Proposal Open Access

Backpack – Person Centred Health, Care and Wellbeing

Nicolas Van Labeke

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<oai_dc:dc xmlns:dc="" xmlns:oai_dc="" xmlns:xsi="" xsi:schemaLocation="">
  <dc:creator>Nicolas Van Labeke</dc:creator>
  <dc:description>The proposal seeks to understand the personal behaviours, journeys and access points of Multiple Sclerosis (MS) citizens, in order to build out an eco-system for a Personal Data Store (PDS) and elicit issues around personal control over personal data.
Research and recent reports highlight the urgent need for more integrated person-centred services as a means of delivering better patient outcomes, better clinical outcomes and better economic outcomes. Different implementation scenarios carry different configurations of cost, risks and benefits for different stakeholding gro ups, and the implementation of digital services has suffered in the past from lack of co-production or consultation with people and stakeholders on the ground before implementation.
The proposed project will enable a group of citizen participants (plus organisations and their representatives) to interact in person-centred scenarios. These individuals may have long termconditions or professional interests with such condition – we have identified Multiple Sclerosis (MS) as a potential starting point – and we will identify needs, barriers, benefits and co-produce implementation scenarios.</dc:description>
  <dc:subject>Experience Labs</dc:subject>
  <dc:subject>Multiple Sclerosis</dc:subject>
  <dc:subject>Personal Data Store</dc:subject>
  <dc:title>Backpack – Person Centred Health, Care and Wellbeing</dc:title>
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