Conference paper Open Access

Data Protection by Design: Building the foundations of trustworthy data sharing

Stalla-Bourdillon, Sophie; Thuermer, Gefion; Walker, Johanna C.; Carmichael. Laura


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  <identifier identifierType="DOI">10.5281/zenodo.3079895</identifier>
  <creators>
    <creator>
      <creatorName>Stalla-Bourdillon, Sophie</creatorName>
      <givenName>Sophie</givenName>
      <familyName>Stalla-Bourdillon</familyName>
      <affiliation>University of Southampton</affiliation>
    </creator>
    <creator>
      <creatorName>Thuermer, Gefion</creatorName>
      <givenName>Gefion</givenName>
      <familyName>Thuermer</familyName>
      <nameIdentifier nameIdentifierScheme="ORCID" schemeURI="http://orcid.org/">0000-0001-7345-0000</nameIdentifier>
      <affiliation>University of Southampton</affiliation>
    </creator>
    <creator>
      <creatorName>Walker, Johanna C.</creatorName>
      <givenName>Johanna C.</givenName>
      <familyName>Walker</familyName>
      <affiliation>University of Southampton</affiliation>
    </creator>
    <creator>
      <creatorName>Carmichael. Laura</creatorName>
      <affiliation>University of Southampton</affiliation>
    </creator>
  </creators>
  <titles>
    <title>Data Protection by Design: Building the foundations of trustworthy data sharing</title>
  </titles>
  <publisher>Zenodo</publisher>
  <publicationYear>2019</publicationYear>
  <subjects>
    <subject>Data-Driven Innovation</subject>
    <subject>Data Protection by Design (DPbD)</subject>
    <subject>Data Trusts</subject>
    <subject>General Data Protection Regulation (GDPR)</subject>
    <subject>Organisational DPbD Process</subject>
  </subjects>
  <dates>
    <date dateType="Issued">2019-05-13</date>
  </dates>
  <language>en</language>
  <resourceType resourceTypeGeneral="Text">Conference paper</resourceType>
  <alternateIdentifiers>
    <alternateIdentifier alternateIdentifierType="url">https://zenodo.org/record/3079895</alternateIdentifier>
  </alternateIdentifiers>
  <relatedIdentifiers>
    <relatedIdentifier relatedIdentifierType="DOI" relationType="IsVersionOf">10.5281/zenodo.2789412</relatedIdentifier>
    <relatedIdentifier relatedIdentifierType="URL" relationType="IsPartOf">https://zenodo.org/communities/dfp17</relatedIdentifier>
  </relatedIdentifiers>
  <rightsList>
    <rights rightsURI="http://creativecommons.org/licenses/by/4.0/legalcode">Creative Commons Attribution 4.0 International</rights>
    <rights rightsURI="info:eu-repo/semantics/openAccess">Open Access</rights>
  </rightsList>
  <descriptions>
    <description descriptionType="Abstract">&lt;p&gt;Data trusts have been conceived as a mechanism to enable the sharing of data across entities where other formats, such as open data or commercial agreements, are not appropriate, and make data sharing both easier and more scalable. Although the form and purposes of data trusts are currently a topic of much academic discussion, a broadly accepted definition has not yet emerged. The concept of the &amp;lsquo;data trust&amp;rsquo; &amp;nbsp;requires further disambiguation from other facilitating structures such as data collaboratives. Irrespective of the terminology used, attempting to create trust in order to facilitate data sharing, and create benefit to individuals, groups of individuals, or society at large, requires at a minimum a process-based mechanism, i.e. a workflow, that should have a trustworthiness-by-design approach at its core. Data protection by design (DPbD) should be a key component of such an approach.&lt;/p&gt;</description>
  </descriptions>
  <fundingReferences>
    <fundingReference>
      <funderName>European Commission</funderName>
      <funderIdentifier funderIdentifierType="Crossref Funder ID">10.13039/501100000780</funderIdentifier>
      <awardNumber awardURI="info:eu-repo/grantAgreement/EC/H2020/732506/">732506</awardNumber>
      <awardTitle>Accelerating data to market</awardTitle>
    </fundingReference>
  </fundingReferences>
</resource>
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