these existing resources?",/post/24665,2016-12-27T19:49:18.000Z,2016-12-27T19:49:18.000Z,24665,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,915 5037,v1.0,,"that everyone who lives in a distributed area is in someway involved in processing the emotions experienced in that place"" Beautiful idea, it feels too beautiful to not be true. Like mathematic formulae.",/post/21365,2016-12-27T19:49:01.000Z,2016-12-27T19:49:01.000Z,21365,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,139 9412,v1.0,,"""that everyone who lives in a distributed area is in someway involved in processing the emotions experienced in that place"" Beautiful idea, it feels too beautiful to not be true. Like mathematic formulae.",/post/21365,2016-12-27T19:48:49.000Z,2016-12-27T19:48:49.000Z,21365,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1308 6257,v1.0,,"All sorts of problems around crowd sourcing psychotherapy - equal relations and shared experience feels like a stronger emphasis: designing systems for ""live"", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped to hold together around the varieties of experiences endured on this earth",/post/18565,2016-12-27T19:48:15.000Z,2016-12-27T19:48:15.000Z,18565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,445 5053,v1.0,,"& the Nepal connection… Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having http://byzantium.chroma.space/about/  Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it… hope it will come through in time. Simple experience gained in the process of making the work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy - equal relations and shared experience feels like a stronger emphasis: designing systems for ""live"", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped to hold together around the varieties of experiences endured on this earth.",/post/18565,2016-12-27T19:47:21.000Z,2016-12-27T19:47:21.000Z,18565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,143 5036,v1.0,,"When it comes to practical implementation, I’m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that’s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.",/post/18565,2016-12-27T19:46:59.000Z,2016-12-27T19:46:59.000Z,18565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,139 7687,v1.0,,"There’s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.",/post/18565,2016-12-27T19:46:31.000Z,2016-12-27T19:46:31.000Z,18565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,915 10682,v1.0,,"I don’t know - I’m open - I was interested in this topic wanted to put down some thoughts. Instinctively I’m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a “live” experience. There’s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can",/post/18565,2016-12-27T19:46:18.000Z,2016-12-27T19:46:18.000Z,18565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1625 11390,v1.0,,"Instinctively I’m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a “live” experience. There’s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation.",/post/18565,2016-12-27T19:46:03.000Z,2016-12-27T19:46:03.000Z,18565,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1831 5052,v1.0,,Real-life conversations from real experience in which neither party is an expert can be life changing. I work a lot with VR and seeing through another's eyes is certainly helpful but what really leads to change is honestly communicating difficult experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that process that allows for shifts.,/post/16456,2016-12-27T19:45:30.000Z,2016-12-27T19:45:30.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,143 4980,v1.0,,"My friend Denis Ngala at TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking health and cultural knowledge was telling me about the work that was being done in Kenya around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis he was communicating was that recovery was not the problem of the victim of torture alone, but that it was the community's task. They were working to educate the community around how to support the individual live beyond what they had lived through.",/post/16456,2016-12-27T19:45:08.000Z,2016-12-27T19:45:08.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,127 5808,v1.0,,"My friend Denis Ngala at TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking health and cultural knowledge was telling me about the work that was being done in Kenya around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis he was communicating was that recovery was not the problem of the victim of torture alone, but that it was the community's task. They were working to educate the community around how to support the individual live beyond what they had lived through.",/post/16456,2016-12-27T19:44:57.000Z,2016-12-27T19:44:57.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,377 9411,v1.0,,"It feels like a given that two people who are in grief may find solace in sharing their real experience and connecting.  And yet, to generalise, Western communities often put empahsis on usefulness in society and direct those exhibiting signs of mental distress to simply ""be OK"" / go on medication / fix themeselves -  I totally agree with the point you are bringing out that ""the community"" is often woefully dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering. Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool, that everyone who lives in a distributed area is in someway involved in processing the emotions experienced in that place. I'm aware this is a poetic notion but I think various imaginative re-framings of the issue of mental health is what's needed. Maybe this would only work as a three way conversation with someone trained and with really clear guidelines around use but my thinking here is that what's needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar place.",/post/16456,2016-12-27T19:44:39.000Z,2016-12-27T19:44:39.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1308 11389,v1.0,,"There is something in spoken expression, being listened to and accepted that is just vital for emotional processing. With a few technologists I prototyped some systems that used voice recordings to play back these ""real"" expressions to others. Again the emphasis was not on mental illness but on the similarities and the differences in the longings of the inhabitants of particular locations - the project was inspired by thinking about how it might be possible to make networks in Nepal that in some way help the expression and social processing of the shock around the earthquake. However, there had been a depth in the experience of the interchanges that had happened whilst making the recordings that were more interesting than the voice playback system. The interviews always came out of a ""live"" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk, personal disclosure, agency and shared discovery in a way that listening to a recording does not. I am still wondering about digital systems that allow people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment. Witnessed formal statements - like rituals - can create marker points in people's lives. Alchoholic's anonymous is probably a relevant example. I wondered about the Samaritans model which sets up this sense that you can make a telephone call if you are desperate and the ""Samaritan"" is steady, sane and absolutely OK. I wonder about a network that simply says: whatever you are going through is part of the human experience ie. there is no broken experience, but there certainly is incredibly challenging experience.   It feels like a given that two people who are in grief may find solace in sharing their real experience and connecting.  And yet, to generalise, Western communities often put empahsis on usefulness in society and direct those exhibiting signs of mental distress to simply ""be OK"" / go on medication / fix themeselves -  I totally agree with the point you are bringing out that ""the community"" is often woefully dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering. Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool, that everyone who lives in a distributed area is in someway involved in processing the emotions experienced in that place. I'm aware this is a poetic notion but I think various imaginative re-framings of the issue of mental health is what's needed. Maybe this would only work as a three way conversation with someone trained and with really clear guidelines around use but my thinking here is that what's needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar place.  My friend Denis Ngala at TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking health and cultural knowledge was telling me about the work that was being done in Kenya around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis he was communicating was that recovery was not the problem of the victim of torture alone, but that it was the community's task. They were working to educate the community around how to support the individual live beyond what they had lived through. Real-life conversations from real experience in which neither party is an expert can be life changing. I work a lot with VR and seeing through another's eyes is certainly helpful but what really leads to change is honestly communicating difficult experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that process that allows for shifts. There are lots of CBT, brain training, ""look at things brighter"" apps around but perhaps there's room for bold digital networks - with some serious legal tick boxes in place - that make possible structured honest relational experiences between people in a particular place. It feels like using the digital to practice honestly speaking and speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial ways that communication can go, but there's a saviness emerging around structuring and limiting online encounter and creating a precise invitation that makes me think it's possible. Online experiences that move into relational and creative territory and away from the sense that mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all like winning in a game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise being in dire straights and make it feel like it's worth making the epic journey back to life? Not sure, but you're right that there is a real need for help with processing emotions and it's something that a healthy culture should be able to give.",/post/16456,2016-12-27T19:44:09.000Z,2016-12-27T19:44:09.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1831 10681,v1.0,,"There is something in spoken expression, being listened to and accepted that is just vital for emotional processing. With a few technologists I prototyped some systems that used voice recordings to play back these ""real"" expressions to others. Again the emphasis was not on mental illness but on the similarities and the differences in the longings of the inhabitants of particular locations - the project was inspired by thinking about how it might be possible to make networks in Nepal that in some way help the expression and social processing of the shock around the earthquake. However, there had been a depth in the experience of the interchanges that had happened whilst making the recordings that were more interesting than the voice playback system. The interviews always came out of a ""live"" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk, personal disclosure, agency and shared discovery in a way that listening to a recording does not. I am still wondering about digital systems that allow people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment. Witnessed formal statements - like rituals - can create marker points in people's lives. Alchoholic's anonymous is probably a relevant example. I wondered about the Samaritans model which sets up this sense that you can make a telephone call if you are desperate and the ""Samaritan"" is steady, sane and absolutely OK. I wonder about a network that simply says: whatever you are going through is part of the human experience ie. there is no broken experience, but there certainly is incredibly challenging experience.",/post/16456,2016-12-27T19:43:43.000Z,2016-12-27T19:43:43.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1625 8555,v1.0,,"Ever since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question of what do you long for in the place where you live? I've been trying out different ways of leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it came up again and again that a lot of people really were living through enormously challenging situations and traumas and very willing to normalise it in conversation and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as experiencing states that were ""abnormal"" or could be classed as ""mentally ill"") felt like a helpful thing - the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around digital networks - Airbnb / dating apps etc. and looked at some mental health apps ) I was mostly thinking about place and the fact that it is true of all places that there would be really wretched experiences in need of processing and how this reality is something that needed stepping up to.  I don't know of many political utopias that really take into account neurodiversity and conditions like dementia. This perspective is drawn from my experience of talking to a multitude of strangers these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as I've been considering the role that I'd taken up in wandering about listening to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience. There is something in spoken expression, being listened to and accepted that is just vital for emotional processing. With a few technologists I prototyped some systems that used voice recordings to play back these ""real"" expressions to others. Again the emphasis was not on mental illness but on the similarities and the differences in the longings of the inhabitants of particular locations - the project was inspired by thinking about how it might be possible to make networks in Nepal that in some way help the expression and social processing of the shock around the earthquake. However, there had been a depth in the experience of the interchanges that had happened whilst making the recordings that were more interesting than the voice playback system. The interviews always came out of a ""live"" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk, personal disclosure, agency and shared discovery in a way that listening to a recording does not. I am still wondering about digital systems that allow people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment. Witnessed formal statements - like rituals - can create marker points in people's lives. Alchoholic's anonymous is probably a relevant example. I wondered about the Samaritans model which sets up this sense that you can make a telephone call if you are desperate and the ""Samaritan"" is steady, sane and absolutely OK. I wonder about a network that simply says: whatever you are going through is part of the human experience ie. there is no broken experience, but there certainly is incredibly challenging experience.   It feels like a given that two people who are in grief may find solace in sharing their real experience and connecting.  And yet, to generalise, Western communities often put empahsis on usefulness in society and direct those exhibiting signs of mental distress to simply ""be OK"" / go on medication / fix themeselves -  I totally agree with the point you are bringing out that ""the community"" is often woefully dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering. Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool, that everyone who lives in a distributed area is in someway involved in processing the emotions experienced in that place. I'm aware this is a poetic notion but I think various imaginative re-framings of the issue of mental health is what's needed. Maybe this would only work as a three way conversation with someone trained and with really clear guidelines around use but my thinking here is that what's needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar place.  My friend Denis Ngala at TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking health and cultural knowledge was telling me about the work that was being done in Kenya around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis he was communicating was that recovery was not the problem of the victim of torture alone, but that it was the community's task. They were working to educate the community around how to support the individual live beyond what they had lived through. Real-life conversations from real experience in which neither party is an expert can be life changing. I work a lot with VR and seeing through another's eyes is certainly helpful but what really leads to change is honestly communicating difficult experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that process that allows for shifts. There are lots of CBT, brain training, ""look at things brighter"" apps around but perhaps there's room for bold digital networks - with some serious legal tick boxes in place - that make possible structured honest relational experiences between people in a particular place. It feels like using the digital to practice honestly speaking and speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial ways that communication can go, but there's a saviness emerging around structuring and limiting online encounter and creating a precise invitation that makes me think it's possible. Online experiences that move into relational and creative territory and away from the sense that mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all like winning in a game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise being in dire straights and make it feel like it's worth making the epic journey back to life? Not sure, but you're right that there is a real need for help with processing emotions and it's something that a healthy culture should be able to give.",/post/16456,2016-12-27T19:43:13.000Z,2016-12-27T19:43:13.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1140 4814,v1.0,,"I met simply as humans experiencing the world, rather than classifying some as experiencing states that were ""abnormal"" or could be classed as ""mentally ill"") felt like a helpful thing - the urge to have one's experience understood unites everyone.",/post/16456,2016-12-27T19:42:51.000Z,2016-12-27T19:42:51.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,82 10680,v1.0,,"Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as experiencing states that were ""abnormal"" or could be classed as ""mentally ill"") felt like a helpful thing - the urge to have one's experience understood unites everyone.",/post/16456,2016-12-27T19:42:42.000Z,2016-12-27T19:42:42.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1625 5035,v1.0,,emotional healing of groups of people and how we so inadequately meet that in product driven cultures.,/post/16456,2016-12-27T19:34:43.000Z,2016-12-27T19:34:43.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,139 9646,v1.0,,Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.,/post/16456,2016-12-27T19:34:28.000Z,2016-12-27T19:34:28.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1371 9345,v1.0,,The experience left me thinking that peer support was exactly what was needed by a lot of people.,/post/16456,2016-12-27T19:33:53.000Z,2016-12-27T19:33:53.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1294 5095,v1.0,,was thinking about networks that could help this (and thinking around digital networks - Airbnb / dating apps etc. and looked at some mental health apps ) I was mostly thinking about place and the fact that it is true of all places that there would be really wretched experiences in need of processing and how this reality is something that needed stepping up to.  I don't know of many political utopias that really take into account neurodiversity and conditions like dementia.,/post/16456,2016-12-27T19:33:36.000Z,2016-12-27T19:33:36.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,147 11233,v1.0,,Through these talks it came up again and again that a lot of people really were living through enormously challenging situations and traumas and very willing to normalise it in conversation and shrug it off.,/post/16456,2016-12-27T19:32:27.000Z,2016-12-27T19:32:27.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1772 4494,v1.0,,ither through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in,/post/16456,2016-12-27T19:32:15.000Z,2016-12-27T19:32:15.000Z,16456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,5 8415,v1.0,,"Do not post or respond with: ""Tough love"" of any description. General uplifting or ""it gets better"" messages. Encouragement is not helpful unless it integrates real, personal understanding of the OP's feelings and situation. Anything explicit or inciting related to suicide or self harm. Claims about the efficacy of any treatment or self-help strategy including religion. Thinking about our OpenCare brief in the making, or Pauline & Omri's project design: we need to signal the rules of the space somehow in order to build trust that the person sharing is in the right space: if it's for peer support vs if it's a project/solution space etc.",/post/9633,2016-12-27T19:31:51.000Z,2016-12-27T19:31:51.000Z,9633,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1110 10775,v1.0,,"Our focus is on support rather than ""fixes"". If you are looking for a more solution-oriented community, check out/r/getting_over_it/ or /r/GetMotivated. or",/post/9633,2016-12-27T19:31:29.000Z,2016-12-27T19:31:29.000Z,9633,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1643 10763,v1.0,,O: 1 I would also talk to someone i know very little or not at all,/post/5658,2016-12-27T19:30:33.000Z,2016-12-27T19:30:33.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1639 10347,v1.0,,O: I would talk to someone who had a similar experience and can connect with me and understand me.,/post/5658,2016-12-27T19:30:09.000Z,2016-12-27T19:30:09.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1527 5034,v1.0,,C: this track to do with emotions and mind etc can be a long term track within opencare;,/post/5658,2016-12-27T19:29:55.000Z,2016-12-27T19:29:55.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,139 6429,v1.0,,P: i love it. dealing with depression through humor and showing your feelings,/post/5658,2016-12-27T19:29:15.000Z,2016-12-27T19:29:15.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,483 7917,v1.0,,N: How would you design for maximum inappropriateness. What are the most inappropriate jokes you can make in a situation where someone is in pain? How do you piss people off at a Jewish funeral? How to make the grieving person forget about their sorrow and want to kill you instead?,/post/5658,2016-12-27T19:29:05.000Z,2016-12-27T19:29:05.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,971 5074,v1.0,,"Human connection - ""if you just throw your thoughts in the air without any feedback it is less interesting than if you are sharing with people with whom you have an intimate relationship"" (Nadia).",/post/5658,2016-12-27T19:28:45.000Z,2016-12-27T19:28:45.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,146 10898,v1.0,,Team JUS was on board! They’re working on design that explores vulnerability: We want to research objects that people are handling or certain gestures they are doing while in therapy. Can we find a certain patterns in these behaviours or interactions? Maybe we can do something with it? We found in the interviews/chats we started with our peers as well that it was very difficult for them to open up. We also had some observations how to create a sharing environment,/post/5658,2016-12-27T19:28:32.000Z,2016-12-27T19:28:32.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1679 10760,v1.0,,"Noemi mentioned how deep suicide is in Ireland both among males and females, as well as it is underreported - it’s not even ranking top in Europe (like former Soviet countries). Pauline added that in Sweden, suicide is the most common cause of death in people between 18-35. Costantino said this was dangerous to approach in OpenCare, even though we know it’s increasingly being flagged in the tech activist sector (see re:Publica session Hacking with Care).",/post/5658,2016-12-27T19:28:18.000Z,2016-12-27T19:28:18.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1638 4527,v1.0,,"In our intros we discovered most of us approach mental wellbeing in terms of how to make support more accessible - by inventoring and designing solutions, by opening up a conversation. I saw two big strands in the conversation that can inform our search:",/post/5658,2016-12-27T19:28:05.000Z,2016-12-27T19:28:05.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,12 8554,v1.0,,"In our intros we discovered most of us approach mental wellbeing in terms of how to make support more accessible - by inventoring and designing solutions, by opening up a conversation. I saw two big strands in the conversation that can inform our search:",/post/5658,2016-12-27T19:27:53.000Z,2016-12-27T19:27:53.000Z,5658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5625,1140 11504,v1.0,,"Because the role of administrations keeps popping up in many conversations in opencare, with the city of Milano we are now launching a campaign to understand how well meaning public servants and their office can collaborate, support or even set up better regulations endorsing community projects like yours and the others we know. Would you be interested in participating with a story? We could do it like this - organising a chat where you meet",/post/18586,2016-12-27T19:25:31.000Z,2016-12-27T19:25:31.000Z,18586,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1861 11491,v1.0,,"Because the role of administrations keeps popping up in many conversations in opencare, with the city of Milano we are now launching a campaign to understand how well meaning public servants and their office can collaborate, support or even set up better regulations endorsing community projects like yours and the others we know. Would you be interested in participating with a story? We could do it like this - organising a chat where you meet @Franca who's part of the Milan team, and other edgeryders who are interested in this. And then we put together in writing the most interesting ideas from that chat. I'm happy to join you.",/post/18586,2016-12-27T19:25:10.000Z,2016-12-27T19:25:10.000Z,18586,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1860 4503,v1.0,,"Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.",/post/523,2016-12-02T00:52:42.000Z,2016-12-02T00:52:42.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,6 7747,v1.0,,"Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.",/post/523,2016-12-02T00:52:35.000Z,2016-12-02T00:52:35.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,924 9666,v1.0,,The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.,/post/523,2016-12-02T00:49:36.000Z,2016-12-02T00:49:36.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1377 4845,v1.0,,"About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.",/post/523,2016-12-02T00:49:00.000Z,2016-12-02T00:49:00.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,97 6249,v1.0,,"About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.",/post/523,2016-12-02T00:48:45.000Z,2016-12-02T00:48:45.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,444 9080,v1.0,,"About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.",/post/523,2016-12-02T00:48:34.000Z,2016-12-02T00:48:34.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1253 7702,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.",/post/523,2016-12-02T00:48:04.000Z,2016-12-02T00:48:04.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,920 6084,v1.0,,"Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.",/post/523,2016-12-02T00:47:49.000Z,2016-12-02T00:47:49.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,427 4849,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen. Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it. Counter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now. About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary. The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned. Right now we’re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can’t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers. Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand. Ultimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body’s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet. At the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we’re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we’re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow. Meanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it’s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek. Do you have any projects in health, medicine, or biohacking that you’d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you’d like to get involved with? Leave a comment and let us know.",/post/523,2016-12-02T00:47:36.000Z,2016-12-02T00:47:36.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,100 6893,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen. Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it. Counter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now. About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary. The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned. Right now we’re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can’t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers. Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand. Ultimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body’s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet. At the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we’re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we’re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow. Meanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it’s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek. Do you have any projects in health, medicine, or biohacking that you’d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you’d like to get involved with? Leave a comment and let us know.",/post/523,2016-12-02T00:47:20.000Z,2016-12-02T00:47:20.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,704 9132,v1.0,,"Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen. Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it. Counter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now. About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary. The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned. Right now we’re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can’t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers. Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of ‘holy grail’ goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand. Ultimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body’s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet. At the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we’re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we’re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow. Meanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it’s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek. Do you have any projects in health, medicine, or biohacking that you’d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you’d like to get involved with? Leave a comment and let us know.",/post/523,2016-12-02T00:47:08.000Z,2016-12-02T00:47:08.000Z,523,3323,AnnotatorStore::TextAnnotation,,,,,,,,,490,1257 8413,v1.0,,"The question is if more people in the camp would share the same enthusiasm. Ideally, a craftsman could be found to take the role of a tutor to guide the others into the basics of building. On our last visit in the camp we learnt that the the camp’s organizers are taking help of one of the refugees who used to be a tailor. He now has his working space (a table with a sewing machine) at the intern clothes depot and helps fixing the garments before they’re given out.",/post/703,2016-11-28T18:33:01.000Z,2016-11-28T18:33:01.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1108 4785,v1.0,,"Until doing my masters, the disabled people were an unknown phenomenon to me. They were not seen, not talked about. I was introduced to young people suddenly wheelchair bound with very limited personal independence due to a spinal cord injury.  They were really nice people and kindly explained about the complexity of such sudden change in abilities and about the need to regain some functional movements.",/post/516,2016-11-28T13:42:28.000Z,2016-11-28T13:42:28.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,80 8781,v1.0,,"Until doing my masters, the disabled people were an unknown phenomenon to me. They were not seen, not talked about. I was introduced to young people suddenly wheelchair bound with very limited personal independence due to a spinal cord injury.  They were really nice people and kindly explained about the complexity of such sudden change in abilities and about the need to regain some functional movements.",/post/516,2016-11-28T13:42:16.000Z,2016-11-28T13:42:16.000Z,516,3323,AnnotatorStore::TextAnnotation,,,,,,,,,483,1155 7578,v1.0,,"""A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.",/post/10361,2016-11-28T11:55:25.000Z,2016-11-28T11:55:25.000Z,10361,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,884 6108,v1.0,,"""A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.",/post/10361,2016-11-28T11:55:21.000Z,2016-11-28T11:55:21.000Z,10361,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,430 9212,v1.0,,"Audio tests have also shown that the Glia stethoscope was on par with the leading model on the market, the Littmann Cardiology III.""",/post/10361,2016-11-28T11:55:06.000Z,2016-11-28T11:55:06.000Z,10361,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,1269 6083,v1.0,,"Doctors who have tested out the equipment have said it is as effective as stethoscopes by leading brands, despite being a fraction of the price.",/post/10361,2016-11-28T11:54:58.000Z,2016-11-28T11:54:58.000Z,10361,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,427 8412,v1.0,,"""A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.",/post/10361,2016-11-28T11:54:47.000Z,2016-11-28T11:54:47.000Z,10361,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,1108 4502,v1.0,,"""A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.",/post/10361,2016-11-28T11:54:43.000Z,2016-11-28T11:54:43.000Z,10361,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,6 8411,v1.0,,"""Tired of waiting for a monitor for his diabetes, Tim Omer made his own. He is one of a growing number of patients circumventing medical companies in favour of a homemade healthcare revolution""",/post/4909,2016-11-28T11:54:32.000Z,2016-11-28T11:54:32.000Z,4909,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,1108 9211,v1.0,,"""Tired of waiting for a monitor for his diabetes, Tim Omer made his own. He is one of a growing number of patients circumventing medical companies in favour of a homemade healthcare revolution""",/post/4909,2016-11-28T11:54:25.000Z,2016-11-28T11:54:25.000Z,4909,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4876,1269 7947,v1.0,,"D: Wie siehst du unser Seminarthema aus GWK-Perspektive? J: Für mich ist das alles nichts neues, es entspricht dem, was wir im Studium zum Inhalt haben. Wir erarbeiten oft Ideen und Konzepte im Framework,um wirtschaftlich funktionieren zu können. Z.B. finde ich das Unmnastery Projekt interessant. Ein Austausch sollte stattfinden, so dass jeder davon profitieren kann. Best for both. Ich wünsche mir mehr praktisch zu arbeiten, damit ich etwas Neues kennen lerne, vielleicht wäre es einfacher bereits eine Idee vorgegeben zu bekommen und diese umzusetzen. Die Kommunikation zwischen GWK und Designer sollte stätig stattfinden,um das Projekt zu optimieren. Man kann Marketing nicht nach Regeln durchführen, es gibt kein Rezept, mann muss versuchen neue Wege zu finden und kreativ zu werden. Learning by doing wist immer wieder ein interessanter Ansatz. D: Überschneidet sich die Motivation des Auftraggebers auch mal mit derjenigen des GWKlers? J: Das unterscheidet sich von Fall zu Fall. Es gibt zwei Fälle: Man arbeitet zusammen und hat die gleiche Motivation am Projekt, nur daß einer eher die Idee und die Vision hat, während der andere sich um das Praktische kümmert; um die Kommunikation. Beidseitiges Interesse amselben Projekt ist quasi der ideale Fall. Wenn das nicht der Fall ist, ist der Marketer bloßer Dienstleister, der nicht hinter der Sache steht.",/post/653,2016-11-28T11:35:17.000Z,2016-11-28T11:35:17.000Z,653,3323,AnnotatorStore::TextAnnotation,,,,,,,,,620,981 6193,v1.0,,"D: Wie siehst du unser Seminarthema aus GWK-Perspektive? J: Für mich ist das alles nichts neues, es entspricht dem, was wir im Studium zum Inhalt haben. Wir erarbeiten oft Ideen und Konzepte im Framework,um wirtschaftlich funktionieren zu können. Z.B. finde ich das Unmnastery Projekt interessant. Ein Austausch sollte stattfinden, so dass jeder davon profitieren kann. Best for both. Ich wünsche mir mehr praktisch zu arbeiten, damit ich etwas Neues kennen lerne, vielleicht wäre es einfacher bereits eine Idee vorgegeben zu bekommen und diese umzusetzen. Die Kommunikation zwischen GWK und Designer sollte stätig stattfinden,um das Projekt zu optimieren. Man kann Marketing nicht nach Regeln durchführen, es gibt kein Rezept, mann muss versuchen neue Wege zu finden und kreativ zu werden. Learning by doing wist immer wieder ein interessanter Ansatz. D: Überschneidet sich die Motivation des Auftraggebers auch mal mit derjenigen des GWKlers? J: Das unterscheidet sich von Fall zu Fall. Es gibt zwei Fälle: Man arbeitet zusammen und hat die gleiche Motivation am Projekt, nur daß einer eher die Idee und die Vision hat, während der andere sich um das Praktische kümmert; um die Kommunikation. Beidseitiges Interesse amselben Projekt ist quasi der ideale Fall. Wenn das nicht der Fall ist, ist der Marketer bloßer Dienstleister, der nicht hinter der Sache steht.",/post/653,2016-11-28T11:34:54.000Z,2016-11-28T11:34:54.000Z,653,3323,AnnotatorStore::TextAnnotation,,,,,,,,,620,439 8074,v1.0,,"The following is a transcript of a dialog held during a Workshop on Open Care in Sauen, Germany. Jan is a student of social and business communication, while is a Dennis product design student, both at the Berlin University of the Arts. We focus on the skills our academic background could contribute to the project, and how our different approaches and skill-set can cooperate in a fruithfoul way.",/post/653,2016-11-28T11:33:26.000Z,2016-11-28T11:33:26.000Z,653,3323,AnnotatorStore::TextAnnotation,,,,,,,,,620,1023 11208,v1.0,,"The following is a transcript of a dialog held during a Workshop on Open Care in Sauen, Germany. Jan is a student of social and business communication, while is a Dennis product design student, both at the Berlin University of the Arts. We focus on the skills our academic background could contribute to the project, and how our different approaches and skill-set can cooperate in a fruithfoul way.",/post/653,2016-11-28T11:33:20.000Z,2016-11-28T11:33:20.000Z,653,3323,AnnotatorStore::TextAnnotation,,,,,,,,,620,1768 8350,v1.0,,"Also, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.",/post/29079,2016-11-28T08:41:06.000Z,2016-11-28T08:41:06.000Z,29079,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1093 10158,v1.0,,"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing  exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.",/post/29079,2016-11-28T08:40:47.000Z,2016-11-28T08:40:47.000Z,29079,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1473 10679,v1.0,,"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing  exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.",/post/29079,2016-11-28T08:40:37.000Z,2016-11-28T08:40:37.000Z,29079,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1625 11232,v1.0,,"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing  exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them. Also, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.",/post/29079,2016-11-28T08:40:30.000Z,2016-11-28T08:40:30.000Z,29079,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1772 6936,v1.0,,"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing  exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them. Also, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.",/post/29079,2016-11-28T08:40:24.000Z,2016-11-28T08:40:24.000Z,29079,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,719 7670,v1.0,,"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing  exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them. Also, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.",/post/29079,2016-11-28T08:40:15.000Z,2016-11-28T08:40:15.000Z,29079,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 6935,v1.0,,"... if @ybe has found evidence of ""digital grieving"" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...",/post/27820,2016-11-28T08:40:01.000Z,2016-11-28T08:40:01.000Z,27820,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,719 7669,v1.0,,"... if @ybe has found evidence of ""digital grieving"" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...",/post/27820,2016-11-28T08:39:55.000Z,2016-11-28T08:39:55.000Z,27820,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 11231,v1.0,,"... if @ybe has found evidence of ""digital grieving"" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...",/post/27820,2016-11-28T08:39:41.000Z,2016-11-28T08:39:41.000Z,27820,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1772 8553,v1.0,,"It's such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of ""distance"" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...",/post/26051,2016-11-28T08:37:06.000Z,2016-11-28T08:37:06.000Z,26051,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1140 6428,v1.0,,"It's such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of ""distance"" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...",/post/26051,2016-11-28T08:37:01.000Z,2016-11-28T08:37:01.000Z,26051,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,483 7668,v1.0,,"It's such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of ""distance"" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...",/post/26051,2016-11-28T08:36:57.000Z,2016-11-28T08:36:57.000Z,26051,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 6934,v1.0,,"I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever ""has not moved on"", is ""affecting others"", is ""bothersome"" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.",/post/25204,2016-11-28T08:36:02.000Z,2016-11-28T08:36:02.000Z,25204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,719 6372,v1.0,,"I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever ""has not moved on"", is ""affecting others"", is ""bothersome"" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.",/post/25204,2016-11-28T08:35:38.000Z,2016-11-28T08:35:38.000Z,25204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,465 8521,v1.0,,"I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever ""has not moved on"", is ""affecting others"", is ""bothersome"" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.",/post/25204,2016-11-28T08:35:27.000Z,2016-11-28T08:35:27.000Z,25204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1137 6298,v1.0,,"I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever ""has not moved on"", is ""affecting others"", is ""bothersome"" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.",/post/25204,2016-11-28T08:35:15.000Z,2016-11-28T08:35:15.000Z,25204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,449 7667,v1.0,,"I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever ""has not moved on"", is ""affecting others"", is ""bothersome"" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.",/post/25204,2016-11-28T08:35:04.000Z,2016-11-28T08:35:04.000Z,25204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 8862,v1.0,,"Thanks for this. I suffered a loss many years ago and couldn't understand the reaction of the people around me. It was if they allowed me a month or two to ""get over it"" and then I was expected to move on. Some good friends couldn't bring themselves to mention the dead person's name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone's relief it seemed. I remember crying in front of my brother a few months later and he didn't know how to cope. But he hadn't been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.",/post/24145,2016-11-28T08:34:15.000Z,2016-11-28T08:34:15.000Z,24145,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1176 7666,v1.0,,"Thanks for this. I suffered a loss many years ago and couldn't understand the reaction of the people around me. It was if they allowed me a month or two to ""get over it"" and then I was expected to move on. Some good friends couldn't bring themselves to mention the dead person's name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone's relief it seemed. I remember crying in front of my brother a few months later and he didn't know how to cope. But he hadn't been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.",/post/24145,2016-11-28T08:34:11.000Z,2016-11-28T08:34:11.000Z,24145,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 6371,v1.0,,"Thanks for this. I suffered a loss many years ago and couldn't understand the reaction of the people around me. It was if they allowed me a month or two to ""get over it"" and then I was expected to move on. Some good friends couldn't bring themselves to mention the dead person's name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone's relief it seemed. I remember crying in front of my brother a few months later and he didn't know how to cope. But he hadn't been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.",/post/24145,2016-11-28T08:34:08.000Z,2016-11-28T08:34:08.000Z,24145,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,465 6370,v1.0,,"I am definitely not young anymore, and I guess I am still moving within the paradigm of ""mourn, then move on"". Actually, my understanding is that you mourn exactly to make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive. This is why the famous Black Mirror episode about digital afterlife was so disturbing. The protagonist was flailing about, unable to move on, as the AI occasionally manages to make a convincing simulation of her dead husband. Convincing, that is, to her: we, the spectators, are not fooled. We shake our heads as she holds on to the simulacrum. We see her doing almost all the cognitive work to build the illusion of an ongoing relationship.  This is a well known bug in our cognition: we antropomorphize. In computer science, this was first exploited by the famous ELIZA program in 1966. psychological research around it established that  ""[...] even if fully aware that they are talking to a simple computer program, people will nonetheless treat it as if it were a real, thinking being that cared about their problems."" – source I had a friend who was very active on social media – in fact one of its early users, and author of a 2003 book thereabout. When he passed, I unfollowed his accounts. The last thing I want is a digital ghost haunting my feeds.",/post/20691,2016-11-28T08:31:12.000Z,2016-11-28T08:31:12.000Z,20691,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,465 6930,v1.0,,"I had a friend who was very active on social media – in fact one of its early users, and author of a 2003 book thereabout. When he passed, I unfollowed his accounts. The last thing I want is a digital ghost haunting my feeds.",/post/20691,2016-11-28T08:31:03.000Z,2016-11-28T08:31:03.000Z,20691,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,717 6929,v1.0,,"Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of “holding space” for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began “deep-liking” my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal – knowing how to approach someone in grief on social media or how to express grief on social media is not actually “common sense”. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.",/post/548,2016-11-28T08:30:13.000Z,2016-11-28T08:30:13.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,717 6928,v1.0,,"Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the ""active"" facebook account isn't helping.",/post/8509,2016-11-28T08:30:01.000Z,2016-11-28T08:30:01.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,717 6927,v1.0,,"This is why the famous Black Mirror episode about digital afterlife was so disturbing. The protagonist was flailing about, unable to move on, as the AI occasionally manages to make a convincing simulation of her dead husband. Convincing, that is, to her: we, the spectators, are not fooled. We shake our heads as she holds on to the simulacrum. We see her doing almost all the cognitive work to build the illusion of an ongoing relationship.",/post/20691,2016-11-28T08:29:10.000Z,2016-11-28T08:29:10.000Z,20691,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,717 8861,v1.0,,"As an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces.",/post/548,2016-11-28T08:26:38.000Z,2016-11-28T08:26:38.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1176 9686,v1.0,,"Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.",/post/11904,2016-11-28T08:24:46.000Z,2016-11-28T08:24:46.000Z,11904,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1383 8860,v1.0,,"I am definitely not young anymore, and I guess I am still moving within the paradigm of ""mourn, then move on"". Actually, my understanding is that you mourn exactly to make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.",/post/20691,2016-11-28T08:24:24.000Z,2016-11-28T08:24:24.000Z,20691,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1176 7665,v1.0,,"I am definitely not young anymore, and I guess I am still moving within the paradigm of ""mourn, then move on"". Actually, my understanding is that you mourn exactly to make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.",/post/20691,2016-11-28T08:24:20.000Z,2016-11-28T08:24:20.000Z,20691,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 8520,v1.0,,"I am definitely not young anymore, and I guess I am still moving within the paradigm of ""mourn, then move on"". Actually, my understanding is that you mourn exactly to make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.",/post/20691,2016-11-28T08:24:14.000Z,2016-11-28T08:24:14.000Z,20691,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1137 4738,v1.0,,http://www.theverge.com/a/luka-artificial-intelligence-memorial-roman-mazurenko-bot,/post/15488,2016-11-28T08:24:02.000Z,2016-11-28T08:24:02.000Z,15488,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,63 8519,v1.0,,http://www.theverge.com/a/luka-artificial-intelligence-memorial-roman-mazurenko-bot,/post/15488,2016-11-28T08:23:42.000Z,2016-11-28T08:23:42.000Z,15488,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1137 8876,v1.0,,"""(Mutual) aftercare"" is an interesting word I will remember, thank you for introducing it.",/post/12425,2016-11-28T08:22:22.000Z,2016-11-28T08:22:22.000Z,12425,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1184 8518,v1.0,,"Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the ""active"" facebook account isn't helping.",/post/8509,2016-11-28T08:21:04.000Z,2016-11-28T08:21:04.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1137 8517,v1.0,,"Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.",/post/11904,2016-11-28T08:20:55.000Z,2016-11-28T08:20:55.000Z,11904,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1137 6369,v1.0,,"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the digital platform of social media (they pay less attention to the public nature of some of these platforms). Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.",/post/11904,2016-11-28T08:20:50.000Z,2016-11-28T08:20:50.000Z,11904,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,465 7664,v1.0,,"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the digital platform of social media (they pay less attention to the public nature of some of these platforms). Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.",/post/11904,2016-11-28T08:20:44.000Z,2016-11-28T08:20:44.000Z,11904,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 6933,v1.0,,"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the digital platform of social media (they pay less attention to the public nature of some of these platforms).",/post/11904,2016-11-28T08:20:34.000Z,2016-11-28T08:20:34.000Z,11904,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,718 10569,v1.0,,"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the digital platform of social media (they pay less attention to the public nature of some of these platforms). Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.",/post/11904,2016-11-28T08:20:26.000Z,2016-11-28T08:20:26.000Z,11904,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1578 6297,v1.0,,"In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in Life and Death at the UnMonastery",/post/8509,2016-11-28T08:20:12.000Z,2016-11-28T08:20:12.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,449 5807,v1.0,,"In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief strikes, the individual is embedded in a nurturing local community that can help them heal.",/post/8509,2016-11-28T08:19:52.000Z,2016-11-28T08:19:52.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,377 10568,v1.0,,"In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief strikes, the individual is embedded in a nurturing local community that can help them heal. My two cents..",/post/8509,2016-11-28T08:19:44.000Z,2016-11-28T08:19:44.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1578 10567,v1.0,,"Using Social Media more conscienscously....mmm I don't know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based ""fast"" media. I ask myself what effect this has on the dynamics of grief, which are slow and somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature.",/post/8509,2016-11-28T08:19:22.000Z,2016-11-28T08:19:22.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1578 6932,v1.0,,I am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.,/post/8509,2016-11-28T08:17:54.000Z,2016-11-28T08:17:54.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,718 7672,v1.0,,". Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare. *",/post/548,2016-11-28T08:17:34.000Z,2016-11-28T08:17:34.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,913 9606,v1.0,,"When I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch ""We Live in Public""? I did many years ago and it has definitely shaped how I feel about social media.",/post/8509,2016-11-28T08:16:40.000Z,2016-11-28T08:16:40.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1355 10840,v1.0,,"When I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch ""We Live in Public""? I did many years ago and it has definitely shaped how I feel about social media.",/post/8509,2016-11-28T08:16:35.000Z,2016-11-28T08:16:35.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1654 9597,v1.0,,I am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.,/post/8509,2016-11-28T08:16:14.000Z,2016-11-28T08:16:14.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1354 7349,v1.0,,"Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the ""active"" facebook account isn't helping.",/post/8509,2016-11-28T08:15:39.000Z,2016-11-28T08:15:39.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,817 10566,v1.0,,"Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the ""active"" facebook account isn't helping.",/post/8509,2016-11-28T08:15:22.000Z,2016-11-28T08:15:22.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1578 7663,v1.0,,"Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the ""active"" facebook account isn't helping. I am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me. When I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch ""We Live in Public""? I did many years ago and it has definitely shaped how I feel about social media. Using Social Media more conscienscously....mmm I don't know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based ""fast"" media. I ask myself what effect this has on the dynamics of grief, which are slow and somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature. In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief strikes, the individual is embedded in a nurturing local community that can help them heal. My two cents.. I don't know if it relevant to your work",/post/8509,2016-11-28T08:15:13.000Z,2016-11-28T08:15:13.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 6368,v1.0,,"Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the ""active"" facebook account isn't helping. I am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me. When I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch ""We Live in Public""? I did many years ago and it has definitely shaped how I feel about social media. Using Social Media more conscienscously....mmm I don't know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based ""fast"" media. I ask myself what effect this has on the dynamics of grief, which are slow and somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature. In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief strikes, the individual is embedded in a nurturing local community that can help them heal. My two cents.. I don't know if it relevant to your work",/post/8509,2016-11-28T08:14:58.000Z,2016-11-28T08:14:58.000Z,8509,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,465 9978,v1.0,,"Have you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you? Whenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways? How can we use social media more conscientiously so as to create spaces for mutual aftercare? What can we do for each other in digital spaces whenever a global grieving event occurs?",/post/548,2016-11-28T08:14:34.000Z,2016-11-28T08:14:34.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1445 9252,v1.0,,"Despite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they “play by ear”. Most staff do “what feels right” based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come.",/post/548,2016-11-28T08:14:10.000Z,2016-11-28T08:14:10.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1276 5130,v1.0,,"The need to understand young people’s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or “care for the living”. In other words, despite social workers and counsellors preaching the value of “care chains”, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.",/post/548,2016-11-28T08:13:47.000Z,2016-11-28T08:13:47.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,150 10273,v1.0,,"The need to understand young people’s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or “care for the living”. In other words, despite social workers and counsellors preaching the value of “care chains”, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.",/post/548,2016-11-28T08:13:41.000Z,2016-11-28T08:13:41.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1499 9251,v1.0,,"The need to understand young people’s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or “care for the living”. In other words, despite social workers and counsellors preaching the value of “care chains”, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.",/post/548,2016-11-28T08:13:34.000Z,2016-11-28T08:13:34.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1276 9685,v1.0,,"I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.",/post/548,2016-11-28T08:13:17.000Z,2016-11-28T08:13:17.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1383 10839,v1.0,,"I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.",/post/548,2016-11-28T08:13:03.000Z,2016-11-28T08:13:03.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1654 7348,v1.0,,"I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.",/post/548,2016-11-28T08:12:45.000Z,2016-11-28T08:12:45.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,817 7193,v1.0,,"I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.",/post/548,2016-11-28T08:12:23.000Z,2016-11-28T08:12:23.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,776 5033,v1.0,,"I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.",/post/548,2016-11-28T08:12:18.000Z,2016-11-28T08:12:18.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,139 7211,v1.0,,"I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.",/post/548,2016-11-28T08:12:07.000Z,2016-11-28T08:12:07.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,781 10590,v1.0,,"I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.",/post/548,2016-11-28T08:11:56.000Z,2016-11-28T08:11:56.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1590 10565,v1.0,,"Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites? Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person’s final days, parting words and gratitude from the deathbed, captures of assisted suicide and “right to die parties”, and families commemorating the deceased. These experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways – new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated. Research has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to “Death Studies”. For instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media. As an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces. But just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group’s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as “collective effervescence”. This is ‘aftercare’, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of ‘mutual aftercare’. Young people seem to be doing similar things in digital spaces, and I wanted to find out how. * Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of “holding space” for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began “deep-liking” my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal – knowing how to approach someone in grief on social media or how to express grief on social media is not actually “common sense”. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced. I was both a young person managing grief in digital spaces and an ethnographer invested in understanding everyday practices through intimate anthropological inquiry. To do this, I conducted personal interviews with young people who self-reported using digital media (i.e. the internet, social media, devices and artifacts, non-analogue spaces) to manage their grief. I started with friends in my sister’s social groups, made open calls to undergraduates in local universities, and amassed informants via snowball sampling. I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched. I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare. * The need to understand young people’s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or “care for the living”. In other words, despite social workers and counsellors preaching the value of “care chains”, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare. Another doctor reported seeing an increasing number of young patients in their late teens or early-to-mid twenties. Sorrowfully recounting a memorable incident in which her young patient instructed her to post a specifically-worded status update on his Facebook after death, she came to realize that young people deeply valued their digital estates as platforms to communicate gratitude and farewells even on their deathbed. In a handful of other instances, young patients requested for their doctors and counsellors to add them on Facebook or to read their blog in order to access sentiment they felt incapable of articulating in person, in physical spaces, via traditional media Despite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they “play by ear”. Most staff do “what feels right” based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come. * Have you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you? Whenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways? How can we use social media more conscientiously so as to create spaces for mutual aftercare? What can we do for each other in digital spaces whenever a global grieving event occurs? We would love to hear from you. * This article was written by Dr Crystal Abidin for OpenCare Research, Edgeryders. Crystal can be contacted at wishcrys.com. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/548,2016-11-28T08:11:23.000Z,2016-11-28T08:11:23.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1578 6931,v1.0,,"Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of “holding space” for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began “deep-liking” my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal – knowing how to approach someone in grief on social media or how to express grief on social media is not actually “common sense”. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.",/post/548,2016-11-28T08:10:59.000Z,2016-11-28T08:10:59.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,718 4887,v1.0,,"Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of “holding space” for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began “deep-liking” my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal – knowing how to approach someone in grief on social media or how to express grief on social media is not actually “common sense”. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.",/post/548,2016-11-28T08:10:45.000Z,2016-11-28T08:10:45.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,105 4598,v1.0,,"But just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group’s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as “collective effervescence”. This is ‘aftercare’, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of ‘mutual aftercare’. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.",/post/548,2016-11-28T08:10:31.000Z,2016-11-28T08:10:31.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,27 8875,v1.0,,"But just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group’s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as “collective effervescence”. This is ‘aftercare’, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of ‘mutual aftercare’. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.",/post/548,2016-11-28T08:10:16.000Z,2016-11-28T08:10:16.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1184 10512,v1.0,,"For instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media.",/post/548,2016-11-28T08:09:55.000Z,2016-11-28T08:09:55.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1565 8516,v1.0,,"Research has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to “Death Studies”.",/post/548,2016-11-27T17:09:13.000Z,2016-11-27T17:09:13.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1137 8370,v1.0,,"Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person’s final days, parting words and gratitude from the deathbed, captures of assisted suicide and “right to die parties”, and families commemorating the deceased. These experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways – new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.",/post/548,2016-11-27T17:08:59.000Z,2016-11-27T17:08:59.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1098 6367,v1.0,,"Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person’s final days, parting words and gratitude from the deathbed, captures of assisted suicide and “right to die parties”, and families commemorating the deceased. These experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways – new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.",/post/548,2016-11-27T17:08:53.000Z,2016-11-27T17:08:53.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,465 10564,v1.0,,"Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person’s final days, parting words and gratitude from the deathbed, captures of assisted suicide and “right to die parties”, and families commemorating the deceased.",/post/548,2016-11-27T17:08:37.000Z,2016-11-27T17:08:37.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1578 7662,v1.0,,"Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites? Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person’s final days, parting words and gratitude from the deathbed, captures of assisted suicide and “right to die parties”, and families commemorating the deceased. These experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways – new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated. Research has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to “Death Studies”. For instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media. As an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces. But just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group’s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as “collective effervescence”. This is ‘aftercare’, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of ‘mutual aftercare’. Young people seem to be doing similar things in digital spaces, and I wanted to find out how. * Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of “holding space” for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began “deep-liking” my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal – knowing how to approach someone in grief on social media or how to express grief on social media is not actually “common sense”. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced. I was both a young person managing grief in digital spaces and an ethnographer invested in understanding everyday practices through intimate anthropological inquiry. To do this, I conducted personal interviews with young people who self-reported using digital media (i.e. the internet, social media, devices and artifacts, non-analogue spaces) to manage their grief. I started with friends in my sister’s social groups, made open calls to undergraduates in local universities, and amassed informants via snowball sampling. I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched. I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare. * The need to understand young people’s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or “care for the living”. In other words, despite social workers and counsellors preaching the value of “care chains”, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare. Another doctor reported seeing an increasing number of young patients in their late teens or early-to-mid twenties. Sorrowfully recounting a memorable incident in which her young patient instructed her to post a specifically-worded status update on his Facebook after death, she came to realize that young people deeply valued their digital estates as platforms to communicate gratitude and farewells even on their deathbed. In a handful of other instances, young patients requested for their doctors and counsellors to add them on Facebook or to read their blog in order to access sentiment they felt incapable of articulating in person, in physical spaces, via traditional media Despite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they “play by ear”. Most staff do “what feels right” based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come. * Have you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you? Whenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways? How can we use social media more conscientiously so as to create spaces for mutual aftercare? What can we do for each other in digital spaces whenever a global grieving event occurs? We would love to hear from you. * This article was written by Dr Crystal Abidin for OpenCare Research, Edgeryders. Crystal can be contacted at wishcrys.com. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/548,2016-11-27T17:08:19.000Z,2016-11-27T17:08:19.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,912 11565,v1.0,,"Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites? Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person’s final days, parting words and gratitude from the deathbed, captures of assisted suicide and “right to die parties”, and families commemorating the deceased. These experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways – new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated. Research has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to “Death Studies”. For instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media. As an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces. But just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group’s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as “collective effervescence”. This is ‘aftercare’, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of ‘mutual aftercare’. Young people seem to be doing similar things in digital spaces, and I wanted to find out how. * Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of “holding space” for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began “deep-liking” my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal – knowing how to approach someone in grief on social media or how to express grief on social media is not actually “common sense”. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced. I was both a young person managing grief in digital spaces and an ethnographer invested in understanding everyday practices through intimate anthropological inquiry. To do this, I conducted personal interviews with young people who self-reported using digital media (i.e. the internet, social media, devices and artifacts, non-analogue spaces) to manage their grief. I started with friends in my sister’s social groups, made open calls to undergraduates in local universities, and amassed informants via snowball sampling. I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched. I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that “when words fail”, or when they “had no strength” to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while “the adults” in his family did not seem to articulate their grief and loss to each other (“they strictly never said anything about it in the house”), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship – many of them felt Facebook was “too public”, that email was “too impersonal”, and that meeting in person was “too soon”, “too painful”, or “too awkward”. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare. * The need to understand young people’s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or “care for the living”. In other words, despite social workers and counsellors preaching the value of “care chains”, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare. Another doctor reported seeing an increasing number of young patients in their late teens or early-to-mid twenties. Sorrowfully recounting a memorable incident in which her young patient instructed her to post a specifically-worded status update on his Facebook after death, she came to realize that young people deeply valued their digital estates as platforms to communicate gratitude and farewells even on their deathbed. In a handful of other instances, young patients requested for their doctors and counsellors to add them on Facebook or to read their blog in order to access sentiment they felt incapable of articulating in person, in physical spaces, via traditional media Despite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they “play by ear”. Most staff do “what feels right” based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come. * Have you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you? Whenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways? How can we use social media more conscientiously so as to create spaces for mutual aftercare? What can we do for each other in digital spaces whenever a global grieving event occurs? We would love to hear from you. * This article was written by Dr Crystal Abidin for OpenCare Research, Edgeryders. Crystal can be contacted at wishcrys.com. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.",/post/548,2016-11-27T17:08:06.000Z,2016-11-27T17:08:06.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1873 9977,v1.0,,Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites?,/post/548,2016-11-27T17:07:55.000Z,2016-11-27T17:07:55.000Z,548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,515,1445 10807,v1.0,,"It's really needs to get top water, some people pay 1€ for one gerican (20 liter) only on market day for it. Teaching sustainable technics is an issue, for me it's a key to overcome this situation.",/post/27816,2016-11-27T17:02:52.000Z,2016-11-27T17:02:52.000Z,27816,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1648 11435,v1.0,,"Thanks for your Idea @Nadia, water really Important for some people leaving on South of Madagascar. Where you  need to walk around 30 to 70 km to access to the ""nearest ""source, It's about 3 times/year of raining. A place between desert and sea.",/post/27816,2016-11-27T17:02:46.000Z,2016-11-27T17:02:46.000Z,27816,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 10643,v1.0,,"It's amazing how much ecosystems can be restored with just a few water management techniques: erosion control, soil buildup, aquifer replenishment. I was a fan of high-tech solutions like desalination just a few years ago, but became more and more convinced we better collaborate with nature where possible. A friend recommended me this documentary about ecosystem restoration on a massive scale (30,000 km² in China). It's not that humanity is out of solutions. The problem is, as always, about spreading knowledge and organizing collective action on a massive scale. That's why I like that @Michel focuses on the education part. Yet nobody has cracked the collective action problem yet (and not just because we're up against strong capitalist ""collective destruction"") …",/post/26958,2016-11-27T17:02:38.000Z,2016-11-27T17:02:38.000Z,26958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1621 11434,v1.0,,"Before eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.",/post/26958,2016-11-27T17:02:29.000Z,2016-11-27T17:02:29.000Z,26958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 7053,v1.0,,""" Drought is a serious issue in the western Indian state of Gujarat, particularly for underprivileged female farmers whose livelihood depends on the monsoon. Limited rainfall in the state leads to water logging in peak cropping season. For the rest of the year, farmers experience severe water scarcity. But thanks to a life-changing technology, poor farmers are now converting crises into opportunities. Bhungroo is a water management system that injects and stores excess rainfall underground and lifts it out for use in dry spells. """,/post/26045,2016-11-27T17:02:25.000Z,2016-11-27T17:02:25.000Z,26045,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,745 6463,v1.0,,"The way it works is ver simple: they pierce the ground with thin funnels that ""suck in"" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don't get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.",/post/26045,2016-11-27T17:02:14.000Z,2016-11-27T17:02:14.000Z,26045,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,485 11433,v1.0,,"The way it works is ver simple: they pierce the ground with thin funnels that ""suck in"" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don't get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.",/post/26045,2016-11-27T17:02:08.000Z,2016-11-27T17:02:08.000Z,26045,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 10073,v1.0,,"Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the ""distilled"" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.",/post/25788,2016-11-27T17:02:00.000Z,2016-11-27T17:02:00.000Z,25788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1450 6440,v1.0,,"Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the ""distilled"" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.",/post/25788,2016-11-27T17:01:45.000Z,2016-11-27T17:01:45.000Z,25788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,484 11432,v1.0,,"Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the ""distilled"" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.",/post/25788,2016-11-27T17:01:35.000Z,2016-11-27T17:01:35.000Z,25788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 11431,v1.0,,"""Gaza man Fayez al-Hindi has created a small rooftop mounted device that can produce about 2.6 gallons of clean water per day""",/post/24896,2016-11-27T17:01:26.000Z,2016-11-27T17:01:26.000Z,24896,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 10225,v1.0,,"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?",/post/23803,2016-11-27T17:01:18.000Z,2016-11-27T17:01:18.000Z,23803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1487 6236,v1.0,,"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?",/post/23803,2016-11-27T17:01:12.000Z,2016-11-27T17:01:12.000Z,23803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,442 11430,v1.0,,"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?",/post/23803,2016-11-27T17:01:05.000Z,2016-11-27T17:01:05.000Z,23803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 8410,v1.0,,"Perhaps you know of agricultural and / or handicrafts products from Madagascar that are interesting for export to Europe (storable, high value per weight)? I can tell you what we have found out about direct sales of food items from Nepal to Europe. Customs etc. is very doable, and revenues for farmers will be about 200% of what they get in the traditional trading system (and even that is very high for coffee because Nepali coffee is traded as a specialty … so it can be a 400-500% improvement for some ""more ordinary"" coffees from around the world). Let me know if you want any more infos on that.",/post/21834,2016-11-27T16:59:56.000Z,2016-11-27T16:59:56.000Z,21834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1108 10322,v1.0,,"Perhaps you know of agricultural and / or handicrafts products from Madagascar that are interesting for export to Europe (storable, high value per weight)? I can tell you what we have found out about direct sales of food items from Nepal to Europe. Customs etc. is very doable, and revenues for farmers will be about 200% of what they get in the traditional trading system (and even that is very high for coffee because Nepali coffee is traded as a specialty … so it can be a 400-500% improvement for some ""more ordinary"" coffees from around the world). Let me know if you want any more infos on that.",/post/21834,2016-11-27T16:59:44.000Z,2016-11-27T16:59:44.000Z,21834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1513 9460,v1.0,,"Instead, the EDGE Academy (""pocket university"") concept that @Alberto mentioned came up (it is here by the way). It's about providing the education that will later enable citizens in Nepal's countryside to solve their other issues by themselves, including with new appropriate technology like the ideas from my list. I still really want to implement the pocket university in a large scale, but have not yet found a funding partner for the project so far. So for the start, there will be just a coffee growing course in combination with a project for international direct sales for Nepali coffee. (Edgeryders LbG provided some seedfunding for that project.)",/post/21834,2016-11-27T16:59:29.000Z,2016-11-27T16:59:29.000Z,21834,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1316 10114,v1.0,,"What does such a sum for these very poor household ? Since a kilo of white rice grew 1 200 Ar /20 cent of euro  a bag of charcoal is about 20 000 Ar /5 €,  the scholarship of a child for the 1St grade is about 60 000 Ar / 15€  even in public school this amount is including supplies and other overhead ... Still, nothing concrete is well engaged to alleviate a little bit sufferings of this high proportion of the population.",/post/20018,2016-11-27T16:59:12.000Z,2016-11-27T16:59:12.000Z,20018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1451 9810,v1.0,,"Nowaday almost 8 of 10 Malagasy people are living under extreme poverty if  we refer to the UN statistics. In 4 years only,  a new cohort of population ( more than 24 %) was falling in extreme poverty. They search inside garbage and rubbish try to find some used bottle and stuff which still sellable. Statistically. It's about 5.6 million of people, more than the people on the capital and some suburban areas. In general, about 18 millions of Malagasy have to get 4 000 Ar per day less than ~ 1, 25 $ /1€ according to the International Pauverty Line.",/post/20018,2016-11-27T16:59:03.000Z,2016-11-27T16:59:03.000Z,20018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1420 9549,v1.0,,"Nowaday almost 8 of 10 Malagasy people are living under extreme poverty if  we refer to the UN statistics. In 4 years only,  a new cohort of population ( more than 24 %) was falling in extreme poverty. They search inside garbage and rubbish try to find some used bottle and stuff which still sellable. Statistically. It's about 5.6 million of people, more than the people on the capital and some suburban areas. In general, about 18 millions of Malagasy have to get 4 000 Ar per day less than ~ 1, 25 $ /1€ according to the International Pauverty Line.",/post/20018,2016-11-27T16:58:56.000Z,2016-11-27T16:58:56.000Z,20018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1341 5481,v1.0,,As I mentioned in my article some of us still using woods and charcoal as a combustion. This inventory that @Matthias mentioned in Nepal looks great. It's can avoid a massive destruction of lives and nature.,/post/20018,2016-11-27T16:58:50.000Z,2016-11-27T16:58:50.000Z,20018,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,318 9344,v1.0,,"Education, peer to peer, in a developing country: this sounds like a project @Matthias is developing in Nepal. He calls it ""pocket university"". Matt, do we have a link to the idea yet?",/post/13915,2016-11-27T16:58:40.000Z,2016-11-27T16:58:40.000Z,13915,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1294 10299,v1.0,,All I can say is that the whole opencare thing is really not relying on government. The stories you read here are all stories of self-sufficiency somehow.,/post/13915,2016-11-27T16:58:34.000Z,2016-11-27T16:58:34.000Z,13915,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1505 8212,v1.0,,"Hi @Aravella,  Alternative school is never been taken before.  The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again.  Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime.  Communal Library is rare, there are old books since 70's to 90's sometime  no book but lot of dust and ruins.",/post/11993,2016-11-27T16:58:22.000Z,2016-11-27T16:58:22.000Z,11993,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1057 8903,v1.0,,"Hi @Aravella,  Alternative school is never been taken before.  The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again.  Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime.  Communal Library is rare, there are old books since 70's to 90's sometime  no book but lot of dust and ruins.",/post/11993,2016-11-27T16:58:16.000Z,2016-11-27T16:58:16.000Z,11993,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1194 9976,v1.0,,How do you find ways to make a living as a young generation which government does not care for ?,/post/746,2016-11-27T16:57:59.000Z,2016-11-27T16:57:59.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1445 7487,v1.0,,Many foreign companies like to employ people from Sri Lanka or Indonesia because they are more skilled and less corrupted... We have more and more foreigners who are coming here to get rich. It's also another gate for economy and illnesses from both sides.,/post/746,2016-11-27T16:57:31.000Z,2016-11-27T16:57:31.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,862 11564,v1.0,,"Let’s talk about it: 67 % of Malagasy people are about 15 to 25 years young.  Statistically 15 % of graduates get an exact job for the position that they prepared for in University, 65% remain jobless and 10 % know someone high placed and get to work for an unsuitable job and that they don't have any idea what it is about or how to do; about the last 5% have something  planned for, and finally the 5% remaining help  parents at home. Many foreign companies like to employ people from Sri Lanka or Indonesia because they are more skilled and less corrupted... We have more and more foreigners who are coming here to get rich. It's also another gate for economy and illnesses from both sides.",/post/746,2016-11-27T16:57:22.000Z,2016-11-27T16:57:22.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1873 8902,v1.0,,"It's happened that teachers don't get paid for three months, become lazy and don't teach classes. Sometime parents and someone in charge on school find a solution, telling parents to give some amount of money or telling his child to bring some rice for the canteen. In small villages school is far, college and high school is even farther, University is more in the province.",/post/746,2016-11-27T16:57:13.000Z,2016-11-27T16:57:13.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1194 10678,v1.0,,"Malagasy parents used to tell stories and legends to give wisdom, advice and knowledge to their children. When there were some schools appearing they thought that a story is not enough to raise their own child. Wisdom came before knowledge for Malagasy people. As Malagasy are saying ""Let your behavior be like a tree: if the roots are strong enough, leaves can shake as they want.""  Parents decided to send children to school and encourage them to go further as long as they can support them. In fact having a son or daughter graduate from University is an honor for parents and children, it means that both are successful. In that time, to accept a job opportunity easily, leaving the familial cid and flying with their own wings is easier.",/post/746,2016-11-27T16:57:05.000Z,2016-11-27T16:57:05.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1625 11297,v1.0,,"One would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it.  (I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)",/post/30781,2016-11-27T16:56:50.000Z,2016-11-27T16:56:50.000Z,30781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1794 9533,v1.0,,"every one of those terms has an ideology behind it Absolutely correct. Over the past eight years, in addtion to other duties as a manager of an organization, I administered the health care benefit for my employees.  This all took place during the whole Obamacare/socialized medicine debate. As you know, in politics, one gets ahead by identifying and demonising a bad guy.  In that debate the bad guys were the health insurance companies.  Plenty of blame to go around with that group, no question. But in shopping for the best plans, I noticed something interesting.  If we opted for a plan where the pharmaceudicals were all generic, the premiums for each employee was reduced by half.  By half!  No other cost reduction option even came remotely close to that.  So, if half the expense is going to the drug companies for their proprietary drugs, then shouldnt they have figured a little more heavily in the national debate?  (Actually it did with one candidate - Bernie Sanders.)   One would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it.  (I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)",/post/30781,2016-11-27T16:56:09.000Z,2016-11-27T16:56:09.000Z,30781,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 8974,v1.0,,"A current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.",/post/30187,2016-11-27T16:55:37.000Z,2016-11-27T16:55:37.000Z,30187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1208 9607,v1.0,,"A current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.",/post/30187,2016-11-27T16:54:59.000Z,2016-11-27T16:54:59.000Z,30187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1356 9532,v1.0,,"That's an interesting point about the apoliticality of Open Care - in the party political sense, of course it should not be aligned with a particular side. But if politics just means 'how we organise things in our society', then it is very much political - and if it does bring about significant change, it's bound to be seen as such by some people. A current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.",/post/30187,2016-11-27T16:54:29.000Z,2016-11-27T16:54:29.000Z,30187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 8730,v1.0,,"I can't speak to places like Germany and Sweden, but the numbers of refugees in most EU countries are very low compared to the overall population - and the ones who managed to get there tend to be younger and more able, so not placing huge demands on health care per se.",/post/30187,2016-11-27T16:54:19.000Z,2016-11-27T16:54:19.000Z,30187,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1150 8729,v1.0,,placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?,/post/29375,2016-11-27T16:54:12.000Z,2016-11-27T16:54:12.000Z,29375,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1150 10113,v1.0,,placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?,/post/29375,2016-11-27T16:54:08.000Z,2016-11-27T16:54:08.000Z,29375,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1451 9531,v1.0,,"placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU? Also, Open Care is a distinctly apolitical effort, but after it gains some traction both specifically and as a meme that propagates, I see a danger in attempts at co-opting or using it by political forces wanting to channel the narrative - and the money - to a particular agenda.  Of course this is from someone in the US where everything is political on some level.",/post/29375,2016-11-27T16:53:46.000Z,2016-11-27T16:53:46.000Z,29375,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 6982,v1.0,,"in certain ways.  Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice.  (Obanacare = socialism and ""death panels."") Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn't that hard to get them to oppose it, even though it is not in their economic interest to do so.  Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.",/post/28630,2016-11-27T16:53:23.000Z,2016-11-27T16:53:23.000Z,28630,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,729 9537,v1.0,,"in certain ways.  Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice.  (Obanacare = socialism and ""death panels."") Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn't that hard to get them to oppose it, even though it is not in their economic interest to do so.  Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.",/post/28630,2016-11-27T16:53:18.000Z,2016-11-27T16:53:18.000Z,28630,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1336 9036,v1.0,,"""Obamacare"" is arguably the number one political debate along with immigration and national security.",/post/26630,2016-11-27T16:52:43.000Z,2016-11-27T16:52:43.000Z,26630,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1235 9035,v1.0,,"But I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as 'normal' and don't see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.",/post/28236,2016-11-27T16:52:34.000Z,2016-11-27T16:52:34.000Z,28236,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1235 9530,v1.0,,"Thanks, @Alberto, you are right, I was mostly thinking of the UK example, and the way in which healthcare at the point of delivery is seen as a neutral, technocratic institution. The recent junior doctors' strike shows the same pattern: doctors being criticised for 'politicising' healthcare, as if everything about it is not already political. But I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as 'normal' and don't see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.",/post/28236,2016-11-27T16:52:29.000Z,2016-11-27T16:52:29.000Z,28236,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 7778,v1.0,,"I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product: ""Support us, and there will be more money for health care!"". They can do this because everybody agrees that funding public health care is a good thing. In this sense, even though it's still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it's part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.",/post/27204,2016-11-27T16:52:12.000Z,2016-11-27T16:52:12.000Z,27204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,938 8973,v1.0,,"I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product: ""Support us, and there will be more money for health care!"". They can do this because everybody agrees that funding public health care is a good thing. In this sense, even though it's still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it's part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.",/post/27204,2016-11-27T16:51:32.000Z,2016-11-27T16:51:32.000Z,27204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1208 9529,v1.0,,"I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product: ""Support us, and there will be more money for health care!"". They can do this because everybody agrees that funding public health care is a good thing. In this sense, even though it's still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it's part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.  We (Italians, possibly the British too) do not think of health care as political because it's not divisive as a basic choice. I appreciate ours is not a sophisticated position.",/post/27204,2016-11-27T16:51:28.000Z,2016-11-27T16:51:28.000Z,27204,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 9528,v1.0,,"""Obamacare"" is arguably the number one political debate along with immigration and national security. Another aspect is student loans.  For years students have taken out loans to attend universities.  For years the government set low interest rates and wasn't aggressive in going after delinquent accounts.  That changed some years ago and those loans are now both very expensive and likely to scar your entire working life if you don't pay them on time.  I submit that is has a chilling effect on people seeking careers in medicine and health care at the higher levels.  And it is certainly a huge reason why there is such a shortage of general practitioners compared to specialists.  A GP has to take many more years to pay off their student debt. I could go on and on.  But the point is that it is impossible to separate health care from the political debate in the US, and probaly everywhere else.",/post/26630,2016-11-27T16:51:19.000Z,2016-11-27T16:51:19.000Z,26630,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 9527,v1.0,,"""Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context"" Couldn't agree more with you here. Certainly, given what is happen in the UK at the moment it is really important that both the wider community and the medical professionals themselves understand that they stand in a highly politicised space. I think it's time we stopped demanding our doctors and medical practitoners pretend they somehow exist outside of the politcal world around them",/post/24586,2016-11-27T16:51:11.000Z,2016-11-27T16:51:11.000Z,24586,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 11198,v1.0,,"I wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this? I should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.",/post/21278,2016-11-27T16:51:02.000Z,2016-11-27T16:51:02.000Z,21278,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1764 10064,v1.0,,"Attitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'.",/post/21278,2016-11-27T16:50:52.000Z,2016-11-27T16:50:52.000Z,21278,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1449 4477,v1.0,,"Attitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'. I wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this? I should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility. If you have a community library, Peter Deadman's latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.",/post/21278,2016-11-27T16:50:46.000Z,2016-11-27T16:50:46.000Z,21278,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,3 9526,v1.0,,"This really spoke to me. Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context, and to see that our attitudes towards it are framed by the wider values of our society. It looks like Woodbine are doing some great work on this. Attitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'. I wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this? I should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility. If you have a community library, Peter Deadman's latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.",/post/21278,2016-11-27T16:50:37.000Z,2016-11-27T16:50:37.000Z,21278,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1334 5806,v1.0,,"i feel the strength of a group with a shared mission and vision, soemthing that is strongly missing the modern individualistic society, and by the way it is based on a shared concrete experience of care. this is many many are looking for as a way to sense making postmodernity values, for sure attarct intersted to more concretely understand how it works, how could develop, how could go beyoing queens and the founding group. how much it is posisbile that co-living communities become a point of reference to each neightboorhood social growth...and then a nertwork of them become soemthing more impactful...",/post/16165,2016-11-27T16:50:22.000Z,2016-11-27T16:50:22.000Z,16165,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,377 4999,v1.0,,single energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...,/post/16165,2016-11-27T16:50:06.000Z,2016-11-27T16:50:06.000Z,16165,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,130 10561,v1.0,,single energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...,/post/16165,2016-11-27T16:49:58.000Z,2016-11-27T16:49:58.000Z,16165,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1577 11197,v1.0,,"As we gain ground in the journey towards health autonomy, we see just how disempowered we have become when it comes to being able to give and receive the kind of care necessary. We have to fight that disconnection and build the infrastructure in order to give ourselves the space to envision a new existence. We look forward to hearing your stories, to understand your struggles and to collectively create the foundations to answer these monumental questions.",/post/5886,2016-11-27T16:48:43.000Z,2016-11-27T16:48:43.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1764 8891,v1.0,,"We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them. The spaces dedicated to holistic medicine or alternative care are largely inaccessible to large portions of the population because they exist for those who can afford them.",/post/5886,2016-11-27T16:48:29.000Z,2016-11-27T16:48:29.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1190 4526,v1.0,,"We do not reject modern methods of medicine, but recognize the need to detach its knowledge from the oppressive institutions that guard it. We are attempting to change our orientation to institutions of western medicine to one of use over dependence; a manipulation of the systems that surround us. While there are significant problems with the city’s public health infrastructure, they do provide much of the emergency and chronic care here. We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them. The spaces dedicated to holistic medicine or alternative care are largely inaccessible to large portions of the population because they exist for those who can afford them. For these reasons, our center is meant to involve community members, help us understand the care-related skills we already have, and be an informational resource for accessing all types of health modalities. We have public open times for the community, staffed by one of our members, to assist in that process.",/post/5886,2016-11-27T16:48:21.000Z,2016-11-27T16:48:21.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,12 9586,v1.0,,"Within Woodbine, the struggle for autonomy has been broken down into categories of the most urgent material necessity, meant to focus our attention on tangible goals toward building power within our community. Health autonomy is a crucial part of this. The health resource center is run by a mix of health professionals and those with informal training in various health practices. We want to re-create a sense of agency over health through a focus on the dissemination of usable, teachable skills. We are working with peers who practice herbal medicine, massage, feldenkrais, acupuncture, meditation, yoga and other forms of so called “alternative” medicine. We are creating our own definition of wellness, one that is congruent with the realities of our time. There is also a large focus on prevention of illness, of re-fostering the idea of a healthy life, not merely the absence of disease. This is how we begin the necessary process of removing our physical and mental health from systems that would damage them further, to reclaim control over health and use it to increase our collective autonomy.",/post/5886,2016-11-27T16:48:06.000Z,2016-11-27T16:48:06.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1349 6401,v1.0,,"Within Woodbine, the struggle for autonomy has been broken down into categories of the most urgent material necessity, meant to focus our attention on tangible goals toward building power within our community. Health autonomy is a crucial part of this. The health resource center is run by a mix of health professionals and those with informal training in various health practices. We want to re-create a sense of agency over health through a focus on the dissemination of usable, teachable skills. We are working with peers who practice herbal medicine, massage, feldenkrais, acupuncture, meditation, yoga and other forms of so called “alternative” medicine. We are creating our own definition of wellness, one that is congruent with the realities of our time. There is also a large focus on prevention of illness, of re-fostering the idea of a healthy life, not merely the absence of disease. This is how we begin the necessary process of removing our physical and mental health from systems that would damage them further, to reclaim control over health and use it to increase our collective autonomy.",/post/5886,2016-11-27T16:47:53.000Z,2016-11-27T16:47:53.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,473 4476,v1.0,,"Within Woodbine, the struggle for autonomy has been broken down into categories of the most urgent material necessity, meant to focus our attention on tangible goals toward building power within our community. Health autonomy is a crucial part of this. The health resource center is run by a mix of health professionals and those with informal training in various health practices. We want to re-create a sense of agency over health through a focus on the dissemination of usable, teachable skills. We are working with peers who practice herbal medicine, massage, feldenkrais, acupuncture, meditation, yoga and other forms of so called “alternative” medicine. We are creating our own definition of wellness, one that is congruent with the realities of our time. There is also a large focus on prevention of illness, of re-fostering the idea of a healthy life, not merely the absence of disease. This is how we begin the necessary process of removing our physical and mental health from systems that would damage them further, to reclaim control over health and use it to increase our collective autonomy.",/post/5886,2016-11-27T16:47:48.000Z,2016-11-27T16:47:48.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,3 8277,v1.0,,"We are beginning to experiment with providing care outside of the realm of state control. This practice may involve working outside the structure of licenses, certifications and insurance. Our intention is always to heal, and so we are finding ways to do this that protects providers and patients.",/post/5886,2016-11-27T16:47:42.000Z,2016-11-27T16:47:42.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1074 9210,v1.0,,"We are beginning to experiment with providing care outside of the realm of state control. This practice may involve working outside the structure of licenses, certifications and insurance. Our intention is always to heal, and so we are finding ways to do this that protects providers and patients.",/post/5886,2016-11-27T16:47:37.000Z,2016-11-27T16:47:37.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1269 8890,v1.0,,"Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.",/post/5886,2016-11-27T16:47:31.000Z,2016-11-27T16:47:31.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1190 10483,v1.0,,"Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.",/post/5886,2016-11-27T16:47:19.000Z,2016-11-27T16:47:19.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1557 5805,v1.0,,"Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.",/post/5886,2016-11-27T16:47:12.000Z,2016-11-27T16:47:12.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,377 4784,v1.0,,"Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.",/post/5886,2016-11-27T16:47:04.000Z,2016-11-27T16:47:04.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,80 9372,v1.0,,"“We, the people who work every day, who think we ‘don’t have time’ - we are the only ones who can do this,” said a Woodbine co-founder. “No one’s going to do this for us—no politician, no technological innovation, no international agreement. If we want a different future, we are going to have to make it, from where we are and in every place.”",/post/5886,2016-11-27T16:46:36.000Z,2016-11-27T16:46:36.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1298 5709,v1.0,,"“A Resolution” points to the sparks that are creating a new light in the growing darkness: the revolutionary wave that spread from Tunis to New York; the Kurdish freedom struggle and the war against ISIS in Rojava; the riots and blockades sparked by the killings of Mike Brown and Eric Garner; and the retooling and remaking of life with “civilization starter kits” and “removing the dust” from indigenous knowledges and practices. “We, the people who work every day, who think we ‘don’t have time’ - we are the only ones who can do this,” said a Woodbine co-founder. “No one’s going to do this for us—no politician, no technological innovation, no international agreement. If we want a different future, we are going to have to make it, from where we are and in every place.”",/post/5886,2016-11-27T16:46:25.000Z,2016-11-27T16:46:25.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,361 11196,v1.0,,"Our skills workshops so far have included basic first aid, wound care, acupressure and intro to traditional Chinese Medicine (TCM), and an intro to medicinal plants. Coming up we will have workshops on navigating existing healthcare systems, nutrition, addiction and ongoing fitness skillshares. Our goal is that participants can use the resource library to learn about things relevant to their own health, potentially explore different modalities, and either receive aid in navigating the health systems in place or find treatment within the space itself.",/post/5886,2016-11-27T16:46:15.000Z,2016-11-27T16:46:15.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1764 4525,v1.0,,"or these reasons, our center is meant to involve community members, help us understand the care-related skills we already have, and be an informational resource for accessing all types of health modalities. We have public open times for the community, staffed by one of our members, to assist in that process.",/post/5886,2016-11-27T16:45:57.000Z,2016-11-27T16:45:57.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,12 8889,v1.0,,"While there are significant problems with the city’s public health infrastructure, they do provide much of the emergency and chronic care here. We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them.",/post/5886,2016-11-27T16:45:36.000Z,2016-11-27T16:45:36.000Z,5886,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5853,1190 10072,v1.0,,"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?",/post/23803,2016-11-27T16:14:18.000Z,2016-11-27T16:14:18.000Z,23803,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1450 10806,v1.0,,"It's really needs to get top water, some people pay 1€ for one gerican (20 liter) only on market day for it. Teaching sustainable technics is an issue, for me it's a key to overcome this situation.",/post/27816,2016-11-27T16:14:18.000Z,2016-11-27T16:14:18.000Z,27816,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1648 6462,v1.0,,"The way it works is ver simple: they pierce the ground with thin funnels that ""suck in"" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don't get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.",/post/26045,2016-11-27T16:14:18.000Z,2016-11-27T16:14:18.000Z,26045,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,485 11428,v1.0,,"Before eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.",/post/26958,2016-11-27T16:14:17.000Z,2016-11-27T16:14:17.000Z,26958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 10642,v1.0,,"It's amazing how much ecosystems can be restored with just a few water management techniques: erosion control, soil buildup, aquifer replenishment. I was a fan of high-tech solutions like desalination just a few years ago, but became more and more convinced we better collaborate with nature where possible. A friend recommended me this documentary about ecosystem restoration on a massive scale (30,000 km² in China).",/post/26958,2016-11-27T16:14:17.000Z,2016-11-27T16:14:17.000Z,26958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1621 11429,v1.0,,"Thanks for your Idea @Nadia, water really Important for some people leaving on South of Madagascar. Where you  need to walk around 30 to 70 km to access to the ""nearest ""source, It's about 3 times/year of raining. A place between desert and sea.",/post/27816,2016-11-27T16:14:17.000Z,2016-11-27T16:14:17.000Z,27816,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 11427,v1.0,,"The way it works is ver simple: they pierce the ground with thin funnels that ""suck in"" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don't get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.",/post/26045,2016-11-27T16:14:17.000Z,2016-11-27T16:14:17.000Z,26045,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1843 6439,v1.0,,"Before eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.",/post/26958,2016-11-27T16:14:17.000Z,2016-11-27T16:14:17.000Z,26958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,484 10412,v1.0,,"It's not that humanity is out of solutions. The problem is, as always, about spreading knowledge and organizing collective action on a massive scale. That's why I like that @Michel focuses on the education part. Yet nobody has cracked the collective action problem yet (and not just because we're up against strong capitalist ""collective destruction"") …",/post/26958,2016-11-27T16:14:17.000Z,2016-11-27T16:14:17.000Z,26958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1540 5051,v1.0,,"And it would be unwise to put it down to human error or happenstance. Some scientists argue convingly that for humans to divide between ""us"" and ""them"" is innate, because in our hunter-gatherer past we evolved under selection pressure at the group level. A full argument is made by E.O. Wilson in The Social Conquest of Earth. Thanks to @WinniePoncelet for recommending the book to me. ",/post/28468,2016-11-27T14:38:36.000Z,2016-11-27T14:38:36.000Z,28468,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,142 7007,v1.0,,"We propose that communities are good candidates for being caregivers, because they are fair (they share the burden across individuals), efficient (allocation of who takes care of whom is based on self-selection: low overhead, you give care when and where you are readiest/most motivated to do so, receive it in the time and domain of your greatest need), and retain a human touch that state-and private sector provided care cannot (you care for your own, etc.). This is predicated on the givers and receivers of care recognizing each other as one: everyone is part of the same ""we"". When a person is recognized as not part of the ""we"", the community's incentive to care for her fails.",/post/28468,2016-11-27T14:38:16.000Z,2016-11-27T14:38:16.000Z,28468,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,731 5804,v1.0,,"We propose that communities are good candidates for being caregivers, because they are fair (they share the burden across individuals), efficient (allocation of who takes care of whom is based on self-selection: low overhead, you give care when and where you are readiest/most motivated to do so, receive it in the time and domain of your greatest need), and retain a human touch that state-and private sector provided care cannot (you care for your own, etc.). This is predicated on the givers and receivers of care recognizing each other as one: everyone is part of the same ""we"". When a person is recognized as not part of the ""we"", the community's incentive to care for her fails.",/post/28468,2016-11-27T14:38:08.000Z,2016-11-27T14:38:08.000Z,28468,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,377 4783,v1.0,,"""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link)",/post/790,2016-11-27T14:37:51.000Z,2016-11-27T14:37:51.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,80 4838,v1.0,,"""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link)",/post/790,2016-11-27T14:37:45.000Z,2016-11-27T14:37:45.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,94 4837,v1.0,,"For me, i'd rather free and alone. But i can also see the attraction of belonging. But not the coersion.",/post/27819,2016-11-27T14:37:31.000Z,2016-11-27T14:37:31.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,94 6296,v1.0,,Perhaps this strength of intergenerational bond in Middle Eastern culture is down to having a more cohesive and consistant view of the world than we have in the West. Our horizons have expanded to include views about social and personal freedom that still struggle to gain ground in more conservative cultures.,/post/27819,2016-11-27T14:37:24.000Z,2016-11-27T14:37:24.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 7170,v1.0,,"I do think that there are some positive ideas coming through around intergenerational living though. It's not that i'm intrinsically against 'old people', i think the irony is that i'm not especially fond of MY 'old people'. I would be more than willing to help look after a number of more liberally minded old people. It comes down the idea first put forward in the Open&Change discussion in HuisVDH",/post/27819,2016-11-27T14:37:06.000Z,2016-11-27T14:37:06.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,770 6981,v1.0,,"My point then is a difficult one to conceed. Although my grandmother is my family and helped to raise me, i find spending time with her very difficult. Her views are borderline racist at times, her attitude to the world is very negative, her experience is narrow and her opinions old fashioned. I am expected to show respect and deference to her based purely on the fact that she is older than me, yet i know my experience of the world is richer and wider than hers. I wouldn't want to be forced into living in that straight-jacket in order to reduce care costs.",/post/27819,2016-11-27T14:36:44.000Z,2016-11-27T14:36:44.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,729 8917,v1.0,,"Now, at the point when she is starting to struggle with self care (and here i definitely agree with @johncoate 's view that there is a stubborness and irrational sense of personal independence in their generation) more of the balance of looking after her falls on her kids, whose lives have been so different from hers.",/post/27819,2016-11-27T14:36:33.000Z,2016-11-27T14:36:33.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1195 8916,v1.0,,"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is. The impossibility seems to be in our inability to provide deeper care when people fall through the cracks - if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself.  I see people coping at most, because there is no real choice and assessment of the situation outside constraints.",/post/21658,2016-11-27T14:36:14.000Z,2016-11-27T14:36:14.000Z,21658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1195 4782,v1.0,,"Now, at the point when she is starting to struggle with self care (and here i definitely agree with @johncoate 's view that there is a stubborness and irrational sense of personal independence in their generation) more of the balance of looking after her falls on her kids, whose lives have been so different from hers.",/post/27819,2016-11-27T14:35:24.000Z,2016-11-27T14:35:24.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,80 7590,v1.0,,"I grew up in a multi-ethnic society, with children from multiple places around the globe. To me, there is no fear or mistrust in seeing people from other ethnic backgrounds around me. But for my grandparents, there is a lingering Nationalism, a lack of acceptance of 'otherness' - socially, sexually, racially. Brought up in the social strictures of oost-war Britain they reject the social liberalisation that they have lived through. One could argue that they didn't really get to experience the full force of the social liberalisation. Many married young and had children young, many women stayed as full-time child carers and had little interaction outside of the home. Many had large families in the models of their parents before them. Their children have experienced the social liberalisation fully (sexual revolution, oral contraceptives, relaxation of the divorce laws), they grew up with a few non-white faces around them because of Windrush (immigration to UK from newly Independent West Indies) or from Indian sub-continental immigration before and after Partition. Their children (my parent's generation) were also the first people to truely benefit from the way that membership of the EU opened up travel around Europe and the North African coastline. They experienced the realities of live in other countries and these experiences changed how they think. My grandmother has never been outside the UK in her entire life.",/post/27819,2016-11-27T14:35:05.000Z,2016-11-27T14:35:05.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,888 8084,v1.0,,"Politically, we can see a large divide in the aspiration and acceptance of 'outsiders' between the generations.",/post/27819,2016-11-27T14:34:42.000Z,2016-11-27T14:34:42.000Z,27819,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1024 4781,v1.0,,"Like in John's description, my mother and her sisters and cousins are fiercely independent and would absolutely loathe becoming dependent, even on us. ",/post/26050,2016-11-27T14:34:32.000Z,2016-11-27T14:34:32.000Z,26050,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,80 6163,v1.0,,"My mother is now fairly old (she was born in 1937). Women in the family seem to have good genes, though, and she, her two sisters and some female cousins in their late 70s and early 80s are still quite formidable. They are also close to one another. So, my mum does have another option, which is to move in with her sisters. This is not as crazy as it might sound, because by pooling their forces they can hold out much longer than each one of them in isolation. Also, they would probably find this psychologically less disempowering than having to fall back on us, because they would help each other rather than being only on the receiving side.",/post/26050,2016-11-27T14:34:21.000Z,2016-11-27T14:34:21.000Z,26050,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,437 5400,v1.0,,"I think we are going to see a shift towards the generations recombining inoto households and compounds in the coming years.  The ""generation gap"" that very much existed for my generation and my parents was, and still is in a way, much greater that what we see with my gernation and my kids.  I have four kids, all well into adulthood.  Two of them let me know regularly that they are open to us combining households in later years.  Getting my own mother to agree to such a thing with me or my brothers is like pulling teeth.",/post/23372,2016-11-27T14:34:02.000Z,2016-11-27T14:34:02.000Z,23372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,298 7988,v1.0,,"In the USA, the fabled land of plenty where you are free to succeed and also free to fail, statistics show that the average life savings of my generation are barely enough to sustain them (us) for a year in anything like the standard of living now enjoyed.  And that stadard is lower already than our parents' WWII generation that was both smaller and wealthier, with a vastly larger middle class.  Then what will become of everyone? American Social Security is robust now but without a lot more care and feeding from a unified nation, it won't stay that way.  And the cost of urban living is going up fast all over America.  Sending seniors out to the country where the health care is worse and one has to drive everywhere isn't an answer. At least seniors in the USA have Medicare, but that alone won't cover the total cost of health care.",/post/23372,2016-11-27T14:33:48.000Z,2016-11-27T14:33:48.000Z,23372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,989 7169,v1.0,,"In the USA, the fabled land of plenty where you are free to succeed and also free to fail, statistics show that the average life savings of my generation are barely enough to sustain them (us) for a year in anything like the standard of living now enjoyed.  And that stadard is lower already than our parents' WWII generation that was both smaller and wealthier, with a vastly larger middle class.  Then what will become of everyone? American Social Security is robust now but without a lot more care and feeding from a unified nation, it won't stay that way.  And the cost of urban living is going up fast all over America.  Sending seniors out to the country where the health care is worse and one has to drive everywhere isn't an answer. At least seniors in the USA have Medicare, but that alone won't cover the total cost of health care.",/post/23372,2016-11-27T14:33:32.000Z,2016-11-27T14:33:32.000Z,23372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,770 4602,v1.0,,"My 1945-1960 ""boomer"" generation is now heading into retirement, fixed incomes, scant savings and other common attributes.  This has always been the case with elders as a whole, but with my generation and my kids' equally large ""millenial"" generation, the sheer numbers of people needing care are about to go sharply up and remain there for decades.",/post/23372,2016-11-27T14:33:15.000Z,2016-11-27T14:33:15.000Z,23372,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,28 7006,v1.0,,"In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.",/post/790,2016-11-27T14:33:00.000Z,2016-11-27T14:33:00.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,731 8192,v1.0,,"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is. The impossibility seems to be in our inability to provide deeper care when people fall through the cracks - if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself.  I see people coping at most, because there is no real choice and assessment of the situation outside constraints.",/post/21658,2016-11-27T14:32:37.000Z,2016-11-27T14:32:37.000Z,21658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1048 4780,v1.0,,"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is. The impossibility seems to be in our inability to provide deeper care when people fall through the cracks - if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself.  I see people coping at most, because there is no real choice and assessment of the situation outside constraints.",/post/21658,2016-11-27T14:32:04.000Z,2016-11-27T14:32:04.000Z,21658,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,80 6295,v1.0,,"When I was younger living in San Francisco which has a very high Asian population, it seems like all of my asian friends had an elderly relative, usually a grandparent, living in their house.  Every time I went over to this one friend's house in Chinatown, granny was always in the kitchen cutting up vegetables or something.  I would see that and think, ""that isn't gonna happen at my house.""  Neither generation wanted it.",/post/21579,2016-11-27T14:31:51.000Z,2016-11-27T14:31:51.000Z,21579,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 7386,v1.0,,"The ones who do, and take on a role in the family that I think is more like the model Alkasem describes, seem pretty happy though.  I admire it.",/post/21579,2016-11-27T14:31:42.000Z,2016-11-27T14:31:42.000Z,21579,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,824 4779,v1.0,,"But I think at least when it comes to that WWII generation in the US, a very large number of them want to keep their independence as long as humanly possible.  They don't want to live with the family and they don't want to cede authority over their ""space"" to any of their kids.  So, it isn't all neglect and self-interest.  I know a lot of people my age who have parents who don't want to move in, or they do it as a kind of last resort.",/post/21579,2016-11-27T14:31:27.000Z,2016-11-27T14:31:27.000Z,21579,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,80 7168,v1.0,,"Speaking as an American at the age when living parents are all advanced seniors - and many of those seniors live in homes and facilities, while it can be said without danger of over-generalizing, that to many in my age group, having your late-age senior living with you is seen as an inconvenience.",/post/21579,2016-11-27T14:31:17.000Z,2016-11-27T14:31:17.000Z,21579,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,770 4601,v1.0,,"Speaking as an American at the age when living parents are all advanced seniors - and many of those seniors live in homes and facilities, while it can be said without danger of over-generalizing, that to many in my age group, having your late-age senior living with you is seen as an inconvenience.",/post/21579,2016-11-27T14:31:07.000Z,2016-11-27T14:31:07.000Z,21579,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,28 8453,v1.0,,"To me what @alkasem23 is saying has more to do with the way we spend our time and attention, the everyday decisions we make, of which many are more artificial than essential. Not to generalize of course, but materiality is definitely what makes today's West as far as I'm concerned.",/post/18807,2016-11-27T14:29:56.000Z,2016-11-27T14:29:56.000Z,18807,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1120 6107,v1.0,,"One of the first things I noticed in Brussels is that a lot of people are living in the streets. Why are they living in the streets, don’t they have families to take care of them? Where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen?",/post/790,2016-11-27T14:28:35.000Z,2016-11-27T14:28:35.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,430 6294,v1.0,,But I am sure the subtle and not so subtle differences will start a lot of thought processes about things you've until now taken for granted. In Marseille I see quite different approaches to dressing and style whith street scenes looking quite different depending on day of the week or time of day. I find it quite interesting but don't spend much time on this myself.,/post/18613,2016-11-27T14:27:52.000Z,2016-11-27T14:27:52.000Z,18613,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 5504,v1.0,,But I am sure the subtle and not so subtle differences will start a lot of thought processes about things you've until now taken for granted. In Marseille I see quite different approaches to dressing and style whith street scenes looking quite different depending on day of the week or time of day. I find it quite interesting but don't spend much time on this myself.,/post/18613,2016-11-27T14:27:42.000Z,2016-11-27T14:27:42.000Z,18613,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,321 7997,v1.0,,"There are heaps of literature how this splintering and individualization of society allows for a reorganization that allows modern industrial society to operate much better. Of course if one sees many of the problems industrial society brings with it, a case could be made that we've partially overdone it, perhaps to the detriment of our (and other peoples) health and our environment.",/post/18613,2016-11-27T14:27:27.000Z,2016-11-27T14:27:27.000Z,18613,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,993 7385,v1.0,,"me I think the issue is more simple , in the middle east we say we live in a big families because it is more warm , inherited consensus make it so easy , trust me , in Syria I never worried about what I,m gonna eat , who,s I,m gonna spend time with ( because of the agenda of duties for people , neighbours , family ) , I started to wonder about that only in europe",/post/18095,2016-11-27T14:27:06.000Z,2016-11-27T14:27:06.000Z,18095,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,824 6293,v1.0,,"me I think the issue is more simple , in the middle east we say we live in a big families because it is more warm , inherited consensus make it so easy , trust me , in Syria I never worried about what I,m gonna eat , who,s I,m gonna spend time with ( because of the agenda of duties for people , neighbours , family ) , I started to wonder about that only in europe",/post/18095,2016-11-27T14:26:59.000Z,2016-11-27T14:26:59.000Z,18095,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 5399,v1.0,,"I wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about children moving away to become independent is true, and so living with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..",/post/15792,2016-11-27T14:26:46.000Z,2016-11-27T14:26:46.000Z,15792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,298 5047,v1.0,,"I wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about children moving away to become independent is true, and so living with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..",/post/15792,2016-11-27T14:26:36.000Z,2016-11-27T14:26:36.000Z,15792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,141 8083,v1.0,,"I wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about children moving away to become independent is true, and so living with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..",/post/15792,2016-11-27T14:26:27.000Z,2016-11-27T14:26:27.000Z,15792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1024 6292,v1.0,,"..I really don,t know I was born and I raised up like this untill we don,t think about it , belive me when I say : I started to wonder about those things here in Europe",/post/12087,2016-11-27T14:26:02.000Z,2016-11-27T14:26:02.000Z,12087,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 6291,v1.0,,"How can we create a better health system if we need all kind of difficult systems to create the trust that isn’t there really? Wow, @Alkasem , this is a really interesting take on things. I agree 100% with you on this.  I never lived in the Middle East, so I do not have your experience. But it doesn't look like the West lacks trust. All our societies run on trust; and normally such trust is rewarded, because we are rule-abiders: we stand in queues, show up for work and at school (resaonably) on time, and do not really cheat. Cheating is quite rare. So: can you say more about the lack of trust you see? What is it that is done differently in Syria?",/post/7704,2016-11-27T14:25:48.000Z,2016-11-27T14:25:48.000Z,7704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 11261,v1.0,,"How can we create a better health system if we need all kind of difficult systems to create the trust that isn’t there really? Wow, @Alkasem , this is a really interesting take on things. I agree 100% with you on this.  I never lived in the Middle East, so I do not have your experience. But it doesn't look like the West lacks trust. All our societies run on trust; and normally such trust is rewarded, because we are rule-abiders: we stand in queues, show up for work and at school (resaonably) on time, and do not really cheat. Cheating is quite rare. So: can you say more about the lack of trust you see? What is it that is done differently in Syria?",/post/7704,2016-11-27T14:25:38.000Z,2016-11-27T14:25:38.000Z,7704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1778 11260,v1.0,,Everything moves around friendship. I have the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. How can we create a better health system if we need all kind of difficult systems to create the trust that isn’t there really.,/post/790,2016-11-27T14:25:09.000Z,2016-11-27T14:25:09.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1778 10834,v1.0,,"""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link)",/post/790,2016-11-27T14:24:47.000Z,2016-11-27T14:24:47.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1651 11451,v1.0,,in North Africa systems are weak - so there has always been a cultural support; whereas in the West the system is supposed to take care of everything,/post/790,2016-11-27T14:24:29.000Z,2016-11-27T14:24:29.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1846 5398,v1.0,,the core family concept has been broken down - after uni and growing up you have to support yourself; so there is no glue which keeps family together,/post/790,2016-11-27T14:24:01.000Z,2016-11-27T14:24:01.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,298 7846,v1.0,,"About people sleeping in the streets: One of the first things I noticed in Brussels is that a lot of people are living in the streets. Why are they living in the streets, don’t they have families to take care of them? Where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:  the core family concept has been broken down - after uni and growing up you have to support yourself; so there is no glue which keeps family together in North Africa systems are weak - so there has always been a cultural support; whereas in the West the system is supposed to take care of everything ""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link) About trust Everything moves around friendship. I have the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. How can we create a better health system if we need all kind of difficult systems to create the trust that isn’t there really. In less then one day, Alkasem showed us that the things we find sometimes really obvious aren’t at all for everybody. He inpacted a lot of the discussions with his point of views and made it obvious that sometimes we are still a bit too etnocentric about the way we want to design solutions. Having completly different cultural heritages at the table makes a discussions so much richer.",/post/790,2016-11-27T14:23:49.000Z,2016-11-27T14:23:49.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,956 10560,v1.0,,"I want to see the whole of society as one body, but here everybody lives in his box, I call this ""boxpeople"". You live together but you don’t really live together. You are online, but not connected, we have to discuss, to see each other more. This is my new society, so i want to care as much about this now then how I cared about my society in Syria.",/post/790,2016-11-27T14:23:30.000Z,2016-11-27T14:23:30.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1577 4600,v1.0,,"For exemple the old people are separated from the rest of the adults, they don’t have a connection. Why do you do that? We don’t talk about generational society, we don’t attach value to the older people here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity",/post/790,2016-11-27T14:22:14.000Z,2016-11-27T14:22:14.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,28 7167,v1.0,,"For exemple the old people are separated from the rest of the adults, they don’t have a connection. Why do you do that? We don’t talk about generational society, we don’t attach value to the older people here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity",/post/790,2016-11-27T14:22:08.000Z,2016-11-27T14:22:08.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,770 8082,v1.0,,"For exemple the old people are separated from the rest of the adults, they don’t have a connection. Why do you do that? We don’t talk about generational society, we don’t attach value to the older people here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity",/post/790,2016-11-27T14:22:03.000Z,2016-11-27T14:22:03.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1024 10036,v1.0,,"In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.",/post/790,2016-11-27T14:18:21.000Z,2016-11-27T14:18:21.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1446 7561,v1.0,,"In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.",/post/790,2016-11-27T14:18:19.000Z,2016-11-27T14:18:19.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,879 5420,v1.0,,"In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.",/post/790,2016-11-27T14:17:27.000Z,2016-11-27T14:17:27.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,305 7679,v1.0,,"In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.",/post/790,2016-11-27T14:17:08.000Z,2016-11-27T14:17:08.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,914 10298,v1.0,,"In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.",/post/790,2016-11-27T14:17:01.000Z,2016-11-27T14:17:01.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,1505 6290,v1.0,,"[Curator's note] Alkasem was a doctor student in Syria, but had to flee the country for obvious reasons. He studied for four years at the university, but on arriving here he couldn’t continue his studies because of his status of refugee in Europe. Still he came to the workshop in Brussels and we are all really thankful for his disruptive thinking and propositions that helped us think out of the box and see our Western society from another perspective. About alternatives to our healthcare system: In Syria we have an ‘islamic solidarity’ in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven’t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship.  We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage. I want to see the whole of society as one body, but here everybody lives in his box, I call this ""boxpeople"". You live together but you don’t really live together. You are online, but not connected, we have to discuss, to see each other more. This is my new society, so i want to care as much about this now then how I cared about my society in Syria.  For exemple the old people are separated from the rest of the adults, they don’t have a connection. Why do you do that? We don’t talk about generational society, we don’t attach value to the older people here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity About people sleeping in the streets: One of the first things I noticed in Brussels is that a lot of people are living in the streets. Why are they living in the streets, don’t they have families to take care of them? Where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:  the core family concept has been broken down - after uni and growing up you have to support yourself; so there is no glue which keeps family together in North Africa systems are weak - so there has always been a cultural support; whereas in the West the system is supposed to take care of everything ""Free, but alone."" vs. ""Belonging, but coerced"" Comparing systems-based  vs. family-based cultures of care (twitter link) About trust Everything moves around friendship. I have the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust. And without trust no skill can be shared. How can we create a better health system if we need all kind of difficult systems to create the trust that isn’t there really. In less then one day, Alkasem showed us that the things we find sometimes really obvious aren’t at all for everybody. He inpacted a lot of the discussions with his point of views and made it obvious that sometimes we are still a bit too etnocentric about the way we want to design solutions. Having completly different cultural heritages at the table makes a discussions so much richer.",/post/790,2016-11-27T14:16:00.000Z,2016-11-27T14:16:00.000Z,790,3323,AnnotatorStore::TextAnnotation,,,,,,,,,757,449 4892,v1.0,,"Simplicity of invitation, creative expression, embodied shared experience, working and listening to others, ritual time and focus, the unexpected, all these feel like good leads for designing a transformative care network. TICAH’s emphasis on shared humanity and that each person is a human being with a different story encourages survivors and perpetrators alike to stand strong in themselves, to understand the past and live a better day.  I think of post-conflict creative efforts like http://reflections.org.np/ that creatively depict the subjectivities of Nepali people in the aftermath of the earthquake. There is a courage in projects that present every person, even though they may have lived through horrendous circumstances, as a human being with a unique story and power.",/post/553,2016-11-26T21:57:46.000Z,2016-11-26T21:57:46.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,108 4891,v1.0,,"You draw an outline of your body (real sized, or smaller) and then you connect personal experiences, traumas, memories etc to certain body areas by writing on them on the picture. For example, if you suffered a physical trauma to your right arm because of a car crash you might write Car Crash on the right forearm. It's a nice way of visualising the experiences that make up your life. Although they are highly personal, they can also create anonymity because they are pictures, not stories.  We carry our scars around with us, but unless you tell people the story (relive the experience) we don't know the difference between the person who broke their arm falling down stairs when drunk and the person who experienced brutality or torture.",/post/28469,2016-11-26T21:57:35.000Z,2016-11-26T21:57:35.000Z,28469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,108 4890,v1.0,,"You draw an outline of your body (real sized, or smaller) and then you connect personal experiences, traumas, memories etc to certain body areas by writing on them on the picture. For example, if you suffered a physical trauma to your right arm because of a car crash you might write Car Crash on the right forearm. It's a nice way of visualising the experiences that make up your life. Although they are highly personal, they can also create anonymity because they are pictures, not stories.  We carry our scars around with us, but unless you tell people the story (relive the experience) we don't know the difference between the person who broke their arm falling down stairs when drunk and the person who experienced brutality or torture.",/post/28469,2016-11-26T21:57:27.000Z,2016-11-26T21:57:27.000Z,28469,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,107 11388,v1.0,,"I may not use them straight away, but who knows what is around the next bend. In terms of players I found a couple really cheap at banggood.com (with earplugs & cable!) but I had problems ordering so I used various amazons (B001B43J8E and B01LAE19D6 ) for now. I actually want very limited capability on the players to start with so that you have to listen through a lecture to get to the infotainment/music part behind it. The cheapo players are fine for that. The other thing that is partially a feature is their crappy 110mAh battery. Currently I am testing the common failure modes, and it also looks like it will be possible to run them without battery directly from either a bucked 12V battery, or a boosted low voltage source (AAA), and of course sunny PV. All of those options (and more) will be in a full kit. In terms of wearing them - they work fine under a hat or headscarf. With 15g they should not be much of a nuisance around the neck either. As for mp3 recorder I think you are right - there is no really cheap option. I've bought this ASIN B01G8OK1O6 for 20$ and it works very well so far. However at that cost I can't hand them out to just anyone, but I first have to find reliable candidates. Probably I'll also have to work with other recording formats in the beginning. There are a couple of other somewhat decent recorders around 10-15$ but they don't save into mp3 or aren't exactly inuitive. Regarding your translation (I assume mostly into audio format) this is what I would do: Go around at the schools and ask the teachers if they can recommend someone who has a nice voice and good pronounciation and English skills. Ugliness, bad eyesight, physical deformity, rural upbringing is all a big plus. Probably won't hurt if you let 3-5 try translating and recording the same piece. Then find someone above average knowledgeable in the actual field work who has a somewhat deeper understanding of the issues and let him/her review the recordings. That is your first team. Then make second team like that and use it to translate some sections of the first piece back into English. Eventually you will probably need a Nepalese speaker who picks up enough audacity (the software) to process this intermediate product into a decent lecture - this person can sit anywhere though.",/post/27590,2016-11-26T21:57:15.000Z,2016-11-26T21:57:15.000Z,27590,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1831 9459,v1.0,,"@trythis this reminds me of the concept of ""pocket university"" proposed by @Matthias .",/post/26964,2016-11-26T21:56:57.000Z,2016-11-26T21:56:57.000Z,26964,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1316 11387,v1.0,,"By default one could have most of the players in circulation doing more of a PU for poor young women with the appropriate content and a good amount of infotainment mixed in. And of course 1-2 tracks for repairing/charging etc. the players, 2-3 tracks for getting the feedback from the women, and perhaps another couple (later in the process) for building the capability to translate/record additional lectures into the local language. I currently have envisioned about 100 mp3 players (shared among 2-3 people each) with appropriate support to keep them going for a couple of months minimum in the field which runs slightly above 1000 USD. Of course it'll be critical to work on ways to reduce the technical attrition rate and balance/channel ""misuse"" into something arguably helpful. Then it would be interesting to see how results vary between a ""helicopter distribution"" vs ""digging into a niche"". And of course on the horizon is the ability to plug these collected monologues or discussion into a platform like ER. That way you're not only getting the ""word on the street"" but also the ""word at the water hole"" with some lag in very rural places.",/post/27320,2016-11-26T21:56:07.000Z,2016-11-26T21:56:07.000Z,27320,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1831 10677,v1.0,,"One point that set it apart from PU is that this one is more geared towards information flow BACK to the party doing an intervention. The idea is that staff will get a handful of mp3 players (and colored pearls for stringing up) with say 2-3 different sets of ""directions"" to traverse the OFFLINE social networks to carry on them at all times. When they come across an ""interesting person"" (e.g. very altruistic behavior, subject to certain condition, etc.) they can, without a word, hand them the mp3 player and things can expand from there. With the right incentives (perhaps including m-pesa) there is potential for large amounts of very detailed quant (coded with the colored pearls) + qual that should be relatively undistorted.",/post/27320,2016-11-26T21:55:53.000Z,2016-11-26T21:55:53.000Z,27320,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1625 6461,v1.0,,"You can then get the recorder to this person (or have the person respond via a phone recording in a ""relatively 1st world context"") and document things in long form (8 GB - up to a week). Parts of this will be amiable for speech to text conversion. ( @brenoust that is why I asked the last time we talked) Once you get the text corpus you can open it up the the digital domain ( @Amelia can then probably mine this from an enthnograpic/anthropologic perspective) while it can remail fully anonymous. I also have a concept in mind for quantitative feedback which is similarly simple tech for users (colored beads on a string) but machine readable. That way you get quant + qual abstractions but you can still jump to the original content fairly easily (provided you speak the language). It ought to scale quite well, especially if you can reuse some of the players. The motivation for this came from a number of directions (OLPC griping, importance to capture emotion in human interaction, World Bank issues/capability building (two way!)) so I've played through a couple of different concepts that can perhaps be divided by organizational/technical aspects, content/didactic aspects, and info flow direction/volume. I'm currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a ""sit-in school"" in remote areas that have trouble with teacher absenteeism (",/post/26057,2016-11-26T21:55:38.000Z,2016-11-26T21:55:38.000Z,26057,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,485 10843,v1.0,,"In terms of hardware I am currently sitting on 10 cheapo mp3 players and some mp3 voice recorders. The idea is to put some audio content on a small memory card (perhaps also some visual content e.g. on playing card size). This costs 2-3 $ and can hold days worth of structured audio content. The strucure of the content is important because I hope to turn the play+listener into a temporary agent (a little tolkeen's ring style). So you would have incentives there for the player (or several) to traverse the community networks in a mix of chance, human behavior, and programming, and hopefully end up in someones lap who may have been incredibly hard to find using other methods.",/post/26057,2016-11-26T21:55:05.000Z,2016-11-26T21:55:05.000Z,26057,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1655 10676,v1.0,,"I'm currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a ""sit-in school"" in remote areas that have trouble with teacher absenteeism ( @Nadia perhaps interesting to Olivier @ Co - also best of luck in Paris!) and people being too poor to abstain from manual labour for so long (and of course blind, illiterate, etc.). At the moment I'm checking the recharge curves to see how long the cheapo players will survive before someone needds to know how to fix/replace/work around the battery. If any of you see potential there I'd be happy to discuss it and set it up as a proper story.",/post/26057,2016-11-26T21:54:53.000Z,2016-11-26T21:54:53.000Z,26057,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1625 7113,v1.0,,"To keep it really brief I'll just lay out the bare bones, though in application it could be tweaked in very different directions (education, journalism, anthropology/ethnography).",/post/26057,2016-11-26T21:54:32.000Z,2016-11-26T21:54:32.000Z,26057,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,766 4761,v1.0,,"But the networks I have engaged with are some sessions I've been running on Hacking Reality and a group set up by Charlotte Pulver in London to get muddy and clear out springs on Hamstead Heath. The outdoor emphasis of my life at the moment shifts my interest in networked technologies - more emphasis on Augmented Reality, GPS for content, lasers and light, alternative communication systems… Feel you intuitions on care and art are on the right track.",/post/20994,2016-11-26T21:54:15.000Z,2016-11-26T21:54:15.000Z,20994,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,75 5032,v1.0,,"The process can be a catalyst towards peace of mind and balance, which is a healthier attitude than striving for an unattainable bliss where there's no trace or memory of the negative experience. The former is resilient for the future, the latter is very fragile. When you start purging negative emotions, there's usually some collateral damage and you end up taking down good things as well.",/post/15934,2016-11-26T21:53:42.000Z,2016-11-26T21:53:42.000Z,15934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,139 10675,v1.0,,This comment sums it up for me. Conversation and understanding turn coping into progress.,/post/15934,2016-11-26T21:53:33.000Z,2016-11-26T21:53:33.000Z,15934,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1625 5031,v1.0,,"""Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala’s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that’s when emotions turn into understanding""",/post/9118,2016-11-26T21:53:08.000Z,2016-11-26T21:53:08.000Z,9118,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,139 7686,v1.0,,"There is a huge amount of trauma recovery material and contexts for group psychology that I do not know about. It is challenging terrain. As much as it’s essential to tread carefully, it is also necessary to create. The outpouring of emotional pain, anger and concern after the American election makes clear a need for strong communities of action and bold ways for participating in new stories. As worrying as is the prospect of making mistakes around mental health, the more worrying prospect is not creating networks to meaningfully connect up alienated, isolated or suffering individuals. Local actions, online networks and communities are all growing this November: each network has a different focus. Involving digital technology to reimagine group psychology and care (beyond Facebook) is just one of the potentials to help these evolving networks support themselves.",/post/553,2016-11-26T21:52:47.000Z,2016-11-26T21:52:47.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,915 4729,v1.0,,"I feel the need for strange networks of care: unusual, compelling networks that don’t attempt to fix anyone but make healing and self-understanding an adventure and help individuals back into the simple joys of communion and creativity. To explore group dynamics and coherence in recent projects I’ve been involved in, I've worked with beans http://www.rootbeans.com/, with dreams (following the method of my mentor Apela Colorado) http://oneiricarchives.tumblr.com/ and with storytelling http://www.thehaguecenter.org/pathways-project-2/.  Back up in Liverpool we're improvising on Stafford Beer's work on group dynamics in public meetings. Whether it’s VR group therapy where you experience your own body and other people in highly unusual ways or group Skype rituals for reconciliation the whole notion of care networks is wide open for innovation and renewal. As a guiding design point I think the only answer to questions like how can ritual time be held online or how can digital networks provide the intensity of feedback of live interaction is bold creativity. If you have examples of creative online systems to faciliate group communication and support that go beyond a message board or online forum and become something more vital and ""live"" please share them.  I’ll be at 33C3 if there’s people from the Edgeryders community who want to meet around the theme of hacking strange networks of care. There’s also an option to organise a session: https://events.ccc.de/congress/2016/wiki/Static:Self-organized_Sessions",/post/553,2016-11-26T21:52:18.000Z,2016-11-26T21:52:18.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,62 6460,v1.0,,"I feel the need for strange networks of care: unusual, compelling networks that don’t attempt to fix anyone but make healing and self-understanding an adventure and help individuals back into the simple joys of communion and creativity. To explore group dynamics and coherence in recent projects I’ve been involved in, I've worked with beans http://www.rootbeans.com/, with dreams (following the method of my mentor Apela Colorado) http://oneiricarchives.tumblr.com/ and with storytelling http://www.thehaguecenter.org/pathways-project-2/.  Back up in Liverpool we're improvising on Stafford Beer's work on group dynamics in public meetings. Whether it’s VR group therapy where you experience your own body and other people in highly unusual ways or group Skype rituals for reconciliation the whole notion of care networks is wide open for innovation and renewal. As a guiding design point I think the only answer to questions like how can ritual time be held online or how can digital networks provide the intensity of feedback of live interaction is bold creativity. If you have examples of creative online systems to faciliate group communication and support that go beyond a message board or online forum and become something more vital and ""live"" please share them.  I’ll be at 33C3 if there’s people from the Edgeryders community who want to meet around the theme of hacking strange networks of care. There’s also an option to organise a session: https://events.ccc.de/congress/2016/wiki/Static:Self-organized_Sessions",/post/553,2016-11-26T21:52:09.000Z,2016-11-26T21:52:09.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,485 9870,v1.0,,"I feel the need for strange networks of care: unusual, compelling networks that don’t attempt to fix anyone but make healing and self-understanding an adventure and help individuals back into the simple joys of communion and creativity. To explore group dynamics and coherence in recent projects I’ve been involved in, I've worked with beans http://www.rootbeans.com/, with dreams (following the method of my mentor Apela Colorado) http://oneiricarchives.tumblr.com/ and with storytelling http://www.thehaguecenter.org/pathways-project-2/.  Back up in Liverpool we're improvising on Stafford Beer's work on group dynamics in public meetings. Whether it’s VR group therapy where you experience your own body and other people in highly unusual ways or group Skype rituals for reconciliation the whole notion of care networks is wide open for innovation and renewal. As a guiding design point I think the only answer to questions like how can ritual time be held online or how can digital networks provide the intensity of feedback of live interaction is bold creativity. If you have examples of creative online systems to faciliate group communication and support that go beyond a message board or online forum and become something more vital and ""live"" please share them.  I’ll be at 33C3 if there’s people from the Edgeryders community who want to meet around the theme of hacking strange networks of care. There’s also an option to organise a session: https://events.ccc.de/congress/2016/wiki/Static:Self-organized_Sessions",/post/553,2016-11-26T21:51:50.000Z,2016-11-26T21:51:50.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1435 10759,v1.0,,"Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for people working together and sharing space, especially if they are ""living on the edge"". Change is difficult and every group liable to conflict. E.C. Whitmont writes in The Symbolic Quest that “The seeming inevitability of conflict among the archetypal ""powers"" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.” There's a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.",/post/553,2016-11-26T21:51:14.000Z,2016-11-26T21:51:14.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1638 4493,v1.0,,"Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for people working together and sharing space, especially if they are ""living on the edge"". Change is difficult and every group liable to conflict. E.C. Whitmont writes in The Symbolic Quest that “The seeming inevitability of conflict among the archetypal ""powers"" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.” There's a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.",/post/553,2016-11-26T21:51:10.000Z,2016-11-26T21:51:10.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,5 7857,v1.0,,"Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for people working together and sharing space, especially if they are ""living on the edge"". Change is difficult and every group liable to conflict. E.C. Whitmont writes in The Symbolic Quest that “The seeming inevitability of conflict among the archetypal ""powers"" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.” There's a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.",/post/553,2016-11-26T21:51:05.000Z,2016-11-26T21:51:05.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,958 9569,v1.0,,"Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for people working together and sharing space, especially if they are ""living on the edge"". Change is difficult and every group liable to conflict. E.C. Whitmont writes in The Symbolic Quest that “The seeming inevitability of conflict among the archetypal ""powers"" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.” There's a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.",/post/553,2016-11-26T21:50:59.000Z,2016-11-26T21:50:59.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1345 10842,v1.0,,"When I ask Ngala what networked technologies could do to help these efforts he replies that they could help facilitate expression: “In this work there are problems, most of them could be solved through sharing. When survivors are given opportunities to share their stories they heal fast. Networks would provide a good platform for people to share their experiences. Sharing could be done through writing or be spoken. Narrations could be recorded and later could be used to make short clips.” I think of just how possible this is as it is poses a clear and actionable technological problem, but looking at Ngala I wonder whether he realises how key his presence is to the process and the quality of the interaction. What forges the profound shifts in people’s experience is how their expression is received, listened to, validated and responded to. When speaking with Ngala, a man with vast generosity of soul and focused attention, you really do feel stronger. He beams at you and honours your presence in a way that is rare. In conversation with him you feel that your words matter, your life is respected and that miraculous healing is possible. Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala’s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that’s when emotions turn into understanding. The human catalysts at TICAH are so much a part of why these reconciliation attempts have been successful and any attempt to extend the work through technology needs to factor this in at the centre.",/post/553,2016-11-26T21:50:32.000Z,2016-11-26T21:50:32.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1655 10674,v1.0,,"When I ask Ngala what networked technologies could do to help these efforts he replies that they could help facilitate expression: “In this work there are problems, most of them could be solved through sharing. When survivors are given opportunities to share their stories they heal fast. Networks would provide a good platform for people to share their experiences. Sharing could be done through writing or be spoken. Narrations could be recorded and later could be used to make short clips.” I think of just how possible this is as it is poses a clear and actionable technological problem, but looking at Ngala I wonder whether he realises how key his presence is to the process and the quality of the interaction. What forges the profound shifts in people’s experience is how their expression is received, listened to, validated and responded to. When speaking with Ngala, a man with vast generosity of soul and focused attention, you really do feel stronger. He beams at you and honours your presence in a way that is rare. In conversation with him you feel that your words matter, your life is respected and that miraculous healing is possible. Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala’s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that’s when emotions turn into understanding. The human catalysts at TICAH are so much a part of why these reconciliation attempts have been successful and any attempt to extend the work through technology needs to factor this in at the centre.",/post/553,2016-11-26T21:50:23.000Z,2016-11-26T21:50:23.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1625 5762,v1.0,,"This is incredible work - through these interventions TICAH help communicate that the process of recovery is not the problem of the victim of torture alone, but is in a very real sense owned by the whole community. One striking aspect is the emphasis on accepting the seriousness of the situation - dealing with the very worst of what humans can do to each other - with vital, dramatic, expressive interactive meetings. The labyrinth walking is profoundly beautiful group ritual and the body mapping opens up the assembled individuals to listen to the challenges that others have lived through, and it does this in a joyful and creative way. Reconciliation over food feels innately right. The activities though almost timeless in their simplicity are unusual and unexpected, and generally unlike anything that any of the participants have done before. The act of doing something new is particularly suited to transforming problems as there are no painful memories attached; it opens up new horizons and is perhaps more likely to lead to a renewed present.",/post/553,2016-11-26T21:50:09.000Z,2016-11-26T21:50:09.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,372 10673,v1.0,,"But Ngala describes his methodology when convening these meetings as based on simplicity: “it is rooted in listening to one another and honouring each life story.” His role as the third party, guiding the conversation, ensuring that each person spoke and was listened to has had truly beneficial effects. He tells me that some who have gone through the process visit each other and share their childhood stories or are able to meet at public occasions.",/post/553,2016-11-26T21:49:14.000Z,2016-11-26T21:49:14.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1625 9546,v1.0,,"One of the areas that show most clearly the positive effects that community interventions can have are post-conflict efforts. In this post, I want to tell you about the powerful work of theTrust for Indigenous Culture and Health (TICAH) who developed a program with survivors of the Nyayo House Torture Centre and other centres in Kenya. In a follow up piece I will look more at digital systems with a mind to exploring how elements of ritual and and formalised events for expression and listening might be tapped into in new ways to support communities through online means.",/post/553,2016-11-26T21:48:41.000Z,2016-11-26T21:48:41.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1339 10157,v1.0,,"One of the areas that show most clearly the positive effects that community interventions can have are post-conflict efforts. In this post, I want to tell you about the powerful work of theTrust for Indigenous Culture and Health (TICAH) who developed a program with survivors of the Nyayo House Torture Centre and other centres in Kenya. In a follow up piece I will look more at digital systems with a mind to exploring how elements of ritual and and formalised events for expression and listening might be tapped into in new ways to support communities through online means.",/post/553,2016-11-26T21:48:29.000Z,2016-11-26T21:48:29.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1473 8552,v1.0,,"How can we get better as groups at learning from the experiences we go through? I have been wondering about new approaches to care and this question has been much in my mind since interviewing members of the public during a project about the “word on the street” in Liverpool in 2015. It was a sobering month in which I came to know personally just how disaffected and disenfranchised the public felt about anything changing for the better in England.  In a comment on the Edgeryders community call on improving how we support each others mental and spiritual health, I wondered if “everyone who lives in a distributed area is in some way involved in processing the emotions experienced in that place”. I feel a great potential for technological networks to create rituals and bring people together to process experiences in new ways. Generally, I'm talking about creative networks for coming back to life: networks that invite people into a social experience to care about themselves and other people, to keep hold of their hopes, to understand beyond their own spheres of experience and to find support in being the magician of their own life. This is speculative stuff, I realise, so I’ll anchor my offering to this strand in real examples and share work that I know of and am making.",/post/553,2016-11-26T21:48:19.000Z,2016-11-26T21:48:19.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,1140 5094,v1.0,,"A frank admission to start: the subject of networks of care is relatively new terrain for me. I’m no expert and there are long histories and contexts that I cannot represent here.  I really welcome feedback, criticism, references and most of all, examples of working networks already in place. There are many excellent examples and the diversity of reports shared on this site - the variety of food sharing initiatives, performance and storytelling circles, maker spaces and innovative support systems - is informing my learning around this subject.",/post/553,2016-11-26T21:48:08.000Z,2016-11-26T21:48:08.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,147 7856,v1.0,,"How can we get better as groups at learning from the experiences we go through? I have been wondering about new approaches to care and this question has been much in my mind since interviewing members of the public during a project about the “word on the street” in Liverpool in 2015. It was a sobering month in which I came to know personally just how disaffected and disenfranchised the public felt about anything changing for the better in England.  In a comment on the Edgeryders community call on improving how we support each others mental and spiritual health, I wondered if “everyone who lives in a distributed area is in some way involved in processing the emotions experienced in that place”. I feel a great potential for technological networks to create rituals and bring people together to process experiences in new ways. Generally, I'm talking about creative networks for coming back to life: networks that invite people into a social experience to care about themselves and other people, to keep hold of their hopes, to understand beyond their own spheres of experience and to find support in being the magician of their own life. This is speculative stuff, I realise, so I’ll anchor my offering to this strand in real examples and share work that I know of and am making.",/post/553,2016-11-26T21:47:42.000Z,2016-11-26T21:47:42.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,958 5030,v1.0,,"How can we get better as groups at learning from the experiences we go through? I have been wondering about new approaches to care and this question has been much in my mind since interviewing members of the public during a project about the “word on the street” in Liverpool in 2015. It was a sobering month in which I came to know personally just how disaffected and disenfranchised the public felt about anything changing for the better in England.  In a comment on the Edgeryders community call on improving how we support each others mental and spiritual health, I wondered if “everyone who lives in a distributed area is in some way involved in processing the emotions experienced in that place”. I feel a great potential for technological networks to create rituals and bring people together to process experiences in new ways. Generally, I'm talking about creative networks for coming back to life: networks that invite people into a social experience to care about themselves and other people, to keep hold of their hopes, to understand beyond their own spheres of experience and to find support in being the magician of their own life. This is speculative stuff, I realise, so I’ll anchor my offering to this strand in real examples and share work that I know of and am making.",/post/553,2016-11-26T21:47:13.000Z,2016-11-26T21:47:13.000Z,553,3323,AnnotatorStore::TextAnnotation,,,,,,,,,520,139 8637,v1.0,,Idea for discussion: OpenCare.CC could provide a ‘hub’ for triage of people seeking OpenCare solutions and who to contact,/post/26917,2016-11-26T21:46:33.000Z,2016-11-26T21:46:33.000Z,26917,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1143 5397,v1.0,,"Hey! I think you raised some really interesting points and I can actually relate to some of them. I have left home which was in Romania to come and study in the UK and as you said most of the times people don't move back to their home towns. Career and independence has also become much more important, particularly for women and it makes it much more difficult for them to settle down. On the other hand the way in which one has been brought up has a major influence on each individual's decisions so for example if one has lived in traditional family sometimes you can't help it but wish for that kind of family yourself. So I think there is, at least for me, a struggle between wanting to embrace as many opportunities as possible offered by the age and the place I'm living in and the desire to follow the example set by my family and achieve that sense of normalcy.",/post/23384,2016-11-26T21:45:18.000Z,2016-11-26T21:45:18.000Z,23384,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,298 7384,v1.0,,"Oh religion - I have many views on this subject, and not all of them good!! I don't understand how religion should be able to speak on family matters when religion hasn't really moved on with modern times - particularly in the UK, but I am sure the same could be said of many countries. There are some forward thinking sections, but overall you only ever hear of the sides that just hold back people from growing and loving in way that's right for them, which tars those who are doing good with the same brush.",/post/21867,2016-11-26T21:45:04.000Z,2016-11-26T21:45:04.000Z,21867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,824 9858,v1.0,,"Oh religion - I have many views on this subject, and not all of them good!! I don't understand how religion should be able to speak on family matters when religion hasn't really moved on with modern times - particularly in the UK, but I am sure the same could be said of many countries. There are some forward thinking sections, but overall you only ever hear of the sides that just hold back people from growing and loving in way that's right for them, which tars those who are doing good with the same brush.",/post/21867,2016-11-26T21:44:58.000Z,2016-11-26T21:44:58.000Z,21867,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1432 7383,v1.0,,"Really cool post, enjoyed it a lot! I have a lot of questions and still don't knwo how to put them Just wanted to leave a word of appreciation and say that all type of ""alternatives"" in our world will be possible when church will slow down a bit...and I don't see that hapenning soon...",/post/19788,2016-11-26T21:44:47.000Z,2016-11-26T21:44:47.000Z,19788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,824 9857,v1.0,,"Really cool post, enjoyed it a lot! I have a lot of questions and still don't knwo how to put them Just wanted to leave a word of appreciation and say that all type of ""alternatives"" in our world will be possible when church will slow down a bit...and I don't see that hapenning soon...",/post/19788,2016-11-26T21:44:39.000Z,2016-11-26T21:44:39.000Z,19788,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1432 6048,v1.0,,I would like to learn more about co-operative housing and how that works as it is probably something that I will understand as a good thing for my life and others and I fully realise that a homw of your own isn't the be all and end all of families.,/post/19442,2016-11-26T21:44:26.000Z,2016-11-26T21:44:26.000Z,19442,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,416 7877,v1.0,,"Oh I don't speak from any knowledge of the subject, but merely from my own understanding/upbringing/desire. To me, a home just represents a strong sense of belonging. I've been renting now for nearly a decade and it would be nice to know that my rent isn't paying someone else's mortgage.",/post/19442,2016-11-26T21:43:46.000Z,2016-11-26T21:43:46.000Z,19442,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,962 4836,v1.0,,"Oh I don't speak from any knowledge of the subject, but merely from my own understanding/upbringing/desire. To me, a home just represents a strong sense of belonging. I've been renting now for nearly a decade and it would be nice to know that my rent isn't paying someone else's mortgage.",/post/19442,2016-11-26T21:43:40.000Z,2016-11-26T21:43:40.000Z,19442,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,94 7382,v1.0,,"Anyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in  that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.",/post/19317,2016-11-26T21:43:32.000Z,2016-11-26T21:43:32.000Z,19317,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,824 7876,v1.0,,"It probably isn't necessary to own a home, but I'm just coming from my own personal knowledge of how I grew up, and how stressful I find not having a permanent residence. The flat I am in now is wonderful, as is my flatmate, but to have the comfort of a home that is your own that won't be taken from you must allow more risks to be taken elsewhere, knowing that you will have a home to return to - but again not necessary, just speaking from personal desires/experience.",/post/17309,2016-11-26T21:43:08.000Z,2016-11-26T21:43:08.000Z,17309,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,962 7633,v1.0,,"I think the moralistic purpose of family is very much ingrained to the way the conservative party think on the whole, which is why it's so obvious at the moment. Although I'm not about to start wading in to politics and bitching about the current government - tempting though it may be",/post/17309,2016-11-26T21:43:02.000Z,2016-11-26T21:43:02.000Z,17309,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,906 7875,v1.0,,"Is it really necessary to own a house to have a family though? I think family life can be based on insecure and treacherous foundations, provided the family members can create a certain resilience to that very uncertainty... I'm not speaking from experience though!! Anyone out there?",/post/14850,2016-11-26T21:42:45.000Z,2016-11-26T21:42:45.000Z,14850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,962 9975,v1.0,,Is it really necessary to own a house to have a family though?,/post/14850,2016-11-26T21:42:39.000Z,2016-11-26T21:42:39.000Z,14850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1445 10035,v1.0,,"Is it really necessary to own a house to have a family though? I think family life can be based on insecure and treacherous foundations, provided the family members can create a certain resilience to that very uncertainty... I'm not speaking from experience though!! Anyone out there?",/post/14850,2016-11-26T21:42:22.000Z,2016-11-26T21:42:22.000Z,14850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1446 7632,v1.0,,"Thank you for your post, you're raising many really varied and interesting points! With the huge explosion of alternatives, family life can't possibly stay the same, and should not be defined in categories and tax brackets. Unfortunately that's what governments do, sometimes simply for ease of administration.. but I agree in the UK's case for some horribly twisted moralistic purpose that I personally find a bit too removed from reality.",/post/14850,2016-11-26T21:36:03.000Z,2016-11-26T21:36:03.000Z,14850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,906 5396,v1.0,,"Thank you for your post, you're raising many really varied and interesting points! With the huge explosion of alternatives, family life can't possibly stay the same, and should not be defined in categories and tax brackets. Unfortunately that's what governments do, sometimes simply for ease of administration.. but I agree in the UK's case for some horribly twisted moralistic purpose that I personally find a bit too removed from reality.",/post/14850,2016-11-26T21:35:55.000Z,2016-11-26T21:35:55.000Z,14850,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,298 6047,v1.0,,"Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.",/post/13216,2016-11-26T21:34:30.000Z,2016-11-26T21:34:30.000Z,13216,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,416 7874,v1.0,,"Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.",/post/13216,2016-11-26T21:34:24.000Z,2016-11-26T21:34:24.000Z,13216,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,962 9410,v1.0,,Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?,/post/13198,2016-11-26T21:33:21.000Z,2016-11-26T21:33:21.000Z,13198,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1308 6162,v1.0,,Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?,/post/13198,2016-11-26T21:33:14.000Z,2016-11-26T21:33:14.000Z,13198,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,437 5395,v1.0,,"As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?",/post/13152,2016-11-26T21:32:59.000Z,2016-11-26T21:32:59.000Z,13152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,298 5693,v1.0,,"As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?",/post/13152,2016-11-26T21:32:53.000Z,2016-11-26T21:32:53.000Z,13152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,357 6046,v1.0,,"As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?",/post/13152,2016-11-26T21:32:38.000Z,2016-11-26T21:32:38.000Z,13152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,416 6161,v1.0,,"As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?",/post/13152,2016-11-26T21:32:30.000Z,2016-11-26T21:32:30.000Z,13152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,437 7873,v1.0,,"As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?",/post/13152,2016-11-26T21:32:25.000Z,2016-11-26T21:32:25.000Z,13152,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,962 7905,v1.0,,"An idea I've been thinking about in keeping alternative families together is to give them the same basic rights that a 'nuclear' family would have. An example from a UK perspective is to allow same sex marriages. Yes, we have civil partnerships which allows the same legal aspects of marriage, but is still not recognised as marriage as it is not performed in church, and therein, any family surrounding that union will be treated differently in some way or another. Everyone should have equal rights in order for families to blossom.",/post/12845,2016-11-26T21:31:53.000Z,2016-11-26T21:31:53.000Z,12845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,966 9209,v1.0,,"An idea I've been thinking about in keeping alternative families together is to give them the same basic rights that a 'nuclear' family would have. An example from a UK perspective is to allow same sex marriages. Yes, we have civil partnerships which allows the same legal aspects of marriage, but is still not recognised as marriage as it is not performed in church, and therein, any family surrounding that union will be treated differently in some way or another. Everyone should have equal rights in order for families to blossom. As for friendships, I know what friendships in my life are ones that I will still have when I'm much older, and as such, are very much part of the family I have created for myself. These friends would also recognise the same for me, and I think that creates bonds that would be near impossible to break, regardless of blood. There's a saying that 'friends are the family we choose for ourselves' and that is very true. How we create a familial bond in terms of law and social policy, I'm not entirely sure of yet but would love to look in to it.",/post/12845,2016-11-26T21:31:46.000Z,2016-11-26T21:31:46.000Z,12845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1269 5394,v1.0,,"An idea I've been thinking about in keeping alternative families together is to give them the same basic rights that a 'nuclear' family would have. An example from a UK perspective is to allow same sex marriages. Yes, we have civil partnerships which allows the same legal aspects of marriage, but is still not recognised as marriage as it is not performed in church, and therein, any family surrounding that union will be treated differently in some way or another. Everyone should have equal rights in order for families to blossom. As for friendships, I know what friendships in my life are ones that I will still have when I'm much older, and as such, are very much part of the family I have created for myself. These friends would also recognise the same for me, and I think that creates bonds that would be near impossible to break, regardless of blood. There's a saying that 'friends are the family we choose for ourselves' and that is very true. How we create a familial bond in terms of law and social policy, I'm not entirely sure of yet but would love to look in to it.",/post/12845,2016-11-26T21:31:35.000Z,2016-11-26T21:31:35.000Z,12845,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,298 4633,v1.0,,"I, for one, will continue to build my family in whatever way I see fit, and not to some model that doesn't work for me. I am sure it does for quite a lot of people, but to look forward, we need to accept and encourage all kinds of family situations and relationships, otherwise we will stay in a past that is not working.",/post/1438,2016-11-26T21:31:10.000Z,2016-11-26T21:31:10.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,39 4632,v1.0,,"I would find it hard to describe what my ideal family situation would be - it would almost certainly be based on friends having more input in to my way of life rather than just a partner, and it would involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid idea. In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.",/post/11006,2016-11-26T21:31:01.000Z,2016-11-26T21:31:01.000Z,11006,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,39 4631,v1.0,,I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family  consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.,/post/12379,2016-11-26T21:30:54.000Z,2016-11-26T21:30:54.000Z,12379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,39 7346,v1.0,,I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family  consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.,/post/12379,2016-11-26T21:30:47.000Z,2016-11-26T21:30:47.000Z,12379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,814 7381,v1.0,,I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family  consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.,/post/12379,2016-11-26T21:30:42.000Z,2016-11-26T21:30:42.000Z,12379,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,824 6980,v1.0,,"I would find it hard to describe what my ideal family situation would be - it would almost certainly be based on friends having more input in to my way of life rather than just a partner, and it would involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid idea. In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.",/post/11006,2016-11-26T21:30:33.000Z,2016-11-26T21:30:33.000Z,11006,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,729 7301,v1.0,,"I would find it hard to describe what my ideal family situation would be - it would almost certainly be based on friends having more input in to my way of life rather than just a partner, and it would involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid idea. In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.",/post/11006,2016-11-26T21:30:26.000Z,2016-11-26T21:30:26.000Z,11006,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,805 7345,v1.0,,"I would find it hard to describe what my ideal family situation would be - it would almost certainly be based on friends having more input in to my way of life rather than just a partner, and it would involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid idea. In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.",/post/11006,2016-11-26T21:29:16.000Z,2016-11-26T21:29:16.000Z,11006,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,814 5393,v1.0,,"I would find it hard to describe what my ideal family situation would be - it would almost certainly be based on friends having more input in to my way of life rather than just a partner, and it would involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid idea. In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.",/post/11006,2016-11-26T21:28:57.000Z,2016-11-26T21:28:57.000Z,11006,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,298 8081,v1.0,,"I would find it hard to describe what my ideal family situation would be - it would almost certainly be based on friends having more input in to my way of life rather than just a partner, and it would involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid idea. In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.",/post/11006,2016-11-26T21:28:47.000Z,2016-11-26T21:28:47.000Z,11006,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1024 7380,v1.0,,Is is based on friends or ...more than one life partner...or young people only ? I am really curios to learn & know !,/post/7492,2016-11-26T21:28:25.000Z,2016-11-26T21:28:25.000Z,7492,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,824 7872,v1.0,,"Hey everyone! Thank you so much for commenting and taking part in this conversation. I just recently noticed how many people replied. A huge sorry for not having written back any earlier! Alberto, I like the story of your party very much. Even though this was the question I started with, at the moment I or better we, because we started working as a group, are more focused on the relation between the use of public space, food culture and the feeling of home when it comes to people on the move. I will open another post for those interested. So sorry again and it will not happen again!",/post/27791,2016-11-26T21:26:28.000Z,2016-11-26T21:26:28.000Z,27791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,962 9742,v1.0,,"Hey everyone! Thank you so much for commenting and taking part in this conversation. I just recently noticed how many people replied. A huge sorry for not having written back any earlier! Alberto, I like the story of your party very much. Even though this was the question I started with, at the moment I or better we, because we started working as a group, are more focused on the relation between the use of public space, food culture and the feeling of home when it comes to people on the move. I will open another post for those interested. So sorry again and it will not happen again!",/post/27791,2016-11-26T21:26:23.000Z,2016-11-26T21:26:23.000Z,27791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1395 7457,v1.0,,"Hey everyone! Thank you so much for commenting and taking part in this conversation. I just recently noticed how many people replied. A huge sorry for not having written back any earlier! Alberto, I like the story of your party very much. Even though this was the question I started with, at the moment I or better we, because we started working as a group, are more focused on the relation between the use of public space, food culture and the feeling of home when it comes to people on the move. I will open another post for those interested. So sorry again and it will not happen again!",/post/27791,2016-11-26T21:26:16.000Z,2016-11-26T21:26:16.000Z,27791,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,853 8636,v1.0,,"I quite like that the 'obsolete comments' remain in the system. Every few weeks i spend a day digging through the old projects, conversations etc on the site. It helps me see how things have developed and where the issues have been. I gain a much greater understanding of the path, the battles and the 'big picture' when i get lost down the old blind alleys and dead ends. I think if we moved to a position where we only showed the finished product and not the working out we are giving a false impression, plus i imagine it would have negative impacts on both the 'openness' and the ability to analyse and extract quality data from the platform. But i wouldn't know anything about that specifically as i'm not a computer network scientist. I'm a poet and creative producer.",/post/25333,2016-11-26T21:23:25.000Z,2016-11-26T21:23:25.000Z,25333,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1143 7037,v1.0,,Helliniko clinic without legal or taxable status - which is one of the reasons why they are not accepting donations in money.,/post/13940,2016-11-26T21:22:35.000Z,2016-11-26T21:22:35.000Z,13940,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,741 9208,v1.0,,There are many points already being made in OpenCare about circumventing existing system regulations. Aside those you link to there is:,/post/13940,2016-11-26T21:22:30.000Z,2016-11-26T21:22:30.000Z,13940,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1269 9974,v1.0,,"* How to get around ensurance of responsibility etc.. * Can you reproduce a patent for non profit or private use? How do you work with or around licensures/certifications to provide safe care? (from :https://edgeryders.eu/en/woodbine-health-autonomy-center) * How do you interact with existing structures?",/post/5913,2016-11-26T21:22:13.000Z,2016-11-26T21:22:13.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1445 10783,v1.0,,"Therefore this proposal of creating a living document to collect knowledge, references and safe practice",/post/5913,2016-11-26T21:22:00.000Z,2016-11-26T21:22:00.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1646 7251,v1.0,,"As @markomanka remind us:  ...it will break.., but let's skip the simple logical stuff to which we all agree (Being ethical correct, Good Clinical Practice, Protect privacy, Helsinki declaration, Risk assessment…) and make some foothpaths in the illogical legal jungle, mapping the traps and dangerous animals. Let’s also stick to EU continent of bureaucratic beasts.",/post/5913,2016-11-26T21:21:53.000Z,2016-11-26T21:21:53.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,792 7300,v1.0,,"To my understanding of OpenCare, then this is the very essence. Breaking out of ‘failed institutions’ https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship while staying clear of trouble.",/post/5913,2016-11-26T21:21:43.000Z,2016-11-26T21:21:43.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,805 9207,v1.0,,"To my understanding of OpenCare, then this is the very essence. Breaking out of ‘failed institutions’ https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship while staying clear of trouble.",/post/5913,2016-11-26T21:21:37.000Z,2016-11-26T21:21:37.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1269 9409,v1.0,,"Many care projects need physical spaces, but buildings have an especially top-heavy regulatory regime in many countries. Rather than ask for authorizations, some groups find it easier to start  by illegally squatting their building of choice, then negotiating with the owner. The act of squatting creates a problem for the owner; an agreement with the squatters can be presented as the solution.",/post/5913,2016-11-26T21:21:17.000Z,2016-11-26T21:21:17.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1308 9025,v1.0,,"If you are not a legal entity, you are obviously exempt from any authorization regime, bureaucracy requirements etc. Your scope for action is limited only by the freedom of individuals in your legal system.  On the downside, unincorporated initiatives cannot easily use some of the services that legal entity can. They canot hold a bank account, sign a contract, rent an office etc. They rely heavily on the good will of the people who believe in them to maintain coherence, even  more so than incorporated ones.  The Helliniko Community Clinic is an example of a very effective care initiative that has decided not to incorporate.",/post/5913,2016-11-26T21:20:50.000Z,2016-11-26T21:20:50.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1232 8242,v1.0,,"Table of contents Legal tactics Logic of this document Legal tactics Don't incorporate If you are not a legal entity, you are obviously exempt from any authorization regime, bureaucracy requirements etc. Your scope for action is limited only by the freedom of individuals in your legal system.  On the downside, unincorporated initiatives cannot easily use some of the services that legal entity can. They canot hold a bank account, sign a contract, rent an office etc. They rely heavily on the good will of the people who believe in them to maintain coherence, even  more so than incorporated ones.  The Helliniko Community Clinic is an example of a very effective care initiative that has decided not to incorporate. ""Squat, then negotiate"" Many care projects need physical spaces, but buildings have an especially top-heavy regulatory regime in many countries. Rather than ask for authorizations, some groups find it easier to start  by illegally squatting their building of choice, then negotiating with the owner. The act of squatting creates a problem for the owner; an agreement with the squatters can be presented as the solution.  Belgium (and maybe other countries too?) has a legally attenuated contractual form for people and organisations to temporarily occupy buildings. One of its advantages: industrial spaces or office buildings can be temporarily repurposed as living quarters. Loic is an expert in this area – see here. Logic of this document Starting with a phrase from woodbine-health-autonomy-center   “This practice may involve working outside the structure of licenses, certifications and insurance. “ To my understanding of OpenCare, then this is the very essence. Breaking out of ‘failed institutions’ https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship while staying clear of trouble. As @markomanka remind us:  ...it will break.., but let's skip the simple logical stuff to which we all agree (Being ethical correct, Good Clinical Practice, Protect privacy, Helsinki declaration, Risk assessment…) and make some foothpaths in the illogical legal jungle, mapping the traps and dangerous animals. Let’s also stick to EU continent of bureaucratic beasts. Therefore this proposal of creating a living document to collect knowledge, references and safe practice (My initial title suggestion:) OpenCare Legal Evasion Guide or How to keep clear of lawsuits There is a start in the 100$ overview https://docs.google.com/document/d/1NKc2bM1FnpQ9zCEveieFr7bIGA9JkI8U_adsBpyma1A/edit#heading=h.5obrk7n45hk3 but I think it would be better with a dedicated collaborative document. Draft for a table of content: * How to get around ensurance of responsibility etc.. * Can you reproduce a patent for non profit or private use? How do you work with or around licensures/certifications to provide safe care? (from :https://edgeryders.eu/en/woodbine-health-autonomy-center) * How do you interact with existing structures?",/post/5913,2016-11-26T21:20:21.000Z,2016-11-26T21:20:21.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1073 8276,v1.0,,"Don't incorporate If you are not a legal entity, you are obviously exempt from any authorization regime, bureaucracy requirements etc. Your scope for action is limited only by the freedom of individuals in your legal system.  On the downside, unincorporated initiatives cannot easily use some of the services that legal entity can. They canot hold a bank account, sign a contract, rent an office etc. They rely heavily on the good will of the people who believe in them to maintain coherence, even  more so than incorporated ones.  The Helliniko Community Clinic is an example of a very effective care initiative that has decided not to incorporate. ""Squat, then negotiate"" Many care projects need physical spaces, but buildings have an especially top-heavy regulatory regime in many countries. Rather than ask for authorizations, some groups find it easier to start  by illegally squatting their building of choice, then negotiating with the owner. The act of squatting creates a problem for the owner; an agreement with the squatters can be presented as the solution.  Belgium (and maybe other countries too?) has a legally attenuated contractual form for people and organisations to temporarily occupy buildings. One of its advantages: industrial spaces or office buildings can be temporarily repurposed as living quarters. Loic is an expert in this area – see here. Logic of this document Starting with a phrase from woodbine-health-autonomy-center   “This practice may involve working outside the structure of licenses, certifications and insurance. “ To my understanding of OpenCare, then this is the very essence. Breaking out of ‘failed institutions’ https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship while staying clear of trouble. As @markomanka remind us:  ...it will break.., but let's skip the simple logical stuff to which we all agree (Being ethical correct, Good Clinical Practice, Protect privacy, Helsinki declaration, Risk assessment…) and make some foothpaths in the illogical legal jungle, mapping the traps and dangerous animals. Let’s also stick to EU continent of bureaucratic beasts. Therefore this proposal of creating a living document to collect knowledge, references and safe practice (My initial title suggestion:) OpenCare Legal Evasion Guide or How to keep clear of lawsuits There is a start in the 100$ overview https://docs.google.com/document/d/1NKc2bM1FnpQ9zCEveieFr7bIGA9JkI8U_adsBpyma1A/edit#heading=h.5obrk7n45hk3 but I think it would be better with a dedicated collaborative document. Draft for a table of content: * How to get around ensurance of responsibility etc.. * Can you reproduce a patent for non profit or private use? How do you work with or around licensures/certifications to provide safe care? (from :https://edgeryders.eu/en/woodbine-health-autonomy-center) * How do you interact with existing structures?",/post/5913,2016-11-26T21:20:13.000Z,2016-11-26T21:20:13.000Z,5913,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5880,1074 7274,v1.0,,"Masters of Networks is open to all, and especially friendly to beginners. Patients, network scientists, doctors, hackers and so on all have something to contribute. But in the end we are all experts in this domain. We all give and receive care in the course of our lives, and all humans are expert conversationalists.  There's an extra bonus for beginners: networks are easy to visualize. And when you visualize them, as we will, they are often beautiful and intuitive.",/post/5260,2016-11-26T21:01:51.000Z,2016-11-26T21:01:51.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,797 8635,v1.0,,"To do this, we study result-oriented conversations. Conversations are networks: people are its nodes, and the exchanges are its links. It you don't believe us, click here to explore the Edgeryders conversation network (allow a few seconds for the data to download). But conversations are networks also in another sense: each exchange contains some concepts. Example of concepts useful in care are: well-being, syringe, diabethes, fitness, prosthetics, etc. We can represent concept in a conversation as a network. Concepts themselves are its nodes; two concepts are linked if they are in the same exchange.  Person-to-person conversation networks tell us who is talking to whom. Are there individuals who act as ""hubs""? Why? Can we use hubs to improve the process, for example asking them to spread important knowledge?  Concept-to-concept conversation networks tell us how the different concepts connect to each other. Are there surprises? Do apparently unrelated concepts tend to come up in the same exchanges? Anomalies might mean something interesting is going on. In fact, spotting anomalies is how John Snow invented epidemiology in 1854.  The fascinating part is this: by looking at the network, we can extract information that no individual in the network has. The whole is greater than the sum of the parts. Collective intelligence!  How We look at conversation data taken from Edgeryders and build them into a network. We use open source software for network analysis. We then visualize and interrogate the network to see what we can learn. Our final aim is to prototype methodologies for extracting collective intelligent outcomes from conversations. One great output from the workshop would be to unleash our imagination, and specify design & requirements: What views works best? It'll be useful to build it as a mockup if we do not already have it -- use color pens, paper, clips, cardboard and build it into a mock-up! For what tasks? Do we need to move things around? Pile them up to trigger comparison of things on-the-fly? Lasso an item to trigger some computation? -- use post-it notes, cut and paste pieces of paper, draw arrows to turn tasks into real actions (on a screen!). Using what ingredient (data)? What should we feed the system with to accomplish these analytical tasks? -- write them down, cut & paste, associate them with specific tasks, embed them into views. The workshop is a unique opportunity to have a design participatory workshop -- we want it to be a source of inspiration to design and build the next generation EdgeSense dashboard!",/post/5260,2016-11-26T21:00:52.000Z,2016-11-26T21:00:52.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1143 9973,v1.0,,"One question: by ""solidarity"" do you mean a formal association or something more loosely arranged through a kind of self-identification?",/post/26053,2016-11-25T23:40:40.000Z,2016-11-25T23:40:40.000Z,26053,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1445 7678,v1.0,,"This is a fascinating project.  I have alerted a close friend, an American journalist who has done important radio and print reporting on the refugees in Greece, to come have a look at this topic becfause of this specific project and because of the networking going on in this conversation. One question: by ""solidarity"" do you mean a formal association or something more loosely arranged through a kind of self-identification?",/post/26053,2016-11-25T23:40:33.000Z,2016-11-25T23:40:33.000Z,26053,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,914 8728,v1.0,,"Your plans sound great, let's speak again closer to the time that you come and see which groups/places/people you are interested in meeting here related to your project. Your services could be very beneficial to refugees so we can get you in contact with groups working with refugees or the social solidarity clinic of Thessaloniki which is another great initiative working on a community voluntary basis.",/post/25462,2016-11-25T23:40:20.000Z,2016-11-25T23:40:20.000Z,25462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1150 4475,v1.0,,"@ybe thanks for your kind words, i agree with what you are saying about these two factors and this is what i tried to highlight in my article! Your traumatour project also seems super interesting and it is very exciting to see that more people are planning to visit Thessaloniki with their projects in the future! I am in contact with people working in alternative health and spiritual health projects here in Greece so I could put you in contact with them, if you are interested.",/post/25250,2016-11-25T23:40:04.000Z,2016-11-25T23:40:04.000Z,25250,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,3 4974,v1.0,,2) because of the 'amplification' factor - you put a lot of energy in connecting different initiatives and projects and that is what we need to create general and global change,/post/24568,2016-11-25T23:39:45.000Z,2016-11-25T23:39:45.000Z,24568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,126 10224,v1.0,,2) because of the 'amplification' factor - you put a lot of energy in connecting different initiatives and projects and that is what we need to create general and global change,/post/24568,2016-11-25T23:39:35.000Z,2016-11-25T23:39:35.000Z,24568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1487 10297,v1.0,,"1) because of the involvement of refugees themselves - it is so empowering to be able to do something to improve your life, to have work, to have a life, an income and to be part of a community",/post/24568,2016-11-25T23:39:30.000Z,2016-11-25T23:39:30.000Z,24568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1505 5972,v1.0,,"Thanx for sharing @ChristinSa!  It could be nice to meet you! We run ""next door's"" project and we don't know each other. Now I think we have this chance. I'd like to know more details and how I can help.",/post/19561,2016-11-25T23:38:39.000Z,2016-11-25T23:38:39.000Z,19561,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,396 8409,v1.0,,"""In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad."" Do you have more information about this story, @ChristinSa ? It sounds amazing!",/post/19368,2016-11-25T23:38:22.000Z,2016-11-25T23:38:22.000Z,19368,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1108 10296,v1.0,,"I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.",/post/19544,2016-11-25T23:38:11.000Z,2016-11-25T23:38:11.000Z,19544,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1505 8408,v1.0,,"I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.",/post/19544,2016-11-25T23:37:55.000Z,2016-11-25T23:37:55.000Z,19544,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1108 10463,v1.0,,"I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.",/post/19544,2016-11-25T23:37:44.000Z,2016-11-25T23:37:44.000Z,19544,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1556 10272,v1.0,,"What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.",/post/15996,2016-11-25T23:37:18.000Z,2016-11-25T23:37:18.000Z,15996,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1499 4973,v1.0,,"What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.",/post/15996,2016-11-25T23:37:12.000Z,2016-11-25T23:37:12.000Z,15996,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,126 8323,v1.0,,"What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.",/post/15996,2016-11-25T23:37:00.000Z,2016-11-25T23:37:00.000Z,15996,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1083 7677,v1.0,,"What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.",/post/15996,2016-11-25T23:36:50.000Z,2016-11-25T23:36:50.000Z,15996,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,914 10295,v1.0,,"In all these places, it was very encouraging to see what can be achieved when determination of refugees and solidarity from activists/volunteers is combined in a self-organised and impulsive way. In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad.",/post/15996,2016-11-25T23:36:39.000Z,2016-11-25T23:36:39.000Z,15996,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1505 8727,v1.0,,"The Jungle behaves the way it does because it is not an official camp. It's more like a favela: the first stop in a migrant's social journey, which mostly goes upwards in the social ladder. So, refugees are more free to cooperate, R2R, then they would be in an official camp. Their ingenuity and skills come into play: they make their own lives better, and become empowered at the same time. Your own story, it seems, goes much in the same direction.",/post/9184,2016-11-25T23:35:45.000Z,2016-11-25T23:35:45.000Z,9184,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1150 7518,v1.0,,"One last but very important point is that the funds for this ambitious project are being raised through an international campaign of crowdfunding in both euros and faircoins, which are being used to cover incomes of the refugees working in the project and their home rent. Being a cooperative initiative, this means that all the incomes are being equally distributed among the members, currently four in number, three men from Gambia, Egypt and Morocco, and a woman from Syria.",/post/792,2016-11-25T23:32:35.000Z,2016-11-25T23:32:35.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,876 6248,v1.0,,"One last but very important point is that the funds for this ambitious project are being raised through an international campaign of crowdfunding in both euros and faircoins, which are being used to cover incomes of the refugees working in the project and their home rent. Being a cooperative initiative, this means that all the incomes are being equally distributed among the members, currently four in number, three men from Gambia, Egypt and Morocco, and a woman from Syria.",/post/792,2016-11-25T23:32:28.000Z,2016-11-25T23:32:28.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,444 7946,v1.0,,"In Thessaloniki and more generally in Greece, there is currently a rise of the cooperative movement, especially as a result of the effects of the ongoing economic crisis, but unfortunately these new initiatives are up to now largely disconnected from each other. To create links between them, means to expand the spaces where solidarity is being practiced, in other words to fill the gaps with ever-increasing solidarity! My role in this project as an activist is to work closely with the group of refugees and locals to support the building of the project which requires a lot of work on communication and cooperation, in order to continue and expand successfully. As an independent researcher, I have presented the results of this ongoing project at a conference in Lesvos and hope to continue documenting its progress as well as to explore other similar initiatives in Greece.",/post/792,2016-11-25T23:32:16.000Z,2016-11-25T23:32:16.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,981 7466,v1.0,,"The building of a network of alternative economy is being supported by FairCoop on a global level, and in the area of Thessaloniki it seems to be of special value as it can be directed to service needs of refugees. It is certainly not an easy task to achieve and it requires a lot of networking and cooperation, but already a cooperative store and collectives of producers are participating, while there is interest and plans for more to join very soon. What is also very important is that the cooperative stores participating in this network distribute high quality food products, produced by fellow cooperatives in Greece or imported through fair trade distributions channels.",/post/792,2016-11-25T23:32:04.000Z,2016-11-25T23:32:04.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,855 4639,v1.0,,"The project is inspiring in its own right, but what makes it even more important and intriguing, is the fact that it is further linked with the efforts to create a new, fair and solidarity economy on a larger scale. Having such a vision, the group of refugees and solidary comrades that are supporting them on this, have built a collaborative network between the cooperative R2R call center and cooperative grocery stores in the area of Thessaloniki, where the refugee operators of the call center can cover most of their food and other basic needs, using a digital, alternative currency that is called Faircoin.",/post/792,2016-11-25T23:31:45.000Z,2016-11-25T23:31:45.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,41 5141,v1.0,,"The project is inspiring in its own right, but what makes it even more important and intriguing, is the fact that it is further linked with the efforts to create a new, fair and solidarity economy on a larger scale. Having such a vision, the group of refugees and solidary comrades that are supporting them on this, have built a collaborative network between the cooperative R2R call center and cooperative grocery stores in the area of Thessaloniki, where the refugee operators of the call center can cover most of their food and other basic needs, using a digital, alternative currency that is called Faircoin.",/post/792,2016-11-25T23:31:34.000Z,2016-11-25T23:31:34.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,154 4972,v1.0,,"Strong solidarity networks already exist within the cities, in which teams of lawyers, doctors, translators and networks of families offering hospitality in their homes, are offering voluntary support and practical solutions, whenever needed.",/post/792,2016-11-25T23:31:18.000Z,2016-11-25T23:31:18.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,126 7676,v1.0,,"Strong solidarity networks already exist within the cities, in which teams of lawyers, doctors, translators and networks of families offering hospitality in their homes, are offering voluntary support and practical solutions, whenever needed.",/post/792,2016-11-25T23:31:09.000Z,2016-11-25T23:31:09.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,914 10294,v1.0,,"This cooperative project is called ‘Refugees to Refugees (R2R) Solidarity Call Center’ and it is a project run by refugees for fellow refugees. Its objective is to provide information and advice for various kinds of issues related to either transit, temporary stay or settlement of refugees in Thessaloniki, but also in wider Greece. At the same time, through its services, it hopes to create linkages between refugee communities and the wider solidarity movement, in order to break the exclusion and isolation that refugees are feeling, as a result of being crammed in concentration camps. Strong solidarity networks already exist within the cities, in which teams of lawyers, doctors, translators and networks of families offering hospitality in their homes, are offering voluntary support and practical solutions, whenever needed.",/post/792,2016-11-25T23:30:53.000Z,2016-11-25T23:30:53.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1505 6040,v1.0,,"This is what is happening with a visionary project that is linking alternative and cooperative economy with the needs of refugees in Thessaloniki, Greece. It is a project of a group of people interested in the building of a cooperative economy network, in which I participate as an activist and a researcher of alternative economy. Having completed my PhD in economics in the last spring, I am now interested in continuing research, exploring links between solidarity economy and refugee solidarity movements in wider Greece.",/post/792,2016-11-25T23:30:37.000Z,2016-11-25T23:30:37.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,415 8726,v1.0,,"This is what is happening with a visionary project that is linking alternative and cooperative economy with the needs of refugees in Thessaloniki, Greece. It is a project of a group of people interested in the building of a cooperative economy network, in which I participate as an activist and a researcher of alternative economy. Having completed my PhD in economics in the last spring, I am now interested in continuing research, exploring links between solidarity economy and refugee solidarity movements in wider Greece.",/post/792,2016-11-25T23:30:28.000Z,2016-11-25T23:30:28.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1150 8322,v1.0,,"When it comes to social care, it is important to create links between the social movements, in a way they continuously support and feed back to each other, finding solutions that are creative, radical and practical at the same time.",/post/792,2016-11-25T23:30:20.000Z,2016-11-25T23:30:20.000Z,792,3323,AnnotatorStore::TextAnnotation,,,,,,,,,759,1083 4728,v1.0,,"I am very moved by your story and I like the idea of including 'a wish' in every backpack so much. It reminds me of this project: https://www.facebook.com/weshallstandforlove/ of a fiend or me in Brussel: Dorothy Oger wrote the poem We shall stand for love in the aftermath of the Brussels terror attacks, and then the poem went viral and was translated in many many languages and now it is distributed for free on postcards with enough space to add a personal message;",/post/20831,2016-11-25T23:28:14.000Z,2016-11-25T23:28:14.000Z,20831,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,62 6106,v1.0,,"I am very moved by your story and I like the idea of including 'a wish' in every backpack so much. It reminds me of this project: https://www.facebook.com/weshallstandforlove/ of a fiend or me in Brussel: Dorothy Oger wrote the poem We shall stand for love in the aftermath of the Brussels terror attacks, and then the poem went viral and was translated in many many languages and now it is distributed for free on postcards with enough space to add a personal message;",/post/20831,2016-11-25T23:28:03.000Z,2016-11-25T23:28:03.000Z,20831,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,430 7022,v1.0,,"In passing: I think we are looking at diversity trumps ability. When an activist-designer-manufacturer like you, a material scientist like @trythis and an open source hacker like @Matthias get on a task, it acquires incredible depth. I am reading your lists and thinking not only ""how generous!"" but ""how clever!"" and even ""wow, this is cool"".",/post/18440,2016-11-25T23:27:52.000Z,2016-11-25T23:27:52.000Z,18440,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,734 5708,v1.0,,"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?",/post/15649,2016-11-25T23:27:33.000Z,2016-11-25T23:27:33.000Z,15649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,361 6961,v1.0,,"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?",/post/15649,2016-11-25T23:27:18.000Z,2016-11-25T23:27:18.000Z,15649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,726 7955,v1.0,,"I would not want to dismiss methods from the past completely. Certainly many of them don't work very well, may be blindsided, or out of touch with realities. So I agree one should not accept them as last word on the issues (and note I may sound more drastic on this if I had seen official approach fail on the Greek Islands for months) - there sure is a necessity for trying out new things. Still official policies often have some useful elements to them (also depends on how far into the past one wants to look).",/post/13506,2016-11-25T23:27:08.000Z,2016-11-25T23:27:08.000Z,13506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,982 7959,v1.0,,"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?",/post/15649,2016-11-25T23:26:57.000Z,2016-11-25T23:26:57.000Z,15649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,983 7191,v1.0,,"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?",/post/15649,2016-11-25T23:26:50.000Z,2016-11-25T23:26:50.000Z,15649,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,775 11341,v1.0,,"I would not want to dismiss methods from the past completely. Certainly many of them don't work very well, may be blindsided, or out of touch with realities. So I agree one should not accept them as last word on the issues (and note I may sound more drastic on this if I had seen official approach fail on the Greek Islands for months) - there sure is a necessity for trying out new things. Still official policies often have some useful elements to them (also depends on how far into the past one wants to look).",/post/13506,2016-11-25T23:26:20.000Z,2016-11-25T23:26:20.000Z,13506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1812 7190,v1.0,,That is in part why I looked at ways of short term organization and info dissemination. The other thing that would be helpful and perhaps realistic for some poeple at least is to try to be able to provide a useful service during such emergencies.,/post/13506,2016-11-25T23:26:03.000Z,2016-11-25T23:26:03.000Z,13506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,775 6412,v1.0,,That is in part why I looked at ways of short term organization and info dissemination. The other thing that would be helpful and perhaps realistic for some poeple at least is to try to be able to provide a useful service during such emergencies.,/post/13506,2016-11-25T23:25:58.000Z,2016-11-25T23:25:58.000Z,13506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,477 7112,v1.0,,"If you want to integrate activities that help prepare yourself for an acute or creeping emergency I think in many ways going camping, hiking, or something like the boy scouts are helpful to get people started. Basically you get used to the idea of getting by with less infrastructure. This of course does not address the myriad of other issues you may be facing, which can require quite different preparations.",/post/13506,2016-11-25T23:25:46.000Z,2016-11-25T23:25:46.000Z,13506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,766 10462,v1.0,,"If you want to integrate activities that help prepare yourself for an acute or creeping emergency I think in many ways going camping, hiking, or something like the boy scouts are helpful to get people started. Basically you get used to the idea of getting by with less infrastructure. This of course does not address the myriad of other issues you may be facing, which can require quite different preparations.",/post/13506,2016-11-25T23:25:30.000Z,2016-11-25T23:25:30.000Z,13506,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1556 9206,v1.0,,I think it's useless to repeat methods from the past. We have to think out of the box and create new ways of reaction. We can use all this survival kit lists just for wring/sift and/or update them. The point is not an endless list that nobody wants to read it but to find ways to train the people through their daily routines. And only a few things should be prepared especially for emergencies.,/post/13505,2016-11-25T23:25:13.000Z,2016-11-25T23:25:13.000Z,13505,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1269 8936,v1.0,,I think it's useless to repeat methods from the past. We have to think out of the box and create new ways of reaction. We can use all this survival kit lists just for wring/sift and/or update them. The point is not an endless list that nobody wants to read it but to find ways to train the people through their daily routines. And only a few things should be prepared especially for emergencies.,/post/13505,2016-11-25T23:25:09.000Z,2016-11-25T23:25:09.000Z,13505,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1201 5803,v1.0,,"Make a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half ""upwards"" and half ""downwards"".",/post/13504,2016-11-25T23:24:56.000Z,2016-11-25T23:24:56.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,377 11503,v1.0,,"I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the ""professional care & aid circus"" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.",/post/13504,2016-11-25T23:24:41.000Z,2016-11-25T23:24:41.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1861 11207,v1.0,,"I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the ""professional care & aid circus"" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.",/post/13504,2016-11-25T23:24:33.000Z,2016-11-25T23:24:33.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1768 5853,v1.0,,"I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the ""professional care & aid circus"" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.",/post/13504,2016-11-25T23:24:21.000Z,2016-11-25T23:24:21.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,378 9236,v1.0,,"My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific ""type"" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as ""album art"" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement ""xyz""). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.",/post/13504,2016-11-25T23:24:04.000Z,2016-11-25T23:24:04.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1271 10511,v1.0,,"My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific ""type"" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as ""album art"" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement ""xyz""). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.",/post/13504,2016-11-25T23:23:52.000Z,2016-11-25T23:23:52.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1565 8867,v1.0,,"My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific ""type"" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as ""album art"" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement ""xyz""). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.",/post/13504,2016-11-25T23:23:47.000Z,2016-11-25T23:23:47.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1179 7189,v1.0,,"For example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. ""Where there is no Doctor"", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.",/post/13504,2016-11-25T23:23:20.000Z,2016-11-25T23:23:20.000Z,13504,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,775 7517,v1.0,,"http://translate.google.com/translate?hl=en&sl=auto&tl=en&u=http%3A%2F%2Fwordpress.katastrophennetz.de%2F I would expect they could also point out funding opportunities. Perhaps one could divert some anti-terror money to useful activities in resilience? A simple way would be to coordinate with some of them: http://wordpress.katastrophennetz.de/masterstudiengaenge/ for a master thesis project. He was in charge of ""cross border support workshop""  (I'll update if I find something English, this is Austrian-German), and works with the gov civil protection.",/post/13500,2016-11-25T23:22:41.000Z,2016-11-25T23:22:41.000Z,13500,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,876 7631,v1.0,,"""Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed."" (this comes from the radiation guys who are somewhat important historically).",/post/13499,2016-11-25T23:22:29.000Z,2016-11-25T23:22:29.000Z,13499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,906 7945,v1.0,,"""Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed."" (this comes from the radiation guys who are somewhat important historically). Also they see the need to coordinate better within the EU as quite simple events (big fire, toxic chemicals released) can overwhelm national stockpiles easily - especially if there were a series of such events. So if the event you plan could include this as a facet, then I think this could be potentially be budgeted. Also, here is a German centered (intl at bottom) list of emergency reaction organizations (mostly centered around ""Civil Protection"") and some other relevant organizations. If your event allows for it, I could try and see if there are a few that would be interested in dialing in and listening to how your discussion is going. Perhaps they could also answer some questions that may come up.",/post/13499,2016-11-25T23:22:23.000Z,2016-11-25T23:22:23.000Z,13499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,981 7188,v1.0,,"""Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed."" (this comes from the radiation guys who are somewhat important historically).",/post/13499,2016-11-25T23:22:07.000Z,2016-11-25T23:22:07.000Z,13499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,775 6411,v1.0,,"This guide is one of the reasons I decided to establish the assosiation ""Cosmus diy"" (the bureaucracy part). Most of the people here have experience at Idomeni and still have at the camps. But I think it must be more wide. Not only about the refugees' wave or about a specific place/country. Maybe a few things can be the same but every place should have a diffirent guide. And then we can map and add people and skills or knowlenge.I also have an idea about the clothing problem and how we can do ""smart balls"" with clothes anywhere This is more complicated and I think it needs a video.",/post/13497,2016-11-25T23:21:35.000Z,2016-11-25T23:21:35.000Z,13497,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,477 10782,v1.0,,"This guide is one of the reasons I decided to establish the assosiation ""Cosmus diy"" (the bureaucracy part). Most of the people here have experience at Idomeni and still have at the camps. But I think it must be more wide. Not only about the refugees' wave or about a specific place/country. Maybe a few things can be the same but every place should have a diffirent guide. And then we can map and add people and skills or knowlenge.I also have an idea about the clothing problem and how we can do ""smart balls"" with clothes anywhere This is more complicated and I think it needs a video.",/post/13497,2016-11-25T23:21:28.000Z,2016-11-25T23:21:28.000Z,13497,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1646 8634,v1.0,,"I've toyed a lot with the idea of having two-stage events, where the travel becomes part of the (optional) first stage. For example if we meet somewhere in/around Athens for the second stage, you can have a distributed first stage start in Izmir (and continue on the ferry to Athens), or on/around some of the airports that fly into Athens (may not be the best example as air travel is very fractured time, unlike train or ferry). Just a thought.  Alternatively one could try to do 1-2 prior hangouts where we use Edgesense (and of course human input) to either stirr the pot, or find close matches (as people prefer). If feel like meetings can be far more helpful if we already warm people up beforehand and not go in ""cold turkey"". Also, people who cannot attend physically can still help with the hangout organizaton - and can try to partner up with an ""agent"" who will be attending physically.",/post/13483,2016-11-25T23:21:16.000Z,2016-11-25T23:21:16.000Z,13483,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1143 10781,v1.0,,This kind of input really is helpful and i can already see a 'Citizens guide to supporting people in an emergency' style document that contains these kinds of ideas and responces.,/post/13477,2016-11-25T23:20:55.000Z,2016-11-25T23:20:55.000Z,13477,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1646 9288,v1.0,,"They key will be to get lots of people who have experience of working with refugees already, together with lots of people who have useful experience from other areas of life. Then both sides can bounce off each other. I still think that a hackathon like this would be best suited to taking place in Greece or Italy, where the incoming flow is still increasing and there is a high likelihood that another disaster may occur (i'm thinking about the recent Italian Earthquakes).",/post/13477,2016-11-25T23:20:48.000Z,2016-11-25T23:20:48.000Z,13477,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1283 7338,v1.0,,"They key will be to get lots of people who have experience of working with refugees already, together with lots of people who have useful experience from other areas of life. Then both sides can bounce off each other.",/post/13477,2016-11-25T23:18:27.000Z,2016-11-25T23:18:27.000Z,13477,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,811 6410,v1.0,,This kind of input really is helpful and i can already see a 'Citizens guide to supporting people in an emergency' style document that contains these kinds of ideas and responces.,/post/13477,2016-11-25T23:18:18.000Z,2016-11-25T23:18:18.000Z,13477,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,477 6409,v1.0,,"Regarding organization I had some thoughts (but mostly focused on immediately after a disaster) which may be more helpful for the refugees to get a little more organized (and perhaps interface with you better). It is a heuristic approach, so it is not intended to produce the optimal or ideal res",/post/13409,2016-11-25T23:17:58.000Z,2016-11-25T23:17:58.000Z,13409,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,477 8454,v1.0,,For (DIY) backpacks which hold a little more here is an interesting channel: https://youtu.be/q8j051J51O8?list=PLZLagqylZ3j6bLG7hwcwE28Max5Kd9ZE-&t=564 this specific version may also work with the inline skate rolls without too much work.,/post/13409,2016-11-25T23:17:30.000Z,2016-11-25T23:17:30.000Z,13409,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1121 10223,v1.0,,If you want to upscale cost effectively you may have to look outside of the traditional materials selections. Something that is durable and available at large scale is Tyvek. I have an outer layer for a sleeping bag to make it rainproof which I suspect is of very similar material.,/post/13409,2016-11-25T23:17:21.000Z,2016-11-25T23:17:21.000Z,13409,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1487 6408,v1.0,,"Try to use a combination of images and text, a little like a meme. The image is most important (says more than 1000 words) and will ideally explain most of the things that have been discussed in many hours before. Ideally the people who are really deep into the topic do a thorough image search and you pool them together, and then photoshop or redraw. Of course one image (even if it is very good) can't explain everything, that is why you need a little text (english, greek, arabic probably). Similar to this (called ""exploded view) or this (but so you can photocopy it - so brighter and increased contrast) or this (the words explain the ""why"" not the item, if it is too difficult use another illustration). You may want to have one page for as a sort of inventory and one page as a sort of manual (e.g. there is a lot you can do with the space blanket that needs a little extra info (maybe Lizzie could also check the list?)).",/post/12568,2016-11-25T23:16:36.000Z,2016-11-25T23:16:36.000Z,12568,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,477 7337,v1.0,,"@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered  to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it's more complicate than it seems. The people want to help but very often the misunderstand  the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word ""crocs"" and use the word ""clogs"" because many people thought I'm trying to advertise them). Especially for this, a woman from a ""...welcome"" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn't ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it's easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it's ....hard to explain...",/post/11600,2016-11-25T23:16:22.000Z,2016-11-25T23:16:22.000Z,11600,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,811 9263,v1.0,,"@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered  to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it's more complicate than it seems. The people want to help but very often the misunderstand  the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word ""crocs"" and use the word ""clogs"" because many people thought I'm trying to advertise them). Especially for this, a woman from a ""...welcome"" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn't ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it's easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it's ....hard to explain...",/post/11600,2016-11-25T23:16:13.000Z,2016-11-25T23:16:13.000Z,11600,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1282 8325,v1.0,,"@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered  to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it's more complicate than it seems. The people want to help but very often the misunderstand  the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word ""crocs"" and use the word ""clogs"" because many people thought I'm trying to advertise them). Especially for this, a woman from a ""...welcome"" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn't ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it's easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it's ....hard to explain...",/post/11600,2016-11-25T23:16:01.000Z,2016-11-25T23:16:01.000Z,11600,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1084 8324,v1.0,,"*The winter list for children: Small backpack, waterproof poncho, aluminum blanket, flashlight, socks, rain boots, sports shoes or plastic clogs, underwear, a tracksuit or a change of clothes, cap, gloves, scarves, lunch box, plastic spoon, fork, knife, a bottle of water, cookies, nuts, dried fruit or other snacks, wet wipes (small package), tissues, toothbrush, samples (of sunscreen, shampoo, toothpaste etc.), a toy, note or drawing pads, crayons, pencil, sharpener, eraser, a whistle and a wish (!!) (We also ask for big scarves to use them as ring sling baby carriers or as sheets)",/post/550,2016-11-25T23:15:24.000Z,2016-11-25T23:15:24.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1084 11547,v1.0,,"More than 1/5 of donations is unsuitable for the refugees, thus is channeled to other vulnerable groups directly or in cooperation with already existing structures.",/post/550,2016-11-25T23:14:42.000Z,2016-11-25T23:14:42.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1869 11295,v1.0,,"Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.",/post/550,2016-11-25T23:14:33.000Z,2016-11-25T23:14:33.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1792 4998,v1.0,,"Most of the volunteers gave up, burned out or feeling unable to help. Meanwhile the main responsible for this failure get paid.",/post/550,2016-11-25T23:14:09.000Z,2016-11-25T23:14:09.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,130 11490,v1.0,,"More than 1/5 of donations is unsuitable for the refugees, thus is channeled to other vulnerable groups directly or in cooperation with already existing structures.",/post/550,2016-11-25T23:14:03.000Z,2016-11-25T23:14:03.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1860 9972,v1.0,,“Could humanitarianism be evolved as a profession or it could be a new way of living?”,/post/550,2016-11-25T23:13:55.000Z,2016-11-25T23:13:55.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1445 10780,v1.0,,"In addition, it’s important to develop a survival handbook with the aim to provide “how-to” guidance based on practical experience in combination with academic knowledge. And the challenge is to respond to all these arisen questions. Or add new.",/post/550,2016-11-25T23:13:48.000Z,2016-11-25T23:13:48.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1646 10411,v1.0,,"In addition, it’s important to develop a survival handbook with the aim to provide “how-to” guidance based on practical experience in combination with academic knowledge. And the challenge is to respond to all these arisen questions. Or add new.",/post/550,2016-11-25T23:13:36.000Z,2016-11-25T23:13:36.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1540 7187,v1.0,,"We should focus on organizing and training ourselves for cases of emergency. Based on the strength of these sharing communities, we should work, in innovative ways, which could bring people together around common concerns, recognize and increase their skills and knowledge and instill in them a belief that they can make a difference.",/post/550,2016-11-25T23:13:22.000Z,2016-11-25T23:13:22.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,775 5802,v1.0,,"In conclusion, the refugee crisis gave rise to a strong solidarity network and also an opportunity for local communities and the society in total. An innovative strategic plan seems to be a necessity, in order to coordinate and manage all the available resources successfully.",/post/550,2016-11-25T23:13:11.000Z,2016-11-25T23:13:11.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,377 7675,v1.0,,"In conclusion, the refugee crisis gave rise to a strong solidarity network and also an opportunity for local communities and the society in total. An innovative strategic plan seems to be a necessity, in order to coordinate and manage all the available resources successfully.",/post/550,2016-11-25T23:13:02.000Z,2016-11-25T23:13:02.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,914 8201,v1.0,,"Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.",/post/550,2016-11-25T23:12:53.000Z,2016-11-25T23:12:53.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1052 8195,v1.0,,"Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.",/post/550,2016-11-25T23:12:43.000Z,2016-11-25T23:12:43.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1049 7630,v1.0,,"Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.",/post/550,2016-11-25T23:12:27.000Z,2016-11-25T23:12:27.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,906 5503,v1.0,,"It’s noteworthy that if we focus on specific issues we can come to interesting conclusions e.g. Public misinformation by “official” announcements that were based on internet searching or common knowledge about clothing. As a result, there was a shortage of A-shirts (tank tops) while, considered useless, thousands of used socks were gathered although it costs less to buy new ones. Also, acrylic socks were suggested as the most appropriate. But when there’s no luxury of changing them anytime, other materials are more suitable like; wool, bamboo, cotton, tactel etc. Obviously, a problem, arisen from common everyday items, is more complicated than initially thought and requires an expert's opinion. So, without surprise, no one reached out to experts from the clothing sector for professional advice and assistance. Moreover both government and UNHCR ignored any proposals or contact efforts.",/post/550,2016-11-25T23:12:21.000Z,2016-11-25T23:12:21.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,321 5502,v1.0,,"Due to my profession as a fashion designer and manufacturer, when I heard about all those calls for clothing needs I started wondering who will manage all these diverse supplies. When facing a disaster, food and medical aid are considered top priorities but it’s not widely known that wearing inappropriate clothing under extreme conditions can become life threatening.",/post/550,2016-11-25T23:12:06.000Z,2016-11-25T23:12:06.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,321 7958,v1.0,,"It’s also notable that many conferences, workshops or unofficial brainstorming meetings took place and new technology-oriented groups were created.  New ideas and solutions were proposed and innovative applications were developed from people all over the world. However, most of those didn’t fall on fertile ground for wide use, thus must be investigated thoroughly in the future.",/post/550,2016-11-25T23:11:55.000Z,2016-11-25T23:11:55.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,983 7957,v1.0,,"On the other hand, citizens reacted vigorously and passionately despite the fact that they didn’t mobilize immediately.",/post/550,2016-11-25T23:11:45.000Z,2016-11-25T23:11:45.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,983 7629,v1.0,,"Why weren't we ready? Why didn't governments, NGO’s and independent groups cooperate? And when they did, what happened?",/post/550,2016-11-25T23:11:18.000Z,2016-11-25T23:11:18.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,906 10152,v1.0,,"Why weren't we ready? Why didn't governments, NGO’s and independent groups cooperate? And when they did, what happened?",/post/550,2016-11-25T23:11:12.000Z,2016-11-25T23:11:12.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1466 9971,v1.0,,Is there any kind of system in the world that could cope with that amount of people?,/post/550,2016-11-25T23:11:06.000Z,2016-11-25T23:11:06.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1445 9970,v1.0,,"What was wrong and why didn't anyone know how to react or to organize? Why weren't we ready? Why didn't governments, NGO’s and independent groups cooperate? And when they did, what happened? What socks are most appropriate for their long trek? How can we fit all the necessary items in a backpack? And what about the weight? How can we gather the right clothing from the world? Have you ever try to sort thousands of clothes? Is it true that women from Syria didn’t want to wear rain boots? And what about UNHCR’s wool blanket? And all those tons of food wrappers, wet wipes, bottles...?",/post/550,2016-11-25T23:11:00.000Z,2016-11-25T23:11:00.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1445 11395,v1.0,,"I post the list in my private facebook profile. I couldn’t imagine the impact of this simple action. In a few days people were coming to my place, bringing bags full of nearly everything! Friends, neighbors or strangers were coming to help. We‘ve been preparing backpacks and sending them to Idomeni, to the islands or anywhere they were needed. Many schools adopted the idea and soon the campaign went viral. In around 8 months, hundreds of people became mobilized and focused on helping this endless wave.",/post/550,2016-11-25T23:10:52.000Z,2016-11-25T23:10:52.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1832 9257,v1.0,,"And then I saw that photo. A young woman with her two frightened children hanging onto her arms. Walking to nowhere, barefoot. Beyond endurance, angry but determined to survive the crush. Fearless, though! Imperious! I got angry. I stood beside her, out there in the dust. I'm just one step away from being like her. That moment I realized that there isn’t any Deus ex Machina to save them. To save us. So, I started thinking… What would I need if I were there? What should I carry to help my children withstand it? What should I bring with me for a little break? ...and their feet! What will happen to their feet? And the sun? It's hard being a parent in peace. In war and in refuge, only a hero.",/post/550,2016-11-25T23:10:33.000Z,2016-11-25T23:10:33.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1279 7933,v1.0,,"What would I need if I were there? What should I carry to help my children withstand it? What should I bring with me for a little break? ...and their feet! What will happen to their feet? And the sun? It's hard being a parent in peace. In war and in refuge, only a hero.",/post/550,2016-11-25T23:10:18.000Z,2016-11-25T23:10:18.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,977 6105,v1.0,,"My grandmother came to mind and her story as a refugee child from the area of Pontos (Northern Turkey) in 1922. I just couldn’t believe that something like that could happen again. Despite the fact that Greece, in the throes of its worst ever financial crisis, was straining to accommodate the inflow, most Greek islanders were doing their best. But still there was an ominous feeling in the air.",/post/550,2016-11-25T23:09:25.000Z,2016-11-25T23:09:25.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,430 9471,v1.0,,Summer 2015. It was nearly the end of August when Kos Island turned into a battlefield during a registration procedure. Hundreds of protesting migrants demanding quick registration began blocking the main coastal road. The local police attempted to break up the crowd with batons and by spraying foam with fire extinguishers. An officer was being filmed slapping and shoving migrants queueing outside the local police station.,/post/550,2016-11-25T23:09:15.000Z,2016-11-25T23:09:15.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1320 8725,v1.0,,Summer 2015. It was nearly the end of August when Kos Island turned into a battlefield during a registration procedure. Hundreds of protesting migrants demanding quick registration began blocking the main coastal road. The local police attempted to break up the crowd with batons and by spraying foam with fire extinguishers. An officer was being filmed slapping and shoving migrants queueing outside the local police station.,/post/550,2016-11-25T23:09:09.000Z,2016-11-25T23:09:09.000Z,550,3323,AnnotatorStore::TextAnnotation,,,,,,,,,517,1150 10112,v1.0,,"@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.",/post/24150,2016-11-25T23:03:38.000Z,2016-11-25T23:03:38.000Z,24150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1451 10271,v1.0,,"@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.",/post/24150,2016-11-25T23:03:28.000Z,2016-11-25T23:03:28.000Z,24150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1499 7808,v1.0,,"@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.",/post/24150,2016-11-25T23:03:18.000Z,2016-11-25T23:03:18.000Z,24150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,948 5129,v1.0,,"In Lesvos and many other of the Greek islands flooding with refugees this past year, numerous young idealistic volunteers arrived from all over Europe wanting to make a difference in the lives of others. Some of these individuals under the circumstances, after a few weeks, not being able to bear the situation, which was physically but above all mentally exhausting ended up, being burnt out and rather than provide help  required themselves psychological  assistance. This was ultimately very distracting for the rescue teams and those providing PFA who needed to focus on the refugees instead.   I guess what i am saying is selfcare in whatever form it takes,  is a prerequisite in order to be able to carry on the difficult task of volunteering in such harsh conditions otherwise you may be burnt out .",/post/22549,2016-11-25T23:03:09.000Z,2016-11-25T23:03:09.000Z,22549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,150 10270,v1.0,,"Can't disagree with what you write @Village-Psy and the solution found in Calais seems to be training for self care and making your mind catch up with the program somehow. Because I'm sure anyone rational can agree self care is important, but managing emotions and urges is something for another side of your brain..",/post/22795,2016-11-25T22:57:25.000Z,2016-11-25T22:57:25.000Z,22795,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1499 5219,v1.0,,"i agree that self care has become a luxury for volunteers (no time, too many tasks to tackle , unprecedented situations) especially under circumstances such as the one Alex @Levene desribes in Calais, but let us not forget of the burnt out effect. And when we reach that stage we are of  no help to anyone....  Self care should not be a luxury.  As volunteers, we are  human beings who need the basics to get by, we need water,  food, shelter , sleep , safety and human contact but  in order to carry on we also need to know where to draw our limits. We are not superhuman, we cannot do everything, we cannot do everything by ourselves. In Lesvos and many other of the Greek islands flooding with refugees this past year, numerous young idealistic volunteers arrived from all over Europe wanting to make a difference in the lives of others. Some of these individuals under the circumstances, after a few weeks, not being able to bear the situation, which was physically but above all mentally exhausting ended up, being burnt out and rather than provide help  required themselves psychological  assistance. This was ultimately very distracting for the rescue teams and those providing PFA who needed to focus on the refugees instead.   I guess what i am saying is selfcare in whatever form it takes,  is a prerequisite in order to be able to carry on the difficult task of volunteering in such harsh conditions otherwise you may be burnt out .",/post/22549,2016-11-25T22:54:32.000Z,2016-11-25T22:54:32.000Z,22549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,208 10269,v1.0,,"i agree that self care has become a luxury for volunteers (no time, too many tasks to tackle , unprecedented situations) especially under circumstances such as the one Alex @Levene desribes in Calais, but let us not forget of the burnt out effect. And when we reach that stage we are of  no help to anyone....  Self care should not be a luxury.  As volunteers, we are  human beings who need the basics to get by, we need water,  food, shelter , sleep , safety and human contact but  in order to carry on we also need to know where to draw our limits. We are not superhuman, we cannot do everything, we cannot do everything by ourselves. In Lesvos and many other of the Greek islands flooding with refugees this past year, numerous young idealistic volunteers arrived from all over Europe wanting to make a difference in the lives of others. Some of these individuals under the circumstances, after a few weeks, not being able to bear the situation, which was physically but above all mentally exhausting ended up, being burnt out and rather than provide help  required themselves psychological  assistance. This was ultimately very distracting for the rescue teams and those providing PFA who needed to focus on the refugees instead.   I guess what i am saying is selfcare in whatever form it takes,  is a prerequisite in order to be able to carry on the difficult task of volunteering in such harsh conditions otherwise you may be burnt out .",/post/22549,2016-11-25T22:54:15.000Z,2016-11-25T22:54:15.000Z,22549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1499 5218,v1.0,,"i agree that self care has become a luxury for volunteers (no time, too many tasks to tackle , unprecedented situations) especially under circumstances such as the one Alex @Levene desribes in Calais, but let us not forget of the burnt out effect. And when we reach that stage we are of  no help to anyone....",/post/22549,2016-11-25T22:54:04.000Z,2016-11-25T22:54:04.000Z,22549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,208 10268,v1.0,,"i agree that self care has become a luxury for volunteers (no time, too many tasks to tackle , unprecedented situations) especially under circumstances such as the one Alex @Levene desribes in Calais, but let us not forget of the burnt out effect. And when we reach that stage we are of  no help to anyone....",/post/22549,2016-11-25T22:53:59.000Z,2016-11-25T22:53:59.000Z,22549,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1499 10267,v1.0,,@Village-Psy maybe you can help us understand why self care is so expensive for one to offer it to herself. Have you read about the 24/7 caregivers who simply can't switch off? If you have something to offer to that discussion and would be willing to head over there it would be very well received.,/post/21911,2016-11-25T22:49:11.000Z,2016-11-25T22:49:11.000Z,21911,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1499 5121,v1.0,,@Village-Psy maybe you can help us understand why self care is so expensive for one to offer it to herself. Have you read about the 24/7 caregivers who simply can't switch off? If you have something to offer to that discussion and would be willing to head over there it would be very well received.,/post/21911,2016-11-25T22:49:06.000Z,2016-11-25T22:49:06.000Z,21911,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,149 5128,v1.0,,"Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.",/post/7782,2016-11-25T22:48:49.000Z,2016-11-25T22:48:49.000Z,7782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,150 5120,v1.0,,"Maybe one thing to consider is that volunteers also need to feel at some point  'taken care of ' ,so providing  the helpers with some sort of 'help' of a different kind than the one they are offering, can be very beneficial in using them longterm. From our experience from village-psy this summer the dynamic that is created in a small community is huge when all  the parties involved feel that they are taken care of. There are many ways to help the helpers. One  that could work could be finding other volunteers to do some art/music or dramatherapy workshops so that  people offering their practical  skills in the venture can get something in return that is challenging, stimulating and in a different way  supportive  to them.  This is just a suggestion, i am sure there will be many more...",/post/20496,2016-11-25T22:48:36.000Z,2016-11-25T22:48:36.000Z,20496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,149 5127,v1.0,,"Maybe one thing to consider is that volunteers also need to feel at some point  'taken care of ' ,so providing  the helpers with some sort of 'help' of a different kind than the one they are offering, can be very beneficial in using them longterm. From our experience from village-psy this summer the dynamic that is created in a small community is huge when all  the parties involved feel that they are taken care of. There are many ways to help the helpers. One  that could work could be finding other volunteers to do some art/music or dramatherapy workshops so that  people offering their practical  skills in the venture can get something in return that is challenging, stimulating and in a different way  supportive  to them.  This is just a suggestion, i am sure there will be many more...",/post/20496,2016-11-25T22:48:29.000Z,2016-11-25T22:48:29.000Z,20496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,150 6235,v1.0,,The idea of an inventory of human assets  where everyone can contribute reminds us  of how small communities function best.It sounds like this   year you  found a pool of  competent people with various skills to tackle quick and practical solutions for the vulnerable population you were handling. Now that the refugee crisis is no longer so much in the forefront  fewer people are helping out voluntarily and as you say there is a crisis in the refugee care area.,/post/20496,2016-11-25T22:48:19.000Z,2016-11-25T22:48:19.000Z,20496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,442 10111,v1.0,,you  found a pool of  competent people with various skills to tackle quick and practical solutions for the vulnerable population you were handling. Now that the refugee crisis is no longer so much in the forefront  fewer people are helping out voluntarily and as you say there is a crisis in the refugee care area.,/post/20496,2016-11-25T22:48:14.000Z,2016-11-25T22:48:14.000Z,20496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1451 10502,v1.0,,"At the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to fail because they have no social or political capital to diminish, except with the people they work with directly. This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.",/post/19227,2016-11-25T22:47:59.000Z,2016-11-25T22:47:59.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1561 10501,v1.0,,how small communities function best.I,/post/20496,2016-11-25T22:47:48.000Z,2016-11-25T22:47:48.000Z,20496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1561 8724,v1.0,,"It sounds like you have been tremendously active  in  the refugee crisis over the past year  and  it is good to hear that although the summer interval has meant that many of the volunteers have disappeared, you are not being discouraged, but rather you are thinking of new ways to keep the venture going.",/post/20496,2016-11-25T22:47:29.000Z,2016-11-25T22:47:29.000Z,20496,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1150 7628,v1.0,,"At the same time citizens were either sitting under tarps in the rain, complaining about a lack of water (while not catching the rainwater!), or standing in very long lines at the government water truck that could only serve 1 person at a time because no one had thought of a manifold.",/post/19228,2016-11-25T22:47:18.000Z,2016-11-25T22:47:18.000Z,19228,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,906 5971,v1.0,,"@aravellasalonikidou Hello Aravella , I am in the middle of organizing and planning my tour to Greece. I would like to fix date(s) with you. What do you need from me? What could I offer? To the Thessaloniki projects you're in i? Maybe have a skype conversation this week? I would like to fix dates for the beginning of december. Would that be allright with you?",/post/26039,2016-11-25T22:46:56.000Z,2016-11-25T22:46:56.000Z,26039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,396 7956,v1.0,,"What is required is a way of feeding the experiences and innovation prototyped by the improvised, citizen-led organisation into the institutional learning of NGOs",/post/19227,2016-11-25T22:46:38.000Z,2016-11-25T22:46:38.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,983 11489,v1.0,,"What is required is a way of feeding the experiences and innovation prototyped by the improvised, citizen-led organisation into the institutional learning of NGOs",/post/19227,2016-11-25T22:46:05.000Z,2016-11-25T22:46:05.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1860 9205,v1.0,,"At the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to fail because they have no social or political capital to diminish, except with the people they work with directly. This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.",/post/19227,2016-11-25T22:45:50.000Z,2016-11-25T22:45:50.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1269 10151,v1.0,,"The French government's reluctance to acknowledge the legitimacy of the Calais camp has created a vacuum. So, NGOs have struggled to work in that area. Because they cannot work under license, they cannot reduce the suffering there, except on a micro scale. Perhaps the idea of sub-optimality in the system comes back to a wider idea. One that is floating around in other areas of the site, that of 'unlicensed behavior'. Once an organisation or NGO becomes 'legitimate', it tends to deal with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly). It becomes more constrained to do things 'the correct way' and less able to focus on doing what is required.",/post/19227,2016-11-25T22:45:09.000Z,2016-11-25T22:45:09.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1466 8241,v1.0,,"Perhaps the idea of sub-optimality in the system comes back to a wider idea. One that is floating around in other areas of the site, that of 'unlicensed behavior'. Once an organisation or NGO becomes 'legitimate', it tends to deal with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly). It becomes more constrained to do things 'the correct way' and less able to focus on doing what is required.",/post/19227,2016-11-25T22:44:57.000Z,2016-11-25T22:44:57.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1073 7627,v1.0,,"The French government's reluctance to acknowledge the legitimacy of the Calais camp has created a vacuum. So, NGOs have struggled to work in that area. Because they cannot work under license, they cannot reduce the suffering there, except on a micro scale.",/post/19227,2016-11-25T22:44:38.000Z,2016-11-25T22:44:38.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,906 6960,v1.0,,"It seems that this is true in cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa) The above examples are plans for disasters that occur frequently and regularly in places that share a geographic similarity or border. It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.",/post/19227,2016-11-25T22:44:23.000Z,2016-11-25T22:44:23.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,726 10150,v1.0,,"But, in order for us to 'leave it to the professional' there have to be NGO's willing, and able to step into that role in the space. What has happened in Greece and Calais is we have seen NGOs step up initially, but then step back from the problem. Often because they cannot work with the changing political situation. I am thinking here of MSF pulling out of Lesvos after the EU-Turkey repatriation deal occurred. (http://www.msf.org.uk/article/why-is-msf-closing-its-moria-project-on-lesvos)",/post/19227,2016-11-25T22:44:16.000Z,2016-11-25T22:44:16.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1466 6104,v1.0,,"It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.",/post/19227,2016-11-25T22:44:04.000Z,2016-11-25T22:44:04.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,430 6103,v1.0,,"It seems that this is true in cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa)",/post/19227,2016-11-25T22:43:51.000Z,2016-11-25T22:43:51.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,430 10747,v1.0,,"Just a few thoughts on suboptimality to hopefully drive the discussion around this topic. It is the case from Alberto's comment that ""fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans"" It seems that this is true in cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa) The above examples are plans for disasters that occur frequently and regularly in places that share a geographic similarity or border. It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas. But, in order for us to 'leave it to the professional' there have to be NGO's willing, and able to step into that role in the space. What has happened in Greece and Calais is we have seen NGOs step up initially, but then step back from the problem. Often because they cannot work with the changing political situation. I am thinking here of MSF pulling out of Lesvos after the EU-Turkey repatriation deal occurred. (http://www.msf.org.uk/article/why-is-msf-closing-its-moria-project-on-lesvos) The French government's reluctance to acknowledge the legitimacy of the Calais camp has created a vacuum. So, NGOs have struggled to work in that area. Because they cannot work under license, they cannot reduce the suffering there, except on a micro scale. Perhaps the idea of sub-optimality in the system comes back to a wider idea. One that is floating around in other areas of the site, that of 'unlicensed behavior'. Once an organisation or NGO becomes 'legitimate', it tends to deal with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly). It becomes more constrained to do things 'the correct way' and less able to focus on doing what is required. When there isn't a precident for dealing with a disaster on the scale or in that location two options remain. Either improvise or adapt. Both options work with sub-optimality from different directions.  The NGO is most likely to adapt. They will find solutions used in other areas, or to address different problems, and adapt them to the new situation. These solutions are 'tried and tested' and so they can point to evidence that shows where they have worked in the past. The NGO avoids looking bad if this approach fails, because they can show ways it has worked before. Their cultural and political capital stays strong and they can work on a new response in the long term. I expect that the lessons learned by MSF et al during this decade's refugee crisis in Europe will lead to contingency plans that will be used around the globe in the future. They struggle to deal with the problem in real time though. At the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to fail because they have no social or political capital to diminish, except with the people they work with directly. This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece. What is required is a way of feeding the experiences and innovation prototyped by the improvised, citizen-led organisation into the institutional learning of NGOs",/post/19227,2016-11-25T22:43:34.000Z,2016-11-25T22:43:34.000Z,19227,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1637 10746,v1.0,,I think there's a lot to be said about suboptimality when it come to care and response. I will have a think and put some words together for you.,/post/19222,2016-11-25T22:43:23.000Z,2016-11-25T22:43:23.000Z,19222,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1637 10745,v1.0,,"""So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help""",/post/19203,2016-11-25T22:43:03.000Z,2016-11-25T22:43:03.000Z,19203,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1637 10744,v1.0,,"What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.",/post/19161,2016-11-25T22:42:55.000Z,2016-11-25T22:42:55.000Z,19161,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1637 10615,v1.0,,"What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.",/post/19161,2016-11-25T22:42:33.000Z,2016-11-25T22:42:33.000Z,19161,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1603 10614,v1.0,,"""So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help"" this is definitely the case at the Calais camp",/post/19203,2016-11-25T22:42:24.000Z,2016-11-25T22:42:24.000Z,19203,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1603 10942,v1.0,,@Franca Locati mentioned something I couldn't forget: she says you can sometimes help someone too much,/post/19161,2016-11-25T22:41:11.000Z,2016-11-25T22:41:11.000Z,19161,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1695 8723,v1.0,,"@Franca Locati mentioned something I couldn't forget: she says you can sometimes help someone too much. She was refering to the way organisations work in providing services for newcomers. You two should definitely connect, Franca worked for quite some time in the Italian system of refugee reception, for the City of Milano, and managed to set up a platform for connecting a lot of language teaching organisations around to make a more coherent service to the people needing it.",/post/19161,2016-11-25T22:41:03.000Z,2016-11-25T22:41:03.000Z,19161,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1150 10110,v1.0,,"What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.",/post/19161,2016-11-25T22:40:50.000Z,2016-11-25T22:40:50.000Z,19161,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1451 8198,v1.0,,"What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.",/post/19161,2016-11-25T22:40:42.000Z,2016-11-25T22:40:42.000Z,19161,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1050 10222,v1.0,,"In the language we use here in Edgeryders, you are working on a community and documentation for it to operate on common knowledge. There are also opencare's main elements. This is the community equivalent of what venture capitalists call ""scaling"". You extend your reach, but without large money investment and unwieldy hierarchies.",/post/18433,2016-11-25T22:40:26.000Z,2016-11-25T22:40:26.000Z,18433,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1487 5692,v1.0,,"In the language we use here in Edgeryders, you are working on a community and documentation for it to operate on common knowledge. There are also opencare's main elements. This is the community equivalent of what venture capitalists call ""scaling"". You extend your reach, but without large money investment and unwieldy hierarchies.",/post/18433,2016-11-25T22:40:18.000Z,2016-11-25T22:40:18.000Z,18433,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,357 5093,v1.0,,"At the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can ""play"" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called ""smart boxes"" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...",/post/17482,2016-11-25T22:39:59.000Z,2016-11-25T22:39:59.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,147 7674,v1.0,,"At the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can ""play"" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called ""smart boxes"" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...",/post/17482,2016-11-25T22:39:52.000Z,2016-11-25T22:39:52.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,914 10109,v1.0,,"@Noemi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way. But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could  make a general call and most of the NGO's worked separately. We 've tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.",/post/17482,2016-11-25T22:39:37.000Z,2016-11-25T22:39:37.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1451 7186,v1.0,,". But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could  make a general call and most of the NGO's worked separately. We 've tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.",/post/17482,2016-11-25T22:39:28.000Z,2016-11-25T22:39:28.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,775 7185,v1.0,,"At the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can ""play"" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called ""smart boxes"" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...",/post/17482,2016-11-25T22:39:18.000Z,2016-11-25T22:39:18.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,775 6234,v1.0,,"At the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can ""play"" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called ""smart boxes"" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...",/post/17482,2016-11-25T22:39:12.000Z,2016-11-25T22:39:12.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,442 8722,v1.0,,"very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal. I wonder:",/post/14969,2016-11-25T22:38:53.000Z,2016-11-25T22:38:53.000Z,14969,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1150 8721,v1.0,,mi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way,/post/17482,2016-11-25T22:37:38.000Z,2016-11-25T22:37:38.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1150 6233,v1.0,,"At the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can ""play"" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called ""smart boxes"" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...",/post/17482,2016-11-25T22:37:25.000Z,2016-11-25T22:37:25.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,442 10941,v1.0,,there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way,/post/17482,2016-11-25T22:37:19.000Z,2016-11-25T22:37:19.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1695 10149,v1.0,,NGO's worked separately,/post/17482,2016-11-25T22:36:39.000Z,2016-11-25T22:36:39.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1466 8194,v1.0,,"@Noemi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way. But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could  make a general call and most of the NGO's worked separately. We 've tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.  At the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can ""play"" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called ""smart boxes"" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...",/post/17482,2016-11-25T22:36:27.000Z,2016-11-25T22:36:27.000Z,17482,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1049 9568,v1.0,,"I realise it's a lot to expect though, I imagine coping with an unpredictable situation already takes a lot of effort.",/post/14969,2016-11-25T22:35:38.000Z,2016-11-25T22:35:38.000Z,14969,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1345 11312,v1.0,,"I realise it's a lot to expect though, I imagine coping with an unpredictable situation already takes a lot of effort.",/post/14969,2016-11-25T22:35:33.000Z,2016-11-25T22:35:33.000Z,14969,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1801 9969,v1.0,,"with so many diverse community efforts, haven't there been any events where active people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?",/post/14969,2016-11-25T22:32:36.000Z,2016-11-25T22:32:36.000Z,14969,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1445 10907,v1.0,,"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.",/post/7782,2016-11-25T22:32:14.000Z,2016-11-25T22:32:14.000Z,7782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1680 5970,v1.0,,@ybe I'd like to know when will you visit Greece. I think it will be helpfull for the team.,/post/13540,2016-11-25T22:31:56.000Z,2016-11-25T22:31:56.000Z,13540,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,396 5969,v1.0,,@ybe thank you for your interest! I' d like to know more about your work but there something wrong with the link. Could you repeat it?,/post/11310,2016-11-25T22:31:49.000Z,2016-11-25T22:31:49.000Z,11310,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,396 5119,v1.0,,"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.",/post/7782,2016-11-25T22:31:32.000Z,2016-11-25T22:31:32.000Z,7782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,149 8551,v1.0,,"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.",/post/7782,2016-11-25T22:31:13.000Z,2016-11-25T22:31:13.000Z,7782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1140 10897,v1.0,,"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.",/post/7782,2016-11-25T22:31:07.000Z,2016-11-25T22:31:07.000Z,7782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1679 11230,v1.0,,"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.",/post/7782,2016-11-25T22:30:59.000Z,2016-11-25T22:30:59.000Z,7782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1772 9467,v1.0,,"6:03 because when the Ugandan police force 6:06 was rebranded as the Ugandan National 6:09 Police a lot of people said to the 6:12 inspector general who is basically the 6:13 chief officer why not the Ugandan police 6:16 service and his reply was cross and i 6:20 quote cops are not waitresses",/post/29959,2016-11-25T22:22:50.000Z,2016-11-25T22:22:50.000Z,29959,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1319 9567,v1.0,,"I'd like to explicitly, out loud, acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich discussion on artistic education, creative angst and vulnerability in various professions and particularly how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large influence the wellbeing of our professional self. What depth!",/post/32290,2016-11-25T22:18:43.000Z,2016-11-25T22:18:43.000Z,32290,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1345 9632,v1.0,,"I'd like to explicitly, out loud, acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich discussion on artistic education, creative angst and vulnerability in various professions and particularly how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large influence the wellbeing of our professional self. What depth!",/post/32290,2016-11-25T22:18:30.000Z,2016-11-25T22:18:30.000Z,32290,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1366 6192,v1.0,,"I'd like to explicitly, out loud, acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich discussion on artistic education, creative angst and vulnerability in various professions and particularly how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large influence the wellbeing of our professional self. What depth!",/post/32290,2016-11-25T22:18:22.000Z,2016-11-25T22:18:22.000Z,32290,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 7094,v1.0,,"There seems to be some interesting stuff happening in fringe genres, like erotica and my favourite, hard sci-fi. But yes, that's anecdotal. I have dropped out of studying that stuff since, and moved onto greener pastures. Which itself is a kind of anecdotal analysis.  ""Long tail"" markets would feature many niches, each one with the economies of scale in consumption aforementioned, but making space for more artists just by virtue of being many. So your question is theoretically valid, but I do not know the answer.",/post/32276,2016-11-25T22:17:04.000Z,2016-11-25T22:17:04.000Z,32276,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,759 8357,v1.0,,"""Long tail"" markets would feature many niches, each one with the economies of scale in consumption aforementioned, but making space for more artists just by virtue of being many. So your question is theoretically valid, but I do not know the answer.",/post/32276,2016-11-25T22:16:50.000Z,2016-11-25T22:16:50.000Z,32276,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1094 8356,v1.0,,"Interesting economic analysis, @Alberto. Is there any evidence that the 'long tail' effect is changing things in artistic 'markets'?",/post/32275,2016-11-25T22:16:41.000Z,2016-11-25T22:16:41.000Z,32275,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1094 7093,v1.0,,"There were a lot of promises a few years back that the internet would make many more people able to be sustainable successful at a smaller scale [curating a fanbase of a few thousand fanatically-loyal people, say, while presumably supplementing income from art with other jobs and roles], and I know of a few anecdotal examples of artists doing just that, but my general impression is that those promises were not delivered on.",/post/32275,2016-11-25T22:16:20.000Z,2016-11-25T22:16:20.000Z,32275,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,759 9635,v1.0,,"By way of conclusion - I'm 30 now and I've been practicing self-deceit and strategic thinking, in turns, for more than 5 years now. Reading your story, Alberto (thanks a lot @Noemi for the introduction, that was quite a read!), worries me that I have some time left for at least one shift",/post/32270,2016-11-25T21:37:38.000Z,2016-11-25T21:37:38.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1367 9634,v1.0,,"Oh, you have plenty of time. I left professional music at 34. It was a struggle to get back to being a freelance economist, but it could be done. After a few lean years, I got a breakthrough at the age of 41. When I turned 45, I took on an international job and left the country. Another two years later I co-founded Edgeryders, and this year, at 50, the transition from freelance economist to working full time for my own company seems complete. 30 years, you'll probably change your professional identity not one, but twice. In fact, Edgeryders exists in part to provide a ramp to people that want to do this stuff. I took it head on, but it does not have to be lke that. Noemi will tell you more about this if you are interested.",/post/32271,2016-11-25T21:37:21.000Z,2016-11-25T21:37:21.000Z,32271,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1367 9633,v1.0,,"The thing that is pretty scary to me is this idea of arriving at an end of it, figuring out where your path is gonna take you, or worse, like this guy in the video you shared says, discovering ""what you've been put on earth do do"". I think starting off with that mindset is freakish..",/post/32274,2016-11-25T21:37:13.000Z,2016-11-25T21:37:13.000Z,32274,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1367 5515,v1.0,,The other item I fould almost universally helpful and reconiling is a list of cognitive biases. For me it very much drives home the point that the mind really is a very messy thing that is quite dismal at some tasks and quite impressive at others. And we are probably very lucky there is a good deal of variation between people.,/post/32272,2016-11-25T21:28:04.000Z,2016-11-25T21:28:04.000Z,32272,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,324 6191,v1.0,,The other item I fould almost universally helpful and reconiling is a list of cognitive biases. For me it very much drives home the point that the mind really is a very messy thing that is quite dismal at some tasks and quite impressive at others. And we are probably very lucky there is a good deal of variation between people.,/post/32272,2016-11-25T21:27:58.000Z,2016-11-25T21:27:58.000Z,32272,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 6190,v1.0,,"I am not someone who enjoys writing a whole lot, but let me share two items. The Dunning-Kruger effect probably explains some of this. It works indirectly though: Literacy is something that tends to draw an intelligent crowd. Those people tend to read material produced by other relatively intelligent people. If you decide you also have something to contribute, you will often feel like you'd better not be one of the worst of authors (even though for mere mortals there may not be a realistic way around that - as most people just need the practice). That means people who actually decide to write are a tiny minority and probably quite far from the average. So in short: writing does not produce (particularly much) anxiety, but it tends to draw an anxiety plagued crowd. When I read how fairly prolific writers approach the task (journalists on reddit, or academics for scientific proposals) I was shocked by the lack of rigor and decorum.",/post/32272,2016-11-25T21:27:51.000Z,2016-11-25T21:27:51.000Z,32272,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 7807,v1.0,,"In our current line of work there is some of the persistent, low-level panic of the artist's work, because there are fads in consultancy, and people hustle, and it's important to be seen in the right places. But the market is NOT winner-takes-it-all. Companies need help, and they can't all get the top ten guys in the business, because those guys can only sell 100% of their time.",/post/32271,2016-11-25T21:27:36.000Z,2016-11-25T21:27:36.000Z,32271,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,948 10717,v1.0,,"In our current line of work there is some of the persistent, low-level panic of the artist's work, because there are fads in consultancy, and people hustle, and it's important to be seen in the right places. But the market is NOT winner-takes-it-all. Companies need help, and they can't all get the top ten guys in the business, because those guys can only sell 100% of their time.",/post/32271,2016-11-25T21:27:30.000Z,2016-11-25T21:27:30.000Z,32271,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 8550,v1.0,,"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It’s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit",/post/32270,2016-11-25T21:27:14.000Z,2016-11-25T21:27:14.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 8597,v1.0,,"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It’s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit",/post/32270,2016-11-25T21:27:09.000Z,2016-11-25T21:27:09.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 10716,v1.0,,"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It’s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit",/post/32270,2016-11-25T21:27:04.000Z,2016-11-25T21:27:04.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 9968,v1.0,,"One question that crosses my mind: how much of this is penetrating within the non-creative spheres as side-effect of the creative turn, the requirement for creativity, the curated self, etc.?",/post/32270,2016-11-25T21:25:27.000Z,2016-11-25T21:25:27.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1445 9631,v1.0,,"Noemi, you phrased it wonderfully talking about the pressures of ""how to carry yourself in the world"" as an artist. In particular, the fact that the distinction or the separation between art and life, professional and personal evaporate within the arts (from creators to art professionals) would be a generous source of tension.",/post/32270,2016-11-25T21:25:21.000Z,2016-11-25T21:25:21.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1366 9630,v1.0,,"Besides this intrinsic source of anxiety, which, again, I'm quite uninformed about, I see a few more layers. As you were saying, Alberto, a strong one would be the characteristics of the winner-takes-it-all labor markets, and others might hover between the two, like self-belief, identity issues etc. I imagine a tension, a dynamic.",/post/32270,2016-11-25T21:25:12.000Z,2016-11-25T21:25:12.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1366 6189,v1.0,,"As useful and valid this is, I think it explains things only in part. One idea that comes to mind is the notoriously anxiety-inducing profession of writing. There seems to be something intrinsic about the creative craft that makes people doubt themselves completely. The tyranny of the white page could be well found in the white canvas …",/post/32270,2016-11-25T21:25:00.000Z,2016-11-25T21:25:00.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 9541,v1.0,,"So, the theory you mentioned and the article you recommended are new to me and I find they describe aspects of the arts-market relationship, amongst others, very accurately. Thank you for sharing this with me! Before reading these, I was thinking about how creative fields and other professions, like sports, have some similar stress sources, and this was confirmed and explained by the superstar economy theory.",/post/32270,2016-11-25T21:24:51.000Z,2016-11-25T21:24:51.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1337 11477,v1.0,,"Before reading these, I was thinking about how creative fields and other professions, like sports, have some similar stress sources, and this was confirmed and explained by the superstar economy theory.",/post/32270,2016-11-25T21:24:48.000Z,2016-11-25T21:24:48.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1853 9566,v1.0,,"Now, you really do not want to work in a labour market that makes superstars. Whoever you are, probability says that you are almost certainly a loser in the race. That's extremely stress inducing. But artists do work there. And so do others, as you point out.",/post/32197,2016-11-25T21:24:29.000Z,2016-11-25T21:24:29.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1345 9565,v1.0,,"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It’s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit",/post/32270,2016-11-25T21:24:23.000Z,2016-11-25T21:24:23.000Z,32270,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1345 9629,v1.0,,"I don't know if market skewness explains it all - it certainly makes sense. But from what people are saying here, it also has to do with professional identity and some ideas attached to it telling you what you should do as an artist or how to carry yourself in the world -which creates anxiety.",/post/32237,2016-11-25T21:24:10.000Z,2016-11-25T21:24:10.000Z,32237,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1366 7806,v1.0,,"I don't know if market skewness explains it all - it certainly makes sense. But from what people are saying here, it also has to do with professional identity and some ideas attached to it telling you what you should do as an artist or how to carry yourself in the world -which creates anxiety.",/post/32237,2016-11-25T21:23:58.000Z,2016-11-25T21:23:58.000Z,32237,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,948 6188,v1.0,,"Tentative conclusion. Maybe it's not creativity that is stressful: it's the characteristics of winner-takes-it-all labor markets, including the one for artists. Implications: hard call. I fully appreciate that being creative in your spare time is limiting. But so is being poor, scared and stressed out. My own choice was relatively easy, given that I was obviously no artistic genius, and other things interested me just as much as music: I got the hell out of it after making it to midlevel (gold record in a secondary market such as Italy), but not to stardom",/post/32197,2016-11-25T21:23:49.000Z,2016-11-25T21:23:49.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 11476,v1.0,,"Tentative conclusion. Maybe it's not creativity that is stressful: it's the characteristics of winner-takes-it-all labor markets, including the one for artists. Implications: hard call. I fully appreciate that being creative in your spare time is limiting. But so is being poor, scared and stressed out. My own choice was relatively easy, given that I was obviously no artistic genius, and other things interested me just as much as music: I got the hell out of it after making it to midlevel (gold record in a secondary market such as Italy), but not to stardom",/post/32197,2016-11-25T21:23:43.000Z,2016-11-25T21:23:43.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1853 9540,v1.0,,"Another key point in artists’ lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.",/post/32092,2016-11-25T21:23:24.000Z,2016-11-25T21:23:24.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1337 9539,v1.0,,"Now, you really do not want to work in a labour market that makes superstars. Whoever you are, probability says that you are almost certainly a loser in the race. That's extremely stress inducing. But artists do work there. And so do others, as you point out.",/post/32197,2016-11-25T21:23:14.000Z,2016-11-25T21:23:14.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1337 11475,v1.0,,"Another key point in artists’ lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.",/post/32092,2016-11-25T21:23:00.000Z,2016-11-25T21:23:00.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1853 11474,v1.0,,"Trained as an economist, having been a professional musician for several years in the 1990s, I looked up economic literature about the arts. The intuition most relevant to your point (and the whole thread) is this: art is defined by economies of scale in consumption. It works like this. Imagine you like classic two guitars-bass-drums rock music. Well, that technology scales really well: you can enjoy a rock concert in a bar with an audience of 30 people, or in a football stadium with an audience of 80,000. The costs of giving a concert increases in the size of the audience, but much slower than the ticket revenues. If you double your audience, your profit does not double: it goes up fourfold, or even tenfold, depends on where you start. Markets with these characteristics are called winner-takes-it-all: they produce few superstars, with everyone else doing badly (Rosen's classic 1981 paper). While stars tend to be very talented people, it is simple to build a model that takes performers with identical characteristics, and then makes one or a few of them superstars, and discards the others. Initial lucky breaks are reinforced by the success-breeds-success dynamics. We need a hairdresser every ten blocks, because people go to different hairdressers. But very few stars, because we all watch/listen to/read the same ones.",/post/32197,2016-11-25T21:22:50.000Z,2016-11-25T21:22:50.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1853 7092,v1.0,,"Trained as an economist, having been a professional musician for several years in the 1990s, I looked up economic literature about the arts. The intuition most relevant to your point (and the whole thread) is this: art is defined by economies of scale in consumption. It works like this. Imagine you like classic two guitars-bass-drums rock music. Well, that technology scales really well: you can enjoy a rock concert in a bar with an audience of 30 people, or in a football stadium with an audience of 80,000. The costs of giving a concert increases in the size of the audience, but much slower than the ticket revenues. If you double your audience, your profit does not double: it goes up fourfold, or even tenfold, depends on where you start. Markets with these characteristics are called winner-takes-it-all: they produce few superstars, with everyone else doing badly (Rosen's classic 1981 paper). While stars tend to be very talented people, it is simple to build a model that takes performers with identical characteristics, and then makes one or a few of them superstars, and discards the others. Initial lucky breaks are reinforced by the success-breeds-success dynamics. We need a hairdresser every ten blocks, because people go to different hairdressers. But very few stars, because we all watch/listen to/read the same ones.",/post/32197,2016-11-25T21:22:28.000Z,2016-11-25T21:22:28.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,759 7805,v1.0,,particularly that of artists sharing some of those stress-inducing working conditions with non-artists. You mention art workers; where I come from (Italy) there is similar talk around freelancers.,/post/32197,2016-11-25T21:22:04.000Z,2016-11-25T21:22:04.000Z,32197,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,948 10726,v1.0,,"But to conclude, I’d say that once clarified what aspects you guys are more interested in working with, there would be specific/ specialized ways to enable care and help. It might be that it is not even relevant if the creative field is more prone to anxiety than others, but wanting to reduce these big emotional costs would require a particular approach, one that suits the idiosyncrasies of the field. I’d be very interested to contribute within my own area of knowledge and experience - I say there’s a strong need for open care structures here.",/post/32092,2016-11-25T21:21:44.000Z,2016-11-25T21:21:44.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 4726,v1.0,,"But to conclude, I’d say that once clarified what aspects you guys are more interested in working with, there would be specific/ specialized ways to enable care and help. It might be that it is not even relevant if the creative field is more prone to anxiety than others, but wanting to reduce these big emotional costs would require a particular approach, one that suits the idiosyncrasies of the field. I’d be very interested to contribute within my own area of knowledge and experience - I say there’s a strong need for open care structures here.",/post/32092,2016-11-25T21:21:35.000Z,2016-11-25T21:21:35.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 7804,v1.0,,"I can only speak for the contemporary art scene, which is the one I’m part of and not for theatre or other subdomains of the creative field. I see two main directions in the discussion so far. First, there’s the question of creativity and anxiety being intertwined, and how to identify the moment when this anxiety crosses over to a dangerous zone for the artist; also, if this link is a given, how would we go about trying to keep an artist in the safety zone without hindering the creative dimension. Going back to what has been noted so far, the idea of the artist as troubled soul is rooted in the romantic definition of the artist, which I think has long been overcome within contemporary art (and made room for other sources of angst). Nevertheless, apart from this dated, unhealthy perspective, there might be an actual connection between the artistic predisposition and emotional volatility. I haven’t read any studies on this topic, though I suppose this is a strong area of research and only after making sense of the results we might be able to think of strategies for improvement. These might be seen as issues concerning the psychology of arts, which I’m not at all familiar with. Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I’m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist’s own sense of identity as an artist), market/ commercialization contamination and so on. At one point in his article The Curatorial Muse, Michael J. Kowalski writes: “It is acknowledged, though not often discussed in polite company until the third drink, that the arts are defined by the same Darwinian savagery as any another profession. It is also acknowledged that the aspiration of art to beauty and truth is a pious fiction, but in the best possible sense of the word. Finally, and crucially, it's acknowledged that these two characteristics of art are seriously and permanently at odds with one another”. - (http://www.contempaesthetics.org) One important idea here is to note that these are not concerning artists only, but art workers in general. It’s difficult for me to say if the levels of anxiety are higher in art that in other professions. A good point was made earlier that these might be found in any other field. My impression is, though, that fields in which creativity is profoundly linked with identity will always make for a more stressful environment. And for those that already identify with the psichological pressures of creativity, this later layer might be just too much to handle. Just a few more personal notes: in my discussions with artists I found that many drop out from University because they can’t take the pressure. It might be helpful to note that the myth of the emergent artist will bring the issues I identified before as pertaining to the sociology of art very early on in an artist’s life – from the first years of university. This young age, one that is related to learning, experimenting, trial and error, finding one’s path etc., has become a battlefield for launching careers. (My one experience brings this even earlier in life, being a child and a teenager trying to become a professional musician. I am one of those who could not handle the difficulties of a musical career at such an early stage in my life and lacking a good support system, so I quit. At present I work as a passionate art professional - curating, arts management, teaching, cultural PR - and I find the field highly demanding, but I feel I have more resources in myself to work my way through, than I did when I was a young musician.) Another key point in artists’ lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round. The other day I was listening to Sarah Thornton, a sociologist of art who was pointing out that ever since Duchamp, the freedom of the artist to fashion herself as an artist is a demigod position that puts a lot of pressure especially on artists finishing studies, whom are very much aware of the responsibility of designating themselves as artists. Many would not use the word artist, Thornton notes, and when asked what they do, they say “I do work…” Of course, older age comes with its own anxieties within the arts, namely the obsession with youth...",/post/32092,2016-11-25T21:21:21.000Z,2016-11-25T21:21:21.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,948 8901,v1.0,,"Another key point in artists’ lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.",/post/32092,2016-11-25T21:20:47.000Z,2016-11-25T21:20:47.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1194 8596,v1.0,,"fields in which creativity is profoundly linked with identity will always make for a more stressful environment. And for those that already identify with the psichological pressures of creativity, this later layer might be just too much to handle.",/post/32092,2016-11-25T21:20:16.000Z,2016-11-25T21:20:16.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 9564,v1.0,,"Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I’m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist’s own sense of identity as an artist), market/ commercialization contamination and so on.",/post/32092,2016-11-25T21:19:33.000Z,2016-11-25T21:19:33.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1345 10715,v1.0,,"Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I’m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist’s own sense of identity as an artist), market/ commercialization contamination and so on.",/post/32092,2016-11-25T21:19:00.000Z,2016-11-25T21:19:00.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 9628,v1.0,,"Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I’m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist’s own sense of identity as an artist), market/ commercialization contamination and so on.",/post/32092,2016-11-25T21:18:52.000Z,2016-11-25T21:18:52.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1366 6187,v1.0,,"First, there’s the question of creativity and anxiety being intertwined, and how to identify the moment when this anxiety crosses over to a dangerous zone for the artist; also, if this link is a given, how would we go about trying to keep an artist in the safety zone without hindering the creative dimension. Going back to what has been noted so far, the idea of the artist as troubled soul is rooted in the romantic definition of the artist, which I think has long been overcome within contemporary art (and made room for other sources of angst). Nevertheless, apart from this dated, unhealthy perspective, there might be an actual connection between the artistic predisposition and emotional volatility. I haven’t read any studies on this topic, though I suppose this is a strong area of research and only after making sense of the results we might be able to think of strategies for improvement. These might be seen as issues concerning the psychology of arts, which I’m not at all familiar with.",/post/32092,2016-11-25T21:18:27.000Z,2016-11-25T21:18:27.000Z,32092,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 6186,v1.0,,The theory @ybe has contributted is a very accurate example of the destructive narrative I was talking about in the first place.,/post/31535,2016-11-25T21:18:18.000Z,2016-11-25T21:18:18.000Z,31535,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 6185,v1.0,,"In general, I think of art and creativity as an expression of oneself, an expression of our inner world, our 'being' in the world, our being 'me'. Being authentic is by definition being different from others and thus coping with judgment,  the others , the outer world goes along with it. But I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.  This disconnection is trauma, the residu of pain. In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists.",/post/31148,2016-11-25T21:18:08.000Z,2016-11-25T21:18:08.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 10774,v1.0,,"There is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'.",/post/31148,2016-11-25T21:17:35.000Z,2016-11-25T21:17:35.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1642 8595,v1.0,,"There is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'.",/post/31148,2016-11-25T21:17:27.000Z,2016-11-25T21:17:27.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 10266,v1.0,,"Artists are often 'self-healers', they are their own therapists.",/post/31148,2016-11-25T21:17:06.000Z,2016-11-25T21:17:06.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1499 4725,v1.0,,"In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists.",/post/31148,2016-11-25T21:17:00.000Z,2016-11-25T21:17:00.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 11229,v1.0,,"But I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.",/post/31148,2016-11-25T21:16:55.000Z,2016-11-25T21:16:55.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1772 10714,v1.0,,"What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @Noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.",/post/31148,2016-11-25T21:15:10.000Z,2016-11-25T21:15:10.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 10725,v1.0,,"What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @Noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.",/post/31148,2016-11-25T21:15:06.000Z,2016-11-25T21:15:06.000Z,31148,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 10773,v1.0,,"if this is so generalized, what support systems are out there for artists then?",/post/30885,2016-11-25T21:14:20.000Z,2016-11-25T21:14:20.000Z,30885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1642 4724,v1.0,,do artistic collectives or platforms have a contribution to make here or rather more diverse social environments?,/post/30885,2016-11-25T21:13:48.000Z,2016-11-25T21:13:48.000Z,30885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 9967,v1.0,,"if this is so generalized, what support systems are out there for artists then? do artistic collectives or platforms have a contribution to make here or rather more diverse social environments?",/post/30885,2016-11-25T21:13:40.000Z,2016-11-25T21:13:40.000Z,30885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1445 6289,v1.0,,"Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.",/post/30885,2016-11-25T21:13:27.000Z,2016-11-25T21:13:27.000Z,30885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,449 6102,v1.0,,"Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.",/post/30885,2016-11-25T21:13:21.000Z,2016-11-25T21:13:21.000Z,30885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,430 4668,v1.0,,"Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.",/post/30885,2016-11-25T21:13:15.000Z,2016-11-25T21:13:15.000Z,30885,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,50 5852,v1.0,,"ut my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:13:04.000Z,2016-11-25T21:13:04.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,378 4723,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:12:45.000Z,2016-11-25T21:12:45.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 10758,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:12:34.000Z,2016-11-25T21:12:34.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1638 8594,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:12:24.000Z,2016-11-25T21:12:24.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 8549,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:12:16.000Z,2016-11-25T21:12:16.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 6184,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:12:10.000Z,2016-11-25T21:12:10.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 6288,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:12:06.000Z,2016-11-25T21:12:06.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,449 6101,v1.0,,"HI @noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment. I knew I had had enough when a very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way. While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role and how we teach art leads me to think that we in Europe need to overcome this tragical tradition. I wish I could give you more to pull the thead, I really am no expert!",/post/30608,2016-11-25T21:11:58.000Z,2016-11-25T21:11:58.000Z,30608,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,430 10523,v1.0,,Another thing that could make face to face meetings different is that you can smell the person and the environment. Also a LOT of our nervous system is connected to the stomach/digestive tract (the face and brain came way later!) so I would not be surprised if there is more purpose to business/conference dinners than to knock out the prefrontal cortex a little (althought that can also help).,/post/30502,2016-11-25T21:11:41.000Z,2016-11-25T21:11:41.000Z,30502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1566 9869,v1.0,,Another thing that could make face to face meetings different is that you can smell the person and the environment. Also a LOT of our nervous system is connected to the stomach/digestive tract (the face and brain came way later!) so I would not be surprised if there is more purpose to business/conference dinners than to knock out the prefrontal cortex a little (althought that can also help).,/post/30502,2016-11-25T21:11:23.000Z,2016-11-25T21:11:23.000Z,30502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1435 9868,v1.0,,"On face vs screen, etc. I think you are right that certain methods work better (or just more comfortably?) with some people (on some topics). You'll get different discussions and different outcomes. I think face to face helps my mirror neurons fire up fully. I often feel I can only really fully develop many aspects of a thought in a discussion. On the other hand I also like to listen to a recorded discussion afterwards and focus my thought much more on certain aspects without being afraid I have to answer some question or lose track of a discussion. I can be fully in observer mode and my thinking is much more like if I am editing someone else's text and want examine and fix every little bit of imprecision.",/post/30502,2016-11-25T21:11:15.000Z,2016-11-25T21:11:15.000Z,30502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1435 9624,v1.0,,"@Alberto s mention slipped the radar there. Funny enough I was just procrastinating by listening to a video on procastination. I think it is long and general enough that various people could get something out of it. Just to address the ""getting things done"" angle.",/post/30502,2016-11-25T21:11:06.000Z,2016-11-25T21:11:06.000Z,30502,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1364 9867,v1.0,,fully agree with that sentiment. face-to-face produces something tangibly different but equally as powerful as shared 'head space' online,/post/30483,2016-11-25T21:10:57.000Z,2016-11-25T21:10:57.000Z,30483,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1435 9866,v1.0,,"I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.",/post/30441,2016-11-25T21:10:49.000Z,2016-11-25T21:10:49.000Z,30441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1435 9684,v1.0,,"I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.",/post/30441,2016-11-25T21:10:36.000Z,2016-11-25T21:10:36.000Z,30441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1383 8515,v1.0,,"I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.",/post/30441,2016-11-25T21:10:05.000Z,2016-11-25T21:10:05.000Z,30441,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1136 8514,v1.0,,"Me, I am not so sure that things get done in meetings, nor that real world meetings are more likely to lead to real world actions. But your point stands: collaboration environments that are friendly to introverts are a good thing.",/post/30315,2016-11-25T21:09:54.000Z,2016-11-25T21:09:54.000Z,30315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1136 8145,v1.0,,"Me, I am not so sure that things get done in meetings, nor that real world meetings are more likely to lead to real world actions. But your point stands: collaboration environments that are friendly to introverts are a good thing.",/post/30315,2016-11-25T21:09:40.000Z,2016-11-25T21:09:40.000Z,30315,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1033 8144,v1.0,,"Whether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority",/post/29955,2016-11-25T21:09:36.000Z,2016-11-25T21:09:36.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1033 7101,v1.0,,"This all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences:",/post/29955,2016-11-25T21:09:11.000Z,2016-11-25T21:09:11.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,764 4766,v1.0,,"Whether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority.",/post/29955,2016-11-25T21:08:58.000Z,2016-11-25T21:08:58.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,78 7673,v1.0,,"This all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences:",/post/29955,2016-11-25T21:08:51.000Z,2016-11-25T21:08:51.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,914 6183,v1.0,,"shouldn't this be precisely what art school is about? Providing the freedom to engage deeply with such practices, to experience the emotional fallout of an intense creative life before a job or a commercial project is hanging in the balance? Certainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice. Perhaps just being given permission to experience these things and making space to check in with each other and have collective discussion about what is coming up would go a long way to avoiding people feeling that processing emergent emotional material is somehow wrong or unbalanced. This all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences: Whether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority.",/post/29955,2016-11-25T21:08:36.000Z,2016-11-25T21:08:36.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 9690,v1.0,,"Certainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.",/post/29955,2016-11-25T21:08:25.000Z,2016-11-25T21:08:25.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1385 4722,v1.0,,"Certainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.",/post/29955,2016-11-25T21:08:16.000Z,2016-11-25T21:08:16.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 9966,v1.0,,"shouldn't this be precisely what art school is about? Providing the freedom to engage deeply with such practices, to experience the emotional fallout of an intense creative life before a job or a commercial project is hanging in the balance?",/post/29955,2016-11-25T21:08:05.000Z,2016-11-25T21:08:05.000Z,29955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1445 6182,v1.0,,"Interestingly, I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can frame this question of different emotional responses even more specific to the art world, we can launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.",/post/29542,2016-11-25T21:07:49.000Z,2016-11-25T21:07:49.000Z,29542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 8593,v1.0,,"Interestingly, I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can frame this question of different emotional responses even more specific to the art world, we can launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.",/post/29542,2016-11-25T21:07:43.000Z,2016-11-25T21:07:43.000Z,29542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 8548,v1.0,,"Interestingly, I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can frame this question of different emotional responses even more specific to the art world, we can launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.",/post/29542,2016-11-25T21:06:38.000Z,2016-11-25T21:06:38.000Z,29542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 6287,v1.0,,"Hi @Altamirula, nice to meet you. Can you expand on this point about cultural differences?   Have you worked in Japan or experiencedvarious situations directly, or is is something you've read about?",/post/29542,2016-11-25T20:57:57.000Z,2016-11-25T20:57:57.000Z,29542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,449 6286,v1.0,,"My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst, is a sad one. I have found some solace and the begging of an understandment of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.",/post/29064,2016-11-25T20:57:49.000Z,2016-11-25T20:57:49.000Z,29064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,449 6100,v1.0,,"Hi @Altamirula, nice to meet you. Can you expand on this point about cultural differences?   Have you worked in Japan or experiencedvarious situations directly, or is is something you've read about?",/post/29542,2016-11-25T20:57:37.000Z,2016-11-25T20:57:37.000Z,29542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,430 8547,v1.0,,"My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst, is a sad one. I have found some solace and the begging of an understandment of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.",/post/29064,2016-11-25T20:57:21.000Z,2016-11-25T20:57:21.000Z,29064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 6099,v1.0,,"My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst, is a sad one. I have found some solace and the begging of an understandment of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.",/post/29064,2016-11-25T20:57:10.000Z,2016-11-25T20:57:10.000Z,29064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,430 6181,v1.0,,"My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst, is a sad one. I have found some solace and the begging of an understandment of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.",/post/29064,2016-11-25T20:56:57.000Z,2016-11-25T20:56:57.000Z,29064,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 8546,v1.0,,"@Maria yes! The challenge itself is around mental wellbeing, and people (like Pauline above) write about connections they find interesting or helpful projects.",/post/24943,2016-11-25T20:56:47.000Z,2016-11-25T20:56:47.000Z,24943,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 6180,v1.0,,"Hi @Noemi @Pauline, is this challenge ongoing?",/post/23625,2016-11-25T20:56:41.000Z,2016-11-25T20:56:41.000Z,23625,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 8545,v1.0,,"Someone like me who is not a creative or art professional could simply read the emotional stress as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don't know. Have you looked into art therapy or therapeutic gardening? Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and ""an old soul"" (we like to joke :)) might be able to offer more advice. Hang in there.",/post/21301,2016-11-25T20:56:16.000Z,2016-11-25T20:56:16.000Z,21301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 8592,v1.0,,"you make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of these issues popping up in our immediate surrounding during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right context to explore this or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much appreciated!",/post/21954,2016-11-25T20:55:59.000Z,2016-11-25T20:55:59.000Z,21954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 8544,v1.0,,"you make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of these issues popping up in our immediate surrounding during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right context to explore this or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much appreciated!",/post/21954,2016-11-25T20:55:41.000Z,2016-11-25T20:55:41.000Z,21954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 10713,v1.0,,"you make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of these issues popping up in our immediate surrounding during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right context to explore this or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much appreciated!",/post/21954,2016-11-25T20:55:36.000Z,2016-11-25T20:55:36.000Z,21954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 4721,v1.0,,"Have you looked into art therapy or therapeutic gardening? Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and ""an old soul"" (we like to joke :)) might be able to offer more advice. Hang in there.",/post/21301,2016-11-25T20:55:21.000Z,2016-11-25T20:55:21.000Z,21301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 10896,v1.0,,"Have you looked into art therapy or therapeutic gardening? Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and ""an old soul"" (we like to joke :)) might be able to offer more advice. Hang in there.",/post/21301,2016-11-25T20:53:48.000Z,2016-11-25T20:53:48.000Z,21301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1679 10724,v1.0,,"Someone like me who is not a creative or art professional could simply read the emotional stress as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don't know.",/post/21301,2016-11-25T20:53:25.000Z,2016-11-25T20:53:25.000Z,21301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 10712,v1.0,,"Someone like me who is not a creative or art professional could simply read the emotional stress as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don't know.",/post/21301,2016-11-25T20:53:13.000Z,2016-11-25T20:53:13.000Z,21301,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 6179,v1.0,,"""I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.""",/post/17386,2016-11-25T20:51:44.000Z,2016-11-25T20:51:44.000Z,17386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 7245,v1.0,,"nice to meet you and thank you so much for sharing your brothers story! ""I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape."" Do you know of any good projects like that? Something like the Unmonastery perhaps, or are you thinking of something different?",/post/17386,2016-11-25T20:50:44.000Z,2016-11-25T20:50:44.000Z,17386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,790 7244,v1.0,,"I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.",/post/16370,2016-11-25T20:50:39.000Z,2016-11-25T20:50:39.000Z,16370,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,790 4619,v1.0,,"He also drinks alcohol a lot - I have always asssumed this is because he finds life challenging, because he is so sensitive.  Having said this, he is still creative and charming and loveable. But he is hard to be with sometimes. I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.",/post/16370,2016-11-25T20:50:22.000Z,2020-06-09T13:17:14.707Z,16370,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,5070 6178,v1.0,,"Pauline, your post made me think of my brother. At school he was artistic and a left hander, naturally talented at sport, and very sensitive (for example, he once walked into a house and sensed a ghost, which the owners later confirmed; another time, he avoided a major accident because he sensed something and changed his route on his motorbike). Life has been a bit of a struggle for him - he has pursued conventional success and it didn't suit his temperament and he complains about life being constant suffering (although sometimes it as if he seems to enjoy the suffering, otherwise why would he keep doing it?). He also drinks alcohol a lot - I have always asssumed this is because he finds life challenging, because he is so sensitive.  Having said this, he is still creative and charming and loveable. But he is hard to be with sometimes. I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.",/post/16370,2016-11-25T20:50:06.000Z,2016-11-25T20:50:06.000Z,16370,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 4720,v1.0,,"There is certainly a strong link through poetry and literature to this idea. I've recently been reading a lot of Thomas Mann and it's almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around 'bohemianism' or latterly 'bourgouise'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it's opposite reaction, Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged classical music of people like Verdi and the German/Austrians like Liszt, Mendelsohn.  The 'struggling artist' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven's 6th, Robert Burn's Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.  More of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i'd add a bit more to this already in-depth post.",/post/13417,2016-11-25T20:49:31.000Z,2016-11-25T20:49:31.000Z,13417,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 8543,v1.0,,"It's been quite difficult to work out exactly what my thoughts are on this subject. I've found some of the comments below to be helpful and insightful, but some to be problematic. There is certainly a strong link through poetry and literature to this idea. I've recently been reading a lot of Thomas Mann and it's almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around 'bohemianism' or latterly 'bourgouise'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it's opposite reaction, Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged classical music of people like Verdi and the German/Austrians like Liszt, Mendelsohn.  The 'struggling artist' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven's 6th, Robert Burn's Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.  More of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i'd add a bit more to this already in-depth post. Also, worth having a quick read of this piece i found today: http://www.the-",/post/13417,2016-11-25T20:49:15.000Z,2016-11-25T20:49:15.000Z,13417,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 6177,v1.0,,"It's been quite difficult to work out exactly what my thoughts are on this subject. I've found some of the comments below to be helpful and insightful, but some to be problematic. There is certainly a strong link through poetry and literature to this idea. I've recently been reading a lot of Thomas Mann and it's almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around 'bohemianism' or latterly 'bourgouise'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it's opposite reaction, Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged classical music of people like Verdi and the German/Austrians like Liszt, Mendelsohn.  The 'struggling artist' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven's 6th, Robert Burn's Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.  More of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i'd add a bit more to this already in-depth post. Also, worth having a quick read of this piece i found today: http://www.the-tls.co.uk/articles/public/literary-madness/",/post/13417,2016-11-25T20:49:04.000Z,2016-11-25T20:49:04.000Z,13417,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 8542,v1.0,,@Pauline @Alex_Levene let me know if you came across scientific studies establishing that link? I couldnt find any..,/post/12308,2016-11-25T20:48:45.000Z,2016-11-25T20:48:45.000Z,12308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 6176,v1.0,,@Pauline @Alex_Levene let me know if you came across scientific studies establishing that link? I couldnt find any..,/post/12308,2016-11-25T20:48:12.000Z,2016-11-25T20:48:12.000Z,12308,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 8591,v1.0,,"Sometimes I feel like my friends can’t quite take me seriously when I tell them how much art school is stressing me. When I hear myself describe to them what we do in our courses (like dressing up and dancing around cardboard sculptures of alien Christmas trees), I sometimes find it difficult to take myself seriously. However, as most people that work in a creative field would probably tell you, it really is stressful. Being creative is intense. Apart from the financial uncertainty and competitiveness that tend to run in these professions, the work itself is very demanding, mentally and emotionally. It is very easy to become personally invested in a project, some might even call this is a necessity. Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context? In Product Design, we are constantly brought to question our surroundings, our decisions, and most importantly, ourselves. There has been a crisis point in almost any project where this turned into seriously doubting myself and hating all the work I had done. Sometimes, it led to absolute public meltdowns. To me it is a strange and uncomfortable feeling to share such intimate moments with people I work with. Many of my friends that study creative subjects have told me about similar experiences in their lives, particularly about struggles with insecurity and stress of varying degrees. Are these emotional strains simply an occupational hazard that we as creatives have to accept? Are they something we should embrace, something we actually need to produce meaningful work? There seems to be a romanticized idea of the tragically ailed, mad genius, based on the stories of countless artists like van Gogh or Beethoven that produced some of their best work during periods of Depression or Hypomania. Joshua Walters proposes in his Ted Talk ‘On being just crazy enough’, that those suffering from mental conditions might just be more sensitive to the world than others and that we can use our ‘skillness’ to our advantage. Many scientific studies suggest in fact, that there is a link between creativity and mental illness. One theory is that those with strong creative inclination perceive the world with a heightened awareness and tend to be more reflective and ruminate in their thoughts. For me, a host of questions and problematics arise out of this. How do these factors influence people in creative fields in reaching out when in distress? At what point does these different pressures stop aiding creativity and start impeding it? What are your thoughts?",/post/680,2016-11-25T20:47:23.000Z,2016-11-25T20:47:23.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1141 9965,v1.0,,How do these factors influence people in creative fields in reaching out when in distress? At what point does these different pressures stop aiding creativity and start impeding it?,/post/680,2016-11-25T20:46:55.000Z,2016-11-25T20:46:55.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1445 6175,v1.0,,"Are they something we should embrace, something we actually need to produce meaningful work? There seems to be a romanticized idea of the tragically ailed, mad genius, based on the stories of countless artists like van Gogh or Beethoven that produced some of their best work during periods of Depression or Hypomania. Joshua Walters proposes in his Ted Talk ‘On being just crazy enough’, that those suffering from mental conditions might just be more sensitive to the world than others and that we can use our ‘skillness’ to our advantage. Many scientific studies suggest in fact, that there is a link between creativity and mental illness. One theory is that those with strong creative inclination perceive the world with a heightened awareness and tend to be more reflective and ruminate in their thoughts.",/post/680,2016-11-25T20:46:35.000Z,2016-11-25T20:46:35.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,439 9964,v1.0,,Are these emotional strains simply an occupational hazard that we as creatives have to accept?,/post/680,2016-11-25T20:44:35.000Z,2016-11-25T20:44:35.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1445 8541,v1.0,,"Sometimes I feel like my friends can’t quite take me seriously when I tell them how much art school is stressing me. When I hear myself describe to them what we do in our courses (like dressing up and dancing around cardboard sculptures of alien Christmas trees), I sometimes find it difficult to take myself seriously. However, as most people that work in a creative field would probably tell you, it really is stressful. Being creative is intense. Apart from the financial uncertainty and competitiveness that tend to run in these professions, the work itself is very demanding, mentally and emotionally. It is very easy to become personally invested in a project, some might even call this is a necessity. Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context? In Product Design, we are constantly brought to question our surroundings, our decisions, and most importantly, ourselves. There has been a crisis point in almost any project where this turned into seriously doubting myself and hating all the work I had done. Sometimes, it led to absolute public meltdowns. To me it is a strange and uncomfortable feeling to share such intimate moments with people I work with. Many of my friends that study creative subjects have told me about similar experiences in their lives, particularly about struggles with insecurity and stress of varying degrees. Are these emotional strains simply an occupational hazard that we as creatives have to accept? Are they something we should embrace, something we actually need to produce meaningful work? There seems to be a romanticized idea of the tragically ailed, mad genius, based on the stories of countless artists like van Gogh or Beethoven that produced some of their best work during periods of Depression or Hypomania. Joshua Walters proposes in his Ted Talk ‘On being just crazy enough’, that those suffering from mental conditions might just be more sensitive to the world than others and that we can use our ‘skillness’ to our advantage. Many scientific studies suggest in fact, that there is a link between creativity and mental illness. One theory is that those with strong creative inclination perceive the world with a heightened awareness and tend to be more reflective and ruminate in their thoughts. For me, a host of questions and problematics arise out of this. How do these factors influence people in creative fields in reaching out when in distress? At what point does these different pressures stop aiding creativity and start impeding it? What are your thoughts?",/post/680,2016-11-25T20:44:15.000Z,2016-11-25T20:44:15.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1140 10287,v1.0,,"In Product Design, we are constantly brought to question our surroundings, our decisions, and most importantly, ourselves. There has been a crisis point in almost any project where this turned into seriously doubting myself and hating all the work I had done. Sometimes, it led to absolute public meltdowns. To me it is a strange and uncomfortable feeling to share such intimate moments with people I work with.",/post/680,2016-11-25T20:43:58.000Z,2016-11-25T20:43:58.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1501 9627,v1.0,,"Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context?",/post/680,2016-11-25T20:43:45.000Z,2016-11-25T20:43:45.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1366 9963,v1.0,,"Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context?",/post/680,2016-11-25T20:43:18.000Z,2016-11-25T20:43:18.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1445 10723,v1.0,,emotionally,/post/680,2016-11-25T20:41:59.000Z,2016-11-25T20:41:59.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 4719,v1.0,,"However, as most people that work in a creative field would probably tell you, it really is stressful. Being creative is intense.",/post/680,2016-11-25T20:41:46.000Z,2016-11-25T20:41:46.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,62 10711,v1.0,,how much art school is stressing me,/post/680,2016-11-25T20:41:31.000Z,2016-11-25T20:41:31.000Z,680,3323,AnnotatorStore::TextAnnotation,,,,,,,,,647,1632 10443,v1.0,,"More people use T-shirts, deaf people have a voice. This is also an awareness project about the isolation the deaf people. Because only friend's t-shirts can capture the sign language. (through the gloves)",/post/545,2016-11-12T23:34:18.000Z,2016-11-12T23:34:18.000Z,545,3323,AnnotatorStore::TextAnnotation,,,,,,,,,512,1550 6363,v1.0,,Main aspect of this project is to create an environment that deaf people can open up to the world through T-shirts...,/post/545,2016-11-12T23:33:57.000Z,2016-11-12T23:33:57.000Z,545,3323,AnnotatorStore::TextAnnotation,,,,,,,,,512,464 8990,v1.0,,"Hello @wave , I also was intrigued by this idea, but I don't get it. As far as I know, noise cancellation is predicated each one of us having a ""personal"" source of reverse-phase sound waves: my headphones, for example. They sample ambient noise (the hum of an aircraft's or train's engine), reverse the sample's phase and emit it in my ears. Your idea of emitting at the source is quite novel, at least I have never heard of it. Would love to know more!",/post/14059,2016-11-12T23:32:14.000Z,2016-11-12T23:32:14.000Z,14059,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,1217 11340,v1.0,,"This idea has some difficulties about reversing technology which is already there (sound cancellatıon). The way we wanted the prototype to work is that if we can use the existing technology of noise cancellation to design something that can be put on the baby in order to reduce their noise. We can further dıscuss how we were proposing to use the noise cancellation technology here, but for now we have kept this project on hold.",/post/10661,2016-11-12T23:32:00.000Z,2016-11-12T23:32:00.000Z,10661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,1812 8989,v1.0,,"We are a group of students from Master of Interaction Design at Domus Academy. We are now working on Opencare project in colabration with WeMake FABLab in Milano. We have a lot of ideas we know This idea has some difficulties about reversing technology which is already there (sound cancellatıon). The way we wanted the prototype to work is that if we can use the existing technology of noise cancellation to design something that can be put on the baby in order to reduce their noise. We can further dıscuss how we were proposing to use the noise cancellation technology here, but for now we have kept this project on hold.",/post/10661,2016-11-12T23:31:50.000Z,2016-11-12T23:31:50.000Z,10661,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,1217 8988,v1.0,,"Hey @wave, fun fact: I was reading about your idea as I was flying and thinking how my next big purchase should be a set of noise cancelling headphones.To be clear: not necessarily because of crying babies Yet I don’t understand how it would work because of the very uneven cries and peak sounds which are hard to counteract. Tell us more.",/post/10314,2016-11-12T23:31:28.000Z,2016-11-12T23:31:28.000Z,10314,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,1217 4817,v1.0,,"In some case, mom has to leave her baby to cry.",/post/776,2016-11-12T23:28:47.000Z,2016-11-12T23:28:47.000Z,776,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,84 8540,v1.0,,"mom might feel anxious, stressful or panic",/post/776,2016-11-12T23:28:37.000Z,2016-11-12T23:28:37.000Z,776,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,1140 9256,v1.0,,"There are tons of reasons that makes baby cries. Baby might be hungry, sleepy, diaper dirty or more and more. While the baby is crying, mom has to check what the exact problem is, and before mom solves it, the baby won’t stop crying. In this period, mom might feel anxious, stressful or panic that from the crying sound, herself or others. This mental situation might influence mom’s decision making or education for the baby.",/post/776,2016-11-12T23:28:22.000Z,2016-11-12T23:28:22.000Z,776,3323,AnnotatorStore::TextAnnotation,,,,,,,,,743,1279 6122,v1.0,,llow us to host people for extended periods of time as they work on their initiatives,/post/30515,2016-10-21T21:57:09.000Z,2016-10-21T21:57:09.000Z,30515,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,432 9585,v1.0,,prevention,/post/29958,2016-10-21T21:56:29.000Z,2016-10-21T21:56:29.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1349 7803,v1.0,,"That we can strive for prevention, but we must address the material reality of how people live.",/post/29958,2016-10-21T21:56:24.000Z,2016-10-21T21:56:24.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,947 8511,v1.0,,sheltered from things like homelessness and hunger in,/post/29958,2016-10-21T21:56:10.000Z,2016-10-21T21:56:10.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1134 11488,v1.0,,institutions,/post/29958,2016-10-21T21:55:08.000Z,2016-10-21T21:55:08.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1860 11487,v1.0,,"Thanks for the answer, @Woodbinehealth . Your answer helped me understand the position of Woodbine within its context. I think building relationships with existing institutions can be a double-edged sword. It can be valuable, but it can also be a trap (a sinkhole of money, time, energy, etc.). I hope there is still room for discussing how to meet basic needs ""outside"" of the system, or at least—as there seems to be—a willingness to explore how to support doing that from the perspective of additional care-giving such as you're already doing. Anyway, thanks for clarifying.",/post/30317,2016-10-21T21:54:59.000Z,2016-10-21T21:54:59.000Z,30317,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1860 11502,v1.0,,"I think building relationships with existing institutions can be a double-edged sword. It can be valuable, but it can also be a trap (a sinkhole of money, time, energy, etc.)",/post/30317,2016-10-21T21:54:49.000Z,2016-10-21T21:54:49.000Z,30317,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1861 4524,v1.0,,"professionalization of many specialities places it in a realm outside of normal access, ie through insurance companies, inhumane public institutions, high priced private centers.",/post/29958,2016-10-21T21:54:34.000Z,2016-10-21T21:54:34.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,12 5578,v1.0,,"professionalization of many specialities places it in a realm outside of normal access, ie through insurance companies, inhumane public institutions, high priced private centers.  An on-going struggle fer sure!",/post/29958,2016-10-21T21:54:24.000Z,2016-10-21T21:54:24.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,340 7299,v1.0,,"I work at one of the public hospitals in the city and regularly help people navigate that system.  But at the end of the day, we don't believe these systems have the answer we are looking for, similar to what @Alberto was talking about in regards to the Amish.",/post/29958,2016-10-21T21:54:09.000Z,2016-10-21T21:54:09.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,805 8888,v1.0,,"I work at one of the public hospitals in the city and regularly help people navigate that system.  But at the end of the day, we don't believe these systems have the answer we are looking for, similar to what @Alberto was talking about in regards to the Amish.",/post/29958,2016-10-21T21:53:58.000Z,2016-10-21T21:53:58.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1190 11501,v1.0,,"create relationships with such institutions who can and are doing that good work, but that we will continue to straddle the line of revolution",/post/29958,2016-10-21T21:53:44.000Z,2016-10-21T21:53:44.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1861 6426,v1.0,,"we don't want to create another area of dependency, where the NGO model fills a hole in a society.",/post/29958,2016-10-21T21:52:31.000Z,2016-10-21T21:52:31.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,481 8211,v1.0,,we don't have the infrastructure to develop such aid,/post/29958,2016-10-21T21:52:18.000Z,2016-10-21T21:52:18.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1057 8900,v1.0,,"battle to live paycheck to paycheck is very real here in the city, especially for us as a collective",/post/29958,2016-10-21T21:51:57.000Z,2016-10-21T21:51:57.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1194 7845,v1.0,,homelessness,/post/29958,2016-10-21T21:51:38.000Z,2016-10-21T21:51:38.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,956 8887,v1.0,,balance the desire for a new world with the recognition of the reality of the world we live in,/post/29958,2016-10-21T21:51:24.000Z,2016-10-21T21:51:24.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1190 9204,v1.0,,balance the desire for a new world with the recognition of the reality of the world we live in,/post/29958,2016-10-21T21:51:12.000Z,2016-10-21T21:51:12.000Z,29958,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1269 10632,v1.0,,Good story @Woodbinehealth. I was searching for the part where starting up is described. How did you gather the people needed to startup? How do you recruit 'clients'?,/post/29070,2016-10-21T21:51:02.000Z,2016-10-21T21:51:02.000Z,29070,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1616 7833,v1.0,,"In what ways do the more foundational elements of human care fit into Woodbine's vision for ""holistic"" healthcare? Collaborations with shelters and food rescue drives? A culture of hospitality? All of the above? What do you see as the most important immediate connections between these ""lower levels of Maslow's Hierarchy"" and what some would call the more discretionary elements of health, after basic survival needs are met, like massages and physical exercise outside of the context of employed manual labor?",/post/27805,2016-10-21T21:50:49.000Z,2016-10-21T21:50:49.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,955 7802,v1.0,,"In what ways do the more foundational elements of human care fit into Woodbine's vision for ""holistic"" healthcare? Collaborations with shelters and food rescue drives? A culture of hospitality? All of the above? What do you see as the most important immediate connections between these ""lower levels of Maslow's Hierarchy"" and what some would call the more discretionary elements of health, after basic survival needs are met, like massages and physical exercise outside of the context of employed manual labor?",/post/27805,2016-10-21T21:50:37.000Z,2016-10-21T21:50:37.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,947 9961,v1.0,,"In what ways do the more foundational elements of human care fit into Woodbine's vision for ""holistic"" healthcare? Collaborations with shelters and food rescue drives? A culture of hospitality? All of the above?",/post/27805,2016-10-21T21:50:28.000Z,2016-10-21T21:50:28.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1445 7844,v1.0,,"Also, while I understand the importance of involving ""alternative"" modalities into healthcare, I am curious about whether your collective has considered how even more basic needs—such as literal access to food and shelter—affect healthcare more broadly. I understand that there is are sensible distinctions to be drawn between, for example, addressing lack of shelter (homelessness/houselessness) and what is more traditionally thought of as ""healthcare,"" but I also speak from experience when I say that the stress of being unsheltered is right up there as one of the worst kinds of stress along with the stress of having a more concrete ""health issue.""",/post/27805,2016-10-21T21:50:20.000Z,2016-10-21T21:50:20.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,956 7783,v1.0,,"the stress of being unsheltered is right up there as one of the worst kinds of stress along with the stress of having a more concrete ""health issue.""",/post/27805,2016-10-21T21:50:14.000Z,2016-10-21T21:50:14.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,939 8510,v1.0,,basic needs—such as literal access to food and shelter—affect healthcare more broadly.,/post/27805,2016-10-21T21:50:03.000Z,2016-10-21T21:50:03.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1134 4474,v1.0,,"Also, while I understand the importance of involving ""alternative"" modalities into healthcare,",/post/27805,2016-10-21T21:49:50.000Z,2016-10-21T21:49:50.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,3 10034,v1.0,,"I really like what you've written and am excited to learn about the existence of the Autonomy General Assembly. I think this sort of advocacy is critical and echo @natalia-skoczylas when she observes that this sort of work sounds like Bookchin's suggestions for a method to free ourselves from Statist and corporate rulers. I think this is one of the most practical and underappreciated methods to grow sustainable, resilient, and free communities.",/post/27805,2016-10-21T21:49:38.000Z,2016-10-21T21:49:38.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1446 4778,v1.0,,"I really like what you've written and am excited to learn about the existence of the Autonomy General Assembly. I think this sort of advocacy is critical and echo @natalia-skoczylas when she observes that this sort of work sounds like Bookchin's suggestions for a method to free ourselves from Statist and corporate rulers. I think this is one of the most practical and underappreciated methods to grow sustainable, resilient, and free communities.",/post/27805,2016-10-21T21:49:27.000Z,2016-10-21T21:49:27.000Z,27805,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,80 8349,v1.0,,"small communities tackling local problems, using collectives procedures and new technology.",/post/26031,2016-10-21T21:48:55.000Z,2016-10-21T21:48:55.000Z,26031,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1092 7298,v1.0,,"There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the number of emergencies and helping save a lot of money. It sounds very much like Bookchin to me: small communities tackling local problems, using collectives procedures and new technology.",/post/26031,2016-10-21T21:48:43.000Z,2016-10-21T21:48:43.000Z,26031,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,805 6362,v1.0,,"There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the number of emergencies and helping save a lot of money. It sounds very much like Bookchin to me: small communities tackling local problems, using collectives procedures and new technology.",/post/26031,2016-10-21T21:48:35.000Z,2016-10-21T21:48:35.000Z,26031,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,463 9076,v1.0,,"There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the number of emergencies and helping save a lot of money.",/post/26031,2016-10-21T21:48:30.000Z,2016-10-21T21:48:30.000Z,26031,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1251 10196,v1.0,,"As to your question ""How do you work with or around licensures/certifications to provide safe care?"" perhaps @steelweaver and his experience can help. He is in the process of setting up an acupuncture clinic at the edge of (commercial) regulations.",/post/24022,2016-10-21T21:48:05.000Z,2016-10-21T21:48:05.000Z,24022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1483 8275,v1.0,,"How do you work with or around licensures/certifications to provide safe care?"" perhaps @steelweaver and his experience can help. He is in the process of setting up an acupuncture clinic at the edge of (commercial) regulations.",/post/24022,2016-10-21T21:47:59.000Z,2016-10-21T21:47:59.000Z,24022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1074 4575,v1.0,,acupuncture,/post/24022,2016-10-21T21:47:52.000Z,2016-10-21T21:47:52.000Z,24022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,21 10482,v1.0,,"ng training for non-medical workers, prevention coupled with basic treatment..",/post/24022,2016-10-21T21:47:40.000Z,2016-10-21T21:47:40.000Z,24022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1557 4654,v1.0,,"context, we want to be able to provide some care for people so that their minor health concerns can be treated without having to go to the hospital.  But obviously always cognizant of our own limitations in care.",/post/22039,2016-10-21T21:47:26.000Z,2016-10-21T21:47:26.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,44 4653,v1.0,,"setting up complementary infrastructure to the current state provided one, enabling training for non-medical workers, prevention coupled with basic treatment..",/post/24022,2016-10-21T21:47:14.000Z,2016-10-21T21:47:14.000Z,24022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,44 8041,v1.0,,insurance,/post/22039,2016-10-21T21:46:54.000Z,2016-10-21T21:46:54.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1014 9592,v1.0,,"Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.",/post/22039,2016-10-21T21:46:47.000Z,2016-10-21T21:46:47.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1351 8977,v1.0,,"Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.",/post/22039,2016-10-21T21:46:36.000Z,2016-10-21T21:46:36.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1210 7786,v1.0,,"Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.",/post/22039,2016-10-21T21:46:21.000Z,2016-10-21T21:46:21.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,940 8361,v1.0,,"Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.",/post/22039,2016-10-21T21:45:59.000Z,2016-10-21T21:45:59.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1095 7297,v1.0,,"current state of health in the US is that when people do get sick, they are forced to access health institutions",/post/22039,2016-10-21T21:45:50.000Z,2016-10-21T21:45:50.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,805 7782,v1.0,,"As we begin answering questions of autonomy, we are faced with the myriad of material obstacles in our way.  Health, or our lack thereof, can be seen as a crucial weakness in the revolutionary struggle.  We are tied to a “modern” health system that fundamentally removes our bodies from a larger physical reality.  We are made to become cells in revolt, aberrant genes, failed organs, physicalities riddled with disease.  Disease becomes individualized as “health” and “wellness” becomes commodified.  States of mental health become symbols of individualized weakness. Propensities toward depressed states, or anxious disorders, and “imbalances” in the brain necessitate chemical intervention, while never addressing the overwhelming emptiness of modern life.  An insane mind is the mind that can adapt to an insane society, and from the news today, we are surely going insane.  Insanity as the only rational response to an insane world, but what contemporary visions of “health” require of us, in order to perpetuate this economy, is that we be atomized, necessarily taking on our struggles alone, seeing them as the individual product of a weak, chemically imbalanced mind. If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we’re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.",/post/521,2016-10-21T21:45:31.000Z,2016-10-21T21:45:31.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,939 7781,v1.0,,"current state of health in the US is that when people do get sick, they are forced to access health institutions",/post/22039,2016-10-21T21:45:18.000Z,2016-10-21T21:45:18.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,939 9733,v1.0,,"differentiate ourselves from other ""wellness groups"" which focus on yoga and massage and nutrition.",/post/22039,2016-10-21T21:44:52.000Z,2016-10-21T21:44:52.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1392 9584,v1.0,,prevention,/post/22039,2016-10-21T21:44:38.000Z,2016-10-21T21:44:38.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1349 11586,v1.0,,rom the Zapatistas,/post/521,2016-10-21T21:42:13.000Z,2016-10-21T21:42:13.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1877 11585,v1.0,,Zapatista models,/post/22039,2016-10-21T21:41:56.000Z,2016-10-21T21:41:56.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1877 4667,v1.0,,"Amish communities,",/post/22039,2016-10-21T21:41:43.000Z,2016-10-21T21:41:43.000Z,22039,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,49 4666,v1.0,,"Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word ""autonomy"" in the sense of ""a state of not having to be coupled with the world at large in a way we find troubling."" Some people in Edgeryders uphold a similar concept, dependency reduction.",/post/20474,2016-10-21T21:41:38.000Z,2016-10-21T21:41:38.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,49 8826,v1.0,,“wellness” becomes commodified.,/post/521,2016-10-21T21:41:20.000Z,2016-10-21T21:41:20.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1164 8838,v1.0,,Or are they bleeding out money?,/post/20474,2016-10-21T21:41:04.000Z,2016-10-21T21:41:04.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1166 10805,v1.0,,"And again: you mention sustainability, and well you should. Are your present activities sustainable? Or are they bleeding out money?",/post/20474,2016-10-21T21:40:49.000Z,2016-10-21T21:40:49.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1648 8274,v1.0,,Why struggle with licenses and regulatory hurdles?,/post/20474,2016-10-21T21:40:43.000Z,2016-10-21T21:40:43.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1074 9732,v1.0,,"wellness, exercise, nutrition are the low hanging fruit, the place where you are likely to get most results per unit of effort. Why not stick to them?",/post/20474,2016-10-21T21:40:37.000Z,2016-10-21T21:40:37.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1392 9960,v1.0,,"Which brings me to a question: wellness, exercise, nutrition are the low hanging fruit, the place where you are likely to get most results per unit of effort. Why not stick to them? Why struggle with licenses and regulatory hurdles?",/post/20474,2016-10-21T21:40:28.000Z,2016-10-21T21:40:28.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1445 9583,v1.0,,preventative,/post/521,2016-10-21T21:40:14.000Z,2016-10-21T21:40:14.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1349 9582,v1.0,,prevention,/post/20474,2016-10-21T21:39:55.000Z,2016-10-21T21:39:55.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1349 5801,v1.0,,community-based approach,/post/20474,2016-10-21T21:37:35.000Z,2016-10-21T21:37:35.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,377 8062,v1.0,,"Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word ""autonomy"" in the sense of ""a state of not having to be coupled with the world at large in a way we find troubling."" Some people in Edgeryders uphold a similar concept, dependency reduction.",/post/20474,2016-10-21T21:37:23.000Z,2016-10-21T21:37:23.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1022 4777,v1.0,,"Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word ""autonomy"" in the sense of ""a state of not having to be coupled with the world at large in a way we find troubling."" Some people in Edgeryders uphold a similar concept, dependency reduction.",/post/20474,2016-10-21T21:37:15.000Z,2016-10-21T21:37:15.000Z,20474,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,80 8360,v1.0,,Approval  from the ministry of health for a medical device (15k€ >2 years),/post/17949,2016-10-21T21:37:04.000Z,2016-10-21T21:37:04.000Z,17949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1095 6334,v1.0,,"@marcomanca, I do agree to some extent. However we need data. Do you have ideas of the costs & times that you can provide?",/post/17949,2016-10-21T21:36:54.000Z,2016-10-21T21:36:54.000Z,17949,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,456 11339,v1.0,,"Don't always start from the assumption that, because others complain about the regulations (often as a narrative to raise their prices), they are indeed an obstacle for you. Do your own due diligence, before thinking of how to work beyond (rather than around) them.",/post/15136,2016-10-21T21:36:20.000Z,2016-10-21T21:36:20.000Z,15136,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1812 10195,v1.0,,"If your innovation is specialized, small in scale, or incremental (hence fitting well in the ecosystem where the incumbents are thriving), maybe it's easier to figure out how to obtain certifications and licenses, than how to establish safety nets and sandboxes to work outside of them (formally, but within the purpose of defending your ""users"").",/post/15136,2016-10-21T21:36:14.000Z,2016-10-21T21:36:14.000Z,15136,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1483 9828,v1.0,,"If your innovation is specialized, small in scale, or incremental (hence fitting well in the ecosystem where the incumbents are thriving), maybe it's easier to figure out how to obtain certifications and licenses, than how to establish safety nets and sandboxes to work outside of them (formally, but within the purpose of defending your ""users"").",/post/15136,2016-10-21T21:36:09.000Z,2016-10-21T21:36:09.000Z,15136,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1425 8273,v1.0,,"Systems of fences (certification/licenses/etc) are not always an innovator's enemy. Dealing with responsibility is a lot easier (and often, paradoxically cheaper in the long run) than dealing with accountability.",/post/15136,2016-10-21T21:35:56.000Z,2016-10-21T21:35:56.000Z,15136,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1074 10439,v1.0,,but there are no shortcuts...,/post/8137,2016-10-21T21:35:46.000Z,2016-10-21T21:35:46.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1548 10438,v1.0,,"Shortcut waitlinglists Shortcut ineffective bureaucrazy Shortcut documents that separates people and not connecting them",/post/11903,2016-10-21T21:35:37.000Z,2016-10-21T21:35:37.000Z,11903,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1548 10194,v1.0,,How do you work with or around licensures/certifications to provide safe care?,/post/521,2016-10-21T21:35:26.000Z,2016-10-21T21:35:26.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1483 9827,v1.0,,"It's not impossible to find good solutions, and regulators are often discussing of innovation in this field of regulation, but there are no shortcuts...",/post/8137,2016-10-21T21:35:17.000Z,2016-10-21T21:35:17.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1425 10193,v1.0,,"Registrations/certifications/licensing are in place as fences, one of the tools in the arsenal of safety in healthcare... it is possible to negotiate ways out when it is proven that safety is guaranteed never the less... this may imply lobbying and meetings with authorities, but one can find examples from prior cases that are useful... as instance medical students can practice some medical activities under mentoring before being graduated and licensed... but the University Hospital has a wide safety net set up...",/post/8137,2016-10-21T21:35:10.000Z,2016-10-21T21:35:10.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1483 8272,v1.0,,"Registrations/certifications/licensing are in place as fences, one of the tools in the arsenal of safety in healthcare.",/post/8137,2016-10-21T21:34:54.000Z,2016-10-21T21:34:54.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1074 11338,v1.0,,"by how much, and what kind of, intersection your activities have with theirs",/post/8137,2016-10-21T21:34:28.000Z,2016-10-21T21:34:28.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1812 7614,v1.0,,governance,/post/8137,2016-10-21T21:34:13.000Z,2016-10-21T21:34:13.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,905 9253,v1.0,,"parallel currency to your activity, creating a membership parallel economy, the likes of Sardex?",/post/8137,2016-10-21T21:34:02.000Z,2016-10-21T21:34:02.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1277 10804,v1.0,,Sustainability,/post/8137,2016-10-21T21:33:49.000Z,2016-10-21T21:33:49.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1648 8446,v1.0,,"One has to map the entirety of value chain, and interfaces to surrounding ecosystems, to form an idea of how to become sustainable.",/post/8137,2016-10-21T21:33:38.000Z,2016-10-21T21:33:38.000Z,8137,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1115 10803,v1.0,,How do you create sustainability?  Donation based/grant based/fee based?,/post/521,2016-10-21T21:33:23.000Z,2016-10-21T21:33:23.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1648 9959,v1.0,,"How do you create sustainability?  Donation based/grant based/fee based? How do you interact with existing structures? How do you work with or around licensures/certifications to provide safe care?",/post/521,2016-10-21T21:33:05.000Z,2016-10-21T21:33:05.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1445 7492,v1.0,,low-fee/no-pay clinic.,/post/521,2016-10-21T21:32:50.000Z,2016-10-21T21:32:50.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,866 8271,v1.0,,"his practice may involve working outside the structure of licenses, certifications and insurance.",/post/521,2016-10-21T21:32:39.000Z,2016-10-21T21:32:39.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1074 5691,v1.0,,build a health community.,/post/521,2016-10-21T21:32:25.000Z,2016-10-21T21:32:25.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,357 8886,v1.0,,"avigate the overwhelming health infrastructure that exists,",/post/521,2016-10-21T21:32:15.000Z,2016-10-21T21:32:15.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1190 5443,v1.0,,city,/post/521,2016-10-21T21:31:55.000Z,2016-10-21T21:31:55.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,311 11293,v1.0,,"Our goal is that participants can use the informational aspect to understand their disease process, find resources of different modalities, and either receive aid in navigating the health systems in place or find treatment within the space itself.",/post/521,2016-10-21T21:31:37.000Z,2016-10-21T21:31:37.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1791 5800,v1.0,,"The space is meant to be a means to involve community members, understand the care-related skills they have, and be an informational center.",/post/521,2016-10-21T21:31:13.000Z,2016-10-21T21:31:13.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,377 4523,v1.0,,"For these reasons, we started by building a health resource center within our Woodbine space.",/post/521,2016-10-21T21:30:55.000Z,2016-10-21T21:30:55.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,12 11337,v1.0,,a public health infrastructure with clinics and hospitals.,/post/521,2016-10-21T21:30:39.000Z,2016-10-21T21:30:39.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1812 9731,v1.0,,public health infrastructure with clinics and hospitals,/post/521,2016-10-21T21:30:21.000Z,2016-10-21T21:30:21.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1392 9730,v1.0,,public health infrastructure with clinics and hospitals,/post/521,2016-10-21T21:30:11.000Z,2016-10-21T21:30:11.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1392 4776,v1.0,,"removing our physical and mental minds from an oppressive system, to reclaim our control over health and use health to increase our collective autonomy.",/post/521,2016-10-21T21:29:59.000Z,2016-10-21T21:29:59.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,80 9203,v1.0,,"We do not reject modern methods of medicine, but rather recognize the need to detach the knowledge from the oppressive institutions that guard it.",/post/521,2016-10-21T21:29:19.000Z,2016-10-21T21:29:19.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1269 9813,v1.0,,"e work on owning our own definition of wellness, from the physical to the mental.",/post/521,2016-10-21T21:29:07.000Z,2016-10-21T21:29:07.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1421 4473,v1.0,,"e work to create ties with those who practice herbal medicines, massage, kinesiology, acupuncture, meditation, yoga and other forms of so called “alternative” medicine.",/post/521,2016-10-21T21:28:46.000Z,2016-10-21T21:28:46.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,3 10481,v1.0,,The health track is composed of a mix of health professionals and those with informal training in various health practices.  We place an emphasis on re-creating a sense of community wellness and the dissemination of skills,/post/521,2016-10-21T21:28:19.000Z,2016-10-21T21:28:19.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1557 5480,v1.0,,"hey are as weak as we are, as evidenced by the effects of superstorms on the health infrastructure of New Orleans and New York.  How can these institutions help us when the very air we breath is killing us?  How do they help us adapt to a world without clean water?",/post/521,2016-10-21T21:27:59.000Z,2016-10-21T21:27:59.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,318 7296,v1.0,,"In addition, these institutions fundamentally cannot address the issues of climate change, economic collapse, or disruption of key infrastructure",/post/521,2016-10-21T21:27:45.000Z,2016-10-21T21:27:45.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,805 8200,v1.0,,Most people cannot perform basic first aid or use simple techniques for health.  Many communities lack any cognizance or skill to handle the inevitable emotional collapse of our comrades.,/post/521,2016-10-21T21:27:25.000Z,2016-10-21T21:27:25.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1052 9202,v1.0,,"Because we have relegated health to these institutions, we have lost our ability to heal ourselves.",/post/521,2016-10-21T21:26:35.000Z,2016-10-21T21:26:35.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1269 7770,v1.0,,".  In order to access healthcare, we are tied to jobs that are literally killing us, whether it be mental depravity or physical degradation.",/post/521,2016-10-21T21:26:17.000Z,2016-10-21T21:26:17.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,935 5046,v1.0,,"If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we’re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.",/post/521,2016-10-21T21:25:51.000Z,2016-10-21T21:25:51.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,141 5092,v1.0,,"If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we’re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.",/post/521,2016-10-21T21:25:45.000Z,2016-10-21T21:25:45.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,147 7005,v1.0,,"If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we’re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.",/post/521,2016-10-21T21:25:05.000Z,2016-10-21T21:25:05.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,731 4752,v1.0,,atomized,/post/521,2016-10-21T21:24:53.000Z,2016-10-21T21:24:53.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,70 8472,v1.0,,while never addressing the overwhelming emptiness of modern life,/post/521,2016-10-21T21:24:40.000Z,2016-10-21T21:24:40.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1122 8539,v1.0,,States of mental health become symbols of individualized weakness,/post/521,2016-10-21T21:24:25.000Z,2016-10-21T21:24:25.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1140 10530,v1.0,,"We are made to become cells in revolt, aberrant genes, failed organs, physicalities riddled with disease",/post/521,2016-10-21T21:24:16.000Z,2016-10-21T21:24:16.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1570 8506,v1.0,,We are tied to a “modern” health system that fundamentally removes our bodies from a larger physical reality,/post/521,2016-10-21T21:24:05.000Z,2016-10-21T21:24:05.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1130 10265,v1.0,,disease,/post/521,2016-10-21T21:23:47.000Z,2016-10-21T21:23:47.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1499 4979,v1.0,,Disease becomes individualized as “health,/post/521,2016-10-21T21:23:31.000Z,2016-10-21T21:23:31.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,127 7996,v1.0,,Disease becomes individualized as “health,/post/521,2016-10-21T21:22:29.000Z,2016-10-21T21:22:29.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,993 5580,v1.0,,“wellness” becomes commodified.,/post/521,2016-10-21T21:21:59.000Z,2016-10-21T21:21:59.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,343 5577,v1.0,,Disease becomes individualized as “health” and “wellness” becomes commodified.,/post/521,2016-10-21T21:21:49.000Z,2016-10-21T21:21:49.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,340 9511,v1.0,,"Zapatistas in Chiapas, the ZADs in France,",/post/521,2016-10-21T21:09:09.000Z,2016-10-21T21:09:09.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1329 8302,v1.0,,liberation,/post/521,2016-10-21T21:08:47.000Z,2016-10-21T21:08:47.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1076 9038,v1.0,,"Occupy,",/post/521,2016-10-21T21:08:35.000Z,2016-10-21T21:08:35.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1238 4652,v1.0,,reate infrastructures,/post/521,2016-10-21T21:07:58.000Z,2016-10-21T21:07:58.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,44 10362,v1.0,,"workshop, library, kitchen, and meeting space, we focus on efforts to self-organize, connect, create infrastructures, and develop greater individual and collective efficacy.",/post/521,2016-10-21T21:07:42.000Z,2016-10-21T21:07:42.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,1532 6121,v1.0,,"workshop, library, kitchen, and meeting space, we focus on efforts to self-organize, connect, create infrastructures, and develop greater individual and collective efficacy.",/post/521,2016-10-21T21:07:33.000Z,2016-10-21T21:07:33.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,432 5559,v1.0,,collective material and organizational capacities i,/post/521,2016-10-21T21:07:21.000Z,2016-10-21T21:07:21.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,334 4775,v1.0,,building autonomy in the wake of a dying culture,/post/521,2016-10-21T21:06:12.000Z,2016-10-21T21:06:12.000Z,521,3323,AnnotatorStore::TextAnnotation,,,,,,,,,488,80 7344,v1.0,,"Away from the housing and financial aspects of what family means - why would family life be different to the one I grew up in? I live a much more alternative lifestyle than my parents did, and whilst they were very open to my alternative nature growing up, they were working class people who didn't want as much from life as I did. They wanted to raise their kids right (which they did), have the occasional holiday (yup) and go to the pub with their friends (yes). I would see my family life as a different thing, and would want as many of my friends involved as possible as they would bring a different angle on things - a much more varied point of view. The nuclear family doesn't exist in my mind as the family I have created for myself since leaving home is too great to not have an involvement in where I go from here on in, and I believe a lot of people would think in a similar way. As the world changes, so will relationships. As people move away from what they've always known, communities will be shaped differently. Young people see this and they won't be guided to create an old fashioned model (as politicians are so often found to espouse the moralities of!) if it doesn't fit their lives.",/post/1438,2016-10-18T17:29:39.000Z,2016-10-18T17:29:39.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,814 4630,v1.0,,"live a much more alternative lifestyle than my parents did, and whilst they were very open to my alternative nature growing up, they were working class people who didn't want as much from life as I did.",/post/1438,2016-10-18T17:29:26.000Z,2016-10-18T17:29:26.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,39 7989,v1.0,,", banks not willing to back mortgages, and the rental market seemingly being an inescapable trap for most young people - the idea of family changes.",/post/1438,2016-10-18T17:29:11.000Z,2016-10-18T17:29:11.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,990 8899,v1.0,,I know that I will never be able to afford a house on my own,/post/1438,2016-10-18T17:28:55.000Z,2016-10-18T17:28:55.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1194 7871,v1.0,,o housing and money,/post/1438,2016-10-18T17:28:28.000Z,2016-10-18T17:28:28.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,962 11563,v1.0,,For people younger than myself,/post/1438,2016-10-18T17:27:32.000Z,2016-10-18T17:27:32.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1873 6160,v1.0,,"With this geographical move, people create their own strong friendships in a way to create their own family/support unit/call it what you will - I know that certainly is something that I have done.",/post/1438,2016-10-18T17:27:27.000Z,2016-10-18T17:27:27.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,437 9958,v1.0,,Why is the idea of a nuclear family strange for a young city dweller like myself?,/post/1438,2016-10-18T17:27:19.000Z,2016-10-18T17:27:19.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1445 5392,v1.0,,I think that is why the very concept of family is changing.,/post/1438,2016-10-18T17:26:56.000Z,2016-10-18T17:26:56.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,298 9957,v1.0,,"The nuclear family as it were - is this sort of life achieveable for young people now, and is it something that is still desirable?",/post/1438,2016-10-18T17:26:37.000Z,2016-10-18T17:26:37.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,1445 7379,v1.0,,"What is family? This is both a question that is hard to answer, but equally quite easy; it depends on how you approach it. Quite a lot of people still see family in the given Husband, Wife, Kids in a family house, with a pet or whatever, making ends meet, educating each other and growing alonside each other experiencing life. The nuclear family as it were - is this sort of life achieveable for young people now, and is it something that is still desirable?",/post/1438,2016-10-18T17:26:28.000Z,2016-10-18T17:26:28.000Z,1438,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1405,824 4971,v1.0,,"Hi Some time ago, just before the OpenCare Project's start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of ""WeHandU"". I believe that the proposal to Rune can actively engage these people. Of course I agree on the role of WeMake as a reference point and work space! : D",/post/29072,2016-10-18T17:23:31.000Z,2016-10-18T17:23:31.000Z,29072,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,126 5091,v1.0,,"Hi Some time ago, just before the OpenCare Project's start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of ""WeHandU"". I believe that the proposal to Rune can actively engage these people. Of course I agree on the role of WeMake as a reference point and work space! : D",/post/29072,2016-10-18T17:23:20.000Z,2016-10-18T17:23:20.000Z,29072,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,147 9287,v1.0,,"Some time ago, just before the OpenCare Project's start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of ""WeHandU"". I believe that the proposal to Rune can actively engage these people.",/post/29072,2016-10-18T17:22:56.000Z,2016-10-18T17:22:56.000Z,29072,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 10873,v1.0,,"Thanks @Natalia, re 'volunteer their time to work on their research'  I'd like to point out that we do not consider it research, rather a quest. The research has been done, it's about applying the results and create value for the comunity.",/post/28462,2016-10-18T17:22:34.000Z,2016-10-18T17:22:34.000Z,28462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1669 8896,v1.0,,"@Noemi, @Alberto - I had a short conversation with @Rune and @Alexander Shumsky yesterday. Besides discussing OPENandchange, I was also asked to try and help to find physiotherapists and patients who'd like to volunteer their time to work on their research. Do you know of anyone in the community who could be of help here? Or a good way to connect? They really want to have people from Milano and around, in order to be able to work hands on and regularly with them.",/post/27806,2016-10-18T17:22:03.000Z,2016-10-18T17:22:03.000Z,27806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1193 8197,v1.0,,I was also asked to try and help to find physiotherapists and patients who'd like to volunteer their time to work on their research,/post/27806,2016-10-18T17:21:44.000Z,2016-10-18T17:21:44.000Z,27806,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1050 10480,v1.0,,"Thanks, @Alberto. You coined it perfectly ' This is about patients being researchers, and viceversa'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.",/post/26952,2016-10-18T17:21:29.000Z,2016-10-18T17:21:29.000Z,26952,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1557 8073,v1.0,,"Thanks, @Alberto. You coined it perfectly ' This is about patients being researchers, and viceversa'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.",/post/26952,2016-10-18T17:21:22.000Z,2016-10-18T17:21:22.000Z,26952,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1023 9286,v1.0,,"Thanks, @Alberto. You coined it perfectly ' This is about patients being researchers, and viceversa'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.",/post/26952,2016-10-18T17:21:22.000Z,2016-10-18T17:21:22.000Z,26952,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 9328,v1.0,,"This is about patients being researchers, and viceversa'.",/post/26952,2016-10-18T17:21:10.000Z,2016-10-18T17:21:10.000Z,26952,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1289 9327,v1.0,,"But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients",/post/26032,2016-10-18T17:21:00.000Z,2016-10-18T17:21:00.000Z,26032,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1289 9285,v1.0,,"But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients being researchers, and viceversa.",/post/26032,2016-10-18T17:20:54.000Z,2016-10-18T17:20:54.000Z,26032,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 4552,v1.0,,"But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients being researchers, and viceversa.",/post/26032,2016-10-18T17:20:41.000Z,2016-10-18T17:20:41.000Z,26032,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,18 5799,v1.0,,"communities endowed with both care problems and care solutions, equipped with collective smarts and open knowledge.",/post/26032,2016-10-18T17:20:30.000Z,2016-10-18T17:20:30.000Z,26032,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,377 8770,v1.0,,"This is exactly the core idea of opencare: communities endowed with both care problems and care solutions, equipped with collective smarts and open knowledge.",/post/26032,2016-10-18T17:20:15.000Z,2016-10-18T17:20:15.000Z,26032,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1152 9201,v1.0,,"This initiative is not intended as research, not intended as competing with hospital regulations.",/post/21631,2016-10-18T17:19:57.000Z,2016-10-18T17:19:57.000Z,21631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1269 9284,v1.0,,"This initiative is not intended as research, not intended as competing with hospital regulations. It's aim is to join experts (=people dedicating time to making mistakes) with newbees (people spending time adapting/improving to new/chronic physical conditions.",/post/21631,2016-10-18T17:19:46.000Z,2016-10-18T17:19:46.000Z,21631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 8240,v1.0,,"Now, if you, say, make a survey of what colour of wheelchar is preferred, you need permissions from ethic comittee, legal paperwork etc, = >2k€ and >2-3 months delay",/post/21631,2016-10-18T17:19:10.000Z,2016-10-18T17:19:10.000Z,21631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1073 8270,v1.0,,"Now, if you, say, make a survey of what colour of wheelchar is preferred, you need permissions from ethic comittee, legal paperwork etc, = >2k€ and >2-3 months delay",/post/21631,2016-10-18T17:18:53.000Z,2016-10-18T17:18:53.000Z,21631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1074 9283,v1.0,,"what it would be like for patients to work side by side with researchers"".",/post/21631,2016-10-18T17:18:44.000Z,2016-10-18T17:18:44.000Z,21631,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 8196,v1.0,,we really need some clinical peopl,/post/16892,2016-10-18T17:18:27.000Z,2016-10-18T17:18:27.000Z,16892,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1050 10837,v1.0,,we really need some clinical people or just some epathic persons. Often what people really need is just to talk.,/post/16892,2016-10-18T17:18:05.000Z,2016-10-18T17:18:05.000Z,16892,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1653 9282,v1.0,,then we know about a number of other solutions for other physical functions. When you work with people you find solutions.,/post/12142,2016-10-18T17:17:32.000Z,2016-10-18T17:17:32.000Z,12142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 9200,v1.0,,"Why: Because it will fill a need that the healthsector is not meeting. Personalized, responsible selfcare and building a DIRECT bridge between healthcare professionals/researchers and users.",/post/12142,2016-10-18T17:17:22.000Z,2016-10-18T17:17:22.000Z,12142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1269 7295,v1.0,,"Why: Because it will fill a need that the healthsector is not meeting. Personalized, responsible selfcare and building a DIRECT bridge between healthcare professionals/researchers and users.",/post/12142,2016-10-18T17:17:17.000Z,2016-10-18T17:17:17.000Z,12142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,805 10371,v1.0,,"Hopefully with shared MISSION and VALUES,",/post/12142,2016-10-18T17:17:05.000Z,2016-10-18T17:17:05.000Z,12142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1533 8072,v1.0,,"here will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices.",/post/720,2016-10-18T17:16:46.000Z,2016-10-18T17:16:46.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1023 8071,v1.0,,cover many diciplines (also just as contact persons),/post/12142,2016-10-18T17:16:34.000Z,2016-10-18T17:16:34.000Z,12142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1023 7100,v1.0,,"We need a hub to share ideas, thats where I hope OpenCare & Edgeryders come in.",/post/12142,2016-10-18T17:16:22.000Z,2016-10-18T17:16:22.000Z,12142,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,763 10479,v1.0,,"I read this and also the full project description, and I see it ties nicely to Rune's question from before: what it would be like for patients to work side by side with researchers and makers. But to be sure: are you working on a makerspace or on a series of activities to happen in one or more existing spaces? And where?",/post/10548,2016-10-18T17:14:53.000Z,2016-10-18T17:14:53.000Z,10548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1557 9281,v1.0,,But to be sure: are you working on a makerspace or on a series of activities to happen in one or more existing spaces?,/post/10548,2016-10-18T17:14:46.000Z,2016-10-18T17:14:46.000Z,10548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 9956,v1.0,,what it would be like for patients to work side by side with researchers and makers.,/post/10548,2016-10-18T17:14:33.000Z,2016-10-18T17:14:33.000Z,10548,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1445 6082,v1.0,,ctive low-cost collaboration process,/post/720,2016-10-18T17:13:57.000Z,2016-10-18T17:13:57.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,427 4774,v1.0,,preserving autonomy,/post/720,2016-10-18T17:13:11.000Z,2016-10-18T17:13:11.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,80 9131,v1.0,,". It’s a open source (meaning that all details of how to replicate are publically available) device for strengthening the hand, using FES (mecfes.wikispaces.com).",/post/720,2016-10-18T17:12:48.000Z,2016-10-18T17:12:48.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1257 9165,v1.0,,"It’s a open source (meaning that all details of how to replicate are publically available) device for strengthening the hand, using FES (mecfes.wikispaces.com).",/post/720,2016-10-18T17:12:41.000Z,2016-10-18T17:12:41.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1259 4501,v1.0,,(e.g. 3D printing),/post/720,2016-10-18T17:12:15.000Z,2016-10-18T17:12:15.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,6 8399,v1.0,,"The new infrastructures of makerspaces (also known as fablabs or hackerspaces), allowing the do-it-yourself construction of objects, lend itself as a host for the WeHandU initiative.",/post/720,2016-10-18T17:12:13.000Z,2016-10-18T17:12:13.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1107 8224,v1.0,,More participants = more results,/post/720,2016-10-18T17:11:53.000Z,2016-10-18T17:11:53.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1063 4745,v1.0,,"Demonstration of an OpenCare model of a ‘makerspace’, We propose a laboratory where people living with motor impairment due to e.g. multiple sclerosis (MS), stroke or spinal cord injury (SCI) can meet and collaborate with other people. There will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices. A cooperative model where citizens with various skills can work together on realizing devices for use in everyday life, that will improve or maintain individual functional capabilities. This model will explore ways to transfer research results directly to users (target participants). New and existing ideas will be challenged and transformed into methods and assistive technology for activities of daily living. Initial focus will be to demonstrate how the challenges of mobility can be resolved by helping people's creativity in a social environment. One challenges that people often meet is the need for adaptation of tools to be able to perform day-to-day tasks as .abilities change, In the WeHandU laboratory people will be able (and helped) to implement such changes.",/post/720,2016-10-18T17:11:40.000Z,2016-10-18T17:11:40.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,67 7746,v1.0,,"A cooperative model where citizens with various skills can work together on realizing devices for use in everyday life, that will improve or maintain individual functional capabilities. This model will explore ways to transfer research results directly to users (target participants). New and existing ideas will be challenged and transformed into methods and assistive technology for activities of daily living. Initial focus will be to demonstrate how the challenges of mobility can be resolved by helping people's creativity in a social environment. One challenges that people often meet is the need for adaptation of tools to be able to perform day-to-day tasks as .abilities change, In the WeHandU laboratory people will be able (and helped) to implement such changes.",/post/720,2016-10-18T17:11:15.000Z,2016-10-18T17:11:15.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,924 6330,v1.0,,"A cooperative model where citizens with various skills can work together on realizing devices for use in everyday life, that will improve or maintain individual functional capabilities. This model will explore ways to transfer research results directly to users (target participants). New and existing ideas will be challenged and transformed into methods and assistive technology for activities of daily living. Initial focus will be to demonstrate how the challenges of mobility can be resolved by helping people's creativity in a social environment. One challenges that people often meet is the need for adaptation of tools to be able to perform day-to-day tasks as .abilities change, In the WeHandU laboratory people will be able (and helped) to implement such changes.",/post/720,2016-10-18T17:11:06.000Z,2016-10-18T17:11:06.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,455 10478,v1.0,,"e. There will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices.",/post/720,2016-10-18T17:10:50.000Z,2016-10-18T17:10:50.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1557 9280,v1.0,,"There will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices.",/post/720,2016-10-18T17:10:35.000Z,2016-10-18T17:10:35.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1283 8407,v1.0,,laboratory,/post/720,2016-10-18T17:10:18.000Z,2016-10-18T17:10:18.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1108 10620,v1.0,,spinal cord injury (SCI) c,/post/720,2016-10-18T17:10:09.000Z,2016-10-18T17:10:09.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1608 10727,v1.0,,stroke or spinal cord injury (SCI),/post/720,2016-10-18T17:10:03.000Z,2016-10-18T17:10:03.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1634 8871,v1.0,,"motor impairment due to e.g. multiple sclerosis (MS),",/post/720,2016-10-18T17:09:56.000Z,2016-10-18T17:09:56.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1181 8398,v1.0,,"Demonstration of an OpenCare model of a ‘makerspace’,",/post/720,2016-10-18T17:09:38.000Z,2016-10-18T17:09:38.000Z,720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,687,1107 7743,v1.0,,"This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.",/post/31536,2016-10-12T15:41:07.000Z,2016-10-12T15:41:07.000Z,31536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 7218,v1.0,,"This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.",/post/31536,2016-10-12T15:40:59.000Z,2016-10-12T15:40:59.000Z,31536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,782 10304,v1.0,,"This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.",/post/31536,2016-10-12T15:40:54.000Z,2016-10-12T15:40:54.000Z,31536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1508 8719,v1.0,,"The Eur Cultural Foundation has a yearly programme for grassroots initiatives and a call for next year closing on Sep 20. The topic is ""Moving Communities"". @Tomma I thought you guys might be interested:",/post/31149,2016-10-12T15:40:44.000Z,2016-10-12T15:40:44.000Z,31149,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1150 4938,v1.0,,I found that out when discussing things with the people who help out at a refugee center close to there. There ought to be some mutual interest in some of the activities... apparently it is a new thing - so there is probably a lot of learning for everyone involved.,/post/30610,2016-10-12T15:40:36.000Z,2016-10-12T15:40:36.000Z,30610,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,123 8718,v1.0,,"If you are interested, there is now University program called ""Migration and Diversity"" in this University: https://www.studium.uni-kiel.de/de/studienangebot/studienfaecher/migration-und-diversitaet-ma",/post/30610,2016-10-12T15:40:30.000Z,2016-10-12T15:40:30.000Z,30610,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1150 9235,v1.0,,"...at least when it comes to teaching and IT skills. Sadly, in germany many people do not speak english well and feel very uncomfortable when speaking it, so they rather dont speak it and send everyone who doesnt speak good german home. We hope teaching digital skills will help them find remote jobs",/post/30484,2016-10-12T15:40:18.000Z,2016-10-12T15:40:18.000Z,30484,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1271 9234,v1.0,,"Sometimes we have beginners, but we have other refugees around who help out.",/post/30484,2016-10-12T15:40:05.000Z,2016-10-12T15:40:05.000Z,30484,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1271 9233,v1.0,,"She was saying elsewhere, in her own words, that language is key to connect newcomers to the new setting, but also arguing for activities like the ones you propose. Do you manage to break throguh the language barrier, or have people helping with that? Either way, well done, it seems there's a lot you have going on and quite some activity (checked your live chat, great one hehe).",/post/30442,2016-10-12T15:39:58.000Z,2016-10-12T15:39:58.000Z,30442,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1271 10461,v1.0,,"Refugees dont need any skills to start. we start with ""whats a browser"" and ""how to create an email account"" and progress to how to build your own web app over the course of ~120 videos for now. More will follow soon to diversify what can be learned.",/post/30316,2016-10-12T15:39:45.000Z,2016-10-12T15:39:45.000Z,30316,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1556 7064,v1.0,,"Get some fairly decent CAD skills without the cost. And share some of what you make with the rest of us. Onshape.com allows CAD straight from the browser (of a decent computer or notebook). Check out who is behind it, those are some of the CAD Urgestein folks, and everything is fully legit.",/post/29543,2016-10-12T15:39:20.000Z,2016-10-12T15:39:20.000Z,29543,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,751 7063,v1.0,,"We currently have around a half a dozen refugees involved in our e-learning program that actually learn and some more in the community, but we are pre-launch.",/post/30316,2016-10-12T15:39:12.000Z,2016-10-12T15:39:12.000Z,30316,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,751 8717,v1.0,,"We currently have around a half a dozen refugees involved in our e-learning program that actually learn and some more in the community, but we are pre-launch.",/post/30316,2016-10-12T15:39:09.000Z,2016-10-12T15:39:09.000Z,30316,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1150 8716,v1.0,,what you're doing it's really interesting! I would like to know something more... how many refugees are already involved? Which are the main results? Refugees need to have particular skills to start?,/post/29957,2016-10-12T15:37:39.000Z,2016-10-12T15:37:39.000Z,29957,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1150 10460,v1.0,,"Get some fairly decent CAD skills without the cost. And share some of what you make with the rest of us. Onshape.com allows CAD straight from the browser (of a decent computer or notebook). Check out who is behind it, those are some of the CAD Urgestein folks, and everything is fully legit.",/post/29543,2016-10-12T15:37:24.000Z,2016-10-12T15:37:24.000Z,29543,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1556 10477,v1.0,,In the future you will be equipped to start your self employed career - either by bootstrapping your own app/company or working as a freelance developer for agencies/clients/customer or whatever else you have in mind. You can work from anywhere if you have a laptop with an internet connection.,/post/29067,2016-10-12T15:36:57.000Z,2016-10-12T15:36:57.000Z,29067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1557 10459,v1.0,,In the future you will be equipped to start your self employed career - either by bootstrapping your own app/company or working as a freelance developer for agencies/clients/customer or whatever else you have in mind. You can work from anywhere if you have a laptop with an internet connection.,/post/29067,2016-10-12T15:36:50.000Z,2016-10-12T15:36:50.000Z,29067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1556 10845,v1.0,,"We started to create an online curriculum that can teach you programming and goes from ""what's a browser"" to ""how to build an app"". It's free and you can have online chat support and if you happen to be in berlin, on tuesdays and fridays you can have face2face support at a local meetup",/post/29067,2016-10-12T15:36:28.000Z,2016-10-12T15:36:28.000Z,29067,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1658 8803,v1.0,,"Besides that we still want to realise our modular furniture system at the ICC Berlin. The Malteser are very interested too and already said that 30 of them will be there and help with the workshop! We might get a sponsorship, but it would still be great if we could raise the money via our startnext Campaign. We´re still happy about support :)! https://www.startnext.com/sava",/post/27799,2016-10-12T15:36:03.000Z,2016-10-12T15:36:03.000Z,27799,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1158 5690,v1.0,,"We will try to build up a community inside the camp, where everyone is an active part.",/post/27799,2016-10-12T15:35:37.000Z,2016-10-12T15:35:37.000Z,27799,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,357 10321,v1.0,,"creating sort of economy inside the temporary shelters/housing - so that the produce of the inhabitants could be sold outside, either as affordable fixes for the houses, or maybe as crafts, if higher quality materials were provided?",/post/23782,2016-10-12T15:34:55.000Z,2016-10-12T15:34:55.000Z,23782,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1513 8210,v1.0,,You could host a RC and perhaps keep some of the pieces for parts and training. Of course you can also encourage people to donate some semi-working things or decent enough tools (no one should work with shit tools!),/post/23333,2016-10-12T15:34:44.000Z,2016-10-12T15:34:44.000Z,23333,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1057 9880,v1.0,,You could host a RC and perhaps keep some of the pieces for parts and training. Of course you can also encourage people to donate some semi-working things or decent enough tools (no one should work with shit tools!),/post/23333,2016-10-12T15:34:30.000Z,2016-10-12T15:34:30.000Z,23333,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1438 7742,v1.0,,"LEDs are another option for color personalization instead of paint. If you DIY, just make sure you understand what resistor you need. You will need one unless you do plug in LED-bands which are relatively expensive (but still not bad, you could also cannibalize them). If treated right LEDs will last forever though.",/post/23108,2016-10-12T15:34:18.000Z,2016-10-12T15:34:18.000Z,23108,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 7741,v1.0,,"Pull broken head-phones out of the trash and fix them (9/10 are broken at the jack, you can fix them with almost nothing, if you are good you can re-use the solder that is already on them. Then you only need a lighter/candle and e.g. some liquid adhesive and string to fix things permanently. A quiet atmosphere and my (home) sounds around me help my mood a lot.",/post/23108,2016-10-12T15:34:10.000Z,2016-10-12T15:34:10.000Z,23108,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 7740,v1.0,,"If you want to personalize with few resources - try making your own paint. I recommend you use non-toxic pigment (and still use masks - just to spread awareness), and there are a bunch of non-toxic to fairly harmless liquids to mix stuff into (e.g linseed oil*). You can get a lot done with mortar and pestle for personalization scale.",/post/23108,2016-10-12T15:33:44.000Z,2016-10-12T15:33:44.000Z,23108,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 7855,v1.0,,"If you want to personalize with few resources - try making your own paint. I recommend you use non-toxic pigment (and still use masks - just to spread awareness), and there are a bunch of non-toxic to fairly harmless liquids to mix stuff into (e.g linseed oil*). You can get a lot done with mortar and pestle for personalization scale.",/post/23108,2016-10-12T15:33:40.000Z,2016-10-12T15:33:40.000Z,23108,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,957 10320,v1.0,,Some inspiration: - cardboard furniture (http://inhabitat.com/tag/cardboard-furniture/),/post/9599,2016-10-12T15:33:25.000Z,2016-10-12T15:33:25.000Z,9599,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1513 10319,v1.0,,"This is a handmade table produced by the roma community living on the outskirts of my hometown, in a rubish dump . The table was purchased by a hip bar downtown (I think that at an auction..) and is currently under great use. Photo from Made in Pata Rat facebook page. I will see if I can get in touch with someone who can better report on this story.",/post/21728,2016-10-12T15:33:08.000Z,2016-10-12T15:33:08.000Z,21728,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1513 9383,v1.0,,personalized,/post/21728,2016-10-12T15:32:51.000Z,2016-10-12T15:32:51.000Z,21728,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1302 9053,v1.0,,"The Camp we are working in, is quite open. As long as its not dangerous in any ways people can bring whatever they want.",/post/21499,2016-10-12T15:32:41.000Z,2016-10-12T15:32:41.000Z,21499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1248 8980,v1.0,,"That seems to be another Problem: every camp has different rules, so its almost impossible to find a general context.",/post/21499,2016-10-12T15:32:28.000Z,2016-10-12T15:32:28.000Z,21499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1213 9382,v1.0,,How can we make it personal though? Are people still motivated if every Box looks the same in the end?,/post/21499,2016-10-12T15:32:11.000Z,2016-10-12T15:32:11.000Z,21499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1302 8368,v1.0,,"I'm thinking on strong materials but it could be many things really like making it personal, giving it an emotional side to it (more than it already has), for example using pictures of friends from the camp, signatures, words. Could this become some sort of 'souvenir'? Could this be sold to the locals? (also serving the purpose of integration). Maybe it's something that serves different purposes (multi-functions)?",/post/9599,2016-10-12T15:31:54.000Z,2016-10-12T15:31:54.000Z,9599,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1097 8367,v1.0,,These are exactly the questions we are dealing with right now. We started off with honeycomb cardboard as you see on the pictures because its very easy to work with even if you dont have proffessional tools. The Problem though: it´s not long lasting. The stuff we build with the the refugees about a month ago is already loosing its shape.,/post/21499,2016-10-12T15:31:44.000Z,2016-10-12T15:31:44.000Z,21499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1097 10802,v1.0,,These are exactly the questions we are dealing with right now. We started off with honeycomb cardboard as you see on the pictures because its very easy to work with even if you dont have proffessional tools. The Problem though: it´s not long lasting. The stuff we build with the the refugees about a month ago is already loosing its shape.,/post/21499,2016-10-12T15:31:39.000Z,2016-10-12T15:31:39.000Z,21499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1648 10303,v1.0,,". We have been fantasizing about ""emergent"" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.",/post/16195,2016-10-12T15:31:12.000Z,2016-10-12T15:31:12.000Z,16195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1508 7739,v1.0,,"We have been fantasizing about ""emergent"" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.",/post/16195,2016-10-12T15:30:57.000Z,2016-10-12T15:30:57.000Z,16195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 9381,v1.0,,"I'm thinking on strong materials but it could be many things really like making it personal, giving it an emotional side to it (more than it already has), for example using pictures of friends from the camp, signatures, words. Could this become some sort of 'souvenir'? Could this be sold to the locals? (also serving the purpose of integration). Maybe it's something that serves different purposes (multi-functions)?",/post/9599,2016-10-12T15:30:25.000Z,2016-10-12T15:30:25.000Z,9599,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1302 10801,v1.0,,"I don't mean to say these are questions to be answered, rather just using them as stimulation to get to some other question(s). Or just forget about them if you think their rubbish!",/post/9599,2016-10-12T15:29:54.000Z,2016-10-12T15:29:54.000Z,9599,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1648 9955,v1.0,,"How might we build reusable furniture in a refugee camps? How might we build long-lasting furniture in a refugee camp? How might we build environmentally friendly disposable furniture in a refugee camp? How might we build furniture in a refugee camp that I'll want to keep later?",/post/9599,2016-10-12T15:29:32.000Z,2016-10-12T15:29:32.000Z,9599,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1445 11167,v1.0,,We feel the answer to our problem lies in establishing and expanding that very concept in other camps as well - to involve people in the daily happenings and motivate them to do what they can do best. We will research the willingness amongst the refugees to join such a program as soon as soon as Ramadan is over.,/post/703,2016-10-12T15:28:54.000Z,2016-10-12T15:28:54.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1749 10476,v1.0,,"The question is if more people in the camp would share the same enthusiasm. Ideally, a craftsman could be found to take the role of a tutor to guide the others into the basics of building. On our last visit in the camp we learnt that the the camp’s organizers are taking help of one of the refugees who used to be a tailor. He now has his working space (a table with a sewing machine) at the intern clothes depot and helps fixing the garments before they’re given out.",/post/703,2016-10-12T15:28:48.000Z,2016-10-12T15:28:48.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1557 7738,v1.0,,process,/post/703,2016-10-12T15:28:21.000Z,2016-10-12T15:28:21.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 8406,v1.0,,"With the creative potential, the only problem lies in the lack of tools and materials. To see what would happen if material were available, we made a little experiment where we brought basics like duct tape, cable ties, string and durable cardboard and looked what they would think of building intuitively. Despite scepticism in the beginning, it was beautiful to witness the moment when everyone in the room joined to figure out the best construction for a wall-mounted shelf, built with mortise and tenon joints. The fact the project was dealt with in such a manner, shows the willingness to engage these kinds of challenges with seriousness and a certain claim to quality and that it is not only about practicality and pure function, for such a shelf could have been easily assembled withjust tape and cardboard. It was fun for us to join the working process and thinking with them about the construction and making, but more importantly, it was fun for them to be challenged in making something useful and to make that beautifully. Mohammed, who came up with the idea of using joinery, later joked saying he would love to make such shelves for the whole camp - and we hoped, it was not merely a joke, but a mentality that we could continue to work with. In fact, we left all the spare materials in their rooms and by our next visit they had built another two shelves and a small storage for clothes under one of the beds.",/post/703,2016-10-12T15:28:08.000Z,2016-10-12T15:28:08.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1108 6459,v1.0,,"With the creative potential, the only problem lies in the lack of tools and materials. To see what would happen if material were available, we made a little experiment where we brought basics like duct tape, cable ties, string and durable cardboard and looked what they would think of building intuitively. Despite scepticism in the beginning, it was beautiful to witness the moment when everyone in the room joined to figure out the best construction for a wall-mounted shelf, built with mortise and tenon joints. The fact the project was dealt with in such a manner, shows the willingness to engage these kinds of challenges with seriousness and a certain claim to quality and that it is not only about practicality and pure function, for such a shelf could have been easily assembled withjust tape and cardboard. It was fun for us to join the working process and thinking with them about the construction and making, but more importantly, it was fun for them to be challenged in making something useful and to make that beautifully. Mohammed, who came up with the idea of using joinery, later joked saying he would love to make such shelves for the whole camp - and we hoped, it was not merely a joke, but a mentality that we could continue to work with. In fact, we left all the spare materials in their rooms and by our next visit they had built another two shelves and a small storage for clothes under one of the beds.",/post/703,2016-10-12T15:27:57.000Z,2016-10-12T15:27:57.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,485 8209,v1.0,,"With the creative potential, the only problem lies in the lack of tools and materials.",/post/703,2016-10-12T15:27:02.000Z,2016-10-12T15:27:02.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1057 6171,v1.0,,We learnt quickly that the ideas of how to use the space could never occur to someone who has never been in that exact position:,/post/703,2016-10-12T15:26:27.000Z,2016-10-12T15:26:27.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,438 7870,v1.0,,"the little gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth. We learnt quickly that the ideas of how to use the space could never occur to someone who has ne",/post/703,2016-10-12T15:26:18.000Z,2016-10-12T15:26:18.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,962 6458,v1.0,,little gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.,/post/703,2016-10-12T15:25:55.000Z,2016-10-12T15:25:55.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,485 7737,v1.0,,e little gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.,/post/703,2016-10-12T15:25:46.000Z,2016-10-12T15:25:46.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,924 6159,v1.0,,ittle gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.,/post/703,2016-10-12T15:25:31.000Z,2016-10-12T15:25:31.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,437 10671,v1.0,,Besides stories over everyday rituals like tea and Syrian home traditions,/post/703,2016-10-12T15:25:17.000Z,2016-10-12T15:25:17.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1625 8915,v1.0,,"Most projects for refugees are designed to specifically help the arriving families, children and the single travelling women; but the majority of refugees is barely taken care of in the same manner: the young men. It is an illogical equation: The young male refugees are often regarded as healthy and fit, able to work and therefore are not treated as a priority in terms of care. However; of what use could these benefits be if there is nothing to do? In Germany, refugees are not allowed to pick proper work for the first three months of their stay. After that period, a working permit is needed to apply for a job. The permit, however, is only granted if the person is no longer living in a refugee camp. Needless to say, the said three months often pass without anything really happening and three months slowly turn into six months and into a year - during which there is nothing to do.",/post/703,2016-10-12T15:25:02.000Z,2016-10-12T15:25:02.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1195 4970,v1.0,,Volunteers playing with children; refugees and security joking around and everybody is eating at the same table. There is no hint of the provider/receiver-dilemma that you would witness in other establishments. We’ve been warmly welcomed by the people and the relationships have gradually grown more personal since our first visit.,/post/703,2016-10-12T15:24:53.000Z,2016-10-12T15:24:53.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,126 5765,v1.0,,Volunteers playing with children; refugees and security joking around and everybody is eating at the same table. There is no hint of the provider/receiver-dilemma that you would witness in other establishments. We’ve been warmly welcomed by the people and the relationships have gradually grown more personal since our first visit.,/post/703,2016-10-12T15:24:38.000Z,2016-10-12T15:24:38.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,373 11552,v1.0,,"Most projects for refugees are designed to specifically help the arriving families, children and the single travelling women; but the majority of refugees is barely taken care of in the same manner: the young men. It is an illogical equation: The young male refugees are often regarded as healthy and fit, able to work and therefore are not treated as a priority in terms of care. However; of what use could these benefits be if there is nothing to do? In Germany, refugees are not allowed to pick proper work for the first three months of their stay. After that period, a working permit is needed to apply for a job. The permit, however, is only granted if the person is no longer living in a refugee camp. Needless to say, the said three months often pass without anything really happening and three months slowly turn into six months and into a year - during which there is nothing to do.",/post/703,2016-10-12T15:23:54.000Z,2016-10-12T15:23:54.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1871 8181,v1.0,,"Most projects for refugees are designed to specifically help the arriving families, children and the single travelling women; but the majority of refugees is barely taken care of in the same manner: the young men. It is an illogical equation: The young male refugees are often regarded as healthy and fit, able to work and therefore are not treated as a priority in terms of care. However; of what use could these benefits be if there is nothing to do? In Germany, refugees are not allowed to pick proper work for the first three months of their stay. After that period, a working permit is needed to apply for a job. The permit, however, is only granted if the person is no longer living in a refugee camp. Needless to say, the said three months often pass without anything really happening and three months slowly turn into six months and into a year - during which there is nothing to do.",/post/703,2016-10-12T15:23:45.000Z,2016-10-12T15:23:45.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1047 8715,v1.0,,An experiment to encourage spontaneous creativity for making a living as a migrant,/post/703,2016-10-12T15:23:34.000Z,2016-10-12T15:23:34.000Z,703,3323,AnnotatorStore::TextAnnotation,,,,,,,,,670,1150 8226,v1.0,,"Hi @ybe, Have you considered providing trauma healing for cops? They are the ones who inflict much of the trauma in my area and they could use a big dose of emotional processing!",/post/29075,2016-10-12T15:19:36.000Z,2016-10-12T15:19:36.000Z,29075,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1065 11228,v1.0,,"Hi @ybe, Have you considered providing trauma healing for cops? They are the ones who inflict much of the trauma in my area and they could use a big dose of emotional processing!",/post/29075,2016-10-12T15:19:27.000Z,2016-10-12T15:19:27.000Z,29075,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 5968,v1.0,,"Dear @ybe, can I propose that we do the discussion in a shared document, i'll send you the link. Then it could evolve into some structured persitent document serving others sharing our thoughs?",/post/28733,2016-10-12T15:19:17.000Z,2016-10-12T15:19:17.000Z,28733,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,396 11227,v1.0,,"@Rune I think you're right: psychological aspects should be taken into account. Medical diagnosis and treatment are often very 'traumatic' = overwhelmingly disturbing. I don't know if I am the right person to advise Wehandyou - there must be traumaspecialists more familiar with the people affected by these kinds of  trauma and the technology involved. Nevertheless, I am open to collaboration. Lets have a bit of a longer conversation on skype? What do you think?",/post/28464,2016-10-12T15:19:09.000Z,2016-10-12T15:19:09.000Z,28464,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 10255,v1.0,,I would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal  conversation? Should we provide time for individual help too?How many people are involved?,/post/26955,2016-10-12T15:17:58.000Z,2016-10-12T15:17:58.000Z,26955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1496 10254,v1.0,,"There are a lot of people there who have a lot of different personal mental health issues. Its probably a better use of your time to focus on this 'secondary' trauma, rather than working with people who have experienced it.",/post/27318,2016-10-12T15:17:51.000Z,2016-10-12T15:17:51.000Z,27318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1496 6520,v1.0,,The best use would probably be to spend a day talking to the management team and helping them develop an ongoing practice. Then a couple of days running large group training the daytime and one-to-one sessions in the evening.,/post/27318,2016-10-12T15:17:37.000Z,2016-10-12T15:17:37.000Z,27318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,491 5967,v1.0,,I suggest a Skype call early next week. Perhaps Tuesday. you can email me alexalevene[at]gmail[.]com,/post/27318,2016-10-12T15:17:27.000Z,2016-10-12T15:17:27.000Z,27318,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,396 5966,v1.0,,I would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal  conversation? Should we provide time for individual help too?How many people are involved?,/post/26955,2016-10-12T15:17:18.000Z,2016-10-12T15:17:18.000Z,26955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,396 11226,v1.0,,I would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal  conversation? Should we provide time for individual help too?How many people are involved?,/post/26955,2016-10-12T15:16:57.000Z,2016-10-12T15:16:57.000Z,26955,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 8714,v1.0,,"I know for certain that your experience and skills would be really useful to the volunteer organisations working down at the Calais refugee camp. Many volunteers have been working out there for the last year and there is a real need for access to professional mental health care.  It will be required even more when the French Authorities start their planned clearance of the camp. At the moment we do not know when this will happen. But the volunteers current support nearly 10000 refugees on the camp and will probably put their lives on the line to help protect the refugees and their things during the eviction. It will certainly be highly emotional and very fraught.",/post/26040,2016-10-12T15:16:27.000Z,2016-10-12T15:16:27.000Z,26040,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1150 10148,v1.0,,"As for Medecins sans frontières, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,  are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.",/post/23874,2016-10-12T15:15:35.000Z,2016-10-12T15:15:35.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1466 8966,v1.0,,"One reads about NGOs becoming institutions and not in a good way. This is very hard to digest in the real world, since your mission is supposedly to fix a problem. Sorry to hear about that unfortunate experience, we will be on the lookout for other options.",/post/24948,2016-10-12T15:15:21.000Z,2016-10-12T15:15:21.000Z,24948,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1207 5576,v1.0,,"As for Medecins sans frontières, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,  are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.",/post/23874,2016-10-12T15:15:01.000Z,2016-10-12T15:15:01.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,340 9198,v1.0,,"As for Medecins sans frontières, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,  are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.",/post/23874,2016-10-12T15:14:44.000Z,2016-10-12T15:14:44.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1269 9022,v1.0,,"As for Medecins sans frontières, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,  are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.",/post/23874,2016-10-12T15:14:34.000Z,2016-10-12T15:14:34.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1231 9006,v1.0,,"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.",/post/23874,2016-10-12T15:13:55.000Z,2016-10-12T15:13:55.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1223 11225,v1.0,,"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.",/post/23874,2016-10-12T15:13:49.000Z,2016-10-12T15:13:49.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 8713,v1.0,,"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.",/post/23874,2016-10-12T15:13:41.000Z,2016-10-12T15:13:41.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1150 10353,v1.0,,"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.",/post/23874,2016-10-12T15:13:36.000Z,2016-10-12T15:13:36.000Z,23874,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1529 8429,v1.0,,"Dear @ybe - it's great to hear of your initiative! Following up on Noemi's suggestion - I agree that local organizations/groups/individuals on your trail could also be insightful in identifying groups in need of your services, offer insights on any cultural differences, or support you in a number of other ways (including in overcoming language barriers if existant). I was wondering if you have considered mapping your desired/planned route to facilitate connecting with local groups/individuals before you arrive - maybe a very basic online map? I think it could facilitate reaching out to people on the route and could have potential as a planning tool.",/post/21964,2016-10-12T15:12:50.000Z,2016-10-12T15:12:50.000Z,21964,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1113 6285,v1.0,,"Dear @ybe - it's great to hear of your initiative! Following up on Noemi's suggestion - I agree that local organizations/groups/individuals on your trail could also be insightful in identifying groups in need of your services, offer insights on any cultural differences, or support you in a number of other ways (including in overcoming language barriers if existant). I was wondering if you have considered mapping your desired/planned route to facilitate connecting with local groups/individuals before you arrive - maybe a very basic online map? I think it could facilitate reaching out to people on the route and could have potential as a planning tool.",/post/21964,2016-10-12T15:12:47.000Z,2016-10-12T15:12:47.000Z,21964,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,449 6284,v1.0,,"@ybe I'm happy to meet you, my name is Noemi and while I haven't dealt with the issue at all, maybe this is silly to ask: but I'm wondering if people in different places have own preferences to express themselves, or if language can be an obstacle?",/post/20332,2016-10-12T15:12:27.000Z,2016-10-12T15:12:27.000Z,20332,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,449 8538,v1.0,,"Have you tried getting in touch with Médecins Sans Frontières for a collaboration? I was reading about them offering psychological first aid, but apparently there are not nearly enough people on the ground.",/post/20332,2016-10-12T15:12:19.000Z,2016-10-12T15:12:19.000Z,20332,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1140 9232,v1.0,,"I'm wondering if people in different places have own preferences to express themselves, or if language can be an obstacle?",/post/20332,2016-10-12T15:12:07.000Z,2016-10-12T15:12:07.000Z,20332,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1271 11224,v1.0,,"Of course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.",/post/13679,2016-10-12T15:11:50.000Z,2016-10-12T15:11:50.000Z,13679,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 11223,v1.0,,"Thx @steelweaver for your comment. As for the somatic apporach, I totally agree. I often use somatic experiencing, especially for chock trauma. Before going to Calais, I need to look up soms good group exercices for the volunteers. Suggestions welcome.",/post/13769,2016-10-12T15:11:40.000Z,2016-10-12T15:11:40.000Z,13769,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 11222,v1.0,,"Hi @ybe, have you read the story of @Village-Psy and the work they do with education on healing trauma on Mt. Pelion, in Greece?",/post/14937,2016-10-12T15:11:32.000Z,2016-10-12T15:11:32.000Z,14937,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 10613,v1.0,,"Thx @steelweaver for your comment. As for the somatic apporach, I totally agree. I often use somatic experiencing, especially for chock trauma. Before going to Calais, I need to look up soms good group exercices for the volunteers. Suggestions welcome.",/post/13769,2016-10-12T15:11:23.000Z,2016-10-12T15:11:23.000Z,13769,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1602 4574,v1.0,,"Of course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.",/post/13679,2016-10-12T15:11:03.000Z,2016-10-12T15:11:03.000Z,13679,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,21 4889,v1.0,,"Predictably enough, given my day job, my bias is towards body-based practices, or at least forms of psychotherapy that incorporate some aspect of physical engagement - I don't know if @ybe already incorporates these ideas in her practice, and in any case other forms of psychotherapeutic intervention are also very effective.",/post/13679,2016-10-12T14:53:01.000Z,2016-10-12T14:53:01.000Z,13679,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,107 10612,v1.0,,"- Somatherapy was developed during the military junta in Brasil as a combination of psychotherapy, capoeira and anarchist theory. It favours use of enjoyable, play-based physical activities and emphasises placing individual mental health within the larger political context.",/post/13679,2016-10-12T14:52:24.000Z,2016-10-12T14:52:24.000Z,13679,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1602 8537,v1.0,,"Hello and welcome, @ybe ! This is a suggestive image: a therapist driving her bus into the sunset, looking for traumatized people to help out. I am curious as any previous attempts of dealing with trauma in groups. I know nothing about psychotherapy, but I do recall that this problem was met by army psychologists in wartimes. Too many traumatized soldiers, not enough therapists. Therapy had to be done in groups (and here is where Wilfred Bion's intellectual journey starts) . Has this stabilized into standard practice? As for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?",/post/7567,2016-10-11T18:47:26.000Z,2016-10-11T18:47:26.000Z,7567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1140 8536,v1.0,,"hospitals). What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope better with traumatic events in our lives and in the world. We need to talk about trauma and pain more openly. We need to adress trauma and pain more directly, not only in the setting of a psychotherapeutical process. As for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!",/post/11020,2016-10-11T18:46:51.000Z,2016-10-11T18:46:51.000Z,11020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1140 10410,v1.0,,What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope,/post/11020,2016-10-11T18:46:39.000Z,2016-10-11T18:46:39.000Z,11020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1540 9803,v1.0,,"As for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!",/post/11020,2016-10-11T18:46:24.000Z,2016-10-11T18:46:24.000Z,11020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1417 7516,v1.0,,"As for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!",/post/11020,2016-10-11T18:46:19.000Z,2016-10-11T18:46:19.000Z,11020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,876 7685,v1.0,,"Group therapy is a quite common part of  a therapy programm in clinical setting (psychiatric hospitals). What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope better with traumatic events in our lives and in the world. We need to talk about trauma and pain more openly. We need to adress trauma and pain more directly, not only in the setting of a psychotherapeutical process.",/post/11020,2016-10-11T18:43:15.000Z,2016-10-11T18:43:15.000Z,11020,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,915 8327,v1.0,,"As for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?",/post/7567,2016-10-11T18:42:51.000Z,2016-10-11T18:42:51.000Z,7567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1086 9802,v1.0,,"As for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?",/post/7567,2016-10-11T18:42:37.000Z,2016-10-11T18:42:37.000Z,7567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1417 7684,v1.0,,"Eventually I bought a bus. My very first tour this week goes to Ghent, where I already have connected with potential participants. It will be a chance for me to see in what ways I can connect with groups. How to talk to people about trauma? How to equip them with knowledge and capacity to deal with their own experiences? And what could  be a possible model for sustaining the project, as I really want to go far with my tour, reaching the Balkans, Greece, visit communities out there. Ultimately, I’d also like to volunteer in refugee camps and serve with my knowledge and experience there (I do work in an asylum center in Belgium once a week).",/post/740,2016-10-11T18:42:23.000Z,2016-10-11T18:42:23.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,915 7683,v1.0,,"I am curious as any previous attempts of dealing with trauma in groups. I know nothing about psychotherapy, but I do recall that this problem was met by army psychologists in wartimes. Too many traumatized soldiers, not enough therapists. Therapy had to be done in groups (and here is where Wilfred Bion's intellectual journey starts) . Has this stabilized into standard practice?",/post/7567,2016-10-11T18:42:02.000Z,2016-10-11T18:42:02.000Z,7567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,915 10906,v1.0,,"Hello and welcome, @ybe ! This is a suggestive image: a therapist driving her bus into the sunset, looking for traumatized people to help out.",/post/7567,2016-10-11T18:41:49.000Z,2016-10-11T18:41:49.000Z,7567,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1680 9801,v1.0,,"I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you’d like to give me a tip, share an idea, help me prepare the tour - leave a comment.",/post/740,2016-10-11T18:41:35.000Z,2016-10-11T18:41:35.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1417 8898,v1.0,,"I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you’d like to give me a tip, share an idea, help me prepare the tour - leave a comment.",/post/740,2016-10-11T18:41:24.000Z,2016-10-11T18:41:24.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1194 7515,v1.0,,"I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you’d like to give me a tip, share an idea, help me prepare the tour - leave a comment.",/post/740,2016-10-11T18:41:00.000Z,2016-10-11T18:41:00.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,876 5090,v1.0,,"I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you’d like to give me a tip, share an idea, help me prepare the tour - leave a comment.",/post/740,2016-10-11T18:40:07.000Z,2016-10-11T18:40:07.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,147 11545,v1.0,,"During the preparation for the tour I have realised there is a big interest in the topic already - people really want to know more about trauma. I’ve already taken a step towards promoting awareness and dealing with the problem - I wrote a book about trauma last year. The book became quite popular, and it’s now being translated from Dutch to English. It will be available in January, and it is based on common licence, along with the exercises included. This decision is based on my view that psychological knowledge, and therapeutical knowledge, are all based on dozens of years of collective practice and wisdom accumulated which should be available to everyone without limitations, certifications, individualisation...",/post/740,2016-10-11T18:37:05.000Z,2016-10-11T18:37:05.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1867 7494,v1.0,,"s decision is based on my view that psychological knowledge, and therapeutical knowledge, are all based on dozens of years of collective practice and wisdom accumulated which should be available to everyone without limitations, certifications, individualisation...",/post/740,2016-10-11T18:37:01.000Z,2016-10-11T18:37:01.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,867 8712,v1.0,,I’d also like to volunteer in refugee camps and serve with my knowledge and experience there (I do work in an asylum center in Belgium once a week).,/post/740,2016-10-11T18:36:01.000Z,2016-10-11T18:36:01.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1150 10409,v1.0,,"Eventually I bought a bus. My very first tour this week goes to Ghent, where I already have connected with potential participants. It will be a chance for me to see in what ways I can connect with groups. How to talk to people about trauma? How to equip them with knowledge and capacity to deal with their own experiences? And what could  be a possible model for sustaining the project, as I really want to go far with my tour, reaching the Balkans, Greece, visit communities out there. Ultimately, I’d also like to volunteer in refugee camps and serve with my knowledge and experience there (I do work in an asylum center in Belgium once a week).",/post/740,2016-10-11T18:35:15.000Z,2016-10-11T18:35:15.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1540 10905,v1.0,,"We, psychotherapists, stay in our daily practices. We don’t move. We don’t reach out and explain things to people. We do things with individuals - why not try to work with a group, and talk to a group? This is what I’d rather do. The more I thought about it, the more sense it made.",/post/740,2016-10-11T18:34:52.000Z,2016-10-11T18:34:52.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1680 11285,v1.0,,"One of the reasons why I decided to try Trauma Tour is my exchange with a patient over Twitter. We’ve been talking online for a very long time about her experience, as she cannot come and see me in Belgium. And then I thought, I should be able to go and see her.",/post/740,2016-10-11T18:33:33.000Z,2016-10-11T18:33:33.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1786 9689,v1.0,,"I have been working as a trauma therapist since 10 years. It’s not an area that many psychotherapists decide to explore in their daily practice, but ever since I can remember it was the most appealing area of psychotherapy for me. And one that is highly unexplored and somehow underrepresented.",/post/740,2016-10-11T18:33:05.000Z,2016-10-11T18:33:05.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1385 8535,v1.0,,"I have been working as a trauma therapist since 10 years. It’s not an area that many psychotherapists decide to explore in their daily practice, but ever since I can remember it was the most appealing area of psychotherapy for me. And one that is highly unexplored and somehow underrepresented.",/post/740,2016-10-11T18:32:59.000Z,2016-10-11T18:32:59.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1140 11221,v1.0,,"I have been working as a trauma therapist since 10 years. It’s not an area that many psychotherapists decide to explore in their daily practice, but ever since I can remember it was the most appealing area of psychotherapy for me. And one that is highly unexplored and somehow underrepresented.",/post/740,2016-10-11T18:32:49.000Z,2016-10-11T18:32:49.000Z,740,3323,AnnotatorStore::TextAnnotation,,,,,,,,,707,1772 6378,v1.0,,"SENSORICA is the first instantiation of the OVN model. It originated in Montreal, in early 2011. The initial focus of the network was to develop open source scientific research equipment using commons-based peer production methodologies. Indeed, most of activities are coordinated from the SENSORICA Montreal lab, a physical location where local affiliates can meet and work together. However, the Network Resource Planning (NRP) tools that Sensoricans have developed lays the foundation of a strong decentralized community without geographical borders. It allows tracking of the flow of resources through the entire system, at both micro and macro levels. NRP is the mainstay of all SENSORICA projects, and enables SENSORICA to practically implement the ideologies of collaborative and open innovation in a transparent and equitable manner.",/post/538,2016-10-06T00:36:08.000Z,2016-10-06T00:36:08.000Z,538,3323,AnnotatorStore::TextAnnotation,,,,,,,,,505,467 9334,v1.0,,"SENSORICA is the first instantiation of the OVN model. It originated in Montreal, in early 2011. The initial focus of the network was to develop open source scientific research equipment using commons-based peer production methodologies. Indeed, most of activities are coordinated from the SENSORICA Montreal lab, a physical location where local affiliates can meet and work together. However, the Network Resource Planning (NRP) tools that Sensoricans have developed lays the foundation of a strong decentralized community without geographical borders. It allows tracking of the flow of resources through the entire system, at both micro and macro levels. NRP is the mainstay of all SENSORICA projects, and enables SENSORICA to practically implement the ideologies of collaborative and open innovation in a transparent and equitable manner.",/post/538,2016-10-06T00:35:27.000Z,2016-10-06T00:35:27.000Z,538,3323,AnnotatorStore::TextAnnotation,,,,,,,,,505,1292 7268,v1.0,,"OVN, contributions to a process, be it tangible items such as time and money or intangibles such as social capital, are recorded and whatever benefit is derived from this process is proportionally divided and distributed back to contributors. This makes open networks sustainable, by allowing the implementation of capturing and redistribution mechanisms. Networks have yet to gain public recognition, legitimacy and legality, but the jury is out already, the OVN model makes open networks fully capable socioeconomic agents.",/post/538,2016-10-06T00:34:17.000Z,2016-10-06T00:34:17.000Z,538,3323,AnnotatorStore::TextAnnotation,,,,,,,,,505,795 5707,v1.0,,"That is where the Open Value Network model (OVN) comes in. An OVN is built around a core open source community, preserving its nature, and adds layers of governance, infrastructure and methodologies in order to make large scale, open innovation networks as predictable and accountable as traditional organizations, such as coops or limited liability corporations. In an OVN, contributions to a process, be it tangible items such as time and money or intangibles such as social capital, are recorded and whatever benefit is derived from this process is proportionally divided and distributed back to contributors. This makes open networks sustainable, by allowing the implementation of capturing and redistribution mechanisms. Networks have yet to gain public recognition, legitimacy and legality, but the jury is out already, the OVN model makes open networks fully capable socioeconomic agents.",/post/538,2016-10-06T00:33:33.000Z,2016-10-06T00:33:33.000Z,538,3323,AnnotatorStore::TextAnnotation,,,,,,,,,505,361 10221,v1.0,,"That is where the Open Value Network model (OVN) comes in. An OVN is built around a core open source community, preserving its nature, and adds layers of governance, infrastructure and methodologies in order to make large scale, open innovation networks as predictable and accountable as traditional organizations, such as coops or limited liability corporations. In an OVN, contributions to a process, be it tangible items such as time and money or intangibles such as social capital, are recorded and whatever benefit is derived from this process is proportionally divided and distributed back to contributors. This makes open networks sustainable, by allowing the implementation of capturing and redistribution mechanisms. Networks have yet to gain public recognition, legitimacy and legality, but the jury is out already, the OVN model makes open networks fully capable socioeconomic agents.",/post/538,2016-10-06T00:33:05.000Z,2016-10-06T00:33:05.000Z,538,3323,AnnotatorStore::TextAnnotation,,,,,,,,,505,1487 9130,v1.0,,"There is a growing recognition about the negative effects stemming from commodifying innovation through restrictive I.P. protection and exclusivity, especially in the medical field. Open Source Development methodologies in software emerged as the dominant form of collaborative innovation in the late 90’s and the trend has been spreading to a wider sphere of work. The IT infrastructure of today’s world enables peers to connect, share and collaborate on solving common issues through use of collective knowledge. Commons-based peer production is the term that defines such collaborative efforts by peers. The collaborators act as the stewards of commonly held wealth and assets which could be anything ; monies, knowledge, equipment, reputations, social capital etc.The beauty of such networks is that development for one project can be mixed and remixed to suit a variety of other needs. Traditionally, such endeavors have been part of a gift-economy where peers do not seek tangible rewards for their contributions. However, for larger scale and mainstream economic model, gift economy is not a viable method for development. The question, then, is how do we keep track of contributions to inform fair rewards?",/post/538,2016-10-06T00:32:33.000Z,2016-10-06T00:32:33.000Z,538,3323,AnnotatorStore::TextAnnotation,,,,,,,,,505,1257 7736,v1.0,,"Conclusion: for DIY to really work its magic, things have to be cheap. The cheaper the better.",/post/9202,2016-10-05T21:45:04.000Z,2016-10-05T21:45:04.000Z,9202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,674,924 10935,v1.0,,"And ""you may not have the courage to take a part a 1,000 dollars medical device, but youy definitely have the courage to take apart something that costs 5 dollars.""",/post/9202,2016-10-05T21:44:56.000Z,2016-10-05T21:44:56.000Z,9202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,674,1690 6081,v1.0,,"Researcher José Gómez-Márquez whose big thoughts shapes Little Devices"", the lab he directs at MIT- uses toys to make affordable medical devices.The Little Devices lab takes a DIY approach to designing and building tools, mainly for healthcare.   A plastic gun can be to create an alarm that alerts nurses when a patient’s IV bag needs changing. And a box of Lego-like building blocks can be used to modify existing medical equipment in numerous ways. He creates devices that bridge the gap between absence of mechanical or electrical engineering or fundamentals of product design. Marquez talks about that toys can be the engineered piece or the mechanical bits and pieces that you can harvest and re-purpose. Gómez-Márquez happens to have the backing of MIT, yet he is joined by a large and often-unrecognized population of DIYers who are practicing low-cost innovation. Historically, the public has looked to research and development labs at multinational corporations, universities and government labs — and has grown accustomed to expensive, complicated devices used more often in elite hospitals than jungles or slums. Not surprisingly, those who make DIY medical devices encounter doubt and even derision constantly. Such attitudes are a problem, because the DIY tools dreamed up by backyard inventors, part-time tinkerers and academics like Gómez-Márquez could improve — and even save — thousands of lives everywhere, not only in inner cities but in communities everywhere. We need to toss out our false assumptions about how, and where, new ideas come from — and recognize that innovation is everywhere.",/post/707,2016-10-05T21:44:16.000Z,2016-10-05T21:44:16.000Z,707,3323,AnnotatorStore::TextAnnotation,,,,,,,,,674,427 6457,v1.0,,"Researcher José Gómez-Márquez whose big thoughts shapes Little Devices"", the lab he directs at MIT- uses toys to make affordable medical devices.The Little Devices lab takes a DIY approach to designing and building tools, mainly for healthcare.   A plastic gun can be to create an alarm that alerts nurses when a patient’s IV bag needs changing. And a box of Lego-like building blocks can be used to modify existing medical equipment in numerous ways. He creates devices that bridge the gap between absence of mechanical or electrical engineering or fundamentals of product design. Marquez talks about that toys can be the engineered piece or the mechanical bits and pieces that you can harvest and re-purpose. Gómez-Márquez happens to have the backing of MIT, yet he is joined by a large and often-unrecognized population of DIYers who are practicing low-cost innovation. Historically, the public has looked to research and development labs at multinational corporations, universities and government labs — and has grown accustomed to expensive, complicated devices used more often in elite hospitals than jungles or slums. Not surprisingly, those who make DIY medical devices encounter doubt and even derision constantly. Such attitudes are a problem, because the DIY tools dreamed up by backyard inventors, part-time tinkerers and academics like Gómez-Márquez could improve — and even save — thousands of lives everywhere, not only in inner cities but in communities everywhere. We need to toss out our false assumptions about how, and where, new ideas come from — and recognize that innovation is everywhere.",/post/707,2016-10-05T21:43:59.000Z,2016-10-05T21:43:59.000Z,707,3323,AnnotatorStore::TextAnnotation,,,,,,,,,674,485 11194,v1.0,,toys,/post/707,2016-10-05T21:43:45.000Z,2016-10-05T21:43:45.000Z,707,3323,AnnotatorStore::TextAnnotation,,,,,,,,,674,1762 7735,v1.0,,"The Little Devices lab takes a DIY approach to designing and building tools, mainly for healthcare",/post/707,2016-10-05T21:43:36.000Z,2016-10-05T21:43:36.000Z,707,3323,AnnotatorStore::TextAnnotation,,,,,,,,,674,924 11392,v1.0,,"Unfortunately, the public sentiment is negative. Mass media shape the opinion that the refugees stopped crossing borders, so people believe that they stopped coming. Others falsely believe that refugees are to blame for anything wrong. And since the beginning of the summer, most volunteers disappeared. This has, inevitably, resulted in a fatigue in the area of refugee care.",/post/737,2016-09-27T16:57:10.000Z,2016-09-27T16:57:10.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1832 10108,v1.0,,"Unfortunately, the public sentiment is negative. Mass media shape the opinion that the refugees stopped crossing borders, so people believe that they stopped coming. Others falsely believe that refugees are to blame for anything wrong. And since the beginning of the summer, most volunteers disappeared. This has, inevitably, resulted in a fatigue in the area of refugee care.",/post/737,2016-09-27T16:57:03.000Z,2016-09-27T16:57:03.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1451 6979,v1.0,,"Unfortunately, the public sentiment is negative. Mass media shape the opinion that the refugees stopped crossing borders, so people believe that they stopped coming. Others falsely believe that refugees are to blame for anything wrong. And since the beginning of the summer, most volunteers disappeared. This has, inevitably, resulted in a fatigue in the area of refugee care.",/post/737,2016-09-27T16:56:50.000Z,2016-09-27T16:56:50.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,729 7626,v1.0,,"As s municipal councilor, I am in contact with local authorities. Sadly the Municipality responded very poorly, compared to what it could do. Same goes with the Ministry of Immigration Policy. We talked to the consultants, they appreciated our effort, but there was no practical result.",/post/737,2016-09-27T16:56:45.000Z,2016-09-27T16:56:45.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,906 6036,v1.0,,"I come from Thessaloniki, and my ancestors were refugees. Initially, the response from my immediate environment has been disappointing. My job is in the clothing sector, however, being an elected Municipal Councillor at the City of Thessaloniki, people know my public activity so it was easy to build trust. Furthermore, I am sitting at the Management Board to the Municipal TV100 station. Having many contacts with journalists helped to communicate the action widely. All this combined has resulted in the massive spontaneous response of a community of 1500 citizens from all walks of life. Including people from Europe and the US, who donated waterproof jackets and blankets.",/post/737,2016-09-27T16:56:30.000Z,2016-09-27T16:56:30.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,414 8158,v1.0,,"I come from Thessaloniki, and my ancestors were refugees. Initially, the response from my immediate environment has been disappointing. My job is in the clothing sector, however, being an elected Municipal Councillor at the City of Thessaloniki, people know my public activity so it was easy to build trust. Furthermore, I am sitting at the Management Board to the Municipal TV100 station. Having many contacts with journalists helped to communicate the action widely. All this combined has resulted in the massive spontaneous response of a community of 1500 citizens from all walks of life. Including people from Europe and the US, who donated waterproof jackets and blankets.",/post/737,2016-09-27T16:56:25.000Z,2016-09-27T16:56:25.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1042 10408,v1.0,,"There is another task, which is more time-consuming and complex, in terms of research. I'm in the team-building process that will eventually become a non-profit legal entity, to develop a Handbook for the Management of Material and Resources, in cases of emergency. For example, due to my professional background, I know how to sort and store thousands of clothing items. Somebody else might have other skills. This is also connected with the sharing of knowledge of alternative treatments, practices or hacks, that might offer cheap and practical solutions to people in need. For example, using cocoa powder as a shampoo, or other uses of baking  soda, salt, etc.",/post/737,2016-09-27T16:56:08.000Z,2016-09-27T16:56:08.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1540 8163,v1.0,,"There is another task, which is more time-consuming and complex, in terms of research. I'm in the team-building process that will eventually become a non-profit legal entity, to develop a Handbook for the Management of Material and Resources, in cases of emergency. For example, due to my professional background, I know how to sort and store thousands of clothing items. Somebody else might have other skills. This is also connected with the sharing of knowledge of alternative treatments, practices or hacks, that might offer cheap and practical solutions to people in need. For example, using cocoa powder as a shampoo, or other uses of baking  soda, salt, etc.",/post/737,2016-09-27T16:55:56.000Z,2016-09-27T16:55:56.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1046 10475,v1.0,,"I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.",/post/737,2016-09-27T16:55:40.000Z,2016-09-27T16:55:40.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1557 10237,v1.0,,"While continuing to work with clothes, I now focus on providing school items for children and the campaign has shifted focus. From just catering for refugees, we also provide care for native homeless people. Through a Facebook page https://www.facebook.com/groups/519478964902645/, we are trying to organize volunteers who adopt the schooling needs/items of children in need. These needs may be covered through a donation of items or money, and this is open to everyone. So far, the stock gathered so far through donations, is enough for about 250 kids. In parallel, I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.",/post/737,2016-09-27T16:55:27.000Z,2016-09-27T16:55:27.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1490 11562,v1.0,,"While continuing to work with clothes, I now focus on providing school items for children and the campaign has shifted focus. From just catering for refugees, we also provide care for native homeless people. Through a Facebook page https://www.facebook.com/groups/519478964902645/, we are trying to organize volunteers who adopt the schooling needs/items of children in need. These needs may be covered through a donation of items or money, and this is open to everyone. So far, the stock gathered so far through donations, is enough for about 250 kids. In parallel, I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.",/post/737,2016-09-27T16:53:36.000Z,2016-09-27T16:53:36.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1873 7843,v1.0,,"While continuing to work with clothes, I now focus on providing school items for children and the campaign has shifted focus. From just catering for refugees, we also provide care for native homeless people. Through a Facebook page https://www.facebook.com/groups/519478964902645/, we are trying to organize volunteers who adopt the schooling needs/items of children in need. These needs may be covered through a donation of items or money, and this is open to everyone. So far, the stock gathered so far through donations, is enough for about 250 kids. In parallel, I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.",/post/737,2016-09-27T16:53:32.000Z,2016-09-27T16:53:32.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,956 5501,v1.0,,"I have learned to live with the dynamics, and I started helping out at Oikopolis, to create a clothing storage, explaining an internationally used methodology of inventorying, so refugees were able to serve themselves on their own. This system still works, where refugees can come, try and take the clothes they need for free.",/post/737,2016-09-27T16:53:22.000Z,2016-09-27T16:53:22.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,321 7184,v1.0,,"In August 2015, as the first large waves of refugees started landing on the Greek shores and stuck along the border of Idomeni, I started this initiative of collecting and filling backpacks with first need items for refugees. At first, this has started very modestly, with a few friends organizing clothing donations through the Facebook https://www.facebook.com/%CE%A3%CE%B1%CE%BA%CE%AF%CE%B4%CE%B9%CE%B1-%CE%A0%CF%81%CE%BF%CF%83%CF%86%CF%8D%CE%B3%CF%89%CE%BDBackpacks-for-the-RefugeesSolutions-for-Homeless-148172338861553/?ref=bookmarks . At the beginning, I wasn’t expending such a big response to my call, but volunteers -known and unknown- started visiting my clothing shop in Thessaloniki, bringing clothes and helping out to fill in the backpacks.",/post/737,2016-09-27T16:52:55.000Z,2016-09-27T16:52:55.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,775 8711,v1.0,,"In August 2015, as the first large waves of refugees started landing on the Greek shores and stuck along the border of Idomeni, I started this initiative of collecting and filling backpacks with first need items for refugees. At first, this has started very modestly, with a few friends organizing clothing donations through the Facebook https://www.facebook.com/%CE%A3%CE%B1%CE%BA%CE%AF%CE%B4%CE%B9%CE%B1-%CE%A0%CF%81%CE%BF%CF%83%CF%86%CF%8D%CE%B3%CF%89%CE%BDBackpacks-for-the-RefugeesSolutions-for-Homeless-148172338861553/?ref=bookmarks . At the beginning, I wasn’t expending such a big response to my call, but volunteers -known and unknown- started visiting my clothing shop in Thessaloniki, bringing clothes and helping out to fill in the backpacks.",/post/737,2016-09-27T16:52:52.000Z,2016-09-27T16:52:52.000Z,737,3323,AnnotatorStore::TextAnnotation,,,,,,,,,704,1150 9826,v1.0,,"No, other examples of care services that rewire themselves so as to (1) establish themselves as ""owned"" by the community and (2) bypass stifling regulation.",/post/22025,2016-09-27T00:09:20.000Z,2016-09-27T00:09:20.000Z,22025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1425 5756,v1.0,,"No, other examples of care services that rewire themselves so as to (1) establish themselves as ""owned"" by the community and (2) bypass stifling regulation.",/post/22025,2016-09-27T00:09:14.000Z,2016-09-27T00:09:14.000Z,22025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,370 9766,v1.0,,"What I'm getting at here is that OpenCare should also consider establish a serious approach with double scope: avoiding infiltration of quackery and protect us from accusations of quackery.   What I'm asking the community for is to contribute with ideas of how to implement EBM in our approach, as in your clinic?",/post/19479,2016-09-27T00:08:16.000Z,2016-09-27T00:08:16.000Z,19479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1399 7277,v1.0,,"Dear @steelweaver, I do appreciate your references, but cochrane reviews are better in supporting the statements. Personally I have proposed some studies but apparently 'scientific approach' is disturbing the 'chi'. However we surrender to a universal law 'effectiveness is the measure of truth'  and we have a moral obligation to strive for the most effective treatment (leave the measure of effectiveness open for now) regardless of our personal beliefs, hopes and dreams.",/post/19479,2016-09-27T00:08:05.000Z,2016-09-27T00:08:05.000Z,19479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,799 4472,v1.0,,What I'm getting at here is that OpenCare should also consider establish a serious approach with double scope: avoiding infiltration of quackery and protect us from accusations of quackery.,/post/19479,2016-09-27T00:07:57.000Z,2016-09-27T00:07:57.000Z,19479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,3 4471,v1.0,,"True, acupuncture is largely regarded as 'alternative' - at least in the West; it is integrated into mainstream healthcare in China and other East Asian countries, and increasingly in places like Israel and Australia. I would put it a bit differently - it has not been 'becoming' evidence-based in the sense of people changing how they practice. It is more a case of practitioners, who have ample experience of the effectiveness of the treatments in their own practices, looking to find ways to produce acceptable evidence to back this up so it will be more widely accepted by the mainstream.",/post/19471,2016-09-27T00:07:10.000Z,2016-09-27T00:07:10.000Z,19471,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,3 7276,v1.0,,"@steelweaver, this is really interesting. Acupuncture has loong been considered alternative medicine. Lately it has become evidence based. Do you have objective evaluation of the effectiveness of your treatments?",/post/19386,2016-09-27T00:07:00.000Z,2016-09-27T00:07:00.000Z,19386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,799 4470,v1.0,,"@steelweaver, this is really interesting. Acupuncture has loong been considered alternative medicine. Lately it has become evidence based. Do you have objective evaluation of the effectiveness of your treatments?",/post/19386,2016-09-27T00:06:50.000Z,2016-09-27T00:06:50.000Z,19386,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,3 5995,v1.0,,"It is a market clearing mechanism, but a clearing market is, in itself, a good thing.",/post/19066,2016-09-27T00:04:56.000Z,2016-09-27T00:04:56.000Z,19066,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,401 7250,v1.0,,"hat the former reshape markets to make it better for an overwhealming majority, while the latter just want to stay outside markets for a bigger margin",/post/19056,2016-09-27T00:04:17.000Z,2016-09-27T00:04:17.000Z,19056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,792 9024,v1.0,,"All of which is pretty depressing, I must admit. Hope you guys can contradict me",/post/19025,2016-09-26T23:57:45.000Z,2016-09-26T23:57:45.000Z,19025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1232 9023,v1.0,,"@Alberto, we should keep your line in mind and mull over it: not scaling as a solution to survivability!",/post/19056,2016-09-26T23:57:31.000Z,2016-09-26T23:57:31.000Z,19056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1232 10220,v1.0,,not scaling as a solution to survivability!,/post/19056,2016-09-26T23:57:22.000Z,2016-09-26T23:57:22.000Z,19056,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1487 11332,v1.0,,"I think the key here is not to let one giant to emerge, but to allow organic replicas to provide similar offers in their environments, without overarching the whole globe with a great huge fix. If the efforts remain decentralized, scattered, but also adapted to local needs and problems, I can't see a way in which this model would be bad (of course. pharmaceutical companies and other parties interested in ridiculing anything's that out of the system will try to fight it and there will be a need of great success stories that can be told to the people in order to change their attitudes towards alternative approaches to care. Maybe it's not even too late, herbal medicine didn't completely disappear...) or harmful. I believe there should be manuals and ways to ensure people providing help are capable of doing it, however, what kind of manuals and to what extent, I have yet no idea.",/post/19048,2016-09-26T23:57:02.000Z,2016-09-26T23:57:02.000Z,19048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1811 6377,v1.0,,"I think the key here is not to let one giant to emerge, but to allow organic replicas to provide similar offers in their environments, without overarching the whole globe with a great huge fix. If the efforts remain decentralized, scattered, but also adapted to local needs and problems, I can't see a way in which this model would be bad (of course. pharmaceutical companies and other parties interested in ridiculing anything's that out of the system will try to fight it and there will be a need of great success stories that can be told to the people in order to change their attitudes towards alternative approaches to care. Maybe it's not even too late, herbal medicine didn't completely disappear...) or harmful. I believe there should be manuals and ways to ensure people providing help are capable of doing it, however, what kind of manuals and to what extent, I have yet no idea.",/post/19048,2016-09-26T23:56:53.000Z,2016-09-26T23:56:53.000Z,19048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,467 10236,v1.0,,"probably the difference between scaling and monopolizing markets is one of the criteria here. These startups lost the reasonable idea of scale and infringed territories. Hotels and taxi corporation will protect their share and lobby against these companies, which doesn't need to be good in results. But these battles amplified processes in the urban spaces which could have been happening more quietly before, and that's good. And made people think about sharing and new ways of the economy. Built trust.",/post/19048,2016-09-26T23:56:41.000Z,2016-09-26T23:56:41.000Z,19048,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1489 8269,v1.0,,"But Noemi is proposing regulation as some kind of shelter for these initiatives. Would this work? To a first approximation, I am doubtful. Uber has access to legal advice, and they undoubtedly ran checks on their model before going live. But then they get sued. The sueing party claims that something in that model should be interpreted like something else already in the legal system. For example ""an Uber driver is like the employee of a taxi company"" or ""if you rent out your spare room on Airbnb you become a hotel"". If it wins the case (as it tends to do), then the sentence becomes a precedent. European version: lobbyists get the law change the way they want it. So, these innovative, disintermediating solutions start off as legal, but then they are made illegal as they begin scaling.",/post/19025,2016-09-26T23:54:17.000Z,2016-09-26T23:54:17.000Z,19025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 9765,v1.0,,"However, it also means you guys are very vulnerable. Noemi is right on the money: if an ""Uber for health"" were to emerge, it would be sued into a smoking hole at the first signs of scaling. Which makes me think that not scaling is a better solution for survivability of open care: sueing thousands of small initiatives is harder and more costly than going for the one Uber. Hmmm.",/post/19025,2016-09-26T23:54:05.000Z,2016-09-26T23:54:05.000Z,19025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1397 9825,v1.0,,"Like other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate. What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.",/post/19025,2016-09-26T23:53:50.000Z,2016-09-26T23:53:50.000Z,19025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1425 5755,v1.0,,"Like other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate. What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.",/post/19025,2016-09-26T23:53:41.000Z,2016-09-26T23:53:41.000Z,19025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,370 5706,v1.0,,"Like other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate. What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.",/post/19025,2016-09-26T23:53:21.000Z,2016-09-26T23:53:21.000Z,19025,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,361 8268,v1.0,,@markomanka maybe has more interesting insights as to minium criteria which can make health services like these legit from system's perspective.,/post/18617,2016-09-26T23:52:20.000Z,2016-09-26T23:52:20.000Z,18617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 9764,v1.0,,"While building trust in the service while ofering affordability and humane treatment is definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available? We have great insights, yet risk running completely unprotected. The more they grow effective or meet a growing demand, the more attention they draw, the more concurential they become, the more they risk being antagonised by systems on more-or-less valid concerns. Uber being exhibit A..",/post/18617,2016-09-26T23:52:13.000Z,2016-09-26T23:52:13.000Z,18617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1397 9954,v1.0,,"definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available?",/post/18617,2016-09-26T23:51:51.000Z,2016-09-26T23:51:51.000Z,18617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1445 11259,v1.0,,"While building trust in the service while ofering affordability and humane treatment is definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available? We have great insights, yet risk running completely unprotected. The more they grow effective or meet a growing demand, the more attention they draw, the more concurential they become, the more they risk being antagonised by systems on more-or-less valid concerns. Uber being exhibit A..",/post/18617,2016-09-26T23:51:37.000Z,2016-09-26T23:51:37.000Z,18617,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1778 11258,v1.0,,"It's also made it far easier to get 'buy-in' from the community so that they think of it as something that belongs to them, that they can collaborate with. The terms of interaction defined by our habits of commercial consumption go deep, and having some way to differentiate yourself from it seems very important in encouraging people to thnk and act differently.",/post/18202,2016-09-26T23:51:30.000Z,2016-09-26T23:51:30.000Z,18202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1778 5704,v1.0,,"It's also made it far easier to get 'buy-in' from the community so that they think of it as something that belongs to them, that they can collaborate with. The terms of interaction defined by our habits of commercial consumption go deep, and having some way to differentiate yourself from it seems very important in encouraging people to thnk and act differently.",/post/18202,2016-09-26T23:51:05.000Z,2016-09-26T23:51:05.000Z,18202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,360 9197,v1.0,,"On the other hand, I was certainly struck by the degree to which stepping outside the commercial model of delivery freed me up to do things differently.",/post/18202,2016-09-26T23:50:33.000Z,2016-09-26T23:50:33.000Z,18202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1269 8267,v1.0,,"I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (or at least it was desirable before networked reputation economies became a possibility - who knows what alternative models might be possible now?).",/post/18202,2016-09-26T23:50:27.000Z,2016-09-26T23:50:27.000Z,18202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 9824,v1.0,,"I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (or at least it was desirable before networked reputation economies became a possibility - who knows what alternative models might be possible now?).",/post/18202,2016-09-26T23:50:21.000Z,2016-09-26T23:50:21.000Z,18202,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1425 9196,v1.0,,Maybe involving people who are not health professionals in the system definition is a requisite for the kind of services you mention - precisely because the ones from the system are too trapped in it to get out alone.,/post/18017,2016-09-26T23:50:06.000Z,2016-09-26T23:50:06.000Z,18017,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1269 8266,v1.0,,"Hi @steelweaver, Just to thank you for the contribution and to say I'm intrigued by what it means that you're operating while waiting for a license, is it dangerous or do you risk anything? Or is it more a matter of time.. and you will get it anyway, be in the books etc? Ever since we heard about the volunteers led clinic in suburban Athens and the potentially many similar ones, it makes you wonder what it is about these grey areas in between formality and informality. Maybe involving people who are not health professionals in the system definition is a requisite for the kind of services you mention - precisely because the ones from the system are too trapped in it to get out alone.",/post/18017,2016-09-26T23:49:48.000Z,2016-09-26T23:49:48.000Z,18017,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 5703,v1.0,,"and, of course, the community clinic model is unique to acupuncture because you can't treat multiple patients at once with most other modalities!",/post/15329,2016-09-26T23:48:05.000Z,2016-09-26T23:48:05.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,359 5798,v1.0,,"and, of course, the community clinic model is unique to acupuncture because you can't treat multiple patients at once with most other modalities!",/post/15329,2016-09-26T23:48:01.000Z,2016-09-26T23:48:01.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,377 4986,v1.0,,"2 months is an extremely long time (2 weeks would be more usual). I won't bore you with the details, but essentially, acupuncturists are licensed at the local level in the UK alongside tattooists and body piercers (which have far greater risks of injury, blood-borne contamination, etc, and are, clearly, not any kind of healthcare) - and are thus entirely at the mercy of whatever inappropriate regulations the district council chooses to impose.",/post/15329,2016-09-26T23:47:44.000Z,2016-09-26T23:47:44.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,129 8265,v1.0,,"2 months is an extremely long time (2 weeks would be more usual). I won't bore you with the details, but essentially, acupuncturists are licensed at the local level in the UK alongside tattooists and body piercers (which have far greater risks of injury, blood-borne contamination, etc, and are, clearly, not any kind of healthcare) - and are thus entirely at the mercy of whatever inappropriate regulations the district council chooses to impose.",/post/15329,2016-09-26T23:47:39.000Z,2016-09-26T23:47:39.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 10264,v1.0,,"But as the era of individualised medicine gathers steam, this is something that all forms of healthcare are going to have to grapple with.",/post/15329,2016-09-26T23:47:26.000Z,2016-09-26T23:47:26.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1499 7999,v1.0,,"But as the era of individualised medicine gathers steam, this is something that all forms of healthcare are going to have to grapple with.",/post/15329,2016-09-26T23:47:20.000Z,2016-09-26T23:47:20.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,994 6011,v1.0,,"Thanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.",/post/15329,2016-09-26T23:47:09.000Z,2016-09-26T23:47:09.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,411 10107,v1.0,,"Thanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.",/post/15329,2016-09-26T23:47:02.000Z,2016-09-26T23:47:02.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1451 9244,v1.0,,"Thanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.",/post/15329,2016-09-26T23:46:48.000Z,2016-09-26T23:46:48.000Z,15329,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1272 9538,v1.0,,"Poland each doctor is given a number of tests he can prescribe to people: blood, sugar, more sophisticated ones. BUT, if the doesn't spend them all, he gets PAID for each test he didn't give out. Anyway, it's just one of the pathologies of the system I've discovered - as my family is full of doctors, every time I open the discussion I am more and more stunned by how badly it was designed.",/post/13333,2016-09-26T23:46:07.000Z,2016-09-26T23:46:07.000Z,13333,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1337 7294,v1.0,,"Poland each doctor is given a number of tests he can prescribe to people: blood, sugar, more sophisticated ones. BUT, if the doesn't spend them all, he gets PAID for each test he didn't give out. Anyway, it's just one of the pathologies of the system I've discovered - as my family is full of doctors, every time I open the discussion I am more and more stunned by how badly it was designed.",/post/13333,2016-09-26T23:45:52.000Z,2016-09-26T23:45:52.000Z,13333,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,805 7342,v1.0,,Was it due to chance or attributed to treatment?,/post/13306,2016-09-26T23:45:26.000Z,2016-09-26T23:45:26.000Z,13306,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,812 7341,v1.0,,Was it due to chance or attributed to treatment?,/post/13306,2016-09-26T23:45:13.000Z,2016-09-26T23:45:13.000Z,13306,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,812 5073,v1.0,,"I would be interested to see if some interventions can trigger more emphatetic treatments and how that affects patient wellbeing. Things like ""Hello my name is..."" campaign for practitioners to be more humane, or the other day I was reading about inserting empathy in the medical studies - ""What Medical Residents Learn from Art Museums"".  These things don't feel too sophisticated things to do for apparently very high returns. We all seem to agree that ""more empathetic"" is better for patients wellbeing, not just satisfaction which is more obvious.",/post/13150,2016-09-26T23:43:47.000Z,2016-09-26T23:43:47.000Z,13150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,146 7210,v1.0,,"I would be interested to see if some interventions can trigger more emphatetic treatments and how that affects patient wellbeing. Things like ""Hello my name is..."" campaign for practitioners to be more humane, or the other day I was reading about inserting empathy in the medical studies - ""What Medical Residents Learn from Art Museums"".  These things don't feel too sophisticated things to do for apparently very high returns. We all seem to agree that ""more empathetic"" is better for patients wellbeing, not just satisfaction which is more obvious.",/post/13150,2016-09-26T23:43:38.000Z,2016-09-26T23:43:38.000Z,13150,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,781 8445,v1.0,,... and great discussion. Something to think about for the second year of OpenCare. A collaborative map of waiting vs. being given health care and empathy? Nice artifact.,/post/13062,2016-09-26T23:43:25.000Z,2016-09-26T23:43:25.000Z,13062,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1115 8444,v1.0,,sort of 'google maps' scoring system of satisfaction. People could score the on a couple of dimension,/post/12857,2016-09-26T23:43:19.000Z,2016-09-26T23:43:19.000Z,12857,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1115 9001,v1.0,,"@Rune, I've lived in 8 countries in the past few years, mostly in Europe. I've been to doctors in all of them. And there were no computers to assist the doctors, mostly they had a person to do the written documentation. Which didn't change the fact that even if they had theoretically more time to spend on approaching me as a patient, they would mostly limit their help to examination and writing a prescription. Rarely they bother talking to me and try to figure out the reasons for the problem. It happened a lot with dermatologists, who basically just give you a prescription for some external treatment, very expensive, and ask you to try it out. None of their recommendations ever helped me.",/post/12427,2016-09-26T23:37:41.000Z,2016-09-26T23:37:41.000Z,12427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1222 8996,v1.0,,"@Rune, I've lived in 8 countries in the past few years, mostly in Europe. I've been to doctors in all of them. And there were no computers to assist the doctors, mostly they had a person to do the written documentation. Which didn't change the fact that even if they had theoretically more time to spend on approaching me as a patient, they would mostly limit their help to examination and writing a prescription. Rarely they bother talking to me and try to figure out the reasons for the problem. It happened a lot with dermatologists, who basically just give you a prescription for some external treatment, very expensive, and ask you to try it out. None of their recommendations ever helped me.",/post/12427,2016-09-26T23:37:33.000Z,2016-09-26T23:37:33.000Z,12427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1221 9243,v1.0,,"I don't know what these doctors are actually frustrated with. I guess an inhumane amount of patients to see every day might be one of the reasons. Still, I would suggest there is a huge lack of empathy training during their studies and work, and maybe this is why they're incapable of approaching their patients in a more personal, compassionate manner.",/post/12427,2016-09-26T23:37:17.000Z,2016-09-26T23:37:17.000Z,12427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1272 10106,v1.0,,"don't know what these doctors are actually frustrated with. I guess an inhumane amount of patients to see every day might be one of the reasons. Still, I would suggest there is a huge lack of empathy training during their studies and work, and maybe this is why they're incapable of approaching their patients in a more personal, compassionate manner.",/post/12427,2016-09-26T23:37:13.000Z,2016-09-26T23:37:13.000Z,12427,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1451 8264,v1.0,,". Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals. US ALL for electing the people continuing this process of alienation of the patient and healthcare providers.",/post/11945,2016-09-26T23:36:29.000Z,2016-09-26T23:36:29.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 4985,v1.0,,"Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.",/post/11945,2016-09-26T23:36:15.000Z,2016-09-26T23:36:15.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,129 10861,v1.0,,"I accuse: Technocrats that have made healthcare more ‘efficient’ by buggy information technology. Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.",/post/11945,2016-09-26T23:34:45.000Z,2016-09-26T23:34:45.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1664 9000,v1.0,,"I accuse: Technocrats that have made healthcare more ‘efficient’ by buggy information technology. Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.",/post/11945,2016-09-26T23:34:37.000Z,2016-09-26T23:34:37.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1222 8495,v1.0,,claim: doctors are equally frustrated because they are not typists or bureaucrats and wants to do what they are trained to do. Cure,/post/11945,2016-09-26T23:34:19.000Z,2016-09-26T23:34:19.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1127 7293,v1.0,,0.5% (10%*5%) of the time you feel some human treatment!!!,/post/11945,2016-09-26T23:34:03.000Z,2016-09-26T23:34:03.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,805 4984,v1.0,,"95 % of the time you wait, pay tickets, try to get the right documents and wait for someone to (re)-type (using only the indexfinger) your anagraphical details (already electronically registered).",/post/11945,2016-09-26T23:33:41.000Z,2016-09-26T23:33:41.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,129 8359,v1.0,,"95 % of the time you wait, pay tickets, try to get the right documents and wait for someone to (re)-type (using only the indexfinger) your anagraphical details (already electronically registered).",/post/11945,2016-09-26T23:33:20.000Z,2016-09-26T23:33:20.000Z,11945,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1095 8309,v1.0,,"hat should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I",/post/671,2016-09-26T23:29:25.000Z,2016-09-26T23:29:25.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1079 8263,v1.0,,"hat should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I",/post/671,2016-09-26T23:29:17.000Z,2016-09-26T23:29:17.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 8308,v1.0,,"Another interesting data point you have found is about licensing and regulation. Is two months a long time to get a license in the UK? If so, what do you think is going on, and how could it be fixed?",/post/8207,2016-09-26T23:29:01.000Z,2016-09-26T23:29:01.000Z,8207,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1079 8262,v1.0,,"Another interesting data point you have found is about licensing and regulation. Is two months a long time to get a license in the UK? If so, what do you think is going on, and how could it be fixed?",/post/8207,2016-09-26T23:28:57.000Z,2016-09-26T23:28:57.000Z,8207,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1074 6400,v1.0,,It seems to me these are tenets of anything we can rightfully call open care.,/post/8207,2016-09-26T23:28:49.000Z,2016-09-26T23:28:49.000Z,8207,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,473 5573,v1.0,,Collective treatment and destigmatization. No brainer.,/post/8207,2016-09-26T23:28:38.000Z,2016-09-26T23:28:38.000Z,8207,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,338 7292,v1.0,,"most doctors work in systems which are not humane at all – and can't be, because they run on an industrial age paradigm. They derive efficiency from scale and standardization, and that requires patients are treated as production batches in manufacturing. Many doctors absolutely hate this, but it's the only game in town. Acupuncture is",/post/8207,2016-09-26T23:28:26.000Z,2016-09-26T23:28:26.000Z,8207,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,805 9545,v1.0,,"5) Knock-on effects - people who come to the clinic see flyers and posters for other events while they are there. They buy a coffee in the cafe upstairs and bump into other people they know. They go into other shops seeing as they are in town already. People who had given up on the town are excited that something like this would happen there. Maybe some people even wonder whether there is something they could do to get things happening in the local area. These are effects that are common to any community venture, many of which other ERs have mentioned elsewhere. As with education, art, reskilling, etc, the fact that users of the service are making positive changes in their lives, and are already feeling the benefit of being involved, seems to snowball this effect even more strongly.",/post/671,2016-09-26T23:28:10.000Z,2016-09-26T23:28:10.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1338 8358,v1.0,,"4) Affordability - although health care is free ('at the point of use') in the UK, it is, in effect, rationed; waiting lists are getting longer again, and many NHS trusts are effectively bankrupt. C&MACs offer a form of healthcare without the expensive pharmaceuticals, electronics and salaried consultants. Most either offer a reduced rate (e.g. £20) or a sliding scale (e.g. £10-30, where you pay what you want). [I've found problems with both models - resistance to the idea of a sliding scale is very common, and often leads users to undervalue what is being offered. Given that it has taken the District Council 2 months (at this time of counting) to respond to what should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I have found a degree of freedom and enjoyment in simply offering treatments for free and explaining to patients what sort of average donation is necessary to keep the clinic open.] If all kinds of healthcare were funded equally, acupuncture would prove massively more cost-effective than many 'mainstream' modalities - not to mention less energy-intensive and ecologically-damaging.",/post/671,2016-09-26T23:27:50.000Z,2016-09-26T23:27:50.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1095 5797,v1.0,,"3) Collective treatment - something about the nature of receiving shared treatment with other people seems to have an effect on people. Perhaps it cuts through the common Western idea of illness as something private, secret and shameful - whatever it is, sharing one's vulnerability and the act of seeking support and help with other community members seems to have a profound psychological charge.",/post/671,2016-09-26T23:27:32.000Z,2016-09-26T23:27:32.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,377 5572,v1.0,,"3) Collective treatment - something about the nature of receiving shared treatment with other people seems to have an effect on people. Perhaps it cuts through the common Western idea of illness as something private, secret and shameful - whatever it is, sharing one's vulnerability and the act of seeking support and help with other community members seems to have a profound psychological charge.",/post/671,2016-09-26T23:27:22.000Z,2016-09-26T23:27:22.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,338 5072,v1.0,,"2) Humane treatment - unlike the increasingly isolating and interventionist treatments common in industrial healthcare, the effectiveness of traditional acupuncture shows patients that good health can often be achieved through minimal intervention, through working with the body rather than against it, through self-help, and lifestyle and dietary changes. Demonstrating that a more humane approach to health is possible starts people thinking about what else they need to question.",/post/671,2016-09-26T23:27:14.000Z,2016-09-26T23:27:14.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,146 4469,v1.0,,"1) Effective health care - I've lost count of the number of patients who have come in with stories of months or years of expensive National Health Service treatments that made no difference to their conditions, who then see a large reduction in their symptoms after only one or two acupuncture treatments. (Moves to provide acupuncture on the NHS over the last decades have been faltering and half-hearted, and are now suffering from a pushback against anything considered 'alternative' or 'optional' - which is a shame, as it could save the NHS millions).",/post/671,2016-09-26T23:25:00.000Z,2016-09-26T23:25:00.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,3 7785,v1.0,,"1) Effective health care - I've lost count of the number of patients who have come in with stories of months or years of expensive National Health Service treatments that made no difference to their conditions, who then see a large reduction in their symptoms after only one or two acupuncture treatments. (Moves to provide acupuncture on the NHS over the last decades have been faltering and half-hearted, and are now suffering from a pushback against anything considered 'alternative' or 'optional' - which is a shame, as it could save the NHS millions).",/post/671,2016-09-26T23:24:50.000Z,2016-09-26T23:24:50.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,940 7291,v1.0,,"1) Effective health care - I've lost count of the number of patients who have come in with stories of months or years of expensive National Health Service treatments that made no difference to their conditions, who then see a large reduction in their symptoms after only one or two acupuncture treatments. (Moves to provide acupuncture on the NHS over the last decades have been faltering and half-hearted, and are now suffering from a pushback against anything considered 'alternative' or 'optional' - which is a shame, as it could save the NHS millions).",/post/671,2016-09-26T23:24:28.000Z,2016-09-26T23:24:28.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,805 10621,v1.0,,"This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.",/post/671,2016-09-26T23:24:14.000Z,2016-09-26T23:24:14.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1609 4492,v1.0,,"This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.",/post/671,2016-09-26T23:24:06.000Z,2016-09-26T23:24:06.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,5 9037,v1.0,,"This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.",/post/671,2016-09-26T23:23:58.000Z,2016-09-26T23:23:58.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1236 9548,v1.0,,"This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.",/post/671,2016-09-26T23:23:50.000Z,2016-09-26T23:23:50.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1341 10177,v1.0,,"This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.",/post/671,2016-09-26T23:23:46.000Z,2016-09-26T23:23:46.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,1480 4573,v1.0,,"Community/multibed acupuncture, if you are not familiar with it, is a new model of acupuncture provision based on the multibed model common in China and Japan. Costs are lower because multiple patients can be treated at the same time, in the same space (in the US, reclining garden chairs are commonly used to keep equipment costs even lower, as in the picture above). This is possible because this style of acupuncture mostly uses distal points on the arms and legs (no undressing required) and, after insertion and manipulation, the needles are left in to continue working for 20 minutes while the next patient is seen.",/post/671,2016-09-26T23:21:59.000Z,2016-09-26T23:21:59.000Z,671,3323,AnnotatorStore::TextAnnotation,,,,,,,,,638,21 11331,v1.0,,"One of the challenges of alternative care provision is evolving tools that enable it around the needs of communities that use them, and support those who develop them. I had a conversation with Amir Hannan, a GP working in the UK, about how  chronic care requires patients to self-manage for good health outcomes (writeup coming soon). Over 15 years he has built a practice based website to encourage an support his patents gain a better understanding of their health to better enable automy and self-care. You can see the site itself here: www.htmc.co.uk (especially the ""Common Problems you can solve yourself section - see menu on the left)""...",/post/8632,2016-09-26T23:06:03.000Z,2016-09-26T23:06:03.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1811 11330,v1.0,,"Buoy is a software-based communication tool used for improving community responses to distressing situations that affect one or more community members. It is built from the ground up to provide individuals and community organizations with an alternative to State- and corporate-run emergency response infrastructures, such as making a 112 or 911 phone call in Europe or the Sates. It offers a flexible and customizable, intake, dispatch, and field support toolkit for coordinating collective action in the event of crises, whether large or small. Using a smartphone or laptop computer, a community member can assemble one or more crisis support Teams, alert their support Team(s) of where they are and what they need by pressing a single button, and communicate in real-time with their support Team. Importantly, Team members can also coordinate with one another, independent of any communication from the person in crisis. Buoy is developed by a growing group of anti-capitalist, anti-racist, prison abolitionists calling themselves the Better Angels. We formed in the wake of the Occupy Wall Street protests in the United States, but are more inspired by movements of militant resistance against capitalist and nationalist domination such as the Zapatistas, and Rojavan Kurds abroad, and Black Lives Matter evictions of police occupation domestically. Many people are engaged in parallel efforts to both abolish racist systems of social control such as police and simultaneously supplant them with new systems and structures that genuinely serve a community's needs. As technologists, we recognize that technological advancement amplifies all existing power, which is why we focus technical development efforts to support pre-existing activist and community organization processes, rather than imposing new protocols or procedures. This also means we recognize that Buoy is useless for an individual without a pre-existing social support group, whether that be a Church group, family, or activist collective willing to use the tools together. For this reason, Buoy is built so that it can be easily added to an existing community's social service infrastructure. Rather than embarking on creating new services, caregiving groups can add Buoy as a layer atop their existing websites. So Buoy is not a traditional ""app"" that users download in the app store, but rather a means of adding crisis response, emergency dispatch, and coordination tools to the repertoire of any organization already providing caregiving support to their membership. Inherent in this design is a decentralized architecture that more closely mirrors the way real-life social networks and grassroots organizations are dispersed. On a technological level, it's also a practical return to the earlier days of the Internet before massive, centralized corporate services dominated the landscape of cyberspace. Nevertheless, Buoy makes use of state of the art mobile technology to provide highly accurate GPS-enabled mapping, live video, and other real-time communication tools that in many cases far exceed the meager capabilities of traditional State-run ""First Responder"" services. And we do it using strictly free software that adds no additional burden to a group's budget. Experience has demonstrated that there already exist a vast array of functioning alternatives to State-run care giving institutions and crisis response services. Moreover, for the vast majority of issues that people rely on State-run emergency services for, the State's responses do more harm than good. In contrast, community-run services staffed by the friends and peers of people in need provide a quality of care far superior to the level of care provided by similarly-tasked State or corporate employees. This is most obvious in the case of calling 911 in the United States for issues such as ""noise disturbances,"" which too often end in the murder of a marginalized person at the hands of a police officer. Ending such horrors requires, in part, providing ubiquitous access to equally-usable alternatives to existing corporate-State partnerships. Much of this alternative infrastructure already exists in certain areas, in the form of community health clinics and volunteer collectives. But one piece these groups are still missing is the technical ""last mile"" that connects community members in need with the resources that their community's already-existing volunteer services provide when and where they need it.",/post/717,2016-09-26T23:05:55.000Z,2016-09-26T23:05:55.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1811 11329,v1.0,,"There's already people showing up with UI/UX skills. From a pm: ""I was looking over that buoy app ux test video. Have y'all been using it? I'd like to talk to y'all more about visual design for it. I mostly do digital/visual design in the fashion space, but I think my ui/ux could be helpful for this. Have you seen signal? That's friends of ours who developed and designed it; I think they did a really good job of user-accessibility though for a somewhat foreign concept of encryption, and have also been able to make a platform that can scale. Eitherway, we can talk more when you're in town. Hyped to hear more about edgeryders.""Also a friend of mine working with infosec will be joining us.",/post/29544,2016-09-26T23:05:38.000Z,2016-09-26T23:05:38.000Z,29544,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1811 9817,v1.0,,"I do rather enjoy automating busywork, so I'm generally very happy to work on systems to ""shift admin tasks"" away from secretaries/interns/paper-pushers and onto computers. I do a lot of that for friends with bullshit jobs, actually. But that's not really what Buoy is for.",/post/25265,2016-09-26T23:04:54.000Z,2016-09-26T23:04:54.000Z,25265,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1422 7004,v1.0,,"For providing good opencare  (check the post No Humane ghost in the machine) focus should be on shifting administrative tasks from healthcare professionals (called facilitators/mentors in our case), so maybe an App (Buoy?) could let the participant (the patient) check in, filling e.g. private data (address etc), restricted data (pathology, symptoms etc) and public data (satisfaction data, achievements etc.) as well as allocating time slots. What's the state of the art of software for that (@Eireann Leverett, @Alberto,@maymay,@Nadia ) ?",/post/24641,2016-09-26T22:58:39.000Z,2016-09-26T22:58:39.000Z,24641,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,731 5796,v1.0,,"ocus should be on shifting administrative tasks from healthcare professionals (called facilitators/mentors in our case), so maybe an App (Buoy?) could let the participant (the patient) check in",/post/24641,2016-09-26T22:58:32.000Z,2016-09-26T22:58:32.000Z,24641,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,377 9665,v1.0,,"s important to me that features built into Buoy do not force end-users towards proprietary, and thus obviously predatory, services. In other words, feature suggestions that necessitate the use of proprietary/predatory services over the use of technologies that can be self-owned and self-operated are more likely to find themselves unimplemented, because I will reject them philosophically.",/post/23134,2016-09-26T22:58:15.000Z,2016-09-26T22:58:15.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1377 9129,v1.0,,"s important to me that features built into Buoy do not force end-users towards proprietary, and thus obviously predatory, services. In other words, feature suggestions that necessitate the use of proprietary/predatory services over the use of technologies that can be self-owned and self-operated are more likely to find themselves unimplemented, because I will reject them philosophically.",/post/23134,2016-09-26T22:58:02.000Z,2016-09-26T22:58:02.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1257 11468,v1.0,,"With respect to number 2, I make a personal judgement call about what I believe the impact of creating the feature will be. As part of this, I consider who is asking for the feature. If the feature is being suggested by a white man who works at a tech company and does not engage in much activist practice themselves, then I am bluntly far less likely to give that suggestion the benefit of the doubt. For example, almost all of the suggestions to ""integrate 911 and let people call the police"" have come from people matching this description. In contrast, when the suggestion comes from someone who I know as part of a local activist collective, as the example I gave in my previous reply about the Celly replacement, then I may not even bother to create a GitHub ticket because I simply immediately begin working on the feature.",/post/23134,2016-09-26T22:49:22.000Z,2016-09-26T22:49:22.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1850 5026,v1.0,,"With respect to number 2, I make a personal judgement call about what I believe the impact of creating the feature will be. As part of this, I consider who is asking for the feature. If the feature is being suggested by a white man who works at a tech company and does not engage in much activist practice themselves, then I am bluntly far less likely to give that suggestion the benefit of the doubt. For example, almost all of the suggestions to ""integrate 911 and let people call the police"" have come from people matching this description. In contrast, when the suggestion comes from someone who I know as part of a local activist collective, as the example I gave in my previous reply about the Celly replacement, then I may not even bother to create a GitHub ticket because I simply immediately begin working on the feature.",/post/23134,2016-09-26T22:49:12.000Z,2016-09-26T22:49:12.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,138 5759,v1.0,,"With respect to number 2, I make a personal judgement call about what I believe the impact of creating the feature will be. As part of this, I consider who is asking for the feature. If the feature is being suggested by a white man who works at a tech company and does not engage in much activist practice themselves, then I am bluntly far less likely to give that suggestion the benefit of the doubt. For example, almost all of the suggestions to ""integrate 911 and let people call the police"" have come from people matching this description. In contrast, when the suggestion comes from someone who I know as part of a local activist collective, as the example I gave in my previous reply about the Celly replacement, then I may not even bother to create a GitHub ticket because I simply immediately begin working on the feature.",/post/23134,2016-09-26T22:48:21.000Z,2016-09-26T22:48:21.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,371 10071,v1.0,,"With respect to number 1, if I do not have the resources (knowledge, time, money, shelter, mental well-being, etc.) necessary to actually produce an implementation then I create an enahncement/feature request ticket on the GitHub issue tracker. You can see all of these tickets (which effectively represent a to-do list) on GitHub here. If, on the other hand, I do have the required resources to implement a given feature, then I apply the second criteria.",/post/23134,2016-09-26T22:47:44.000Z,2016-09-26T22:47:44.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1450 9953,v1.0,,"Do I have the resources necessary actually produce an implementation, and Does the suggested feature empower end-users and vulnerable populations more than it empowers service providers or large institutions?",/post/23134,2016-09-26T22:47:16.000Z,2016-09-26T22:47:16.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1445 10105,v1.0,,"Do I have the resources necessary actually produce an implementation, and",/post/23134,2016-09-26T22:47:10.000Z,2016-09-26T22:47:10.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1451 7217,v1.0,,Does the suggested feature empower end-users and vulnerable populations more than it empowers service providers or large institutions?,/post/23134,2016-09-26T22:47:00.000Z,2016-09-26T22:47:00.000Z,23134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,782 8202,v1.0,,"To wit, that story of the SMS broadcast channel feature that now exists in Buoy? After I discussed the use case with the person who approached me about needing such a feature that could replace Celly, I have not heard from that person on the matter again, despite repeateded attempts to communicate about it over the two weeks since the feature has been implemented. I say this not to disparage this person themselves, but rather to point out a pattern relating to your question, about how I receive feedback. The pattern is: I receive feedback through a variety of means, and am generally able to very rapidly translate such feedback into working features that could be used immediately by the people who approach me. In practice, although the people I've communicated with are eager to express to me what they need, once I actually implement it, I never hear from them about it again.",/post/22106,2016-09-26T22:23:51.000Z,2016-09-26T22:23:51.000Z,22106,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1053 8199,v1.0,,"In practice, however, I am the only developer and have written virtually every line of Buoy's code myself, so GitHub is mostly just me talking to myself, the WordPress plugin support forum has seen some use but is mostly me answering questions by end-users instead of users helping one another out, the public Gitter chat room is primarily me making announcements about my own work to people who are lurking and watching me do so, and the dedicated email address is dormant and receives no mail.",/post/22106,2016-09-26T22:23:10.000Z,2016-09-26T22:23:10.000Z,22106,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1051 7400,v1.0,,"Of course, I have created more ""formal"" channels for receiving feedback. These include the GitHub issue tracker, intended mostly for coordination amongst developers (and I include people who conduct user testing, writing documentation, and other non-code tasks to be ""developers""), the WordPress plugin support forum, intended mostly for end-user-to-end-user volunteer support, our public Gitter chat room, intended as a way to get live support if someone is available to offer it, and our dedicated project email address available with PGP encryption, intended for those who need more assurance privacy but still need a support channel.",/post/22106,2016-09-26T22:22:53.000Z,2016-09-26T22:22:53.000Z,22106,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,830 9261,v1.0,,"You asked how I decide on what functionalities to add to Buoy. The answer is that there is no formal decision making process. What usually happens is someone with a need expresses that need to me in some manner, we converse about it over some communication medium, and then I add some functionality that hopefully meets that need. It's very do-ocratic. An example will help clarify this.",/post/22106,2016-09-26T22:21:26.000Z,2016-09-26T22:21:26.000Z,22106,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1282 9279,v1.0,,"I asked them some questions about what they had been using Celly for. This conversation lead to a better understanding of their use cases. Effectively, they had been using Celly as a kind of SMS/txt broadcast channel for the group, so that one member of their collective to send a single txt message and that txt would be received by everyone else in the collective. The collective is small (less than 20 people).",/post/22106,2016-09-26T22:21:18.000Z,2016-09-26T22:21:18.000Z,22106,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1283 6246,v1.0,,"You asked how I decide on what functionalities to add to Buoy. The answer is that there is no formal decision making process. What usually happens is someone with a need expresses that need to me in some manner, we converse about it over some communication medium, and then I add some functionality that hopefully meets that need. It's very do-ocratic. An example will help clarify this.",/post/22106,2016-09-26T22:20:15.000Z,2016-09-26T22:20:15.000Z,22106,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,443 6245,v1.0,,"I'd like to ask you about the ways in which you decide on what functionalities to add to the service? Both on receiving the feedback and requests from the users, but also what criteria do you apply when you pick some of these and make work?",/post/20730,2016-09-26T22:19:30.000Z,2016-09-26T22:19:30.000Z,20730,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,443 4756,v1.0,,"I believe that memesis is more important than attribution. A more thorough explanation can be found on the Rolequeer Theory and Practice wiki, for those curious, but the takeaway point is that I hope your priority will effectively conveying the message and purpose of the tool. Attribution is nice and can often even be beneficial, but not always, and when that's not so, mentioning names should be a very distant second priority.",/post/19254,2016-09-26T22:15:03.000Z,2016-09-26T22:15:03.000Z,19254,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,73 10722,v1.0,,"How do we effectively deal with the additional preassure, or emotional stress, that this kind of commitment brings into our lives?",/post/19249,2016-09-26T22:14:11.000Z,2016-09-26T22:14:11.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1632 10721,v1.0,,"“It’s a stressful thing, for sure,” Earley says. “My blood pressure goes up. It can catch me at any hour of the day. I do feel the weight of dealing with that. But it’s definitely something that feels like it’s important to do. We have the technical infrastructure in place to make it as painless as possible on our end.”",/post/19249,2016-09-26T22:13:56.000Z,2016-09-26T22:13:56.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1632 7183,v1.0,,"""This emergency response system was established in 2010 by Philippe Beaudette, the former director of community advocacy who recently left the Foundation to work at Reddit. On his LinkedIn profile, Beaudette notes that during his seven years overseeing the various Wikimedia communities, he and his team responded to almost 500 threats of suicide and other imminent harm to people and property. A recent report from the Foundation’s talent and culture team noted that, in one quarter, they handled five suicide cases that were escalated through the emergency email address.",/post/19249,2016-09-26T22:12:53.000Z,2016-09-26T22:12:53.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,775 8534,v1.0,,"mplicated mental health issues""",/post/19249,2016-09-26T21:48:46.000Z,2016-09-26T21:48:46.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1140 7182,v1.0,,"Buoy is a software-based communication tool used for improving community responses to distressing situations that affect one or more community members. It is built from the ground up to provide individuals and community organizations with an alternative to State- and corporate-run emergency response infrastructures, such as making a 112 or 911 phone call in Europe or the Sates. It offers a flexible and customizable, intake, dispatch, and field support toolkit for coordinating collective action in the event of crises, whether large or small. Using a smartphone or laptop computer, a community member can assemble one or more crisis support Teams, alert their support Team(s) of where they are and what they need by pressing a single button, and communicate in real-time with their support Team. Importantly, Team members can also coordinate with one another, independent of any communication from the person in crisis. Buoy is developed by a growing group of anti-capitalist, anti-racist, prison abolitionists calling themselves the Better Angels. We formed in the wake of the Occupy Wall Street protests in the United States, but are more inspired by movements of militant resistance against capitalist and nationalist domination such as the Zapatistas, and Rojavan Kurds abroad, and Black Lives Matter evictions of police occupation domestically. Many people are engaged in parallel efforts to both abolish racist systems of social control such as police and simultaneously supplant them with new systems and structures that genuinely serve a community's needs. As technologists, we recognize that technological advancement amplifies all existing power, which is why we focus technical development efforts to support pre-existing activist and community organization processes, rather than imposing new protocols or procedures. This also means we recognize that Buoy is useless for an individual without a pre-existing social support group, whether that be a Church group, family, or activist collective willing to use the tools together. For this reason, Buoy is built so that it can be easily added to an existing community's social service infrastructure. Rather than embarking on creating new services, caregiving groups can add Buoy as a layer atop their existing websites. So Buoy is not a traditional ""app"" that users download in the app store, but rather a means of adding crisis response, emergency dispatch, and coordination tools to the repertoire of any organization already providing caregiving support to their membership. Inherent in this design is a decentralized architecture that more closely mirrors the way real-life social networks and grassroots organizations are dispersed. On a technological level, it's also a practical return to the earlier days of the Internet before massive, centralized corporate services dominated the landscape of cyberspace. Nevertheless, Buoy makes use of state of the art mobile technology to provide highly accurate GPS-enabled mapping, live video, and other real-time communication tools that in many cases far exceed the meager capabilities of traditional State-run ""First Responder"" services. And we do it using strictly free software that adds no additional burden to a group's budget. Experience has demonstrated that there already exist a vast array of functioning alternatives to State-run care giving institutions and crisis response services. Moreover, for the vast majority of issues that people rely on State-run emergency services for, the State's responses do more harm than good. In contrast, community-run services staffed by the friends and peers of people in need provide a quality of care far superior to the level of care provided by similarly-tasked State or corporate employees. This is most obvious in the case of calling 911 in the United States for issues such as ""noise disturbances,"" which too often end in the murder of a marginalized person at the hands of a police officer. Ending such horrors requires, in part, providing ubiquitous access to equally-usable alternatives to existing corporate-State partnerships. Much of this alternative infrastructure already exists in certain areas, in the form of community health clinics and volunteer collectives. But one piece these groups are still missing is the technical ""last mile"" that connects community members in need with the resources that their community's already-existing volunteer services provide when and where they need it.",/post/717,2016-09-26T21:44:22.000Z,2016-09-26T21:44:22.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,775 10757,v1.0,,Buoy as a suicide prevention tool was one of the use cases we designed for early on.,/post/19200,2016-09-26T21:43:25.000Z,2016-09-26T21:43:25.000Z,19200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1638 10756,v1.0,,thought of Buoy as a suicide prevention tool.,/post/19153,2016-09-26T21:43:12.000Z,2016-09-26T21:43:12.000Z,19153,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1638 10755,v1.0,,"e dealing with suicidal feelings or a variety of other complicated mental health issues"".",/post/19249,2016-09-26T21:42:54.000Z,2016-09-26T21:42:54.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1638 8061,v1.0,,"1) I had a chat with the Woodbine crew about setting up an event at Woodbine around autonomy, health and interdependency. A convening, but not just for talking. A combination of showcasing/discovering some relevant OS tools, aggregating information resources and working out some social contract/model for supporting work on their further development. I am up for putting time into making it happen.",/post/19249,2016-09-26T21:32:43.000Z,2016-09-26T21:32:43.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1022 10263,v1.0,,"autonomy, health and interdependency.",/post/19249,2016-09-26T21:32:35.000Z,2016-09-26T21:32:35.000Z,19249,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1499 10104,v1.0,,"It would be wonderful to have someone else's experience to lean on, but if not, I am confident that I can build a version of Buoy for Drupal within a few months, much as I did for WordPress. All it will take is having reliable shelter and food for the duration. That's the much harder part. Writing code is easy for me, by comparison. Unfortunately, my current situation does not include reliable housing.",/post/19234,2016-09-26T21:26:58.000Z,2016-09-26T21:26:58.000Z,19234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1451 7055,v1.0,,"Second, I noticed that Edgeryders.eu is built on the Drupal CMS. Right now, the only implementation of Buoy is as a WordPress plugin, but I have been wanting to create a Drupal module for it, too. I am not as familiar with Drupal as I am with WordPress, but I have wanted a reason to get back into Drupal development for a while. Also, in my experience, Drupal is the second most popular Web-based platform for the kinds of small- to medium-sized organizations and community groups that Buoy is meant to serve (second only to WordPress). Implementing the existing Buoy functionality as a Drupal module could be really help broaden the reach of the project to more groups, as well as offer an opportunity to rework (""refactor"") some of the Buoy code itself.",/post/19200,2016-09-26T21:26:32.000Z,2016-09-26T21:26:32.000Z,19200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,747 10219,v1.0,,"Scale was a consideration from very early on, and indeed the current state of Buoy's implementation reflects a rejection of the typical technocapitalist approach of creating a single, highly-scalable centralized service endpoint for all interaction. It's really encouraging to me that you seem to have immediately understood the importance of smaller-scale yet socially-proximous user connections. Most people with a tech background instantly reject this design, because it does not match what they are used to seeing Google, Facebook, Twitter, and other large corporate networks do. Of course, those networks are not interested in user empowerment, but rather control over users (user domination), so the model is clearly different.",/post/19200,2016-09-26T21:23:57.000Z,2016-09-26T21:23:57.000Z,19200,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1487 10218,v1.0,,"More power to you, @maymay . This is a very well-thought through service. What I love most is your response team concept: it works even at the level of, say, 10 friends that live in a 2 km radius from each other. Then, like the best networks, it can be scale-free: suppose I am using Buoy here in Brussels, I have my little response team etc. Next up, I visit my friend in Milano; suddenly I am detached from my response team, but if my friend is also using Buoy, she and I can be on each other's response team. Also, she can ask her own response team to opt in in my own, and viceversa I will be part of theirs. Voilà: everyone in my friend's response team now has skeletal Buoy coverage should they ever come to Brussels – and of course I can ask my response team to add them, too. The scale-freedom there is that my friend and I become hubs, stringing together my local network in Brussels and hers in Milano. I can't emphasize how powerful this is: Buoy is viable at a small scale.",/post/19153,2016-09-26T21:23:52.000Z,2016-09-26T21:23:52.000Z,19153,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1487 10235,v1.0,,"Then, like the best networks, it can be scale-free: suppose I am using",/post/19153,2016-09-26T21:23:33.000Z,2016-09-26T21:23:33.000Z,19153,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1488 5624,v1.0,,"ere could be potential for new tech  - they had to make up a process for coordination, so they enabled coordination through an emergency twitter account texting to dumbphones and worked exceptionally well, as Nick's explained in his tedx. But this wasn't p2p, only for broadcasting as far as I understood",/post/18401,2016-09-26T21:23:10.000Z,2016-09-26T21:23:10.000Z,18401,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,355 10701,v1.0,,"Just to agree that finding a common language might go a long way with groups that may not be as radical/ adamant in their approaches to not cooperate with state led operations, but rather expose them as irrelevant. I find this quite strong and while some edgeryders will resonate immediately, the rest of us may not know just how to engage even if they resonate with the premises (and keep a different view on the ways, for example me, I got the most out of the FLOSS vanilla interview).",/post/18401,2016-09-26T21:22:44.000Z,2016-09-26T21:22:44.000Z,18401,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1629 10474,v1.0,,"We are also big on technical skill share, so if you want to learn how to become more proficient with your technology, we offer a very friendly atmosphere where we teach one another more tech skills as part of working on Buoy together.",/post/17588,2016-09-26T21:22:31.000Z,2016-09-26T21:22:31.000Z,17588,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1557 9278,v1.0,,"join me and my fellow collaborators in improving the software by contributing suggestions, bug reports, better documentation, and so on.",/post/17588,2016-09-26T21:22:25.000Z,2016-09-26T21:22:25.000Z,17588,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1283 10862,v1.0,,"""integrate 911 as an optional feature for Buoy, too."" I have been asked to do this many times, but I will never agree to do it.",/post/17588,2016-09-26T21:21:59.000Z,2016-09-26T21:21:59.000Z,17588,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1665 10700,v1.0,,I softed my language considerably and spoke of Buoy as primarily a form of social innovation exactly in the way you describe.,/post/17588,2016-09-26T21:21:41.000Z,2016-09-26T21:21:41.000Z,17588,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1629 9470,v1.0,,police are government-funded domestic terrorist organizations,/post/17588,2016-09-26T21:21:34.000Z,2016-09-26T21:21:34.000Z,17588,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1320 10135,v1.0,,"And this is without even considering that, in some circumstances, response has to be fast to be at all useful!",/post/15560,2016-09-26T21:20:57.000Z,2016-09-26T21:20:57.000Z,15560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1454 10552,v1.0,,"it works as politically loaded displacement of state activities, but it also works as ""social innovation""; people helping each other as a complement to public sector service",/post/15560,2016-09-26T21:20:50.000Z,2016-09-26T21:20:50.000Z,15560,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1575 8798,v1.0,,articipants (living with disabilities) will have limited mobility and time. Any ideas of best 'crack'?,/post/13704,2016-09-26T21:20:32.000Z,2016-09-26T21:20:32.000Z,13704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1156 9683,v1.0,,"""have a distributed presence as a compliment to the physical space itself"".",/post/13704,2016-09-26T21:20:16.000Z,2016-09-26T21:20:16.000Z,13704,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1383 9952,v1.0,,"If I am able to nurture friendships with fellow activists who are able to shelter and possibly feed me, who are willing to try experimenting with the tools I write, I make much more sustained progress on a tool. Money helps, of course, but ultimately I spent all money that I gete on food and shelter anyway, so if I can get reliable food and shelter directly, what use have I for money?",/post/11456,2016-09-26T21:19:50.000Z,2016-09-26T21:19:50.000Z,11456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1445 8825,v1.0,,"If I am able to nurture friendships with fellow activists who are able to shelter and possibly feed me, who are willing to try experimenting with the tools I write, I make much more sustained progress on a tool. Money helps, of course, but ultimately I spent all money that I gete on food and shelter anyway, so if I can get reliable food and shelter directly, what use have I for money?",/post/11456,2016-09-26T21:19:36.000Z,2016-09-26T21:19:36.000Z,11456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1164 10435,v1.0,,"Another thought with respect to a more ""distributed presence"" is that it's also possible for a group (such as Woodbine) to host an instane of the Buoy software but invite other groups to make use of it, even if they are not near the Woodbine clinic itself. Buoy has no geographic limitations itself (it uses OpenStreetMaps for geographical data, which covers almost the entire planet), and a single instance's use is only limited by who is actually using it.",/post/11456,2016-09-26T21:19:00.000Z,2016-09-26T21:19:00.000Z,11456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1545 7003,v1.0,,"particular skills to the people who have those skills even if those people are not immediately known by the person in crisis. This is actually one reason why I envision Buoy primarily as a logistical and coordination support tool for existing volunteer-run community health or support groups, rather than a kind of individualistic technological solutionism proferred by these ""there's an app for that!"" product marketing campaigns.",/post/11456,2016-09-26T21:16:29.000Z,2016-09-26T21:16:29.000Z,11456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,731 10473,v1.0,,"tools for getting knowledge/skill dissemination (similar to what the Woodbine folks spoke of) in a ""point-of-need"" manner.",/post/11456,2016-09-26T21:16:11.000Z,2016-09-26T21:16:11.000Z,11456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1557 9682,v1.0,,What if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?,/post/8632,2016-09-26T21:15:54.000Z,2016-09-26T21:15:54.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1383 9681,v1.0,,the best kind of melding between the Internet's ability to cross geographical boundaries and the real need (often overlooked by head-in-the-clouds technologists) for having physical-world networks of people in close proximity to one another.,/post/11456,2016-09-26T21:15:42.000Z,2016-09-26T21:15:42.000Z,11456,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1383 10033,v1.0,,contributing towards fixing the kinds of community resilience challenges we are attempting to tackle...,/post/8632,2016-09-26T21:11:07.000Z,2016-09-26T21:11:07.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1446 6376,v1.0,,What if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?,/post/8632,2016-09-26T21:10:52.000Z,2016-09-26T21:10:52.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,467 10262,v1.0,,"I had a conversation with Amir Hannan, a GP working in the UK, about how  chronic care requires patients to self-manage for good health outcomes (writeup coming soon). Over 15 years he has built a practice based website to encourage an support his patents gain a better understanding of their health to better enable automy and self-care. You can see the site itself here: www.htmc.co.uk (especially the ""Common Problems you can solve yourself section - see menu on the left)""...",/post/8632,2016-09-26T21:10:40.000Z,2016-09-26T21:10:40.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1499 5795,v1.0,,"One of the challenges of alternative care provision is evolving tools that enable it around the needs of communities that use them, and support those who develop them.",/post/8632,2016-09-26T21:10:26.000Z,2016-09-26T21:10:26.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,377 9951,v1.0,,What if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?,/post/8632,2016-09-26T21:09:34.000Z,2016-09-26T21:09:34.000Z,8632,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1445 5689,v1.0,,"Ending such horrors requires, in part, providing ubiquitous access to equally-usable alternatives to existing corporate-State partnerships. Much of this alternative infrastructure already exists in certain areas, in the form of community health clinics and volunteer collectives. But one piece these groups are still missing is the technical ""last mile"" that connects community members in need with the resources that their community's already-existing volunteer services provide when and where they need it.",/post/717,2016-09-26T21:09:18.000Z,2016-09-26T21:09:18.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,357 4651,v1.0,,"Ending such horrors requires, in part, providing ubiquitous access to equally-usable alternatives to existing corporate-State partnerships. Much of this alternative infrastructure already exists in certain areas, in the form of community health clinics and volunteer collectives. But one piece these groups are still missing is the technical ""last mile"" that connects community members in need with the resources that their community's already-existing volunteer services provide when and where they need it.",/post/717,2016-09-26T21:09:01.000Z,2016-09-26T21:09:01.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,44 10293,v1.0,,"Experience has demonstrated that there already exist a vast array of functioning alternatives to State-run care giving institutions and crisis response services. Moreover, for the vast majority of issues that people rely on State-run emergency services for, the State's responses do more harm than good. In contrast, community-run services staffed by the friends and peers of people in need provide a quality of care far superior to the level of care provided by similarly-tasked State or corporate employees. This is most obvious in the case of calling 911 in the United States for issues such as ""noise disturbances,"" which too often end in the murder of a marginalized person at the hands of a police officer.",/post/717,2016-09-26T21:08:48.000Z,2016-09-26T21:08:48.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1505 4660,v1.0,,"Experience has demonstrated that there already exist a vast array of functioning alternatives to State-run care giving institutions and crisis response services. Moreover, for the vast majority of issues that people rely on State-run emergency services for, the State's responses do more harm than good. In contrast, community-run services staffed by the friends and peers of people in need provide a quality of care far superior to the level of care provided by similarly-tasked State or corporate employees. This is most obvious in the case of calling 911 in the United States for issues such as ""noise disturbances,"" which too often end in the murder of a marginalized person at the hands of a police officer.",/post/717,2016-09-26T21:08:20.000Z,2016-09-26T21:08:20.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,46 4629,v1.0,,"Experience has demonstrated that there already exist a vast array of functioning alternatives to State-run care giving institutions and crisis response services. Moreover, for the vast majority of issues that people rely on State-run emergency services for, the State's responses do more harm than good. In contrast, community-run services staffed by the friends and peers of people in need provide a quality of care far superior to the level of care provided by similarly-tasked State or corporate employees. This is most obvious in the case of calling 911 in the United States for issues such as ""noise disturbances,"" which too often end in the murder of a marginalized person at the hands of a police officer.",/post/717,2016-09-26T21:08:07.000Z,2016-09-26T21:08:07.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,39 7495,v1.0,,And we do it using strictly free software that adds no additional burden to a group's budget.,/post/717,2016-09-26T21:07:35.000Z,2016-09-26T21:07:35.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,868 6375,v1.0,,"Inherent in this design is a decentralized architecture that more closely mirrors the way real-life social networks and grassroots organizations are dispersed. On a technological level, it's also a practical return to the earlier days of the Internet before massive, centralized corporate services dominated the landscape of cyberspace. Nevertheless, Buoy makes use of state of the art mobile technology to provide highly accurate GPS-enabled mapping, live video, and other real-time communication tools that in many cases far exceed the meager capabilities of traditional State-run ""First Responder"" services. And we do it using strictly free software that adds no additional burden to a group's budget.",/post/717,2016-09-26T21:07:23.000Z,2016-09-26T21:07:23.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,467 8984,v1.0,,"For this reason, Buoy is built so that it can be easily added to an existing community's social service infrastructure. Rather than embarking on creating new services, caregiving groups can add Buoy as a layer atop their existing websites. So Buoy is not a traditional ""app"" that users download in the app store, but rather a means of adding crisis response, emergency dispatch, and coordination tools to the repertoire of any organization already providing caregiving support to their membership.",/post/717,2016-09-26T21:06:59.000Z,2016-09-26T21:06:59.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1214 4669,v1.0,,"For this reason, Buoy is built so that it can be easily added to an existing community's social service infrastructure. Rather than embarking on creating new services, caregiving groups can add Buoy as a layer atop their existing websites. So Buoy is not a traditional ""app"" that users download in the app store, but rather a means of adding crisis response, emergency dispatch, and coordination tools to the repertoire of any organization already providing caregiving support to their membership.",/post/717,2016-09-26T21:06:49.000Z,2016-09-26T21:06:49.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,51 4670,v1.0,,"Many people are engaged in parallel efforts to both abolish racist systems of social control such as police and simultaneously supplant them with new systems and structures that genuinely serve a community's needs. As technologists, we recognize that technological advancement amplifies all existing power, which is why we focus technical development efforts to support pre-existing activist and community organization processes, rather than imposing new protocols or procedures. This also means we recognize that Buoy is useless for an individual without a pre-existing social support group, whether that be a Church group, family, or activist collective willing to use the tools together.",/post/717,2016-09-26T21:06:37.000Z,2016-09-26T21:06:37.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,52 9593,v1.0,,"Many people are engaged in parallel efforts to both abolish racist systems of social control such as police and simultaneously supplant them with new systems and structures that genuinely serve a community's needs. As technologists, we recognize that technological advancement amplifies all existing power, which is why we focus technical development efforts to support pre-existing activist and community organization processes, rather than imposing new protocols or procedures. This also means we recognize that Buoy is useless for an individual without a pre-existing social support group, whether that be a Church group, family, or activist collective willing to use the tools together.",/post/717,2016-09-26T21:06:32.000Z,2016-09-26T21:06:32.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1352 4674,v1.0,,"Buoy is developed by a growing group of anti-capitalist, anti-racist, prison abolitionists calling themselves the Better Angels. We formed in the wake of the Occupy Wall Street protests in the United States, but are more inspired by movements of militant resistance against capitalist and nationalist domination such as the Zapatistas, and Rojavan Kurds abroad, and Black Lives Matter evictions of police occupation domestically.",/post/717,2016-09-26T21:06:12.000Z,2016-09-26T21:06:12.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,53 10510,v1.0,,"Using a smartphone or laptop computer, a community member can assemble one or more crisis support Teams, alert their support Team(s) of where they are and what they need by pressing a single button, and communicate in real-time with their support Team. Importantly, Team members can also coordinate with one another, independent of any communication from the person in crisis.",/post/717,2016-09-26T21:05:57.000Z,2016-09-26T21:05:57.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1565 10584,v1.0,,"Buoy is a software-based communication tool used for improving community responses to distressing situations that affect one or more community members. It is built from the ground up to provide individuals and community organizations with an alternative to State- and corporate-run emergency response infrastructures, such as making a 112 or 911 phone call in Europe or the Sates. It offers a flexible and customizable, intake, dispatch, and field support toolkit for coordinating collective action in the event of crises, whether large or small.",/post/717,2016-09-26T21:05:38.000Z,2016-09-26T21:05:38.000Z,717,3323,AnnotatorStore::TextAnnotation,,,,,,,,,684,1588 4937,v1.0,,like to know is how people get in touch with you and how do they decide to become part of a community? Do they stay for a long time? Are there any children that grew up and then moved away? Do you get any financial help from the government?,/post/26043,2016-09-26T20:56:13.000Z,2016-09-26T20:56:13.000Z,26043,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,123 7625,v1.0,,"local government is burocratic-politics and slow, almost no budget...",/post/24390,2016-09-26T20:55:55.000Z,2016-09-26T20:55:55.000Z,24390,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,906 10380,v1.0,,"microwelfare. we sill live in a ""normal way""...but we share time, infromation, products,  skills, decision maing on shared purchases...anycase it is a light version of what you think.",/post/24390,2016-09-26T20:55:44.000Z,2016-09-26T20:55:44.000Z,24390,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1534 8837,v1.0,,"microwelfare. we sill live in a ""normal way""...but we share time, infromation, products,  skills, decision maing on shared purchases...anycase it is a light version of what you think.",/post/24390,2016-09-26T20:55:23.000Z,2016-09-26T20:55:23.000Z,24390,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1166 8651,v1.0,,"microwelfare. we sill live in a ""normal way""...but we share time, infromation, products,  skills, decision maing on shared purchases...anycase it is a light version of what you think.",/post/24390,2016-09-26T20:55:17.000Z,2016-09-26T20:55:17.000Z,24390,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1145 6158,v1.0,,"one big asnwer. i - we dont wanna say we are the best, we are the benchmakr. we failed a lot of times. becasue mainly co-living takes time and it is not a professional activity. this is not a community like organization that lives as a whole, it is the sum of families which tried to improve a better way of living in a light way. so no huge ambition was inside it, so i feel that everything that happen is like a miracle, even with all the troubles and limitation increased also by the economic crises that hit so many of us here.",/post/24390,2016-09-26T20:55:01.000Z,2016-09-26T20:55:01.000Z,24390,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,437 10361,v1.0,,"becasue mainly co-living takes time and it is not a professional activity. this is not a community like organization that lives as a whole, it is the sum of families which tried to improve a better way of living in a light way. so no huge ambition was inside it, so i feel that everything that happen is like a miracle, even with all the troubles and limitation increased also by the economic crises that hit so many of us here.",/post/24390,2016-09-26T20:54:57.000Z,2016-09-26T20:54:57.000Z,24390,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1532 10472,v1.0,,If you have ways that you formally share your experiences with other groups so they might learn and begin to try these things for themselves in their particular regions? Would love to know more about any or all of these things.,/post/21004,2016-09-26T20:54:43.000Z,2016-09-26T20:54:43.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1557 9881,v1.0,,"Would love to know if your model has the intention to put itself forth as a form that could be replicable, maybe it alreay does?",/post/21004,2016-09-26T20:54:36.000Z,2016-09-26T20:54:36.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1439 9161,v1.0,,"ow do keep it from becoming an isolated, if enviable situation, which is not merely its own ends?",/post/21004,2016-09-26T20:54:24.000Z,2016-09-26T20:54:24.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1258 9171,v1.0,,An important question we ask ourselves is how do we keep this open to all forms of life that would grow our power and we theirs,/post/21004,2016-09-26T20:54:16.000Z,2016-09-26T20:54:16.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1262 6035,v1.0,,"I ask because we've gotten involved with local government at times, but we see it as purely strategic, we won't do anything with them that would require some kind of compromise because ultimately we are interested in autonomy from all forms of governance.",/post/21004,2016-09-26T20:53:58.000Z,2016-09-26T20:53:58.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,414 8983,v1.0,,"I ask because we've gotten involved with local government at times, but we see it as purely strategic, we won't do anything with them that would require some kind of compromise because ultimately we are interested in autonomy from all forms of governance.",/post/21004,2016-09-26T20:53:48.000Z,2016-09-26T20:53:48.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1214 9160,v1.0,,"This was exactly the kind of situation that sociological literature likes to call a “gated community” . bu we never felt like that.  we started as a non-group, we have become a light community with different sensibilities and priorities, we've engaged with the neighborhood in several ways, we took part in local decision making, social action, and so on…",/post/743,2016-09-26T20:53:21.000Z,2016-09-26T20:53:21.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1258 8836,v1.0,,"In regards “micro-welfare” and mutual support, have you communized your money or is there a separate fund that members pay into for these kinds of things? This is something we’ve been discussing for our group and haven’t figured out quite how to do it with the constraints of an economy like NYC. Have these things created a situation where people are able to work less or not at all?",/post/21004,2016-09-26T20:52:51.000Z,2016-09-26T20:52:51.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1166 8650,v1.0,,"In regards “micro-welfare” and mutual support, have you communized your money or is there a separate fund that members pay into for these kinds of things? This is something we’ve been discussing for our group and haven’t figured out quite how to do it with the constraints of an economy like NYC. Have these things created a situation where people are able to work less or not at all?",/post/21004,2016-09-26T20:52:46.000Z,2016-09-26T20:52:46.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1145 7514,v1.0,,"Also curious to know how it was initially funded, did you rent or buy a building and grow from there or did you build something new (the image with your post is a co-housing experiment I’m somewhat familiar with, is it related somehow?).",/post/21004,2016-09-26T20:52:37.000Z,2016-09-26T20:52:37.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,876 9950,v1.0,,", if as you say didn’t know each other and had no common identity or belonging, how did you find each other and make the decision together?",/post/21004,2016-09-26T20:52:27.000Z,2016-09-26T20:52:27.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1445 4936,v1.0,,", if as you say didn’t know each other and had no common identity or belonging, how did you find each other and make the decision together?",/post/21004,2016-09-26T20:52:18.000Z,2016-09-26T20:52:18.000Z,21004,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,123 6157,v1.0,,".but the chance here is get support of expereinces (good and bad) from families who knows what can mean to live like this without a religous/political/frienship previous shared background. companies or big institutions can probaly leverage on stronge assessts for the real estate side but",/post/17693,2016-09-26T20:51:25.000Z,2016-09-26T20:51:25.000Z,17693,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,437 4935,v1.0,,.but the chance here is get support of expereinces (good and bad) from families who knows what can mean to live like this without a religous/political/frienship previous shared background.,/post/17693,2016-09-26T20:51:01.000Z,2016-09-26T20:51:01.000Z,17693,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,123 6156,v1.0,,"I have known about this project for years (I have even visited!), and really like the way you guys seem to have adjusted and improved your ways of living together. My own co-living experiment is much smaller, and much younger than yours... there is a lot to learn here.",/post/15499,2016-09-26T20:50:47.000Z,2016-09-26T20:50:47.000Z,15499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,437 10360,v1.0,,"I have known about this project for years (I have even visited!), and really like the way you guys seem to have adjusted and improved your ways of living together. My own co-living experiment is much smaller, and much younger than yours... there is a lot to learn here.",/post/15499,2016-09-26T20:50:40.000Z,2016-09-26T20:50:40.000Z,15499,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1532 6155,v1.0,,"Alberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and one of the units in each building is rented to the ""community manager"" tasked with working on social ties between people. Not sure about details, but it seems it's financed by Casa Depositi e Prestiti. Does your project have anything to do with it or better yet: do you see your project coming to influence social policies in Italy? It seems it's 8 years along the line and you guys seem to have great results to show as to what the future looks like.",/post/8575,2016-09-26T20:50:26.000Z,2016-09-26T20:50:26.000Z,8575,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,437 10359,v1.0,,"Alberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and one of the units in each building is rented to the ""community manager"" tasked with working on social ties between people. Not sure about details, but it seems it's financed by Casa Depositi e Prestiti. Does your project have anything to do with it or better yet: do you see your project coming to influence social policies in Italy? It seems it's 8 years along the line and you guys seem to have great results to show as to what the future looks like.",/post/8575,2016-09-26T20:50:22.000Z,2016-09-26T20:50:22.000Z,8575,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1532 9738,v1.0,,"Alberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and one of the units in each building is rented to the ""community manager"" tasked with working on social ties between people. Not sure about details, but it seems it's financed by Casa Depositi e Prestiti. Does your project have anything to do with it or better yet: do you see your project coming to influence social policies in Italy? It seems it's 8 years along the line and you guys seem to have great results to show as to what the future looks like.",/post/8575,2016-09-26T20:50:17.000Z,2016-09-26T20:50:17.000Z,8575,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1393 5614,v1.0,,"We'd also gladly make use of a practical tool, perhaps a platform, to share materials, ideas, needs, etc. And being part of a bigger network to compare notes, support each other, share more, and maybe be connected with the town council infrastructure (cars, electricity, water, events, …)",/post/743,2016-09-26T20:50:02.000Z,2016-09-26T20:50:02.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,354 8261,v1.0,,We had to come by with a legal framework to a situation unknown by Italian law (we had to govern it in the traditional way). The paid professional legal “administrator” has changed three times… It is hard for them to deal with a real counterpart with proposals and ideas for innovation.,/post/743,2016-09-26T20:49:37.000Z,2016-09-26T20:49:37.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1074 5571,v1.0,,"The kids have been a strong “glue” among the family with kids and others, who became kind of uncles, grandpas or grandmas. And a topic of discussion for the other ones.",/post/743,2016-09-26T20:49:31.000Z,2016-09-26T20:49:31.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,337 11561,v1.0,,"The kids have been a strong “glue” among the family with kids and others, who became kind of uncles, grandpas or grandmas. And a topic of discussion for the other ones.",/post/743,2016-09-26T20:49:18.000Z,2016-09-26T20:49:18.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1873 5688,v1.0,,"still volunteering in groups (garden caring, swimming pool fixing, legal affairs, food purchase)",/post/743,2016-09-26T20:48:42.000Z,2016-09-26T20:48:42.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,357 10471,v1.0,,"micro-welfare and mutual support include a lot of different situations (child care / homework/ vacations, home trouble fixing, information, shopping for the neighbor, shared purchases, savings, medical support, emergency support, skills sharing…)",/post/743,2016-09-26T20:48:26.000Z,2016-09-26T20:48:26.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1557 10358,v1.0,,"Since summer 2009, 30 families started living together in the first “official” co-housing in a periferic neighborhood in Milan, and probably of whole Italy. To my knowledge, the phenomenon has been often recorded by the Media (radio, tv, magazines and newspapers) and Polytechnic of Milan (Ph.D. and Master dissertations) as a first and original case. For some months and years, people liked to come and visit, check, make interviews about an experience that, in those years, sounded strongly innovative and now is consolidated. Some other co-living “residences” (but not many) of this kind have been promoted and started in the north of Italy and not only in Milan.",/post/743,2016-09-26T20:48:02.000Z,2016-09-26T20:48:02.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,1532 6154,v1.0,,"Since summer 2009, 30 families started living together in the first “official” co-housing in a periferic neighborhood in Milan, and probably of whole Italy. To my knowledge, the phenomenon has been often recorded by the Media (radio, tv, magazines and newspapers) and Polytechnic of Milan (Ph.D. and Master dissertations) as a first and original case. For some months and years, people liked to come and visit, check, make interviews about an experience that, in those years, sounded strongly innovative and now is consolidated. Some other co-living “residences” (but not many) of this kind have been promoted and started in the north of Italy and not only in Milan.",/post/743,2016-09-26T20:47:56.000Z,2016-09-26T20:47:56.000Z,743,3323,AnnotatorStore::TextAnnotation,,,,,,,,,710,437 10458,v1.0,,"If you are able to spin this into a social economy / professional re-insertion kind of venture where you make a case about skill training, you might be able to access resources easier than under artistic education or creative industry.. especially if Greece has some subsidies/ funding left for that field.",/post/9449,2016-09-26T20:46:25.000Z,2016-09-26T20:46:25.000Z,9449,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,1556 4718,v1.0,,"So many fiction-like cultural references come to mind Really inspiring, and from reallife examples it reminds of the Brazilian Wasteland and how wasted human potential can be turned into art.",/post/9449,2016-09-26T20:46:16.000Z,2016-09-26T20:46:16.000Z,9449,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,62 9595,v1.0,,"So your work/office space is a prison, members of your team are inmates, and it's not a one off because you are setting up a proper organisation to turn this into something sustainable, do I get it right?",/post/9449,2016-09-26T20:46:08.000Z,2016-09-26T20:46:08.000Z,9449,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,1353 9949,v1.0,,"The biggest challenge is, maybe, how to mobilize the society.",/post/744,2016-09-26T20:45:59.000Z,2016-09-26T20:45:59.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,1445 7197,v1.0,,easy,/post/744,2016-09-26T20:45:42.000Z,2016-09-26T20:45:42.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,778 10457,v1.0,,"Through the project, the team is able to build several life skills. Maybe the most important one is leadership since everybody is responsible for something and the team is co-managed collectively. For inmates, the project cultivates the sense of collaboration and taking up responsibility. These might not be skills per se, but are important for those who are inside the prison. Another important aspect of working together is the ability to exercise crisis management, something that is important to them, but also to me. It is important that everyone understands how to bring the result to the team. And then, there is a set of skills related to the arts and other social issues.",/post/744,2016-09-26T20:45:28.000Z,2016-09-26T20:45:28.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,1556 7425,v1.0,,"We don’t consider MESA as a lesson, but as a collaborative creative office. Everything is decided in the circle - my opinion doesn’t count more than theirs. We always try to have our own rules, but we also know how we have to behave according to the rules of a confined prison environment. If some of them look dumb, then we know we need to try change them slowly. This doesn’t mean that we compromise our action in order to avoid conflict with the authorities, but it is a relationship of trust that has to be built very carefully. For this reason, we are also offering meticulous training to our team.",/post/744,2016-09-26T20:45:17.000Z,2016-09-26T20:45:17.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,845 8260,v1.0,,"MESA is currently an informal team, but we are now in talks about the creation of a legal entity, so we can manage funds and scale our projects. Meanwhile, Greek authorities have declared that they would give priority to education over security - something that is a very strong commitment. We are waiting for replies from the Ministries, in order to see whether we can be part of any public programs.",/post/744,2016-09-26T20:45:09.000Z,2016-09-26T20:45:09.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,1074 6034,v1.0,,"We collaborate with the Ministries of Justice and Education, the Centre of Therapy for Addicts (KETHEA), the National Museum of Modern Arts and the Municipality of Korydallos, the city hosting Greece’s largest prison. The schools are operating under the auspices of the prison system of Greece, and there are always certain procedures to be followed. The Ministry of Justice needs to offer permission to enter the prison premises.",/post/744,2016-09-26T20:44:53.000Z,2016-09-26T20:44:53.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,414 9594,v1.0,,"In the 1980s, my mother has been working as an educator in the prison of my hometown, Trikala. As a result, I have been countless times inside the prison premises, and I am accustomed to this environment since the age of 10. Coming from this background, with my family aware of the power of education and creative action for those who are serving in a prison, I always knew I would end up doing something within this field.",/post/744,2016-09-26T20:44:17.000Z,2016-09-26T20:44:17.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,1353 4717,v1.0,,"Our societies usually perceive inmates as people that deserve a second chance. Instead, I believe that inmates need to be convinced to give to society a second chance, and trust it again. Having a clear understanding of the challenges, and having a background in visual arts, I wanted to make museums understand that they have a social role, complementary to the preservation of cultural heritage. They ought to get out of their box and get in closer contact with the society. The National Museum of Contemporary Art already has already been working with communities inside the prison system. In April 2015, as part of my thesis on designing a museum outreach program that is open to vulnerable social groups, I started the project in the prison of Trikala.",/post/744,2016-09-26T20:44:02.000Z,2016-09-26T20:44:02.000Z,744,3323,AnnotatorStore::TextAnnotation,,,,,,,,,711,62 8471,v1.0,,b) phisical proximity and real realtionship,/post/9138,2016-09-26T20:42:34.000Z,2016-09-26T20:42:34.000Z,9138,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1122 10357,v1.0,,b) phisical proximity and real realtionship,/post/9138,2016-09-26T20:42:27.000Z,2016-09-26T20:42:27.000Z,9138,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1532 8999,v1.0,,"We conclude on the fact that the creation of digital tools will not alone be the solution, what we need are well thought of spaces that give people the possibility to live at a descent standard without needing to fall in the spiral of a purely private ownership.",/post/745,2016-09-26T20:42:02.000Z,2016-09-26T20:42:02.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1222 6269,v1.0,,"Cascoland was another project where she worked around public and private space. One of the tasks she had was to implement a sharing community inside a mixed neighbourhood. Like in Germany or Suisse they printed out little signs of objects anybody could put on their door to show they can lent this out. What was interesting was the conclusion: when explaining the concept to people with only Dutch roots they answered almost all the time: but I have nothing to share. For them it was a difficult step to share something of their belongings with their neighbours. When explaining the concept to people with Arab roots for example they didn’t have a problem with sharing and where found of the idea, but had a problem with the fact the stickers would become an opportunity for other people to come inside. Inside their community they already had all the needed interaction and didn’t want something external extra. A compromise could be the organization Tournevie that puts in disposal several tools for the community. A semi-private public space, as we understand it.",/post/745,2016-09-26T20:41:46.000Z,2016-09-26T20:41:46.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,447 6283,v1.0,,"Cascoland was another project where she worked around public and private space. One of the tasks she had was to implement a sharing community inside a mixed neighbourhood. Like in Germany or Suisse they printed out little signs of objects anybody could put on their door to show they can lent this out. What was interesting was the conclusion: when explaining the concept to people with only Dutch roots they answered almost all the time: but I have nothing to share. For them it was a difficult step to share something of their belongings with their neighbours. When explaining the concept to people with Arab roots for example they didn’t have a problem with sharing and where found of the idea, but had a problem with the fact the stickers would become an opportunity for other people to come inside. Inside their community they already had all the needed interaction and didn’t want something external extra. A compromise could be the organization Tournevie that puts in disposal several tools for the community. A semi-private public space, as we understand it.",/post/745,2016-09-26T20:41:36.000Z,2016-09-26T20:41:36.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,449 10356,v1.0,,"When living in Istanbul it occurred to her that people interacted much more easily with each other in the street, even complete strangers could discuss with each other when waiting for the bus. She doesn’t know exactly why it occurred much more often in Istambul then in Brussels but she had the feeling the way we use time was part of the solution. Living small gives you much more time to just sit around, be outside and make you car independent. Only this simple part, of not having a car makes you much more able to interact with the people you see. But don’t be alarmed; this discussion didn’t became a ‘everything was better in the past’ discussion.",/post/745,2016-09-26T20:41:18.000Z,2016-09-26T20:41:18.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1532 8328,v1.0,,"When she works for the semi-public private space project Huis VDH she finds the same logic. Creating common spaces that gives the feeling of a home, but are able to invite people over to use it in certain ways. Why have a big living room with kitchen for social events that you organize four times a year at home when you could share such space with other people. Some things can be privatized but not everything. In the same line of thought she sees empty spaces above shops or pubs and restaurants as an opportunity to create common spaces for people living small. You could think: why not set bigger apartments above those places? That could immediately make it difficult for the bar or restaurant holder to continue his night live activities, and also this plays an important role in the city.",/post/745,2016-09-26T20:41:08.000Z,2016-09-26T20:41:08.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1087 7166,v1.0,,"‘But how could it directly be linked with care?’, i asked her. She takes the example of elderly care, also discussed in the interview with Ginette where people even if they live in big houses don’t have the time anymore to care for their elderly and put them into homes, from own experience we conclude that the home isn’t the best designed space to give good care. Making effort to create a nice environment for the elder people could help them feel well longer. We know from studies that interaction is a key in stopping elderly dementia. So having public spaces designed around giving care and sharing part of your lives with unknown people could be a major incentive for our future problems with ageing population.",/post/745,2016-09-26T20:41:03.000Z,2016-09-26T20:41:03.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,770 9741,v1.0,,"The secret of living decently in the city is to manage space and time differently, but she is aware that it becomes more difficult. Public space isn’t anymore a space for everybody, but a space for nobody. A cleaned-out space that only looks pretty. Because our fascination for more sterile environments we lost the skills to interact with each other. Who needs to interact with your neighbour if you have all the space you need inside your private home. Living small could bring back the necessity of interaction and borrowing stuff from your neighbours, helping create a much-needed social fabric to your neighbourhood.",/post/745,2016-09-26T20:40:50.000Z,2016-09-26T20:40:50.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1395 9408,v1.0,,"The secret of living decently in the city is to manage space and time differently, but she is aware that it becomes more difficult. Public space isn’t anymore a space for everybody, but a space for nobody. A cleaned-out space that only looks pretty. Because our fascination for more sterile environments we lost the skills to interact with each other. Who needs to interact with your neighbour if you have all the space you need inside your private home. Living small could bring back the necessity of interaction and borrowing stuff from your neighbours, helping create a much-needed social fabric to your neighbourhood.",/post/745,2016-09-26T20:40:38.000Z,2016-09-26T20:40:38.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,1308 6153,v1.0,,"I met Sigried some years ago when I was working on a Parc project in Brussels and we had long discussions about the way she looks at the balance between public and private space. Between then and now she experimented around public – private space in Istambul, the Netherlands, Brussels and chose to practice her philosophy with her boyfriend, a product designer by living small (We Live Small is an on-going experiment developing tools to make living in small space possible.)",/post/745,2016-09-26T20:40:22.000Z,2016-09-26T20:40:22.000Z,745,3323,AnnotatorStore::TextAnnotation,,,,,,,,,712,437 9948,v1.0,,"The question is: is this impulse towards care reliable enough that we can factor it into project design? Are we looking at a sort of ""If we build it, they will come"" of community care initiatives?",/post/24862,2016-09-26T20:39:14.000Z,2016-09-26T20:39:14.000Z,24862,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1445 5071,v1.0,,"It is for me ... making a difference for someone makes me feel profoundly human, part of humanity ... I think connecting, helping, supporting, caring restores humanity in us, in the other and in the world",/post/24666,2016-09-26T20:39:04.000Z,2016-09-26T20:39:04.000Z,24666,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,146 7061,v1.0,,"olunteers in The Jungle are sad, broken, exhausted. Why don't they go home? ""We feel responsible"", says Alex. Not good enough.",/post/21551,2016-09-26T20:38:49.000Z,2016-09-26T20:38:49.000Z,21551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,749 9947,v1.0,,Why do you feel responsible? Humans seem to be naturally building mutual help communities. Why? What are we missing?,/post/21551,2016-09-26T20:38:35.000Z,2016-09-26T20:38:35.000Z,21551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1445 4828,v1.0,,"This is not just informative, it's literary. And I sometimes wonder if you don't need the beauty for the information to hit home.",/post/21551,2016-09-26T20:37:41.000Z,2016-09-26T20:37:41.000Z,21551,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,90 9946,v1.0,,"Do you have similar experiences working with refugees in other parts of Europe? Do you have any useful experience that might help the volunteers at the camp? Do you have any ideas for how the Calais refugee situation could be re-structured after the evictions? Are there any other parts of my experience that you would like to learn more about?",/post/536,2016-09-26T20:37:26.000Z,2016-09-26T20:37:26.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1445 8383,v1.0,,"""I don't think it is. The world is full for people who are scared. This fear drives their actions. But there are always others who respond to fear with love. This love is faith."" He gave me a look that said 'strange European man, you know nothing of the world!'",/post/536,2016-09-26T20:37:18.000Z,2016-09-26T20:37:18.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1102 10103,v1.0,,Over all this positive improvement still hangs the uncertainty of the future. Volunteer numbers have decreased. Aid donations have slowed. Some organisations struggle to fundraise the money needed to provide services on the camp - for the first time since last year refugees on the camp report hunger and malnutrition.,/post/536,2016-09-26T20:37:00.000Z,2016-09-26T20:37:00.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1451 9343,v1.0,,The management team at the warehouse made some great improvements even in the short time I was there. More training for long term volunteers on conflict resolution and dealing with difficult people. More training on how to self care and look after each other. The warehouse caravan park was designated an alcohol-free zone. Resident meeting were set back up. A weekly 'safe space' for free and open personal discussion was created in the warehouse. Weekly film screenings were restarted.,/post/536,2016-09-26T20:36:52.000Z,2016-09-26T20:36:52.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1294 7060,v1.0,,"Days off from the work of the warehouse and camp are encouraged, and even scheduled. But they are ignored, rescheduled, or simply don't happen. People feel responsible for the people on the camp. They can't switch off.",/post/536,2016-09-26T20:36:42.000Z,2016-09-26T20:36:42.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,749 11220,v1.0,,"Everyone experiences some form of trauma. Most experience exhaustion. Often trauma comes from being in scary situations that you aren't trained to deal with. Occasionally volunteer social workers, therapists and psychologists stop by the volunteer camps. They offer their services for free. As always, the people who need it the most are most likely to not take advantage of these services.",/post/536,2016-09-26T20:36:14.000Z,2016-09-26T20:36:14.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1772 8533,v1.0,,"Mental health for the volunteers is a concern. Everyone lives on a knife-edge. Most volunteers self-finance their time working in Calais. They live frugally, stretching their money out. This means they end up living on top of each other. The warehouse team has a caravan park attached to the building. Volunteers with no money can stay there. Living up to 6 people in a caravan, with limited access to hot water and personal space. Volunteers who live in this enclave have a different experience to those who stay in private accommodation or hostels.",/post/536,2016-09-26T20:35:57.000Z,2016-09-26T20:35:57.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1140 4491,v1.0,,"In the end there is either hope, or hopelessness; Chance or no Chance. Both suffocate you and the refugees. It clouds all your conversations and interactions.",/post/536,2016-09-26T20:35:46.000Z,2016-09-26T20:35:46.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,5 4969,v1.0,,"You find yourself under the same strain as the refugees. You get emotionally attached to their quest. You want them to succeed at making it across the Channel. But when they leave the camp to try you feel a gut-wrenching fear for them. You’ve heard too many bad stories – about the armed police; about the fascist skinheads that patrol around the ferry ports; and refrigerated lorries. Whilst I was there I met two people I later found out fell under the wheels of a moving lorry, or became trapped in airless lorry containers; suffocating to death.",/post/536,2016-09-26T20:35:39.000Z,2016-09-26T20:35:39.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,126 8914,v1.0,,"You find yourself under the same strain as the refugees. You get emotionally attached to their quest. You want them to succeed at making it across the Channel. But when they leave the camp to try you feel a gut-wrenching fear for them. You’ve heard too many bad stories – about the armed police; about the fascist skinheads that patrol around the ferry ports; and refrigerated lorries. Whilst I was there I met two people I later found out fell under the wheels of a moving lorry, or became trapped in airless lorry containers; suffocating to death.",/post/536,2016-09-26T20:35:26.000Z,2016-09-26T20:35:26.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1195 8259,v1.0,,"Sometimes the pressure comes from the armed police that surround the camp. At every entrance a bus full of armed police waits. They stop all vehicles going on to the camp. Sometimes they're friendly, sometimes officious, always confrontational. When there are problems on the camp or the nearby Motorway they respond with CS gas canisters. They fire them at will over the whole camp. Dispersing refugees into shelters. The canisters overheat when they let the gas out, this causes fires in the camp. Often the police target refugee communal areas like restaurants and shops. They try to use the gas to burn them down. I will never forget walking through the camp, under a thick fog of CS gas, my throat raw, shielding my watering eyes from the gas with a scarf.",/post/536,2016-09-26T20:35:06.000Z,2016-09-26T20:35:06.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1074 9469,v1.0,,"Sometimes the pressure comes from the armed police that surround the camp. At every entrance a bus full of armed police waits. They stop all vehicles going on to the camp. Sometimes they're friendly, sometimes officious, always confrontational. When there are problems on the camp or the nearby Motorway they respond with CS gas canisters. They fire them at will over the whole camp. Dispersing refugees into shelters. The canisters overheat when they let the gas out, this causes fires in the camp. Often the police target refugee communal areas like restaurants and shops. They try to use the gas to burn them down. I will never forget walking through the camp, under a thick fog of CS gas, my throat raw, shielding my watering eyes from the gas with a scarf.",/post/536,2016-09-26T20:34:59.000Z,2016-09-26T20:34:59.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1320 8052,v1.0,,"Race, religion and resource issues overlap in a fraught and challenging space. It is surprising that it doesn't descend into violence more often. The fact it doesn't is a testament to the work done by volunteers, and faith and community leaders on the camp.",/post/536,2016-09-26T20:34:39.000Z,2016-09-26T20:34:39.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1018 8051,v1.0,,"These moments also show you how angry people are. Refugees stop you in their shelters, or on the paths around the camp. Inter-community tensions seeps out through small cracks. The walls and fences of the Calais port don’t discriminate between nations. So neither does the camp. Afghanis rub up against Iranians, Indians, Sudanese and Syrians. Some communities are better established on the camp. Some manage their resources and people better than others. Some communities have established 'leaders' who act as a lynchpin for fellow countrymen. I met a young Indian refugee who was angry there was no Indian community leader. I explained to him he was the first refugee from India i had met on the camp. He was de facto the community leader for his nation.",/post/536,2016-09-26T20:34:29.000Z,2016-09-26T20:34:29.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1018 4934,v1.0,,"These moments also show you how angry people are. Refugees stop you in their shelters, or on the paths around the camp. Inter-community tensions seeps out through small cracks. The walls and fences of the Calais port don’t discriminate between nations. So neither does the camp. Afghanis rub up against Iranians, Indians, Sudanese and Syrians. Some communities are better established on the camp. Some manage their resources and people better than others. Some communities have established 'leaders' who act as a lynchpin for fellow countrymen. I met a young Indian refugee who was angry there was no Indian community leader. I explained to him he was the first refugee from India i had met on the camp. He was de facto the community leader for his nation.",/post/536,2016-09-26T20:34:00.000Z,2016-09-26T20:34:00.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,123 10670,v1.0,,"In these small, intimate moments people open up to you. Some share stories, opinions on the camp or photos from their phones. Some photos are of family and home. Some photos are graphic images of violence and bloodshed. You never know if these images are from their own experience, or if they are from external sources. Almost every refugee can connect to the internet and people share images amongst groups. You know it would be rude to ask for verification. You are frequently reminded not to push anyone to tell you about their life before, or their journey. You are not a therapist and reliving traumatic experiences can re-traumatise them.",/post/536,2016-09-26T20:33:31.000Z,2016-09-26T20:33:31.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1625 9013,v1.0,,"Those working in the Aid Distribution team have to work in intimate personal spaces. The role requires you to enter into the shelters and tents of refugees to communicate with them. Preferably, this requires a translator, but most communication is through non-verbal, gesture and eye-contact. Even with a total language barrier, the way the refugees welcome you into their personal space is heart warming. The experience is unlike anything I have experienced elsewhere. For many British volunteers this immediate intimacy from strangers can be strange and disorienting. It feels odd to accept food, drink and hospitality from people who have so little already. Yet, rejecting the offer also seems heartless. It is difficult to balance these conflicting emotions. I often struggle to balance my desire to be ‘efficient’ at the task, with being ‘friendly’ to the people I’m helping. I could spend a whole day working with only 10-15 people: Eating food with them; making notes about vulnerabilities; listening to the needs of their community and drinking sweet milk chai. Then I remember that there are thousands of people on the camp. If I spend the same amount of time with each group it would take years to finish the simple tasks.",/post/536,2016-09-26T20:33:21.000Z,2016-09-26T20:33:21.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1227 11210,v1.0,,"Those working in the Aid Distribution team have to work in intimate personal spaces. The role requires you to enter into the shelters and tents of refugees to communicate with them. Preferably, this requires a translator, but most communication is through non-verbal, gesture and eye-contact. Even with a total language barrier, the way the refugees welcome you into their personal space is heart warming. The experience is unlike anything I have experienced elsewhere. For many British volunteers this immediate intimacy from strangers can be strange and disorienting. It feels odd to accept food, drink and hospitality from people who have so little already. Yet, rejecting the offer also seems heartless. It is difficult to balance these conflicting emotions. I often struggle to balance my desire to be ‘efficient’ at the task, with being ‘friendly’ to the people I’m helping. I could spend a whole day working with only 10-15 people: Eating food with them; making notes about vulnerabilities; listening to the needs of their community and drinking sweet milk chai. Then I remember that there are thousands of people on the camp. If I spend the same amount of time with each group it would take years to finish the simple tasks.",/post/536,2016-09-26T20:33:13.000Z,2016-09-26T20:33:13.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1769 11391,v1.0,,Working days are long and filled with waiting. Long-term volunteers have to balance time considerations to get the most work done. Volunteers arrive early. UK volunteers have early Channel ferries to pack a full day in. Or the locals from Belgium and France are more balanced towards early starts. As a result the warehouse opens early with many arriving around 8am to start working.,/post/536,2016-09-26T20:32:37.000Z,2016-09-26T20:32:37.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1832 8710,v1.0,,What follows is a long story documenting some of my experiences working as a caregiver on the Calais camp during March - May 2016.,/post/536,2016-09-26T20:30:04.000Z,2016-09-26T20:30:04.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1150 8965,v1.0,,Each morning at the l’Auberge des Migrants Warehouse between 40-200 volunteers arrive to help with the day’s tasks. It is one of 2 or 3 three aid organisations in the area serving the needs of the camp.,/post/536,2016-09-26T20:29:49.000Z,2016-09-26T20:29:49.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1207 10216,v1.0,,"I use this image to emphasise the unsanitary conditions of the site, and how you become desensitised to them.",/post/536,2016-09-26T20:29:39.000Z,2016-09-26T20:29:39.000Z,536,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1486 10470,v1.0,,"The self care training was mostly around sharing best practice. Asking groups to share ideas around how they unwind, stress reduction, how they notice stress in themselves and others.",/post/16022,2016-09-26T20:28:41.000Z,2016-09-26T20:28:41.000Z,16022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1557 10261,v1.0,,"The self care training was mostly around sharing best practice. Asking groups to share ideas around how they unwind, stress reduction, how they notice stress in themselves and others.",/post/16022,2016-09-26T20:28:35.000Z,2016-09-26T20:28:35.000Z,16022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1499 7059,v1.0,,I think i initially went out to help because i had a sense of purpose. I fesire to use my skills to help people most at need of them.,/post/16022,2016-09-26T20:28:29.000Z,2016-09-26T20:28:29.000Z,16022,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,749 7058,v1.0,,"Interesting how being a caregiver comes not just from sense of purpose or attachment, but a sense of duty.",/post/9328,2016-09-26T20:28:14.000Z,2016-09-26T20:28:14.000Z,9328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,749 8913,v1.0,,"Interesting how being a caregiver comes not just from sense of purpose or attachment, but a sense of duty.",/post/9328,2016-09-26T20:28:07.000Z,2016-09-26T20:28:07.000Z,9328,3323,AnnotatorStore::TextAnnotation,,,,,,,,,503,1195 7111,v1.0,,"Wow, @Michel , that seems to be a difficult problem. Infrastructure as basic as what you describe for Madagascar is out of my experience (I lived in Europe my whole life).  All I can say is that the whole opencare thing is really not relying on government. The stories you read here are all stories of self-sufficiency somehow.  Education, peer to peer, in a developing country: this sounds like a project @Matthias is developing in Nepal. He calls it ""pocket university"". Matt, do we have a link to the idea yet?",/post/13915,2016-09-26T20:25:58.000Z,2016-09-26T20:25:58.000Z,13915,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,766 7110,v1.0,,"Hi @Aravella,  Alternative school is never been taken before.  The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again.  Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime.  Communal Library is rare, there are old books since 70's to 90's sometime  no book but lot of dust and ruins.",/post/11993,2016-09-26T20:25:42.000Z,2016-09-26T20:25:42.000Z,11993,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,766 4628,v1.0,,"Hi @Aravella,  Alternative school is never been taken before.  The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again.  Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime.  Communal Library is rare, there are old books since 70's to 90's sometime  no book but lot of dust and ruins.",/post/11993,2016-09-26T20:25:33.000Z,2016-09-26T20:25:33.000Z,11993,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,39 4627,v1.0,,"Hi @Mishel! What about alternative schools? Solidarity teachers and maybe school from distance. Through radio or internet if it's possible. And not only typical lessons but also music, dance, poetry e.t.c. What about libraries in Magadascar?",/post/10044,2016-09-26T20:25:23.000Z,2016-09-26T20:25:23.000Z,10044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,39 7109,v1.0,,"Hi @Mishel! What about alternative schools? Solidarity teachers and maybe school from distance. Through radio or internet if it's possible. And not only typical lessons but also music, dance, poetry e.t.c. What about libraries in Magadascar?",/post/10044,2016-09-26T20:25:09.000Z,2016-09-26T20:25:09.000Z,10044,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,766 7624,v1.0,,"Finally, Malagasy people cannot lean on their own government, it doesn’t have enough budget to overcome this or: the budget is going somewhere else which is more important, like towards health. Private school is plenty even if some of them don't have the right character as a normal school: no playing ground, no gates... Parents like it because the teaching method is quite modern and up to date, teachers are quite professional.  Some of those private schools belong to someone on the Government. The good thing is that teachers in private schools are at least able to do their job smoothly and actually finish school programs.",/post/746,2016-09-26T20:24:57.000Z,2016-09-26T20:24:57.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,906 4490,v1.0,,"All those things are looking good for a while, but they have no impact on their lifetime. There is no precise political with systematization or screening. There is not enough community who cares especially for young Malagasy. Insecurity, infrastructure and corruption are principal factors which still exist since long time and drag in deep water the majority of those young people. When I was asking them to give their thoughts, they say: "" We felt abandoned by the government, they only thinking about how to full they pockets. As we learned from school: ""I"" is going first and ""YOU"" is after, that’s how people in government are thinking. Our daily duty is to wake-up, go outside chilling with friends, and go back home at lunch time”.",/post/746,2016-09-26T20:24:43.000Z,2016-09-26T20:24:43.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,5 8964,v1.0,,"There are some good things in progress. Recently I met some people from Christian missionary called ADRA ""Adventist Development and Relief Agency""  using techniques to improve farming for those who have land or what to farming it was only a campaign. NGOs like USAID who have been here since 32 years to help Malagasy people to realize goals of development, recover from natural disaster like cyclones, health care like malnutrition, sponsoring on project used to be only for educational like ""youth and reproduction"",  ""Youth against HIV"". But it's only in the capital or on a regional campaign for few times and not long enough to be remembered by people. They are trying to give free training, help and support for young people in suburban areas but ... sometime with no success . Youth Volunteers like Peacecorps almost every year whose giving free teaching, help and give some supplies like pen and copy book, chalkboard  etc.. if they have something to give.",/post/746,2016-09-26T20:24:22.000Z,2016-09-26T20:24:22.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1207 8180,v1.0,,"After finishing your studies you need to line up behind millions of jobless for a job opportunity.  After investigation ; Many those young people struggle and move on the street working as a ""taxi phone"" mobile cheap call, bus driver, gold digger... any available job in general. Some get influenced by easy money called ""bizna"": it means selling anything, from a friend or relative, like cell phones, computers, tyres, cars. Those who have funds to run their business can invest into something short term or permanent like restaurants, jewelry, imports etc.",/post/746,2016-09-26T20:23:58.000Z,2016-09-26T20:23:58.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,1047 7108,v1.0,,"would like to share how complicated schooling and university education is in Madagascar, and how people are going about it,",/post/746,2016-09-26T20:20:10.000Z,2016-09-26T20:20:10.000Z,746,3323,AnnotatorStore::TextAnnotation,,,,,,,,,713,766 4933,v1.0,,"All those divisions are totally unnatural if you ask me, in fact it is beneficial for human species to mix as much as possible, greater mixture of genes leads naturally to better results and greater mixture of cultures/difference of experiences is of immense value.",/post/26012,2016-09-19T04:28:05.000Z,2016-09-19T04:28:05.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 11239,v1.0,,"I dont really have a flag above my head, i am a human and i believe all humans have equal value but it took me years to realize that and bear in mind i question everything, even my own actions, thoughts, feelings. So maybe travelling inwards might solve issues as well? Asking important questions to ourselves or others like: Why do i keep distance from this person? What is the origin of my fear, mistrust, why am i judgemental? Again, how does one accept the idea that he/she is wrong in some fundamental ways? Ego is an obstacle :).",/post/26012,2016-09-19T04:27:48.000Z,2016-09-19T04:27:48.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1773 10894,v1.0,,"Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common ""values"", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don't have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our ""benign attempts to civilise them""(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.",/post/26012,2016-09-19T04:27:32.000Z,2016-09-19T04:27:32.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1677 6978,v1.0,,"Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common ""values"", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don't have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our ""benign attempts to civilise them""(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.",/post/26012,2016-09-19T04:27:06.000Z,2016-09-19T04:27:06.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,729 5050,v1.0,,"Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common ""values"", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don't have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our ""benign attempts to civilise them""(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.",/post/26012,2016-09-19T04:27:01.000Z,2016-09-19T04:27:01.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,142 10407,v1.0,,"The only way to truly build bridges between communities is to  have them work together, eat together, talk and exchange knowledge about each other. (even then you might get an incredible reaction like ""hey Mohamed is such a nice guy...FOR a Morrocan"", so one stops regarding him as a foreigner but  he stays an exception, he is UNLIKE those others :).",/post/26012,2016-09-19T04:26:50.000Z,2016-09-19T04:26:50.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1540 9626,v1.0,,"The only way to truly build bridges between communities is to  have them work together, eat together, talk and exchange knowledge about each other. (even then you might get an incredible reaction like ""hey Mohamed is such a nice guy...FOR a Morrocan"", so one stops regarding him as a foreigner but  he stays an exception, he is UNLIKE those others :).",/post/26012,2016-09-19T04:26:43.000Z,2016-09-19T04:26:43.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1365 4932,v1.0,,"The only way to truly build bridges between communities is to  have them work together, eat together, talk and exchange knowledge about each other. (even then you might get an incredible reaction like ""hey Mohamed is such a nice guy...FOR a Morrocan"", so one stops regarding him as a foreigner but  he stays an exception, he is UNLIKE those others :).",/post/26012,2016-09-19T04:26:29.000Z,2016-09-19T04:26:29.000Z,26012,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 4931,v1.0,,".But it helps me escape the bubble I live in, inhabited by people that agree with each other. Though, I am still pretty far from understanding why they think what they think.",/post/24385,2016-09-19T04:26:02.000Z,2016-09-19T04:26:02.000Z,24385,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 6977,v1.0,,"I decided not to break a friendship when I saw a (rather distant) friend of mine was a supporter of a right wing extremist social group on facebook. I guess, like Alberto explains above, I was giving up on any possibility to change their mind. The fact of the matter is, and I've tested it before, that you can't beat emotional arguments with rationality. Honestly, that feels like a dead end.",/post/22652,2016-09-19T04:25:47.000Z,2016-09-19T04:25:47.000Z,22652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,729 9784,v1.0,,But maybe one still needs to at least make a case before deciding to tolerate attitudes around you that go deeply against your owns. Mea culpa.,/post/22652,2016-09-19T04:25:43.000Z,2016-09-19T04:25:43.000Z,22652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1410 4930,v1.0,,"We can only hope that the people bringing back the good stories will be more credible and cooler than those bringing back the bad ones. This way, we can win over more of the new generation – aim at cultural hegemony, in other words.",/post/21716,2016-09-19T04:25:24.000Z,2016-09-19T04:25:24.000Z,21716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 6976,v1.0,,People who believe in cultural purityafter the age of 18? I am afraid they are a lost cause. I do not recommend investing time in trying to change their mind. That's their loss: they are going to miss the music and the food and the laughter and the glorious diversity in Vuka!,/post/21716,2016-09-19T04:25:14.000Z,2016-09-19T04:25:14.000Z,21716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,729 10669,v1.0,,"We can only hope that the people bringing back the good stories will be more credible and cooler than those bringing back the bad ones. This way, we can win over more of the new generation – aim at cultural hegemony, in other words.",/post/21716,2016-09-19T04:25:00.000Z,2016-09-19T04:25:00.000Z,21716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1625 6975,v1.0,,"Well, your friend certainly got me wrongfooted. He thinks we should all keep separate to keep cultures pure, yet there he is, a catholic Slav in an Anglo-Celtic protestant country. He does not like the idea of blonde girls sleeping with black guys, but I am sure he, like most men of any shade, enjoys the sight of a pretty black woman. Very hard to argue on these basis.",/post/21716,2016-09-19T04:24:51.000Z,2016-09-19T04:24:51.000Z,21716,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,729 10668,v1.0,,"makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?",/post/19778,2016-09-19T04:24:37.000Z,2016-09-19T04:24:37.000Z,19778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1625 4929,v1.0,,"It is also a challenge to create this environment for meetings that would not feel like encountering something exotic and different due to some voyerist instincts - I used to work in italy for an NGO and we organised human libraries there, but even though it is some sort of step for people to have a chat with migrants from Ghana and Bangladesh, to meet transvestites and gay community members, it felt a little bit like a show. These people run into each other on the streets, you see them every day - why so many of us decide not to interact, discover and understand them? It's a puzzle.",/post/19778,2016-09-19T04:24:15.000Z,2016-09-19T04:24:15.000Z,19778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 7979,v1.0,,", only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?",/post/19778,2016-09-19T04:24:00.000Z,2016-09-19T04:24:00.000Z,19778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,987 9783,v1.0,,"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?",/post/19778,2016-09-19T04:23:44.000Z,2016-09-19T04:23:44.000Z,19778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1410 8709,v1.0,,"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?",/post/19778,2016-09-19T04:23:35.000Z,2016-09-19T04:23:35.000Z,19778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1150 6974,v1.0,,"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?",/post/19778,2016-09-19T04:23:30.000Z,2016-09-19T04:23:30.000Z,19778,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,729 9321,v1.0,,"And so, with a small group of Milanese from all over the world we decided to organize a party to celebrate the diversity of our country and our city. We called it Vuka, which means “Arise!” or “Awaken!” in the Zulu language; and we are going to throw it tomorrow, Tuesday March 22nd at 10 p.m. sharp, at Casa del Pane di Corso di Porta Venezia 63 (map). We designed it as a club night for dancing to the sound of the most cutting-edge clubs of Lagos, Karachi and Barletta [a small town in the south of Italy]; and where the Milanese of any origin are welcome and respected. Join Medhin (Milano–Asmara), Nadia (Stockholm), Dan (Johannesburg), Davide (Verona-Sydney-Osaka) and myself to dance away to the world’s beat in a space where everyone’s welcome, and our many differences of living out Milano power up the party.",/post/14055,2016-09-19T04:23:14.000Z,2016-09-19T04:23:14.000Z,14055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1285 4928,v1.0,,"And so, with a small group of Milanese from all over the world we decided to organize a party to celebrate the diversity of our country and our city. We called it Vuka, which means “Arise!” or “Awaken!” in the Zulu language; and we are going to throw it tomorrow, Tuesday March 22nd at 10 p.m. sharp, at Casa del Pane di Corso di Porta Venezia 63 (map). We designed it as a club night for dancing to the sound of the most cutting-edge clubs of Lagos, Karachi and Barletta [a small town in the south of Italy]; and where the Milanese of any origin are welcome and respected. Join Medhin (Milano–Asmara), Nadia (Stockholm), Dan (Johannesburg), Davide (Verona-Sydney-Osaka) and myself to dance away to the world’s beat in a space where everyone’s welcome, and our many differences of living out Milano power up the party.",/post/14055,2016-09-19T04:23:10.000Z,2016-09-19T04:23:10.000Z,14055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 4927,v1.0,,"This was to let people know that (1) no matter where they came from, they would not be the only foreign-looking people in the room, and (2) no, this was not a party of the Eritrean community, or the Peruvian community; it was a party of the Milanese community, just some Milanese happened to be of Eritrean or Peruvian background.",/post/14055,2016-09-19T04:22:57.000Z,2016-09-19T04:22:57.000Z,14055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,123 7970,v1.0,,"Years ago, I was living in Milan. I got frustrated because, though people from every corner of the world lived in the city side by side with me, almost all of my friends were white Italians like myself. WTF?",/post/14055,2016-09-19T04:20:42.000Z,2016-09-19T04:20:42.000Z,14055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,985 9782,v1.0,,"This, for me, is a really difficult design challenge.",/post/14055,2016-09-19T04:20:35.000Z,2016-09-19T04:20:35.000Z,14055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1410 7015,v1.0,,"Years ago, I was living in Milan. I got frustrated because, though people from every corner of the world lived in the city side by side with me, almost all of my friends were white Italians like myself. WTF?",/post/14055,2016-09-19T04:20:27.000Z,2016-09-19T04:20:27.000Z,14055,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,732 8963,v1.0,,"Yes, I think that is why we started using the term ""newcomers"" in our group as well when we first heard about it and you are absolutely right, that some of those ""newcomers"" are already having strong cultural claims to a space. It was during the interviews we did when we first came along this paradox. I will put up another post on our complete research development and include this observation there as well. Thank you for your help!",/post/13130,2016-09-19T04:19:55.000Z,2016-09-19T04:19:55.000Z,13130,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1206 8962,v1.0,,"@Luisa, just a quick thought: maybe Welcome Dinner is more popular with locals than newcomers because of the way the team is configured - mostly locals I'm guessing? If ""newcomers"" (generic term because newcomers might have been around for some time now!) were actually part of the design and the project team they'd have new insights into how more diverse communities can be engaged. This is exactly what we're looking at with OpenCare - novel ways of improving promising projects out there, even if these new ways are just insights or if it means borrowing ideas from different projects faring better already.",/post/12157,2016-09-19T04:19:41.000Z,2016-09-19T04:19:41.000Z,12157,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1206 8961,v1.0,,"@Noemi yes, I think you are right! It would make total sense. We had a guest from HiMate last week at university. I think they build up their platform being such a diverse group from the beginning on. It is a free voucher platform for refugees, similar to Groupon. Maybe interesting for you? Nadia was at the meeting as well. About the indeed generic term ""newcomers"", do you have any suggestion what else to use?",/post/12739,2016-09-19T04:19:31.000Z,2016-09-19T04:19:31.000Z,12739,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1206 7969,v1.0,,"Actually ""newcomers"" is the most generic, broad enough and also non-offensive term we came up with for this OpenCare challenge. It turns out that most of us have fit that category at some time in our lives. I only wanted to point out that projects looking at integration of sorts might need to acknowledge that those who are perceived as newcomers can already have strong cultural claims to a space because they are already shaping it e.g. working migrants, or foreign students settling to a space.",/post/13009,2016-09-19T04:19:21.000Z,2016-09-19T04:19:21.000Z,13009,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,985 8960,v1.0,,"Actually ""newcomers"" is the most generic, broad enough and also non-offensive term we came up with for this OpenCare challenge. It turns out that most of us have fit that category at some time in our lives. I only wanted to point out that projects looking at integration of sorts might need to acknowledge that those who are perceived as newcomers can already have strong cultural claims to a space because they are already shaping it e.g. working migrants, or foreign students settling to a space.",/post/13009,2016-09-19T04:19:14.000Z,2016-09-19T04:19:14.000Z,13009,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1206 7968,v1.0,,"@Noemi yes, I think you are right! It would make total sense. We had a guest from HiMate last week at university. I think they build up their platform being such a diverse group from the beginning on. It is a free voucher platform for refugees, similar to Groupon. Maybe interesting for you? Nadia was at the meeting as well. About the indeed generic term ""newcomers"", do you have any suggestion what else to use?",/post/12739,2016-09-19T04:18:59.000Z,2016-09-19T04:18:59.000Z,12739,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,985 7014,v1.0,,"@Noemi yes, I think you are right! It would make total sense. We had a guest from HiMate last week at university. I think they build up their platform being such a diverse group from the beginning on. It is a free voucher platform for refugees, similar to Groupon. Maybe interesting for you? Nadia was at the meeting as well. About the indeed generic term ""newcomers"", do you have any suggestion what else to use?",/post/12739,2016-09-19T04:18:50.000Z,2016-09-19T04:18:50.000Z,12739,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,732 7967,v1.0,,"If ""newcomers"" (generic term because newcomers might have been around for some time now!) were actually part of the design and the project team they'd have new insights into how more diverse communities can be engaged. This is exactly what we're looking at with OpenCare - novel ways of improving promising projects out there, even if these new ways are just insights or if it means borrowing ideas from different projects faring better already.",/post/12157,2016-09-19T04:18:38.000Z,2016-09-19T04:18:38.000Z,12157,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,985 9277,v1.0,,"If ""newcomers"" (generic term because newcomers might have been around for some time now!) were actually part of the design and the project team they'd have new insights into how more diverse communities can be engaged. This is exactly what we're looking at with OpenCare - novel ways of improving promising projects out there, even if these new ways are just insights or if it means borrowing ideas from different projects faring better already.",/post/12157,2016-09-19T04:18:21.000Z,2016-09-19T04:18:21.000Z,12157,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1283 9781,v1.0,,"About your practical experience I have pretty much experienced the same thing so far. For me as well, it has been mostly about winning arguments with people I am closed to. It often works by sharing good stories I have experienced.",/post/12132,2016-09-19T04:17:57.000Z,2016-09-19T04:17:57.000Z,12132,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1410 10667,v1.0,,"About your practical experience I have pretty much experienced the same thing so far. For me as well, it has been mostly about winning arguments with people I am closed to. It often works by sharing good stories I have experienced.",/post/12132,2016-09-19T04:17:47.000Z,2016-09-19T04:17:47.000Z,12132,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1625 9780,v1.0,,"In those talks I found out that it is a lot about missing experiences, missing examples. How to feel empathy? Already being told some concrete stories seemed to help a lot. If one has for example never travelled far, not experienced a lot of different cultures, he or she might be missing positive experiences in terms of personal contact, respectively any experiences at all. How can those experiences be created? How can they happen without being forced?",/post/652,2016-09-19T04:17:27.000Z,2016-09-19T04:17:27.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1410 11238,v1.0,,"While travelling we often tend to be more open or we rather take the time to get to know strangers than in our everyday lifes? What is it, that creates that different atmosphere? Can we trigger it at home as well?",/post/652,2016-09-19T04:17:17.000Z,2016-09-19T04:17:17.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1773 9779,v1.0,,"For me, the test is winning arguments with family and close friends whose opinions are a little far off from mine. What is your practical experience?",/post/9719,2016-09-19T04:16:59.000Z,2016-09-19T04:16:59.000Z,9719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1410 8708,v1.0,,"I'm Noemi, and like you I was disappointed at the lack of empathy people around manifest when it comes to displaced populations.",/post/9719,2016-09-19T04:16:30.000Z,2016-09-19T04:16:30.000Z,9719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1150 7209,v1.0,,"I'm Noemi, and like you I was disappointed at the lack of empathy people around manifest when it comes to displaced populations.",/post/9719,2016-09-19T04:16:23.000Z,2016-09-19T04:16:23.000Z,9719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,781 4968,v1.0,,Does it need a connector to bring locals and migrants together? Another person? How can we create encounters which are based on sympathy and mutual exchange?,/post/652,2016-09-19T04:16:11.000Z,2016-09-19T04:16:11.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,126 9945,v1.0,,"If one has for example never travelled far, not experienced a lot of different cultures, he or she might be missing positive experiences in terms of personal contact, respectively any experiences at all. How can those experiences be created? How can they happen without being forced?",/post/652,2016-09-19T04:15:49.000Z,2016-09-19T04:15:49.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1445 7208,v1.0,,"In those talks I found out that it is a lot about missing experiences, missing examples. How to feel empathy? Already being told some concrete stories seemed to help a lot. If one has for example never travelled far, not experienced a lot of different cultures, he or she might be missing positive experiences in terms of personal contact, respectively any experiences at all. How can those experiences be created? How can they happen without being forced?",/post/652,2016-09-19T04:15:38.000Z,2016-09-19T04:15:38.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,781 10666,v1.0,,"In those talks I found out that it is a lot about missing experiences, missing examples. How to feel empathy? Already being told some concrete stories seemed to help a lot. If one has for example never travelled far, not experienced a lot of different cultures, he or she might be missing positive experiences in terms of personal contact, respectively any experiences at all. How can those experiences be created? How can they happen without being forced?",/post/652,2016-09-19T04:15:32.000Z,2016-09-19T04:15:32.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1625 8707,v1.0,,"Especially when talking to the older people in my circle of friends I quite often realised a huge fear or distrust of the unkown foreign when it comes to the so-called refugee debate. Even though these people are normally very reflected, very human behaving people, who care for eachother, who agree that every human being has the same right to live. How can one explain this contradiction? Theoretical constructs vs. practical experiences might play a huge role. In those talks I found out that it is a lot about missing experiences, missing examples. How to feel empathy? Already being told some concrete stories seemed to help a lot. If one has for example never travelled far, not experienced a lot of different cultures, he or she might be missing positive experiences in terms of personal contact, respectively any experiences at all. How can those experiences be created? How can they happen without being forced? While travelling we often tend to be more open or we rather take the time to get to know strangers than in our everyday lifes? What is it, that creates that different atmosphere? Can we trigger it at home as well? Does it need a connector to bring locals and migrants together? Another person? How can we create encounters which are based on sympathy and mutual exchange?",/post/652,2016-09-19T04:15:16.000Z,2016-09-19T04:15:16.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,1150 7398,v1.0,,"Especially when talking to the older people in my circle of friends I quite often realised a huge fear or distrust of the unkown foreign when it comes to the so-called refugee debate. Even though these people are normally very reflected, very human behaving people, who care for eachother, who agree that every human being has the same right to live. How can one explain this contradiction? Theoretical constructs vs. practical experiences might play a huge role.",/post/652,2016-09-19T04:15:03.000Z,2016-09-19T04:15:03.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,829 6973,v1.0,,"Especially when talking to the older people in my circle of friends I quite often realised a huge fear or distrust of the unkown foreign when it comes to the so-called refugee debate. Even though these people are normally very reflected, very human behaving people, who care for eachother, who agree that every human being has the same right to live. How can one explain this contradiction? Theoretical constructs vs. practical experiences might play a huge role.",/post/652,2016-09-19T04:14:54.000Z,2016-09-19T04:14:54.000Z,652,3323,AnnotatorStore::TextAnnotation,,,,,,,,,619,729 5794,v1.0,,We need to be working together and help each other. thats actually the only way to get out of this fucked up World.,/post/651,2016-09-19T04:11:42.000Z,2016-09-19T04:11:42.000Z,651,3323,AnnotatorStore::TextAnnotation,,,,,,,,,618,377 5045,v1.0,,caring doesn’t only mean to give but also to be able to receive. to connect stay in touch.,/post/651,2016-09-19T04:11:24.000Z,2016-09-19T04:11:24.000Z,651,3323,AnnotatorStore::TextAnnotation,,,,,,,,,618,141 6456,v1.0,,"what can we as designers do? designing not only objects, but situations, society designing society. how can we create a community where everyone respects each other? helps each other?",/post/651,2016-09-19T04:11:13.000Z,2016-09-19T04:11:13.000Z,651,3323,AnnotatorStore::TextAnnotation,,,,,,,,,618,485 9944,v1.0,,what can we as designers do?,/post/651,2016-09-19T04:11:01.000Z,2016-09-19T04:11:01.000Z,651,3323,AnnotatorStore::TextAnnotation,,,,,,,,,618,1445 10531,v1.0,,"hat can we as designers do? designing not only objects, but situations, society designing society. how can we create a community where everyone respects each other? helps each other?",/post/651,2016-09-19T04:10:53.000Z,2016-09-19T04:10:53.000Z,651,3323,AnnotatorStore::TextAnnotation,,,,,,,,,618,1571 4679,v1.0,,"It.s a function of just what you say: isolation, feeling overwhelmed and especially embarassed. Subjecting oneself to embarrassment is not something today.s societies encourage.",/post/14454,2016-09-19T04:06:05.000Z,2016-09-19T04:06:05.000Z,14454,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,54 5029,v1.0,,"The expression ""taking care of something"" as a German is a rather rational, dry and goal-oriented task. It somehow misses the core of its literal meaning which is a soft, emotional and gentle interaction. So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back? We discussed the question of how can something seemingly burden full turn into a joyful engagement. How can we overcome this cognitive dissonance and what is that undefined obstacle that holds us ​back. Because it's not laziness. It's not carelessness. Maybe it's a combination of helplessness (of where to start, what to focus), being overwhelmed (by one's own life and tasks) and alone (with an ambition too big for one person). And maybe the answer of today is community.",/post/650,2016-09-19T04:05:36.000Z,2016-09-19T04:05:36.000Z,650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,139 5793,v1.0,,"The expression ""taking care of something"" as a German is a rather rational, dry and goal-oriented task. It somehow misses the core of its literal meaning which is a soft, emotional and gentle interaction. So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back? We discussed the question of how can something seemingly burden full turn into a joyful engagement. How can we overcome this cognitive dissonance and what is that undefined obstacle that holds us ​back. Because it's not laziness. It's not carelessness. Maybe it's a combination of helplessness (of where to start, what to focus), being overwhelmed (by one's own life and tasks) and alone (with an ambition too big for one person). And maybe the answer of today is community.",/post/650,2016-09-19T04:04:58.000Z,2016-09-19T04:04:58.000Z,650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,377 9943,v1.0,,"So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back?",/post/650,2016-09-19T04:04:44.000Z,2016-09-19T04:04:44.000Z,650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,1445 6399,v1.0,,"The expression ""taking care of something"" as a German is a rather rational, dry and goal-oriented task. It somehow misses the core of its literal meaning which is a soft, emotional and gentle interaction. So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back? We discussed the question of how can something seemingly burden full turn into a joyful engagement. How can we overcome this cognitive dissonance and what is that undefined obstacle that holds us ​back. Because it's not laziness. It's not carelessness. Maybe it's a combination of helplessness (of where to start, what to focus), being overwhelmed (by one's own life and tasks) and alone (with an ambition too big for one person). And maybe the answer of today is community.",/post/650,2016-09-19T04:04:30.000Z,2016-09-19T04:04:30.000Z,650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,473 4547,v1.0,,"Yes, talking is easy, acting takes effort. It's the same with design, having a nice idea over a glass of wine in the evening? No big deal. But bringing it into life, really doing it and going against all obstacles is a totally different thing. It needs energy, dedication, belief, trust, confidence, help. You need to CARE about it enough to put it into action. So that's one aspect of care. That something/someone has enough value or meaning for somebody to be considered with putting real physical action into it. Usually this is the fact when we are affected personally. When it's a personal thing. When we are involved. When we are touched. When we are concerned.",/post/650,2016-09-19T04:04:15.000Z,2016-09-19T04:04:15.000Z,650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,16 6398,v1.0,,"What is care? To start with such a question a lot comes to mind. Especially after this intense first day of our project kick-off at Sauen, with all these great thoughts, ideas and reflections about what it means to be a human being. I am personally fascinated by the cognitive dissonance I find myself stuck in. This applies to so many aspects of my life.",/post/650,2016-09-19T04:03:59.000Z,2016-09-19T04:03:59.000Z,650,3323,AnnotatorStore::TextAnnotation,,,,,,,,,617,473 9729,v1.0,,"I would like to see politicians say how they care for themselves, I would like to see them living a lifestyle which shows people how to live a healthy life.”",/post/494,2016-09-19T04:02:50.000Z,2016-09-19T04:02:50.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1392 5049,v1.0,,"This question where german politicians are saying we have to take care of our people, and not just give everything away. Same thing at a different scale",/post/494,2016-09-19T04:02:42.000Z,2016-09-19T04:02:42.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,142 8824,v1.0,,Monetization and how it affects our view on people around us: that we cannot be more intuitive because we think about how we can be most effective,/post/494,2016-09-19T04:02:11.000Z,2016-09-19T04:02:11.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1164 5044,v1.0,,Monetization and how it affects our view on people around us: that we cannot be more intuitive because we think about how we can be most effective.,/post/494,2016-09-19T04:02:02.000Z,2016-09-19T04:02:02.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,141 10260,v1.0,,er. Has not only to do with caring about other people and also for yourself. Is it important to care for yourself first or the other way around? It’s a challenge to care for huge number of people at once,/post/494,2016-09-19T04:01:38.000Z,2016-09-19T04:01:38.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1499 5043,v1.0,,"It’s not a one-way street,",/post/494,2016-09-19T04:01:22.000Z,2016-09-19T04:01:22.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,141 5070,v1.0,,"We came to conclusion that care, giving and receiving, is a basic human need and a human right. It’s not a one-way street, but we need to talk about care as a devalued thing in our society. There are people who really love to give are and do not have the right to get something for it. We thought about how to make people who give care more visible. How can we provide some kind of reward or value for the volunteers. And of course we went in the feminist direction but I think it is a really important thing to value care as a huge thing in society.”",/post/494,2016-09-19T04:01:05.000Z,2016-09-19T04:01:05.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,146 11364,v1.0,,"We came to conclusion that care, giving and receiving, is a basic human need and a human right. It’s not a one-way street, but we need to talk about care as a devalued thing in our society. There are people who really love to give are and do not have the right to get something for it. We thought about how to make people who give care more visible. How can we provide some kind of reward or value for the volunteers. And of course we went in the feminist direction but I think it is a really important thing to value care as a huge thing in society.”",/post/494,2016-09-19T04:00:49.000Z,2016-09-19T04:00:49.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1819 11209,v1.0,,"“It was really intersting hearing about your experiences and the difficulties you had. Very interesting to talk from a personal perspectives and the fears you have.” “We discussed the five questions we were given. What I noticed te most that care is a very difficult term. We couldn;t find a term for care in german. This is one part that makes the discussion very interesting but also very difficult. A whole lot of people are going in a direction towards the refugee topic, that seems to be very close to people. I heard about a book from two journalists about political language: some words and terms that are used are producing certain realities. When you use some words regularly especially in the media, it becomes a reality and then there is no alternative. Translating care into a german word, and speaking about it means very different thing.”  “We also tr",/post/494,2016-09-19T04:00:06.000Z,2016-09-19T04:00:06.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1769 10469,v1.0,,“We were not talking about the differences between student areas. It was interesting seeing how there was a lot of variation in how interviews were conducted in the different groups as well as within the group were different. I think what I found was that we had very different styles of leading interviews and how different results. I realised I am used to lead an interview and how it has become my only way for me. And it was really interesting to see there are different kinds of ways to lead an interview. I learned how to lead interviews in design thinking...you are asking for stories and ask 5 times why. It’s completely differnt thing when trying to understand a person. It was a very good experience.,/post/494,2016-09-19T03:59:37.000Z,2016-09-19T03:59:37.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1557 8706,v1.0,,"“We talked about the relationships that we have with people from Syria that we know and the experiences we have with them. We try to know why German people are so scared of foreigners and why the German people are sometimes so closed also in a friendship. For example my first time was not so easy to make friends here, german people are really closed the first time..they are not so open to stangers.”",/post/494,2016-09-19T03:59:28.000Z,2016-09-19T03:59:28.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1150 5500,v1.0,,"“We talked about the relationships that we have with people from Syria that we know and the experiences we have with them. We try to know why German people are so scared of foreigners and why the German people are sometimes so closed also in a friendship. For example my first time was not so easy to make friends here, german people are really closed the first time..they are not so open to stangers.”",/post/494,2016-09-19T03:59:20.000Z,2016-09-19T03:59:20.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,320 6972,v1.0,,"“We talked about the relationships that we have with people from Syria that we know and the experiences we have with them. We try to know why German people are so scared of foreigners and why the German people are sometimes so closed also in a friendship. For example my first time was not so easy to make friends here, german people are really closed the first time..they are not so open to stangers.”",/post/494,2016-09-19T03:59:15.000Z,2016-09-19T03:59:15.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,729 5042,v1.0,,"And apart from that my main insight is that care is always interactional, its not a one way street. The system of capitalism is making it a one way street because there s wlays money in and something out. It’s not evolutionary.”",/post/494,2016-09-19T03:59:05.000Z,2016-09-19T03:59:05.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,141 8912,v1.0,,"And apart from that my main insight is that care is always interactional, its not a one way street. The system of capitalism is making it a one way street because there s wlays money in and something out. It’s not evolutionary.”",/post/494,2016-09-19T03:58:48.000Z,2016-09-19T03:58:48.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1195 10167,v1.0,,"“We were not talking about the differences between student areas. It was interesting seeing how there was a lot of variation in how interviews were conducted in the different groups as well as within the group were different. I think what I found was that we had very different styles of leading interviews and how different results. I realised I am used to lead an interview and how it has become my only way for me. And it was really interesting to see there are different kinds of ways to lead an interview. I learned how to lead interviews in design thinking...you are asking for stories and ask 5 times why. It’s completely differnt thing when trying to understand a person. It was a very good experience. And apart from that my main insight is that care is always interactional, its not a one way street. The system of capitalism is making it a one way street because there s wlays money in and something out. It’s not evolutionary.”",/post/494,2016-09-19T03:58:15.000Z,2016-09-19T03:58:15.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1477 10166,v1.0,,“We were still thinking about what is th goal of being a designer and what is a design process...what is the difference to art or to management/managers job? We came to the point that an artist is focusing on showing problem and designer is trying to find solution and manager is more focused on company’s project and not so much on helping people. It’s a beginning of a discussion.”,/post/494,2016-09-19T03:58:04.000Z,2016-09-19T03:58:04.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1477 7488,v1.0,,“For me it was very interesting to hear what makes something seem foreign and why we feel home. What makes this happen?”,/post/494,2016-09-19T03:57:45.000Z,2016-09-19T03:57:45.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,863 9342,v1.0,,"“I think it is always important to find new symbiotic relationships between people. One Project I’ve come across is one in which there were two groups: one group who wanted to learn English but didnt have connections to do so, and the other group was old lonely group from America. These two groups were able to talk to each other via skype. The Old people had the joy of talking to somebody who was interested in learning. And the young people learned English. It’s very nice to see people caring about each other that way.”",/post/494,2016-09-19T03:57:24.000Z,2016-09-19T03:57:24.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1294 10468,v1.0,,"“I think it is always important to find new symbiotic relationships between people. One Project I’ve come across is one in which there were two groups: one group who wanted to learn English but didnt have connections to do so, and the other group was old lonely group from America. These two groups were able to talk to each other via skype. The Old people had the joy of talking to somebody who was interested in learning. And the young people learned English. It’s very nice to see people caring about each other that way.”",/post/494,2016-09-19T03:57:15.000Z,2016-09-19T03:57:15.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1557 5069,v1.0,,"And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but  to help others and how this is deeply human at its core.”",/post/494,2016-09-19T03:57:01.000Z,2016-09-19T03:57:01.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,146 6971,v1.0,,"Not many of us know how it is to lead a refugee’s life. How many of us have been discriminated against? For me I was born in Germany, but for a moment I thought well all the refugee circus that is going on has nothing to do with me and I thought it is the responsibility of larger organisations like NGos and the Government to deal with...I asked myself what capacity do I realistically have to help. Then I realised that as someone born in Germany, I walk around the street I hear people discriminating against Asians. And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but  to help others and how this is deeply human at its core.”",/post/494,2016-09-19T03:56:49.000Z,2016-09-19T03:56:49.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,729 4967,v1.0,,"ate. Not many of us know how it is to lead a refugee’s life. How many of us have been discriminated against? For me I was born in Germany, but for a moment I thought well all the refugee circus that is going on has nothing to do with me and I thought it is the responsibility of larger organisations like NGos and the Government to deal with...I asked myself what capacity do I realistically have to help. Then I realised that as someone born in Germany, I walk around the street I hear people discriminating against Asians. And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but  to help others and how this is deeply human at its core.”",/post/494,2016-09-19T03:56:35.000Z,2016-09-19T03:56:35.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,126 11206,v1.0,,"“We were talking about different languages. To map out what we can as GWK and product designers (UDK) and to figure out what is the responsibility towards what we are studying. Until now what designers were doing and what we were studying was just about making things beautiful. Are we even responsible towards building towards big visions the way  OpenCare is doing? As designers we are always looked upon in a very belittling way - as though we are not capable of contributing to the big issues. But I believe it is part of our responsibility as designers to do this work, because ideally we are focusing not on profiting from it but we can do it just to help. Everyone knows we should help, but no one really does it and people still have prejudices and discriminate. Not many of us know how it is to lead a refugee’s life. How many of us have been discriminated against? For me I was born in Germany, but for a moment I thought well all the refugee circus that is going on has nothing to do with me and I thought it is the responsibility of larger organisations like NGos and the Government to deal with...I asked myself what capacity do I realistically have to help. Then I realised that as someone born in Germany, I walk around the street I hear people discriminating against Asians. And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but  to help others and how this is deeply human at its core.”",/post/494,2016-09-19T03:56:21.000Z,2016-09-19T03:56:21.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1768 5594,v1.0,,"We talked about how younger people can be a connector, how it needs a connector...there are many of us who want to engage but don't because the connection is needed and doesn’t happen without being designed. When travelling connecting is very easy, but in your own town you rarely have deep conversations with people you don’t know. Openness as a mindset is very interesting to see how society is structured n our head. How this huge fear that comes out of nowhere. Media says you should have fear now, that the new is threatening. I love my Grandma but when it comes to this topic I think omg we should not even talk about this topic and I have no idea how to change things. I think it’s a lot of empathy, we had a huge fight...it was all about him not letting what’s happen...not wanting to feel it...keeping it theoretical. The next day there was a change of perspective. It’s also overwhelming for many people, related to make yourself vulnerable and allowing yourself to feel. It’s a very delicate and sensitive how to do this contact and get them in touch with their feelings.”",/post/494,2016-09-19T03:56:12.000Z,2016-09-19T03:56:12.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,348 11560,v1.0,,"We talked about how younger people can be a connector, how it needs a connector...there are many of us who want to engage but don't because the connection is needed and doesn’t happen without being designed. When travelling connecting is very easy, but in your own town you rarely have deep conversations with people you don’t know. Openness as a mindset is very interesting to see how society is structured n our head. How this huge fear that comes out of nowhere. Media says you should have fear now, that the new is threatening. I love my Grandma but when it comes to this topic I think omg we should not even talk about this topic and I have no idea how to change things. I think it’s a lot of empathy, we had a huge fight...it was all about him not letting what’s happen...not wanting to feel it...keeping it theoretical. The next day there was a change of perspective. It’s also overwhelming for many people, related to make yourself vulnerable and allowing yourself to feel. It’s a very delicate and sensitive how to do this contact and get them in touch with their feelings.”",/post/494,2016-09-19T03:55:51.000Z,2016-09-19T03:55:51.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1873 8705,v1.0,,"We had a discussion about “stranger danger”. Which I have recently been having with people from older generations. When it comes to refugee crisis , even people I know that normally would act very human and never put themselves above another suddenly are afraid when refugees come to the country. In part it is because of the lack of contact; they don’t come naturally to a place where exchange could happen in an uncontrived way. How could this be set up, or how could it happen? We talked about how younger people can be a connector, how it needs a connector...there are many of us who want to engage but don't because the connection is needed and doesn’t happen without being designed. When travelling connecting is very easy, but in your own town you rarely have deep conversations with people you don’t know. Openness as a mindset is very interesting to see how society is structured n our head. How this huge fear that comes out of nowhere. Media says you should have fear now, that the new is threatening. I love my Grandma but when it comes to this topic I think omg we should not even talk about this topic and I have no idea how to change things. I think it’s a lot of empathy, we had a huge fight...it was all about him not letting what’s happen...not wanting to feel it...keeping it theoretical. The next day there was a change of perspective. It’s also overwhelming for many people, related to make yourself vulnerable and allowing yourself to feel. It’s a very delicate and sensitive how to do this contact and get them in touch with their feelings.”",/post/494,2016-09-19T03:55:38.000Z,2016-09-19T03:55:38.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1150 10665,v1.0,,"“We talked about personal experiences. Because of this we came to many topics- like how it is to be a European or come from another continent. It was nice because we had an open chat with one another, so we had some long discussions. It was nice to hear about other people’s stories because sometimes you don’t talk about it for long, but when you do it for one hour and you have some perspectives on how to give care for refugees but also what it’s like to be a foreigner in Germany.”",/post/494,2016-09-19T03:55:18.000Z,2016-09-19T03:55:18.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1625 11205,v1.0,,"“We started talking about experiences and what think about care, or what we need for our self to be cared for or give care. I found that we had really different ways of talking or explaining. I had difficulties to say what I was thinking and they only understood me when I made examples. And they totally understood me. But when Nema started talking, she could really articulate herself without giving examples. It’s really interesting as a product designer.”",/post/494,2016-09-19T03:55:06.000Z,2016-09-19T03:55:06.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1768 8704,v1.0,,"“We were mostly talking about first time experience of meeting some guys from syria. How can we start meeting people on a high level and not relationship that we are giving, and they are receiving donations. That we are both receiving and giving care.”",/post/494,2016-09-19T03:54:55.000Z,2016-09-19T03:54:55.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1150 4966,v1.0,,"“We were mostly talking about first time experience of meeting some guys from syria. How can we start meeting people on a high level and not relationship that we are giving, and they are receiving donations. That we are both receiving and giving care.”",/post/494,2016-09-19T03:54:43.000Z,2016-09-19T03:54:43.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,126 8703,v1.0,,"“We were all answering the question of why we chose the different topics and why we chose them. Mine was about being on the move and the point that is for me very importan is the idea of doing something fo the first time and you have to cope, no matter if you have to do a job or ...you are always doing for the first time. Found a sory in newspaper about caregivers and they tried to set up school for nurses where they given puppets they have to be with for weeks before working with humans. Switch perspective. I found a flyer which was something like a manual for shopping in supermarket in the fifties..they were handing flyers out about how to behave and shop in he supermarket and now people are complaining about refugees not knowing  how to behave the first time...there is an arrogance... What is possible with products etc to switch perspective and lose embarrassment etc around doing something for the first time. People “misbehave” because. The first time I met a Syrian guy was during the refugee crisis, it was first time experience for both of us, no just him.”",/post/494,2016-09-19T03:54:33.000Z,2016-09-19T03:54:33.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1150 8911,v1.0,,"“We started off by talking about situations in our lives where we have given care, or seen other people receiving care. Who are those people who have taken on traditional care of caregiving? We quickly started talking about feminist issues and women being caregivers through history. We also talked about the rewards, how giving care is valued, if valued at all or you get financial remuneration…”",/post/494,2016-09-19T03:54:16.000Z,2016-09-19T03:54:16.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1195 5118,v1.0,,"“We started off by talking about situations in our lives where we have given care, or seen other people receiving care. Who are those people who have taken on traditional care of caregiving? We quickly started talking about feminist issues and women being caregivers through history. We also talked about the rewards, how giving care is valued, if valued at all or you get financial remuneration…”",/post/494,2016-09-19T03:54:11.000Z,2016-09-19T03:54:11.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,149 8702,v1.0,,"“ We started different no thinking about projects, but our own experiences being people on the move.  Being somewhere where you chose to go Being somewhere you didn't’ pick: job, being refugee,  being moved by parents...how it affects your mindset What is the difference between these two in terms of care on the move? One person was talking about being in china for job of her father to experience completely difft culture and not being free to decide to go there….vs choosing to move to a new city voluntarily in a city where many different cultures in Kreuzberg. Just getting to know different food and culture at a very young age and getting to know this in a playful way without much prejudice in your head”",/post/494,2016-09-19T03:54:04.000Z,2016-09-19T03:54:04.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1150 8910,v1.0,,"“We were discussing the questions on the wall- what care means on fundamental level to us. Under which conditions care is being granted in a community and what that means for us. When discussing integration of people into a group, the separation you make in the beginning affects the integration project...You say there is an external person who should adapt to the community itself, instead of thinking about creating something new from scratch out of the welcoming community and new individials. Especially when you talk about care...you always do the labelling that there is someone who needs help, and I am one to provide help. Maybe getting rid of these labels is important.",/post/494,2016-09-19T03:53:41.000Z,2016-09-19T03:53:41.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1195 9874,v1.0,,"When discussing integration of people into a group, the separation you make in the beginning affects the integration project...You say there is an external person who should adapt to the community itself, instead of thinking about creating something new from scratch out of the welcoming community and new individials. Especially when you talk about care...you always do the labelling that there is someone who needs help, and I am one to provide help. Maybe getting rid of these labels is important.",/post/494,2016-09-19T03:53:21.000Z,2016-09-19T03:53:21.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1436 4965,v1.0,,"Also we talked about how social relations to certain people are necessary for providing some kinds of care. And how to solve challenges of providing care for people we don’t already know. You touch people physically (as we did in the opening session today) and it changes relationship immediately e.g. free hugs in public spaces: This changes something very fast. Especially in regards to refugee topic….Before helping there should be a contact, a communication with people before offering help whether you know they need or not.”",/post/494,2016-09-19T03:53:03.000Z,2016-09-19T03:53:03.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,126 7908,v1.0,,"Also we talked about how social relations to certain people are necessary for providing some kinds of care. And how to solve challenges of providing care for people we don’t already know. You touch people physically (as we did in the opening session today) and it changes relationship immediately e.g. free hugs in public spaces: This changes something very fast. Especially in regards to refugee topic….Before helping there should be a contact, a communication with people before offering help whether you know they need or not.”",/post/494,2016-09-19T03:52:55.000Z,2016-09-19T03:52:55.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,967 11204,v1.0,,"It could be good to translate the language and vocabulary used by the OpenCare project into language easier to use for product designers. Designers are mostly visual, other disciplines less so. Some bridging of languages could be helpful.”",/post/494,2016-09-19T03:51:51.000Z,2016-09-19T03:51:51.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,1768 7013,v1.0,,"“It was a good experience, I liked meeting people from different backgrounds and the possibility for working together… Discovering what we each are good and not good at, and how they can fit together.  As well as what these different backgrounds creates as a perspective towards the project”",/post/494,2016-09-19T03:50:58.000Z,2016-09-19T03:50:58.000Z,494,3323,AnnotatorStore::TextAnnotation,,,,,,,,,461,732 4626,v1.0,,"I don't speak German so I used google translate to understand your post (English translation here). If I got it well, you have said wise words: we don't need to reach the care utopia with normalized approaches, but with trial and error. Are simulator workshops something to look into with more detail then? Any other tells or resources you know, do tell. that would be useful to OpenCare where we are supposed to look into promising ideas and prototype them - but prototyping in the ""lab"" so to speak could mean a due dilligence fail test (?) hm.",/post/9977,2016-09-19T03:46:38.000Z,2016-09-19T03:46:38.000Z,9977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,616,39 11254,v1.0,,"I don't speak German so I used google translate to understand your post (English translation here). If I got it well, you have said wise words: we don't need to reach the care utopia with normalized approaches, but with trial and error. Are simulator workshops something to look into with more detail then? Any other tells or resources you know, do tell. that would be useful to OpenCare where we are supposed to look into promising ideas and prototype them - but prototyping in the ""lab"" so to speak could mean a due dilligence fail test (?) hm.",/post/9977,2016-09-19T03:46:27.000Z,2016-09-19T03:46:27.000Z,9977,3323,AnnotatorStore::TextAnnotation,,,,,,,,,616,1777 8470,v1.0,,"So, probably, this is the best path to making all this become ""somethings serious"": invest on developing as many ways as possible for people to regenerate meaning and validation for each other.",/post/6719,2016-09-19T03:43:23.000Z,2016-09-19T03:43:23.000Z,6719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 10032,v1.0,,"It seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance, encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make – if only because the people in these experiences have two ways to get acceptance and validation, one through material achievement and one through the community.",/post/6719,2016-09-19T03:43:12.000Z,2016-09-19T03:43:12.000Z,6719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1446 9341,v1.0,,"It seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance, encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make – if only because the people in these experiences have two ways to get acceptance and validation, one through material achievement and one through the community.",/post/6719,2016-09-19T03:42:52.000Z,2016-09-19T03:42:52.000Z,6719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1294 5792,v1.0,,"It seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance, encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make – if only because the people in these experiences have two ways to get acceptance and validation, one through material achievement and one through the community.",/post/6719,2016-09-19T03:42:44.000Z,2016-09-19T03:42:44.000Z,6719,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,377 9942,v1.0,,"What would it take for this to coalesce into something serious? How far along is it already? (Is it further than we/others assume, due to its illegibility?) Where are the other examples that would build the case? What are the dangers? (For example, could the Unmonastery inadvertently become the workhouse of the 21st century?)",/post/493,2016-09-19T03:42:31.000Z,2016-09-19T03:42:31.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1445 8179,v1.0,,"Five years into the current crisis, the default future for much of Europe is a world of longer hours and lower wages. Economic regeneration as we have known it could hardly keep up with the social costs of industrial decline, even during periods of sustained growth. That economic collapse can lead into and become entrenched by a collapse of meaning is not just a post-Soviet story, but one that can be traced in many of Europe's former industrial regions, not least the areas of South Yorkshire where I once worked as a journalist.",/post/493,2016-09-19T03:42:22.000Z,2016-09-19T03:42:22.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 4489,v1.0,,"Five years into the current crisis, the default future for much of Europe is a world of longer hours and lower wages. Economic regeneration as we have known it could hardly keep up with the social costs of industrial decline, even during periods of sustained growth. That economic collapse can lead into and become entrenched by a collapse of meaning is not just a post-Soviet story, but one that can be traced in many of Europe's former industrial regions, not least the areas of South Yorkshire where I once worked as a journalist.",/post/493,2016-09-19T03:42:11.000Z,2016-09-19T03:42:11.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,5 8872,v1.0,,"House concerts: The music industry has been through huge disruption since the 1990s, not least as a result of the rise of filesharing. The solo bass player Steve Lawson is an example of an independent musician who has spent his career developing new models for making a living and documenting the realities of this on his blog. He sells downloads of his albums on a pay-what-you-want basis and makes ‘house concert’ tours on which he plays in the front rooms of fans, many of whom have first met him online. Reading his accounts of this, two things are clear: first, that these models, drawing on the strengths of networked technologies, allow for a far more meaningful relationship with his audience than was possible in the music industry of the pre-Napster era; and, second, that house concerts also make touring economically viable for independent musicians in a way that was harder when playing traditional venues. Are there other areas in which socially-embedded grassroots economies can thrive where high-overhead conventional economies struggle? (For another take on the potential of low-overhead economic models, see Kevin Carson’s The Homebrew Industrial Revolution.)",/post/493,2016-09-19T03:41:42.000Z,2016-09-19T03:41:42.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1182 4488,v1.0,,Directional: What do I get out of bed for in the morning? And where do I see myself in the future?,/post/493,2016-09-19T03:41:11.000Z,2016-09-19T03:41:11.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,5 8178,v1.0,,"Those who find it difficult to access the labour market are also likely to find answering these questions more difficult. The stories shared on the Edgeryders platform during 2011-12 illustrate the variety of ways in which young people find their access the labour market limited: not only through unemployment, but underemployment, casualisation and the prevalence of short-term contracts, the increasing cost of education in certain countries, the role of unpaid internships as a path to accessing certain industries. Where skills and qualifications have been acquired through formal education, many find themselves unable to secure work that makes use of these; where skills are acquired informally, the challenge is to represent these effectively to potential employers. Above all, the situation is defined by the interaction between two major processes: a long-term change in the structure of European labour markets, offering new entrants a poorer deal than had been the case for their parents’ generation, has been exacerbated by the effects of the economic crisis that began in 2008.",/post/493,2016-09-19T03:40:58.000Z,2016-09-19T03:40:58.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 4487,v1.0,,"Four years ago, in ‘The Future of Unemployment’, I suggested that it might be helpful to distinguish three types of need which, broadly speaking, we have looked to employment to provide. I want to return to this model as a way of structuring a search for examples of effective action on the level of meaning. Departing slightly from the original terms, I would summarise these types of need as follows:",/post/493,2016-09-19T03:40:48.000Z,2016-09-19T03:40:48.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,5 4486,v1.0,,"The figure of the ‘graduate with no future’, identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov’s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason’s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.",/post/493,2016-09-19T03:40:12.000Z,2016-09-19T03:40:12.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,5 7267,v1.0,,"Europe is not going through a Soviet-style collapse. (Or not yet: a report from UBS Investment Research in September 2011 estimated the costs of a break-up of the Eurozone at 40-50% of weaker countries’ GDP in the first year and 20-25% of the GDP of countries like Germany. For comparison, the total fall in GDP during the break-up of the USSR is estimated at 45%, spread over the years from 1989 to 1998.",/post/493,2016-09-19T03:40:04.000Z,2016-09-19T03:40:04.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,794 8177,v1.0,,"The point I want to draw from Orlov, however, is that there is a powerful and complex interrelation between how we make a living and how we make sense of our lives. The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?",/post/493,2016-09-19T03:39:51.000Z,2016-09-19T03:39:51.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 8469,v1.0,,"The point I want to draw from Orlov, however, is that there is a powerful and complex interrelation between how we make a living and how we make sense of our lives. The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?",/post/493,2016-09-19T03:39:42.000Z,2016-09-19T03:39:42.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 8176,v1.0,,"The spike in mortality that accompanied the fall of the Soviet Union has few parallels in history. Between 1987 and 1994, life expectancy dropped from 70 to 64, and the group whose likelihood of dying increased most sharply was, indeed, working age men. In other words, despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.",/post/493,2016-09-19T03:39:23.000Z,2016-09-19T03:39:23.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 8468,v1.0,,"The spike in mortality that accompanied the fall of the Soviet Union has few parallels in history. Between 1987 and 1994, life expectancy dropped from 70 to 64, and the group whose likelihood of dying increased most sharply was, indeed, working age men. In other words, despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.",/post/493,2016-09-19T03:38:45.000Z,2016-09-19T03:38:45.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 6152,v1.0,,Some case studies showcasing the benefits of shared living.,/post/14141,2016-09-18T20:38:57.000Z,2016-09-18T20:38:57.000Z,14141,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,437 6151,v1.0,,"But in the long run, the deal is that you have to pull your weight. Maybe in the future we will have become so attached that we will change the deal. Who knows? Certainly this setup gives us a couple of shots before we have to give up completely. For example, we could sub-rent the extra room, and take the additional income from everyone's rent. Maybe the reduced privacy would be a sacrifice worth making to keep each other close, already now. Depends who you ask, I guess",/post/10701,2016-09-18T20:38:49.000Z,2016-09-18T20:38:49.000Z,10701,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,437 6150,v1.0,,"It seems like your group has found just the right balance between couple intimacy and social sharing of the space, which is something that would scare many of us grownups.",/post/8933,2016-09-18T20:38:27.000Z,2016-09-18T20:38:27.000Z,8933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,437 4599,v1.0,,"something about growing mature that makes one more and more into their own ways, and less willing to take on 'adventurous' lifestyles.",/post/8933,2016-09-18T20:38:11.000Z,2016-09-18T20:38:11.000Z,8933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,28 9563,v1.0,,"Do you think this setup can work if not all of you were middle class (as precarious or as unstable as middle class can be)? If someone joins but they soon fall off because of too low earnings, will the rest be able to catch them?",/post/8933,2016-09-18T20:37:56.000Z,2016-09-18T20:37:56.000Z,8933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,1345 9625,v1.0,,"But there is more to co-habitation than practicality. Kasia and Pierre are lovely people: and, crucially, they are different people from Nadia and myself. We live out the city in different ways. We have different takes on almost everything, from French politics to Belgian beer. Comparing notes with them is always interesting, and I really value their insights and wisdom. Not that we spend all that much time together. I think our co-habitation unfolded in the right sequence: we started by a default attitude of rigorous mutual respect of each other's privacy and spaces. Then, over time, we grew closer, started to share the occasional meal, the occasional outing; we met each other's friends and families, lovely people to the last one. Guess what: we have built a sort of familial-like arrangement in a foreign city, among people who were originally complete strangers to one another.",/post/648,2016-09-18T20:37:16.000Z,2016-09-18T20:37:16.000Z,648,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,1365 6149,v1.0,,"Four years ago, as we were planning our move to Brussels, Nadia and I decided to look for flatmates. Most of our friends and family members were rather puzzled: not many couples decide to share their apartment, though they can afford not to. We, however, thought it completely logical. Nadia is Swedish and I am Italian: at the time we lived in Strasbourg, France. That made us a migrant nuclear family, completely cut off from the network of emotional and material support that our friends and families of origin could offer. We were simply too isolated in our Strasbourg apartment, nice though it was; and we decided to try something different. So, we rented a much bigger apartment than we needed and asked the Internet for someone to share it with. Four years on, we think the experiment worked. For the last three years we have been living with Kasia and Pierre, a young couple of expatriates (Kasia is Polish, Pierre French). We really enjoy the co-habitation: the home feels more animated, and not a day goes by that we don't chat at least a little bit, over coffee or breakfast. We enjoy the big, airy living room overlooking the city. And, frankly, we appreciate that our lifestyle is really good value for money: thanks to the economies of scale implicit in family life, we pay a reasonable rent for a really nice space. Along the way, we discovered that what makes our living together so enjoyable is that we are so different from each other. We come from four different countries; we are of different ages (Pierre, the youngest, is 19 years younger than me, the oldest); we have very different jobs (Kasia is a dental nurse, Pierre is the manager of a fashion boutique, whereas Nadia and I both belong to the ""what is it that you do, again?"" tribe); Nadia and I travel a lot, whereas Kasia and Pierre tend to be in town most of the time. This works well on many levels. On a purely practical level, when we travel we love the thought that the home is not empty, and in the event of some misfortune (think plumbing failure) they can intervene; and I am sure they enjoy the privacy and the extra space. We pay for electricity, phone and the Internet, they pay for the cleaning services – less paperwork to do. We have an extra room, which normally serves as Nadia's and my office; but it doubles up as a guest room for the guests of all of us. But there is more to co-habitation than practicality. Kasia and Pierre are lovely people: and, crucially, they are different people from Nadia and myself. We live out the city in different ways. We have different takes on almost everything, from French politics to Belgian beer. Comparing notes with them is always interesting, and I really value their insights and wisdom. Not that we spend all that much time together. I think our co-habitation unfolded in the right sequence: we started by a default attitude of rigorous mutual respect of each other's privacy and spaces. Then, over time, we grew closer, started to share the occasional meal, the occasional outing; we met each other's friends and families, lovely people to the last one. Guess what: we have built a sort of familial-like arrangement in a foreign city, among people who were originally complete strangers to one another. It's working well. So well that, when a year ago our landlord announced that he was reclaiming his apartment and we would have to move out in the summer, we decided to stay together, and to look for a new place as a four-people household. Eventually, we got more ambitious and thought, what the hell, we might as well grow the family. If four people can live so well together in a larger apartment, how would it work with five, or six, or seven in an even larger one? It works well, it turns out. We moved to a lovely loft, and were joined by a third couple (Belgian-Italian). Giovanni and Ilaria have since moved on for family reasons, but we enjoyed their company while we lived together. Their place has been claimed by Thomas, a young French engineer.  We do this for totally egoistic reasons: we enjoy each other's company, we save money, we live in style. At the same time, we are aware that we are working our way through solving a global problem. Planet Earth has 230 million international migrants; intra-EU migrants like us are 8 million. Many of Europe's young people simply cannot afford to hold their ground: their work, education paths, and love lives lead them to migrate. When they do, they, like us, lose their supporting networks, and it is really hard to rebuild them. Living together, especially in diversity – the older with the younger, the sporty with the mobility-challenged, the academic with the blue-collar worker – becomes a platform for sharing our different abilities, and being able, as a household, to solve many different problems, both emotional and practical. None of this is new. You have heard it all before – at social innovation conferences and workshops, for example, and typically by people who live in middle-class nuclear families. But we have decided to walk this particular talk; it will probably not be the right choice for everyone, but it is the right choice Nadia, Kasia, Pierre and myself; and I strongly believe it might be right for many others. I encourage you to at least consider it for yourself: as more of us make this choice, the real estate market will respond, giving us more spaces suited to our particular lifestyle (in Brussels, for example, is very difficult to find large apartments with 3 or more bathrooms!). So, who wants to join?",/post/648,2016-09-18T20:36:42.000Z,2016-09-18T20:36:42.000Z,648,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,437 8701,v1.0,,"Four years ago, as we were planning our move to Brussels, Nadia and I decided to look for flatmates. Most of our friends and family members were rather puzzled: not many couples decide to share their apartment, though they can afford not to. We, however, thought it completely logical. Nadia is Swedish and I am Italian: at the time we lived in Strasbourg, France. That made us a migrant nuclear family, completely cut off from the network of emotional and material support that our friends and families of origin could offer. We were simply too isolated in our Strasbourg apartment, nice though it was; and we decided to try something different. So, we rented a much bigger apartment than we needed and asked the Internet for someone to share it with. Four years on, we think the experiment worked. For the last three years we have been living with Kasia and Pierre, a young couple of expatriates (Kasia is Polish, Pierre French). We really enjoy the co-habitation: the home feels more animated, and not a day goes by that we don't chat at least a little bit, over coffee or breakfast. We enjoy the big, airy living room overlooking the city. And, frankly, we appreciate that our lifestyle is really good value for money: thanks to the economies of scale implicit in family life, we pay a reasonable rent for a really nice space. Along the way, we discovered that what makes our living together so enjoyable is that we are so different from each other. We come from four different countries; we are of different ages (Pierre, the youngest, is 19 years younger than me, the oldest); we have very different jobs (Kasia is a dental nurse, Pierre is the manager of a fashion boutique, whereas Nadia and I both belong to the ""what is it that you do, again?"" tribe); Nadia and I travel a lot, whereas Kasia and Pierre tend to be in town most of the time. This works well on many levels. On a purely practical level, when we travel we love the thought that the home is not empty, and in the event of some misfortune (think plumbing failure) they can intervene; and I am sure they enjoy the privacy and the extra space. We pay for electricity, phone and the Internet, they pay for the cleaning services – less paperwork to do. We have an extra room, which normally serves as Nadia's and my office; but it doubles up as a guest room for the guests of all of us. But there is more to co-habitation than practicality. Kasia and Pierre are lovely people: and, crucially, they are different people from Nadia and myself. We live out the city in different ways. We have different takes on almost everything, from French politics to Belgian beer. Comparing notes with them is always interesting, and I really value their insights and wisdom. Not that we spend all that much time together. I think our co-habitation unfolded in the right sequence: we started by a default attitude of rigorous mutual respect of each other's privacy and spaces. Then, over time, we grew closer, started to share the occasional meal, the occasional outing; we met each other's friends and families, lovely people to the last one. Guess what: we have built a sort of familial-like arrangement in a foreign city, among people who were originally complete strangers to one another. It's working well. So well that, when a year ago our landlord announced that he was reclaiming his apartment and we would have to move out in the summer, we decided to stay together, and to look for a new place as a four-people household. Eventually, we got more ambitious and thought, what the hell, we might as well grow the family. If four people can live so well together in a larger apartment, how would it work with five, or six, or seven in an even larger one? It works well, it turns out. We moved to a lovely loft, and were joined by a third couple (Belgian-Italian). Giovanni and Ilaria have since moved on for family reasons, but we enjoyed their company while we lived together. Their place has been claimed by Thomas, a young French engineer.  We do this for totally egoistic reasons: we enjoy each other's company, we save money, we live in style. At the same time, we are aware that we are working our way through solving a global problem. Planet Earth has 230 million international migrants; intra-EU migrants like us are 8 million. Many of Europe's young people simply cannot afford to hold their ground: their work, education paths, and love lives lead them to migrate. When they do, they, like us, lose their supporting networks, and it is really hard to rebuild them. Living together, especially in diversity – the older with the younger, the sporty with the mobility-challenged, the academic with the blue-collar worker – becomes a platform for sharing our different abilities, and being able, as a household, to solve many different problems, both emotional and practical. None of this is new. You have heard it all before – at social innovation conferences and workshops, for example, and typically by people who live in middle-class nuclear families. But we have decided to walk this particular talk; it will probably not be the right choice for everyone, but it is the right choice Nadia, Kasia, Pierre and myself; and I strongly believe it might be right for many others. I encourage you to at least consider it for yourself: as more of us make this choice, the real estate market will respond, giving us more spaces suited to our particular lifestyle (in Brussels, for example, is very difficult to find large apartments with 3 or more bathrooms!). So, who wants to join?",/post/648,2016-09-18T20:36:28.000Z,2016-09-18T20:36:28.000Z,648,3323,AnnotatorStore::TextAnnotation,,,,,,,,,615,1150 5558,v1.0,,"2. We also have a way to produce cheap, accurate ethnographic data around problems like the ones mentioned above, with a focus on surfacing creative and actionable solutions. This would enable you to engage a large number of participants (thousands) in a participatory process for designing solutions to meet their own needs. This methodology is being employed/supported by a growing number of actors including the current Swedish minister of Nordic cooperation and strategic foresight, the European Commission, the Rockefeller Foundation, the United Nations Development Program and United Nations Volunteers as well as the cities of Milan and Matera in Italy, and of Bucharest in Romania. We have developed a methodological guide for doing this - email me if you would like a copy (cannot post online): nadia@edgeryders.eu.",/post/5234,2016-09-18T20:34:50.000Z,2016-09-18T20:34:50.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,334 9276,v1.0,,"1. At LOTE5 we are organising this reflexive design exercise on Collaborative inclusion: how migrants-residents collaboration can produce social values. The event is run by Ezio Manzini, one the world's leading designers for social innovation. You can partner with us if you want to help make it into a workshop on addressing specific problems tied to reception and inclusion of asylum seekers. Or just sign up and participate.",/post/5234,2016-09-18T20:34:33.000Z,2016-09-18T20:34:33.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1283 7978,v1.0,,"experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: “Do not put a cap on my dreams, just give me access to the tools and see what I can build with them”.​",/post/5234,2016-09-18T20:31:28.000Z,2016-09-18T20:31:28.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,987 7966,v1.0,,"Part of what builds trust is if people can recognise their own perspective, language and experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: “Do not put a cap on my dreams, just give",/post/5234,2016-09-18T20:31:18.000Z,2016-09-18T20:31:18.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,985 7965,v1.0,,"1. At LOTE5 we are organising this reflexive design exercise on Collaborative inclusion: how migrants-residents collaboration can produce social values. The event is run by Ezio Manzini, one the world's leading designers for social innovation. You can partner with us if you want to help make it into a workshop on addressing specific problems tied to reception and inclusion of asylum seekers. Or just sign up and participate.",/post/5234,2016-09-18T20:30:56.000Z,2016-09-18T20:30:56.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,985 10551,v1.0,,"1. At LOTE5 we are organising this reflexive design exercise on Collaborative inclusion: how migrants-residents collaboration can produce social values. The event is run by Ezio Manzini, one the world's leading designers for social innovation. You can partner with us if you want to help make it into a workshop on addressing specific problems tied to reception and inclusion of asylum seekers. Or just sign up and participate.",/post/5234,2016-09-18T20:30:45.000Z,2016-09-18T20:30:45.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1575 6065,v1.0,,"If the participants in the event want to see the transnational cooperation happen in practice, then they will have to learn to think and work as networks of individuals",/post/5234,2016-09-18T20:30:37.000Z,2016-09-18T20:30:37.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,418 8038,v1.0,,"If the participants in the event want to see the transnational cooperation happen in practice, then they will have to learn to think and work as networks of individuals interacting inside, outside and all around different organisations. Each working at the hyperlocal, micro-level, while sharing and learning with others working in different contexts as a natural part of the everyday workflow… not just something afforded to people who can travel and spend 2 days talking with one another at a conference. And all of this done in ways that build granular, immediately relevant and continuously updated institutional memory accessible to all. Affecting behavioral change at this scale is hard, but it can be done.",/post/5234,2016-09-18T20:30:21.000Z,2016-09-18T20:30:21.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1012 7960,v1.0,,"o get this going you have to create the incentives for people to do additional work involved, instill the ethos, teach people the workflow and enforce it top down. Over and over. Until there is a critical mass doing it and others can share the effort of spreading and maintaining the enabling culture.",/post/5234,2016-09-18T20:30:07.000Z,2016-09-18T20:30:07.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,984 7938,v1.0,,"Continuous mapping and connection of different private, public and third sector actors efforts into coherent shared plans that take into consideration the budgetary, logistical and political constraints within which each group is working. I can tell you from experience that is it not easy. The reason being that the incentives are aligned against it. We all agree that at the system level good documentation saves everyone time and resources. At the individual level it is more difficult to motivate the additional investment of time and effort. Where you see people doing this consistently is where it is a part of a shared culture and work ethos. To get this going you have to create the incentives for people to do additional work involved, instill the ethos, teach people the workflow and enforce it top down. Over and over. Until there is a critical mass doing it and others can share the effort of spreading and maintaining the enabling culture.",/post/5234,2016-09-18T20:29:39.000Z,2016-09-18T20:29:39.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,979 8443,v1.0,,"Continuous mapping and connection of different private, public and third sector actors efforts into coherent shared plans that take into consideration the budgetary, logistical and political constraints within which each group is working. I can tell you from experience that is it not easy. The reason being that the incentives are aligned against it. We all agree that at the system level good documentation saves everyone time and resources. At the individual level it is more difficult to motivate the additional investment of time and effort. Where you see people doing this consistently is where it is a part of a shared culture and work ethos. To get this going you have to create the incentives for people to do additional work involved, instill the ethos, teach people the workflow and enforce it top down. Over and over. Until there is a critical mass doing it and others can share the effort of spreading and maintaining the enabling culture.",/post/5234,2016-09-18T20:29:16.000Z,2016-09-18T20:29:16.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1115 10406,v1.0,,"Part of what builds trust is if people can recognise their own perspective, language and experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: “Do not put a cap on my dreams, just give me access to the tools and see what I can build with them”.​",/post/5234,2016-09-18T20:29:11.000Z,2016-09-18T20:29:11.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1540 8442,v1.0,,"Active engagement of a lot of affected people in mapping and making sense of urgent problems related to a sudden influx of newcomers in education, housing, employment/entrepreneurship, language/social skills and finance. The reason being that those affected will only get behind efforts to solve problems if they trust the people involved, and have shared ownership in the process. Part of what builds trust is if people can recognise their own perspective, language and experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: “Do not put a cap on my dreams, just give me access to the tools and see what I can build with them”.​",/post/5234,2016-09-18T20:28:50.000Z,2016-09-18T20:28:50.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1115 11291,v1.0,,Ability to learn about and experiment with novel or unconventional approaches towards tackling root causes of problems which affect both newcomers and the host communities which welcome them.,/post/5234,2016-09-18T20:28:40.000Z,2016-09-18T20:28:40.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1789 8034,v1.0,,Ability to learn about and experiment with novel or unconventional approaches towards tackling root causes of problems which affect both newcomers and the host communities which welcome them.,/post/5234,2016-09-18T20:28:33.000Z,2016-09-18T20:28:33.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1007 9521,v1.0,,"A globe-spanning sustained effort to help community leaders, mayors, politicians and fight back against populist rhetoric and divisive narratives.",/post/5234,2016-09-18T20:28:16.000Z,2016-09-18T20:28:16.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1332 6033,v1.0,,"A globe-spanning sustained effort to help community leaders, mayors, politicians and fight back against populist rhetoric and divisive narratives.",/post/5234,2016-09-18T20:28:06.000Z,2016-09-18T20:28:06.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,414 6064,v1.0,,"Efficient and sustainable coordination across geographic, linguistic and technological barriers.",/post/5234,2016-09-18T20:27:54.000Z,2016-09-18T20:27:54.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,418 7937,v1.0,,how they expect to go from intention to implementation.,/post/5234,2016-09-18T20:27:44.000Z,2016-09-18T20:27:44.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,979 10102,v1.0,,"Many of the participants complained about the lack of resources to provide education or training for newcomers. Others mentioned the provision of health and social care services, especially psychological support for the traumatised. I heard a lot of calling for more resources to be put into existing services, but little examination of how existing services are performing and even less awareness about more effective, flexible and cost-efficient approaches.",/post/5234,2016-09-18T20:27:22.000Z,2016-09-18T20:27:22.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1451 9941,v1.0,,Are we sure that throwing money onto more of the same will result in better outcomes?,/post/5234,2016-09-18T20:27:09.000Z,2016-09-18T20:27:09.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1445 9940,v1.0,,How to build/rethink provision of public services so that they can accommodate changes in the number of people to serve?,/post/5234,2016-09-18T20:26:57.000Z,2016-09-18T20:26:57.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1445 10217,v1.0,,"Scalability of public services: How to build/rethink provision of public services so that they can accommodate changes in the number of people to serve? Many of the participants complained about the lack of resources to provide education or training for newcomers. Others mentioned the provision of health and social care services, especially psychological support for the traumatised. I heard a lot of calling for more resources to be put into existing services, but little examination of how existing services are performing and even less awareness about more effective, flexible and cost-efficient approaches. Are we sure that throwing money onto more of the same will result in better outcomes?  Sugata Mitra’s work on Minimally Invasive Education, Miguel Chavez’s experienced from building Makerspaces in Favelas, Freifunk and many others offer alternative approaches with promising results. The political will, and practical ability, to welcome and accommodate newcomers depends on it. In this recent talk, I present a proposal for how we can break out of the zero-sum thinking in the provision of care services as an antidote to rising social tensions between social groups.",/post/5234,2016-09-18T20:26:49.000Z,2016-09-18T20:26:49.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1487 10405,v1.0,,"Interoperability, knowledge transfer and Institutional memory: I heard many calls to “make information available about how the system works”, and ""calls for online platforms to fix a perceived lack of information"" thought to be a ""key obstacle for labor market access"". Here too I head that “we need a database of all the initiatives and resources available to help refugees” and ""we need to make existing information about getting your paperwork done, how to set up a new business etc"". There are three underlying assumptions: 1) That some people understand in detail “how the system works” as a whole and 2) That they can transmit that kind knowledge into brochures or documents and that 3) This information material will make the system navigable and penetrable for newcomers. These three assumptions do not hold up to scrutiny and could fill an entire blogpost with reasons as to why. For now I will simply refer you to the Brickstarter report as it is a light, beginner-friendly introduction to some of the issues.",/post/5234,2016-09-18T20:26:29.000Z,2016-09-18T20:26:29.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1540 8134,v1.0,,"Interoperability, knowledge transfer and Institutional memory: I heard many calls to “make information available about how the system works”, and ""calls for online platforms to fix a perceived lack of information"" thought to be a ""key obstacle for labor market access"". Here too I head that “we need a database of all the initiatives and resources available to help refugees” and ""we need to make existing information about getting your paperwork done, how to set up a new business etc"". There are three underlying assumptions: 1) That some people understand in detail “how the system works” as a whole and 2) That they can transmit that kind knowledge into brochures or documents and that 3) This information material will make the system navigable and penetrable for newcomers. These three assumptions do not hold up to scrutiny and could fill an entire blogpost with reasons as to why. For now I will simply refer you to the Brickstarter report as it is a light, beginner-friendly introduction to some of the issues.",/post/5234,2016-09-18T20:26:15.000Z,2016-09-18T20:26:15.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1029 11141,v1.0,,"Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc?",/post/5234,2016-09-18T20:25:57.000Z,2016-09-18T20:25:57.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1739 6455,v1.0,,"Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc? Affordable, modifiable technologies are required to manage the current crisis as well as to secure peace in the region.",/post/5234,2016-09-18T20:25:38.000Z,2016-09-18T20:25:38.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,485 9939,v1.0,,How to get better at covering necessities of both refugees and citizens/ residents on very limited resources?,/post/5234,2016-09-18T20:25:15.000Z,2016-09-18T20:25:15.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1445 9938,v1.0,,"Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc?",/post/5234,2016-09-18T20:25:09.000Z,2016-09-18T20:25:09.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1445 10070,v1.0,,"Resource efficiency: How to get better at covering necessities of both refugees and citizens/ residents on very limited resources? As an example Jordan is one of the most water scarce countries in the world and 70 per cent of the population suffers from inadequate water supply below the national standard of 100 liters/person/day. Aging infrastructures, inefficiencies in operation and maintenance. interrupted provision of water services etc. Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc? Affordable, modifiable technologies are required to manage the current crisis as well as to secure peace in the region",/post/5234,2016-09-18T20:24:57.000Z,2016-09-18T20:24:57.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1450 8700,v1.0,,"The first part of the event consisted in a kind of intense briefing of the situation in countries closest to Syria. In a short time the populations of small countries in the region, Lebanon and Jordan, have grown manyfold (1.1 Million refugees in Lebanon, 630,000 in Jordan - in addition to Palestinian refugees already there). Some reading materials with up to date, detailed information: Armenia: Anna’s report from Yerevan is a good introduction.  Jordan: Five Years On | Syria Crisis-related needs and vulnerabilities in Jordan.   While many of the cities and towns receiving refugees face similar challenges there is a significant difference. Some are transit locations, which asylum seekers pass on their way on to other destinations. They include major cities in Greece, Italy and Turkey, as well as small coastal towns from which people leave on boats to take their perilous journey across the sea. There, volunteers do their best to care for their immediate physical needs and the mandated administrative/security procedures to grant them entry onto the mainland. Other cities and towns  are receiving the newcomers on a more long term basis. This happens in two different phases, each one posing its own  political, administrative and infrastructural challenges for the hosting communities. The first one is the period of time between arrival and the approval or rejection of the person’s application for refugee status. This period could be very long, as in the case of the Palestinian refugees in Jordan, or that of Mr. Teferi in Norway. The second one is the period that begins once an individual has secured refugee status. In this period, the challenge is navigating the difficult period between receiving the papers and being fully established in the social and economic life of the host new community. While the details differ, the problems and needs mentioned by mayors, NGOs and activists fall into one or more of the following: Resource efficiency: How to get better at covering necessities of both refugees and citizens/ residents on very limited resources? As an example Jordan is one of the most water scarce countries in the world and 70 per cent of the population suffers from inadequate water supply below the national standard of 100 liters/person/day. Aging infrastructures, inefficiencies in operation and maintenance. interrupted provision of water services etc. Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc? Affordable, modifiable technologies are required to manage the current crisis as well as to secure peace in the region. Interoperability, knowledge transfer and Institutional memory: I heard many calls to “make information available about how the system works”, and ""calls for online platforms to fix a perceived lack of information"" thought to be a ""key obstacle for labor market access"". Here too I head that “we need a database of all the initiatives and resources available to help refugees” and ""we need to make existing information about getting your paperwork done, how to set up a new business etc"". There are three underlying assumptions: 1) That some people understand in detail “how the system works” as a whole and 2) That they can transmit that kind knowledge into brochures or documents and that 3) This information material will make the system navigable and penetrable for newcomers. These three assumptions do not hold up to scrutiny and could fill an entire blogpost with reasons as to why. For now I will simply refer you to the Brickstarter report as it is a light, beginner-friendly introduction to some of the issues. Scalability of public services: How to build/rethink provision of public services so that they can accommodate changes in the number of people to serve? Many of the participants complained about the lack of resources to provide education or training for newcomers. Others mentioned the provision of health and social care services, especially psychological support for the traumatised. I heard a lot of calling for more resources to be put into existing services, but little examination of how existing services are performing and even less awareness about more effective, flexible and cost-efficient approaches. Are we sure that throwing money onto more of the same will result in better outcomes?  Sugata Mitra’s work on Minimally Invasive Education, Miguel Chavez’s experienced from building Makerspaces in Favelas, Freifunk and many others offer alternative approaches with promising results. The political will, and practical ability, to welcome and accommodate newcomers depends on it. In this recent talk, I present a proposal for how we can break out of the zero-sum thinking in the provision of care services as an antidote to rising social tensions between social groups.",/post/5234,2016-09-18T20:23:51.000Z,2016-09-18T20:23:51.000Z,5234,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5201,1150 10833,v1.0,,also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.,/post/20113,2016-09-18T20:17:42.000Z,2016-09-18T20:17:42.000Z,20113,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1650 10832,v1.0,,"But what do you mean by ""skilled and well placed partners who are willing and able to act as brokers within the system to get things done""? Do you have any example in mind?",/post/21856,2016-09-18T20:17:34.000Z,2016-09-18T20:17:34.000Z,21856,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1650 10456,v1.0,,"what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.",/post/20113,2016-09-18T20:17:19.000Z,2016-09-18T20:17:19.000Z,20113,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1556 8258,v1.0,,"This is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.",/post/20113,2016-09-18T20:17:13.000Z,2016-09-18T20:17:13.000Z,20113,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1074 11357,v1.0,,"This is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.",/post/20113,2016-09-18T20:17:07.000Z,2016-09-18T20:17:07.000Z,20113,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1817 5791,v1.0,,"This is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.",/post/20113,2016-09-18T20:17:00.000Z,2016-09-18T20:17:00.000Z,20113,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,377 9275,v1.0,,"collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.",/post/20113,2016-09-18T20:16:51.000Z,2016-09-18T20:16:51.000Z,20113,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1283 7285,v1.0,,Interesting - thanks - another example which might be worth a look: http://cooperativa.cat/en/cooperative-public-system/health/,/post/16546,2016-09-18T20:16:37.000Z,2016-09-18T20:16:37.000Z,16546,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,801 5790,v1.0,,"Communities need to be nurtured and supported and it's by being ""in them"", not by doing things ""to them"" that change happens.",/post/10231,2016-09-18T20:16:20.000Z,2016-09-18T20:16:20.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,377 7780,v1.0,,"health and wellbeing are properties of social-ecological-context and not a something you ""deliver"" like a pizza.",/post/10231,2016-09-18T20:16:06.000Z,2016-09-18T20:16:06.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,939 9728,v1.0,,"health and wellbeing are properties of social-ecological-context and not a something you ""deliver"" like a pizza.",/post/10231,2016-09-18T20:15:54.000Z,2016-09-18T20:15:54.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1392 6454,v1.0,,"Then shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you ""deliver"" like a pizza.",/post/10231,2016-09-18T20:15:29.000Z,2016-09-18T20:15:29.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,485 5789,v1.0,,"He explains how ninety five percent of healthcare happens outside hospital or the doctor’s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.",/post/10231,2016-09-18T20:15:20.000Z,2016-09-18T20:15:20.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,377 10101,v1.0,,how hospitals and clinics were becoming unsustainable,/post/10231,2016-09-18T20:15:09.000Z,2016-09-18T20:15:09.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,1451 5788,v1.0,,"Some years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:",/post/10231,2016-09-18T20:14:53.000Z,2016-09-18T20:14:53.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,377 7002,v1.0,,"stributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:",/post/10231,2016-09-18T20:14:39.000Z,2016-09-18T20:14:39.000Z,10231,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4880,731 6453,v1.0,,identifying and understanding where they could make meaningful design interventions (products and or services).,/post/26011,2016-09-18T19:59:37.000Z,2016-09-18T19:59:37.000Z,26011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,485 8823,v1.0,,"Hacking Utopia, a studio course on product design for social and demographic change at UDK. (it's tied to the OpenCare project). They're currently coming out of the research phase in which they have been guided through a process of identifying and understanding where they could make meaningful design interventions (products and or services). Today they're going to summarise what they have learned and what they want to build (I'll post documentation online here later). Next they will be actually designing the products and I think the process above could be very helpful. Would you be up for joining a skype call where we help them to think through the business modelling/sustainability design for their products?",/post/26011,2016-09-18T19:59:13.000Z,2016-09-18T19:59:13.000Z,26011,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 10213,v1.0,,"Most initiatives fail to generate monetary resources not because they don’t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.",/post/4195,2016-09-18T19:58:24.000Z,2016-09-18T19:58:24.000Z,4195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1485 10212,v1.0,,"Most initiatives fail to generate monetary resources not because they don’t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.",/post/4195,2016-09-18T19:58:14.000Z,2016-09-18T19:58:14.000Z,4195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1485 10211,v1.0,,"A problem in ER is turning out to be how to reward the quite difficult and not always fun activity of making the sales. Not rewarding encourages waiting around for someone to walk in with a contract; rewarding it seems quite awkward, at least before you have some hard data on what it costs to do that kind of work (accounting for all the failed pitches). How do you guys do it in Sensorica? Does your accounting award a commission to people making successful sales? How much, if I may ask?",/post/23095,2016-09-18T19:57:57.000Z,2016-09-18T19:57:57.000Z,23095,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1485 8822,v1.0,,"A problem in ER is turning out to be how to reward the quite difficult and not always fun activity of making the sales. Not rewarding encourages waiting around for someone to walk in with a contract; rewarding it seems quite awkward, at least before you have some hard data on what it costs to do that kind of work (accounting for all the failed pitches). How do you guys do it in Sensorica? Does your accounting award a commission to people making successful sales? How much, if I may ask?",/post/23095,2016-09-18T19:57:52.000Z,2016-09-18T19:57:52.000Z,23095,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 9122,v1.0,,"We have a similar system, except no forms. You have a project, you post it as a group on the platform and receive your basic tools for cooperation (wikis, tasks etc.), loosely coupled with what the whole community is doing. This is meant to maximize the chance that somebody you don't know will randomly walk in and turn out to be exactly the person needed for that project. People are encouraged to find their own ay to share, under Who Does The Work Calls The Shots – doers decide.",/post/23095,2016-09-18T19:57:42.000Z,2016-09-18T19:57:42.000Z,23095,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1256 10404,v1.0,,"We have a similar system, except no forms. You have a project, you post it as a group on the platform and receive your basic tools for cooperation (wikis, tasks etc.), loosely coupled with what the whole community is doing. This is meant to maximize the chance that somebody you don't know will randomly walk in and turn out to be exactly the person needed for that project. People are encouraged to find their own ay to share, under Who Does The Work Calls The Shots – doers decide.",/post/23095,2016-09-18T19:57:32.000Z,2016-09-18T19:57:32.000Z,23095,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1540 8821,v1.0,,overview of how you actually generate revenue because for a lot of people it is kind of a black box,/post/21736,2016-09-18T19:56:33.000Z,2016-09-18T19:56:33.000Z,21736,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 10403,v1.0,,"There are a lot of hybrid models that try to go in that direction but preserve some of the old stuff, and I think that is because people are not ready or can't go all the way. Within SENSORICA  all projects are open, everyone can perform tasks, no barrier to value creation, and we use the value accounting system to redistribute the revenue. Networks that have projects formalized as a company, incubators and accelerators for example, don't have a lot of co-creation or exchanges between these entities. Within a value network projects are open and are only loosely formalized. If you have a system to track contributions you'll get a lot of value flows between projects, synergy increases, there is a lot of recycling and sharing of tangible and intangible resources.",/post/19801,2016-09-18T19:56:18.000Z,2016-09-18T19:56:18.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1540 11356,v1.0,,"There are a lot of hybrid models that try to go in that direction but preserve some of the old stuff, and I think that is because people are not ready or can't go all the way. Within SENSORICA  all projects are open, everyone can perform tasks, no barrier to value creation, and we use the value accounting system to redistribute the revenue. Networks that have projects formalized as a company, incubators and accelerators for example, don't have a lot of co-creation or exchanges between these entities. Within a value network projects are open and are only loosely formalized. If you have a system to track contributions you'll get a lot of value flows between projects, synergy increases, there is a lot of recycling and sharing of tangible and intangible resources.",/post/19801,2016-09-18T19:56:01.000Z,2016-09-18T19:56:01.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1817 10379,v1.0,,"People like us need to be free, want to contribute to different projects, want to be able to influence and take ownership of processes, want to share...",/post/19801,2016-09-18T19:55:22.000Z,2016-09-18T19:55:22.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1534 9121,v1.0,,"So how do you set up an environment that allows value creation and its distribution but feels like a network and is build on openness, transparency, decentralized processes?",/post/19801,2016-09-18T19:55:10.000Z,2016-09-18T19:55:10.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1256 9937,v1.0,,"So how do you set up an environment that allows value creation and its distribution but feels like a network and is build on openness, transparency, decentralized processes?",/post/19801,2016-09-18T19:54:57.000Z,2016-09-18T19:54:57.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1445 6073,v1.0,,Is it about creating value in a corporate-type environment or in a peer production environment.,/post/19801,2016-09-18T19:54:44.000Z,2016-09-18T19:54:44.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,423 11355,v1.0,,"First, what is the value system? We need to map it first and that will determine how to set everything up for value to be created, distributed and for the benefits to be shared among participants. Second, there is a choice to be made about the type of environment we want to",/post/19801,2016-09-18T19:54:22.000Z,2016-09-18T19:54:22.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1817 11354,v1.0,,"@Nadia ""I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. """,/post/19801,2016-09-18T19:54:00.000Z,2016-09-18T19:54:00.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1817 8820,v1.0,,"@Nadia ""I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. """,/post/19801,2016-09-18T19:53:54.000Z,2016-09-18T19:53:54.000Z,19801,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 8870,v1.0,,"the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation.",/post/16967,2016-09-18T19:53:12.000Z,2016-09-18T19:53:12.000Z,16967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1180 8819,v1.0,,"I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in: https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course",/post/16967,2016-09-18T19:52:46.000Z,2016-09-18T19:52:46.000Z,16967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 11353,v1.0,,"I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in: https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course",/post/16967,2016-09-18T19:52:39.000Z,2016-09-18T19:52:39.000Z,16967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1817 8235,v1.0,,"I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in: https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course",/post/16967,2016-09-18T19:52:33.000Z,2016-09-18T19:52:33.000Z,16967,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1068 8234,v1.0,,"I believe there is much to learn from the whole lean startup philosophy for people that want to change the way our world is driven. This is why we were organizing workshops on lean startup and collaborative business modeling (as the one organized in Stockholm). However, there are also limits of the lean startup principles. For example with Babele, we received the true validation of the concept only in October 2014, so 1 year and 2 months after having launched the platform. And we started selling services with the platform only in February 2015 (so 1 year and almost 6 months after). It takes a lot of patience in building professional products and services, and sometimes the lean startup philosophy invites people to give up too soon because they were not able to receive proper validation soon enough...",/post/16291,2016-09-18T19:52:22.000Z,2016-09-18T19:52:22.000Z,16291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1068 11328,v1.0,,"Test something from users, learn how to identify their needs (because they do not always express them directly) and how to create something that satisfies their needs creating enough value for them to really use your product/service. Etc.",/post/16291,2016-09-18T19:52:12.000Z,2016-09-18T19:52:12.000Z,16291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1811 8818,v1.0,,"As an incredibly diverse community, the range of experience and knowledge about building economically sustainability projects amongst members ranges from ""where do I even begin"" to ""I just sold my 3rd company"". Also, there are many different interpretations of ""economic sustainability"" and strategies for achieving it. Moneyless crowdfunding with Makerfox anyone?",/post/4195,2016-09-18T19:51:52.000Z,2016-09-18T19:51:52.000Z,4195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 8817,v1.0,,"For it to be value driven, there need to be people that are ready to pay for the service.",/post/16291,2016-09-18T19:51:44.000Z,2016-09-18T19:51:44.000Z,16291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1164 11352,v1.0,,"As an incredibly diverse community, the range of experience and knowledge about building economically sustainability projects amongst members ranges from ""where do I even begin"" to ""I just sold my 3rd company"". Also, there are many different interpretations of ""economic sustainability"" and strategies for achieving it. Moneyless crowdfunding with Makerfox anyone? A recurring topic is one David De Ugarte dove into in this Las Indias's piece on generating revenue through sales. Especially in purpose/value driven contexts, this topic is often controversial and deeply unsettling: [] our “conscience” and the “private logic” will join forces to tell us “we are not good at it”, and that this “it” – selling – is very close to deceiving. But this is false.  Most initiatives fail to generate monetary resources not because they don’t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.  Many of the projects we see popping up on Edgeryders, are collaborative and decentralised initiatives. Perhaps it makes sense to structure a process which everyone can participate in to build economic sustainability into projects in a decentralised way: Identify and document our assumptions What are our assumptions/hypotheses about how we gratify our clients and or sponsors, who they are, how we will acquire and monetize them? What are our assumptions/hypotheses about how we serve the needs of our constituency, who they are, as well as how we engage them into becoming more active participants in (and beneficiaries of) our initiatives? Talk to prospective customers to validate (or invalidate) our assumptions What problems do they face?  How do they solve them?  What matters to them?  What is a must-have for them? Identify the risk factors in the opportunity Are we facing significant technology risks?  Or more of market risk?  How can we test and validate these (starting with the most risky)?  What market testable milestones can we build that would result in sufficient evidence to induce us to pivot or move forward? A proof of concept? A letter of intent?  A prototype? Create and Test a Minimum Viable Offer landing page click-through that prove there’s some amount of interest in an experience, product or service; a time commitment for an in-person meeting to view a demo that shows the customer or funder's problem being resolved; a resource commitment for a pilot program to test how the experience, product or service or product fits into a particular environment. Once we have users using our MVO we listen for & tune into the Must-have signal We listen very carefully to find our must-have signal and articulate it. We Double-down and strip away the unnecessary> focus on building an experience, service or product that is cherished and supported by everyone who uses it.   Does this make sense to you? Do you want to learn the hands-on-skills involved? I am just about to launch an initiative on behalf of the social enterprise supporting the community. For those who want to learn the skills, this offers an excellent opportunity to learn-by-doing with me. Let me know you are interested by leaving a comment below or emailing me: nadia@edgeryders.eu",/post/4195,2016-09-18T19:50:35.000Z,2016-09-18T19:50:35.000Z,4195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1817 11351,v1.0,,"yes, great post. What you are saying actually is indeed the fact that there needs to be value creation for social purpose driven initiatives.",/post/16291,2016-09-18T19:50:23.000Z,2016-09-18T19:50:23.000Z,16291,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1817 9936,v1.0,,"Identify and document our assumptions What are our assumptions/hypotheses about how we gratify our clients and or sponsors, who they are, how we will acquire and monetize them? What are our assumptions/hypotheses about how we serve the needs of our constituency, who they are, as well as how we engage them into becoming more active participants in (and beneficiaries of) our initiatives? Talk to prospective customers to validate (or invalidate) our assumptions What problems do they face?  How do they solve them?  What matters to them?  What is a must-have for them? Identify the risk factors in the opportunity Are we facing significant technology risks?  Or more of market risk?  How can we test and validate these (starting with the most risky)?  What market testable milestones can we build that would result in sufficient evidence to induce us to pivot or move forward? A proof of concept? A letter of intent?  A prototype? Create and Test a Minimum Viable Offer landing page click-through that prove there’s some amount of interest in an experience, product or service; a time commitment for an in-person meeting to view a demo that shows the customer or funder's problem being resolved; a resource commitment for a pilot program to test how the experience, product or service or product fits into a particular environment. Once we have users using our MVO we listen for & tune into the Must-have signal We listen very carefully to find our must-have signal and articulate it. We Double-down and strip away the unnecessary> focus on building an experience, service or product that is cherished and supported by everyone who uses it.",/post/4195,2016-09-18T19:49:51.000Z,2016-09-18T19:49:51.000Z,4195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,1445 6676,v1.0,,"As an incredibly diverse community, the range of experience and knowledge about building economically sustainability projects amongst members ranges from ""where do I even begin"" to ""I just sold my 3rd company"". Also, there are many different interpretations of ""economic sustainability"" and strategies for achieving it. Moneyless crowdfunding with Makerfox anyone? A recurring topic is one David De Ugarte dove into in this Las Indias's piece on generating revenue through sales. Especially in purpose/value driven contexts, this topic is often controversial and deeply unsettling: [] our “conscience” and the “private logic” will join forces to tell us “we are not good at it”, and that this “it” – selling – is very close to deceiving. But this is false.  Most initiatives fail to generate monetary resources not because they don’t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.  Many of the projects we see popping up on Edgeryders, are collaborative and decentralised initiatives. Perhaps it makes sense to structure a process which everyone can participate in to build economic sustainability into projects in a decentralised way:",/post/4195,2016-09-18T19:49:22.000Z,2016-09-18T19:49:22.000Z,4195,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4162,582 6523,v1.0,,"every time I hear any talk of revolution: the move towards a western style liberal democracy is not one that Ethiopians I spoke to value highly. Rather, it is economic rights and development that seem to be at the heart of their concerns.",/post/4134,2016-09-18T19:45:06.000Z,2016-09-18T19:45:06.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,492 9520,v1.0,,"Most of all people are very aware of how fragile and important peace is. The story of a popular revolution co-opted by a military regime that then did its best to murder an entire generation is still fresh in the collective memory. I am reminded of this every time I hear any talk of revolution: the move towards a western style liberal democracy is not one that Ethiopians I spoke to value highly. Rather, it is economic rights and development that seem to be at the heart of their concerns.",/post/4134,2016-09-18T19:44:46.000Z,2016-09-18T19:44:46.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1332 9519,v1.0,,"""Chinese syndrome"" of a technocratic government with a fairly poor human rights record which is, however, quite accountable and successful, and enjoys a high degree of consensus. For a Westerner, this can be unsettling!",/post/16450,2016-09-18T19:44:21.000Z,2016-09-18T19:44:21.000Z,16450,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1332 9518,v1.0,,"However, it's not yet decided. The latest Greek developments and the upcoming Spanish elections make me hope that elections can indeed (at times) be the peaceful, orderly revolution that we were always taught they are meant for. And where this works out, it's just great, literally a lifesaver.",/post/18061,2016-09-18T19:44:13.000Z,2016-09-18T19:44:13.000Z,18061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1332 7904,v1.0,,"Interesting article of yours, just read it. Thanks for writing it! So, to be a bit heretical, one could say: Political rights are overrated. The only time you need them is if you need political change because of the current government being incompetent or corrupt. And given that the next government in Europe is usually just as incompetent and corrupt as the last one, they are of little use then either. The human rights record of democratic European governments with respect to creating a humanitarian crisis in Greece is also not that good In fact I'd like to see some statistics about what caused real betterment in democracies: Election-induced changes, or extra-constitutional changes?",/post/18061,2016-09-18T19:43:59.000Z,2016-09-18T19:43:59.000Z,18061,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,966 10069,v1.0,,"""Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water."" – To the point. Religious and cultural affiliation is often simply a lobbying / collective action tool for mundane interests.",/post/9973,2016-09-18T19:43:34.000Z,2016-09-18T19:43:34.000Z,9973,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1450 8220,v1.0,,"""Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water."" – To the point. Religious and cultural affiliation is often simply a lobbying / collective action tool for mundane interests.",/post/9973,2016-09-18T19:43:28.000Z,2016-09-18T19:43:28.000Z,9973,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1060 10068,v1.0,,"If we are to achieve peace at home, we need to think about how we tackle legacy injustices against people in different parts of a globalised world. The central pillar is property law and ownership. As Ethiopians learned, it makes sense to start there and not let up till an acceptable solution is reached.",/post/4134,2016-09-18T19:43:15.000Z,2016-09-18T19:43:15.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1450 8219,v1.0,,"If we are to achieve peace at home, we need to think about how we tackle legacy injustices against people in different parts of a globalised world. The central pillar is property law and ownership. As Ethiopians learned, it makes sense to start there and not let up till an acceptable solution is reached.",/post/4134,2016-09-18T19:43:03.000Z,2016-09-18T19:43:03.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1060 10100,v1.0,,"Rwanda is one of the most densely populated countries in Africa and the pressure on land has often been put forward as an important factor in the 1994 genocide. I cannot remember where I heard that in the case of Rwanda there were more intra-ethnic murders than between different ethnic groups... the genocide was partially fueled by the need to free up resources. If memory serves me, they had a system ( currently being reformed) in which all land would be passed on to the first son. Which left a class of landless, disenfranchised young men with no hope of accessing a brighter economic future unless some of that land could be freed up... Israel and Palestine is another example. At the source of this conflict, according to Bo Rothstein, lies mixing of religious rhetoric with what is essentially a fight over assets. He claims that you would create the foundation for lasting peace by focusing on resolving the land/economic disputes with compromises for everyone (Swedish article): http://www.svd.se/…/markavtal-kan-stoppa-valdet_3777014 Other examples of legacy injustice include (thanks @Jaycousins ): Egypt - land is divided amongst all children so within a couple of generations everyone has a tiny patch they can't profit from - the result is illegally constructed tower blocks on most of the rare and fertile land in Egypt and a lot of in-family tensions. Likewise In England or any other Western Country, the peasantry had their inheritance stolen out from under them long before the lords and merchants started robbing foreign soil. … There is much to be learned from Ethiopian history about the importance of tackling inequalities in distribution of property and use rights for building lasting peace. Especially in societies where formal property laws and customary property rights arrangements exist in parallel. I believe some of those lessons are also relevant in societies where land rights are secure but ownership of property is highly concentrated.",/post/4134,2016-09-18T19:42:29.000Z,2016-09-18T19:42:29.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1451 10067,v1.0,,"Rwanda is one of the most densely populated countries in Africa and the pressure on land has often been put forward as an important factor in the 1994 genocide. I cannot remember where I heard that in the case of Rwanda there were more intra-ethnic murders than between different ethnic groups... the genocide was partially fueled by the need to free up resources. If memory serves me, they had a system ( currently being reformed) in which all land would be passed on to the first son. Which left a class of landless, disenfranchised young men with no hope of accessing a brighter economic future unless some of that land could be freed up... Israel and Palestine is another example. At the source of this conflict, according to Bo Rothstein, lies mixing of religious rhetoric with what is essentially a fight over assets. He claims that you would create the foundation for lasting peace by focusing on resolving the land/economic disputes with compromises for everyone (Swedish article): http://www.svd.se/…/markavtal-kan-stoppa-valdet_3777014 Other examples of legacy injustice include (thanks @Jaycousins ): Egypt - land is divided amongst all children so within a couple of generations everyone has a tiny patch they can't profit from - the result is illegally constructed tower blocks on most of the rare and fertile land in Egypt and a lot of in-family tensions. Likewise In England or any other Western Country, the peasantry had their inheritance stolen out from under them long before the lords and merchants started robbing foreign soil. … There is much to be learned from Ethiopian history about the importance of tackling inequalities in distribution of property and use rights for building lasting peace. Especially in societies where formal property laws and customary property rights arrangements exist in parallel. I believe some of those lessons are also relevant in societies where land rights are secure but ownership of property is highly concentrated.",/post/4134,2016-09-18T19:42:18.000Z,2016-09-18T19:42:18.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1450 8218,v1.0,,"Rwanda is one of the most densely populated countries in Africa and the pressure on land has often been put forward as an important factor in the 1994 genocide. I cannot remember where I heard that in the case of Rwanda there were more intra-ethnic murders than between different ethnic groups... the genocide was partially fueled by the need to free up resources. If memory serves me, they had a system ( currently being reformed) in which all land would be passed on to the first son. Which left a class of landless, disenfranchised young men with no hope of accessing a brighter economic future unless some of that land could be freed up... Israel and Palestine is another example. At the source of this conflict, according to Bo Rothstein, lies mixing of religious rhetoric with what is essentially a fight over assets. He claims that you would create the foundation for lasting peace by focusing on resolving the land/economic disputes with compromises for everyone (Swedish article): http://www.svd.se/…/markavtal-kan-stoppa-valdet_3777014 Other examples of legacy injustice include (thanks @Jaycousins ): Egypt - land is divided amongst all children so within a couple of generations everyone has a tiny patch they can't profit from - the result is illegally constructed tower blocks on most of the rare and fertile land in Egypt and a lot of in-family tensions. Likewise In England or any other Western Country, the peasantry had their inheritance stolen out from under them long before the lords and merchants started robbing foreign soil. … There is much to be learned from Ethiopian history about the importance of tackling inequalities in distribution of property and use rights for building lasting peace. Especially in societies where formal property laws and customary property rights arrangements exist in parallel. I believe some of those lessons are also relevant in societies where land rights are secure but ownership of property is highly concentrated.",/post/4134,2016-09-18T19:42:07.000Z,2016-09-18T19:42:07.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,1060 5943,v1.0,,"Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water.",/post/4134,2016-09-18T19:40:42.000Z,2016-09-18T19:40:42.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,390 6903,v1.0,,"I feel a link to this diaspora, all diaspora really. There is something those of us born with feet in many worlds discover sooner or later. That we are not one or the other, but something else.. ours are third, remix, cultures. Religion is one of those sensitive areas we have to develop mechanisms for navigating.",/post/4134,2016-09-18T19:40:31.000Z,2016-09-18T19:40:31.000Z,4134,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4101,708 4716,v1.0,,"This is what I like about the art that takes the shape of ""pile of stuff"" etc.: it makes people think, provokes them, calls them to action, like to add another computer as they did. And finally something very useful can emerge from all this that is ahead if its time: hackerspaces and fab labs weren't much around in 2000 when you founded Access Space, were they. The arts people found a way to start such a project even when the idea wasn't ripe for ""regular"", business and technical type innovation. Thanks, folks!",/post/19954,2016-09-18T19:38:51.000Z,2016-09-18T19:38:51.000Z,19954,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,62 9274,v1.0,,"So, in 2000 Access Space opened. We believed it would be a good model to help people get engaged with technology. We invite every visitor to define their OWN objectives with trash technology - it could be making images, sounds, music, robots, websites, designs, photo galleries... It could be building a business, making new networks, rebuilding computers, or whatever. Our key test is that people THEMSELVES set their agenda. We don't work with a curriculum. And we don't have teachers. Instead, we ask participants to help each other - and because they're all working on ""cool stuff"" not ""boring stuff"" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.",/post/1710,2016-09-18T19:38:34.000Z,2016-09-18T19:38:34.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1283 9273,v1.0,,"collaborative processes, free and open culture, research of financial aid for creative and social projects often defined ""cool, but too innovative"", with a poor market value also if the cultural, social, creative value is very high.",/post/14720,2016-09-18T19:38:21.000Z,2016-09-18T19:38:21.000Z,14720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1283 6675,v1.0,,"how we can translate the intangible social, cultural, creative value to a tangible market one?",/post/14720,2016-09-18T19:38:05.000Z,2016-09-18T19:38:05.000Z,14720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,582 10550,v1.0,,"how we can translate the intangible social, cultural, creative value to a tangible market one?",/post/14720,2016-09-18T19:37:45.000Z,2016-09-18T19:37:45.000Z,14720,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1575 7012,v1.0,,communities with a purpose are very diverse.,/post/6759,2016-09-18T19:37:29.000Z,2016-09-18T19:37:29.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,732 10455,v1.0,,peer-to-peer help beats the living daylight out of top down teaching.,/post/6759,2016-09-18T19:37:09.000Z,2016-09-18T19:37:09.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1556 10454,v1.0,,"Our key test is that people THEMSELVES set their agenda. We don't work with a curriculum. And we don't have teachers. Instead, we ask participants to help each other - and because they're all working on ""cool stuff"" not ""boring stuff"" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.",/post/1710,2016-09-18T19:36:58.000Z,2016-09-18T19:36:58.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1556 9340,v1.0,,"Our key test is that people THEMSELVES set their agenda. We don't work with a curriculum. And we don't have teachers. Instead, we ask participants to help each other - and because they're all working on ""cool stuff"" not ""boring stuff"" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.",/post/1710,2016-09-18T19:36:49.000Z,2016-09-18T19:36:49.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1294 9339,v1.0,,peer-to-peer help beats the living daylight out of top down teaching.,/post/6759,2016-09-18T19:36:31.000Z,2016-09-18T19:36:31.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1294 7513,v1.0,,fundraising is painfully slow.,/post/6759,2016-09-18T19:36:25.000Z,2016-09-18T19:36:25.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,876 9364,v1.0,,"skill, expertise and creativity are the scarce resources of development.",/post/6759,2016-09-18T19:36:15.000Z,2016-09-18T19:36:15.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1297 9407,v1.0,,cheap space enables trying out stuff. There is a clear conflict between the interest of innovators and those of real estate owners. This is surfacing in other mission reports on Egderyders as well.,/post/6759,2016-09-18T19:36:08.000Z,2016-09-18T19:36:08.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1308 10549,v1.0,,"We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.",/post/1710,2016-09-18T19:35:57.000Z,2016-09-18T19:35:57.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1575 10548,v1.0,,"(social, in your case) innovation is in seeing the world with new eyes as opposed to making a gizmo. You noticed an abundance of old computers in the midst of a failure to ramp up with the digital economy in Sheffield; the whole things grows out of an art project, then of a training program, so you think way out of the box with respect to how, say an innovation economist would.",/post/6759,2016-09-18T19:35:48.000Z,2016-09-18T19:35:48.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1575 4715,v1.0,,"Working as an artist, I saw that the city was failing to adapt to the emerging information economy",/post/6759,2016-09-18T19:35:07.000Z,2016-09-18T19:35:07.000Z,6759,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,62 9363,v1.0,,"We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.",/post/1710,2016-09-18T19:34:44.000Z,2016-09-18T19:34:44.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1297 8175,v1.0,,"We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.",/post/1710,2016-09-18T19:34:36.000Z,2016-09-18T19:34:36.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1047 7512,v1.0,,"What do we want? Funding, of course! However, we are aware that models based on funding are becoming increasingly under pressure. So we have started a ""Friends"" scheme, to ask our participants, and anyone else who thinks that the free opportunities we deliver are a good thing, to contribute.",/post/1710,2016-09-18T19:34:20.000Z,2016-09-18T19:34:20.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,876 9079,v1.0,,"We provide a free, open access digital lab, doing all sorts of things, from computer analysis, repair and recycling to art exhibitions, workshops, peer-learning activities, enterprise incubation, social support and more. We set up this lab as a response to unemployment, urban decline and the transformation of the job market. What we've established is an innovative methodology to invest time, not money, in ICTs. This has huge potential to address worklessness and lack of opportunities. It's worth reflecting that many of our participants in Access Space experience the kind of precarity which you are investigating with Edgeryders.",/post/1710,2016-09-18T19:33:17.000Z,2016-09-18T19:33:17.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1252 9052,v1.0,,"We provide a free, open access digital lab, doing all sorts of things, from computer analysis, repair and recycling to art exhibitions, workshops, peer-learning activities, enterprise incubation, social support and more. We set up this lab as a response to unemployment, urban decline and the transformation of the job market. What we've established is an innovative methodology to invest time, not money, in ICTs. This has huge potential to address worklessness and lack of opportunities. It's worth reflecting that many of our participants in Access Space experience the kind of precarity which you are investigating with Edgeryders.",/post/1710,2016-09-18T19:33:08.000Z,2016-09-18T19:33:08.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1248 9809,v1.0,,"Meanwhile, I was making art from trash that I found in skips. Not only was the trash free (yes!) it seemed to me to be the most suitable material with which to make art about urban decline. Then I started to find computers in the trash. I collected them, with the idea that I would make robot sculptures and other crazy artworks. I was amazed to discover, after some experimentation, that most of the PCs I recovered actually worked! I started to think about why people were throwing these machines away - when the city had a low level of engagement with information technology.",/post/1710,2016-09-18T19:31:09.000Z,2016-09-18T19:31:09.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1420 10864,v1.0,,"Working as an artist, I saw that the city was failing to adapt to the emerging information economy - South Yorkshire had the lowest uptake of information technology in the UK. Meanwhile, I was making art from trash that I found in skips. Not only was the trash free (yes!) it seemed to me to be the most suitable material with which to make art about urban decline.",/post/1710,2016-09-18T19:30:57.000Z,2016-09-18T19:30:57.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,1666 4773,v1.0,,"the city used to be based on Coal mining and the Steel industry. Now the coal mines are closed, and the Steel mills are manned by robots. There is a very high level of unemployment in the city, and much of the employment that there is is in the public sector - most adults work for the government!",/post/1710,2016-09-18T19:30:26.000Z,2016-09-18T19:30:26.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,79 4714,v1.0,,"I founded Access Space in 2000 - but I had the idea in 1996 - when I started an arts project called ""Redundant Technology Initiative"". I'm an artist, and I wanted to use my art practice to show the true situation in Sheffield, the city where I live. Sheffield has suffered structural problems from massive industrial change - the city used to be based on Coal mining and the Steel industry. Now the coal mines are closed, and the Steel mills are manned by robots. There is a very high level of unemployment in the city, and much of the employment that there is is in the public sector - most adults work for the government!",/post/1710,2016-09-18T19:30:18.000Z,2016-09-18T19:30:18.000Z,1710,3323,AnnotatorStore::TextAnnotation,,,,,,,,,1677,62 10453,v1.0,,"Refugees that benefit from the training programs at the Orange House are progressing their social skills very fast in. When a mother with a 17-year-old son arrived in May they spoke Farsi. They are now speaking fluent English. This is because everybody is connected through some sort of social action. The transformations we observe, offer some very important lessons. One of them is about the importance of patience, even when you are passionate about something. Starting a community of care is like planting a tree, and needs time to develop. There are times that you see things going wrong and always question what doesn’t work. But, actually, it is important to not give up and say that you have to try again. That you will tease many people, but at the end, it will work out. Over time, I am learning how to be more grateful for every progress that is happening inside the house. Any positive impact is important.",/post/533,2016-09-18T16:57:24.000Z,2016-09-18T16:57:24.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1556 10452,v1.0,,"Many people think volunteers need only shelter and food. But the reality asks for the development of real skills, to help them integrate into the society, but also have some fun. It is hard to find people that are not skilled to refugee care, but they have specific skills. What we need to have is a salsa or a hip hop teacher, or somebody that can help with the roof garden. For example, one of my friends is an electrician and is coming to do maintenance work in the building, for free.",/post/533,2016-09-18T16:57:02.000Z,2016-09-18T16:57:02.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1556 6045,v1.0,,"The house currently hosts 15 residents. We can only accept up to 20 persons because we only have 3 bathrooms, which is the major limitation. We explain to everyone that they must contribute to housekeeping, participate in the training programs and that it is important that we share everything. We cannot be with someone that wants to be alone in the bedroom, for example. It is not possible for us. There are about 50 people that visit the Orange House to receive some sort of service. For example, a 16-year-old who is very lonely and comes just to speak with others. Many of our visitors are staying in squats, camps of other shelters where conditions are not very good, but they come to the house because they like the atmosphere. When a visitor comes we offer tea, we talk and listen, but also sing and dance. It is really like a house, not like a social service type of place.",/post/533,2016-09-18T16:56:33.000Z,2016-09-18T16:56:33.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,416 11257,v1.0,,"When we were almost done with all the work, I posted a poster in Greek, explaining to neighbors that what they see is the preparation of a house and school for refugees. We made a house-warming party, and we invited everyone to join, see for themselves and ask questions. This is a process of building trust. At the end of the day, there was only one neighbor that came to ask. Most people simply don’t care, otherwise, we could have more reaction",/post/533,2016-09-18T16:56:05.000Z,2016-09-18T16:56:05.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1778 8257,v1.0,,"At the beginning, the biggest problem was bureaucracy. I didn’t know whom to address to get information on how to set up an organization. Someone suggested a lawyer, but I am still waiting for the paperwork since two months. We didn’t face any conflicts with the legal system because we are very careful of what we do inside the house. We brought engineers, social workers, and another expert to advise us and ensure that what we do is not something illegal.",/post/533,2016-09-18T16:55:43.000Z,2016-09-18T16:55:43.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1074 8699,v1.0,,"The Orange House in the heart of Athens is changing the negative image about refugees through the cultivation of social skills. I am involved in refugee care as a volunteer since years because several of my friends are refugees. My partner, Hassan, comes from Syria and also had to cross the Aegean Sea. Last year, when I saw the gaps in the official structures for refugee  relief, I decided to create the Orange House. Many non-Greek volunteers offered to give money if I decided to build something. At first, we only thought of one room, because we didn’t have a lot of cash. But then, we found this house that was not used for several months. In fact, it was an old electronics and computer shop. Slowly, I started asking for help and people got involved with all things related to opening a space that would offer human shelter. This was the beginning of the Orange House, which opened in May 2016. The house has three floors, the upper one reserved for resident refugees who live inside it. They cook, clean and take care of the space by themselves. We rarely enter their space, unless some maintenance work is necessary. On the ground floor, there is a common space for everyone, which hosts several classes and sessions: from yoga to music, salsa dancing, and movie screenings. We use the half-basement, as a classroom for language classes, including Greek, English, Spanish, French and German on different levels. We also have a room in which we just meet to talk with each other and other spaces for storing clothes, glasses, food, educational material, bathing towels, etc. There is a kitchen and bathroom for people to walk in, a courtyard and a simple roof garden to grow vegetables in self-made contained made of old cargo palettes. The Orange House hosts a specialized 2-hour LGBT program for refugees every Monday, also visited by a guy from an Athens checkpoint to meet and offer help to the community.  Our house is open for visits by NGOs, artists, gardeners and everyone who wishes to offer creative inputs, such as salsa, music classes, or just brainstorm on what we can do better. It is hard to say how many people visit the common space. Some people come for a specific activity like a lesson in German or French. Some other women bring their kids for all day long. Volunteers can also attend classes and other activities, which are offered totally free. However, we are planning to be able to make some items to sell, such as cooked food or jewelry made by some of the residents. Our idea for the future of the house is that the refugees in collaboration with the wider community will be able to generate their own money through the skills they have and develop. For example, we have some women with a talent for cooking, hairdressing, and Arabic calligraphy. The idea is that one day all this will evolve to a social enterprise, where residents in the Orange House will be their own boss. The operations of the house are managed by the community. For example, an Iranian woman is teaching someone else to do jewelry. Same goes with all housekeeping, like cooking and cleaning.  We now want to register as a legal entity, in order to be able to manage funds. At the moment, I am renting the house under my name, paying 1000 euro for a monthly rent, and another 1000 for utility bills. The volunteers of the Orange House usually bring some cash and then we ask it they can change that lamp, or cover some other cost. We always have one volunteer sleeping inside the house, and we have a schedule of who is coming and for what reason. There are no public authorities or institutions involved in the project. We are just like that. Mohammed, one of the board members, works as a doctor for Doctors of the World and brings useful information about persons that need shelter. Some other NGOs also visit us to see in there are any needs.  People usually appreciate what we do and the way we do it. When I tell them “look at me, I am Greek-French and I look like this”. Or when they see me together with my Syrian partner. I am Christian and he is Muslim, and some people think that this is something strange. But we know how to laugh about it, and tell them that these refugees are not terrorists or criminals, but humans like everyone else. When we first entered the house in May 2016, the place was so dirty and so many things were in need of repair. I knew since the beginning that it will be a lot of work, that I will need to work two weeks full time to get everything going. But this was not true at all because it takes much more time than I initially thought. Together we are taking very good care of our space. No alcohol, smoking or drugs are allowed in the Orange House. We check who is coming in and the neighborhood feels reassured. When people see refugees doing a yoga or salsa class, they have a different image of them. Instead of seeing the of misery, like on the Lesbos island or other camps shown on TV, we show that we grow happiness and care for the community. When we started, we noticed that most people don't know how to speak a language other than theirs. This is why we called the place “Orange House” because the word “orange” sounds similarly in Greek and Arabic. We also painted the house in orange color, so people coming for the first time can distinguish it easily. At the beginning, the biggest problem was bureaucracy. I didn’t know whom to address to get information on how to set up an organization. Someone suggested a lawyer, but I am still waiting for the paperwork since two months. We didn’t face any conflicts with the legal system because we are very careful of what we do inside the house. We brought engineers, social workers, and another expert to advise us and ensure that what we do is not something illegal. When we were almost done with all the work, I posted a poster in Greek, explaining to neighbors that what they see is the preparation of a house and school for refugees. We made a house-warming party, and we invited everyone to join, see for themselves and ask questions. This is a process of building trust. At the end of the day, there was only one neighbor that came to ask. Most people simply don’t care, otherwise, we could have more reaction. The house currently hosts 15 residents. We can only accept up to 20 persons because we only have 3 bathrooms, which is the major limitation. We explain to everyone that they must contribute to housekeeping, participate in the training programs and that it is important that we share everything. We cannot be with someone that wants to be alone in the bedroom, for example. It is not possible for us. There are about 50 people that visit the Orange House to receive some sort of service. For example, a 16-year-old who is very lonely and comes just to speak with others. Many of our visitors are staying in squats, camps of other shelters where conditions are not very good, but they come to the house because they like the atmosphere. When a visitor comes we offer tea, we talk and listen, but also sing and dance. It is really like a house, not like a social service type of place.  Residency is only open to women and children, but male visitors are also welcome to join in the activities. Most of the male refugees arrived earlier, so the majority of the people arriving now in Greece are women and children. Quite often, we have women that have suffered some sort of abuse. We have listened to some very tough stories. Most of the volunteers are refugees themselves, or people coming from abroad and then going back home. Many people think volunteers need only shelter and food. But the reality asks for the development of real skills, to help them integrate into the society, but also have some fun. It is hard to find people that are not skilled to refugee care, but they have specific skills. What we need to have is a salsa or a hip hop teacher, or somebody that can help with the roof garden. For example, one of my friends is an electrician and is coming to do maintenance work in the building, for free. Anyone entering the house as a resident has to commit to attending 5 classes per week. Therefore, there is at least one activity taking place in some of the spaces every day. Sometimes, we organize outdoor activities, like hiking excursions. Refugees that benefit from the training programs at the Orange House are progressing their social skills very fast in. When a mother with a 17-year-old son arrived in May they spoke Farsi. They are now speaking fluent English. This is because everybody is connected through some sort of social action. The transformations we observe, offer some very important lessons. One of them is about the importance of patience, even when you are passionate about something. Starting a community of care is like planting a tree, and needs time to develop. There are times that you see things going wrong and always question what doesn’t work. But, actually, it is important to not give up and say that you have to try again. That you will tease many people, but at the end, it will work out. Over time, I am learning how to be more grateful for every progress that is happening inside the house. Any positive impact is important.",/post/533,2016-09-18T16:55:12.000Z,2016-09-18T16:55:12.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1150 8865,v1.0,,"People usually appreciate what we do and the way we do it. When I tell them “look at me, I am Greek-French and I look like this”. Or when they see me together with my Syrian partner. I am Christian and he is Muslim, and some people think that this is something strange. But we know how to laugh about it, and tell them that these refugees are not terrorists or criminals, but humans like everyone else.",/post/533,2016-09-18T16:54:53.000Z,2016-09-18T16:54:53.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1178 8256,v1.0,,"We now want to register as a legal entity, in order to be able to manage funds. At the moment, I am renting the house under my name, paying 1000 euro for a monthly rent, and another 1000 for utility bills. The volunteers of the Orange House usually bring some cash and then we ask it they can change that lamp, or cover some other cost. We always have one volunteer sleeping inside the house, and we have a schedule of who is coming and for what reason. There are no public authorities or institutions involved in the project. We are just like that. Mohammed, one of the board members, works as a doctor for Doctors of the World and brings useful information about persons that need shelter. Some other NGOs also visit us to see in there are any needs.",/post/533,2016-09-18T16:54:29.000Z,2016-09-18T16:54:29.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1074 6044,v1.0,,"The operations of the house are managed by the community. For example, an Iranian woman is teaching someone else to do jewelry. Same goes with all housekeeping, like cooking and cleaning.",/post/533,2016-09-18T16:54:15.000Z,2016-09-18T16:54:15.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,416 4964,v1.0,,I'd love to learn more about your process and they way you initially reached out to the refugees. How did you get them to trust you and your service? Have you had any scary moments?,/post/8654,2016-09-18T16:53:57.000Z,2016-09-18T16:53:57.000Z,8654,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,126 4963,v1.0,,allieviate the problems between the local residents and the refugees on the Camp.,/post/8654,2016-09-18T16:53:47.000Z,2016-09-18T16:53:47.000Z,8654,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,126 8698,v1.0,,"This sounds like a fantastic project. Congratualtions on your initiative and making it all work out so well. It's great to hear a positive story where people are learning to integrate and create a new life out of a difficult situation. There are certainly lessons that could be learnt from your experiences. I hope that i can share some of them with the volunteer teams that work in Calais. A project like yours in Calais would be a real start to help allieviate the problems between the local residents and the refugees on the Camp. I'd love to learn more about your process and they way you initially reached out to the refugees. How did you get them to trust you and your service? Have you had any scary moments?",/post/8654,2016-09-18T16:53:27.000Z,2016-09-18T16:53:27.000Z,8654,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1150 10533,v1.0,,"Our house is open for visits by NGOs, artists, gardeners and everyone who wishes to offer creative inputs, such as salsa, music classes, or just brainstorm on what we can do better. It is hard to say how many people visit the common space. Some people come for a specific activity like a lesson in German or French. Some other women bring their kids for all day long. Volunteers can also attend classes and other activities, which are offered totally free. However, we are planning to be able to make some items to sell, such as cooked food or jewelry made by some of the residents. Our idea for the future of the house is that the refugees in collaboration with the wider community will be able to generate their own money through the skills they have and develop. For example, we have some women with a talent for cooking, hairdressing, and Arabic calligraphy. The idea is that one day all this will evolve to a social enterprise, where residents in the Orange House will be their own boss.",/post/533,2016-09-15T02:03:02.000Z,2016-09-15T02:03:02.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1572 8697,v1.0,,"Our house is open for visits by NGOs, artists, gardeners and everyone who wishes to offer creative inputs, such as salsa, music classes, or just brainstorm on what we can do better. It is hard to say how many people visit the common space. Some people come for a specific activity like a lesson in German or French. Some other women bring their kids for all day long. Volunteers can also attend classes and other activities, which are offered totally free. However, we are planning to be able to make some items to sell, such as cooked food or jewelry made by some of the residents. Our idea for the future of the house is that the refugees in collaboration with the wider community will be able to generate their own money through the skills they have and develop. For example, we have some women with a talent for cooking, hairdressing, and Arabic calligraphy. The idea is that one day all this will evolve to a social enterprise, where residents in the Orange House will be their own boss.",/post/533,2016-09-15T02:02:40.000Z,2016-09-15T02:02:40.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1150 7107,v1.0,,"The house has three floors, the upper one reserved for resident refugees who live inside it. They cook, clean and take care of the space by themselves. We rarely enter their space, unless some maintenance work is necessary. On the ground floor, there is a common space for everyone, which hosts several classes and sessions: from yoga to music, salsa dancing, and movie screenings. We use the half-basement, as a classroom for language classes, including Greek, English, Spanish, French and German on different levels. We also have a room in which we just meet to talk with each other and other spaces for storing clothes, glasses, food, educational material, bathing towels, etc. There is a kitchen and bathroom for people to walk in, a courtyard and a simple roof garden to grow vegetables in self-made contained made of old cargo palettes. The Orange House hosts a specialized 2-hour LGBT program for refugees every Monday, also visited by a guy from an Athens checkpoint to meet and offer help to the community.",/post/533,2016-09-15T02:02:17.000Z,2016-09-15T02:02:17.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,766 8696,v1.0,,"The house has three floors, the upper one reserved for resident refugees who live inside it. They cook, clean and take care of the space by themselves. We rarely enter their space, unless some maintenance work is necessary. On the ground floor, there is a common space for everyone, which hosts several classes and sessions: from yoga to music, salsa dancing, and movie screenings. We use the half-basement, as a classroom for language classes, including Greek, English, Spanish, French and German on different levels. We also have a room in which we just meet to talk with each other and other spaces for storing clothes, glasses, food, educational material, bathing towels, etc. There is a kitchen and bathroom for people to walk in, a courtyard and a simple roof garden to grow vegetables in self-made contained made of old cargo palettes. The Orange House hosts a specialized 2-hour LGBT program for refugees every Monday, also visited by a guy from an Athens checkpoint to meet and offer help to the community.",/post/533,2016-09-15T02:01:58.000Z,2016-09-15T02:01:58.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1150 7869,v1.0,,"The house has three floors, the upper one reserved for resident refugees who live inside it. They cook, clean and take care of the space by themselves. We rarely enter their space, unless some maintenance work is necessary. On the ground floor, there is a common space for everyone, which hosts several classes and sessions: from yoga to music, salsa dancing, and movie screenings. We use the half-basement, as a classroom for language classes, including Greek, English, Spanish, French and German on different levels. We also have a room in which we just meet to talk with each other and other spaces for storing clothes, glasses, food, educational material, bathing towels, etc. There is a kitchen and bathroom for people to walk in, a courtyard and a simple roof garden to grow vegetables in self-made contained made of old cargo palettes. The Orange House hosts a specialized 2-hour LGBT program for refugees every Monday, also visited by a guy from an Athens checkpoint to meet and offer help to the community.",/post/533,2016-09-15T02:01:51.000Z,2016-09-15T02:01:51.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,962 7868,v1.0,,"I am involved in refugee care as a volunteer since years because several of my friends are refugees. My partner, Hassan, comes from Syria and also had to cross the Aegean Sea. Last year, when I saw the gaps in the official structures for refugee  relief, I decided to create the Orange House. Many non-Greek volunteers offered to give money if I decided to build something. At first, we only thought of one room, because we didn’t have a lot of cash. But then, we found this house that was not used for several months. In fact, it was an old electronics and computer shop. Slowly, I started asking for help and people got involved with all things related to opening a space that would offer human shelter. This was the beginning of the Orange House, which opened in May 2016.",/post/533,2016-09-15T02:01:43.000Z,2016-09-15T02:01:43.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,962 8695,v1.0,,"I am involved in refugee care as a volunteer since years because several of my friends are refugees. My partner, Hassan, comes from Syria and also had to cross the Aegean Sea. Last year, when I saw the gaps in the official structures for refugee  relief, I decided to create the Orange House. Many non-Greek volunteers offered to give money if I decided to build something. At first, we only thought of one room, because we didn’t have a lot of cash. But then, we found this house that was not used for several months. In fact, it was an old electronics and computer shop. Slowly, I started asking for help and people got involved with all things related to opening a space that would offer human shelter. This was the beginning of the Orange House, which opened in May 2016.",/post/533,2016-09-15T02:00:45.000Z,2016-09-15T02:00:45.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1150 8694,v1.0,,The Orange House in the heart of Athens is changing the negative image about refugees through the cultivation of social skills.,/post/533,2016-09-15T02:00:19.000Z,2016-09-15T02:00:19.000Z,533,3323,AnnotatorStore::TextAnnotation,,,,,,,,,500,1150 9922,v1.0,,"What views works best? It'll be useful to build it as a mockup if we do not already have it -- use color pens, paper, clips, cardboard and build it into a mock-up! For what tasks? Do we need to move things around? Pile them up to trigger comparison of things on-the-fly? Lasso an item to trigger some computation? -- use post-it notes, cut and paste pieces of paper, draw arrows to turn tasks into real actions (on a screen!). Using what ingredient (data)? What should we feed the system with to accomplish these analytical tasks? -- write them down, cut & paste, associate them with specific tasks, embed them into views.",/post/5260,2016-07-23T13:50:48.000Z,2016-07-23T13:50:48.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1445 9921,v1.0,,Concept-to-concept conversation networks tell us how the different concepts connect to each other. Are there surprises? Do apparently unrelated concepts tend to come up in the same exchanges? Anomalies might mean something interesting is going on,/post/5260,2016-07-23T13:50:38.000Z,2016-07-23T13:50:38.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1445 9920,v1.0,,"Are there individuals who act as ""hubs""? Why? Can we use hubs to improve the process, for example asking them to spread important knowledge?",/post/5260,2016-07-23T13:50:22.000Z,2016-07-23T13:50:22.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1445 5087,v1.0,,We come together to find out how networked humans can better take care of each other.,/post/5260,2016-07-23T13:50:12.000Z,2016-07-23T13:50:12.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,147 9919,v1.0,,How do you know your network is going in the right direction? What is a “direction” in this context? Is everyone following the same path? Do people group into sub-communities? What are the focus of these (sub) communities?,/post/5260,2016-07-23T13:50:03.000Z,2016-07-23T13:50:03.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1445 5554,v1.0,,"We think that this ceaseless exchange is collective intelligence at work. Network analysis is a useful tool to understand this process, and perhaps find ways to improve upon it. Thinking in networks is a great way to generate fresh, relevant questions. How do you know your network is going in the right direction? What is a “direction” in this context? Is everyone following the same path? Do people group into sub-communities? What are the focus of these (sub) communities?",/post/5260,2016-07-23T13:49:58.000Z,2016-07-23T13:49:58.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,334 8607,v1.0,,Why,/post/5260,2016-07-23T13:49:43.000Z,2016-07-23T13:49:43.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1143 5553,v1.0,,"The fascinating part is this: by looking at the network, we can extract information that no individual in the network has. The whole is greater than the sum of the parts. Collective intelligence",/post/5260,2016-07-23T13:48:52.000Z,2016-07-23T13:48:52.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,334 5086,v1.0,,"But conversations are networks also in another sense: each exchange contains some concepts. Example of concepts useful in care are: well-being, syringe, diabethes, fitness, prosthetics, etc. We can represent concept in a conversation as a network. Concepts themselves are its nodes; two concepts are linked if they are in the same exchange.",/post/5260,2016-07-23T13:48:34.000Z,2016-07-23T13:48:34.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,147 5085,v1.0,,"Care happens in networks. People take care of each other. They seek advice, medical help and moral support from each other. They exchange knowledge and share resources. They meet, interact, and work together. And, of course, no human can live well if he or she disconnects from the fabric of society at large (in recent times, care also happened in big bureaucracies, but that approach has issues. Here we look for something better).",/post/5260,2016-07-23T13:48:06.000Z,2016-07-23T13:48:06.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,147 5778,v1.0,,"Care happens in networks. People take care of each other. They seek advice, medical help and moral support from each other. They exchange knowledge and share resources. They meet, interact, and work together. And, of course, no human can live well if he or she disconnects from the fabric of society at large (in recent times, care also happened in big bureaucracies, but that approach has issues. Here we look for something better).",/post/5260,2016-07-23T13:48:02.000Z,2016-07-23T13:48:02.000Z,5260,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5227,377 9267,v1.0,,"Ezio: co-design process. These tools could be part of the solution. We are now a network and there could then be a network of nurses doctors etc. This discussion can in a similar way happen among care-givers? Costantino: the conversation will not be the result of this group, but of a larger group. But the network of care-givers might be not committed, skilled, or motivated to use an online tool.",/post/5403,2016-07-23T13:46:42.000Z,2016-07-23T13:46:42.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1283 8489,v1.0,,"Ezio: co-design process. These tools could be part of the solution. We are now a network and there could then be a network of nurses doctors etc. This discussion can in a similar way happen among care-givers? Costantino: the conversation will not be the result of this group, but of a larger group. But the network of care-givers might be not committed, skilled, or motivated to use an online tool.",/post/5403,2016-07-23T13:45:55.000Z,2016-07-23T13:45:55.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1127 9918,v1.0,,"Ezio: co-design process. These tools could be part of the solution. We are now a network and there could then be a network of nurses doctors etc. This discussion can in a similar way happen among care-givers? Costantino: the conversation will not be the result of this group, but of a larger group. But the network of care-givers might be not committed, skilled, or motivated to use an online tool.",/post/5403,2016-07-23T13:45:49.000Z,2016-07-23T13:45:49.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1445 8606,v1.0,,"Instead of going up, going big I'm trying to go down, go deep, focus on a small group of people, without drawing a line around them (because then you'd loose the openness).",/post/5403,2016-07-23T13:45:08.000Z,2016-07-23T13:45:08.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1143 8605,v1.0,,"Alberto believes he has a narrative, a strong hypothesis. Collective intelligence. Small scale collective intelligence. Problems are local, resources are local. So if we have a permanent think-tank on a platform and a cheap way to harvest from it, then we have a tool for a local community to use. You can identify the emergent groups of experts on specific topics and look at them rather than having to make a large scale study.",/post/5403,2016-07-23T13:45:02.000Z,2016-07-23T13:45:02.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1143 9917,v1.0,,What is the question that this network representation can answer? The sociology of the network.,/post/5403,2016-07-23T13:44:03.000Z,2016-07-23T13:44:03.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1445 8604,v1.0,,"Deep conversation, rather than big data.",/post/5403,2016-07-23T13:42:47.000Z,2016-07-23T13:42:47.000Z,5403,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5370,1143 8488,v1.0,,"Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.",/post/7673,2016-07-23T13:40:45.000Z,2016-07-23T13:40:45.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1127 7951,v1.0,,"Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.",/post/7673,2016-07-23T13:40:38.000Z,2016-07-23T13:40:38.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,982 5777,v1.0,,"Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.",/post/7673,2016-07-23T13:40:28.000Z,2016-07-23T13:40:28.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,377 7369,v1.0,,"Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.",/post/7673,2016-07-23T13:40:12.000Z,2016-07-23T13:40:12.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,824 6989,v1.0,,"Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.",/post/7673,2016-07-23T13:39:52.000Z,2016-07-23T13:39:52.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,731 8603,v1.0,,"I had used the 3-person 'storytelling' approach before (possibly at another LOTE?) but I really found it effective here. Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection. So this was a nice chance to gradually eke out insights from our collective experience, we started on a relatively basic level and then by the end we had covered a lot of ground, a sense of trust and intimacy was developed we got into some very interesting questions (and answers!)",/post/7673,2016-07-23T13:39:08.000Z,2016-07-23T13:39:08.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1143 8487,v1.0,,"Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection.",/post/7673,2016-07-23T13:38:48.000Z,2016-07-23T13:38:48.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1127 9777,v1.0,,"Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection",/post/7673,2016-07-23T13:38:06.000Z,2016-07-23T13:38:06.000Z,7673,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1409 5848,v1.0,,"Going from the personal and going global to create  Common ground (everywhere) Connection → Empathy",/post/5405,2016-07-23T13:37:42.000Z,2016-07-23T13:37:42.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,378 4954,v1.0,,"Going from the personal and going global to create  Common ground (everywhere) Connection → Empathy",/post/5405,2016-07-23T13:37:37.000Z,2016-07-23T13:37:37.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,126 7206,v1.0,,Connection → Empathy,/post/5405,2016-07-23T13:37:27.000Z,2016-07-23T13:37:27.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,781 7205,v1.0,,When does storytelling create empathy? What are the conditions? That it create a connexion to the other person’s circumstances.,/post/5405,2016-07-23T13:37:12.000Z,2016-07-23T13:37:12.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,781 9916,v1.0,,What does this mean for narratives of care?,/post/5405,2016-07-23T13:36:55.000Z,2016-07-23T13:36:55.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1445 4683,v1.0,,"Carriers of narratives – Fiction of narratives, fables, archetypes or a story pattern (David and goliath, or the fool, the hero who goes on a quest). Look at propaganda in the LRA.",/post/5405,2016-07-23T13:35:59.000Z,2016-07-23T13:35:59.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,58 9915,v1.0,,"What stories? Does the narrative approach scale as well as we think it does? → Can you actually bring it global? Yes if you recognize the identity and scaling issue?",/post/5405,2016-07-23T13:35:19.000Z,2016-07-23T13:35:19.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1445 9914,v1.0,,Showcase the offer and manage expectations. But how?,/post/5405,2016-07-23T13:35:13.000Z,2016-07-23T13:35:13.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1445 10662,v1.0,,"Sharing care experiences.    What does this mean for narratives of care?",/post/5405,2016-07-23T13:34:51.000Z,2016-07-23T13:34:51.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1625 6988,v1.0,,Burden of care should be spread among people.,/post/5405,2016-07-23T13:34:43.000Z,2016-07-23T13:34:43.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,731 5776,v1.0,,Burden of care should be spread among people.,/post/5405,2016-07-23T13:34:33.000Z,2016-07-23T13:34:33.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,377 7204,v1.0,,"Common experiences – if I have been through an experience, am I more equipped to support the other facing that experience?",/post/5405,2016-07-23T13:34:21.000Z,2016-07-23T13:34:21.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,781 7203,v1.0,,"Important concepts for care (therefore to include into storytelling practice): Communion Compassion Self-care Awareness Why you help and whether you are more helped yourself.",/post/5405,2016-07-23T13:34:00.000Z,2016-07-23T13:34:00.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,781 10259,v1.0,,"Important concepts for care (therefore to include into storytelling practice): Communion Compassion Self-care Awareness Why you help and whether you are more helped yourself.",/post/5405,2016-07-23T13:33:53.000Z,2016-07-23T13:33:53.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1499 11470,v1.0,,"Important concepts for care (therefore to include into storytelling practice): Communion Compassion Self-care Awareness Why you help and whether you are more helped yourself.",/post/5405,2016-07-23T13:33:35.000Z,2016-07-23T13:33:35.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1851 11469,v1.0,,"Idea of expectations from a particular context: only support certain things in certain circumstances. You only want to care about certain things at certain times so there is the question of: Timing Context when shared?",/post/5405,2016-07-23T13:33:19.000Z,2016-07-23T13:33:19.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1851 4662,v1.0,,"Idea of expectations from a particular context: only support certain things in certain circumstances. You only want to care about certain things at certain times so there is the question of: Timing Context when shared?",/post/5405,2016-07-23T13:32:58.000Z,2016-07-23T13:32:58.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,47 9680,v1.0,,"Common experiences – if I have been through an experience, am I more equipped to support the other facing that experience?",/post/5405,2016-07-23T13:32:29.000Z,2016-07-23T13:32:29.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1383 9679,v1.0,,"The connexion depends on each particular case – dependency? There is a very personal experience.  It is very different when your web of personal experiences are involved.  → The relationship to distance and care is not as simple; it may be easier to care for someone who is not personally involved.  → Idea of proximity and whether it is helpful or not",/post/5405,2016-07-23T13:32:20.000Z,2016-07-23T13:32:20.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1383 10661,v1.0,,"→ If I was a combatant, I can share my story first then be better equipped to support the combatant I work with.  → Create a link through storytelling fro better care?",/post/5405,2016-07-23T13:31:45.000Z,2016-07-23T13:31:45.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1625 9913,v1.0,,"→ If I was a combatant, I can share my story first then be better equipped to support the combatant I work with.  → Create a link through storytelling fro better care?",/post/5405,2016-07-23T13:31:39.000Z,2016-07-23T13:31:39.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1445 9912,v1.0,,"Common experiences – if I have been through an experience, am I more equipped to support the other facing that experience?",/post/5405,2016-07-23T13:31:33.000Z,2016-07-23T13:31:33.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1445 9911,v1.0,,When does storytelling create empathy? What are the conditions? That it create a connexion to the other person’s circumstances.,/post/5405,2016-07-23T13:31:25.000Z,2016-07-23T13:31:25.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1445 10660,v1.0,,When does storytelling create empathy? What are the conditions? That it create a connexion to the other person’s circumstances.,/post/5405,2016-07-23T13:31:21.000Z,2016-07-23T13:31:21.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,1625 4953,v1.0,,"Providing care is providing empowerment for you and the other, helping build steps to autonomy.",/post/5405,2016-07-23T13:31:14.000Z,2016-07-23T13:31:14.000Z,5405,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5372,126 9776,v1.0,,It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.,/post/10128,2016-07-23T13:16:20.000Z,2016-07-23T13:16:20.000Z,10128,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5428,1409 10085,v1.0,,It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.,/post/10128,2016-07-23T13:16:13.000Z,2016-07-23T13:16:13.000Z,10128,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5428,1451 6203,v1.0,,It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.,/post/10128,2016-07-23T13:16:04.000Z,2016-07-23T13:16:04.000Z,10128,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5428,441 8673,v1.0,,It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.,/post/10128,2016-07-23T13:15:58.000Z,2016-07-23T13:15:58.000Z,10128,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5428,1150 8672,v1.0,,"http://www.bbc.co.uk/mediacentre/proginfo/2016/10/frontline-doctors Is a link to a writeup on an hourlong BBC documentary I watched while I was in Amsterdam last week.  I didn't see a link to watch it online, though the synopsis is very good.  It would be interesting to follow up with those doctors to see what they are doing about all this now.",/post/5461,2016-07-23T13:15:42.000Z,2016-07-23T13:15:42.000Z,5461,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5428,1150 8671,v1.0,,"http://www.rferl.org/content/lesbos-migrants-turning-boats-into-backpacks-dutch-volunteers/27587663.html is a link to a story about a Dutch woman who made a super clever hack of the junk boat and lifejacket parts to make backpacks out of them using a few simple tools, which she then taught to the refugees.  An excellent maker story solving a real problem without having to get too high tech or even ask for wither permission or forgiveness..",/post/5462,2016-07-23T13:14:40.000Z,2016-07-23T13:14:40.000Z,5462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5429,1150 7731,v1.0,,"http://www.rferl.org/content/lesbos-migrants-turning-boats-into-backpacks-dutch-volunteers/27587663.html is a link to a story about a Dutch woman who made a super clever hack of the junk boat and lifejacket parts to make backpacks out of them using a few simple tools, which she then taught to the refugees.  An excellent maker story solving a real problem without having to get too high tech or even ask for wither permission or forgiveness..",/post/5462,2016-07-23T13:14:34.000Z,2016-07-23T13:14:34.000Z,5462,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5429,924 7842,v1.0,,"This is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.",/post/10261,2016-07-23T13:13:04.000Z,2016-07-23T13:13:04.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,956 6147,v1.0,,"This is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.",/post/10261,2016-07-23T13:12:59.000Z,2016-07-23T13:12:59.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,437 6146,v1.0,,"What about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.",/post/10261,2016-07-23T13:12:51.000Z,2016-07-23T13:12:51.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,437 9403,v1.0,,"What about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.",/post/10261,2016-07-23T13:12:45.000Z,2016-07-23T13:12:45.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1308 7841,v1.0,,"What about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.",/post/10261,2016-07-23T13:12:40.000Z,2016-07-23T13:12:40.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,956 7710,v1.0,,Also mentioned: hackers making rucksacks for refugees.,/post/10261,2016-07-23T13:12:34.000Z,2016-07-23T13:12:34.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,921 7709,v1.0,,"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )",/post/10261,2016-07-23T13:12:27.000Z,2016-07-23T13:12:27.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,921 8670,v1.0,,Also mentioned: hackers making rucksacks for refugees.,/post/10261,2016-07-23T13:12:08.000Z,2016-07-23T13:12:08.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1150 7336,v1.0,,"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )",/post/10261,2016-07-23T13:11:58.000Z,2016-07-23T13:11:58.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,811 5774,v1.0,,"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )",/post/10261,2016-07-23T13:11:50.000Z,2016-07-23T13:11:50.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,377 10246,v1.0,,"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )",/post/10261,2016-07-23T13:11:27.000Z,2016-07-23T13:11:27.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1493 7730,v1.0,,"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )",/post/10261,2016-07-23T13:11:18.000Z,2016-07-23T13:11:18.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,924 9906,v1.0,,"When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location?",/post/10261,2016-07-23T13:11:08.000Z,2016-07-23T13:11:08.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1445 8249,v1.0,,"Nadia said we can find people with expert legal knowledge, and see what the situation is.",/post/10261,2016-07-23T13:10:26.000Z,2016-07-23T13:10:26.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1074 9663,v1.0,,(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws / lack of open software ?),/post/10261,2016-07-23T13:10:15.000Z,2016-07-23T13:10:15.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1377 8248,v1.0,,(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws / lack of open software ?),/post/10261,2016-07-23T13:10:07.000Z,2016-07-23T13:10:07.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1074 8247,v1.0,,Maybe hackers are put off operating on people cos they might get sued if it goes wrong? Or 'pretending' to be a dentist is illegal and only people with official training should be allowed to mess with teeth?,/post/10261,2016-07-23T13:10:02.000Z,2016-07-23T13:10:02.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1074 8246,v1.0,,I think an important question raised was 'is the legal side preventing this from happening more? Or will it get in our way?',/post/10261,2016-07-23T13:09:54.000Z,2016-07-23T13:09:54.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1074 7708,v1.0,,"To me, the most exciting idea would be to get hackers involved in health care. Healing people is (often / can be) easy when you apply creativity and radical tech and hacker problem solving mentality.",/post/10261,2016-07-23T13:09:43.000Z,2016-07-23T13:09:43.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,921 7729,v1.0,,"To me, the most exciting idea would be to get hackers involved in health care. Healing people is (often / can be) easy when you apply creativity and radical tech and hacker problem solving mentality.",/post/10261,2016-07-23T13:09:36.000Z,2016-07-23T13:09:36.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,924 8504,v1.0,,"(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)",/post/10261,2016-07-23T13:09:19.000Z,2016-07-23T13:09:19.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1129 8503,v1.0,,"For the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?",/post/10261,2016-07-23T13:09:12.000Z,2016-07-23T13:09:12.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1129 7949,v1.0,,"'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?",/post/10261,2016-07-23T13:09:02.000Z,2016-07-23T13:09:02.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,982 11421,v1.0,,"(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)",/post/10261,2016-07-23T13:08:29.000Z,2016-07-23T13:08:29.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1841 8971,v1.0,,"(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)",/post/10261,2016-07-23T13:08:22.000Z,2016-07-23T13:08:22.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1208 8970,v1.0,,": 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?",/post/10261,2016-07-23T13:07:58.000Z,2016-07-23T13:07:58.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1208 10084,v1.0,,"'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?",/post/10261,2016-07-23T13:07:48.000Z,2016-07-23T13:07:48.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1451 9905,v1.0,,"For the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?",/post/10261,2016-07-23T13:07:36.000Z,2016-07-23T13:07:36.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1445 9904,v1.0,,"Does our client (client?) care about the situation in America, or because it's EU money do they not care about far away places, with maybe completely different situations / cultures?",/post/10261,2016-07-23T13:07:28.000Z,2016-07-23T13:07:28.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1445 8191,v1.0,,How many people need care and are not getting it?,/post/10261,2016-07-23T13:07:15.000Z,2016-07-23T13:07:15.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1048 9903,v1.0,,How many doctors/clinics/hospitals there are in the area.,/post/10261,2016-07-23T13:06:00.000Z,2016-07-23T13:06:00.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1445 7418,v1.0,,"For the research part, I thought the only way to actually know what is going on would be to go to places where health care is needed, and talk to people first hand. Get a feel for their situation. (Rather that trusting info sources from others). So I think we could get people to visit anywhere that seems like it might lack good health care and talk to people in need, and the people giving the care. e.g. Refugee camps, impoverished inner city areas where there are too many people and not enough doctors / hospitals. Rural areas where it's hard for people to get health care. Go to places, talk to people get first hand accounts, do surveys and get numbers.",/post/10261,2016-07-23T13:05:48.000Z,2016-07-23T13:05:48.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,842 7728,v1.0,,"I think Nadia agreed, and said that we could/should try to get some concrete change from this project (as well as fulfilling the minimum requirements of providing the research / ideas / documentation.)",/post/10261,2016-07-23T13:05:38.000Z,2016-07-23T13:05:38.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,924 7727,v1.0,,"I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people / reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.",/post/10261,2016-07-23T13:05:21.000Z,2016-07-23T13:05:21.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,924 8452,v1.0,,"I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people / reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.",/post/10261,2016-07-23T13:05:13.000Z,2016-07-23T13:05:13.000Z,10261,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1119 7726,v1.0,,"e build a number of small, focused events in which people existing intiatives with designing and build the identified fixes/hacks/solutions and projects. Kind of like the workshop on Collaborative Inclusion...but taking place over a couple of days, in a hacker or makerspace, where you leave having built something that works",/post/5463,2016-07-23T13:04:50.000Z,2016-07-23T13:04:50.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,924 10659,v1.0,,"We share their stories online and engage the internet in making sense of the challenges they face, as well as identifying fixes/hacks/solutions/new projects. Part of this is sharing specifications, doing requirements engineering and the necessary background research to determine viability of different proposals.",/post/5463,2016-07-23T13:03:57.000Z,2016-07-23T13:03:57.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1625 10658,v1.0,,These stories are designed as informative case studies with a specific call for action from the broader community.,/post/5463,2016-07-23T13:03:51.000Z,2016-07-23T13:03:51.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1625 7417,v1.0,,"An obvious path towards achieiving impact is to find, acknowledge and draw support towards people who already are doing important work.",/post/5463,2016-07-23T13:03:38.000Z,2016-07-23T13:03:38.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,842 7725,v1.0,,"When it comes to DIY solutions to health- and social care problems, there is a key tension between asking for permission and asking for forgiveness. Who/how can and should we convene around finding legal/administrative hacks for existing DIY solutions to health- and social care problems?",/post/5463,2016-07-23T13:03:01.000Z,2016-07-23T13:03:01.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,924 9375,v1.0,,"When it comes to DIY solutions to health- and social care problems, there is a key tension between asking for permission and asking for forgiveness. Who/how can and should we convene around finding legal/administrative hacks for existing DIY solutions to health- and social care problems?",/post/5463,2016-07-23T13:02:53.000Z,2016-07-23T13:02:53.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1299 7416,v1.0,,"We need raw data about how the healthcare situation is currently being managed, but from first hand sources...ie go out and ask people on the ground. How many doctors, nurses and others are currently active in caring for the new arrivals? Where are the resources coming from, is it mainly charities? Is this information already out there and is anyone aggregating information about the different intiatives providing care services to people?",/post/5463,2016-07-23T13:02:45.000Z,2016-07-23T13:02:45.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,842 8486,v1.0,,"We need raw data about how the healthcare situation is currently being managed, but from first hand sources...ie go out and ask people on the ground. How many doctors, nurses and others are currently active in caring for the new arrivals? Where are the resources coming from, is it mainly charities? Is this information already out there and is anyone aggregating information about the different intiatives providing care services to people?",/post/5463,2016-07-23T13:02:29.000Z,2016-07-23T13:02:29.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1127 8669,v1.0,,"Is there a distincting between the NHS overall (long term) and the temporary refugee situation:  Is it just a question of money, or are/were there some things that can be improved? How does a clinic in Brixton cope with a situation in which you have five hundred people who have just walked to Calais and have broken feet? In addition to the Epidemological situation.",/post/5463,2016-07-23T13:02:20.000Z,2016-07-23T13:02:20.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1150 8668,v1.0,,"Im many EU countries the welfare infrastructure was designed for populations with planned groth. With more refugees arriving you both have an increase in number of people to care for, and different kinds of needs which is being framed as the source of "" chaos in the system"". Perhaps it would make sense to look at how health- and social care is being managed both in the camps and temporary receoption centres, as well as in the mainstream healthcare providers.",/post/5463,2016-07-23T13:02:10.000Z,2016-07-23T13:02:10.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1150 6892,v1.0,,"The Diabetes implant: What was an illegal hack in 2012, is now a solution that is available for others. How did this happen? What kind of legal hoops did they have to jump through?",/post/5463,2016-07-23T13:01:59.000Z,2016-07-23T13:01:59.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,704 9902,v1.0,,"The Diabetes implant: What was an illegal hack in 2012, is now a solution that is available for others. How did this happen? What kind of legal hoops did they have to jump through?",/post/5463,2016-07-23T13:01:52.000Z,2016-07-23T13:01:52.000Z,5463,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5430,1445 8667,v1.0,,"omorrow the second meeting with the Milanese community will take place. Comune di Milano and WeMake, in collaboration with the association ""Villa Pallavicini"" have organized a presentation of OpenCare to engage a local migrant community.",/post/5465,2016-07-23T13:01:34.000Z,2016-07-23T13:01:34.000Z,5465,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5432,1150 6340,v1.0,,"I'm more worried about people hacking into my computer. My computer is part of me / my brain. OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing. I don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable. So my point is: This IoT security panic is being blown out of proportion. It's nothing new. Sure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.",/post/10467,2016-07-23T13:00:34.000Z,2016-07-23T13:00:34.000Z,10467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5436,459 8123,v1.0,,"I'm more worried about people hacking into my computer. My computer is part of me / my brain. OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing. I don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable. So my point is: This IoT security panic is being blown out of proportion. It's nothing new. Sure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.",/post/10467,2016-07-23T13:00:27.000Z,2016-07-23T13:00:27.000Z,10467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5436,1028 6339,v1.0,,"I'm more worried about people hacking into my computer. My computer is part of me / my brain. OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing. I don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable. So my point is: This IoT security panic is being blown out of proportion. It's nothing new. Sure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.",/post/10467,2016-07-23T13:00:17.000Z,2016-07-23T13:00:17.000Z,10467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5436,459 8122,v1.0,,"I'm more worried about people hacking into my computer. My computer is part of me / my brain. OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.",/post/10467,2016-07-23T13:00:06.000Z,2016-07-23T13:00:06.000Z,10467,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5436,1028 8485,v1.0,,"Also, let me know if you know professionals that are also good writers whom we can approach for writing stories in response to the themes - personal experiences and takes on the issue (example of a contribution)",/post/15411,2016-07-23T12:59:18.000Z,2016-07-23T12:59:18.000Z,15411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1127 8484,v1.0,,"It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.",/post/15411,2016-07-23T12:58:41.000Z,2016-07-23T12:58:41.000Z,15411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1127 10752,v1.0,,"It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.",/post/15411,2016-07-23T12:58:32.000Z,2016-07-23T12:58:32.000Z,15411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1638 6417,v1.0,,". It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.",/post/15411,2016-07-23T12:58:27.000Z,2016-07-23T12:58:27.000Z,15411,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,478 8666,v1.0,,"People on the move makes a lot of sense. It includes people who move for any number of reasons. But we then need to give people some examples of what might fall under that, e.g. People fleeing war, People moving abroad to study, working mostly online and living in different parts of the world etc.",/post/13542,2016-07-23T12:58:12.000Z,2016-07-23T12:58:12.000Z,13542,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1150 8532,v1.0,,"On the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it's about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges. In this case we might lose some focus if we move over to ""mental distress"".",/post/10741,2016-07-23T12:57:55.000Z,2016-07-23T12:57:55.000Z,10741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1140 10751,v1.0,,"On the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it's about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges. In this case we might lose some focus if we move over to ""mental distress"".",/post/10741,2016-07-23T12:57:47.000Z,2016-07-23T12:57:47.000Z,10741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1638 10750,v1.0,,"here is probably nothing to be gained by restricting to hackers the suicide prevention story (we are looking into it as part of a different piece of work we are doing in Galway: apparently, suicide is endemic in the West of Ireland). If we just look into suicide prevention, we can still fetch all of the stories coming from the hacker community.",/post/10741,2016-07-23T12:57:31.000Z,2016-07-23T12:57:31.000Z,10741,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1638 8531,v1.0,,Why don’t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?,/post/6774,2016-07-23T12:57:13.000Z,2016-07-23T12:57:13.000Z,6774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1140 7707,v1.0,,"Prevention of Suicide in the hacker community This target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and  not makers? what are really hackers?) . Why don’t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?",/post/6774,2016-07-23T12:57:03.000Z,2016-07-23T12:57:03.000Z,6774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,921 10749,v1.0,,"Prevention of Suicide in the hacker community This target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and  not makers? what are really hackers?) . Why don’t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?",/post/6774,2016-07-23T12:56:58.000Z,2016-07-23T12:56:58.000Z,6774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1638 8665,v1.0,,"We agree with what you propose, we have a couple of comments regarding two of the domains: social/health care to refugees Why focus only on refugees and not on migrants in general? Or if we don’t want to call them migrants and refugees, let’s call them something like people in movement without papers: Sans-Papier",/post/6774,2016-07-23T12:56:50.000Z,2016-07-23T12:56:50.000Z,6774,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1150 6441,v1.0,,"Can we design interventions offer workarounds to the obstacles these intiatives, and the indivuals they attempt to support (caregivers and care recipients)? What forms could these interventions take in order to unlock more care in the different situations (artefacts, communication, services, processes, upskilling, administrative and legal hacks, policy changes and or something else? Here I think the ingenuity and very particular skillset of Costantino, Zoe and others in the weMake constellation could make a very important contribution.",/post/5479,2016-07-23T12:55:56.000Z,2016-07-23T12:55:56.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,485 10245,v1.0,,"Can we design interventions offer workarounds to the obstacles these intiatives, and the indivuals they attempt to support (caregivers and care recipients)? What forms could these interventions take in order to unlock more care in the different situations (artefacts, communication, services, processes, upskilling, administrative and legal hacks, policy changes and or something else? Here I think the ingenuity and very particular skillset of Costantino, Zoe and others in the weMake constellation could make a very important contribution.",/post/5479,2016-07-23T12:55:37.000Z,2016-07-23T12:55:37.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1493 5434,v1.0,,The city as a place and institutions is where all of these interactions and relationships live (or do not). Can Lucia and Rossana and others in the city of Milano help us understand how a city can make visible and enable promising approaches and nurturing the people who drive them?,/post/5479,2016-07-23T12:55:19.000Z,2016-07-23T12:55:19.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,311 7248,v1.0,,"They involve and require a deep understanding of healing and medical practice, especially the ethical considerations for both caregivers and care recipients. Can Marco, Massimo's and other's work in the field and in the lab help us to identify and understand how to deal with these issues? In the research as well as in the intiatives themselves?",/post/5479,2016-07-23T12:55:05.000Z,2016-07-23T12:55:05.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,792 8483,v1.0,,"They involve some interaction with the formal health and social care system, conditions as well as norms/behaviors in society at large. Can Erik and Tino's approach help us make sense of this and translating it into institutionally comprehensible language?",/post/5479,2016-07-23T12:54:52.000Z,2016-07-23T12:54:52.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1127 5773,v1.0,,"They involve people in vulnerable situations where dynamics in community connections, or lack of, play a significant role. Can Guy/Alberto's network science perspective help us to make visible and understand these social flows?",/post/5479,2016-07-23T12:54:40.000Z,2016-07-23T12:54:40.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,377 11407,v1.0,,"They involve people in vulnerable situations where dynamics in community connections, or lack of, play a significant role. Can Guy/Alberto's network science perspective help us to make visible and understand these social flows?",/post/5479,2016-07-23T12:54:28.000Z,2016-07-23T12:54:28.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1834 6416,v1.0,,Helping both caregivers and care receivers in dealing with dementia,/post/5479,2016-07-23T12:54:18.000Z,2016-07-23T12:54:18.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,478 5110,v1.0,,Helping both caregivers and care receivers in dealing with dementia,/post/5479,2016-07-23T12:54:13.000Z,2016-07-23T12:54:13.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,149 7706,v1.0,,Prevention of Suicide in the hacker community,/post/5479,2016-07-23T12:54:05.000Z,2016-07-23T12:54:05.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,921 10748,v1.0,,Prevention of Suicide in the hacker community,/post/5479,2016-07-23T12:53:57.000Z,2016-07-23T12:53:57.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1638 11406,v1.0,,Social and or health care of refugees in Europe,/post/5479,2016-07-23T12:53:48.000Z,2016-07-23T12:53:48.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1834 8664,v1.0,,Social and or health care of refugees in Europe,/post/5479,2016-07-23T12:53:40.000Z,2016-07-23T12:53:40.000Z,5479,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5446,1150 11558,v1.0,,Local staff of opencare (Comune di Milano and WeMake) meets some parents of boys and girls with different abilities,/post/5490,2016-07-23T12:51:00.000Z,2016-07-23T12:51:00.000Z,5490,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5457,1873 8477,v1.0,,John Willibanks of Sage Bionetworks about medical data https://www.ted.com/talks/john_wilbanks_let_s_pool_our_medical_data?language=en,/post/5491,2016-07-23T12:50:34.000Z,2016-07-23T12:50:34.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,1124 6940,v1.0,,John Willibanks of Sage Bionetworks about medical data https://www.ted.com/talks/john_wilbanks_let_s_pool_our_medical_data?language=en,/post/5491,2016-07-23T12:50:25.000Z,2016-07-23T12:50:25.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,722 9124,v1.0,,"Inspired by open-source software models, Sage Bionetworks co-founder Stephen Friend builds tools that facilitate research sharing on a massive and revolutionary scale: https://www.ted.com/talks/stephen_friend_the_hunt_for_unexpected_genetic_heroes",/post/5491,2016-07-23T12:49:20.000Z,2016-07-23T12:49:20.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,1257 9162,v1.0,,"The team will be lead by Luping Xu and Francois Grey (active in open hardware community at cyberlab - read more here  http://cds.cern.ch/journal/CERNBulletin/2016/11/News%20Articles/2137964?ln=en ) , and will actively engage with the maker spaces in Shenzhen.",/post/5491,2016-07-23T12:49:05.000Z,2016-07-23T12:49:05.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,1259 10244,v1.0,,"he 3-day meeting is part conference and part hands-on. We're in the Innovation in open science project team and we'll: ""Explore hacker/maker space projects in digital health and the environment.  Imagine a gathering where we will tackle the theme of the Assembly by making something together in a state-of-the-art maker space.  Luping Xu and Francois Grey, with the help of esteemed leaders in the maker world such as David Li and Eric Pan, will guide participants in a brainstorming session to build software or make objects in a space with equipment such as 3-D printers, sewing machines with conductive thread, microcontrollers, sensors, the works! """,/post/5491,2016-07-23T12:47:54.000Z,2016-07-23T12:47:54.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,1493 10243,v1.0,,"he works! """,/post/5491,2016-07-23T12:47:44.000Z,2016-07-23T12:47:44.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,1493 9376,v1.0,,"he increasing knowledge through personal sensors, and how this form of open learning in a digital era can be applied to an area of shared concern – the environment.  the meeting will focus on the ubiquity of and the knowledge to be gained from personal sensors, and how this information can be applied to address issues of real concern.",/post/5491,2016-07-23T12:47:07.000Z,2016-07-23T12:47:07.000Z,5491,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5458,1300 5065,v1.0,,"Care is deeply human. Everyone has first-hand experience of it. Even those if us who are not doctors or nurses or caregivers are occasionally patients (even doctors!); we all have first-hand experience of giving and receving care. So, everyone is welcome to join the conversation and the subsequent prototypes.",/post/5510,2016-07-23T12:45:29.000Z,2016-07-23T12:45:29.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,146 10242,v1.0,,"augment them with state-of-the-art maker technology (3D printing, laser cutting, biohacking…) combine everything we learn into the design and prototype of next generation community driven care services.",/post/5510,2016-07-23T12:44:11.000Z,2016-07-23T12:44:11.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1493 10657,v1.0,,"collect experiences of community-driven care services validate them through open discussion, both online and offline.",/post/5510,2016-07-23T12:44:03.000Z,2016-07-23T12:44:03.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1625 10241,v1.0,,What if we could come up with a system that combines the access to modern science and technology of state- and private sector-provided care to the low overhead and human touch of community-provided care?,/post/5510,2016-07-23T12:43:36.000Z,2016-07-23T12:43:36.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1493 5847,v1.0,,What if we could come up with a system that combines the access to modern science and technology of state- and private sector-provided care to the low overhead and human touch of community-provided care?,/post/5510,2016-07-23T12:43:27.000Z,2016-07-23T12:43:27.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,378 9901,v1.0,,What if we could come up with a system that combines the access to modern science and technology of state- and private sector-provided care to the low overhead and human touch of community-provided care,/post/5510,2016-07-23T12:43:17.000Z,2016-07-23T12:43:17.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1445 9775,v1.0,,"Additionally, any attempt to rationalise the system and squeeze some extra productivity out of it seems to dehumanise people in need of care, who get treated as batches in a manufacturing process.",/post/5510,2016-07-23T12:43:00.000Z,2016-07-23T12:43:00.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1409 10083,v1.0,,"the demand for professional care (health care, social care, daycare for children, care for elderly people…) seems limitless, but the resources our economies allocate to it clearly are not",/post/5510,2016-07-23T12:42:34.000Z,2016-07-23T12:42:34.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1451 6208,v1.0,,"demand for professional care (health care, social care, daycare for children, care for elderly people…) seems limitless, but the resources our economies allocate to it clearly are not.",/post/5510,2016-07-23T12:42:09.000Z,2016-07-23T12:42:09.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,442 8482,v1.0,,"Starting from the second half of the 20th century, developed countries switched to systems where the care providers were professionals, working for the government and modern corporations.",/post/5510,2016-07-23T12:41:49.000Z,2016-07-23T12:41:49.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,1127 5772,v1.0,,"care services – which today we call health and social care – were provided by communities: family members, friends and neighbours would check on each other to make sure everyone was fine, keep an eye on each other's children or elderly parents, even administer simple medical treatments.",/post/5510,2016-07-23T12:41:37.000Z,2016-07-23T12:41:37.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,377 7816,v1.0,,"For most of humanity's history, care services – which today we call health and social care – were provided by communities: family members, friends and neighbours would check on each other to make sure everyone was fine, keep an eye on each other's children or elderly parents, even administer simple medical treatments. Starting from the second half of the 20th century, developed countries switched to systems where the care providers were professionals, working for the government and modern corporations.",/post/5510,2016-07-23T12:41:04.000Z,2016-07-23T12:41:04.000Z,5510,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5477,953 9123,v1.0,,The second free hands-on workshop of the #opencare series will take place this next Thursday 7 april in Milan at ‘5 Forum delle politiche sociali’. Come and learn how to create an #IoT #opensource service to monitor and take care of your loved ones remotely.,/post/5518,2016-07-23T12:39:28.000Z,2016-07-23T12:39:28.000Z,5518,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5485,1257 7724,v1.0,,The second free hands-on workshop of the #opencare series will take place this next Thursday 7 april in Milan at ‘5 Forum delle politiche sociali’. Come and learn how to create an #IoT #opensource service to monitor and take care of your loved ones remotely.,/post/5518,2016-07-23T12:39:23.000Z,2016-07-23T12:39:23.000Z,5518,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5485,924 8663,v1.0,,"The Danish city of Randers made it mandatory for public institutions, including cafeterias in kindergartens and day-care centers, to have pork dishes on their menus.  States in southern Germany can seize assets from refugees if they are worth more than 750 euros. Slovakia said that it will refuse entry to Muslim refugees, instead announcing that it would take in only Christians.",/post/5545,2016-07-23T12:24:18.000Z,2016-07-23T12:24:18.000Z,5545,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5512,1150 11405,v1.0,,"The Danish city of Randers made it mandatory for public institutions, including cafeterias in kindergartens and day-care centers, to have pork dishes on their menus.  States in southern Germany can seize assets from refugees if they are worth more than 750 euros. Slovakia said that it will refuse entry to Muslim refugees, instead announcing that it would take in only Christians.",/post/5545,2016-07-23T12:24:11.000Z,2016-07-23T12:24:11.000Z,5545,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5512,1834 6202,v1.0,,"The Danish city of Randers made it mandatory for public institutions, including cafeterias in kindergartens and day-care centers, to have pork dishes on their menus.  States in southern Germany can seize assets from refugees if they are worth more than 750 euros. Slovakia said that it will refuse entry to Muslim refugees, instead announcing that it would take in only Christians.",/post/5545,2016-07-23T12:24:05.000Z,2016-07-23T12:24:05.000Z,5545,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5512,441 8662,v1.0,,"The migration issue dominates the European political debate. The influx of migrants, some people say, will break the European welfare system. Any new person coming in is reducing the amount of care that others can get. Care is supposedly a zero-sum game. Is this really the case?",/post/5581,2016-07-23T09:49:57.000Z,2016-07-23T09:49:57.000Z,5581,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5548,1150 9899,v1.0,,"Public policy design and evaluation: how can community-driven care services be integrated in the highly sensitive, highly regulated landscape of European care provision?",/post/5377,2016-07-23T09:47:39.000Z,2016-07-23T09:47:39.000Z,5377,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5344,1445 9898,v1.0,,Open hardware: how can rapid prototyping and open hardware platforms be used in the participatory design of care services?,/post/5377,2016-07-23T09:47:33.000Z,2016-07-23T09:47:33.000Z,5377,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5344,1445 9897,v1.0,,Design: how can we bring state-of-the-art design for sustainability and service design practices into designing care provision?,/post/5377,2016-07-23T09:47:24.000Z,2016-07-23T09:47:24.000Z,5377,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5344,1445 9896,v1.0,,Domain expertise on care: how can communities interface with the academic debate on what constitutes care and how it should be done?,/post/5377,2016-07-23T09:47:17.000Z,2016-07-23T09:47:17.000Z,5377,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5344,1445 9895,v1.0,,Collective intelligence: how can a community function as a knowledge engine?,/post/5377,2016-07-23T09:47:08.000Z,2016-07-23T09:47:08.000Z,5377,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5344,1445 9103,v1.0,,"An analogy: Edgeryders is enabled by openness (in both the sense you mention). Openness is a big constraint on how the Edgeryders organisation is built and develops. For example, the need to stay open (and be perceived as such) drove our choice to be a not-for-profit: this choice signals that we are not trying to be extractive in our social contract between company and community. Similarly, I expect heavy conditioning of openness on the design of open care services.",/post/9933,2016-07-23T09:18:32.000Z,2016-07-23T09:18:32.000Z,9933,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5716,1256 9055,v1.0,,How and how much the openness of a design and production process influences the openness of service delivery.,/post/5749,2016-07-23T09:18:17.000Z,2016-07-23T09:18:17.000Z,5749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5716,1249 9102,v1.0,,How and how much the openness of a design and production process influences the openness of service delivery,/post/5749,2016-07-23T09:18:07.000Z,2016-07-23T09:18:07.000Z,5749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5716,1256 9893,v1.0,,How and how much the openness of a design and production process influences the openness of service delivery.,/post/5749,2016-07-23T09:17:07.000Z,2016-07-23T09:17:07.000Z,5749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5716,1445 9054,v1.0,,the openness of care-related services in use (i.e. the openness of the network of care created around the delivery of a service).,/post/5749,2016-07-23T09:16:42.000Z,2016-07-23T09:16:42.000Z,5749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5716,1249 9101,v1.0,,"the openness in the processes thanks to which enabling systems (i.e the enabling products, services, places, infrastructures) are designed and realized",/post/5749,2016-07-23T09:16:33.000Z,2016-07-23T09:16:33.000Z,5749,3323,AnnotatorStore::TextAnnotation,,,,,,,,,5716,1256 8462,v1.0,,That economic collapse can lead into and become entrenched by a collapse of meaning,/post/493,2016-07-23T08:22:12.000Z,2016-07-23T08:22:12.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 4482,v1.0,,he default future for much of Europe is a world of longer hours and lower wages,/post/493,2016-07-23T08:21:58.000Z,2016-07-23T08:21:58.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,5 8126,v1.0,,"he challenge will be to develop a vehicle for this willingness which is capable of ‘interfacing’ with existing institutions and accessing resources,",/post/493,2016-07-23T08:21:45.000Z,2016-07-23T08:21:45.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1029 8940,v1.0,,"The initial response suggests that young people are willing to take a step down in their material expectations, if this is balanced by sufficient security and autonomy to pursue work which they believe matters.",/post/493,2016-07-23T08:20:57.000Z,2016-07-23T08:20:57.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1202 8939,v1.0,,house concerts also make touring economically viable for independent musicians in a way that was harder when playing traditional venues.,/post/493,2016-07-23T08:20:23.000Z,2016-07-23T08:20:23.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1202 8461,v1.0,,"these models, drawing on the strengths of networked technologies, allow for a far more meaningful relationship with his audience than was possible in the music industry of the pre-Napster era",/post/493,2016-07-23T08:20:13.000Z,2016-07-23T08:20:13.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 8938,v1.0,,new models for making a living,/post/493,2016-07-23T08:19:13.000Z,2016-07-23T08:19:13.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1202 10496,v1.0,,"Might it be that work that takes place outside of employment is more likely to be experienced as meaningful? And, if so, why? Several possible answers exist. The psychologist Edward Deci famously demonstrated that being paid for a task tends to decrease our intrinsic motivation, a phenomenon he explains in terms of the shift of the ‘locus of motivation’. Meanwhile, as I argued in ‘The Future We Deserve’, the logic of maximising productivity has made industrial-era employment an unprecedentedly anti-social form of work. More practically, though, are there ways we can build a better relationship between meaningful work and our ability to pay the rent?",/post/493,2016-07-23T08:17:41.000Z,2016-07-23T08:17:41.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1558 8167,v1.0,,"This experience reaffirmed my sense of the power of what people can do when they come together to work on something that matters to them. In particular, talking to those involved, I was struck by how positively many of them experienced using their skills as part of the Feast, when compared to their experience in regular employment. Might it be that work that takes place outside of employment is more likely to be experienced as meaningful? And, if so, why? Several possible answers exist. The psychologist Edward Deci famously demonstrated that being paid for a task tends to decrease our intrinsic motivation, a phenomenon he explains in terms of the shift of the ‘locus of motivation’. Meanwhile, as I argued in ‘The Future We Deserve’, the logic of maximising productivity has made industrial-era employment an unprecedentedly anti-social form of work. More practically, though, are there ways we can build a better relationship between meaningful work and our ability to pay the rent?",/post/493,2016-07-23T08:16:32.000Z,2016-07-23T08:16:32.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 8460,v1.0,,"This experience reaffirmed my sense of the power of what people can do when they come together to work on something that matters to them. In particular, talking to those involved, I was struck by how positively many of them experienced using their skills as part of the Feast, when compared to their experience in regular employment. Might it be that work that takes place outside of employment is more likely to be experienced as meaningful?",/post/493,2016-07-23T08:16:16.000Z,2016-07-23T08:16:16.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 10314,v1.0,,"Access Space: In Sheffield, England - another post-industrial city, similarly hit by unemployment in the early 1980s - the artist James Wallbank and friends set up what has become the UK’s longest-running free internet learning centre. As described by NESTA, ‘The centre brings together old computers and new open source software to create a radical, sustainable response to industrial decline and social dislocation.’ In conversation, Wallbank has emphasised to me the importance of the social and directional role of participation at Access Space: for those who have been long-term unemployed, the change in the shape of their lives on becoming a regular participant is often huge",/post/493,2016-07-23T08:15:49.000Z,2016-07-23T08:15:49.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1510 10301,v1.0,,"power of its insistence on self-referral: this means that participants are drawn from a range of social and economic backgrounds, rather than exclusively from a target group identified by its deprivation. This means that participation at the centre provides an alternative to - rather than a reinforcement of - a negative social identification.",/post/493,2016-07-23T08:15:06.000Z,2016-07-23T08:15:06.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1506 8166,v1.0,,"Centers for New Work: During the collapse in employment in the US auto industry in the early 1980s, the philosopher Frithjof Bergmann worked with employers, unions and community organisations in Flint, Michigan to create the Center for New Work. ‘We are in the beginning of a great scarcity of jobs,’ Bergmann argued, ‘but not of work.’ Instead of making redundancies, he proposed that employers share out the remaining jobs on a rotating work schedule. Workers would alternate between extended periods in traditional industrial work and similar periods pursuing ‘New Work’. The latter included local production to meet practical needs, but also the right of everyone to spend a significant amount of their time pursuing a personally meaningful project.",/post/493,2016-07-23T08:14:26.000Z,2016-07-23T08:14:26.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 8165,v1.0,,"I suggest that we look for two stages in projects that might constitute effective action on the level of meaning: first, the ability to substitute for employment in providing social identity and a sense of direction; and, second, the potential for this to lead to new means of meeting practical needs.",/post/493,2016-07-23T08:13:47.000Z,2016-07-23T08:13:47.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 8459,v1.0,,"I suggest that we look for two stages in projects that might constitute effective action on the level of meaning: first, the ability to substitute for employment in providing social identity and a sense of direction; and, second, the potential for this to lead to new means of meeting practical needs.",/post/493,2016-07-23T08:13:33.000Z,2016-07-23T08:13:33.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 6207,v1.0,,"The stories shared on the Edgeryders platform during 2011-12 illustrate the variety of ways in which young people find their access the labour market limited: not only through unemployment, but underemployment, casualisation and the prevalence of short-term contracts, the increasing cost of education in certain countries, the role of unpaid internships as a path to accessing certain industries. Where skills and qualifications have been acquired through formal education, many find themselves unable to secure work that makes use of these; where skills are acquired informally, the challenge is to represent these effectively to potential employers. Above all, the situation is defined by the interaction between two major processes: a long-term change in the structure of European labour markets, offering new entrants a poorer deal than had been the case for their parents’ generation, has been exacerbated by the effects of the economic crisis that began in 2008.",/post/493,2016-07-23T08:12:32.000Z,2016-07-23T08:12:32.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,442 8164,v1.0,,"he stories shared on the Edgeryders platform during 2011-12 illustrate the variety of ways in which young people find their access the labour market limited: not only through unemployment, but underemployment, casualisation and the prevalence of short-term contracts, the increasing cost of education in certain countries, the role of unpaid internships as a path to accessing certain industries. Where skills and qualifications have been acquired through formal education, many find themselves unable to secure work that makes use of these; where skills are acquired informally, the challenge is to represent these effectively to potential employers. Above all, the situation is defined by the interaction between two major processes: a long-term change in the structure of European labour markets, offering new entrants a poorer deal than had been the case for their parents’ generation, has been exacerbated by the effects of the economic crisis that began in 2008.",/post/493,2016-07-23T08:12:19.000Z,2016-07-23T08:12:19.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1047 7798,v1.0,,"Economic/Practical: How do I pay the rent? Social/Psychological: Who am I in the eyes of others? Directional: What do I get out of bed for in the morning? And where do I see myself in the future?",/post/493,2016-07-23T08:11:35.000Z,2016-07-23T08:11:35.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,947 8458,v1.0,,"The figure of the ‘graduate with no future’, identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov’s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason’s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.",/post/493,2016-07-23T08:11:14.000Z,2016-07-23T08:11:14.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 4481,v1.0,,"The figure of the ‘graduate with no future’, identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov’s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason’s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.",/post/493,2016-07-23T08:10:59.000Z,2016-07-23T08:10:59.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,5 6206,v1.0,,"The figure of the ‘graduate with no future’, identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov’s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason’s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.",/post/493,2016-07-23T08:10:38.000Z,2016-07-23T08:10:38.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,442 6205,v1.0,,"The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?",/post/493,2016-07-23T08:10:13.000Z,2016-07-23T08:10:13.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,442 8457,v1.0,,"that there is a powerful and complex interrelation between how we make a living and how we make sense of our lives. The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?",/post/493,2016-07-23T08:09:47.000Z,2016-07-23T08:09:47.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 7827,v1.0,,", despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.",/post/493,2016-07-23T08:09:20.000Z,2016-07-23T08:09:20.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,955 8456,v1.0,,"despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.",/post/493,2016-07-23T08:08:50.000Z,2016-07-23T08:08:50.000Z,493,3323,AnnotatorStore::TextAnnotation,,,,,,,,,460,1122 5608,v1.0,,"""Thanks to Sketchfab, Mike was able to send the 3D model of his wife’s skull to surgeons at both hospitals. Johns Hopkins claimed that their only recourse would be a full scalping to drill through the portion of his wife’s forehead above her eyebrow. UPMC, though, agreed to do it.""",/post/4112,2016-07-17T06:48:27.000Z,2016-07-17T06:48:27.000Z,4112,3323,AnnotatorStore::TextAnnotation,,,,,,,,,4079,351 8054,v1.0,,"Our task will be to explore how we may then model interaction between users,",/post/32719,2016-02-27T09:52:48.000Z,2016-02-27T09:52:48.000Z,32719,2464,AnnotatorStore::TextAnnotation,,,,,,,,,5227,1020